Podcasts about hypoplastic

In this  episode of Inspired Voices, Cath and Adam sit down with Derek Russell, as he recalls his fundraising journey which has taken him all over the world to raise vital funds for Alder Hey in memory of his granddaughter Lillian.Lillian was born in 2004 with a congenital heart condition called Hypoplastic left heart syndrome which occurs when the left side of the heart is underdeveloped. The condition affects blood flow through the heart and requires an operation soon after birth. Sadly, Lillian passed away at just 6 days old, and Derek decided to fundraise in her memory to make a difference for other parents, grandparents and families in his position.In the past 10 years, Derek has raised tens of thousands of pounds for Alder Hey Children's Charity, with his fundraising taking him on countless challenges around the world, including the Grand Canyon and Kilimanjaro. With every challenge Derek continues to bring his infectious personality and positive outlook on everything, inspiring numerous fundraisers through the years.Derek tells us his story in this open and honest discussion with Cath and Adam. *Episodes of Inspired Voices may contain references to medical procedures and real life stories, which some listeners may find upsetting.Support the show

In this week's episode, we'll discuss pembrolizumab after autologous stem cell transplantation in patients with peripheral T-cell lymphoma. Newly reported phase 2 study results show that blocking PD-1 with pembrolizumab had a favorable safety profile and demonstrated promising activity, supporting further confirmatory studies in this setting; germline genetic predisposition to myeloid neoplasms in patients with hypoplastic bone marrow. Researchers report mutations that are significantly associated with cytopenias in adulthood in these patients. And pathogenic or likely pathogenic variants were linked to severe cytopenias and advanced myeloid malignancies; and finally, if monocytes and their descendants are less plastic than previously thought. Investigators have identified four functionally specialized monocyte subsets that derive from specific myeloid progenitor lineages. They show that the fate of these monocyte subsets is epigenetically scripted, with little flexibility after differentiation begins, even under conditions of stress.

Helen is a 21-year-old German American who moved to Texas with her parents from her hometown Cologne, Germany when she was 6! When she was 16, Helen's health began to deteriorate after a mononucleosis infection. Since then, Helen has been diagnosed with many things Including chronic inflammatory response syndrome (CIRS) caused by mold and actinomycetes exposure, Hypoplastic bone marrow leading to bone marrow failure, heavy metal toxicity, and genetic blood disorders such as hereditary spherocytosis. All these conditions have severe downstream effects that she is managing with the carnivore diet in addition to targeted treatments such as the Shoemaker Protocol and mineral balancing. Helen has had blood transfusions, brain/nervous system injury and lost over half her body weight due to malabsorption and gut distress as a consequence of toxicity. Helen enjoys nature, cooking, and working out in her free time and is beyond grateful for all the lovely people that support her on the daily! Timestamps: 00:00:00 Trailer and introduction. 00:01:41 Diagnosed with chronic inflammatory response syndrome (CIRS). 00:06:00 Teenager battles health issues, seeks self-help. 00:09:00 Obesity, migraines, infection, antibiotics, genetic condition, blood cells. 00:11:36 Doctors dismiss gluten-free diet despite toxicity theory. 00:15:00 Gastro tests, exosome treatment, carnivore diet success. 00:16:56 Weight gain, improved health, better energy levels. 00:21:28 Shoemaker protocol . 00:25:25 Genetic predisposition affects recovery from CIRS. 00:26:53 Three meals a day, hotdogs, waffles, steak. 00:30:43 Struggling to focus, but diet helps. 00:35:14 Lack of practical tips, unexpected surprises, negatives. 00:37:14 Western medicine criticized, alternative treatments questioned.  00:42:53 Carnivore diet helpful for obese people. 00:46:24 Seek other options for health improvement.  00:47:09 Where to find Helen. See open positions at Revero: https://jobs.lever.co/Revero/ Join Carnivore Diet for a free 30 day trial: https://carnivore.diet/join/ Carnivore Shirts: https://merch.carnivore.diet Subscribe to our Newsletter: https://carnivore.diet/subscribe/ . ‪#revero #shawnbaker #Carnivorediet #MeatHeals #HealthCreation   #humanfood #AnimalBased #ZeroCarb #DietCoach  #FatAdapted #Carnivore #sugarfree  ‪

#14 Frank and Anna Jaworski's baby, Alex, was born in 1994 and was seemingly ok...to the doctors and nurses. Frank and Anna disagreed. Alex was showing many symptoms of concern including not feeding well, tachycardia, not gaining weight, jaundice, and lethargy. Frank and Anna were continuously gaslighted until Alex's problems became emergent at just two months old. From there, a miracle began to take shape as Alex eventually landed in the right doctor's arms and a diagnosis was made: hypoplastic left heart syndrome. Alex would undergo three open-heart surgeries in before he was 18 (we cover two in this episode) all at University Hospital in San Antonio, Texas.This story is an incredible story of hope and highlights the importance of listening to your instinct and advocating for your child(ren). Anna speaks interchangably about Alex and Hope. Alex made the transition to a woman in her early 20s and now goes by Hope. I hope to have Hope on this podcast soon.Anna is now a fierce advocate for those suffering with congential heart defects. You can find her, her podcasts, and other resources at www.heartsunitetheglobe.orgHer publishing company is www.babyheartspress.com. Medical terms used in this podcast include:Hypoplastic left heart syndromesingle ventricle Norwood procedurebi-directional GlennHemi-Fontan procedureB-T-T shunt (Blalock-Thomas-Thomas shunt)Dr. Park was Alex's former cardiologistDr. John Calhoon is Alex's cardiothoracic surgeonASD = atrial septal defectVSD = ventricular septal defectTGA = transposition of the great arteriesPDA = patent ductus arteriosusPFO = patent foramen ovaleAnna's books:"Hypoplastic Left Heart Syndrome: A Handbook for Parents""The Heart of a Mother""The Heart of a Father""The Heart of a Heart Warrior" (this is my newest book)websites:www.heartsunitetheglobe.orgwww.babyheartspress.comWebsite: The Heart Chamber (theheartchamberpodcast.com)Transcript: Joyful Beat | The Heart Chamber (theheartchamberpodcast.com) The Heart Chamber (@theheartchamberpodcast)Thanks to Michael Moeri for being my right hand man. Michael Moeri - Audio Editor, Podcast Producer and Marketing Director

Heather's world turned upside down when she found out that her youngest baby girl would be born with a congenital heart defect and Heterotaxy. Heather and her husband came to the conclusion that they had to do everything in their power to provide Madi with the greatest care.   Heart Mom Heather Speakman tells us her Heart Baby story in this episode. Heather has had to deal with the most difficult scenarios when it comes to being a Heart Mom as she fights her daughter's battle with heterotaxy and hypoplastic left heart syndrome.   Follow her as she takes us on a journey filled with love, gratitude, and support through the highs and lows of her experience with a Heart Baby–and shares the purpose that her angel brought to her.   Discussed on this episode: What is Hypoplastic left heart syndrome and Heterotaxy? What is ECMO? What does Heather do now? What advice could Heather give to those who experience the same situation as hers?   Key Points: Getting to know Heather Speakman. Maddie as a heart baby Madi's diagnosis Preparing for the worst Finding support with other heart moms and care team The highest and lowest part of being a heart mom. Why did Maddie need to undergo ECMO Series of ups and down Maddue encountered Conversations of Maddie's progress Giving gratitude to medical workers who handled Maddie. The purpose of Maddie was given to Heather. Telling Maddie's story and being a heart baby. Heather as Maddie's voice. Heather's advocacy and awareness towards CHD.   Quotables: "Remind that in every pain even if it sucky, hard, and ugly there's also a purpose in it."   "There is nothing wrong or shameful in accepting help."

Following a normal first trimester, a pregnant patient starts spotting. The patient's care provider books an urgent ultrasound to see what is causing the bleeding. The main concerns are if the spotting is caused by a miscarriage or something else.Following the ultrasound, the technician calls in obstetrician Dr. Ashley Brant to review the results with the patient. There is a problem with the fetus' heart — specifically, a condition called hypoplastic left heart syndrome. Essentially, the left side of the heart doesn't develop normally and can't pump blood in the way that it should.Hypoplastic left heart syndrome causes poor oxygenation, meaning the skin can be bluish or with dark discolorations. It also causes difficulty breathing, feeding, and lethargy. Treatment includes multiple surgeries after birth, and can even require a heart transplant. Without treatment, the condition is fatal.The patient is offered genetic testing to determine if the heart condition is a symptom of a larger genetic disease. Regardless, the prognosis is grim.The patient meets with Dr. Brant to discuss all of the options, including continuing or ending the pregnancy. “I think everybody who's in a situation where they're thinking about ending a pregnancy because of a major fetal anomaly, they are thinking about what is the kindest decision, the most loving decision that they can make for their baby,” shared Dr. Brant. “Nobody wants to be in this position. And they're thinking about what the experience is going to be like for this child.”The patient makes the decision to end the pregnancy through the dilation and evacuation method. However, the procedure cannot be performed in the state because of a heartbeat law in place at the time. And so Dr. Brant refers the patient to an out-of-state clinic where the initial procedure to stop the heartbeat can be performed. But, in order to be where the patient has the support of the medical team she knows and who has been by her side, the patient returns to her home state for the final procedure. “No one ever envisions themselves needing an abortion. No one ever thinks, ‘I want to have an abortion,' before they're in a position of needing one. I would just encourage compassion and empathy and trying to understand the life that someone else might be walking in.”

$5 Q-BANK: https://www.patreon.com/highyieldfamilymedicine Intro 0:30, Fetal circulatory system 2:00, Persistent fetal circulation 6:38,  Patent ductus arteriosus 8:02, Differential cyanosis 8:40, CCHD screening 9:24, Common themes 10:39, Non-cyanotic heart defects 13:26,  Ventricular septal defects 14:08, Atrial septal defects 15:35, Eisenmenger syndrome 16:28, Aortic and pulmonary stenosis 17:42, Coarctation of the aorta 18:42, Double aortic arch 19:53, Interrupted aortic arch 21:07, Cyanotic heart defects 21:34,  Tetralogy of Fallot 23:39, Transposition of the great arteries 28:03, Hypoplastic left heart syndrome 29:47, Persistent truncus arteriosus 31:09, Partial and total anomalous pulmonary venous connection 33:01, Scimitar syndrome 35:04, Tricuspid and pulmonary atresia 36:03, Prostaglandin E1 indications 36:31, DiGeorge syndrome 38:08, CHARGE syndrome 38:42, Dextrocardia 39:06, Situs inversus and total situs inversus 39:16, Ebstein anamoly 40:04, Noonan syndrome 40:34, Turner syndrome 41:11, Down syndrome 41:28, Marfan syndrome 40:52, Congenital heart blocks 43:03, Practice questions 43:27

Kelly – TFMR Mamas Stories- 10 years after saying goodbye to baby Ella. Kelly and I recorded this conversation last year and this year marks 10 years since Kelly said goodbye to baby Ella and we have decided to release this on her 10 year anniversary as a podcast to honour her memory. Kelly already had a living child and was pregnant with her second child, it never entered Kelly's head that something like this could happen to her and her family. After the 12-week scan came the first indication that there was a health condition with the baby she was carrying with a 1 in 5 chance that there was a chromosomal condition. After the initial NIPT test the results came back all low risk and they were told that everything was looking fine. Despite receiving the news that everything was fine Kelly entered the 20-week scan so anxious and this has been carried with her and will remain with her and did remain with her throughout the rest of the pregnancy and her subsequent pregnancy. At the 20 weeks scan the sonographer tells them the sex of their baby and then started to take a closer look at the heart and that they could see something wasn't quite right that they need to raise this with a consultant. This news came on a Friday at 5pm, so Kelly had to wait until the next day to see Fetal medicine where she was told that her baby girl had Hypoplastic left heart syndrome (HLHS), where the very best option would be a heart transplant and their baby may not make it to and past birth. After seeking a second opinion at a specialised London hospital they made the heart-breaking decision to say goodbye to their precious baby Ella and make the arrangements to have a termination for medical reasons. Directly following the birth of Ella, Kelly experienced medical complications which overshadowed how Kelly was able to interact with Ella in those precious moments after birth. We talk about the importance of health care professionals offering all possible options, opportunities and chances to the parents for making decisions, making memories and gathering information on their babies as these moments only happen once. Kelly also shares with me how she honours Ella and holds her memory and how Ella is a part of their family with their living children.. Thank you so much for sharing your precious baby with me x x x You can find more details of how to access our support groups HERE If you would like to financially support the work we do, you can find the link HERE to find something that feels right for you. Thank you so much for any support you can offer and for listening to help raise awareness and provide support to parents who have lost their babies due to Termination for medical reasons, Termination due to maternal/birthing persons health. Register to receive info on Support groups Website www.tfmrmamas.com Instagram @tfmrmamas facebook @tfmrmamas Twitter @tfmrmamas --- Send in a voice message: https://anchor.fm/tfmr-mamas/message

ETB 34:  In this episode I talk with Beth Haas, teacher and mother of 3 beautiful daughters about her oldest daughter, Annalee who has Down syndrome.   During the 18th week of Beth's first pregnancy, she and her husband John were told their unborn baby had hypoplastic left heart syndrome and was probably not going to be compatible with life.  Hypoplastic left heart syndrome (HLHS) is a birth defect that affects normal blood flow through the heart. As the baby develops during pregnancy, the left side of the heart does not form correctly.  Without surgery, hypoplastic left heart syndrome is deadly, usually within the first few days or weeks of life.  With treatment, many babies survive, although most will have complications later in lifeWhen they learned at birth that Annalee's diagnosis was Down syndrome, not hypoplastic left heart syndrome, it was a miracle. Annalee was in the NICU for a while and had open heart surgery at 23 months.  She also was unable to have thin liquids without aspirating them into her lungs, so initially she had an NG tube.  All of her liquids needed to be thickened for years, but with therapy and training and the right kinds of straws, Annalee eventually learned not to aspirate. Now at age 17, Annalee is included in general education classes, participates in student council and was also invited to be a part of the Groundbreaker's Leadership team at her high school.She takes classes at the Kennedy Dance Studio, has choreographed her own dances, going all the way to the national level in the PTA Reflections Annual Art Contest under the category of Dance Choreography and brought home a bronze medal this year.  She has her own Youtube channel where you can see her perform some of her dances.Annalee will be in the TET (Teacher Education Training) Class at high school this year,  teaching classes in the same elementary school where her mom teaches.  TET provides high school students with teaching experiences to determine whether or not they would like to pursue a career in public education.  The goal is for Annalee to get a certification to become a teacher's assistant. Teaching Your Child with Special Needs To Ride A Bicycle in 4 Easy Stepshttps://twominuteparenting.com/how-to-teach-your-child-with-special-needs-to-bike-in-4-easy-steps/Kennedy Dance Theatre:https://www.kennedydance.com/PTA Reflectionshttps://www.pta.org/home/programs/reflectionsConnect with Annaleehttps://www.youtube.com/channel/UCQrw1d2I2ShE0tcecHJBQbAConnect with SandyIG: https://www.instagram.com/sandydeppischEmbrace the Blessing Facebook Group: http://bit.ly/ETB4MEWebsite: http://www.embracetheblessing.com/

Anna Jaworski is an author, publisher and public speaker. Most importantly, Anna Jaworski is the mother of two sons -- one who has a severe, congenital heart defect (CHD) known as "hypoplastic left heart syndrome."Anna has written two books: Hypoplastic Left Heart Syndrome: A Handbook for Parents and My Brother Needs an Operation. She is a contributor to The Heart of a Mother -- an anthology of stories by mothers affected by CHDs. Anna also edited both The Heart of a Mother and The Heart of a Father (the companion book to The Heart of a Mother.) Anna Jaworski has also contributed to two medical textbooks on hypoplastic left heart syndrome and a nursing magazine.Anna Jaworski is not a nurse or a doctor. She is a mother who has made it her goal in life to help other families of children with CHDs. To do so, in addition to producing helpful resources through her publishing company Baby Hearts Press, she has also worked with Sue Dove (another "heart mom") to create two websites: www.babyheartspress.com and www.congenitalheartdefects.com******************************************************************To listen to all our XZBN shows, with our compliments go to: https://www.spreaker.com/user/xzoneradiotv*** AND NOW ***The ‘X' Zone TV Channel on SimulTV - www.simultv.comThe ‘X' Chronicles Newspaper - www.xchroniclesnewspaper.com ******************************************************************

Pedo full mouth tooth extractions? Distal shoe candidates? Hypoplastic 6-year molars? Distals of primary canines? Today we talk about all of the things that make us cringe as pediatric dentists. How do you handle these tough restorative situations? As pediatric dentists, the dentistry we do is both incredibly simple, yet incredibly complex and challenging at the same time. Dr. Tyler Johnson is a practicing pediatric dentist out of Grand Forks, North Dakota, who joins host Dr. Casey Goetz. They break down how to tackle these difficult clinical scenarios, and discuss different strategies for caries management when the clinical restorability is not "bread and butter." *** Sorry about missing last week's episode, I was out of vacation and wasn't able to get an episode uploaded. I've got a string of great guests coming up in the following weeks. Don't forget to continue to send in any questions, comments, or tough clinical situations to cgoetz@troypediatricdentist.com for our next Pedo Pearls Power Hour.

Today we talked to Hannah who share's Imogen's story.  Imogen was diagnosed at Hannah's 20 week scan with: - Coarctation of the Aorta - Hypoplastic left ventricle - Bicuspid valve (diagnosed after birth) - Hypoplastic aortic arch As a result of surgery Imogen also experienced: - Diaphragm palsy - Vocal cord palsy Hannah talks so candidly about her experience, and there are times within our chat where it became quite emotional so this could be triggering for some listeners.  Hannah shares her experience of having an amniocentesis, having a baby during Covid and being sick on her husband's arm! Links to websites mentioned on the podcast: British Heart Foundation: https://www.bhf.org.uk/informationsupport/publications/children-and-young-people/understanding-your-childs-heart---coarctation-of-the-aorta Tiny Tickers parents group: https://www.tinytickers.org/virtual-parent-support-groups/

Hypoplastic Left Heart Syndrome - Anna Jaworski is an author, publisher and public speaker. Most importantly, Anna Jaworski is the mother of two sons -- one who has a severe, congenital heart defect (CHD) known as "hypoplastic left heart syndrome."Anna has written two books: Hypoplastic Left Heart Syndrome: A Handbook for Parents and My Brother Needs an Operation. She is a contributor to The Heart of a Mother -- an anthology of stories by mothers affected by CHDs. Anna also edited both The Heart of a Mother and The Heart of a Father (the companion book to The Heart of a Mother.) Anna Jaworski has also contributed to two medical textbooks on hypoplastic left heart syndrome and a nursing magazine.Anna Jaworski is not a nurse or a doctor. She is a mother who has made it her goal in life to help other families of children with CHDs. To do so, in addition to producing helpful resources through her publishing company Baby Hearts Press, she has also worked with Sue Dove (another "heart mom") to create two websites: www.babyheartspress.com and www.congenitalheartdefects.comFor Your Listening Pleasure all the radio shows available on The 'X' Zone Broadcast Network with our compliments, visit - https://www.spreaker.com/user/xzoneradiotv.Our radio shows archives and programming include: A Different Perspective with Kevin Randle; Alien Cosmic Expo Lecture Series; Alien Worlds Radio Show; America's Soul Doctor with Ken Unger; Back in Control Radio Show with Dr. David Hanscom, MD; Connecting with Coincidence with Dr. Bernard Beitman, MD; Dick Tracy; Dimension X; Exploring Tomorrow Radio Show; Flash Gordon; Imagine More Success Radio Show with Syndee Hendricks and Thomas Hydes; Jet Jungle Radio Show; Journey Into Space; Know the Name with Sharon Lynn Wyeth; Lux Radio Theatre - Classic Old Time Radio; Mission Evolution with Gwilda Wiyaka; Paranormal StakeOut with Larry Lawson; Ray Bradbury - Tales Of The Bizarre; Sci Fi Radio Show; Seek Reality with Roberta Grimes; Space Patrol; Stairway to Heaven with Gwilda Wiyaka; The 'X' Zone Radio Show with Rob McConnell; Two Good To Be True with Justina Marsh and Peter Marsh; and many other!That's The ‘X' Zone Broadcast Network Shows and Archives - https://www.spreaker.com/user/xzoneradiotv

Episode 75: Hypoplastic Left Heart Syndrome With Guests Dr. Thomas Glenn and Tawanna Nishibayashi In this episode, we discuss hypoplastic left heart syndrome. Dr. Thomas Glenn discussed that the condition is a congenital heart disease where the left side of the heart is underdeveloped. Nowadays, a diagnosis is done prenatally, but once kids are born, the diagnosis is confirmed via an echocardiogram. Doctors also test the saturation around the baby’s body before they go home to make sure the baby is ok. If the condition is not diagnosed prenatally, visible symptoms might include blue color to the child, changing breathing pattern, fast breathing, the child having a difficult time breathing, perfusion being different, mottling of extremities, and the child not feeding initially. This is a condition that can only be treated at 10-15 centers around the country, successfully, so it important to catch this condition early. The main treatments are surgery, transplant, or palliative care. The three main surgeries include the Norwood, Glenn, and Fontan. The goal of these surgeries is to get the right side of the heart to do what the left side would have done and then to redirect the blood from the heart to the lungs. During the early periods, these kids are followed every week and have echocardiograms at least once a week. Medications are always needed. Parents need to be careful about the exposure the children have to other people during the interstage phase. Dr. Glenn shared his personal experienced with Hypoplastic left heart syndrome. Tawanna Nishibayashi’s daughter Avery was also born with that condition. Tawanna shares Avery’s story. Avery had a complex case, fraught with complications, including needing a Berlin heart and a heart transplant with rejection, and injury to other bodily organs.     Some possible complications of the condition and surgery include involvement of the liver, kidney, and needing NG tubes for feeding. There is a possible need for a heart and liver transplant in adulthood. A lot of patients have to deal with PTSD, anxiety, and depression. These children may not grow as fast as their peers and may experience developmental delays. Factors contributing to this is frequent anesthesia, lower saturations, abnormal brain development in utero, and spending a lot of time in the hospital. Tawanna recommends that once you have found out that your child has this condition, take time to process. Begin the morning process early (of a normal pregnancy, baby shower) and the death of normalcy. Process the length of time your child might be in the hospital. Learn the science as much as you can, including treatments, outcomes, mortality, conditions, centers, procedures, surgeons, care teams, follow up, and support. Be an advocate for your child. Develop a relationship with your team. Expect the unexpected and prepare for that as much as you can. Quality of life is also an issue for children, including ICU psychosis, aspiration, feeding troubles, nausea, and trust issues. Moreover, parents often experience PTSD and CPTSD. To prepare the children for medical appointments, cluster care, read books with them about the procedure, watch shows about doctors and shots, have the child hold the stethoscope, get their permission, let them know what to expect, bring their favorite things, and maintain a routine. Be prepared for financial difficulty. Often, one parent is no longer able to work due to helping their child. Sometimes, neither parent can work, in order to care for the child. Treatments, procedures, medical equipment, medications, anything insurance doesn’t cover, outside therapies, hospital stays, home health nurses, parking, food, laundry, and groceries all factor into financial difficulties. For advocacy, use your voice. Ask a lot of questions. Attend all the rounds. Spend a lot of time with your child. Have someone with your child as often as you can. Keep in touch with your support team, even while you are outpatient. Being a medical mom can be very challenging, as it is intensive, time consuming, people might not understand, and you have less time for fun things. Expect the unexpected. Roll with the punches. Other coping strategies include hospital relationships, carving out your own quiet time, having a routine, learning to ask what you need, taking time outside of the hospital and get fresh air, yoga, and music therapy. Links: Dr. Glenn: Glenntm3@gmail.com LinkedIn Tawanna:  Tawanna.nishi@icloud.com Website Instagram LinkedIn      Hypoplastic Left Heart Symptoms Facebook group Heart Camp- Camp Delcorazon Children’s Heart Foundation ParentWise   Email us if you have any questions or ideas! We are now on instagram! Check out updates on our website. Follow Thriving on Twitter. Check us out on Facebook! We are also on Pinterest!     Please subscribe to our podcast in the iTunes store, or wherever you find your podcasts, Leave us a 5-star review, to help us know what you like and what you don't like, and to make sure other like-minded people find support through this podcast. Show Music: Intro Outro: Intro Outro 2 by Mattias Lahoud under CC-BY 3.0 License (www.freesound.org) Theme Song: 90s rock style by monkeyman535 under CC-BY 3.0 License (www.freesound.org) Self Care Song: Green and Orange No Water by Duncan Alex under CC-BY 3.0 License (www.freesound.org)   Hosted by: Jessica Temple    Disclaimer: Our show is not designed to provide listeners with specific or personal legal, medical, or professional services or advice. Parents of children with health issues should always consult their health care provider for medical advice, medication, or treatment. Copyright 2021 Jessica Temple

Larissa Petfield is mum to 3 girls in rural Queensland. She lives on a cattle station. Her home ‘Attica Station' is located about 120km out of Augathella and it's 30kms to hop over to her neighbours. Larissa grew up in Kingaroy. When she first fell pregnant, knowing 36 week relocation was necessary to access birthing facilities, Larissa chose to birth in Kingaroy with a known GP/Ob. Relocating to her parents house meant that she had prior knowledge of the hospital staff and this helped her to feel supported. She went into labour shortly after relocation, in her 38th week of pregnancy. She laboured during the day, through intense back pains, before discovering her daughter was presenting posterior and breeched. She was in highly active labour when she and her team decided to redirect and she birthed her daughter via unplanned emergency c-section. Her postpartum was well supported by a group of powerhouse playgroup mums in Augathella and Larissa readily drove the hour and a half for this connection and support. Larissa felt very supported by the staff present at her first daughter's birth and so when she fell pregnant again she reactivated her care plan. She was planning a VBAC but changed plans after having a reaction during the induction. Her first and second daughter were born close together, after fertility consultation in Toowoomba; however, they waited a little longer before trying for number 3. Larissa's youngest daughter is a survivor. During Larissa's 20 week scan her daughter was diagnosed with serious heart defects. Young Annie presented with: 1. Pulmonary valve stenosis 2. Hypoplastic right ventricle 3. a large ASD 4. VSD 5. Bilateral Superior Vena Cavae with LSVC draining to coronary sinus So for Larissa's third pregnancy she required specialist care via Brisbane's Mater Mothers. Larissa and her husband have been faced with a challenging journey through gestation and early childhood monitoring and surgery. At times they felt highly supported but there were times when medical support people laid judgement and conversations around late term termination were difficult for them to endure. Larissa birthed her third daughter via planned c-section at Mater Mother's and now at four years old she is their families little miracle. Larissa has traversed back through this emotional experience in hopes that others, who are faced with similar circumstances and isolated from medical assistance, know help is accessible.

Hypoplastic left heart syndrome (HLHS) is a birth defect that affects normal blood flow through the heart. As a baby develops during pregnancy, the left side of the heart does not form correctly. Ava Weitl, now a first grader, was born with HLHS. She had her first heart surgery the day she was born. Now she is part of pioneering research at Mayo Clinic. On this episode of Mayo Clinic Q&A, Ava and Dr. Timothy Nelson, director of the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome at Mayo Clinic, will share her story.

Pediatric patients with suspicion of congenital heart abnormalities can be very intimidating! In this week's podcast Jacob speaks with one of our pediatric POCUS experts regarding congenital heart abnormalities and how the average provider might be able to evaluate them.  Your point-of-care exam should never replace a cardiology-performed echo, but your exam can definitely help you in your work-up.  Here are Russ's tips: Hypoplastic left heart - Look for a small left ventricle Coarctation of the aorta - Look at the pulsed-wave Doppler waveform of the abdominal aorta Heart failure - Look at the lungs

Hear the amazing story of Meagan Houpt who reveals how she has lived with Hypoplastic Left Heart Syndrome since birth. This is truly an amazing story of strength and motivation that you don't want to miss. Meagan reveals her unique health journey and it is full of inspiring messages. Surgeries and doctor's don't slow Meagan down from helping others with this terrible disease. Don't miss the Revealing Healing of Meagan Houpt!

The birth of a child is one of life's greatest experiences; the emotional and lasting impact has consequences that will last a lifetime and beyond. When that birth becomes compromised with a life-threatening birth defect, your world is immediately forced into a tailspin of unimaginable emotions. This is a story of two lives on two different paths that would come together with a shared goal and vision of helping countless families not just survive, but thrive in some of the most challenging circumstances. They met under the most unusual circumstances while attending a National Congenital Heart Defects fundraising event in the fall of 2015, a meeting that would change their world forever. The first path, Leslee and Jason Schneider, their daughter Lexi was born with a rare heart condition; Hypoplastic left heart syndrome. Without surgery soon after birth, the condition would be fatal. They were given three options: abort the baby, let it develop within its natural life span or take surgical measures to address the defect. They chose to fight for the survival of their daughter. It would be a journey of hope, persistence and faith that would test them like never before. The other path, Brittany and Brady Griffith had just minutes as they rushed into the operating room to hold their newborn son Liam. He was born with Transposition of the Great Arteries (TGA), Double Outlet Right Ventricle (DORV), Ventricular septal defect (VSD) and Pulmonary Stenosis. 21 hours old after enduring open heart surgery, Liam's life was cut short. Brittany explains the driving principle of Romans 5:3-5 changed everything for her. "We rejoice in our sufferings, because we know that suffering produces perseverance; perseverance, character; and character, hope. And hope does not disappoint us, because God has poured out his love into our hearts by the Holy Spirit, whom he has given us." Their story continues on the Brink of Greatness Podcast… The Next Leap Forward Life has a way of connecting like-minded people with a common goal. As you will discover, the work that Leslee and Brittany and their families are doing is remarkable. They have turned their tragedy into their life’s purpose. The Lexiam Heart Foundation was founded in February 2018, to encourage and help other families affected by Congenital Heart Defects (CHDs). Their goal is to comfort and provide support to children and their families that have been impacted by CHDs. DONATE TO LEXIAM HERE TO MAKE AN IMPACT For Further Insight: Website: http://lexiamheartfoundation.org/ Follow on Twitter: https://twitter.com/lexiamheart

In this episode Shree Basu and Ahmed Osman discuss the tricky issues surrounding management of paeds CICU patients with a single ventricle. From IntensiveCareNetwork.com

Hypoplastic left heart syndrome (HLHS) is a critical congenital heart defect -- meaning that surgery within the first year of life is necessary to survive. Several decades ago, HLHS was uniformly fatal (except in some very rare cases) and most infants died within the first month of life. Since the 1980s there have been efforts made to save babies with HLHS. The results have been amazing. Now the success rate for babies born with HLHS is at an all-time high. What advancements have been made? What current treatments are most promising? What new treatments are on the horizon? Dr. Edward L. Bove is known throughout the world as "the man with the golden hands" because of his surgical skill working on babies with critical congenital heart defects. He joined the faculty at the University of Michigan as director of Pediatric Cardiovascular Surgery and became Head of the Section of Cardiac Surgery in 1999. He has given hundreds of presentations on heart surgery around the world. He has served on numerous committees including the American Heart Association, the Society of Thoracic Surgeons, the American Association for Thoracic Surgery, and the American Board of Thoracic Surgery. Dr. Bove serves on a number of editorial boards, has published over 300 manuscripts, dozens of book chapters, and edited two books. Dr. Bove is Anna's featured Guest today and he'll answer the questions posed above and much, much more! If you, or someone you love, has HLHS, you won't want to miss this program!Support the show (https://www.patreon.com/HearttoHeart)

Hypoplastic left heart syndrome (HLHS) is a birth defect that affects normal blood flow through the heart. As a baby develops during pregnancy, the left side of the heart does not form correctly. Ava Weitl, now a first grader, was born with HLHS. She had her first heart surgery the day she was born. Now she is part of pioneering research at Mayo Clinic. On this episode of Mayo Clinic Q&A, Ava and Dr. Timothy Nelson, director of the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome at Mayo Clinic, will share her story. Advertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy