Podcasts about patient advocate foundation

Send us a textCrushing Medical Debt!

We're joined by Shonta Chambers, who serves as the Executive Vice President-Health Equity Initiatives and Community Engagement for the Patient Advocate Foundation (PAF). Shonta explains how social drivers impact one's health, including things such as housing and economic status. We dive into the case work she does with PAF to combat these challenges and connect patients to resources. She also shares her personal journey of being a caregiver. Among the highlights in this episode: 01:00: Shonta explains her role at the Patient Advocate Foundation, detailing her personal and professional experience with health advocacy 01:35: Shonta describes the foundation's work in addressing the non-clinical, social, and financial drivers of health inequities, emphasizing the broad support they offer from insurance issues to basic living needs 02:40: Zoe Rothblatt, Director of Community Outreach at GHLF, discusses the significant impact of social and economic factors on health and probes further into patient experiences 03:04: Shonta highlights the importance of addressing various non-clinical factors that affect health outcomes and shares how the foundation helps patients navigate these challenges 07:34: Zoe reflects on the exhaustive nature of being a patient and highlights PAF's role in alleviating some of that burden 09:20: Shonta shares personal challenges as a caregiver and the systemic issues she faces even with her professional background 16:38: Zoe asks what can be done to help improve conditions for patients, prompting a discussion on policy advocacy and community support 19:47: Shonta offers advice to caregivers on maintaining their well-being and the importance of self-care 23:30: What our hosts learned from this episode For more information about the Patient Advocate Foundation visit: https://www.patientadvocate.org/ Contact Our Hosts Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Director of Community Outreach at GHLF: zrothblatt@ghlf.org A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

This episode will save your financial life or that of someone you love. In less than one hour, you're going to learn the 5 insider expert secrets to get rid of a medical bill you can't afford, the first thing to do if your bill that may be the equivalent of a home mortgage is from a hospital stay, and where to find the best patient advocate help with big or bogus medical bills - for free. patientadvocate.org

This episode will save your financial life or that of someone you love. In less than one hour, you're going to learn the 5 insider expert secrets to get rid of a medical bill you can't afford, the first thing to do if your bill that may be the equivalent of a home mortgage is from a hospital stay, and where to find the best patient advocate help with big or bogus medical bills - for free. patientadvocate.org

Meet my new friend Alan Balch! Alan is the CEO of Patient Advocate Foundation and National Patient Advocate Foundation which provides patient services, eliminating obstacles in access to quality healthcare.    Alan has over 20 years of executive leadership in the non-profit sector spanning multiple advocacy areas including access and affordability, health equity, prevention and early detection, and cancer research. As part of my special podcast series, “Your Voice. Your Health.” focusing on step therapy, today we're going to take a deep dive into policy perpsectives and advocating for change. We're also going to learn Alan's “why” behind his mission.  Thank you Amgen Oncology and Merck for making this episode possible!  

In this episode, Dana Trampas introduces Shonta Chambers, who is a seasoned nonprofit executive and public health expert with over 20 years of experience. As the Executive Vice President of Health Equity Initiatives and Community Engagement at Patient Advocate Foundation, she leads the charge in addressing health disparities. Her pioneering initiatives empower minority populations with limited health literacy, ensuring they gain a firm grasp of medicine and healthcare. -| The Health Equity Podcast Channel is made possible with support from Bayer G4A. Learn more about how Bayer G4A is advancing equity, access and sustainability at G4a.health -| This episode originally aired on October 31, 2023 on HIT Like a Girl. Listen, follow and subscribe here.

Pre-exposure prophylaxis (PrEP) and post-exposure prophylaxis (PEP) are potential game changers in efforts to reduce the prevalence of HIV across the globe.  But uptake continues to be lackluster, especially in traditionally underserved populations.  Bruce and clinical HIV Pharmacist™ Dr. Carly Floyd discuss how PrEP has evolved over the last decade in clinical use for HIV prevention and share strategies for increasing PrEP and PEP access and uptake to populations that have not yet been adequately reached.PrEP is available in both oral and injectable formulations and, when taken routinely can prevent the transmission of HIV, whether through blood, sexual exposure, or injection. PrEP and PEP are key pillars in the U.S. National HIV/AIDS Strategy to end the HIV epidemic.About Dr. Floyd:Dr. Floyd is a clinical pharmacist at Southwest Care Center in Albuquerque, New Mexico and clinical director of the University of New Mexico's AIDS Education and Training Center.Resources:HIV Risk Transmission ChartOral PrEP Coverage OptionsIf large copay: (however, ACA implementation part 47 should = $0)Copay cards for oral PrEP (Med D excluded): www.gileadadvancingaccess.com/copay-coupon-cardInjectable PrEP savings and assistance: www.viivconnect.com/for-providers/viivconnect-programs/medications/Patient Advocate Foundation (also for Med D): www.copays.org/diseases/hiv-aids-and-preventionGood Days (also for people with Med D): www.mygooddays.org/patients/diseases-covered/hiv-aids-treatment-and-preventionIf uninsured:Oral PrEP Assistance Program:  1-800-226-2056 www.gileadadvancingaccess.com/Injectable PrEP Assistance Program: 1-844-588-3288State PrEP Assistance Programs: nastad.org/prepcost-resources/prep-assistance-programsReady Set PrEP (oral PrEP only at this point): readysetprep.hiv.gov/ ******** Questions about this topic? E-mail podcast@aahivm.org to get connected with Bruce or any of our guests. Are you a medical provider and want to join the conversation? Make your voice heard in the Academy Communities and connect with other HIV clinicians! To learn more about the Academy, visit www.aahivm.org

In this episode of What Your Medical Debt Doctor Wants You to Know, Dr. Virgie reminds us to NEVER raid your retirement accounts to pay bills, don't get tricked into paying a balance bill, and what to do if a nonprofit institution where you received care refuses to give you an income-based discount on your medical bill! Patient Advocate Foundation patientadvocate.org

In this episode of What Your Medical Debt Doctor Wants You to Know, Dr. Virgie reminds us to NEVER raid your retirement accounts to pay bills, don't get tricked into paying a balance bill, and what to do if a nonprofit institution where you received care refuses to give you an income-based discount on your medical bill! Patient Advocate Foundation patientadvocate.org

In this episode of What Your Medical Debt Doctor Wants You to Know, Dr. Virgie reminds us to NEVER raid your retirement accounts to pay bills, don't get tricked into paying a balance bill, and what to do if a nonprofit institution where you received care refuses to give you an income-based discount on your medical bill! Patient Advocate Foundation patientadvocate.org

Gwen Darien is Executive Vice President for Patient Advocacy and Engagement, at the National Patient Advocate Foundation (https://www.npaf.org/), an organization with a mission of bringing patient voices to health system delivery reform, developing and driving initiatives promoting equitable access to affordable quality health care, and prioritizing the patient voice in health system delivery reform to achieve person-centered care. She is also Executive Vice President at their sister organization, Patient Advocate Foundation (https://www.patientadvocate.org/), a national non-profit organization which provides case management services and financial aid to Americans with chronic, life threatening and debilitating illnesses. Gwen is a longtime patient advocate who has played leadership roles in some of the country's preeminent nonprofit organizations. As a three-time cancer survivor herself, Gwen came into cancer advocacy expressly to change the experiences and outcomes for the patients who came after her and to change the public dialogue about cancer and other life-threatening illnesses. In 2005, Gwen started the first stand-alone advocacy entity in a professional cancer research organization, at the American Association for Cancer Research, launching CR magazine – a magazine for people with cancer and those who care for them. Later, she served as the executive director of the Samuel Waxman Cancer Research Foundation; director of The Pathways Project; and executive vice president of programs and services at the Cancer Support Community, where in each role, Gwen championed placing patients at the center of health system change, whether it was for research, public policy or direct services. While serving as the chair or on the board of a wide range of program committees and workshop faculties, including the Community Engagement in Genomics Working Group of the National Human Genome Research Institute; a member of the US Pharmacopeia Board of Trustees; and as the past chair of PCORI's Patient Engagement Advisory Panel, Gwen also continues to write about her experiences. Her most recent piece, Transformation: My Experience as a Patient and an Advocate in Three Chapters appeared in the National Academy of Medicine Perspectives (https://nam.edu/transformation-my-experience-as-a-patient-and-an-advocate-in-three-chapters/)

This week, Jeremy is joined by Dr. Neil Thakur, chief mission officer at The ALS Association, to talk about the efforts to make sure Medicare works for people living with ALS, and talks to Courtney Jones at the Patient Advocate Foundation about navigating the Medicare open enrollment period. Access the Medicare resource line at https://www.als.org/navigating-als/financial-information/medicare-information/als-medicare-resource-lineTo learn more about Medicare go to https://www.als.org/navigating-als/financial-information/medicare-informationFor tips on navigating open enrollment go to https://www.als.org/blog/navigating-medicare-open-enrollmentHear Dr. Thakur's comments to CMS about optimizing Medicare at https://www.als.org/blog/als-association-cms-administrator-we-urge-you-listen-people-living-alsThis episode is brought to you by The ALS Association in partnership with CitizenRacecar.

Brooke Flores has worked for Patient Advocate Foundation for three years helping clients find solutions one case at a time. Her area of expertise is in helping patients with appeals and denials. During Covid-19 she served a patient, Joe Sweeny and helped him navigate the reduction of a $175,000 medical bill. Listen as both of them recount the journey and provide a description of how Patient Advocate Foundation provides hope to clients as they navigate the healthcare system.

Jacqueline Beard has worked for Patient Advocate Foundation for 18 years helping clients find solutions one case at a time. Her area of expertise is in helping patients expedite their disability claims but as you listen you’ll realize that her work has creative nuances. A patient might call in about one particular issue but through compassionate listening, Jackie and other PAF’s case managers are able to uncover multiple ways to help serve the patient and get them the best care and overall quality of life.

This year, Patient Advocate Foundation is celebrating 25 years of providing service to people facing serious illnesses. In this podcast, our CEO Alan Balch talks about the work we do and why it is so important. He highlights the extraordinary contributions that PAF caseworkers make in helping patients and caregivers navigate a complex health care system. For so many people, being diagnosed with a serious or chronic disease disrupts their entire life and can with it crushing financial and social problems. People find themselves facing huge medical bills, needing help understanding their insurance coverage or finding a plan that works for them, or making hard choices about whether to fill prescriptions or buy groceries. PAF case managers work closely with individuals and families to solve these issues and become better advocates for themselves. Contact our case managers for assistance: http://bit.ly/PAFcase Visit our website to explore show notes, additional episodes and our mission: http://bit.ly/NPAFpod Connect with us on social media!Twitter: @NPAF_Tweets: http://bit.ly/NPAFtwitter Instagram: @Patient_Advocates: http://bit.ly/NPAFinstagram Facebook: National Patient Advocate Foundation: http://bit.ly/NPAFfacebook

On this week's episode, Kerry Amato speaks with Gwen Darien, executive vice president for patient advocacy and engagement for the National Patient Advocacy Foundation (NPAF). They discuss what it means to amplify the patient voice to reform healthcare delivery system and make it more patient-centered. Gwen expands upon the important role tech plays in addressing cost concerns for patients; specifically in addressing healthcare inequities.  She also speaks to where the trust premium between patients and providers comes into play with SDOH and how do we get patients to be more part of the conversation.

Emily Brown’s commitment to helping people access equitable quality care was inspired by her watching a loved one navigate the health care system after being diagnosed with an illness. Listen as Emily shares how professional caregiving has been a constant theme woven throughout her career working at the Program for the All-Inclusive Care for the Elderly (PACE), Williamsburg Convalescent Center and Patient Advocate Foundation for the last 8 years. She shares about the mindset and approach she developed to consistently provide care with compassion. Visit our website to explore show notes, additional episodes and our mission: http://bit.ly/NPAFpod Connect with us on social media!Twitter: @NPAF_Tweets: http://bit.ly/NPAFtwitter Instagram: @Patient_Advocates: http://bit.ly/NPAFinstagram Facebook: National Patient Advocate Foundation: http://bit.ly/NPAFfacebook

In this second episode of our two-part series on financial concerns, cancer experts from the Patient Advocate Foundation and the WVU Cancer Institute discuss how to be your own best advocate and where to ask for help. They offer suggestions for managing health insurance, what questions to ask your care team, and Patient Advocate Foundation resources around case management and financial aid. This podcast is for cancer patients, survivors, and their caregivers. The Living Beyond Cancer podcast series is produced by Cancer Prevention and Control at the WVU Cancer Institute in collaboration with Mountains of Hope, the state's cancer coalition, and the WV Bureau for Public Health. Reach out to us at cpc@hsc.wvu.edu with questions or comments or join our Facebook support group at http://bit.ly/beyondcancer. 

In this episode, experts from the Patient Advocate Foundation and the WVU Cancer Institute discuss how financial challenges associated with cancer care impact patients' lives during and after treatment. Their conversation goes beyond the basics and includes how to look for policies you didn't know you had, tips to consider when exploring supplemental insurance, and key things to have prepared when seeking SSI and SSDI. This podcast is for cancer patients, survivors, and their caregivers. The Living Beyond Cancer podcast series is produced by Cancer Prevention and Control at the WVU Cancer Institute in collaboration with Mountains of Hope, the state's cancer coalition, and the WV Bureau for Public Health. Reach out to us at cpc@hsc.wvu.edu with questions or comments or join our Facebook support group at http://bit.ly/beyondcancer. The Patient Advocate Foundation is also available at www.patientadvocate.org.

On the show today, Alan Balch, CEO at the Patient Advocate Foundation and the National Patient Advocate Foundation. After we reconcile that Alan is one of the few people actually doing what they studied in college, and without triggering his inner political economist, we talk about the fundamental question: Why do patient advocate groups even need to exist in the first place? After all, if they did what they’re supposed to do, there wouldn’t even be a need. But there is. When we say the words “the system,” it always implies an ominous, immovable, intractable and unwieldy, monolith. Is “the system” everything we think? A consumer supply-chain funnel of supply-only mechanics that no one person ever desires to become part of? Seriously, who can’t wait to get chemo one day and fight with their insurance company? Who? I’ll wait. Alan and I go on to deconstruct the phrase “healthcare is a right,” banter about the forensic insanity behind how their case management and financial assistance mechanics work on behalf of millions. Also, who stands to profit in some magical unicorn world where every cancer patient is guaranteed protections to ensure they get to determine their own outcomes without dealing with FINANCIAL TOXICITY? Enjoy the show.

Living with migraine can take a financial toll but Caitlyn Donovan of the Patient Advocate Foundation and Katie Golden of CHAMP are sharing their tips and favorite resources for navigating insurance and treatment access for those who live with chronic pain. This podcast is sponsored in part by Lundbeck. *The contents of this podcast are intended for general informational purposes only and does not constitute professional medical advice, diagnosis, or treatment. Always seek the advice of a physician or other qualified health provider with any questions you may have regarding a medical condition. AMD and the speaker do not recommend or endorse any specific course of treatment, products, procedures, opinions, or other information that may be mentioned. Reliance on any information provided by this content is solely at your own risk.

On the show today, a luminary in the annals of cancer advocacy, the one, and only Gwen Darien. While she may be the EVP for Patient Advocacy at the National Patient Advocate Foundation and the Patient Advocate Foundation, her story runs so much deeper; 30 years into the past actually where a young, passionate student of photography and contemporary art had her life interrupted with a cancer diagnosis and found herself on a different path, one born of her condition but not one to define her identity. Gwen is the creative force behind not one but two groundbreaking cancer magazines, MAMM, a women's magazine for anyone whose life has been affected by breast or reproductive cancers, and CR Magazine, the official publication of the American Association of Cancer Research. No small doings here. Throughout the course of our conversation, I make continued reference to a recent commentary she published with the National Academy of Medicine about her life's work in three chapters. There will be a link in the episode description to check it out. Gwen has been a hero of mine and a source of inspiration who has shown me how to truly make the most of the time that has been given to us. Enjoy the show.

What does data collection and analysis tell us about the issues that people face when they face serious illnesses and try to access health care? Kate Gallagher works with the Patient Advocate Foundation to learn what issues patients face, how they deal with these, issues, what gaps exist in accessing equitable health care and what impact does financial toxicity have on people’s live. Kate and her colleagues provide the information critical to understanding both individual experience and bringing about important improvements to our health care system. Visit our website to explore show notes, additional episodes and our mission.Are you in a rural area and need help accessing care? Visit our National Financial Resource Directory Connect with us on social media!Twitter: @NPAF_TweetsInstagram: @Patient_AdvocatesFacebook: National Patient Advocate Foundation

Welcome to Advocates in Action, a podcast created by the National Patient Advocate Foundation, a non-profit that develops initiatives promoting equitable access to affordable quality health care through policy action and partnerships. Our primary objective is to prioritize the patient voice in health system delivery reform to achieve person-centered care. We are dedicated to amplifying the powerful stories of individuals and the collective needs of various communities across the country. In our first season we explore rural health in the United States. We feature patients, advocates and providers who are developing innovative, effective approaches to improving health care in their communities.On today’s episode we speak with Executive Vice President for Patient Advocacy and Engagement Gwen Darien. Listen as we introduce the mission of our organization, vision for this podcast and plans for our first season.

We saw countless questions about health insurance in our Move Against Migraine support group so we collaborated with AMF Partner, Patient Advocate Foundation, to get some answers. In this episode, AMF’s Dr. Larry Newman and Nim Lalvani sit down with Erin Bradshaw to discuss factors that patients should consider when weighing their insurance options and tips for different insurance situations. Our podcast host Dr. Larry Newman is Vice Chair of the American Migraine Foundation and a neurologist at NYU Langone. Nim Lalvani is Executive Director of the American Migraine Foundation and Erin Bradshaw is the Chief of Mission Delivery at the Patient Advocate Foundation. AMF is proud to partner with the Patient Advocate Foundation. Additional Resources: Migraine Matters Health Insurance Denials and Appeals Facebook Live Navigating the Cost of Care Facebook Live Disability Basics Facebook Live

Hosts Laura Evans and Matt Eyles sit down with Alan Balch, chief executive officer of the Patient Advocate Foundation.

Hosts Laura Evans and Matt Eyles sit down with Alan Balch, chief executive officer of the Patient Advocate Foundation.

In this third panel discussion from ONS's Health Policy Summit in Washington DC, Alan Balch, PhD, Patient Advocate Foundation chief executive officer, Mike Ybarra, MD, FAAEM, FACEP, vice president of medical affairs for the Pharmaceutical Research Manufacturers Association, and Jeannine Walston, a 20-year brain cancer survivor and patient advocate, discuss the challenges of tackling financial toxicity from an industry perspective, how nurses can advocate for patient resources, and much more. Music Credit: "Fireflies and Stardust" Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 3.0 License http://creativecommons.org/licenses/by/3.0 Episode Notes: Check out these resources from today's episode: Experts Hold Conversations About Access and Affordability at ONS Policy Summit Get Involved in ONS Advocacy Financial Toxicity and Its Burden on Cancer Care Patient Advocate Foundation ONS Center for Advocacy and Health Policy

Brendan Bietry of the Patient Advocate Foundation discusses the financial assistance programs available to lung cancer patients who receive targeted therapies.

Brendan Bietry of the Patient Advocate Foundation discusses the financial assistance programs available to lung cancer patients who receive targeted therapies.

Brendan Bietry of the Patient Advocate Foundation discusses the financial assistance programs available to lung cancer patients who receive targeted therapies.

On today's show, CSC President & CEO Kim Thiboldeaux and guests Stuart Arbuckle, Andy Leven and Dotty Leven discuss the important work of Breakaway from Cancer, an initiative spreading the word about valuable support, education and advocacy resources available to people affected by cancer. Breakaway from Cancer partners represent the continuum of cancer care from prevention through survivorship, including Prevent Cancer Foundation, Cancer Support Community, Patient Advocate Foundation and National Coalition for Cancer Survivorship. Tune in on Tuesday at 4:00 PM EST to hear more about this important initiative and it's role in the upcoming Amgen Tour of California, taking place May 15-22!

This episode is the third episode of our special 3-part series called “Navigating the Health Care System When You or A Loved Has Cancer.” Host Kim Thiboldeaux and guests will take an in-depth look at Medicaid, Medicare and Social Security Disability Insurance and help listeners understand how to work through these complicated programs. Guests include Joanna L. Morales, Esq., Director at the Cancer Legal Resource Center; Michelle Shanks, Program Director at the Patient Advocate Foundation; and Nancy Boozer, patient and participant at The Wellness Community-Atlanta.

This episode is the first of a special 3-part series calling “Navigating the Health Care System When You or A Loved Has Cancer.” Host Kim Thiboldeaux will speak with guests who will provide practical tips on what you can do if you are coping with the cost of cancer care. Guests include Beverly Armstrong, patient and participant of TWC-Greater Cincinnati/No. Kentucky; Erin Moaratty, Chief Special Projects Officer at the Patient Advocate Foundation; and Ashley Varner, MSW, MBA, Senior Director of Caregiving at The Wellness Community.