Patient Partner Innovation Community Podcast

Kimberly Novod is the Executive Director and Cofounder of Saul’s Light. Kimberly and her husband Aaron’s first child Saul was born at twenty-eight weeks in June 2014. Saul passed away twenty days later in the NICU at Children’s Hospital because of complications from his premature birth. The Novods established Saul’s Light in 2015 to ease the financial and emotional burden of having a child in the NICU or losing a child for other parents. The Novods are longtime Louisiana residents and are dedicated to supporting parents in New Orleans and beyond. Here’s a glimpse of what you’ll learn: Understanding the importance of building and establishing trust within communities Learn the importance of providing wrap around support to parents who are discharged with their children from the hospital Be inspired to turn your pain into purpose to serve others In this episode…. This podcast features Kimberly Novod who shares how the death of her son Saul inspired her and her husband to cofound the community-based organization Saul’s Light. She explains the needs of her community and how their organization strives to fulfill those needs. She discusses the importance of building trust in the community and aligning with other trusted partners to serve the community. She talks about how cultural factors play a major role in community outreach. You will be inspired and empowered into action.

Hoangmai (Mai) H. Pham, MD MPH, is President and CEO of Institute for Exceptional Care, a nonprofit committed to transforming healthcare for people with intellectual and/or developmental disabilities. She is a general internist and national health policy leader. She was Vice President, Provider Alignment Solutions at Anthem, Inc., responsible for value-based care initiatives at the country’s second largest health insurance company. Prior to Anthem, Dr. Pham served as Chief Innovation Officer at the Center for Medicare and Medicaid Innovation, where she was a founding official, and the architect of Medicare’s foundational programs on accountable care organizations and primary care. She was Co-Director of Research at the Center for Studying Health System Change and has published extensively in the medical literature on provider payment policy and its intersection with health disparities, care coordination, quality performance, provider behavior, and market trends. Dr. Pham serves on numerous advisory bodies, including the National Advisory Council for the Agency on Healthcare Research and Quality, the Maryland Primary Care Program, and the National Business Group on Health, and was a member of the Board Executive Committee at the Health Care Transformation Task Force. She is an Adjunct Fellow at the Leonard Davis Institute of Health Economics of the University of Pennsylvania, and Faculty at the Institute for Healthcare Improvement. Dr. Pham earned her A.B. from Harvard University, her M.D. from Temple University, and her M.P.H. from Johns Hopkins University where she was also a Robert Wood Johnson Clinical Scholar. Here’s a glimpse of what you’ll learn: The importance of engagement strategies to achieve an inclusive healthcare environment. Understand that meaningful engagement can promote joy in healthcare practices. Learn resources and tools available that may not have been provided in traditional medical educational programs Collaboration with patients, families and caregivers is a key component when providing patient care In this episode…. This podcast features Hoangmai (Mai) H. Pham, MD MPH. She discusses how her organization provides training for clinicians and hospital staff around creating an environment of inclusion. IEC was founded by healthcare professionals who also have disabled loved ones. They share the anxiety and isolation of navigating an opaque, disconnected, and underfunded world of support services. Through their training and services healthcare providers can learn how to better engage with patients who have disabilities fostering an environment of inclusion.

Dr. Chantell Frazier is the CEO and Founder of Anansi, LLC. Anansi is a boutique data and research strategy consulting firm focused on improving black mental health and mental health in other communities of color. She is a thought leader, researcher, and strategist. She loves research but believes in doing studies that make an impact and matters. She focuses on metrics, research design, data strategy and policy insights that will lead to real opportunities in mental health for black and brown communities. Interested in learning more about her organization at hello@anansiresearch.com. Here’s a glimpse of what you’ll learn: Understanding what tools and resources are needed to improve mental health outcomes for patients and families of color. Learn how story telling partnered with data can drive change in healthcare systems. Understand how COVID has exasperated mental health issues in our communities Build a more solution-based way of thinking to address the SDOH factors that affect mental wellness in black and brown communities The impact of bringing in diverse voices into the work of research and quality improvement In this episode…. This week’s podcast features Dr. Chantell Frazier. She discusses how the importance of utilizing data to drive change in the black and brown communities. She identifies the gap in data collection and research in communities of color. Dr. Frazier explains how story telling can complement data to improve health outcomes. She was empowered to create her organization Anansi, LLC. Anansi is focused on improving mental health in communities of color. She will leave you inspired into action.

Dr. Washington is a prominent figure in healthcare transformation serving in the capacity of thought-leader, advocate, researcher and performance improvement expert who has worked with healthcare systems, U.S. government agencies and numerous policymaker groups to ensure that patient-centered and equitable approaches are at the heart of healthcare redesign. Dr. Washington founded and serves as President & CEO of ATW Health Solutions, a management consulting and research firm based in Chicago and board member for National Quality Forum (Washington DC). Shaped by her passion and belief in social justice, Knitasha has earned recognition nationally for her work in quality improvement, patient and family engagement, health equity and patient safety. Here’s a glimpse of what you’ll learn: Hear about the latest innovative trends in person and family engagement Understanding how research findings tell the story of past successes in patient safety outcomes Lessons learned and best practices in stakeholder engagement The importance of accountability to sustain meaningful PFE In this episode…. Dr. Knitasha Washington discusses the current state of person, family, and stakeholder engagement. She elevates the innovation and impact of patient safety research and outcomes. The importance of elevating diverse and underrepresented community partners such as Indigenous Lifeways to drive change is discussed. You will be inspired and empowered into action.

This podcast episode features guest Darius Bradley. He will share his journey of navigating the healthcare system as a father of color. He will also share his experiences of often being ignored. He was inspired to create a support group for fathers who are caring for medically complex children “Pappas and Pizzas" while in the hospital. Here’s a glimpse of what you’ll learn: Ensure you are providing an inclusive environment when discussing care plans with fathers Understanding how implicit biases affect black fathers’ healthcare experience when engaging care teams How to provide programs to support fathers whose loved ones are inpatient Learn more about the “Pappas and Pizzas” model Bio: Darius N. Bradley Sr. resides in the Houston, TX metropolitan area but was born and raised in New Orleans La. He is a loving husband and proud father of three. He is a passionate Encourager speaker and an Amazon multi best-selling author. Darius is the CEO and co-owner of Full Ability Clothing, an organization advocating for our differently abled community. He has served his gift of “Go Get !t” encouragement within the public schools in the Houston metropolitan area. Darius prides himself on empowering at risk youth. He has provided team building activities for national corporations such as Costco’s, Walmart, Panda Express and many others. He has provided motivational coaching services for Semi-pro football leagues, local organizations, hospitals and more. He does daily motivational videos on all his social media platforms in addition to composing, editing and doing voiceovers. He provides daily life coaching support for many community members, family, and friends.

This podcast episode features guest Darius Bradley. He will share his journey of navigating the healthcare system as a father of color. He will also share his experiences of often being ignored. He was inspired to create a support group for fathers who are caring for medically complex children “Pappas and Pizzas" while in the hospital. Here’s a glimpse of what you’ll learn: Ensure you are providing an inclusive environment when discussing care plans with fathers Understanding how implicit biases affect black fathers’ healthcare experience when engaging care teams How to provide programs to support fathers whose loved ones are inpatient Learn more about the “Pappas and Pizzas” model Bio: Darius N. Bradley Sr. resides in the Houston, TX metropolitan area but was born and raised in New Orleans La. He is a loving husband and proud father of three. He is a passionate Encourager speaker and an Amazon multi best-selling author. Darius is the CEO and co-owner of Full Ability Clothing, an organization advocating for our differently abled community. He has served his gift of “Go Get !t” encouragement within the public schools in the Houston metropolitan area. Darius prides himself on empowering at risk youth. He has provided team building activities for national corporations such as Costco’s, Walmart, Panda Express and many others. He has provided motivational coaching services for Semi-pro football leagues, local organizations, hospitals and more. He does daily motivational videos on all his social media platforms in addition to composing, editing and doing voiceovers. He provides daily life coaching support for many community members, family, and friends.

Michelle Whitman and MaryLiz McNamara believe that disability is an asset. They are on a mission to build sustainably inclusive practices and experiences for all. In this episode…… We discuss the topic of inclusion and access for people living with disabilities with experts Michelle Whitman and MaryLiz McNamara. Did you know that there are approximately 1 in 4 people live with a disability and more than 50% of people in the U.S. either identify as a person with a disability or are closely connected to someone who does? Michelle and MaryLiz work to disrupt the mindset around disability, resulting in authentically developed, sustainable processes that are accessible and inclusive by design. Here’s a glimpse of what you will learn: Broaden your thinking about disability inclusion and access beyond compliance with regulation. Identify your assumptions about people with disabilities and how they cause barriers to inclusion. Be planful about disability inclusion from the beginning – be proactive versus reactive. Michelle Witman (she/hers) Michelle has over 20 years of experience working with individuals with disabilities in educational and corporate settings. Michelle’s passion for helping individuals see their weaknesses as a strength has paved the way for her success. She is the co-founder of Asset Based Consulting, Inc. Mary Liz McNamara (she/hers) Mary Liz has decades of experience working on disability inclusion in education and employment. She has worked in cognitive rehabilitation for people with brain injuries, academic coaching, in career counseling for the Division of Vocational Rehabilitation, and has led an accessibility office for a major university. She designed and led an award-winning program for neurodiverse university students which resulted in significant increases in degree completion and successful employment. She is the co-founder of Asset Based Consulting, Inc. Contact Michelle or MaryLiz or connect with them through social media: MaryLiz@AssetBasedConsulting.com Michelle@AssetBasedConsulting.com LinkedIn: https://www.linkedin.com/company/asset-based-consulting/ https://www.linkedin.com/in/michelle-witman/ https://www.linkedin.com/in/mary-liz-mcnamara-090b308/ Facebook or Instagram: Asset Based Consulting www.AssetBasedConsulting.com

Michelle Whitman and MaryLiz McNamara believe that disability is an asset. They are on a mission to build sustainably inclusive practices and experiences for all. In this episode…… We discuss the topic of inclusion and access for people living with disabilities with experts Michelle Whitman and MaryLiz McNamara. Did you know that there are approximately 1 in 4 people live with a disability and more than 50% of people in the U.S. either identify as a person with a disability or are closely connected to someone who does? Michelle and MaryLiz work to disrupt the mindset around disability, resulting in authentically developed, sustainable processes that are accessible and inclusive by design. Here’s a glimpse of what you will learn: Broaden your thinking about disability inclusion and access beyond compliance with regulation. Identify your assumptions about people with disabilities and how they cause barriers to inclusion. Be planful about disability inclusion from the beginning – be proactive versus reactive. Michelle Witman (she/hers) Michelle has over 20 years of experience working with individuals with disabilities in educational and corporate settings. Michelle’s passion for helping individuals see their weaknesses as a strength has paved the way for her success. She is the co-founder of Asset Based Consulting, Inc. Mary Liz McNamara (she/hers) Mary Liz has decades of experience working on disability inclusion in education and employment. She has worked in cognitive rehabilitation for people with brain injuries, academic coaching, in career counseling for the Division of Vocational Rehabilitation, and has led an accessibility office for a major university. She designed and led an award-winning program for neurodiverse university students which resulted in significant increases in degree completion and successful employment. She is the co-founder of Asset Based Consulting, Inc. Contact Michelle or MaryLiz or connect with them through social media: MaryLiz@AssetBasedConsulting.com Michelle@AssetBasedConsulting.com LinkedIn: https://www.linkedin.com/company/asset-based-consulting/ https://www.linkedin.com/in/michelle-witman/ https://www.linkedin.com/in/mary-liz-mcnamara-090b308/ Facebook or Instagram: Asset Based Consulting www.AssetBasedConsulting.com

Kevin Wake is currently the chairman for University Health’s Patient & Family Advisory Committee. He is also the President of the Uriel E. Owens Sickle Cell Disease Association of the Midwest in Kansas City, KS. He has a bachelor’s degree in Human Biology from the University of Kansas and worked in pharmaceutical sales and management for 23 years before taking an early retirement due to health complications from his sickle cell disease. He also has a master’s degree in Healthcare Informatics from Walden University and a Community Health Worker certification from the SCDAA. Here’s a glimpse of what you will learn: How a patient’s story and lived experience has the power to drive change in the healthcare ecosystem The different levels of patient engagement and how a patient can be empowered to partner with their healthcare environment. The importance and strategies to ensure health systems provide an environment for meaningful patient engagement In this episode…. Kevin Wake shares his journey from patient to patient advocate. You will hear how he began to engage with his local Sickle Cell organization and quickly became a national champion. His story will inspire you into action. He also explains how to provide a welcoming environment where patients and providers can come together collaboratively to drive change in your healthcare ecosystem.

Kevin Wake is currently the chairman for University Health’s Patient & Family Advisory Committee. He is also the President of the Uriel E. Owens Sickle Cell Disease Association of the Midwest in Kansas City, KS. He has a bachelor’s degree in Human Biology from the University of Kansas and worked in pharmaceutical sales and management for 23 years before taking an early retirement due to health complications from his sickle cell disease. He also has a master’s degree in Healthcare Informatics from Walden University and a Community Health Worker certification from the SCDAA. Here’s a glimpse of what you will learn: How a patient’s story and lived experience has the power to drive change in the healthcare ecosystem The different levels of patient engagement and how a patient can be empowered to partner with their healthcare environment. The importance and strategies to ensure health systems provide an environment for meaningful patient engagement In this episode…. Kevin Wake shares his journey from patient to patient advocate. You will hear how he began to engage with his local Sickle Cell organization and quickly became a national champion. His story will inspire you into action. He also explains how to provide a welcoming environment where patients and providers can come together collaboratively to drive change in your healthcare ecosystem.

Ashley is an African American female who resides in Quinter, KS. She has become a national and local patient advocate and champion. She has been instrumental in her community to assist and elevate marginalized voices. She was inspired to become an advocate in her local school system from her experiences with her two sons who have autism. Through her advocacy she has become a true partner in her community to inform and advocate for persons with a disability. She has served on many national and local healthcare quality improvement projects. She is a champion for equity and hopes to inspire others to follow her lead. She believes in family centered care and shared decision making. Here’s a glimpse of what you will learn: What is meaningful engagement through the patient lens How to provide a culture where every voice is an equal stakeholder Why compensation is an important factor to achieve equitable engagement In this episode…. This podcast episode features patient partner Ashley Bates-Crowley. She shares her perspective of what meaningful patient engagement and equity looks like. She has been empowered to promote engagement and mentorship in her community. You will be inspired to become a health equity champion. The true meaning of equity in healthcare quality improvement will be highlighted and how to move in the spirit of collaboration.

Ashley is an African American female who resides in Quinter, KS. She has become a national and local patient advocate and champion. She has been instrumental in her community to assist and elevate marginalized voices. She was inspired to become an advocate in her local school system from her experiences with her two sons who have autism. Through her advocacy she has become a true partner in her community to inform and advocate for persons with a disability. She has served on many national and local healthcare quality improvement projects. She is a champion for equity and hopes to inspire others to follow her lead. She believes in family centered care and shared decision making. Here’s a glimpse of what you will learn: What is meaningful engagement through the patient lens How to provide a culture where every voice is an equal stakeholder Why compensation is an important factor to achieve equitable engagement In this episode…. This podcast episode features patient partner Ashley Bates-Crowley. She shares her perspective of what meaningful patient engagement and equity looks like. She has been empowered to promote engagement and mentorship in her community. You will be inspired to become a health equity champion. The true meaning of equity in healthcare quality improvement will be highlighted and how to move in the spirit of collaboration.

Ajshay James, MBA, is a Mediator, Motivator, Author, Advocate and Mother. She is originally from Washington, DC and is a champion for change---change in the way the world views philanthropy and approaches advocacy for vulnerable populations. Her years of experience of executive leadership in the philanthropic and financial sectors make her a powerhouse--that coupled with a heart the size of Texas is a recipe for a world of good. She has served on numerous committees, boards of directors, founded not-for-profits, launched initiatives and advised general corporations on goodwill strategy. Her most proud role is that of a mother to her former micro-preemie toddler daughter and unicorn lover, Harper. Ajshay’s NICU and premature birthing experience has made her a strong advocate for preemie and patient rights as CEO and Founder of the Harp Foundation. Committed to health equity, Ajshay is a sought-after speaker and practices servant leadership. Currently, Ajshay is pursuing the development of a patient, caregiver, and inter-agency focused software that will offer risk management and response support to responding care partners in the healthcare field. Here’s a glimpse of what you’ll learn: Ajshay James’ experience in the Neonatal Intensive Care Unit (NICU) Resources that the Harp Foundation offers to parents in the NICU experience Ajshay’s advocacy work in partnership with Yale CORE on maternal health disparities The key role of community partners as drivers for measures development Resources Mentioned in this Episode: Harp Foundation March of Dimes Yale CORE

Ajshay James, MBA, is a Mediator, Motivator, Author, Advocate and Mother. She is originally from Washington, DC and is a champion for change---change in the way the world views philanthropy and approaches advocacy for vulnerable populations. Her years of experience of executive leadership in the philanthropic and financial sectors make her a powerhouse--that coupled with a heart the size of Texas is a recipe for a world of good. She has served on numerous committees, boards of directors, founded not-for-profits, launched initiatives and advised general corporations on goodwill strategy. Her most proud role is that of a mother to her former micro-preemie toddler daughter and unicorn lover, Harper. Ajshay’s NICU and premature birthing experience has made her a strong advocate for preemie and patient rights as CEO and Founder of the Harp Foundation. Committed to health equity, Ajshay is a sought-after speaker and practices servant leadership. Currently, Ajshay is pursuing the development of a patient, caregiver, and inter-agency focused software that will offer risk management and response support to responding care partners in the healthcare field. Here’s a glimpse of what you’ll learn: Ajshay James’ experience in the Neonatal Intensive Care Unit (NICU) Resources that the Harp Foundation offers to parents in the NICU experience Ajshay’s advocacy work in partnership with Yale CORE on maternal health disparities The key role of community partners as drivers for measures development Resources Mentioned in this Episode: Harp Foundation March of Dimes Yale CORE

In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Karen Fernandes, president of AYR Consulting Group in Dallas, Texas, to discuss the prevalence and risks of DES exposure. The story of Diethylstilbestrol (DES) began in 1938 when British physician and chemist Charles Dodds and his team of scientists made the first synthetic oral form of estrogen. While DES was used widely to prevent miscarriage and related complications in pregnant women, 1970s research has since linked DES exposure to a host of health conditions that affect generations. Still, many are uninformed about DES, including health providers. Karen, who shares her insights as a DES daughter, nurse, and advocate, advises the DES-exposed or those concerned about DES exposure to ask providers questions and actively seek information related to DES. At the same time, providers must engage in an ongoing dialogue with patients to become familiarized with their lived experiences and address DES exposure. Resources Mentioned in this Episode: DES Info NIH website AYR Consulting Group National Quality Forum The Joint Commission

In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Karen Fernandes, president of AYR Consulting Group in Dallas, Texas, to discuss the prevalence and risks of DES exposure. The story of Diethylstilbestrol (DES) began in 1938 when British physician and chemist Charles Dodds and his team of scientists made the first synthetic oral form of estrogen. While DES was used widely to prevent miscarriage and related complications in pregnant women, 1970s research has since linked DES exposure to a host of health conditions that affect generations. Still, many are uninformed about DES, including health providers. Karen, who shares her insights as a DES daughter, nurse, and advocate, advises the DES-exposed or those concerned about DES exposure to ask providers questions and actively seek information related to DES. At the same time, providers must engage in an ongoing dialogue with patients to become familiarized with their lived experiences and address DES exposure. Resources Mentioned in this Episode: DES Info NIH website AYR Consulting Group National Quality Forum The Joint Commission

In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Ignatius Bau, Health Equity Consultant in San Fransisco, California, to discuss the Presidential Memorandum, ATW’s current work with the Office of Minority Health, and how to get involved. Resources Mentioned in this Episode: Executive Order On Advancing Racial Equity and Support for Underserved Communities Through the Federal Government Memorandum Condemning and Combating Racism, Xenophobia, and Intolerance Against Asian Americans and Pacific Islanders in the United States

In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Ignatius Bau, Health Equity Consultant in San Fransisco, California, to discuss the Presidential Memorandum, ATW’s current work with the Office of Minority Health, and how to get involved. Resources Mentioned in this Episode: Executive Order On Advancing Racial Equity and Support for Underserved Communities Through the Federal Government Memorandum Condemning and Combating Racism, Xenophobia, and Intolerance Against Asian Americans and Pacific Islanders in the United States

In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Jayanti Bandyopadhyay, Christine Holland, and Emma Bickel from Mathematica to discuss the importance of using patient lived experience in measures development.

In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Jayanti Bandyopadhyay, Christine Holland, and Emma Bickel from Mathematica to discuss the importance of using patient lived experience in measures development.

In this episode... It is critical for health systems to set measures in place to meet patients’ needs. Quality measurement allows all consumers to be informed about where they receive care. This transforms how hospitals address issues at their facility, the rankings they score, payment incentive programs, and more. Rachelle Zribi and Rachel Johnson-DeRycke share how YALE CORE has embarked on a journey to reach true partnership and co-creation with patients, families, and patient advocates. In doing so, patient partners have shared critical feedback on new measure decisions. Their input and stories help bring real-world experiences to the complex problems that the research teams focus on and the challenges patients face. In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Rachelle Zribi and Rachel Johnson-DeRycke, Health and Senior Health Outcomes Researchers at YALE CORE, to discuss their measure development processes and patient and family engagement practices. Resources Mentioned in this Episode: YALE CORE

In this episode... It is critical for health systems to set measures in place to meet patients’ needs. Quality measurement allows all consumers to be informed about where they receive care. This transforms how hospitals address issues at their facility, the rankings they score, payment incentive programs, and more. Rachelle Zribi and Rachel Johnson-DeRycke share how YALE CORE has embarked on a journey to reach true partnership and co-creation with patients, families, and patient advocates. In doing so, patient partners have shared critical feedback on new measure decisions. Their input and stories help bring real-world experiences to the complex problems that the research teams focus on and the challenges patients face. In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Rachelle Zribi and Rachel Johnson-DeRycke, Health and Senior Health Outcomes Researchers at YALE CORE, to discuss their measure development processes and patient and family engagement practices. Resources Mentioned in this Episode: YALE CORE

Geri Lynn Baumblatt, MA, has worked in health literacy, patient education, technology, and patient, family, and clinician experience for over 20 years. She co-founded the Difference Collaborative & Difference Collaborative Alliance, which supports family caregivers. Geri serves as the Chief Engagement Officer at Docola, a social good health tech company with a free patient education and communication platform. She also serves on the Patient Experience Policy Forum, the American Telemedicine Assoc ORCHA team, and was recently appointed to PCORI's Patient Engagement Advisory Panel.  Here's a glimpse of what you'll learn: The importance of raising awareness on difficult experiences of caregiving How employers and health professionals can support individuals who serve as caregivers The understated issues related to equity for caregivers Resources available to patients and caregivers on the Docala website In this episode... Geri shares her expertise in patient advocacy, engagement, and education, as well as her personal experience as a caregiver for her beloved father.   Family members who serve as caregivers often do not recognize the heaviness of this role. As a result, they may not identify the need or know how to ask for help. With most of one's time spent at work, employers need to be proactive in cultivating a culture of support. Moreover, clinicians should consider the impact of caregiving on their patients' wellbeing.   Complex circumstances surrounding caregiving presents the issue of inequity. It is imperative that patients and caregivers can access resources to improve engagement and build relationships with health providers.   In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Geri Lynn Baumblatt, Chief Engagement Officer at Docola, to raise awareness on the difficulties of providing hands-on care for loved ones.   Resources Mentioned in this Episode: Difference Collaborative – A non-profit and LLC website co-founded by Geri Docola – A free patient education and communication platform

Geri Lynn Baumblatt, MA, has worked in health literacy, patient education, technology, and patient, family, and clinician experience for over 20 years. She co-founded the Difference Collaborative & Difference Collaborative Alliance, which supports family caregivers. Geri serves as the Chief Engagement Officer at Docola, a social good health tech company with a free patient education and communication platform. She also serves on the Patient Experience Policy Forum, the American Telemedicine Assoc ORCHA team, and was recently appointed to PCORI’s Patient Engagement Advisory Panel. Here’s a glimpse of what you’ll learn: The importance of raising awareness on difficult experiences of caregiving How employers and health professionals can support individuals who serve as caregivers The understated issues related to equity for caregivers Resources available to patients and caregivers on the Docola website In this episode... Geri shares her expertise in patient advocacy, engagement, and education, as well as her personal experience as a caregiver for her beloved father. Family members who serve as caregivers often do not recognize the heaviness of this role. As a result, they may not identify the need or know how to ask for help. With most of one’s time spent at work, employers need to be proactive in cultivating a culture of support. Moreover, clinicians should consider the impact of caregiving on their patients’ wellbeing. Complex circumstances surrounding caregiving presents the issue of inequity. It is imperative that patients and caregivers can access resources to improve engagement and build relationships with health providers. In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Geri Lynn Baumblatt, Chief Engagement Officer at Docola, to raise awareness on the difficulties of providing hands-on care for loved ones. Resources Mentioned in this Episode: Difference Collaborative – A non-profit and LLC website co-founded by Geri Docola – A free patient education and communication platform

Geri Lynn Baumblatt, MA, has worked in health literacy, patient education, technology, and patient, family, and clinician experience for over 20 years. She co-founded the Difference Collaborative & Difference Collaborative Alliance, which supports family caregivers. Geri serves as the Chief Engagement Officer at Docola, a social good health tech company with a free patient education and communication platform. She also serves on the Patient Experience Policy Forum, the American Telemedicine Assoc ORCHA team, and was recently appointed to PCORI’s Patient Engagement Advisory Panel. Here’s a glimpse of what you’ll learn: The importance of raising awareness on difficult experiences of caregiving How employers and health professionals can support individuals who serve as caregivers The understated issues related to equity for caregivers Resources available to patients and caregivers on the Docola website In this episode... Geri shares her expertise in patient advocacy, engagement, and education, as well as her personal experience as a caregiver for her beloved father. Family members who serve as caregivers often do not recognize the heaviness of this role. As a result, they may not identify the need or know how to ask for help. With most of one’s time spent at work, employers need to be proactive in cultivating a culture of support. Moreover, clinicians should consider the impact of caregiving on their patients’ wellbeing. Complex circumstances surrounding caregiving presents the issue of inequity. It is imperative that patients and caregivers can access resources to improve engagement and build relationships with health providers. In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Geri Lynn Baumblatt, Chief Engagement Officer at Docola, to raise awareness on the difficulties of providing hands-on care for loved ones. Resources Mentioned in this Episode: Difference Collaborative – A non-profit and LLC website co-founded by Geri Docola – A free patient education and communication platform

Danielle Jones is the Director of Diversity and Health Equity at the American Academy of Family Physicians (AAFP). AAFP is a national membership organization that represents family doctors. It helps promote, support, and advance patient and community health. Danielle is a diversity, equity, and inclusion professional with skills in policy development and evaluation, strategic planning, public speaking, and project management and training. She possesses a track record of managing complex cross-functional projects in various environments. Danielle Jones holds a Ph.D. in Health Policy & Management from the University of Kansas Medical Center and a Master's of Public Health from the University of West Florida. In this episode… The medical field has a diverse workforce in terms of gender, race, sexual orientation, ethnicity, and geographical distribution. It also provides healthcare services to patients from diverse backgrounds and with different social statuses. Therefore, there is a need to provide as much education and training as possible about diversity and inclusion. In a bid to promote diversity, equity, and inclusion in the medical community, the American Academy of Family Physicians (AAFP) advocates for healthy policies all over the country. They help support healthy lifestyles by providing education and practice tools to both healthcare practitioners and local communities. They also promote interdisciplinary collaboration and organize events to provide better medical education to the community. In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Danielle Jones, the Director of Diversity and Health Equity at the American Academy of Family Physicians (AAFP), to talk about the organization's work in promoting diversity, equity, and inclusion in the medical community. They also discuss AAFP's EveryONE Project, FMX event, and the EveryONE Project Neighborhood Navigator tool.

Danielle Jones is the Director of Diversity and Health Equity at the American Academy of Family Physicians (AAFP). AAFP is a national membership organization that represents family doctors. It helps promote, support, and advance patient and community health. Danielle is a diversity, equity, and inclusion professional with skills in policy development and evaluation, strategic planning, public speaking, and project management and training. She possesses a track record of managing complex cross-functional projects in various environments. Danielle Jones holds a Ph.D. in Health Policy & Management from the University of Kansas Medical Center and a Master's of Public Health from the University of West Florida. In this episode… The medical field has a diverse workforce in terms of gender, race, sexual orientation, ethnicity, and geographical distribution. It also provides healthcare services to patients from diverse backgrounds and with different social statuses. Therefore, there is a need to provide as much education and training as possible about diversity and inclusion. In a bid to promote diversity, equity, and inclusion in the medical community, the American Academy of Family Physicians (AAFP) advocates for healthy policies all over the country. They help support healthy lifestyles by providing education and practice tools to both healthcare practitioners and local communities. They also promote interdisciplinary collaboration and organize events to provide better medical education to the community. In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Danielle Jones, the Director of Diversity and Health Equity at the American Academy of Family Physicians (AAFP), to talk about the organization's work in promoting diversity, equity, and inclusion in the medical community. They also discuss AAFP's EveryONE Project, FMX event, and the EveryONE Project Neighborhood Navigator tool.

Precious McCowan is a National PFE, which is a Personal Family Engagement champion. Precious is a two-time kidney transplant recipient, and since 2015, has been a patient advocate for End-Stage Renal Disease at the ESRD Network 14. In 2020, she became a member at large for the Kidney Transplant Committee, and she takes part in the eGFR workgroup. In this episode… Receiving a diagnosis can be disheartening. Precious McCowan had graduated college, started a new career, and began a family when she was diagnosed with End-Stage Renal Disease (ESRD). She’s here to share how she motivated herself and became a shining light for those with ESRD. Precious began dialysis without understanding the process, and she became out of tune with her health. After slipping into depression, Precious decided that she was going to turn her mindset around. She researched her illness, directed questions toward her healthcare providers, and became an advocate for herself. Now, she’s helping others do the same. In this episode of Patient Partner Innovation Community Podcast, Desiree Bradley sits down with Precious McCowan, National Personal Family Engagement champion, to discuss her journey through End-Stage Renal Disease. Precious talks about patient advocacy, the mentorship programs and campaigns she’s created, her advice to those coping with an illness, and more. You don’t want to miss this insightful episode!

Precious McCowan is a National PFE, which is a Personal Family Engagement champion. Precious is a two-time kidney transplant recipient, and since 2015, has been a patient advocate for End-Stage Renal Disease at the ESRD Network 14. In 2020, she became a member at large for the Kidney Transplant Committee, and she takes part in the eGFR workgroup. In this episode… Receiving a diagnosis can be disheartening. Precious McCowan had graduated college, started a new career, and began a family when she was diagnosed with End-Stage Renal Disease (ESRD). She’s here to share how she motivated herself and became a shining light for those with ESRD. Precious began dialysis without understanding the process, and she became out of tune with her health. After slipping into depression, Precious decided that she was going to turn her mindset around. She researched her illness, directed questions toward her healthcare providers, and became an advocate for herself. Now, she’s helping others do the same. In this episode of Patient Partner Innovation Community Podcast, Desiree Bradley sits down with Precious McCowan, National Personal Family Engagement champion, to discuss her journey through End-Stage Renal Disease. Precious talks about patient advocacy, the mentorship programs and campaigns she’s created, her advice to those coping with an illness, and more. You don’t want to miss this insightful episode!

Dr. Knitasha Washington is the President and Founder of ATW Health Solutions, an advisory firm that provides professional services to organizations and government agencies committed to transforming healthcare delivery. Dr. Washington has 20 years of experience in the healthcare field. She has extensive knowledge of strategies to advance innovation and improve outcomes through community engagement, patient engagement, and stakeholder alignment. Dr. Washington is dedicated to radical change in the healthcare industry, working to improve its quality for everyone. Desiree Bradley is the Co-host of the Patient Partner Innovation Community Podcast. Desiree has been involved in patient-centered research for many years and served as a Patient-Centered Outcome Research Institute (PCORI) Ambassador. She is also a National Faculty Member for the Transforming Clinical Practice Initiative (TCPI) and hopes to drive change and produce positive patient outcomes. In this episode… The healthcare system has its limitations, including the inability to focus on eliminating health disparities. On top of that, funding is the primary driver of power in healthcare. So, how can we work towards change and put the focus on patients, families, and their communities? For Dr. Knitasha Washington and Desiree Bradley, equity is their top priority. And according to Dr. Washington, every single organization can make a meaningful impact towards a more equitable system. But where do you begin? Dr. Washington, Desiree Bradley, and the team at ATW Health Solutions can point you in the right direction. In this episode of the Patient Partner Innovation Community Podcast, Rise25 Co-founder Dr. Jeremy Weisz speaks with Co-hosts Dr. Knitasha Washington and Desiree Bradley about their approach toward a patient-centered healthcare system. They discuss the disparities within the system, how they help other organizations develop strategies for change, and how they’re working to create a system that is meaningful to providers, patients, and caregivers. Stay tuned!

Dr. Knitasha Washington is the President and Founder of ATW Health Solutions, an advisory firm that provides professional services to organizations and government agencies committed to transforming healthcare delivery. Dr. Washington has 20 years of experience in the healthcare field. She has extensive knowledge of strategies to advance innovation and improve outcomes through community engagement, patient engagement, and stakeholder alignment. Dr. Washington is dedicated to radical change in the healthcare industry, working to improve its quality for everyone. Desiree Bradley is the Co-host of the Patient Partner Innovation Community Podcast. Desiree has been involved in patient-centered research for many years and served as a Patient-Centered Outcome Research Institute (PCORI) Ambassador. She is also a National Faculty Member for the Transforming Clinical Practice Initiative (TCPI) and hopes to drive change and produce positive patient outcomes. In this episode… The healthcare system has its limitations, including the inability to focus on eliminating health disparities. On top of that, funding is the primary driver of power in healthcare. So, how can we work towards change and put the focus on patients, families, and their communities? For Dr. Knitasha Washington and Desiree Bradley, equity is their top priority. And according to Dr. Washington, every single organization can make a meaningful impact towards a more equitable system. But where do you begin? Dr. Washington, Desiree Bradley, and the team at ATW Health Solutions can point you in the right direction. In this episode of the Patient Partner Innovation Community Podcast, Rise25 Co-founder Dr. Jeremy Weisz speaks with Co-hosts Dr. Knitasha Washington and Desiree Bradley about their approach toward a patient-centered healthcare system. They discuss the disparities within the system, how they help other organizations develop strategies for change, and how they’re working to create a system that is meaningful to providers, patients, and caregivers. Stay tuned!

Lisa Sloane is the Founder and CEO of More Inclusive Healthcare (MIH), a social enterprise that helps healthcare organizations provide more culturally responsive care. Through training and consultation, MIH is working to deliver equitable healthcare for all patients — no matter their race, gender, age, sexual orientation, or gender identity. In addition to this, Lisa chairs the Diversity, Equity, and Inclusion Committee for The Ohio State University’s Health Services Management & Policy Alumni Society. She is also a member of the Queen City Chapter of The Links, Incorporated. In this episode… Why is it so important for hospitals to collect real data from their patients? And, is the healthcare system currently collecting the right data, in the right way? For years, the healthcare system in the US has not been effectively gathering data about patients’ demographics, disability status, gender identity, sexual orientation, or veteran status. Very few hospitals train their staff on the right way to collect this data, which often leaves patients feeling defensive and vulnerable. Unfortunately, this leads to more disparities in patient care. So, what can healthcare systems do to start combating these disparities and collecting patient data in a more effective way? In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Lisa Sloane, the Founder and CEO of More Inclusive Healthcare, to talk about the importance of collecting and sharing health data. Lisa talks about some common disparities in patient care, the importance of engaging with patients in the right way, and what healthcare systems need to know about data collection. Stay tuned.

Lisa Sloane is the Founder and CEO of More Inclusive Healthcare (MIH), a social enterprise that helps healthcare organizations provide more culturally responsive care. Through training and consultation, MIH is working to deliver equitable healthcare for all patients — no matter their race, gender, age, sexual orientation, or gender identity. In addition to this, Lisa chairs the Diversity, Equity, and Inclusion Committee for The Ohio State University’s Health Services Management & Policy Alumni Society. She is also a member of the Queen City Chapter of The Links, Incorporated. In this episode… Why is it so important for hospitals to collect real data from their patients? And, is the healthcare system currently collecting the right data, in the right way? For years, the healthcare system in the US has not been effectively gathering data about patients’ demographics, disability status, gender identity, sexual orientation, or veteran status. Very few hospitals train their staff on the right way to collect this data, which often leaves patients feeling defensive and vulnerable. Unfortunately, this leads to more disparities in patient care. So, what can healthcare systems do to start combating these disparities and collecting patient data in a more effective way? In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Lisa Sloane, the Founder and CEO of More Inclusive Healthcare, to talk about the importance of collecting and sharing health data. Lisa talks about some common disparities in patient care, the importance of engaging with patients in the right way, and what healthcare systems need to know about data collection. Stay tuned.

Deirdre Gilberts is a patient's rights advocate, author, entrepreneur, and writer. She serves as founder and National Director of the National Medical Malpractice Advocacy Association, created in 2011 due to her daughter Jocelyn's death by medical error. Deirdre activates high standards of ethics and morality to ensure non-abuse of the powers entrusted to the medical profession by the American people. The repeated refusal to take constitutional safeguards that protect individuals from immoral equality has been the defining reason for Deirdre’s running for Governor of Texas. Born and raised in Houston, she has earned her M.A. in Educational Administration and B.S. in Political Science and Mass Communication from Prairie View A&M University. Here’s a glimpse of what you’ll learn: · Deirdre’s motivations for running for Governor of Texas · The relationship between health policy and government to healthcare · How patients can become more involved in health policy · The Greater National Advocates resource founded by L. Bradley Schwartz · Public Readiness and Emergency Preparedness (PREP) Act and limitations on health systems’ legal liability during the COVID-19 pandemic In this episode... The United States has no constitutional safeguards that protect individuals from immoral equality in healthcare systems. Many healthcare policies support systemic racism and have lasting effects on medical injustices. Thus, who is elected to office and the decisions they make directly affect healthcare outcomes. Deirdre shares that she is running for Governor of Texas in honor of her daughter Jocelyn and ensuring accountability for medical negligence. Having the informed consent of our health keeps us healthy, and community partnerships with hospitals are pivotal for holding health systems accountable. Given that medical injustices come about when patients’ medical records are inaccessible, patients are encouraged to converse with legislative leaders, ask physicians questions, and educate themselves with available information. In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Deirdre Gilberts, National Director of the NMMAA in Missouri City, TX, to discuss efforts to defend safeguards that prevent harm from medical error. Resources Mentioned in this Episode: National Medical Malpractice Advocacy Association - https://www.nmmaa.org/ The Greater National Advocates - https://www.gnanow.org/ Congressional Research Service’s report on the Prep Act - https://crsreports.congress.gov/product/pdf/LSB/LSB10443 Prep Act - https://www.congress.gov/109/plaws/publ148/PLAW-109publ148.pdf#page=140

Deirdre Gilberts is a patient's rights advocate, author, entrepreneur, and writer. She serves as founder and National Director of the National Medical Malpractice Advocacy Association, created in 2011 due to her daughter Jocelyn's death by medical error. Deirdre activates high standards of ethics and morality to ensure non-abuse of the powers entrusted to the medical profession by the American people. The repeated refusal to take constitutional safeguards that protect individuals from immoral equality has been the defining reason for Deirdre’s running for Governor of Texas. Born and raised in Houston, she has earned her M.A. in Educational Administration and B.S. in Political Science and Mass Communication from Prairie View A&M University. Here’s a glimpse of what you’ll learn: · Deirdre’s motivations for running for Governor of Texas · The relationship between health policy and government to healthcare · How patients can become more involved in health policy · The Greater National Advocates resource founded by L. Bradley Schwartz · Public Readiness and Emergency Preparedness (PREP) Act and limitations on health systems’ legal liability during the COVID-19 pandemic In this episode... The United States has no constitutional safeguards that protect individuals from immoral equality in healthcare systems. Many healthcare policies support systemic racism and have lasting effects on medical injustices. Thus, who is elected to office and the decisions they make directly affect healthcare outcomes. Deirdre shares that she is running for Governor of Texas in honor of her daughter Jocelyn and ensuring accountability for medical negligence. Having the informed consent of our health keeps us healthy, and community partnerships with hospitals are pivotal for holding health systems accountable. Given that medical injustices come about when patients’ medical records are inaccessible, patients are encouraged to converse with legislative leaders, ask physicians questions, and educate themselves with available information. In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Deirdre Gilberts, National Director of the NMMAA in Missouri City, TX, to discuss efforts to defend safeguards that prevent harm from medical error. Resources Mentioned in this Episode: National Medical Malpractice Advocacy Association - https://www.nmmaa.org/ The Greater National Advocates - https://www.gnanow.org/ Congressional Research Service’s report on the Prep Act - https://crsreports.congress.gov/product/pdf/LSB/LSB10443 Prep Act - https://www.congress.gov/109/plaws/publ148/PLAW-109publ148.pdf#page=140

Deirdre Gilberts is a patient's rights advocate, author, entrepreneur, and writer. She serves as founder and National Director of the National Medical Malpractice Advocacy Association, created in 2011 due to her daughter Jocelyn's death by medical error. Deirdre activates high standards of ethics and morality to ensure non-abuse of the powers entrusted to the medical profession by the American people. The repeated refusal to take constitutional safeguards that protect individuals from immoral equality has been the defining reason for her running for Governor of Texas. Born and raised in Houston, she has earned her M.A. in Educational Administration and B.S. in Political Science and Mass Communication from Prairie View A&M University. Here’s a glimpse of what you’ll learn: · Development and charge of the National Medical Malpractice Advocacy Association · Beloved Jocelyn Y. Dickson’s story of medical error · Misinformation of the Tort Reform bill · Advice to patients and families who are victims of medical error · Advice to providers to engage patients and address medical negligence In this episode... The National Medical Malpractice Advocacy Association (NMMAA) is a nonprofit organization whose work centers around education and activism throughout the US. NMMAA was created for citizens of the state, beginning in Texas, who were harmed by medical error. Before its development, there was no organization anywhere on behalf of the patient. Deirdre shares the story of perseverance that kept her daughter with CHARGE Syndrome alive for 22 years and the tragedy that took her life as written in her memoir “Momma Please Help Me,” entitled with Jocelyn’s final words. To date, not enough attention has been brought to the issue of medical error and negligence. Practitioners are urged to do no harm and to speak out against systemic and individual incidents of negligence. In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Deirdre Gilbert, National Director of the NMMAA in Missouri City, TX, to discuss her personal and professional insights into the prevalence of medical error and negligence. Resources Mentioned in this Episode: National Medical Malpractice Advocacy Association - https://www.nmmaa.org/ Consumer Watchdog - https://www.consumerwatchdog.org/ Jocelyn Y. Dickson Foundation - https://www.jocelyndickson.com/about_us

Deirdre Gilberts is a patient's rights advocate, author, entrepreneur, and writer. She serves as founder and National Director of the National Medical Malpractice Advocacy Association, created in 2011 due to her daughter Jocelyn's death by medical error. Deirdre activates high standards of ethics and morality to ensure non-abuse of the powers entrusted to the medical profession by the American people. The repeated refusal to take constitutional safeguards that protect individuals from immoral equality has been the defining reason for her running for Governor of Texas. Born and raised in Houston, she has earned her M.A. in Educational Administration and B.S. in Political Science and Mass Communication from Prairie View A&M University. Here’s a glimpse of what you’ll learn: · Development and charge of the National Medical Malpractice Advocacy Association · Beloved Jocelyn Y. Dickson’s story of medical error · Misinformation of the Tort Reform bill · Advice to patients and families who are victims of medical error · Advice to providers to engage patients and address medical negligence In this episode... The National Medical Malpractice Advocacy Association (NMMAA) is a nonprofit organization whose work centers around education and activism throughout the US. NMMAA was created for citizens of the state, beginning in Texas, who were harmed by medical error. Before its development, there was no organization anywhere on behalf of the patient. Deirdre shares the story of perseverance that kept her daughter with CHARGE Syndrome alive for 22 years and the tragedy that took her life as written in her memoir “Momma Please Help Me,” entitled with Jocelyn’s final words. To date, not enough attention has been brought to the issue of medical error and negligence. Practitioners are urged to do no harm and to speak out against systemic and individual incidents of negligence. In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Deirdre Gilbert, National Director of the NMMAA in Missouri City, TX, to discuss her personal and professional insights into the prevalence of medical error and negligence. Resources Mentioned in this Episode: National Medical Malpractice Advocacy Association - https://www.nmmaa.org/ Consumer Watchdog - https://www.consumerwatchdog.org/ Jocelyn Y. Dickson Foundation - https://www.jocelyndickson.com/about_us

Bio: Deirdre Gilberts is a patient's rights advocate, author, entrepreneur, and writer. She serves as founder and National Director of the National Medical Malpractice Advocacy Association, created in 2011 due to her daughter Jocelyn's death by medical error. Deirdre activates high standards of ethics and morality to ensure non-abuse of the powers entrusted to the medical profession by the American people. The repeated refusal to take constitutional safeguards that protect individuals from immoral equality has been the defining reason for Deirdre's running for Governor of Texas. Born and raised in Houston, she has earned her M.A. in Educational Administration and B.S. in Political Science and Mass Communication from Prairie View A&M University. Here's a glimpse of what you'll learn: · Deirdre's motivations for running for Governor of Texas · The relationship between health policy and government to healthcare · How patients can become more involved in health policy · The Greater National Advocates resource founded by L. Bradley Schwartz · Public Readiness and Emergency Preparedness (PREP) Act and limitations on health systems' legal liability during the COVID-19 pandemic In this episode... The United States has no constitutional safeguards that protect individuals from immoral equality in healthcare systems. Many healthcare policies support systemic racism and have lasting effects on medical injustices. Thus, who is elected to office and the decisions they make directly affect healthcare outcomes. Deirdre shares that she is running for Governor of Texas in honor of her daughter Jocelyn and ensuring accountability for medical negligence. Having the informed consent of our health keeps us healthy, and community partnerships with hospitals are pivotal for holding health systems accountable. Given that medical injustices come about when patients' medical records are inaccessible, patients are encouraged to converse with legislative leaders, ask physicians questions, and educate themselves with available information. In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Deirdre Gilberts, National Director of the NMMAA in Missouri City, TX, to discuss efforts to defend safeguards that prevent harm from medical error. Resources Mentioned in this Episode: National Medical Malpractice Advocacy Association - https://www.nmmaa.org/ The Greater National Advocates - https://www.gnanow.org/ Congressional Research Service's report on the Prep Act - https://crsreports.congress.gov/product/pdf/LSB/LSB10443 Prep Act - https://www.congress.gov/109/plaws/publ148/PLAW-109publ148.pdf#page=140

Bio: Deirdre Gilberts is a patient's rights advocate, author, entrepreneur, and writer. She serves as founder and National Director of the National Medical Malpractice Advocacy Association, created in 2011 due to her daughter Jocelyn's death by medical error. Deirdre activates high standards of ethics and morality to ensure non-abuse of the powers entrusted to the medical profession by the American people. The repeated refusal to take constitutional safeguards that protect individuals from immoral equality has been the defining reason for her running for Governor of Texas. Born and raised in Houston, she has earned her M.A. in Educational Administration and B.S. in Political Science and Mass Communication from Prairie View A&M University. Here's a glimpse of what you'll learn: · Development and charge of the National Medical Malpractice Advocacy Association · Beloved Jocelyn Y. Dickson's story of medical error · Misinformation of the Tort Reform bill · Advice to patients and families who are victims of medical error · Advice to providers to engage patients and address medical negligence In this episode... The National Medical Malpractice Advocacy Association (NMMAA) is a nonprofit organization whose work centers around education and activism throughout the US. NMMAA was created for citizens of the state, beginning in Texas, who were harmed by medical error. Before its development, there was no organization anywhere on behalf of the patient. Deirdre shares the story of perseverance that kept her daughter with CHARGE Syndrome alive for 22 years and the tragedy that took her life as written in her memoir “Momma Please Help Me,” entitled with Jocelyn's final words. To date, not enough attention has been brought to the issue of medical error and negligence. Practitioners are urged to do no harm and to speak out against systemic and individual incidents of negligence. In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Deirdre Gilbert, National Director of the NMMAA in Missouri City, TX, to discuss her personal and professional insights into the prevalence of medical error and negligence. Resources Mentioned in this Episode: National Medical Malpractice Advocacy Association - https://www.nmmaa.org/ Consumer Watchdog - https://www.consumerwatchdog.org/ Jocelyn Y. Dickson Foundation - https://www.jocelyndickson.com/about_us

Kiva Harper is a Licensed Clinical Social Worker and Clinical Director of Harper Counseling and Consulting Services, PLLC, in Arlington, Texas. Kiva is passionate about dispelling community stigma and offering highly personalized treatment to clients as a trauma-focused therapist. Her supporting specialties include depression and anxiety, conflict resolution, stress management, and career-related issues. Kiva also serves as an Associate Professor in Practice in the School of Social Work at the University of Texas at Arlington, where she earned her MSSW.    Here's a glimpse of what you'll learn: • The prevalence of mental illness and stigma within the Black community • The rise of Black youth suicide completion • Impact of COVID-19 on Black youth and mental health resource usage • The necessity of diverse representation in mental health care • Mistrust towards health systems historically made to operate against Black populations In this episode… Black populations are disproportionately incarcerated and likely to live below poverty lines. Similarly, Black people are disproportionately affected by mental health issues.   During the pandemic, many people have been experiencing isolation, loss, grief, anxiety, and financial stress. Children of the current generation operate under a heavy load as they cope with personal COVID-19 impact and attend school with limited academic and social development access.   Here and now, there is a dire need to turn to mental health resources and dispel stigma. Notably, however, Black populations' already limited access to healthcare has been further hindered by obstacles resulting from COVID-19. Historically, systems have not been designed to cater to Black people, and in many ways, this contributes to hesitancy around seeking mental health support.   In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Kiva Harper, Licensed Clinical Social Worker and Clinical Director of Harper Counseling and Consulting Services, PLLC, in Arlington, Texas, to discuss the prevalence of mental health disparities amongst the Black community.   Resources Mentioned in this Episode Traumatic grief training will be led by Kiva Harper and introduced to social media on September 30th. https://www.linkedin.com/in/kiva-harper-lcsw-s-she-her-8a7b7057 https://instagram.com/kivatharper?utm_medium=copy_link

Kiva Harper is a Licensed Clinical Social Worker and Clinical Director of Harper Counseling and Consulting Services, PLLC, in Arlington, Texas. Kiva is passionate about dispelling community stigma and offering highly personalized treatment to clients as a trauma-focused therapist. Her supporting specialties include depression and anxiety, conflict resolution, stress management, and career-related issues. Kiva also serves as an Associate Professor in Practice in the School of Social Work at the University of Texas at Arlington, where she earned her MSSW. Here’s a glimpse of what you’ll learn: • The prevalence of mental illness and stigma within the Black community • The rise of Black youth suicide completion • Impact of COVID-19 on Black youth and mental health resource usage • The necessity of diverse representation in mental health care • Mistrust towards health systems historically made to operate against Black populations In this episode… Black populations are disproportionately incarcerated and likely to live below poverty lines. Similarly, Black people are disproportionately affected by mental health issues. During the pandemic, many people have been experiencing isolation, loss, grief, anxiety, and financial stress. Children of the current generation operate under a heavy load as they cope with personal COVID-19 impact and attend school with limited academic and social development access. Here and now, there is a dire need to turn to mental health resources and dispel stigma. Notably, however, Black populations' already limited access to healthcare has been further hindered by obstacles resulting from COVID-19. Historically, systems have not been designed to cater to Black people, and in many ways, this contributes to hesitancy around seeking mental health support. In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Kiva Harper, Licensed Clinical Social Worker and Clinical Director of Harper Counseling and Consulting Services, PLLC, in Arlington, Texas, to discuss the prevalence of mental health disparities amongst the Black community. Resources Mentioned in this Episode Traumatic grief training will be led by Kiva Harper and introduced to social media on September 30th. https://www.linkedin.com/in/kiva-harper-lcsw-s-she-her-8a7b7057 https://instagram.com/kivatharper?utm_medium=copy_link

Kiva Harper is a Licensed Clinical Social Worker and Clinical Director of Harper Counseling and Consulting Services, PLLC, in Arlington, Texas. Kiva is passionate about dispelling community stigma and offering highly personalized treatment to clients as a trauma-focused therapist. Her supporting specialties include depression and anxiety, conflict resolution, stress management, and career-related issues. Kiva also serves as an Associate Professor in Practice in the School of Social Work at the University of Texas at Arlington, where she earned her MSSW. Here’s a glimpse of what you’ll learn: • The prevalence of mental illness and stigma within the Black community • The rise of Black youth suicide completion • Impact of COVID-19 on Black youth and mental health resource usage • The necessity of diverse representation in mental health care • Mistrust towards health systems historically made to operate against Black populations In this episode… Black populations are disproportionately incarcerated and likely to live below poverty lines. Similarly, Black people are disproportionately affected by mental health issues. During the pandemic, many people have been experiencing isolation, loss, grief, anxiety, and financial stress. Children of the current generation operate under a heavy load as they cope with personal COVID-19 impact and attend school with limited academic and social development access. Here and now, there is a dire need to turn to mental health resources and dispel stigma. Notably, however, Black populations' already limited access to healthcare has been further hindered by obstacles resulting from COVID-19. Historically, systems have not been designed to cater to Black people, and in many ways, this contributes to hesitancy around seeking mental health support. In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Kiva Harper, Licensed Clinical Social Worker and Clinical Director of Harper Counseling and Consulting Services, PLLC, in Arlington, Texas, to discuss the prevalence of mental health disparities amongst the Black community. Resources Mentioned in this Episode Traumatic grief training will be led by Kiva Harper and introduced to social media on September 30th. https://www.linkedin.com/in/kiva-harper-lcsw-s-she-her-8a7b7057 https://instagram.com/kivatharper?utm_medium=copy_link

Danielle Jones is the Director of Diversity and Health Equity at the American Academy of Family Physicians (AAFP). AAFP is a national membership organization that represents family doctors. It helps promote, support, and advance patient and community health. Danielle is a diversity, equity, and inclusion professional with skills in policy development and evaluation, strategic planning, public speaking, and project management and training. She possesses a track record of managing complex cross-functional projects in various environments. Danielle Jones holds a Ph.D. in Health Policy & Management from the University of Kansas Medical Center and a Master's of Public Health from the University of West Florida. In this episode… The medical field has a diverse workforce in terms of gender, race, sexual orientation, ethnicity, and geographical distribution. It also provides healthcare services to patients from diverse backgrounds and with different social statuses. Therefore, there is a need to provide as much education and training as possible about diversity and inclusion. In a bid to promote diversity, equity, and inclusion in the medical community, the American Academy of Family Physicians (AAFP) advocates for healthy policies all over the country. They help support healthy lifestyles by providing education and practice tools to both healthcare practitioners and local communities. They also promote interdisciplinary collaboration and organize events to provide better medical education to the community. In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Danielle Jones, the Director of Diversity and Health Equity at the American Academy of Family Physicians (AAFP), to talk about the organization's work in promoting diversity, equity, and inclusion in the medical community. They also discuss AAFP's EveryONE Project, FMX event, and the EveryONE Project Neighborhood Navigator tool.

Precious McCowan is a National PFE, which is a Personal Family Engagement champion. Precious is a two-time kidney transplant recipient, and since 2015, has been a patient advocate for End-Stage Renal Disease at the ESRD Network 14. In 2020, she became a member at large for the Kidney Transplant Committee, and she takes part in the eGFR workgroup. In this episode… Receiving a diagnosis can be disheartening. Precious McCowan had graduated college, started a new career, and began a family when she was diagnosed with End-Stage Renal Disease (ESRD). She's here to share how she motivated herself and became a shining light for those with ESRD. Precious began dialysis without understanding the process, and she became out of tune with her health. After slipping into depression, Precious decided that she was going to turn her mindset around. She researched her illness, directed questions toward her healthcare providers, and became an advocate for herself. Now, she's helping others do the same. In this episode of Patient Partner Innovation Community Podcast, Desiree Bradley sits down with Precious McCowan, National Personal Family Engagement champion, to discuss her journey through End-Stage Renal Disease. Precious talks about patient advocacy, the mentorship programs and campaigns she's created, her advice to those coping with an illness, and more. You don't want to miss this insightful episode!

Dr. Knitasha Washington is the President and Founder of ATW Health Solutions, an advisory firm that provides professional services to organizations and government agencies committed to transforming healthcare delivery. Dr. Washington has 20 years of experience in the healthcare field. She has extensive knowledge of strategies to advance innovation and improve outcomes through community engagement, patient engagement, and stakeholder alignment. Dr. Washington is dedicated to radical change in the healthcare industry, working to improve its quality for everyone. Desiree Bradley is the Co-host of the Patient Partner Innovation Community Podcast. Desiree has been involved in patient-centered research for many years and served as a Patient-Centered Outcome Research Institute (PCORI) Ambassador. She is also a National Faculty Member for the Transforming Clinical Practice Initiative (TCPI) and hopes to drive change and produce positive patient outcomes. In this episode… The healthcare system has its limitations, including the inability to focus on eliminating health disparities. On top of that, funding is the primary driver of power in healthcare. So, how can we work towards change and put the focus on patients, families, and their communities? For Dr. Knitasha Washington and Desiree Bradley, equity is their top priority. And according to Dr. Washington, every single organization can make a meaningful impact towards a more equitable system. But where do you begin? Dr. Washington, Desiree Bradley, and the team at ATW Health Solutions can point you in the right direction. In this episode of the Patient Partner Innovation Community Podcast, Rise25 Co-founder Dr. Jeremy Weisz speaks with Co-hosts Dr. Knitasha Washington and Desiree Bradley about their approach toward a patient-centered healthcare system. They discuss the disparities within the system, how they help other organizations develop strategies for change, and how they're working to create a system that is meaningful to providers, patients, and caregivers. Stay tuned!

Lisa Sloane is the Founder and CEO of More Inclusive Healthcare (MIH), a social enterprise that helps healthcare organizations provide more culturally responsive care. Through training and consultation, MIH is working to deliver equitable healthcare for all patients — no matter their race, gender, age, sexual orientation, or gender identity. In addition to this, Lisa chairs the Diversity, Equity, and Inclusion Committee for The Ohio State University's Health Services Management & Policy Alumni Society. She is also a member of the Queen City Chapter of The Links, Incorporated. In this episode… Why is it so important for hospitals to collect real data from their patients? And, is the healthcare system currently collecting the right data, in the right way? For years, the healthcare system in the US has not been effectively gathering data about patients' demographics, disability status, gender identity, sexual orientation, or veteran status. Very few hospitals train their staff on the right way to collect this data, which often leaves patients feeling defensive and vulnerable. Unfortunately, this leads to more disparities in patient care. So, what can healthcare systems do to start combating these disparities and collecting patient data in a more effective way? In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Lisa Sloane, the Founder and CEO of More Inclusive Healthcare, to talk about the importance of collecting and sharing health data. Lisa talks about some common disparities in patient care, the importance of engaging with patients in the right way, and what healthcare systems need to know about data collection. Stay tuned.