Podcasts about frontotemporal dementia ftd

This week's episode dives into the legal side of family dynamics with Elder Law Attorney Jerry Rothkoff. We cover all of our burning legal questions - from POA to Guardianship to Medicaid and Medicare. Jerry gives lots of wisdom on how family dynamics play a role in his job and how he navigates it all.We want to thank Jerry for coming on the podcast but also for supporting our community with so much care and compassion. You can learn more about Rothkoff Law Group here.The association Jerry mentions in today's episode is the Life Care Planning Law Firms Association,  https://www.lcplfa.org/Special thank you to today's sponsor ⁠AVIADOBIO⁠.An extended version of this episode is available now on ⁠⁠⁠Patreon⁠⁠⁠ - join us ⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠ - you get exclusive content and it's a great way to support the show!If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

Our inaugural in-law guest on the podcast, Amber, eloquently discusses her experiences as a mother, wife, and caregiver to her father-in-law, Robert. She covers a range of topics, from navigating Medicaid to ensuring Robert's safety—not only in a physical sense but also on social media. It's clear that she has truly gone above and beyond in her role. We thoroughly enjoyed our conversation with Amber and can't wait to hear your thoughts!---Special thank you to today's sponsor AVIADOBIO.An extended version of this episode is available now on ⁠⁠Patreon⁠⁠ - join us ⁠⁠www.patreon.com/remembermecommunity⁠⁠ - you get exclusive content and it's a great way to support the show!If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠, all the latest updates! ------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

Christy found a way to navigate her father's FTD diagnosis with poise -- From fighting for a diagnosis to navigating 4 different Memory Care facilities... Christy seemed to go above and beyond to provide the best loving care for her dad. What was so apparent to us - was how naturally she adapted to his reality - always keeping his personhood at the forefront of her mind. But it was not without so much sacrifice and grief - sharing how deeply the disease impacted her family. But ultimately we saw Christy's story as the most amazing example for her children of devotion and service - and what we do for the people we love.Thank you for sharing your story with us, Christy. You are an amazing daughter + advocate.An extended version of this episode is available now on ⁠Patreon⁠ - join us ⁠www.patreon.com/remembermecommunity⁠ - you get exclusive content and it's a great way to support the show!If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠our website at⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠, all the latest updates! ------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

Today's episode feels like a conversation between 3 old friends. New friend, Genessee, openly shares her unique experience with her mother's complex mental health issues and her eventual diagnosis of frontotemporal dementia (FTD). For the first time we really dive into the topic of infertility -- and what it's like to navigate a fertility journey alongside the grief and challenges having a loved one with FTD. We loved this conversation - and the special peice of Holly at the end. Thank you, Genessee for sharing your story with us!An extended version of this episode is available now on Patreon - join us www.patreon.com/remembermecommunity - you get exclusive content and it's a great way to support the show!If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠Instagram, and visit ⁠our website at⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠, all the latest updates! ------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

Continuing on our theme of family dynamics - a long-time listener and friend of the podcast, CJ, comes forward to share her story. We talk a lot about navigating motherhood alongside her father Russ' FTD journey, with all the family dynamics and challenges that come along the way. CJ tells her story with so much love and honesty, it is sure to touch your heart. Thank you, CJ, for sharing your story with us.If you're curious about anything RM, we'd love to connect with you on ⁠⁠PATREON⁠⁠, our website at⁠⁠ www.remembermeftd.com⁠⁠, or on Instagram for all the latest updates!Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

“I was in therapy, that was a lifeline.” - Allyson SchrierThis is a powerful one! Natalie and JJ sit down with Allyson Schrier as she opens up about her deeply personal and emotional journey caring for her husband, who was diagnosed with Frontotemporal Dementia (FTD).Allison candidly shares the early signs of FTD, the heartbreaking misdiagnosis, and the uphill battle of navigating a complex healthcare system. From the shifting family dynamics to the emotional weight of caregiving, this conversation pulls back the curtain on what it really means to care for a loved one with dementia.

A young son and family member from NYT Magazine's “The Vanishing Family” speaks with us on today's episode. In what may be one of our most powerful interviews, Ansel shares the origins of his mother Peggy's journey with FTD and their family's discovery of the MAPT FTD mutation through their incredible efforts to contribute to FTD research. You can read Ansel's recent piece A Hand of Poker and Our Family Curse published in Medium here. Learn more about Ansel's advocacy at CureMAPTFTD ⁠here⁠.Thank you, Ansel for sharing your story with us.------If you're curious about anything RM, we'd love to connect with you on ⁠PATREON⁠, our website at⁠ www.remembermeftd.com⁠, or on Instagram for all the latest updates!Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

A beautiful blended family-- Janet's husband Mike was diagnosed with FTD during the pandemic -- and she shares with us how she navigates the heartache and grief through the beautiful blended family her and Mike formed together. Janet thought it was important this season featured a story of how families can come together too -- and we're so glad. Thank you, Janet for sharing your story with us and the whole RM community.If you're curious about anything RM, we'd love to connect with you on ⁠PATREON⁠, our website at⁠ www.remembermeftd.com⁠, or on Instagram for all the latest updates!Thinking about joining our Family Dynamics class in May? We'd be happy to chat—just drop us an email at hello@remembermeftd.com for more details.Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

In this powerful and deeply personal episode of Connected Parenting, I sit down with Sonia Cacciacarro —registered psychotherapist and member of the Connected Parenting team—for an honest and compassionate conversation about grief, loss, and how to talk to children about death and dying.Sonia shares her journey from fitness expert and mom of three to psychotherapist, and how her husband's diagnosis and passing from FTD and ALS shaped her passion for helping families navigate bereavement and loss. Together, we explore why our culture struggles with death, why it's so hard for parents to talk about it with their kids, and how we can support our children (and ourselves) through the grieving process.Whether you're walking through grief right now or want to build the emotional resilience your child will one day need, this episode offers deep insights, practical strategies, and loving support for some of life's hardest moments.Jennifer's Takeaways:Sonia's Journey into Grief and Death Counseling (02:38)The Importance of Talking About Death and Dying (04:14)Children's Understanding and Coping with Death (16:48)Navigating Social Interactions and Support Systems (17:09)The Role of Empathy and Sympathy in Grief (17:30)Preparing Children for Future Losses (18:37)The Impact of Cultural and Personal Beliefs on Grief (20:10)Conclusion and Final Thoughts (27:30)Meet Sonia Cacciacarro Sonia began her career in the health and fitness industry, working in corporate fitness and country clubs before launching her own fitness consulting and personal training business. After becoming a mother of three, she transitioned to being a stay-at-home mom. This period of family life led her to a journey of self-discovery, ultimately guiding her to pursue a career in psychotherapy.Sonia became a Registered Psychotherapist in 2016, founding her own private practice, and joined the Connected Parenting team in 2018, where she works with children, teens, adults, couples, and families. In April 2021, Sonia's life took a dramatic turn when her husband was diagnosed with Frontotemporal Dementia (FTD) and ALS. She took a break from her practice to care for him until he died in October 2022. Sonia credits her education, work experience, and personal resilience for helping her navigate this challenging period. Now, her professional focus has expanded to helping families cope with grief, bereavement, death, and dying.Website: https://therapybysonia.ca/Instagram: https://www.instagram.com/therapybysonia/Facebook: https://www.facebook.com/profile.php?id=100063605529221#LinkedIn: https://www.linkedin.com/in/sonia-cacciacarro-275292127/Meet Jennifer KolariJennifer Kolari is the host of the “Connected Parenting” weekly podcast and the co-host of “The Mental Health Comedy” podcast. Kolari is a frequent guest on Nationwide morning shows and podcasts in th US and Canada. Her advice can also be found in many Canadian and US magazines such as; Today's Parent, Parents Magazine and Canadian Family.Kolari's powerful parenting model is based on the neurobiology of love, teaching parents how to use compassion and empathy as powerful medicine to transform challenging behavior and build children's emotional resilience and emotional shock absorbers.Jennifer's wisdom, quick wit and down to earth style help parents navigate modern-day parenting problems, offering real-life examples as well as practical and effective tools and strategies.Her highly entertaining, inspiring workshops are shared with warmth and humour, making her a crowd-pleasing speaker with schools, medical professionals, corporations and agencies throughout North America, Europe and Asia.One of the nation's leading parenting experts, Jennifer Kolari, is a highly sought- after international speaker and the founder of Connected Parenting. A child and family therapist with a busy practice based in San Diego and Toronto, Kolari is also the author of Connected Parenting: How to Raise A Great Kid (Penguin Group USA and Penguin Canada, 2009) and You're Ruining My Life! (But Not Really): Surviving the Teenage Years with Connected Parenting (Penguin Canada, 2011).

We plunge head first into family dynamics with our extraordinary guest, Niki. Niki shares the story of her father, Dominic, detailing his journey with FTD - including the difficulties of balancing the reality and gravity of the diagnosis alongside the overwhelming decisions for his care. All while navigating family conflicts, and of course, the emotional and psychological toll it takes. Niki talks all about her journey as a new mom and new entrepreneur while navigating it all. We bond over the survival mode of it all - and learning how to trust your gut, establish boundaries, and find your "people". Thank you to Niki for sharing your story with us and the whole RM community.If you're curious about anything RM, we'd love to connect with you on PATREON, our website at www.remembermeftd.com, or on Instagram for all the latest updates!Thinking about joining our Family Dynamics class in May? We'd be happy to chat—just drop us an email at hello@remembermeftd.com for more details.Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

Send us a textWendy Williams "You Know What I Mean"Wendy Williams & Guardianship ControversyKey Points:Wendy's Call to Charlamagne Tha God: Wendy Williams called into his radio show, stating she is not cognitively impaired but is being held in a facility.Facility Details: She has been in a New York assisted living facility (5th-floor memory care unit) for 8 months. She can make calls but cannot receive them. No access to a cell phone, computer, or iPad.Guardianship Concerns:GinaLisa Monterroso (Connect Care Advisory Founder) questions why Wendy is under guardianship, stating no professional has assessed her condition.Rosanna Scotto (News Anchor & Friend) has seen Wendy at her worst but believes she is at her best now and should not be in a locked facility.Alex Finne (Wendy's Niece): Thought Wendy was moving into an apartment in NYC. She is now isolated and trying to share her story.Financial Issues & Guardianship Origins:Wendy's son, Kevin Hunter Jr., mismanaged her money, including spending $113,000 on a boat.Wells Fargo froze her accounts after failing to contact her, triggering the guardianship.Legal Battle: No clear explanation for why Wendy remains under guardianship for three years.Judicial & Guardian Actions:The judge authorized Wendy's guardian to profit from her assets.Documents are sealed, and Wendy has never been reassessed.A lawsuit with Lifetime & A&E may be restricting her communication.Cognitive Health Debate:Wendy was reportedly drinking heavily during her documentary.Diagnosed with aphasia and possible Frontotemporal Dementia (FTD), but experts suggest alcohol-induced dementia could be reversible.She hasn't seen a doctor in over 18 months.Wendy's Mental & Emotional State:Friends and family claim she sounds like her old self.She wants her freedom back and someone else to manage her money.Wants to visit her 94-year-old father in Miami, which she finally did on February 15th.Recent Interview (Jan 20th) with Harvey Levin:Wendy displayed sharp memory, recalling Donald Trump as the 47th president and past encounters with celebrities.Made comments about Diddy ("prison for life") and JLo ("a good girl until she's not").Talked about relationships, cheating, and wanting to date again in NYC. Court Decision (Sept 2024):The judge ruled her son cannot manage her finances, but a new guardian is yet to be assigned.TakeawaysWendy Williams feels trapped and imprisoned in her current situation.There are concerns about her mental health and possible misdiagnosis.Family dynamics play a significant role in Wendy's life and decisions.The conservatorship has raised questions about her autonomy and rights.Wendy's cognitive state appears to be better than previously reported.The importance of having a sober coach for recovery is emphasized.Wendy's son has been involved in questionable financial decisions.The role of care managers is crucial in ensuring proper healthcare.There is a significant concern about the motivations of those around Wendy.Support the showhttps://www.wewinewhenever.com/

Surprise... another BONUS ep! The grief convo in Season 9, we felt, really needed to include the genetic piece of this disease, and so we are HONORED to have Erynn Gordon - a board certified genetic counselor with 20 years of clinical, research, and industry experience with us to dive into this topic. Erynn SO thoughtfully breaks down genetics and testing and chats with us all about a new resource the Progranulin Information Navigator. Let us know what you think of this bonus episode and please check out our sponsor ⁠⁠⁠⁠⁠⁠PROGRANULIN INFORMATION NAVIGATOR⁠⁠⁠⁠⁠⁠ A resource for FTD clinical trial and genetic testing info. For all things Remember Me, visit remembermeftd.com For bonus content + connection, join us on Patreon www.patreon.com/remembermecommunity --- Remember Me is a podcast that shares stories of people with Frontotemporal Dementia (FTD) and their loved ones. The podcast's goal is to help people accept the good in life and to remember the people they love for who they were before the disease. 

Katie's mom was just 62 when she was diagnosed with frontotemporal dementia.  The diagnosis catapulted her family into the world of caregiving and learning about this lesser known form of dementia.  Katie Prentiss is an award winning actress and filmmaker.  She is currently working on a feature film called “Wake Up Maggie” which is a love letter to her mom.  You can reach Katie at her website https://www.katieprentiss.com or Instagram @wakeupmaggiemovie.  You can also help Katie raise FTD awareness by supporting her go fund me.  Some of the highlights Katie shares:Frontotemporal dementia [FTD] is a lesser known type of dementia that is often misdiagnosed as depression, menopause, alcoholism, or delusional disorderThe unusual symptoms of FTD - this is not like the typical memory loss of Alzheimer's FTD is the most common type of dementia for people under 65The reality of saying a "slow goodbye" to someone you loveThe reality of being catapulted into caregivingWhy we need additional research about FTDRaising awareness through filmThe concept of "unraveling" by peeling back the layers that don't serve us anymore - becoming more authenticLearning to focus on what we can control Dealing with caregiver guiltFeeling overwhelmed as a caregiverLearning to be compassionate with yourself as a caregiverAcceptance is where peace liesLiving with the thought, "What if it happens to me"Living a life filled with peace and fulfillment rather than fear and regretAnd morePlease share, subscribe, leave a rating and review, visit the Linda's Corner website at lindascornerpodcast.com and/or follow on youtube, facebook, instagram, and pinterest @lindascornerpodcast. Thanks!Also please visit the Hope for Healing website at hopeforhealingfoundation.org for free resources to increase happiness, build confidence and self esteem, improve relationships, manage stress, and calm feelings of depression and anxiety.   Become the champion of your own story as you overcome your challenges.  

Frontotemporal Dementia (FTD) is a younger-onset form of dementia often mistaken for Alzheimer's disease. Join me and my guests Sharon Hall and Amy Johnson for a candid discussion about their life-changing journeys having spouses diagnosed with this common form of dementia. Their stories will inspire you!

The most common type of dementia is Alzheimer's disease, and we hear a lot about it. However, there are several types of dementia less likely to get the spotlight, but that still impact hundreds of thousands of individuals and their families. Join this webinar for an exploration of the lesser-known dementias. In this episode, we'll navigate the complexities of Lewy Body Dementia (LBD), Frontotemporal Dementia (FTD), Vascular Dementia, and Mixed Dementia. Listen to this podcast to gain a deeper understanding of the unique challenges and characteristics associated with each type, so you are empowered to enhance care and support for individuals affected by these various forms of dementia.

In this episode of the Life Science Success Podcast, host Don Davis, PhD, MBA, interviews Dr. William Chou of Passage Bio. Dr. Chou discusses his transition from a practicing physician to a leader in biotechnology, reflects on the profound patient relationships he misses, and shares insights into Passage Bio's work on gene therapy for neurodegenerative diseases like Frontotemporal Dementia (FTD). They delve into the progress of their Phase 1/2 clinical study, the urgency of developing treatments for genetic mutations, and the potential impact on patients and their families.   Learn about the most recent developments and how Passage Bio is working to give those suffering from these life-threatening conditions hope.   00:00 Welcome and Introduction 00:25 William's Journey into Life Sciences 01:30 The Emotional Impact of Leaving Clinical Practice 02:31 Overview of Passage Bio 02:52 Understanding Frontotemporal Dementia (FTD) 06:38 Current Progress and Future Prospects 10:04 The Urgency and Hope for FTD Treatments 11:37 Goals and Closing Remarks

Ask Your Mentor Podcast, from Dementia Researcher, in association with Alzheimer's Research UK (ARUK). Mentees interviewing their mentors, talking careers, lessons learned and what they've discovered, that could help you forge a successful career in dementia research. In this podcast Research Assistant Shania Ibarra from University of Oxford, interviews her mentor Dr Aitana Sogorb-Esteve, Race Against Dementia / ARUK Research Fellow from University College London. Shania is currently a Research Assistant in the Oxford Drug Discovery Institute, University of Oxford, however she will soon be started a PhD. Her current work focusses on a project that aims to discover small molecules that modulate the neuroinflammatory pathway. Prior to this, she graduated from the University of Bath with a BSc in Biomedical Sciences. As part of her degree, she completed a year in industry at the UCL Drug Discovery Institute where she helped to develop a triculture model using primary rat neurons, astrocytes and microglia. Aitana is a UK Dementia Research Institute (UKDRI) Emerging Leader with a Race Against Dementia (RAD) Fellowship – jointly sponsored by Prof Jonathan Rohrer and Professor Henrik Zetterberg. Her work has mainly focused on the study of novel fluid biomarkers for Alzheimer's Disease, such as those related to pathology or neuroinflammation. Most recently she has been working as a postdoctoral researcher in Prof Jonathan Rohrer's lab at the Dementia Research Centre at UCL studying fluid biomarkers in Frontotemporal Dementia (FTD) as part of the Genetic FTD Initiative (GENFI). Find out more about Alzheimer's Research UK and how they support early career researchers on their website: ⁠https://www.alzheimersresearchuk.org/research/for-researchers/ecr/ Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to listen rather than watch, you'll find a video version of this podcast at https://youtu.be/-OIn9bgfCF8 This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. --- Send in a voice message: https://podcasters.spotify.com/pod/show/askyourmentor/message

Link to bioRxiv paper: http://biorxiv.org/cgi/content/short/2023.07.04.547658v1?rss=1 Authors: Hernandez-Diaz, S., Martinez-Olondo, P., Sanchez-Mirasierra, I., Montecinos-Oliva, C., Ghimire, S., Soukup, S. Abstract: Synapses are specialized neuronal compartments essential for brain communication. Neuronal communication mostly relies on the adequate supply and renovation of synaptic vesicles that fuse with the plasma membrane and release neurotransmitters in response to action potentials. Autophagy is an evolutionary conserved cellular mechanism essential for homeostasis that can be locally regulated in the neuronal synapse. However, the precise mechanisms controlling synaptic autophagy, especially during neuronal communication and pathological scenarios, remain elusive. Here, we report that neuronal activity and amino-acid deprivation regulate synaptic autophagy via distinct molecular mechanisms. We show that Synaptogyrin, a highly abundant presynaptic protein found in synaptic vesicles, is a novel negative regulator of synaptic autophagy in response to neuronal activity without affecting autophagy induction via amino-acid deprivation. We demonstrate that loss of Synaptogyrin modifies the localization of the autophagy protein Atg9 and boosts autophagosome formation at the synapse. Furthermore, activation of synaptic autophagy by loss of Synaptogyrin, but not by amino acid deprivation, leads to the degradation of synaptic vesicle components via autophagy. Reducing the levels of Synaptogyrin results in the degradation of synaptic TAU via autophagy and restores autophagy dysfunction observed in a Drosophila Tau model of Frontotemporal Dementia (FTD). Our data provide novel and valuable information to understand how autophagy is regulated at the synapse in response to neuronal activity and how this process participates in neuronal (dys)function. Copy rights belong to original authors. Visit the link for more info Podcast created by Paper Player, LLC

Dr Chris Henstridge, narrates his blog written for Dementia Researcher. It's Motor Neurone Disease Awareness Week, and in this blog Chris discusses the significance of synapse loss in Frontotemporal Dementia (FTD) and Motor Neuron Disease (MND), highlighting the overlap in cognitive decline and similar brain changes observed in both diseases. He explores the link between synapse loss, cognitive decline, and the presence of disease-associated proteins, such as TDP-43, in the brain, emphasizing the importance of collaborative research and understanding commonalities between different neurodegenerative diseases for advancements in treatment and improving the quality of life for patients. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/guest-blog-fading-stars-disorder-in-the-galaxy-of-the-brain/ -- Dr Chris Henstridge is a Principle Investigator at University of Dundee. Chris studies anatomical and molecular changes in the human synapse, with a particular focus on Motor Neuron Disease (MND). Chris grew up on the far north coast of Scotland and that beautiful location instilled his interest in nature and biology. He completed his PhD in Dundee, then spent time in Budapest and other parts of Scotland, before returning to Dundee to establish his own lab. Enjoy listening and reading our blogs? We're always on the look out for new contributors, drop us a line and share your own research and careers advice dementiaresearcher@ucl.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support.

We close out season 7 with an update on FTD research from world renown neurologist Dr. Bradley Boeve. Dr. Boeve shares the importance advocacy and awareness in pushing research forward, and what he is hopeful is on the horizon for our community. If you've enjoyed this season, please connect with us on instagram @remembermepodcast, on our website. If you miss us in between seasons, consider supporting our podcast by joining ⁠Re-Members Only⁠. There are currently over 30 bonus episodes, events and more. --- Thank you to our sponsor of this episode and Season 7, ⁠LearnFTD⁠. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit ⁠LearnFTD.com⁠ for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on ⁠Facebook⁠ and ⁠Instagram⁠ @LearnFTD. --- ⁠Remember Me⁠ is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." "Always, always, accept the good." --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Rachael asks herself the question, "Do I want to know my genetic status?" Make sure you listen til the end for a very special clip... and tune in next week for our season finale with Dr. Brad Boeve. Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining ⁠Re-Members Only⁠! --- Thank you to our sponsor of this episode and Season 7, ⁠LearnFTD⁠. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit ⁠LearnFTD.com⁠ for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on ⁠Facebook⁠ and ⁠Instagram⁠ @LearnFTD. --- ⁠Remember Me⁠ is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." "Always, always, accept the good." --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

A physician shares his family's journey with FTD clinical trials. There are so many things to think about when getting involved in research and/or enrolling in a clinical trial, and this listener wanted to share his insight and learnings in case it could help other families navigate this journey. We are so thankful for his insight and his hope... and salute him for caring for so many members of his family with so much grace and positivity. Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining ⁠Re-Members Only⁠! --- Thank you to our sponsor of this episode and Season 7, ⁠LearnFTD⁠. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit ⁠LearnFTD.com⁠ for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on ⁠Facebook⁠ and ⁠Instagram⁠ @LearnFTD. --- ⁠Remember Me⁠ is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." "Always, always, accept the good." --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Our friend Lauren from across the pond joins us to share her mother Lesley's journey with FTD. Lauren takes us through the search for answers as to her mother's change in behavior - and the parts of her mothers life that made it hard to decipher what the culprit was. She also dives into her journey with genetic testing and the things she thinks about as she awaits her mother's results. Above all, Lauren beautifully illustrates her mother's profound love for her kids and grandkids -- and its clear to see THAT was the most important thing to Lesley. Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining ⁠Re-Members Only⁠! --- Thank you to our sponsor of this episode and Season 7, ⁠LearnFTD⁠. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit ⁠LearnFTD.com⁠ for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on ⁠Facebook⁠ and ⁠Instagram⁠ @LearnFTD. --- ⁠Remember Me⁠ is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." "Always, always, accept the good." --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Linde returns this week to dive into her journey with genetic testing following her mother Allison's passing. This may be one of the most raw conversations we've ever had on Remember Me. Thank you, Linde for being so vulnerable and honest. This episode is inspiring on so many levels -- and stay tuned for a very special letter at the end. Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining ⁠Re-Members Only⁠! --- Thank you to our sponsor of this episode and Season 7, ⁠LearnFTD⁠. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit ⁠LearnFTD.com⁠ for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on ⁠Facebook⁠ and ⁠Instagram⁠ @LearnFTD. --- ⁠Remember Me⁠ is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." "Always, always, accept the good." --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

And we're back with our 100th episode (!) of Remember Me with fierce FTD advocate and friend of the podcast, Linde. Linde bravely shares her mother Allison's journey with FTD. Linde covers it all -- the 7 year struggle to get a diagnosis and the 'treacherous' search for resources and support. But above all, Linde shares her love for her mom, and her determination to care for her in the best way she could. Stay tuned for next week's episode where Linde dives into more of her journey with genetic testing in "Allison, Pt. 2". Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining ⁠Re-Members Only⁠! --- Thank you to our sponsor of this episode and Season 7, ⁠LearnFTD⁠. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit ⁠LearnFTD.com⁠ for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on ⁠Facebook⁠ and ⁠Instagram⁠ @LearnFTD. --- ⁠Remember Me⁠ is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." "Always, always, accept the good." --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Laynie Dratch of Penn Medicine comes onto the podcast to answer all of our burning questions about working with a genetic counselor. We loved chatting with her so much that we may need to follow up with a part 2! Let us know what other questions you have for Laynie on our episode art on instagram @remembermepodcast. A list of resources mentioned in this episode are all linked here on our blog. Laynie Dratch, ScM, CGC is a genetic counselor in adult neurology at the University of Pennsylvania in Philadelphia, PA, specializing in Frontotemporal Degeneration (FTD) spectrum disorders.  She helps families with adult-onset conditions such as FTD, Amyotrophic Lateral Sclerosis (ALS), Alzheimer's Disease (AD), and others, navigate genetic testing options and cope with their diagnoses through research and clinical encounters. Her research interests include the lived experiences of individuals with or at risk of developing FTD, issues in predictive genetic testing, and genetic counseling access and service delivery. She is a co-founder of the annual Penn Familial FTD/ALS Conference, as well as the co-founder and chair of the ALS/FTD Working Group within the National Society of Genetic Counselors. Laynie graduated summa cum laude from Colgate University with a BA in neuroscience and a minor in psychology. She completed her master's in genetic counseling at the Johns Hopkins University and the National Institutes of Health. --- Thank you to our sponsor of this episode and Season 7, ⁠⁠LearnFTD⁠⁠. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit ⁠⁠LearnFTD.com⁠⁠ for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on ⁠⁠Facebook⁠⁠ and ⁠⁠Instagram⁠⁠ @LearnFTD. --- ⁠⁠Remember Me⁠⁠ is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." "Always, always, accept the good." --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Remember Sarah? The listener who inspired this season's theme? Today is her episode! This is a super-sized episode, because not only do we talk all about Sarah's mother Julie's journey with FTD, and the stories of Julie's life... but of course, Sarah also came to share her experience of investigating her genetic status. And as the incredible advocate she is - Sarah shares all the steps she took before getting tested in hopes that it will help educate others on the process. Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining ⁠Re-Members Only⁠! --- Thank you to our sponsor of this episode and Season 7, ⁠LearnFTD⁠. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit ⁠LearnFTD.com⁠ for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on ⁠Facebook⁠ and ⁠Instagram⁠ @LearnFTD. --- ⁠Remember Me⁠ is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." "Always, always, accept the good." --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

This week our guest Peggy openly shares the experience of living with the knowledge of testing positive for the Frontotemporal Degeneration (FTD) GRN mutation. Peggy always knew of a long family history of dementia, spanning back 3 generations... and shares her experience witnessing her father's journey with FTD. We get into Peggy's experience with research, her feelings around understanding her genetic status, and how she's bonded with her brothers over this shared experience. Wait til the end for a very special tribute to Peggy's father, Jerry! Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining ⁠Re-Members Only⁠! --- Thank you to our sponsor of this episode and Season 7, ⁠LearnFTD⁠. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit ⁠LearnFTD.com⁠ for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on ⁠Facebook⁠ and ⁠Instagram⁠ @LearnFTD. --- ⁠Remember Me⁠ is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." "Always, always, accept the good." --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Rachael shares her mother Mary's journey with FTD - Primary Progressive Aphasia - and also reveals her own personal journey of undergoing genetic testing and the brave steps she's taking to advance research. You do not want to miss this episode! Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining Re-Members Only! --- Thank you to our sponsor of this episode and Season 7, LearnFTD. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit LearnFTD.com for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on Facebook and Instagram @LearnFTD. --- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." "Always, always, accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Wanda chronicles her mother Sarah's dementia journey in the 1980s - receiving the (mis)diagnosis of Alzheimer's at the age of 52. Sarah went on to become somewhat of a poster child for early-onset Alzheimer's, being profiled in LIFE Magazine, only for her family to realize many years later that it was in fact Frontotemporal Dementia - and it was affecting many members of their large family. Listen to our very first story of the season told by this fierce and incredible FTD advocate, Wanda. Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining Re-Members Only! --- Thank you to our sponsor of this episode and Season 7, LearnFTD. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit LearnFTD.com for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on Facebook and Instagram @LearnFTD. --- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." "Always, always, accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Learn about the Disease Affecting Bruce WillisBruce Willis' family put out a statement about his diagnosis with Frontotemporal dementia we thought it would be a good time to talk about this disease. It is a complicated disease, so we divided our chat about this illness into two podcasts. This week we will talk about what frontotemporal dementia does to the body and next week we will explore management of it.In this Episode:02:28 - Aboriginal Death Customs06:30 - Recipe of the Week, Anzac Biscuits08:14 - Frontotemporal Dementia (FTD)25:11 - Nick Cave and the Red Hand Files28:56 - OutroPlease return next week for Part 2 in this series.Follow us on Facebook | Instagram | Email us at mail@every1dies.orgClick on this link to Rate and Review our podcast!

We're back for another season, and our main focus this season is GENETICS. In today's episode we dive into: - The latest news in the FTD world: Bruce Wills' diagnosis. - A recap of how Remember Me began, mostly for new listeners! - A window into what to expect this season. Thank you for listening - we can't wait to share this season with you! Stay in touch with us on instagram @remembermepodcast, on our website, or by joining Re-Members Only! --- Thank you to our sponsor of this episode and Season 7, LearnFTD. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit LearnFTD.com for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on Facebook and Instagram @LearnFTD. --- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." "Always, always, accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

After visiting five different doctors to finally get an accurate diagnosis of Frontotemporal Dementia (FTD), our guest Laurie Scherrer found herself feeling lost and hopeless. She felt invisible, alone, and unsure about the rest of her life. That is, until she took her diagnosis into her own hands and found resources, support, and a new outlook on her life. This conversation with Laurie will inspire anyone on the dementia journey to stop wasting time and start having a happy life.

Link to bioRxiv paper: http://biorxiv.org/cgi/content/short/2022.12.11.519991v1?rss=1 Authors: Narayanan, R., Panwar, A., Butler, T. J., Cutrupi, A. N., Kennerson, M., Vucic, S., Balasubramaniem, A., Mangelsdorf, M., Wallace, R. H. Abstract: Mutations in TDP-43 are known to cause Amyotrophic Lateral Sclerosis (ALS) and Frontotemporal Dementia (FTD). TDP-43 binds to and regulates splicing of several RNA including Zmynd11. Zmynd11 is a transcriptional repressor and a potential E3 ubiquitin ligase family member, known for its role in neuron and muscle differentiation. Mutations in Zmynd11 have been associated with autism with significant developmental motor delays, intellectual disability, and ataxia. Here, we show that Zmynd11 is aberrantly spliced in the brain and spinal cord of transgenic mice overexpressing a mutant human TDP-43 (A315T), and that these changes occur before the onset of motor symptoms. Copy rights belong to original authors. Visit the link for more info Podcast created by Paper Player, LLC

Sharon Hall, care partner, advocate for young onset dementia, talks with Caregiver SOS on Air co-hosts Carol Zernial, M.A., nationally known gerontologist, and award winning veteran broadcaster and attorney, Ron Aaron, about what everyone should know about Frontotemporal dementia (FTD) -- diagnosis, treatment, and managing the condition.

Sharon Hall, care partner, advocate for young onset dementia, talks with Caregiver SOS on Air co-hosts Carol Zernial, M.A., nationally known gerontologist, and award winning veteran broadcaster and attorney, Ron Aaron, about what everyone should know about Frontotemporal dementia (FTD) -- diagnosis, treatment, and managing the condition.See omnystudio.com/listener for privacy information.

Don't miss the chance to catch up with actress Martha Madison who joined me to discuss her role as “Belle Black Brady” on Days of Our Lives; a role she's played since 2004.Martha is a native of Newport News, VA and spent her formative years in Houston, TX. She graduated from Texas A&M University with a B.S. in Psychology before enrolling at the American Musical and Dramatic Academy in NYC to study musical theatre. Martha has also appeared on hit TV shows “One Mississippi,” “Criminal Minds,” and “Law and Order: Criminal Intent” as well as a variety of comedy and drama features for Netflix, Amazon and Hallmark. In 2018, Martha was recognized for her work on Days of Our Lives with a Daytime Emmy nomination for Best Supporting Actress.In addition to acting, Martha is an experienced restauranteur and currently serves as the Vice President of Recruitment for One Haus; a New York based firm specializing in Executive recruitment for the hospitality industry. She is also an Executive Mentor with GLEAM; a nonprofit, volunteer network whose purpose is to provide mentorship to the underserved community in the food service industry in hopes of cultivating future industry leaders. Other charitable ventures include a celebrity ambassadorship for the National MS Society and The Association of Frontotemporal Dementia (FTD) in honor of her mother.Original Airdate: 12/3/2021

It's our last episode of our dementia research mini-series! And as a follow up to our recap of Day 4, we interviewed Dr. Adam Boxer to learn more about fluid biomarkers - AKA - we ask him all about what the bloodwork and lumbar puncture is used for. Stay tuned for a very special ending of our 8-part series. Thank you for coming on the journey with us and please let us know what you think of this series by reaching out to us on our website! www.remembermeftd.com Adam L. Boxer, MD, PhD, is Endowed Professor in Memory and Aging in the Department of Neurology at the University of California, San Francisco (UCSF). He directs UCSF's Neurosciences Clinical Research Unit and the Alzheimer's Disease and Frontotemporal Degeneration (FTD) Clinical Trials Program at the UCSF Memory and Aging Center. Dr. Boxer's research is focused on developing new treatments and biomarkers for neurodegenerative diseases, particularly those involving tau and TDP-43. Dr. Boxer received his medical and doctorate degrees as part of the NIH-funded Medical Scientist Training Program at New York University Medical Center. He completed an internship in Internal Medicine at California Pacific Medical Center, a residency in Neurology at Stanford University Medical Center, followed by a fellowship in behavioral neurology at UCSF. We loved Dr. Boxer! Enjoy the science side of our experience, you guys! -- Special thank you to the ALLFTD Study for their support in the creation of this series. You can support Remember Me by visiting our website www.remembermeftd.com where you can shop our merch, join re-members only or donate. You can follow us on instagram @remembermepodcast. ---- Today's sponsor is The Bluefield Project: The Bluefield Project to Cure FTD, is on a mission to support research to improve our understanding of a genetic form of Frontotemporal dementia, and to help find a cure for this devastating disease. So how can you help? If FTD runs in your family, participating in a Natural History Study, or in a therapeutic clinical trial, makes an enormous contribution. To learn more, please go to ftdregistry.org ---- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

As a follow up to our recap of Day 3, we interviewed world-renowned Dr. Brad Boeve to learn more about what we know about Frontotemporal Dementia, and what we're learning through the ALLFTD Study. Dr. Brad Boeve is a professor of neurology in the Mayo Clinic College of Medicine and Science and is a consultant in the Department of Neurology and Center for Sleep Medicine at the Mayo Clinic in Rochester, Minnesota. Dr. Boeve is a co-director of the Clinical Core of Mayo's Alzheimer's Disease Research Center. Dr. Boeve is recognized with the distinction of the Little Family Foundation Professorship in Lewy Body Dementia. And he is one of the three ALLFTD Principal Investigators. We loved Dr. Boeve! Enjoy the science side of our experience, you guys! Special thank you to the ALLFTD Study for their support in the creation of this series. You can support Remember Me by visiting our website www.remembermeftd.com where you can shop our merch, join re-members only or donate. You can follow us on instagram @remembermepodcast. ---- Today's sponsor is The Bluefield Project: The Bluefield Project to Cure FTD, is on a mission to support research to improve our understanding of a genetic form of Frontotemporal dementia, and to help find a cure for this devastating disease. So how can you help? If FTD runs in your family, participating in a Natural History Study, or in a therapeutic clinical trial, makes an enormous contribution. To learn more, please go to ftdregistry.org ---- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

As a follow up to our recap of Day 2, we interviewed Dr. Howie Rosen to learn more about MRIs and how they're used in the ALLFTD Study and in diagnosing FTD. Dr. Howie Rosen, is a behavioral neurologist and holds the Dorothy Kirsten French Foundation Endowed Professorship for Parkinsonian and Other Neurodegenerative Disorders. He is an investigator on multiple federal and state-funded research grants and serves as director of the California State Alzheimer's Disease Center at UCSF, associate director of UCSF's federally funded Alzheimer's Disease Research Center, director of UCSF's Behavioral Neurology Training Program, and director of Curriculum for the Global Brain Health Institute. And, he is one of the three ALLFTD Principal Investigators. We loved Dr. Rosen! Enjoy the science side of our experience, you guys! Special thank you to the ALLFTD Study for their support in the creation of this series. You can support Remember Me by visiting our website www.remembermeftd.com where you can shop our merch, join re-members only or donate. You can follow us on instagram @remembermepodcast. ---- Today's sponsor is The Bluefield Project: The Bluefield Project to Cure FTD, is on a mission to support research to improve our understanding of a genetic form of Frontotemporal dementia, and to help find a cure for this devastating disease. So how can you help? If FTD runs in your family, participating in a Natural History Study, or in a therapeutic clinical trial, makes an enormous contribution. To learn more, please go to ftdregistry.org ---- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

As a follow up to our recap of Day 1, we interviewed Steve Smith to learn more about Neuropsych testing. Steve explains what it's like to administer these tests, what they're looking for during testing and how this intensive battery aids in distinguishing an FTD diagnosis. Steve Smith is a Senior Program Coordinator at the Mayo Clinic with 12 years of experience in research and neuropsychological testing. Steve oversees research coordination, psychometric testing, and daily operations of the Alzheimer's Disease Research Center. Enjoy the science side of our experience, you guys! Special thank you to the ALLFTD Study for their support in the creation of this series. You can support Remember Me by visiting our website www.remembermeftd.com where you can shop our merch, join re-members only or donate. You can follow us on instagram @remembermepodcast. ---- Today's sponsor is The Bluefield Project: The Bluefield Project to Cure FTD, is on a mission to support research to improve our understanding of a genetic form of frontotemporal dementia, and to help find a cure for this devastating disease. So how can you help? If FTD runs in your family, participating in a Natural History Study, or in a therapeutic clinical trial, makes an enormous contribution. To learn more, please go to ftdregistry.org ---- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Today's the day we tell you some big news! And afterward, ALLFTD Study Program Directors Leah Forsberg, Ph.D. and Hilary Heuer, Ph.D. dive into some basics on FTD research - what does it look like? Who can participate? You'll learn all about the difference between observational studies and clinical trials... and get a window into some exciting work on the horizon. Listen + let us know what you think on instagram! We will miss you all during our "break" -- thank you for your support this season. xx-R+M -------------------- Want more Remember Me? Join Re-Members Only. -------------------- TODAY'S SPONSORS: THE ALGERNON PROJECT: Their mission is to eradicate the misdiagnosis of individuals affected by FTD by utilizing a machine learning algorithm to streamline the patient diagnosis journey. Learn more about this special project on LinkedIn and Instagram @thealgernonproject. FOR THEIR THOUGHTS FOUNDATION: For Their Thoughts Foundation is hosting an inaugural Care For Their Thoughts Benefit event in Carlsbad, CA on Saturday April 30th. At the event, guests will have the opportunity to walk through interactive exhibits that help us understand the dementia experience, walk in a caregivers shoes and learn about brain health. All event proceeds will bring direct financial relief and resources to families caring for their loved ones with dementia through our Care For the Caregivers Grant Program. You can buy tickets for their event on Saturday, April 30th at www.fortheirthoughts.org/careftt or on instagram @fortheirthoughts. Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro ---------------------------------------- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Today's episode is brought to you by The Algernon Project. The Algernon Project founders Ben and Keri Allen walk us through the long and hard fought journey of receiving a Frontotemporal Dementia (FTD) diagnosis for Keri's father, Mark. They explain how this heartbreaking experience of constant misdiagnosis motivated them to explore an algorithm to assist radiologists in spotting subtle brain atrophy. As our season is coming to an end, we feel it's a beautiful thing to share how a young couple has taken their trauma experience and channeled their talents into healing and helping others. Take a listen and follow them on social media to follow along on their journey to raise awareness for FTD and eradicate misdiagnosis of FTD @algernonproject. -- -------------------- Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro -------------------- TODAY'S SPONSOR: THE ALGERNON PROJECT: Their mission is to eradicate the misdiagnosis of individuals affected by FTD by utilizing a machine learning algorithm to streamline the patient diagnosis journey. Learn more about this special project on LinkedIn and Instagram @thealgernonproject. ---------------------------------------- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Today's story is told from the sibling perspective of the FTD journey and it's full of confusion, sorrow - but also sweet sisterly love. Today, we hear from Brianna, founder of Waverles, as she lovingly tells the story of her older sister, Daria. Daria's progression was severe and swift, leaving a family in shock of what had just happened - and the complexity of the global pandemic on top of it all. Daria - wife, mother, daughter - and incredible social worker of 17 years - touched so many lives in her short time on this earth.

This weeks episode, featuring Betsy Hall - founder and CEO of For Their Thoughts, tells the story of Mary. Described by Betsy being the “mom who knew what you needed before you did,” Mary prided herself on being the Mom with a capital M. This family's journey has a pretty big twist and Betsy so eloquently describes it. You don't want to miss this one. Additionally, For Their Thoughts is holding their first annual Care Benefit - tickets and more information can be found here : www.fortheirthoughts.org/careftt When you listen to this episode, let us know what you think on instagram. -------------------- Join Re-Members Only. -------------------- TODAY'S SPONSORS: THE ALGERNON PROJECT: Their mission is to eradicate the misdiagnosis of individuals affected by FTD by utilizing a machine learning algorithm to streamline the patient diagnosis journey. Learn more about this special project on LinkedIn and Instagram @thealgernonproject. NANA'S BOOKS: Bring back connection, one page at a time. NANA'S BOOKS pair nostalgic fine art and verse to engage and delight people living with dementia and their care partners. Check out nanasbookseries.com FOR THEIR THOUGHTS FOUNDATION: For Their Thoughts Foundation is hosting an inaugural Care For Their Thoughts Benefit event in Carlsbad, CA on Saturday April 30th. At the event, guests will have the opportunity to walk through interactive exhibits that help us understand the dementia experience, walk in a caregivers shoes and learn about brain health. All event proceeds will bring direct financial relief and resources to families caring for their loved ones with dementia through our Care For the Caregivers Grant Program. You can buy tickets for their event on Saturday, April 30th at www.fortheirthoughts.org/careftt or on instagram @fortheirthoughts. Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro ---------------------------------------- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

The episode we've been waiting for. Today we dive into this season's (very popular) theme: Trauma. We do this the help of incredible expert, psychologist, and friend of the podcast, Dr. Mekel Harris, Ph.D. Dr. Mekel helps answer: What is trauma? How does our body respond to trauma? And most importantly, how do we cope? We found this to be fascinating and insightful, and we can't wait to hear what you think too. Let us know on instagram @remembermepodcast By the end of the episode we know you will love Dr. Mekel as much as we do, so go ahead and check out her resources on instagram and her website mekelharrisphd.com. Thanks for listening. --- Join Re-Members Only for access to our Film Viewing Event with Katie on March 30th at 8PM EST. Make sure you don't miss our Merch Drop 3/20 - Sign up for our newsletter at www.remembermeftd.com/ When you listen to this episode, let us know what you think on instagram. ---------------------------------------- TODAY'S SPONSORS: NANA'S BOOKS: Bring back connection, one page at a time. NANA'S BOOKS pair nostalgic fine art and verse to engage and delight people living with dementia and their care partners. Check out nanasbookseries.com FOR THEIR THOUGHTS FOUNDATION: For Their Thoughts Foundation is hosting an inaugural Care For Their Thoughts Benefit event in Carlsbad, CA on Saturday April 30th. At the event, guests will have the opportunity to walk through interactive exhibits that help us understand the dementia experience, walk in a caregivers shoes and learn about brain health. All event proceeds will bring direct financial relief and resources to families caring for their loved ones with dementia through our Care For the Caregivers Grant Program. You can buy tickets for their event on Saturday, April 30th at www.fortheirthoughts.org/careftt or on instagram @fortheirthoughts. Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro ---------------------------------------- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Our 1st ever in-person interview! Stacy tells our listeners about her sweet dad Rusty in todays episode. We get a sneak peek in to the life of a leading movie and television marketing exec that loved his girls fiercely. Lewy body Dementia slowly stole his loving personality and ability to live independently. We are so happy to have met Stacy and connect deeply with her love of her sweet Dad. Stacy's grief is still fresh, but that doesn't take away from lively spirit and fun outlook on life. For more information on Richard Citron, linked here is the obituary that was featured in Variety. ---- Join Re-Members Only for access to our Film Viewing Event with Katie on March 30th at 8PM EST. Make sure you don't miss our Merch Drop 3/20 - Sign up for our newsletter at www.remembermeftd.com/ When you listen to this episode, let us know what you think on instagram. ---------------------------------------- TODAY'S SPONSORS: NANA'S BOOKS: Bring back connection, one page at a time. NANA'S BOOKS pair nostalgic fine art and verse to engage and delight people living with dementia and their care partners. Check out nanasbookseries.com Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro ---------------------------------------- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

On this episode of the Dementia Podcast, Colm chats with Steve Macfarlane, Head of Clinical Services at Dementia Support Australia and Lynne Sewell whose husband, Rick, is living with Frontotemporal Dementia (FTD).  In the episode Steve gives us a clinical overview of FTD, the differences from types of Dementia like Alzheimer's disease, typical features of the condition and outlines current treatment options.   Lynne then shares her story and advocacy for Rick, from his diagnosis to the challenges of finding assistance, both in terms of care and living arrangements.  One of the key areas that is brought up in the podcast is the diagnosis, the way in which it was delivered and what post-diagnostic care and support both Rick and Lynne received. If you'd like to learn more about finding support after diagnosis, we'd encourage you to visit Forward with Dementia.  Lynne also shares with Colm about her role as Rick's full-time carer and experiences of living with someone with FTD, the sources of support she has relied on and her journey to accessing specialist disability accommodation.   If you'd like to hear more about our Talking Dementia series and more about post diagnostic care we'd love for you to have a listen of one of our previous episodes, Talking Dementia: Diagnosis and Post-Diagnostic Care.  Additional resources and support services Dementia Support Australia  The Association for Frontotemporal Degeneration (US) Alzheimer's Research UK (living with frontotemporal dementia) Alzheimer's Disease International (Details of your local support associations)  

Your favorite ladies are back for side chat after Maria made the trip cross country to spend the weekend in La-La-Land. This episode is a candid recap of all the things the Remember Me ladies did, including a trip up the golden coast to the magical town of Santa Barbara. Laughs, tears, and so so much work. The big dreams are starting to take shape, you guys! Eeeee!!! Tune in and listen to this seasons second sidechat. It's a good one! Housekeeping: Join Re-Members Only for access to our Film Viewing Event with Katie on March 30th at 8PM EST. Make sure you don't miss our Merch Drop 3/20 - Sign up for our newsletter at www.remembermeftd.com/ When you listen to this episode, let us know what you think on instagram. ---------------------------------------- TODAY'S SPONSORS: NANA'S BOOKS: Bring back connection, one page at a time. NANA'S BOOKS pair nostalgic fine art and verse to engage and delight people living with dementia and their care partners. Check out nanasbookseries.com Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro ---------------------------------------- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Today's episode features actor and Filmmaker Katie Prentiss. We connected through learning about Front Porches, a film Katie created based loosely on her experience with her mother's Frontotemporal Dementia (FTD) journey. Today's episode may feel like you're listening in to a conversation between old friends (aren't the best kind of podcasts like that, though?)... as we instantly connected with Katie and loved the way she described the heartbreak of her experience with her mother Maggie... the stress of caregiving, the pressures of holding pain and joy in the same moments -- but also how she found ways to light she let shine in. Thank you Katie, for sharing your story with us! We can't wait to watch Front Porches with you. Join Re-Members Only for access to our Film Viewing Event with Katie on March 30th at 8PM EST. When you listen to this episode, let us know what you think on instagram. Learn more about remember me at www.remembermeftd.com/ ---------------------------------------- TODAY'S SPONSORS: Target ALS is a non-profit organization that is breaking down barriers and revolutionizing ALS research. Please consider making a donation to help continue to bring scientists together like never before to work toward potentially life saving treatments. Visit targetals.org to learn more. Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro ---------------------------------------- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Today's episode features an expert physician on Frontotemporal Dementia (FTD): Dr. Brad Dickerson. In this episode we cover: The science of FTD, how it is different from Alzheimer's, updates on research, and more. Brad Dickerson, MD is Professor of Neurology at Harvard Medical School and Tom Rickles Chair in Progressive Aphasia Research, Leader of the Neuroimaging Core of the MGH Alzheimer's Disease Research Center, and Director of the Frontotemporal Disorders Unit at the Massachusetts General Hospital, an integrated multidisciplinary unit dedicated to the highest level of care of patients with these conditions. Dr. Dickerson is also a behavioral neurologist in the MGH Memory Disorders Unit. Dr. Dickerson is an active clinical consultant in many aspects of cognitive and behavioral neurology of neurodegenerative and related disorders, including frontotemporal dementia, primary progressive aphasia, Alzheimer's, mild cognitive impairment, posterior cortical atrophy, and related conditions, and the use of neuroimaging and other diagnostic markers in neurodegenerative diseases. Dr. Dickerson runs a multidisciplinary team of 30 clinicians and scientists using advanced brain imaging and behavioral methods to study how memory, language, emotion, and social behaviors change in normal aging and in patients with neurodegenerative disease, with extensive funding from the National Institutes of Health. His team also studies new approaches to caregiving. He has published more than 195 articles in peer-reviewed scientific journals and has edited two books on dementia. He is active in mentoring trainees and in teaching, is Chair of the Medical and Scientific Advisory Council of the Massachusetts Alzheimer's Association and is Chair-Elect of the national Medical Advisory Council of the Association for FTD. He has won a number of awards, including the American Academy of Neurology's Norman Geschwind Award in Behavioral Neurology. Thank you to Dr. Dickerson for sharing your expertise with our community! Let us know what you think of this episode on instagram @remembermepodcast Learn more about Remember Me at www.remembermeftd.com/ ---------------------------------------- Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro ---------------------------------------- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Today's episode features Rachael and Maria's insta-friend Libby. Libby shares her mother's very sudden and swift journey with FTD -- with her diagnosis only coming just months before her passing. Libby so captivatingly walking us through the story step by step -- and shares how difficult it was to be in her 20s suddenly in charge of making important decisions for her mother who could no longer effectively communicate. Anne S., or "Mama Stivers" as she was fondly known, was a loving mom and infectiously kind woman who worked for the local High School. Listen to hear at the end to hear all about her beautiful spirit. We captured some mom tips from Mama Stivers that we will be carrying on with our kids. When you listen, let us know what you think on instagram. Learn more about remember me at www.remembermeftd.com/ ---------------------------------------- TODAY'S SPONSORS: Target ALS is a non-profit organization that is breaking down barriers and revolutionizing ALS research. Please consider making a donation to help continue to bring scientists together like never before to work toward potentially life saving treatments. Visit targetals.org to learn more. Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro ---------------------------------------- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Today's episode features Maria's friend Bernie from her days in support group. Bernie shares the story of his incredible wife Karen. Bernie's love for Karen made this a perfect Valentine's week episode... and Bernie has a lot to share about his learnings from being a long-time caregiver. Listen to learn about the amazing Karen - devoted mother, innovative nurse, and loving wife of 44 years. When you listen, let us know what you think on instagram. Learn more about remember me at www.remembermeftd.com/ ---------------------------------------- TODAY'S SPONSORS: Target ALS is a non-profit organization that is breaking down barriers and revolutionizing ALS research. Please consider making a donation to help continue to bring scientists together like never before to work toward potentially life saving treatments. Visit targetals.org to learn more. Vnyl Confessions is an online vinyl record shop with a mission to heal the world of it's pain "one record at a time" - enjoy the power of music and get yourself a new record (or book, merch, and more) at vnylconfessions.com and use code REMEMBERME for 20% off your order. Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro ---------------------------------------- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Kim, devoted wife and mother tells her husband, Jeff's short and tragic journey with FTD + ALS. Kim openly depicts her trauma in such a relatable and honest way and vulnerably describes the way she fought for answers. Kim's strength and perseverance shines through her story as does her love for her late husband. Although Kim's story is surrounded by outside loss, we applaud her for looking for the light for accepting the good. Always, always accept the good. Thank you for honoring Jeff in this way, Kim and thank you for letting us be part of the journey. ---------------------------------------- TODAY'S SPONSORS: TARGET ALS: Target ALS is a non-profit organization that is breaking down barriers and revolutionizing ALS research. Please consider making a donation to help continue to bring scientists together like never before to work toward potentially life saving treatments. Visit targetals.org to learn more. VNYL CONFESSIONS: Shop for exceptionally curated NEW rap, jazz, pop vinyl records, books, apparel and more at vnylconfessions.com and use code REMEMBERME for 20% off at checkout. Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro ---------------------------------------- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Today's episode features Dr. Sami Barmada, an Associate Professor of Neurology at The University of Michigan whose research is focused on solutions to treat FTD and ALS. In this episode we cover: the connection between FTD and ALS, the current status of research, ways to support research and more. This interview was facilitated by Target ALS. Learn more about remember me at www.remembermeftd.com/ ---------------------------------------- TODAY'S SPONSORS: Target ALS is a non-profit organization that is breaking down barriers and revolutionizing ALS research. Please consider making a donation to help continue to bring scientists together like never before to work toward potentially life saving treatments. Visit targetals.org to learn more. Neuroreserve brain-health supplement RELEVATE Click here to learn more and purchase and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro ---------------------------------------- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Stephanie shares the story of her mom Elaine's long journey with FTD. Stephanie walks us through being a young woman (and an only child) in her 20s desperately looking for answers for her mother's behavior. Stephanie is an award-winning Social Worker and Psychotherapist and owner of Compassion in Caregiving in Toronto, Ontario. In this episode Stephanie brings her unique experience as a therapist to our topic of trauma this season as she shares her long journey with her mom's FTD diagnosis. Thank you for joining us, Stephanie. We love you! After you listen, let us know what you think by commenting on the episode art on instagram @remembermepodcast ---- Today's Sponsors: Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBERME for 20% off at checkout Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro Learn more about remember me at www.remembermeftd.com/ ---- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

This story, told by Shay, beautifully outlines the devastation FTD (or Pick's disease, as she refers to it) causes. Shay was in elementary school when her sweet mom, Mrs. Hast began to exhibit symptoms. The journey is full of tenderness and pain and Shay so eloquently describes the dance between the two. The story unfolds but the rawness continues. Shay takes us through darkness and hurt but also shares such a beautiful relationship she had with her mother. Mrs. Hast won our hearts and so has her sweet daughter, Shay. We are excited to share our first story of our new season - as we feel deeply connected to all its parts. Thanks for your openness, Shay. After you listen, let us know what you think by commenting on the episode art on instagram @remembermepodcast --- **Please be advised that some of this content may be triggering to some as it discusses the following: Self-harm, Abuse, Suicidal ideation If you are struggling - help is available. Speak with someone today at the National Suicide Prevention Lifeline | Available 24 hours | 800-273-8255 ---- Today's Sponsors: Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBERME for 20% off at checkout Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro Learn more about remember me at www.remembermeftd.com/ ---- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Welcome Back, Happy New Year + OMG, YOU GUYS, it's SEASON 4!! Listen now to learn a big theme of the season... in this episode we set the scene for what's in store. xx, R+M After you listen, let us know what you think by commenting on the episode art on instagram @remembermepodcast --- Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro Today's Sponsor: --- Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com --- Learn more about remember me at www.remembermeftd.com/ --- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Maria Kent Beers, one of the co-creators of the Remember Me Podcast, talks to Stephanie about how she channeled her grief into helping others and creating meaning from the difficult times in her life. Stephanie and Maria also discuss living with a mom diagnosed with FTD at a very young age while starting a family and a career. Maria Kent Beers is a fierce advocate for Frontotemporal Dementia (FTD) and ALS. Her passion for this work was fueled by her mother's diagnosis in late 2016, at the young age of 52. In 2020, Maria channeled her grief and creative talents into creating a FTD-focused podcast, Remember Me, with internet friend and fellow caregiver, Rachael Martinez. Now formally formed as Remember Me, LLC, Maria and Rachael's organization is dedicated to providing a platform for early-onset dementia resources and a loving and engaged community bonded over shared experience.Maria lives in Boston where she is a mother to one spirited boy and wife to her college love. She is a proud graduate of Boston University's College of Communications, where she started her love of radio as a host of "BU in the Morning" Radio Show and summer intern for MTV Radio in NYC.Find Maria on Instagram: @remembermepodcast The Remember Me community and online store: http:///www.remembermeftd.comVisit us on our website:www.compassionincaregiving.comJoin our FREE Facebook community! https://www.facebook.com/groups/compassioncaregiverconnection For more visit our Instagram! @compassionincaregiving

In our Season 3 finale, we finally hear the story of the couple behind the Remember Me cover art. Maria's father Gary shares his perspective of Lia's journey with FTD-ALS... and their beautiful life and love story. Gary shares his experience as a full-time caregiver, how he maximized his time with Lia with his "best summa eva"... and how he is now coping with life after losing Lia. This is one for the books. Rachael takes the drivers seat as Maria cries on mute... you're going to want a few boxes of tissues for this one - and make sure you listen to the very end... xxR+M We'll be back Jan 11th! Not sure what you're going to do without Remember Me for two months? Sign up for Re-Members Only! You get 2 exclusive podcasts a month, access to our community zoom events, grief content, dementia tips and more. Learn More Here: www.remembermeftd.com/joinro We are currently booking interviews for Season 4, so please submit your applications before we fill up! www.remembermeftd.com/tellyourstory Today's Sponsors: --- Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro --- Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBER ME for 20% off at checkout --- Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com --- Learn more about remember me at www.remembermeftd.com/ --- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Our much anticipated interview with singer-songwriter, and wonderful human being, Parker McKay. Parker won over the hearts of many this fall as a contestant on NBC's The Voice, where she was chosen to be a member of Kelly Clarkson's team. Parker revealed on the show that weeks before leaving for taping, her mother Tracey had died from complications of Frontotemporal Dementia (FTD) at age 57. We feel so fortunate that Parker wanted to join us to tell more of her story - and share more about who her mother Tracey was before FTD. Parker is just as she appears on TV - kind, charming, genuine… and her love for her mother Tracey beautifully shines through in this episode. We can't wait to have our new BFF Parker back in the future as we know she is going to continue to be an amazing advocate for this disease. We love you, Parker! -xxR+M Let us know what you think by commenting on the episode art on instagram. @remembermepodcast We are currently booking interviews for Season 4, so please submit your applications before we fill up! www.remembermeftd.com/tellyourstory Today's Sponsors: --- Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro --- Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBER ME for 20% off at checkout --- Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com --- Learn more about remember me at www.remembermeftd.com/ --- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

In this episode Nancy talks about her work as author and illustrator and her journey through  her husband's devastating illness. This is a story of catastrophic loss and resilience. Nancy Carlson  is an accomplished children's book author and illustrator of 67 books with more than 4 million books in print. She married Barry McCool and they had 3 kids. Early in her career, when her books started to take off, Barry handled the book business as well as home finances. Everything was fine until it wasn't. By the time Barry was diagnosed with Frontotemporal Dementia (FTD), which impaired his judgement, and behavior,  Nancy discovered that he had mismanaged all their finances. They lost everything they owned. They had no health insurance. Barry was in a nursing home until he passed in 2017.  Nancy Carlson selected accomplishments: *Books in the Dolly Parton Imagination Library Program *Published work includes several Reading Rainbow Selections *The Children's Choice Award from the International Reading     Association Children's Book Council *The Minnesota Children's Museum Great Friends to Kids Award *Featured on PBS Minnesota Original PODCAST QUOTES: “So it was really prior to the diagnosis, which was the most dramatic and the most frustrating time of my life.” “...when I drew pictures of Barry,  it made me understand what I was feeling.” “Thank God for Dolly Parton because she, she does... use one of my books. It's called "Lookout Kindergarten Here I Come." And that book, the royalties I get from Dolly Parton have saved me." LINKS: Nancy Carlson Studios Nancy Carlson Worksheets + Teaching Resources Nancy Blog: "Putting One Foot in Front of the Other" After Loss, Finding Peace in Art and Nature Children's book author Nancy Carlson designs 2006 State Fair poster   Nancy Carlson's MN Memory Amid loss, Minn. author Nancy Carlson still makes children's books   Edina Magazine: Nancy Carlson In words and pictures, Nancy Carlson explains her process in Litchfield  Portrait of Nancy Carlson, Minneapolis, Minnesota Gillette Children's Specialty Healthcare (St. Paul, MN) Read and Share It's Okay to Ask! Nancy Carlson Posters It's Okay To Ask American Swedish Institute (Minneapolis, MN) Nancy Carlson: ABOUT THE AUTHOR ENCYCLOPEDIA.COM: Carlson, Nancy (Lee) 1953- University of Minnesota Libraries: Nancy Carlson   Free Spirit Publishing: Nancy Carlson amazon.com: Nancy L. Carlson A CHAT WITH SOMETIMES YOU BARF AUTHOR NANCY CARLSON Library a Fitting Venue for Nancy Carlson Presentation John Barry McCool A Doodle a Day: Ten Year Doodle Journey by Nancy Carlson MPLS-based Children's Author Nancy Carlson to Give Keynote at AFTD Conference Literacy Walk - Get Up and Go! at Smith Park Storytime with Nancy Carlson: I Like Me and Sometimes You Barf YOUTUBE VIDEOS + INTERVIEWS Minnesota Original: Nancy Carlson Nancy Carlson: Minnesota Picture Book Illustrator and Writer Smile A Lot! By Nancy Carlson // Kids Read Aloud I Like Me by Nancy Carlson | Story Read Through | Read Aloud Get Up and Go! by Nancy Carlson// Kids Read Aloud It's Not My Fault by Nancy Carlson Image from the untitled Women Series: Follow me on Instagram!                

This week, we chat with Shari about her mother's relatively new diagnosis of Primary Progressive Aphasia and Vascular Dementia. Shari is SO open about her feelings during this journey - the frustration, the guilt, and the grief...and ugh, we love it when people are just so vulnerable and honest... because we know it helps all of you (and it helps us too!). One of the biggest things we took away from this interview was Shari's amazing ability to just let her mom be. Dementia can make people have odd behaviors and it's very easy to want to correct them or get embarrassed - but Shari just seems to meet Linda where she's at and accept her and go with the flow. It's beautiful and inspiring! At the end of the episode we learn all about fiercely independent, talented artist, Linda. Thank you to Shari for sharing her with us. We hope you enjoy the episode and please let us know what you think by commenting on the episode art on instagram. @remembermepodcast xxR + M We are currently booking interviews for Season 4, so please submit your applications before we fill up! www.remembermeftd.com/tellyourstory Today's Sponsors: --- Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro --- Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBER ME for 20% off at checkout --- Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com --- Learn more about remember me at www.remembermeftd.com/ --- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

This week, we proudly present an interview with Lauren Miller Rogen, Filmmaker, Alzheimers Advocate, co-founder of HFC, and now friend of Remember Me. Lauren openly shares her mother Adele's journey with early onset Alzheimers disease... and she shares the journey with such honesty, vulnerability and love. She talks about what it was like to try and start her life in Los Angeles while her conflicted heart wanted to be back in Florida with her mom - a feeling many of us know all too well. And of course, we talk all about her incredible mom - who she was before the disease - an amazing teacher and mother. This conversation was so relatable - the feelings, the heartache, it is all the same to what we felt with our own parents... and Lauren did an amazing job of showing us her accept the good outlook - creating a beautiful community and incredible resources through HFC. Below, you'll find a link to our blog post with some great resources from HFC that we think you should check out ASAP: 5 HFC Resources You Should Check Out Now Thank you to Lauren (and to Seth) for the amazing work they are doing for this community. For giving this community a voice. We are so thankful. xx R + M Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast Today's Sponsors: --- Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro --- Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBER ME for 20% off at checkout --- Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com --- Learn more about remember me at www.remembermeftd.com/ --- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Stephanie shares her husband Paul's current journey with Frontotemporal Degeneration (FTD). Stephanie is so beautifully honest about some of the lesser spoken about parts of the journey and shares what it's like to have her once incredibly supportive and loving partner change so drastically. We loved learning about who Paul truly is - an accomplished and celebrated mechanical engineer, a loving, supportive safe haven for his wife, and a doting father to his incredibly smart girls. Thank you to Stephanie for sharing her story with all of us. Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast Notes --- Join Re-Members Only at www.remembermeftd.com/joinro Today's Sponsors: --- Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBER ME for 20% off at checkout --- Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com --- Learn more about remember me at www.remembermeftd.com/ --- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Caroline shares her journey with her mother, Margaret, a beloved family physician, who was diagnosed with Frontotemporal Degeneration (FTD) at age 59. Caroline opens up about what this journey has been like, grieving her mother and best friend while she is still living, and also managing the 800 mile distance between them. We spend a good deal of this episode talking about transitioning a loved one into residential care. We know this is a topic that comes up a lot in our community so definitely be sure to listen if that has been a part of your journey. Caroline also came on to promote the FTD Hot Shot Challenge, a viral campaign to raise awareness for FTD, so make sure to check that out HERE. Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast Notes --- Join Re-Members Only at www.remembermeftd.com/joinro Today's Sponsors: --- The Association for Frontotemporal Degeneration: Check out what is happening for FTD World Awareness week at www.theaftd.org --- Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBER ME for 20% off at checkout --- Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com --- Learn more about remember me at www.remembermeftd.com/ --- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

It's World FTD Awareness Week so we decided to do something special! This episode contains excerpts of stories of Frontotemporal Dementia (FTD) previously told on Remember Me. We collaged this episode together to share a snapshot of some of the first signs of FTD, the journey of receiving the diagnosis, and the heartbreaking realization that this disease has no treatment or cure. The featured stories are told from the perspectives of children, spouses, and siblings from all over the United States and beyond. It is short and sweet, and we invite you to share it with friends, neighbors, coworkers, doctors and more... help us #endFTD and raise awareness. If you know someone affected by this disease, let them know they are not alone, we are here. This episode is dedicated to our parents, Lia and Frank. We miss you + we'll never stop fighting for you. xx Rachael + Maria Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast SHOW NOTES: --- Join Re-Members Only at www.remembermeftd.com/joinro --- Learn more about remember me at www.remembermeftd.com/ Today's Sponsor: The Association for Frontotemporal Degeneration: Check out what is happening for FTD World Awareness week at www.theaftd.org ---- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Susan Dickinson, MSGC, is the CEO of the Association for Frontotemporal Degeneration (AFTD). A genetic counselor, she brings more than three decades of experience facilitating communications among lay, scientific, and medical communities.   FTD is the most common form of dementia for people under age 60. It represents a group of brain disorders caused by degeneration of the frontal and/or temporal lobes of the brain.   “The experienced caregivers and care partners are the experts on day-to-day management of any form of dementia and the ability for them to come together with people who are ahead of you on this journey or who have walked the path before is incredibly valuable.” Susan explains.   Don't forget to follow, download, and review to share your thoughts about the show!   To find out more about Bobbi and Mike or the inspiration behind this podcast, Rodger That, head over to rodgerthat.show. ***************************************** Rodger That is produced by Missing Link—a podcast media company that is dedicated to connecting people to intelligent, engaging and informative content.   Also in the Missing Link line-up of podcasts, is The Designated Drinker Show —a high-spirited show featuring craft cocktails and lively banter with the people who create (and quaff) them.   Now, if you are looking for a whole new way to enjoy the theatre, check out Between Acts—an immersive audio theatre podcast experience. Each episode takes you on a spellbinding journey through the works of newfound playwrights—from dramas to comedies and everything in between.

Shelley shares her journey with her mother, Mary, who was diagnosed with Primary Progressive Aphasia in her 50s, and died suddenly 6 years later. This is a heartbreaking story but Shelley is a wonderful storyteller - funny, witty and no doubt someone who accepts the good. One of our favorite parts was getting into all the feelings of being mom's while going through this journey with our parents. Shelley's mom Mary was really special. We hope you carry some piece of her with you after hearing this episode. Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast Notes --- Join Re-Members Only at www.remembermeftd.com/joinro Today's Sponsors: --- The Association for Frontotemporal Degeneration: Check out what is happening for FTD World Awareness week at www.theaftd.org --- Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBER ME for 20% off at checkout --- Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com --- Learn more about remember me at www.remembermeftd.com/ --- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Back to our normal format this week with our very first story told from a mother's perspective. Dawn shares her journey with her daughter, Kara, 32, who was misdiagnosed with postpartum depression and psychosis before finally receiving the FTD diagnosis. Listen to this heartbreaking tale told by an extraordinary, strong and loving mother, our new friend, Dawn. Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast Notes --- Join Re-Members Only at www.remembermeftd.com/joinro --- Today's Sponsor: Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBER ME for 20% off at checkout --- Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) --- Support: You can support our podcast by buying us a coffee, shopping our merch store, leaving us an apple podcast review and spreading the word! --- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

In the last episode of our Grief to Goodness Series, we talk to Patti LaFleur, care-partner to her mother Linda, who is living with dementia. Patti tells us all about her mindset of channeling positivity and love into her role as her mother's caregiver, or "care-partner" as she calls it. She explains how her experience and training as a Kindergarten teacher helped her in this role. In this episode, Patti inspired us to be more empathetic, and see the world more through our loved ones with dementias eyes. We think she's incredible and we hope you feel the same! You can follow along on Patti and Linda's journey more here: Instagram: @misspatticake TikTok: @carepartnerpatti Let us know what you think of this series by commenting on the episode art on instagram. ---- Get In Touch: Follow us on instagram @remembermepodcast, or contact us on our website www.remembermeftd.com You can support our podcast by leaving us an apple podcast review and sharing our podcast on social! Want more Remember Me? Join our brand new Re-Members Only Space: www.remembermeftd.com/joinro --- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

In the second episode of our Grief to Goodness Series, we talk to siblings and creators of RememBar Brain Food, Matthew and Rachel. Matthew and Rachel tell us all about their incredible dad John, and his journey with early Alzheimers disease. They share all about how they came to explore the importance of diet and its connection to brain health and how it inspired the creation of RememBar. These two are doing so much to help the Alzheimers and Dementia community, and we hope it inspires you as much as it inspired us! Let us know what you think of this series by commenting on the episode art on instagram. ---- Get In Touch: Follow us on instagram @remembermepodcast, or contact us on our website www.remembermeftd.com You can support our podcast by leaving us an apple podcast review and sharing our podcast on social! Want more Remember Me? Join our brand new Re-Members Only Space: www.remembermeftd.com/joinro --- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Maria and Rachael check-in and open up about how they're feeling 9 & 10 months after losing Lia and Frank. They also share the latest RM news + info on the upcoming mini series "Grief to Goodness." Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast. Notes: * Join Re-Members Only at www.remembermeftd.com/joinro * Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) * Support: You can support our podcast by buying us a coffee, shopping our merch store, leaving us an apple podcast review and spreading the word! Learn more at www.remembermeftd.com --- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

This week we speak with Sam about her father Mike's journey with FTD, and the amazing father he was before the disease. Let us know what you think of the episode by commenting on the episode art on instagram. --- Join Re-Members Only at www.remembermeftd.com/joinro Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) Get In Touch: Follow us on instagram @remembermepodcast, and visit our website www.remembermeftd.com for our blog, newsletter sign-up and more content! Support: You can support our podcast by buying us a coffee, shopping our merch store, leaving us an apple podcast review and spreading the word! --- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

Remember Me Turns 1! Can you believe it? Thank YOU for all of your love and support as we build RM. In this special episode, we checked-in from some of your favorite guests from Season 1 and 2. And at the end Rachael and I share our letters to our parents. This podcast is dedicated to Amalia "Lia" Kent, on what would be her 57th Birthday. We love you, Lia. Let us know what you think of the episode by commenting on the episode art on instagram. --- Episode Sponsor: NeuroReserve Visit neuroreserve.com to purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) Get In Touch: Follow us on instagram @remembermepodcast, and visit our website www.remembermeftd.com for our blog, newsletter sign-up and more content! Support: You can support our podcast by buying us a coffee, shopping our merch store, leaving us an apple podcast review and spreading the word! --- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

This week we speak with an anonymous listener who shares their journey of undergoing genetic testing for Frontotemporal Dementia (FTD). Tip: We recommend listening to Expert Chat: Genetics & FTD with Diane Lucente, MS, LCGC, Manager of Genetic Counseling at world renown Massachusetts General Hospital Frontotemporal Disorders Unit. Let us know what you think of the episode by commenting on the episode art on instagram. --- This Week's Sponsor: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) Get In Touch: Follow us on instagram @remembermepodcast, and visit our website www.remembermeftd.com for our blog, newsletter sign-up and more content! Support: You can support our podcast by buying us a coffee, shopping our merch store, leaving us an apple podcast review and spreading the word! --- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

For our second episode of Season 3, we hear from Jackie. Jackie shares her perspective of her mother Tammy's Frontotemporal Dementia diagnosis. Tammy's story of being misdiagnosed and then officially diagnosed during the COVID pandemic - is absolutely fascinating. As is the life and journey of the fabulous, fierce Tammy. Jackie is so vulnerable, open and honest - sharing the not so perfect mother/daughter relationship growing up - and how it has changed now. Listen and we know you will fall in love with Jackie, and the infamous Tammy. Let us know what you think of the episode by commenting on the episode art on instagram. --- Get In Touch: Follow us on instagram @remembermepodcast, and visit our website www.remembermeftd.com for our blog, newsletter sign-up and more content! Support: You can support our podcast by buying us a coffee, shopping our merch store, leaving us an apple podcast review and spreading the word! Visit our sponsor NeuroReserve neuroreserve.com to purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) --- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support

WE'RE BACK! And our Season 3 Premiere is a follow-up to our first-ever episode "Frank". This time we hear from Rachael's mother, Susie. She shares her perspective of Frank's journey with Frontotemporal Dementia (FTD), and opens up about the tough decisions she had to make. The second half of the episode is (of course) filled with amazing stories of who Frank was before dementia. This one is guaranteed to make you laugh and cry - and fall in love with Frank. Let us know what you think of the episode by commenting on the episode art on instagram. --- Episode Sponsor: NeuroReserve Visit neuroreserve.com to purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) Get In Touch: Follow us on instagram @remembermepodcast, and visit our website www.remembermeftd.com for our blog, newsletter sign-up and more content! Support: You can support our podcast by buying us a coffee, shopping our merch store, leaving us an apple podcast review and spreading the word! --- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."

In our Season 2 finale, we speak with our new friend Mitra. Mitra tells us all about the FTD journey she is currently on with her father Behrooz. Mitra's road to learning her father was ill actually started with her own health crisis, and thus began her search of what was wrong with Behrooz. Mitra is a wonderful storyteller, and shares all about the fascinating life that Behrooz lived before his FTD diagnosis. It is one of the most touching father-daughter stories we've ever heard, and we are so thankful she shared it with us. You won't want to miss the very special ending... We'll be back with Season 3 on July 12th. Thank you to all who were a part of making this season a huge success - we raised awareness, we helped others feel less alone AND we tried our very best to always, always accept the good. Thank you. While You're Waiting for Season 3, You Can: - Follow us on instagram @remembermepodcast for new daily content - Sign-up for our bi-weekly newsletter "All the Good Things" on our website - Catch up on old episodes on our site or on Apple Podcasts & Spotify - Start journaling with us! Buy anything on Promptly's website with our code REMEMBERME15 for 15% off by using this link. ---- Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."

Rachael and Maria sit down for the third and final "side chat" of the season. They discuss the big milestones of the last few months, their dreams and plans for the future of Remember Me AND what it's been like to push through and produce the podcast after losing Lia and Frankie. We'll be on a break after next week until Monday, July 12th. In the meantime, catch up on old episodes and follow us on instagram! Here are 4 ways to support our podcast without spending any money! 1) Leave us a review on Apple Podcasts. 2) Follow us on Instagram & share our page on your stories! 3) Visit our website and subscribe to our bi-weekly Newsletter "All the Good Things" ------------------ Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." Follow us on Instagram @remembermepodcast. Visit our website www.remembermeftd.com ------------------ Use our Code REMEMBERME15 for 15% of everything on the Promptly Journals website by clicking here.

Heather shares the story of her father, Ed, who she cares for at home alongside her mother. In this episode we really tackle all the feelings around watching a parent live with this disease. Heather is wonderfully vulnerable and we loved having raw and honest conversation. We also loved learning about wonderful Ed -before FTD- all about his art, his teaching, and his love for his friends and family. Enjoy. --- Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." Follow us on Instagram @remembermepodcast and visit our website www.remembermeftd.com

Abrar shares the story of his father, Shakeel. This is a episode filled with beautiful memories and an inspiring story of a family and community that worked together to support each other and love each other through tragedy. Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."  Follow us on Instagram @remembermepodcast.  Visit our website www.remembermeftd.com

Laurie Klier, Certified Dementia Practitioner, specializing in senior advocacy and compassionate care initiatives, chats with us all about how to advocate for your loved one living in a long term care facility. She also tells us how she got into her work and the inspiration behind her heart centered business Nana's Books. More resources on this topic will be shared in this week's newsletter, so be sure to sign up at www.remembermeftd.com today. --- Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." Follow us on Instagram @remembermepodcast. Visit our website www.remembermeftd.com

Nancy's story is told by her daughter, Olivia. Nancy was an American who moved to Spain in her 20s and married and raised her family there - all while also becoming a blossoming entrepreneur.  Olivia shares how she discovered her mother had FTD, and her experience caring for her mother while going back and forth from the US to Spain. --- Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." Follow us on Instagram @remembermepodcast. Visit our website www.remembermeftd.com

Sharon Hall will be joined by Rebekah Wilson, MSW, https://www.agingcarecoach.com/ to discuss the hard decisions we need to make in the care of those with Frontotemporal Dementia (FTD). When do I take away the car keys? When do I consider placement? How do I decide on when to call hospice? How do I brace myself for end of life decisions like when to no longer give antibiotics? These are the questions that haunt us as care partners to those with FTD. We hope this podcast will give you some guidance and support in making those hard decisions. The emotions can be overwhelming and we second guess ourselves. This podcast will put those doubts in perspective. Join our FTD Care Chat every Monday and Saturday at 7:00pm ET on caregiving.com to talk to other care partners. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Canadian author and illustrator Kathryn Harrison created her picture book “Weeds in Nana's Garden” to help children who have family members with dementia understand and be aware of the disease. She created the book after her mother was diagnosed with Frontotemporal Dementia (FTD) and Kathryn's children began asking questions about their grandmother's odd behavior. On the show Kathryn talks about the healing properties of art, how her life changed as her mother declined and what her children learned from being involved in their grandmother's care. She also shares how her daughter's friends at school got involved in the process of creating “Weeds.” Note: this episode originally aired September 8, 2016. Since then Kathryn's book has also been published in French, German and Portuguese. Proceeds from the book go to support the Alzheimer Society of Canada. Website for “Weeds In Anna's Garden”: Weeds Explore Kathryn's personal website Learn more about FTD Music: “Tomoshibi” by Kakurenbo | CC BY NC | Free Music Archive

Author and illustrator Kathryn Harrison created her picture book “Weeds in Nana's Garden” to help children who have family members with dementia understand and be aware of the disease. Kathryn created the book after her mother was diagnosed with Frontotemporal Dementia (FTD) and her children began asking questions about their grandmother's odd behavior. In this episode she talks about the healing properties of art, how her life changed as her mother declined and what her children learned from being involved in their grandmother's care. Kathryn also shares how her daughter's friends at school got involved in the process of creating “Weeds.” Learn more about “Weeds In Anna's Garden”: http://bit.ly/2cCSJlD Explore Kathryn's personal website: http://kathrynharrison.ca For each book sold, one dollar goes here: http://www.alzheimer.ca/en More about FTD: http://bit.ly/1Uj5T5R Music: “Tomoshibi” by Kakurenbo | CC BY NC | Free Music Archive

Alzheimer's Speaks Radio wants all voices to join together in the conversation to share knowledge, research and insights from all angles.  There is no better way to raise awareness than being inclusive.  Let's join forces and win this battle together! Today, we will have a two hour feature show on Frontotemporal Dementia (FTD). Our guests will include Howard Glick who is diagnosed with FTD, Lisa Griffin a Care Partner for her husband, Sharon S. Denny, Program Director at Association for Frontotemporal Degeneration (AFTD), Dr. Holm with Bethesda Hospital and Heidi LaMeyer- Prelude Wellness Director and Judy Berry with Dementia Specialist Consulting who is a consultant for Prelude Memory Care. We encourage anyone who is dealing with or interested in dementia to join the conversation by calling in live at (714) 364-4757 or using the chat box! For additional resource and information check our Alzheimer's Speaks Resource WebsiteSupport this Show: https://alzheimersspeaks.com/donate-now/See omnystudio.com/listener for privacy information.