The podcast explores the current issues people living with HIV experience that impact on their quality of life. The podcast aims to provide educational content and discussions with key leaders in HIV care in the UK, Europe and America. Exploring issues in a conversational solution focused approach will lead to a greater understanding of the needs of people living with HIV and enhance healthcare professional’s ability to provide person centred care. Throughout each episode there will be a specific show theme which will focus on current and topical issues within HIV care, either from a clinical or research perspective. The focus of HIV matters podcast series aims to showcase innovation and best practice within the field of HIV care.
David Munns steps in to host this insightful episode of HIV Matters, where he welcomes Dr. Ghadeer Elrefaey, a psychiatrist in training, to delve into the critical intersection of Mental Health and HIV. They explore the unique challenges faced by individuals living with HIV, examining the impact on mental wellbeing and the importance of integrated care.Episode GuestDr Ghadeer ElrefaeyGhadeer Elrefaey is a dedicated psychiatrist in training at the Central and North West London NHS Foundation Trust, currently working within the General Adult Psychiatry Community Team. Passionate about global health and community service, she aims to bridge knowledge gaps and improve healthcare access. Her commitment to advocacy and health promotion is evident in her work, including her involvement with CNWL's Improvement Academy.Additional Information and Links CW Plushttps://www.cwplus.org.uk/HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
HIV Matters explores "Psychological Standards" and the evolving landscape of HIV knowledge. Michelle welcomes Helena King, Senior Lecturer in Management and Health at the Open University, to discuss the latest advancements in HIV understanding and policy.Episode GuestDr Helena KingHelena is a health sociologist and senior lecturer focusing on the link between health and social environments. Her work explores wellbeing, public health, health stigma, and the role of charities in complex care, alongside contributing to healthcare policy. She teaches within the Department of Public Leadership and Social Enterprise.Additional Information and Links CW Plushttps://www.cwplus.org.uk/HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
HIV Matters puts the spotlight on the "Terrence Higgins Trust" in this informative episode. Michelle is joined by returning guest host Winnie and special guest Richard Angell to discuss the vital work of this renowned organisation in supporting people affected by HIV.Episode GuestRichard Angell OBERichard is Chief Executive of Terrence Higgins Trust, joining in March 2023. Formerly Campaigns Director and interim Head of Policy & Public Affairs, he led the charity's 40th-anniversary commemorations and secured over £67m in government funding for opt-out HIV testing in A&E. He also spearheaded successful campaigns against discriminatory bans affecting people with HIV in the military, driving, and blood donation. A University of Birmingham graduate, Richard previously directed the think tank Progress and advised leaders across various sectors.Additional Information and Links CW Plushttps://www.cwplus.org.uk/Terrence Higgins Trusthttps://www.tht.org.uk/HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
HIV Matters tackles the important topic of "HIV and Aging." Michelle welcomes Anne Hughes from George House Trust to discuss the unique challenges and considerations faced by older adults living with HIV. Tune in for insights on aging gracefully, managing long-term health, and accessing specialised support services.Episode GuestAnna HughesAnna coordinates the Ageing Well Programme at George House Trust, supporting over-50s living with HIV in Greater Manchester and Liverpool. The programme offers social activities, skills training, and volunteering opportunities, both at George House Trust and in the community. Anna also delivers HIV awareness training to care homes and other organisations supporting older people. She oversees all aspects of this vital project.Additional Information and Links CW Plushttps://www.cwplus.org.uk/George House Trusthttps://ght.org.uk/HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
HIV Matters presents "Living Unashamedly with HIV." Michelle sits down with Matthew Hodgson, former CEO of Gay Men Fighting AIDS and prominent HIV activist, to discuss his journey of living openly with HIV. From his leadership roles to his unwavering advocacy, Matthew shares his insights on overcoming stigma and embracing life authentically.Additional Information and Links CW Plushttps://www.cwplus.org.uk/HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
HIV Matters explores the "Silent Voices" within the HIV community in this poignant episode. Michelle sits down with Lynda Shentall to discuss the experiences of those whose stories often go unheard. Tune in for a conversation that sheds light on the hidden challenges and triumphs faced by individuals living with HIV.Episode GuestLynda Shentall is a social worker and Service and Development Manager for the HIV charity George House Trust in Manchester. With 30 years' experience in social care, she is a trustee for Independent Choices, supporting women experiencing domestic abuse. Lynda's PhD explored the intersection of domestic abuse and HIV in women. She lectures in Social Work at the University of Salford.Additional Information and Links CW Plushttps://www.cwplus.org.uk/HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
For our landmark 50th episode, we've got a special treat! We welcome back our friend of the podcast, Jaime Garcia-Iglesias, to discuss DoxyPEP. Plus, we're sharing the initial conversations from our World AIDS Day roundtable, recorded on November 29th, 2024. Join Jaime and chair Chase Ledin as they explore the emergence of DoxyPEP in UK sexual healthcare, and discuss the hopes and concerns surrounding its implementation.Episode GuestJaime Garcia-IglesiasJaime is a Mildred Baxter Postdoctoral Research Fellow at the Centre for Biomedicine, Self and Society at The University of Edinburgh. Jamie is working on exploring how sexual fantasies and desires can be harnessed for HIV prevention by engaging with a range of stakeholders.Additional Information and Links CW Plushttps://www.cwplus.org.uk/HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
HIV Matters takes listeners to Sierra Leone in this compelling episode. Michelle welcomes Prof Simon Taylor-Robinson and Álvaro del Valle Palacios to discuss the vital work of MINI's Village Foundation. They'll explore the challenges of HIV/AIDS and hepatitis B in Sierra Leone and how MVF is providing free healthcare and education to combat these diseases and reduce stigma.Episode GuestsProf Simon Taylor-RobinsonSimon is a hepatology professor at Imperial College London and former Dean of its School of Medicine, is a Fellow of the Royal College of Physicians and the West African College of Physicians. With extensive HBV project experience in West Africa, he holds an honorary Professorship at the Nigerian Institute of Medical Research.Álvaro del Valle PalaciosÁlvaro is a lawyer with a LLB from Complutense University of Madrid and a PGCert in Human Rights Law from SOAS, is completing a MA in Corporate Communications. He serves as an executive member and Director for Media and Communications for MVF.Additional Information and Links CW Plushttps://www.cwplus.org.uk/HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
HIV Matters puts the spotlight on "Putting People First" in this insightful episode. Michelle welcomes Darren Knight from George House Trust to discuss their crucial work in providing support and advocacy for people living with HIV.Episode GuestDarren KnightDarren Knight is Chief Executive of George House Trust, a charity supporting people with HIV. With 20 years in the sector, he focuses on inclusion, capacity building and empowering those with lived experience. He is passionate about creating a world where HIV holds no one back.Additional Information and Links CW Plushttps://www.cwplus.org.uk/HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
HIV Matters explores the power of personal narratives in "Our Stories Told By Us." Join Michelle, extra special guest host Winnie, and Oonagh O'Brien for a discussion on the impact of sharing lived experiences and the diverse journeys within the HIV community.Episode GuestOonagh O'BrienOonagh is a Lecturer in Global Health and Development at Queen Margaret University in Edinburgh, Scotland. Her work focuses on gender, sexual health, and the prevention of female genital mutilation (FGM). Oonagh has a long-standing commitment to human rights, especially the women's movement and the rights of people living with HIV. She brings a wealth of international experience and a passion for social justice to her teaching and research.Additional Information and Links CW Plushttps://www.cwplus.org.uk/HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
HIV Matters dives into the world of dating apps and their impact on the HIV community. Michelle sits down with Jaime Cortez-Garcia to explore how these platforms are changing the landscape of dating, relationships, and stigma for people living with HIV.Episode GuestJaime Garcia-CortezJaime is a Midred Baxter Postdoctoral Research Fellow at the Centre for Biomedicine, Self and Society at The University of Edinburgh. Jamie is working on exploring how sexual fantasies and desires can be harnessed for HIV prevention by engaging with a range of stakeholders.Additional Information and Links CW Plushttps://www.cwplus.org.uk/HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
HIV Matters continues with a powerful episode featuring returning guest Stephen Hart. Michelle explores Stephen's incredible life story, as told through his acclaimed one-man show "Shadowed Dreamer.".Episode GuestStephen Hart is well known for the critically acclaimed off-broadway show "Shadowed Dreamer", discussing life after becoming a man living with HIV. When finishing this show, Stephen knew there was something more he could do, so decided to start uploading videos to YouTube under the title "Hart Talks".Additional Information and Links CW Plushttps://www.cwplus.org.uk/HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
HIV Matters returns for its fifth series! In "New Chapter," Michelle catches up with producer Dan and friend of the show David Munns to discuss the evolving landscape of HIV and what they have in store for listeners this season.Episode GuestsProducer Dan (Heggie)Dan is a highly experienced and self-motivated Lecturer at the University of East Anglia (UEA) with a passion for teaching and a strong clinical background. He is a confident and engaging communicator with a proven track record of delivering high-quality education and training.David MunnsDavid Munns is a Clinical Nurse Specialist in London, providing vital mental health support to people living with HIV. He helps patients manage the challenges of aging with HIV, including depression, PTSD, and addiction.Additional Information and Links HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
In this episode, Michelle catches up with friend of the podcast Katie Warburton on updates to her research and work within children living with HIV.Episode GuestKatie Warburton is a lecturer at The University of Central Lancashire (UCLAN) and is active member of CHIVA's executive committee. Additional Information and Links For more information on naming of HIV and information on supporting children living with HIVhttps://www.chiva.org.uk/ourworkprof/tr/National HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
In this episode, Michelle chats with Dr Philip Ambulai and Rebecca Kanu about Mini's Village Foundation.Subject Description - Mini's Village Foundation (MVF)By 2025, MVF aims to raise awareness and provide screening for HIV and HBV, enabling early treatment interventions and combating the stigma associated with these conditions in Sierra Leone. MVF's mission is to support sexual disease awareness, immunisation, and treatment initiatives, particularly for young people aged 14-50 years. Committed to delivering high standards of safety and compassionate care, MVF collaborates with patients, families, medical professionals, and communities. Their core values include respect, integrity, and teamwork, ensuring patient needs are at the heart of their sustainable services.Episode Guest - Dr Philip AmbulaiDr. Philip Lahai Ambulai is the CEO and Director of a leading micro medical diagnostic company and the Founder and Director of Mini's Village Foundation (MVF), a UK-registered not-for-profit organization (registration number 1205457). With over 15 years of clinical and research expertise, Dr. Ambulai is dedicated to advancing healthcare solutions. MVF, under his leadership, provides free healthcare services to individuals living with HIV/AIDS, HBV, and STDs in Sierra Leone, reflecting his commitment to improving health outcomes for vulnerable populations.Episode Guest - Miss Rebecca KanuRebecca Kanu is the Co-Founder of MVF and currently works as a Senior Clinical Research Coordinator. Named in honor of Rebecca's mother, Mini, who contracted HIV through a needle stick injury while serving as a nurse, MVF embodies a deep commitment to healthcare and community support. Rebecca plays a pivotal role in advancing MVF's mission to combat the stigma associated with HIV/AIDS and HBV in Sierra Leone. Mini's Village Foundation LinksWebsite - https://www.minisvillagefoundation.orgEmail - info@minisvillagefoundation.orgContact Number - +44 (0) 7852 148177Additional Information and Links National HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
In this episode, Michelle chats with Dr Orla McQuillan.Episode Guest - Dr Orla McQuillanDr. Orla McQuillan is a Consultant Physician specialising in Genitourinary Medicine, HIV, and Sexual Health at the Withington and Hathersage Centre. She serves as the Fast Track Clinical Lead for Manchester and the site lead for HIV testing. She advocates for the widespread availability of PrEP medication and focuses on raising awareness, education, and enhancing testing and outreach to identify undiagnosed HIV cases in Greater Manchester.Additional Information and Links National HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
In this episode, Michelle chats with the Chair of NHIVNA and HIV Nurse of the Year Linda Panton.Episode Guest - Linda PantonLinda Panton, a seasoned clinical nurse specialist, leads HIV care at Edinburgh's Infectious Diseases Unit. With 30 years in the field, she emphasizes compassionate, comprehensive care. Linda was honored as HIV Nurse of the Year in 2022 and chairs the National HIV Nurses Association (NHIVNA) Executive. She actively contributes to national initiatives and conferences, focusing on advancing HIV nursing practices.Additional Information and Links National HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
In this episode, Michelle chats with Jen Kendrick around her leadership in HIV care simulated learning.Episode Guest - Jen KendrickJen Kendrick is the lead HIV clinical specialist nurse at The Hathersage Centre in Manchester, with 13 years of experience in the field. She began as a band 5 rotational nurse and has since advanced to her current role. Drawn to HIV care by its challenges, Jen finds it profoundly rewarding. She uses her expertise to support patients' health and social care needs, offering ongoing psychological support. Jen also chairs the north west HIV nursing alliance and looks forward to contributing to the NHIVNA executive committee, aiming to enhance support for people living with HIV nationally.Additional Information and Links National HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
Join Michelle as she chats with Graeme Lavery about living with HIV and Autism. Episode GuestsGraeme LaveryGraeme Lavery, a Liverpool-based textile artist, draws inspiration from pop culture and LGBT history. Returning to Liverpool in 2014, Graeme joined Sahir House, becoming a public speaker but initially keeping his HIV status private due to stigma. In 2016, he embraced visibility at Liverpool Pride, dressing as "Cupid Stunt" and leading Sahir House. Graeme finds empowerment in textile art, exploring identity and resilience. He connects his craft to the legacy of AIDS, honoring LGBT communities and celebrating life and love.Additional Information and Links HIV Matters Bookstore https://uk.bookshop.org/shop/HIVMattersHow to contact the show Dr Michelle Croston @ hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
Fast Track CityIn this episode, Michelle and Angelina discuss Fast Track Cities with Ian Jackson.Episode Background - Fast Track CitiesThe Fast-Track Cities initiative is a global partnership between cities and municipalities around the world and four core partners – the International Association of Providers of AIDS Care (IAPAC), the Joint United Nations Programme on HIV/AIDS (UNAIDS), the United Nations Human Settlements Programme (UN-Habitat), and the City of Paris.Additional Information and Links National HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
Join Michelle as she catches up with the progress of the wonderful 'Our Stories Told by Us' book tour with Winnie Ssanyu Sseruma and Memory Sachikonye. Episode GuestsWinnie Ssanyu SserumaWinnie Ssanyu-Sseruma is an International Development consultant based in London, UK. Her consultancy focuses on health trainings, community research, and program evaluations, supporting organizations addressing social justice, women's leadership, and HIV & AIDS. She currently monitors and assesses community health initiatives across 20 African countries for the Stephen Lewis Foundation in Toronto, Canada.In the UK, Winnie has worked with organizations like HIV I-Base, Partners in Evaluation, and Christian Aid. In Uganda, her ancestral home, she co-founded the Bridging A Gap Initiative (BAGCI), providing breakfast to nearly 200 vulnerable children each morning for 17 years. In 2022, Winnie co-founded the Mentoring Omwana (Child) Project, helping young people access opportunities and develop skills, especially in computer literacy. She holds a BA in Sociology from Saint Mary University in Leavenworth, Kansas, USA.Memory SachikonyeMemory Sachikonye, living with HIV since 2002, coordinates the UK Community Advisory Board (UK-CAB), uniting over 800 advocates from 120 organizations. She works part-time as Admin and Finance Lead at Positively UK, while also serving as a peer mentor and championing women's rights to services and treatment access. Memory is a community representative on the POPPY study, examining outcomes for people with HIV over 50 in England and Ireland. With various roles on HIV study committees, she contributes to trial design and management. Additionally, Memory is a member of the European AIDS Treatment Group (EATG) and serves on its Development and Membership Advisory Group (DMAG).Additional Information and Links Our Stories Told by Us Websitehttps://ourstoriestoldbyus.com/HIV Matters Bookstore https://uk.bookshop.org/shop/HIVMattersHow to contact the show Dr Michelle Croston @ hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
The HIV PodcastIn this episode, Michelle speak with the hosts of the HIV Podcast, Sarah Macadam and Jessica Harding. They discuss the success of the podcast, what it means to have the responsibility of an audience and tips on your own podcast journey.Episode Guests - Sarah Macadam and Jessica Harding 'The HIV Podcast'The HIV Podcast separates fact from fiction and tackles HIV myths and misconceptions. We cover all things HIV related from people to historical events, law, health, taboo topics and pop-culture moments - basically everything you need to know about HIV! Join hosts Sarah Macadam and Jessica Harding every Friday where they will take you on a journey that's surprising, shocking, educational and sometimes hilarious - this podcast will make you laugh as much as it will make you gasp!Additional Information and Links National HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
The focus of the podcast will explore the new platform for people living with HIV living with HIV and Allies. Throughout the podcast we discuss the thinking behind Positive +1 and the benefits of engaging in the online content. Episode GuestChristian is an entrepreneur and the creator of positive +1. Additional Information and Links National HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstore https://uk.bookshop.org/shop/HIVMattersHow to contact the show Dr Michelle Croston@https://hiv-matters.captivate.fm
Monkeypox In this episode, Michelle and Producer Dan talk about the 2023 NHIVNA Conference and Michelle shares and reviews one of her favourite new podcasts.Episode Guest - Producer DanProducer Dan works as a Senior Lecturer in Nursing at Anglia Ruskin University. He has been working on HIV Matters since the beginning and we are always thankful of the work he puts in to give us our great episodes.Additional Information and Links National HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
Monkeypox This episode of the podcast returns to the current narrative of Monkeypox and understands if we have learnt anything from previous epidemics. Within the interview we explore the current themes that are being portrayed in the media with regards to how pandemics are being reported and the lessons we can learn from this as a society. Episode Guest- Dr Maurice Nagington and Dr Jaime García-IglesiasMaurice Nagington is an academic and researcher at the University of Manchester, his research interest includes LGBT health, HIV, ageing, and 'chemsex' (the use of drugs by gay men in sexualised settings). Jamie is a Mildred Baxter Postdoctoral Research Fellow at the Centre for Biomedicine, Self and Society at The University of Edinburgh. Jamie is working on exploring how sexual fantasies and desires can be harnessed for HIV prevention by engaging with a range of stakeholders.Additional Information and Links Chemsex link https://onlinelibrary.wiley.com/doi/full/10.1111/hsc.14081The Mpox report can be found here: https://theippo.co.uk/mpox-report/National HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
Join me as I talk to Katy Bourne about the importance of sleep within HIV care.Episode GuestKaty is a clinical psychologist within the Greater Manchester Mental Health NHS Foundation Trust and also works part time as a lecturer at Lancaster University. She has a special interest in sleep and HIV and we are very happy to welcome her on today's episode.Additional Information and Links HIV Matters Bookstore https://uk.bookshop.org/shop/HIVMattersHow to contact the show Dr Michelle Croston - hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
Join me as I talk to Oli Brown about the impact he made for HIV activism in the Royal Navy.Episode GuestLieutenant Commander Oliver Brown was diagnosed with HIV in October 2019 after a bike accident, resulting in a visit to a hospital piloting opt-out HIV tests in its A&E department. This led to him being medically downgraded by the Navy in accordance with policy, despite no medical reason for this.Additional Information and Links HIV Matters Bookstore https://uk.bookshop.org/shop/HIVMattersHow to contact the show Dr Michelle Croston - hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
Join me as I talk to Emma Davy about the the changing face of palliative care and how this relates to those living with HIV. Episode GuestEmma Davy is working as a senior nurse specialist in palliative care, Emma also has a keen interest in HIV care.Additional Information and Links HIV Matters Bookstore https://uk.bookshop.org/shop/HIVMattersHow to contact the show Dr Michelle Croston@ michelle.croston@nottingham.ac.ukhttps://hiv-matters.captivate.fm
Join me as I talk to long time friends of the podcast Angelina Namiba and Winnie Ssanyu Sseruma about their upcoming book 'Our Stories Told by Us'. Episode GuestsAngelina NamibaOriginally from Kenya, Angelina has over 25 years of experience working in the HIV sector on different initiatives ranging from providing one-to-one support to people living with HIV, treatment advocacy, and managing service delivery to facilitating, promoting and advocating for the involvement of women living with HIV in forming and informing local and national strategy and policy.Winnie Ssanyu SserumaWinnie currently works as an International Development consultant based in London, UK. Her consultancy work includes facilitating health trainings, community research, programme evaluations and technical assistance, largely supporting community based organizations responding to issues of social justice, women leadership and HIV & AIDS.Additional Information and Links Our Stories Told by Us Websitehttps://ourstoriestoldbyus.com/HIV Matters Bookstore https://uk.bookshop.org/shop/HIVMattersHow to contact the show Dr Michelle Croston @ hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
Join me as I talk to Garry Jones about the HIV memorial in Birmingham. Learn the thinking and development around the memorial. Episode GuestGarry Jones is a HIV activist and successful artist Additional Information and Links HIV Matters Bookstore https://uk.bookshop.org/shop/HIVMattersHow to contact the show Dr Michelle Croston@ michelle.croston@nottingham.ac.ukhttps://hiv-matters.captivate.fm
Within the podcast we explore Silvia's activism over the 4 decade of HIV and how her strong female leadership has influenced the sector. We explore the importance of peer support and how to support people living with HIV. Episode GuestSilvia Petretti was born in Rome, Italy. She moved to London in 1987 and graduated in African Arts and Languages at SOAS. Silvia spent her younger years travelling around West Africa and promoting dance and music from Africa and the diaspora in Italy, also working as a writer for documentaries. Since 2019 Silvia has been Positively UK's CEO, a national charity lead and run by people with HIV. She firstly joined Positively UK in 1999, when Positively UK was still known as Positively Women, as a volunteer in the organisation Community Development Team providing treatment information to women attending HIV clinics. Soon she became a staff member leading on support for women with drug and alcohol issues and providing outreach in Holloway prison. Silvia is the co-author of the SHE+ toolkit (Strong HIV Positive and Empowered), which aimed at supporting women with HIV in Europe to deliver women centred peer support. Silvia is a member of the WHO advisory board on Women and HIV and has worked as part of a team to develop a global toolkit for women with HIV to access their Sexual and Reproductive Health and Rights. Silvia believes that a key tool in defeating HIV stigma is for people with HIV to be heard, visible and involved in decisions that affect them. Silvia has been living with HIV 26 yearsAdditional Information and Links HIV Matters Bookstore https://uk.bookshop.org/shop/HIVMattersHow to contact the show Dr Michelle Croston@ michelle.croston@nottingham.ac.ukhttps://hiv-matters.captivate.fm
The focus of the podcast will explore sexual pleasure and what this means within the context of care. The role of television programmes in relation to promoting sex education and how we raise issues within our clinical conversation. Episode GuestNaomi Sutton has been working as a Consultant within the Rotherham Sexual Health Services since 2016 after completing training in Sheffield. Throughout her career she has developed a passion for education and raising awareness of sexual health, enjoying her role as the FSRH training programme director, as well as regular commitments to teaching other health care professionals and lecturing at conferences. Naomi's media career started with the E4's 'The Sex Clinic' which “helps young people get their sex lives back on track” and, as well as other media roles, she has talked frankly about vulvas, sex in old age, HIV and other sexual health subjects, on C4's ‘Steph's Packed Lunch'. Naomi is proud to be a Trustee for the charity Saving Lives UK and an Ambassador for both the Eve Appeal and the Family Planning Association. Additional Information and Links National HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstore https://uk.bookshop.org/shop/HIVMatters How to contact the show Dr Michelle Croston@ michelle.croston@nottingham.ac.ukhttps://hiv-matters.captivate.fm
Episode 10 – HIV and Stigma with Nathaniel Hall and Jenny KendrickThis episode is a special one for us, and one we have been planning since HIV Matters began. We have the absolutely wonderful Nathaniel Hall and Jen Kendrick joining us to discuss some of the amazing work they have been doing around HIV and stigma. We even get a bit of an insight into what work that are doing in the future.Episode Guest - Nathaniel HallNathaniel is a freelance theatre-maker, writer, performer, director, producer and HIV activist from Manchester (yay). He is well known on the subject of stigma, appearing frequently across social media, television and published articles. Nathaniel won us all over as Donald Bassett in the critically acclaimed 'It's a sin'. We are so excited to have him as part of the HIV Matters family.Episode Guest - Jen KendrickJen is a HIV Clinical Nurse Specialist in HIV, based in the Manchester area. Apart from being a good friend of HIV Matters, Jen is a trustee of NHIVNA forming part of the executive committee. She has loads of noteworthy publications around HIV and we are excited that she is going to talk us through one of these today.Additional Information and Links Access to Nathaniel's Website www.nathanieljhall.co.ukNational HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
Episode 9 – The Nuance of International HIV Gender and HealthThis episode takes us on a journey on an international stage. Alice lets us know the current Global research she working on to help change policy, using 7 different languages and involving 90 countries. This amazing work with inform the WHO guidelines on reproductive health for women living with HIV.Episode Guest - Alice WelbournAt HIV Matters we have been closely following the career of Alice over the last few years. For over 30 years, Alice has worked on international level for gender and health issues. She is also a trainer, writer and researcher in this subject area as well as many other things. We can't wait for your to learn more with us from the wonderful Alice.WHO Guideline on SRHR of women living with HIVBuilding a safe house on firm ground survey reportWHO SRHR GuidelineImplementation checklistCase study annexAnd some articles:WHO article about the surveyJournal of Ethics article about the surveySalamander website page about it allCollaborative researchAIDS Conference postersImperial College film on collaborative researchAnd some articles:On the WHAVE podcast paper on participatory researchOn the WHAVE podcasts – eg no. 12 about peer researchUNAIDS ALIV[H]E FrameworkALIV[H]E in Action: Case studiesImportance of Women's involvement in clinical research trials, Namiba A et al 2022 - articleIntimate Partner Violence and violence in healthcare settingsJIAS VAW articleJIAS MH articleICW videos about pregnancy and violence in healthcare
Episode 8 – "Hart Talks" with HIV MattersToday's show includes wonderful conversation with the YouTube Star Stephen Hart. Having created and performed in his own one man show, Hart Talks began 6 years ago (much to Stephen's dismay). Join us while we discuss Stephen's journey and what his hopes are for the future.Episode Guest - Stephen HartStephen Hart is well known for the critically acclaimed off-broadway show "Shadow Dreamer", discussing life after becoming a man living with HIV. When finishing this show, Stephen knew there was something more he could do, so decided to start uploading videos to YouTube under the title "Hart Talks". We are excited for you to learn more about Stephen with us.Additional Information and Links Hart Talks Youtube Page https://www.youtube.com/c/StephenHartHartTalks/videosNational HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
Episode 7 – Getting Older with HIVOn this week's episode, Michelle talks to Winnie Sseruma to discuss a phenomena that no one predicted when the epidemic was at it's highest, getting older with HIV. Medicine has dramatically improved due to research, but has been driven mainly by activists like Winnie. As a person living with HIV, Winnie explores how her life has changed since her diagnosis, and how she has had to adjust her mindset and life whilst getting older.Episode Guest Winnie SserumaWinnie is a freelance international development consultant and a huge advocate for people living with HIV. She has worked on treatment and advocacy boards and with black communities in the UK and Sub Saharan African. With over 20 years worth of experience in HIV activism we cannot wait for you to hear what she has to say.Additional Information and Links Winnie's Ted Talk https://www.youtube.com/watch?v=ReXPssaBdc4National HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
Episode 6 – Sex, drugs and psychiatry The podcast focuses on the use of psychotropic drugs on sexual function, we explore the common side effects associated with a number of commonly prescribed medication. We explore safe and effective prescribing with regards to this aspect of care. During the podcast we explore ways to raise this sensitive subject within our clinical consultations. Episode Guest Stephen Marks Stephen is a senior lecture at Manchester Metropolitan University and has a clinical background working in mental health services. Additional Information and Links The Maudsley Practice guidelines for physical health conditions in psychiatry https://www.wiley.com/engb/The+Maudsley+Practice+Guidelines+for+Physical+Health+Conditions+in+Psychiatry-p-9781119554202 HIV and mental health https://www.tht.org.uk/hiv-and-sexual-health/living-well-hiv/mental-health/depression HIV and emotional wellbeing https://www.aidsmap.com/about-hiv/hiv-mental-health-emotional-wellbeing National HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
Episode 5 – HIV, COVID-19 and Monkeypox This episode of the podcast focuses on the current narrative of COVID -19, Monkey pox and HIV. Within the interview we explore the current themes that are being portrayed in the media with regards to how pandemics are being reported and the lessons we can learn from this as a society. Episode Guest- Dr Maurice Nagington and Dr Jaime García-IglesiasMaurice Nagington is an academic and researcher at the University of Manchester, his research interest includes LGBT health, HIV, ageing, and 'chemsex' (the use of drugs by gay men in sexualised settings). Jamie is a Midred Baxter Postdoctoral Research Fellow at the Centre for Biomedicine, Self and Society at The University of Edinburgh. Jamie is working on exploring how sexual fantasies and desires can be harnessed for HIV prevention by engaging with a range of stakeholders.Additional Information and Links From AIDS to Coronavirus: Who has the Right to Care?” for The European Sociologist (link)Viral times, viral memories, viral futures which is the editorial introduction (alongside Peter Aggleton) the special issue of Culture, Health and Sexuality (link) National HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
Episode 4 – Empowering Women Living With HIV The focus of the podcast is to explore how we empower women living with HIV In the consultation room and beyond. Jo shares with us some of the challenges women experience when accessing care and what we can do in our roles to help that. The importance of sharing of knowledge is addressed and finding ways to support people to access the care they need. DisclaimerDuring the episode, Juno Roche is referred to as she/her. However, Juno goes by the pronouns they/them. We would like to apologise for misgendering of Juno.Please find a link to Juno's book below:https://uk.bookshop.org/books/a-working-class-family-ages-badly-remarkable-the-observer/9780349702346?aid=10157We would also like to correct that Jo is no longer the co-chair of the Sophia Forum, and at present is no longer affiliated with them.Episode Guest: Jo Josh Jo is a communications consultant with background in journalism, broadcasting, public relations, crisis communications and media training. Jo has been living with HIV for a number of years and has a wealth of experience in this area of care. Jo is the communication officer for the British HIV Association and has held a number of role in the HIV sector. Additional Information and Links National HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersSophia forum https://sophiaforum.net/ Invisible no longer https://www.tht.org.uk/our-work/our-campaigns/women-and-hiv-invisible-no-longer The grows project https://www.youtube.com/watch?v=-ULKgejZU_0 HIV and aging https://www.youtube.com/watch?v=aBIIKszusuc NAM aidsmap https://www.aidsmap.com/videos/dr-tristan-barber-and-jo-josh-talk-about-hiv-and-ageingHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
Episode 3 – HIV, Women and Sex Within the podcast we explore with Bex the very important subject of sexual pleasure for women living with HIV. Bex provides an overview of the some of the key factors that are important to consider when exploring sexual wellbeing and pleasure within the clinical consultation. Episode Guest: Rebecca (Bex) Mbewe Bex is a mentor, speaker and trainer with long standing experience of working within the HIV sector. Bex has been living well with HIV for the last 24 years. Bex is passionate about gender equality and women's health rights and is an active member of the UK Community Advisory Board (UKCAB). Bex sit on the British HIV Association (BHIVA) Steering Group Committee as a community representative ands is an Associate at Salamander Trust, which aims to protect, promote and enhance the health and rights of people marginalised by societies worldwide as a result of their gender, HIV status or sexual and reproductive health issues. Bex is also one of three directors for 4M Mentor Mothers Network CIC, Bex has recently taken up the post of GROWS Training and Project Coordinator at Positively UK, a project that looks at issues that affect women and ageing. Additional Information and Links For more information on HIV and sex please go to https://www.aidsmap.com/ and https://www.tht.org.uk/hiv-and-sexual-health/living-well-hiv/sex-and-relationships National HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
Episode 2 – The Development of Sexuality in Nursing Within the podcast Mark speaks candidly about the early days of the HIV epidemic and the development of sexuality in nurse education. Mark shares highlights from his career in education and research. During the conversation we discuss the future of nurse education and research with regards to exploring topic of sex and sexuality. Episode Guest: Professor Mark HayterMark is the current editor and chief of the Journal of clinical nurse and the Head of Nursing at Manchester Metropolitan University https://en.wikipedia.org/wiki/Mark_Hayter_(academic) Additional Information and Links National HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
Series 2 Postbag 1 – Review of Compassion Episodes and your feedbackThis postbag talks through some of your lovely feedback from our first episode of our second series. It also gives an update on what the HIV Matters Team have been doing over the summer. Thank you for all your feedback, we love to hear from you. If you want to get in contact our information is below.Additional Information and Links HIV in Focus https://open.spotify.com/episode/5nLv0lgrIkv0VyCxX0jjv2National HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
Episode 1 – Compassionate Minds HIV Matters is back, and we have an amazing second series to share with you. This episode of HIV Matters explores with leading expert Chris Irons what compassion focused therapy is and how this theory can be applied in everyday life to enhance psychological well-being. During the course of the conversation, we explore how our brain works and ways of dealing with difficult emotions. Chris explains key concepts in a clear and user friendly way that will enable listeners to consider how this can be applied to them to enhance their wellbeing. Episode Guest: Dr Chris Irons Chris is a Clinical Psychologist, he has many years of experience working in the NHS and is now co-director of Balanced Minds. Here, he provides psychological assessment, formulation, therapy and training courses. In his clinical work, he uses Compassion Focused Therapy (CFT; Gilbert & Irons, 2005) in working with people with a wide range of mental and physical health distress.Additional Information and Links Balanced Minds https://balancedminds.comSelf-Compassion App details https://www.selfcompassion.me/balancedminds?ref=balancedmindswww.balo.ukNational HIV Nurse Association (NHIVNA) www.nhivna.org.HIV Matters Bookstorehttps://uk.bookshop.org/shop/HIVMattersHow to contact the show Hello@hivmatterspodcast.co.ukhttps://hiv-matters.captivate.fm
Having listened to NHIVNA conference we felt that it was important to thank all our listeners who have spoken to us regarding our Live episodes.LinksWe have a website link for the delegates here -https://academicmedicaleducation.com/meeting/nurses-pharmacists-2022,and a registration link here - https://virology.eventsair.com/nurhcf2022/reg-comhttps://www.nhivna.org/StudyDay6Oct2022
Today's episode is the final episode of the NHIVNA conference.We have a chat with some more delegates from the day and some University of Nottingham students who have attended a conference for the first time.Links:GMPNP Presents : NHS Borderlands. Greater Manchester Patients Not Passports presents us06web.zoom.usAnd also the website for the film:https://barelifefilms.com/Here is the website for the Patients Not Passports campaign:https://www.patientsnotpassports.co.uk/https://www.patientsnotpassports.co.uk/campaign/resources.html (resources page)Which has lots of helpful information about NHS charging and advocacy around supporting people to access healthcare while navigating the hostile Environment.A toolkit designed to support you in advocating for people facing charges for NHS care, and in taking action to end immigration checks and upfront charging in the NHS. - Patients Not PassportsPatients Not Passports is a toolkit designed to support you in advocating for people facing charges for NHS care, and in taking action to end the immigration checks and upfront charging in the NHS that form part of the Hostile Environment.www.patientsnotpassports.co.ukhttps://sophiaforum.net/
The post bag episode features comments and feedback from our listeners based on the content of the previous episodes. The postbag invites the listener to contribute to the podcast, sharing any thoughts, reflections and ideas. If you would like to get involved please see details of how to do so in the link below, Additional Information and LinksHIV Matters Bookstore https://uk.bookshop.org/shop/HIVMatters How to contact the show Dr Michelle Croston@ michelle.croston@nottingham.ac.ukhttps://hiv-matters.captivate.fm
During today's podcast I was finally able to introduce the wonderful but elusive, Producer Dan. This episode consists of us talking about our reflections on season 1 of HIV Matters and any learning opportunities we have had and tips for budding podcasters.Episode GuestDaniel is a registered nurse currently working as a Clinical Research Team Leader in a National Cancer Trial. Dan is a self taught video editor and producer of this show. He is a very valued member of the team and we are excited about things we have to come.HIV Matters Instagram Pagehttps://www.instagram.com/HIVMattersPodcast/HIV Matters Bookstore https://uk.bookshop.org/shop/HIVMattersWhere to find usYou can find the podcast on any podcasting platform including Apple and Spotify, please click subscribe and I look forward to sharing the podcast show with you. How to contact the show Dr Michelle Croston@ michelle.croston@nottingham.ac.ukhttps://hiv-matters.captivate.fm
Within the podcast we explore the subject of reckless transmission and practical strategies to facilitate choice in a healthcare setting. We discuss the law into the context of HIV care and how to navigate challenging conversations in the clinical setting where issues pertaining to the law maybe relevant. Episode GuestMatthew is an honorary Professor at The University of Central Lancashire (UCLAN) and a Consultant in Sexual Health and HIV Medicine at North Cumbria Integrated Foundation Trust. Additional Information and Links https://hivlawcommission.org/hiv-and-the-law/https://www.tht.org.uk/hiv-and-sexual-health/living-well-hiv/legal-issues/how-law-worksHIV Matters Bookstore https://uk.bookshop.org/shop/HIVMattersHow to contact the show Dr Michelle Croston@ michelle.croston@nottingham.ac.ukhttps://hiv-matters.captivate.fm
The podcast focuses on the issues that children living with HIV experience in the UK. The importance of timely naming of HIV to children and young adults living with HIV to reduce stigma is highlighted alongside strategies for support families with difficult conversations. Episode GuestKatie Warburton is a lecturer at The University of Central Lancashire (UCLAN) and is active member of CHIVA's executive committee. Additional Information and Links For more information on naming of HIV and information on supporting children living with HIVhttps://www.chiva.org.uk/ourworkprof/tr/HIV Matters Bookstore https://uk.bookshop.org/shop/HIVMattersHow to contact the show Dr Michelle Croston@ michelle.croston@nottingham.ac.ukhttps://hiv-matters.captivate.fm
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