Podcast appearances and mentions of joanna kempner

In this episode, Joe interviews Joanna Kempner, Ph.D.: associate professor in the Department of Sociology at Rutgers University and author of the recently released, Psychedelic Outlaws: The Movement Revolutionizing Modern Medicine. The book profiles the history and groundbreaking work of ClusterBusters, a nonprofit researching and spreading awareness about what someone named Flash discovered decades ago: that for some people, psilocybin and LSD could stop cluster headaches from coming on. Through early internet message board posts and email exchanges between Bob Wold, Rick Doblin, and others, Kempner pieced together their story. And through attending ClusterBusters meetings, she discovered that a lot of the true healing lies in the bonds formed and the hope people find when seeing something new work for a pain for which science has no answer. She discusses: The lack of political will behind something so debilitating: Why is there no funding for this? The importance of patient advocacy and the role of the internet in sharing novel information The difficulty in studying a disease so unpredictable: How do you run a randomized trial when you don't know when a cluster is going to happen? Why the headache community clashes with psychology Concerns over how to ethically combine underground and Indigenous knowledge with above-ground University research and more!  For links, head to the show notes page.

Welcome back to The Trip Report Podcast, a production of Beckley Waves, a Psychedelic Venture Studio.Today, I am speaking with Joanna Kempner, PhD, a medical sociologist with deep expertise in the healthcare system's approach—and shortcomings—to treating chronic illness. Joanna is well known for her research on the social dynamics of medicine and has written extensively on the topic of migraines and chronic pain.She also just published a fantastic book, Psychedelic Outlaws - The Movement Revolutionizing Modern Medicine, which tells the story of Clusterbusters, a patient support group of people suffering from cluster headaches, one of the most punishing and debilitating neurological disorders there is.Clusterbusters pioneered the use of low-dose psychedelics as an effective treatment for  Cluster Headache.Psychedelic Outlaws chronicles the group's fight for access to lifesaving medication and their innovative approach to real-world research.Joanna shares her journey into the field of medical sociology, inspired by her personal experiences and observations of gaps in the healthcare system. She discusses the challenges faced by patients with chronic illnesses, particularly those with chronic pain, and how these individuals often become experts in understanding what medicine doesn't know.In this episode, we discuss:* Joanna's background and her journey into medical sociology* The challenges faced by patients with chronic pain and the concept of "ignorance" in medicine* The story of Clusterbusters and their discovery of psychedelics as a treatment for cluster headaches* The political and scientific hurdles in studying and legitimizing treatments for chronic pain* The potential of psychedelics to push the boundaries of biomedical research and pain management* And much more.And now, I bring you my conversation with Joanna Kempner.Listen to the episode on Substack, Spotify, Google or Apple.Credits:* Hosted by Zach Haigney * Produced by Zach Haigney, Erin Greenhouse, and Katelin Jabbari* Find us at thetripreport.com* Follow us on Instagram, Twitter, LinkedIn and YouTube* Theme music by MANCHO Sounds, Mixed and Mastered by Rollin Weary This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit www.thetripreport.com

Today, renowned sociologist Joanna Kempner, author of the new book "Psychedelic Outlaws: The Movement Revolutionizing Modern Medicine," introduces us to a group of ordinary people racked by debilitating pain who have turned to psychedelic medicines for relief.

Sensitivity to light, sounds, and sometimes smells, nausea, vomiting, and sometimes hours spent in darkened rooms. If you suffer from migraines, then you're all too familiar with these symptoms, which may affect you infrequently or as often as several times each week. Migraines are three times more common among women than men, and are worse prematurely and in menopause when women may experience them for the first time. But it's not just the numbers that are different, women are perceived and treated differently. Today I'm sharing the rich and relevant conversation I had with Dr. Joanna Kempner, an associate professor in the Department of Sociology at Rutgers, who is doing important work on gender politics and pain, specifically the striking difference between how men and women with pain are treated by doctors. In this episode, we explore the historical emergence of the 'migraine personality,' hysteria, and further disparities in pain treatment for women of color. We explore the societal factors that lead women to feel guilty for speaking up about their pain, whether it be chronic pain caused by a condition like migraine or acute pain for example, with a heart attack, and the ways that the stigma of pain affects pain research and the implications of this for the current and future treatment of women's pain. Joanna and I discuss: The historical context for the diagnosis previously called ‘hysteria' The stigma women who have migraines might experience How people who suffer from migraines take on stereotypes What happens when a migraine is not recognized as a disability How the pharmaceutical industry plays on women's guilt Why the medical community so often disbelieve women The patient-blaming language of medication overuse The irrationality of the opioid crisis How and why women of color remain invisible in medical research and have their pain treated differently Tune in to learn why these disparities in pain treatment still exist, how they are affecting our care, and how we can addres this in our own lives. Thank you so much for taking the time to tune in to your body, yourself, and this podcast! Please share the love by sending this to someone in your life who could benefit from the kinds of things we talk about in this space. Make sure to follow your host on Instagram @dr.avivaromm and go to avivaromm.com to join the conversation. Check out Joanna's incredible work and grab a copy of her book Not Tonight: Migraine and the Politics of Gender and Health at www.joannakempner.com

It is estimated that over 40 million Americans, and one billion people worldwide suffer from migraine disease. What is migraine disease? And how serious is it? Here to explain from their own personal experiences, this migraine advocate Eileen Brewer and Dr. Joanna Kempner shine a huge spotlight on this terribly common and often debilitating disease.In this episode, The Two Jess(es) talk with these two incredibly resilient women who have dedicated their lives, work and research to advocate on behalf of themselves and the millions that suffer along with them. The ramifications of living with chronic illness are indeed serious, the frustrations that come with not being taken seriously, and the often debated topic of addiction to drugs as opposed to dependence to find some relief. Also, a lot of talk about psychedelics in this one! If you, or someone you know and love is suffering from migraine, or any other chronic illness, this episode is packed full of useful information and a feast for your thoughts. Meet Eileen Brewer!Eileen is an event coordinator and advocate for those living with headache diseases. She is the President of Clusterbusters, the Director of Special Events for the Coalition for Headache and Migraine Patients, a member of the National Headache Foundation’s Patient Leadership Council, and is a moderator for Move Against Migraine.As a wife and mother of two, Mrs. Brewer balances her life in the headache community with various personal commitments, including sitting as the President of a preschool, leading a Girl Scout troop, and managing several real estate investment properties. Eileen has devoted herself over the years to many volunteer opportunities including local and national political initiatives, and event planning and advocacy for local charities. Meet Dr. Joanna Kempner!I am an Associate Professor of Sociology at Rutgers University where I research, teach, and speak about the relationship between science, medicine, and justice, and the political suppression of science and resistance movements that fight politically motivated ignorance. In 2014, I wrote the award-winning book Not Tonight: Migraine and the Politics of Gender and Health (Chicago). My work strives to give voice to those who are too often silenced, which means that much of my research focuses on questions that most people rarely think about: Whose pain matters? Why are there so few effective treatments for pain? What are the challenges of living a life in pain? Over the years, I’ve found that ignorance drives too many decisions about science and health. So I’ve also worked at understanding how and why some topics are never studied, and how certain “forbidden” subjects can reemerge as viable scientific investigations. To this end, I am currently writing a book about the underground research networks responsible for bringing psychedelics back to medicine. You can read more about my work here.For more information about various organizations mentioned in this episode:Cluster Busters: https://clusterbusters.org/Coalition for Headache and Migraine: https://headachemigraine.org/https://www.joannakempner.com/Support the show (http://www.paypal.com)

Egyptian scriptures from 1200 BCE describe painful, migraine-like headaches, so we know the disorder has afflicted people for at least three thousand years. Still, the condition continues to mystify us today. Anne Hoffman is a reporter, a professor, and a chronic migraine sufferer. She spent the past year tracing the history of migraines, hoping to discover clues about a treatment that actually works for her. The journey took her in some interesting directions. One common theme she found? A whole lot of stigma. Credits Hosts: Alexis Pedrick and Elisabeth Berry Drago Senior Producer: Mariel Carr Producer: Rigoberto Hernandez Reporter: Anne Hoffman Photo illustration by Jay Muhlin Additional audio production by Dan Drago Music Theme music composed by Zach Young. "Valantis" and "Valantis Vespers" by Blue Dot Sessions, courtesy of the Free Music Archive. Additional music courtesy of the Audio Network. Research Notes Interviews Matthew Crawford, Doan Fellow, Science History Institute. Margaret Heaney, professor of neurobiology, Columbia University Irving Medical Center. Joanna Kempner, sociologist and author of Not Tonight: Migraine and the Politics of Gender and Health. Anne MacGregor, medical researcher and clinician. Brian McGeeney, assistant professor of neurology, Boston University School of Medicine.  Sources Brooklyn Museum, Elizabeth A. Sackler Center for Feminist Art. “Hildegarde of Bingen.” McClory, Robert. “Hildegard of Bingen: No Ordinary Saint.” National Catholic Reporter, March 24, 2012. Meares, Hadley. “The Medieval Prophetess Who Used Her Visions to Criticize the Church.” Atlas Obscura, July 13, 2016. PBS Frontline. “Hildegard’s Scivias.” Songfacts. Für Hildegard Von Bingen. Wikipedia. “Scivias.” Last modified October 23, 2018, https://en.wikipedia.org/wiki/Scivias. Cannabidiol (CBD): Bazelot, Michaël, Chen Tong, Ibeas Bih, Dallas Mark, Clementino Nunn, Alistair V. W. Whalley Benjamin. “Molecular Targets of Cannabidiol in Neurological Disorders.” Neurotherapeutics 12 (2015): 699–730. Chen, Angus. “Some of the Parts: Is Marijuana’s ‘Entourage Effect’ Scientifically Valid?” Scientific American, April 20, 2017. Grinspoon, Peter. “Cannabidiol (CBD)—What We Know and What We Don’t.” Harvard Health Blog, Harvard Health Publishing, Harvard Medical School, August 24, 2018. Science Vs. “CBD: Weed Wonder Drug?” Podcast audio, November 15, 2018.. Migraine: Kempner, Joanna. “The Birth of the Dreaded ‘Migraine Personality.’” Migraine Again, November 30, 2017. Neighmond, Patti. “Why Women Suffer More Migraines Than Men.” Shots: Health News from NPR, National Public Radio, April 16, 2012. Peterlin, B. Lee, Saurabh Gupta, Thomas N. Ward, and Anne MacGregor. “Sex Matters: Evaluating Sex and Gender in Migraine and Headache Research.” Headache 51(6) (2011): 839–842. Sharkey, Lauren. “Why Don’t We Know More about Migraines?” BBC Future, British Broadcasting Corporation, July 2, 2018. Wikipedia. “Aretaeus of Cappadocia.” Last modified December 6, 2018. https://en.wikipedia.org/wiki/Aretaeus_of_Cappadocia. Cannabis for Migraine: Mandal, Ananya. “Migraine History.” News-Medical, August 23, 2018. MDede. “Are Cannabinoids and Hallucinogens Viable Treatment Options for Headache Relief?” Neurology Reviews 22(5) (2014): 22–23. Available at MDedge, Clinical Neurology News. Archival: Grass—The History of Marijuana. Directed by Ron Mann. Toronto: Sphinx Productions, 1999. Hildegard of Bingen. Directed by James Runcie. London: British Broadcasting Corporation, 1994. Reefer Madness. Directed by Louis J. Gasnier. Los Angeles: George A. Hirliman Productions, 1938.

Today I talk with Joanna Kempner, an associate professor in the Department of Sociology at Rutgers, who is doing important work for gender politics and pain. In this episode of Natural MD Radio, we discuss the idea of a migraine personality, the historical concept of hysteria, and how this has all evolved to create a disparity in pain treatment for women -- especially women of color in the United States. We also talk about the societal factors that have led many women to feel guilty for speaking up about their pain, whether it be chronic pain caused by a condition like migraine or pain after childbirth, for example. We share the ways that the stigma of pain affects pain research and the implications that this has for the current and future treatment of women's pain. Listen to today's episode to learn why these disparities in pain treatment still exist and how we can combat them in our own lives. "If a drug worked well it would not create a situation in which it was exacerbating the very problem it was treating." - Joanna Kempner Join Dr. Aviva Romm as she dishes up a weekly dose of the whole truth on health and medicine. To learn more about this episode of Natural MD Radio go to https://avivaromm.com/094

IGNORANCE: The Power of Non-Knowledge. The 9th event of the Disruption Network Lab. Panel: The Forbidden, the Doubtful and the Moral. What Could Be Known But Isn't with Joanna Kempner (sociologist, US), Jamie Allen (artist and researcher, CA/CH), Jan Willem Wieland (philosopher and researcher, NL). Moderated by Teresa Dillon (artist and researcher, IE/DE/UK). While it is difficult enough to develop what has been termed “negative knowledge”, that is, knowledge about the limits of knowledge (Karin Knorr-Cetina), also later in the process it continues to be a challenge to understand how to deal with these identified fields of non-knowledge. This panel will deal with such known unknowns, and present experimental methods of investigation as well as the resulting question related to the responsibility for not-knowing in moral and ethical terms: While Joanna Kempner will present her exploration and work within the territories of “forbidden knowledge” in medical science research, Jamie Allen will give insight into his artistic work and research related to “apocryphal technologies” as examples for ignorance through the false believe of being knowledgable. The ethical questions related to these and other forms of willful (that is, motivated, affected, or strategic) forms of ignorance, to what can and should have already been known, will be presented by Jan Willem Wieland. Taking new forms of slavery and our so-called slavery-footprint as an example, he will discuss the question of whether people who are willfully ignorant can be held responsible for it. www.disruptionlab.org/ignorance (http://www.disruptionlab.org/ignorance/) Photo: Maria Silvano Produced by Voice Republic For more podcasts visit http://voicerepublic.com

Because they suffer from an invisible affliction, people with migraines are sometimes suspected of “making up” their disease in order to avoid performing unwanted duties. Even within psychology, women were once suspected of self-inducing their own migraines as a result of their inability to cope with the chaos of daily life. These days, neurobiological research […]

Migraine is real, and it is pervasive–at least 12% of Americans suffer some form of this spectrum disorder. Still, migraine remains a conflicted illness–people routinely dispute the legitimacy of both the experience and its sufferers. In Not Tonight: Migraine and the Politics of Gender and Health (University of Chicago Press, 2014), Joanna Kempner sets out to explore “how migraine can simultaneously disrupt so many lives and continue to be questioned and trivialized by the culture at large.” Kempner begins by tracing the changing biomedical understandings of migraine over the past three hundred years, discovering a long history of “migraine’s association with weak, gendered personalities.” Kempner then turns to four contemporary figures and cases: headache specialists, migraine advocates, pharmaceutical companies, and the case of cluster headaches (a disorder commonly associated with men). Throughout, she shows how the recent recasting of migraine from a “disorder of neurotic women” to a neurobiological disease has done little to change the cultural meaning of headache disorders because “even as a ‘brain disease,’ migraine remains plagued by gendered images, metaphors, and stereotypes.” Learn more about your ad choices. Visit megaphone.fm/adchoices

Migraine is real, and it is pervasive–at least 12% of Americans suffer some form of this spectrum disorder. Still, migraine remains a conflicted illness–people routinely dispute the legitimacy of both the experience and its sufferers. In Not Tonight: Migraine and the Politics of Gender and Health (University of Chicago Press, 2014), Joanna Kempner sets out to explore “how migraine can simultaneously disrupt so many lives and continue to be questioned and trivialized by the culture at large.” Kempner begins by tracing the changing biomedical understandings of migraine over the past three hundred years, discovering a long history of “migraine’s association with weak, gendered personalities.” Kempner then turns to four contemporary figures and cases: headache specialists, migraine advocates, pharmaceutical companies, and the case of cluster headaches (a disorder commonly associated with men). Throughout, she shows how the recent recasting of migraine from a “disorder of neurotic women” to a neurobiological disease has done little to change the cultural meaning of headache disorders because “even as a ‘brain disease,’ migraine remains plagued by gendered images, metaphors, and stereotypes.” Learn more about your ad choices. Visit megaphone.fm/adchoices

Migraine is real, and it is pervasive–at least 12% of Americans suffer some form of this spectrum disorder. Still, migraine remains a conflicted illness–people routinely dispute the legitimacy of both the experience and its sufferers. In Not Tonight: Migraine and the Politics of Gender and Health (University of Chicago Press, 2014), Joanna Kempner sets out to explore “how migraine can simultaneously disrupt so many lives and continue to be questioned and trivialized by the culture at large.” Kempner begins by tracing the changing biomedical understandings of migraine over the past three hundred years, discovering a long history of “migraine’s association with weak, gendered personalities.” Kempner then turns to four contemporary figures and cases: headache specialists, migraine advocates, pharmaceutical companies, and the case of cluster headaches (a disorder commonly associated with men). Throughout, she shows how the recent recasting of migraine from a “disorder of neurotic women” to a neurobiological disease has done little to change the cultural meaning of headache disorders because “even as a ‘brain disease,’ migraine remains plagued by gendered images, metaphors, and stereotypes.” Learn more about your ad choices. Visit megaphone.fm/adchoices

Migraine is real, and it is pervasive–at least 12% of Americans suffer some form of this spectrum disorder. Still, migraine remains a conflicted illness–people routinely dispute the legitimacy of both the experience and its sufferers. In Not Tonight: Migraine and the Politics of Gender and Health (University of Chicago Press, 2014), Joanna Kempner sets out to explore “how migraine can simultaneously disrupt so many lives and continue to be questioned and trivialized by the culture at large.” Kempner begins by tracing the changing biomedical understandings of migraine over the past three hundred years, discovering a long history of “migraine's association with weak, gendered personalities.” Kempner then turns to four contemporary figures and cases: headache specialists, migraine advocates, pharmaceutical companies, and the case of cluster headaches (a disorder commonly associated with men). Throughout, she shows how the recent recasting of migraine from a “disorder of neurotic women” to a neurobiological disease has done little to change the cultural meaning of headache disorders because “even as a ‘brain disease,' migraine remains plagued by gendered images, metaphors, and stereotypes.” Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/medicine

Migraine: a cultural history. How did a painful and disabling disorder come to be seen as a symptom of femininity? Laurie Taylor talks to Joanna Kempner, Assistant Professor of Sociology at Rutgers University, about her research into the gendered values which feed into our understanding of pain. Also, 'chavs' and 'pramfaces': Anoop Nayak, Professor in Social and Cultural Geography at Newcastle University, discusses a study into how marginalised young men and women resist the social stigma attached to negative labels. He's joined by Helen Wood, Professor of Media and Communication at the University of Leicester. Producer: Jayne Egerton.