I’ve spent the last several years trying to figure out how to live my best life with Meniere’s disease and vestibular migraine. I have learned just how important connection is with other vestibular warriors. Through support, stories, conversation and tears, we have shared through social media, we’ve found a community of amazing people that lean on and support each other. I want this podcast to reach other vestibular warriors regardless of their diagnosis or where they are on their journey, to let them know they aren’t alone and living a beautiful life, despite these symptoms, is possible.
What does support really look like when you have a chronic illness? In this deeply personal episode, I share an essay I wrote during the early days of my dizzy journey, a time marked by misdiagnosis, fear and overwhelming change.This episode is more than a reflection. It's a conversation about how support shows up, through partners, children, faith communities and sometimes even in the quiet spaces we least expect. In this episode, I share what it's like to be held with compassion and how we can find or build meaningful support when it doesn't come easily.Whether you have a strong support system or you're still searching for one, this episode is for you. You are seen, you are believed, and you are not alone.VeDA Support Groups Online Support Groups - Vestibular Disorders AssociationLara's private FB Support Group (2) Mummy Seeing Double Support Group | Facebook“8 Minute, One Connection” S3E52 The podcast episode Heather shares about when you need support from a trusted friend https://open.spotify.com/episode/0XWstWOI5u1LU6F1el00cj?si=drl2SefMTDe6f9k58tdWuAIf you would like more information on vestibular disorders www.vestibular.orgIf you would like to reach out to me, Heather, please email me at Menieresmuse@gmail.com or find me on Instagram Thank you for being here! Don't forget to link, share and subscribe!#support #supportgroups #menieres #SCCD #vestibularmigraine #medicallyretired #familysupport #vestibular #onlinesupportgroups
In this episode of Vestibular Minutes, we're talking about something that's both sensitive and important—how to recognize red flags when someone promises a "cure" for Meniere's disease. While it's natural to hope for relief, not all advice out there is trustworthy, and some people may use scientific language or emotional pressure to take advantage of vulnerable moments.Join me as we unpack how to protect ourselves and each other and why trusting your intuition is one of the most powerful tools you have. Real hope doesn't come from false promises, it comes from community and clarity.Find me on InstagramEmail me at menieresmuse@gmail.comFor more information on vestibular disorders www.vestibular.orgVeDA also has a helpline for dizziness, imbalance and/or vertigo 1-800-837-8428
In this 1st episode of Vestibular Minutes of the Meniere's Muse Podcast, we explore the power of asking for support using the simple question: "Do you have 8 minutes?" Inspired by a thought-provoking reel by Simon Sinek, Heather discusses how just eight minutes of someone's time can bring comfort, build trust, and deepen emotional connections, especially for those navigating the challenges of vestibular disorders. Learn how to signal your need for help and create meaningful moments of connection in just a few minutes. To connect with me in Instagram Email me Watch reel with Simon Sinek on this theory For more information on vestibular disorders visit the VeDA website VeDA has a help line for dizziness, imbalance and/or vertigo 1-800-837-8428 Suicide and crisis line in the USA, 988 If you require further medical attention, please reach out to your local emergency services or call 911-if in the USA.
I learned a lot during my unexpected sabbatical, and now I'm excited to be back! In this episode, I'm sharing the key takeaways from my time away. From unexpected lessons to moments of personal growth, I'm diving into what I discovered about myself, my work, and life along the way. Whether you're considering a sabbatical or just curious about the impact of a break, join me as I reflect on the valuable insights I'm bringing back with me. I would love to know what you want more of this year! Reach out to me: Instagram For more information on vestibular disorders I've missed you!
Today, we revisit Patrick as he shares how harnessing his power of belief has helped improve and, in some instances, eliminated some of the symptoms associated with Meniere's. He shares more deeply into his personal challenges and his story on Episode 12 of Season 1 of the Meniere's Muse Podcast, so be sure to listen! In this episode we discuss these and so much more: ~ where our symptoms come from, how the brain works, the "healing" glue ~ stress, chronic inflammation, anxiety, brain fog, the nervous system and symptom link ~ importance of addressing our beliefs, changing unhealthy beliefs, developing healthy routine All the ways to connect with Patrick are below: Website For a FREE Discovery Call Instagram Email If you would like to reach me, Heather: Email Instagram Leave a voice message If you would like more information on vestibular disorders please visit the VeDA website at www.vestibular.org Love and be gentle with yourself, lean on this beautiful community and remember that healing is possible. I'll see you soon warriors! bensound.com/royalty-free-music License code: Q25BEF068CTQS5M6 #vertigo #dizziness #menieresdisease #menieres #healing #healingthrough belief #neuroplasticity #dizzy #vestibularcoach #vestibular
Have you ever heard the word comorbidity? Ever wondered what it is? The simple meaning is when someone has two or more medical conditions simultaneously. We hear this a lot in the vestibular community. These disorders/diseases can develop at the same or different times, they can interact with one another making diagnosis and treatment difficult. These conditions can be both physical and/or mental and can increase the risk of complications or even the possibility of developing something new. AS YOU CAN IMAGINE, learning to live and navigate the world of medicine and life with comorbid conditions has its own set of challenges. In this episode, Heather shares about these challenges and so much more: ~ vertigo, migraine associated vertigo/vestibular migraine, ME/CFS, binocular vision disorder, brain fog, migraine threshold ~Advocacy, ableism, financial strain, hardship, insurance appeals Connect with todays guest, Heather: Instagram If you would like to reach out to the podcast host, Heather: Instagram EMAIL Leave a voice message If you would like more information on vestibular disorders please visit the VeDA website at www.vestibular.org Love and be gentle with yourself, lean on this beautiful community and remember that healing is possible. I'll see you soon warriors! bensound.com/royalty-free-music License code: Q25BEF068CTQS5M6 #vertigo #dizziness #migraineassociatedvertigo #vestibularmigraine #myalgicencephalomyelitis #chronicfatiguesyndrome #brainfog #Advocacy #Spinning
"TINNITUS", that's what we are discussing today with Glenn Schweitzer. Glenn is a passionate entrepreneur, health coach, blogger, and the author of two best-selling books, “Mind Over Meniere's: How I Conquered Meniere's disease and Learned to Thrive” and “Rewiring Tinnitus: How I Finally Found Relief from the Ringing in My Ears". In this episode Glenn shares some of his strategies for tinnitus habituation and learning to live his best life with Meniere's. Here are some worksheets Glenn discusses in this episode, download your copy today! Facing the Fear of Making Plans with Meniere's Disease Meniere's Disease Activity Planner Worksheet To connect with Glenn: Website: Rewiring Tinnitus Website: Mind Over Menieres Book Links: Rewiring Tinnitus: How I Finally Found Relief from the Ringing in My Ears Mind Over Meniere's: How I Conquered Meniere's Disease and Learned to Thrive Social Links: https://www.youtube.com/mindovermenieres https://www.youtube.com/rewiringtinnitus https://www.facebook.com/rewiringtinnitus https://www.facebook.com/mindovermenieres/ Feel free to email Glenn: glenn@mindovermenieres.com and glenn@rewiringtinnitus.com Coaching Links: Tinnitus Coaching: Work with Glenn 1-on-1 Meniere' Disease Coaching: Work with Glenn 1-on-1 If you would like to leave a VOICE MESSAGE for me, Heather please click here. If you would like to grab the boor Dear Meniere's; Letters and Art: A global Meniere's Project (book, all proceeds go to Menere's research). Find me on Instagram For more information on vestibular disorders, please visit the VeDA website and MAKE VESTIBULAR VISIBLE! Music: bensound.com/royalty-free-music License code: Q25BEF068CTQS5M6 #menieres #tinnitus #vestibular #habituation #fear #vedaambassador #meditation #coaching #mindset #healing #movingpastfear
Scrolling Instagram, years ago I came across this stunning human, mermaiding. Watching her was hypnotic and our daughter became obsessed. After sometime I learned she had Meniere's. Today, Cally is here to share her story. She is a gentle soul and nature enthusiast, through her ups and downs, highs and lows she has a newfound appreciation for life. She is a new VeDA Ambassador and is looking forward to connecting with other warriors and sharing each others WINS! In this episode, Cally shares about these and other topics: ~ fluctuating hearing loss, vertigo, tinnitus, anxiety ~ sensory overload, visual sensitivity, drop attack, migraine ~ grief, embracing symptoms, living life anyway. Connect with Cally: Instagram Connect with Heather: Instagram YouTube To pick up your copy of Dear Meniere's Letters and Art: A Global Meniere's Project (Book, all proceeds go for Meniere's research) Email Heather Leave me a voicemail If you would like to learn more about vestibular disorders or to donate visit the Vestibular Disorders Association website. Register for LIFE REBALANCED LIVE for March2024. HELP MAKE VESTIBULAR VISIBLE! Share, tag, follow and review! Remember to love and be gentle with yourself, lean on this beautiful community and lastly believe healing is possible! See you soon warriors! Music: Bensound.com/royalty-free-music License code: Q25BEF068CTQS5M6 #menieres #menieresdisease #vestibular #vestibularmigraine #vedaambassador #meditation #cleaneating #mermaiding #anxiety #tinnitus #habituation #hearingloss #vertigo #sensoryoverload #visualsensitivity #healyourheadachebook #migrainevariant
What does life look like after being diagnosed with a vestibular (balance) disorder? How do you accept this new normal and learn to live with and manage all the symptoms associated with these disorders? Join Heather Davies as she introduces you to vestibular warriors that will share their healing journey, obstacles they have overcome and ones they continue to struggle with. Meniere's Muse will share stories that are honest and vulnerable, we may laugh, cry but mostly we learn from and lean on each other, so no one feels alone. Come lean on a community that will inspire you. Be sure to subscribe to Meniere's Muse for updates.
Welcome to Season 3! Todays guest, Sarah is here to share her story of going bilateral in her Meniere's journey this past year. Sarah has been on the show 2 other times, in Season 1, Episode 2 she shares her vestibular journey and in Episode 27, we flip the tables and she interviews me where I share my emotional journey. In this episode, Sarah opens about these and many other topics: ~ phantom sounds that replaced her low frequency hearing, tinnitus ~ EMDR Therapy, community connection, ~ noise sensitivity, progressive hearing loss, noise fluctuation ~ community connection, importance of support Connect with Sarah: Instagram YouTube Dear Meniere's, Letters and Art, A Global Meniere's Project If you would like to reach me, Heather: Instagram: https://www.instagram.com/menieresmuse/ YouTube Channel: https://www.youtube.com/channel/UCaR0emfgfCVb0vPqjQcbGwQ Podcast: https://podcasters.spotify.com/pod/show/menieresmuse Email: menieresmuse@gmail.com Leave a VOICE MAIL, that may be used on a future episode at www.speakpipe.com/menieresmuse If you would like to learn more about Vestibular Disorders Association please go to the vestibular disorder association website at www.vestibular.org. REGISTER for VeDAs Life Rebalanced LIVE at www.vestibular.org/lrl Help us MAKE VESTIBULAR VISIBLE! Remember to love yourself and be gentle with yourself, lean on this beautiful community, and lastly believe healing is possible. See you soon warriors! Music: Bensound.com/royalty-free-music License code: Q25BEF068CTQS5M6 #Nystagmus #hardofhearing #hearingloss #EMDR #therapy #EMDRtherapy #phantomnoises #bilateralmenieres #menieres #menieresdisease #vestibulardisorder #balancedisorder #hyperacusis #migrainetriggers #progressivehearingloss #progressivehealing #earpressure #auralfullness #earpressure
Welcome to the Meniere's Muse Podcast! In this episode, your host, Heather shares her thoughts on living and thriving with vestibular disorders. This episode sets itself apart from earlier ones, as she candidly expresses thoughts that might not align with popular opinions in the vestibular community. If you would like to find more information on vestibular disorders, be sure to visit the VEDA website at vestibular.org If you would like to reach out Heather: Instagram YouTube Email Leave a voice message www.speakpipe.com/menieresmuse Please remember to like, review, share and subscribe so you receive updates! I absolutely love hearing from you - so please leave a voice message or an email on your thoughts around this episode or if you know someone with an inspiring story. Remember to love and be gentle with yourself, lean on this beautiful community and lasting remember that healing is possible. See you soon Warriors!
I am healing. I am healthy. I am steady. I am stable. This is one affirmation todays guest, Christine uses to ground herself when she feels symptoms increasing. After seeing 13 doctors in 13 weeks Christine met with a certified vestibular therapist that she feels, finally diagnosed her correctly, this is where her journey to healing began. She shares honestly and openly on TikTok and Instagram about her life navigating her dizzy world. Through humor and wit she will draw you in and remind you that living with these conditions is tough at times but, finding the humor in your situation and loving on others is makes the healing journey one to embrace. Please welcome my friend and fellow VeDA Ambassador, That Dizzzy Girl, Christine. In this episode we touch on these topics and so much more: ~ Relearning to live, grieving previous life, mental health is physical health ~ Vertigo, anxiety, chronic sinus infections, chronic dizziness, brain fog ~ Vestibular rehabilitation therapy, boundary setting, learning to pause ~ Career and chronic illness, navigating social media groups If you would like to find more information on vestibular disorders, be sure to visit the VEDA website at vestibular.org If you would like to reach out to Christine please find her: TikTok Email Instagram If you would like to reach out to me, Heather: Instagram YouTube Email Leave a voice message www.speakpipe.com/menieresmuse Well that's all for today friends, thank you for being here, if you know someone with an inspiring story I would love to connect with them. Remember to like, review and share. Remember to love and be gentle with yourself lean on this beautiful community and lasting remember that healing is possible
What would you think if you were told - you already have the right tools to begin your healing? With you right now! Honestly, what would you think? Would you want to know more? I would! I have another question for you, do you believe that your healing begins with your mindset? Of the nearly 4 dozen interviews I have had the pleasure of doing, the most common catalyst toward their healing was a HUGE mindset change. In this episode, of the Menieres Muse Podcast, VeDA Ambassador, Etta opens up about how her journey began and her dedication to her own healing where she was able to reclaim her life. In this conversation we touch on these and so much more: ~ sensation of being pulled backward to the ground, vague feelings ~ brain training, DNRS, neuroplasticity, teaching your body ~ unique intervention, accepting the new you, separating symptoms from who you are ~ dizziness, complete lifestyle changes, loving life If you would like to connect with Etta, please find her on Instagram https://www.instagram.com/the_dizzy_diva/ If you would like to reach myself, Heather: Instagram: https://www.instagram.com/menieresmuse/ YouTube Channel: https://www.youtube.com/channel/UCaR0emfgfCVb0vPqjQcbGwQ Podcast: https://podcasters.spotify.com/pod/show/menieresmuse Email: menieresmuse@gmail.com Leave me a message at https://www.speakpipe.com/menieresmuse If you would like to learn more about Vestibular Disorders Association please go to the VeDA website at www.vestibular.org Thank you for listening to the Meniere's Muse Podcast, if you haven't left a review, please do so today, also like, subscribe, share and leave me a voice message – I love hearing what you love about the podcast and where you think improvement can be made. I do this for YOU! So your opinion matters.
When you think of VeDA (Vestibular Disorders Association) what first comes to mind? Practitioners, support groups, pink flamingos what comes to mind for you? Well, after this conversation, VeDA, Vestibular Disorders Association will mean so much more. The magnitude of things this organization has to offer is enormous and ever-changing due to its volunteers and all the people behind the scenes, like today's guest, Cynthia Ryan. Cynthia has worked in non-profit management for over 18 years, prior to her dedication to nonprofit work she honed her leadership skills by managing a financial research firm for 12 years. Interestingly, Cynthia's mother, Eileen, suffers from Meniere's disease, vestibular migraine, and BPPV. Stepping into her role as VeDAs Executive Director and hearing stories from vestibular warriors all over the world, Cynthia has begun to understand a little more intimately what her mother has and continues to live through. In this episode, we touch on these and many other topics: ~ her mother's Meniere's journey, the impact of vestibular warriors stories, importance of sharing diagnosis and symptoms with family/friends, having a medical “team” is so important. ~ the many things VeDA has to offer the community, ICU Podcast, VeDAs Board of Directors, Life Rebalanced Chronicles Docuseries - Season 2 ~ Upcoming Balance Awareness Week, Fiona Flamingo Contest, VeDA Support Network ~ How you can help!! Write your congressman, find the "Legislative Advocacy Toolkit" link below, and complete the "New Patient Registry" New Patient ToolKit New patient Registry Want to get involved? Here is a great start Want to get more involved reach out to VeDA directly! Find a support group VeDA sponsored Podcasts Vestibular Disorders Association YouTube Channel! Ways to give! https://vestibular.org/article/get-involved/support-veda/ Find a Clinician If you would like to reach me, Heather: Instagram YouTube Channel Podcast Email Leave me a voice message! Remember to love yourself, do the work, lean on this beautiful community, and lastly believe healing is possible. See you next week warriors!
What brings you joy? What would your life look like if you focused on things you have control over? Joy is defined as a feeling of great pleasure and happiness. Joy looks different for everyone, for me it may be listening to my daughter singing from another room, connecting with others in the vestibular community, dancing to music that moves me, and even sitting quietly in nature with the sun on my face. Whatever brings you joy, it's so important to find it and hold onto it. When I first came across today's guest, Geri's Instagram page, I felt her energy of pure joy as she shares her passion for the sacred flow art of hula hooping. In this episode, Geri opens up about these and many other topics: ~ motion sickness as a child, menstrual headaches ~ movement meditation, grounding, finding purpose through your passion, remembering that God has your back ~ giving medication a chance, getting away from “constantly busy, constantly dizzy”, the art of listening to your body Connect with Geri McNiece: Instagram Linkedin Website Facebook If you would like to reach me, Heather: Instagram YouTube Channel Email Leave me a voice message If you would like to learn more about Vestibular Disorders Association please go to the vestibular disorder association website at www.vestibular.org. Please be sure to watch and share VeDAs along with UnFixed Medias, Life Rebalanced Chronicles Docuseries, Season 2, "Stepping Out of the Darkness" Remember to love yourself and be gentle with yourself, lean on this beautiful community, and lastly believe healing is possible. See you next week warriors!
Have you ever had one of those conversations that softly changes your perspective? When you sit back and just have to allow the moment to soak in, to let words take root? This conversation is one of those. Michelle Irving is a pioneer in the Chronic Illness Space, mentoring women around the world to step into a deeper positive relationship with themselves while living with chronic illness. In this episode, we touch on these and many more things: ~ Emotional empowerment, changing your inner story, badass boundaries, negotiating career choices ~ Flourishing with chronic illness, having a relationship with the illness, transitioning to wellness ~ Importance of understanding support, self-referenced power If you would like to reach out to Michelle, please find her: Link to the emotional map discussed Websites: https://www.michelleiriving.com.au & http://careerandchronicillness.com Instagram Linkedin Facebook Twitter Her Podcast The Pajama Interviews can be heard on most major podcast platforms: Spotify Apple PodCasts If you would like to reach me, Heather: Instagram YouTube Channel Podcast Private Facebook Group Email: menieresmuse@gmail.com Leave me a voice message here If you would like to learn more about Vestibular Disorders Association please go to the VeDA website at www.vestibular.org We all have a story, let yours inspire others, if you would like to share your inspiring story with others or know someone that has a story that others would benefit from hearing – please reach out to me. It's all about connection after all. Thank you for listening!
So many of us can relate to Marissa's story, symptoms coming on suddenly, heart racing, rocking motion, feeling as if she was drugged, and many unusual symptoms she had never felt before. Over time she found her voice and learned the importance of self-advocacy. Today, she uses her voice and story to connect with other vestibular warriors on several different platforms. In this episode, we touch on these and many more things: ~ mindset shift, symptom journaling, gratitude journaling, giving back ~ vestibular rehabilitation, behavioral vision doctor (Behavioral Optometrist), counselor/therapy ~ boundary setting, self-advocacy, support groups, family support If you would like to reach out to Marissa please click on the links below: YouTube Instagram Living With Vestibular Migraine Instagram Finding your joy on your vestibular journey Facebook Vestibular Support Group: Meeting Every Thursday (see times below) Facebook - Marissa's Page Twitter Spotify Vestibular Voices VeDA LBRC docuseries You can reach out to me below or leave me a voice message at https://www.speakpipe.com/MenieresMuse Instagram YouTube Channel Private FaceBook Email: menieresmuse@gmail.com Support Groups Online Support Groups: Facilitated by Angela S., Lakin, Racheal, Dave, Joy and Marissa The meeting ID and Pass Code are the same for all meetings. Meeting Id: 841 905 3323 Pass Code: dizzy Meniere's Support Group times: Wednesday 10am CT / 9am ET Wednesday 2pm CT / 1pm ET Wednesday 5pm CT / 4pm ET Wednesday 8:30pm CT / 7:30pm ET Vestibular Zoom Support Group Meetings (for all vestibular disorders): Thursdays at 8pm CT / 7pm ET Thank you for listening! Remember to love yourself, be open to the work, lean on this beautiful community, and lastly believe healing is possible. See you next week warriors! I'll see you next week warriors.
When approached by Julieann Wallace with this crazy idea that came to her in the wee hours of the morning, I could never have imagined the magnitude of the emotional journey we were about to partake in. Letters, poems, and artwork flooded in. People diagnosed with Meniere's gave us glimpses into the darkest part of their lives exposing delicate parts of their souls. Today, instead of a podcast guest interview, I wanted to share a few letters that are included in this gorgeous book. All proceeds will be donated to Meniere's Disease research. Hardback and paperback link Ebook To reach out to Sarah: Instagram Facebook Sober Gratitudes Podcast To read or listen to the book, "The Color of Broken" by Amelia Grace, all proceeds are donated to Meniere's Research To reach out to Patrick, please email him at: patvestibjourney@gmail.com To read Steve's book "On the Vertigo", One Sick Mans Journey To Make A Difference find it here, when you read his book, be certain to follow his journey on Instagram as you read through the book, you will be right there with him on the journey Instagram I WOULD LOVE TO HEAR WHAT YOU THOUGHT OF THE LETTERS TO MENIERE'S - LEAVE A VOICE MESSAGE HERE: Your message may be used on a future episode of the Meniere's Muse Podcast. If you would like to reach out to me, Heather Davies: Email me at menieresmuse@gmail.com Instagram Private Facebook Group Leave a voice message Would you like to JOIN THE MOVEMENT and make a donation in honor of my pledge for Steps 2 Balance week, May 21, 2023 through 27th, where we will be walking "together" to raise awareness, your support will also help make sure that when a person gets dizzy, they will get the help they need. Please make your pledge here For more information on vestibular disorders please visit VeDA website Online Support Groups: Facilitated by Angela S., Lakin, Racheal, Dave, Joy and Marissa The meeting ID and Pass Code are the same for all meetings. Meeting Id: 841 905 3323 Pass Code: dizzy Meniere's Support Group times: Wednesday 10am CT / 9am ET Wednesday 2pm CT / 1pm ET Wednesday 5pm CT / 4pm ET Wednesday 8:30pm CT / 7:30pm ET Vestibular Zoom Support Group Meetings (for all vestibular disorders): Thursdays at 8pm CT / 7pm ET Thank you for listening! Remember to love yourself, be open to the work, lean on this beautiful community, and lastly believe healing is possible.
This is Part Two of a 2-part series, where Daniela shares her story, if you haven't listened to Part One you may want to start there first. We deal with so many different emotions when experiencing vestibular symptoms; when we are misdiagnosed, or mistreated by the medical system, and even comparing our symptoms, treatments, and how we deal with each obstacle as it's introduced into our lives. Our reactions to the symptoms may vary may that be through guilt, self-pity, anger, feeling like a burden, sadness, or any of the other emotions we all deal with, and yes, we all deal with them very differently. Daniela shares how her behavior and emotions changed when symptoms arrived in her life, she is recovering as a better person. Her story is so relatable. I hope you find that too. . Today Daniela shares her story of working in academia as a college professor when her first bothersome symptom of visual disturbances began. From there the symptoms only increased in intensity and over time she was finally diagnosed with PPPD (Persistent postural perceptual dizziness); neurovascular dizziness caused by jugular compression and thoracic outlet syndrome, along with third window syndrome from cochlear-facial nerve canal dehiscence. So many things changed her life, but I will save all the details for her to share with you in this Part 1 of a two-part series. If you would like to reach out to Daniela, please find her on Instagram https://www.instagram.com/dizzyprof/ To read Daniela's book, "Counterpreservation: Architectural Decay in Berlin since 1989", please find it on Amazon If you would like to reach out to me, Heather Davies: Email me at menieresmuse@gmail.com Instagram Private Facebook Group Leave a voice message Would you like to JOIN THE MOVEMENT and make a donation in honor of my pledge for Steps 2 Balance week, May 21, 2023 through 27th, where we will be walking "together" to raise awareness, your support will also help make sure that when a person gets dizzy, they will get the help they need. Please make your pledge here https://vestibular.salsalabs.org/s2b-2023/p/HeatherDavies For more information on vestibular disorders please visit VeDA website at www.vestibular.org Online Support Groups: Facilitated by Angela S., Lakin, Racheal, Dave, Joy and Marissa The meeting ID and Pass Code are the same for all meetings. Meeting Id: 841 905 3323 Pass Code: dizzy Meniere's Support Group times: Wednesday 10am CT / 9am ET Wednesday 2pm CT / 1pm ET Wednesday 5pm CT / 4pm ET Wednesday 8:30pm CT / 7:30pm ET Vestibular Zoom Support Group Meetings (for all vestibular disorders): Thursdays at 8pm CT / 7pm ET Thank you for listening! Remember to love yourself, be open to the work, lean on this beautiful community, and lastly believe healing is possible. See you next week warriors!
Many have heard one of these variations in our lives, “burning the candle at both ends,” “biting off more than you can chew”, “spreading yourself too thin” or my personal favorite “you can't pour from an empty cup”. Today's guest, was like many of the vestibular warriors I speak with, stressed in our jobs, working insane hours, overextending ourselves, and at times, eating poorly and not getting enough sleep. Self-care was a reward that we gave ourselves for good behavior after we completed a task, like a clean house or some other goal. I remember myself doing this in the past as well. Today Daniela shares her story of working in academia as a college professor when her first bothersome symptom of visual disturbances began. From there the symptoms only increased in intensity and over time she was finally diagnosed with PPPD (Persistent postural perceptual dizziness); neurovascular dizziness caused by jugular compression and thoracic outlet syndrome, along with third window syndrome from cochlear-facial nerve canal dehiscence. So many things changed her life, but I will save all the details for her to share with you in this Part 1 of a two-part series. In this conversation, we discuss these and many other things: ~ being perfectly imperfect, unintentional gaslighting ~ guilt, shame, imposter syndrome, anxiety, comparison, anxiety, fear, stress ~ being grateful, support at work, single parenting ~ talk therapy, meditation, soft tissue therapy If you would like to reach out to Daniela, please find her on Instagram https://www.instagram.com/dizzyprof/ To read Daniela's book, "Counterpreservation: Architectural Decay in Berlin since 1989", please find it on Amazon If you would like to reach out to me, Heather Davies: Email me at menieresmuse@gmail.com Instagram Private Facebook Group Leave a voice message Would you like to JOIN THE MOVEMENT and make a donation in honor of my pledge for Steps 2 Balance week, May 21, 2023 through 27th, where we will be walking "together" to raise awareness, your support will also help make sure that when a person gets dizzy, they will get the help they need. Please make your pledge here https://vestibular.salsalabs.org/s2b-2023/p/HeatherDavies For more information on vestibular disorders please visit VeDA website at www.vestibular.org Online Support Groups: Facilitated by Angela S., Lakin, Racheal, Dave, Joy and Marissa The meeting ID and Pass Code are the same for all meetings. Meeting Id: 841 905 3323 Pass Code: dizzy Meniere's Support Group times: Wednesday 10am CT / 9am ET Wednesday 2pm CT / 1pm ET Wednesday 5pm CT / 4pm ET Wednesday 8:30pm CT / 7:30pm ET Vestibular Zoom Support Group Meetings (for all vestibular disorders): Thursdays at 8pm CT / 7pm ET Thank you for listening! Remember to love yourself, be open to the work, lean on this beautiful community, and lastly believe healing is possible. See you next week warriors!
Janine, she is a Jersey Girl and a 25 year veteran of the entertainment industry having created and implemented tactical public relations campaigns, events, and marketing promotions for numerous studios including HBO, Universal and Cohen Media Group, where she led the publicity campaign for the Academy Award®winning film, The Salesman. More recently she has made the transition into the development and production creating 2nd Chapter Productions. She is producing and directing her first documentary feature “Unheard: The Ears of Menieres”. This is a passion project that will unravel the mystery surrounding Meniere's Disease. With this documentary Janine hopes to take people on a journey to understanding, on a deeper level, what living with these symptoms is really like using visual and audio simulations so the audience actually experiences what its like to have vertigo, tinnitus and hearing distortion. In this conversation we discuss these any many other things: ~ Neurologist vs. Neurotologist ~ Online support groups, Facebook groups and utilizing them ~ Vestibular Rehab, decreased sodium intake, acting "healthy" ~ Barometric changes, menopause Deaf Metal (Hearing Device Jewelry) Online Support Groups: Facilitated by Angela S., Lakin, Racheal, Dave, Joy and Marissa The meeting ID and Pass Code are the same for all meetings. Meeting Id: 841 905 3323 Pass Code: dizzy Meniere's Support Group times: Wednesday 10am CT / 9am ET Wednesday 2pm CT / 1pm ET Wednesday 5pm CT / 4pm ET Wednesday 8:30pm CT / 7:30pm ET Vestibular Zoom Support Group Meetings (for all vestibular disorders): Thursdays at 8pm CT / 7pm ET If you would like to reach out to Janine or if you are able to make a gift donation of any amount, please find her: Unheard: The Ear of Meniere's can be found at www.earsofmenieres.com or www.2ndchapterproductions.com On social media find Janine: Facebook Twitter Instagram If you would like to reach out to myself, Heather Davies: Email me at menieresmuse@gmail.com Instagram Private Facebook Group Leave a voice message For more information on vestibular disorders please visit VeDA website at www.vestibular.org Thank you for listening! Remember to love yourself, be open to the work, lean on this beautiful community and lastly believe healing is possible. See you next week warriors!
Kimberly shares so much of herself in this conversation. After spending a couple of hours with her, I understood so much more about her soulful passion for not only sharing stories of those with chronic illness and rare conditions but really seeing them, loving them, and sharing how adversity can broaden our definition of what it means to live a “good life”. She shares these stories through UnFixed Media Productions which she founded in 2019. To understand her passion you must watch anything from UnFixed Media's portfolio, which currently includes docu-series, multiple mini-series, podcasts, a round table webcast, and features also documentary films, which are all in production. Her own experiences living with the rare neurological disorders of MdDS and Vestibular Migraine have empowered Kimberly to take a larger advocacy role within the chronic illness community where she writes and speaks about her own patient experience. When she isn't nurturing the many facets of unfixed media, she works a small, sustainable homestead with her husband, David in rural Oregon. She lives a life in full motion and I mean that in every sense of the word, but I'll save that for her to share. If you would like more information or to reach out to Kimberly please find her links: Website UnFixed Media Productions , Dylan Shanahan's Memoir, UnFixed Film Website, Instagram If you would like to reach out to me, Heather Davies, please find me: Instagram, Private Facebook Group email: Menieresmuse@gmail.com Or leave me a voice mail here - I love hearing from you! If you would like more information on vestibular disorders, please go to the Vestibular Disorder's Association website. Right around the corner is also VeDAs Steps 2 Balance, May 21 where we will be spreading awareness about vestibular disorders, and encouraging our fellow vesties to get out and take Steps 2 Balances – whatever that means for you. Walking, swimming, bowling (like our fellow VeDA Ambassador David G. just did last night), or anything you're comfortable doing to take one more step toward balance and to spread awareness about vestibular disorders to those that have ever heard of these disorders. If you enjoy this podcast PLEASE do me a favor and RATE, REVIEW and share. Thank you for being here, see you next week warriors
Kimberly shares so much of herself in this conversation. After spending a couple of hours with her, I understood so much more about her soulful passion for not only sharing stories of those with chronic illness and rare conditions but really seeing them, loving them, and sharing how adversity can broaden our definition of what it means to live a “good life”. She shares these stories through UnFixed Media Productions which she founded in 2019. To understand her passion you must watch anything from UnFixed Media's portfolio, which currently includes docu-series, multiple mini-series, podcasts, a round table webcast, and features also documentary films, which are all in production. Her own experiences living with the rare neurological disorders of MdDS and Vestibular Migraine have empowered Kimberly to take a larger advocacy role within the chronic illness community where she writes and speaks about her own patient experience. When she isn't nurturing the many facets of unfixed media, she works a small, sustainable homestead with her husband, David in rural Oregon. She lives a life in full motion and I mean that in every sense of the word, but I'll save that for her to share. Please welcome my friend and fellow VeDA Ambassador, Kimberly. If you would like more information or to reach out to Kimberly please find her links: Website UnFixed Media Productions , Dylan Shanahan's Memoir, UnFixed Film Website, Instagram If you would like to reach out to me, Heather Davies, please find me: Instagram, Private Facebook Group or email: Menieresmuse@gmail.com If you would like more information on vestibular disorders, please go to the Vestibular Disorder's Association website. Right around the corner is also VeDas Steps 2 Balance, May 21 where we will be spreading awareness about vestibular disorders, and encouraging our fellow vesties to get out and take Steps 2 Balances – whatever that means for you. Walking, swimming, bowling (like our fellow VeDA Ambassador David G. just did last night), or anything you're comfortable doing to take one more step toward balance and to spread awareness about vestibular disorders to those that have ever heard of these disorders. If you enjoy this podcast PLEASE do me a favor and RATE, REVIEW and share. Please rate, review and share! Thank you for being here, see you next week warriors
Have you ever wondered what happens in a therapy or life coaching session? Today, you will hear (or watch) first hand a live coaching session on "Reaching Out" on those high symptom days, when we are struggling. Recently I had a few high symptom days, instead of reaching out I sunk down deep in my room and pushed through the days by myself, holding everything in. When I should have reached out to someone, a fellow vestibular sister, brother, friend, one of my supportive family members, a life coach or therapist.A friend and fellow vestibular warrior, Pat reached out to me, to see how I was during that time, I love her for that! Later I spoke with my friend and life coach, here in this conversation.Watch or listen to this unscripted exchange with The Beacon Coach, Meagan Grant and how I worked through the topic. Over the last couple weeks, I have asked other warriors what their top reason was for not reaching out and their reasons were the same as mine. Listen to find out if you reason is the same. If you would like to reach out to Meagan, The Beach Coach for a consultation, please find her at website If you would like to reach out to myself, Heather Davies, please find me on Instagram, email me at Menieresmuse@gmail.com or you can leave me a voice message - I would love to hear from you! For more information on vestibular disorders please visit the VeDA website. Thank you for listening! Remember to love yourself, be open to the work, lean on this beautiful community and lastly believe healing is possible. See you next week warriors!
We all have a story, sharing isnt always easy. My guest today finds his strength by sharing his experiences openly on Instagram. He shares about his new life with what he calls “one of everything”. 1 physical disease, 1 neurological and recently diagnosed with a mental disorder. When I first met Kevin back in July of 2022, it was from a direct message he sent me after watching one of the Meniere's Muse episodes with Dave Guigno, when the podcast as taken from being strictly audio to video, and the things we discussed, I just knew he was an amazing human, from his honesty, his personality and his message. We have built a relationship around our lives with vestibular issues and I love it – this is what it is all about! Kevin's life changed completely in May 2021, just one month before he was planning to resign, ending his 6 year career as Head of Retail and Visitor services with a cultural institution in San Antonia, TX. He was managing a team, writing budgets for two departments and traveling nonstop. His decision to resign was not made lightly, he knew he needed a break, to rest and decided the best option was to take a sabbatical to somewhere that holds a special place in his heart, Mexico. Unfortunately he never made it there, and I'll let Kevin share the rest of the story, please welcome my friend and fellow VeDA Ambassador Kevin! If you would like to reach out to Kevin, please find him on Instagram. If you would like to reach out to myself, Heather Davies, please find me on Instagram, email me at Menieresmuse@gmail.com or you can leave me a voice message - I would love to hear from you! For more information on vestibular disorders please visit the VeDA website. Thank you for listening! Remember to love yourself, be open to the work, lean on this beautiful community and lastly believe healing is possible. See you next week warriors!
Welcome to Part Two in a 2-part series where I speak with Anthony, former Chronic and vestibular migraine sufferer and Co-Founder and CEO of Head Health. If you haven't listen to part one – you may want to listen to that first to hear Anthony's story and how his journey lead to a program that could be life changing for so many migraine sufferers. This is Part Two in a 2-Part Series Anthony goes into more depth about the program and touches on these topics and so much more: ~ How knowing your strengths, passions and unique personality can help you get to a place of healing ~ The importance of getting uncomfortable, creating silence, and looking within ~ Trusting the process, being open minded and neuroplasticity ~ The importance of having a care team walk you through other challenges outside the program ~ The importance of learning how to dream again If you would like to learn about or reach out to Anthony or Head Health: Instagram, Facebook, Website, Twitter, Linkedin To reach out to myself, Heather Davies: Instagram, Found on most podcast platforms, YouTube, PRIVATE Facebook Group If you would like to learn more about Vestibular Disorders Association, please go to the VeDA website Thank you for being here! See you next week warriors!
In this episode of the Meniere's Muse Podcast, my conversation is with Anthony. Physicians told him many years ago, “there is nothing more we can do with you.” Many vestibular warriors have heard this very same thing or a variation of this comment. These words became his catalyst to become a student of self and began his journey of self-discovery. The inspiration to start Head Health Co. comes from 27 years' experience, 16 years as a chronic daily migraine patient and currently 11 years free from both vestibular and chronic migraine. Since his last migraine on May 13, 2011 Anthony has spend 10,000 plus hours developing the core logic for Head Health, including analysis of 2,000 peer reviewed literature and journal articles, market data of over 5,000 migraine sufferers, thousands of one to one in group coaching sessions and the creation of 6 migraine lifestyle health programs. Anthony is also a certified health coach from the Institute for Integrated Nutrition and a founding member of the John Maxwell Team. This is Part One in a 2-Part Series where Anthony shares his migraine journey and how he came to be migraine free for the past 11 years.If you would like to learn about or reach out to Anthony or Head Health: Instagram Facebook Website LinkedIn To reach out to myself, Heather Davies: Instagram: https://www.instagram.com/menieresmuse/ Found on most podcast platforms: https://podcasts.apple.com/us/podcast/menieres-muse/id1609095463 YouTube PRIVATE Facebook Group If you would like to learn more about Vestibular Disorders Association, please go to the Vestibular Disorder Association Thank you for being here warriors! We will see you next week for Part Two of Anthony's Journey!
Emma is a bright light in the vestibular community, currently 33 and living in Sheffield In the UK and she is the founder of Emma Leigh Yoga, where she teaches supportive, gentle yoga for people looking to support their mental and physical wellness. Her classes are perfect if you are a beginner, are struggling with stress, anxiety or chronic illness or are looking for a calming, slower flow. She is also a caring and supportive massage therapist and her focus is on promoting and providing people with a reset, rest + healing through her therapies and classes! Em has experienced chronic vestibular migraine for almost 5 years now and is no stranger to the vestibular world! She has experienced a lot over the past 5 years and one of her big passions is sharing her story and chronic illness journey to others to show that recovery is possible and so are opportunities to achieve what you want in life! In this conversation we touch on these items and so much more: ~ vertigo, balance issues, derealization, visual triggers ~ visual triggers, nutritional triggers ~ migraine brain, benefits of slow flow yoga, healing and body reset If you would like to reach to Emma: Instagram: https://www.instagram.com/emmaleighyoga/ Website to book online yoga class or massage: https://linktr.ee/emmaleighyoga YouTube Channel: https://www.youtube.com/channel/UC-6I9YvaVoRnhamUmnuoG-w If you would like to reach myself, Heather: Instagram: https://www.instagram.com/menieresmuse/ YouTube Channel: https://www.youtube.com/channel/UCaR0emfgfCVb0vPqjQcbGwQ Podcast: https://podcasters.spotify.com/pod/show/menieresmuse Email: menieresmuse@gmail.com If you would like to learn more about Vestibular Disorders Association please go to the vestibular disorder association website at www.vestibular.org To watch Season One of the Life Rebalance Chronicles docuseries go to the Disorder Channel or to the Unfixed Media website at https://unfixedmedia.com/liferebalancedchronicles#:~:text=Life%20Rebalanced%20Chronicles%20is%20a,down%20by%20a%20vestibular%20disorder Remember to love yourself, do the work, lean on this beautiful community, and lastly believe healing is possible. See you next week warriors!
Turning the tables today, where the host, Heather Davies becomes the guest! My special guest Sarah shared her story in the very first episode of the Meniere's Muse Podcast back in 2022, returns to interview me, so I can finally share my story with you and celebrate one year of the Meniere's Muse Podcast. It has been such an exciting year, I have met some amazing warriors along the way. Many I still speak with today. I love the community that has grown from other warriors sharing their stories. I'm looking forward to this next year and will continue giving hope and inspiration to those living with vestibular disorders through the power of connection. So grab your tissues and excuse the poor quality audio in a couple sections, we were so caught up in the conversation, it wasn't noticed until editing. In this interview we discuss these and so much more: ~ Losing myself, finding my way back to trusting myself ~ Allowing my dreams to fuel my way to healing ~ Mourning my previous self as a nurse, mother and everything in between ~ How these symptoms taught us how to live authentically If you would like more information or to reach out to myself or Sarah, please reach out to me Instagram or The Meniere's Muse YouTube Channel or email me at menieresmuse@gmail.com If you would like more information on vestibular disorders, please go to the Vestibular Disorder's Association website www.vestibular.org I would like to thank you for listening and if this episode resonates with you, please take a moment and share this with a vestibular warrior or family member of a warrior that may need to hear it. Be sure to like, share and subscribe to Meniere's Muse for updates. Thank you for being here! See you next week warriors!
My special guest today is Lisa, we had such a lovely conversation despite some internet issues on my side, it didn't stop us from going off topic many times. Before we jump right in, let me share a little about Lisa. Her first symptoms began in 2004, they disappeared until 2019 where she experienced another episode, then was diagnosed in 2021 when the symptoms returned. She longed for information and connection from people living with Meniere's. Over time, she began to understand we can learn to manage our symptoms and more importantly our outlook, while we learn to care of our physical body. She believes we can learn to live more positively with gratitude, humor and compassion. Today, Lisa sells on-air advertising for 4 radio stations and digital advertising in real life. She has a theatre background and BA in Art. She just became a grandmother last week, for the very first time! Congratulations Lisa!! Lisa is also a VeDA ambassador and will be on the patient panel for "VeDAs 3rd Virtual Vestibular Conference" on March 6th -10th If you would like more information or to reach out to Lisa, please find her: Instagram Her website If you would like to reach out to me, Heather Davies, please find me on Instagram or email me at Menieresmuse@gmail.com If you would like more information on vestibular disorders, please go to the Vestibular Disorder's Association website. I would like to thank you for listening and if this episode resonated with you, please take a moment and share this with a vestibular warrior or family member of a warrior. Be sure to like, share and subscribe to Meniere's Muse for updates. Thank you for being here! See you next week warriors! (I would like to apologize for the incorrect dates on Lisa journey in the video, the dates here in the description are correct.)
This episodes conversation is with Kristy Carabello, she lives in Philadelphia with her husband, Nate, and their Cavapoo, Lucy. She was diagnosed with Meniere's Disease and Vestibular Migraine in 2017. After experiencing 8-10 debilitating vertigo episodes a month, she began tracking her activities on paper noticing trends with her triggers and episodes of vertigo. This compelled her to look for an app to assist with tracking, when she was unable to find one for vertigo, she created one! Vertige! In this episode she shares in more detail about her new app "Vertige" which was created for those with vestibular symptoms, it even prepares reports that can be shared with practitioners, to assist develop a personal care plan. SO EXCITING!!! Like many of us, Kristy experienced so much anxiety around her vertigo that she stopped doing many of the activities she loved. Over time she found that movement and meditation helped tremendously both physically and mentally. She is a certified yoga teacher and Reiki Master Practitioner and shares these practices with others and hopes to help more vestibular warriors bring balance back to their mind, body and soul. Kristy recently became a VeDA Ambassador and is excited to be volunteering on the Communications Committee. SO exciting!!! If you had a take away or something that really resonated with you, please reach out on social media and be sure to tag us. If you haven't left a review yet, let us know how you like this podcast or any constructive feedback is also welcome. I absolutely LOVE hearing from you and knowing what is resonating with you in the community. Thank you for listening. If you would like to reach out to Kristy, please click on links below: Vertige Instagram Facebook Twitter LinkedIn If you would like to reach out to myself, Heather Davies, please reach out on Instagram or feel free to email me at Menieresmuse@gmail.com For more information on vestibular disorders please visit the Vestibular Disorders Association at VeDA See you next week warriors!
Welcome, in this week's episode I am talking with someone who shares her vestibular journey that started when she was just 18 years old, Julia Savoia. This is art 2 of a two-part special, if you haven't heard the first episode, you may want to go back and listen to that one first. Let me share a little about Julia. She moved to the U.S. after graduating college in Poland with her Bachelors Degree. Here she met her husband and decided to make the U.S. her, home. Today, she is the mother of identical twin 4 year old girls. She was struggling with multiple chronic illnesses and noticed that nutrition was one of the most effective ways for her to manage and improve her overall health, which led her to becoming a certified holistic nutritionist through the AFPA, she hopes to improve the lives of vestibular warriors through dietary change and support. In this conversation we touch on these and a few other topics: ~ Loving yourself, coming to terms with Meniere's, the work involved in healing, showing yourself grace, love and compassion ~ Journaling, social media, affirmations ~ Vestibular rehabilitation therapy, grounding, healthy food being triggers If you would like more information or to reach out to Julia, please find her on Instagram. If you would like to reach out to me, Heather Davies, please find me on Instagram or email me at menieresmuse@gmail.com Be sure to subscribe, share and follow for further updates and future episodes. If you would like more information on vestibular disorders, please go to the Vestibular Disorder's Association website. I would like to thank you for listening and if this episode resonated with you, please take a moment and share this or any of the other episode with a vestibular warrior or family member of a warrior. Be sure to like, share and subscribe to Meniere's Muse for updates. Thank you for being here! I'll see you next week warriors.
Welcome, in this week's episode I am talking with someone who shares her vestibular journey that started when she was just 18 years old, Julia Savoia. This is Part 1 of a two-part special of a beautiful conversation. Before we get started let me share a little about Julia. She moved to the U.S. after graduating college in Poland with her Bachelors Degree. Here she met her husband and decided to make the U.S. her, home. Today, she is the mother of identical twin 4 year old girls. She was struggling with multiple chronic illnesses and noticed that nutrition was one of the most effective ways for her to manage and improve her overall health, which led her to becoming a certified holistic nutritionist through the AFPA, she hopes to improve the lives of vestibular warriors through dietary change and support. In this conversation we touch on these and a few other topics: ~ Rotational vertigo, tinnitus, anxiety, panic attacks, drop attacks, ear pressure and fullness ~ Birth control, hormonal changes, becoming pregnant with the symptoms and mom guilt ~ Types of journaling, learning to love yourself ***TRIGGER/CONTENT WARNING*** From Minute 14.36 to 17.36. There will be a verbal warning BEFORE she shares about a drop attack and the graphic details surrounding it. PLEASE SKIP to THE SECOND BLUE SQUARE to move past this clip, if hearing this may be a trigger. Thank you. If you would like more information or to reach out to Julia, please find her on Instagram. If you would like to reach out to me, Heather Davies, please find me on Instagram or email me at menieresmuse@gmail.com Be sure to subscribe so you will be updated when Part 2 of her journey is shared. If you would like more information on vestibular disorders, please go to the Vestibular Disorder's Association website. I would like to thank you for listening and if this episode resonated with you, please take a moment and share this or any of the other episode with a vestibular warrior or family member of a warrior. Be sure to like, share and subscribe to Meniere's Muse for updates. Thank you for being here! I'll see you next week warriors.
Welcome, many of you may have heard his story, at the very least his mission, if not, let me share with you a little about Steve Schwier. Steve's life as a heavy equipment operator and professional musician came to a screeching halt, when he began experiencing tinnitus in 2011, later being diagnosed with Meniere's in 2012. He had no idea it was the beginning of a new life. A life that is now disabling on many levels. The onset of chronic dizziness, vertigo, nausea, hyperacusis, nystagmus, loss of balance and the emotional roller coaster that left him lost in the world of vestibular disorders. 3 year ago, he decided to fight back and in a way that captured the attention of many. He created "On The Vertigo", a non profit to raise awareness and funds for research. This has included two 1,400 mile bike adventures, successful golf outings for research and many other projects to raise awareness. He even co authored a book “On The Vertigo” with his brother, Dave. He was also a cast member on the "The Life Rebalanced Chronicles" docuseries, sponsored by VeDA and produced by Unfixed Media. On top of all this, he also has a podcast called "On The Vertishow" co hosted with Adrienne Smith and produced by his brother Dave. If you would like to reach out to Steve, please find him on Instagram, Facebook or the links above. If you would like to reach out to me, Heather Davies, please find me on Instagram or email me at menieresmuse@gmail.com. If you would like more information on vestibular disorders, please go to Vestibular Disorder Association. I would like to thank you for listening and if this episode resonated with you, please take a moment and share this with another vestibular warrior or family member. Be sure to like, share and subscribe to Meniere's Muse for updates. I'll see you next week warriors.
Today I have the pleasure of speaking with Joy and Marissa. They are vestibular migraine patients who met in a support group having an instant connection through the similarities in their journey. Joy and Marissa share the same diagnosis, doctor, and even some of the same meds! Both women had worked prior to their illness and were searching for purpose and wanted to provide other vestibular patients with hope. Joy and Marissa share the same passion to advocate for the vestibular community and help others navigate their illness. They are both ambassadors with VeDA The vision for their series, “Finding Joy in Your Vestibular Migraine Journey” is to help other vestibular patients find joy and hope in their vestibular journey through sharing their personal experiences, as advocates for the vestibular community, helpful information and resources from VeDA will be shared throughout the series. Find Joy in your Journey! If you would like to reach out to me, Heather Davies, please email me at menieresmuse@gmail.com or Find me on Instagram If you would like to reach out to Marissa or Joy please click on the links below: YouTube Instagram Living With Vestibular Migraine Instagram Joy & Marissa Facebook Vestibular Support Group: Meeting Every Thursday at 7pm Central Facebook - Marissa's Page Twitter Spotify If you would like more information on vestibular disorders, please go to the Vestibular Disorder's Association website. I would like to thank you for listening and if this episode resonated with you, please take a moment and share this or any of the other episode with a vestibular warrior or family member of a warrior. Be sure to like, share and subscribe to Meniere's Muse for updates. Thank you for being here! I'll see you next week warriors.
This week I am talking with Veena about her vestibular journey with Vestibular migraine, persistent postural perceptual dizziness that began in 2012. Like many vestibular warriors getting accurately diagnosed was a challenge, especially when her symptoms went away for months only to return stronger after her pregnancy, along with anxiety, depression, loneliness, and disequilibrium. Today, Veena volunteers spreading awareness about vestibular disorders as a VeDA Ambassador and shares her unique story of finding herself through the challenges of her vestibular symptoms. This was an enlightening conversation where we discussed these and many other topics: ~ Which came first the anxiety or the vestibular symptoms ~ Symptom journaling ~ Leaning on other warriors ~ Trial and error with medications ~ Botox injections ~ Her struggle having COVID during her pregnancy ~ Learning to walk again with a vestibular disorder after a medically induced coma ~ Understanding your triggers If you would like to reach out to Veena, please find her on Instagram. If you would like to reach out to me, Heather Davies, please email me at menieresmuse@gmail.com or on Instagram If you would like to reach out, please see the show notes for our email addresses, websites or find us on Instagram. If you would like more information on vestibular disorders, please go to the Vestibular Disorder's Association website. I would like to thank you for listening and if this episode resonated with you, please take a moment and share this or any of the other episodes with a vestibular warrior or family member of a warrior. Be sure to like, share and subscribe to Meniere's Muse for updates. I'll see you next week warriors.
This episode will be part two in a 2-part series of a heartwarming conversation with Nicolle about her vestibular journey. If you haven't heard the first episode, I would recommend listen to that first. Nicolle has partnered with the Hearing Health Foundation and Vestibular Disorders Association (VeDA) where she donates her time and art to benefit their fundraising initiatives. Her fluid abstract works explore the relationship between sound and life, inspired by her sudden unilateral hearing loss in 2017. After being diagnosed with several Vestibular health conditions affecting her hearing and balance, Nicolle shifted her creative approach and style to illustrate her experience with hearing loss through color and movement. Her mixed-media technique incorporates soft washes and mark-making to create energetic yet calming multi-layered paintings. Over the course of her artistic career, Nicolle has created several art collections, for the most part, drawn from life experiences. Each particular series consists of works depicting a wide range of emotions and incidents, from life to death, from sorrow and solace to extreme joy, and new beginnings. Nicolle's series, The Colors of Sound, explores the relationship between sound and life, an invitation to consider how we make sense of our surroundings through what we can hear. When her partner, a sound engineer, used his recording equipment to display the sound waves and frequencies she was no longer able to hear, Nicolle was inspired to illustrate and ‘capture' sound visually. Recently she was featured in Vestibular Disorders Associations (VeDAs) docuseries: Life Rebalanced Chronicles, raising awareness about vestibular disorders. If you would like more information on vestibular disorder's please visit VeDA (Vestibular Disorders Association). Here you will find more information on balance disorders, diagnosis, treatment, medical professionals, support groups, even a new patient tool kit and so much more. It has been an amazing resource. If you would like to connect with Nicolle please reach her through her Art & Health Blog, Instagram or click here for her full hearing loss story. If you would like to connect with myself Heather Davies, please feel free to reach out to me via email Menieresmuse@gmail.com or find me on Instagram. If you or someone you know has an inspiring vestibular journey, I would love to speak with them, please direct message me and let's connect! Thank you so much for being here. I would like to take a moment and say thank you for being a part of the Meniere's Muses Community. I love to share stories of people making a positive impact in the vestibular community. Your feedback means the world to me. If you haven't already left a review please do so and let me know what you would like to hear more of on the show. Please be sure to subscribe to Meniere's Muse for updates. Thank you for listening! I'll see you next week warriors!
This week I'm sharing part one in a 2-part series of a heartwarming conversation with Nicolle about her vestibular journey with Meniere's, Sudden Sensorineural Hearing Loss (SSHL), BPPV, TMJ and Cervicogenic Dizziness that began in 2017. Nicolle is a Colombia-American Artist and Hearing Health Advocate based in Miami, Florida. In 2017 she suffered from sudden unilateral deafness and an unexpected incident that led to Meniere's Disease. Nicolle has partnered with the Hearing Health Foundation and Vestibular Disorders Association (VeDA) where she donates her time and art to benefit their fundraising initiatives. As a result of her work raising awareness about hearing loss and invisible disabilities, she was awarded the “Leadership Scholarship by Americans for Arts” in 2018. Recently she was featured in Vestibular Disorders Associations (VeDAs) docuseries: Life Rebalanced Chronicles, raising awareness about vestibular disorders. If you would like more information on vestibular disorder's please visit VeDA (Vestibular Disorders Association). Here you will find more information on balance disorders, diagnosis, treatment, medical professionals, support groups, even a new patient tool kit and so much more. It has been an amazing resource. If you would like to connect with Nicolle please reach her through her Art & Health Blog, Instagram or click here for her full hearing loss story. If you would like to connect with myself Heather Davies, please feel free to reach out to me via email Menieresmuse@gmail.com or find me on Instagram. If you or someone you know has an inspiring vestibular journey, I would love to speak with them, please direct message me and let's connect! Thank you so much for being here. I would like to take a moment and say thank you for being a part of the Meniere's Muses Community. I love to share stories of people making a positive impact in the vestibular community. Your feedback means the world to me. If you haven't already left a review please do so and let me know what you would like to hear more of on the show. Please be sure to subscribe to Meniere's Muse for updates. Thank you for listening! I'll see you next week warriors!
This week I am talking with Johan, "The Chappiness Guy" about his vestibular journey with PPPD (Persistent Postural-Perceptual Dizziness) and Vestibular Migraines (also called MAV - migraine associated vertigo or migraine induced vertigo). His journey began 3 years ago at the age of 33. Even though he was diagnosed fairly early in his journey, his symptoms didn't ease up for many months. Through his struggles he has found the formula that works for him, he has embarked on a mission as a VeDA Ambassador to raise awareness for vestibular disorders and provide strong community support. With his optimistic attitude, his unrelenting enthusiasm he shares how the power of manifestation has been a driving force in his life. If you know someone that would benefit from hearing this conversation, please share this episode with them. This is just one small way you can help bring awareness to vestibular disorders. Be sure to SHARE, LIKE AND FOLLOW. If you would like to reach out to Johan, please find his "Vestibular Talks" on his YouTube Channel or find him on Instagram. If you would like to reach out to me, Heather Davies, please email me at MenieresMuse@gmail.com, find me on Instagram or The Meniere's Muse YouTube Channel If you would like more information on vestibular disorder's please visit VeDA (Vestibular Disorders Association). Here you will find more information on balance disorders, diagnosis, treatment, medical professionals, support groups, even a new patient tool kit and so much more. It has been an amazing resource. Remember to subscribe to Meniere's Muse for updates. Thank you so much for being here!
Six years ago Em went through a health crisis after the birth of her second child. Her symptoms of dizziness, brain fog, derealization, eyes that didn't want to focus, anxiety, vestibular migraines (and more) were a chaotic storm that hit her system. Her symptoms were 24/7 for close to two years. Eighteen months into her journey she was diagnosed with vestibular neuritis and vestibular migraines (but also had other labels thrown at her). She dedicated herself to learning about holistic nutrition, embarked on a journey of healing the root cause, embraced a non-toxic lifestyle, neuroplasticity and furthered her knowledge of fueling health every step of the way (and continues to). These days she coaches other Vestibular Warriors to move through their vestibular something aS well as being a holistic nutritionist helping people utilize lifestyle medicine to fuel health. She shares her story extensively over on Vestibular Warrior YouTube channel and in her two books "Uncovering Bliss: A Journey With A Vestibular Condition and Beyond" as well as "Creating Bliss In Your Life With A Vestibular Condition and Beyond". She is also the founder of bliss-out.co, the happy wellness space for Vestibular Warriors. Her passion is to inspire and empower others to find freedom from their vestibular something, create vibrant health and follow their dreams along the way. If you would like more information on vestibular disorder's please visit VeDA (Vestibular Disorders Association). Here you will find more information on balance disorders, diagnosis, treatment, medical professionals, support groups, even a new patient tool kit and so much more. It has been an amazing resource. If you would like to get a free copy of Ems newly released book Creating Bliss In Your Life With A Vestibular Condition and Beyond. – reach out to and mention the Meniere's Muse podcast. Find Em on her YouTube at Vestibular Warriors Talks , Instagram, her podcast or her website. If you would like to connect with myself Heather Davies, please feel free to reach out to me via email Menieresmuse@gmail.com or find me on Instagram. If you or someone you know has an inspiring vestibular journey, I would love to speak with them, please direct message me and let's connect! Thank you so much for being here. I would like to take a moment and say thank you for being a part of the Meniere's Muses Community. I love to share stories of people making a positive impact in the vestibular community. Your feedback means the world to me. If you haven't already left a review please do so and let me know what you would like to hear more of on the show. Please be sure to subscribe to Meniere's Muse for updates. Thank you for listening! I'll see you next week warriors!
This week I am talking with Dave Giugno, about his vestibular journey with Meniere's Disease which ultimately led him to a left sided labyrinthectomy. His symptoms began Christmas Eve 2014 and became chronic in 2018. Prior to his vestibular journey he sang baritone in the church choir and was an avid photographer. He has turned a hobby of video editing into a passion project for Menieres patients on his YouTube Vlog titled “Meniere's Disease Warrior”. He shares openly about his day to day life with this disease. He is also the cofounder of two groups on FaceBook, Meniere's and Vertigo without Borders and Meniere's and Vertigo with Christian borders. His wife began the support group Partners of Meniere's and Vertigo without Borders, which is directed more to the significant others and partners of loved ones with these vestibular disorders. Dave has found living with Meniere's has given more patience and has also allowed him to watch his youngest son grow. He is thankful for so much in life and loves bringing awareness to these disorders. If you would like more information on vestibular disorder's please visit VeDA (Vestibular Disorders Association). Here you will find more information on balance disorders, diagnosis, treatment, medical professionals, support groups, even a new patient tool kit and so much more. It has been an amazing resource. If you would like to connect with Dave, please find him at YouTube Vlog titled “Meniere's Disease Warrior”. If you would like to connect with myself Heather Davies, please feel free to reach out to me via email Menieresmuse@gmail.com or find me on Instagram. If you or someone you know has an inspiring vestibular journey, I would love to speak with them, please direct message me and let's connect! Thank you so much for being here.
This week I am talking with Lara, about her vestibular journey with Labyrinthitis, Vestibular Neuritis and Vestibular Migraine that began after delivering her twin daughters, over twelve years ago. Her symptoms began to increase, and she was experiencing hyperacusis, light sensitivity and small vertigo episodes that got progressively worse over 2 years. Which lead to scary debilitating vertigo, disequilibrium, panic attacks, agoraphobia and like many vestibular warriors' bouts of depression and some suicidal thoughts. Having strong support from family and wanting to be an active parent in her daughter's lives helped her find the inner strength to push on. She began her blog, rightfully called Mummy Seeing Double, to share her healing journey and so others would feel less alone. Lara lives in Surrey, England with her beautiful family and continues to be an inspiration to many. If you would like more information on vestibular disorder's please visit VeDA (Vestibular Disorders Association). Here you will find more information on balance disorders, diagnosis, treatment, medical professionals, support groups, even a new patient tool kit and so much more. It has been an amazing resource. If you would like to connect with Lara at Mummy Seeing Double | Facebook or find her on Instagram. If you would like to connect with myself Heather Davies, please feel free to reach out to me via email Menieresmuse@gmail.com or find me on Instagram. If you or someone you know has an inspiring vestibular journey, I would love to speak with them, please direct message me and let's connect! Thank you so much for being here.
This week I am talking with Amy about her journey with vestibular migraine which began when she was a young girl and became chronic 5 years ago. She has been a personal trainer for over 12 years and feels that continuing her fitness journey helped keep her symptoms under control. She also believes having perseverance to find the right doctor and counselor (cognitive behavioral therapist) is important in everyone's healing journey. She feels seeing her on a weekly basis helped relieve a lot of her life stressors and aiding in being a big turning point in her life. She believes living her life differently than she did 5 years ago, has been incredibly positive. Earlier this year she opened up her online coaching services to anyone with migraine, this is so exciting and the fact she understands what we go through can be huge for those wanting to get in the best shape of their lives while living with this condition! If you would like more information on vestibular disorder's please visit VeDA (Vestibular Disorders Association). Here you will find more information on balance disorders, diagnosis, treatment, medical professionals, support groups, even a new patient tool kit and so much more. It has been an amazing resource. If you would like to connect with Amy, please find her on Instagram or her website www.Shockettfitness.com If you would like to connect with myself Heather Davies, please feel free to reach out to me via email Menieresmuse@gmail.com or find me on Instagram. If you or someone you know has an inspiring vestibular journey I would love to speak with them, please direct message me and lets connect! Thank you so much for being here.
This week my conversation is with Patrick. Patrick grew up in the town of Durango, CO and currently lives with his wife in Denver. He has worked in the medical device industry throughout his career in both technical and leadership roles as a mechanical engineer and project manager. He's had the privilege of working alongside amazing development teams in both startup and corporate environments building a variety of products ranging from orthopedic implants/instrumentation and minimally invasive surgical devices to military medical equipment and radiation therapy systems. Patrick is currently on sabbatical taking time to address a recent increase in symptoms from his Meniere's disease while investigating his next career move. In his spare time Patrick enjoys spending time with his beautiful wife Erika and crazy golden retriever Archie and getting outside with friends and family. If you would like more information on vestibular disorder's please visit VeDA (Vestibular Disorders Association). Here you will find more information on balance disorders, diagnosis, treatment, medical professionals, support groups, even a new patient tool kit and so much more. It has been an amazing resource. If you would like to connect with Patrick, please email him at patvestibjourney@gmail.com If you would like to connect with myself Heather Davies, please feel free to reach out to me via email Menieresmuse@gmail.com or find me on Instagram. Thank you so much for being here. Have an amazing week warriors!
This is part two of my conversation with fellow VeDa Ambassador, Alicia Wolf, also known to many as The Dizzy Cook. If you haven't heard the first episode, I would recommend listen to that first. She shares about her vestibular journey and publishing her first migraine friendly cookbooks. This episode is Part 1 in a 2-part series. Let me tell you a little about Alicia, she is an author at Migraine Again, a trusted website and community for people with migraine and frequent headaches. She is an expert in vestibular migraine and migraine elimination diets. We discuss so much in the episode, things that we referenced are below: To find an online support group, please check out VeDAs website - here: VeDA Online Support Group To find a live support group in your area - click here: VeDA Support Group Directory To follow or reach out to Alicia for a consultation or to purchase her cookbooks: TheDizzyCookShop.com Another great resource for support groups for those with migraine: Miles for Migraine A place to start to help others understand a little more what we go through living with a vestibular disorder, please encourage your loved ones or friends to watch: Life Rebalance Chronicle Docu-series If you would like to donate to VeDA for the Steps 2 Balance Campaign - please donate here, every donation regardless of size helps!! Thank you in advance! Thank you for being here warriors! If you would like to reach more information on vestibular disorder's please visit VeDA (Vestibular Disorders Association). Here you will find so much information on balance disorders, from diagnosis, treatment, medical professionals, support groups even a new patient tool kit and so much more. It has been an invaluable resource for me. If you would like to connect with Alicia - please connect with her through her website above or find her on Instagram. If you would like to connect with me, Heather Davies, please feel free to email me at MenieresMuse@gmail or find me on Instagram. Be sure to subscribe so you will be notified of any future episodes! Have an amazing week warriors!!
Today, I am sharing a fantastic conversation with fellow VeDa Ambassador, Alicia Wolf, also known to many as The Dizzy Cook. She shares about her vestibular journey and publishing her first migraine friendly cookbooks. This episode is Part 1 in a 2-part series. Let me tell you a little about Alicia, she is an author at Migraine Again, a trusted website and community for people with migraine and frequent headaches. She is an expert in vestibular migraine and migraine elimination diets. We discuss so much in the episode, things that we referenced are below: To find an online support group, please check out VeDAs website - here: VeDA Online Support Group To find a live support group in your area - click here: VeDA Support Group Directory To follow or reach out to Alicia for a consultation or to purchase her cookbooks: TheDizzyCookShop.com Another great resource for support groups for those with migraine: Miles for Migraine A place to start to help others understand a little more what we go through living with a vestibular disorder, please encourage your loved ones or friends to watch: Life Rebalance Chronicle Docu-series If you would like to donate to VeDA for the Steps 2 Balance Campaign - please donate here, every donation regardless of size helps!! Thank you in advance! Thank you for being here warriors! If you would like to reach more information on vestibular disorder's please visit VeDA (Vestibular Disorders Association). Here you will find so much information on balance disorders, from diagnosis, treatment, medical professionals, support groups even a new patient tool kit and so much more. It has been an invaluable resource for me. If you would like to connect with Alicia - please connect with her through her website above or find her on Instagram. If you would like to connect with me, Heather Davies, please feel free to email me at MenieresMuse@gmail or find me on Instagram. Be sure to subscribe so you will be notified of any future episodes! Have an amazing week warriors!!
This week I am talking with Kate about her vestibular journey with an acoustic neuroma, also known as a vestibular schwannoma. Katie lives in North Carolina with her family, where she is kindergarten teacher. She hopes one day to follow her passion of becoming a certified language therapist and stepping into her dream as a reading interventionist. She is still learning to balance her dizziness and exhaustion with amazing support from her church, circle of friends and family. If you would like more information on vestibular disorder's please find the link to VeDA (Vestibular Disorders Association) in the show notes. Here you will find more information on balance disorders, diagnosis, treatment, medical professionals, support groups, even a new patient tool kit and so much more. It has been an amazing resource. If you would like to connect with Katie or myself Heather Davies, please feel free to reach out to me via email Menieresmuse@gmail.com or find me on Instagram. Have an amazing week warriors!
This week I am talking with Dr. Jessica Pagan about her journey with binocular vision disorder. She has been in the healthcare field for 17 years working as an athletic trainer, specializing in injury prevention and rehabilitation of athletes. She returned to school, graduating Magna Cum Laude and has been a practicing chiropractor for the past 8 years, when she began having visual disturbances accompanied by anxiety and dizziness. She shares about her vestibular journey in detail on her podcast The Spinning Chronicles, where she takes an in-depth look into other vestibular disorders and raises awareness for these disorders. Thank you for being here warriors! If you would like more information on vestibular disorder's please find the link to VeDA (Vestibular Disorders Association)in the show notes. Here you will find more information on balance disorders, diagnosis, treatment, medical professionals, support groups and a new patient tool kit and so much more. It has been an amazing resource. If you would like to connect with Dr. Jessica Pagan – please find her on IG at The_Spinning_Chronicles and if you would like to connect with me, Heather Davies, please feel free to reach out to me at via email Menieresmuse@gmail.com or find me on Instagram. Have an amazing week warriors!
Finding her passion by sharing her story. This week I am talking with Tammy about her vestibular journey with drop attacks, vestibular migraine, neuritis and Meniere's disease after a labyrinthectomy. She also shares how finding the right support in a Facebook group helped her feel less alone and changed her life. Finding the support of a vestibular family helped her find her passion for helping others with chronic illness, she connects with others as a Creator on the platform Clapper. As a vlogger on Clapper, she connects with other chronic illness warriors and currently has over 106k followers. She shares about her day-to-day challenges while giving other warriors support while they face new obstacles in their lives. Thank you for being here warriors! If you would like more information on vestibular disorder's please visit VeDA (Vestibular Disorders Association). Here you will find so much information on balance disorders, from diagnosis, treatment, medical professional, support groups, even a new patient tool kit and so much more. It's been an invaluable tool. If you would like to connect with Tammy, please find her on Clapper – or Instagram (Click here to go directly to her IG account). If you would like to connect with me, Heather Davies, please feel free to reach out via email at Menieresmuse@gmail.com or find me on Instagram. Have an amazing week warriors!
Learning the art of self-advocacy. This week I am talking with Diana about her journey with Vestibular Migraines, as a stay-at- home mother she shares how these disorders affect not only the warrior, but they can also take an emotional toll on our families as well. She learned that focusing on her passion for make-up and nail art not only propelled her to start a business as professional nail artist, it's a way for her spend more quality time with her family and allows her to focus on something other than her symptoms. Today Diana feels she is 70-95% her former self and has learned how to create a fulfilling life. Thank you for being here warriors! If you would like more information on vestibular disorder's please visit VeDA (Vestibular Disorders Association). Here you will find so much information on balance disorders, from diagnosis, treatment, medical professional, support groups, even a new patient tool kit and so much more. It's been an invaluable tool. If you would like to connect with Diana, please feel free to find her on Instagram (Click here to go directly to her IG account). If you would like to connect with me, please feel free to reach out to me, Heather Davies at via email at Menieresmuse@gmail.com or find me on Instagram. Have an amazing week warriors!
This week I am sharing about body scan meditations and how it's an easy way to practice mindfulness, relaxation to the body and mind, helping relieve tension, pain, discomfort, anxiety and so much more. This is such a beneficial tool that many use on a daily basis and one you can take with you anywhere. It's been an absolute blessing to me! Enjoy this month's guided meditation. If you would like more information on vestibular disorder's please visit VeDA (Vestibular Disorders Association). Here you will find so much information on balance disorders, from diagnosis, treatment, medical professional, support groups, even a new patient tool kit and so much more. It's been an invaluable tool. If you would like to connect with me, please feel free to reach out to me, Heather Davies at via email at Menieresmuse@gmail.com or find me on Instagram. Have an amazing week warriors!
© 2020-2025 Ivy Podcast Discovery LLC
