The Sunflower Conversations

Andrea Carstensen, a double Master's student at the London School of Economics and Political Science (LSE) and Sunflower Friend.Andrea discovered the Sunflower at Gatwick Airport after moving from the US to the UK for university. As a young person living with non-visible chronic health conditions, she shares her journey from Sunflower lanyard user to advocate. Through high-level UN advocacy and campus policy reform, Andrea has successfully championed the adoption of the Hidden Disabilities Sunflower at LSE through the Student Union, ensuring a legacy of inclusivity that extends beyond her time at the university.If you are experiencing any issues discussed in this podcast, please get in touch with your healthcare practitioner.For information:Learn more about the Sunflower hdsunflower.comHosted by Chantal Boyle, Hidden Disabilities Sunflower. If you enjoyed this podcast, please rate, review and share it to increase awareness and understanding of non-visible disabilities.Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

Erin Philpott shares her journey with Stargardt disease, revealing how she navigated diagnosis as a teenager and now balances motherhood while advocating for invisible disabilities in the workplace and beyond.• Erin faces significant daily challenges with transportation as a legally blind mother to a five-year-old• Often encounters misconceptions as she doesn't "look blind" without using a cane or guide dog• Erin chairs an employee-led committee advocating for disability, accessibility and inclusion• Erin emphasises that accessibility benefits everyone, not just people with disabilities• Advocates for building accessibility into initial designs rather than adding as afterthoughts• Challenges the stigma that disability means limitation: "Make it accessible and we'll come in droves"Please keep the conversation going via our Website, on Facebook, or on Instagram.

We welcome Sean Ewart and Manny Caro from the Spondylitis Association of America to provide an overview of Spondyloarthritis (SpA), a family of closely related inflammatory diseases that affect millions worldwide yet remain significantly under-recognised and diagnosed. Despite affecting more people than rheumatoid arthritis, multiple sclerosis, and ALS combined, SpA struggles with awareness.The primary disease in this family is ankylosing spondylitis (AS), also known as axial spondyloarthritis. This condition primarily affects the spine but can impact other joints throughout the body. Primary symptoms include inflammatory back pain, stiffness, reduced flexibility, fatigue, and sometimes spinal fusion.If you are experiencing any issues discussed in this podcast, please get in touch with your healthcare practitioner.For support and information:Spondylitis Association of AmericaNational Axial Spondyloarthritis Society UKArthritis IrelandAxial Spondylitis Support Program AustraliaHosted by Chantal Boyle and Lynn Smith, Hidden Disabilities Sunflower. If you enjoyed this podcast, please rate, review and share it to increase awareness and understanding of non-visible disabilities.Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

Terri Louise Brown has Relapsing Remitting Multiple Sclerosis (MS), experiencing frequent relapses and daily pain. In this conversation, Terri shares her journey from MS diagnosis at 27 to founding the charity Talks With MS. The charity provides community support for those living with multiple sclerosis. Cultural attitudes in BAME communities can create barriers to seeking medical help for chronic conditions, which is why Terri is committed to being the voice for the voiceless and encouraging people to seek medical and emotional support.We discuss how her personal experiences as a Black woman navigating disability have shaped her passionate advocacy for greater accessibility, representation, and understanding of non-visible disabilities. If you are experiencing any issues discussed in this podcast, please get in touch with your healthcare practitioner.For support and information:Talks With MSMS Society UKMS IrelandNational Multiple Sclerosis Society USAMS Plus AustraliaHosted by Chantal Boyle, Hidden Disabilities Sunflower. If you enjoyed this podcast, please rate, review and share it to increase awareness and understanding of non-visible disabilities.Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

Saran Chamberlain shares her journey as a young stroke survivor, from experiencing a life-changing event at 38 to becoming a national advocate for the stroke community. • Initially misdiagnosed as a migraine, the stroke left her entire left side paralysed with no sensation• Saran discusses the challenges of identity shift and the unseen deficits like fatigue, depression, and sensory overload• Highlights the isolation younger stroke survivors often face in healthcare and rehabilitation settings• Saran works on research co-design, speaks openly about stigma, and supports other survivors as a mentor.• Emphasises the importance of meaningful inclusion of people with lived experience in research using "nothing about us without us" principles• Believes in taking small wins and finding hope in the lifelong journey of post-stroke lifeVisit our website or find us on Facebook and Instagram

Join us as we welcome Shaylee Raye Hunter, Miss Petite Utah, who shares her journey as an advocate for women's rights and disability visibility. Shaylee opens up about her personal lived experiences with chronic intestinal pseudo-obstruction (CIPO), gastroparesis, and short bowel syndrome. In an open discussion, she shares how she manages her health conditions with medical interventions, such as a feeding tube and TPN, providing a unique glimpse into her life and the lifeline she depends on daily to receive the nutrients essential to life.We learn about the challenges Shaylee faced at school due to the assumptions made by other students about her health, as well as the subsequent difficulties she encountered in dating and the workplace.Shaylee is passionate about advocating for disability visibility through her pageant platform.If you're interested in any topics and advice discussed in this podcast, please follow up with your GP or healthcare practitioner.If you are experiencing any issues discussed in this podcast, please get in touch with your healthcare practitioner.Hosted by Chantal Boyle and Lynn Smith, Hidden Disabilities Sunflower. If you enjoyed this podcast, please rate, review and share it to increase awareness and understanding of non-visible disabilities.Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

Téa Runback shares her personal journey living with multiple invisible disabilities, including autism, ADHD, and a collection of autoimmune conditions, while highlighting the barriers faced in healthcare and employment settings.

Kate Middleton, CEO of The Wren Project, joins us for a special edition as part of the Podcasthon, which seeks to spotlight thousands of charities.In this episode, Kate shares her personal journey with multiple autoimmune diseases and explains how the body attacks itself instead of viruses. The Wren Project pairs individuals with dedicated volunteers for up to six months of regular support. It provides vital mental health support through dedicated listening services to those living with these often non-invisible conditions, giving an essential lifeline to address and support feelings of isolation and loneliness.If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For support and information:The Wren ProjectDiscover more episodes as part of Podcasthon:PodcasthonHosted by Chantal Boyle, Hidden Disabilities Sunflower. If you enjoyed this podcast, please rate, review and share it to increase awareness and understanding of non-visible disabilities.Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

In this episode, we chat with Elisha Samuels, who recently won Hidden Disability Personality of the Year at The Empowerment Awards by Talks with MS. The award was sponsored by Hidden Disabilities Sunflower and presented by our podcast host, Chantal.Elisha shares her own unique experiences of living with multiple sclerosis, discussing her challenges, the importance of a supportive workplace, societal perceptions of living with a non-visible disability, and the Sunflower's value in making the invisible visible and its contribution to evoking dialogue about inclusivity and awareness.Tune in to listen to Elisha's poem, "Burnout". It indicates why she feels she received the nomination for the award.If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For support:Talks with MS The MS Society MS IrelandHosted by Chantal Boyle, Hidden Disabilities Sunflower. If you enjoyed this podcast, please rate, review and share it to increase awareness and understanding of non-visible disabilities.Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

“...we really need more representation of this so we can smash these attitudes for all disabilities.”Peta Hooke interviews Zoe, a disabled journalist, copyright, author and public speaker. Zoe is a passionate advocate fighting against ableism and removing the stigma. She discusses attitudinal barriers and how someone may have a disability that is not visible, but their reactions are, and we should pay attention to this. Although Zoe is yet to receive appropriate support wearing the Sunflower, she believes it can benefit many people like her with greater public awareness.If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.The Sunflower Conversations is a Podcast where we explore the experiences of people living with hidden disabilities and what the Sunflower means to them. It's a space to share your experience and to empower and encourage more people to support invisible disabilities.   A big thank you to Peta Hooke for conducting the interviews with compassion and respect and to Sandee Facy for the beautiful Sunflower song. You can follow Peta's I can't stand podcast here and Sandee Facy's music here.If you want to share your experience, get in touch with us by emailing us here. If you enjoyed this podcast, please leave a rating and review. Find out more about the Sunflower by visiting the website hdsunflower.com 

Karen Thackray from DEBRA UK and Lisa Irvine joined us to discuss the rare skin condition epidermolysis bullosa (EB), sometimes known as butterfly skin.Lisa and her daughter live with EB and offer first-hand insights into the genetic skin condition that causes painful blisters. Karen breaks down the four main types of EB and their varying impacts. Through our conversation, we aim to raise awareness and foster a deeper understanding of EB as a dynamic disability that causes severe pain, as well as the emotional toll of constant adaptation to manage and care for the skin and judgement of strangers.If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner. For support:DEBRA UK DEBRA Ireland DEBRA International  Hosted by Chantal Boyle, Hidden Disabilities Sunflower.  If you enjoyed this podcast, please leave a rating and review.Follow us on socials: https://www.facebook.com/hiddendisabilitiessunflower/https://www.instagram.com/sunflowerlanyardscheme/?hl=enhttps://www.youtube.com/@hiddendisabilitiessunflower https://www.linkedin.com/company/hidden-disabilities  Find out more about the Sunflower by visiting the website hdsunflower.com Music by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website 

Chris Stratta from The Leprosy Missions is our guest this week on the podcast to educate us about how Leprosy, a curable disease often associated with stigma, affects thousands globally today. This episode explores its symptoms, the challenges those diagnosed face, and the critical role of education in combatting fear and discrimination.We discuss the importance of early detection and treatment to eradicate Leprosy, which is found in countries with poor sanitation and nutrition.Education is crucial in fostering kind and supportive communities so people affected by leprosy can live full lives. If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For support and to get involved:The Leprosy Mission InternationalThe Leprosy Mission Northern IrelandThe Leprosy Mission UKHosted by Chantal Boyle, Hidden Disabilities Sunflower. If you enjoyed this podcast, please leave a rating and review.Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

“I think it's important for people to realise that disabled people can be successful.”Peta Hooke interviews Amelia, a queer, autistic and very opinionated social justice advocate (her words). Amelia combines the professional expertise as a social worker with her personal understanding of the intricacies of living with a non-obvious disability and talks about some of the unique challenges that often go unnoticed. Amelia demonstrates how someone can use the Sunflower to be seen and validated without explaining.For more information about Autism, please visit https://hdsunflower.com/au/insights/post/autismIf you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.The Sunflower Conversations is a Podcast where we explore the experiences of people living with hidden disabilities and what the Sunflower means to them. It's a space to share your experience and to empower and encourage more people to support invisible disabilities.   A big thank you to Peta Hooke for conducting the interviews with compassion and respect and to Sandee Facy for the beautiful Sunflower song. You can follow Peta's I can't stand podcast here and Sandee Facy's music here.If you want to share your experience, get in touch with us by emailing us here. If you enjoyed this podcast, please leave a rating and review. Find out more about the Sunflower by visiting the website hdsunflower.com 

Join us as we welcome Lauren von Stackelberg, the Chief Diversity & Inclusion Officer at the LEGO Group, to the podcast to learn more about the new Sunflower customisable minifigures and LEGO sets featuring the official Sunflower.Lauren leads us through the iconic toy brand's disability inclusion journey that started in 2011 beginning with a LEGO DUPLO character in a wheelchair, expanding over time to include the first Minifigure in a wheelchair, hearing aids, cochlear implants, a Minifigure with visual impairment and a guide dog, Minifigures with prosthetics, stoma bags, innovative products like the LEGO Braille bricks, and today, the addition of the Hidden Disabilities Sunflower lanyard. We hear why the Hidden Disabilities Sunflower is essential to the company's progressive approach to supporting disability inclusion and reducing stigma and how it goes beyond individual toys but also includes the design of the sets to accommodate the characters within it.For more information:The LEGO GroupHosted by Chantal Boyle, Hidden Disabilities Sunflower. If you enjoyed this podcast, please leave a rating and review.Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

This episode was recorded at Rise4Disability.Experience the world of accessible travel in aviation with Michael Connolly as we welcome him to the Sunflower Conversations podcast at the Rise4Disability event in Milton Keynes. Michael shares his vast knowledge of the hurdles faced by travellers with disabilities and how innovations like the Hidden Disabilities Sunflower are making a difference. The challenges and barriers faced by disabled passengers are varied. We discuss the varied levels of airport assistance available and how to access it to ensure a safe and accessible journey. We also hear about the Civil Aviation Authority's role in maintaining standards and the need for every aircraft to have onboard wheelchairs to ensure no passenger is left without support. Michael explains the importance of the Sunflower's discreet ability to indicate that support is required. We highlight how the lanyard empowers individuals, allowing them to travel independently while maintaining privacy. Please contact your healthcare practitioner if you are experiencing any issues discussed in this podcast.For supportSkywise SolutionsHosted by Chantal Boyle, Hidden Disabilities Sunflower. If you enjoyed this podcast, please leave a rating and review.Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

“…the mental, challenges are as great as perhaps the physical ones.“ Peta Hooke interviews Fran, an ambassador for MS Australia. Fran chats about confronting her late diagnosis of multiple sclerosis (MS) and some of the individualised challenges that people with MS face, including heat sensitivity, fatigue, visual impairment and mobility issues.MS is the most common acquired chronic neurological disease and, in Australia, affects three times more women than men. In MS, the body's immune system mistakenly attacks and damages the fatty material – called myelin – around the nerves. This results in a range of symptoms, but no two people experience MS in the same way. For more information about MS, please visit https://hdsunflower.com/au/insights/post/multiple-sclerosis-msFor support please visit https://www.msaustralia.org.au/ or https://www.msplus.org.au/If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.The Sunflower Conversations is a Podcast where we explore the experiences of people living with hidden disabilities and what the Sunflower means to them. It's a space to share your experience and to empower and encourage more people to support invisible disabilities.   A big thank you to Peta Hooke for conducting the interviews with compassion and respect and to Sandee Facy for the beautiful Sunflower song. You can follow Peta's I can't stand podcast here and Sandee Facy's music here.If you want to share your experience, get in touch with us by emailing us here. If you enjoyed this podcast, please leave a rating and review. Find out more about the Sunflower by visiting the website hdsunflower.com 

This podcast was recorded as an Instagram Live.Meet Eva Abley, the unstoppable force behind the memoir "The Good, The Bad and The Wobbly." At only 16 years old, Eva takes us on a journey through her life, from managing her symptoms of cerebral palsy to her experiences in the educational system and the highs of performing on stage.Eva is honest in our chat about her life, which hasn't been plain sailing. Through harmful attitudinal experiences at school with friendship groups and teachers, Eva's mental health has been severely affected. Now Eva has coping strategies and uses her experiences to advocate for disability awareness and acceptance through her schools programme, Spread the Kindness. At college, Eva is studying Health and Social Care.Eva's story is about growth, acceptance, and the power of being true to oneself. It reminds us of the impact we can have when we stand together for inclusivity.If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For supportThe Good, The Bad and The Wobbly book by Eva Abley, all proceeds go to Birmingham Children's HospitalSpread the Kindness school programme by Eva AbleyCP TeensScope CP Network 18 years old and over.Cerebral Palsy Adult Advice UKHosted by Chantal Boyle, Hidden Disabilities Sunflower. If you enjoyed this podcast, please leave a rating and review.Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

Gabrielle Hine shares her life-altering journey with Functional Neurological Disorder (FND) and fibromyalgia. Gabby experiences symptoms such as paralysis, non-epileptic seizures and blindness daily. Gabby paints a vivid picture of how these misfired signals within her nervous system have reshaped her life, leading to a cascade of challenges like anxiety and not being able to work.We talk about the societal misconceptions that often accompany non-visible disabilities. From the frustration of slurred speech to the heartbreak of having to step away from a career, our conversation delves into the complexities of living with FND and fibromyalgia. We also touch on the unique ways these conditions manifest in individuals, emphasising the importance of personalising support and understanding.If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For supportFND Hope UKFND Hope InternationalFibromyalgia UKHosted by Chantal Boyle, Hidden Disabilities Sunflower. If you enjoyed this podcast, please leave a rating and review.Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

“People say to me things like, oh, you can't be autistic. That's not right. You make eye contact, or you do public speaking for your job… I didn't disclose it until I was forced to due to work issues.”Peta Hooke interviews Ashlee, an autistic woman and a mother of three amazing children who are also autistic. Ashlee talks about coping with unexpected change, the challenges of invisibility and the pressure to disclose. She also talks about how wearing the Sunflower can provide comfort and a feeling of security to people with Autism and would like to see more of it in Shopping environments.For more information about Autism, please visit https://hdsunflower.com/au/insights/post/autismIf you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.The Sunflower Conversations is a Podcast where we explore the experiences of people living with hidden disabilities and what the Sunflower means to them. It's a space to share your experience and to empower and encourage more people to support invisible disabilities.   A big thank you to Peta Hooke for conducting the interviews with compassion and respect and to Sandee Facy for the beautiful Sunflower song. You can follow Peta's I can't stand podcast here and Sandee Facy's music here.If you want to share your experience, get in touch with us by emailing us here. If you enjoyed this podcast, please leave a rating and review. Find out more about the Sunflower by visiting the website hdsunflower.com 

Richard Luke from Scope and Karen Watson from Cerebral Palsy (CP) Adult Advice Service UK joined the podcast to answer questions from the Sunflower community about CP.  Cerebral Palsy develops before, during or soon after birth, and in this conversation, we discuss the fundamental issue of NHS care after childhood, leaving a gaping void in ongoing support. The episode also uncovers why CP, a complex condition, remains shrouded in misconceptions.Richard and Karen generously share personal stories, shattering stereotypes and shedding light on the real experience of living with CP and examine the gaps in healthcare, education, and employment, we also discuss the socioeconomic disparities within the CP community. If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For supportCP TeensScope CP Network 18 years old and over.Cerebral Palsy Adult Advice UKHosted by Chantal Boyle, Hidden Disabilities Sunflower. If you enjoyed this podcast, please leave a rating and review.Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

“You have mental health challenges, but you are still who you are.”Peta Hooke interviews Joshua about Mental Health and Tourette's Syndrome. Joshua discusses challenges in public places that cause severe anxiety, and how the Sunflower can help. Joshua would like to see stronger support across essential services such as public transport networks and supermarkets.Mental health is a state of mental well-being that enables people to cope with the stresses of life, realize their abilities, learn well and work well, and contribute to their community. If you're going through a hard time right now, the Beyond Blue Support Service is available 24/7 for brief counselling. Call a counsellor on 1300 22 4636 or chat to a counsellor online here www.beyondblue.org.auIf you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.The Sunflower Conversations is a Podcast where we explore the experiences of people living with hidden disabilities and what the Sunflower means to them. It's a space to share your experience and to empower and encourage more people to support invisible disabilities. A big thank you to Peta Hooke for conducting the interviews with compassion and respect and to Sandee Facy for the beautiful Sunflower song. You can follow Peta's I can't stand podcast here and Sandee Facy's music here.If you want to share your experience, get in touch with us by emailing us here.If you enjoyed this podcast, please leave a rating and review.Find out more about the Sunflower by visiting the website hdsunflower.com

Unlock the secrets to thriving as a self-employed individual with disabilities in our latest episode featuring Lydia Wilkins, a freelance journalist and editor at Disability Review magazine. Hear Lydia's compelling personal journey as she navigates the workforce as an autistic person living with long COVID. We tackle the significant disability employment gap in the UK and explore why traditional nine-to-five office jobs often fall short in accessibility, making a strong case for the financial and personal benefits of freelancing. Discover the essential support systems available for freelancers with disabilities, including Personal Independence Payment (PIP), and how they are crucial in managing day-to-day needs. If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For supportDisability Review Magazine PIP - Personal Independence PaymentAccess to WorkAccessAbleHosted by Chantal Boyle, Hidden Disabilities Sunflower. If you enjoyed this podcast, please leave a rating and review.Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

“People judge before they stand back and think, you know, there might be another reason for, for a person behaving the way that they do.”Peta Hooke interviews Helle about Pome disease and some of the everyday challenges Helle faces from getting dressed, to speaking to getting around.  Pompe disease is a rare, inherited, and without treatment, often fatal muscular disorder. Pompe Disease is caused by a deficiency or total lack of the enzyme acid alpha glucosidase. This enzyme is responsible for breaking down excess glycogen which normally accumulates in the muscles.For more information about Pompe disease, please visit https://australianpompe.org.au/find-out-more/If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.The Sunflower Conversations is a Podcast where we explore the experiences of people living with hidden disabilities and what the Sunflower means to them. It's a space to share your experience and to empower and encourage more people to support invisible disabilities. A big thank you to Peta Hooke for conducting the interviews with compassion and respect and to Sandee Facy for the beautiful Sunflower song. You can follow Peta's I can't stand podcast here and Sandee Facy's music here.If you want to share your experience, get in touch with us by emailing us here. If you enjoyed this podcast, please leave a rating and review.Find out more about the Sunflower by visiting the website hdsunflower.com 

Discover the vital role of the pituitary gland and its impact on our health with Gretchen Jordan, Associate Director of the Cushing Support and Research Foundation. Gretchen shares her compelling personal journey with Cushing's disease from diagnosis to advocacy. This episode uncovers the critical functions of cortisol and the often-overlooked symptoms of this rare condition, emphasising the need for greater awareness and early diagnosis.Learn how non-specific symptoms like weight gain, high blood pressure, and emotional instability complicate the diagnosis of Cushing's disease. We discuss the importance of recognising these symptoms early to improve quality of life and reduce the risk of severe complications.If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For supportCushing's Support and Research FoundationWorld Alliance of Pituitary OrganisationsThe Pituitary Foundation UK Hosted by Chantal Boyle and Lynn Smith, Hidden Disabilities Sunflower. If you enjoyed this podcast, please leave a rating and review.Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

“My brain is having to put in a lot of coping mechanisms to be able to just be in that space or in that place.”Peta Hooke interviews Isabella about intersectionality in youth, disability and mental health. Isabella (Belle) identifies as a neurodivergent (autistic & ADHD) Greek (CALD) queer/asexual empath with binge eating disorder (BED), learning and psychosocial (permanent & ongoing anxiety & depression) disabilities. Belle chats about challenges caused by general misunderstandings, and how the Sunflower can help. Belle is a passionate advocate and has a blog well worth subscribing to, https://www.divergents.info/publications.Mental Health: If you're going through a hard time right now, the Beyond Blue Support Service is available 24/7 for brief counselling. Call a counsellor on 1300 22 4636 or chat to a counsellor online here www.beyondblue.org.auIf you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.The Sunflower Conversations is a Podcast where we explore the experiences of people living with hidden disabilities and what the Sunflower means to them. It's a space to share your experience and to empower and encourage more people to support invisible disabilities. A big thank you to Peta Hooke for conducting the interviews with compassion and respect and to Sandee Facy for the beautiful Sunflower song. You can follow Peta's I can't stand podcast here and Sandee Facy's music here.If you want to share your experience, get in touch with us by emailing us here.If you enjoyed this podcast, please leave a rating and review.Find out more about the Sunflower by visiting the website hdsunflower.com

Language warning: Strong language used in this podcast.Content Warning: Please be advised that this episode contains strong language and discusses suicide. Tourette Syndrome (Tourette's) is a neurological condition that causes individuals to make involuntary vocal noises and movements called tics. Swearing or saying inappropriate things only affects 10% of people with Tourette's. For more information about Tourette's Syndrome, please visit here."...If you don't get out and build your bridge yourself, you'll never get anywhere..."This month, our Sunflower Conversations Podcaster in Australia and New Zealand, Peta Hooke, interviews Leighton (Uncle Tics) from New Zealand about Tourette's Syndrome. Leighton discusses his experience with public opinion, employment opportunities and having the courage to try new things.If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.The Sunflower Conversations is a Podcast where we explore the experiences of people living with hidden disabilities and what the Sunflower means to them. It's a space to share your experience and to empower and encourage more people to support invisible disabilities. A big thank you to Peta Hooke for conducting the interviews with compassion and respect and to Sandee Facy for the beautiful Sunflower song. You can follow Peta's I can't stand podcast here and Sandee Facy's music here.If you want to share your experience, get in touch with us by emailing us here.  

This month, our Sunflower Conversations Podcaster in Australia and New Zealand, Peta Hooke, interviews Alana talking about schizoaffective disorder, a combination of schizophrenia and bipolar disorder. Alana discusses her experience with hallucinations and multi-sensory delusion, and how the Sunflower can help in employment and education environments.Schizoaffective disorder is a combination of two mental illnesses – schizophrenia and a mood disorder. The main types of associated mood disorder include bipolar disorder (characterised by manic episodes or an alternation of manic and depressive episodes) and unipolar disorder (characterised by depressive episodes). For more information, please visit here.If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.The Sunflower Conversations is a Podcast where we explore the experiences of people living with hidden disabilities and what the Sunflower means to them. It's a space to share your experience and to empower and encourage more people to support invisible disabilities. A big thank you to Peta Hooke for conducting the interviews with compassion and respect and to Sandee Facy for the beautiful Sunflower song. You can follow Peta's I can't stand podcast here and Sandee Facy's music here.If you want to share your experience, get in touch with us by emailing us here.  

Martin Cornally shares his experience of the rare pituitary disease called acromegaly. Hear firsthand how a pituitary tumour led to excessive production of growth hormone, causing severe physical changes, including osteoarthritis. Despite undergoing two surgeries, Martin continues to fight this chronic and life-long condition, shedding light on the crucial need for early diagnosis and increased awareness among medical professionals. Explore the differences between acromegaly and gigantism, conditions that, though related, manifest at different stages of life. We discuss this rare disease's emotional, physical, and financial impacts, highlighting the importance of recognising subtle symptoms early on. Martin's symptoms include severe headaches, significant weight gain, and enlarged organs, which underlines the challenging journey of living with acromegaly and the importance of timely, accurate diagnoses.  In this episode, we also delve into the broader challenges of invisible disabilities, and co-host Scott shares how he has coped with having multiple brain aneurysms.  If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For supportWorld Alliance of Pituitary OrganisationsThe Pituitary Foundation IrelandThe Pituitary Foundation UK Hosted by Chantal Boyle and Scott Casson-Rennie, Hidden Disabilities Sunflower. If you enjoyed this podcast, please leave a rating and review. Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

Our guest is Rachel Bilski from the charity PTSD UK. PTSD stands for Post Traumatic Stress Disorder and is typically associated with veterans. However, it isn't only veterans who can develop it – And Complex Post Traumatic Stress Disorder, CPTSD, is less well known and, therefore, can take longer to diagnose.Rachel's lived experiences of CPTSD contribute to her work as a lecturer and supervisor for the Minded Institute for Yoga Therapy Training Institute.  We put your questions to Rachel during this conversation and learned about the differences and nuances between PTSD and CPTSD.We look into the complexities of emotional flashbacks and the varied manifestations of symptoms that can profoundly impact daily life. If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For supportPTSD UKPaul's blog (RE "brave")Rachel Bilski's blog (emotional flashbacks)Down to Earth Yoga TherapyHosted by Chantal Boyle and Paul Shriever, Hidden Disabilities Sunflower. If you enjoyed this podcast, please leave a rating and review.Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

This month, our Sunflower Conversations Podcaster, Peta Hooke, interviews Althea, talking about ADHD and Autism.The Sunflower Conversations is a Podcast where we explore the experiences of people living with hidden disabilities and what the Sunflower means to them.It's a space to share your experience and to empower and encourage more people to support invisible disabilities. If you want to share your experience, get in touch with us by emailing us here.  Connect with the Hidden Disabilities Sunflower here: Website, Facebook, Instagram.

Our guest is Amy Kelly, Head of Communications and Fundraising at Crohn's & Colitis Ireland. Amy was diagnosed with Crohn's Disease when she was 27 and shares her lived experiences and the impacts and adjustments she has made to her life.Amy explained that inflammatory bowel disease is an autoimmune disease and how it differs from irritable bowel syndrome (IBS). Amy walks us through what the symptoms are and shares some interesting statistics about the impacts of IBD on patients. The 'poo taboo' campaign seeks to encourage and educate what healthy bowel movements are and what they should look and feel like to help spot and seek diagnosis at an earlier stage.Amy also hosts the "GutCast" podcast – the first podcast for people living with inflammatory bowel disease (IBD) in Ireland.If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For supportCrohn's & Colitis IrelandCrohn's & Colitis UKGutCast podcastHosted by Chantal Boyle and Scott Casson-Rennie, Hidden Disabilities Sunflower. If you enjoyed this podcast please leave a rating and review.  Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

This podcast was recorded as an Instagram Live.CONTENT WARNING. The terms suicide and eating disorders are referenced.  Please visit your healthcare provider if you are concerned about any issues relating to this topic. Anna Cooper, co-founder of the Menstrual Health Project, and Dr Rebeccah Tomlinson joined us to answer questions from the Sunflower community about Premenstrual Dysphoric Disorder (PMDD).  In addition to explaining the differences between PMDD and PMS/PMT, they advised on how to seek support and discussed how important it is to track one's cycle.Questions from the community:1.       What are the common symptoms of PMDD?2.       What's the tipping point where PMS becomes PMDD?3.       How do people cope with PMDD / what accommodations do people give themselves?4.       Is there a possibility that the symptoms get less severe or even completely stop by itself?Disclaimer: Any reference that talks about women includes people assigned female at birth.If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For support The Menstrual Health Project Hosted by Chantal Boyle, Hidden Disabilities Sunflower. If you enjoyed this podcast please leave a rating and review.  Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby websiteFollow us on socials:InstagramTik TokFacebookLinkedIn X

CONTENT WARNING. We touch upon suicide, eating disorders and self-harm. Our guest will talk about her lived experiences, and signposting to charities for support. Please visit your healthcare provider if you are concerned about any issues relating to this topic. This podcast was recorded as an Instagram Live.For years, Amani battled with anxiety, rage, suicidal thoughts and attempts, which she attributed to severe CPTSD and the other symptoms she experienced were attributed to endometriosis and adenomyosis.The turning point arrived after being put into chemical menopause while waiting for a hysterectomy. The suicidal thoughts disappeared, Amani instantly felt better, and that is when she discovered that she had been living with PMDD.Amani talks about the treatments she had, implantable estrogen and the importance of community.If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For support Amani's Instagram The Empty Uterus Club International Association for Premenstrual Disorders IAPMD The Menstrual Health Project Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby websiteFollow us on socials:InstagramTik TokFacebookLinkedIn X

Eve Jensch is 37 and was diagnosed with Parkinson's two years ago. Eve lives in Ireland with her three children and her husband and joins us to talk about her lived experience with Parkinson's. Parkinson's is a progressive neurological condition, which means that it causes problems in the brain as the cells stop working correctly and, over time, stop producing dopamine.Eve is passionate about dispelling the myth that Parkinson's is an old man's disease. She uses her social media platform to create a community for everyone affected by it to connect, share, and help one another. Her social posts are often humourous despite the daily challenges she faces managing her illness.Describing her symptoms and the treatment options available, we learn about how vital dopamine is for the body and the various ways in which it is administered. If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For supportParkinson's UK charityParkinson's Ireland charityEve's Instagram pd_and_me Hosted by Chantal Boyle and Scott Casson-Rennie, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website  

Clare and her daughter, Matilda, join us to discuss Matilda's school experiences. Matilda is nine years old and in year five at primary school; she is autistic and has ADHD.Friendships can be challenging because Matilda is autistic and doesn't always pick up on social cues. Having ADHD means she needs to be active. Matilda tells us about the adjustments her school has made to support her, including a visual timetable and movement breaks. Mum Clare shares her journey so far, first identifying the areas of daily life Matilda struggles with, then obtaining a diagnosis, and now pursuing a satisfactory EHC plan, which is crucial to ensure that they apply to the best secondary schools to meet Matilda's needs and that when she is there, she has access to adequate funding to support her.If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For supportNational Autistic SocietyHosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

Our guests are Karina Smith and Michelle Culbert, from South Florida, who both have Optic Nerve Glioma, a rare eye condition affecting sight that typically affects young children. It is a slow-growing brain tumour in or around the optic nerve, which connects the eye to the brain. As the tumour progresses, it presses on the optic nerve.Karina and Michelle believe they are the only two adults in Florida with this rare eye condition. Sadly, there is very little knowledge, advice, and guidance on how to treat optic nerve glioma in adults. They both explain how what the sudden onset of sight loss was like for each of them, physically and emotionally and the steps that they had to take to weather the mental health impact it took. We also hear about the treatment they have both had, which includes proton beam radiation therapy.Together, they are reaching out globally to other people with rare eye conditions to create a support community where people can share their experiences.If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For supportONG.Awareness InstagramContact: ong.aware@gmail.comHosted by Chantal Boyle and Lynn Smith, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

CONTENT WARNING. The topic is eating disorders, and throughout the podcast, our guest will talk about their lived experiences, as well as signposting to charities for support. Please visit your healthcare provider if you are concerned about any issues relating to this topic.Undiagnosed autism and ADHD have played a part in Adam developing an eating disorder at secondary school. He battled through excruciating pain until the point of becoming hospitalised and, as a result, being left irreparably physically damaged. During the conversation, Adam shares his journey of recovery. He talks us through the different types of eating disorders and how they present. We also cover the dangers of diet culture, societal pressures, stigma and shame.Adam has a stoma as a result of severe intestinal issues and a prolapsed bowel, as well as musculoskeletal syndrome, all of which leave him with chronic pain and fatigue. If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For supportBEAT UKF.E.A.S.TFirst Steps EDHosted by Chantal Boyle and Paul Shriever, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

Our guests are Marcus Tanner and Dorothy Watson, CEO of The Sunnybank Trust.“The Sunnybank Trust supports adults with a learning disability across North East Surrey to have confidence, opportunities and control over their own lives and to be able to live without prejudice and discrimination.”In our conversation, we tackle the myths and stigma attached to learning disabilities (LD) and what action must be taken to dispel them. The statistics see less than favourable outcomes for people with an LD with mental health and employability. For the most part, this is due to barriers to access.There is an overwhelming call to collaborate and work with people with LD to share lived experiences and provide advice to improve disability inclusion. These actions will significantly improve life opportunities and access for the LD community. If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For supportThe Sunnybank TrustChallenges of people with learning disabilities in primary care animation We are Understand Us, the Learning Disability Experts filmHosted by Chantal Boyle and Paul Shriever, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby websiteFollow us on socials:InstagramTik TokFacebookLinkedIn Twitter

CONTENT WARNING. The topic is eating disorders, and throughout the podcast, our guest will talk about their lived experiences, as well as signposting to charities for support. Please visit your healthcare provider if you are concerned about any issues relating to this topic. Our guest, Zoe Summers, joins us to talk about eating disorders (ED), which remain a taboo subject and can be lethal. Through Zoe's lived experience, she has become an Ambassador for the eating disorder charity BEAT UK.In the conversation, we cover different types of eating disorders, and more specifically, binge eating disorder and orthorexia. Zoe explains the characteristics of these and how they affected her.We chat about some of the reasons why eating disorders develop and what help and support exist to recover. As well as suggestions for approaching the subject and essential do's and don'ts about what to say to someone with an ED.If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For supportBEAT UKHosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby websiteFollow us on socials:InstagramTik TokFacebookLinkedIn Twitter

Jo joined us from the charity Different Strokes to answer Sunflower wearers' questions and to explain what a stroke is, the signs to look out for, and what action to take, as well as advice about the support available to patients.Hayette had a stroke at age 32 and has been on a long journey of rehabilitation and recovery; she talks us through the surgeries she had and the everyday things that she has had to relearn through a multitude of therapies.F.A.S.TF is face.A is arm.S is speech.T is time.Different Strokes add two additional letters to the acronym B.E.F.A.S.T = B. Balance and E. Eyes - find out why by listening to the full conversation, which is packed full of helpful advice. If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For supportDifferent StrokesHelpline 0345 130 7172 Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby websiteFollow us on socials:InstagramTik TokFacebookLinkedIn Twitter 

This podcast was recorded as an Instagram Live.Hayette is a mother, wife and stroke survivor.  Aged 32 Hayette experienced a severe stroke called a subarachnoid haemorrhage, followed by an ischaemic stroke a few days later. A subarachnoid haemorrhage (SAH) is a life-threatening type of stroke, caused by bleeding into the space surrounding the brain.Our conversation covers the journey Hayette has been on and the impacts the strokes had on her cognitive and physical abilities. Her work, her relationships and her ability to resume work.Hayette, is a survivor in every sense of the word and this makes for a fantastic conversation.If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For support:Different StrokesHeadwayStroke Association Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby websiteFollow us on socials:InstagramTik TokFacebookLinkedIn Twitter

William Vanderpuye is a social worker and is autistic. In this conversation, William shares what the Sunflower means to him and the confidence and support it has given him while in education at university and now in employment.William's employer, Sutton Council, is supportive and offers understanding and kindness so that he can succeed and excel in supporting families with learning disabilities.This testimonial gets to the heart of what the Sunflower seeks to do, the people it aims to serve, and the community it seeks to improve.Please share this podcast to help increase knowledge and understanding of the Hidden Disabilities Sunflower.If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby websiteFollow us on socials:InstagramTik TokFacebookLinkedIn Twitter

Dr Louise Newson is a GP & Menopause Specialist and joined us to share her knowledge and expertise. Dr Newson and her team at Newson Health are at the forefront of advocating for women to get the appropriate treatment to support their hormone health. As well as investing in research and training to help healthcare practitioners make the best decisions for their patients.We cover a wide range of questions, from perimenopause and menopause to how oestrogen, progesterone and testosterone impact the body and the importance of good hormone health to help prevent serious inflammatory disabilities later in life, such as cardiovascular disease and osteoporosis. Dr Newson also answers questions from Sunflower wearers.If you are experiencing any issues discussed in this podcast please contact your healthcare practitioner.For support:Download the Balance appNewson HealthHosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby websiteFollow us on socials:InstagramTik TokFacebookLinkedIn Twitter

This podcast was recorded as an Instagram Live.Maddie shared her lived experience of being wrongly diagnosed with mixed anxiety, depression and panic disorder before eventually being diagnosed with autism when at university aged 21. In our chat, we talked about her life as she tried to navigate the neurotypical world and her newfound approach to life since being diagnosed with ASD.Maddie explains how her sessions with a counsellor who was explicitly trained in ADHD and Autism brought the realisation that all along, her difficulties resulted from being overwhelmed, over-stimulated, and the need to know exactly what lay ahead, as opposed to depression and anxiety.If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For support:National Autistic Society Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby websiteFollow us on socials:InstagramTik TokFacebookLinkedIn Twitter

Fay Durrant is a Wellbeing and Menopause coach and joined us to discuss perimenopause and menopause as well as her own lived experience with perimenopause.The conversation allows our hosts, Chantal and Paul, to speak about their experiences with having and living through perimenopause. Also discussed is the impact of this phase of life on relationships and work, as well as some of the hundreds of physical and mental symptoms.We finish with some self-care tips to support mental health, including mindfulness activities and breathwork.If you are experiencing any issues discussed in this podcast please contact your healthcare practitioner.For support: Wellness & Wilderness Get the "How to feel like less of a crazy B*t$h!"   Perimenopause mini ebook download. Fay Victoria (Wellness Wonder Woman) Durrant | LinkedIn In Her Right Mind | No-nonsense Menopause Advice written by Andrea Newton to help men navigate menopause with the women in their life. Hosted by Chantal Boyle and Paul Shriever, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby websiteFollow us on socials:InstagramTik TokFacebookLinkedIn Twitter

Beth Johnsson joins us to talk about Rett Syndrome. This rare genetic disorder affects brain development, resulting in severe mental and physical disability.It's estimated to affect around 1 in 10,000 girls born yearly and is rarely seen in boys.Beth talks about her personal experience with her daughter, Hannah, who was diagnosed with the condition when she was very young. Hannah now has a complex list of disabilities, including epilepsy, scoliosis, apnoea, respiratory problems, and digestive problems. She's waiting for a gastrostomy. She might need spinal surgery. There are over 50 symptoms of Rett Syndrome, some of which are life-threatening.Despite Hannah's developmental regression, she brings joy to their busy household with her side-eye glances at her parents and giggling at her younger brothers' antics.For support:Reverse Rett Rett UKPortageMencapHosted by Chantal Boyle and Paul Shriever, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby websiteFollow us on socials:InstagramTik TokFacebookLinkedIn Twitter

Sandy Kaur joins the Sunflower Conversations to discuss mental health and suicide prevention in Punjabi and South Asian communities and how her charity Sehhat is tackling the topic.We discuss the barriers to seeking support, including the obvious one, which is language and the cultural fear of judgment from the community.Whether talking about mental health or processing grief after suicide, Sandy explains how essential it is to provide access—starting by building trust and creating safe spaces to start those conversations.If you liked this podcast, please leave a review, subscribe and share.If you are experiencing any issues discussed in this podcast please contact your healthcare practitioner. For support  SehhatMind Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby websiteFollow us on socials:InstagramTik TokFacebookLinkedIn Twitter

Lisa Nice has multiple sclerosis (MS). She joins Chantal and Paul to explain how the autoimmune and neurodegenerative condition affects her. We also discuss her employer, Comic Relief's approach to diversity, equity and inclusion.Diagnosed late in life, it came as a shock, and it took a while for Lisa to accept her diagnosis, which is relapsing-remitting. There are many symptoms of MS, and Lisa shares the ones she has, how she manages them, her treatment, and the adjustments she has had to make at work and in her social life.Footdrop – the individual has difficulty lifting the front part of the foot (i.e. the front of your foot may drag on the ground as you walk)Allodynia – pain due to a stimulus that does not normally provoke pain (i.e. a light touch causing pain when it wouldn't normally)   If you liked this podcast please leave a review, subscribe and share.If you are experiencing any issues discussed in this podcast please contact your healthcare practitioner. For support  MS TrustMS SocietyHosted by Chantal Boyle and Paul Shriever, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby websiteFollow us on socials:InstagramTik TokFacebookLinkedIn Twitter

Our guests are sisters Bethany and Hannah Keime, who have a condition called Hypertrophic cardiomyopathy (HCM), a disease of the heart muscle where the muscle wall of the heart becomes thickened.Bethany and Hannah received a diagnosis in high school and have had to make significant changes to their lives and sporting passions. They have both been fitted with an implantable defibrillator, which saved Hannah's life when she fell into cardiac arrest while asleep in bed.Together Bethany and Hannah have created a support charity called HEARTCHARGED to build a community for other young people with the same condition and needing a shoulder to lean on. They are committed to educating and raising the profile of this chronic illness and the importance of AEDs (defibrillators).If you liked this podcast please leave a review, subscribe and share.If you are experiencing any issues discussed in this podcast please contact your healthcare practitioner.For supportHEARTCHARGED @heartcharged - Instagram and FacebookAmerican Heart AssociationBritish Heart Foundation Hosted by Chantal Boyle and Lynn Smith, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby websiteFollow us on socials:InstagramTik TokFacebookLinkedIn Twitter

Ginger Ragaishis is Miss Vermont Teen 2023 and is currently a junior in high school. Ginger has ADHD and learning disabilities and uses her lived experience to deliver talks to younger students to give them the confidence to be their authentic selves while at the same time raising awareness about acceptance.We talk about how Ginger's processing disorder and ADHD have affected her educational experience and how essential the adjustments made by her school have been to allow her to excel academically.Ginger has experienced depression and discusses her triggers and how she advises young people to seek advice.If you liked this podcast please leave a review, subscribe and share.If you are experiencing any issues discussed in this podcast please contact your healthcare practitioner.Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby websiteFollow us on socials:InstagramTik TokFacebookLinkedIn Twitter

Eva Abley joined Paul and Chantal at Disability Expo to share her life experience of living with cerebral palsy.Eva is 15 years old and a 2022 Britain's Got Talent finalist who endeared the country when she took to the stage to entertain, amuse and delight with her quick-witted and observant humour and comedy routines.Close to Eva's heart is her work as a disability activist, and in this conversation, we talk about her lived experience of cerebral palsy, mental health, social exclusion and her activisit work.This is a live recording.If you liked this podcast, please leave a review, subscribe and share.If you are experiencing any issues discussed in this podcast please contact your healthcare practitioner.Watch Eva's BBC programme - My Life Eva's Having a BallHosted by Chantal Boyle and Paul White, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website