Podcasts about Child life specialist

This episode is dedicated to Katie's dear friend Joe, who recently passed away, leaving behind his wife and two young sons. Joe's story reminds us to live in alignment with our purpose and to cherish the people we love. In this heartfelt episode of the Child Life On Call podcast, Katie Taylor speaks with B.R. Duray, an author, filmmaker, and storyteller whose debut children's book, The Mood Swing, is rooted in his experience of losing his father at the age of 10. With it being Father's Day this past weekend, this conversation takes on even deeper meaning. B.R. shares how grief has shaped his creative life, the ways it resurfaces during important life moments, and how his book can help both children and adults find healing together. Whether you're a parent, a grieving adult, or a healthcare provider, this episode provides validation, comfort, and hope.  5 Key Takeaways from this Episode: ✅ Grief grants both pain and power B.R. explains how losing his dad gave him heightened emotional sensitivity and a creative voice to express and process those feelings. ✅ Grief resurfaces in different stages of life He shares how emotions from his childhood resurfaced 20 years later during his engagement, reinforcing that grief evolves with us. ✅ Reading about grief helps parents, too Though The Mood Swing was written for children, it often evokes emotional responses from adults who find healing in its message. ✅ The Mood Swing originated as a film The story began as a poem and animated concept, but eventually took form as a children's book—and later inspired a short film. ✅ Parents can model healthy grief Katie and B.R. discuss how parents showing emotions in front of children teaches them it's safe to feel and process grief together.  

Aly Arenholz was a freshman in high school when she was diagnosed with Stage 2 Thyroid Cancer when she was 15 years old in 2021. After undergoing a very difficult battle during much of it, Aly just graduated from high school and will be attending the University of Kansas in the fall where she hopes her career path will focus on becoming a Child Life Specialist. Aly will also talk about her Non-Profit KICK CANCER LIKE A GIRL BOSS, which she started while in treatment and focuses on trying to bring a smile to the faces of Pediatric Cancer Patients. 

Send us a textToday we're welcoming Kelsey Mora, a Child Life Specialist and Therapist, to chat all about the intricacies of navigating grief with children.The conversation covers Kelsey's personal and professional journey, starting from her teenage years when she lost a friend to leukemia, to her current role in private practice. We explore the balance between honesty and hope when discussing serious health issues and death with children, and the importance of clear and age-appropriate communication.You'll gain SUCH valuable insights into effective strategies for supporting grieving children and engaging in difficult conversations about loss and illness.Connect with Kelsey:childlifetherapist.comthemethodworkbooks.com@childlifetherapist@themethodworkbooks Learn more about Micro-Moments for Transformation and begin your evolution today: https://lossesbecomegains.com/transformation Learn more about the 14-Day Relief in Your Grief experience and begin feeling more peace and healing: https://lossesbecomegains.com/transformationWork with me: Micro-Moments for Transformation: https://lossesbecomegains.com/transformation 14-Day Relief in Your Grief Challenge: https://lossesbecomegains.com/relief-in-grief Work with me one-on-one: https://lossesbecomegains.com/work-with-tara Connect with me further: Leave a voice note through Speakpipe! https://www.speakpipe.com/LifeWithGrief Instagram: https://www.instagram.com/lossesbecomegains/ Instagram: https://www.instagram.com/lifewithgriefpodcast/ Facebook: https://www.facebook.com/losses.become.gains Website: https://lossesbecomegains.com/ Shop the LBG Daily Journal: https://lossesbecomegains.com/journal By accessing this Podcast, I acknowledge that the entire contents are the property of Tara Accardo, or used by Tara Accardo with permission. Except as otherwise provided herein, users of this Podcast may ...

Learning to swallow pills can be a major milestone—and a big challenge—for many kids. In this episode, certified child life specialist Adina Levitan joins host Katie Taylor to break down the myths, fears, and best practices behind teaching children how to confidently swallow pills. From her clinical expertise to creative solutions like affirmations, games, and candy "pill" practice, Adina walks us through her unique approach to supporting kids and parents through this skill-building process. Whether you're a caregiver, clinician, or a parent trying to help your child at home, this episode is packed with insight, encouragement, and practical steps you can start today. In this episode, you'll learn: ✅ Why pill swallowing is a learned skill that takes time and practice ✅ Tools and strategies to make learning fun and pressure-free ✅ How to create a pill-swallowing kit and step-by-step plan ✅ Creative tricks like affirmations, bingo, and candy practice ✅ Why early, low-stress practice is key—and how to know when to ask for more help   Timestamps & Key Topics [00:00] – Meet Adina, CCLS Child life journey and hospital experience in surgery and oncology [06:00] – The First Pill Swallowing Consult How a simple Facebook post launched a new resource [08:00] – Why It's Not a One-and-Done Skill Building confidence over weeks, not minutes [09:00] – The Candy Ladder Using sprinkles, Nerds, and Tic Tacs as practice tools [11:00] – The Birth of a Resource How Adina's workbook was created for families and clinicians [12:00] – Unrealistic Hospital Expectations Why pill swallowing consults need more time and less pressure [14:00] – Every Kid Is Different There's no one-size-fits-all technique—just trial, error, and support [15:00] – Ideal Ages and Proactive Practice Why second grade and up is a great place to start [16:00] – What's in the Pill Swallowing Workbook? Affirmations, tools, weekly trackers, tips & tricks, and more [20:00] – Setting Up for Success When to practice, how long, and how to keep stress low [22:00] – Suggested 6–7 Week Practice Plan Why taking your time is key to success [23:00] – Incentives & Bingo Making pill practice feel like play [24:00] – How to Get the Resource Details on accessing the workbook for families Resources & Links

What if blending real food could transform your child's tube feeding experience—and your entire family's daily routine? In this inspiring episode, registered dietitian and new mom Hilarie shares how her career in pediatric nutrition led her to create Blended Tube Feeding, a platform and supportive community designed to help families explore real food options for children with feeding tubes. Hilarie and Katie have an insightful conversation about doing what works best for your family and how it is not an all-or-nothing approach when it comes to tube feeding. From clinical frustrations to practical breakthroughs, Hilarie's story is packed with insight, empathy, and encouragement for families navigating complex feeding needs.   In this episode, you'll learn: ✅ What blenderized tube feeding is—and how it helps with digestion, connection, and flexibility ✅ How Hilarie's work in a neurodevelopment clinic inspired her mission ✅ Common fears and how to overcome them when shifting from formula to real food ✅ How to start slowly and safely with blended meals (even using store-bought purees!) ✅ Where to find affordable support, recipes, and a welcoming online community   Whether you're new to tube feeding or ready to explore new options, this episode offers knowledge, support, and a hopeful outlook for the journey ahead. Timestamps & Key Topics ⏱️ [00:00] – Meet Hilarie: Registered Dietitian, New Mom, Real Food Advocate How her love of cooking, gardening, and clinical work intersected in her passion project Why food is central to her family and her mission ⏱️ [04:00] – The “Aha” Moment Behind Blended Tube Feeding Real families, real frustrations, and real improvements How small changes led to big results in digestion and quality of life ⏱️ [06:00] – Formula Isn't the Enemy: Finding What Works Why Hilarie supports a nonjudgmental approach Blended food can be part-time, full-time, or not at all—it's about what's right for your child ⏱️ [08:00] – What Getting Started Looks Like Step-by-step tips: from single-ingredient purees to homemade blends Why slow is better—and how to build confidence without overhauling everything ⏱️ [11:00] – Real Fears, Real Parents Why  many parents worry about “rocking the boat” What success looks like when routines become manageable and joyful ⏱️ [13:00] – Why Aren't Dietitians Taught This? The history behind formula becoming standard How schools and hospitals are starting to reintroduce food-based tube feeding ⏱️ [14:00] – Hilarie's Virtual Support Programs Online courses, a private community, and flexible coaching Affordable access to evidence-informed resources—starting at just $37/month ⏱️ [17:00] – Motherhood Perspective Shift How becoming a parent deepened her empathy for families Why accessibility, flexibility, and simplicity matter more than ever ⏱️ [19:00] – A Favorite Success Story One family's journey from 2-hour feeds and fear of leaving the house—to freedom, flexibility, and Panera bread - How small wins can transform daily life ⏱️ [21:00] – Where to Start: Free Resources & Community Instagram, blog articles, recipes, and real-life advice Why you don't have to figure it all out alone Resources & Links Get Free Resources: Starter tips, recipes, and blog articles: www.blendedtubefeeding.com Research on Blenderized Tube Feeding  Links to Commercial Real Food Products

What would you do if both of your children were diagnosed with a life-threatening genetic disease—and there was no support system in place for parents like you? In this inspiring episode, Katie interviews Laura Bonnell, a former Detroit news reporter turned full-time advocate and nonprofit founder. After both of her daughters were diagnosed with cystic fibrosis (CF), Laura transformed her grief and determination into the Bonnell Foundation, providing real-time support to families across the U.S. who are navigating life with CF. In this powerful episode, we explore: ✅ How Laura pushed for her daughter's diagnosis when doctors dismissed her instincts ✅ Why child life services were “among the best things” during hospitalizations ✅ What it's like raising two daughters with cystic fibrosis in the same home ✅ The emotional toll of pretending “everything's fine” as a medical parent ✅ How her foundation is providing financial relief, mentorship, and inspiration ✅ Why advocacy can take many forms—and how small actions can create significant change Whether you're a CF parent, a caregiver of a chronically ill child, or someone passionate about parent-led advocacy, this episode will move and motivate you. Timestamps & Key Topics ⏱️ [00:00] – The Power of Child Life Services How art, distraction, and support brought relief during hospital stays ⏱️ [03:00] – Meet Laura Bonnell From Detroit news reporter to cystic fibrosis advocate and nonprofit founder ⏱️ [06:00] – A Life-Altering Diagnosis How Laura's instincts—and persistence—led to a CF diagnosis after months of dismissal ⏱️ [09:00] – Fighting for Answers & Processing the News Pulling over mid-assignment to receive the call—and deciding, that same day, to keep moving forward ⏱️ [12:00] – Advocacy from the Start Speaking publicly just weeks after diagnosis and discovering the emotional weight of her new reality ⏱️ [14:00] – Life with Two Children with CF Navigating work, marriage, and hospitalization rotations while trying to maintain “normalcy” ⏱️ [16:00] – School Accommodations & Advocacy Wins How brochures, IV poles, and enzymes in every classroom made private school possible ⏱️ [18:00] – The Hidden Truths of “Being Fine” Why Laura never told friends how hard it really was—and what she wishes she could've said ⏱️ [21:00] – Building Community & Finding Strength in Other Moms How hospital garden meetups and phone calls with CF parents created safe spaces ⏱️ [23:00] – Founding the Bonnell Foundation How a calendar and a vision turned into a national nonprofit serving families with CF ⏱️ [26:00] – What the Bonnell Foundation Offers From financial assistance and college scholarships to CF masterclasses and bilingual resources ⏱️ [28:00] – “Don't F With Me”: Laura's Strength as an Advocate Why she'll knock on every door, from Capitol Hill to the hospital billing department ⏱️ [29:00] – Celebrating Her Daughters Emily's resilience through hospitalizations and marathon training Molly's fearless leap to study in London and become a sustainability changemaker Resources & Links

Our guest, Callie Jaggers, shares about her role as a Child Life Specialist at Le Bonheur. During her time, she helps children and their families feel comfortable and supported. Our show host is Brittany Spence and our Executive Producer is Castria.Subscribe today to stay up to date and don't forget to leave a rating and review!

Ready for a career change? Wondering what to do in the next stage of your life? Heather Nemelka to the rescue! In this episode we talk about how to transition back to a traditional job after focusing on caregiving and home management, how to figure out what you want to be when you grow up, and how to gain the confidence to make big changes.  For more from Heather, check out elavare.com or watch her podcast on YouTube  Past episodes about motherhood and work: How She Dismantles the Mommy Wars What She Calls Herself How She Transitions To Motherhood: Work How Ashley Freehan Works from Home How She Outsources How She Identifies Her Passions How Wendy and Alex Pursue Their Passions (Flamenco and Podcasting) How Leslie Graff Pursues Her Passions (Artist, Child Life Specialist, Mother) How Nancy Maldonado Pursues Her Passions (helping underserved communities)   Listener Survey Listener survey HERE! I'd love your input for next season. Plus, I'll send you a free Independent Kids Self-Evaluation. Weekly Open Lab: Wednesdays at 10 am MT (through April 30 2025, then resuming in September)  Join Whitney in her virtual studio to share ideas, solve problems, craft experiments, chat about past and future episodes, or just drop in to say hi!  https://riverside.fm/studio/listener-ideas?t=880793c622433a15fcce  

How do you prepare anyone for death, let alone a child? YOUR child? It's something no parent should ever have to face, and yet, many of us have had to.  And when this impossible scenario arises, how on earth do you handle it? Do you tell your child exactly what's happening to them? What if they're scared? Confused? How do you walk with them down this path?In this episode, Allie talks to Kelsey Mora, a dual-certified Child Life Specialist and Licensed Therapist, about how to support a child who is dying. She shares what it's like working in a pediatric ICU, how to have hard conversations with kids in honest language, the importance of caring for oneself, and much more.To learn more about Kelsey and her work, follow her on IG @childlifetherapist, visit her website childlifetherapist.com, and check out her incredible workbooks at themethodworkbooks.com.________ Get in touch! Email: contact@worstclubeverpodcast.comInstagram: @worstclubeverpodcastWebsite: www.worstclubeverpodcast.com

What if every milestone your child was supposed to reach came with countless curve balls? For Alexis Kaplan, motherhood quickly turned into a journey of advocacy, strength, and unwavering love as she navigated her daughter Gabby's complex and rare health conditions. In this moving episode, Alexis shares:  ✅ The moment her newborn was rushed to the NICU with a collapsed lung  ✅ How her daughter's recurring infections led to a diagnosis of immunodeficiency and collagenous gastritis ✅ The emotional toll—and strength—of being the medical historian and advocate for a medically complex child ✅ How weekly infusions, therapy, and figure skating are helping her daughter thrive ✅ Her advice for parents facing rare, chronic, or undiagnosed conditions This is a must-listen for anyone caring for a child with complex medical needs, healthcare providers who want to better understand the family perspective, and parents looking for inspiration and connection. Timestamps & Key Topics ⏱️ [00:00] – Meet Alexis Kaplan Mother of two, former PR pro, and fierce advocate for her daughter Gabby ⏱️ [03:00] – From a Healthy Start to a Medical Emergency Gabby is born with a spontaneous pneumothorax and was immediately taken to the NICU ⏱️ [08:00] – Life After NICU The strange silence in the hospital room and the emotional weight of an unexpected start ⏱️ [10:00] – Feeding Struggles and Early Signs Something Was Wrong Eczema, weight loss, food intolerance—and a mother's instinct in full force ⏱️ [14:00] – The Fevers Begin Raging fevers, unrelenting illness, and a trip to the ER that revealed double pneumonia and RSV ⏱️ [19:00] – ENT Visits, Hearing Loss, and the Power of Child Life From audiology tests to the first Barbie from a Child Life Specialist—how support changed their hospital experience ⏱️ [22:00] – Asthma, Immunology & The First “Red Flag” Gabby's pulmonologist recommends deeper testing, leading to a pivotal moment in her diagnosis journey ⏱️ [24:00] – Periodic Fever Syndrome & Tonsillectomy A working diagnosis leads to aggressive treatment—but symptoms persist ⏱️ [26:00] – Gastroenterology, Scopes & the Search for Answers A rare diagnosis: collagenous gastritis—so rare, the doctor had never seen it before ⏱️ [29:00] – The Diagnosis That Changed Everything Immunoglobulin deficiency is confirmed, leading to weekly subcutaneous infusions at home ⏱️ [31:00] – A Grey's Anatomy Ritual & Finding Control Gabby takes charge of her infusions, watches Grey's Anatomy, and finds a routine in the chaos ⏱️ [32:00] – Advocating for the Right Medication Alexis does her own research and fights for biologic treatment to manage Gabby's symptoms ⏱️ [34:00] – Reflecting on Strength, Resilience & Motherhood The mental toll of advocating, comforting, and never giving up—and watching her daughter skate through it all ⏱️ [36:00] – TikTok Tips & Empowerment in the Hospital Line Gabby empowers other kids at the clinic with simple strategies to get through shots and IVs ⏱️ [37:00] – Final Reflections: Curveballs, Advocacy & Support How Facebook groups, therapy, and the power of asking questions help Alexis keep going   Resources & Links

"We followed Dahlia's lead—and Dahlia was not going to let this stop her.” — Jessica Fein What happens when your child's diagnosis is so rare that no one—including your doctors—knows how to help? For Jessica Fein, navigating life with her daughter Dahlia's MERRF Syndrome meant redefining motherhood, finding joy in unexpected places, and transforming grief into connection and advocacy. In this honest and deeply moving episode, we explore: ✅ What it's like to go on a diagnostic odyssey, and finally get answers that bring more questions ✅ The complexity of parenting a child with medical needs, including the realities of home care and hospital stays ✅ How grief exists even while your child is alive—and what ambiguous grief means for medical parents ✅ The power of storytelling, finding meaning through writing, and connecting with community through shared experience Whether you're a parent, provider, or someone looking to better understand the emotional layers of complex care and rare disease, this episode will resonate with you. Timestamps & Key Topics ⏱️ [00:00] – Episode Intro Meet Jessica Fein and hear the quote that shaped this conversation ⏱️ [01:00] – Jessica's Story Begins Navigating the early years of parenting without answers ⏱️ [03:00] – Diagnosis & the Unknown The journey to a MERRF Syndrome diagnosis and what came next ⏱️ [09:00] – Life With a Rare Disease Hospital stays, trachs, and becoming the expert in your child's care ⏱️ [13:00] – Following Dahlia's Lead Letting joy and silliness guide the way ⏱️ [17:00] – Who Dahlia Was A peek into Dahlia's personality and how she impacted everyone she met ⏱️ [20:00] – Writing As Healing How Jessica turned to writing as an act of reflection, advocacy, and self-care ⏱️ [24:00] – What Helps in the Hospital Tangible ways friends and providers can support caregivers ⏱️ [30:00] – Grief, Then and Now Understanding ambiguous grief—and the evolution of loss after death ⏱️ [33:00] – How to Connect With Jessica Where to find her book, podcast, and writing Resources & Links from today's episode:

“It wasn't any kind of strength within myself that helped me get through the NICU. It was the strength they had—they gave it to me.”- Savannah O'Malley We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their website. What happens when your birth plan is shattered in an instant? For Savannah, the unexpected arrival of her micropreemie twins at just 24 weeks turned her world upside down. One of her sons faced significant medical challenges, including brain bleeds and a cerebral palsy diagnosis, while the other grew without complications. Through it all, Savannah found healing in advocacy, art, and the power of sharing her story. In this moving episode, we explore: ✅ The emotional and medical complexities of delivering micro-preemie twins ✅ How a cerebral palsy diagnosis reshaped their family's journey ✅ The silent struggle of maternal mental health after a traumatic birth ✅ Why peer support and storytelling matter in healing and advocacy ✅ How Savannah's Cards of Hope project is making a difference for other NICU moms Savannah's story is a testament to resilience, love, and the incredible strength of mothers navigating complex medical journeys. Whether you're a NICU parent, a healthcare professional, or someone seeking inspiration, this episode will leave you feeling empowered.   Timestamps & Key Topics ⏱️ [00:00] – Episode Intro Welcome to today's episode featuring Savannah O'Malley The importance of sharing NICU and maternal mental health stories ⏱️ [01:00] – Meet Savannah Mom to three, including twin micro-preemies Advocate for maternal mental health and children with disabilities ⏱️ [03:00] – The Unexpected Arrival: 24-Week Twins How Savannah's pregnancy took a sudden turn Navigating a traumatic birth and immediate NICU admission ⏱️ [09:00] – The Medical Rollercoaster Begins Brain bleeds, heart complications, and emergency surgeries Balancing hope with overwhelming medical challenges ⏱️ [13:00] – A Life-Changing Diagnosis: Cerebral Palsy & Hydrocephalus How Lachlan's brain injury shaped their early intervention journey The emotions of receiving a CP diagnosis and shifting expectations ⏱️ [24:00] – Maternal Mental Health: The Hidden Battle Why Savannah struggled with PTSD and anxiety  The moment a medical professional finally validated her trauma Why maternal mental health screenings should extend beyond the NICU ⏱️ [30:00] – The Power of Peer Support Finding community in other NICU and disability moms How social media became a lifeline for connection and hope ⏱️ [38:00] – Turning Pain into Purpose: Cards of Hope How Savannah combined her love for art with her advocacy Sending free, uplifting artwork to mothers of traumatic births How small acts of kindness can have a profound impact ⏱️ [44:00] – Lessons from Motherhood & Advocacy Why Savannah wouldn't change a thing about her son's journey The importance of celebrating progress, not just milestones How caregivers can find strength in their child's resilience ⏱️ [50:00] – Where to Find Savannah & How to Support Cards of Hope How you can receive or gift a Card of Hope Why sharing your story can be the start of healing Resources & Links

"What we realized was that rare isn't as rare as we think—there are so many of us out here searching for answers, fighting for our kids, and trying to make a difference."- Maria Granados We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their website. What if a simple miscommunication in the hospital could have cost your child their life? For Maria and Matt Granados, parents of a daughter with Pyroxd1, that terrifying moment led to a groundbreaking realization—and a mission to help other families facing rare diseases. In this powerful episode, we dive into: ✅ The challenges of diagnosing and living with Pyroxd1, a rare neuromuscular condition   ✅ A near-fatal hospital mistake that could have changed everything     ✅ How they turned their personal struggles into Take Part Foundation, a nonprofit funding rare disease research     ✅ The power of storytelling, advocacy, and community for families navigating the unknown       Maria and Matt's story is one of resilience, innovation, and advocacy, proving that "rare is more common than you think." Whether you're a rare disease parent, medical professional, or someone looking for inspiration, this episode is a must-listen. Timestamps & Key Topics ⏱️ [00:00] – Episode Intro Welcome to today's episode featuring Maria & Matt Granados Why raising awareness for Pyroxd1 is so important ⏱️ [01:00] – Meet Maria & Matt Their family's journey: married 9 years, three kids, and an entrepreneurial spirit How flexibility in work became essential for parenting a child with complex medical needs ⏱️ [03:00] – The Start of Their Rare Disease Journey Pregnancy and early signs something was different with Natalie The challenges of getting doctors to take concerns seriously Being told “don't worry” for a year—while their instincts said otherwise ⏱️ [09:00] – The Thanksgiving Hospital Crisis That Changed Everything Natalie's sudden health decline and emergency hospitalization The shocking realization that hospitals don't share medical records effectively How a simple website they built saved Natalie's life by preventing a life-threatening medication error ⏱️ [13:00] – Turning Their Experience Into a Mission How their frustration with the system led them to found Take Part Foundation Why families need access to their child's full medical history The power of self-advocacy in rare disease care ⏱️ [24:00] – What Is Pyroxd1? Understanding This Rare Condition A breakdown of what Pyroxd1 is and how it affects the body The difficulty of finding a diagnosis and why many families go undiagnosed ⏱️ [30:00] – The Reality of Rare Disease Research & “Death Valley” Funding The shocking truth: 95% of rare diseases have no FDA-approved treatment Why promising research often stalls due to lack of funding How Take Part Foundation provides grants to researchers in need ⏱️ [38:00] – How Take Part Helps Families Get Genetic Testing Many families can't afford genetic testing—so Take Part is filling the gap The impact of a diagnosis on getting insurance coverage for therapies and equipment ⏱️ [44:00] – Strengthening Their Marriage Through the Rare Disease Journey The emotional toll of raising a medically complex child The mindset shift that saved their marriage: “If Natalie's not offended, I don't need to be offended.” The importance of seeing doctors as humans, too ⏱️ [50:00] – Let Your Fight Shine: A Message for Other Rare Parents Maria's beautiful perspective on embracing the fight instead of hiding it Why advocacy is the most powerful tool rare disease parents have ⏱️ [52:00] – Where to Find Maria & Matt + How to Support Take Part Foundation How to get involved, donate, or apply for support Why storytelling is a crucial part of the rare disease journey Final words of encouragement for other families Resources & Links

"I remember sitting in the NICU thinking, ‘Am I going to lose my baby? Is this the best outcome for him? What will his life look like?' And then I realized—I wasn't alone in these thoughts. Other parents had been here before, and they found a way forward. That's when I knew we needed a community like Hope for HIE." — Betsy Pilon, Founder Hope for HIE We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their website. What happens when your child's birth doesn't go as planned, and you're suddenly navigating a diagnosis you never expected? For Betsy, the experience of welcoming her son Max was a crash course in resilience, advocacy, and finding a community that changed everything. In this heartfelt episode, we explore:   ✅ What HIE (Hypoxic Ischemic Encephalopathy) is and how it affects newborns     ✅ The emotional rollercoaster of an unexpected NICU stay     ✅ How Betsy became involved with Hope for HIE and transformed it into a global support network     ✅ The power of peer support, self-advocacy, and the importance of access to resources     Whether you're a NICU parent, healthcare professional, or simply looking for an inspiring story of perseverance, this episode is for you.

"I thought my job was to save my daughter, but I realized my job was to show her how to live with strength and resilience." – Dr. Maggie Kang   We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their website. In this powerful episode, Dr. Maggie Kang shares her deeply personal journey as a physician and a mother navigating her daughter's rare disease diagnosis, Neuromyelitis Optica Spectrum Disorder (NMOSD). She discusses the emotional and medical challenges she faced, her transition into advocacy, and how she now supports families through life coaching. In an insightful conversation, Katie and Maggie explore the complexities of grief, resilience, and advocacy. Maggie opens up about the difficult moments in her daughter's diagnosis, how she learned to trust her instincts, and the importance of both self-care and community in the rare disease journey. Together, they discuss the emotional weight of parenting a child with a chronic illness and the ways families can empower themselves in the healthcare system.  What You'll Take Away from This Episode:

"If something doesn't feel right, don't ignore it. Keep asking questions. You know your child better than anyone."-Jessica Baird, CCLS We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their website. What do you do when doctors keep telling you nothing is wrong—but your child is in pain every single day? For Jessica, a child life specialist and mom, that answer was simple: keep pushing until someone listens. In this powerful conversation, Katie sits down with Jessica to talk about the emotional, and eye-opening journey she went through to get answers for her daughter. What started as mild COVID symptoms quickly turned into persistent leg pain, countless doctor visits, dismissals, and dead ends—until finally, they got the diagnosis: long COVID. Katie and Jessica dive into what it feels like when medical professionals dismiss your concerns, how to find the right doctors who will listen, and why trusting your instincts as a parent is everything. They also talk about how long COVID is still misunderstood, especially in kids, and what families can do if they suspect their child is affected. What You'll Take Away from This Episode:

"I had to teach myself to advocate – no one should leave a hospital with more trauma than they came with."- Julie Walters We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their website. In this episode, Katie speaks with Julie Walters, a mom of two neurodivergent children, entrepreneur, and fierce advocate for inclusion and health equity.Julie shares her deeply personal journey navigating her daughter's epilepsy diagnosis, the challenges of parenting through complex medical experiences and how these experiences led her to create The Connected Parent – a resource hub empowering families to find critical services for children with medical complexities or neurodivergence. Julie's story is one of strength, determination and advocacy.  Key Takeaways we learn from Julie and Katie's Conversation: ✨ Becoming an Advocate Early: Julie's passion for advocacy began in childhood, growing up with a mother who had schizoaffective disorder. She learned how to find resources through persistence and necessity.

“Our goal wasn't to build something huge overnight – it was to listen to families, fill the gaps, and take that first step.” – Cheryl Whitty We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their website. In this heartfelt episode, Katie sits down with mother-daughter duo, Cheryl Witty and  Kimmy Witty to hear the inspiring story of how their family journeyed through chronic kidney disease and how a kidney transplant led to the creation of the Children's Transplant Initiative (CTI). Kimmy shares her personal experience of being diagnosed at age 12, receiving a life-saving kidney transplant, and how that experience fueled her passion for helping other families. Kimmy is now a certified Child Life Specialist and shares how her experiences inspired her to choose this as her career.  Cheryl reflects on her journey of being a mother and caregiver and how CTI has grown to provide housing, financial assistance, and mentorship for transplant families across Texas. Cheryl and Kimmy shares her experience transitioning from pediatric to adult care and how the role of parents can shift as their children grow into adulthood.

“Hope doesn't take away the darkness, but it shines some light in it.”- Abby Zachritz  We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their website.  In this powerful first episode of the year, Katie sits down with Abby Zachritz—better known as Advocacy Abby—who shares her journey from personal tragedy to becoming a beacon of hope for families in need. Abby recounts the near-drowning accident that changed her son Wyatt's life and how her unwavering hope and faith led her to discover vital resources. Now, through her platform, Abby connects families with grants and support they may not even know exists. This conversation is filled with practical advice, emotional insights, and inspiration for any parent navigating complex medical journeys. Katie and Abby dive into deep conversations about what it means to have hope during difficult seasons. 

Navigating Medical Rounds: Tips for Parents from a Child Life Specialist   In this episode, Katie Taylor, a certified child life specialist, offers critical insights and tips for parents navigating medical rounds with their hospitalized children.   She introduces Q Rounds, a new tool developed by Dr. Mike aimed at making rounds more predictable and accessible for families. Katie explains the purpose and structure of rounds, highlighting the importance of family-centered rounds.   She provides strategies for effective communication with the healthcare team, including preparing questions in advance and understanding the role of nurses during rounds.   Katie also emphasizes the value of collaboration and offers solutions for parents who can't be physically present, such as using apps like SupportSpot for consistent support and information. The episode aims to empower parents with the knowledge to advocate for their child's healthcare needs effectively.   00:00 Welcome and Introduction 00:08 Understanding Medical Rounds 00:56 Introducing Q Rounds 02:08 The Importance of Family-Centered Rounds 03:47 Tips for Effective Rounds Participation 06:50 Alternative Ways to Participate in Rounds 07:48 Conclusion and Additional Resources When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: SupportSpot Website Download SupportSpot iOS or Android 85% of users report high satisfaction, appreciating the Child Life On Call App's comprehensive resources and user-friendly interface. 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better. 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child. 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more here. Meet the host:  Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan    

Today on LIVE!, we get into some headlines from today and Linda Grace from Vitalant is in studio to talk about their upcoming blood drive with Shannon. Today's Top Stories: ‘I Accidentally Put Her in the Oven': Baby Placed in Hot Oven Instead of Crib, Police Say (12/10/2024)Auto Parts Seller Agrees to Settlement for Selling Emissions Defeat Devices (12/10/2024)Colonel Martin Releases First Q&A Session as Texas DPS Director (12/10/2024)DPS: Three of Texas' 10 Most Wanted Back in Custody (12/10/2024)Man Kills Father After Being Told to Get a Job, Deputies Say (12/10/2024)Rescue Call Reported at San Angelo Lighting Manufacturer (12/10/2024)Two Texas Cities Rank Among Top 10 Most Fun in the U.S. (12/10/2024)Angelo State Volleyball Heads to South Dakota as No. 3 Seed at National Tournament (12/10/2024)San Angelo ISD Partners with Midland ISD for Food Service Savings (12/10/2024)Luxury Sports Car Splits in Half in Deadly Crash, Killing Two in Dallas (12/10/2024)68 Pounds of Meth Found Hidden in SUV's Fuel Tank at Texas Border (12/10/2024)Cement Truck Crash Claims One Life in Texas (12/10/2024)Child Life Specialist at Shannon Provides Support for Families Navigating Medical Challenges (12/10/2024)Nearly 750 Angelo State Students to Graduate in Dual Ceremonies (12/10/2024)Breezy and Cold Tuesday Followed by Widespread Freeze (12/10/2024)DWI 3rd or More and Family Member Assault, Choking Top Booking Report (12/10/2024)San Angelo's Joel Harris Wins First-Ever Round at National Finals Rodeo (12/09/2024)Today in History: Discovery of Abandoned Camp Led to Historic Battle Near San Angelo (12/09/2024) 

Doctors and hospitals can be scary experiences for children, but health care designed specifically for kids can help reduce their fear. Erin Frost, a Child Life Specialist, discusses the impact of kid-friendly environments and how her role helps children and their families cope in health care settings.

  Today's episode is dedicated to the loving memory of Dr. Meredith Hitch, a cherished pediatric gastroenterologist at Ochsner Baton Rouge.   “You want to make sure that you are ready to be able to prepare not only yourself but your kiddo.” - Emily Martinec, CCLS   In this episode host Katie Taylor chats with Emily Martinec, another experienced Child Life Specialist. These two dive into the complexities of preparing children for an upper GI procedure. They provide valuable insights and practical tips for both parents and fellow specialists, sharing lessons learned from their work in pediatric radiology and GI. From scheduling the procedure to supporting children emotionally and physically, Katie and Emily guide listeners through every step of the process for both kids and parents. Whether you're a parent or a professional, this episode is packed with advice to help create an emotionally safe and successful experience for children. A HUGE thank you to our sponsors:  BeginHealth Prebiotics: Nutrition support for healthy digestion. Use code “ChildLifeOnCall” to get 25 percent off.  30% of children struggle with constipation and it can feel impossible trying to find a solution for your child. Especially if your child has food allergies or has a condition or illness, you want to feel good about the products you are selecting for your child. To me, finding a company whose products have the highest quality and natural ingredients is really important.  Begin Health®'s flagship product, Growing Up Prebiotics, is a tasteless, textureless fine powder that easily mixes into water, juice, or smoothies. This makes it convenient for daily use without altering the flavor of your child's favorite beverages. 25% off selected products: Daily Growing Up Prebiotics 28-Pack, Daily Growing Up Prebiotics Family Size, Double Subscription - Prebiotics, Families On-The-Go, Beginbaby Pre + Pro 28-Pack, Poop Tracker Gamecards and Stickers (6)

This week on the Team Lally Real Estate Radio Show, we interview Julie Kalakau of Sunshine School. Julie dives into the importance of early childhood education and how engaging with your kids helps in their development. We discover the unique beginnings of Sunshine School and its ties to PSI, learn about their age range, and find out what makes their school special through the power of dedicated volunteers and community involvement. Julie also shares the rewarding aspects of teaching young children.We also have our Experts We Trust with their Tip of the Week. Duke Kimhan of Hawaii Pacific Property Management emphasizes the importance of pricing rental properties correctly and how days on the market can lead to financial losses. Bradley Maruyama of Allstate Insurance advises on key coverage areas in insurance policies, and Dan Polimino from KW Big Island provides a real estate update, discussing current opportunities for buyers.Who is Julie Kalakau?Julie is a dedicated advocate for early childhood education from Kailua. She began her journey with Sunshine School in 1985 as a teacher's aide while attending college. She worked her way up to assistant director, developing a deep passion for early childhood education and contributing to the school's reputation for excellence. After working as a Child Life Specialist for 12 years, Julie returned to Sunshine School in 2018 as the director, bringing her extensive experience and dedication full circle.Sunshine School, established in 1978, was founded to provide an enriching early learning environment that recognizes the critical nature of these formative years. Their approach focuses on nurturing every aspect of a child's development through hands-on experiences and fostering meaningful personal connections.To reach Julie, you may contact her in the following ways:Phone: 808-261-8278Email: director@sunshineschoolkailua.comWebsite: www.sunshineschoolkailua.com/

This week on the Team Lally Real Estate Radio Show, we interview Julie Kalakau of Sunshine School. Julie dives into the importance of early childhood education and how engaging with your kids helps in their development. We discover the unique beginnings of Sunshine School and its ties to PSI, learn about their age range, and find out what makes their school special through the power of dedicated volunteers and community involvement. Julie also shares the rewarding aspects of teaching young children.We also have our Experts We Trust with their Tip of the Week. Duke Kimhan of Hawaii Pacific Property Management emphasizes the importance of pricing rental properties correctly and how days on the market can lead to financial losses. Bradley Maruyama of Allstate Insurance advises on key coverage areas in insurance policies, and Dan Polimino from KW Big Island provides a real estate update, discussing current opportunities for buyers.Who is Julie Kalakau?Julie is a dedicated advocate for early childhood education from Kailua. She began her journey with Sunshine School in 1985 as a teacher's aide while attending college. She worked her way up to assistant director, developing a deep passion for early childhood education and contributing to the school's reputation for excellence. After working as a Child Life Specialist for 12 years, Julie returned to Sunshine School in 2018 as the director, bringing her extensive experience and dedication full circle.Sunshine School, established in 1978, was founded to provide an enriching early learning environment that recognizes the critical nature of these formative years. Their approach focuses on nurturing every aspect of a child's development through hands-on experiences and fostering meaningful personal connections.To reach Julie, you may contact her in the following ways:Phone: 808-261-8278Email: director@sunshineschoolkailua.comWebsite: www.sunshineschoolkailua.com/

Child Life Specialist Secrets: Flu Shot Prep Strategies Every Parent Should Know Thank you to the sponsor of today's podcast: Begin Health In this episode of the Child Life On Call Podcast, hosts Katie Taylor and Emily Martinec, both certified child life specialists, discuss strategies for preparing, supporting, and responding to children during flu shots. The conversation extends to other medical experiences, offering developmentally appropriate ways to engage children. They emphasize collaboration with medical professionals, highlight coping techniques, and provide resources like the Support Spot app and a digital flu shot preparation course for parents. The focus is on empowering parents and creating a positive healthcare experience for children. 00:00 Introduction to Flu Shot Preparation 01:10 Empowering Parents and Respecting Medical Professionals 03:05 Understanding the Emotional Impact of Shots 04:08 Practical Tips for Flu Shot Day 09:31 Pain Management Techniques 21:07 Post-Shot Processing and Recovery 24:37 Final Thoughts and Encouragement When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: SupportSpot Website Download SupportSpot iOS or Android 85% of users report high satisfaction, appreciating the Child Life On Call App's comprehensive resources and user-friendly interface. 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better. 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child. 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more here. Meet the host:  Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan  

"Trust your gut. If your parent radar comes up and says this is not right, keep pushing." – Kim   In this episode, Katie Taylor speaks with Kim Miller, a mother whose journey navigating her son Grant's diagnoses of juvenile arthritis reshaped her life. Kim shares how her relentless advocacy led her family through unimaginable challenges, including managing chronic pain and finding the right medical care. Her inspiring story unfolds from the hardships of watching her son struggle to walk, to his incredible transformation into an NFL player. The episode highlights the critical role of trusting your parental instincts, advocating for your child, and finding innovative ways to manage chronic pain, offering hope to parents in similar situations.   Key Insights: Trust Your Instincts: Kim emphasizes the importance of trusting your gut as a parent and advocating persistently when something feels wrong, despite resistance from doctors. Holistic Care: The integration of multiple specialists and specialties working together in a holistic manner, including both physical and psychological treatment methods, was key to finding a comprehensive treatment plan for her son. Creative Healing: Techniques like art therapy, music therapy, and acupuncture played a significant role in managing her son's chronic pain and improving his quality of life. Resilience Leads to Success: Despite the odds, Kim's son went from a wheelchair to playing in the NFL, showcasing the power of determination, support, and a positive mindset. Support Networks Matter: Finding others who understand your struggles, whether through social media or hospital communities, can provide invaluable emotional and practical support.   Resources and Tips: Creative Healing for Youth in Pain (CHYP): Offers free online resources for adolescents and families managing chronic pain. Visit mychipchyp.org for webinars, creative healing workshops, and more. Mindfulness & Pain Management: Dr. Zeltzer's pioneering work in pediatric pain management focuses on rewiring the brain through techniques like self-hypnosis and mindfulness. Sour Candy Tip for Pain Management: A sour candy before a painful shot can help trick the brain into focusing on the sour taste instead of the pain. Book Reccomendation: What's an IV Start by Melissa Fatal, A Child Life Specialist, and Rosemary Peng, a nurse is a new favorite of ours, walking us through how to prep a child for an IV start.  When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: SupportSpot Website Download SupportSpot iOS or Android 85% of users report high satisfaction, appreciating the Child Life On Call App's comprehensive resources and user-friendly interface. 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better. 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child. 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more here. Meet the host:  Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan  

On this week's episode, we welcome Katie Taylor, Child Life Specialist and CEO & Founder of Child Life On Call - a support and resource provider to families & care teams through strategic partnerships with healthcare organizations. Child Life On Call enhances care & support with innovative, trauma-informed, and child life specialist-based solutions tailored ensure every family feels like an empowered part of the care team. We have such an interesting conversation around Child Life Specialists and the ways they can impact care for babies and children during medical challenges.On this episode, you will hear:- What is a child life specialist?- Child life in the NICU- Child life in pediatrics- The power of play and validation- Education and advocacy in child life specialists- Supporting siblings of children with medical challenges- Integrating child life practices into every day life- Support Spot App- The power of child-friendly language and validating emotions- Advocating for pediatric-focused care and comfort measuresYou can learn more about Child Life On Call by following their Instagram: @childlifeoncall and visiting their website.You can also download the Support Spot App here.Guest Bio:Katie Taylor received her Bachelor of Arts at Penn State University and she did her practicum at Children's National Medical Center. She did her internship at Inova Children's Hospital and received a fellowship in Hem/Onc & Adolescent Medicine at Inova Children's Hospital.Katie has over 12 years of Clinical Experience in PICU, ER, Adult, Outpatient, Inpatient Services and is an international and national speaker on Child Life Services.By leveraging technology, and putting education and support into an easy-to-use app, Katie Taylor found a way to empower patients, their families, and the care team, and expand access to child life services to people who needed it the most.The key to better care is here, and it fits in the palm of your hand. Let me show you what the Child Life On Call app can do for you.For more birth trauma content and a community full of love and support, head to my Instagram at @thebirthtrauma_mama.Learn more about the support and services I offer through The Birth Trauma Mama Therapy & Support Services.

"My immediate thought was I'm going to lose my son. That was where my head went immediately." - Reina Introduction In this episode of Child Life On Call, Katie Taylor talks with Reina, a devoted mother from Nashville, Tennessee. Reina shares her heartfelt journey of caring for her son Elliott, diagnosed with Burkitt lymphoma at eight years old. She discusses the emotional and practical challenges faced during Elliott's treatment, the importance of advocating for her child's needs, and the support systems that played a crucial role in their journey. Reina's story highlights resilience, the power of community, and the significance of effective communication in pediatric healthcare. Key Insights: Early Diagnosis and Challenges: Elliott's diagnosis journey began with a seemingly minor issue, leading to the discovery of a large mass in his tonsil, which was diagnosed as Burkitt lymphoma. Importance of Advocacy: Reina emphasizes the critical role of parental advocacy, including meticulous record-keeping, clear communication with medical staff, and involving Elliott in his care decisions. Support Systems: The support from family, the school community, and the involvement of a Child Life Specialist were invaluable in navigating the complexities of treatment and providing emotional and practical help. Emotional Coping: Reina discusses the emotional toll of her son's illness, the importance of mental health support, and the strategies used to help Elliott cope with the changes and challenges of his treatment. Creating Resources: Inspired by their experience, Reina has created children's books to help other families navigate similar journeys, emphasizing the importance of involving children in their care and providing accessible resources.   Resources and Tips: "When a Kid Like Me Fights Cancer" and other resources for helping children understand and cope with cancer. Read "A Brave Kid's Guide to Lymphoma" and"A Brave Kid's Guide to Leukemia"  to help your child cope with a lymphoma or leukima diagnosis.  To learn bout the mission of Hello Brave, founded by Reina, visit their website here. When parents feel empowered, everyone wins – kids thrive and the care team excels! Get the SupportSpot app! Now available for ALL parents without a hospital code! SupportSpot Website Download SupportSpot iOS or Android 85% of users report high satisfaction, appreciating the Child Life On Call App's comprehensive resources and user-friendly interface. 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better. 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child. 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more here. Meet the host:  Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan  

On today's episode, Katie had the privilege of speaking with Annie Gunning, a Certified Child Life Specialist and Grief Counselor, and Haley Thomas, a Licensed Master Social Worker, on their collaborative efforts to support families at Hope for HIE. Annie and Haley tailor their support to each family's unique needs, dedicating time to assess and implement the most effective strategies. Under the visionary leadership of Betsy Pilon, Executive Director of Hope for HIE, Annie and Haley are setting new standards in providing exceptional support to the families they serve.    Key Takeaways   It's important to meet families where they are.    Finding ways to help prepare children for procedures with items you have at home empowers children and their families.    Supporting the non-patient can be very impactful to families, this includes the siblings and parents.    Loss and Bereavement support is crucial to families. Grief is not linear and the community as a whole can be affected by a loss. Annie and Haley support these families through monthly support groups.    Collaborative support from one another professionally can create strong partnerships with the best interest of the family and child at heart.   When seeking help in a hospital setting, reach out to the person who makes you feel most comfortable. If they cannot provide the specific support you need, they will know who can and will direct you to the right resource.  Learn more about Hope for HIE here.    Parent Stories Matter If you enjoyed this episode, we encourage you to listen to more CLOC episodes where we highlight the experiences of parents navigating the healthcare system. Each story offers valuable perspectives and practical advice on supporting and empowering families during their healthcare journeys. When parents feel empowered, everyone wins – kids thrive and the care team excels! Empower Parents & the Care Team with SupportSpot 85% of users report high satisfaction, appreciating the Child Life On Call App's comprehensive resources and user-friendly interface. 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better. 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child. 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more here. Meet the host:  Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan        

Julia Gergens shares how her treatment throughout the years with Children's Wisconsin made in an impact in her life! With the help of Bella Denmark, a Child Life Specialist, Julia and oversees the Teen Advisory Council and Children's Prom and volunteers every Friday in various inpatient units.

Summer is quickly approaching, which means summer camps are in full swing! Summer camp is usually an extremely positive and beneficial experience for any child - but for burn survivor children, camp offers more than just fun. It provides a supportive community where they can share feelings and experiences with other children who have experienced similar trauma, fostering a sense of belonging and understanding. In this episode, Rachel is joined by two esteemed guests, Daniel Chacon and Kristen Quinn. Both are renowned burn camp experts and board members of the International Association of Burn Camps (IABC). They delve into the benefits of burn camps, offer valuable tips on preparing your children (and yourself as a caregiver!), and guide you on selecting the right camp. Rachel and her guests also share cherished camp memories and ways to keep the 'camp magic' alive long after camp ends. Looking for links? Check out our show's description on Apple Podcasts or Spotify.Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!   Meet Our Guests Kristen Quinn has been a passionate advocate for burn survivors and meaningful aftercare programs since 1993. She started her career as a burn center Child Life Specialist, earned her Masters in professional counseling in 2000 and spent the next 24 years as a mental health clinician at the burn center, with aftercare and burn camp as her focus. Kristen believes that every interaction, activity and discussion at camp has the ability to foster emotional growth and that camp provides challenges that allow campers to push beyond perceived limitations.Kristen has two children who are now forging their own lives as young adults. She has been married to a fire fighter for the past 30 years. There is always at least one dog in the house. Joy is found on rivers, hiking trails, in a good book or over a great meal. Friendships mean the world to Kristen.Daniel Chacon is the Executive Director of the Alisa Ann Ruch Burn Foundation, a California-based nonprofit organization that is committed to preventing burns and fires, and providing services to those who have been affected by burn injuries. Before joining AARBF, Daniel worked as an emergency dispatcher, firefighter, and high school teacher.Daniel is a proud member of various organizations such as the American Burn Association, the American Camp Association, and the International Association of Burn Camps, where he served on the board of directors in 2016 and was the immediate past president. He is passionate about discovering outcome measurements and has partnered on numerous research studies for burn survivors. He has also presented dozens of conferences throughout the United States.Links Learn more about the International Association of Burn Camps (IABC) View the IABC Camp Directory Learn more about the Alisa Ann Ruch Burn FoundationLearn more about the University of Utah Health Burn Camp ProgramResearch: Impact of a pediatric residential burn camp experience on burn survivors' perceptions of self and attitudes regarding the camp communityRead “Burn Camps Offer Unique Growth Opportunities”Read “Taking That “Camp Magic” Home With You”Podcast Sponsor Today's podcast is powered by the National Fire Sprinkler Association! NFSA aims to protect lives and property through the advancement of fire sprinklers. Learn more about fire sprinklers, fire advocacy, and how to get involved by visiting nfsa.org. Sponsor Girls with Grafts Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

On Season 9, Episode 8 of The LowDOWN: A Down Syndrome Podcast, Dawn McKellar gives us the lowdown on her work as a child life specialist.Support the Show.The LowDOWN: A Down Syndrome Podcast is produced by the Down Syndrome Resource Foundation. Learn more and support the podcast at DSRF.org.Follow @DSRFCanada on Facebook, Instagram, and Twitter.Leave us a rating and review on Apple Podcasts.

On this episode of The Power of Love Show we welcome special guest, Nicki Elischer. Nicki Elischer is a child life specialist, clinical counsellor, and art therapist in Vancouver BC. When working as a child life specialist at a local pediatric hospital, she supported children and families to cope with hospitalization, illness, grief, and loss. There she met her colleague Amanada Lascelle, and together they created With Love Grief Gifts, a company that creates therapeutic sympathy gifts for children and teens. It was important to them to address the cultural taboo of talking about death with children, and to point out the importance of acknowledging and caring for children's grief. Using their knowledge of child development, grief and loss, each gift they design meets children's need for information, comfort, and ritual. They hope to change the way we respond to children's grief by offering information, resources, and a tangible way to support children and youth experiencing grief and loss. Learn More Nicki: Website: WithLoveGriefGifts.com Instagram: @With.Love.Grief.Gifts Facebook: With Love • https://www.facebook.com/withlovegriefgifts Pinterest: With Love Grief Gifts • https://www.pinterest.ca/withlovegriefgifts/ Learn More About DDJF: Website: DDJF.org Instagram: @DeeDeeJacksonFoundation Facebook: Dee Dee Jackson Foundation LinkedIn: Dee Dee Jackson Foundation X: @DDJFoundation Leave a podcast review: Apple Podcasts: https://podcasts.apple.com/us/podcast/the-power-of-love-show/id1282931846 Spotify Podcasts: https://open.spotify.com/show/6X6zGAPmdReRrlLO0NW4n6?si=koXehESfSrSwA-zWi2vf-w Can't make the live-stream? You can always watch our syndicated interviews later on YouTube or Facebook! Subscribe to our YouTube channel: https://www.youtube.com/watch?v=2-Nd1HTnbaI Like Our Facebook Page: https://www.facebook.com/884355188308946/ Join our Official Facebook Group full of supportive community members: https://www.facebook.com/groups/1500933326745571/?ref=share_group_link Visit the DDJF official website: http://www.ddjf.org/ Follow us on Instagram: @DeeDeeJacksonFoundation --- Support this podcast: https://podcasters.spotify.com/pod/show/thepowerofloveshow/support

Ask Dr Jessica episode 128 with Kelsey Mora, a dual certified child life specialist and therapist, discusses her work in supporting children and families facing illness and grief. She shares insights on how to talk to children about cancer diagnoses, emphasizing the importance of using clear and honest language. Kelsey also introduces her book, 'The Dot Method,' which provides a comprehensive guide for children and families navigating cancer. Kelsey's work with the Pickles Group, a nonprofit organization supporting children of adult cancer patients, is also discussed.TakeawaysUse clear and honest language when talking to children about cancer diagnoses.Provide hope and positivity in conversations with children, balancing realism with optimism.Incorporate fun and joy into difficult days to lighten the mood and strengthen connections.Dr Jessica Hochman is a board certified pediatrician, mom to three children, and she is very passionate about the health and well being of children. Most of her educational videos are targeted towards general pediatric topics and presented in an easy to understand manner. Do you have a future topic you'd like Dr Jessica Hochman to discuss? Email Dr Jessica Hochman askdrjessicamd@gmail.com. Follow her on Instagram: @AskDrJessicaSubscribe to her YouTube channel! Ask Dr JessicaSubscribe to this podcast: Ask Dr JessicaSubscribe to her mailing list: www.askdrjessicamd.comThe information presented in Ask Dr Jessica is for general educational purposes only. She does not diagnose medical conditions or formulate treatment plans for specific individuals. If you have a concern about your child's health, be sure to call your child's health care provider.

On today’s episode, I am speaking with Kelsey Mora. Kelsey is a Certified Child Life…

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I had such a great discussion with child life specialist Jessica Correnti this week on the Widowed Parent Podcast. Jessica is the founder of a practice called Kids Grief Support. She is also the author of two picture books for young grievers, including her newest, The ABCs of Grief, which will be available in February 2024. In this discussion we dive deep on a number of topics, such as: the power of books to help kids see that they are not the only kid with a dead parent; the importance of being honest with kids; examples of clear language to help kids understand what it means when someone dies; what she looks for in a developmentally appropriate grief book for kids; and much more. So much of our focus at the Widowed Parent Institute is on helping parents learn about children's grief and how to support their own grieving kids. Today's guest has so much to share with us on this topic. Be sure to follow Jessica on Instagram, too, where she shares tips and resources about children's grief. -=-=-=-=- Thank you sponsors & partners: Help Texts - Grief support text messaging service. Tips and support delivered all year long, personalized based on your loss. Listeners get $10 off: https://helptexts.com/jennylisk BetterHelp - Talk with a licensed, professional therapist online. Get 10% off your first month: betterhelp.com/widowedparent Support the show - Buy Me a Coffee -=-=-=-=-

Adina Levitan, MS, CCLS is a certified child life specialist with a Master's degree in Child Life, Administration and Family Professional Collaboration from Towson University. To become a certified child life specialist Adina volunteered at Mt. Washington Pediatric Hospital and Johns Hopkins Children's Hospital. Following the completion of her Master's degree, Adina went on to complete three child life practicums at Sinai Hospital in Baltimore, University of Maryland in Baltimore and Children's National Medical Center in Washington DC. She completed her child life internship at Cohen Children's Medical Center in New Hyde Park, NY in the Pediatric Intensive Care Unit and the Emergency Department. Following her internship, Adina returned to Baltimore to work at Children's National Medical Center in DC where she provided child life services for children receiving surgery. Most recently, Adina provided child life services in the outpatient pediatric hematology/oncology clinic at Sinai Hospital. Adina is passionate about providing psychosocial services to pediatric patients and their families and improving the healthcare experience. Child Life On Call www.childlifeoncall.com Comfort Positions: A Guide for Parents and Healthcare Professionals https://www.megfoundationforpain.org/2023/03/14/comfort-positions-a-guide-for-parents-and-healthcare-professionals/ _______________________________________________________ Become a JOWMA Member! www.jowma.org  Follow us on Instagram! www.instagram.com/JOWMA_org  Follow us on Twitter! www.twitter.com/JOWMA_med  Follow us on Facebook! https://www.facebook.com/JOWMAorg/ Stay up-to-date with JOWMA news! Sign up for the JOWMA newsletter! https://jowma.us6.list-manage.com/subscribe?u=9b4e9beb287874f9dc7f80289&id=ea3ef44644&mc_cid=dfb442d2a7&mc_eid=e9eee6e41e

Are you a parent of a child with a medical condition? Join me, Katie Taylor, as I chat with Keeley Machen Schares, a Child Life Specialist, in this special episode of Child Life On Call. Keeley takes us through her incredible journey as a mother to a premature baby with hydrops fetalis and profound hearing loss. From routine ultrasounds to a life-saving diagnosis, Keeley's story will captivate you. Learn about the challenges she faced, the importance of finding the right medical team, and the power of support from fellow parents. Keeley's experience serves as a beacon of hope and inspiration for parents navigating through their own medical journeys. Don't miss out on this heartfelt conversation and join us today. In this episode, you will be able to: Discover how a child life specialist can support you and your child through their medical journey, providing invaluable emotional and practical guidance. Understand the complexities of hydrops fetalis and pregnancy complications, and gain valuable insights into managing these challenges during pregnancy. Explore the emotional toll of a lengthy NICU stay and discover strategies to navigate the rollercoaster of emotions that come with it. Learn about the journey of receiving a hearing loss diagnosis for your child and the positive impact cochlear implants can have on their life. Get inspired to become an advocate for your deaf child, empowering them to thrive and ensuring they have access to the resources and support they deserve. My special guest is Keeley Machen Schares Keeley Machen Schares is a seasoned Child Life Specialist with over seven years of experience. As a dedicated mom herself, she understands firsthand the challenges and emotions that come with having a child with medical conditions. Keeley's journey took an unexpected turn when her daughter, Dottie, was diagnosed with hydrops fetalis during pregnancy. This life-changing experience led her to navigate the complexities of the healthcare system while also being a supportive advocate for her daughter. Keeley's expertise in child life and her personal experience as a parent of a child with special healthcare needs make her a valuable resource for other parents facing similar situations. She brings a unique perspective and a wealth of knowledge to the discussion, providing insights and support to parents dealing with prematurity, hydrops fetalis, and hearing loss. The key moments in this episode are: 00:01:08 - Introduction to Keeley 00:03:25 - Finding Out About Dottie's Condition 00:06:55 - The Impact of the 32-Week Ultrasound 00:10:20 - Expressing Gratitude 00:15:32 - The whirlwind of Dottie's birth and NICU stay 00:18:26 - The significance of scent cloths 00:21:13 - Navigating visits and the emptiness of leaving 00:23:50 - Dottie's health progress and gratitude 00:26:13 - Balancing rest and gratitude for visitors 00:31:57 - Additional Testing and Switching Providers 00:34:30 - Cochlear Implants and Hearing Aid Phase 00:39:00 - Advocating for Deaf and Hard of Hearing Kids 00:40:28 - Impact on the Speaker's Life and Perspective   Connect with Keeley here.  Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

On this episode of The Power of Love Show we welcome special guest, Jessica Correnti, MS, CCLS. Jessica Correnti is a Certified Child Life Specialist with more than 15 years' experience. She spent the first 14 years of her career in the hospital setting in Pediatric ICUs, the Emergency Department, Inpatient Units, and Surgical Centers. Jessica has a Bachelor of Arts degree in Education of Young Children, a minor in Psychology and a Master of Science degree in Healthcare Administration and Community Health. She is the founder and owner of ‘Kids Grief Support', a private practice that provides virtual and in-person sessions to grieving children and families across the globe through therapeutic activities and support. Jessica is also the author of ‘Forever Connected', a children's book for bereaved siblings and ‘The ABCs of Grief', which will be released this fall. Jessica is passionate about supporting grieving children, families, and the professionals that companion the bereaved. Learn More About Jessica: Website: KidsGriefSupport.com Instagram: @KidsGriefSupport LinkedIn: Jessica Correnti Email: Contact@KidsGriefSupport.com

We wanted to repost this epsidoe to highlight that October is Learning Disabilities / Dyslexia / Attention Deficit Hyperactivity Disorder Awareness Month.  In a world of unexpected twists, sometimes the greatest surprises lie within our own children. Child Life Specialist, Shani Thornton's journey with her son's learning differences took an unforeseen turn, unraveling a mystery that went beyond what anyone could have imagined. But what if this unexpected twist held the key to unlocking their hidden potential? Join us as we delve into the story of a mother's unwavering determination, and discover how engaging in activities outside of academics could be the missing piece to building confidence and self-esteem in children with learning differences. Get ready to embark on a journey of empowerment and endless possibilities... In this episode, you will be able to: Immerse in Shani's passionate crusade to ensure her children with learning differences receive the care they need. Delve into the complex world of digital education amid a pandemic, and how this interplays with learning differences. Grasp the significance and need for early dyslexia diagnosis and intervention, shaping successful learning paths. Learn about the strategies to foster confidence in children with learning differences, touching upon areas beyond academics. Grasp the role of 'self-care' for those caring for children with learning differences, shedding light on avoiding burnout and delivering effective support. My special guest is Shani Thornton Meet Shani Thornton, a seasoned Child Life specialist with nearly 14 years of experience in the field. Living in Northern California, Shani balances being a loving mom of two alongside running her private practice, Child Life Mommy. Typically offering a range of services including hospice care support for children of adult patients, workshops, and grief counseling, Shani's approach is marked by compassion and understanding. Known for her deep understanding of child development, she has a personal connection to this episode's theme: raising confident children with learning differences. Shani has navigated her own children's learning journey and excels in creating an environment that facilitates emotional growth beyond academics. The key moments in this episode are: 00:01:14 - Introduction, 00:02:28 - Shani's Background, 00:06:04 - Challenges with Remote Learning, 00:07:59 - Individualized Education Plan (IEP), 00:10:26 - Diagnosis and Support, 00:15:42 - Early Interventions and Frustrations, 00:18:00 - Misdiagnosis and Advocacy, 00:19:22 - Individual Educational Evaluation and Interventions, 00:24:27 - Finding Support and Balancing Schoolwork, 00:26:18 - Explaining Learning Differences to the Child, 00:31:39 - The Nature of Dyslexia, 00:32:15 - Normalizing Dysgraphia, 00:33:44 - Supporting Children with Dyslexia in Online Learning, 00:36:03 - Supporting a Child with Dyslexia's Confidence, 00:39:53 - Identifying and Addressing Learning Differences   Connect with Shani here.   Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist  Course for Parents, Child Life Specialists and Clinicians!

Have you ever felt the weight of anxiety, isolation, or confusion while navigating through your child's healthcare journey? Today's episode takes a raw and insightful look into these challenges as we sit down with Katie Taylor, a seasoned child life specialist with over 13 years of experience under her belt. Together, we delve into the heart of what it truly means to be a parent in the healthcare landscape, tearing down the barriers that often leave us feeling alone and unprepared. We tackle the not-so-simple art of processing emotions in parenting. With Katie's guidance, we explore the strength in vulnerability, the power in authenticity, and the importance of emotional regulation. We discuss how parents can use their past experiences to positively influence their present situations, offering solace and direction to those of us who find ourselves lost in the adversities of medical experiences. We also underscore the role of health professionals in our journey, shedding light on how they can be our strongest allies in advocating for the best possible care for our loved ones.But, that's not all! Katie also walks us through her revolutionary creation: Child Life on Call - an app designed to provide families with the resources they need during a medical experience. We also address the vital importance of self-care, or as Katie puts it, 'replenishing our emotional tank', and the transformative power of gratitude. Wrapping up our conversation with a genuine expression of appreciation, we leave the door wide open for future insightful conversations. By the end of this episode, you'll be feeling more enlightened, inspired and ready to confidently approach your family's healthcare journey. Tune in and let's navigate this often uncharted territory together! Connect with Kara, host of The Special Needs Mom Podcast:Instagram: https://www.instagram.com/thespecialneedsmompodcast/Website: https://www.kararyska.com/Coaching OpportunitiesPathway to Peace {Group Coaching Program}: Schedule a Consult or Get More InformationActivation Session: An Activation Session is a mini-coaching session, which is recorded and shared as a podcast episode! It's a great way to get a complimentary taste of coaching AND support you in this community! Sign up for your session here! Come join The Special Needs Mom Podcast Community FaceBook Group!! Click here to Request to Join

Do you want to become a confident advocate for your child's medical needs? Are you searching for a solution to navigate the complex world of medical care for children with conditions? Join us as we welcome Kayleigh Koehler, a Child Life Specialist who has transformed into a medical parent. She will be sharing valuable insights and strategies on how you can achieve the ultimate goal of becoming a knowledgeable and effective advocate for your child's medical journey. Get ready to embark on a transformative journey towards becoming the empowered advocate your child needs. Kayleigh Koehler is a remarkable and multifaceted individual who navigates through life wearing various hats. As a wife to her high school sweetheart Mitch and a mother to their charming four-year-old son, Hudson, Kayleigh's world is filled with love and profound resilience. Professionally, she is a dedicated child life specialist working tirelessly in a cardiac ICU. Her firsthand expertise and personal connection to her job started to take a unique and powerful perspective when her unborn son was diagnosed with a heart condition. Kayleigh's courage, wisdom, and gutsy perseverance inscribed an unforgettable chapter in her life story where her professional and personal world astoundingly intertwined. Because of this experience, I am a better child life specialist. Because I understand the world in a different way that I simply could not understand when I wasn't a mom. - Kayleigh Koehler    The key moments in this episode are: 00:00:00 - Introduction, 00:01:42 - Reflections on Trauma and Mental Health, 00:09:47 - Advocacy and Empathy in Child Life, 00:13:21 - Permission to Coexist with Messiness, 00:13:56 - Conclusion, 00:16:17 - Introducing a New Course for Parents, 00:17:25 - The Importance of Advocacy, 00:21:05 - Speaking Up for Change, 00:24:35 - The Pressure of Being a Parent Advocate, 00:27:08 - Differentiating Between Healthy and Unhealthy Advocacy, 00:30:45 - The Importance of Support and Self-Care, 00:31:38 - Utilizing Social Media for Connection, 00:32:03 - Prioritizing Mental Health, 00:33:08 - Dreams and Future Aspirations, 00:33:28 - Resources and Support Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist  Course for Parents, Child Life Specialists and Clinicians!

Meet J.R., a parent on a challenging journey. From aggressive behaviors to sensory challenges, she shares her struggles of raising a child with severe special needs. But just when things start to improve, an event occurs which leaves her questioning everything. You will not want to miss this story of resilience and uncertainty. In this episode, you will be able to: Gain insights into the journey of raising a child with significant special needs, and learn how to turn these experiences into growth opportunities. Discover the challenges in obtaining an early diagnosis and the role of perseverance in overcoming these hurdles. Understand the importance and the process of tailoring therapeutic interventions for your special needs child. Identify the importance of self-care and support networks for parents and caregivers of special needs children. Immerse in the raw and real-life narration of completing a book detailing a child's unique experiences. My special guest is J.R. Meet J.R., a remarkable woman whose world authentically embodies the complexities and nuances of parenting. An academic powerhouse, J.R. boasts a solid background in molecular biology and human genetics. But it's her real-life experience as a mother to three beautiful sons - one of whom has a severe diagnosis - that truly validates her expertise. Her middle son's journey with intellectual disability, seizures, autism, and behavioral challenges led to his group home placement from the age of twelve. J.R.'s dedication to understanding and improving the lives of children with complex needs manifests in her volunteering with the SynGAP Research Fund. Her candid accounts of becoming a parent, navigating the healthcare system, and learning to balance her family's varied needs radiate a contagious strength and resilience. The key moments in this episode are: 00:00:09 - Welcome to ChildLife on Call, 00:01:11 - Introduction of Jr. and her Family, 00:06:40 - Placing Her Son in a Group Home, 00:10:17 - Transitioning into Motherhood, 00:11:29 - Advocating for Her Son's Needs, 00:15:41 - The balance between love and fear, 00:16:29 - Therapy and transformation, 00:18:03 - Floor Time therapy, 00:22:26 - Wisdom of a child, 00:25:19 - Self-care and challenging cultural expectations, 00:30:48 - The Start of Challenging Behaviors, 00:32:36 - Underestimating Sensory Challenges, 00:34:22 - Reaching a Breaking Point, 00:36:14 - Fear and Relief in Getting Help, 00:45:46 - The struggle to finish the book, 00:46:15 - Joey's aging, 00:46:53 - Timing is everything, 00:47:32 - Gratitude for the community, 00:48:09 - Conclusion and resources Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist  Course for Parents, Child Life Specialist and Clinicians!

Have you ever heard these myths about preparing children for ambulance rides and hospital transfers? Myth 1: Children don't need any special preparation for medical transportation. Myth 2: It's best to keep children in the dark about what to expect during the ride. Myth 3: Distractions like toys or electronics can prevent children from feeling anxious. In this episode, our guest Josh Itano will debunk these myths and share the truth about how to prepare children for a smooth and anxiety-free medical transportation experience. Join host Katie Taylor as she interviews ambulance paramedic Josh Itano, who shares valuable insights on how to prepare children for ambulance rides and hospital transfers. Learn how to ease your child's anxiety and create a comforting environment, but be prepared for a shocking moment that will leave you questioning what happens next. Find out more on the Child Life On Call podcast. In this episode, you will be able to: Navigate the intricate relationship between Child Life and EMS for effective emergency service delivery. Realize the value of establishing strong family communication mechanisms during emergency medical situations. Unearth helpful strategies to make ambulance rides and hospital transfers less daunting for children. Unwrap the significance of preparation books and visual aids in children's adaptation to medical scenarios. Investigate how creating a comforting environment affects pediatric patients' overall experience. My special guest is Josh Itano. Meet Josh Itano, an empathetic first-responder whose commitment to his profession is evident in the extra steps he takes to provide comfort during stressful times. After spending over three and half years working as an EMT Basic, Josh's experiences span from serving suburban Chicago neighborhoods to aiding in wilderness settings. He's been an EMTB Field Training officer and chaplain, and he voluntarily serves the Glenwood Volunteer Fire Department. Josh brings to light the critical aspect of communication during high-stress situations and shares his experiences dealing with a range of patients, including those dealing with psychological distress. The key moments in this episode are: 00:00:00 - Introduction, 00:01:15 - Why Josh Reached Out, 00:05:37 - Communicating with Kids, 00:09:20 - Validating and Listening, 00:11:53 - Being Honest and Detailed, 00:14:37 - What Happens During an Ambulance Call, 00:15:57 - Inbound Report and Hospital Arrival, 00:17:56 - Sensory Issues and Sirens, 00:19:16 - Involving Parents and Normalizing the Experience, 00:24:31 - Parents Taking Care of Themselves Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist  Course for Parents, Child Life Specialist and Clinicians!

  In a world turned upside down by the pandemic, one Child Life Specialist found herself on a journey she never could have anticipated. But little did she know, a twist of fate was about to lead her down an unexpected path. This story is the catalyst for a groundbreaking virtual Child Life Specialist program. Stay tuned to discover how her resilience and determination transformed the healthcare experience for children and their families, forever changing the landscape of pediatric care. In this episode, you will be able to: Explore the unique workings of the virtual child life specialist program at Helen DeVos Children's Hospital. Dive deep into the methodology behind pre-surgical tours and outpatient surgery center tours to deliver premium care. Realize how fundamentally decreasing anxiety levels pre-medical procedures can contribute to empowering families. Dive into the groundswell of positive feedback flooding in from staff and families regarding virtual visits. Realize the compelling need for specialists to craft personalized messages for optimal patient interaction.  My special guest is Sarah Lanham Meet Sarah Lanham, a dedicated and passionate Certified Child Life Specialist revolutionizing the field with her innovative virtual services. She hails from Grand Rapids, Michigan, working at the renowned Helen DeVos Children's Hospital. Since stepping into the world of virtual patient care, Sarah has effectively transformed traditional face-to-face services, demonstrating the direct impact virtual child life services can have on kids and their families. Her work not only helps to demystify hospital visits for children but also significantly reduces their apprehension and fear. Her successful adaptation to a virtual setting underscores her skill in navigating the modern needs of child healthcare. The key moments in this episode are: 00:00:00 - Introduction, 00:02:07 - Transition into Virtual ChildLife Services, 00:06:30 - Daily Responsibilities, 00:09:09 - Challenges and Solutions, 00:12:19 - Impact and Feedback, 00:14:21 - Constant Communication and Handoffs, 00:14:57 - Need for More Child Life Specialists, 00:15:47 - Success of Email Communication, 00:16:51 - Technology's Impact on Appointment Reminders, 00:17:39 - Appreciation for the Guest's Work,   Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.  

Welcome back villagers, today get to hang out with an old friend of mine. Ali Waltien, a licensed clinical psychologist and a certified child life specialist. Ali started her career in 2008 as a certified child life specialist here at UVM, our children's hospital. I reached out to Ali when I was writing Tiny Humans, Big Emotions, because I really wanted to talk about the emotional aspect, about how to help kids process death and the do's and don'ts, about talking about sickness and death. And it's one of those things that I think all of us grew up with different experiences around it, and it can come with a lot of feelings for us as the adult. So I turned to Ali. This episode is full of real life scripts and tips that anyone can implement.    Connect with Ali Website: aliwaltien.com Book Recommendations   Connect with us on: Instagram: Tiny Humans, Big Emotions (@seed.and.sew) Podcast page: Voices of Your Village Music by: Bensound Seed and Sew's Regulation Quiz: Take the Quiz Preorder Tiny Humans, Big Emotions now!