Podcasts about blood diseases

Laura DeKraker Lang-Ree, Gen X, is a cancer mom and advocate for parents of children with cancer. She empowers families going through medical trauma with tools and tactics to help them navigate their new everyday normal. Her book, Thru the Fire, Empowering Parents of Kids with Cancer takes us through her journey once the pediatrician said her 3-year-old daughter Cecilia's lethargy and black circles under her eyes were childhood leukemia. She entered the panickedexistence of childhood cancer. Ceal had an 85 percent chance of surviving – that is, IF she made it through 2½ years of grueling treatment. Meaning Ceal had a 15 percent chance of dying. What You'll Learn in This Episode: Emotions experienced during crisis“Positude” Advocacy InsightsHealth care beliefsResilienceAsking for helpGratitudeBoundary SettingQuotable Moments: “Cancer is not an in and out kind of experience. It hangs around a long time, like years.” “I think advocacy is one of the most underrated things in the whole health care system that we can imagine.” “Health care professionals want us to advocate because it helps them help us.” “Advocacy is key to the care of our child and ourselves.” *You just need to understand she's never going to do math or science.” “There has to be another way!”“An important piece of advocacy is to level the playing field with knowledge.” “Health care professionals need us and want us to be a part of the medical team.” “Surrending and accepting is not giving up, it's actually giving you power.” “Have you considered she's the hope?” Three Episode Takeaways: 1.    Cancer is an all-hands on deck kind of journey. Laura has included chapters in her book specific to parents, friends, family (grandparents), and caregivers. 2.    “Positude” is Cecilia's word that can help allof us. It means to have a positive attitude when we're facing things head-on like she did. It is up to us to change our narrative so we can manage and have agency because we've advocated for ourselves. Things go a lot more smoothly.3.   Giving our kids the tools to advocate for themselves can help everyone manage and create a calmer atmosphere. The aim of Laura's book is to give you the tools to ask thequestions so you can then make choices.  More About Laura:Laura is an editor and consultant with Stanford Children'sHospital and a writer, educator, and editor for parent publications at the Make-A-Wish Foundation, Jacob's Heart Family Cancer Center, and Bass Center for ChildhoodCancer and Blood Diseases. She works with the Make-A-Wish Foundation as the voice for their national training program. She was recently featured on Transformation Radio's Champion Your Life podcast as well as AYA Unfiltered as a resilience and positivity expert guest.As Director of Performing Arts at The Harker School, aprivate, independent K-12 institution in San Jose, California, she leads a department of 15 faculty, nurturing 950 students' artistic passions and professional ambitions. Laura lives in Northern California smack in the middle of thetowering Redwoods, the sandy beaches of Santa Cruz, and the innovation of Silicon Valley. Her three daughters live nearby and they continue their family commitment to thrive through everything that life brings our way. How to reach Laura: langreel@gmail.comFB: https://www.facebook.com/thruthefirethebook  How to reach Yo Canny:  Our website:www.girltaketheleadpod.com You can send a messageor voicemail there. We'd love to hear from you! email:yo@yocanny.com FB group: Girl, Take the Leadhttps://www.facebook.com/groups/272025931481748/?ref=share IG: yocanny  YouTube LinkedIn:https://www.linkedin.com/in/yocanny/

What does the future of disease research look like? How can artificial intelligence help researchers make new discoveries faster? How can medical professionals synthesize the vast amounts of patient data to offer the best, most personalized care possibleThese are some of the questions we explore with Dr. Julie Panepinto, who leads the National Institutes of Health's Division of Blood Diseases and ResourcesIn this episode, we dive deep in to the Science part of STEM to learn about the latest advances in medical research, how data analytics and AI are accelerating these efforts, and how education can inspire the next generation of medical researchersHear all about:What scientists around the country are researching in the areas of blood diseasesWhy medicine must maximize quantitative and qualitative data together to best serve patientsHow AI will impact clinician's ability to detect and diagnose - especially in medical imagingPredictive risk modeling and the future of precision healthcareThe human aspect of medicine, the importance of face-to-face care, and how data can help doctors develop more customized treatment plans for each individual3 Big Takeaways from this episode:Medical research needs quantitative and qualitative data to produce the best results: The healthcare industry has billions of quantitative datasets from millions of patients. Additionally, patient reported outcomes help turn qualitative information about the patient's personal experience into quantitative data. When healthcare providers have access to both quantitative and qualitative data, they can create personalized treatment plans for each individual, a practice called precision healthcare.Data analytics and artificial intelligence enable predictive risk modeling in medical research: All the data just mentioned can be used in predicting and preventing diseases in individuals based on their unique risk factors. Listen as we discuss the generation of algorithms for predictive healthcare, genomic and curative treatments, and why the quality and structure of the data matters when training AI models.The future of healthcare will be data-driven, but it will never lose the human factor: Expect tele-health visits, chatbots, AI helping clinicians detect and diagnose individuals, and automated health plans based on data-driven models. But also know that the face-to-face connection will always remain a key factor to healthcare; for nothing can replace the doctor-patient relationship.Resources mentioned in this episode:To learn more about Dr. Panepinto, visit her pageLearn more about the research being done by the NIH Division of Blood Diseases and ResourcesConnect with the National Heart, Lung and Blood Institute:Facebook |  YouTube | LinkedIn  |  XGet more resources on the episode page: https://techedpodcast.com/panepinto/Instagram - Facebook - YouTube - TikTok - Twitter - LinkedIn

00:00 Show Open / Toby Rice, President & CEO of EQT, a natural gas producer based in Pittsburgh, discusses high energy costs and supply issues. 15:30 Dr. Meilan Han, a pulmonologist and critical care specialist in Michigan, talks about whooping cough and the vaccine available to prevent it. 26:00 Courtesy of our sister station, WBNS 10-TV, Tracy Townsend presents information about the battle over abortion rights in Ohio; the upcoming election; and a program in Franklin County called "Move to Prosper" that offers rental assistance. 52:00 Dr. Julie Panepinto, Acting Director for the Division of Blood Diseases and Resources within the National Heart, Lung and Blood Institute. She discusses blood donations and sickle cell disease.

Tim measures Ryan's brainpan now that Tim has his PhD in phrenology.

Naseem Sadiq visited the Duhok Centre for Blood Diseases and cancer treatment as they held an open day for the public to rais awareness of the services provided by the centre which are mostly free and supported by the KRG government. 

Naseem Sadiq visited the Duhok Centre for Blood Diseases and cancer treatment as they held an open day for the public to rais awareness of the services provided by the centre which are mostly free and supported by the KRG government. 

Jack Khouri, MD, hematologist oncologist at Cleveland Clinic Cancer Center, who specializes in rare plasma cell disorders within the Rare Cancers and Blood Diseases program joins the Cancer Advances podcast to discuss POEMS (i.e., polyneuropathy, organomegaly, endocrinopathy, monoclonal gammopathy and skin changes). Listen as Dr. Khouri talks about how the early recognition and diagnosis of POEMS is key to effective management.

Dr. Stuart Siegel has been an international leader in the fight against childhood cancer for more than 40 years, as the founder of both the Children's Center for Cancer and Blood Diseases at Children's Hospital Los Angeles and the Adolescent and Young Adult Cancer Program at the USC Norris Comprehensive Cancer Center. With more than 240 scientific articles in peer-reviewed journals, Siegel played an integral part in saving countless young lives in LA. He shares with host Giselle Fernandez how during his tenure, through advancements in technology and scientific discoveries, the survival rate of some childhood cancers has gone from 10% to more than 90%. Siegel also founded the Ronald McDonald House Charities of Southern California, whose mission is to provide comfort, care and support for families with children undergoing medical treatment.

Cosmos journalist Ellen Phiddian speaks to Dr Karen Alt, Head of the Nano Theranostics Laboratory at the Australian Centre for Blood Diseases, Monash University, about medical imaging technology using nanoparticles, how it compares to current imaging like MRI, and where it could be seen in the future. Find the science of everything at the Cosmos Magazine website Subscribe to Cosmos Magazine (print) or the Cosmos WeeklyRegister for the next Cosmos Briefing 

Dr. Chinni Pokala is a doctor of Pediatric Hematology & Oncology at Oklahoma Children's Hospital in the Jimmy Everest Center for Cancer and Blood Diseases in Children. Emmi and Katherine talk to Dr. Pokala about his journey from Texas to Oklahoma and how he chose to specialize in caring for children with leukemia, lymphoma, and blood diseases. Dr. Pokala has amazingly found time to run 27 marathons, including the Boston Marathon where he raised $19,000 for the Leukemia and Lymphoma Society. He's currently competing in the Leukemia and Lymphoma Society's Man of the Year Campaign. Please welcome Dr. Pokala to Action City. You can donate at https://pages.lls.org/mwoy/ok/okc21/hpokala  

What are our must do's to cure cancer? How is translational research affecting this? How do we mentor the next great physicians? In this episode of The Doc Talk division chief of Pediatric Hematology/Oncology and Bone Marrow Transplant at Nationwide Children's, professor of Pediatrics at Ohio State and the Leader of the Center for Childhood Cancer and Blood Diseases at Nationwide Children's. Dr. Tim Cripe.  Dr. Cripe discusses his accomplished research career within the cancer field, how to build the best team, and his thoughts on mentorship.

Sudipto Mukherjee, MD, MPH, Director of Rare Cancers and Blood Diseases at Cleveland Clinic, joins the Cancer Advances podcast to discuss our approach to rare cancers. Patients with rare cancers and blood diseases often have difficulty finding clinicians with necessary expertise. Listen as Dr. Mukherjee discusses how Cleveland Clinic Cancer Center's Rare Cancers and Blood Diseases initiative uses a multidisciplinary approach that includes a highly sub-specialized team of medical and radiation oncologists, surgeons, radiologists and pathologists.

The Fulfillment Fund works to make college a reality for students growing up in educationally and economically under-resourced communities. To this end, our services build pathways to college, help students navigate educational barriers, create life-changing support networks, and empower future leaders.Joanne ReyesJoanne Reyes is a senior non-profit development professional with more than 16 years of experience. She is currently President at the Fulfillment Fund, a college access and college success non-profit with a 40-year history of providing pathways of opportunity to young people from under-resourced communities in Los Angeles.Prior to her joining the Fulfillment Fund, initially as Chief Development Officer, she was Associate Vice President, Development at Children’s Hospital Los Angeles and focused on funding opportunities for the Children’s Center for Cancer and Blood Diseases and other medical specialties. She also oversaw the Foundation’s Special Events department, including the hospital’s signature biennial gala, which has raised more than $24 million since its inception. She first joined the hospital in 2009 as Director, Children’s Miracle Network Hospitals and was elevated to lead the hospital’s corporate philanthropy efforts, cause marketing, and special events before transitioning to major gifts fundraising for medical specialties. She raised more than $70 million during her tenure at Children’s Hospital, including the successful solicitation of two of the hospital’s largest corporate gifts in its 117-year storied history.Prior to her tenure at Children’s Hospital, she served as Marketing and Communications Administrator for Didi Hirsch Mental Health Services, where she led development communications efforts. She began her career in nonprofit development at Hillsides, where she raised funds to support services for severely emotionally and physically abused children.Joanne holds a Master of Arts from Stanford University, Cum Laude and a Bachelor of Arts, Summa Cum Laude, Phi Beta Kappa from the University of California, Los Angeles and is a native Angeleno, having been raised in the San Fernando Valley and attended Los Angeles Unified School District schools from K-12. Organizations that serve to better the lives of children, teens, and young adults have always been the focal point of Joanne’s professional and personal interests, and in addition to serving in her most important role as a mom of two bright and energetic girls, Joanne has volunteered for various local non-profit organizations and has served as a mentor to several young women achieving their Gold Awards for the Girl Scouts of America.Guest Bio:Elizabeth ZamudioVP ProgramsElizabeth is a senior education professional with more than 19 years of experience. She joined Fulfillment Fund in 2007, first as a college counselor and later as leader of the College Access Program. Elizabeth now oversees all programmatic activity at Fulfillment Fund including the delivery of Fulfillment Fund’s college access curriculum, college counseling, college success efforts including scholarships, and alumni programming.Prior to joining Fulfillment Fund, Elizabeth worked at Loyola Marymount University’s Controller’s Office supporting first-generation college-going students in navigating financial aid and scholarships. A first-generation college graduate herself, Elizabeth holds bachelor’s degrees and a master’s degree from Loyola Marymount University.Links:Fulfillment Fund: https://fulfillment.org/LA College Promise: http://lacollegepromise.org/Fulfillment Fund's Destination College: https://fulfillment.org/destinationcollege/United States Bureau of Labor Statistics: https://www.bls.gov/charts/employment-situation/unemployment-rates-for-persons-25-years-and-older-by-educational-attainment.htmCal State LA Strategic Plan: https://www.calstatela.edu/strategicplan The spreadsheet that Fulfillment Team used to rate platforms for their upcoming event: https://drive.google.com/file/d/11e_g1PDXOfOD5xzjzyRqLEvFS7Yaq2Hp/view?usp=sharing See acast.com/privacy for privacy and opt-out information.

Syros Pharmaceuticals is developing a platform for targeting the regulatory genome with therapies to address diseases at a fundamental level. At the end of last year, the company entered into a collaboration with Global Blood Therapeutics to develop new therapies for sickle cell disease and beta thalassemia. Under the collaboration, Syros is using its platform to discover drugs that turn on the production of fetal hemoglobin as a way to treat these rare, hereditary, blood disorders. The production of fetal hemoglobin is usually shut down soon after birth. We spoke to David Roth, chief medical officer of Syros Pharmaceuticals, about the collaboration, how Syros’ approach works, and why activating fetal hemoglobin is viewed as a promising approach to treating these genetic blood diseases.

Forma Therapeutics had long been a platform-based drug company that used high-throughput screening to discover new drugs that would be developed by partners. After many years, Forma began transitioning to become a fully integrated therapeutics company focused on rare blood disorders and cancer. It brought in Frank Lee, who had been a senior vice president of global product strategy at Genentech, as CEO to help execute the company’s new plan. We spoke to Lee about why he joined Forma, the company’s program in sickle cell disease, and his vision Forma as a company that develops and commercializes its own medicines.

If you want to stay connected with Adam and Bryon you can like our Facebook pagewww.facebook.com/ehappodcast. You can also follow us on Twitter and Instagram @ehappodcast. Feel free to check out our website www.ehappodcast.com seeing as how you’re becoming mildly obsessed with us.You can contact Adam and Bryon via email at ehappodcast@gmail.com.If you feel like supporting the show, you can buy a t-shirt from our Teepublic store at www.ehappodcast.com/shop.If you don’t like wearing clothes and want exclusive content, you can support us on Patreon for the price of a $1 cup of coffee at www.patreon.com/ehap. Join the ranks of other fine Patreon supporters such as Mat, Theresa, Jarret, and Julia!This week’s music pick:The Weight by Amigo the DevilIf you enjoy the music on the show and happen to be an Apple Music subscriber, be sure to subscribe to our ever-growing Apple Music playlist. You can check that bad daddy out right here: https://itunes.apple.com/ca/playlist/everyone-has-a-podcast/pl.u-eaqfK2PEEq2015 - 2020 © Everyone Has A Podcast

Never miss another interview! Join Devin here: http://bit.ly/joindevin. Scott and Angela Uhland were as sad and afraid as any parents when their three-year-old Lucia was diagnosed with Acute Lymphoblastic Leukemia. Two years of treatment left her healthy and starting school with her peers. Scott always hoped to find a way to give back to the team of people who treated Lucia. He was especially fond of the caring people who structured fun experiences for her in the hospital during treatment. It made the whole experience tolerable. So tolerable, in fact, that her memories of the hospital include many positives, including, he admits, some of her favorite foods. When Scott learned about Johnson & Johnson’s CaringCrowd global health crowdfunding platform, he realized he’d found the way he could give back. Scott is a PhD scientist at J&J. He decided to raise money for the Bass Center for Childhood Cancer and Blood Diseases at the Lucille Packard Children's Hospital at Stanford, specifically targeting their programs supporting fun for cancer patients. Check out my free webinar where I share the secrets of successful nonprofit crowdfunding at http://crowdfundingforsocialgood.org.

This week, we’re joined by Dr Leo Mascarenhas, the Deputy Director of the Children’s Center for Cancer and Blood Diseases and the Section Head of Oncology at Children’s Hospital Los Angeles, to discuss the cancer crusade that President Bartlet wanted for the State of the Union. Hey, Toby, how many words are in this description? (56.) For more, visit thewestwingweekly.com/311.

Episode 54: What is your response when people ask you “How are you today?” Michael Epstein’s innate response is “never better.” After meeting Michael there is no doubt in my soul that a giving heart attracts other giving hearts. For Over 30 years Michael has led many major events across the United States of North America including the biggest triathlon in Malibu, California Triathlon called Nautica Malibu Triathlon presented by Equinox. Michael is most stoked for being able to raise over $10 Million for Children’s Hospital Los Angeles specifically Children’s Center for Cancer and Blood Diseases. Michaels entrepreneurial path starts with lost shoes, throwing a party and experiencing an impactful birth process with his son. Like all great endurance athletes, Michael is looking ahead for growth in business and most of all his love for raising funds to support Children's Center for Cancer Research.

You know you've struck marketing gold when a brand becomes a so-called “proprietary eponym.” Need to blow your nose? Grab a Kleenex. Track some sand from the beach onto your floor? Hoover it up. In biology, Crispr is the proprietary eponym of the moment. The gene-editing technique is so inexpensive and easy to use that, in just four years, it's become a ubiquitous tool in labs across the world. And soon, it could jump from bench-top workhorse to human therapeutic.

July 2, 2012 - Researchers at Albert Einstein College of Medicine of Yeshiva University and Montefiore Medical Center have found that abnormal bone marrow stem cells drive the development of myelodysplastic syndromes (MDS). The findings published online July 2 in the journal Blood.