Podcasts about caregiver support

Some days it feels like everyone wants a piece of you. Your attention. Your time. Your patience. Your energy.This guided meditation offers a gentle space to reconnect with yourself and create healthy boundaries without building walls.Through breath, awareness, and visualization, you'll be invited to notice what is yours to carry and what you can let go.Perfect for caregivers, helpers, parents, people-pleasers, and anyone feeling emotionally drained.When you've given so much to everyone else that you've forgotten about yourself, press play.Send us Fan MailFor those who have reached out asking how to support Adrienne and her family during this time, click here to donate. There is absolutely no expectation—just sincere gratitude.We Didn't Plan For This Special SeriesThis series exists because so many of you reached out and said, “I didn't plan for this either.”If you've gone through a diagnosis, a loss, a life change, a career shift, a divorce, becoming a caregiver, moving, starting over — we want to hear your story.You don't have to have it figured out. You just have to be willing to share honestly.How Yoga Changed My Life a PodcastSend Us Your Stories!If you have a story about how yoga, meditation, breath work, journaling, or movement changed your life, we want to hear from you! These podcasts are really about the same thing — how people move through the seasons of life they didn't plan for, and what helps them along the way.If you'd like to be on the show or share your story:  Fill out our guest form or email us at yogachanged@gmail.com Follow us on TikTok:https://www.tiktok.com/@yogachanged...

Caregiver Support with Rooted Within Wellness Founder Vicky Lynn Andritsch on this week's Fridays With Larry

When parents are not following through with ABA strategies at home, it is easy to assume they are not motivated or invested. But more often, families are overwhelmed, exhausted, and trying to balance countless competing demands. In this conversation, we talk about why parent follow-through can be so challenging and how we, as ABA professionals, can approach those situations with more compassion, curiosity, and collaboration.We discuss common barriers that affect implementation, including stress, emotional load, complex strategies, lack of immediate reinforcement, and mismatched priorities. We also share practical ways to improve carryover by simplifying strategies, embedding supports into existing routines, modeling in real time, and celebrating small wins along the way.Most importantly, we explore how shifting from a mindset of compliance to partnership can help create meaningful progress for families. Parent coaching is not about perfection or clinical precision at home. It is about building realistic, sustainable strategies that work in everyday life and supporting families in a way that feels manageable and empowering.What's Inside: Why parents may struggle to follow through with ABA strategiesPractical ways to improve parent coaching and carryoverHow collaboration and small wins create long-term successMentioned in This Episode:Episode 137: Parent Coaching/TrainingHowToABA.com/joinHow to ABA on YouTubeFind us on FacebookFollow us on Instagram

What if your healthcare team already knew what happened during your hospital stay — before you even explained it? What if someone on your care team noticed you were struggling on a Saturday and simply showed up? In this episode, Jamie sits down with Christopher Laffey, Nurse Practitioner at Your Health, to break down what a truly connected, proactive model of care actually looks like when it's working. Christopher practices in North Charleston, SC, where his team — nurses, therapists, social workers, community health workers, and more — functions less like a traditional office practice and more like a living, breathing safety net woven around each patient's real life. What you'll hear in this episode: Why most patients are failing not because nobody cares, but because the system itself is fragmented — and what doing it differently actually looks like on a Tuesday morning The real difference between "patient-centered" as a marketing phrase and patient-centered as a daily practice (hint: it involves seeing the medication bottles on the kitchen table) A powerful real-life story of a bedbound patient whose caregiver suddenly disappeared — and how the team mobilized over a weekend, on their own time, to prevent a hospitalization The single mindset shift every clinician needs to make the transition from visit-based thinking to longitudinal care Why "value-based care" doesn't mean discounted care — it means the organization is accountable for your outcomes, not just your appointments If you've ever left a doctor's appointment feeling more confused than when you walked in, this episode will show you what healthcare can feel like when it's actually designed around you. www.YourHealth.Org

Alzheimer's can take so much, so fast, and the hardest part is feeling like you have zero control. We're Susie Singer Carter and Don Priess, and we're joined by Mark Wilson, a former Fortune 500 leadership executive whose new book, Breakthrough Alzheimer's Care, offers a hopeful roadmap that leads to thriving, not just surviving through a dementia journey.After his mother was diagnosed with both Alzheimer's and vascular dementia, Mark made the life-changing decision to leave a successful corporate career and become her full-time caregiver. What followed was a remarkable journey that challenged expectations and transformed both their lives.Drawing on leadership principles, practical strategies, and deep personal experience, Mark shares how families can become Care Leaders, not just caregivers, by creating environments that prioritize safety, joy, connection, purpose, and well-being.We discuss:• The mindset shift from caregiver to care leader• The five breakthrough pillars of care• Building and leading an effective care team• Creating moments of joy even in the face of dementia• Supporting your loved one without losing yourself• Why hope still matters after an Alzheimer's diagnosis• Finding purpose and meaning throughout the caregiving journeyWhether you're caring for a parent, spouse, partner, or friend, this episode offers practical guidance, heartfelt wisdom, and a powerful reminder that love can still create extraordinary moments.Because even when there is no cure, there can still be connection, purpose, and joy.If this conversation helps, subscribe, share it with a friend who's caregiving, and leave a review so more families searching for Alzheimer's caregiving support and dementia care strategies can find it.#LoveConquersAlz, #Alzheimers, #Dementia, #Caregiving, #FamilyCaregiver, #CaregiverSupport, #DementiaCare, #SeniorCare, #CareLeader, #AgingParents, #CaregiverLife, #AlzheimersAwareness, #CaregivingJourney, #ElderCare, #CaregiverWellnesConnect with Mark:Website: Bold Care LeaderLinkedIn: LinkedIn ProfileInstagram: @boldcareleaderFacebook: Mark Wilson / Bold Care Leader on FacebookBook: Breakthrough Alzheimer's CareSend us Fan MailIf someone you love experienced neglect in a nursing home…Then you know how desperately the system needs to change.  History has shown us that It takes people power to change anything worthwhile. That's why we we're launching something that's never been done before. On September 27, communities across the country are coming together for the first-ever National Long-Term Care Reform Day.This is a peaceful national walk for dignity, accountability, and change in long-term care.We'rSupport the showNo Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r) Visit the No Country For Old People Website for more information.Please watch. Review. Share.Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT (Respect, Oversight, Advocacy, Reform) for quality long term care! Visit the ROAR 4 LTC Website for more information and consider participating in the inaugural National National Long-Term Care Day, Sunday, September 27th The 1st ever ROAR 2026 National Walk for Long-Term Care Reform! Found out more here: https://www.roar4ltc.org/roar-2026-walkFollow us on Twitter, FB, IG, & TiK Tok

Send us Fan MailFive years after my book No Regrets: Hope for Your Caregiving Season released, I'm taking you inside the message that has come back to me in emails, reviews, and tearful “me too” notes from family caregivers. If you've ever felt isolated by Alzheimer's disease, dementia care, or the nonstop mental load of caregiving, I want you to hear this clearly: you are not alone, and God is not absent from the hospital room, the memory care unit, or the quiet kitchen table where you sort pills. I share five practical, faith-rooted truths that can anchor you through long days and hard decisions. We talk about intentional caregiving that helps you look back with fewer regrets, how caregiving requires both head and heart, and why faith doesn't mean you never feel fear. You'll hear a simple pattern for handling anxiety by naming what's scary, remembering God's character, and asking only for today's portion of strength, plus a needed reminder that honoring your loved one does not require losing your health, your boundaries, or your calling. To celebrate, I'm hosting a Five Days of Hope Celebration (June 1 through June 5) and giving away five signed copies of No Regrets. Listen, share this with a caregiver who needs hope, then subscribe, leave a review, and tell me: which of the five truths do you want to practice this week?

For many families, going home from the hospital feels like the finish line. But what happens when the emotional impact of a medical experience lingers long after discharge? On this episode of Inside the Children's Hospital, Katie Taylor sits down with Jen Aspengren, founder of Alongside Network, to discuss pediatric medical traumatic stress (PMTS), a common yet often overlooked experience that affects children, parents, siblings, and caregivers following serious medical events. Jen shares her family's journey after her infant son underwent life-saving airway surgery at just seven months old. While his physical recovery went well, the emotional effects lasted for years, leading Jen to discover a significant gap in support for families navigating life after hospitalization. Together, Katie and Jen explore: Jen's son's diagnosis of congenital subglottic stenosis and emergency airway surgery The unexpected emotional toll that followed after returning home What pediatric medical traumatic stress (PMTS) is and how it affects the entire family Common signs of traumatic stress in children, parents, and caregivers Why many families feel isolated after discharge despite receiving excellent medical care The importance of validation, community, and coping skills during recovery How small moments of connection from healthcare providers can build trust and resilience The impact of emotional support on long-term health outcomes and medical adherence How Alongside Network is helping families and healthcare providers better navigate medical trauma Jen also shares practical insights for healthcare professionals, highlighting how simple actions—such as a follow-up phone call or a few moments of acknowledgment—can make a lasting difference for families facing difficult diagnoses and hospitalizations. This conversation is a powerful reminder that healing doesn't end when a child leaves the hospital. Supporting the emotional well-being of children, parents, and caregivers is an essential part of recovery. About Our Guest Jen Aspengren Jen Aspengren is the founder of Alongside Network, a nonprofit organization dedicated to helping families and healthcare providers address pediatric medical traumatic stress. Prior to founding Alongside, Jen spent over 20 years working in systems-change initiatives and supporting social entrepreneurs around the world. Today, she combines her professional expertise with her lived experience as a healthcare parent to improve support systems for families navigating medical challenges. About Alongside Network Alongside Network works to ensure that families affected by pediatric illness, injury, and hospitalization have access to the emotional support they need during and after medical experiences. One of their core offerings is a free six-week virtual well-being program for parents and caregivers based on the evidence-based Take a Breath curriculum developed at the Royal Children's Hospital in Melbourne, Australia. The program focuses on: Validation of family experiences Building supportive community connections Developing coping and resilience skills Resources & Links Learn more about Alongside Network: https://www.alongsidenetwork.org Connect with us! Instagram: @childlifeoncall + @insidethechildrenshospital Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Leave a Review: It helps other families find us and access our resources   Medical information shared in this episode is not a substitute for professional medical advice. Please consult your care team for guidance specific to your child and family. Pediatric Medical Traumatic Stress, Medical Trauma, Medical Parenting, Child Life Specialist, Family-Centered Care, Pediatric Mental Health, Caregiver Support, Pediatric Hospitalization, Trauma-Informed Care, Family Resilience

In this episode of Marrow Masters, Peggy Burkhard talks with caregiver Ashlee Cramer about what caregiving really looks like during cancer, bone marrow transplant, and survivorship. Ashlee shares the story of her son Michael, who was diagnosed in 2020 with hepatosplenic T-cell lymphoma. Their family had already lived through cancer once before, when Ashlee's husband Patrice was diagnosed with large B-cell lymphoma in 2014 and later died at home in hospice, surrounded by his family. Ashlee explains that caregiving is often misunderstood. Caregivers are not saints who always feel strong, positive, or ready. Many are scared, exhausted, grieving, and trying to manage jobs, children, finances, appointments, medications, and the emotional weight of watching someone they love suffer. She says caregivers often feel pressure to do everything alone, but that pressure can lead to burnout and isolation. The conversation focuses on the reality that caregiving is not always temporary or predictable. For Michael, treatment moved quickly from diagnosis to hospitalization to transplant. He received a stem cell transplant from an anonymous donor, went into remission, and then developed serious complications, including engraftment syndrome, acute graft versus host disease (GVHD) , and chronic GVHD. Ashlee says Michael is a miracle, and while GVHD remains part of his life, the key word is living. Ashlee also talks about mental health for caregivers. She names anxiety, depression, post-traumatic stress disorder (PTSD), burnout, and loneliness as common experiences. She points out that many cancer centers offer support for patients, but caregivers often have to search for help on their own. Support groups, virtual programs, and caregiver resources can make a major difference because connection helps people feel less alone. A central message of the episode is that caregivers need care too. Ashlee encourages caregivers to take small pockets of peace when they cannot take a full day away. A shower, a breathwork practice, a walk outside, a cup of coffee, or a short hug from another caregiver can help. She also reminds caregivers to accept help. A meal train, a friend waiting in the hospital lobby, or someone offering a few minutes of support can ease the load. The episode ends with hope. Ashlee talks about post-traumatic growth, or PTG, and the idea that people do not have to bounce back to who they were before trauma. They can bounce forward. Michael and Ashlee continue to advocate, share their story through their podcast Michael and Mom Talk Cancer, and remind other caregivers that they are not alone. Thanks to this season's sponsors, Incyte and Sanofi. (00:00 Intro (04:05) Misconceptions about caregiving and why caregivers are not saints (05:30) Why caregivers should not be expected to do everything alone (07:00) The pressure to “stay strong” and how it can isolate caregivers (09:49) The reality of caregiving and how much it affects mental health (12:03) Work, family, sacrifice, and the myth of balance (16:40) Caregiver anxiety, depression, PTSD, burnout, and the need for support (20:40) Finding small “pockets of peace” when a full break is impossible (23:10) What Ashlee wishes she knew earlier about speaking up and asking questions (24:59) Why accepting help matters and how a meal train supported her family (34:09) Post-traumatic growth and the idea of bouncing forward instead of bouncing back National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/Check out our valued nbmtLINK resource books, some for sale, some free as downloadable, https://www.nbmtlink.org/shop/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment. It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.The views and opinions expressed by the speakers are their own and do not necessarily reflect the official policy or position of the nbmtLINK. Unless otherwise stated in an official policy, the nbmtLINK does not endorse any specific treatments, products, or services mentioned by the speakers. Reliance on any information provided is solely at your own risk.The Marrow Masters Podcast is produced by JAG Podcast Productions: https://jagpodcastproductions.com/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

In this episode of Marrow Masters, we speak with Stephanie Chuang, founder and chief storyteller of The Patient Story. Stephanie shares how her life changed at 31, just two months before her wedding, when she was diagnosed with lymphoma. At the time, she was working as a TV news reporter in San Francisco and had been explaining away symptoms like fatigue, bloating, and a strange cough. A same day doctor's visit led to blood work, an x-ray, an emergency CT scan, and then the call that confirmed lymphoma. Stephanie talks about the shock of diagnosis and the fear that followed. She also shares how much it mattered to have people around her who understood how to navigate the health care system. A family friend who was a doctor helped her get into care quickly, showed her what steps to take, and became a human compass during a frightening time. That experience stayed with her. It helped shape the reason she later created The Patient Story, so others would not have to feel so alone after diagnosis. The conversation then moves into survivorship and the emotional whiplash that can happen when treatment ends. Stephanie explains that hearing “no evidence of disease” was a huge relief, but it did not mean life went back to normal. She felt grateful, but she also felt lost. Her identity as a journalist, fiancé, daughter, sister, and busy person had been shaken. She could not simply return to the same pace or the same version of herself. Stephanie also talks about scanxiety and the surveillance cycle. She describes how difficult it can be to move from frequent monitoring to longer gaps between appointments. Graduating from three month checks to six month checks can feel like progress, but it can also feel scary. She explains that giving herself permission to feel anxious, without adding shame, helped her cope. We also talk about the phrase “the new normal” and the late effects that can follow intense treatment. Stephanie shares that survivorship requires more support than many people realize, especially when patients move from oncology care back to primary care. She emphasizes the importance of meeting people where they are, validating their fears, and helping them feel less alone. The episode closes with Stephanie's message to newly diagnosed patients: you are not alone, your questions matter, and you deserve to speak up in the doctor's office. The Patient Story exists to share honest, hopeful stories that help people find connection, information, and courage. Links: The Patient Story: https://thepatientstory.com/ Bag It Cancer: https://bagitcancer.org/ Escape to THRIVE: https://escape4advocates.org/ Thanks to this season's sponsors, Incyte and Sanofi. (00:00) Intro (01:34) Stephanie begins her cancer story (06:01) Navigating the medical system with help from a doctor friend (07:16) Hospital testing, biopsy, and the idea behind The Patient Story (08:35) Moving into survivorship (10:14) Identity, work, and life after cancer (13:03) Scanxiety and the surveillance cycle (16:31) Survivor guilt and transitioning back to primary care (17:47) Identity loss after leaving a news career (23:21) The phrase “the new normal” (26:36) Meeting people where they are in survivorship (28:16) The power of patient storytelling (28:41) Caregivers, care partners, and family support (30:20) Advice for newly diagnosed patients National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/Check out our valued nbmtLINK resource books, some for sale, some free as downloadable, https://www.nbmtlink.org/shop/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment. It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.The views and opinions expressed by the speakers are their own and do not necessarily reflect the official policy or position of the nbmtLINK. Unless otherwise stated in an official policy, the nbmtLINK does not endorse any specific treatments, products, or services mentioned by the speakers. Reliance on any information provided is solely at your own risk.The Marrow Masters Podcast is produced by JAG Podcast Productions: https://jagpodcastproductions.com/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Today, Peggy talks with Daniel Gaylor, LCSW, OSW-C, ACHP-SW, and a social work supervisor at Moffitt Cancer Center, about what happens after patients and caregivers get through the intense treatment period and begin asking, “Now what?” Daniel explains that recovery does not mean life snaps back to normal. Survivorship brings fear, relief, hope, uncertainty, and exhaustion all at once. Those reactions are normal, and they deserve to be named. Daniel explains why post-traumatic stress disorder (PTSD) can show up after transplant. A transplant is not a routine treatment. It can involve long hospital stays, isolation, major physical side effects, and real fears about survival. When patients return for follow up visits, they may be brought back emotionally to those difficult hospital days. This can make survivorship feel complicated, even when the transplant was successful. Another key theme is slowly letting go. Patients may feel afraid to go out, socialize, eat in a restaurant, drive, or return to activities they once enjoyed. Daniel encourages survivors to start small and to be fair to the situation. It is easy to imagine the worst case. But it also helps to keep yourself honest - say out loud what could happen if things go well. The episode also addresses the “strain of worry.” Daniel describes signs of anxiety and depression, including sleep problems, racing thoughts, trouble concentrating, irritability, sadness, appetite changes, and not wanting to do things that usually bring joy. He reminds listeners that difficult days do not mean failure. Survivors should be able to say, “Today is not my best day,” and ask for help. Peggy and Daniel also talk about toxic positivity. While loved ones often mean well, phrases like “you're lucky to be alive” can minimize a survivor's fear or pain. Daniel encourages honest communication. Patients can thank loved ones for their support while also explaining what would help more. Social connection is another major part of healing. Daniel urges survivors and caregivers to increase connection and reduce isolation. A quick text, a short call, a support group, or a shared conversation can make a real difference. Peggy highlights programs where survivors can meet others who understand graft versus host disease (GVHD) and transplant recovery. Daniel closes with the idea of building a “tool belt.” Each person needs practical coping tools, whether that is a friend, music, journaling, counseling, mindfulness, a book, or a favorite place to reset. Caregivers need their own tool belts too. Transplant affects the whole support system, and survivorship works best when people communicate, ask for help, and remember they are not meant to do this alone. Links: Elephants and Tea: https://elephantsandtea.org/ BMT InfoNet: https://bmtinfonet.org/ Blood Cancer United: https://bloodcancerunited.org/ Thanks to this season's sponsors, Incyte and Sanofi. (00:00) Intro (01:01) Normalizing emotional reactions during recovery (04:22) PTSD after transplant and why it matters (08:59) Slowly letting go after transplant (13:12) Facing the worst case and choosing to move forward (13:53) The strain of worry and mental health red flags (19:31) Toxic positivity and the power of validation (20:26) How to talk with loved ones who are trying to help (22:39) Social health, connection, and friendship (26:43) Support groups, GVHD, and feeling understood (28:07) Building a survivorship "tool belt" (33:08) Why transplant never fully “stops” (36:39) A patient story about resilience and asking for help National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/Check out our valued nbmtLINK resource books, some for sale, some free as downloadable, https://www.nbmtlink.org/shop/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment. It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.The views and opinions expressed by the speakers are their own and do not necessarily reflect the official policy or position of the nbmtLINK. Unless otherwise stated in an official policy, the nbmtLINK does not endorse any specific treatments, products, or services mentioned by the speakers. Reliance on any information provided is solely at your own risk.The Marrow Masters Podcast is produced by JAG Podcast Productions: https://jagpodcastproductions.com/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Are you a grandparent who finds yourself stepping back into the exhausting world of parenting, unexpectedly raising your grandchildren in the wake of family upheaval? Do you ever mourn the peaceful retirement you imagined, longing for slow mornings and carefree days, only to wake up facing a mountain of responsibilities you didn't choose? Does the gap between the life you hoped for and the reality you're living sometimes feel like a weight you carry in solitude?I'm Laura, and like you, I've wrestled with the emotional complexities of kinship caregiving. There was a time I imagined being the picture-perfect grandmother—apron neat, stories at bedtime, the house always warm and welcoming. But I've endured losses, illness, and heartbreak. I know the ache of wishing for rest and the fear for what would become of our grandchildren if we weren't there for them. The transition from simply doing the right thing to wholeheartedly accepting the role has been my most powerful shift.Welcome to "Grandparents Raising Grandchildren: Nurturing Through Adversity." Here, we peel back the layers of duty, grief, resilience, and acceptance. You'll find expert guidance—including the wisdom of world-renowned psychologist Dr. Anthony Silard—real stories from the trenches, and a community that understands the unique challenges of raising children after trauma or family rupture. To order any of Dr. Silard's books and to find out more about his work, please visit his website. We'll talk about the difference between fighting our reality and embracing it—why acceptance is not passive surrender but a source of strength. You'll hear how to let go of outdated ideals and anchor yourself in the life you have, nurturing your grandchildren and yourself at the same time.You are not alone in this. Together, we'll explore the tools, resources, and mindsets to help you—and your grandchildren—grow, heal, and thrive. This is your boardroom, your community, and your story to author anew.Send us Fan MailDr. Jennifer Brunton holds a Ph.D. in sociology from Columbia University and has a career spanning from college professor to high-level editor and writer for brands like Forbes and Random House. But it is her identity as a proudly Autistic parent of an Autistic son and grandmother/primary caregiver to two neurodivergent granddaughters, 2- and 3-years-old, that fuels her deepest mission. I recently interviewed her for an episode that will be live the end of August 2026.  Jill Bryant has spent years researching the deep complexities of counseling and the lived reality of kinship care as a professor and a grandparent raising a grandchild. Her work, focusing on the complete subjective well-being of kinship caregivers. Taking this 10-minute survey gives our advocates the timely, real-world data they need to fight for the funding and structural support your family deserves right now.  Kinship care—stepping up to raise your grandchildren—can often feel like an incredibly lonely journey. When custody happens unexpectedly, it's easy to feel like you are the only one navigating the trauma, the system, and the sheer exhaustion.But you aren't alone. And that is exactly why your story matters. Your unique experience holds the power to change the system for the next family. Share your story with us at laurabrazan@grandparents-raising-grandchildren.orgThank you for tuning into today's episode. It's been a journey of shared stories, insights, and invaluable advice from the heart of a community that knows the beauty and challenges of raising grandchildren. Your presence and engagement mean the world to us and to grandparents everywhere stepping up in ways they never imagined.Remember, you're not alone on this journey. For more resources, support, and stories, visit our website and follow us on our social media channels. If today's episode moved you, consider sharing it with someone who might find comfort and connection in our shared experiences.We look forward to bringing more stories and expert advice your way next week. Until then, take care of yourselves and each other.Want to be a guest on Grandparents Raising Grandchildren: Nurturing Through Adversity? Send Laura Brazan a message on PodMatch, here: https://www.podmatch.com/hostdetailpreview/grgLiked this episode? Share it and tag us on Facebook @GrandparentsRaisingGrandchilden Love the show? Leave a review and let us know!CONNECT WITH US: Website | Facebook 

What if every "non-compliant" patient was actually a signal that the system isn't working for them? In this episode, Jamie sits down with Jaclyn Taylor, Clinical Strategy Director at Your Health and a nurse practitioner who started her career as a home-based provider in 2020 — thrown straight into the fire of COVID, isolated patients, and a healthcare world rewriting itself in real time. What she saw inside patients' homes — medications scattered on tables, food insecurity, missing transportation — changed how she thinks about every chart she's ever read. You'll hear: Why a nurse-first pathway gives nurse practitioners a fundamentally different lens than a medical school pathway — and why patients feel it What working across home care, telehealth, trauma, and wellness teaches you about treating the whole human, not just the diagnosis Why trauma surgery turned Jacqueline into a believer in proactive, longitudinal care — and what gets missed when we only meet patients after something has already gone wrong The two words she uses to describe what's most broken in traditional healthcare: fragmentation and misalignment How empathy stops being a poster and starts being operational — built into the design of care itself If you've ever felt invisible inside the healthcare system, or if you're the one trying to fix it, this conversation reframes the whole game. Press play. www.YourHealth.Org

Send us Fan MailSend us Fan MailIn this inspiring episode of Living the Dream with Curveball, we are joined by Jenn Greenhut Tollin, a remarkable survivor of stage four breast cancer who transformed her diagnosis into a powerful mission of love and positivity. After facing the harsh realities of her illness, Jenn created Zero Negativity, a brand that promotes positivity through unique accessories while supporting cancer research.Jenn shares her deeply personal journey, detailing the challenges she faced as a healthy yoga instructor suddenly confronted with a life-threatening diagnosis. She reflects on the emotional turmoil of infertility struggles and how it ultimately led her to embrace life in a new light. With a mindset shift that transformed her battle with cancer into a journey of gratitude, love, and trust, Jenn emphasizes the importance of viewing obstacles as opportunities for growth.Throughout the episode, Jenn discusses her innovative approach to healing, including the significance of self-love and the power of community support. She introduces her company, Zero Negativity, and its mission to empower cancer patients and caregivers alike. From chemo tote bags filled with comfort items to fundraising events, Jenn is dedicated to making a positive impact in the lives of others facing similar struggles.Join us for a heartfelt conversation filled with hope, resilience, and practical advice for anyone navigating the challenges of cancer or supporting a loved one through their journey.What You'll Learn in This Episode:- The transformative power of a positive mindset in the face of adversity- How Jenn turned her cancer diagnosis into a mission of love and support- The importance of community and self-love during difficult times- Insights into Jenn's company, Zero Negativity, and its initiatives- Tips for caregivers and patients on navigating the cancer journey togetherFor more information on Jenn Greenhut Tollin and her work, visit www.lovezeronegative.com and www.zeronegativefoundation.org.Support the show

Leave a message and let us know what you liked about the episode!Cancer Hope Network CEO Beth Blakey on Peer Mentorship, Caregiver Support, and Connection in Cancer CareBeth Blakey, CEO of Cancer Hope Network, discusses the organization's 46-year mission to ensure no one faces cancer alone. The unique model of free, confidential, one-on-one peer mentorship connecting patients and caregivers with trained cancer survivors or caregivers continues to touch lives. Blakey shares her personal story that led her to join the organization in 2019, and how she rose to become the CEO. She explains how, even in the midst of rapid technological advances, one thing has not changed: the need for personal connections. Cancer Hope Network facilitates these connections the old-fashioned way, through helping patients and their caregivers one on one. Blakey also outlines key initiatives: Cancer Hope Network en Español, the TACT (Talking About Clinical Trials) program, and Hopeful Hearts for parents of children and adolescents with cancer.Learn more about the expert cancer care and support of Cancer Hope Network on their website.Follow Cancer Hope Network:Instagram Facebook TikTok Support the showBecome a member of The Cancer Pod Community! Gain access to live Q&As, exclusive content, and so much more! Join us today on Buy Me a Coffee or on Patreon!Check out our website! Looking for more information? We have blogs, merch, and all of our episodes listed by season and category. Shop our favorite reads! We've joined with Bookshop.org to offer some of our fave books!Buy our merch! Whether it's a cozy hoody or a handy water bottle, we have something for everybody.Have a comment or suggestion? Email us at info (at) thecancerpod (dot) com Follow us wherever you browse. We're always @TheCancerPod:InstagramBlueskyFacebookLinkedInYouTubeTHANK YOU!!

A mother shares her journey to her child's ASD diagnosis, what she noticed, how she found answers, and what came next. We then shift the focus to her, how she manages stress, builds support, and stays grounded for her child. Because parent self regulation isn't optional, it's essential.

What does it look like when life changes in an instant—and a family learns to navigate the unimaginable? In this episode of Inside the Children's Hospital, Katie Taylor sits down with Marah, a mom of four, who shares her daughter Abigail's journey after a cardiac arrest at just nine days old. What began as a healthy twin pregnancy quickly shifted into a complex medical path involving a NICU stay, life support, and long-term care needs. As Marah and her husband entered the world of medical parenting, they faced fear, uncertainty, and overwhelming decisions. Through it all, they leaned on their care team, family support, and each other—learning how to advocate, adapt, and ultimately find moments of joy within the journey. This conversation highlights the realities of raising a medically complex child, the power of community, and how resilience is built over time. You'll hear: What it was like navigating a sudden cardiac arrest in a newborn The early days in the NICU and learning to care for a medically complex child How Marah advocated for family presence and support during hospitalization The transition from crisis to confidence in managing trach and G-tube care How community, connection, and shared experiences shaped their journey The emotional realities of ongoing medical challenges, including epilepsy This is a story of advocacy, growth, and finding strength in the most unexpected places. What You'll Learn in This Episode Why learning CPR and emergency preparedness can be life-saving for families How to advocate for your child and communicate your needs with care teams The role of multidisciplinary care in managing complex medical conditions What life at home can look like with medical equipment and home nursing support How community and peer support impact long-term coping and resilience The importance of asking for help and building a sustainable support system How perspectives can shift from grief to gratitude over time   Key Takeaways Even in the most overwhelming moments, support, advocacy, and connection can carry families forward—and help transform crisis into a new kind of strength.   Connect with Marah Instagram: In Good Complexity Resources Mentioned Emergency Preparedness for Families Infant & Child CPR (American Red Cross) https://www.redcross.org/take-a-class/cpr/performing-cpr/child-baby-cpr Trach & G-Tube Care Resources Feeding Tube Awareness Foundation https://www.feedingtubeawareness.org Building Community & Support Parent to Parent USA https://www.p2pusa.org Trach Support Mom's of Trach Babies https://www.facebook.com/groups/momsoftrachbabies/   Connect with Us Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team. Pediatric Health, Medical Parenting, NICU Journey, Infant Cardiac Arrest, Medically Complex Child, Children's Hospital, Pediatric Critical Care, Family-Centered Care, Patient Advocacy, Tracheostomy, G-Tube Feeding, Epilepsy in Children, Special Needs Parenting, Caregiver Support, Resilience

What if doing the right thing for someone you love could cost you everything?In this gripping episode, Rich sits down with Rachel Waters, a caregiver who was shockingly charged with murder after her mother's hospice death. Her story reveals the frightening gaps in the system that every family should know about before facing end-of-life care.Rachel Waters is an advocate for caregiver protections and the founder of Marsha's Law, a proposed reform designed to prevent others from experiencing what she endured.In this episode, you'll learn: The hidden risks caregivers face in hospice situations  How a misunderstanding led to a murder charge  What Marsha's Law is and why it matters  Practical steps to protect yourself and your loved ones Resources:https://marshaslaw.orgRachel's story is emotional, eye-opening, and incredibly important.If this episode resonates with you, please leave a review, subscribe, and share it with someone who needs to hear it. You never know who it might help.Send us Fan MailAmerican Auto Repair Sales & ServicesAmerican Auto Repair & Performance was founded on the basic idea that everyone deserves respect. It Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showRate & Review on Apple Podcasts Follow the Conversations with Rich Bennett podcast on Social Media:Facebook – Conversations with Rich Bennett Facebook Group (Join the conversation) – Conversations with Rich Bennett podcast group | FacebookTwitter – Conversations with Rich Bennett Instagram – @conversationswithrichbennettTikTok – CWRB (@conversationsrichbennett) | TikTokSponsors, Affiliates, and ways we pay the bills:Hosted on BuzzsproutSquadCastSubscribe by Email

Strong therapy starts with strong support, and that begins with the parent.I'm joined by Khaliah Moody, and this conversation really stayed with me. We talk about what it truly looks like to support families in a meaningful way, especially when life outside of sessions includes real challenges like poverty, housing instability, and stress. Khaliah shares how her background in social work shaped the way she leads her clinic and supports both clients and staff. One of the biggest takeaways is that therapy cannot thrive if the parent is overwhelmed and unsupported. We have to meet families where they are, build real relationships, and focus on connection before intervention.We also get into staff retention, building a positive team culture, and how community partnerships can extend impact far beyond traditional services. This is a powerful reminder that compassionate care is both clinical and human.#autism #speechtherapyWhat's Inside:Why parent support is the foundation of effective therapyHow to build trust and connection with familiesCreative ways to support and retain your teamMentioned In This Episode:Steady Strides Behavior SolutionsKhaliah Moody on LinkedInEarn CEUs with a community of peers. Join the ABA Speech ConnectionABA Speech: Home

A public session at the Pastoral Centre addresses the global rise in dementia and provides practical guidance for families managing cognitive decline.

In this episode of Love Conquers Alz, hosts Susie Singer Carter and Don Priess welcome Kathy Bradley, a nationally respected advocate with over 3 decades of experience in long-term care and the founder of Our Mother's Voice.After retiring from a career as a nursing home administrator, Kathy faced the system again as a daughter when her own mother rapidly declined into severe dementia. What she experienced changed everything.Despite knowing the system inside and out, Kathy struggled to get her mother the care she needed. That journey led her to create Our Mother's Voice, a nonprofit that provides free services and is dedicated to helping families understand their rights, advocate effectively, and navigate one of the most complex and overwhelming systems many will ever face.In this powerful conversation, you'll hear:• Why so many families feel powerless in long-term care• What to do when something “feels off” with your loved one's care• The importance of documentation and speaking the right language• How systemic issues and financial incentives impact quality of care• Practical ways to advocate without burning bridges or risking retaliation• And why love, empathy, and human connection still matter mostThis episode is both a wake-up call and a guide.Because every family will face this moment.And no one should have to face it alone.If you like what you saw and heard today, please follow, share, tell everyone about it, and also definitely go to www.roar4ltc.org. Sign up and be a ROARior! Join our movement. And if you haven't seen No Country for Old People, do yourself a favor, do your family a favor, sit down, watch three episodes of it on Amazon, Tubi, or Hoopla.Send us Fan MailSupport the showNo Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r) Visit the No Country For Old People Website for more information.Please watch. Review. Share.Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT (Respect, Oversight, Advocacy, Reform) for quality long term care! Visit the ROAR 4 LTC Website for more information and consider participating in the inaugural National National Long-Term Care Day, Sunday, September 27th The 1st ever ROAR 2026 National Walk for Long-Term Care Reform! Found out more here: https://www.roar4ltc.org/roar-2026-walkFollow us on Twitter, FB, IG, & TiK Tok

Raising children with profound special needs means stepping into truth, even when it's uncomfortable.I had such a meaningful conversation with Sarah Kernion about what it really looks like to raise children with profound, nonspeaking autism, and how that reality often differs from the public narrative. Sarah shares her journey as a mom, from those early intuitive concerns to navigating diagnosis, therapy, and building a truly collaborative team.We talk openly about the emotional weight families carry and why honoring that lived experience matters. Sarah brings such a powerful perspective on communication, reminding us that AAC enhances connection and that growth is not always linear. One of my favorite takeaways is how she reframes communication, not as a single outcome, but as a shared process between child, caregiver, and provider.We also dive into what makes a great team. The biggest shift is moving away from hierarchy and toward true collaboration, where parents feel heard and valued. Sarah's work through Inchstones is all about helping families feel seen, supported, and empowered in that journey.#autism #speechtherapyWhat's Inside:The gap between the public autism narrative and real family lifeWhy AAC is a powerful tool for connection and growthHow to build collaborative, parent-centered therapy teamsMentioned In This Episode:InchstonesInchstones on InstagramEarn CEUs with a community of peers. Join the ABA Speech ConnectionABA Speech: Home

When someone is admitted to hospital for a mental health crisis, families are often told: “We can’t share patient information.” But is privacy legislation really the barrier it’s made out to be? In this episode of Look Again: Mental Illness Re-examined, we explore the tension between confidentiality and family involvement in care, and why culture, not the law, may be keeping loved ones in the dark. Host Faydra Aldridge is joined by Monica, a parent who shares her lived experience navigating the system, and psychiatrist Dr. Richard O’Reilly, who unpacks what Canadian privacy laws actually allow, and why they’re so often misunderstood. It’s a candid conversation about advocacy, accountability, and the vital role families can play in recovery.Timecodes:(01:05) Legal representation and challenges accessing medical information(02:40) Resilience, compassion, and vulnerability during mental illness(04:01) Being excluded from care during early hospitalizations(06:44) Gaps in medical records and sharing collateral information(08:10) Limits of Section 9 and Section 7 representation agreements(10:00) Family’s role in preventing adverse medication reactions(12:27) Anosognosia and early intervention challenges(14:04) Capacity assessment issues in Section 9 agreements(16:23) Recommendations for improving the mental health system(18:16) Experiences of involuntary hospitalization and need for support(21:47) Gaps between families and care teams(23:18) Expert explains privacy laws and clinician practices(29:42) Family involvement improves patient outcomes(30:11) Solutions: training, program inclusion, and fighting stigmaResources:- Full video from FASMI and Dr O'Rielly See omnystudio.com/listener for privacy information.

What if the healthcare system your loved one relies on doesn't even know they need help until it's too late — and what would it look like if it did? In this Q1 2026 episode, Jamie Preston sits down with Matt Staub, CEO of Your Health, for a candid and wide-ranging look at how one of the country's largest home-based care providers is navigating the evolving landscape of value-based care, population health, and the human experience at the center of it all. Matt brings his characteristic clarity and heart to a conversation that is equal parts strategy, story, and honest reckoning with what the system still gets wrong. Key topics covered: Why 11% of patients account for 67% of all healthcare spending — and why most of them don't know they're in an ACO The evolution of value-based care: from quality-over-cost to outcomes + patient experience over total costs How Your Health is becoming proactive — not reactive — about falls, readmissions, and high-needs patients The quiet crisis of patient trust: down from 71% in 2020 to just 33% today, and what the correlation means for hospitalizations Real stories: a 79-year-old patient who went from barely existing to living fully — and Matt's own mom, who hasn't fallen since leaving the hospital after her stroke If you work in healthcare, advocate for someone in the system, or simply believe that better is possible — this episode will change the way you see what care can be.

Aging Starts Now, the podcast from Johnson McGinnis Elder Care Law & Estate Planning, where we help you navigate the legal, financial, and personal challenges that come with aging. In this episode, Attorney Josh Hunter is joined by Public Benefits Specialist Tyler McCullar to explore the VA Caregiver Support Program—an important resource for veterans and the family members who care for them. Understanding this program can make a meaningful difference, but many families are unaware of the two distinct paths available: the Program of Comprehensive Assistance for Family Caregivers (PCAFC) and the Program of General Caregiver Support Services (PGCSS). Together, Josh and Tyler break down: • What the VA Caregiver Support Program is and who it's designed to help • The key differences between PCAFC and PGCSS • Who qualifies for each program • What financial support may be available—including caregiver stipends • Additional benefits like training, respite care, and health coverage • Common misconceptions and mistakes during the application process • What to do if your application is denied Whether you're currently caring for a veteran or planning ahead for long-term care, this episode provides clear, practical guidance to help you better understand your options. If you need help navigating VA benefits or long-term care planning, the team at Johnson McGinnis is here to help.

Caregiver Support from BRAG

Send us Fan MailWhat is the emotional cost of being a caregiver?In this heartfelt episode, Cecile Valoria shares her deeply personal caregiving journey from becoming the medical decision-maker for her brother and father to navigating burnout, isolation, and identity loss during the pandemic.Caregiving often comes with unseen sacrifices: giving up careers, carrying overwhelming responsibility, and feeling alone in the process. Cecile opens up about the realities that many caregivers face but rarely talk about.In this episode, you'll learn: How to cope with caregiver isolation  Practical and spiritual strategies for preventing burnout  The hidden emotional weight of caregiving  Why support systems matter  Encouragement for anyone caring for aging parents or loved ones If you are part of the sandwich generation, supporting elderly parents, or walking through a caregiving season, this episode will remind you that you are not alone.Join the Faith to Launch community waitlist: https://faithtolaunch.lovable.app/BUY THE BOOK: HOW TO LIVE AN EXTRAORDINARY LIFE, WITH OR WITHOUT MR. RIGHT BOOK AND WORKBOOKWebsite: https://withorwithoutmrright.com/books/Book: https://amzn.to/3ZjtBJJWorkbook: https://amzn.to/4guXFYAAudiobook: https://withorwithoutmrright.com/books/Leave a review about the book: https://www.amazon.com/review/create-review?asin=B0DMVP65PRLISTEN TO CHAPTER ONE FOR FREEhttps://app.helloaudio.fm/feed/3228c79f-0dea-4f6b-a428-d7fcfd1f72f5/signupActivate Your Calling: Create, Build, & Promote Your Gift Workshop Replay Video: https://hustleinfaith.gumroad.com/l/activatePlease join me in my YouTube only series, 30 Days to Becoming a Stronger, More Confident You in Christ: https://www.youtube.com/playlist?list=PLfkkBA4-h1A56MxObeO__s873pdUnnWQ5

Family Caregiving Kit is celebrating its One year anniversary and reveals some of its big wins and challenges it faced getting this far. More information on the business can be found at https://familycaregivingkit.com/ Family Care Kit City: Chicago Address: 600 North Lake Shore Drive Website: https://familycaregivingkit.com

Send Cathy a text:)Caregiving is not meant to be a solo mission.In this episode of The Caregiver Cup Podcast, we're talking about something many caregivers struggle with — building a support system.Whether you're caring for a spouse, parent, or loved one, the pressure to “do it all” can feel overwhelming. But strength isn't handling everything alone. Strength is building a team.In Season 2, Episode 8 — The Support System Blueprint, we explore:✔️ Why caregivers struggle to ask for help ✔️ How to identify the gaps in your current support ✔️ The difference between emotional, practical, and professional support ✔️ How to create “micro-teams” instead of looking for one superhero ✔️ Delegation and outsourcing ideas that protect your energy ✔️ Why automating and simplifying your life counts as support ✔️ How asking for help protects your rhythm, boundaries, and emotional spaceCathy shares her personal story of preparing for Denis' stem cell transplant — building both a “home blueprint” and a “Milwaukee blueprint” — and how allowing others to step in made the journey steadier, not weaker.You'll walk away with reflection questions and one small action step to begin building your own caregiver support system — even if asking feels uncomfortable.Because you were never meant to carry caregiving alone.

What if shopping for medical equipment felt empowering instead of depressing? Caregiving is hard enough. Getting the right equipment should not be. In this episode, Hosts Susie Singer Carter and Don Priess talk with Erica Sell, founder of Harmony Home Medical in San Diego, about how the right equipment can help families keep loved ones at home longer, safer, and with more independence.Erica breaks down what Medicare typically covers (and what it does not), how reimbursement can work, and why the system often forces families to wait until a crisis. They also explore practical home solutions like high-low adjustable beds that still feel like home, safer bathing options, lift chairs, mobility devices, ramps, and monitoring tools that protect privacy.Plus, a moving story about how one piece of equipment gave a man his community back.Support the showNo Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r) Visit the No Country For Old People Website for more information. Please watch. Review. Share. Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT (Respect, Oversight, Advocacy, Reform) for quality long term care! Visit the ROAR 4 LTC Website for more information.Follow us on Twitter, FB, IG, & TiK Tok

Drop us a line or two . . .In this episode, Queenie & TT do what midlife women everywhere are doing right now: trying to hold it together when winter, responsibility, and the state of the world are doing the most to break us. There's frigid weather, indoor soccer in inflatable buildings, sports stress, and the honest truth that sometimes the best mental health plan is: go outside once… and then refuse to leave the house again.  They share what they're consuming today (pink lemonade live rosin gummies and a Space Cake pre-roll), talk about the strange “nap trap” that hits after a big breakfast, and discuss why sativa days are sometimes a medical necessity for functioning humans.  Then the episode turns into a surprisingly juicy mix of:why AI tools like Suno are still creative tools (just like nobody grinds their own paint anymore)  the ongoing Canadian citizenship saga (passport renewal + trying to lure family north like it's a Zillow listing with better healthcare)  a big moment of good news: New York's Medical Aid in Dying bill being signed, and why having the option matters  a fresh round of “Was Cannabis Involved or Is This Just Kaka?” featuring: honey wedding favors gone wrong and the DEA embarrassing itself with an emoji “drug decoder” that absolutely deserves public mocking  And the Fuck-It List entry this week is pure midlife enlightenment:

Balancing caregiving and career, Elizabeth Jalazo, M.D. traces how her daughter Evelyn's early feeding challenges and later diagnosis of Angelman syndrome reshape her priorities and professional path. Jalazo describes barriers many families face in rare-disease diagnosis, including a “wait and see” approach, specialist access, and insurance denials, and she emphasizes the value of answers for community, care planning, and research access. At UNC Chapel Hill, Jalazo works as a pediatric geneticist and clinical trialist studying interventional therapies for neurodevelopmental and lysosomal storage disorders, and she serves as chief medical officer of the Angelman Syndrome Foundation. She also leads work on Early Check, an opt-in newborn sequencing program in North Carolina, and shares practical lessons about protecting sleep, building support, and saying no while holding space for hope and joy Series: "Autism Tree Project Annual Neuroscience Conference" [Health and Medicine] [Show ID: 41173]

Balancing caregiving and career, Elizabeth Jalazo, M.D. traces how her daughter Evelyn's early feeding challenges and later diagnosis of Angelman syndrome reshape her priorities and professional path. Jalazo describes barriers many families face in rare-disease diagnosis, including a “wait and see” approach, specialist access, and insurance denials, and she emphasizes the value of answers for community, care planning, and research access. At UNC Chapel Hill, Jalazo works as a pediatric geneticist and clinical trialist studying interventional therapies for neurodevelopmental and lysosomal storage disorders, and she serves as chief medical officer of the Angelman Syndrome Foundation. She also leads work on Early Check, an opt-in newborn sequencing program in North Carolina, and shares practical lessons about protecting sleep, building support, and saying no while holding space for hope and joy Series: "Autism Tree Project Annual Neuroscience Conference" [Health and Medicine] [Show ID: 41173]

Balancing caregiving and career, Elizabeth Jalazo, M.D. traces how her daughter Evelyn's early feeding challenges and later diagnosis of Angelman syndrome reshape her priorities and professional path. Jalazo describes barriers many families face in rare-disease diagnosis, including a “wait and see” approach, specialist access, and insurance denials, and she emphasizes the value of answers for community, care planning, and research access. At UNC Chapel Hill, Jalazo works as a pediatric geneticist and clinical trialist studying interventional therapies for neurodevelopmental and lysosomal storage disorders, and she serves as chief medical officer of the Angelman Syndrome Foundation. She also leads work on Early Check, an opt-in newborn sequencing program in North Carolina, and shares practical lessons about protecting sleep, building support, and saying no while holding space for hope and joy Series: "Autism Tree Project Annual Neuroscience Conference" [Health and Medicine] [Show ID: 41173]

Supporting Through Illness: Care, Boundaries, and Staying HumanWhen illness enters your life or your work, support can become complicated — especially in spaces built on care, connection, and showing up for others.In this episode of The Pilates Exchange, Hannah and Chris share an honest conversation about what it means to support clients, caregivers, and yourself while navigating serious illness — without losing boundaries, professionalism, or humanity.They reflect on what support actually felt like, what didn't, and how they learned to hold clear limits while continuing to teach, run a studio, and show up for their community. This episode explores normalcy as dignity, consent on both sides, the invisible weight caregivers carry, and the loneliness of leadership during crisis.This is not a how-to episode. It's a reflection — grounded, personal, and human — for movement teachers and studio owners navigating hard seasons.Thank you to our season sponsor, OfferingTree.Simplify your pilates business with OfferingTree's all-in-one platform. 

Certified coach and medical educator Kathleen Muldoon discusses her article "AI moderation of online health communities." Kathleen shares the harrowing personal story of having her social media account disabled when an algorithm mistook compassion for abuse. She explores how online support groups act as critical public health infrastructure for families navigating chronic illness and rare diseases. The conversation highlights the danger of allowing automated systems to police complex medical conversations without understanding nuance or context. Kathleen argues that instead of relying on censorship, health care providers must actively engage in these digital spaces to foster trust. Listen to learn why preserving human connection in digital spaces is essential for patient healing. Partner with me on the KevinMD platform. With over three million monthly readers and half a million social media followers, I give you direct access to the doctors and patients who matter most. Whether you need a sponsored article, email campaign, video interview, or a spot right here on the podcast, I offer the trusted space your brand deserves to be heard. Let's work together to tell your story. PARTNER WITH KEVINMD → https://kevinmd.com/influencer SUBSCRIBE TO THE PODCAST → https://www.kevinmd.com/podcast RECOMMENDED BY KEVINMD → https://www.kevinmd.com/recommended

Thank you so much for listening to the Bob Harden Show, celebrating over 14 years broadcasting on the internet. On Wednesday's show, we visit with Cato Institute Chairman Emeritus Bob Levy about Immigration – both legal and illegal. We visit with Christy Christine from the Arlington of Naples about the importance and process of caregiver support. We also visit with Collier County Clerk of Courts Crystal Kinzel about tax and property issues as well as the 6th annual Valentine's Day vow renewal and wedding Day ceremony. Please join us tomorrow when we visit with Keith Flaugh from the Florida Citizen's Alliance, retired Special Agent from the U.S. Drug Enforcement Administration, Jack McFarland, and former Mayor of Naples Bill Barnett. Access this and past shows at your convenience on my web site, social media platforms or podcast platforms.

Dr. Josh introduces his journey, clinical background, global summit, and the scientific evidence behind Alzheimer's prevention and reversal. #AlzheimersHope #ReversalEvidence #BrainHealth #NeuroWellness

Developmental psychologist Bonnie Halpern-Felsher specializes in teenage health-related decision-making, especially in their use of tobacco, alcohol, cannabis, and other substances. Young people, she says, value immediate social benefits over long-term risks. In response, she supports bans on flavored nicotine products and has developed nationally and internationally used evidence-based substance use prevention and intervention programs, including some that are culturally targeted, such as her vaping prevention curriculum in Hawaii zeroing in on popular flavors like mango and poi. The reward, she says, is reduced substance use and better mental health. “Talk to your kids. Don't lecture. Have a conversation,” Halpern-Felsher tells host Russ Altman of the best way to break through on this episode of Stanford Engineering's The Future of Everything podcast.Have a question for Russ? Send it our way in writing or via voice memo, and it might be featured on an upcoming episode. Please introduce yourself, let us know where you're listening from, and share your question. You can send questions to thefutureofeverything@stanford.edu.Episode Reference Links:Stanford Profile: ​​Bonnie Halpern-FelsherHalpern-Felsher REACH Lab | Stanford MedicineConnect With Us:Episode Transcripts >>> The Future of Everything WebsiteConnect with Russ >>> Threads / Bluesky / MastodonConnect with School of Engineering >>> Twitter/X / Instagram / LinkedIn / FacebookChapters:(00:00:00) IntroductionRuss Altman introduces guest Bonnie Halpern-Felsher, a developmental psychologist at Stanford University.(00:03:52) Focus on Youth Substance UseBonnie explains her focus on studying substance behaviors in adolescents.(00:05:32) Current Trends in Youth HealthThe mixed indicators across behavior and mental health in youth.(00:08:46) Effective Health CommunicationWhy long-horizon risk messaging often underperforms in adolescents.(00:11:16) Policy Translation & AdvocacyHow Bonnie translates research findings into policy advocacy.(00:13:54) School-Based Prevention ProgramsAn overview of evidence-based curricula and target age groups.(00:15:04) Measuring Program ImpactThe evaluation approaches and challenges of the prevention programs.(00:16:41) Youth Dependence & CessationWhy addiction develops quickly and the limited treatment options.(00:18:18) Program Adaptation Across ContextsHow curricula are localized without redesigning core methods.(00:21:00) Youth-Oriented Product MarketingThe strategies used by substance industries to market to youth.(00:23:38) Cannabis Potency & Health RiskThe link between higher THC concentrations and medical outcomes.(00:26:48) Patterns of Cannabis UseThe common modes of cannabis use and related exposure risks.(00:28:10) Early Exposure & Prevention NeedsThe reports of substance exposure and use at increasingly early ages.(00:29:10) Guidance for CaregiversPractical guidance for caregivers concerned about substance use.(00:31:23) Future In a MinuteRapid-fire Q&A: asking for help, substance regulation, and alternate degree.(00:33:37) Conclusion Connect With Us:Episode Transcripts >>> The Future of Everything WebsiteConnect with Russ >>> Threads / Bluesky / MastodonConnect with School of Engineering >>>Twitter/X / Instagram / LinkedIn / Facebook Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

One of the most precious resources in dementia care are the stories we share. Today, we welcome back two deeply respected members of the Love Conquers Alz family for a conversation rooted in care, credibility, and shared purpose that has led to a major milestone:Marianne Sciucco, registered nurse, author, and  founding member of AlzAuthors, a groundbreaking global, rigorously vetted hub for Alzheimer's and dementia books, blogs, films, and podcasts, is passing the baton to senior care professional, writer Lance A. Slatton, host of the award-winning All Home Care Matters podcast and YouTube channel. , For over a decade, Marianne and the AlzAuthors team have thoughtfully spotlighted the most meaningful and reliable literature available for the Alzheimer's and dementia community. At a time when families are often overwhelmed by information, their careful curation created a trusted guidepost grounded in lived experience and compassion.Lance brings more than two decades of experience in senior care and continues to be a consistent, dependable voice, not only as a podcast host, but through his work as a Senior Case Manager with Enriched Life Home Care Services.What connects Marianne and Lance is presence. Both have remained steady voices in an ever-changing landscape, offering stringently curated, reliable resources to caregivers and families when clarity matters most.Join us as we celebrate a community that refuses to let its most valuable assets—truth, art, and love—fade into the noise. Subscribe, share with a caregiver who needs a lifeline, and tell us what resource you want to see next. Your voice shapes where this library goes from here.Support the showNo Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r) Visit the No Country For Old People Website for more information. Please watch. Review. Share. Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the ROAR 4 Long Term CareWebsite for more information.Follow us on Twitter, FB, IG, & TiK Tok

Drs. Blake and Helman share personal motivation and patient cases where early-stage Alzheimer's symptoms were reversed with whole food, plant-based diets and caregiver support. #AlzheimersReversal #BrainHealth #PlantBasedHealing

Caring for aging parents can feel overwhelming — especially when you're trying to do it all on your own.In Part 2 of this conversation, Shelly Niehaus and caregiving expert Bonnie Dudley get practical about where to find real support, how to ask for help without guilt, and how to protect your peace in the middle of a demanding caregiving season.They also explore a powerful mindset shift: reframing caregiving as an act of stewardship — allowing you to care with compassion while honoring your own life, limits, and calling.✨ In This Episode, You'll Learn:Where to find caregiver support in your communityWhen professional care makes sense — and what to look forHow to ask for help in small, specific waysWhy boundaries are essential, not selfishHow faith reframes caregiving as stewardshipEncouragement for caregivers who feel exhausted or unseen Resources Mentioned:Bonnie Dudley – Brooks Coachinghttps://brookscoaching.usWorking It Out: Mastering Business and Caregiving (Amazon) Resources:Instagram- https://www.instagram.com/shellyniehaus/Simple Shifts Newsletter: https://midlifemadesimplepodcast.com/tipsWomen Entrepreneurs In Prayer Call - https://midlifemadesimplepodcast.com/prayer

Send Cathy a text:)In today's episode, we're kicking off the season by building something every caregiver needs but rarely talks about: a rhythm that actually supports you.Caregiving is unpredictable — your days can shift in an instant. But having a gentle rhythm can give you grounding, stability, and pockets of peace in the middle of the chaos. A rhythm won't make caregiving perfect… but it will make caregiving easier.Inside this episode, I walk you through my simple, flexible ANCHOR Method for creating a rhythm that fits your real life:A — Ask about your energy Start with your natural flow, not your to-do list.N — Name your non-negotiables Identify what must happen each day so you can build around it.C — Choose your anchor habits Small grounding rituals — morning, midday, evening — that steady you.H — Hold it loosely Your rhythm should support flexibility, not perfection.O — Organize it visually Make your rhythm easy to remember with simple visual cues.R — Review & reset weekly Your rhythm evolves as your caregiving evolves.You'll also hear a personal story of how rhythm helped me survive one of my hardest caregiving seasons — and how tiny habits became my lifeline.Whether you're craving more ease in your mornings, more calm in your evenings, or just a little breathing room in your day… this episode will help you start creating a rhythm that works for you, not against you.

Caring for aging parents often starts quietly — a few appointments, managing paperwork, checking in more often. And before you know it, your role has shifted.In this episode of Midlife Made Simple, Shelly sits down with communication and conflict coach Bonnie Dudley for an honest conversation about caregiving in midlife. Shelly shares her family's personal journey through Alzheimer's and dementia, while Bonnie offers practical insight to help you recognize the caregiver role, spot early signs, and prepare with clarity instead of fear.This is Part 1 of a two-part series focused on awareness, preparation, and advocating well for your loved ones before burnout sets in.Key TakeawaysWhy many midlife women don't realize they're caregiversHow caregiving responsibilities build gradually over timeWhy naming the role early mattersHow to navigate denial with aging parents using empathyEarly red flags to watch for — and why patterns matterA simple system for tracking changes and behaviorsHow preparation leads to peace, not panic Resources:Bonnie Dudley – Brooks Coachinghttps://brookscoaching.usWorking It Out: Mastering Business and Caregiving (Amazon) Resources:Instagram- https://www.instagram.com/shellyniehaus/Simple Shifts Newsletter: https://midlifemadesimplepodcast.com/tipsWomen Entrepreneurs In Prayer Call - https://midlifemadesimplepodcast.com/prayer

Hello Brave Friends! This is a Winter Re-Run of one of our favorite Ask Us Anything episodes from Seasons 5 and 6. Call in to our SpeakPipe to ask YOUR questions and tune in next season, starting in January 2026, for many more.   This is an Ask Us Anything episode in which YOU, the listener, get to write or call in and, you guessed it, ASK US ANYTHING! In this episode, #165, we are discussing how to get the most out of connection circles and in general, support groups, without taking on other attendee's pain. In this community we are ALREADY dealing with our own tough feelings when we step into a group sharing environment and as Dr. Zoe Shaw says, in this episode, “we're wired for protection not connection” so dealing with other people's emotions on top of our own can feel daunting. BUT it doesn't have to feel that way and the community and sisterhood that comes with sharing and holding space for those emotions is so worth facing your own. There are so many wisdom gems, AHA moments and tools in this episode for helping us deconstruct the emotions we feel when in the presence of other people's pain. Please enjoy this important episode of Ask Us Anything. Whether you have questions as a parent to a child with complex medical or mental health needs or you're someone looking to support a care-giving parent, we would LOVE to hear from you. If you have any topic requests or if you would like to ask a question, leave us a message here.Find more information about Licensed Psychotherapist, Dr. Zoe Shaw here. Find more information about Life Coach, Susanna Peace Lovell here.Find Susanna's book, Your True Self is Enough here.Brave Together Podcast is a resource produced by We Are Brave Together, a global nonprofit that creates community for moms raising children with disabilities, neurodivergence, or complex medical and mental health conditions. The heart of We Are Brave Together is to preserve and protect the mental health of caregiving moms everywhere. JOIN the international community of We Are Brave Together here. Donate to our Retreats and Respite Scholarships here. Can't get enough of the Brave Together Podcast? Follow us on Instagram , Facebook and Youtube. Feel free to contact Jessica Patay via email: jpatay@wearebravetogether.org If you have any topic requests or if you would like to share a story, leave us a message here. Please leave a review and rating today! We thank you in advance! Disclaimer

In this episode of SHE MD, Mary Alice Haney sits down with Emma Heming Willis, mother, stepmother, wife, advocate, and co-founder of Make Time Wellness, a brand dedicated to women's brain health. Emma shares her journey navigating her husband Bruce Willis' diagnosis of frontotemporal dementia (FTD) and the challenges of caregiving.Emma opens up about recognizing the early warning signs, managing the complexities of a blended family, and building a support system that sustains both the caregiver and their loved one. She also discusses the concept of ambiguous loss and how relationships evolve when a partner's cognitive abilities change.Beyond caregiving, Emma dives into practical strategies for women to maintain brain health, including sleep, nutrition, mental stimulation, and social connection. She highlights the importance of self-care, setting boundaries, and seeking expert support.Through her new book, The Unexpected Journey, and her work with Make Time Wellness, Emma provides actionable insights for caregivers and women prioritizing their brain health, emphasizing resilience, love, and community.Subscribe to SHE MD Podcast for expert tips on PCOS, Endometriosis, fertility, and hormonal balance. Share with friends and visit SHE MD website and Ovii for research-backed resources, holistic health strategies, and expert guidance on women's health and well-being.Sponsors: Cymbiotika: Go to Cymbiotika.com/Shemd for 20% off plus free shippingRocket Money: Cancel your unwanted subscriptions and reach your financial goals faster with Rocket Money. Go to RocketMoney.com/shemd today.Nutrafol: Nutrafol is offering our listeners ten dollars off your first month's subscription and free shipping when you go to Nutrafol.com and enter promo code SHEMD. Vibrant Wellness: Ask your provider for the Hormone Zoomer by Vibrant Wellness — or find a Vibrant-certified provider today at vibrant-wellness.com/SheMDWhat You'll LearnStrategies for women caregivers to maintain mental and physical healthUnderstanding frontotemporal dementia (FTD) and early warning signsHow to build a caregiving support system and engage blended familiesLifestyle approaches for women's brain health, including sleep, nutrition, and mental stimulationTools to navigate ambiguous loss and adapt to changing relationshipsKey Timestamps00:00 Introduction with Mary Alice Haney and Emma Heming Willis03:50 Emma meets Bruce Willis and navigates their blended family dynamics14:50 Recognizing early signs of frontotemporal dementia and seeking diagnosis22:40 Coping with the lack of caregiving resources and support24:30 Prioritizing mental and physical health as a caregiver31:40 Building a caregiving support system with experts and family involvement35:20 Founding Make Time Wellness and creating actionable solutions for brain health38:45 The impact of caregiving on relationships and navigating ambiguous loss40:42 Closing thoughts on resilience, community support, and resources for caregiversKey TakeawaysFrontotemporal dementia (FTD) affects personality, behavior, and communication, often presenting differently than Alzheimer's.Caregiving is a family-wide challenge; support systems are essential to sustain caregivers' health.Ambiguous loss requires adaptive strategies to maintain relationships and emotional resilience.Women can prioritize brain health through lifestyle habits: sleep, nutrition, exercise, mental stimulation, and social connection.Sharing knowledge and resources helps caregivers feel supported and validated.Guest BioEmma Heming Willis is a mother, stepmother, wife, advocate, and co-founder of Make Time Wellness, a brand dedicated to women's brain health. Following her husband Bruce Willis' diagnosis with frontotemporal dementia (FTD), Emma became a passionate voice for caregiving families and authored The Unexpected Journey, highlighting resilience, love, and the practical realities of supporting a loved one with dementia.Links & ResourcesEmma Heming Willis: Make Time WellnessEmma Instagram: https://www.instagram.com/emmahemingwillisEmma Facebook: https://www.facebook.com/EmmaHemingWillisBook: The Unexpected Journey by Emma Heming Willis5% of Make Time Wellness proceeds support Hilarity for CharitySee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Key TakeawaysEveryone can be an investigator: Observing subtle changes in behavior, sleep, decision-making, or life management can reveal early signs of behavioral health needs.Integration matters: Combining behavioral and physical health care improves outcomes, prevents avoidable hospital visits, and reduces overall healthcare costs.Impact beyond the patient: Supporting behavioral health has ripple effects on families, caregivers, and communities, improving overall system well-being.Life transitions are critical points: Changes in living situations, cognitive decline, or significant life events are opportunities for early intervention.Collaboration is key: Cognitive behavioral specialists, nurses, primary care providers, and facility staff must work together to ensure timely and effective care.Innovation brings hope: Emerging research, new care models, and broader conversations about mental health as part of overall wellness are reshaping healthcare for the better. www.YourHealth.Org

Key Takeaways1. Hospice isn't about giving up — it's about shifting the goal from cure to comfort.Most misconceptions stem from fear or lack of education. Hospice focuses on maximizing quality of life, not accelerating end of life.2. Timing matters. Early conversations lead to better experiences.Families often wait until crisis mode. Subtle changes — fatigue, weight loss, repeated hospitalizations, shifting goals — are early signs to explore hospice.3. There is an entire team behind every patient and family.Chaplains, social workers, nurses, CNAs, and physicians work together to support medical, emotional, spiritual, and logistical needs.4. Quality of life is unique to each patient.It may mean one last trip, freedom from pain, or simply being able to rest without fear. Hospice focuses on what matters most.5. Families gain relief, clarity, and peace knowing they're not alone.Hospice offers 24/7 support, education, and guidance — reducing anxiety and preventing unnecessary hospital visits.6. Eligibility is flexible and individualized.A prognosis of six months or less is a guideline, not an expiration date. A hospice RN and medical director work together to determine appropriateness based on a full clinical picture.7. Hospice allows sacred, human moments to happen.Final conversations, reconciliation, peaceful transitions — hospice creates space for these moments rather than crisis-driven chaos.8. Education is the antidote to fear.Knowledge gives families confidence, reduces guilt, and empowers them to make aligned decisions for their loved ones. www.YourHealth.Org

 KEY TAKEAWAYSHospice isn't a crisis response—it's a planned, values-based care transition.Patients are guided into hospice through ongoing conversations with their care team, not sudden decisions.Your Health's model is uniquely team-based.Clinical teams—NPs, nurses, social workers, CHWs, SSAs—collaborate long before a hospice referral happens.Eligibility is defined by Medicare, but the experience is defined by the patient.Patients choose what services they want: chaplaincy, volunteers, home aides, social work, and moreFamily support is a major part of the program.Hospice helps families avoid panic, emergency room visits, and uncertainty by educating them and offering 24/7 resources.Non-clinical roles are essential.Volunteers, chaplains, and social workers play major roles in emotional, logistical, and spiritual support.Respite care is a game-changer for caregiver burnout.Five-day facility stays covered under the hospice benefit help families regroup, rest, and sustain caregiving.Your Health provides continuity “from pediatrics to end of life.”The organization's ecosystem lets patients receive personalized care at every stage of their life journey. www.YourHealth.Org

  In this heartfelt episode of American Potential, host David From talks with Beka Dowhy, founder of the Caregiver Support Network, about her mission to support family caregivers who often feel unseen and alone. After caring for her mom through multiple sclerosis (MS) alongside her dad, Beka experienced firsthand how isolating caregiving can be — and decided to change that for others. She shares how her organization connects caregivers with prayer partners, emotional support, and practical help like meal deliveries, cleaning services, and home care relief so they can take a breath and care for themselves, too. This inspiring conversation shines a light on the unseen heroes caring for loved ones and offers real solutions for preventing caregiver burnout and building community-based support networks across the country.

All Home Care Matters and our host, Lance A. Slatton were honored to welcome esteemed author Eliezer Sobel as guest to the show.   About Eliezer Sobel:   Eliezer is the author of The Silver Lining of Alzheimer's: One Son's Journey Into the Mystery, as well as two picture books for people with Alzheimer's disease and other forms of dementia, Blue Sky, White Clouds: A Book for Memory-Challenged Adults, and L'Chaim! Pictures to Evoke Memories of Jewish Life. He has also published Minyan: Ten Jewish Men in a World That is Heartbroken, selected by National Book Award winner John Casey as the winner of the Peter Taylor Prize for the Novel, among 400 entries.   Also, The 99th Monkey: A Spiritual Journalist's Misadventures with Gurus, Messiahs, Sex, Psychedelics and Other Consciousness-Raising Experiments; Wild Heart Dancing: A One-Day Personal Quest to Liberate the Artist & Lover Within; The Dark Light of the Soul/Encounters with Gabrielle Roth; an e-book titled Why I Am Not Enlightened, and he blogs for PsychologyToday.com.   Eliezer has also led creativity workshops and silent meditation retreats around the U.S.; he is a certified teacher of Gabrielle Roth's 5Rhythms® conscious movement practice; has served as a hospital chaplain; was the publisher of two magazines, The New Sun and the Wild Heart Journal; served as Music Director for several children's theater companies on both coasts, and taught music in two alternative high schools. Also an amateur painter, he and Shari reside in Red Bank, New Jersey with their two cats, Shlomo and Nudnick.