Podcasts about bone marrow transplant

Crystal Conroy's son Ashton was diagnosed with a very rare form of Pediatric Leukemia known as Acute MegaKaryblastic Leukemia or AMKL in March of 2024 when he was 10 1/2 months old. Ashton has been at Boston Children's Hospital for the past 65 days along with Crystal as the goal is to get him to remission so that he would be able to receive a Bone Marrow Transplant. That goal has not been reached and in fact, his doctors just confirmed that Ashton has had a relapse. 

In this episode, we meet up with Josh Conklin, a seasoned bone marrow transplant (BMT) nurse at the University of Michigan Hospital, to explore his experiences, insights, and tips for managing chronic graft-versus-host disease (GVHD). With 11 years of inpatient experience, Josh offers a comprehensive view of the challenges and triumphs in caring for patients undergoing BMT.Josh explains that his primary role involves guiding patients through the most critical stages of their transplant journey, from chemotherapy conditioning to the stem cell infusion and the vulnerable recovery period afterward. He emphasizes the delicate balance required in managing GVHD, a condition that plays a dual role: while some GvHD is beneficial in suppressing cancer recurrence (graft-versus-leukemia effect), too much can lead to severe complications.Long-term immunosuppression is a cornerstone of GVHD management. Josh highlights the reliance on drugs like tacrolimus and, when necessary, steroids. However, we note the adverse effects of prolonged steroid use, such as muscle wasting, infections, and physical deconditioning. Emerging monoclonal antibody therapies are offering new hope, aiming to reduce these side effects.The discussion also sheds light on the psychological toll of repeated hospitalizations and the role caregivers play in patient success. Josh describes caregivers as essential for monitoring symptoms, administering medications, and providing emotional support. However, he acknowledges the significant strain caregiving can impose, especially during the critical first 100 days post-transplant when patients are highly vulnerable.Josh shares stories of resilience and purpose among his patients, underscoring the importance of a positive outlook and having something meaningful to strive for. He reflects on the impact of a strong support system, whether it's family, friends, or peer mentorship programs, in helping patients navigate their “new normal.” Despite the challenges, Josh finds inspiration in his patients' ability to find joy and purpose, even in difficult circumstances.  He shares his experience with one woman in particular.This heartfelt conversation highlights the physical, emotional, and relational dynamics of BMT care, offering a glimpse into the profound impact of dedicated healthcare professionals like Josh.More:GVHD Alliance: https://www.gvhdalliance.orgLink to LLS free Nutrition Consultations: https://www.lls.org/managing-your-cancer/food-and-nutritionThank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd

In this episode, we sit down with Sarah Bugen, a nurse at Memorial Sloan Kettering Cancer Center, who shares her expertise on managing life after a blood or bone marrow transplant, particularly in relation to chronic graft-versus-host disease (GVHD). The conversation centers on practical advice for patients and caregivers navigating recovery and maintaining quality of life.Regarding Oral GVHD, Sarah emphasizes the importance of oral health post-transplant, recommending soft toothbrushes, alcohol-free mouthwash, and avoiding irritants like spicy or acidic foods. She suggests soft, hydrating foods and stresses the need for regular dental checkups with oncologist approval. Hydration is vital for managing dry mouth, with a goal of 2-3 liters of fluids daily. Also, sugarless candy or gum can help stimulate saliva production.For nutrition, Sarah advises increasing caloric intake with protein powders, full-fat products, and small, frequent meals. She also highlights the value of bland diets and electrolyte packets for hydration. Avoiding triggers like dairy, caffeine, and greasy foods can minimize gastrointestinal discomfort (and even GVHD of the GI Tract), while clean cooking practices ensure safety during recovery.Skin care is another focus. Sarah recommends fragrance-free, gentle products like CeraVe and Cetaphil and suggests applying moisturizer after a shower to lock in hydration. Sunscreen, protective clothing, and sun hats are essential, even in winter, to protect sensitive post-transplant skin.Physical activity is vital for rebuilding strength and improving mental health. Sarah advises patients to start slow with light activities like walking or stretching and gradually increase as tolerated. Physical therapy exercises should be integrated into daily routines, and adequate rest is crucial after any activity.  Even though it may be counter-intuitive, continuous movement is key in the battle against fatigue.Caregivers also play a pivotal role. Sarah underscores the importance of open communication with the medical team and notes that caregivers can support medication management, track progress, and join support groups for additional resources. Caregivers are encouraged to celebrate small victories and take care of their own mental health, as they are an essential part of the recovery process.Finally, Sarah shares an incredible survivor story, and reflects on the resilience in her patients and the importance of celebrating milestones like “transplant birthdays.” She encourages patients to set realistic goals, maintain hope, and focus on incremental progress. Sarah leaves us with an inspiring reminder to be patient with ourselves, celebrate every achievement, and never stop fighting.Resources:Link to LLS free Nutrition Consultations: https://www.lls.org/managing-your-cancer/food-and-nutritionGVHD Alliance: https://www.gvhdalliance.orgThank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd

In this episode, we welcome Jeannie Wiarda, LMSW, a Medical Social Worker at the Adult Blood and Bone Marrow Transplant Center at Corewell Health in Grand Rapids, Michigan. Jeannie has been a Medical Social Worker at Corewell Health for 20 years including 14 years in Hospice and Palliative Care Inpatient; time in the Emergency Room prior to that, and has currently spent three years in bone marrow transplant. Jeannie provides insight into her work with transplant patients, particularly those navigating chronic graft-versus-host disease (GVHD), offering a comprehensive view of her role and strategies for supporting survivors through their journeys.Jeannie explains that her role as a social worker encompasses the entire transplant process—from the pre-transplant evaluation to post-transplant care. She helps patients address barriers like financial challenges, housing, and psychological trauma, tailoring support to each individual's unique needs. Her involvement extends through the hospital stay and into recovery, offering continuity of care during this vulnerable time.A key theme is the interplay between stress, trauma, and the transplant experience. Jeannie highlights the impact of chronic stress on the brain, emphasizing the importance of caregivers who provide practical and emotional support. She underscores the necessity of self-care for caregivers, advocating for planned respite and support systems to sustain their well-being.Jeannie shares actionable strategies for patients and caregivers to find hope and purpose amid the challenges of GVHD. These include maintaining a healthy lifestyle, engaging in fulfilling activities, and staying connected with others. She stresses the value of education, encouraging patients to leverage resources like the nbmtLINK, BMT InfoNet, LLS, and the GVHD Alliance to empower themselves with knowledge and advocacy skills.Jeannie emphasizes finding ways to “live life” despite the limitations GVHD may impose. She recalls stories of patients adapting activities to their current abilities, referencing another podcast by the LINK where we talked to a survivor who switched to an e-bike for outdoor exploration. Jeannie also advocates for fostering connections through support groups and meaningful activities, such as volunteering, to regain a sense of purpose.Jeannie concludes with advice on processing grief and fear, embracing compassion, and accessing professional mental health resources, including cognitive behavioral therapy such as Eye Movement Desensitization and Reprocessing (EMDR), for addressing trauma. Her compassionate, holistic approach demonstrates the profound impact of social work in transforming survivorship into a journey of resilience and empowerment.More:GVHD Alliance: https://www.gvhdalliance.orgLink to LLS free Nutrition Consultations: https://www.lls.org/managing-your-cancer/food-and-nutritionBook: The Body Keeps the Score: https://www.amazon.com/Body-Keeps-Score-Healing-Trauma/dp/0143127748Thank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd

In this Cancer Matters podcast, Dr Bill Nelson speaks with Dr Nina Wagner-Johnston about the treatment of lymphoma and the newly opened Cellular Therapy Program at the Johns Hopkins Kimmel Cancer Center at Sibley Memorial Hospital in Washington DC.  Lymphoma is a blood cancer of the immune system. There are many types of lymphomas with a broad range of aggressiveness and clinical behaviors but they are also among the most treatable. Learn more about the different types of lymphomas here. The Cellular Therapy Program at Sibley Memorial Hospital makes bone marrow transplants more readily available in the Washington DC region allowing patients to remain closer to home while receiving treatment.

The infections disease landscape is constantly changing - challenging our standard treatments. Can new - as well as ancient - therapies be the answer? Hear from experts on the cutting edge of phage therapy, HIV/AIDS research and cancer care about what is on the horizon to improve human health. Series: "Stem Cell Channel" [Health and Medicine] [Show ID: 39982]

The infections disease landscape is constantly changing - challenging our standard treatments. Can new - as well as ancient - therapies be the answer? Hear from experts on the cutting edge of phage therapy, HIV/AIDS research and cancer care about what is on the horizon to improve human health. Series: "Stem Cell Channel" [Health and Medicine] [Show ID: 39982]

The infections disease landscape is constantly changing - challenging our standard treatments. Can new - as well as ancient - therapies be the answer? Hear from experts on the cutting edge of phage therapy, HIV/AIDS research and cancer care about what is on the horizon to improve human health. Series: "Stem Cell Channel" [Health and Medicine] [Show ID: 39982]

The infections disease landscape is constantly changing - challenging our standard treatments. Can new - as well as ancient - therapies be the answer? Hear from experts on the cutting edge of phage therapy, HIV/AIDS research and cancer care about what is on the horizon to improve human health. Series: "Stem Cell Channel" [Health and Medicine] [Show ID: 39982]

The infections disease landscape is constantly changing - challenging our standard treatments. Can new - as well as ancient - therapies be the answer? Hear from experts on the cutting edge of phage therapy, HIV/AIDS research and cancer care about what is on the horizon to improve human health. Series: "Stem Cell Channel" [Health and Medicine] [Show ID: 39982]

The infections disease landscape is constantly changing - challenging our standard treatments. Can new - as well as ancient - therapies be the answer? Hear from experts on the cutting edge of phage therapy, HIV/AIDS research and cancer care about what is on the horizon to improve human health. Series: "Stem Cell Channel" [Health and Medicine] [Show ID: 39982]

The infections disease landscape is constantly changing - challenging our standard treatments. Can new - as well as ancient - therapies be the answer? Hear from experts on the cutting edge of phage therapy, HIV/AIDS research and cancer care about what is on the horizon to improve human health. Series: "Stem Cell Channel" [Health and Medicine] [Show ID: 39982]

The infections disease landscape is constantly changing - challenging our standard treatments. Can new - as well as ancient - therapies be the answer? Hear from experts on the cutting edge of phage therapy, HIV/AIDS research and cancer care about what is on the horizon to improve human health. Series: "Stem Cell Channel" [Health and Medicine] [Show ID: 39982]

On this week's episode of the PQI Podcast, we dive into the transformative world of stem cell transplantation with David Samuel, PharmD, a dedicated Stem Cell Transplant Clinical Pharmacist at Texas Oncology in Dallas.David shares his inspiring journey through oncology pharmacy and offers a unique glimpse into his pivotal role in supporting outpatient stem cell transplant recipients and CAR-T cell therapy patients. He also highlights the vital patient education initiatives at Texas Oncology's Bone Marrow Transplant program, emphasizing the human connection that underpins effective oncology care.Tune in for an insightful conversation that highlights the vital role clinical pharmacists play in not just delivering care but also in empowering patients through their oncology journeys.

In season 15 of the Marrow Masters podcast, we will focus on CAR T cellular therapy. This innovative and life saving treatment is gaining momentum and has become a first line course of treatment in recent years.  What does CAR T have in common with more traditional transplants? How does it differ?  What is the first 100 days like?  And how have clinical trials brought us to this moment?We will hear from physicians at the heart of this cutting-edge therapy, from survivors, and from other members of the care team, including a nurse and psychologist.Season 15 of the Marrow Masters podcast is sponsored by Kite, a Gilead company, and Bristol Myers Squibb. Follow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/

September is Sickle Cell Awareness Month. In this Cancer Matters podcast, Dr Bill Nelson, the Director of the Johns Hopkins Kimmel Cancer Center, speaks to Dr Rick Jones and Dr Robert Brodsky about treating sickle cell anemia, an inherited disorder where mutations in the globin gene cause the red blood cells to take on a sickle shape, leading to severe pain and organ damage. They discuss and compare the types of bone marrow transplants currently used to treat the disease and highlight the significant improvements in reducing complications, such as graft-versus-host disease and graft rejection.

Sarah is a writer and this is the  first time her work has been published in the New York Times. the link is below. https://www.nytimes.com/2024/08/23/style/modern-love-looking-for-my-mother.htmlThis is an unusual love story where a Pakistani woman proposed to her lover which was culturally not the norm. They were both young and very much in love. Unfortunately, Kaukab, translated from Arabic, means "star" or "constellation"  was diagnosed with Leukemia  a few years after their daughter's were born. Sarah's parents went to London  for a bone marrow transplant.This was the beginning of tearing  the family apart. The girls moved in with family members in Saudi Arabia, while their dad stayed in London. Her father was distraught and couldn't even tell the girls that their mother had passed away until days later. They did not attend their mother's funeral, though they were close by. The family members blamed Sarah's father for Kaukab's death.This and more lead to Sarah blaming herself for her mother's death. She believes that her mom was trying to teach her to let go, but either way Sarah has spent a good part of her life blaming herself for her mother's death. Sarah  has very few personal possessions to remember her mother by. She has a card that her mother wrote her when in the hospital, that she still has today. Her mother had hopes of seeing her girls again but fate had a different plan.  And not too long ago, Sarah was able to bring home two embroideries that her mother had made, many years ago and they hang in Sarah's home today.  Sarah's relatives have told her, that her mother handled her illness very eloquently,  she didn't give into despair and she accepted her illness and her death with grace.My guest has plans for writing fiction,  short stories, kids books and more.TWITTER:https://x.com/SarayMaray  "Should Have Listened To My Mother" is an ongoing conversation about mothers/female role models and the roles they play in our lives. Jackie's guests were open and hones and answer the question, are you who you are today because of, or in spite of, your mother and so much more. You'll be amazed at what the responses are.Gina Kunadian wrote this 5 Star review on Apple Podcast:SHLTMM TESTIMONIAL GINA KUNADIAN JUNE 18, 2024“A Heartfelt and Insightful Exploration of Maternal Love”Jackie Tantillo's “Should Have Listened To My Mother” Podcast is a treasure and it's clear why it's a 2023 People's Choice Podcast Award Nominee. This show delves into the profound impact mother and maternal role models have on our lives through personal stories and reflections.Each episode offers a chance to learn how different individuals have been shaped by their mothers' actions and words. Jackie skillfully guides these conversations, revealing why guests with similar backgrounds have forged different paths.This podcast is a collection of timeless stories that highlight the powerful role of maternal figures in our society. Whether your mother influenced you positively or you thrived despite challenges, this show resonates deeply.I highly recommend “Should Have Listened To My Mother” Podcast for its insightful, heartfelt and enriching content.Gina Kunadian"Should Have Listened To My Mother" would not be possible without the generosity, sincerity and insight from my guests. In 2018/2019, in getting ready to launch my podcast, so many were willing to give their time and share their personal stories of their relationship with their mother, for better or worse and what they learned from that maternal relationship. My guests and I Some of my guests include Nationally and Internationally recognized authors, Journalists, Columbia University Professors, Health Practitioners, Scientists, Artists, Attorneys, Baritone Singer, Pulitzer Prize Winning Journalist, Activists, Freighter Sea Captain, Film Production Manager, Professor of Writing Montclair State University, Attorney and family advocate @CUNY Law; NYC First Responder/NYC Firefighter, Child and Adult Special Needs Activist, Property Manager, Chefs, Self Help Advocates, therapists and so many more talented and insightful women and men.Jackie has worked in the broadcasting industry for over four decades. She has interviewed many fascinating people including musicians, celebrities, authors, activists, entrepreneurs, politicians and more.A big thank you goes to Ricky Soto, NYC based Graphic Designer, who created the logo for "Should Have Listened To My Mother".Check out our website for more background information: https://www.jackietantillo.com/Or more demos of what's to come at https://soundcloud.com/jackie-tantilloFind audio versions of the podcast here: https://shltmm.simplecast.com/Spotify Link: https://open.spotify.com/show/60j14qCcks4AP3JUrWrc2MLink to website and show notes: https://shltmm.simplecast.com/Listen wherever you find podcasts:Apple PodcastsAmazon MusicGaanaIHeartRadio RadioDeezerSpotifyPandoraItunesFacebook:https://www.facebook.com/ShouldHaveListenedToMyMotherhttps://www.facebook.com/jackietantilloInstagram:https://www.instagram.com/shouldhavelistenedtomymother/https://www.instagram.com/jackietantillo7/LinkedIn:https://www.linkedin.com/in/jackie-tantillo/YOUTUBE: https://www.youtube.com/@ShouldHaveListenedToMyMother

The survival chances of a Auckland cancer patient have been cut dramatically after he was forced to wait six months for a bone marrow transplant. Ruth Hill reports.

In this episode, we chat with JR Brandt of Montana, an acute lymphocytic leukemia (ALL) survivor, about his journey through diagnosis, treatment, and living with chronic graft-versus-host disease (cGVHD). JR shares his initial diagnosis story, describing how what he thought was a minor infection led to a leukemia diagnosis complicated by the Philadelphia Positive chromosome. He underwent 26 days of chemotherapy and was eventually cleared for a bone marrow stem cell transplant at Stanford University in March 2017.JR discusses the onset of chronic GVHD symptoms about a year after his transplant, beginning with skin changes. He was treated with Rituxan infusions, which provided temporary relief. Over the years, as symptoms re-emerged, JR continued Rituxan treatments and adjusted his care plan, even after moving from California to Montana. He highlights the importance of finding and continuing care with familiar healthcare professionals, like his physician who (fortunately) moved to Billings Clinic.Beyond skin issues, JR describes experiencing joint tightness, dry eyes, dysphagia, and dry mouth. He mentions practical solutions like using Biotene toothpaste for dry mouth and preservative-free Refresh Plus eyedrops for dry eyes. JR also shares the importance of physical and occupational therapy, which helped him develop a personalized exercise routine. Over time, he transitioned to aquatic aerobics and massage therapy, finding these methods more effective for managing his symptoms.JR emphasizes the significance of staying active, despite physical limitations, by adapting activities like biking with an e-bike and engaging in water aerobics. He also discusses the importance of sun protection and practical tips for managing GVHD symptoms, like using a sun hat and sunblock.JR addresses the mental health challenges of living with chronic illness, equating his experiences to PTSD and stressing the importance of setting goals and making plans to stay motivated. He shares how maintaining an active lifestyle and staying connected with his family helps him manage anxiety and stress.When discussing his career, JR explains how his background in healthcare was both a benefit and a challenge. He advises others with disabilities to utilize vocational rehabilitation services to explore new career paths. JR also encourages being your own patient advocate, ensuring all medical information is shared among healthcare providers to provide comprehensive care.JR concludes with the importance of using available resources, like the Americans with Disabilities Act, for mobility aids and other accommodations (link below). He highlights the need for continuous learning and resourcefulness in managing chronic GVHD and living life to the fullest. Products mentioned by JR in this episode:Refresh Eye Drops: https://www.refresheyedrops.com/Biotene for Dry Mouth: https://www.biotene.com/DaBrim Helmet/SunShade: https://dabrim.com/Oofos shoes: https://www.oofos.com/Mechanix Gloves: https://www.mechanix.com/Dycem Non-Slip tape: https://www.dycem-ns.com/Tryvaya (Prescription) Nasal Spray for Dry Eye: https://www.tyrvaya.com/Full list of Vocational Rehabilitation Agencies for all 50 states: https://rsa.ed.gov/about/statesAmericans With Disabilities Act (ADA) Requirements for Power-Driven Mobility Devices: https://www.ada.gov/resources/opdmds/This season is made possible thanks to donations from Syndax and Incyte.https://syndax.com/https://incyte.com/ Follow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/

This epsiode includes content related to reproductive organs and sexual health and may not be suitable for all listeners.In this episode, we speak with Dr. Oluwatosin "Tosin" Goje, an Associate Professor of OBGYN and reproductive biology at the Cleveland Clinic. We delve into the critical and often under-discussed topic of female sexual health issues related to chronic genital graft-versus-host disease (GVHD), a condition affecting many women post bone marrow transplant.Dr. Goje begins by highlighting the prevalence of sexual dysfunction among female survivors of malignancies, particularly those who have undergone bone marrow transplants. Astonishingly, 80% of female survivors report no significant improvement in their sexual function even five years post-transplant. This issue, often underdiagnosed and unspoken about, affects their quality of life despite their physical recovery.She explains that the persistent sexual dysfunction is multifactorial. Factors include the systemic effects of chronic GVHD, which can cause fatigue and changes in body appearance, making patients feel less attractive. Chronic genital GVHD specifically affects the vulva and vagina, causing changes like thickening, rawness, and atrophy, leading to pain with intimacy, burning, and even bleeding. Additionally, medications can alter libido, and the overall psychosocial burden of their diagnosis and treatment exacerbates these issues.Dr. Goje emphasizes the importance of a multidisciplinary approach to manage these problems. She details the symptoms of genital GVHD and the necessity of individualized treatment plans. Hormone replacement therapy is essential for those with premature ovarian insufficiency or menopause, which can be accelerated by the transplant. Vaginal estrogen or other moisturizers and lubricants are often required, along with immunosuppressants like topical clobetasol to manage inflammation.Communication emerges as a vital theme throughout our conversation. Dr. Goje stresses that healthcare providers need to proactively ask about sexual health issues. Patients, often so grateful for their survival, do not prioritize these concerns. Utilizing validated questionnaires can help initiate these crucial discussions and overcome hesitation to begin the conversation. For patients, Dr. Goji advises regular consultations with a gynecologist and open discussions about their medications and any sexual health issues they experience, even before diagnosis.Addressing the specific needs of younger women, Dr. Goje discusses options like egg freezing before treatment to preserve fertility. She also notes that many foundations and insurance plans provide financial support for these procedures.Dr. Goje highlights the various treatments available for managing sexual dysfunction, including the use of silicone dilators, surgical interventions, and laser therapy. She encourages couples to communicate openly about their sexual health and consider sex therapy or couples therapy to address issues together. For patients experiencing chronic vaginal pain or infections, she recommends appropriate medical treatments, including potential surgery or laser treatment. She emphasizes the need for accurate diagnosis and management.Finally, Dr. Goje shares poignant stories from her practice, illustrating her deep commitment to her patients' holistic health. She reminds us that the goal is not just survival but also ensuring a quality life post-treatment.In another episode this season, we discuss male sexual health as it relates to GVHD.More Information:Cleveland Clinic - https://my.clevelandclinic.orgReplens - https://www.replens.comLuvena -https://luvena.comRevaree Moisturizer: https://hellobonafide.com/products/revareeMonaLisa Touch Laser - https://www.smilemonalisa.comNational Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINKnbmtLINK YouTube Page can be found by clicking here.Thank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/ Follow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/

In today's podcast, we have the pleasure of speaking with Angie Giallourakis, a dedicated advocate and founder of the Steven G. Cancer Foundation and Elephants and Tea. Angie shares her powerful story of being a caregiver to her son Steven, who battled cancer twice. Steven was first diagnosed with stage four osteosarcoma in 2006, and later with secondary acute myelogenous leukemia (AML) in 2008, necessitating a bone marrow transplant.Angie recounts the emotional and physical toll of Steven's journey, describing the intense periods of treatment and the unexpected challenges they faced. After his bone marrow transplant, Steven experienced graft-versus-host disease (GVHD). Angie shares vivid anecdotes, including a harrowing moment when Steven's salivary glands swelled, causing his face to balloon. This incident, among others, highlights the unpredictable nature of GVHD and the constant vigilance required from caregivers.Angie emphasizes the importance of stress management for caregivers. She advocates for finding personal ways to cope, whether through exercise, yoga, meditation, or prayer. Her own methods include Yoga Nidra, a type of meditation, and seeking solace in prayer. She also stresses the importance of good nutrition and staying hydrated, which can be challenging during long hospital stays.Drawing from her experiences, Angie advises caregivers to seek help when needed and to communicate openly with their loved ones and medical teams. She underscores the necessity of validating the patient's pain and symptoms, as Steven's experience with inflammation throughout his body was initially dismissed by some as psychological.The conversation shifts to Angie's founding of the Steven G. Cancer Foundation. Motivated by the outdated treatments Steven received, she aimed to raise awareness and fund research for adolescent and young adult (AYA) cancer. She also talks about Elephants and Tea, a magazine by and for cancer patients, founded with her son Nick. The magazine provides a platform for unfiltered stories from cancer patients and has expanded to include workshops, community support, and therapeutic resources.Angie's message to new caregivers is clear: understand the potential challenges, communicate effectively, and don't hesitate to ask for and accept help. She highlights the importance of social support, both for patients and caregivers, to navigate the emotional and physical demands of cancer treatment.As we wrap up, Angie encourages listeners to reach out to organizations, consume available resources, and connect with others in similar situations. Her final words resonate with a message of hope and validation: you are not alone in this journey.More:Steven G. Cancer Foundation: https://www.stevengcancerfoundation.orgElephants and Tea: https://www.elephantsandtea.comNational Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINKnbmtLINK YouTube Page can be found by clicking here.This season is made possible thanks to donations from Syndax and Incyte.https://syndax.com/https://incyte.com/ Follow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/

This epsiode includes content related to reproductive organs and sexual health and may not be suitable for all listeners.In this podcast, we welcome Dr. Jose Flores, an expert in sexual and reproductive medicine at New York's Memorial Sloan Kettering Cancer Center. We dive deep into the often challenging but crucial topic of male sexuality, particularly in the context of cancer treatment and graft versus host disease (GVHD).Dr. Flores begins by distinguishing between sexual dysfunction and erectile dysfunction (ED). He emphasizes that sexual dysfunction encompasses various issues beyond just achieving erections, such as ejaculation problems, orgasm issues, decreased sex drive, and changes in penile shape. This broader understanding is essential when discussing sexual health with patients.The prevalence of ED after cancer treatment is notably high, with up to 60-70% of men experiencing it post-chemotherapy, and even higher rates following pelvic surgery, specifically. Low testosterone levels also contribute significantly to sexual dysfunction, particularly after treatments targeting the pelvic area.A critical aspect of addressing ED is breaking the wall of silence around it. Dr. Flores stresses the importance of open communication between patients and healthcare providers. Initiating conversations about sexual health can lead to better assessments and treatments. He outlines the initial steps in diagnosing ED, including patient questionnaires and lab tests, and underscores the need for healthcare providers to proactively ask patients about their sexual health.The discussion then shifts to the impact of GVHD on sexual function. Dr. Flores notes that about 70% of men post-bone marrow or stem cell transplant suffer from low testosterone and ED. Unfortunately, without intervention, these issues do not typically resolve on their own. Patients must seek help to explore treatment options.Dr. Flores explains the ED treatment model, which follows a stepwise approach. The first step includes lifestyle modifications and the use of PDE-5 inhibitors like Viagra and Cialis. If these are ineffective, injection therapy is the next step, followed by mechanical aids like penile pumps and, as a last resort, penile implants.Myths and realities of PDE-5 inhibitors are addressed, clarifying that these medications require proper usage, including an empty stomach for Viagra and sufficient time for absorption for Cialis, along with sexual stimulation to be effective. Proper education on these aspects can significantly enhance their effectiveness.Low testosterone, particularly after cancer treatment, is another major topic. Dr. Flores discusses the complexities of testosterone replacement therapy (TRT), including potential risks like polycythemia, effects on fertility, and the necessity of screening for conditions like sleep apnea and prostate cancer before starting treatment. He advises patients to preserve fertility before undergoing cancer treatments and outlines options for those with compromised fertility post-treatment.The conversation concludes with Dr. Flores urging patients to be proactive about their sexual and reproductive health. He highlights the importance of seeking specialized care and the positive impact it can have on overall quality of life. Throughout the discussion, Dr. Flores's compassionate approach underscores the importance of addressing these sensitive issues openly and effectively.Memorial Sloan Kettering Cancer Center: https://www.mskcc.orgInternational Index of Erectile Dysfunction: https://www.uptodate.comTestosterone Replacement Therapy Information: https://www.urologyhealth.orgThis season is made possible thanks to donations from Syndax and Incyte.https://syndax.com/https://incyte.com/ Follow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/

Did you know that after a bone marrow transplant, if you left blood at a crime scene, it could trace back to your donor, not you? That's exactly what the doctor told my brother, who's gearing up for a transplant due to his recent cancer diagnosis. Sounds like something straight out of a crime thriller - where the real perpetrator is nowhere near the crime! It makes me realize maybe I've been watching a little too much true crime.

When Randy Flenker stood up to a life or death diagnosis, a complete stranger was standing up, too. That person made a life-saving donation halfway around the world. He recently came to Kansas City to meet his new blood brother in person.

2023 ended with an exciting biotech breakthrough for sickle cell patients. A gene-editing therapy using the revolutionary CRISPR technology provides new hope and options for the nearly 100,000 Americans with sickle cell disease. In this episode, we talk with the company behind one of the life-changing therapies, CASGEVY, and speak with two advocates for sickle cell patients. 

We have an amazing program in store for you this Saturday as The Word on Medicine explores the world of CAR-T Cell Therapy. Investigators at the MCW Cancer Center have now treated their 100th patient using a process that they developed which extracts healthy T-cells from the patient's body to manufacture a personalized, and potentially lifesaving, treatment for their unique form of blood cancer. With much success, the team has been led by Dr. Nirav Shah. Dr Shah is an expert in CAR-T cell therapy, and is joined by Katie Zellner (PA), who has been with MCW and Froedtert Health since 2009 in the field of Bone Marrow Transplant. Patients Joel and Keen add the patient perspective, which is why The Word on Medicine is so unique in bringing our listeners what is really important in medical breakthroughs and scientific discovery. Make sure to listen to this inspiring program!

In this week's episode we'll discuss the prognostic value of the Chronic Lymphocytic Leukemia International Prognostic Index in the era of targeted therapies, learn how peak ADAMTS13 activity can be used to assess ADAMTS13 conformation and risk of relapse in immune-mediated thrombotic thrombocytopenic purpura, and discuss the findings from a phase 2 trial of haploidentical bone marrow transplant in sickle cell disease. Featured ArticlesReassessing the Chronic Lymphocytic Leukemia International Prognostic Index in the era of targeted therapies Peak ADAMTS13 activity to assess ADAMTS13 conformation and risk of relapse in immune-mediated Thrombotic Thrombocytopenic Purpura An international learning collaborative phase 2 trial for haploidentical bone marrow transplant in sickle cell disease 

In this episode, we talk with Rachael Sommer, a dedicated mother and caregiver from Cleveland, Ohio. Rachael shares the journey of her daughter Maddie, who was diagnosed with Hepatosplenic T-cell Lymphoma in October 2023, after several months of mysterious symptoms. Treated at Nationwide Children's Hospital in Columbus, Maddie's condition has profoundly impacted their lives.Rachael recounts their initial stay at the Ronald McDonald House post-diagnosis, highlighting the physical and emotional changes Maddie experienced. Maddie's extreme fatigue and breathlessness were particularly challenging, and Rachael emphasizes the importance of adjusting to a "new normal" while staying in constant communication with doctors. Rachael found solace in the Ronald McDonald House's facilities, specifically the fitness room, which helped her manage her own stress.The conversation shifts to the emotional toll on Maddie, who struggled with isolation from friends and the mental burden of not being able to participate in normal activities. Despite the support of friends and thoughtful gestures like sending cards, nothing could replace the physical presence of her peers. Rachael's creativity shone through when she set up a Google camera to allow Maddie to see her cats, Binks and Leon, while they were away.Rachael discusses the importance of recognizing and respecting individual emotional needs. Maddie's withdrawal from activities she once enjoyed, like listening to music, was particularly hard for Rachael, who feared losing her daughter's spirited personality. Eventually, Maddie slowly began to regain her sarcasm and interactions with her younger brother, Ezekiel, signaling a return to her usual self.The financial strain of Maddie's illness is another significant aspect of their journey. Rachael praises the support from various organizations, including Carrie's Cause, Fight Like A Dozer, and the Leukemia & Lymphoma Society, which provided crucial financial aid. This support allowed Rachael to focus on Maddie's care without the added burden of financial stress.Rachael also shares her career transition to consulting, driven by the need for greater flexibility to support her family. Her faith in God has been a cornerstone throughout this journey, providing spiritual strength and community support.Finally, Rachael reflects on the importance of savoring small moments of joy amidst the challenges. She encourages other caregivers to focus on what truly matters, finding moments of normalcy and joy, and maintaining hope and strength for their loved ones.Resources:Nationwide Children's Hospital, Columbus, Ohio: https://www.nationwidechildrens.org/Fight Like a Dozer: https://www.fightlikeadozer.org/Leukemia & Lymphoma Society (LLS): https://lls.org/NMDP (formerly Be The Match): https://bethematch.org/The Bible Recap: https://www.thebiblerecap.com/National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINKnbmtLINK YouTube Page can be found by clicking here.Thank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/ Follow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/

In this episode, Peggy interviews Beth Ades, who shares her compelling journey after being diagnosed with Myelodysplastic Syndrome (MDS) in 2021. Beth's story begins with mysterious bruises on her legs, leading to a diagnosis that required immediate hospitalization and numerous tests. Despite a harrowing seven-month diagnostic process, Beth was eventually diagnosed with MDS and was told her only chance of survival was a bone marrow transplant.Beth recounts the emotional and physical challenges she faced, including a life-saving transplant from a 19-year-old donor in Germany. The connection between Beth and her donor has evolved into a meaningful relationship, showcasing the profound impact of such donations. Despite the difficulties, Beth's experience has been transformative, igniting a passion in her donor to pursue medicine and advocate for bone marrow registries.Post-transplant, Beth faced severe side effects such as mucositis, which she describes as far more than just mouth sores, but a condition affecting her entire gastrointestinal tract. Her proactive approach and close communication with her medical team were crucial in managing these issues.  This acute GVHD passed, but she still deals with chronic GVHD in her eyes.Beth also shares the wisdom imparted by her social worker about the challenging transition back to everyday life. The first hundred days post-transplant were particularly tough as she felt isolated from her family's ongoing life. However, the experience has given her a new perspective, emphasizing the importance of acknowledging and dealing with these emotional hurdles.The interview highlights the concept of paying it forward, which Beth embraced through organizing blood drives and bone marrow registry events. Her husband also became involved by signing up as a courier for the National Marrow Donor Program, (NMDP)  reflecting their deep commitment to giving back. There is also a tribute race car in the works, yet another way this family is raising awareness on and off the track. Beth's story underscores the collective effort required in the transplant journey, from medical professionals to supportive family and community members. Her reflections on gratitude, finding humor in difficult times, and the importance of small comforts, like warm blankets, offer valuable insights for others navigating similar experiences.Beth concludes with an inspiring note on the transformative power of her journey. She appreciates the profound changes it has brought to her life, stating she would choose her transplant life over her previous one despite the hardships. Her resilience and positivity are palpable, leaving listeners with a sense of hope and the importance of community support in overcoming life's toughest challenges.Resources:Beth's Bone Marrow Journey Facebook Page: https://www.facebook.com/profile.php?id=100077793195673NMDP (formerly Be The Match): https://bethematch.org/National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINKnbmtLINK YouTube Page can be found by clicking here.Thank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/ Follow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/

Today, we have the pleasure of interviewing Flora Stondell, an advanced practice manager and assistant director at UC Davis Comprehensive Cancer Center. Flora's extensive experience in bone marrow transplants, particularly in malignant hematology, transplant, and cellular therapy provide us with invaluable insights.Flora begins by sharing her journey into the field, highlighting her accidental start in transplant care and her enduring passion for her patients. Her commitment is evident as she continues to balance her clinical work with her leadership role, always prioritizing patient care and workflow improvements.We then delved into the importance of screenings in early survivorship. Flora emphasizes that routine screenings, often neglected during the intense phases of treatment, need to be revisited post-transplant. These include mammograms, gynecologic exams, colonoscopies, dental care, and eye exams. These screenings are crucial to detect any preventable issues and address the heightened risk of certain cancers and other health concerns post-transplant.Vaccinations were another critical topic. Flora explains the different schedules for autologous and allogeneic stem cell transplant patients. Autologous patients typically start their vaccinations about six months post-transplant, while allogeneic patients' schedules depend on their immune system status and medication regimen. She stresses the importance of working closely with healthcare providers to ensure vaccinations are administered safely and effectively.We also cover Graft-Versus-Host Disease (GVHD), a common complication where donor cells attack the recipient's body. Flora describes the various manifestations of GVHD, with skin rashes being the most common and easier to treat, compared to gastrointestinal symptoms which are more challenging. She urges patients to report any symptoms promptly to their healthcare team to ensure early intervention and better outcomes.Flora provides reputable resources for further information on GVHD, including the GVHD Alliance, nbmtLINK, BMT Infonet, and the National Marrow Donor Program (NMDP). We also acknowledged the Meredith Cowden Foundation for its dedication to GVHD awareness and support.Caregiver support is another vital area discussed. Flora highlights the importance of acknowledging caregiver fatigue and ensuring caregivers seek support and communicate openly about their needs. She emphasizes the importance of caregivers taking care of their own health to provide better care for their loved ones.In wrapping up, Flora advises patients to be patient with their recovery process, recognizing that it can take months or even years to regain their strength. She also acknowledges the psychological impact of the transplant journey, mentioning that PTSD can occur even years later. Flora encourages patients to seek mental health support if needed.Flora's insights were not only informative but deeply compassionate, reflecting her dedication to improving the lives of transplant patients and their families. We are grateful for her expertise and the valuable information she shared.Resources:PDF files of vaccination Schedules for Auto and Allo TransplantsUC Davis Comprehensive Cancer Center : https://health.ucdavis.edu/cancer/GVHD Alliance: https://www.gvhdalliance.org/Meredith Cowden Foundation http://www.cowdenfoundation.org/BMT Infonet https://www.bmtinfonet.org/NMDP (National Marrow Donor Program) https://bethematch.org/National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINKnbmtLINK YouTube Page can be found by clicking here.Thank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/ Follow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/

Phil discusses his diagnosis of diffuse aggressive B-cell non-Hodgkin's lymphoma and his reflections on dealing with cancer for the second time, emphasizing his attempts to put affairs in order and contemplate the significance of life and the possibility of an afterlife. Jackie shares her story of being diagnosed with leukemia at 17, undergoing a bone marrow transplant, and facing various long-term side effects and subsequent cancer diagnoses. The conversation also explores their attitudes towards treatment decisions, the importance of self-care, and the support they've received from their community. Throughout, both exhibit a strong sense of resilience, focusing on living in the present, the therapeutic value of creating art, and the idea of legacy and impact on others. 00:00 A Heartfelt Conversation on Cancer and Resilience 02:32 The Second Battle: Doubts and Reflections 13:35 Navigating Treatment Choices and Embracing Uncertainty 18:52 Exploring Faith and Spirituality Through Cancer Recovery 22:06 Reflecting on Life's Challenges and the Journey of Recovery 22:19 Embracing Retirement and Passing the Torch 23:33 The Essence of Recovery and Self-Care 27:22 Personal Growth and Future Aspirations 34:41 The Healing Power of Community Support and Spirituality 38:37 Navigating the Side Effects of Treatment and Embracing Change

When's the last time you asked for help?  This short episode touches on our interconnectedness and the importance that we all play in each other's lives, as well as a time-sensitive request:  Lauren's casting a net to help build a care support team for her friend undergoing a bone marrow transplant.  If you or anyone you know is available for a unique caregiving opportunity near Johns Hopkins Hospital in Baltimore for mid-April through mid-June 2024, whether it be a nurse, retiree, or someone simply with a big heart and a flexible schedule, please contact Lauren directly at lauren@laurensamay.com Any leads are greatly appreciated. You can connect with Lauren on Instagram via @lauren.samay and @mymourningroutinepodcast, on Facebook @lauren.samay.coaching or through www.laurensamay.com If you are tuning in and finding value in these episodes, please take a moment to rate and review My Mourning Routine on Apple Podcasts-- it means so much and helps make a bigger, connecting splash in the podcasting pond:  https://podcasts.apple.com/us/podcast/my-mourning-routine/id1654068541 Sign up for Lauren's newsletter here.

Ed Elder is a staple in the Kansas City business community, as President of the Kansas City office of Colliers, a leading diversified professional services and investment management company, as well as an active member of the Kansas City community, which includes his service on the Board of Directors for KU Cancer Center's Cancer Funding Partners. He also formerly served as a board member for Coaches vs. Cancer with the American Cancer Society. While Ed has been a long-time advocate for cancer research and treatment advances through these roles, the cause became even more personal when both Ed and his wife were separately diagnosed with different cancers, leading to them going through treatment at the same time. Ed joins podcast host Dr. Roy Jensen, vice chancellor and director of KU Cancer center, to talk more about his family's story, how they came together to persevere through countless obstacles, and to share what he's learned along the way. Do you have questions about cancer? Call our Bench to Bedside Hotline at (913) 588-3880 or email us at benchtobedside@kumc.edu, and your comment or question may be shared on an upcoming episode! If you appreciated this episode, please share, rate, subscribe and leave a review. To ensure you get our latest updates, For the latest updates, follow us on the social media channel of your choice by searching for KU Cancer Center. Links from this Episode:  Learn more about Ed Elder Learn more about blood cancer treatment and research at KU Cancer Center Learn how to give back to KU Cancer Center Find more information on the American Cancer Society's Coaches vs Cancer program

2023 ended with an exciting biotech breakthrough for sickle cell patients. A gene-editing therapy using the revolutionary CRISPR technology provides new hope and options for the nearly 100,000 Americans with sickle cell disease. In this episode, we talk with the company behind one of the life-changing therapies, CASGEVY, and speak with two advocates for sickle cell patients. Follow us on LinkedIn, X, Facebook and Instagram. Visit us at https://www.bio.org/

Featuring Christina Augustine and Dr. Alexander I. Ngwube, MD, this episode provides an comprehensive exploration on bone marrow transplant (BMT) for sickle cell disease, blending personal experiences with professional expertise. A huge thank you to Be the Match for Sponsoring this episode. For more information about Be the Match, visit: https://sicklecellconnect.com --- Support this podcast: https://podcasters.spotify.com/pod/show/thesicklecellpodcast/support --- Support this podcast: https://podcasters.spotify.com/pod/show/thesicklecellpodcast/support

**Disclaimer: The information in this podcast should not be construed as medical advice. Please consult with your health care provider regarding your medical decisions and treatment. Any listed resources are not intended to be endorsements.**In today's episode, we had the privilege of speaking with Alan Katz, a Massachusetts resident and a survivor of Acute Myeloid Leukemia (AML). Alan's journey through his diagnosis, treatment, and life post-transplant is both inspiring and enlightening. He shares his experience of battling the disease with a robust support system, offering hope and encouragement to those facing similar challenges.Alan's story began with unusual health symptoms that surfaced in 2019, eventually leading to an unexpected AML diagnosis in November 2020. He recounts the various medical anomalies he encountered, including mono, vitreous detachment, back issues, and a case of poison ivy, which collectively hinted at underlying health problems. This series of events culminated in an orthopedic visit, where an MRI revealed abnormalities in his bone marrow, prompting urgent cancer treatment.The swift pace of his diagnosis and treatment left little time for Alan to process the situation. He underwent a bone marrow transplant after finding a match through The Gift of Life, a bone marrow registry associated with Be The Match. This organization played a pivotal role in his journey, especially given the unique challenges faced by individuals of Ashkenazic Jewish descent in finding compatible donors. Since then, more Jewish individuals are on the registry, but Alan is working to improve the numbers for currently underserved communities.Alan's transplant, a significant milestone in his recovery, was celebrated as his "re-birthday". However, his battle didn't end there. He faced a relapse 97 days post-transplant, which required further intensive treatment, including chemotherapy and a donor lymphocyte infusion. This challenging period underscored the critical role of a strong support system. Alan emphasizes the importance of support from family and friends, particularly highlighting the unwavering care provided by his wife, who became his primary caregiver.Throughout the podcast, Alan discusses the physical and mental toll of AML treatment and recovery. He speaks candidly about the daily struggles, from dealing with fatigue and following a strict medication regimen to the mental grind of enduring a long recovery process. He shares practical advice and coping mechanisms, such as living one day at a time and never giving up, which helped him navigate the journey.Volunteering and advocacy became integral parts of Alan's life post-recovery. He engages in various activities, including mentoring AML patients, organizing fundraising events, and promoting the importance of diverse bone marrow registries. His efforts aim to inspire, educate, and support others facing similar battles.Alan's story is not just about surviving a life-threatening illness but also about the transformative power of human resilience, community support, and the importance of giving back. His journey from diagnosis to recovery and advocacy offers valuable insights and hope to those affected by AML and other challenging health conditions.Gift of Life Bone Marrow Registry: https://www.giftoflife.org/Be the Match Website: https://bethematch.org/Book: Between Two Kingdoms: A Memoir of a Life Interrupted: https://www.amazon.com/Between-Two-Kingdoms-Memoir-Interrupted/dp/B08BTMJ2RGOther Resources:National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINKnbmtLINK YouTube Page can be found by clicking here.Thank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/

After returning from a trip to the Zoo in 2019 with her then 5 year old son Sawyer and her 2 1/2 year old daughter Isla , Autumn Gentry noticed a number of freckles on Isla's body. After being reassured by Isla's Pediatrician that she was a "healthy child", her doctor ordered blood tests just to be sure that everything was okay, which it was not. Isla was quickly diagnosed with the Pediatric Blood Cancer Acute Myeloid Leukemia. After a relapse 5 month's after her diagnosis, Isla was preparing for a Bone Marrow Transplant which never happened and then a clinical trial which did not work. Almost nothing went right for Isla during her treatment and she passed away in August of 2020.

Welcome to Season 12 of the Marrow Masters Podcast, brought to you by the National Bone Marrow Transplant link, and sponsored by Sanofi. This season focuses on one critical question. "I'm home, now what?" You'll hear candid stories and advice from survivors and caregivers. This season, you'll also get valuable advice from a registered dietician and a social worker. .Season 12 of the Marrow Masters Podcast is out December 19th, 2023. Don't miss an episode - follow our show for free on Apple, Spotify, YouTube, or at N-B-M-T-link-dot-org.

A great week on The Nikki & Brie Show continues as USWNT soccer legend Mia Hamm joins them for an exceptional conversation that covers her career on the field, her perspective on being a mother, her work to raise awareness for bone marrow transplants and the special connection she has to the bone marrow transplant community. For years Nikki & Brie have been putting it out in the universe that they wanted to get Mia Hamm on the podcast. Growing up in Arizona and playing soccer, they both looked up to the USWNT that won multiple World Cups and Olympic Gold medals, and created a path of empowerment and achievement in life. Mia talks about the responsibility and opportunity that the team embraced, knowing that young eyes across the country were watching their every move, raising twin girls, filming a legendary Gatorade commercial with Michael Jordan and what his support meant, exhausting practices that tested her mental fortitude, and how she was introduced to the game of soccer, and the WWE superstar that used to throw her into a pool as a kid that went on to also have a Hall of Fame career. Mia also highlights the importance of her big brother Garrett, whom she admired greatly, who passed away in 1997 from complications following a bone marrow transplant (BMT) his family hoped could help cure aplastic anemia, a rare bone marrow disease he was battling at the time, which is why bone marrow transplant support and gave her a new mission in life to help other families, teaming up with Incyte to make sure they get the tools and information they need with a procedure that can have serious complications like Graft Versus Host Disease (GVHD). Mia closes out the episode with a special Inspiration & Affirmation that focuses on being present in a world that's full of distractions. For more on Mia's work with BMT and GVHD check out this link Find out more about bone marrow transplants at The Mia Hamm Foundation Follow Mia on Instagram Call Nikki & Brie at 833-GARCIA2 and leave a voicemail!Follow Nikki & Brie on Instagram and send Nikki & Brie a message on Threads!To watch exclusive videos of this week's episode, follow The Nikki & Brie Show on YouTube, Facebook, and TikTok!  

In this latest episode of ASTCT Talks, Misty Evans, DNP, APRN, CPNP-AC, sits down with Flora Stondell, FNP, to delve into the intricacies of University of California, Davis' (UC Davis') transplant and cellular therapy program, with a specific focus on CAR-T cell therapy. In this insightful conversation, they discuss topics such as patient access, the timeline from referral to CAR-T therapy initiation, overcoming insurance barriers, and the patient education process. Stondell shares valuable insights gained from her experience in the field, highlighting the crucial role of advanced practice providers (APPs) in delivering high-quality care throughout the CAR-T therapy journey. About Misty Evans, DNP, APRN, CPNP-AC Dr. Misty Evans (@MistyEvansDNP) is an Associate Professor at Vanderbilt University School of Nursing. She is also nurse practitioner at Sarah Cannon Pediatric Hematology/Oncology & Cellular Therapy at TriStar Centennial in Nashville, TN. Dr. Evans has a strong clinical background in pediatric hematology-oncology and hematopoietic stem cell transplant. She currently serves as ASTCT Director of APPs. About Flora Stondell, FNP Flora Stondell is an Advanced Practice Supervisor and the Assistant Director for the Bone Marrow Transplant service at the University of California, Davis (UC Davis) Health. She specializes in Cellular Therapy and Bone Marrow/Stem Cell Transplant, which includes: autologous, allogeneic (matched and mis-matched donors), and haplo-identical transplant. She focuses on the care of patients during pre-transplant and post-transplant. She also assists in providing consultation for patients who may be eligible for transplant.

Building a Culture of Wellness is a Process with Anna Fitch Courie In this episode Conrad talks with Dr. Anna Fitch Courie, Director of Responder Wellness, with the FirstNet Program at AT&T. Their conversation centers around the need to support first responders with the resources they need to thrive and live healthy lives. Dr. Courie, is the Director of Responder Wellness, with the FirstNet Program at AT&T. She is a nurse, Army wife, former university faculty, and author. Dr. Courie has worked for more than 20 years in the health care profession including Bone Marrow Transplant, Intensive Care, Public Health, and Health Promotion practice. She holds a Bachelor's in Nursing from Clemson University; a Master's in Nursing Education from the University of Wyoming; and a Doctor of Nursing Practice degree from the Ohio State University. Dr. Courie's area of expertise is integration of public health strategy across disparate organizations to achieve health improvement goals. Learn more about Responder Wellness, with the FirstNet Program: https://www.firstnet.com/community/health-and-wellness.html White Paper: https://www.firstnet.com/content/dam/firstnet/white-papers/firstnet-helping-the-helpers.pdf   +++++ First Responder Wellness Podcast Patreon Channel: https://www.patreon.com/FirstResponderWellnessPodcast PTSD911 Documentary: https://ptsd911movie.com/ Purchase the PTSD911 film for your public safety agency or organization: https://ptsd911.myshopify.com/products/ptsd911-digital-toolkit-pre-orders-only

Sabrina of The Budding Optimist teaches you how to love yourself unconditionally, even when you're suffering. This is part 2 of 2. Episode 1883: [Part 2] How To Love Yourself Unconditionally, Even When You're Suffering by Sabrina of The Budding Optimist Sabrina is a two-time Leukemia survivor, the recipient of a Bone Marrow Transplant, and a person living with a rare, progressive, and irreversible lung condition called Bronchiolitis Obliterans. But more importantly, she is a Foodie, a Traveller, a Health Enthusiast, and an Aspiring Writer. She is also what she calls a “Budding Optimist”. Her goal is to live a healthy life filled with an abundance of joy and optimism. The original post can be found here: https://buddingoptimist.com/how-to-love-yourself-unconditionally/ Visit Me Online at OLDPodcast.com Interested in advertising on the show? Visit https://www.advertisecast.com/OptimalRelationshipsDailyMarriageParenting Learn more about your ad choices. Visit megaphone.fm/adchoices

Sabrina of The Budding Optimist teaches you how to love yourself unconditionally, even when you're suffering. This is part 1 of 2. Episode 1882: [Part 1] How To Love Yourself Unconditionally, Even When You're Suffering by Sabrina of The Budding Optimist Sabrina is a two-time Leukemia survivor, the recipient of a Bone Marrow Transplant, and a person living with a rare, progressive, and irreversible lung condition called Bronchiolitis Obliterans. But more importantly, she is a Foodie, a Traveller, a Health Enthusiast, and an Aspiring Writer. She is also what she calls a “Budding Optimist”. Her goal is to live a healthy life filled with an abundance of joy and optimism. The original post can be found here: https://buddingoptimist.com/how-to-love-yourself-unconditionally/ Visit Me Online at OLDPodcast.com Interested in advertising on the show? Visit https://www.advertisecast.com/OptimalRelationshipsDailyMarriageParenting Learn more about your ad choices. Visit megaphone.fm/adchoices

Rise to the Challenge Podcast mission is Real Life Stories, Real Motivations, To Inspire All Generations. In each episode, we bring guests on the show from all background, all experiences, and all generations to share their story about overcoming challenges, accomplishing their goals, and rise to the challenge. Our guests get real about their experiences because we all have our own story and journey that we are on. Come on the journey with our guest and maybe your story connects, learn something new, and so much more when our guests are on the show. What is your Rise to the Challenge you are going on right now? Let us know. Make sure to subscribe to all of our platforms from Youtube, Apple Podcast, Spotify, Google Podcast, iHeart Radio, and More. Follow the show to stay up to date on new episodes. This episode, we bring our guest Joey Hyde to the show. Joey has a great story in sharing from his experiences.  Joey shares about: - Going through Bone Marrow Transplant - Health and Fitness playing a big part - Mental Health struggles and battles - Finding a path - Family Addictions and Challenges - Moving around - So much more that you don't want to miss Check out Joey Hyde at: - IG: @joeydhyde

Have you ever been in awe of God's timing and God's fingerprints all over the details of a story? I am excited to tell you about one that recently happened. I don't know if you heard last week's episode, but I talked with Jessica Young, and she was one of my special mom stories. Her daughter, Adlie, has a rare genetic disorder and on that episode, we talked about how Adlie had a bone marrow transplant. If you missed our conversation, I highly recommend listening to it first and this one second. I promise the truths that Jessica shares are powerful. This week, I am super excited to be talking with Adlie, Jessica's daughter. She is going to share the story from her perspective, and I am just in awe of her maturity and wisdom at the young age of ten years old. I promise you do not want to miss one word she shares. She is so inspiring and making such an impact on others.  So, we will start by listening to our conversation—one of my favorites. And then I have a special God story to share with you that happened after my interviews with Jessica and Adlie. It is a “God-Incident”. Link to the Be the Match, Bone Marrow Registry Link to Red Cross Blood Donations

Sabrina of The Budding Optimist shares 7 steps to embracing change. This is part 2 of 2. Episode 2709: [Part 2] 7 Steps to Embracing Change Without Fear or Frustration by Sabrina of Budding Optimist Sabrina is a two-time Leukemia survivor, the recipient of a Bone Marrow Transplant, and a person living with a rare, progressive, and irreversible lung condition called Bronchiolitis Obliterans. But more importantly, she is a Foodie, a Traveller, a Health Enthusiast, and an Aspiring Writer. She is also what she calls a “Budding Optimist”. Her goal is to live a healthy life filled with an abundance of joy and optimism. The original post can be found here: https://buddingoptimist.com/embracing-change/ Visit Me Online at OLDPodcast.com  Interested in advertising on the show? Visit https://www.advertisecast.com/OptimalLivingDaily Learn more about your ad choices. Visit megaphone.fm/adchoices

Sabrina of The Budding Optimist shares 7 steps to embracing change. This is part 1 of 2. Episode 2708: [Part 1] 7 Steps to Embracing Change Without Fear or Frustration by Sabrina of Budding Optimist Sabrina is a two-time Leukemia survivor, the recipient of a Bone Marrow Transplant, and a person living with a rare, progressive, and irreversible lung condition called Bronchiolitis Obliterans. But more importantly, she is a Foodie, a Traveller, a Health Enthusiast, and an Aspiring Writer. She is also what she calls a “Budding Optimist”. Her goal is to live a healthy life filled with an abundance of joy and optimism. The original post can be found here: https://buddingoptimist.com/embracing-change/ Visit Me Online at OLDPodcast.com  Interested in advertising on the show? Visit https://www.advertisecast.com/OptimalLivingDaily Learn more about your ad choices. Visit megaphone.fm/adchoices

Sabrina of The Budding Optimist teaches you the best strategies for dealing with toxic family members. This is part 2 of 2. Episode 1676: [Part 2] How to Deal With Toxic Family Members Without Losing Your Mind by Sabrina of The Budding Optimist Sabrina is a two-time Leukemia survivor, the recipient of a Bone Marrow Transplant, and a person living with a rare, progressive, and irreversible lung condition called Bronchiolitis Obliterans. But more importantly, she is a Foodie, a Traveller, a Health Enthusiast, and an Aspiring Writer. She is also what she calls a “Budding Optimist”. Her goal is to live a healthy life filled with an abundance of joy and optimism. The original post can be found here: https://buddingoptimist.com/how-to-deal-with-toxic-family-members-without-losing-your-mind/   Visit Me Online at OLDPodcast.com  Interested in advertising on the show? Visit https://www.advertisecast.com/OptimalRelationshipsDailyMarriageParenting Learn more about your ad choices. Visit megaphone.fm/adchoices

Sabrina of The Budding Optimist teaches you the best strategies for dealing with toxic family members. This is part 1 of 2. Episode 1675: [Part 1] How to Deal With Toxic Family Members Without Losing Your Mind by Sabrina of The Budding Optimist Sabrina is a two-time Leukemia survivor, the recipient of a Bone Marrow Transplant, and a person living with a rare, progressive, and irreversible lung condition called Bronchiolitis Obliterans. But more importantly, she is a Foodie, a Traveller, a Health Enthusiast, and an Aspiring Writer. She is also what she calls a “Budding Optimist”. Her goal is to live a healthy life filled with an abundance of joy and optimism. The original post can be found here: https://buddingoptimist.com/how-to-deal-with-toxic-family-members-without-losing-your-mind/   Visit Me Online at OLDPodcast.com  Interested in advertising on the show? Visit https://www.advertisecast.com/OptimalRelationshipsDailyMarriageParenting Learn more about your ad choices. Visit megaphone.fm/adchoices