Podcasts about hypermobile ehlers danlos syndrome

In this episode of the Healthy, Wealthy, and Smart Podcast, host Karen Litzy welcomes Dr. Linda Bluestein, a recognized expert in hypermobility disorders and founder of Hypermobility MD and Bendy Bodies Podcast. Dr. Blustein shares her journey with hypermobility, detailing how health issues impacted her early aspirations of becoming a ballet dancer. After years as an anesthesiologist, she discovered her connection to connective tissue disorders, which led her to focus on this patient population. Together, Karen and Dr. Bluestein dive into the complexities of hypermobility disorders, the importance of research, and the support available for individuals affected by these conditions. Tune in for valuable insights and information that can help those navigating hypermobility disorders.   Time Stamps:  [00:01:27] Personal journey to hypermobility focus. [00:05:00] Joint hypermobility disorders explained. [00:10:43] Generalized joint hypermobility assessment. [00:12:22] Ehlers-Danlos syndrome overview. [00:15:52] Patient education on EDS concerns. [00:19:40] Connective tissue and its importance. [00:25:08] Research funding for EDS. [00:29:27] Misconceptions about hypermobility and talent. [00:30:59] Forced hypermobility in dancers. [00:34:27] Chronic pain and validation. [00:38:20] Treatment for connective tissue disorders. [00:42:05] Importance of recognizing hypermobility. [00:47:40] Believe in yourself. [00:48:42] Self-compassion and personal growth.   More About Dr. Linda Bluestein, MD: Dr. Linda Bluestein, MD, is a multifaceted professional renowned for her expertise in hypermobility disorders. As the founder of Hypermobility MD, she offers specialized medical care to individuals grappling with these conditions. Additionally, Dr. Bluestein is the driving force behind Bendy Bodies, a worldwide coaching practice aimed at empowering and supporting individuals with hypermobility.  Her influence extends beyond clinical practice. Dr. Bluestein is the founder and host of the esteemed podcast, "Bendy Bodies with the Hypermobility MD," where she shares valuable insights and resources, enriching the lives of her audience.  Dr. Bluestein's dedication to advancing knowledge and awareness of hypermobility disorders is evident in her extensive publications and international lectures. Notably, she contributed two chapters to the influential book, "Disjointed – Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders."  In addition to her clinical and coaching endeavors, Dr. Bluestein actively engages in advocacy and research. She serves on the Allergy and Immunology Working Group for the International Consortium on EDS and HSD, the Medical Advisory Board for Standing up to POTS, and the Board of Directors for both the Bridge Dance Project and EDS Guardians.   Dr. Bluestein's commitment to education and mentorship is exemplified through her involvement in initiatives such as the creation of the first online EDS Continuing Medical Education (CME) program with Chronic Pain Partners. She also volunteers as a medical consultant for the organization.   As an assistant professor at the Medical College of Wisconsin, Central Wisconsin, Dr. Bluestein has played a pivotal role in directing the RISHI Healer's Art Program, nurturing compassionate healthcare providers.  For more information about Dr. Bluestein and her comprehensive approach to hypermobility care, please visit her website at www.hypermobilitymd.com. Resources from this Episode: July 17th Jane Q&A Webinar Bendy Bodies Podcast Dr. Bluestein on Instagram Dr. Bluestein's Website Dr. Bluestein on Substack Dr. Bluestein on TikTok Dr. Bluestein on X Dr. Bluestein on YouTube   Jane Sponsorship Information: Book a one-on-one demo here Mention the code LITZY1MO for a free month   Follow Dr. Karen Litzy on Social Media: Karen's Twitter Karen's Instagram Karen's LinkedIn   Subscribe to Healthy, Wealthy & Smart: YouTube Website Apple Podcast Spotify SoundCloud Stitcher iHeart Radio

A dash of mystery, a sparkle of magic, and all things cozy! Elle interviews fellow cozy authors in this new podcast from Authors on the Air. Today on the podcast, meet Elle Wren Burke, author of multiple paranormal cozy mystery series. The two Elles discuss EWB's latest release, What the Spell, as well as the merits of writing “cozy,” advice for authors starting out, and crowd-sourcing details for a book. Enjoy! Elle Wren Burke's Bio: Elle Wren Burke is a paranormal cozy mystery author who writes witty, fun books with strong females as protagonists. Elle also lives with fibromyalgia and Hypermobile Ehlers-Danlos Syndrome, a connective tissue disease. She has Master's degrees in Geography and Business. She lives in Arizona with her husband and fur babies. She enjoys puzzles, baking, board games, and bubble baths. Find Elle Wren Burke's Books Here: https://www.elleburkeauthor.com/books ~~~ Elle Hartford's Bio: Elle Hartford writes cozy mystery with a fairy tale twist. The award-winning first book in her Alchemical Tales series, Beauty and the Alchemist, finds amateur sleuth Red mixed up with murderous beasts and moody beauties, and a set of missing books besides! Elle has also written two spin-off series, the cozy fantasy-goes-to-the-beach Marine Magic series as well as Pomegranate Cafe Romance. For other writers and authors looking into “wide” indie publishing, Elle offers coaching as well as the Beyond Writing blog (ellehartford.substack.com) with how-tos and resources. Find Elle Hartford Online: https://ellehartford.com/

A dash of mystery, a sparkle of magic, and all things cozy! Elle interviews fellow cozy authors in this new podcast from Authors on the Air. Today on the podcast, meet Elle Wren Burke, author of multiple paranormal cozy mystery series. The two Elles discuss EWB's latest release, What the Spell, as well as the merits of writing “cozy,” advice for authors starting out, and crowd-sourcing details for a book. Enjoy! Elle Wren Burke's Bio: Elle Wren Burke is a paranormal cozy mystery author who writes witty, fun books with strong females as protagonists. Elle also lives with fibromyalgia and Hypermobile Ehlers-Danlos Syndrome, a connective tissue disease. She has Master's degrees in Geography and Business. She lives in Arizona with her husband and fur babies. She enjoys puzzles, baking, board games, and bubble baths. Find Elle Wren Burke's Books Here: https://www.elleburkeauthor.com/books ~~~ Elle Hartford's Bio: Elle Hartford writes cozy mystery with a fairy tale twist. The award-winning first book in her Alchemical Tales series, Beauty and the Alchemist, finds amateur sleuth Red mixed up with murderous beasts and moody beauties, and a set of missing books besides! Elle has also written two spin-off series, the cozy fantasy-goes-to-the-beach Marine Magic series as well as Pomegranate Cafe Romance. For other writers and authors looking into “wide” indie publishing, Elle offers coaching as well as the Beyond Writing blog (ellehartford.substack.com) with how-tos and resources. Find Elle Hartford Online: https://ellehartford.com/

How can dance teachers and studio owners truly support their most flexible students? In this essential episode host Loren Dermody welcomes back Dr. Linda Bluestein, renowned physician, former dancer, and expert in hypermobility, for her sixth appearance during Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders Awareness Month. Dr. Bluestein reveals why early recognition of connective tissue disorders is critical in dance, sharing practical signs teachers can spot, from difficulty building muscle to recurring injuries and even digestive issues. She explains why standard screening tools like the Beighton score often fall short for dancers, and offers actionable advice on what really works in the studio. Learn how to recognize the subtle signs of hypermobility, prevent common injuries, and empower your dancers to thrive. Whether you're a studio owner or passionate teacher, this episode will give you the knowledge to make a real difference in your dancers' lives. Don't miss this insightful conversation with Dr. Linda Bluestein, exclusively on The Acrobatic Arts Podcast! Important Links Bending Boundaries: The Role of Joint Hypermobility in Dance About Dr. Linda Bluestein In addition to her private medical practice, Hypermobility MD, Dr. Bluestein is the founder and co-host of the podcast, Bendy Bodies with the Hypermobility MD, and former co-host of “Hypermobility Happy Hour.” Dr. Bluestein is the Director of Education for the nonprofit, EDS Wellness, Inc. and founder and executive director of Bendy Bodies, an organization dedicated to empowering hypermobile performing artists. She has published a number of original research papers; presents work at national and international conferences, and is a contributing author for the book, Disjointed - Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders. Dr. Bluestein is a member of the Board of Directors for the Bridge Dance Project, the Allergy and Immunology Working Group for the International Consortium on EDS and HSD, the Advisory Board for Doctors for Dancers, and the Resources Committee for the Dance Healthy Alliance of Canada. More information about Dr. Bluestein can be found on her website, www.hypermobilitymd.com. Links: Hypermobility MD Hypermodbility MD Podcast Bendy Bodies If you'd like more amazing content more tips and ideas check out our Acrobatic Arts Channel on YouTube. Subscribe Now! Connect with Acrobatic Arts on your favourite social media platform: Instagram: https://www.instagram.com/acrobaticarts/ Facebook: https://www.facebook.com/Acroarts Twitter: https://twitter.com/acrobatic_arts/ Learn more and register for our programs at AcrobaticArts.com

The President's physical; CBD may help ameliorate autism symptoms; The controversy over Hypermobile Ehlers-Danlos Syndrome; As Wikipedia brands acupuncture “pseudoscience”, new study confirms efficacy for sciatica; Will AI replace doctors for diagnosis, medical information? Creatine, good for muscles, also delivers brain benefits.

In this episode, we focus on safely guiding hypermobile clients through yoga practices to prevent injury and support long-term well-being. We discuss key safety considerations, common misconceptions, and practical techniques for yoga practices tailored to clients with Ehlers-Danlos Syndrome (EDS) and hypermobility. Libby shares her journey with hypermobility, explores its impact on the nervous system and mental health, and provides actionable advice on effective queuing and creating empowering yoga experiences. MEET Libby HinsleyLibby Hinsley is a Doctor of Physical Therapy, yoga teacher trainer, and personal trainer specializing in treating hypermobility syndromes and chronic pain. Her book, Yoga for Bendy People: Optimizing the benefits of yoga for hypermobility, was published in 2022 and explores how people with joint hypermobility syndromes can use the tools of yoga to support their thriving. She has also developed a successful strength training program for people with hypermobility syndromes. As a person living with Hypermobile Ehlers-Danlos Syndrome and related health conditions, she is committed to raising awareness about hypermobility syndromes in the yoga and physical therapy communities and beyond. She also teaches anatomy for yoga teachers through her program called Anatomy Bites. Find out more at Libby Hinsley and connect with Libby on Instagram, and check out the Zebra Talks PodcastUnderstanding hypermobility and its challengesWhat are EDS and hypermobility?Symptoms and diagnosis of EDSYoga practices for hypermobilityQueuing techniques for hypermobilityUnderstanding proprioception and body awarenessImproving proprioception through mindful movementConnect With Me Instagram: @chris_mcdonald58Facebook: Yoga In The Therapy PodcastJoin the private Facebook Group: Bringing Yoga Into the Therapy RoomTikTok: @YogaChris58Rate, review, and subscribe to this podcast on Apple Podcasts, TuneIn, and SpotifyHow To Build Competence and Confidence in Integrating Yoga Into the Therapy RoomHolistic Mindful Check-Ins by Chris McDonald, LCMHCSSelf-Care for the Counselor: A Companion Workbook: An Easy to Use Workbook to Support you on Your Holistic Healing and Counselor

On this week's episode The Parenting Tools, we speak to Amber Miskimmin - a mum of two girls, musician, producer, and music teacher. Amber shares her experience of living with chronic pain following the birth of her first child and discovering she has Hypermobile Ehlers Danlos Syndrome, talking us through the day-to-day challenges this brings and the measures she has put in place to manage this. She also talks about her music studio which she recently launched, Forte Music, and her passion for teaching music. Amber also has a new single out called Upper Room - available on all platforms! Hosted on Acast. See acast.com/privacy for more information.

In this episode of Before You Bloom, I sit down with Liv to discuss her journey navigating life with multiple chronic illnesses, including Abdominal Vascular Compression Syndromes, Gastroparesis, and Hypermobile Ehlers-Danlos Syndrome. Liv shares when her symptoms first started, the long road to diagnosis, and the surgeries and procedures she's undergone in an effort to manage her conditions.We dive into the impact of chronic illness on mental health, the unpredictability of flare-ups, and the importance of a strong support system. Liv opens up about the lessons she's learned along the way, moments of self-discovery, and the coping strategies that help her maintain a sense of normalcy amidst the challenges.If you or someone you love is living with a chronic illness, this episode is a must-listen. Liv's resilience and wisdom offer encouragement, validation, and practical advice for anyone on a similar path!

Are you finally ready to overcome your chronic pain? Save 15% on any Whealth Program using code KELSIESTONE at checkoutKelsie Stone, Whealth Hypermobility Program member writes:"I have a painful connective tissue disease called Hypermobile Ehlers-Danlos Syndrome.Doctors called me a “moderate-to-severe” case. Chronic pain changed the physical structure of my brain – I was diagnosed with medically-induced c-PTSD.The pain was so constant that I broke my spine in three places and DIDN'T NOTICE. Doctors found it by accident after it already healed. hEDS and this pain made me think:Doctors told me: "You'll never have kids, never get married. You're too much of a burden. You'll suffer your whole life."Doctors didn't say much different than these thoughts. They offered narcotics. Injections. Surgeries. Treating symptoms, not the source. Then I noticed this strength-training program called Whealth on my timeline.Week after week, I saw free educational content on IG – and I started to wonder.Doctors commanded me not to work out, but this program claimed to be created by hypermobile people – people like me – specifically FOR us, and I had to know if it was real. So I took the plunge. I could always get a refund, right?Three 30-minute home workouts a week later… and my life has changed more than I ever knew it could. I'm strong now. I'm proud of my body. It seems unbelievable, but I feel like I blinked and got stronger.I do the things I love just like I used to, but the difference is I don't pay the price anymore.

Resources mentioned in this episode:Doug Vestal's Private Pay MBA course   (that Nicole took to help her start her business)Spider hypermobility testDisjointed: Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders The Trifecta Passport: Tools for Mast Cell Activation Syndrome, Postural Orthostatic Tachycardia Syndrome and Ehlers-Danlos SyndromeSaving My Sister: How I Created Meaning from Addiction and Loss by Nicole Davis WoodruffPOTs Providers Course by OT Emily RichHypermobility Solutions by PT Kathy WalkerMore about my guest:Nicole Woodruff, OTD, OTR/L, PCES, GTS, RYT, is an occupational therapist, author, and owner of Intuitive Therapies & Pelvic Health in Tampa, Florida. With over 12 years of experience across various settings, Nicole now specializes in treating pelvic floor dysfunction, hypermobility, and chronic conditions. She takes a holistic and trauma-informed approach to care, combining lifestyle medicine, manual therapy techniques, and movement-based practices to help clients achieve their goals. Drawing from her personal journey with hypermobile Ehlers-Danlos Syndrome (hEDS) and Postural Orthostatic Tachycardia Syndrome (POTS), Nicole combines professional expertise with lived experience to offer a unique and empathetic approach to care. She is passionate about empowering clients to improve their quality of life and dedicated to raising awareness about the intersection of pelvic health, hypermobility, and other chronic conditions through education, advocacy, and patient-centered care. Outside of the clinic, Nicole is married to her husband, Cort, and a boy mom to two little ones. She enjoys spending time with family while exploring new places, practicing yoga, and going to concerts.How you can connect with Nicole:Instagram / Tiktok handle: @nicolepelvicot ____________________________________________________________________________________________Pelvic OTPs United - Lindsey's off-line interactive community for $39 a month! Inside Pelvic OTPs United you'll find:​ Weekly group mentoring calls with Lindsey. She's doing this exclusively inside this community. These aren't your boring old Zoom calls where she is a talking head. We interact, we coach, we learn from each other.​ Highly curated forums. The worst is when you post a question on FB just to have it drowned out with 10 other questions that follow it. So, she's got dedicated forums on different populations, different diagnosis, different topics (including business). Hop it, post your specific question, and get the expert advice you need. More info here. Lindsey would love support you in this quiet corner off social media!

In this episode, we sit down with Josh Bowman to hear his incredible journey of going from despair, anxiety, and chronic pain to a life filled with hope, strength, and the least amount of pain and symptoms he's ever experienced—all while living with hypermobile Ehlers-Danlos Syndrome (hEDS). Diagnosed nearly a decade ago, Josh shares the struggles he faced trying to find answers and relief. After countless doctor visits where his symptoms were dismissed or misunderstood, Josh finally received an hEDS diagnosis—but with no actionable solutions. Physical therapy didn't address his needs, and in some cases, his therapists focused on the wrong goals for hypermobility. Chiropractic care left him worse off, and he was left navigating a frustrating cycle of trial and error with no improvement. Everything changed when Josh found the Whealth Hypermobility Program. For the first time, he felt truly understood and supported. He explains how the program: • Taught him how to systematically and safely build strength. • Helped him reduce pain and regain confidence in his body. • Provided an empowering community of people who understood his challenges and inspired him to move forward. • Shifted his mindset from fear and limitation to hope and resilience. Josh now lives an active, joyful life—enjoying activities like pickleball, concerts, and much more—without the fear of injury that once held him back. If you've been searching for answers and hope while living with hEDS, this episode is packed with relatable experiences and actionable insights to inspire your journey. Key Takeaways: • Why traditional approaches often fail people with hypermobility and what works instead. • How the Whealth Hypermobility Program addresses the unique needs of people with hEDS. • The importance of community and mindset in transforming your life with hEDS. • Josh's tips for overcoming fear and taking ownership of your journey. Links and Resources: 1. Learn more about the Whealth Hypermobility Program and save $100 using code JOSH100 2. Start with our FREE Hypermobility Resources for Pain Relief and Symptom Management 3. Contact us directly here

Send us a textRonni Morgan kicks off Season 5 with an amazing episode, all about overcoming extreme adversity at a young age. In fact, by age 30, Ronni had lost her ability to walk and needed two hip replacements! Furthermore, Ronni was hospitalized for over 2 weeks because of neck and head pain they couldn't get under control! Finally, she ended up getting diagnosed with a rare genetic condition called Hypermobile Ehlers-Danlos Syndrome. She had to give up a decade long career as a hairstylist and totally redefine her life. Her story also involves going overseas for answers, after being dismissed by doctors here in the US, where she would finally get some clarity on her symptoms and condition. Ronni tells us how she had to totally redefine her life and career, and figure out who she was and what she is doing now, to make her life everything she wants it to be.instagram.com/ronnimorganwww.ronnimorgan.comSupport the show

The learning journey I've been on regarding hypermobility is incredibly personal. I was plagued with nearly constant minor and serious injuries most of my life. As a dancer that seemed normal, but it was very difficult and I was often injured more than anyone else I knew. I worked so hard to “build more stability” and “get out of my patterns of gripping” and some things did help quite a bit, most notably Feldenkrais. But it was really only in the last ten years, as information about hypermobility started to spread first through the movement world, and then through into the mainstream culture, that I began to understand my body and how to work with it effectively. I'm so happy to report that despite being about 7 years past due for when it was suspected I would need a full hip replacement (get the full backstory here) and having a toddler and very little time for self care, I have less pain now then I ever have in my whole life! Learning about how to work with hypermobility in myself and my students has been nothing short of life changing for me. And understanding how to work with hypermobility is particularly important for yoga teachers! That is why I'm so thrilled to finally have Libby Hinsley on the show today.  Libby Hinsley (she/her)  is a Doctor of Physical Therapy, personal trainer, and Yoga Therapist specializing in the treatment of people with hypermobility syndromes and chronic pain As a person living with Hypermobile Ehlers-Danlos Syndrome, she is passionate about raising awareness about hypermobility syndromes in the yoga community and beyond. In this episode you'll hear: a deep dive into different kinds of connective tissue and how they respond to load what is different about the connective tissue of someone with HEDS symptoms all about the EDS diagnosis some common co-occurring conditions that are good to know about the science behind the heightened interoception and decreased proprioception of someone with HEDS symptoms and how to work with that in a yoga class Learn More From Libby: Libby's website Libby on Instagram Anatomy Bites: use coupon code MENTOR at checkout for 10% off Anatomy Bites On Demand Courses: use coupon code MENTOR at checkout for 10% off Hypermobility Hub   This episode is brought to you by OfferingTree, an easy-to-use, all-in-one online platform for yoga teachers that provides a personal website, booking, payment, blogging, and many other great features. If you sign up at www.offeringtree.com/mentor, you'll get 50% off your first three months (or 15% off any annual plan)!  OfferingTree supports me with each sign-up. I'm proud to be supported by a public benefit company whose mission is to further wellness access and education for everyone.

In dieser Folge sprechen wir über das Thema Hypermobilität? Was ist das eigentlich, wie finde ich heraus, ob ich vielleicht hypermobil bin und was kann ich dagegen tun? Was ist das Ehlers-Danlos Syndrom und was hat das ganze mit ADHS und Autismus zu tun? Außerdem gehen wir auf ein paar interessante Belgleitsymptome wie chronische Schmerzen, Kopfschmerzen und die gehäufte Verletzungsgefahr ein. Schaue auf Instagram bei @paula.klisiewicz vorbei! Hier lernst du noch mehr zum Thema Hypermobilität. Quellen: Tinkle et al.: Hypermobile Ehlers–Danlos Syndrome (a.k.a. Ehlers–Danlos syndrome Type III and Ehlers–Danlos syndrome hypermobility type): Clinical description and natural history https://doi.org/10.1002/ajmg.c.31538 Carroll, Matthew: Hypermobility spectrum disorders: A review https://doi.org/10.2478/rir-2023-0010 Wolf et al.: Impact of joint laxity and hypermobility on the musculoskeletal system https://journals.lww.com/jaaos/fulltext/2011/08000/impact_of_joint_laxity_and_hypermobility_on_the.2.aspx Baeza-Velasco et al.: Autism, Joint Hypermobility-Related Disorders and Pain https://www.frontiersin.org/journals/psychiatry/articles/10.3389/fpsyt.2018.00656/full

Dive into our latest episode where Dr. Linda Bluestein returns for her fourth appearance on The Acrobatic Arts podcast. As May illuminates Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders, Dr. Bluestein takes center stage to debunk prevalent myths surrounding hypermobility. Join us as she dismantles misconceptions about pain, diagnosis, and the capabilities of individuals affected by these conditions, equipping listeners with invaluable clarity and understanding. Tune in now for a myth-busting journey through hypermobility with Dr. Bluestein! Important Links Bendy Bulletins: Bendy Bulletins are free, concise informational resources designed to improve the quality of life for those with hypermobility syndromes. Find out more: https://www.hypermobilitymd.com/bulletins Hope for Hypermobility: Part 1—An Integrative Approach to Treating Symptomatic Joint Hypermobilityhttps://journals.lww.com/topicsinpainmanagement/Fulltext/2023/03000/Hope_for_Hypermobility__Part_1_An_Integrative.1.aspxHope for Hypermobility: Part 2—An Integrative Approach to Treating Symptomatic Joint Hypermobilityhttps://journals.lww.com/topicsinpainmanagement/Fulltext/2023/04000/Hope_for_Hypermobility__Part_2_An_Integrative.1.aspx About Dr. Linda Bluestein In addition to her private medical practice, Hypermobility MD, Dr. Bluestein is the founder and co-host of the podcast, Bendy Bodies with the Hypermobility MD, and former co-host of “Hypermobility Happy Hour.” Dr. Bluestein is the Director of Education for the nonprofit, EDS Wellness, Inc. and founder and executive director of Bendy Bodies, an organization dedicated to empowering hypermobile performing artists. She has published a number of original research papers; presents work at national and international conferences, and is a contributing author for the book, Disjointed - Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders. Dr. Bluestein is a member of the Board of Directors for the Bridge Dance Project, the Allergy and Immunology Working Group for the International Consortium on EDS and HSD, the Advisory Board for Doctors for Dancers, and the Resources Committee for the Dance Healthy Alliance of Canada. More information about Dr. Bluestein can be found on her website, www.hypermobilitymd.com. Links: Hypermobility MD Hypermodbility MD Podcast Bendy Bodies

Are you double-jointed, incredibly flexible, or experience joint pain differently from others? Explore the world of joint hypermobility and discover why your body might work this way. On the Becoming Immune Confident Podcast, Dr. Kara Wada welcomes Dr. Linda Bluestein, an integrative pain medicine expert specializing in hypermobility disorders. Dr. Bluestein's journey from ballet dancer to medical professional gives her a unique perspective on hypermobility. Learn about the different types of hypermobility, its causes, and how it can connect to other health concerns. Discover strategies to manage hypermobility-related symptoms and get the latest updates on cutting-edge research in the field. Listen to this week's podcast and be enlightened by a rare blend of personal experience and medical expertise on joint hypermobility. If you, or someone you know, struggles with hypermobility-related pain or simply wants to understand their body better, this episode with Dr. Bluestein's insights is for you! EPISODE IN A GLANCE 02:07 Dr. Bluestein's Journey: Ballet, hypermobility, and a passion for medicine.05:20 What is Hypermobility? Understanding joint flexibility beyond the norm.06:10 Types of Joint Hypermobility: Peripheral, localized, and generalized – what's the difference?07:01 Causes of Joint Hypermobility: Genetics, Ehlers-Danlos Syndrome (EDS), and other factors14:17 MENS PMMS: Dr. Bluestein's holistic approach to pain management22:51 Hypermobile EDS: How diagnosis goes beyond genes27:52 Future of Hypermobility Research: What's on the horizon? ABOUT LINDA BLUESTEIN, MDDr. Linda Bluestein, M.D., is a board-certified anesthesiologist and integrative pain medicine physician, dedicated to alleviating the burden of hypermobility disorders. With a background in ballet, she brings a unique perspective to her practice. As the founder and host of the popular podcast, "Bendy Bodies with the Hypermobility MD," Dr. Bluestein provides invaluable insights and support to individuals grappling with hypermobility disorders. Her expertise is widely recognized, evidenced by her contributions to key publications, including two chapters in the influential book, "Disjointed – Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders." Dr. Bluestein serves on the Allergy and Immunology Working Group for the International Consortium on EDS and HSD, the Medical Advisory Board for Standing up to POTS, the Board of Directors for the Bridge Dance Project, the Resources Committee for the Dance Healthy Alliance of Canada, and is the Pain Management Committee Chair for the non-profit, EDS Research Foundation. She also serves on the Advisory Board for Doctors for Dancers.For more information about Dr. Bluestein's work, visit her website at www.hypermobilitymd.com. CONNECT WITH LINDA BLUESTEIN, MDWebsite → http://www.BendyBodiesPodcast.com Website → https://www.hypermobilitymd.com/ LinkedIn → https://www.linkedin.com/in/hypermobilitymd/ Instagram → https://www.instagram.com/bendy_bodies/ Instagram → https://www.instagram.com/hypermobilitymd/ Facebook → https://www.facebook.com/BendyBodiesPodcast Facebook → https://www.facebook.com/hypermobilityMD Twitter → https://twitter.com/BluesteinLinda TikTok → https://www.tiktok.com/@hypermobilitymd YouTube → https://www.youtube.com/@bendybodiespodcast LINDA BLUESTEIN'S ARTICLE 'Diagnosis of mast cell activation syndrome: a global "consensus-2"'→ https://pubmed.ncbi.nlm.nih.gov/32324159/ ABOUT DR KARA WADAQuadruple board-certified pediatric and adult allergy immunology & lifestyle medicine physician, Sjogren's patient and life coach shares her recipe for success combining anti-inflammatory lifestyle, trusting therapeutic relationships, modern medicine & our minds to harness our body's ability to heal. CONNECT WITH DR WADAWebsite → https://www.drkarawada.com/ LinkedIn → https://www.linkedin.com/in/karawadamd/ Instagram → https://www.instagram.com/immuneconfident/ Facebook → https://www.facebook.com/KaraWadaMD Twitter → https://twitter.com/CrunchyAllergy TikTok → https://www.tiktok.com/@crunchyallergist YouTube → https://www.youtube.com/@drkarawada SUBSCRIBE TO NEWSLETTER → https://www.drkarawada.com/newsletter Get Dr. Kara's weekly dose of a naturally-minded and scientifically-grounded approach to immune system health.

Alexandra Parker is a senior student at Sarah Lawrence College. Alex describes her journey to a diagnosis of Hypermobile Ehlers-Danlos Syndrome and the skepticism that she faced from medical professionals. She had to adjust emotionally and physically following her diagnosis with respect to sports. Self-advocacy has become an important part of Alex's day to day. She discusses the importance of “being believed” in a medical setting and encourages others to seek out different medical professional expertise when needed. Alex was interviewed by guest host Kelsey Crocker, a second year genetic counseling student. Links and Resources The Ehlers-Danlos Society Check out other Patient Stories podcast episodes. Read other Patient Stories on the Grey Genetics Patient Stories Page. Interested in digging deeper into the professional issues raised in the podcast? Consider joining the Patient Stories Club! Do you want to support Patient Stories? You can make a donation online! Are you looking for genetic counseling? Patient Stories is sponsored by Grey Genetics, an independent telehealth genetic counseling and consulting company. Book an appointment with a genetic counselor specialized in your area of concern. All genetic counseling appointments take place over secure, HIPAA-compliant video-conferencing or by phone. Looking for a place to collect your family history and share with relatives? Check out the FamGenix app. Grey Genetics is no longer active on social media. To receive occasional email updates, sign up for our mailing list.  --- Send in a voice message: https://podcasters.spotify.com/pod/show/patient-stories-with-grey-genetics/message

David Risov, DO is a graduate of MSUCOM where he was highly involved in the student OMT clinics as a medical student. In his final year of medical school he received “The Fred L. Mitchell, Sr., DO, FAAO Memorial Award” for exceptional achievement in the field of OMM. Currently he is in the final year of his PM&R residency at Georgetown University/MedStar National Rehabilitation Hospital, in Washington, DC where he founded the PM&R Osteopathic Manipulative Treatment Club. In 2023 he presented Case Report at the AAO Convocation on “An Osteopathic Approach To Refractory Sternal Pain.” He has also presented at the Association of Academic Physiatrists Annual Meeting on “Osteopathic Manipulative Treatment in the Treatment of Lower Back Muscle Spasms Prior to Epidural Steroid Injection for Lumbar Radiculopathy.” He is the Primary Investigator on a research study looking at - Hypermobility as an alternative explanation for fibromyalgia symptomatology. He is an advocate for our specialty of Osteopathic Neuromusculoskeletal Medicine. Enjoy this conversation with David Risov, DO. If you would like to reach out to David with questions or comments you may at risovdavid@gmail.com Books on Hypermobility: "Disjointed Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome" "Understanding Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder" You may also reach out to the podcast with questions, comments or if you would like to be a guest at: onmmpodcast@gmail.com --- Send in a voice message: https://podcasters.spotify.com/pod/show/benjamin--greene/message

On this episode, our guest is Jo Southall, Occupational Therapist and Patient Advocate. Jo is an Independent Occupational Therapist and an expert patient with many years of experience self-managing complex health conditions. Jo began working life in the sport and Outdoor Adventure industries. After being diagnosed with Hypermobile Ehlers Danlos Syndrome, Jo returned to study and gained a BSc degree in Occupational Therapy from the University of Northampton. Jo was named Changemaker Student of the Year for 2016 in connection with their work in helping to bring wheelchair basketball to the university, their volunteer work with the Hypermobility Syndromes Association in the UK (HMSA) and writing their blog about their own experiences and practice. Jo's final placement also made her the UK's first Occupational Therapist to work in the travel and tourism industry. Jo is also a pioneer in remote placement work as well. Jo completed her degree in September 2016 after 5 years, thousands of miles of travel, 57 nights in 4 different hospitals, 5 different A&Es (some more than once), 4 ambulance trips, countless hospital and GP appointments, 3 work placements, living in student accommodation, hotels and friends' houses. Jo has been self employed working via videochat since obtaining qualification and they continue to volunteer for the HMSA. Jo is also on the medical advisory board for the HMSA. Jo's regular Occupational Therapy work consists mainly of 1:1 appointments with clients and their loved ones. Jo is a regular guest lecturer and leads webinars and training sessions both in the UK and abroad. Recently, Jo started down the Practice Educator route and you can find out more about that in their Practice Educator Diary (link below). Links: https://jboccupationaltherapy.co.uk/ https://jboccupationaltherapy.co.uk/category/occupational-therapy/practice-educator-diary/ https://www.instagram.com/jboccytherapy/?hl=en Jo Southall on The Rest Room Podcast: Pacing: A guide for people who'd rather be doing other things on Apple Podcasts, available at: https://podcasts.apple.com/gb/podcast/pacing-a-guide-for-people-whod-rather-be-doing-other-things/id1218852479?i=1000550501384 (This is the first episode in a series) Jo Southall's Youtube channel available at: https://www.youtube.com/@JBOccyTherapy Jo Southall on workplace adjustments: https://www.youtube.com/watch?v=3yjyuGfxTY8 Jo Southall on occupational therapy: https://www.youtube.com/watch?v=_NnWsZszG6g Article on the "Siberian Ice Princess" Mummified Remains: D.I. Abrams, M.D., Integrating Cannabis Into Clinical Care, Curr. Oncol. 2016, available at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4791148/ (see introduction)

Join us as we welcome back Dr. Linda Bluestein, M.D., an esteemed integrative pain medicine physician and former ballet dancer. In this episode, Dr. Bluestein delves into the intricacies of hypermobility disorders, emphasizing the crucial role of proactivity in their assessment and treatment. This episode is a vital resource for all dance teachers, as it offers the potential to bring about significant positive changes in the lives of their dancers. This is an absolute must-listen for all dance teachers! Important Links Bendy Bulletins: Bendy Bulletins are free, concise informational resources designed to improve the quality of life for those with hypermobility syndromes. Find out more: https://www.hypermobilitymd.com/bulletins Hope for Hypermobility: Part 1—An Integrative Approach to Treating Symptomatic Joint Hypermobilityhttps://journals.lww.com/topicsinpainmanagement/Fulltext/2023/03000/Hope_for_Hypermobility__Part_1_An_Integrative.1.aspxHope for Hypermobility: Part 2—An Integrative Approach to Treating Symptomatic Joint Hypermobilityhttps://journals.lww.com/topicsinpainmanagement/Fulltext/2023/04000/Hope_for_Hypermobility__Part_2_An_Integrative.1.aspx About Dr. Linda Bluestein In addition to her private medical practice, Hypermobility MD, Dr. Bluestein is the founder and co-host of the podcast, Bendy Bodies with the Hypermobility MD, and former co-host of “Hypermobility Happy Hour.” Dr. Bluestein is the Director of Education for the nonprofit, EDS Wellness, Inc. and founder and executive director of Bendy Bodies, an organization dedicated to empowering hypermobile performing artists. She has published a number of original research papers; presents work at national and international conferences, and is a contributing author for the book, Disjointed - Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders. Dr. Bluestein is a member of the Board of Directors for the Bridge Dance Project, the Allergy and Immunology Working Group for the International Consortium on EDS and HSD, the Advisory Board for Doctors for Dancers, and the Resources Committee for the Dance Healthy Alliance of Canada. More information about Dr. Bluestein can be found on her website, www.hypermobilitymd.com. Links: Hypermobility MD Hypermodbility MD Podcast Bendy Bodies

How can individuals with hEDS find comprehensive care and support? Join us as we dive into the world of Hypermobile Ehlers-Danlos Syndrome (EDS) with Dr. Sarah Cohen Solomon, a specialist in pediatric and adolescent medicine at PRISM Spine & Joint. Discover the importance of appropriate accommodations for students with hEDS, the impact of connective tissue disorders on academic performance, and the empowering role of education in promoting upward mobility. Gain insights into the evaluation process and modalities used in treating hEDS, while exploring the need for collaboration and empathy within the medical community. This episode sheds light on the experiences of individuals with hEDS and highlights the significance of understanding and supporting their unique needs within educational settings. Listen to this week's podcast episode and don't miss out on gaining valuable insights into Hypermobile Ehlers-Danlos Syndrome (hEDS) with Dr. Sarah Cohen Solomon. EPISODE IN A GLANCE -Dr. Sarah & Ehlers-Danlos-What is Hypermobile Ehlers-Danlos?-The hEDS Diagnostic Checklist-Semmelweis Effect-Modalities in Treating Ehlers-Danlos Syndrome-If you can't connect the issues. Think connective tissues-Navigating the School System's Accommodation with EDs-Connecting with Dr. Sarah and PRISM ABOUT DR SARAH COHEN SOLOMON Sarah Cohen Solomon, MD, is a general pediatrician at PRISM Spine and Joint, where she treats kids and teens with hypermobile Ehlers Danlos syndrome and related conditions such as dysautonomia/POTS, MCAS, spinal instability, and chronic pain. This interest stems from her own lifelong experience with hEDS. Dr. Cohen Solomon seeks to bring high quality, nuanced, and sensitive care to children, adolescents, and young adults, as well as raise awareness for these conditions. She is also an advocate for disabilities rights, especially for children and adults with disabilities that affect school and education. CONNECT WITH DR SARAH COHEN SOLOMON Website → https://prismspineandjoint.com/ Twitter → https://twitter.com/stcohen112 RESOURCESThe hEDS Diagnostic Checklist → https://www.ehlers-danlos.com/heds-diagnostic-checklist/ ABOUT DR KARA WADAQuadruple board-certified pediatric and adult allergy immunology & lifestyle medicine physician, Sjogren's patient and life coach shares her recipe for success combining anti-inflammatory lifestyle, trusting therapeutic relationships, modern medicine & our minds to harness our body's ability to heal. CONNECT WITH DR WADAWebsite → http://www.drkarawada.com/ LinkedIn → https://www.linkedin.com/in/crunchyallergist/ Instagram → https://www.instagram.com/crunchyallergist/ Facebook → https://www.facebook.com/CrunchyAllergist Twitter → https://twitter.com/CrunchyAllergy TikTok → https://www.tiktok.com/@crunchyallergist SUBSCRIBE TO NEWSLETTER → https://www.drkarawada.com/newsletter Get Dr. Kara's weekly dose of a naturally-minded and scientifically-grounded approach to immune system health. JOIN THE 12-WEEK BECOMING IMMUNE CONFIDENT PROGRAM! Feel confident, energetic, and more like that bad*** you used to be.Apply Here→ https://www.immuneconfident.com

Every single one of us has a body.People are complex and our bodies are no different.Some of us feel at home in our bodies, while others of us do not, and it's not always because of gender.Difficult emotions can play a significant role in this disconnect, as well as trauma and its impact on the body. And having a disability, disease, or other condition can further strain the connection with the body.But for many trans people, their transness is just the tip of the iceberg when it comes to what makes them and their bodies so different. Today we're diving into a crucial topic that affects the health and wellbeing of transgender individuals.It's no secret that members of the LGBTQ+ community face unique health challenges, though there's no definitive data or research correlating any of these issues with transness. They're simply conditions that we commonly see in the same patients.Which is why I wanted to talk to someone who has experience and expertise in treating patients with a lot of these co-occuring conditions that can make it harder for trans individuals to connect with their bodies.Today we're digging into the relationship of neurodivergence and transness and how it impacts the body and how holding a marginalized identity or identities literally shapes the body.Dr. Sam Zoranovich is a chiropractor who specializes in providing care to the LGBTQ+ and BIPOC communities. Their own experiences with chronic pain, multiple surgeries, and feeling broken and betrayed by their body inform their practice and how they help people go from managing symptoms to thriving in their lives.Check out the full episode to hear about:How the siloing of traditional medical specialists impacts diagnosis, treatment, and healingWhy neurodivergence and how the brain processes stimulation can have such profound physical impactsThe overlap of neurodivergence, digestive issues, hypermobility disorders, skin complaints, and moreHow neurodivergence and trauma impact the body's fight or flight response and what happens when it gets stuckFind out more about Dr. Sam Zoranovich:Zoranovich ChiropracticTikTok: @doctorsamz Find out more about Mackenzie Dunham:Wildheartsociety.orgwildheartsociety.org/downloadsWild Heart Society on FacebookWild Heart Society on InstagramResources:TikTok: The overlap of queerness and neurodivergenceTikTok: Dr. Sam's Reply to MackDisjointed Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders30 Essential Ideas you should know about ADHD, Dr. Russell Barkley

Libby Hinsley is a yoga therapist and a Doctor of Physical Therapy living with Hypermobile Ehlers Danlos Syndrome. Suffice it to say, she is the expert on yoga for hypermobility. Her new book, Yoga for Bendy People: Optimizing the Benefits of Yoga for Hypermobility. This book is so needed in the yoga community and in the medical community, where a dearth of clarity and education abound.We cover a lot ground in this episode, including:The difference between being flexible and having joint hypermobilityWhat yoga teachers can do if they suspect that a student is hypermobileLibby's experience of getting diagnosed and how challenging it was to find healthcare providers who understood the systemic affects of hypermobilityHow hypermobility affects proprioception, body mapping, and strengthThe connection between hypermobility and neurodiversityWhether or not stretching is beneficial for bendy peopleAs you'll hear in this episode, hypermobility is complex and you can't absorb it all in one podcast. That's why I've decided to feature this book as my next Yogaland Book Club selection. To join the club, go to my Substack here and enter your email to subscribe: yogaland.substack.comYou can join the club for free, or if you'd like to join an exclusive Q&A with Libby and have access to all of the posts, you can join as a paid member.Go to the shownotes page for the links and resources that were mentioned in this episode! yogalandpodcast.com/episode295 Hosted on Acast. See acast.com/privacy for more information.

Does stiff fascia hurt because it's stiff? Why then is there pain with the softer-tissue patterns of hypermobility and Ehlers-Danlos syndromes? Dr. Tina Wang's fascinating research (as well as her own story) helps shed some light on this paradox. Check out the video of her Thinking Practitioner conversation on Til or Whitney's sites:  Til Luchau's Advanced-Trainings.com  Whitney Lowe's Academy of Clinical Massage Resources: Dr Wang's clinical practice https://tupelopointe.com/ Dr Wang's neurofascialinflammation seminars including hEDS course: https://www.thebraincelledu.com/seminars Selected research: Wang, Tina J., and Antonio Stecco. “Fascial Thickness and Stiffness in Hypermobile Ehlers‐Danlos Syndrome.” American Journal of Medical Genetics Part C: Seminars in Medical Genetics 187, no. 4 (December 2021): 446–52. https://doi.org/10.1002/ajmg.c.31948. Wang, Tina, Roya Vahdatinia, Sarah Humbert, and Antonio Stecco. “Myofascial Injection Using Fascial Layer-Specific Hydromanipulation Technique (FLuSH) and the Delineation of Multifactorial Myofascial Pain.” Medicina (Kaunas, Lithuania) 56, no. 12 (December 20, 2020): 717. https://doi.org/10.3390/medicina56120717. Sponsor Offers: Books of Discovery: save 15% by entering "thinking" at checkout on booksofdiscovery.com. ABMP: save $24 on new membership at abmp.com/thinking.  Handspring Publishing: save 20% by entering “TTP” at checkout at handspringpublishing.com.  About Whitney Lowe  |  About Til Luchau  |  Email Us: info@thethinkingpractitioner.com (The Thinking Practitioner Podcast is intended for professional practitioners of manual and movement therapies: bodywork, massage therapy, structural integration, chiropractic, myofascial and myotherapy, orthopedic, sports massage, physical therapy, osteopathy, yoga, strength and conditioning, and similar professions. It is not medical or treatment advice.)

Today's episode of That's So Chronic is with Chelsea Haughton and we are talking about her diagnosis of polycystic ovarian syndrome (PCOS), premenstrual dysphoric disorder (PMDD), and hypermobile ehlers danlos syndrome (hEDS). In this episode, Chelsea shares her experiences of seeking a diagnosis which includes flying to a different city for an appointment, how each of these conditions affect her, the importance of talking about periods, and how validating it can be talking to someone who understands. Connect with Chelsea and see her embroidery creations on IG: @sewnearyetsewfar And as always, feel free to reach out and connect over on IG or Tiktok, I'm @thatssochronic Thank you for listening and supporting! You're the best! @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday! Today I am chatting to Finn Iles/Violet Tendencies all about her diagnosis of hypermobile ehlers danlos syndrome (hEDS), as well as a variety of comorbidities that come along with this. In this episode, Finn explains the journey to get to a diagnosis (which is still continuing!), what on earth EDS is, and how medicinal cannabis has helped her symptoms. Finn also takes us through the amount of advocacy work, research, and time they have had to do in order to get to where they are now, and the plans for the future support. Please note we do talk about some elements of the NZ health system that may be different now due to the reform, or not applicable to where you are based. Connect with Finn over on IG: @violetyouareturningviolet And you can find me on IG & Tiktok: @thatssochronic I would also really appreciate a rating or a review wherever you're listening to this pod! That really helps TSC reach more ears around the world - so thank you! @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Specialty medications can come with a high price tag and specialty mail-order pharmacies, mostly run by pharmacy benefit managers, have frequently created delays in getting necessary medications to patients.However, new technologies have created a way for clinics and community practices to provide specialty medications to patients directly from their clinics. This makes it possible for clinics to have personalized, in-house pharmacies with shorter waiting periods and stronger doctor-patient relationships.Learn how Ogi Kavazovic, Co-founder and CEO of House Rx, and Denali Cahoon, the tech start-up's Chief Pharmacy and Operating Officer, have launched a platform to help clinics make this possible.Plus, hear about how Sami Leyde's 14-year journey to get reach a diagnosis led her to create an online blog that documented her experiences with Hypermobile Ehlers Danlos Syndrome.Hosts: Terry Wilcox, Executive Director, Patients RisingDr. Robert Goldberg, “Dr. Bob,” Co-Founder and Vice President of the Center for Medicine in the Public InterestKate Pecora, Field Correspondent Guests:Ogi Kavazovic,  Co-founder and CEO of House RxDenali Cahoon, Chief Pharmacy and Operating Officer at House RxSami Leyde, Patient Advocate and author of the ZeBrave BlogLinks: Industry Voices—Integrating pharmacy into specialty practices improves access, careHouse RxAlzheimer's drug slows progression of cognitive decline in clinical trial, drugmakers sayZe Brave BlogNeed help?The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at PatientsRisingConcierge.orgHave a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent?Drop us a line: podcast@patientsrising.orgThe views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.

We made it! It's Tuesday! Another That's So Chronic episode! Today we are hearing from Cheyenne Welham, and we are talking about her diagnosis of hypermobile ehlers danlos syndrome (hEDS) and living life with an ostomy bag. In this episode Cheyenne explains what EDS is, the 10 year journey to her getting a diagnosis, the life changing decision to go through ileostomy surgery, the toll this has had an her mental health, and why she's dedicated to sharing her story. If you would like to find out more about Cheyenne, you can head to her instagram: @cheyber_space And you can find me on instagram and tiktok: @thatssochronic @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

In today's episode of Backpacker Radio presented by The Trek brought to you by Goodr, we are joined by Caet Cash.  Caet first discovered backpacking back in 2014 and has been on an absolute tear ever since.  We chat about why she prefers to hike SOBO, including some SOBO specific elements of both the AT and PCT, her insane list of peakbagging feats in the Adirondacks and southern Appalachians, redlining (aka mapping) the Smokies, and much more.  Caet also details how her backcountry goals have shifted since being diagnosed with Hypermobile Ehlers Danlos Syndrome, how she manages EDS, and why she thinks it's important to be vocal about this chronic condition.   We wrap the show with an overview of our AT road trip thus far including Chaunce's absurd sun burn, a triple crown of emotional high points on trail, a listener voicemail, and a listener educates us on the Philmont Poop Rating. Goodr: Use code “backpacker15” for 15% off at goodr.com/backpacker15. Gossamer Gear: Use code “littledonkeygirl” for 15% off at gossamergear.com.  Greenbelly: Use code “trek2022” for 10% off at greenbelly.co.   Interview with Caet Cash Caet's Instagram Article about Caet & the SB6K Time stamps & Questions 00:04:32 - QOTD: What's been the best part of the road trip thus far? 00:14:53 - Introducing Caet 00:15:10 - Discussion about Caet's trail name. 00:16:03 - What's the origin of your trail name? 00:18:37 - How mad are you going to be about Zach's pronunciation of Appalachian? 00:19:02 - Do you remember where you first met Zach? 00:21:07 - Tell us your backpacking resume. 00:22:45 - Tell us about the Northville Placid Trail. 00:24:26 - What's the best season to do the Northville Placid Trail? 00:25:45 - Do most people start in Northville? 00:26:00 - What type of wildlife do you see? 00:27:05 - Have you done any of the Finger Lakes Trail? 00:27:52 - What put the Appalachian Trail on your radar and why did you choose southbound? 00:29:19 - Was your marathon pain related to your future diagnosis? 00:30:10 - Anything else you want to share from the AT? 00:32:25 - Chaunce's story. 00:34:52 - At one point did you feel like you got into the hiking rhythm? 00:38:20 - Does any part of the trail feel hard after you've completed the Whites? 00:39:30 - Anything else you want to share from the CT? 00:40:36 - Tell us about connecting your footsteps on the PCT. 00:43:54 - How did you decide to go southbound on the PCT? 00:44:30 - How did you handle sleeping alone? 00:46:35 - How many times have you seen bears at night? 00:47:30 - Discussion of purism differences between the AT and PCT. 00:48:35 - When did you finish the PCT and what was the Sierra like? 00:50:15 - Tell us about what you thought of the PCT views and scenery. 00:52:02 - Do you prefer the scenery of the AT? 00:53:20 - Do you think list-making is more of a personality trait of people in the Northeast? 00:54:11 - Tell us about the South Beyond 6,000 grid. 00:55:36 - Can you give us more detail on the SB6K guidelines? 00:57:14 - What's your strategy in accomplishing the SB6K? 00:58:14 - How do you hike all of them in a month? 00:59:25 - What are your top 3 favorite peaks from the SB6K? 01:00:49 - Tell us about the Adirondack 46. 01:02:03 - How many of the SB6K peaks are accessible from or on the AT? 01:03:03 - Have you done Mt. Rogers? 01:03:47 - If there's no view, is the appeal strictly accomplishing the list? 01:04:20 - Has anyone else done the SB6K grid? 01:07:02 - Tell us about redlining the Smokies.  01:09:12 - How much do you have to plan for a redlining project versus winging it? 01:09:41 - Are there any resources for helping someone plan a redline? 01:10:45 - How long did it take you to redline the Smokies? 01:11:44 - Tell us about your hip injury. 01:16:01 - Tell us about Hypermobile Ehlers Danlos Syndrome. 01:18:19 - Have you ever dislocated your shoulder? 01:19:01 - What differentiates this disease from someone with other flexibility or hypermobility? 01:19:41 - How do you cope with or reduce chronic pain? 01:22:22 - How has EDS modified your future plans or goals? 01:24:29 - How common is EDS? 01:25:51 - What else in your lifestyle has changed to pursue your health goals? 01:27:18 - Has it been tough to recalibrate your goals? 01:28:28 - Did you ever wonder if your pain was similar to other hikers'? 01:29:58 - Would cycling be a possible activity for you? 01:31:52 - Tell us about your sister and hiking with her. 01:32:55 - What's your big 3 these days? 01:34:14 - Hype up van life for us. 01:36:18 - What do you want to share about guiding? 01:37:12 - How did you like working with Jennifer Pharr Davis? 01:38:00 - Anything else you want to share? 01:39:08 - Thank you! SEGMENTS Trek Propaganda Woman Rescued After Falling Headfirst Into Pit Toilet Trying to Retrieve Phone by Penina Satlow Triple Crown of emotional high points on trail Listener Voicemail Mail Bag 5 Star Review [divider] Check out our sound g uy@Paulybooyshallcross. Subscribe to this podcast on iTunes (and please leave us a review)!  Find us on Spotify, Stitcher, and Google Play. Support us on Patreon to get bonus content. Advertise on Backpacker Radio Follow The Trek, Chaunce, Badger, and Trail Correspondents on Instagram. Follow The Trek and Chaunce on YouTube. Follow Backpacker Radio on Tik Tok.  A super big thank you to our Chuck Norris Award winner(s) from Patreon: Andrew, Austen McDaniel, Jason Lawrence, Christopher Marshburn, Sawyer Products, Brad and Blair (Thirteen Adventures), Patrick Cianciolo, Paul Packman Sealy, Matt Soukup, and Jason Snailer. A big thank you to our Cinnamon Connection Champions from Patreon: Liz Seger, Cynthia Voth, Emily Brown, Dcnerdlet, Jeff LaFranier, Peter Ellenberg, Jacob Northrup, Peter Leven.

Linda Bluestein, M.D., is an integrative pain medicine physician and former ballet dancer who specializes in treating hypermobility disorders in dancers. Following-up from our first chat with Dr. Bluestein in Ep. 20, we dive deeper and explore her unique approach to the evaluation and treatment of this highly specialized population. This is a must-listen for all dance teachers! In addition to her private medical practice, Hypermobility MD, Dr. Bluestein is the founder and co-host of the podcast, Bendy Bodies with the Hypermobility MD, and former co-host of “Hypermobility Happy Hour.” Dr. Bluestein is the Director of Education for the nonprofit, EDS Wellness, Inc. and founder and executive director of Bendy Bodies, an organization dedicated to empowering hypermobile performing artists. She has published a number of original research papers; presents work at national and international conferences, and is a contributing author for the book, Disjointed - Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders. Dr. Bluestein is a member of the Board of Directors for the Bridge Dance Project, the Allergy and Immunology Working Group for the International Consortium on EDS and HSD, the Advisory Board for Doctors for Dancers, and the Resources Committee for the Dance Healthy Alliance of Canada. More information about Dr. Bluestein can be found on her website, www.hypermobilitymd.com. Links: Hypermobility MD https://www.hypermobilitymd.com/ Hypermodbility MD Podcast https://www.hypermobilitymd.com/podcast Bendy Bodies http://bendybodies.org/ International Association for Dance Medicine & Science https://iadms.org Ehlers-Danlos Society https://www.ehlers-danlos.com Social media: https://www.facebook.com/hypermobilityMD/ https://www.instagram.com/hypermobilitymd/ https://www.instagram.com/bendy_bodies/ https://twitter.com/BluesteinLinda

In this episode I interviewed Libby Hinsley.  Libby lives in Asheville, NC and is a Doctor of Physical Therapy as well as a Certified Yoga Therapist. She draws most of her Yoga inspiration from the tradition of Desikachar, or the viniyoga lineage and she was fortunate to study at the Krishnamacharya Yoga Mandiram in 2008 and has immersed herself in this tradition ever since.  Her treatment approach is to view the person as a forest. The body is one component of the human experience, and it is impacted by all the others. In the same way, effective treatment of the body requires understanding how all of its parts work together for integrated function. Libby has a new book coming out entitled Yoga for Bendy People. It explores specific approaches to yoga practices to best support people with hypermobility syndromes. Libby herself lives with Hypermobile Ehlers-Danlos Syndrome, so the topic is a passion of hers. We explored this a bit more on the podcast.To learn more about Libby and her work, visit libbyhinsley.com/Support the show

Happy Tuesday! Welcome back to That's So Chronic! Today's episode is with Rosie Roulette, and we are chatting about hypermobile ehlers danlos syndrome (hEDS), fibromyalgia, suspected postural orthostatic tachycardia syndrome (POTS), a little bit of endometriosis, and the moment when Rosie discovered they had a rare form of brain tumor (colloid cyst). In this episode Rosie talks about how these diagnoses can to be, as well as how they have shaped their creative practice, what inspires them to be so open about chronic illness and disability, and whether that surgeon was right… Would Rosie ever be a dancer again? You can find Rosie on instagram and facebook: @rosieroulette As well as their chronic illness cabaret: @chroniccabaret And of course, you can find me on instagram and tiktok: @thatssochronic Rosie was the year above me at drama school and being able to chat to them now about their journey was a great check in for me to remember that we really have no idea what's going on behind the scenes for people, even people that we might see every single day. PS there are some weird tech issues throughout this episode, so it's not your headphones breaking! Sorry! Xoxo @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Want to become The Healthy Dancer®? Follow: https://www.instagram.com/tothepointenutrition/ Nutrition for a Dancer's Diet and Health | Rachel Fine is a board-certified dietitian, specialist in sports nutrition, and expert in dancer health and dancer nutrition. Learn how to optimize your performance potential and build a healthy lifestyle. Want More Help?: FREE RESOURCES Grab Your Free E-Book to Dancer Health Nutrients for Dancers Crash Course 5 Days To Body Confidence BLOG: https://DanceNutrition.com EBOOKS Summer Intensive Nutcracker Auditions Plant-Based Lifestyles ONLINE PROGRAM https://PointeNutrition.com/dancers The importance of dance nutrition goes beyond our plate. This is why I created www.DanceNutrition.com. Dancers, dance educators, and dance parents can utilize this free resource site to access information and guides about fueling your dance performance! Click here to access courses, guides, articles, and more! Disclaimer: This is produced for informational purposes only. This information is general, not specific to you. The information in this podcast does not substitute for medical advice. The viewer assumes full responsibility for consulting a qualified health professional regarding health conditions or concerns, and before starting a new diet or health program.

Have you been searching for something to help you with tasks or to remember simple "To-Dos" around the house or in your business? Have you been feeling like you're buried and climbing out from under all sticky notes, emails, and messages seems too daunting? Did you know that you're not the only one? Nancy sits down with Business Consultant, Alison Tedford, to discuss tools used to remember and organize tasks, get out from under all those missed messages and emails, and how to make life easier to live while experiencing a chronic pain or illness that keeps you from racing like a rabbit, but instead, leaves you moving from task to task like a turtle. You don't want to miss this valuable episode.  Alison Tedford is a Business Consultant from Abbotsford, BC. She is the Author of, Chronic Profit, a book about chronic pain and entrepreneurship. She manages Hypermobile Ehlers-Danlos Syndrome and Mast Cell Activation Syndrome while also managing her own business as a single mom. Connect with Guest:  Email: alison@alisontedford.com Website: alisontedford.com FB/IG - @alisontedford Connect with Nancy: The Gathering: A Business Mastermind has openings for March! Join us to see your business SOAR HIGHER! Need help to get your business moving? Set up a Curious Call with Nancy to discuss how she can help!  http://www.businesssuccessunlimited.com Want to be featured on an upcoming podcast? Let's talk! 

Dr. Zingman is a board certified physician with nine years of experience and training in Orthopaedics and Preventive Medicine. She earned my medical degree at the University of Maryland School of Medicine, went on to academic Orthopaedic Surgery residency at University of Rochester and completed my residency in Preventive Medicine at Johns Hopkins. She started P.R.I.S.M. to combine her experience as a patient and athlete, her orthopaedic knowledge, and her preventive medicine ethos to create a curated experience that allows patients to reach their goals. Dr. Zingman was diagnosed with Hypermobile Ehlers Danlos Syndrome by Dr. Clair Francomano in 2015 after a decade-long struggle to obtain a diagnosis. Today, we are bringing you a conversation about integrative approaches for EDS and hypermobility.

Dr Linda Bluestein, the Hypermobility MD joins this podcast to discuss the impact of connective tissue disorders like EDS, POTS, and MCAS and endometriosis. Linda Bluestein, M.D. is an integrative pain medicine physician and former ballet dancer specializing in treating hypermobility disorders and other conditions involving persistent pain. In addition to her private medical practice, Hypermobility MD, Dr. Bluestein is the founder and co-host of the podcast, “Bendy Bodies with the Hypermobility MD,” and former co-host of “Hypermobility Happy Hour.” Dr. Bluestein is the Director of Education for the nonprofit, EDS Wellness, Inc. and founder and executive director of Bendy Bodies, an organization dedicated to empowering hypermobile performing artists. She has published a number of original research papers; presents work at national and international conferences, and is a contributing author for the book, Disjointed - Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders. Dr. Bluestein is a member of the Board of Directors for the Bridge Dance Project, the Allergy and Immunology Working Group for the International Consortium on EDS and HSD, the Advisory Board for Doctors for Dancers, and the Resources Committee for the Dance Healthy Alliance of Canada. More information about Dr. Bluestein can be found on her website, www.hypermobilitymd.com. Dr. Bluestein is set to headline Endo Summit Workshop during The Endometriosis Summit 2022. For tickets to the event please head to www.theendometriosissummit.com --- Support this podcast: https://anchor.fm/sallie-sarrel/support

In this episode, I speak to Alison Cossons, a former occupational therapist, who has hypermobile Ehlers Danlos syndrome, which was evident from birth however she was only diagnosed in her late 30s alongside her young son.  Alison is a regular Nordic Walker with Nordic4 and attends classes run by both Katie Atkins and Emma Webb.  Alison mentions this YouTube clip in her interview:  https://youtu.be/YxfkWAPMdg8  Jason Perry - Practical Pacing and Fatigue Management within the Ehlers Danlos Society YouTube account. Further ResourcesThe Ehlers Danlos Society - www.ehlers-danlos.comMedical journal article about hEDS, written by members of the International Consortium on Ehlers-Danlos syndromes and hypermobility spectrum disorders:  Hypermobile Ehlers-Danlos syndrome (a.k.a. Ehlers-Danlos syndrome Type III and Ehlers-Danlos syndrome hypermobility type): Clinical description and natural historyEhlers-Danlos Support UK https://www.ehlers-danlos.org/.  HMSA - Hypermobility Syndrome Association https://www.hypermobility.org/.  Alison's family will be forever grateful to Professor Rodney Grahame  (https://www.ehlers-danlos.com/rodney-grahame/ ) who made these diagnoses for them, and later for Alison's daughter.  Alison and her family continue to receive online and hydrotherapy physiotherapy from Rachel Lewis (www.physio-hydro.com) who has known Alison following the birth of Alison's son.  Find An Instructorhttps://britishnordicwalking.org.uk/apps/store-locatorIf you have enjoyed this podcast, I would be very grateful if you could show your support by buying me a coffee!  This enables me to continue producing these podcasts, as it will go towards covering the server and podcast platform licenses.   Not only is Nordic Walking a whole body workout, but it is also one of the safest and most sociable way to exercise.  Classes always finish up in a cafe enjoying a coffee together. Many thanks, Mary xI'm Mary Tweed, a British Nordic Walking instructor with Nordic Walking East Anglia. If you wish to share your story, do get in touch by emailing hello@walkingonairpodcast.co.uk#NordicWalking #WeAreNordicWalking #BritNW #BritishNordicWalking #INWA #NordicWalkingEastAnglia #onwf #nordicwalkinguk #walx #nordicwalkingaustralia #nordixx #urbanpoling #ANWA #anwaUSA #nordicwalkingnewzealand #nordicpolewalking #nordicpolewalkingnovascotia #nordicacademy #polewalking #lekipoles #exelpoles #fitnesswalking #skiwalking #polewalking  #greengym #mentalhealth #mentalwellbeing   #weightloss #posture #useitorloseit   #activeageing #nutritiousmovement  #exerciseanywhere  #BetterHealth #GreatOutdoors #fitnessforallages #walkwithease Support the show (https://www.buymeacoffee.com/walkingonair)Support the show (https://www.buymeacoffee.com/walkingonair)

It's the last Tuesday of the month which can only mean one thing… It's time for another That's So episode! Today I'm joined by Diana Divine (who you might remember from their interview about their diagnosis of Hypermobile Ehlers Danlos Syndrome back in April 2021) and we are discussing Dandelion Heart by Kelly Vincent. Spoiler alert: we loved it! Dandelion Heart is a collection of essays and poetry which grapples with disability in an identity-driven world. Exploring powerful themes ranging from body image and self-esteem to sex, relationships, and mental health, author and disability rights advocate, Kelly Vincent, draws on her own experiences as an autistic and physically disabled person. In this episode we talk about identity, discuss our favourite moments, Diana reveals their love of poetry and I reveal my lack of poetry experience, and we agree that the book is like a nice warm hug. Get your copy of Dandelion Heart by Kelly Vincent right here: debutbooks.com.au/bookstore/p/dandelion-heart-by-kelly-vincent I read this book on Kindle, and the link for that is here: amazon.com/dp/B09DFBSLKW/ref=cm_sw_em_r_mt_dp_SV0YFFFPZ10JMK4THE2M If you're interested in hearing more about Diana Divine's story, make sure you listen to their interview episode right here on That's So Chronic, and you can find them on Instagram: @dianadivineburlesque If you're not already, come and join the conversation over on Instagram! Follow @thatssochronic for all of the latest That's So Chronic goings on, and if you're new around here (hi! I see you!) hit that big subscribe or follow button, and if you fancy, please leave a review. @thatssochronic | @jessssbrien | #ThatsSoChronic If you have something that you would like discussed on an upcoming That's So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com), a DM on instagram, or fill out this Google form: https://forms.gle/4RZbCiHARjV5gmcWA Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Linda Bluestein, M.D. is an integrative pain medicine physician and former ballet dancer specializing in treating hypermobility disorders and other conditions involving persistent pain. Do you know the difference between hypermobility and flexibility? Join Dr. Linda Bluestein on this podcast episode and listen as she answers that question and many more! In addition to her private medical practice, Hypermobility MD, Dr. Bluestein is the founder and co-host of the podcast, “Bendy Bodies with the Hypermobility MD,” and former co-host of “Hypermobility Happy Hour.” Dr. Bluestein is the Director of Education for the nonprofit, EDS Wellness, Inc. and founder and executive director of Bendy Bodies, an organization dedicated to empowering hypermobile performing artists. She has published a number of original research papers; presents work at national and international conferences, and is a contributing author for the book, Disjointed - Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders. Dr. Bluestein is a member of the Board of Directors for the Bridge Dance Project, the Allergy and Immunology Working Group for the International Consortium on EDS and HSD, the Advisory Board for Doctors for Dancers, and the Resources Committee for the Dance Healthy Alliance of Canada. More information about Dr. Bluestein can be found on her website, www.hypermobilitymd.com. Links: https://www.hypermobilitymd.com/ https://www.hypermobilitymd.com/podcast https://www.hypermobilitymd.com/educational-services https://www.hypermobilitymd.com/resources https://iadms.org https://www.ehlers-danlos.com Social media: https://www.facebook.com/hypermobilityMD/ https://www.instagram.com/hypermobilitymd/ https://www.instagram.com/bendy_bodies/ https://twitter.com/BluesteinLinda

Episode 32: Hannah Budde's Story of Hypermobile Ehlers Danlos Syndrome and Mild TBI In this episode, guest Hannah Budde shares her story with mTBI and hypermobile EDS. She also has POTS, pelvic floor dysfunction and prolapse, interstitial cystitis, craniocervical instability, asthma, and thoracic outlet syndrome. She has experienced several head injuries. Her last one was in 2013, and she experienced brain fog, fatigue, and head and neck pain. She went to a brain injury clinic, which was really helpful for her. In 2018, she moved and she was involved in physical rehabilitation, where a neuropsychologist told her that her problems were all anxiety and mood and was very dismissive. She tried lots of treatments for her condition, to no avail. After receiving poor treatment, she found a neuroophthalmologist who did a more thorough examination and suspected that Hannah had EDS. She saw Dr. Zingman, an EDS specialist, where she was diagnosed with EDS. She underwent testing for POTS, and the diagnosis was confirmed. She received a lot of new diagnoses in the past year. She recently started with a new physical therapist, which has been very helpful for her. She learned to advocate for herself not only with doctors but within her family. She makes sure to prioritize her health and her wellbeing. She gets creative with parenting, to make sure she cares for her children and takes care of herself. She adapts her parenting by doing a lot of sitting on laying on the ground, putting a stool next to the car to help them climb in the car by themselves, refraining from lifting her kids, minimizing physical activity, energy conservation, planning, fatigue management, and use of a babysitter. She copes by using medications, physical therapy, deep breathing, using a neck brace, distraction, talking to friends, and using Instagram. She is honest with people in asking for what she needs and letting her know her limits.   Instagram Muldowney Method Untamed book Marriage Equity Calculator The Great Chore Audit   Links: Website Facebook Instagram Email Twitter     Please subscribe to our podcast in the iTunes store, or wherever you find your podcasts, Leave us a 5-star review, to help us know what you like and what you don't like, and to make sure other like-minded people find support through this podcast. Hosted by: Jessica Temple  Music by Antarcticbreeze Music Disclaimer: Our show is not designed to provide listeners with specific or personal legal, medical, or professional services or advice. Listeners should always consult their health care provider for medical advice, medication, or treatment. Copyright 2021 Jessica Temple

#217 Jill Schofield, MD founded the Center for Multisystem Disease to provide comprehensive care to patients with conditions such as dysautonomia, mast cell activation syndrome, antiphospholipid syndrome, Sjögren's syndrome, and celiac disease.  Some of the patients suffering from these disorders also have Ehlers-Danlos syndrome which causes additional struggles.  She specializes in immune-mediated disorders that are confounding due to bodywide symptoms, devoting extra time to each patient so she can identify the issues causing their symptoms. She was the recipient of the 2019 Dysautonomia Support Network's Game Changer Award for her work in the use of IVIG to treat patients with autoimmune forms of dysautonomia   In this episode we cover What are the Ehlers-Danlos syndromes (EDS) What is the difference between EDS and hypermobility spectrum disorder HSD What causes EDS Why might someone with EDS and HSD experience chronic joint pain What other complications may occur The link between EDS, SIBO, and other digestive disorders How is EDS Diagnosed If there are any consequences for leaving EDS undiagnosed? Treatment strategies for EDS  

Today we are going to talk about Hypermobile Ehlers-Danlos Syndrome - what it is, how it can effect the body, what you can do for it, etc. This is the Zebra condition - when one hears hoof beats, sometimes it isn't horses…sometimes, it is zebras. It is my hope that this information can be helpful for everyone and anyone who hears it. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app

Welcome back everyone! I'm back! It's been a hot minute but I'm back and ready to make more episodes of Rose City Spoons! Today, I'm just going over where I've been and what I've been up to! Next episode will be all about one of my new diagnosis: Hypermobile Ehlers Danlos Syndrome. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app

Helping individuals with chronic illness can be very difficult because there are not always clear answers to their problems. That can be challenging, especially for doctors whose years of training have taught them to find problems and ultimately fix those problems. To overcome this, Eva stresses the importance of making a human connection with patients and validating their pain even if there may not be clear answers to their problems. Eva remarks in our conversation that the focus needs to be on not just the patient, but also the relationship. – Tim Hamilton, host of Planning on CallThis week is a little different - we're re-publishing Eva's guest interview on the Planning on Call podcast! Hosted by Tim Hamilton, CFP®, CIMA, CSLP, ‘Planning on Call' is a series of podcasts, blog posts, and other content focused on providing medical professionals, and their spouses, the important information they need to know as they plan their future. Other episodes of the Planning on Call podcast can be found here:https://atlaspwm.com/category/planning-on-callIn this episode of Planning on Call, Eva and Tim discuss the following: · Eva's build-block story that led to her chronic conditions and related career path· Her views on the disconnect between doctor-patient relationships· How to humanize healthcare You can listen to this episode on the original Planning on Call podcast here:https://atlaspwm.com/planning-on-call-blog-12-humanizing-healthcare-chronic-illnessApple PodcastsSpotifyLibsyn You can also find out more about Tim and financial planning resources for medical professionals here: https://atlaspwm.com/medical-professionals Eva's bio from the original Planning on Call show, written by Tim Hamilton: I had an amazing conversation with Eva Minkoff in my latest episode of Planning on Call. In this episode, I had the opportunity to learn about living with chronic illness and the support structures that can be built through humanizing healthcare. A Planning on Call listener connected me to Eva because they thought she had a unique perspective to discuss, and I could not agree more! Chronic illness and its treatment is a topic I knew very little about before speaking with Eva. I found our conversation very illuminating personally, so I hope it resonates with listeners as well. Eva has an impressive background which consists of but is not limited to being a serial entrepreneur in healthcare, Nutrition Scientist, and NASM Certified Personal Trainer. She also has spent a lot of time developing an impactful podcast, [Human]Care . This podcast features conversations with health entrepreneurs, care professionals from all walks of life, patient advocates, and industry change-makers all with the mission to humanize healthcare… and is part of a top-rated chronic illness podcast and network, Invisible Not Broken. Also, you can listen to her TEDx Talk, “5 Minutes to Fix Our Broken Healthcare System”, this talk boldly hypothesizes how elevating the patient-physician relationship through a proposed structured conversation can improve the healthcare systems. Eva has dealt with chronic illness in her own life, suffering from Fibromyalgia, Hypermobile Ehlers Danlos Syndrome, and Mast Cell Activation Syndrome (among other ailments). Navigating the difficulties of living with, diagnosing, and treating chronic illness for most of her life has given her the firsthand experience needed to help find solutions for other individuals living, struggling, and persevering with chronic illnesses.

Hello! Welcome back to That's So Chronic. Thanks for being so patient with me as I took a little break to get my health back on track. And we are back, baby! Better than ever. It's nice to see you again. Today we are heading to Adelaide through the power of the internet, where I sat down with burlesque performer, producer and teacher Diana Divine to chat about her diagnosis of Hypermobile Ehlers Danlos Syndrome. In this episode we chat about her journey to a diagnosis, why it's important to get a good GP, how she felt accepting the use of mobility aids (oh hey Dick and Betty!*), what it's like being a burlesque dancer with a chronic illness, and we wonder why people feel the need to be rude. *personal joke, you'll understand when you listen! I've been in Adelaide so many times and we hadn't managed to cross paths yet, so I loved getting to know Diana Divine during this chat, and I know you will too. Follow Diana Divine on instagram: @dianadivineburlesque And for more information about Singin' In The Pain - an award winning chronic illness cabaret head to @disabilitycabaret on instagram. And of course, you can always go and give us a cheeky follow, we're @thatssochronic If you're new around here and you enjoyed this episode, make sure you press that subscribe button on Apple Podcasts, follow on Spotify and leave a review wherever you get your podcasts. That really helps TSC get into more ears around the world to hopefully spread awareness, and more importantly… Hope. @thatssochronic | @jessssbrien | #thatssochronic Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

This is the story of Kirsty Wilkinson from Australia. Kirsty says that when life is a real struggle, sometimes, somehow, you have to “just get out there”, and let the rest look after itself. Kirsty Wilkinson did just that, with a golf club in her hands, and it put a smile back on her face again. Two car accidents, diagnosis of a condition called Hypermobile Ehlers-Danlos Syndrome, a brother who suffered a brain tumour and years of pain management all led to depression. Kirsty found that golf made a huge difference to her life, helping her physical and mental health considerably, and offering a social network of new friends in the process. In short, it’s Kirsty’s belief that “Golf saved my life.” Please enjoy the story of Kirsty Wilkinson.

Janna Linke is a 35-year old mother of two who, whilst registered as a Pharmacist, and having worked in both Hospital and Community pharmacy roles, isn't currently employed in the Pharmacy sector. This is due to ongoing chronic health conditions. Janna was diagnosed with hypermobile Ehlers-Danlos Syndrome (hEDS) at the age of 33 years, a rare connective tissue disorder. Janna established the health advocacy brand, Zebra Blends at beginning of 2020, as it became evident to her, in her search for answers to her own health issues, that rare diseases and similarly chronic illnesses are very commonly under researched, under funded, and in turn under diagnosed. Janna hopes to change this via providing patient advocacy services to people experiencing rare disease and chronic illness. It's hoped via the increases in exposure and awareness of these conditions, the path to diagnosis and treatment will become much  smoother and quicker Indispensable Episode 8 Invisible Disease | Making Connections In this episode, Janna discusses HyperMobile Ehlers-Danlos Syndrome or hEDS, chronic pain and chronic fatigue syndrome and some of the medications used to help with the symptoms. The path to diagnosis for these 'invisible diseases' can be long and frustrating. Janna offers some ways to advocate for yourself and also opportunities to connect with others that may be managing these conditions. "If you can't connect the issues, think connective tissue". 5 Indispensable tips Engage a general practitioner who is willing and able to learn about your condition if it is not one they are already familiar with. Having a good working relationship with your general practitioner is integral to ensuring appropriate and timely referral to specialists is achieved, thus obtaining accurate diagnosis which in turn leads to more timely and effective treatments being explored and utilised. Have a good working relationship with your local pharmacist. They are able and very willing to assist in advocacy but also in ensuring your medication usage is optimised at all times. If you have a rare chronic illness, join support groups. These can be tremendous for building a support network of people who know exactly what it is like to be living with the condition you are. But also, most importantly a lot of the time there will be people who are more ‘experienced' with the condition, disease or syndrome and able to guide you in your journey. There are no silly questions - never be afraid to ask for further explanation, information or evidence from your healthcare providers. Collaboration is the KEY. Collaboration with healthcare practitioners, both medical and allied health, carers, support workers and fellow patients.Your multidisciplinary team of practitioners if you have a chronic or rare condition will be big. Make sure everyone is informed and remains in the loop, about any key changes to medications or treatment. This will make transitions of any kind easier for all involved.   You can connect with Janna here: Instagram: @zebrablends FB: Zebra Blends Web: www.zebrablends.com.au Email: janna@zebrablends.com.au   Additional Links: Rare Voices Australia (RVA) https://www.rarevoices.org.au/ The Ehlers-Danlos Society https://www.ehlers-danlos.com/ Emerge Australia https://www.emerge.org.au/ Unrest - Documentary Film available to watch on Netflix https://www.unrest.film/ Pain Australia https://www.painaustralia.org.au/ Low Dose Naltrexone (LDN) https://www.customcompounding.com.au/wp-content/uploads/2017/11/Low-Dose-Naltrexone-Medicine-Information.pdf https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3962576/ See omnystudio.com/listener for privacy information.

Dawn Christine Leighton MD is an Emergency Medicine physician and mother of two. She was born with a genetic connective tissue disorder, Hypermobile Ehlers Danlos Syndrome. She also suffers from autoimmune illnesses. For the past two decades, she has struggled with declining health including severe chronic pain due to HEDS. After changing to a carnivore diet, her pain was greatly improved and autoimmune illness are in remission. For Dr. Leighton, eating a meat-based diet has greatly improved her quality of life. You can find her on IG: @dawncleightonmd.

Welcome to Part 5 of Our Quarantined Life. In this episode, I chat with a long-time friend, Kelsie Stone. Kelsie is the author of Glass Dust, and her wisdom certainly goes beyond her years.  Kelsie is passionate about people. In fact, she shaved her head in order to raise money for MUST Ministries during the COVID-19 crisis. Even though she is in isolation due to being immune-compromised, she wanted to continue to contribute to helping others in her community. She petitioned for people to donate money to this ministry in hopes of allowing more people to be fed during this pandemic. Kelsie has a connective tissue disease called Hypermobile Ehlers-Danlos Syndrome, or HEDS for short. This disease is considered rare; however, Kelsie, along with others who have also been diagnosed, thinks that it is more common than we are aware.  Kelsie is immune-compromised and was also diagnosed with a disorder called Scheuermann Disease, and then eventually Ankylosing Spondylitis, after she found out that her spine was broken in three different places without her knowledge of ever having broken it.  We mention how, in high school, Tiffany was awarded a trip to the counselor's office because of a poem she wrote for The Cherokee Review, a book of poems and short stories submitted by the high school students. Who knows? Maybe I'll publish it as an article at http://teaoflifepodcast.com/, and then you can give me your opinion on whether or not that trip was truly deserved. Kelsie is a passionate gamer, specifically VR (Virtual Reality). We talk about how she has been able to turn her passion for gaming into physical therapy for her body, and she shares about her desire to introduce gaming techniques to the disabled community.  Kelsie encourages everyone to remember that lives matter...everyone matters. She hopes that we can hold on to the adversity that we are experiencing right now so that we can continue pulling together going forward. Relationship and community have always been important, and we hope that we can remember that when this all comes to an end. Visit Amazon today to buy your own copy of Kelsie's book, Glass Dust.