Healthcare Whisperer

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Hari Khalsa, MSN, FNP, nurse practitioner and founder of Healthcare Whisperer, a patient advocacy company. Healthcare Whisperer is committed to the belief that every person deserves the best possible access to healthcare and to be treated with dignity, integrity and compassion.

Healthcare Whisperer


    • Apr 13, 2016 LATEST EPISODE
    • infrequent NEW EPISODES
    • 47m AVG DURATION
    • 71 EPISODES


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    Latest episodes from Healthcare Whisperer

    Update From The Rare and Undiagnosed Communities

    Play Episode Listen Later Apr 13, 2016 61:00


    Mary Elizabeth Parker returns to update listeners on the what's happening in the world of rare and undiagnosed diseases.  She has spent time at NIH and with the leading researchers in the area of genetics and rare diseases.  She will also update us on her organization U R Our Hope.  Also, appearing on the show is Deanna who tell us her story of searching for a diagnosis.

    A Breast Cancer Survivor's Story: The Journey Through The Healthcare System

    Play Episode Listen Later Dec 31, 2015 61:00


    Healthcare Whisperer welcomes Catherine Grace to the show.  She is a writer, editor, and breast cancer survivor.  She is here to discuss her journey throught the maze of cancer from diagnosis to treatment to remission.  Her story will give us insight to the impact on one's life, emotions and relationships.  It is a story of strength, courage, love and compassion.  Catherine's experience will make you laugh and cry but most of all it will fill you with awe at her determination to win the battle.

    A Conversation About End of Life Care: The How, Why, Who and When

    Play Episode Listen Later Nov 19, 2015 61:00


    Howard Block and I will be discussing how to talk about end of life care with a loved one, patient or friend.  It can be difficult to know how to approach the topic and exactly what to say.  We will discuss why it shouldn't be a conversation with  only your doctor but also your family.  Why is it important?  It is a topic no one wants to have but it can be so helpful knowing what a loved onewants when death is near. We both have had the experience of working with people who knew what they wanted and others who didn't.  We have learned the importance of this conversation and how it helps families.  We are talking about people saying exactly how much care they want whether full code or not.  We hope to remove some of the fear and uncertainty that people experience.  It is our goal for listeners to know it is their choice.

    My Love Affair With Swimming: A Conversation With Guila Muir

    Play Episode Listen Later Oct 28, 2015 60:00


    In this episode, Guila Muir, owner of Say Yes! to Life Swims will be discussing her love and passion for open water and long distant swimming.  And I will tell you now, it is very infectious.  Her company provides organized and supported open water swims in the Seattle area from Lake Washington to the Puget Sound.   She will be discussing her journey from starting swimming at 43 to swimming Alcatraz 10 times to the creation of her company.  Be sure to listen in because Guila is going to make you laugh and remember why you love swimming.        

    Audio Blog#18 Stories From The Healthcare Front

    Play Episode Listen Later Oct 26, 2015 16:00


    I am continuing my audio blog, moving away from my experiences with my journey with my mother to patient and healthcare stories.  It is my hope that these stories will be informative and instructive.  When you hear them, you may think, is she making this up.  No, they are real.

    How One Veterinarian Revolutionized Care With Low Level Laser Therapy

    Play Episode Listen Later Oct 21, 2015 61:00


    Dr Ron Hirshberg is to animals what healthcare advocates are to patients.   He has dedicated his life to finding solutions to the pain and suffering of animals.  He has always been innovative in his treatments and care.  He discovered low level laser therapy when the arthritis in his hands was becoming painful and needed to find a viable treatment that allowed him to continue his work.  He stumbled upon this therapy and was successfully treated. He then thought, could this work with animals?  He did the research and started using it in his practice with amazing results.  He will be talking about the how and why of laser therapy on animals as well as humans.  His work and committment has been recognized by several leading veterinary schools as well as international and national laser therapy associations.  It is an honor to have this wonderfully dedicated individual on the show.  

    Dancing With Death

    Play Episode Listen Later Oct 15, 2015 60:00


    This show is two healthcare professionals talking about their expreinces of death and dying both professionally and personally.  Mary Elizabeth Parker,  PT,PhD, NCS, PCS, medical liaison for U.R. Our Hope, has dedicated her life to those with undiagnosed and rare illness. In her work, she has been a witness to the death and dying of children and been a compassionate comfort to their loved ones.  Her courage and committment to these families is truely inspirational.  She will share her experiences and insights about these intimate moments of the dying journey with families. With all our combined experience with death and dying, nothing prepared either of us for the loss of our mother.  We will also discuss  how our professional work with death and dying was little help at such a personal loss.  We will talk about how it changed us and enhanced our ability to understand how death and dying impacts those left behind. Don't miss this show!

    Audio Blog#17: Surviving Death

    Play Episode Listen Later Oct 12, 2015 28:00


    Surviving death is about the days after all the details are done, memorials and estate issues, and the grief begins to take hold.  I am going to talk about what it is like to suddenly find yourself alone with your loss, the emptiness and the sadness.  A conversation as difficult in our society as dying.  How I learned and witnessed my own rawness and vulnerability.  A journey to understand how one survives the death of a loved one.

    Audio Blog#16: The Story Continues on Hospice, Assisted Living and Dying

    Play Episode Listen Later Aug 28, 2015 30:00


    This is the continuing story of my mother's passing.  In this episode I will talk about what happens after the death, the details like dealing with planning two memorials, social security, finances, wills and final bills.  I don't think a person is prepared for what has to be dealt with.  I want to provide some insight as to what it is like during this time, staying focused and getting the job done when you are feeling sad and vulnerable.

    Audio Blog#15: Reflections on My Mother's Dying, Hospice and Assisted Living

    Play Episode Listen Later Aug 27, 2015 30:00


    This episode is about my experience of  my mother's final days.  How hospice care was critical, how the assisted living staff dealt with the process and the details after death.  It is a time of joy and sadness, grief and celebration.  It will be about the impact of the year of care giving and the road to recovery when all is said and done.  The information, I hope will help others deal with the process of caring for a loved one at the end of life.

    Being a Bone Marrow Donor: The Facts, Insights and Why It Matters

    Play Episode Listen Later Jul 8, 2015 61:00


    Have you ever wondered what it took to be a bone marrow donor?  Sat Nirmal K Khalsa was a donor for her sister who contracted a blood disorder from being a first responder on and after 9/11 at Ground Zero.  Without her bone marrow, her sister would die.  She had no idea what it meant to donate her bone marrow and was surprised at how much simpler and painless it was.  She will be discussing her journey in donating her bone marrow and  what she learned by participating in the process.  Listen in and find out the facts about being a donor.  

    Audio Blog#14: The Journey With My Mother Through Hospice and Assisted Living

    Play Episode Listen Later Jul 7, 2015 16:00


    This episode continues the journey of dealing with my mother's dying and the facility indifference.  I will be talking about my insights into being a caregiver.  I know many others have had similar experiences, the loneliness one can feel and how family and friend support make the difference.

    Audio Blog #13: My Journey with My Mom Through Hospice and Assisted Living

    Play Episode Listen Later Jul 2, 2015 16:00


    This is a continuation of my journey with my Mother.  This episode I will talk about what has happened lately and the constant worry one has as a caregiver.  I never know when the next problem will arise or what it may entail. 

    A Expert's View on Honoring One's Wishes at the End of Life

    Play Episode Listen Later Jul 1, 2015 61:00


    Today's guest is Howard Block, elder care patient advocate expert.  He is my go to person for any difficult situations with my elder clients.  He has been practicing in this field for over 20 years and his expertise is inspiring.  One of the issues we have been discussing recently is a person's wishes at the end of life and how to get facilities and family members to respect those wishes.  Howard has many stories, some heartbreaking, about patients and  families journeys to get medical professionals and administrators to respect those wishes.  We will discuss DNRs and how those wishes can be protected and respected.  Howard tells it like it is with humor and honesty.  This is a not to miss episode. 

    Audio Blog #12 The Journey Through Assisted Living and Hospice With Mom

    Play Episode Listen Later Jun 25, 2015 16:00


    The endless drama continues.  I have learned to never let my guard down and expect the unexpected.  I am going to talk about DNR and specialized Physician signed specific orders on what you want at the end of life.  A DNR may not be enough and even then, nobody may read it.

    Audio Blog#11: The Journey Continues Through Hospice and Assisted Living

    Play Episode Listen Later Jun 18, 2015 16:00


    The world of assisted living and hospice is not easy.  Walking the road with my mother as she is dying is painful and inspiring.  Some days I feel very lucky to have this time and other times my head is spinning. 

    Audio Blog#10: My Journey With Mom Through Assisted Living and Hospice

    Play Episode Listen Later Jun 17, 2015 16:00


    Just as Meghan Trainor says in her song"It's all about the bass", I say with assisted living and hospice, "it's all about the regs".  I have kept my mother safe by knowing what her rights are and what the regulations are.  This blog will be about how I faired knowing certain regulations.

    Audio Blog#9: The Journey With Mom Through Assisted Living/Hospice

    Play Episode Listen Later Jun 8, 2015 16:00


    What a crazy ride this journey is.  Minefields galore.  My mother continues to decline and I can hardly keep up.  This blog is about working with hospice and getting the assisted living to respond.  Lessons learned that I hope will help you

    Audio Blog #8 : The Journey With Mom Through Assisted Living and Hospice

    Play Episode Listen Later Jun 4, 2015 15:00


    I continue talks about caring for my Mom in assisted living and hospice.  My hope is my experience will help others.  I have just returned to New Mexico and witnessing the changes that have occurred in the last two weeks

    Audio Blog #7: My Journey With Mom through Assisted Living and Hospice

    Play Episode Listen Later Jun 1, 2015 15:00


    This is the continuation of the journey through assisted living and hospice.  My goal is that by listening, you will gain insight into the process.  This blog speaks to some key factors  caregivers needs to think about when selecting an assisted living and hospice, what to do when things don't seem to be going your way and keeping your loved one safe.

    Audio Blog # 6 : My Journey with Mom Through Assisted Living and Hospice

    Play Episode Listen Later May 28, 2015 15:00


    Here is another installment about life with Mom in assisted living and hospice.  There bever seems to be a dull moment.  She continues to decline and I continue to try to keep her comfortable and safe.

    Audio Blog #5: My Journey With Mom Through Assisted Livingand Hospice

    Play Episode Listen Later May 27, 2015 16:00


    This is a continuation of my experiences dealing with assisted living and hospice.  It is my experience of dealing with with all the issues and the constant rebalancing.  My hope is the information from my experience will be of help to others.  This blog will be about hopsice and talking to my Mom about dying

    Audio Blog#4 The Journey Continues. Life With Mom in Assisted Living/Hospice

    Play Episode Listen Later May 22, 2015 16:00


    My blog continues about what it is like to be the caregiver for a parent in assisted living, nursing home and hospice.  In this episode, I will speak about Hopsice and my Mother's choices about her death.  I will talk about the prospect of her death and how the Hopsice services have helped.

    Michele Rosenthal discusses her new book :Your Life After Trauma

    Play Episode Listen Later May 21, 2015 60:00


    I feel very lucky and excited to have Michele Rosenthal back on the show to talk about her new book, Your Life After Trauma:Powerful Practices to Reclaim Your Identity.  Her book is a continuation of her work helping people with PTSD.  This book offers practical, simple and hands-on examples to help with the effects of an identity crisis caused by PTSD.  It provides insight to the crisis and offers exrcises, self assessment questionaires tips and tools need to heal.   Michele Rosenthal is an award-winning PTSD blogger, award-nominated author, founder of HealMyPTSD.com, post-trauma coach, host of Changing Direction radio and author of Your Life After Trauma: Powerful Practices to Reclaim Your Identity (W. W. Norton).  Her website is www.HealMyPTSD.com and she hosts the show CHANGING DIRECTION.  Michele has wonderful stories and insight.  This show is not to be missed!          

    Audio Blog #3: My Journey With Mom Through Hospice and Assisted Living.

    Play Episode Listen Later May 20, 2015 16:00


    This is day three of my blog and the saga continues with the facility, hopsice and care manager.  What  a life being a caregiver!  I hope to offer some tips on the best way to get what is needed for a loved one in this situation.  Even though I have advocated for clients in similar situations, it doesn't make it easy.  I think I am just faster at knowing what the problem is and the possible solution.

    Audio Blog #2: The Journey Continues With My Assisted Living and My Mom

    Play Episode Listen Later May 19, 2015 14:00


    This is the second audio blog post about my journey with Mom, her dying and dealing with the Assisted Living/Nursing Home staff.  Today, I will talk about the Ombudsman program and how it can help solve problemsand deal with issues in the residents favor.

    Audio Blog: Caring for Mom: Assisted Living, Hospice and Me

    Play Episode Listen Later May 13, 2015 12:00


    This blog is in addition to my radio show.  It is my journey with my Mother since she had he stoke one yeear ago.  It is about my experience dealing with the world of geriatric care, assisted living, nursing home, hospice and my mother's personal care aides.  I hope it will provide insight and valuable information that can help someone else on this journey

    A Story of Medical History: My Mother lived in an Iron Lung

    Play Episode Listen Later May 6, 2015 58:00


      This show is the amazing story of Jade Grace, who grew up with a mother who lived in an iron lung.  The iron lung was a tank respirator used to help people artificially breathe used often during the polio epedemic.  It's use was usually only for several weeks until the lungs regained strength.  For some like Jade's mother, it was for a lifetime.  She lived 30 years on the iron lung.  Jade's story is about a child's experience of interacting and loving a mother who was lived in an iron lung.  Many on iron lungs were confined to institutions but Jade's father had the resources to keep her at home with all the necessary care.  She even summered on Catalina Island with the family.  Jade's story is a part of medical history that everyone should hear about.  Her stories are capitvating and heartwarming. Be sure to tune.    

    Live Show From the U R Our Hope Fundraising Gala

    Play Episode Listen Later Dec 6, 2014 57:00


    I am very excited to be broadcasting live at the U R Our Hope Gala.  This is their annual fundraiser celebrating all those who have worked hard to help families and individuals with rare and undiagnosed illnesess.  This event is being held at Russell's Bistro in Austin, Texas.  I will be speaking with board members, parents and supporters of this great organization.  I know Mary Elizabeth Parker, Vanessa Garcia and many others will be stopping by to speak with me to give updates on any breakthroughs or NIH news.  We will have a link and phone number to donate at that time.  What I love about this organization is the dedication and committment of all the members and the families that receive the care.  This is going to be fun.  Don't miss it!

    Parents in Assisted Living: Adult Children Speak Out!

    Play Episode Listen Later Nov 12, 2014 60:00


    What happens on the day you realize your parent/parents can't live in their own home anymore?  You would love to have them live with you but that isn't possible.  You start looking for options, one being assisted living faciltiies.  I don't think anything prepares you for this journey.   Margret Kogan and Kathleen Murphy are here to discuss what that journey has been like for them.  Their experience and the challenges will make you laugh and cry.  Both women have had to navigate the complex world of assisted living for their parent.  They will provide the listener with insights, advise and dispel many of the myths advertised by the assisted living facilities.   Their story could be yours.  So listen in and hear how to avoid the pitfalls and how to be an advocate for your parent.  

    The Undiagnosed Child: Two Mothers Speak On Their Journey For Answers

    Play Episode Listen Later Oct 23, 2014 68:00


    This show is about the courage of two families to find answers to their child's undiagnosed illness.  It is the story of learning to be the voice and advocate for your child.  It is the story of never giving up or taking no for an answer.  This is the story about wanting the absolute best for their child.  This is the story of grace, love and strength.  Daniella Ferreira is the mother of Naylah and Jennifer Clatterbuck is the mother of Emma.  Both girls were born with a genetic disorders that went undiagnosed for an extended length of time.  Both Jennifer and Daniella will tell us about what life has been like trying to find a diagnosis, getting the medical profession to listen and finally hearing the words, "We know what it is."  Mary Elizabeth Parker will also be joining to give her insights on the struggles these two families had and updates on the incredible work of her organization U R Our Hope. Be sure to listen and have your questions and comments ready.  

    A Love Story: Two Sisters and A Bone Marrow Transplant

    Play Episode Listen Later Sep 11, 2014 61:00


    Welcome back to the Healthcare Whisperer Show!  With our move from Boston to Seattle we have not been broadcasting.  But I am back!  I feel very lucky to be restarting my show with the amazing story of two sisters, Dr Sandra Haber and Sat Nirmal Kaur Khalsa.  Dr Haber is a Phd psychologist who after 9/11 selflessly dedicated her time to provide care for families, workers and all impacted by this horrific event.  In 2002, after working at the 9/11 sites, she was diagnosed with polycythemia, which in 2012 morphed into myelofibrosis.  Although, there is no exact research data that the elemental exposure at the 9/11 sites was the cause, and the medical community cannot definitively confirm the exposure as the cause, it is believed to be strong reason as to her illness. After years of watching, waiting and continuous testing, her only option for this illness was a bone marrow transplant.  Her sister, Sat Nirmal Kaur was a perfect match and never hesitated to agree to the procedure.   Tune it hear about both their journeys, what it is like to be a donor and a recipient.  But most of all, listen in hear this beautiful story of sibling love and support.  This is one show you don't want to miss! Dr Haber can be reached at www.drhaber.com or facebook.com/drsandrahaber

    Rare Disease Day in DC: An update

    Play Episode Listen Later Mar 6, 2014 61:00


    Healthcare Whisperer welcomes back Mary Elizabeth Parker to the show.  She is here to discuss her recent trip to Washington, DC to be a part of Rare Disease Week.  She was involved in many events including meeting with several congress people.  She will be discussing upcoming legislation, research and what is happening at the NIH Rare Disease Department. Mary Elizabeth is dedicated through her work with U R Our Hope, to helping families and individuals finds answers to undiagnosed problems.  She is also a voice for those who are suffering with rare diseases and need assistance getting what they need from the healthcare system.  She is an inspiration for many including me! Be sure to tune in to get the latest updates and hear the moving and inspiring stories of those Mary Elizabeth works with.  

    Palliative Care: What is it, Why It is So Important, What you Need To Know

    Play Episode Listen Later Jan 23, 2014 60:00


    Healthcare Whisperer welcomes David Klos, nurse practitioner and Beth Damsky, Licensed Social Worker to the show to discuss their incredible work in Palliative Care. They are both Palliative Care team members at Newton Wellesley Hospital.   I met both of them when the discussion of palliative care arose with a client.  I was very impressed with their insight, knowledge and sensitivity in speaking with family on such a delicate topic. Palliative care is specialized medical care for people with serious illnesses.  It focuses on providing patients with relief from the symptoms, pain and stress of an illness-whatever the diagnosis.  The beauty of this care is it is team based offering many supports to the patient and family. This show will provide the listener with great insight into how palliative care works and when it is most needed.  Get your questions ready and give us a call!

    Why I started a Home Healthcare Agency: The Ups,the Down, The Stories and More

    Play Episode Listen Later Jan 16, 2014 60:00


    Healthcare Whisperer welcomes Margery Parker and Carolyn Parker owners of Cahoon Care Associates, a home healthcare agency.  The company's main objective is to provide quality home health aides and caregivers to families.  The focus and mission is  to provide the best match possible between aide and client.  They started the business after experiencing the down side of home aides with a family member.  They thought, "we can do this better."  That was the start of the journey. Tune in to find out how they got started, what the pitfalls were and wonderful stories that will make you laugh and cry.

    Collateral Damage Speaking Out About Hospital Error Patient Safety

    Play Episode Listen Later Nov 21, 2013 60:00


    Healthcare Whisperer welcomes Dan Walter, author of "Collateral Damage; A Patient, A New Procedure and the Learning Curve."  This book is the story of his wife and what went wrong when she underwent treatment for a heart condition.  As it states on the book jacket, "It is the gripping story of a nurse’s struggle to survive her own stay at one of the country's top hospitals." This is the story about what happens when something goes wrong in the hospital.  It is the story of the hospital closing ranks and the difficulty in obtaining factual information.  It is the story of the search for answers to a medical mistake when no one wants to help.  It is the story of trying to keep your loved one from suffering any further. This is a show you don't want to miss.  The information may some day safe your life!   Collateral Damage: Speaking Out About Hospital Error, Patient Safety and Fighting Back.

    Undiagnosed: Medical Refugees

    Play Episode Listen Later Nov 14, 2013 60:00


    "Undiagnosed:Medical Refugees" is a soon to be released documentary about the journey to find answers to undiagnosed medical problems.  My guest is Katia Moritz, Ph.D, ABPP, who is the inspiration and driver of this amazing story. Katia's story is both heartbreaking and inspiring.    She has been searching for an answer to her sudden health decline after a simple and routine medical procedure.  Since that day, over three years ago, she has suffered from multiple debilitating symptoms resulting in hospitalizations, ongoing tests, and visits to many specialists throughout the country.  Throughout this time, she continues to try to maintain her energy to work, care for her family and keep her sights on finding answers. Katia will tell her story and how the idea for the documentary evolved.  She realized she was not alone.  There were many people, young and old, worldwide in similar circumstances.  And she needed to do something. Katia is the Clinical Director of the NeuroBehavioral Institute and a Psychoeducational Liaison for Academic-Options.  She is a licensed psychologist in the State of Florida.  Dr Moritz is Board Certified in Cognitive and Behavioral Therapy.

    Obamacare: Questions You Always Wanted To Ask

    Play Episode Listen Later Oct 10, 2013 61:00


    This show is an opportunity for listeners to call in and ask question about Obamacare.  Are you one of those millions of people who have been trying to get buy insurance through the exchange?  Feeling frustrated?  Or are you just afraid of the new health law and are confused about what it means to you.  This show is for you.   Mary Elizabeth Parker and I are going to talk about Obamacare.  She is being asked by many of her patients what it all means.  This is going to be a forum to talk about what it does mean to all of us. Let's hear your story!  

    Let's Talk Patient Safety: Pat Rullo Returns!

    Play Episode Listen Later Sep 19, 2013 60:00


    I am happy to announce that Pat Rullo is returning to the show to discuss patient safety issues.  Pat is the author of Speak Up and Stay Alive an amazing  book and manual on staying alive and being safe in the hospital.  Her book is the story of her journey while caring for her mother in the hospital.  She learned very quickly that even with the best doctors and nurses, patients could still be a risk for falls, infections and misdiagnosis.   Pat is now an expert in all things patient safety related.  She has dedicated her life to getting the information to everyone.  Beside her book, and many lectures, she is host of the Patient Safety Radio Show, a weekly show heard live in Phoenix and Cleveland areas.  Recorded episodes can be downloaded at www.patientsafetyradio.com Pat is relentless in pursuing areas of safety that many people aren't aware of.  Today's show will include not just her story but a look at the issues of increased exposure to radiation from CTs,Xrays and cell phones.  I know if Pat is concerned, so should I.  Listen in folks.  This is one show you will want to take notes!

    Waging the Battle to Win an Insurance Appeal

    Play Episode Listen Later Sep 5, 2013 60:00


    Have  you ever been denied coverage by your health insurance?  It is one of the most frustrating moments especially when you know the care should be covered.  This is when the battle with the insurance company begins to get a reversal of the denial.  It is an uphill battle because at the onset it seems as if they hold all the cards. My guests Debbie and Lou Pappas fought the battle and won.  Their story is about the courage and determination to face all odds and come out on top.  Their insurance company, Humana decided the care Lou received was to be considered a pre-existing condition.  They were not going to pay the over $150,000 charges. Debbie and Lou lived in fear of having to file medical bankruptcy as the appeals process dragged on for months.  This is the story of a battle well fought and the sweet taste of victory when the reversal occurred. Learn what they did to get the job done and what you need to do if you find yourself in a similar situation.  This is one show you can't miss.

    The Journey To Hospice

    Play Episode Listen Later Aug 22, 2013 61:00


    Healthcare Whisperer welcomes a mother, Diane Roof and daughter, Jen Hashisaki caregiver team to the show to discuss their journey into the world of hospice.   This story began when Diane's mother fell, was hospitalized and went to rehab.  Neither Diane or Jen, ever thought the fall would bring them face to face with the need for hospice services.  It was a journey filled with much anguish and misinformation.  During this time, they needed to learn how to navigate the healthcare system to ensure their loved one was getting the best care.   Tune in to find out how these amazing care giving team fought for the best possible care, learned how to ask the right questions and insisted on having hospice involved.  This is one show you won't want to miss.  

    What Did You Say? An Unexpected Journey into Hearing Loss

    Play Episode Listen Later Aug 8, 2013 60:00


    Imagine one day you wake up and you can't hear.  The medical community is stumped except to say maybe it was the cold you had.  You hope it will resolve itself and your hearing will return.  But that does not happen and there is permanent damage to your hearing. What would you do? Healthcare Whisperer welcomes Monique Hammond to the show. Her recently published book, What Did You Say? An Unexpected Journey into the World of Hearing Loss , is the compelling true story of sudden hearing loss.  In her book, she describes the initial episode, her interaction with the specialists and learning what the world of hearing loss is all about.   Nothing prepares you for the world of hearing loss, the terms, the tests or the long term prognosis.  Her book helps to guide the lay person through the maze of the hearing loss world.  Monique is a registered hospital pharmacist.  She lives in Minnesota and was appointed by the Governor to The Commission Serving Deaf, Deafblind and Hard -of-Hearing. She has also served as president of the Hearing Loss Association of America. Tune in for an exciting and informational show.

    Finding And Hiring A Patient Advocate:The Ins and Outs

    Play Episode Listen Later Jul 23, 2013 58:00


    This show is going to focus on how to find and hire a patient advocate when you find yourself engulfed in the complex healthcare system.  Once the realization occurs the system is getting overwhelming and the stressful, how do you find someone to help you? Anne Llewellyn,RN-BC, MS, BHSA, CCM, CRRN, editor-in-chief of Dorland Health will be the quest.  Anne brings over 35 years of expertise as a registered nurse,  patient advocate and educator. She will share practical information that individual can use to understand the role and value hiring a patient advocate can bring to those who find themselves engulfed in today's complex healthcare system.    This is going to be an informative and exciting show.  Listen in to learn the Ins and Outs of choosing a patient advocate that fits your needs.

    Finally A Diagnosis: Reflections on the Journey and Future

    Play Episode Listen Later Jun 6, 2013 61:00


    In past shows, I have had guests who related their heartbreak and struggle to find a diagnosis for a child or loved one.  The journey is perilous, arduous and all consuming.  For some, it can take years while others watch their loved one decline with no treatment or cure insight. This show will feature families who searched and fought the healthcare system and were able to get answers.  Then comes the work of treatment and long term care.   I am looking forward to the insight of these families and how they were able to successfully navigate the healthcare.  There stories will inspire all of us.

    Doctor Advocate And Coach: Helping Patients and Doctors

    Play Episode Listen Later May 23, 2013 31:00


    Healthcare Whisperer welcomes Gail Gazelle, MD, an Associate Professor at Harvard Medical School, to the show.  Dr Gazelle will be talking about her journey as hospice doctor, her evolution to patient advocate and finally her commitment to helping doctors with burnout through coaching. As a physician, she has a deep understanding of the stress, demands and pressures doctors are under. She compassionately coaches doctors by providing  support and tools to overcome burnout.  She is the advocate and champion needed for a successful outcome.  Her goal is physician wellness and wellbeing.  That goal not just her clients but all of us. Dr Gazelle has amazing insight into the nuances of the healthcare system and how to overcome barriers.  She has appeared on CNN,CBS, NPR; quoted in O magazine, USA Today, The Washington Post, and many more.  Her website is www.gailgazelle.com This will be a show you won't want to miss.  Tune in to learn more about what causes burnout and the work Dr Gazelle is doing to help.

    A Child's Rare and Undiagnosed Illness: A Mother's Journey

    Play Episode Listen Later May 22, 2013 61:00


    For most of us, when we go to the doctor with symptoms, we are diagnosed and treated.  Imagine going to the doctor and being told there were no answers as to why the symptoms were occurring.  Then imagine, this is your child and all the specialists referred to have no answers.  What if you were told this was a rare illness and no one knew how to diagnosis it?  What would you do? This is the story Heather Long is going to talk about on this week's show.  One of Heather Long’s three children (Cal) passed away in 2006 at five years old to an undiagnosed disease. Heather was told that her son’s death was likely caused by a very rare metabolic disease, and she has since focused her energies on being an advocate for patients suffering from undiagnosed and rare diseases.   In 2008, Heather co-founded a nonprofit organization, U.R. Our Hope., that assists individuals and families who are on the journey of finding a diagnosis or are navigating through the health care system after a rare diagnosis. In 2011, Heather co-authored H.R. 2671- The CAL Undiagnosed Diseases Research and Collaboration Network Act, which was proposed in the 112th Congress and is scheduled to be re-introduced during the current 113th session. And recently, Heather proudly joined the Global Genes Advocacy Leadership Group.

    Dealing With PTSD After The Boston Marathon Bombings

    Play Episode Listen Later Apr 24, 2013 67:00


    The horrific bombings at the finish line of the Boston Marathon has had a profound impact on all of us whether we were there or watching on TV.  The images are forever part of our lives now.   Events  of this magnitude have the potential to cause Post Traumatic Stress (PTSD).  What is happening is, the brain is having great difficulty filtering and understanding the information.  It is trying to process the experience or visuals.  The result is can cause stress with symptoms ranging from anxiety, disrupted sleeping patterns, anger, sadness, fear and loss of appetite. It is often thought that PTSD occurs only to those who experience a severe trauma like war.  But this is not the case.   An event like the bombings can traumatize and cause PTSD to those who only see it on TV. Healthcare Whisperer welcomes back Michele Rosenthal,  an expert on PTSD to talk about PTSD. She has personally experienced and overcome PTSD.  She has dedicated her life to helping others to understand PTSD and find the appropriate care.  Her website www.healmyPTSD.com offers a wealth of information on PTSD and resources.  Her book, Before the World Intruder: Conquering the Past and Creating the Future  is an award nominated book. Michele will be offering assistance and resources for those experiencing PTSD after the horrible Boston events.  Listen and call in with questions    

    A Pastoral Advocate and Caregiver

    Play Episode Listen Later Apr 17, 2013 60:00


    Healthcare Whisperer welcomes Reverend Glenn Mortimer to the show to discuss his work as a healthcare advocate for his parishioners and caregiver for his mother.  Both roles have taught him about the perils of the healthcare system and how to overcome barriers. His work as a minister, takes him to many hospitals, rehabs and nursing homes in the Greater Boston area.  He has witnessed first hand the need for families to have someone who will speak for them during a medical crisis.   He is also the primary caregiver for his chronically ill mother.  His work with his parishioners has given been a blessing in helping get the right care for his mother. He is not afraid to speak his mind and advocate for his parishioners needs to doctors, nurses and administrators.  His stories are both funny and poignant.  Don't miss this show.

    Patient Advocate: Helping You Navigate the Healhcare Maze

    Play Episode Listen Later Mar 28, 2013 61:00


    Healthcare Whisperer welcomes Trisha Torrey to the show to discuss why having a patient advocate on your team is an essential ingredient when navigating the healthcare system.    Trisha Torrey is Every Patient’s Advocate, a name she gave herself after a heinous misdiagnosis in 2004 which prompted her career change to patient empowerment and advocacy.   Today she is About.com’s patient empowerment guide.  She speaks across the country to both patients and providers, and she has written three books. Her first, written for patients, is called You Bet Your Life! The 10 Mistakes Every Patient Makes (How to Fix Them to Get the Healthcare You Deserve). She has also written two business books for independent patient advocates.    In 2009, she founded AdvoConnection.com, an organization that helps patients and caregivers find a private, professional patient advocate to help them navigate the healthcare system.  It is supported by the professional organization Trisha started, The Alliance of Professional Health Advocates, which provides business support to help private health advocates start and grow their practices.   Trisha has appeared on, or been quoted by CNN, NPR,MSNBC, USA Today, the Wall Street Journal, O Magazine, Redbook, Health Magazine, Fox News, and other media.   She can be found at http://www.advoconnection.com                      http://www.APHAAdvocates.org  http://www.everypatientsadvocate.com Be sure to listen in to get valuable information on patient advocacy and why you may need one!

    Medical Trauma: A Survivor And The Journey To Health

    Play Episode Listen Later Feb 28, 2013 72:00


    Healthcare Whisperer welcomes Michele Rosenthal to show to discuss her experience of surviving multiple misdiagnosis of a rare illness (1:.0000005) and what it takes to overcome the shock of medical trauma and its aftermath.  She has committed her life to sharing her knowledge and experience from her journey to health. As a keynote speaker, award-winning blogger, author, workshop/seminar leader, certified professional coach and mental health advocate, Michele works privately as a post-trauma coach specializing in posttraumatic stress disorder (PTSD). The host of Your Life After Trauma on Contact Talk Radio, she is also the founder of HealMyPTSD.com, a popular website for information, education and support for PTSD. Her trauma/PTSD recovery book, Before The WorldIntruded, was recently announced as a finalist for the Books For A Better Life award. She sits on the Advisory board for HopeForPTSDvets.org and is the Program Director for Wellness Services for the Warriors Pathfinder Program. If you have a family member friend or colleague suffering from a medical trauma, be sure to listen to this show.  You will certainly gain a clear insight into the issues, available resources and support services.

    Tips On Successful Navigation of Breast Cancer Treatment

    Play Episode Listen Later Feb 14, 2013 61:00


    Ida Schnipper is the guest this week to talk about her journey with breast cancer.  She has recently finished treatment and wishes to share the experience.  She will provide helpful tips to help understand the process and treatments.  Ida is  an award-winning nurse and health care executive with over 20 years of experience. In addition to her oncology nursing experience at Memorial Sloan Kettering Cancer Hospital in New York, Ida led the development and execution of a member-centered health care program at ConnectiCare, a leading managed care Fortune 500 organization in Connecticut. With all her knowledge and experience with the healthcare system, she was still barely prepared for what she had to faced during her treatment.  Be sure to listen to find out what Ida learned and how this knowledge can help you, a friend or a loved one.

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