MS Trust

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Spasticity and spasms are common MS symptoms that vary from person to person and can be challenging to understand and manage.  In this episode, we explore how these symptoms can feel with the help of our MS community and what you can do about them.  We asked MS specialist physiotherapist Wendy Hendrie to share her near 40 years of experience with us.  We are very glad we did, because we learned such a huge amount. In fact, so much so that we can almost guarantee you will too in the next hour.  And this know-how could make a real difference to the way you understand and approach your spasticity and spasms.  She breaks these complex symptoms down in a way that's easy to follow. She explores trigger factors, including pain – even pain you can't feel due to loss of sensation – bladder and bowels, posture and positioning including pelvis alignment and head movement. Plus exercise, night spasms and the importance of getting medication reviews especially if you haven't seen your MS team in a while.Episode notesSpasticity and spasms - MS Trust informationWhat do MS spasticity and muscle spasms feel like? - MS Trust informationManaging spasticity and spasms - MS Trust informationDownload or order our free book on Managing spasticity and spasms - MS Trust informationLearn what may be triggering your spasticity and spasmsThrower B et al.Recognition, Description, and Variability of Spasticity in Individuals With Multiple Sclerosis and Potential Barriers to Clinician-Patient Dialogue: Results From SEEN-MSS, a Large-Scale, Self-Reported SurveyInternational Journal of MS Care. 2024; 26 (2): 75-80SummaryPeer support: join our MS Trust Facebook community (public group)Peer support: join our Advanced MS Care and Support Facebook community (private group) Spoon theory explanation video

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Talking about living with MS can be a tough thing to do, but open and honest conversations are vital in building understanding for the condition. In this special episode for MS Awareness Week 2025, we explore the power of MS conversations—why they matter and how they can make a difference. This MS Awareness Week, we're working with the MS Society, MS Together, MS-UK, Neuro Therapy Network, Overcoming MS, Shift.ms and Talks with M.S. to shine a light on conversations and why they're important. So in this episode Dr Claire Winchester, Head of Engagement at the MS Trust, joins us to discuss the essential resources available to help people navigate discussions about MS with friends, family, colleagues or health professionals.  Plus, Helena sits down with the CEO and founder of MS Together Amy Thompson to reflect on real-life MS conversations they have had and the lessons learned from them.Tune in and be part of the dialogue!Show notesmstrust.org.uk/get-involved/ms-awareness-week - all information you need to get started having those important MS Conversations

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Have you been told "nothing can be done" to treat progressive MS? Then this is the episode for you. Join Nick and Helena as they debunk this myth with the expertise of neurologist Dr. Emma Tallantyre, exploring current medical and non-medical treatments, effective symptom management, and rehabilitation therapies. Plus, get the inside scoop on the MS Trust's new book, "Progression in MS," from its creators. Get informed, feel supported, and discover the resources available to help you make sense of progressive MS.Episode notesProgression in MS free book from MS Trustmstrust.org.uk/a-z/secondary-progressive-ms - secondary progressive MS info from the MS Trustmstrust.org.uk/a-z/primary-progressive-ms - primary progressive MS info from the MS Trustmstrust.org.uk/information-support/wellbeing-ms/ms-and-your-emotions  - MS and your emotions  info from the MS Trustwww.facebook.com/groups/advancedmscareandsupport - MS Trust facebook group for people with advanced MS and their carers.www.facebook.com/groups/multiplesclerosistrust - MS Trust facebook group 

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39In this bonus episode, we share some people with MS journeys of coming to terms with a progressive MS diagnosis. Adam, who lives with secondary progressive MS, is joined by his wife and carer, Sharon. Together, they reflect on how they navigate the complexities of their shared experience, from the emotional challenges to the practical ways they've found balance and connection.  Yvonne, living with primary progressive MS, opens up about how she dealt with her diagnoses, the initial shock and anger, and how she gradually discovered ways to regain a sense of control.Episode notesmstrust.org.uk/a-z/secondary-progressive-ms - secondary progressive MS info from the MS Trustmstrust.org.uk/a-z/primary-progressive-ms - primary progressive MS info from the MS Trustmstrust.org.uk/information-support/wellbeing-ms/ms-and-your-emotions  - MS and your emotions  info from the MS Trustwww.facebook.com/groups/advancedmscareandsupport - MS Trust facebook group for people with advanced MS and their carers.www.facebook.com/groups/multiplesclerosistrust - MS Trust facebook group instagram.com/meyouandmultiplesclerosis - Adam and Sharon's instagram account 

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Receiving the news that your MS is progressing can be a life-altering moment. In this podcast episode, we explore the emotional impact of this change and the journey towards acceptance and adjustment.Helena and Nick are joined by Dr Angeliki Bogosian, a health psychologist specialising in MS, who shares insights on coping strategies, the importance of psychological support, and how mindfulness can help with emotional adjustment.We also hear real-life stories from Adam and Sharon, as well as Yvonne, who open up about their experiences of living with progressive MS. From the initial shock and frustration to finding ways to regain control and maintain a fulfilling life, their stories are brimming with honesty and useful tips.Whether you're newly diagnosed, supporting a loved one, or navigating changes in your MS, this episode is here to remind you that you're not aloneListen now for expert information, real-life experiences, and practical ways to move forward with confidence.Episode notesmstrust.org.uk/a-z/secondary-progressive-ms - secondary progressive MS info from the MS Trustmstrust.org.uk/a-z/primary-progressive-ms - primary progressive MS info from the MS Trustmstrust.org.uk/information-support/wellbeing-ms/ms-and-your-emotions  - MS and your emotions  info from the MS Trustwww.facebook.com/groups/advancedmscareandsupport - MS Trust facebook group for people with advanced MS and their carers.www.facebook.com/groups/multiplesclerosistrust - MS Trust facebook group instagram.com/meyouandmultiplesclerosis - Adam and Sharon's instagram account 

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39From challenges to special moments: advanced MS comes with a whole heap of them both. Listen now to hear three different perspectives: a person living with advanced MS, a carer and a health professional.We're tackling advanced MS in this podcast episode of ‘Breaking it down'.Disclaimer: we discuss some sensitive topics in our interviews, including difficult MS symptoms and death.We hear from Advanced MS Champion, Michelle Black, about how she supports people living with MS and what she sees, day in, day out.Plus, Mark Webb talks us through his life with advanced MS, from indoor skydiving to daily challenges. We also catch up with Jen, who cared for her husband Dave until he sadly passed away. She takes us through their routine, community and those special moments together.Ready to learn alongside us and hear the stories from our guests? Listen now.Episode notesmstrust.org.uk/a-z/advanced-ms - info from the MS Trustmstrust.org.uk/health-professionals/programmes/advanced-ms-champions-programme -  info about the MS Trust Advanced MS Champions programmewww.facebook.com/groups/advancedmscareandsupport - MS Trust facebook group for people with advanced MS and their carers.onemanandhiscatheters.com - Mark Webbs bloggfacebook.com/groups/MSCarersClubUK- carers group on Facebook Jen talk aboutwww.n-compass.org.uk - organisation that helped Jen get counselling 

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Join us for a jargon busting, myth smashing podcast where we explore baffling multiple sclerosis terms and common misconceptions.Ever heard terms like PIRA, RAW, or smouldering MS that've left you scratching your head and asking for a translation to plain English?Better yet, have you been on the receiving end of a baffling tale involving one of the many MS myths out there? “My friend Gary told me that exercise is bad for MS, so don't bother.”Yep, we've heard them all too. That's why we're here with a jargon busting, myth smashing podcast where we separate the wheat from the chaff, the fact from fiction and get to the honest truth. We interview consultant neurologist, Dr Kate Petheram who cuts through multiple sclerosis jargon to give us easily accessible information. Plus, we catch up with Stephen, who lives with MS, and Simon from the MS Trust team to dispel some common MS myths. Ready to learn more? Then listen now for all of the latest trusted information, tips and updates.Show NotesMS Trust HelplineMS Trust Shop - Here you can download all MS Trust publications for freeSupporting the MS Trust - information from the MS TrustMS Trust Facebook Group - join our facebook groupmstrust.org.uk/a-z/- MS Trust - Here you can find explanation of MS jargonmstrust.org.uk/information-support/about-ms/what-is-ms#myths-misunderstandings - MS myths and misunderstandingsmstrust.org.uk/news/focus-fact-or-fiction - Article written by Simon on how to fact check informationmstrust.org.uk/information-support/work-money-legal/working-life  - MS Trust information about work and MSCall our free helpline on 0800 032 38 39 for practical information you can trust. Or email ask@mstrust.org.uk. We're here weekdays from 10am to 4pm, except bank holidays. 

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39What questions have the MS community been asking in 2024? We took to social media and analysed our helpline enquiries to find out.Dr Claire Winchester and Corinne from our helpline team take us through the topics and explore the available information, support and self-management strategies.Plus, we cover some of the more unusual things that you've been asking about, like tattoos, Botox and lip fillers. Ready to find out more?Listen now for trusted information, tips and more.Show NotesMS Trust HelplineMS Trust Shop - Here you can download all MS Trust publications for freeSupporting the MS Trust - information from the MS TrustMS Trust Facebook Groupmstrust.org.uk/a-z/fatigue - MS Trust information about fatiguemstrust.org.uk/information-support/newly-diagnosed - MS Trust information for the newly diagnosedmstrust.org.uk/information-support/work-money-legal/working-life  - MS Trust information about work and MSmstrust.org.uk/information-support/home-and-travel/equipment -  MS Trust information about equipmentmstrust.org.uk/a-z/botulinum-toxin-botox   MS Trust information about botoxmstrust.org.uk/a-z/mcdonald-criteria MS Trust information about about the McDonald's Criteriamstrust.org.uk/news/think-you-know-how-spot-uti - Think you can spot an UTI - info from the MS TrustCall our free helpline on 0800 032 38 39 for practical information you can trust. Or email ask@mstrust.org.uk. We're here weekdays from 10am to 4pm, except bank holidays. 

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Is public transport derailing your life? We caught up with Meg Barnett (Transport For All), Flora (MS Trust helpline), Richard Sprenger and Antoinette Mohamed on public transport tips, helpful information and all the latest resources. “It's just really complicated. I hate having medical appointments because it's so difficult to get to them.” - Antoinette Does this sound familiar? If public transport is derailing your life, you're not alone.Between all of the planning, symptom management, inaccessible stations and social interactions, public transport can feel like you've got a one-way ticket to exhaustion on the fatigue express. In fact, 77% of people in our study reported feelings of isolation due to barriers in transport and travel. That's why we caught up with Meg Barnett from the charity Transport For All, Flora from the MS Trust helpline team, MS Trust Ambassador Richard Sprenger and regular MS Trust blogger Antoinette Mohamed. Our podcast guests talk us through their public transport wins and the inevitable disaster journeys. Plus, we hear about helpful apps, journey planning tips and where to turn to when our travels go severely off-track. Whilst we know that we can't wave a magic wand and fix public transport for the MS community, this episode might just give you a little more confidence the next time you're setting sail on an adventure. Listen now for all of the latest trusted information and tips.Episode NotesDriving and Transport - info from MS Trustmstrust.org.uk/information-support/home-and-travel/driving-and-public-transport Life changing: getting around with MS - information from MS Trust  mstrust.org.uk/news/life-changing-getting-around-ms Transport for All - www.transportforall.org.ukPassenger Assistance - passengerassistance.comCitymapper - travel planner app - citymapper.com/?lang=enMS Trust Facebook Group

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Are you wondering how to stay productive while managing MS? Perhaps you are looking for ways to disclose your diagnosis without derailing your career?  Then join us as we delve into the topic of MS at work.Hosts Nick and Helena explore the impact of Multiple Sclerosis in the workplace and share strategies for Bringing Your MS to Work.We have a jam-packed show with four fantastic guests:Dr. Blanca de Dios Pérez, a postdoctoral Research Fellow at the University of Nottingham, who shares her research aimed at helping people with MS stay in the workforce for as long as they choose with the help of vocational rehab.Amy and Sam from the charity “MS Together” discuss their personal journeys with MS in the workplace and the supportive conversations they have been having within their community.Jane, recently diagnosed with MS, shares  her experience of revealing her diagnosis at work,Tune in to hear these stories and get some ideas in managing MS in your  workplace. Let's bring your MS to work!Episode NotesMS Trust web page on Working life with MS: mstrust.org.uk/life-ms/your-finances/working-lifeBring your MS To work Campaign mstrust.org.uk/get-involved/bring-your-ms-work - Fundraising Campaign from MS TrustMS Together mstogether.org/ - MS charity for young people with MSVolunteer at the MS Trust mstrust.org.uk/get-involved/volunteeringWorking life and MS mstrust.org.uk/information-support/podcasts/working-life-and-ms - Podcast episode about MS and your rights at work Other work resources that might be usefulMS Awareness Week webinar on work and MS: mstrust.org.uk/get-involved/ms-awareness-week/work-and-ms-webinar MS Trust web page on Working life with MS: mstrust.org.uk/life-ms/your-finances/working-life MS Trust web page on Legal advice: mstrust.org.uk/life-ms/your-finances/legal-adviceMS Trust A-Z Equality Act:  mstrust.org.uk/a-z/equality-actLaw Centres offer legal advice, casework and representation:  lawcentres.org.ukCitizens Advice: citizensadvice.org.uk/work/rights-at-workAccess to work: gov.uk/access-to-work/applyAcas gives employees and employers free, impartial advice on workplace rights, rules and best practice: acas.org.uk/

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39What is a driving assessment? Does your mind conjure up memories of your driving test? Do you see a 17-year-old version of yourself panicking and sweating?Well, the second part of our podcast series on driving and multiple sclerosis covers everything that you need to know.Occupational therapist, Wendy Valentine and driving assessor, James Hinkins take us through the roadmap on driving assessments, car adaptions, the DVLA and more!We find out how the assessors are there to promote your independence and keep you on the road for as long as they can.Oh, and don't forget to check out part one where we heard all about the Motability Scheme and MS.If you've ever felt worried about driving and MS, this is the podcast for you. Start your engines and join us as we motor through all the latest tips and information on driving and MS.Episode NotesDriving and Transport - info from MS Trustmstrust.org.uk/information-support/home-and-travel/driving-and-public-transportDriving with MS -info from MS Trust  mstrust.org.uk/news/driving-ms-what-you-need-knowHow car adaptations gave me my independence back - blog from MS Trust:  mstrust.org.uk/news/stories/how-car-adaptations-gave-me-my-independence-backwww.drivingmobility.org.uk - info from Driving mobility UK

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Driving when you live with MS might make you feel like you're stuck at a red light.You might start to ask questions. Who do I need to tell about my diagnosis? Can I still drive to see my family and friends? What adaptions do I need?Well, our two-part podcast special should give you some answers and dispel a few myths.In part one, we're joined by Claire Winchester, MS Trust Head of Info and Engagement. She shares insights from a recent survey exploring how MS affects travel and transportation.Plus, we hear from Motability's Ross Smith to learn more about their scheme and how it can help people with MS stay independent.Listen now to learn helpful driving tips, information and more!Episode NotesDriving and Transport - info from MS Trustmstrust.org.uk/information-support/home-and-travel/driving-and-public-transportDriving with MS - News item from MS Trust what you need to know mstrust.org.uk/news/driving-ms-what-you-need-know How the Motability Scheme works - motability.co.uk/how-it-works/ 

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39What should you eat when you live with MS? We come across this question a lot from the MS community. It's not surprising considering how much conflicting information there is out there.That's why we're demystifying MS diets in our two-part podcast special. Episode one saw us catch up with Dr. Terry Wahls and Samantha Josephs (Overcoming MS) about their respective diets and lifestyle approaches.This time around, we're chewing the fat with registered dietician Claire Fenlon (Chilterns Neuro Centre), who also lives with MS herself. She helps us to understand the importance of healthy eating with MS and outlines some helpful tips.Also, MS Trust Head of Information and Engagement, Dr Claire Winchester, gives us food for thought on the research behind nutrition and diet.Join us for all the latest tips, information and more!Episode notesDemystifying MS diets pt 1: the Wahls Protocol and Overcoming MS: mstrust.org.uk/information-support/podcasts/demystifying-ms-diets-pt-1-wahls-protocol-and-overcoming-msDiet and MS - info from MS Trust  mstrust.org.uk/information-support/diet-msTypes of MS Diets – info from MS Trust mstrust.org.uk/information-support/diet-ms/types-dietDiet and symptoms – info from MS Trust mstrust.org.uk/information-support/diet-ms/diet-and-symptomsDonate to the MS Trust donate.mstrust.org.uk/Tips to keep your bladder healthy mstrust.org.uk/news/expert/tips-keeping-your-bladder-healthy Tips to keep your bowel healthy mstrust.org.uk/news/expert/tips-keeping-your-bowel-healthyChilterns Neuro centre chilternsneurocentre.org

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Have you thought about making changes to your diet to help manage your MS? Maybe you've experimented with a few fad diets, but never quite found what works.Well, we know the feeling. The world of nutrition can be tricky – you're not sure if you should be keto, vegan, paleo, carnivore or just straight up confuddled.Throw MS into the mix and all of a sudden, things can get even more confusing. That's why we're sinking our teeth into the world of MS and diet and digesting the facts in a two-part podcast series.First up, we tuck in to two of the most popular MS diets: The Wahls Protocol and the Overcoming MS diet and lifestyle.Our guests, Dr. Terry Wahls (The Wahls Protocol) and Samantha Josephs (Overcoming MS), discuss their diets, the research behind them and how healthy eating patterns can support your overall health.Listen now for all the latest tips, information and more!Episode notesDiet and MS - info from MS Trust  mstrust.org.uk/information-support/diet-msTypes of MS Diets – info from MS Trust mstrust.org.uk/information-support/diet-ms/types-dietDiet and symptoms – info from MS Trust mstrust.org.uk/information-support/diet-ms/diet-and-symptomsDonate to the MS Trust donate.mstrust.org.uk/The Wahls protocol terrywahls.com/the-wahls-protocol/Overcoming MS Diet overcomingms.org/program/guide-overcoming-ms-diet/

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39JLS founding member and critically acclaimed solo artist Oritsé Williams has been in the limelight since 2008. But long before the dazzling, bright lights of fame, Oritsé began his journey as a young carer for his mum, who was diagnosed with MS when he was 12 years old.Find out about the challenges that he and his siblings faced, his mother's MS journey and why he's passionate about supporting other young carers out there.Listen now to hear his take on caring for someone with dignity and love, the family bond they developed and how finding a creative outlet supported him emotionally.Episode notesInformation for carers - information from the MS Trust - mstrust.org.uk/information-support/care-and-carers/information-for-carers Caring for someone with MS - Podcast from MS Trust - mstrust.org.uk/information-support/podcasts/caring-someone-ms Advance care planning - information from the MS Trust - mstrust.org.uk/a-z/advance-care-planningThe MS Trust announce Oritsé Williams as its new celebrity ambassador -mstrust.org.uk/news/ms-trust-announce-oritse-williams-its-new-celebrity-ambassadorCaring organisations for young carershttps://www.mytimeyoungcarers.org/ - MYTIME Young Carers https://www.childrenssociety.org.uk/what-we-do/our-work/supporting-young-carers/ - Children's societyhttps://carers.org/about-caring/about-young-adult-carers - Carers UK

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Waiting for a potential multiple sclerosis diagnosis can be daunting. In this episode, we explore the "limbo land" time during your first appointments and a possible MS diagnosis.Neurologist, Dr Emma Tallantyre, joins us to talk about the importance of reaching out to your healthcare professionals, managing stress and more!We discuss the roles of neurologists and the tests you might go through. Plus, we cover some top tips for preparing for each appointment and what to do next.Listeners will gain a deeper understanding of the diagnostic journey, treatments, and the value of support from healthcare professionals, family, and friends.Listen now for expert advice, personal stories, and community support.Show notes- Worried you have MS?: mstrust.org.uk//information-support/ms-symptoms-diagnosis/worried-you-have-ms- MS Trust what is MS?: mstrust.org.uk/about-ms/what-ms- MS trust how is MS diagnosed?: mstrust.org.uk/about-ms/what-ms/how-ms-diagnosed- MS Trust newly diagnosed: mstrust.org.uk/about-ms/newly-diagnosed- MS Trust  A-Z of MS : mstrust.org.uk/a-z- MS Trust questions to ask a health professionals:  mstrust.org.uk/a-z/questions-ask-health-professionals - MS Trust contact us:  mstrust.org.uk/what-we-do/contact-us- Diagnosing MS - Lumbar puncture video: youtube.com/watch?v=dGmZt6XmZAQ- Diagnosing MS - Evoked potentials tests video: youtube.com/watch?v=DttdmivruP4- Diagnosing MS - MRI scan video youtube.com/watch?v=Erz_nGg4iII

Do you have feel embarrassed about your MS symptoms? Do you find some topics difficult to talk about? You're not the only one. 85% of people we surveyed felt embarrassed by at least one of their symptoms and many of the community were hiding their symptoms from their partners. A third of people living with MS also avoided seeking medical help due to embarrassment. It's time to shatter the stigma. MS Trust ambassadors, Trishna Bharadia, Dr Agne Straukiene and Richard Sprenger tackle taboo subjects like sexual dysfunction, bladder and bowel issues, drugs and opening up to your employer.Listen now for honest experiences, tips and more.Show NotesMS Awareness Week 2024mstrust.org.uk/get-involved/ms-awareness-weekWorking life and MS mstrust.org.uk/information-support/work-money-legal/working-lifeEquality actmstrust.org.uk/a-z/equality-actSexual problems for men with MSmstrust.org.uk/a-z/sexual-problems-men-msSexual problems for women with MSmstrust.org.uk/a-z/sexual-problems-women-msBladder and Bowel problemsmstrust.org.uk/a-z/bladder-and-bowel-problemsPodcastsHow can I manage my MS bowel problems?mstrust.org.uk/information-support/podcasts/how-can-i-manage-my-ms-bowel-problemsHow can I manage my MS bladder problems?mstrust.org.uk/information-support/podcasts/how-can-i-manage-my-ms-bladder-problemsTalking toilet troubles in MSmstrust.org.uk/information-support/podcasts/talking-toilet-troubles-msCognition and thinking problems in MSmstrust.org.uk/information-support/podcasts/cognition-and-thinking-problems-msSex and MS part 1 (women)mstrust.org.uk/information-support/podcasts/sex-and-ms-part-1-womenSex and MS part 2 (men)mstrust.org.uk/information-support/podcasts/sex-and-ms-part-2-menRelationships and MSmstrust.org.uk/information-support/podcasts/relationships-and-msWorking life and MSmstrust.org.uk/information-support/podcasts/working-life-and-ms

Have you ever wondered how your hormones might affect your MS? We're joined by podcast guests Olivia Mason, a woman diagnosed with multiple sclerosis not long after giving birth, and Professor Ruth Dobson, a consultant neurologist specialising in MS.Together, we explore how periods, pregnancy, breastfeeding, and menopause can influence MS. Here's what we cover•      Can periods make MS symptoms worse?•      Is pregnancy protective for women with MS?•      Can you use disease modifying drugs (DMDs) whilst pregnant?•      Can women with MS safely breastfeed?•      How does menopause affect MS symptoms?•      Plus, Olivia shares her personal experience and insights on navigating an MS diagnosis as a new mother. This episode is a must-listen for anyone who wants to understand more about how periods, pregnancy, breastfeeding and the menopause can affect multiple sclerosis.Listen now for all of the latest information, tips and more!Episode notes- MS Trust  A-Z on MS and Hormones: mstrust.org.uk/a-z/hormones- MS Trust  A-Z on MS and pregnancy: mstrust.org.uk/search/pregnancy- MS Trust  A-Z on MS and breastfeeding: mstrust.org.uk/a-z/breastfeeding- MS Trust  A-Z on MS and menopause: mstrust.org.uk/search/menopause- MS Trust  Podcast on  MS and menopause: mstrust.org.uk/information-support/podcasts/how-does-menopause-affect-ms- Can the menopause affect MS - Research update: mstrust.org.uk/research/research-updates/update151013-menopause-MS-UK guidelines for treating multiple sclerosis symptoms during pregnancy - Research Update: mstrust.org.uk/news/research/230515-uk-guidelines-treating-multiple-sclerosis-symptoms-during-pregnancy- Why I created The Twelve Day Marathon - Blog by Olivia on MS Trust website: mstrust.org.uk/news/stories/why-i-created-twelve-day-marathon- UK MS pregnancy Register: ukmsregister.org/pregnancy

Bowel problems and MS. The underdiscussed topic that can leave many feeling anxious about leaving home. Have you experienced constipation or incontinence and wondered what part multiple sclerosis plays in them?Our podcast guests, Noreen Barker (MS Nurse Consultant) and Concetta Brugaletta (Clinical Nurse Specialist), are on a mission to shatter the stigma around bowel issues and MS. We talk treatments, strategies, tips and more!Join us as we discuss the loo taboo. Plus, find out what options are available for people living with MS bowel issues. Listen now.Show notesBowel problems in MS - information from MS Trust - mstrust.org.uk/a-z/bowel-problemsManging your Bowel - Free book from MS Trustshop.mstrust.org.uk/publications/managing-your-bowelsAsk the expert  bladder and bowel problems in MS - information from the MS Trust mstrust.org.uk/news/expert/ask-expert-bowel-and-bladder-problems-msFinding a toilet when out and about - article from MS Trust - mstrust.org.uk/news/expert/finding-toilet-when-out-and-about

Are MS bladder problems bursting the seams of your day-to-day life? You're not alone. Around 75% of people living with MS experience bladder issues and we know how frustrating and isolating they can be.That's why we're talking to MS specialist nurse, Grace Hazlett, about treatment options, preventative strategies and practical advice. She gives us the low down on pelvic floor exercises, fluid retention, catheters and more!Whether you're constantly fighting the urge to go, or looking for ways to prevent future bladder problems, this might just be the podcast for you.Listen now to find out tips, tricks, and practical advice to support MS bladder issues.Show notesBladder problems in MS - information from MS Trust - mstrust.org.uk/a-z/bladder-problems Manging your Bladder - Free book from MS Trustshop.mstrust.org.uk/publications/managing-your-bladder/Ask the expert  bladder and bowel problems in MS - information from the MS Trust mstrust.org.uk/news/expert/ask-expert-bowel-and-bladder-problems-msWhat can you do about bladder problems in MS - MS Trust video with  Angie Rantell, Consultant Nurse in Urogynaecology youtu.be/qXitm--wAnw

Living with MS means you might hit some unexpected mental health turbulence at times. Throw in the cost of living crisis, shocking world events and the gloomy news cycle and things around you can easily start to feel pressurised.Well, we may not have the answers to all of the world's problems, but what we do have is a rather brilliant podcast guest: Professor Derek Willis. He tells us how being kind to yourself can unlock new perspectives in life. Plus, he outlines some practical strategies for managing the expectations of others and taking healthy breaks. Listen now for tips, tricks and more! And … breathe. Episode notesMS and mindfulness with Justin Standfield - video on YouTubeMindfulness and MS - Information from MS TrustWellbeing and MS - Information from MS TrustCan mindfulness really help my MS? - podcast from MS TrustMS: your emotions and feelings - podcast from MS Trust

Ok, you've heard all about mindfulness and maybe you're even considering giving it a go. But can it actually help you manage life with MS? Is it just one of those trendy well-being fads like eating charcoal or moss smoothies (yep, they're both actually real)? Mindfulness teacher, Justin Standfield, lives with MS and he joins us to dispel a couple of mindful myths. Plus, he shares some practical ways that he manages his own MS symptoms using mindfulness. Join us to learn tips, tricks and approaches to mindful matters and MS.Episode NotesMS and mindfulness with Justin Standfield - video on YouTube Mindfulness and MS - Information from MS TrustWellbeing and MS - Information from MS TrustHow to meditate for beginners - information from the NHScomeonbabylightmyfire.com - Justin's BlogJustin on X  A selection mindfulness apps (not reviewed or endorsed by the MS Trust)HeadspaceCalmInsight TimerSimple HabitBuddhify

What have the MS community been asking about this year? We interview Corinne from our helpline team who tackles the burning MS questions and trends that our service has encountered in 2023.  In our busiest helpline year yet, the range of questions has been vast! We cover symptoms, equipment and a whole lot more. Plus, Dr Claire Winchester joins us for a fun experiment! We put forward your questions to an AI chatbot to see if it could be a useful source of MS information. Dive in to see if it has same level of expertise as our helpline service. Listen now for tips, helpful information and more.Episode NotesMS Trust HelplineSupporting the MS Trust - information from the MS TrustMS Trust Facebook Groupmstrust.org.uk/a-z/fatigue - MS Trust information about fatiguemstrust.org.uk/a-z/pain - MS Trust information about painmstrust.org.uk/information-support/newly-diagnosed - MS Trust information for the newly diagnosedmstrust.org.uk/information-support/work-money-legal/working-life  - MS Trust information about work and MSmstrust.org.uk/information-support/home-and-travel/equipment -  MS Trust information about equipment mstrust.org.uk/a-z/altered-sensations  -  MS Trust information about altered sensations mstrust.org.uk/a-z/magnetic-resonance-imaging-mri - MS Trust information about MRI'smstrust.org.uk/news/focus-fact-or-fiction - MS Trust new item about on to work out if an information source is reliable or not multiplesclerosisnewstoday.com/news-posts/2023/11/27/ news item from Multiple Sclerosis news about  AI's helping out reading MRI scans.

If you're not sure how to best prepare for your next MS Nurse appointment, this could be the podcast for you.No matter where you are on your MS journey, talking about your condition can bring on a wave of emotions. Your mind is likely to be brimming with questions and points to raise.Add in long NHS waiting lists and squeezed appointment times, and it might feel as though you're facing a steep challenge.When your appointment does come around, how can you make the most of your time with an MS Nurse and avoid information overload?Our podcast guest, MS Trust Lead Nurse Specialist, Dr Lou Jarrett explores some helpful tips on how to best prepare for your appointment. Learn how to build long-lasting relationships with your MS Nurse, what questions to ask and what to do whilst you're waiting to be seen.Finally, we'll touch on why the MS Trust is on a mission to train MS Nurses in the UK.Episode notesMaking the most of your appointments - information from the MS TrustQuestions to ask health professional - information from the MS TrustMS Trust HelplineThe Big Give - fundraising campaign from MS TrustSupporting the MS Trust - information from the MS TrustHow we train and support your MS health professionalsPatient initiated follow-up (PIFU) - information from NHSMS Trust Facebook Group

Feeling overwhelmed and anxious at the thought of discussing your MS with a neurologist? Wondering what questions to ask and what you should bring? You're not alone. Whether you're preparing for your first appointment or your tenth, emotions can be heightened. Add in the limited time that you get to talk to them and lengthy NHS waiting lists, and it can make you feel as though you're fighting an uphill battle.We caught up with MS Trust Ambassador, Dr Agne Straukiene, to set out some strategies for making the most of your neurology appointments. Find out how to bring up sensitive topics, what you can do when you're waiting to be seen and who you should bring with you.  Listen now to hear our helpful tips and get yourself prepared for your next neurologist appointment.  Show notes:Making the most of your appointments - info from the MS Trust mstrust.org.uk/information-support/newly-diagnosed/making-most-appointmentsQuestions to ask health professionals - info from the MS Trust mstrust.org.uk/a-z/questions-ask-health-professionals MS Trust Helpline: mstrust.org.uk/what-we-do/about-us/ms-helpline-and-informationBee Well With MS Podcast with Dr Agne Straukiene  beewellwithms.com

Ever wondered if smoking affects your MS? Sure, we all know the health risks linked to smoking. But, does smoking cause multiple sclerosis progression? And will your MS symptoms improve if you quit smoking?  We dive deep into these questions with consultant neurologist, Professor Richard Nicholas. Plus, Caroline Smith, who lives with MS, talks us through the steps she took to quit smoking. Listen now!Show NotesSmoking and MS - info from the MS Trust:  mstrust.org.uk/a-z/smokingQuitting smoking slows down MS progression  - info from MS Trust: mstrust.org.uk/news/research/230411-quitting-smoking-slows-down-ms-progressionFive top tips for improving your lung health – blog from Jodi Barber - -mstrust.org.uk/news/expert/five-top-tips-improving-your-lung-health Stoptober - Stop smoking campaign from NHS  www.nhs.uk/better-health/quit-smokingThe MS Register: ukmsregister.org Set up a fundraising challenge: mstrust.org.uk/get-involved/fundraising-and-events/do-it-your-way 

Multiple sclerosis can affect breathing in advanced MS. But breathing problems can begin at any stage with MS. To explain more in this podcast we talk to Racheal Moses who is a Consultant Respiratory Physiotherapist and Neuro Physiotherapist Jody Barber. They explain how you can spot breathing problems early, what you can do if you have breathing difficulties and what you can do to try to prevent them occurring in the future. Show NotesBreathing problems - info from the MS Trust:  mstrust.org.uk/a-z/breathing-problems Breathing exercises - info from MS Trust: /mstrust.org.uk/information-support/exercise-ms/build-your-own-exercise-routine/breathing-exercises Five top tips for improving your lung health – blog from Jodi Barber - -mstrust.org.uk/news/expert/five-top-tips-improving-your-lung-healthSpeech and language therapy – info from MS Trust - mstrust.org.uk/a-z/speech-and-language-therapy Mindfulness and MS – article Jody mentions - mstrust.org.uk/news/views-and-comments/mindfulness-and-ms

This is a recording from a live stream we did earlier with the Head of Information and Engagement at the MS Trust Claire Winchester, we chat to her about a report called “Life changing: mental health and MS". In this report we find out about what the MS community in the UK has to say about mental with and Multiple Sclerosis. Episode notesRead the full report, Life changing: mental health and MS: shop.mstrust.org.uk/publications/life-changing-mental-health-and-ms/Depression and MS - info from the MS Trust:  mstrust.org.uk/a-z/depression Anxiety and MS - info from the MS Trust:  mstrust.org.uk/a-z/anxiety Life changing: mental health and MS - news from MS Trust mstrust.org.uk/news/life-changing-mental-health-and-ms Ask the expert: Mental health and MS - info from MS Trust mstrust.org.uk/news/expert/ask-expert-mental-health-and-msFive top tips to help health professionals look after their mental health - blog from MS Trust mstrust.org.uk/news/views-and-comments/five-top-tips-help-health-professionals-look-after-their-mental-health It's all in your head: Mental health and MS - podcast from MS Trust mstrust.org.uk/information-support/podcasts/mental-health-and-msMS: your emotions and feelings - live podcast from MS Trust mstrust.org.uk/information-support/podcasts/ms-your-emotions-and-feelings-liveGetting to grips with using a mobility aid - podcast from MS Trustmstrust.org.uk/information-support/podcasts/getting-grips-using-mobility-aid MS and your feelings- publication from the MS Trust shop.mstrust.org.uk/publications/ms-and-your-feelings/

Sleep problems are more common in people with MS than the general population. Around half of people with MS say they experience disturbed sleep.  In this episode we  talk about some common problems and some potential ways to improve your sleep. We chat to prof Michael Banissy who has written several books on the topic and we also caught up with tiktok star Jo, also known as the Yorkshire wife, to talk to her about her issues with sleep.Show NotesSleep and MS - information from The MS Trust: https://mstrust.org.uk/information-support/wellbeing-ms/sleep Focus on sleep problems - information from the MS Trust: https://mstrust.org.uk/news/expert/focus-sleep-problems-ms Sleep and MS podcast - podcast from MS Trust: https://mstrust.org.uk/information-support/podcasts/sleep-problems-msThe Yorkshire Wife On tikTok - https://www.tiktok.com/@theyorkshirewife 

 Diagnosing MS can be a lengthy procedure, and getting on a treatment path can take even longer. So what happens when you treat potential MS really early? In this episode, we talk to Professor Klaus Schmierer about the AttackMS trial. The trial, the first of its kind, aims to use a highly-effective drug to treat people within 14 days of presenting with possible MS symptoms. Show Notes AttackMS trial: - classic.clinicaltrials.gov/ct2/show/NCT05418010 How is MS Diagnosed - information from The MS Trust: mstrust.org.uk/information-support/ms-symptoms-diagnosis/how-is-ms-diagnosed CIS - information from The MS Trust: mstrust.org.uk/a-z/clinically-isolated-syndrome-cisTaking part in clinical trials - information from The MS Trust: mstrust.org.uk/information-support/ms-research/which-trials-and-whereThe MS Guide video interview with other AttackMS participants  https://www.youtube.com/watch?v=0j-t2qUhhO0 AttackMS: assessing the feasibility of multiple sclerosis treatment within 14 days of presentation - YouTubeTo get in touch with AttackMS Email: bartshealth.attackms@nhs.netTwitter: @AttackMS_trialInternet: https://multiple-sclerosis-research.org/2023/02/attack-attack-attack-underway/

Have you been told to consider using a stick or wheelchair, but don't think you're ready for it yet? Maybe you're noticing changes to your walking ability and you're wondering what you can do about it? In this episode, we talk to neuro physio Laura about helpful mobility aids, and how to change your perspective on using them. We also check in with Hayley (my_sassability), who was diagnosed with MS aged just 13. She now uses mobility aids and is passionately advocating the importance of being seen not just using her wheelchair, but being proud to use her wheelchair.  Show notesHayley's Blog on MS Trust website: mstrust.org.uk/news/stories/my-sassability-if-we-are-not-seen-we-are-not-heard A-Z of MS Walking difficulties:  mstrust.org.uk/a-z/walking-difficulties Mobility problems and aids in MS (Part 1) podcast from MS Trust: mstrust.org.uk/information-support/podcasts/mobility-problems-and-aids-ms-part-1Mobility problems and aids in MS (Part 2) podcast from MS Trust: mstrust.org.uk/information-support/podcasts/mobility-problems-and-aids-ms-part-2 Neuroheroes: www.neuroheroes.co.uk

So you want to lead a healthier lifestyle with MS? But, you're feeling overwhelmed and you're not sure where to start? We've been there. Can simple changes in sleep, exercise, and diet REALLY influence MS management?Special guest Charlie Peel, author of ‘Disease-modifying lifestyle in multiple sclerosis: evidence, challenges, and the importance of engaged, informed patients,' gives us her take on the small steps that can make a massive difference to you. Learn practical strategies for positive lifestyle changes today!Plus listen to our colleague Stephen's MS journey. You'll hear about how the exercise challenge ‘Miles for MS' changed his life, why he's now organising it and how you can get involved! Oh, and the best part? This challenge is truly accessible to everyone in the MS community!Listen now to discover the power of setting goals, staying active and living well with MS.Show notesMiles for MS - Find out how you can get involved https://mstrust.org.uk/event/miles-msExercise and MS  - Information from the MS Trust: mstrust.org.uk/information-support/exercise-msDiet and MS  -  Information from the MS Trust: mstrust.org.uk/information-support/diet-msLifestyle Choices  - Information from the MS Trust: mstrust.org.uk/information-support/wellbeing-ms/lifestyle-choicesSleep and MS  - Information from the MS Trust: mstrust.org.uk/information-support/wellbeing-ms/sleepExercise is good for your brain  -  research update from the MS Trust: mstrust.org.uk/research/research-updates/210203-exercise-good-brainBeeWellWithMS Podcast with Dr Agne Straukiene - https://www.spreaker.com/user/12181923

Ready to take steps to improve your brain health? Neurologist Agne Straukiene (also host of BeeWellWithMS podcast) has a multi-pronged, scientific approach to boost your mental health, symptom management, fatigue resilience, cognition and sleep quality. We talk tailored exercise, learning how diet helps and hinders your MS, and the lowdown on supplements. Plus, how sleep, meditation, and stretching your mind with a new hobby or skill play their part too.Show NotesEpisode notes:-Brain health and MS - Information from the MS Trust: mstrust.org.uk/a-z/brain-health-Exercise and MS  - Information from the MS Trust: mstrust.org.uk/information-support/exercise-ms- Diet and MS - Information from the MS Trust: mstrust.org.uk/information-support/diet-ms- Lifestyle Choices  - Information from the MS Trust: mstrust.org.uk/information-support/wellbeing-ms/lifestyle-choices- Sleep and MS - Information from the MS Trust mstrust.org.uk/information-support/wellbeing-ms/sleep-Staying Smart - tool from the MS Trust: mstrust.org.uk/information-support/staying-smart-Brain health - article from the MS Trust: mstrust.org.uk/a-z/brain-health-Exercise is good for your brain  - research update from the MS Trust: mstrust.org.uk/research/research-updates/210203-exercise-good-brain- Bee Well with MS podcast -podcast from Dr Agne Straukiene

During MS Awareness week we aired a live podcast were we talked all things MS, emotions and feelings. Our recent survey of over 2,000 people living with MS, revealed that 56% feel that MS negatively impacts their mental health.  We were super excited to be joined by two excellent guests, who answered questions from the viewers: - Roshan das Nair• Senior Research Scientist, SINTEF, Norway• Professor of Clinical Psychology & Neuropsychology, University of Nottingham, UK- Dr Cora Sargeant, Educational Psychologist and presenter of Sciencing the s**t out of MS.Show notes-MS and your feelings, especially for people who are new to MS shop.mstrust.org.uk/publications/ms-and-your-feelings/- This hub on our website connects you to all kinds of options to support your emotional wellbeing.  mstrust.org.uk/information-support/wellbeing-ms - Mood matters film: youtube.com/watch?v=euZvutKFimU- MS Trust Mental health podcast series - It's all in your head

Every week around 130 people are diagnosed with MS. Finding information you can trust is important, particularly when you're newly diagnosed, as learning about MS can help you take control and feel more secure in a time of uncertainty. In this episode, we chat with Corinne from our helpline about what questions they hear from people who have recently been diagnosed and the types of responses they give to them.We also talk to Team GB athlete Lina Nielsen, who was diagnosed as a teenager about her MS diagnosis and her approaches to handling the condition.Episode notes- Newly diagnosed?: mstrust.org.uk/information-support/newly-diagnosed - MS Trust what is MS?: mstrust.org.uk/about-ms/what-ms - MS trust how is MS diagnosed?: mstrust.org.uk/about-ms/what-ms/how-ms-diagnosed - MS Trust A-Z of MS : mstrust.org.uk/a-z - MS Trust contact us: mstrust.org.uk/what-we-do/contact-us - Lina Nielson's Instagram: instagram.com/linaruns Our MS Trust Enquiry Service helpline is available from Monday to Friday (except UK bank holidays) from 9am to 5pm. Outside these hours you can leave us a message and we'll get back to you as soon as we can. Call our Enquiry Service on 0800 032 38 39 or you can email us ask@mstrust.org.uk. It's available to anyone who wants to know more about MS, not just those currently living with the condition.

In this episode, we are doing an MS awareness week special. This year the campaign looked at how MS affects everybody differently and encouraged people to share their experiences using the hashtag #MSMakesMe. Helena and Erika, from our fundraising team, catch up on what has happened throughout the week, as well as some exciting things that are happening in the next few months for the MS Trust.  Want to join the conversation? Listen now to find out how you can get involved and make your voice heard.Episode notes- MS Awareness week: mstrust.org.uk/MSAW- Live stream - MS: Your emotions and feelings: mstrust.org.uk/get-involved/ms-awareness-week#register- MS and mindfulness with Justin Standfield - YouTube - How does MS Make you feel?:  mstrust.org.uk/news/how-does-ms-make-you-feel- Miles for MS: mstrust.org.uk/event/miles-ms- Host a Thirtea party: mstrust.org.uk/party- Volenteer with the MS Trust - mstrust.org.uk/get-involved/volunteering- MS Trust contact us:  mstrust.org.uk/what-we-do/contact-usOur MS Trust  Enquiry Service helpline is available from Monday to Friday (except UK bank holidays) from 9am to 5pm. Outside these hours you can leave us a message and we'll get back to you as soon as we can. Call our Enquiry Service on 0800 032 38 39 or you can email us ask@mstrust.org.uk. It's available to anyone who wants to know more about MS, not just those currently living with the condition. To contact our fundraising team email fundraising@mstrust.org.uk or call the fundraising team on 01462 476707.

It's estimated that 130,000 people in the UK have multiple sclerosis. Every week around 130 more people are diagnosed. Are you worried that your symptoms might be MS? Have you looked MS up on the internet and read about symptoms that sound like the ones you're experiencing? Or perhaps someone in your family may have MS and you are concerned that you may also get it.In this podcast, we chat about what you should do if you are worried that you might have MS, as well as what your next steps could be. Although don't turn off if you already have a diagnosis, as we're also sharing an interesting personal story from Dr Daniel Matterson, better known as @the.ms.doctor on Instagram. He chats to us about his diagnosis and shares some tips about what you can do if you are worried you have MS. Episode notes- Worried you have MS?: mstrust.org.uk//information-support/ms-symptoms-diagnosis/worried-you-have-ms- MS Trust what is MS?: mstrust.org.uk/about-ms/what-ms- MS trust how is MS diagnosed?: mstrust.org.uk/about-ms/what-ms/how-ms-diagnosed- MS Trust newly diagnosed: mstrust.org.uk/about-ms/newly-diagnosed- MS Trust  A-Z of MS : mstrust.org.uk/a-z- MS Trust contact us:  mstrust.org.uk/what-we-do/contact-us- MS Awareness week webinars: mstrust.org.uk/MSAW- Diagnosing MS - Lumbar puncture video: youtube.com/watch?v=dGmZt6XmZAQ- Diagnosing MS - Evoked potentials tests video: youtube.com/watch?v=DttdmivruP4- Diagnosing MS - MRI scan video youtube.com/watch?v=Erz_nGg4iII- Dr. Daniel Matterson Instagram: instagram.com/the.ms.doctorOur MS Trust  Enquiry Service helpline is available from Monday to Friday (except UK bank holidays) from 9am to 5pm. Outside these hours you can leave us a message and we'll get back to you as soon as we can. Call our Enquiry Service on 0800 032 38 39 or you can email us ask@mstrust.org.uk. It's available to anyone who wants to know more about MS, not just those currently living with the condition. 

How can I explain MS fatigue to my family? What treatments are available for MS fatigue? What can I do to help my fatigue? We answer these questions and many more submitted by you in a special MS fatigue livestream with Claire from our information team. Listen now to our sister podcast: 'Multiple Sclerosis breaking it down live!'Want to get involved in the next livestream? Join our MS streaming community mstrust.org.uk/get-involved/fundraising-and-events/ms-trust-exclusives/msplayEpisode notes:- MS Trust information on fatigue:  mstrust.org.uk/a-z/fatigue- Book - Living with fatigue: shop.mstrust.org.uk/publications/living-with-fatigue/- Video on how Fatigue makes me feel: https://www.youtube.com/watch?v=2DnjDH2v8XY&t=3s -Describing fatigue to others: mstrust.org.uk/news/expert/describing-fatigue-others-Can cacao really help with MS fatigue? mstrust.org.uk/news/stories/can-cacao-really-help-ms-fatigue-Fatigue and MS webinar - mstrust.org.uk/news/stories/can-cacao-really-help-ms-fatigue-Ask the expert: Coping with MS fatigue: mstrust.org.uk/news/expert/ask-expert-coping-ms-fatigue-MS Trust Podcast - How can I manage living with MS fatigue?:  mstrust.org.uk/information-support/podcasts/how-can-i-manage-living-ms-fatigue-More on Stream for MS mstrust.org.uk/get-involved/fundraising-and-events/ms-trust-exclusives/msplayMedications discussed-Modafinil (Provigil): mstrust.org.uk/a-z/modafinil-provigil-Modafinil: now restricted to narcolepsywww.gov.uk/drug-safety-update/modafinil-provigil-now-restricted-to-narcolepsy-Amantadine (Symmetrel): mstrust.org.uk/a-z/amantadine-symmetrel-lysovir-Do medicines reduce fatigue in MS?:  mstrust.org.uk/news/research/210308-medicines-improve-fatigue

Frustrated how multiple sclerosis is typecast in the media? We often hear that TV shows, newspapers and social media do not show the kind of MS most of you experience. So we asked three journalists with MS for their standpoint. Listen to our chat with Rachel Horne, Daf Wyn and Richard Sprenger - as we shine the spotlight on MS in the media, and why we think a more realistic approach is long overdue.  Episode notes: - MS Trust News and stories: mstrust.org.uk/news-stories - Share your story with the MS Trust: mstrust.org.uk/news-and-stories/send-us-your-story - MS Trust Blog, What made Daf Wyn call his doctor?: mstrust.org.uk/news/stories/what-made-daf-wyn-call-his-doctor - MS Trust Blog, A sceptic's guide to wellness: mstrust.org.uk/news/stories/sceptics-guide-wellness - Guardian series; A sceptic's guide to wellness: theguardian.com/lifeandstyle/series/a-sceptic-s-guide-to-wellness - Rachel Horne Prize for Women's Research in MS: Rachelhorneprize.comNews & storiesStay in the know with the latest news, research and stories from the MS community. Find the information that matters to you, all in one place.mstrust.org.uk

In this episode, we talk about altered sensations. So what are altered sensations then? They are a bunch of sensory symptoms that can occur in MS, such as burning, tingling, pins and needles, crawling, numbness, prickling and the list goes on!  We talk to Dr Amanda Howarth, a pain specialist about what exactly they are and why they happen. We also share some of the MS community's life hacks around living with altered sensations.Episode notes: - MS Trust A-Z page on altered sensations: mstrust.org.uk/altered-sensations - MS Trust A-Z page on pain: mstrust.org.uk/pain - MS Trust Blog - What's with the strange tingling, crawling, burning and prickling feelings?: mstrust.org.uk/news/expert/whats-strange-tingling-crawling-burning-and-prickling-feelings- MS Trust A-Z on Complementary and alternative medicine: mstrust.org.uk/complementary-and-alternative-medicine- MS Trust A-Z on Cannabis: mstrust.org.uk/cannabis- MS Trust A-Z on Sativex: mstrust.org.uk/sativex- MS Trust A-Z on Gabapentin: mstrust.org.uk/gabapentin

New year, new podcast! In this episode, we cover new research developments, education and what's new at the MS Trust.  We kick off the year by talking a little about what's happening in the world of MS, the MS Trust and more.We chat to Rachel Horne who is a journalist with MS. She breaks down her MS journey and how she launched ‘the Rachel Horne Prize for Women's Research in MS'.  Next, our guest Helen from our MS Trust education team discusses the training we do with MS nurses and what this means for people living with MSEpisode notes:- The MS Trust podcast: mstrust.org.uk/information-support/support-services/podcasts-ms-trust- More about MS Specialist Nurses: mstrust.org.uk/a-z/ms-specialist-nurses- Rachel Horne Prize for Women's Research in MS: Rachelhorneprize.com- MS Trust Disease modifying drugs books; shop.mstrust.org.uk/publications/?type=treatments Next episodeThe next episode will be on altered sensations and MS. We're finding out about those weird, odd, creeping, crawling, fizzing and sometimes painful feelings that you might experience.We would love to hear from you if you have any comments or questions on the subject. We would REALLY love to know any life hacks you have for dealing with altered sensations. Send in your tips or questions (they can remain totally anonymous) on a voice note or message via WhatsApp on 07458303326. Alternatively, you can email comms@mstrust.org.uk.

For our last podcast of the year, we thought we'd get back to basics and concentrate on one of the most important things the MS Trust does, and that is answering your questions about MS.  We've compiled a list of the most popular topics which people have contacted us about this year. We chat with our Head of Information and Engagement, Claire who works on the MS Trust helpline, to talk us through some of these topics.Episode notes:- What we do; mstrust.org.uk/what-we-do/about-ms-trust- MS helpline and information; mstrust.org.uk/what-we-do/about-us/ms-helpline-and-information- MS Trust Facebook group facebook.com/groups/multiplesclerosistrust Whether you have recently been diagnosed, want to know more about a symptom you are experiencing, or need information on the different MS drugs and treatments, our MS Trust helpline team are here to answer your questions. 

In this short episode, Helena talks to Tristan about an exciting fundraising opportunity to double your gifts to the MS Trust at no additional cost. Help your money go further and double the impact for people with MS.Episode notes:Double your donation at mstrust.org.uk/big-give - From 29 November to 6 December 2022, give through The Big Give to double the value of your donation at no additional cost to you!

This time on Multiple sclerosis breaking it down, we'll be talking about thinking problems in MS. Problems with thinking and memory affect around half of all people with MS. Cognition is the medical term for thinking, and problems with thought and memory are known as cognitive problems. Issues include memory, attention span, planning, decision-making, understanding or concentration.To explain cognition issues in MS, and some strategies that may help you, we chatted with Professor Roshan das Nair. Helena and Debs also share their experiences with cognition difficulties and what they do to manage them.Episode notes:- Thinking problems in MS - Information from the MS Trust: mstrust.org.uk/information-support/health-wellbeing/thinking-and-memory-problems-Staying Smart - tool from the MS Trust: mstrust.org.uk/information-support/staying-smart-Brain health - article from the MS Trust: mstrust.org.uk/a-z/brain-health-Exercise is good for your brain  - research update from the MS Trust: mstrust.org.uk/research/research-updates/210203-exercise-good-brain- MS Trust Christmas cards - shop.mstrust.org.uk/christmas-cards/Next episodeThe next episode will be on the most asked questions in 2022. In the new year we will be doing a programon altered sensations and MS, those weird odd, creeping, crawling, fizzing and sometimes painful feelings you get. If you have anything to say or to ask about this topic we would love to hear from you. Your comment may even be featured on the episode! We would REALLY love to know any life hacks you have for dealing with altered sensations. Send in your tips or questions (they can remain totally anonymous) on a voice note or message via WhatsApp on 07458303326. Alternatively, you can email comms@mstrust.org.uk.

This time on the MS Trust podcast we'll be talking about eye problems in MS. Multiple sclerosis can affect your vision in several ways. Problems with your sight, such as optic neuritis, can be an early symptom of MS, but can also arise if you've had MS for some time.To try and explain the ins and outs of visual problems we chat to Dr Benson Chen a neuro-ophthalmologist, about some common eye issues in MS and ask him some questions the MS community sent us.  We also chat to Deb about her own experiences with eye issues that eventually led to her MS diagnoses.Episode notes:- Visual problems in MS - Information from the MS Trust: mstrust.org.uk/a-z/visual-problems-Optic neuritis - article from the MS Trust: mstrust.org.uk/a-z/optic-neuritis-Double vision (diplopia) - article from the MS Trust: mstrust.org.uk/a-z/double-vision-diplopia-Nystagmus - article from the MS Trust: mstrust.org.uk/a-z/nystagmusNext episodeOur next podcast will be on the topic of Cognition and MS. If you have anything that you'd like to ask about this subject, we'd love to hear from you and your comment may even be featured on the episode! (it can remain totally anonymous). You can drop us a voice note or message via WhatsApp on 07458303326. Alternatively, you can email comms@mstrust.org.uk 

We are back with part two of our Sex and MS podcast. At the MS Trust we have produced content about Sex and MS for many years, and if there is one thing that we have learnt, it is that sex is a tricky subject to talk about. That's why, we've once again invited subject experts, Denise Middleton and Lesley Catterall to answer some of the of your questions around sex and MS for men. We also chat with Dom from the MS guide, about his own experiences on the subject of sex and MS. Episode notes:- The MS Guide- Dom's YouTube channel www.youtube.com/channel/UCIpq0cm2wIfKJ6H8xs2AxGA - Sexual problems for men with MS A-Z of MS - Information from the MS Trust:  -mstrust.org.uk/a-z/sexual-problems-men-ms- Relationships and family life - Information from the MS Trust: mstrust.org.uk/life-ms/relationships-and-family-life- Ask the expert: Sex and MS - Information from the MS Trust: mstrust.org.uk/news/views-and-comments/ask-expert-sex-and-ms-Reduced sexual desire - Information from the MS Trust: mstrust.org.uk/a-z/reduced-sexual-desire- MS Trust booklet; Sex & MS: a guide for men: shop.mstrust.org.uk/publications/sex-ms-a-guide-for-men/- Relationships and MS - Podcast from the MS Trust: mstrust.org.uk/resources/podcasts-ms-trust/relationships-and-ms- Sex and Ms part one (women) - Podcast from the MS Trust: mstrust.org.uk/resources/podcasts-ms-trust/sex-and-ms-part-1-women

At the MS Trust, we know that talking about sex and sexual health isn't easy. Many people find it an awkward or embarrassing topic to discuss, whether that's with partners or health professionals. That's why, we've invited subject experts, MS nurses,  Denise Middleton and Lesley Catterall to answer some of the questions you may want to know the answer to but didn't want to ask. Before that we hear from Roxy, aka Multiple Sclerosis Fashionista about their experiences of sex as someone living with MS and hear some tips she has for others. Episode notes:- Sexual problems for women with MS A-Z of MS - Information from the MS Trust: mstrust.org.uk/a-z/sexual-problems-women-ms- Relationships and family life - Information from the MS Trust: mstrust.org.uk/life-ms/relationships-and-family-life- Ask the expert: Sex and MS - Information from the MS Trust: mstrust.org.uk/news/views-and-comments/ask-expert-sex-and-ms-Reduced sexual desire - Information from the MS Trust: mstrust.org.uk/a-z/reduced-sexual-desire- MS Trust booklet; Sex & MS: a guide for women: shop.mstrust.org.uk/publications/sex-ms-a-guide-for-women/- Relationships and MS - Podcast from the MS Trust: mstrust.org.uk/resources/podcasts-ms-trust/relationships-and-ms

Disease modifying drugs (DMDs) are a group of treatments for people with multiple sclerosis. Most DMDs are for people with relapsing remitting MS (RRMS), but there are some that are licenced for use by people with progressive MS. For people with RRMS, disease modifying drugs reduce the number of relapses you might experience as well as reducing the severity of any relapses you do have.There are a wide range of drugs approved for use by the NHS in the UK. Each drug offers a different combination of benefits and possible risks.In this podcast we are going to be chatting to neurologist Kate who is going to explain the ins and outs of DMDs and how you can go about choosing one. Then we will be talking to Sam, who shares her personal journey of choosing DMDs.Episode notes:- Disease modifying drugs - MS Trust A-Z: mstrust.org.uk/about-ms/ms-treatments/disease-modifying-drugs-dmds- Frequently asked questions about DMD - Information from the MS Trust: mstrust.org.uk/about-ms/ms-treatments/ms-decisions/frequently-asked-questions-faqs-MS Decisions  DMD Tool - Information from the MS Trust: mstrust.org.uk/about-ms/ms-treatments/ms-decisions-aid- Disease modifying drugs- MS Trust booklet : shop.mstrust.org.uk/publications/disease-modifying-drugsNext episode Our next two podcasts will be on the topic of sex and MS. One for men and one for women, or people who identify as either. Now we know that this is a topic that not everyone will feel comfortable talking about, but we want that to change as it's a very important subject. If you have any questions or stories you would like to share, we'd love to hear from you. Your comment may even be featured on the episode! You can drop us a voice note or message via WhatsApp on 07458303326. Alternatively, you can email mystory@mstrust.org.uk. It can be totally anonymous, if you wish.WhatsApp messages aren't monitored by our MS Enquiry Service and Helpline team so if you've got a question about life with MS that needs answering, please contact them directly on 0800 032 38 39 or email ask@mstrust.org.uk.

Our relationships with the people around us, whether family, friends, partners or work colleagues, are important for our emotional health and practical support. But sometimes MS can feel like a barrier to those relationships, making it harder to maintain the ones that matter to us or develop new ones in the future. So today we are going to dive into some of those issues. We will be joined by Billy from shift. MS who lives with MS himself and Flora from or MS Trust helpline.  Episode notes: - Relationships and family life - Information from the MS Trust: mstrust.org.uk/life-ms/relationships-and-family-life - Talking with fiends and family about MS - Information from the MS Trust: mstrust.org.uk/life-ms/family-and-relationships/talking-friends-and-family -Information for carers - Information from the MS Trust:mstrust.org.uk/life-ms/family-and-relationships/information-carers - MS Trust booklet; Someone I know has MS: shop.mstrust.org.uk/publications/someone-i-know-has-ms/- MS Trust booklet; Kid's guide to MS: shop.mstrust.org.uk/publications/kids-guide-to-ms/ - Caring for someone with MS - Podcast from the MS Trust: mstrust.org.uk/resources/podcasts-ms-trust/caring-someone-ms -MS Trust Facebook Group: facebook.com/groups/multiplesclerosistrust -Shift.ms -a social network and community for people with MS: shift.ms -Shift.ms Buddy system: shift.ms/the-buddy-network -Relationships and MS - webinar from MS Society Ireland:  youtube.com/watch?v=zcp92YezvZM Next episode Our next podcast will be on disease modifying Drugs and MS, where we are hoping to dive into the world of MS treatments and answer some questions on the subject that you may have. If you have anything to say about DMT's or that you want to ask about we would love to hear from you and your comment may even be featured on the episode! (it can remain totally anonymous)  You can drop us a voice note or message via WhatsApp on 07458303326. Alternatively, you can email mystory@mstrust.org.uk. It can be totally anonymous.WhatsApp messages aren't monitored by our MS Helpline team so if you've got a question about life with MS that needs answering, please contact them directly on 0800 032 38 39 or email ask@mstrust.org.uk.

As temperatures start to soar in the UK we catch up with Dr Nikos Evangelou about how and why heat affects people with MS. We also share some of your thoughts and real life experiences of heat sensitivity as well as tips on how to deal with it.  Episode notes: - Temperature Sensitivity - Information from the MS Trust: mstrust.org.uk/a-z/temperaturesensitivity - Can't take the heat - article from the MS Trust: mstrust.org.uk/news/cant-take-heat -Uhthoff's Phenomenon mstrust.org.uk/a-z/uhthoffs-phenomenon - How does cold weather affect MS? - Podcast from the MS Trust: mstrust.org.uk/resources/podcasts-ms-trust/how-does-cold-weather-affect-ms - Dr Nikos Evangelou's paper on Temperature sensitivity in multiple sclerosis: pubmed.ncbi.nlm.nih.gov/30377640/ Next episode Our next podcast will be on relationships and MS. This could be romantic relationships, family connections, or even friendships. We get a lot of questions relating to this topic, including what it's like to date with MS, how to talk to a partner or family member that doesn't understand the condition or even comments about fears that relationships with others will change after diagnosis. If you have an experience you'd like to share or a question to ask, we would love to hear from you. Your comment may even be featured on the episode! (it can remain totally anonymous if you wish) You can drop us a voice note or message via WhatsApp on 07458303326. Alternatively, you can email mystory@mstrust.org.uk.WhatsApp messages aren't monitored by our MS Helpline team so if you've got a question about life with MS that needs answering, please contact them directly on 0800 032 38 39 or email ask@mstrust.org.uk.

Today we are talking about the often misunderstood topic of advance care planning. The MS Trust recently published an information book titled ‘Thinking ahead: setting out your wishes for your future care and treatment'. It's a useful resource designed to help you to understand and share your personal values, and preferences, for your future medical care with your loved ones and your healthcare team.  The resource was produced by Ali, a member of the Information team here at the MS Trust, as well as MS Specialist Nurses and subject experts, Ellie Garlick and Sarah Roderick. In this episode we have all three along to shed some more light on the subject of advance care planning. What is an Advance care plan and why should you have one, how can you write one, when should you consider writing one and who can help with writing one? *There are a few mentions of end of life care which some listeners may find upsetting.*Episode notes- MS Trust booklet; Thinking ahead: shop.mstrust.org.uk/publications/thinking-ahead-setting-out-your-wishes/- MS Trust YouTube channel: youtube.com/mstrust - Advance care plan resource for England and Wales: advancecareplan.org.uk/ - Anticipatory care planning toolkit for Scotland:  ihub.scot/project-toolkits/anticipatory-care-planning-toolkit/anticipatory-care-planning-toolkit/ - Advance care plan resource document templates – includes examples of templates for advance care planning, advance statements and advance decisions to refuse treatment: advancecareplan.org.uk/examples-document-templates/-My Living Will – information about living wills, advance decisions and advance statements:  mylivingwill.org.uk/-Make, register or end a lasting power of attorney in England and Wales: gov.uk/power-of-attorney -Setting up a power of attorney in Scotland:  mygov.scot/power-of-attorney -Setting up an enduring power of attorney in Northern Ireland: nidirect.gov.uk/articles/managing-your-affairs-and-enduring-power-attorney