Podcasts about functional neurological disorder fnd

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Best podcasts about functional neurological disorder fnd

Latest podcast episodes about functional neurological disorder fnd

New Books Network
Fearfully and Wonderfully Broken (Sydney Anne Bennett): A Young Woman Facing A Neurological Disorder Is A Case Study In Theodicy

New Books Network

Play Episode Listen Later Jun 22, 2026 42:13


At age 22, Sydney's Bennett's brain stopped communicating with her body correctly; she was suffering from Functional Neurological Disorder (FND), a condition in which the nervous system stops sending or interpreting signals the right way. Suddenly this bright, beautiful, college girl, recently married, was having seizures, numbness, difficulty moving. Soon she needed a cane, then a wheelchair. But, when we are weak, we are strong, and she found her rock in Jesus our cornerstone. Today she is a faithful and faith-filled advocate, mother of two, and (in the view of your host) present-day Job; and Job reminds us, “The Lord giveth and the Lord taketh away; blessed be the name of the Lord.” Sydney's book, Fearfully and Wonderfully Broken, on Amazon, and also from the publisher, Thomas Nelson, where you can listen to the first chapter of the audio book. The episode of Almost Good Catholics with Mako Fujimura talking about kintsugi (which I excerpted): Mako Fujimura on Almost Good Catholics, episode 14: The Silence of God: The Meaning of Our Suffering and Redemption Other related Almost Good Catholics episodes about the Book of Job and the meaning of suffering: Jonathon Fessenden on Almost Good Catholics, episode 58: The Book of Job: Why Do Bad Things Happen to Good People? Brian Zahnd on Almost Good Catholics, episode 112: The Tree of Life: “no one who loves the way of Grace ever comes to a bad end.” Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/new-books-network

New Books in Catholic Studies
Fearfully and Wonderfully Broken (Sydney Anne Bennett): A Young Woman Facing A Neurological Disorder Is A Case Study In Theodicy

New Books in Catholic Studies

Play Episode Listen Later Jun 22, 2026 42:13


At age 22, Sydney's Bennett's brain stopped communicating with her body correctly; she was suffering from Functional Neurological Disorder (FND), a condition in which the nervous system stops sending or interpreting signals the right way. Suddenly this bright, beautiful, college girl, recently married, was having seizures, numbness, difficulty moving. Soon she needed a cane, then a wheelchair. But, when we are weak, we are strong, and she found her rock in Jesus our cornerstone. Today she is a faithful and faith-filled advocate, mother of two, and (in the view of your host) present-day Job; and Job reminds us, “The Lord giveth and the Lord taketh away; blessed be the name of the Lord.” Sydney's book, Fearfully and Wonderfully Broken, on Amazon, and also from the publisher, Thomas Nelson, where you can listen to the first chapter of the audio book. The episode of Almost Good Catholics with Mako Fujimura talking about kintsugi (which I excerpted): Mako Fujimura on Almost Good Catholics, episode 14: The Silence of God: The Meaning of Our Suffering and Redemption Other related Almost Good Catholics episodes about the Book of Job and the meaning of suffering: Jonathon Fessenden on Almost Good Catholics, episode 58: The Book of Job: Why Do Bad Things Happen to Good People? Brian Zahnd on Almost Good Catholics, episode 112: The Tree of Life: “no one who loves the way of Grace ever comes to a bad end.” Learn more about your ad choices. Visit megaphone.fm/adchoices

Virtual Curbside
Episode 385: #90-1 Pediatric Neurology: FND

Virtual Curbside

Play Episode Listen Later Jun 2, 2026 28:02


This month we begin a new series on pediatric neurology issues, starting with a discussion with Josh Bonkowsky, MD, PhD, about his book Dancing Eyes, Dancing Feet. In this episode, our host Paul Wirkus, MD, FAAP and Dr. Bonkowsky trace the evolution of how clinicians understand and approach unexplained events in infants and children - from Sudden Infant Death Syndrome (SIDS) to Apparent Life-Threatening Events (ALTE), and more recently, Brief Resolved Unexplained Events (BRUE) and Functional Neurological Disorder (FND).The conversation explores how terminology, diagnostic approaches, and clinical thinking have changed over time, as well as the challenges providers face when balancing reassurance, evaluation, and uncertainty. We also discuss the important roles of the child's pediatrician and pediatric hospitalists in coordinating care, supporting families, and guiding follow-up after these often frightening events.Have a question? Email questions@vcurb.com. Listener questions will be answered in episode four. For more information about available credit, visit vCurb.com.ACCME Accreditation StatementThis activity has been planned and implemented in accordance with the accreditation requirements and policies of the Colorado Medical Society through the joint providership of Kansas Chapter, American Academy of Pediatrics and Utah Chapter, AAP.  Kansas Chapter, American Academy of Pediatrics is accredited by the Colorado Medical Society to provide continuing medical education for physicians. AMA Credit Designation StatementKansas Chapter, American Academy of Pediatrics designates this live activity for a maximum of 1.0 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

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The ABMP Podcast | Speaking With the Massage & Bodywork Profession
Ep 571 – Functional Neurological Syndrome: "I Have a Client Who . . ." Pathology Conversations with Ruth Werner

The ABMP Podcast | Speaking With the Massage & Bodywork Profession

Play Episode Listen Later May 19, 2026 21:56


After years of misdiagnoses, medication sensitivities, injuries, and setbacks, a massage therapist is diagnosed with Functional Neurological Disorder (FND), a condition that causes non-typical seizures and intermittent paralysis-like weakness. Despite being unable to work, she continues advocating for the FND community and wants to help educate massage therapists about the benefits of safe, informed touch for people living with the condition. In this episode of IHACW. . ., Ruth explores Sarah's journey, the realities of FND, and the role massage therapy may play in supporting those navigating complex neurological challenges.  Resources: Functional Neurologic Disorder | National Institute of Neurological Disorders and Stroke (no date a). Available at: https://www.ninds.nih.gov/health-information/disorders/functional-neurologic-disorder (Accessed: May 8, 2026). Functional Neurologic Disorder | National Institute of Neurological Disorders and Stroke (no date b). Available at: https://www.ninds.nih.gov/health-information/disorders/functional-neurologic-disorder (Accessed: April 28, 2026). Functional Neurological Disorder (Conversion Disorder) (no date). Available at: https://my.clevelandclinic.org/health/diseases/17975-conversion-disorder (Accessed: April 28, 2026). Functional Neurological Disorder, Reframed | Harvard Medicine Magazine (no date). Available at: https://magazine.hms.harvard.edu/articles/functional-neurological-disorder-reframed (Accessed: May 8, 2026). Ranford, J. et al. (2020) "Sensory Processing Difficulties in Functional Neurological Disorder: A Possible Predisposing Vulnerability?," Psychosomatics, 61(4), pp. 343–352. Available at: https://doi.org/10.1016/j.psym.2020.02.003. "What Is FND" (no date) FND Hope International. Available at: https://fndhope.org/fnd-guide/ (Accessed: April 28, 2026). What Is Functional Neurological Disorder (FND)? (no date) Cleveland Clinic. Available at: https://my.clevelandclinic.org/health/diseases/17975-conversion-disorder (Accessed: May 8, 2026).  Host Bio:              Ruth Werner is a former massage therapist, a writer, and an NCBTMB-approved continuing education provider. She wrote A Massage Therapist's Guide to Pathology, now in its seventh edition, which is used in massage schools worldwide. Werner is also a long-time Massage & Bodywork columnist, most notably of the Pathology Perspectives column. Werner is also ABMP's partner on Pocket Pathology, a web-based app and quick reference program that puts key information for nearly 200 common pathologies at your fingertips. Werner's books are available at www.booksofdiscovery.com. And more information about her is available at www.ruthwerner.com.    Sponsors: Anatomy Trains is a global leader in online anatomy education and also provides in-classroom certification programs for structural integration in the US, Canada, Australia, Europe, Japan, and China, as well as fresh-tissue cadaver dissection labs and weekend courses. The work of Anatomy Trains originated with founder Tom Myers, who mapped the human body into 13 myofascial meridians in his original book, currently in its fourth edition and translated into 12 languages. The principles of Anatomy Trains are used by osteopaths, physical therapists, bodyworkers, massage therapists, personal trainers, yoga, Pilates, Gyrotonics, and other body-minded manual therapists and movement professionals. Anatomy Trains inspires these practitioners to work with holistic anatomy in treating system-wide patterns to provide improved client outcomes in terms of structure and function.      Website: anatomytrains.com     Email: info@anatomytrains.com           Facebook: facebook.com/AnatomyTrains  Instagram: www.instagram.com/anatomytrainsofficial YouTube: https://www.youtube.com/channel/UC2g6TOEFrX4b-CigknssKHA    Precision Neuromuscular Therapy seminars (www.pnmt.org) have been teaching high-quality seminars for more than 20 years. Doug Nelson and the PNMT teaching staff help you to practice with the confidence and creativity that comes from deep understanding, rather than the adherence to one treatment approach or technique. Find our seminar schedule at pnmt.org/seminar-schedule with over 60 weekends of seminars across the country. Or meet us online in the PNMT Portal, our online gateway with access to over 500 videos, 37 NCBTMB CEs, our Discovery Series webinars, one-on-one mentoring, and much, much more! All for the low yearly cost of $167.50. Learn more at pnmt.thinkific.com/courses/pnmtportal!  Follow us on social media: @precisionnmt on Instagram or at Precision Neuromuscular Therapy Seminars on Facebook.   At Heights Wellness Retreat, we believe every person is an unstoppable force, whether navigating daily demands, pursuing goals, or striving to be their best. This drives everything we do. We go beyond traditional spa services by creating a purpose-driven environment where wellness professionals are empowered, valued, and positioned to grow. With steady clientele, support, and a wellness-forward culture, Heights Wellness Retreat is where therapists build meaningful, sustainable careers while shaping the future of the wellness industry.  www.massageheightscareers.careerplug.com/jobs  www.heightswellnessretreats.com  https://www.instagram.com/heightswellnessretreat/  https://www.facebook.com/heightswellnessretreat/   

Being Human Hidden Depths
Steven Painter on Living with FND: Understanding the Freeze Response & Nervous System Overload

Being Human Hidden Depths

Play Episode Listen Later Apr 30, 2026 52:55 Transcription Available


In this thought-provoking episode of the Collaboration Global Podcast, host Gill Tiney sits down with Steven Painter to explore the deeper realities of living with Functional Neurological Disorder (FND), the mind-body connection, and the hidden impact of stress and trauma on our nervous system. This conversation goes beyond labels and diagnoses, diving into the human experience behind chronic conditions and the resilience it takes to navigate them.

In Awe by Bruce
Fearfully and Wonderfully Broken

In Awe by Bruce

Play Episode Listen Later Apr 9, 2026


From newly married to newly disabled—almost overnight. Two weeks after her honeymoon, Sydney became disabled. She was later diagnosed with Functional Neurological Disorder (FND), a condition that disrupts the brain's ability to send correct signals to the body. Today, Sydney lives with daily seizures, chronic pain, and mobility loss—and often uses a wheelchair. This wasn't the life she planned. It is the life she's learning to live faithfully. Sydney will be the unafraid guide through whatever valley you are walking through, normalizing doubt and the daily fight for faith, and recognizing the presence of God there. Sydney Bennett Sydney Anne Bennett is a writer, disability advocate, and speaker who helps people struggling with chronic illness and pain find confidence and hope again—while pointing them to Jesus.In 2022, Sydney began sharing her story on Instagram as a way of processing grief, faith, and the strange in-between of being both young and disabled. Today, she encourages a global audience of over 300,000 people with honesty, humor, and hope that leans hard on Jesus.She lives in Idaho with her husband, Colton, their daughters, Hadassah and Felicity.InstagramYou TubeWebsite

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The Art of Being Well
The “Body Positivity” Hoax, Glyphosate Gaslighting & Regenerative Homesteading | Ask Me Anything

The Art of Being Well

Play Episode Listen Later Apr 6, 2026 69:06


In today's Ask Me Anything, we dive into Functional Neurological Disorder (FND) and why so many people feel unheard when conventional testing comes back “normal.” We also talk regenerative homesteading and safer alternatives to conventional weed killers, plus a timely update on glyphosate and why cumulative exposure matters. And we close with a cultural hot topic on the Jillian Michaels vs body positivity debate and how to separate self-worth from metabolic health. For all links mentioned in this episode, visit www.drwillcole.com/podcast.Please note that this episode may contain paid endorsements and advertisements for products and services. Individuals on the show may have a direct or indirect financial interest in products or services referred to in this episode.Sponsors:To learn more and get 20% off your order, visit ActiveSkinRepair.com and use code: WILLCOLE. You can also find Active Skin Repair on Amazon and at your local CVS.Go to CLEARSTEM.com/WILLCOLE and use code WILLCOLE at checkout for 15% off your first order.Text ABW to 64000 to get 20% off all IQBAR products, plus FREE shipping. Message and data rates may apply.Visit fromourplace.com/WILLCOLE and use code WILLCOLE for 10% off site wide. Visit ProlonLife.com/WILLCOLE to claim your 15% discount and your bonus gift.Produced by Dear Media.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

The Irish Occupational Therapy Podcast
What Matters To You? FND, Concussion and the Power of OT

The Irish Occupational Therapy Podcast

Play Episode Listen Later Apr 5, 2026 35:43


In this episode, we speak with Ciara Duffy, founder of Enable OT NI, about her journey from NHS neurorehabilitation toprivate practice. Ciara shares powerful insights into working with adults following stroke, brain injury, concussion, and Functional Neurological Disorder (FND).We explore the real impact of occupational therapy in neurological rehabilitation from fatigue management and return to work, to graded goal-setting and positive risk-taking. Ciara reflects on supporting a public figure with FND and how occupational therapy helped restore confidence, independence, and identity.This episode highlights the depth of OT's holistic approach asking not “What's the matter?” but “What matters to you?”https://enableotni.com/

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Psych Matters
What story should psychiatry tell

Psych Matters

Play Episode Listen Later Mar 26, 2026 67:40


This conversation explores the impact of storytelling in psychiatry, emphasising how narratives shape identity and influence recovery. Dr Rory Hutchinson, Ms Bianca Millroy and A/Prof Warren Ward discuss their personal experiences with functional neurological disorder, the role of the medical gaze, and the importance of lived experience in understanding mental health. They delve into narrative medicine as a framework for enhancing patient care and the therapeutic value of reframing narratives. The discussion highlights the need for empathy, curiosity, and the power of stories in the healing process.Dr Rory Hutchinson is a Child and Adolescent Psychiatrist at Jacaranda Place, Queensland Adolescent Extended Treatment Centre. He also works in private practice and is a Senior Lecturer at Griffith University. His clinical and academic work is strongly informed by an interest in the medical humanities, particularly the intersection between humanities and psychiatric clinical practice.A/Prof Warren Ward is Director of the Eating Disorders Program at Ramsay Clinic New Farm. He has published more than 30 articles and 2 book chapters on eating disorders. He also writes on philosophy and cultural history, and in 2022 his first book Lovers of Philosophy: How the Intimate Lives of Seven Philosophers Shaped Modern Thought became a number one bestseller on Amazon's philosophy list. In 2025, his second book, Renourish: How to Recover From an Eating Disorder, co-authored with Lexi Crouch, was released by Pan Macmillan.Bianca Millroy (she/her) is a writer, editor, and podcaster with a passion for science-informed storytelling. She is undertaking a PhD at The University of Queensland where her practice-led thesis "Caput Nebula" (Head of Fog) combines Creative Nonfiction, Narrative Medicine and neuroscience to "rewrite" the narrative of Functional Neurological Disorder (FND), based on her own lived experience. Bianca lives and writes in Meanjin (Brisbane) on Yuggera/Turrbal Country. Connect with Bianca on LinkedIn.Lovers of Philosophy: How the Intimate Lives of Seven Philosophers Shaped Modern Thought: Ward, Warren Renourish: A complete and compassionate guide to recovery from eating disorders - Pan Macmillan Australia Caput Nebula (excerpt) by Bianca Millroy - a creative nonfiction essay published by Science Write Now Hysteria (memoir) by Katerina Bryant - a hybrid memoir and nonfiction exposé on Katerina's lived experience and the history of 'hysteria'Topic suggestion:If you have a topic suggestion or would like to participate in a future episode of Psych Matters, we'd love to hear from you.Please contact us by email at: psychmatters.feedback@ranzcp.orgDisclaimer:This podcast is provided to you for information purposes only and to provide a broad public understanding of various mental health topics.  The podcast may represent the views of the author and not necessarily the views of The Royal Australian and New Zealand College of Psychiatrists ('RANZCP'). The podcast is not to be relied upon as medical advice, or as a substitute for medical advice, does not establish a doctor-patient relationship and should not be a substitute for individual clinical judgement.  By accessing The RANZCP's podcasts you also agree to the full terms and conditions of the RANZCP's Website. Expert mental health information and finding a psychiatrist in Australia or New Zealand is available on the RANZCP's Your Health In Mind Website.

The Art of Mindful Dating
Client Interview: Overcoming Functional Neurological Disorder (FND) & Anxiety with Accelerated Hypnotherapy

The Art of Mindful Dating

Play Episode Listen Later Mar 5, 2026 3:17


Before working with Liana, this client was living with severe Functional Neurological Disorder symptoms – weakness, constant pain, and debilitating ticks that left them mostly bedridden and dependent on their parents for basic care. They had to be carried from their bed to Liana's office because they could barely move or walk on their own.Find out what happened after just one hypnotherapy session.Discover how my client developed a new sense of stability and self-trust in this powerful testimonial, where the clients shares how Accelerated Hypnotherapy helped them:Regain mobility after being largely bedriddenReduce FND symptoms like weakness, pain, and ticksQuiet a constantly racing mind and feel calm againRebuild independence, confidence, and quality of life​If you're living with Functional Neurological Disorder, chronic pain, trauma, or unexplained neurological symptoms, this story is a reminder that change is possible and your brain–body connection can shift. In-person & online sessions available

Talk Dizzy To Me
Functional Neurological Disorder (FND) Explained: What It Is and How It Overlaps With Dizziness

Talk Dizzy To Me

Play Episode Listen Later Feb 4, 2026 57:43


Functional Neurological Disorder (FND) is often misunderstood... but it's real, common, AND treatable. In this episode of Talk Dizzy To Me, vestibular physical therapists Dr. Abbie Ross, PT, NCS and Dr. Carly Lochala, PT, NCS sit down with Dr. Julie Hershberg, PT, NCS to explain what FND is, why it's been minimized in healthcare, and how it overlaps with dizziness, migraine, dysautonomia/POTS, hypermobility/EDS, and vestibular disorders.They break down brain networks like the default mode network and salience network, discuss common clinical clues (variability, attention-related shifts), and explain how treatment often starts with nervous system regulation, trust-building, and whole-person care—not just exercises.If you've been told your symptoms are “all in your head,” this episode is for you.Guest: Dr. Julie Hershberg / Reactive PT Instagram: @reactiveptResources: FND resources hub, reactivept.com/FNDresourcesHosted by:

Gums & Gossip
From Breakdown to Breakthrough: Healing Trauma, Dental Fear & the Nervous System

Gums & Gossip

Play Episode Listen Later Jan 20, 2026 51:24


What happens when your body says “enough”—and you choose to listen?In this powerful episode of Gums & Gossip, host Hope Loyd sits down with Shalini, a somatic psychotherapist, trauma therapist, and nervous system educator from West Yorkshire, UK. Shalini shares her deeply personal journey through a full nervous system breakdown, a diagnosis of Functional Neurological Disorder (FND), and how she healed by understanding the body's stress and trauma responses.Together, Hope and Shalini explore:How trauma and chronic stress live in the nervous systemWhy fear shows up in the body—especially in the jaw, breath, and dental chairSimple somatic tools to regulate anxiety and feel safe againHow nervous system rituals can support healing from chronic pain, illness, and long-term stressThe connection between emotional safety, oral health, and whole-body wellnessThis episode is especially powerful for anyone experiencing dental anxiety, chronic stress, trauma, jaw tension, teeth clenching, or feeling overwhelmed by their own body.If you've ever felt like your body was holding fear you couldn't explain—this conversation will meet you right where you are.

The NeuFit Undercurrent Podcast
Ep 120: Relearning to Walk: One Family's Journey Through Functional Neurological Disorder

The NeuFit Undercurrent Podcast

Play Episode Listen Later Jan 16, 2026 60:28


What happens when a child suddenly loses the ability to walk – and the answers aren't structural, surgical, or pharmaceutical? In this episode, Garrett sits down with George James and Katie, the mother of 9-year-old Jodie, to share an extraordinary and deeply human story of Functional Neurological Disorder (FND), resilience, and recovery. In this conversation, we explore: Jodie's sudden onset of FND after fainting during a field hockey game, and the loss of walking, speech, and confidence The emotional and logistical journey of navigating a misunderstood condition George's decision to travel from the UK to Kenya for a 5-day intensive The clinical framework for approaching FND, including an emphasis on sensory input, play, and nervous system retraining  Broader takeaways from this story and what it teaches us about neuroplasticity, graded exposure, "deconstructing" movement patterns like gait, and more This story is an inspiring example of patience, trust, and the remarkable adaptability of the human nervous system, with some extremely valuable clinical insights mixed in.  

The NeuroReset Podcast
EP 55 - Alyson: 16 with FND used to faint 3 times per day

The NeuroReset Podcast

Play Episode Listen Later Jan 5, 2026 50:33


In this episode of The Neuro Reset Podcast, Dr. Teames interviews Alyson, a teenager who has battled Functional Neurological Disorder (FND) for over three years. Alyson shares her struggles with misdiagnosis, ineffective treatments, and feeling dismissed by doctors. She describes how the Neuro Reset program helped her understand the connection between stress and her symptoms, leading to significant improvements. The episode highlights Allison's resilience, the importance of compassionate, individualized care, and the challenges of reintegrating into daily life after intensive treatment, offering hope and practical advice for others facing similar health journeys.   Request a consult: 480-674-9199 https://desertbrainandspine.com  

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The Concussion Coach
117. Functional Neurological Disorder & Its Similarities to PCS: An Interview with Jason Kreuzman, MOT, OTR/L

The Concussion Coach

Play Episode Listen Later Dec 3, 2025 69:47


Jason Kreuzman is a pediatric occupational therapist based in St. Louis, Missouri, specializing in Functional Neurological Disorder (FND) and chronic pain. He is the Co-Chair of the FND Society Pediatric Committee and the Chair of the Multidisciplinary FND Committee at St. Louis Children's Hospital. As the founder of Rewire OT, Jason is opening a new outpatient clinic and leading the charge to create pediatric OT/PT treatment guidelines for FND. He joins us to demystify this complex condition and share a hopeful, practical path to recovery.Description:What is Functional Neurological Disorder (FND), and how is it similar to concussion recovery? In this fascinating episode, pediatric occupational therapist Jason Kreuzman breaks down FND—a disorder where the brain and body's communication goes awry, causing very real, debilitating symptoms like functional seizures, limb weakness, and tremors.Jason shares his journey into this niche field, the heartbreaking stigma patients face, and the striking similarities between FND and post-concussion syndrome (including the "invisible" nature of symptoms and the "boom-bust" cycle). We dive deep into the role of occupational therapy in FND recovery, focusing on nervous system regulation, sensory integration, and the crucial "twist": focusing on the task, not the symptom.We discuss:A clear definition of FND and how it's diagnosed.The surprising overlap between FND, chronic pain, and concussion.Why a holistic, team-based approach (OT, PT, Psychology) is essential.Practical strategies for nervous system regulation and interoceptive awareness.Crucial advice for parents and caregivers on co-regulation and advocacy.What to do (and what not to do) during a functional seizure.School accommodations.A powerful message of hope: recovery is possible.If you or a loved one is navigating confusing neurological symptoms, this episode offers validation, clarity, and a roadmap to finding the right help.Shownotes & Key Resources Mentioned:Resources from Jason Kreuzman:RewireOT.com: Jason's central hub for FND resources, information, and updates on his outpatient clinic (opening late 2025).FND Society: Jason is the Co-Chair of their Pediatric Committee. The society offers lectures, research, and (with membership) a provider referral list. FNDSociety.orgEssential FND Information Hubs:Neurosymptoms.org: The "gold standard" patient education website, created and maintained by leading FND neurologists and researchers. An indispensable first stop for understanding the diagnosis.Patient-Led Advocacy & Support Groups: Jason highlights the incredible work of groups like FND Hope, FND What Now, and FND Action. These global communities provide connection, support, and resources.Tool for Management:Neuro-Log.com: A symptom management and tracking app created by a person with FND. A fantastic tool for identifying patterns and triggers in daily life.Guest Contact:Follow Jason's work and access resources at RewireOT.com.The Concussion Coach:Download the free guide, "5 Best Ways to Support Your Loved One Dealing with a Concussion," or book a free consultation with Bethany  at theconcussioncoach.com.

Sickboy
Childhood Trauma Caused a 'Software Glitch' in my Brain | Functional Neurological Disorder

Sickboy

Play Episode Listen Later Nov 19, 2025 58:39


Imagine your brain's hardware is perfect, but the software is glitching so badly your body stops working.We sit down with Erum, a biochemist who navigates the world with a rare and often misunderstood condition: Functional Neurological Disorder (FND). We Raw Dog into the fascinating science behind the diagnosis. Basically her brain has a "software glitch" but the hardware is pristine. So how, and why is it causing the left side of her body to physically fail during flare-ups? Erum shares her harrowing and resilient story, from a terrifying ER visit where doctors suspected a brain tumor or MS, to the "magic trick" test that finally led to her FND diagnosis. We discuss the profound connection between her condition and a history of severe childhood trauma, including growing up as a child of deaf adults (CODA) and surviving abuse. Plus, we talk about the healing power of boxing and how FND finally forced her to stop people-pleasing.You can watch this entire episode over on YouTube!Follow Sickboy on Instagram, TikTok and Discord.

Sickboy
Childhood Trauma Caused a 'Software Glitch' in my Brain | Functional Neurological Disorder

Sickboy

Play Episode Listen Later Nov 19, 2025 58:39


Imagine your brain's hardware is perfect, but the software is glitching so badly your body stops working.We sit down with Erum, a biochemist who navigates the world with a rare and often misunderstood condition: Functional Neurological Disorder (FND). We Raw Dog into the fascinating science behind the diagnosis. Basically her brain has a "software glitch" but the hardware is pristine. So how, and why is it causing the left side of her body to physically fail during flare-ups? Erum shares her harrowing and resilient story, from a terrifying ER visit where doctors suspected a brain tumor or MS, to the "magic trick" test that finally led to her FND diagnosis. We discuss the profound connection between her condition and a history of severe childhood trauma, including growing up as a child of deaf adults (CODA) and surviving abuse. Plus, we talk about the healing power of boxing and how FND finally forced her to stop people-pleasing.You can watch this entire episode over on YouTube!Follow Sickboy on Instagram, TikTok and Discord.

Before You Bloom
112 ~ Understanding Functional Neurological Disorder (FND) Through Chris's Journey

Before You Bloom

Play Episode Listen Later Oct 18, 2025 38:54


Welcome back to Before You Bloom. In today's episode, I'm joined by Chris, who lives with Functional Neurological Disorder (FND), a condition that disrupts how the brain sends and receives signals to the body. Often misunderstood and misdiagnosed, FND can impact every part of life, from physical movement to emotional wellbeing, yet it remains one of the least talked-about neurological conditions.Chris bravely shares his story to shed light on what it's really like to live with FND, the challenges, the misconceptions, and the small victories that come with navigating such a complex condition. We talk about the journey to diagnosis, the impact on identity and relationships, and the tools Chris uses to care for both his physical and mental health.This conversation is an eye-opening reminder of the resilience it takes to live with an invisible illness and the importance of compassion, understanding, and advocacy.Chris's honesty and courage will leave you with a deeper awareness of FND and a greater appreciation for the power of sharing our stories!⭐ ⭐ Download My Symptom Tracker and Mental Health Tracker Bundle (SAVE $$$) : HERE or if you would like to download them individually you can access here : Symptom Tracker OR Mental Health Tracker ⭐ ⭐

The Just Checking In Podcast
JCIP #299 - Andrew Hill

The Just Checking In Podcast

Play Episode Listen Later Aug 8, 2025 77:41


In episode 299 of The Just Checking In Podcast we checked in with Andrew Hill. Andy is is the Founder of UTurnBack2Basics. Based in Norfolk, Uturn creates outdoor experiences designed for people to reconnect with the fundamentals of life - self-awareness, survival skills, and personal growth. Their mission is to support individuals from all walks of life, with a strong focus on veterans and vulnerable individuals, helping them build resilience, develop essential skills, and rediscover a sense of purpose through the outdoors. Their workshops cover topics such as shelter building, campfire cooking, water purification, setting up camp, using varying types of equipment, hikes, groups, leadership skills, team building, retreat, and expeditions to build friendships. Andy served in the military and found peace and clarity in nature after leaving. UTB2B was built on the belief that outdoors has the power to heal. Having faced the challenges of adapting to a civilian life, Andy created this initiative to help others who may be struggling, providing a space where his clients can reconnect, rebuild, and move forward with confidence. In this episode, we discuss the genesis of Uturn, why he started it, the service it provides to men and women who access it and the various programmes it offers. We also discuss the trips they have done so far, including to the likes of Norway, Sweden, Normandy in France and upcoming trips to Malaysia and Poland. For Andy's mental health journey we discuss his diagnosis of Functional Neurological Disorder (FND), which developed after he had a serious fall and broke his neck and back. Two weeks after the accident, he began experiencing seizures, at its worst, 16 seizures a day. After doctors initially struggled to diagnose the problem, they concluded that the seizures were caused by suppressed trauma over his life, which caused his brain to shut down. He had to use a wheelchair for 18 months and was told he'd never walk or work again. Thankfully, he defied that prognosis and began to work on his physical and mental recovery. Unfortunately, during this time, he claims he was domestically abused by his partner. Then, in 2020, he was diagnosed for the first time with testicular cancer. He had surgery to remove one testicle and one bout of chemotherapy. Eight months later, he was diagnosed again with testicular cancer as the cancer had not been fully removed the first time. Then in December 2024, the cancer had spread into his lymph nodes and he received targeted chemo to treat them. When he was diagnosed with cancer the second time, he left that abusive relationship, despite knowing he'd be homeless, and still went through the cancer treatment for five months because he said he knew he'd be less vulnerable living on the streets than living in his home with his partner. He became suicidal and made plans to take his own life. He was just about to do it before something stopped him, and from there he began his recovery journey. We discuss all of these experiences, going through the family court system, recovery and how Uturn has been at the heart of that. As always, #itsokaytovent You can find out more about UTurnBack2Basics here: https://www.u-turnback2basics.co.uk/ You can follow them on social media below: Instagram: https://www.instagram.com/uturnback2basics/ Support Us: Patreon: www.patreon.com/venthelpuk PayPal: paypal.me/freddiec1994?country.x=GB&locale.x=en_GB Merchandise: www.redbubble.com/people/VentUK/shop Music: @patawawa - Strange: www.youtube.com/watch?v=d70wfeJSEvk TRIGGER WARNING: this podcast contains a deep discussion about suicide, which some listeners may find distressing or upsetting, so please listen with caution.

The It’s Me It’s Me It’s FND Podcast
Life with FND And Device to help

The It’s Me It’s Me It’s FND Podcast

Play Episode Listen Later Jun 3, 2025 5:05 Transcription Available


In this episode, join the host as they candidly discuss their journey of managing personal life alongside Functional Neurological Disorder (FND). Amidst dealing with seizures and brain fog, the episode sheds light on the struggles and successes encountered with using assistive technology like a wearable device. Discover personal experiences with pacing and managing energy as they navigate the complexities of living with a disability. The episode provides insights into tools that help identify stress points and when to take a break, offering a relatable perspective for anyone facing similar challenges.

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The Show Up Fitness Podcast
Functional Neurological Disorder | How to design a fitness program

The Show Up Fitness Podcast

Play Episode Listen Later Apr 21, 2025 17:16 Transcription Available


Send us a text if you want to be on the Podcast & explain why!Become a QUALIFIED Certified personal trainer with www.showupfitness.comQualifying yourself as a professional personal trainer means going beyond basic certifications when working with clients who have complex conditions like Functional Neurological Disorder (FND). This episode breaks down exactly how to establish yourself as a trusted fitness professional within the medical community while designing effective programs for clients with neurological challenges.When working with clients who have medical conditions, your first move should always be reaching out directly to their healthcare providers. We walk you through exactly how to approach doctors and therapists, what to say, and how to present yourself as a qualified professional who stands apart from the Instagram fitness crowd. This simple step not only improves your programming but positions you for valuable referral relationships.For the long-distance runner with FND who experiences symptoms while descending stairs, we detail a comprehensive programming approach focusing on unilateral strength, frontal plane stability, and neurological control. You'll learn specific exercise selections—from explosive step-downs to airplane poses—that directly address the functional limitations while building overall performance. Most importantly, we explain why consistent progression of these movements creates better results than constantly changing exercises.The difference between average trainers and elite coaches isn't just exercise selection—it's creating comprehensive systems and networks. By learning to work collaboratively with medical professionals and focusing on evidence-based programming rather than entertainment, you'll not only help clients overcome conditions like FND, but you'll establish yourself as an indispensable part of their healthcare team. Ready to elevate your professional status and help clients who truly need your expertise?Want to ask us a question? Email email info@showupfitness.com with the subject line PODCAST QUESTION to get your question answered live on the show! Our Instagram: https://www.instagram.com/showupfitnessinternship/?hl=enTikTok: https://www.tiktok.com/@showupfitnessinternshipWebsite: https://www.showupfitness.com/Become a Personal Trainer Book (Amazon): https://www.amazon.com/How-Become-Personal-Trainer-Successful/dp/B08WS992F8Show Up Fitness Internship & CPT: https://online.showupfitness.com/pages/online-show-up?utm_term=show%20up%20fitnessNASM study guide: ...

The Neurodivergent Woman
Functional Neurological Disorder with Simone Mangelsdorf-Collett

The Neurodivergent Woman

Play Episode Listen Later Apr 13, 2025 84:30


We’re super excited to bring you this week’s episode with Senior Clinical Neuropsychologist, Simone Mangelsdorf-Collett (she/her). We chat with Simone about Functional Neurological Disorder (FND) – or, as Simone puts it “the most common disorder you’ve never heard of”. Simone specialises in FND, neurodegenerative syndromes, and movement disorders, and practices out of Yarra City Psychology in Richmond, Melbourne. She is experienced in both ends of patient care, including assessment and diagnosis and rehabilitation and intervention. If you’ve been wondering about FND, this episode is for you! We cover: What is Functional Neurological Disorder (FND), and how does FND differ from other neurological disorders (like epilepsy, stroke, Parkinson’s etc.) What does the term ‘functional’ mean, in this context? The historical context of FND and how our understanding of this condition has evolved over time. Some of the currently known mechanisms behind FND, including predictive coding theory. Some common vulnerabilities and triggers for FND. The overlap between FND, neurodivergence, and gender. Simone takes us through treatment options for FND and who would be involved in the treatment team. How Simone came to specialise in FND and her work in FND advocacy and education. Things mentioned: FND Australia Support Functional Neurological Disorder in Australia Functional Neurological Disorder Society (FNDS), for professionals. Here are some studies on the link between FND and Autism – Tamilson et al., 2024, Gonzalez-Herrero et al., 2024, Pun et al., 2020, Link between gender and FND – McLoughlin et al., 2023. Got questions for us?? Come along to our LIVE Q&A event! Held online on 27th June (with replay available to all ticket holders). Grab a ticket here and submit your question! Enjoyed the episode and want to support us further? Join our Patreon community! Patreon subscribers receive ad-free episodes, basic episode transcripts from Season 4 onwards, access to a monthly live zoom hang out, 50% off our episode articles, plus bonus monthly content (depending on subscription tier). Check out our Patreon page to support us, as we aim to make quality mental health care information accessible to everyone: www.patreon.com/ndwomanpod. Want polished copies of our episodes in beautiful and readable pdf article format? Grab them here. Contact us at ndwomanpod@gmail.com, or visit our website: www.ndwomanpod.comSee omnystudio.com/listener for privacy information.

The It’s Me It’s Me It’s FND Podcast
Understanding Functional Neurological Disorder (FND)

The It’s Me It’s Me It’s FND Podcast

Play Episode Listen Later Mar 25, 2025 6:45 Transcription Available


Welcome to this episode of It's Me, It's Me, It's F&D. In this special edition, we honor Functional Neurological Disorder Day, celebrated annually on March 25th. The episode provides an insightful overview of FND, a condition where the brain's ability to send and receive signals is disrupted. Unlike common neurological disorders, FND is akin to a software malfunction, impacting individuals in various life-altering ways. Learn about the challenges faced by those living with FND, the complexity of its diagnosis, and the array of symptoms, including fatigue, seizures, and migraines. Despite the daily struggles, there is hope, as discussed through available therapies and support from charitable organizations like FND Action, FND Hope, and the MyFND app. Join us in spreading awareness and understanding of FND, a disorder that demands attention, empathy, and comprehensive care. As we navigate through the intricacies of this condition, remember that every little step towards awareness counts. https://www.nhsinform.scot/illnesses-and-conditions/brain-nerves-and-spinal-cord/functional-neurological-disorder/ for information on fnd and links to charities and help please follow 

disorders fnd functional neurological disorder fnd
The Spoonie Podcast
54. Living Well with Chronic Illness

The Spoonie Podcast

Play Episode Listen Later Mar 21, 2025 61:55


In this episode, I chat with the inspiring Eline Duk, a chronic pain coach and disability advocate who is the founder of The Spoonies Community. After two major accidents, she was diagnosed with Complex Regional Pain Syndrome (CRPS) and Functional Neurological Disorder (FND). We explore how she has learned to live well alongside her chronic health conditions, and the incredible journey of discovering somatic work and holistic healing. Stay connected with Eline here:https://thespooniescommunity.com/https://www.instagram.com/thespooniescommunity/Want to learn how to find freedom from chronic pain and fatigue? Register for my free training: https://www.thespooniementor.com/free/ Instagram: https://instagram.com/thespooniementorWebsite: https://www.thespooniementor.com/

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Diverse Thinking Different Learning
Ep. 228: Understanding Functional Neurological Disorder (FND) with Dr. Samantha Levy

Diverse Thinking Different Learning

Play Episode Listen Later Mar 11, 2025 44:42


We are excited to have Samantha Levy, PhD join the show again this week to discuss Functional Neurological Disorder (FND). Dr. Samantha Levy is a clinical psychologist specializing in youth with chronic pain disorders. She uses a biopsychosocial approach to address both physical and emotional struggles, working with children, families, and parents to help them align the mind and body for improved functioning. Dr. Levy also runs parent groups, writes a parenting blog for Creative Healing for Youth in Pain, and works as a psychologist for Whole Child LA. Functional neurological disorder (FND) is a condition in which often debilitating neurological symptoms appear without a clear medical cause, and this episode helps make some sense of FND, from the ways it manifests (paralysis, seizures, sensory disruptions) to the underlying emotional and psychological factors that ultimately shape it. We explore why FND tends to surface in individuals with a history of anxiety, depression, trauma, and/or other medical conditions and how social media and peers, particularly during the COVID-19 pandemic, have played a role in its seeming to be more common. In this episode, you will gain insight into how staying calm, validating emotions, and avoiding reinforcement of symptoms can help support recovery. Dr. Levy helps us understand that treatment for FND is not a one-size-fits-all approach. We discuss the importance of a multidisciplinary approach instead, including individual therapy to address emotional triggers, physical therapy to rebuild control over the body, and family therapy to create a stable support system. We also stress how schools and healthcare providers play a key role in recovery, and we explore strategies to ensure that the right team is in place. This episode of the podcast ultimately offers a message of hope – that FND can feel overwhelming, but with the right interventions, many children see significant improvement, and the experience can even lead to personal growth for the entire family!   Show Notes: [2:46] - Dr. Levy explains how FND causes real neurological symptoms without medical explanation and has historically been misdiagnosed. [4:49] - FND can involve paralysis, sensory loss, and/or seizures, resulting from the brain misinterpreting signals. [7:14] - FND often affects individuals with anxiety and can spread via social influence. [10:13] - Dr. Levy discusses how pandemic-related stress and social media exposure contributed to FND symptoms. [12:22] - Dr. Levy argues that identifying emotional, physical, and environmental triggers for FND episodes helps prevent and reduce symptoms. [15:14] - To avoid reinforcing FND symptoms, parents should minimize attention during non-epileptic episodes. [18:45] - Professional guidance is very important for parents who have children with FND. [19:19] - Encouraging open emotional expression helps children with FND take on triggers. [22:43] - Therapy for teens with FND tends to address anxiety, trauma, and coping strategies. [25:22] - Dr. Levy discusses how physical therapy, guided imagery, and emotional validation help teens with FND regain body confidence. [28:38] - Dr. Levy reflects on how a child's FND episodes decreased significantly after shifting family dynamics. [30:32] - Overprotectiveness can actually worsen FND symptoms, so teens should maintain safe, independent activities. [33:39] - Parents should seek support themselves because their stress can worsen their child's FND symptoms. [35:45] - Dr. Levy points out that FND can be a wake-up call, prompting families to develop healthier ways to handle emotions. [38:00] - Dr. Levy reflects on how a girl's involuntary kicking symbolized suppressed anger, stressing a need for emotional expression. [41:27] - Various resources such as reactive programs and CHIP webinars help provide support for FND treatment. Links and Related Resources: CHYP's Website Dr. Samantha Levy, PhD - “Navigating a Functional Neurological Disorder (FND) Diagnosis in Children: Understanding, Coping, and Finding Support” Episode 220: How to Support Children and Teens with Chronic Pain with Dr. Samantha Levy   Connect with Us: Get on our Email List Book a Consultation Get Support and Connect with a ChildNEXUS Provider Register for Our Self-Paced Mini Courses: Support for Parents Who Have Children with ADHD, Anxiety, or Dyslexia    Connect with Dr. Samantha Levy: CHYP's Website CHYP - Our Team  

The Pain Podcast
Functional Neurological Disorder: Clinical Insights & Treatment

The Pain Podcast

Play Episode Listen Later Feb 12, 2025 40:42


The It’s Me It’s Me It’s FND Podcast
Navigating the Storm: Life with Functional Neurological Disorder

The It’s Me It’s Me It’s FND Podcast

Play Episode Listen Later Feb 11, 2025 6:47 Transcription Available


Welcome to "It's Me, It's Me, It's F&D," a podcast dedicated to navigating the complexities of living with Functional Neurological Disorder (FND). Host shares personal experiences and insights, reflecting on a four-year journey of self-discovery and resilience. As he grapples with the challenges of maintaining control amidst the unpredictable nature of FND, he offers support and understanding to those on a similar path. This episode delves into the struggle of adapting to a new normal while empowering listeners to find strength and community in shared experiences. Tune in for genuine reflections on the impact of FND, the importance of self-care, and the power of kindness in our daily lives.

The Dr. Alex Show
Unlocking the Mystery of Functional Neurological Disorder

The Dr. Alex Show

Play Episode Listen Later Feb 3, 2025 40:49


In this episode of The Dr. Alex Show, Dr. Alex Nelson returns to shed light on Functional Neurological Disorder (FND), a condition at the crossroads of neurology and psychology. Drawing from his recent presentations and hands-on experience, Dr. Alex explores the predisposing factors, triggering events, and common misconceptions surrounding FND — especially in the wake of COVID-19. He emphasizes the importance of a multidisciplinary approach, involving neurologists, psychologists, and physical therapists, to provide effective care. Join us as we dive into this often-misunderstood disorder and the hope for better recognition and treatment. Additional resources and links from Dr. Alex: https://www.fndsociety.org/ https://neurosymptoms.org/en/ https://fndhope.org/ https://fndaction.org.uk https://www.ninds.nih.gov/health-information/disorders/functional-neurologic-disorder https://www.nhsinform.scot/illnesses-and-conditions/brain-nerves-and-spinal-cord/functional-neurological-disorder/ - Scotland https://rarediseases.org/rare-diseases/fnd/

RCP Medicine Podcast
Episode 78: Stroke and neurology

RCP Medicine Podcast

Play Episode Listen Later Dec 20, 2024 31:36


In this episode of RCP medicine podcast, Dr Zeina Al-Matlik is joined by Dr John Williamson, a consultant Neurologist and Stroke Physician working in Liverpool,  to discuss one of the leading causes worldwide for disability - Strokes. Whether you are a healthcare provider, caregiver, or a stroke survivor, this podcast covers everything you need to know about the vital ins and outs of stroke. This episode unpacks essential topics such as recognizing the warning signs of strokes and acting FAST, ( Face, Arm, Slurred speech, Time - acronym used for identification of potential stroke), understanding the difference between TIAs ( Transient Ischemic Attacks) and Ischemic and haemorrhagic strokes and their managements, prevention of strokes including lifestyle and medical modifications of risk factors, and finally discussing common Stroke mimics and how to recognize them. Listeners will also get a chance to explore the latest breakthrough advancements and guidelines in stroke research and treatments such as life saving thrombolysis - also known as clot busting medication and thrombectomies - whereby a catheter is inserted into blood vessel to help retrieve and remove clots.This episode is designed to educate, empower, and provide practical tips for both healthcare providers and patients to spread awareness, understand strokes and take prompt action to improve outcomes as Time is brain.

The It’s Me It’s Me It’s FND Podcast
Navigating Life's Challenges: Coping with FND and Migraines

The It’s Me It’s Me It’s FND Podcast

Play Episode Listen Later Dec 3, 2024 8:16 Transcription Available


In this heartfelt episode, the host opens up about the challenges of managing Functional Neurological Disorder (FND) and migraines amidst life's demands. With candid reflections on family life and personal health struggles, the episode provides an intimate glimpse into the ongoing battle of balancing responsibilities and self-care. As the holiday season approaches, the host shares the emotional complexities of maintaining a positive environment for the family, despite personal difficulties. The episode delves into the mental health impact of chronic conditions and the importance of community support. Listeners are invited to share their experiences and coping strategies, fostering a sense of solidarity and understanding within the community. Join in for an honest discussion on the realities of living with FND and the quest for finding moments of peace in a hectic world.

challenges coping navigating life migraines fnd functional neurological disorder fnd
I Love Neuro
234: Advancing the Understanding and Treatment of Functional Neurological Disorders With Heather Salon, PT, DPT, NCS and Julie Maggio, PT, DPT, NCS

I Love Neuro

Play Episode Listen Later Oct 7, 2024 54:27


Feel confused about how to assess and treat someone with Functional Neurological Disorder (FND)? We got your back! In this episode host Erin Gallardo interviews FND experts Heather Salon, PT, DPT, NCS and Julie Maggio, PT, DPT, NCS on this range of neurological symptoms that includes functional movement disorders, seizures, and speech/communication issues. FND is characterized by abnormal brain connectivity and network dysfunction, often presenting with mixed symptoms. A key shift in recent years has been the recognition of FND as a "rule-in" diagnosis, rather than a diagnosis of exclusion. Learn what to expect during the subjective evaluation and how to approach it with best practice. Heather and Julie highlight the importance of identifying specific "rule-in" signs, such as Hoover sign, give-way weakness, and symptom variability, to confidently diagnose FND. They also emphasize the need for a comprehensive assessment, including evaluations of the motor, sensory, and autonomic systems. Also discussed are differential diagnoses like dystonia.   The conversation underscored the multidisciplinary nature of FND care, with physical therapists, occupational therapists, psychologists, and neurologists working collaboratively to provide optimal treatment. Sensory-based interventions, such as the use of Kinesio tape, abdominal binders, and visual feedback, were discussed as valuable tools in the PT's toolbox. Importantly, Heather and Julie stress the need to manage patient expectations and set realistic goals, focusing on improving function and reducing symptoms rather than aiming for complete symptom resolution. They also highlighted the importance of ongoing education and resources for clinicians interested in advancing their knowledge and skills in the FND field. Check out these resources mentioned in the episode: https://www.fndsociety.org/fnd-education FND society education resources 26.08.2023-Information-guideance-sheet-for-medical-professionals.pdf (fndaction.org.uk) Inform the doctor fact sheet Diagnosis and Management of FND A framework for understanding the pathophysiology of functional neurological disorders A practical review of FN for the general physician 

The MedSLP Collective Podcast
WEBINAR: Assessing and Treating Communication Impairments in Functional Neurological Disorder (FND) – Recording

The MedSLP Collective Podcast

Play Episode Listen Later May 14, 2024 120:15


Jennifer Freeburn, M.S., CCC-SLP discusses diagnostic principles, clinical presentations, and treatment considerations of functional speech disorders (and SO much more)! Members link to the podcast quiz: https://medslpcollective.com/courses/assessing-and-treating-communication-impairments-in-functional-neurological-disorder-fnd-rec/  0.2 ASHA CEUs / 2 PDHs Available.  To get ASHA CEUS/ PDHs for this course, you can join the MedSLP Collective Membership here: https://medslpcollective.com/invite After this course, you […] The post WEBINAR: Assessing and Treating Communication Impairments in Functional Neurological Disorder (FND) – Recording appeared first on The MedSLP Collective Podcast.

The It’s Me It’s Me It’s FND Podcast
Juggling Parenthood, FND, and Mental Health

The It’s Me It’s Me It’s FND Podcast

Play Episode Listen Later Apr 23, 2024 8:20 Transcription Available


In this episode of the podcast, the host openly discusses the struggles of adjusting to the new normal - balancing parenthood of a newborn, dealing with Functional Neurological Disorder (FND), as well as grappling with depression. It provides a raw and relatable account of the host's journey navigating these challenges. Conversation takes a deep dive into FND, including awareness events such as FND Awareness Month and Day. The host shares his personal experiences with F&D, including how it unexpectedly amplifies his other health conditions or triggers other mental health issues. He also details his recent battle with depression and the ways it has negatively impacted his mood and seizure control. Throughout the episode, the struggles of living with FND are highlighted, particularly the feeling of losing control and the constant battle with oneself. The host candidly shares the emotional toll it takes, especially when it comes to perceived ability to provide for his family or set a good example for his children. Despite these challenges, the host plans to continue to use the podcast as a platform to raise awareness and provide insight into FND. The episode ends on a hopeful note, with the host expressing his intention of finding a new normal and getting back into a regular podcasting schedule.

conversations mental health parenthood juggling fnd functional neurological disorder fnd
The NeuroReset Podcast
Episode 18 - Testimony of a Functional Neurological Disorder FND - Meet Nikki

The NeuroReset Podcast

Play Episode Listen Later Apr 22, 2024 55:42


testimony disorders functional neurological disorder fnd
The Just Checking In Podcast
JCIP #220 - Claudia Van-Nimwegen - Part 4

The Just Checking In Podcast

Play Episode Listen Later Jan 5, 2024 60:07


In episode 220 of The Just Checking In Podcast we checked back in for the fourth time with Claudia Van-Nimwegen. Claudia is a teacher, photographer and creative. In Parts 1, 2 and 3 we discussed her various struggles with self-harm, gender identity, Autism, an undiagnosed Eating Disorder and a stroke which happened to her in December 2022. Since then she has been diagnosed with Fibromyalgia, Functional Neurological Disorder (FND) and has taken positive steps on her recovery journey. In Part 4 we discuss the work she's done to improve her physical and mental health, her relationship with food and exercise, being baptised, getting back into photography and taking pictures for the first JCIP live show. We also discuss the importance of putting in healthy boundaries, being an advocate for herself, a job promotion which has reduced her financial anxiety and self-development. As always, #itsokaytovent You can listen to Part 1 of Claudia's journey here: https://soundcloud.com/venthelpuk/jcip-47-claudia-van-nimwegen You can listen to Part 2 of Claudia's journey here: https://soundcloud.com/venthelpuk/jcip-146-claudia-van-nimwegen-part-2 You can listen to Part 3 of Claudia's journey here: https://soundcloud.com/venthelpuk/jcip-181-claudia-van-nimwegen-part-3 Support Us: Patreon: www.patreon.com/venthelpuk GoFundMe: www.gofundme.com/f/help-vent-supp…ir-mental-health Merchandise: www.redbubble.com/people/VentUK/shop Music: @patawawa - Strange: www.youtube.com/watch?v=d70wfeJSEvk

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TLC Sessions - Living with Long Covid
Episode 68: Dr Steven Allder - Re:Cognition Health

TLC Sessions - Living with Long Covid

Play Episode Listen Later Dec 23, 2023 53:57


Consultant Neurologist Steven Allder of Re:Cognition Health has applied his wealth of experience investigating Traumatic Brain Injury (TBI) and Functional Neurological Disorder (FND) to understanding the impact of Long Covid on the brain. In this week's conversation we discuss inflammation of the brain of Long Covid patients which is visible using PET imaging;  Allder believes this inflammation could be driving the neurological symptoms, and beyond, in a similar way to the impact of a blow to the head observing numerous similarities to TBI; we discuss polyvagal nerve theory; and Allder explains the way in which it takes more than just cold, hard evidence to persuade the scientific community.And following up on our previous episode, Dr Allder is working with Prof. Andrew Shaw at Attomarker, believing that Long Covid may be driven by viral persistence and that establishing a patient's antibody gap, using the Attomarker testing, could enable us to remove viral residue with tailored antibody treatment.Living with Long Covid? How was your week?Website - https://www.tlcsessions.net/Twitter - @SessionsTlc https://twitter.com/sessionstlcInsta - @tlcsessions https://www.instagram.com/tlcsessions

Focus on WHY
375 Personal Connections with Steve Webster

Focus on WHY

Play Episode Listen Later Dec 6, 2023 38:05


Uniting for change, making a difference and building a support network for FND patients, Founder and CEO of FND Dimensions, Steve Webster, knows that strength is found within a peer-led community. Having worked in the charity sector all his life, his focus had been on community and youth development. However after a long period of ill health between 2006 and 2012, Steve's career in the environmental sector came to an end. Steve's purpose is now to focus on providing people with FND with personal connections.    KEY TAKEAWAY “If people feel like they've got ownership over something and they have a say in the way it's run, then their commitment to it is stronger as well.”   ABOUT STEVE Steve is the Founder and CEO of FND Dimensions, a registered charity that supports people diagnosed with Functional Neurological Disorder (FND). Working almost purely as a volunteer for over 10 years, Steve and his colleagues, offer peer support and a range of projects and activities to support the FND community which has built up to over 60 groups across the UK and continues to grow.    CONNECT WITH STEVE https://twitter.com/ConnectFnd steve@fnddimensions.org https://fnddimensions.org www.linkedin.com/in/steven-webster-14a793178 https://www.facebook.com/fnddimensions ABOUT THE HOST - AMY ROWLINSON Amy is a Life Purpose Coach, Podcast Strategist, Top 1% Global Podcaster, Speaker and Mastermind Host. Amy works with individuals to improve productivity, engagement and fulfilment, to banish overwhelm, underwhelm and frustration and to welcome clarity, achievement and purpose.   WORK WITH AMY Amy inspires and empowers entrepreneurial clients to discover the life they dream of by assisting them to focus on their WHY with clarity uniting their passion and purpose with a plan to create the life they truly desire. If you would to focus on your WHY or launch a purposeful podcast, then please book a free 20 min call via www.calendly.com/amyrowlinson/enquirycall   KEEP IN TOUCH WITH AMY Sign up for the weekly Friday Focus - https://www.amyrowlinson.com/subscribe-to-weekly-newsletter   CONNECT WITH AMY https://linktr.ee/AmyRowlinson   HOSTED BY: Amy Rowlinson   DISCLAIMER The views, thoughts and opinions expressed in this podcast belong solely to the host and guest speakers. Please conduct your own due diligence. 

Psychiatry Explored
Functional Neurological Disorder (FND) with Dr. Jordan Anderson & Dr. Joel Mack

Psychiatry Explored

Play Episode Listen Later Oct 5, 2023 72:20


Join Neuropsychiatrist Dr. Jordan Anderson and Psychiatrist Dr. Joel Mack in an expansive discussion on the fascinating world of Functional Neurological Disorders. Questions? psychiatryexplored@gmail.com References: ⁠https://neurosymptoms.org⁠ (Signs and symptoms of FND's including functional tremor & examples of entrainment) Baslet, G., Seshadri, A., Bermeo-Ovalle, A., Willment, K., & Myers, L. (2016). Psychogenic non-epileptic seizures: an updated primer.⁠ _Psychosomatics_, _57_(1), 1-17 LaFrance WC Jr, Miller IW, Ryan CE, Blum AS, Solomon DA, Kelley JE, Keitner GI. Cognitive behavioral therapy for psychogenic nonepileptic seizures.⁠ Epilepsy Behav. 2009 Apr;14(4):591-6. doi: 10.1016/j.yebeh.2009.02.016. Epub 2009 Feb 20. PMID: 19233313. Perez DL, Edwards MJ, Nielsen G, Kozlowska K, Hallett M, LaFrance WC Jr. Decade of progress in motor functional neurological disorder: continuing the momentum. J Neurol Neurosurg Psychiatry. 2021 Mar 15:jnnp-2020-323953. doi: 10.1136/jnnp-2020-323953 The Dancing Plague of 1518⁠

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Isnt It Queer
2023-09-20 Neurological Consequence

Isnt It Queer

Play Episode Listen Later Sep 20, 2023 59:06


Jonny talks with Craig Gingrich-Philbrook about his experiences with Functional Neurological Disorder (FND) and its likely connection to childhood homophobic trauma. Connecting to a study out of Melbourne, they discuss how bullying, disconfirmation, and anti-LGBTQIA+ legislation is potentially giving queer and trans youth develpmental neurological disorders they will have to deal with the rest of their lives. In the back portion of the show, Jonny also reviews how the Christian Right is getting states and municipalities to abandon bans on conversion therapy, despite ample evidence that such therapies do not work and cause considerable harm.

That's So Chronic
Nick Allen & Functional Neurological Disorder (FND) and Fibromyalgia

That's So Chronic

Play Episode Listen Later Aug 21, 2023 42:18


Today I am chatting to Nick Allen who is living with a diagnosis of functional neurological disorder (FND) and fibromyalgia. However, this was not always the case… In this episode Nick talks us through the long process of initially being diagnosed with primary progressive multiple sclerosis, and the lifestyle changes that he implemented to manage his condition (one of these being the overcoming MS lifestyle). Nick then explains the adventure he eventually embarks on in the Himalayas, which inspires the creation of Mastering Mountains - a charitable trust helping others achieve their adventure dreams and connect with community. But, of course, as you have probably realised, his story doesn't end there. Several years later Nick realises he has been misdiagnosed, and suddenly finds himself navigating the world of living with FND… Follow Nick on Instagram: @nick_allen And check out Mastering Mountains: masteringmountains.org.nz Find That's So Chronic on IG and Tiktok: @thatssochronic @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

The Just Checking In Podcast
JCIP #181 - Claudia Van-Nimwegen - Part 3

The Just Checking In Podcast

Play Episode Listen Later May 23, 2023 68:55


In episode 181 of The Just Checking In Podcast we checked back in with Claudia Van-Nimwegen. Claudia is a mental health advocate, teacher and theatre artist. In Part 3 of her mental health journey we discuss an Eating Disorder (ED) which Claudia had previously been bottling up and suppressing for a long period of her life. In December 2022, the ED, the fibromyalgia (which Claudia had been diagnosed with and discussed in Part 2) and general stress combined into a dangerous cocktail and exploded, causing her to collapse at work. The left side of her body became immobile and she was admitted to hospital where she stayed for three weeks. During that time, she had to learn to deal with her ED, change her eating habits and tackle the voices in her head that were telling her to take her own life. These voices came in the form of an imaginary friend which Claudia said has been with her since childhood. Eventually, after lots of checks, delays and frustration, Claudia got some clarity on why she collapsed and was diagnosed with Functional Neurological Disorder (FND). She says this has explained so many things in her life and plays a part in every other diagnosis she has had. Despite that traumatic moment and all of these diagnoses, she has never let this define her. She was discharged after a month in hospital, is in recovery and back at work doing what she loves in teaching and drama. We finish by discussing how her faith got her through this traumatic event, how her church community supported her financially whilst she was off work and finding her voice. As always, #itsokaytovent You can follow Claudia on social media below: Instagram: https://www.instagram.com/claudi.van/ You can listen to Part 1 of Claudia's journey here: https://soundcloud.com/venthelpuk/jcip-47-claudia-van-nimwegen You can listen to Part 2 of Claudia's journey here: https://soundcloud.com/venthelpuk/jcip-146-claudia-van-nimwegen-part-2 Support Us: Patreon: www.patreon.com/venthelpuk GoFundMe: www.gofundme.com/f/help-vent-supp…ir-mental-health Merchandise: www.redbubble.com/people/VentUK/shop Music: @patawawa - Strange: www.youtube.com/watch?v=d70wfeJSEvk TRIGGER WARNING: this podcast contains a deep discussion about suicide, which some listeners may find distressing or upsetting, so please listen with caution.

strange nimwegen functional neurological disorder fnd eating disorder ed
The FND Podcast
The FNDPodcast | Calling all parents and caregivers with kids with FND

The FND Podcast

Play Episode Listen Later Mar 25, 2023 2:59


An announcement for FND awareness day , especially for caregivers and Parents who are looking after child/children with FND there is an amazing even happening today. To check it out please look at the FND ACTION UK website. https://www.fndaction.org.uk/fnd-awareness-day-uk/The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/ 

The FND Podcast
The FND Podcast | Hello Mr. Tom Plender

The FND Podcast

Play Episode Listen Later Mar 25, 2023 40:47


On this episode of the FND Podcast we are talking to Mr. Tom Plender who is a massive Campaigner for FND. We talk to him about FND and he brings up what we need to do to help FND Awareness and talk about FND. Thankyou so much for your time and for talking to us Tom it's been an amazing conversation with you, food for thought, inspiration and just so valuable. To follow Tom on instagram : @tplender. He has a website: www.tomplender.com and also FND ACTION: www.fndaction.org.uk FND ACTION UK : FND AWARENESS DAYhttps://www.fndaction.org.uk/fnd-awareness-day-uk/Click on the link to participateIncluding two paediatric consultants in FND:  if you are a parent and would like to participate especially you're more than welcome to join and ask questions. Inform the doctor:https://www.fndaction.org.uk/fnd-action-campaign-informthedoctor-functional-neurological-disorder/INTERVIEWS AND ARTICLES:Sky News interviews Tom Plender: https://youtu.be/65ZR3E4dqkoGB News https://youtu.be/8EMspXvKWd8I Newspaper article: https://inews.co.uk/inews-lifestyle/brain-disorder-stopped-walking-medics-often-miss-2200655FND : Tiktokhttps://www.tiktok.com/tag/fnd?lang=enFNDPORTAL: follow him on twitterhttps://twitter.com/FndPortal?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5EauthorMusic: Sam Barsh Yellow LetterSam Bars Hope Springs InternalThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/ 

The FND Podcast
The FND Podcast| Inform the Doctors Campaign

The FND Podcast

Play Episode Listen Later Mar 25, 2023 6:02


Following on the episode "Hello Mr. Tom Plender" we talked about the Inform the Doctor campaign that FND ACTION has. With Toms permission we were able to record his explanation he had on this campaign and encourage you wherever you are in the world to utilise this campaign/information. It is a worldwide campaign and it's to help spread the awareness of the advancements of FND. To find out more head to FND ACTION website: www.fndaction.org.uk , follow Tom on his instagram : @tplender and have a look at his website at www.tomplender.com FND ACTION UK : FND AWARENESS DAYhttps://www.fndaction.org.uk/fnd-awareness-day-uk/Click on the link to participateIncluding two paediatric consultants in FND:  if you are a parent and would like to participate especially you're more than welcome to join and ask questions. Inform the doctor:https://www.fndaction.org.uk/fnd-action-campaign-informthedoctor-functional-neurological-disorder/INTERVIEWS AND ARTICLES:Sky News interviews Tom Plender: https://youtu.be/65ZR3E4dqkoGB News https://youtu.be/8EMspXvKWd8I Newspaper article: https://inews.co.uk/inews-lifestyle/brain-disorder-stopped-walking-medics-often-miss-2200655FND : Tiktokhttps://www.tiktok.com/tag/fnd?lang=enFNDPORTAL: follow him on twitterhttps://twitter.com/FndPortal?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5EauthorMusic: Winter at east darby by TAYMEEuropian Sunrise by Anthony CatacoliThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/ 

The FND Podcast
The JJsegment| catch up with Jess

The FND Podcast

Play Episode Listen Later Mar 25, 2023 62:15


Warning: this episode contains sensitive topics which can be triggering to some listeners. Please be advised.On this episode of the JJsegment Jess talks about how life has been this past year and about Mental Health. We are grateful that she has shared how she has been. Thankyou Jess for sharing. In the meantime she is an incredible author and you can support Jess also by reading her wonderful book!  Follow Jess on Instagram @functionallyjessWIDOWS FLAME: Jess is an author and she has received glowing reviews on her book. She is an amazing writer and you can purchase and read her book at most book stores.https://www.shawlinepublishing.com.au/our-titles/display/252-widowand%2339%3Bs-flameGoodreads:https://www.goodreads.com/en/book/show/63062237Booktopia:https://www.booktopia.com.au/widow-s-flame-jess-mcfarlane/ebook/9781922850126.htmlForeign Accent syndromehttps://pubmed.ncbi.nlm.nih.gov/27234850/#:~:text=Foreign%20accent%20syndrome%20(FAS)%20is,a%20video%20of%20her%20speech.https://youtu.be/x18AQT6yKGgNDIS:(available in Australia) https://www.ndis.gov.au/understanding/what-ndisThe NDIS Provides funding to eligible people with disability to gain more time with family and friends, greater independence, access to new skills, jobs , or volunteering in their community and an improved quality of life. The NDIS connects anyone with disability to services in their community. Is it still relevant the BMI index: it's questionablehttps://www.medicalnewstoday.com/articles/265215#Waist-to-height-ratio-better-than-BMIFood pyramid relevant still?https://www.houstonmethodist.org/blog/articles/2019/dec/is-the-food-pyramid-still-relevant/Introducing the myplate:https://www.uabmedicine.org/news/myplate-healthy-eating-chart-replaced-the-food-pyramid/#:~:text=In%202011%2C%20the%20U.S.%20Department,start%2C%20MyPlate%20is%20for%20you.A previous episode of medical cannibis:https://thefndpodcast.simplecast.com/episodes/conversations-with-chrissie-lets-talk-medical-cannibisThe game:Marrying Mr Darcyhttps://boardgamegeek.com/boardgame/145308/marrying-mr-darcyThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/

SSP Podcast- A Polyvagal Theory Informed Therapy
Episode 24 Stress model and Functional Neurological Disorder (FND) with Clinical Psychologist, Michael Romeo

SSP Podcast- A Polyvagal Theory Informed Therapy

Play Episode Listen Later Dec 15, 2022 62:35


Welcome to Episode 24. I have the pleasure of speaking with Michael Romeo, Clinical Psychologist, about Functional Neurological Disorder (FND).Michael has been practicing as a Clinical Psychologist for over 20 years. He began his career as an Adolescent Psychologist. He worked in Bali treating ex-patriates experiencing PTSD following the Bali Bombing in 2002. He has worked as an educator and supervisor for most of his career. Michael lectured at Macquarie University for over ten years and was the International Student Counsellor at The University of Newcastle Counselling Service. Most of his career has focused on treating suicidal behaviours and complex trauma with EMDR, Schema Therapy, DBT and other strengths-based approaches. He currently works in private practice, where his primary clinical interest is treating Functional Neurological Disorders.This is such a rich discussion as not only is Michael an expert on FND but has lived experience. Listen in for a wealth of information pertinent to both the practitioner and the individual who may be experiencing unexplainable neurological symptoms.Some of the key points covered include:What is FND?Disconnection between the brain's hardware and the brain's softwareNeurological symptoms- brain stress responseWhy getting an accurate diagnosis is so importantThe diagnosis acceptance processImportance of engaging with therapy to reduce negative neuroplasticityNeed for a team approach for FND- OT, PT, Yoga, Psychology, .......Energy Systems Hypothesis for Functional SeizuresStress Model and FNDChildren and Adolescents and FNDMichael's personal journey with FNDVirtual Reality for FNDFND ResourcesManaging the boom and bust of FNDRole of distraction in recoveryDispelling negative expectations and recoverySSP for FND- Michael's experience with the SSP- improved mood, energy, less brain fog, and a sense of calm.Resources we spoke about include:https://www.neurosymptoms.org/en/https://fndhope.org/https://fndaus.org.au/SSP and FND Paper in Harvard Review of Psychiatry tells the story of MT, a 10-year-old girl with Functional Neurological Disorder (FND) (Rajabalee, et al. 2022). Neuromodulation Using Computer-Altered Music to Treat a Ten-Year-Old Child Unresponsive to Standard Interventions for Functional Neurological Disorder

Lynckup
Ep 204 Sydney Anne AKA the.annegirl

Lynckup

Play Episode Listen Later Sep 16, 2022 60:04


On this episode we had the pleasure of talking to Sydney Anne AKA the.annegirl on Instagram about her disability Functional Neurological Disorder/FND. We talked about online trolls, life before and after her disability, how her faith has kept her going and much more. https://www.instagram.com/the.annegirl/?igshid=YmMyMTA2M2Y%3D      

functional neurological disorder fnd
Tales to Inspire
Sandie Roberts: Learning to shine amidst adversity

Tales to Inspire

Play Episode Listen Later Apr 21, 2022 47:48


“Disabilities bring colour to humanity”   Sandie Roberts had a childhood that focussed on her passions of dancing and gymnastics, however it was a difficult childhood, having been bullied at school and when she was 15 years old she fell down the stairs and her life changed forever.   As she got older she started struggling with her mental and physical health and was was diagnosed with Functional Neurological Disorder (FND). Even though Sandie had 3 children, the birth of the children was complicated and eventually she was told that she wouldn't be able to walk and is now a full time wheelchair user.   Sandie eventually started an instagram account sharing her reality and now inspires others all around the world with chronic disorders.   A story to truly give a new outlook on how we view disabilities.   Resources:         Support:    

learning shine adversity roberts disabilities functional neurological disorder fnd
Chirocast
Episode 447: Ever hear about a mass sociogenic illness?

Chirocast

Play Episode Listen Later Mar 8, 2022 15:47


Mass sociogenic illness? Never heard of it until I read an article in the Atlantic Magazine last week (see below for link). It relates the concept of a functional Tourette's Syndrome-like issue that occurs when young people watch YouTube or TikTok videos of people with Tourette's and, in a way, begin to imitate them. The relevance: they define a Functional Neurological Disorder (FND) differently than Brain-based chiropractors do...but we work on these 'disconnected kids' by reconnecting them to their brains and nerve systems! https://www.theatlantic.com/ideas/archive/2022/02/social-media-illness-teen-girls/622916/

Major Pain
Living with Functional Neurological Disorder (FND)

Major Pain

Play Episode Listen Later Sep 29, 2021 65:49


Nolan had been living with unexplained exhaustion for years before their health flare-up kicked into high gear. Suddenly they were experiencing seizures, weakness, gait issues and vocal/motor ticks. When seeking answers from doctors they were often brushed off, having the reality of their symptoms denied when answers were not immediately […]

disorders functional neurological functional neurological disorder fnd