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Send us a textUnlock the future of heart care and understand how a revolutionary cooperative platform is reshaping the landscape of congenital heart disease treatment. Join us as we explore the groundbreaking innovations at HeartWorks, a transformative program at the Mayo Clinic led by Dr. Tim Nelson. With heartfelt insights from Erin Borkowski, a dedicated heart mom, and Rachel Gott, an inspiring adult living with congenital heart disease, we delve into the challenges and advancements that are redefining patient care and clinical trial processes.Meet the pioneers behind the scenes as Dr. Nelson explains how HeartWorks is bridging the gap between research and real-world applications. By harnessing patient-contributed data, this initiative is overcoming the frustrations of traditional clinical trials, making them more effective and timely. Rachel Gott shares her personal journey with HeartWorks, emphasizing the significant impact of ongoing research and patient empowerment in the fight against congenital heart disease.Discover how HeartWorks is turning obstacles into opportunities through a data-driven cooperative platform. This patient-owned model is not only increasing enrollment in clinical trials but also creating a collaborative network of institutions across the nation. From engineering heart muscle cells from skin biopsies to making clinical trials more accessible, HeartWorks is revolutionizing the way we think about congenital heart disease care. Tune in to learn how you can support these efforts and contribute to a brighter future for individuals of all ages affected by congenital heart conditions.Thanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
Send us a textEver thought you could lead an exhilarating life despite a congenital heart defect? Meet Ben Johnson, a formidable heart warrior born with tetralogy of Fallot. Tune in as Ben, now 45, recounts his spirited childhood and how his heart condition didn't stop him from being a vibrant, active child. From hospital memories to a loving family and supportive teachers, Ben's story is a testament to resilience and the power of a strong support system. He takes us through his childhood escapades, proving that with the right mindset and community, a heart defect doesn't have to define your limits.Our conversation with Ben reveals the intricate journey of living with congenital heart defects, focusing on the visible reminders, including his scars and tattoos, and their role in shaping his life narrative. Delve into Ben's fitness journey where he embraces an active lifestyle with weightlifting, debunking common myths about limitations for heart patients. With the guidance of a personal trainer and self-monitoring, Ben exemplifies how managing health proactively can lead to a robust and fulfilling life, inspiring others with heart conditions to pursue their ambitions confidently.The episode doesn't just stop at physical well-being. We explore the significant link between exercise and mental health, sharing personal triumphs over post-surgical discomfort and the incredible benefits of targeted workouts. From stretching and strengthening exercises to the profound impact of endorphins, discover how maintaining an active routine can elevate mood and reduce anxiety. Encouraging inclusivity in physical activities, we stress that everyone, irrespective of physical limitations, can find joy and freedom in movement. Join us in fostering a community of heart warriors, advocating for empowerment, and cherishing each milestone along our shared journeys.Ben Johnson's contact information: https://tinyurl.com/y9yw53njThanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
What if a shared journey through loss could spark an inspiring platform that brings healing to countless others? Welcome to the eighth season of "Bereaved But Still Me," where our personal stories intertwine with hope and resilience. Join me, Michael LIben, alongside my dear friends and colleagues, executive producer Anna Jaworski and producer Nancy Jensen, as we explore the birth and evolution of our podcast. The bonds we formed years ago, nurtured through parenting children with congenital heart defects, have created a sanctuary for bereavement support. Together, we honor the memories of our loved ones while fostering a sense of purpose and renewed strength.Our podcast is more than just a collection of stories; it is a testament to friendship and the power of collaboration. Nancy, who initially joined us as our first guest, now plays a crucial role as a producer, and her journey following the loss of her daughter Jessica highlights the importance of this community. Through personal experiences and shared tears, we have built a platform that not only serves as a vital outlet for grief but also reinforces our connections and shared mission. From the initial sparks of connection via an old-school listserv to our current reach, we reflect on the camaraderie that has driven us forward.In this heartfelt episode, we invite you to explore the therapeutic dimensions of podcasting with us. Our conversations with professionals like Silke Herwald and cherished friends such as Carter and Faye Mayberry have enriched our understanding of grief and healing. We engage in meaningful discussions on topics ranging from faith to the diverse ways people experience loss. As we expand our horizons to include episodes in multiple languages, our goal remains steadfast: to inspire hope and connection within our ever-growing community.Thanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!We appreciate it when people support Hearts Unite the Globe podcasts. Thanks to our newest supporters - Annie Ulchak (Patreon) and Judy Miller (Buzzsprout)!Become a supporter of this podcast: https://www.spreaker.com/podcast/bereaved-but-still-me--2108929/support.
Send us a textDo Halloween festivities bring more joy or concern when you're living with a congenital heart defect? Ashley DeMarco shares her journey growing up with complex heart conditions, turning personal challenges into stories of resilience. Alongside her, we hear from Michael Liben, who navigates grief with humor on his podcast "Bereaved but Still Me," and Rita, who provides a multi-generational perspective on congenital heart disease (CHD) with her family's experiences. Together, we unravel the nuances of navigating health and community as young adults and parents in the CHD world, painting a picture of hope and solidarity.As we transition into the spirit of Halloween, nostalgia and safety tips blend together in our lively discussions. We reminisce about trick-or-treating in tight-knit communities, while also highlighting the essential precautions for children with heart conditions during these festivities. The contrast between past and present perceptions of safety reveals a world that's both cautious and filled with connection through shared medical experiences. Our conversation is a heartwarming reminder of the bonds formed between parents and children, especially when magic and medicine intersect.Finally, we address the often-overlooked emotional toll of compassion fatigue. With stories from heart camps and non-CHD friendships, we explore the challenges of maintaining relationships while living with ongoing health issues. Rita reflects on a memorable live show, demonstrating how our means of connecting have evolved. The conversation serves as a beacon for understanding and connection, underscoring the profound need for community support. We invite listeners to contribute their insights and stories, enriching the dialogue and reinforcing the shared journey of the CHD community.Helpful Links:The Rita, Victoria and Heidi Scoggins' episode: https://tinyurl.com/3ScogginsAmy Erhart's first Heart to Heart with Anna episode: https://www.buzzsprout.com/62761/episodes/15810923One of Michael Liben's Heart to Heart with Anna episodes: https://www.buzzsprout.com/62761/episodes/736588Compassion Fatigue Episode: https://www.buzzsprout.com/62761/episodes/736588Thanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
Send us a textMeet Marina Lohri, a true trailblazer in the world of congenital heart defects (CHDs). Born with tricuspid atresia, a ventricular septal defect, and an atrial septal defect, Marina's journey from a life-saving C-section to being among the first in Switzerland to undergo a modified-Fontan procedure at just 11 months old is nothing short of miraculous. In our conversation, Marina unfolds her inspiring story and shares her passion for working at atHeart Medical, where she is dedicated to promoting innovative solutions for those with similar heart conditions.Navigating the complexities of living with Atrial Fibrillation (AFib) and congenital heart defects is no small feat. Marina opens up about her personal experiences with rapid heart rates and the profound decision to undergo an ablation. As she contemplates the intricate considerations surrounding pregnancy with a congenital heart condition, we delve into the evolving medical advice she received and the diverse perspectives of healthcare professionals. Marina's story is a testament to the importance of specialized care and the expertise found at top hospitals in Switzerland.From finance to the medical field, Marina's career journey is a testament to aligning work with personal values and health needs. As she shares her transition to atHeart Medical, a startup focused on congenital heart defects, Marina highlights the rewards of working in a supportive environment that truly understands the challenges of living with CHD. Her advocacy extends beyond her professional life, as she continues to inspire others with similar heart conditions to pursue their passions and find purpose in their careers. Marina's resilience shines through as she navigates life's challenges with a positive attitude and a commitment to the CHD community.Helpful Links:atHeart Medical website: https://atheartmedical.comSupport Organizations:Mended Hearts: https://mendedhearts.org(In German)Herznetz: https://www.herznetz.ch/Fontanherzen: https://fontanherzen.ch/Swiss Heart: https://swissheart.ch/Thanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
Send us a textUnlock the latest in cardiac neurodevelopmental research with Dr. Dawn Ilardi, a distinguished clinical neuropsychologist, as we navigate the complexities of how congenital heart defects (CHDs) impact children's neurodevelopment. Discover the groundbreaking strides made by the Cardiac Neurodevelopmental Outcome Collaborative (CNOC), a global network of over 50 institutions revolutionizing clinical care and research. Explore cutting-edge advancements in brain imaging and gain insight into the often-overlooked influences of non-cardiac factors, such as the placenta, along with the indispensable role of family involvement in enhancing developmental outcomes.Hear a poignant story of parental vigilance that underscores the vital need for early detection and standardized imaging in pediatric cardiology. Despite the challenges faced by families with limited resources, new initiatives are bridging the gap between hospital-based care and private practice, providing essential support and education. Cultural perceptions of disabilities are also on the table, emphasizing the importance of culturally sensitive approaches tailored to diverse communities, ensuring all families receive the understanding and assistance they deserve.Finally, we shed light on the crucial connection between parental mental health and a child's developmental journey. Understand the nuances of capturing accurate baselines in neurodevelopmental assessments for children with CHD and why repeat evaluations are essential. As we discuss the emotional rollercoaster faced by parents, we stress the value of community resources and social media groups in offering support. Join us to appreciate the profound impact of parental well-being on a child's health trajectory and learn strategies for balancing the demands of caregiving with the necessity of self-care.Dr. Ilardi's previous "Heart to Heart with Anna" appearance: https://tinyurl.com/DawnIlardi2014Dr. Ilardi's website: https://www.pedneurocenter.comDr. Ilardi's email: DawnIlardi@pedneurocenter.comThanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
Send us a textHow do families navigate the uncharted waters of raising children with congenital heart disease (CHD)? Join us on a groundbreaking episode of Heart to Heart with Anna, where we host our very first live show with a studio audience! With guests like Amanda, Joey, Michael, Ayrton, Regina, Rachel, and Chris, you'll hear raw and honest conversations about everything from recent surgeries to the complexities of living with DiGeorge syndrome and HLHS. The live audience format brings an unscripted, spontaneous energy that's sure to engage and inspire.Ever wondered what it takes to grow a podcast network dedicated to CHD? We share our ambitious plans for the next five years, including launching podcasts in multiple languages such as Spanish, Urdu, and even an African language. You'll laugh along with us as we recount some of the humorous mishaps we've encountered—like losing an internet connection during a live show from a coffee shop! Our journey is a testament to the passion and community effort behind each episode, evolving from personal contacts to listener-generated suggestions.This episode also offers a deep dive into the emotional landscape of CHD families. Special guests Meg Didier and Annie Ulchek, HLHS survivors, discuss the unique challenges they face. We cover a range of sensitive topics such as the role of fathers, the experiences of career moms, and the emotional toll on siblings. Discover how CBD and THC are being used for anxiety and pain management, and meet a father who opens up about the scars left by navigating the challenge of raising a child with a CHD while also parenting two heart-healthy children. We cap off by emphasizing the importance of awareness initiatives like placing AEDs in schools and invite you, our listeners, to contribute your stories and feedback for future projects.Thanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
Send us a textHow do you condense a lifetime of experiences into a single essay? Megan Tones reveals the challenges and triumphs of contributing to the "Heart of a Heart Warrior" anthology, where she found a way to spotlight positivity amid adversity. Joined by Sheri Turner, a supportive beta reader and CHD advocate, we explore how storytelling can be both a healing process and a community-building tool. Together, Megan and Sheri shed light on the transformative power of words in the CHD community.Anticipation builds as we discuss the upcoming volume of "The Heart of a Heart Warrior" book series, focusing on themes of resilience and reflection. This volume aims to capture a wide range of experiences, from parenting older children with CHD to navigating the unique challenges posed by COVID-19. We also delve into the neuropsychological hurdles faced by CHD patients and offer practical advice for those interested in contributing their stories. The episode takes a heartfelt turn as we grapple with themes of grief, loss, and support. Sheri shares her personal journey of questioning faith after the devastating loss of her son Thomas, highlighting the importance of validating the emotions of bereaved parents. We discuss the impact of sharing these deeply personal stories and Anna also announces how she and Sheri will be co-editing "The Heart of a CHD Angel" which will offer support and encouragement for bereaved CHD parents. Megan and Sheri's insights encourage potential writers to join the Scribophile group for support and feedback, ensuring their voices are heard. As we wrap up, we emphasize the significance of community advocacy and encourage listeners to leave a review, helping more people in the CHD community discover these stories of resilience and hope.Helpful links:Baby Hearts Press for more information about upcoming bookshttps://www.babyheartspress.comScribophile group for anthology contributorshttps://www.scribophile.com/groups/heart-to-heart-writing-groupThanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
Send us a textWhat does it take to recognize the early signs of congenital heart defects (CHD) in a newborn? In this emotionally charged episode of "Heart to Heart with Anna," we welcome Raadhiyah Matthews, who recounts her harrowing journey with her daughter Thaakirah. From the initial dismissals by medical professionals to the profound struggles with feeding and gaining weight, Raadhiyah's candid story captures the relentless love and anxiety only a mother can understand. Her tireless advocacy led her to establish Brave Little Hearts South Africa, a beacon of hope for parents facing similar battles.We also hear about Thaakirah's incredibly quick diagnosis at Red Cross Memorial Children's Hospital, leading to immediate surgery and a rollercoaster of emotions. The stakes heighten as Raadhiyah describes the complications, including a severe brain infection that resulted in emergency neurosurgery and temporary paralysis. Raadhiyah's strength and resilience is laid bare, offering listeners a raw, unfiltered look into the challenges of navigating a child's severe health crisis.Cultural stigmas and the critical importance of pulse oximetry in early CHD detection form another essential part of our discussion. We explore the efforts of advocating for legislative changes to make this life-saving test mandatory, sharing personal stories that highlight ongoing struggles and successes. Concluding with a heartfelt tribute to Fareed Matthews, whose enduring legacy continues to inspire and support families through Brave Little Hearts South Africa, this episode is a deeply moving testament to the power of parental love, advocacy, and community in the face of congenital heart defects.Thanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
Send us a textWhat would you do if you suddenly discovered that multiple members of your family were living with an intricate genetic condition? Join us for a heartfelt conversation with Regina Lawrence as she opens up about her family's journey with DiGeorge syndrome (a.k.a. 22q11.2 deletion syndrome). From the moment they learned about Aubrey's diagnosis in utero, to the immediate surgeries that followed her birth, Regina shares the raw, emotional experiences of navigating multiple complex medical needs. Dive into the Lawrence family's world, where resilience is not just a necessity but a way of life.Listen as Regina recounts the unexpected revelation of her husband's diagnosis at age 35 and the impact it had on their family dynamics. Discover how the Lawrences juggle specialized medical care, feeding challenges, and the critical role of American Sign Language and communication tablets in Aubrey's day-to-day life. Learn about Tina, Aubrey's sister, and the family's experiences at Boston Children's Hospital. Regina's advocacy work within the CHD community also offers a passionate perspective on why genetic testing is paramount. This episode promises to leave you with a profound understanding of DiGeorge syndrome and the unbreakable spirit of a family united in their fight.Link to The CHC Podcast: Congenital Heart Conversations: https://tinyurl.com/CHCPodcastAppleThanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
Send us a textHave you ever ignored a small discomfort only to realize it was something far more serious? Join us on "Heart to Heart with Anna" for an eye-opening conversation with Jeff, the creator and host of a non-profit podcast network, who discovered a congenital heart defect called a myocardial bridge at the age of 65. Jeff recounts his terrifying experience of cycling through strange symptoms and surviving a heart attack, ultimately learning the necessity of paying attention to one's body. Through his personal narrative, Jeff underscores the critical role of support networks and timely medical intervention in overcoming health challenges.What happens when traditional medical tests don't give you the answers you need? In this episode, we delve into the complexities of diagnosing and treating ventricular tachycardia and myocardial bridging. Jeff shares the life-saving journey that led him to create his podcast, "Imperfect Heart," focusing on raising awareness about these underdiagnosed conditions. From the importance of self-advocacy in medical settings to the need for better education in medical schools, Jeff's mission is to use his "bonus time" to make a positive impact on the lives of others. Listen in to learn about the life-changing potential of surgical intervention and the power of recognizing and acting on heart-related symptoms.Helpful Links:Jeff's Imperfect Heart podcast: https://www.myimperfectheart.com/Stanford's Myocardial Bridge Program: https://stanfordhealthcare.org/medical-conditions/blood-heart-circulation/myocardial-bridging.htmlWe're Rolling Studios' Instagram page: https://www.instagram.com/wererollingstudios/Thanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the Show.Anna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
Send us a Text Message.What if your heart's rhythm was out of sync from birth, yet you persevered to defy medical odds? Join us as Gwenyth Murphy, a resilient second-generation congenital heart defect survivor, shares her compelling journey of managing complete heart block and other heart conditions. From coping with an abnormally low heart rate as a child to receiving her first pacemaker just before college, Gwenyth provides an inspiring look at the evolution of her treatments and the groundbreaking procedure she anticipates.Gwenyth's story takes a fascinating turn as she recounts the unexpected diagnosis of myotonic dystrophy, a condition initially masked by her heart defect symptoms. Discover how this genetic muscular dystrophy was finally identified through persistent symptoms and a critical health crisis after childbirth. Gwenyth sheds light on the often delayed and misdiagnosed nature of the condition, emphasizing the importance of comprehensive medical evaluations and genetic testing in uncovering interconnected health issues.Self-advocacy emerges as a crucial theme throughout this episode. Gwenyth's experience underscores the necessity of seeking second opinions and consulting specialists to unravel the complexities of managing multiple health conditions. We delve into her daily strategies for coping with myotonic dystrophy, including medications, physical therapy, and mobility aids, and explore the emotional and mental resilience required to navigate such a challenging medical landscape. This episode is a powerful testament to perseverance, the importance of support, and the relentless pursuit of well-being.Helpful Links:Baby Hearts Press (for The Heart of a Heart Warrior): https://www.babyheartspress.comThanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the Show.Anna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
Send us a Text Message.Discover the remarkable resilience of Rachael Gott, our extraordinary guest born with hypoplastic left heart syndrome (HLHS). Despite her condition remaining uncorrected, Rachel has navigated a complex medical journey, including ten cardiac ablations and two device implants, all while avoiding open-heart surgeries. Rachael also faces Marfan syndrome, which adds another layer of complexity to her life. Join us as Rachael shares her inspiring story, highlighting her ability to overcome innumerable challenges and offering hope to others with congenital heart disease (CHD).Rachael's journey is one of incredible strength and persistence. She opens up about her experiences with multiple heart rhythm issues and the difficulties posed by various medications. As she discusses her forthcoming plans for an open-heart Maze procedure and potential heart and kidney transplants at the Cleveland Clinic, Rachael provides us with a unique glimpse into the emotional and physical toll of living with severe heart conditions. Her late diagnosis in her twenties brings a poignant perspective on the emotional reactions of her parents and how they coped with the news, underscoring the importance of a robust support system.From a seemingly normal childhood filled with sports, singing, and dancing, to the shocking discovery of her condition following severe chest pain, Rachael's story is a testament to the human spirit's endurance. The medical community's awe at Rachael's case highlights the rarity and complexity of congenital heart defects like HLHS. Rachael's experience underscores the importance of community support and the strength she's found in connecting with others facing similar challenges. Tune in to hear her express gratitude for these connections and learn how her journey may soon be shared in a book about resilience.Thanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the Show.Anna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
Send us a Text Message.What happens when resilience meets a congenital heart defect? Join us as we uncover the extraordinary journeys of women who have turned their medical challenges into stories of hope and triumph. Begin with Emily Falcon's deeply moving "A Letter to my Younger Self," where she offers wisdom and reflections that will resonate with anyone facing life's obstacles. Move to Michelle Anderson DeRoo's powerful tale in "Exceeding Expectations," where she sheds light on how advocacy and compassionate care can defy even the grimmest medical predictions. And don't miss Allison Holmes' insightful reflections from over 50 years of living with a single ventricle heart, offering lessons learned and immense inspiration.In Chapter 10 of "The Heart of a Heart Warrior," we delve into the emotional rollercoaster of growing up with a severe heart defect. Michelle's narrative takes us through the trials and triumphs, with low oxygen levels and dire prognoses threatening to derail dreams—until the compassionate Dr. Hurley steps in. Experience the harrowing and hopeful moments that underscore the necessity of perseverance, advocacy, and compassionate medical care in overcoming life-threatening health challenges. We also benefit from both Emily's and Allison's reflections on what they've learned growing up with heart defects.We close this chapter, and this episode, by exploring the unique psychological and emotional hurdles parents face when raising children with congenital heart defects. We discuss how the term "heart warrior" instills hope and courage amidst the unpredictability of chronic illness. Reflecting on the transformative advancements in pediatric cardiology, the collaborative efforts between healthcare professionals, and the unyielding support from parents, this chapter is a heartfelt tribute to the resilience and achievements of heart warriors and their families. Tune in to be inspired by stories that showcase the enduring spirit and remarkable strength of the congenital heart community.To buy this book, visit Baby Hearts Press (https://www.babyheartspress.com)Become a podcast subscriber: https://www.buzzsprout.com/62761/supportThanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the Show.Anna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
Send us a Text Message.How do heart warriors find incredible strength amidst life's most challenging moments? In this episode of "Heart to Heart with Anna," we bring you deeply touching and empowering stories from individuals who have triumphed over congenital heart defects (CHD). Join us as Megan Tones sets the stage with an introduction to Chapter 9, followed by poignant excerpts from Tori Geiger's "From Vulnerable to Victorious" and Jessica Carmel's "The Hearts of a Girl." Tori's defining moment during a high school sports event and Jessica's persistent battle with gallbladder disease highlight the resilience and courage of those navigating life with CHD.Discover the transformative power of storytelling through Kimberly Russell's essay, "You Should Write a Book," and Dr. Brandon Lane Phillips' journey from a rural Louisiana childhood to becoming a successful pediatric cardiologist. Kimberly's narrative underscores how sharing personal experiences can be a beacon of hope, especially for parents of children with CHD. Meanwhile, Dr. Phillips' narrative based on "When I Wished Upon a Star" showcases the profound impact of mentorship and personal connections, enriched by his encounters with child actor Jeremy Miller.As we wrap up, Megan and I reflect on the invaluable contributions of Baby Hearts Press, a cornerstone for the CHD community since 1996. We discuss our experiences with the "Heart of a Heart Warrior" series and urge listeners to advocate for these pivotal resources at their local libraries. This episode is a testament to the power of community, encouraging everyone to draw strength from shared stories and support each other through the most challenging journeys. Join us for an episode that promises inspiration, empowerment, and a reminder that no one faces their battles alone.To buy this book, visit Baby Hearts Press (https://www.babyheartspress.com)Become a podcast subscriber: https://www.buzzsprout.com/62761/supportThanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the Show.Anna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
What happens when we lose our loved one after years of living with dementia? How did writing about living with dementia help Melissa Geiser to deal with her grief? What can be learned from years of watching a loved one die from dementia?Melissa Geiser is a blogger and the only child of her mother Pat. At the end of 2013, Pat's friends started calling Melissa when they became worried about Pat. Pat had been living in the same house for over 30 years, but suddenly she would ask her friends to lead her home after she finished working out at the gym. Melissa had just started back to college and her marriage was struggling, so this situation with her mother couldn't have come at a worse time. In the end, Melissa felt she had to move her mother to Oklahoma to be near her. Melissa has written a blog to help others who were also experiencing loving someone with dementia entitled “Departure from Logic.” She is planning on using her blog to write a book to help others living with loved ones who are suffering from dementia. Today's show is “When Your Loved One Dies from Dementia” and our Guest Host is Nancy Jensen.Links to “Bereaved But Still Me” Social Media and Podcast Pages:Apple Podcasts: https://podcasts.apple.com/us/podcast/bereaved-but-still-me/id1333229173Spreaker: https://www.spreaker.com/show/heart-to-heart-with-michaelFacebook: https://www.facebook.com/HugPodcastNetworkYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwWebsite: https://www.hug-podcastnetwork.com/
Episode 13: Show Notes.Through all of life's challenges and even the devastating loss of a child, there are always moments of beauty, gratefulness, and hope. Today's conversation with Nancy Jensen underlines this message emphatically, and our guest is extremely generous with her story and reflections on her relationship with her daughter, Jessica. Nancy explains a little about the devastating diagnosis that Jessica received at birth, and how this impacted her approach to parenting her. We consider this idea of anticipatory grief and the many lessons that Nancy learned through the time that Jessica spent on Earth. In the end, this is a conversation filled with reminders about what is most important and how finding support and solace in surprising places can make all the difference to us during difficult times. This podcast discusses miscarriage, pregnancy, and infant and child loss, so as always, please listen with care. Key Points from This Episode:• Looking at a little of Nancy's background and family life. • Nancy talks about her second child, Jessica, and the heart defects she was diagnosed with at birth.• The months preceding Jessica's first heart surgery, and the stroke she suffered.• Jessica's life at home, the stories and movies she loved, and the activities that lit her up. • How therapy and effort improved some of the challenges that Jessica faced. • Grieving losses while holding onto small amounts of hope. • The game that Nancy devised to underline the positive parts of Jessica's life. • Jessica's network of inspiration; Nancy talks about how she affected those around her! • How Nancy connected with support online in the early 2000s. • The feelings that arose in Nancy as she mentally prepared for losing her daughter. • Jessica's last birthday party and Nancy's wishes for her passing. • Hospitalization and in-home hospice, and the final parts of Jessica's life. • The beautiful and tragic last moments that Nancy was able to spend with her daughter. • Some of the inspiring things that Jessica said before her passing.• The image of the butterfly and Jessica's promise to her mother. • Advice from Nancy to parents about taking it a moment at a time and enduring difficulties. • Information about the podcasts and initiatives that Nancy is currently involved with . Links Mentioned in Today's Episode:HavenBereaved But Still MeHearts Unite the GlobeHeart to Heart with AnnaHarry PotterLord of the RingsPirates of the CaribbeanTellwell
To get the full show notes for this episode click hereIf you like this podcast, and found it helpful, I want to invite you come check out Grieving Moms Haven, my monthly community for Grieving moms, where you can learn positive coping mechanisms, find a safe space with others who understand, and learn life long skills that support you as you learn how to carry this weight of grief in your life.There are group coaching calls where we do guided meditations, tapping meditations, breathwork, and just talk, knowing that everyone in the group is also walking the path of child lossYou can come check out Grieving Moms Haven at www.grievingmomshaven.com
My guests on this episode are the authors of Back To Business and founders of The Swing Shift Nancy Jensen and Sarah Duenwald. I am joined by my colleague Elaine Newtson for a really interesting conversation about coming back to work after taking a career pause. Nancy and Sarah's company, The Swing Shift offers women programs and services to compete in the modern job search. Their book, Back To Business: Finding Your Confidence, Embracing Your Skills, and Landing Your Dream Job After A Career Pause shares the lessons and strategies they have developed through their one-on-one and cohort based work at The Swing Shift with readers everywhere. As I finished up production on this episode, I read in the September issue of Harvard Business Review that 57% of male and 74% of female Millennials anticipate taking a career break for childcare, eldercare or to support a partner in a job. Career pauses are becoming more common, and smart companies are developing programs to keep their employees engaged and pave the way for their eventual return to the company when they are ready. We covered a lot of territory in the conversation, so the episode is longer than most, but I think it is worth the listen for anyone contemplating taking a break from work, or thinking about coming back from one. Graduate students certainly fall into this category. The Foster MBA program takes students out of the workplace for 22 months (with a 3 month internship in the middle) and many of the lessons from the Swing Shift apply, especially around networking and mindset. The authors share their recommendations about activating your networking, keeping your LinkedIn profile current, staying in touch with hiring managers regardless of the outcome of the interview process, handling rejections, identifying family friendly workplaces (look for women in leadership roles, parental leave policies, executives who have kids, even pictures of families on an office desk are good indicators.) We talked about the importance of making a childcare plan if you are thinking about starting a family, or returning from work after taking a break to start one. Childcare (the difficulty finding it, and the cost of it) are some of the biggest obstacles to people returning to work. On networking, my conversations with Asal Mirsalimi, and colleagues Stacy Duhon and Elaine Newtson may be interesting listens. I also had a good conversation with author Alexandra Samuel about networking during the pandemic when in-person interaction may not be a possibility. On rejection, and reframing failure, something we cover in this episode, a conversation I had with my colleague Julie Boden may be a good supplement. We also talked about the importance of reflection, and on this topic, I've talked with a number of guests about journaling and reflective practices, Andy Hafenbrack, Tabitha Kirkland and Ryan Fehr among them. You can learn more about The Swing Shift and their programs at TheSwingShift.co, and follow the links from there to learn more about Back To Business. Until October 9th, 2021, LinkedIn Learning is making 40 course on career changing available for free. You can also watch Elaine Newtson's University Book Store book event with the authors on YouTube. If you enjoy the podcast, please take a few moments to answer a short survey that will help me plan season 7, coming out in winter 2022.
The upcoming season of Conversations on Careers and Professional life is right around the corner. Episodes will start to drop late August and continue through the fall quarter. I've got some great conversations to share, starting with advice from students and alumni to incoming students at the foster school. I'll share a conversation with two 2021 MBAs, Evan Gray and Andrew Wen, and the Founding Partner of Fuse VC about the Foster Venture Fellows program, and another conversation with the founders of the Swing Shift and authors of Back To Business, Sarah Dunewald and Nancy Jensen along with my colleague Elaine Newtson about returning to the workforce after a career pause. This season, also features some conversations with alumni including Rachel Hester, a sustainability finance manager at Nike and Melissa Young a Client Partner working in digital advertising at Facebook. I also have a great conversation with Kira Schabram, an assistant professor of management in the Foster School, about meaningful work and burnout. Audrey Beaulac will be back to talk about how the pandemic has changed professional attire and style as many of us will be planning our returns to the office or thinking about our wardrobes for a hybrid workplace. I also have a short survey on the website, http://conversationsoncareers.com/survey. Your feedback will help me plan season 7 which will come out at the beginning of the new year.
Erin Keam's Conversations about Closets with my Closest 1000 friends.
Nancy McSharry Jensen is CEO and Co-Founder of The Swing Shift, the destination for women in career transition. She's been featured in Forbes, The Huffington Post, at Seattle's infamous F-Bomb Breakfast Club and the Female Founders Alliance Champion Awards, as well as Mother.ly and US News and World Report. Nancy loves to get new and emerging businesses off the ground. She started her career at International Data Corporation, where she opened businesses on both coasts. At Microsoft, she launched operating system, server and early SaaS products at Microsoft, including SharePoint's market introduction. As an instructor at UW's PCEO Software Product Management program, she worked with dozens of student projects. Nancy took a 5 year break to care for her small children and aging parents: during that time helped grow non-profits like Girls On The Run, and oversaw an $800,000 education focused non-profit. She has worked on the agency side as well, with a stint as account director at Sterling Communications. Nancy believes that women should not be penalized for taking care of their families, committed to getting women into the workforce on their own terms, and dedicated to 100% pay parity. Find Nancy here: The Swing Shift Social Instagram @theswingshiftco Twitter @theswingshiftco Facebook @theswingshiftco LinkedIn https://www.linkedin.com/company/theswingshift/ Nancy's social Instagram @nancymcjensen Twitter @nancymcjensen Facebook @nancymcjensen LinkedIn https://www.linkedin.com/in/nancymcjensen/ -------------------- About Erin Female-identifying and want to be a guest? Book here! https://WearHappyConsult.as.me/conversationsaboutclosets Erin Keam is a stylist like no other, thanks to her unique The Happy Wardrobe Method. This Method, which provides instant insights and lasting results explores beloved possessions in your home to find personal themes and create a one-of-a-kind Style Statement, transforming your wardrobe and positively impacting your closet, business, career and life. Oh, and she teaches you to look great, get dressed easily and with confidence. Discover your style brand and get to your ideal closet (& life) faster! https://www.thehappywardrobe.com/ Click to book a FREE Wear Happy Consult (she's on PST time) https://WearHappyConsult.as.me/FREE Or to talk about how you look on camera https://WearHappyConsult.as.me/ZoomReady Or to sign up for her FREE Zoom-Ready workshops https://www.thehappywardrobe.com/zoom-ready --- Support this podcast: https://anchor.fm/erin-keam/support
We’ve all heard the statistics. If you’re a woman and you decide to take time off of your career to raise a family, go back to school, or travel the world, it will set you back both professionally and financially. Although it’s not fair, these are the facts. But that shouldn’t scare you from taking that career pause when you need to. And luckily I have two guests on the show to discuss how to get back into the workforce, and not just get back on track but accelerate your career into an even better, more successful one. I’ve got Nancy Jensen and Sarah Duenwald on the show to discuss this topic in-depth. They teamed up to found their company, The Swing Shift, and co-author their new book Back to Business, after working with hundreds of women struggling with this exact thing. Not only that, both Nancy and Sarah experienced this themselves when taking maternity leaves, and that’s what inspired them to come together and create a solution for women so we can see a change in those statistics. For full episode show notes visit https://jessicamoorhouse.com/261
"Heart to Heart with Michael" starts off the new year with returning Guest, Nancy Jensen. She and Michael talk about the path forward from devastation towards peace. Along the way, she shares stories of her own personal healing. Nancy Jensen has been on "Heart to Heart with Michael" at the top of each season since its inception. She is mother to Jessica, a daughter she lost due to complications from her congenital heart defect. In addition to being a long-time to Host Michael Liben, she is also the Producer of "Heart to Heart with Michael."
"Heart to Heart with Michael" starts off the new year with returning Guest, Nancy Jensen. She and Michael talk about the path forward from devastation towards peace. Along the way, she shares stories of her own personal healing. Nancy Jensen has been on "Heart to Heart with Michael" at the top of each season since its inception. She is mother to Jessica, a daughter she lost due to complications from her congenital heart defect. In addition to being a long-time to Host Michael Liben, she is also the Producer of "Heart to Heart with Michael."
Nancy Jensen and Sarah Duenwald are co-founders of The Swing Shift, the destination for women in career transition. Sarah spent the last decade focused on business development and sales operations in the software and high-tech consulting industry. Nancy is also a tech industry veteran, including many years overseeing operating system, server and early SaaS products for Microsoft. They both believe that women should not be penalized for taking care of their families, and that they should be able to re-enter the workforce on their own terms after career breaks. So they created The Swing Shift to equip women with the tools they need to get back in the career game. We talked about the vital skills needed by women re-entering the workforce; why women can’t “have it all” (at least not in the way most people mean); and how to create personal boundaries at work to allow for family time. We also revealed some of our “guilty pleasures,” because – well – why not? Help Lara make new episodes of the podcast even better! Click here to share your thoughts in a short listener survey. THANK YOU!
Nancy Jensen and Sarah Duenwald are co-founders of The Swing Shift, the destination for women in career transition. Sarah spent the last decade focused on business development and sales operations in the software and high-tech consulting industry. Nancy is also a tech industry veteran, including many years overseeing operating system, server and early SaaS products for Microsoft. They both believe that women should not be penalized for taking care of their families, and that they should be able to re-enter the workforce on their own terms after career breaks. So they created The Swing Shift to equip women with the tools they need to get back in the career game. We talked about the vital skills needed by women re-entering the workforce; why women can’t “have it all” (at least not in the way most people mean); and how to create personal boundaries at work to allow for family time. We also revealed some of our “guilty pleasures,” because – well – why not?
Life Through Transitions | Helping you navigate life's biggest changes
Nancy Jensen is CEO and co-founder of The Swing Shift, an organization that works to advance and enhance women’s roles in the modern workplace. Nancy started her career at International Data Corporation, where she opened businesses on both coasts. At Microsoft, she helped launch products at Microsoft, including SharePoint. She worked as an instructor at UW's PCEO Software Product Management program. She serves as an account director with Sterling Communications, where she works on market introduction strategies for technology companies. Several years ago, Nancy chose to “swing” out of her career for 5 years to care for her small children and aging parents. As a result of her transition and the lessons learned, she believing that women shouldn’t be penalized for taking care of their families and is now committed to getting the 43% of women who take career breaks back into the workforce on their own terms. The Swing Shift seeks to empower women with the essential skills, strategies and mindset for today’s workplace.
Nancy Jensen joins Michael again as the first Guest of Season 2! This year Nancy will talk about ways she continues to celebrate Jessica. She'll talk about the importance of Silly Socks and how you can also use Silly Socks to celebrate your loved ones. Finally, Nancy will share how working with Hearts Unite the Globe: A Nonprofit Organization for the Congenital Heart Defect Community keeps Jessica ever present in her life.
Nancy Jensen joins Michael again as the first Guest of Season 2! This year Nancy will talk about ways she continues to celebrate Jessica. She'll talk about the importance of Silly Socks and how you can also use Silly Socks to celebrate your loved ones. Finally, Nancy will share how working with Hearts Unite the Globe: A Nonprofit Organization for the Congenital Heart Defect Community keeps Jessica ever present in her life.
"The Last Days" is the special debut program for the bereavement community where Host Michael Liben interviews bereaved mother, Nancy Jensen, about what it was like to raise a child with a chronic, terminal illness. Nancy talks with Michael about what it's like to live with hospice and how her family dealt with raising and then losing their precious daughter. Michael talks with Nancy about her faith and the role it plays in her life. Nancy's answers will offer insight and inspire you on your own bereavement journey.
"The Last Days" is the special debut program for the bereavement community where Host Michael Liben interviews bereaved mother, Nancy Jensen, about what it was like to raise a child with a chronic, terminal illness. Nancy talks with Michael about what it's like to live with hospice and how her family dealt with raising and then losing their precious daughter. Michael talks with Nancy about her faith and the role it plays in her life. Nancy's answers will offer insight and inspire you on your own bereavement journey.
"The Last Days" is the special debut program for the bereavement community where Host Michael Liben interviews bereaved mother, Nancy Jensen, about what it was like to raise a child with a chronic, terminal illness. Nancy talks with Michael about what it's like to live with hospice and how her family dealt with raising and then losing their precious daughter. Michael talks with Nancy about her faith and the role it plays in her life. Nancy's answers will offer insight and inspire you on your own bereavement journey.
"The Last Days" is the special debut program for the bereavement community where Host Michael Liben interviews bereaved mother, Nancy Jensen, about what it was like to raise a child with a chronic, terminal illness. Nancy talks with Michael about what it's like to live with hospice and how her family dealt with raising and then losing their precious daughter. Michael talks with Nancy about her faith and the role it plays in her life. Nancy's answers will offer insight and inspire you on your own bereavement journey.
"The Last Days" is the special debut program for the bereavement community where Host Michael Liben interviews bereaved mother, Nancy Jensen, about what it was like to raise a child with a chronic, terminal illness. Nancy talks with Michael about what it's like to live with hospice and how her family dealt with raising and then losing their precious daughter. Michael talks with Nancy about her faith and the role it plays in her life. Nancy's answers will offer insight and inspire you on your own bereavement journey.
"The Last Days" is the special debut program for the bereavement community where Host Michael Liben interviews bereaved mother, Nancy Jensen, about what it was like to raise a child with a chronic, terminal illness. Nancy talks with Michael about what it's like to live with hospice and how her family dealt with raising and then losing their precious daughter. Michael talks with Nancy about her faith and the role it plays in her life. Nancy's answers will offer insight and inspire you on your own bereavement journey.
"The Last Days" is the special debut program for the bereavement community where Host Michael Liben interviews bereaved mother, Nancy Jensen, about what it was like to raise a child with a chronic, terminal illness. Nancy talks with Michael about what it's like to live with hospice and how her family dealt with raising and then losing their precious daughter. Michael talks with Nancy about her faith and the role it plays in her life. Nancy's answers will offer insight and inspire you on your own bereavement journey.
"The Last Days" is the special debut program for the bereavement community where Host Michael Liben interviews bereaved mother, Nancy Jensen, about what it was like to raise a child with a chronic, terminal illness. Nancy talks with Michael about what it's like to live with hospice and how her family dealt with raising and then losing their precious daughter. Michael talks with Nancy about her faith and the role it plays in her life. Nancy's answers will offer insight and inspire you on your own bereavement journey.