Confessions of a Reluctant Caregiver

When Rachel Shapiro's daughter suffered a severe stroke just before her second birthday, Rachel and her husband were told their child might not survive. Despite the devastating prognosis, they refused to give up, navigating a complex medical journey that transformed their family's life. Their daughter now lives with significant medical needs, requiring a tracheostomy and ventilator support, which initially seemed overwhelming to Rachel.What makes Rachel's story remarkable is her determination to maintain a full, vibrant life despite the intense caregiving responsibilities. Working full-time in marketing while managing her daughter's complex medical care, she and her husband have intentionally preserved their family's sense of normalcy. They continue to be active in their community, host events, and ensure their other children feel supported and engaged. Rachel's approach is characterized by a deep faith and a belief that their current circumstances serve a greater purpose.Her perspective on caregiving is both practical and inspirational. Rachel approaches challenges with low expectations and a remarkable ability to adapt, viewing unexpected changes as opportunities rather than obstacles. She emphasizes the importance of open communication with her spouse, maintaining their relationship through shared goals, and making time for self-care, such as occasional shopping trips or simply enjoying a quiet meal. Her story illustrates that while caregiving can be incredibly demanding, it doesn't have to consume or define one's entire existence.Thank you to our sponsor: CareScoutLearn more about Confessions of a Reluctant Caregiver: https://www.confessionsofareluctantcaregiver.com/** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**

Stacy Ryan's powerful story is a testament to love, resilience, and the human capacity to heal after profound loss. Her journey began with her own cancer diagnosis at 45, which she survived, followed by her husband John's battle with cancer that ultimately claimed his life in December 2020. Throughout their cancer journey, they demonstrated an extraordinary partnership, supporting each other with deep love and commitment, facing each challenge together with grace and vulnerability. After losing John, Stacy chose to honor his wishes by living her life to the fullest. She channeled her grief into creative pursuits, writing a three-book series about her experiences and launching a podcast focused on her journey through widowhood. Her commitment to healing and personal growth led her to unexpected places, including finding love again with another widower named John, with whom she is now building a new life. In a beautiful tribute to her resilience, she is also preparing to open a yoga and wellness studio in the fall, continuing to pursue her passions and create meaning from her experiences. What makes Stacy's story particularly inspiring is her approach to grief and the healing process. She refused to be defined by her loss, instead choosing to embrace joy, laughter, and new opportunities. Her message is clear: there is no single path through grief, and it's possible to honor past love while creating space for new love and experiences. Her journey demonstrates that life can be “brutally beautiful”—filled with profound pain, yet also incredible hope and renewal.About Stacy:Stacy Ryan embodies resilience, completing an Ironman at 36, surviving cancer at 45, and navigating widowhood at 52. These experiences fuel her work as a self-published author and podcaster, where she shares her journey of life, love, and loss, aiming to help others on similar paths. Her diverse career, from corporate HR to fitness director, laid the foundation for her current endeavors. Her podcast, "My Whole New Life," launched in 2023, followed by her "Whole New Life" three-book series in 2024. Stacy finds joy in motivating others to pursue what resonates with them, whether it's achieving a fitness goal or writing a book, reflecting her belief that anything is possible. Outside of work, she enjoys cycling, yoga, and time with friends and family, creating lasting memories.Thank you to our sponsor: CareScoutLearn more about Confessions of a Reluctant Caregiver: https://www.confessionsofareluctantcaregiver.com/** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

This week, Ari Medrano delivers a powerful testament to the depth and complexity of caregiving. As a Mexican immigrant who came to the United States at age one, Ari's approach to caregiving is deeply rooted in her family's values of service, love, and compassion. Throughout the episode, she shares multiple experiences of caregiving, including caring for her cousin with bone cancer, a homeless woman named Teresa, her brother who was a victim of a violent crime, and her mother during critical health challenges.Her caregiving journey is marked by a remarkable ability to love creatively and find joy even in the most challenging circumstances. Ari's approach goes beyond traditional caregiving, incorporating humor, sensory experiences (such as using specific scents to uplift spirits), and an unwavering commitment to supporting not only the patient but also the healthcare workers around them. Her personal experiences, including her health challenges like heart disease and a brain tumor, have shaped her perspective, allowing her to approach caregiving with empathy, resilience, and a profound understanding of both giving and receiving care.What stands out most about Ari is her philosophy of "givers gain" and her conviction that we can experience both pain and joy simultaneously. Her stories illustrate how caregiving is not just a duty, but a calling that requires creativity, emotional intelligence, and a deep capacity for love. Whether it was bringing Santa Claus to her mother's hospital room, providing comfort to a homeless woman, or supporting her brother through his challenging health journey, Ari embodies the true spirit of compassionate caregiving.About Ari:Ari Medrano is a Mexican immigrant who arrived in the USA as a one-year-old, the middle child in a family of five. Her parents have been married for 58 years. Ari's caregiving journey deepened when she moved from Texas to California to care for her mother and youngest brother, who both became ill simultaneously. She provided home hospice care for her brother in his final weeks, following his brutal injuries from a bank robbery. Concurrently, she cared for her mother in the hospital for six months; her mother is now at home, receiving care from all siblings.As a mother of two sons, Ari also acknowledges their caregiving role during her own extensive health battles, which included multiple tumors, heart disease, a brain tumor, and numerous surgeries. She refers to herself as an "Olympian patient" and serves as a go-to health advocate for her family, friends, and community. She is notably a "1% Medical Miracle" who regained full mobility after being paralyzed by a craniotomy for a brain tumor extraction. Ari's legacy is defined by her philosophy: "Love God, Love People...creatively."Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Julia Mayer, a clinical psychologist, shares her extensive caregiving journey spanning nine years, which involved caring for her father after her mother's unexpected passing and then supporting her husband Barry's mother, Jean, and stepfather, Steve. After her mother died during a heart surgery recovery, Julia and her siblings stepped in to care for their father, with her older brother taking the primary caregiver role while Julia provided weekend relief. Her father passed away about 15 months after her mother, and shortly after, they became involved in caring for Barry's parents, who were experiencing financial difficulties.Julia and Barry relocated Jean and Steve from Florida to an apartment near them, managing their care through the use of aides, a notebook system, and personal visits. Despite Jean's combative nature and strained relationship with Barry, Julia approached caregiving with compassion, patience, and a sense of humor. Her professional background as a psychologist helped her maintain emotional distance and communicate effectively, often serving as a mediator between Jean and Barry. She focused on preserving her family relationships through open communication and involving her children in the caregiving process.Throughout their caregiving experience, Julia and Barry collaborated closely, supporting each other emotionally and eventually turning their experiences into professional resources. They are set to publish "The Caregiver's Answer Book" with AARP in July 2025, providing comprehensive guidance for caregivers in various situations. Julia's approach to caregiving emphasizes three key principles: not taking the care recipient's suffering personally, maintaining empathy and compassion, and seeking support for oneself during the challenging caregiving journey.Social MediaFacebook: @Julia Mayer X: @JuliaLMayer23Instagram: Julmayer23LinkedIn: @Julie MayerWebsite: www.loveandmeaning.comAbout Julia:Julia L. Mayer, Psy.D is a clinical psychologist in private practice in Media, PA. She received her bachelor's degree from the University of Pennsylvania and her doctorate in clinical psychology from Widener University. Prior to becoming a psychologist, she wrote plays and interned as an assistant to the director for a theater company in New York. She has published professionally in the APA journal, Families, Systems & Health. She also co-authored various articles with her husband, Barry J. Jacobs, Psy.D., for WebMD and HealthCentral. She has been doing individual and marital therapy for 31 years, specializing in working with women who have histories of sexual trauma, eating disorders and troubled marriages. She has increasingly focused her work on supporting caregivers. Since 2018, she has been doing a weekly podcast about psychology and social justice, called Shrinks on Third. For nine years, she was a caregiver for her father with vascular dementia and Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

"I became a forever parent caregiver." - Jesse RonneWhat happens when caregiving, loss, and love collide? Jess Ronnie, writer, speaker, podcaster, and founder of The Lucas Project, brings her powerful story to the mic, offering a moving look into parenting a child with special needs, enduring grief, and building a future rooted in compassion and advocacy.Jess opens up about the emotional and physical toll of raising her son Lucas, who has profound special needs, while managing life as a "forever caregiver" and navigating the heartbreak of losing her husband, Jason. She shares the raw realities of caregiving, the denial that can come with special needs diagnoses, and the heavy yet hopeful journey toward acceptance, remarriage, and healing.This episode is a powerful reminder that caregivers are not alone. Jess discusses:Surviving as a parent in crisis modeRebuilding identity after caregiving takes overBalancing love and loss in blended familiesThe critical importance of support systems and communityHow her nonprofit, The Lucas Project, is creating change for caregivers across the countryAbout Jesse:Jess Ronne is an author, speaker, podcast host at Coffee with Caregivers, associate producer of the Unseen Documentary, and caregiver advocate. She is founder and executive director of The Lucas Project, a non-profit dedicated to providing recognition, resources and respite support for special needs families. She and her husband Ryan live in Michigan with their 8 children, including their son Lucas who has profound disabilities. Her story of beauty from ashes has been shared on The Today Show, Daily Mail and Huffington Post and is detailed in her memoir Sunlight Burning at Midnight. To follow the ongoing saga she can be found at www.jessplusthemess.com or purchase her latest books Blended with Grit & Grace, Lovin' with Grit & Grace, and Caregiving with Grit & Grace.Social MediaFacebook: www.facebook.com/jessronneofficialWebsite: www.caregiverdoc.comWebsite: www.thelucasproject.orgWebsite: www.jessronne.comThank you to sponsor: CareScoutLearn more about Confessions of a Reluctant Caregiver** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answersSupport the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

"I felt this sense of odd FOMO." - Taylor FixMeet Taylor Fix, a remarkable caregiver whose journey began in childhood. Growing up in a close-knit family, caregiving was second nature. But it wasn't until she became a farmhand and full-time caregiver for Bill, an elderly man she bonded deeply with, that Taylor truly stepped into her calling.

"You don't know what you don't know." - Dave KrikacWhat happens when love meets lifelong responsibility?  The realities of caregiving for individuals with special needs, the triumphs, the trials, and the transformative love it takes to show up every day can be daunting.. Meet Dave Krikac, a devoted father raising his daughter with autism, as he shares the raw and inspiring story of his caregiving journey.

"I am sunny with a chance of tornadoes." - Yvette LeFlore

“Caregiving never ends. No, it never stops.” - Natalie and JJ Caregiving is a journey—full of love, lessons, and let's be honest, a few laughs along the way. In this candid conversation, we dive into the realities of caregiving: navigating skilled nursing facilities, managing emotional and financial stress, and finding strength in community. We're also sharing what's in store for 2025 and beyond. Too good to miss!

“I was in therapy, that was a lifeline.” - Allyson SchrierThis is a powerful one! Natalie and JJ sit down with Allyson Schrier as she opens up about her deeply personal and emotional journey caring for her husband, who was diagnosed with Frontotemporal Dementia (FTD).Allison candidly shares the early signs of FTD, the heartbreaking misdiagnosis, and the uphill battle of navigating a complex healthcare system. From the shifting family dynamics to the emotional weight of caregiving, this conversation pulls back the curtain on what it really means to care for a loved one with dementia.

“Never say never in  your journey.” - Eleni ParisNatalie and JJ sit down with Eleni Paris, a licensed therapist and devoted mom, as she shares her deeply personal journey raising her daughter Sophia, who has cognitive and speech impairments.Eleni opens up about navigating cultural expectations, emotional burnout, and the realities of parenting a child with developmental delays—all while juggling her professional identity. From the search for a diagnosis to managing anxiety in public spaces, she speaks candidly about grief, joy, faith, and the power of vulnerability.If you're a caregiver, a parent of a child with special needs, or simply looking for real talk about love, resilience, and finding purpose through challenges—this one's for you.

"He chose to keep living." - Amy ShawWhen life takes an unexpected turn, how do you find the strength to carry on? JJ and Nat sit down with Amy Shaw to share her deeply moving story raising a large family, including children with special needs, and navigating the heartbreaking journey of her husband Brian's terminal illness.From the first signs of illness to the devastating diagnosis of brain cancer, Amy opens up about the raw emotions, challenges, and unwavering love that defined their final moments together. She reveals the lessons learned through caregiving, the impact on family life, and the importance of legacy, hope, and resilience.

"You have to be ready to roll with it." - Alfredo BotelloStepping into the role of caregiver isn't always a choice, it's a journey filled with love, loss, and unexpected lessons. J.J. and Natalie welcome novelist and screenwriter, Alfredo Botello to open up about caring for his mother after his stepfather's passing and navigating the challenges of Alzheimer's and assisted living.

"I wanted to make the most of it." - Dona Kim MurpheyCaregiving is never just about one person, it's about family, culture, and community. Natalie and J.J. sit down with Dr. Dona Kim Murphey, neurologist and caregiver, to explore the deeply personal and often unspoken challenges of caregiving.From cultural expectations to the emotional and relational toll caregiving takes, this conversation dives into what it truly means to care for a loved one—especially from a distance. Dr. Murphey shares her journey shaped by her family's experiences with illness, offering practical strategies for caregivers, the power of micro moments of self-care, and the evolving role of technology in making caregiving more manageable.

"I suffered from caregiver fatigue." - Maureen EliasMaureen shares her journey from a structured military career to the unpredictable world of caregiving. As a mother of children on the autism spectrum, she opens up about the challenges and triumphs of parenting, the impact of military life on family dynamics, and the importance of advocacy and community support. Through personal stories of resilience, she highlights the need for understanding, resources, and the power of acceptance in the face of adversity. Maureen Elias, a former U.S. Army counterintelligence agent, transitioned from military service to a life dedicated to advocacy and caregiving. After a medical separation in 2006, she spent 11 years as a stay-at-home mom while her husband, a 21-year Army veteran, served overseas. Raising three children on the autism spectrum, Maureen pursued a master's in mental health counseling, leading to roles in top veteran service organizations, the House Committee on Veterans Affairs, and the Department of Veterans Affairs. She also teaches storytelling to veterans and has recently embraced off-roading as a newfound passion.Social MediaLinkedin www.linkedin.com/in/maureeneliasTwitter: @maureenelias2Instagram: @maureenelias2Highlights:

"Life is really short and it changes." - Kyle DaquannaJJ and Natalie sit down with Kyle Daquanna, a male caregiver, as he shares his powerful journey of balancing work, family, and caregiving responsibilities after his father's stroke. Kyle opens up about the emotional and logistical challenges of caregiving, the impact of family dynamics, and the difficult medical decisions caregivers face. The discussion highlights the importance of advocacy in navigating insurance systems, preparing for future caregiving needs, and finding community support. Whether you're a caregiver or supporting a loved one, this episode offers valuable insights into resilience, personal growth, and the complexities of the caregiving experience.Kyle is a 3rd generation Floridian who lives in Sarasota Florida. He's a passionate single father of 2 boys, Adam and Kai who are 9 and 7 and he's an active Dad! Kyle coaches football, baseball and loves to take the boys camping, fishing and anything else outside! Kyle is a family man and was the 1st in his family to ever go to college. He works at Empathy where he serves as the Director of Employer Solutions. Kyle is active in his church and serves with the kids and "Next generation" - something he's very passionate about. 

"I forgot how to care for myself." - Tara RossIn this powerful episode of Confessions of a Reluctant Caregiver, hosts Natalie and JJ welcome guest, Tara Ross to dive deep into the raw realities of caregiving—especially within military families. Tara opens up about her journey from falling in love with John, a dedicated Navy submariner, to facing the life-altering challenges of his traumatic brain injury.This emotional conversation unpacks the hidden struggles of caregivers, from burnout and emotional exhaustion to the fight for proper health advocacy. Tara shares how relocating to Ohio, navigating caregiving through COVID-19, and coping with personal loss shaped her resilience. She also reveals hard-earned lessons on self-care, setting boundaries, and maintaining personal identity while supporting a loved one.

"He needed us more than we needed him." - Nick GaylordThis is a powerful one! Hosts Natalie and JJ sit down with Nick Gaylord to explore the raw realities of caregiving, grief, and complex family dynamics. Nick opens up about the emotional toll of caring for his father, the struggles of managing a difficult relationship, and the conflicting emotions of loss, relief, and anger after his passing.This heartfelt conversation sheds light on:✅ The challenges of caregiving for a parent with whom you have a complicated past✅ Processing grief, denial, and emotional burnout✅ The importance of seeking support and sharing your story✅ How forgiveness can lead to healing and personal growthIf you're navigating the ups and downs of caregiving, loss, or strained family relationships, this episode offers honest insights and real-life experiences that can help you feel seen and supported.Learn more about Nick Gaylord:Nick has always been driven to help others. With a talent for numbers, he built a 28-year career in pharmaceutical Quality Assurance, ensuring life-changing medicines reach those in need. Yet, he longed for a deeper connection.In January 2024, Nick launched Our Dead Dads, a podcast that creates a safe space for grief, laughter, and open conversations about losing a parent. Inspired by his own complex relationship with his late father, he hopes to normalize discussions around grief, trauma, and healing—helping others feel seen, heard, and less alone.Social Media:Website: https://www.ourdeaddads.com/Twitter: https://x.com/ourdeaddadspodInstagram: https://www.instagram.com/ourdeaddadspodFacebook: https://www.facebook.com/ourdeaddadspod/LinkedIn: https://www.linkedin.com/in/ourdeaddadspod/YouTube: https://www.youtube.com/@ourdeaddadspodPodcast URL: https://ourdeaddads.buzzsprout.com

"I was feeling angry, I was feeling resentful." - Kate WashingtonJJ and Natalie sit down with author Kate Washington to uncover the emotional, financial, and mental health challenges of caregiving. Kate shares her personal journey of caring for both her mother and husband, revealing the unseen struggles caregivers face, from healthcare system hurdles to burnout and grief. Kate and the sisters, JJ and Natalie reflect on their own caregiving experiences, highlighting family dynamics, systemic issues, and the path toward healing.

"Look for the glimmers in caregiving." - Mark WilsonHosts JJ  and Natalie sit down with Mark Wilson, a former corporate executive who left his successful career to become a full-time caregiver after his mother's Alzheimer's diagnosis.

"Dementia gave us that gift of closeness." - Katrina PrescottIn this compelling episode of The Confessions of a Reluctant Caregiver podcast, hosts JJ and Natalie dive into the world of caregiving with special guest Katrina Prescott, a media producer turned caregiving advocate.

"It's OK not to know everything." - Tracee LoranIn this heartfelt episode of Confessions of a Reluctant Caregiver, hosts JJ, Natalie, and Tracee Loran dive into the unexpected twists and turns of caregiving. Tracy shares her deeply personal story of stepping into the caregiver role for her grandmother after a serious fall, shedding light on:

"I finally found my purpose." - Adrienne Marioles

"Let's not sugarcoat it; it's hard." - Dr. Jacob KendallIn this episode of Confessions of a Reluctant Caregiver, JJ and Natalie chat with Dr. Jacob Kendall, who opens up about his life-changing experience as a caregiver after his father's health crisis. It's a conversation filled with heartfelt stories, relatable struggles, and powerful insights into the rollercoaster of caregiving.Jacob shares what it's really like to juggle the emotional and practical challenges of stepping into a caregiving role, all while trying to keep up with life's other demands. Natalie, JJ and Jacob dive into the importance of family dynamics, planning ahead, and how multi-generational living might just be the future of caregiving.This episode feels like a conversation with old friends as they tackle the messy, rewarding, and sometimes frustrating realities of caregiving. It's packed with tips, hard-earned lessons, and a reminder that you're not alone on this journey.Social Media:Website: https://jacobevanskendall.comLinked In: https://www.linkedin.com/in/jacobevanskendall/Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

"You can bring back the color and the light." - Kelci JagerKelci Jagger shares her powerful and emotional story of overcoming tragic loss and grief through the support of her community and finding power in living in the light. Her incredible journey chronicles a series of tragic events including a dangerous accident with her two sons and her husband's heart-breaking leukemia diagnosis. Losing a loved one can be one of the most painful experiences we go through in life, and it's often hard to imagine how we can move forward without them. If you're struggling with grief or loss, Kelci's story is an inspiration in perseverance and love.*******About Kelci Jager:Kelci Jager is a Certified Life Coach, Grief Coach, Registered Nurse, and Author of the book “A Million Miracles and the One That Never Came” and found herself navigating the challenging terrain of grief when she lost her 40-year-old husband to leukemia. Left to pick up the pieces of her shattered life as a solo parent to their four sons, Kelci faced the fear of her children losing her too. However, her determination to RISE and thrive became her driving force. With a blend of professional expertise and a deeply personal journey as a widow and solo parent, Kelci possesses a strong foundation and a unique perspective. She is passionately committed to providing support and guiding others on their grief journey.Links: Website: RISEwithgrief.comSocial Media: Facebook: www.facebook.com/kelci.calljagerInstagram: www.instagram.com/kelci.jager/LinkedIn: www.linkedin.com/in/kelci-jager-6a3788a0/Buy The Book “Million Miracles That Never Came”************Support the showConfessionsSupport the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

In this holiday episode of Confessions of a Reluctant Caregiver, we bring humor, honesty, and reflection to our caregiving journey over the last year. Join us as we look back on the highs and lows of caregiving, with no topic off-limits!Natalie discusses the launch of our new Care Forward initiative, which connects individuals in need with local resources, while JJ shares a heartwarming moment baking brownies with our mom—a reminder of both progress and challenges. We also dive into deeper, more complex topics, including anticipatory grief and Jason's ongoing health concerns.As always, we balance the tough conversations with some light-hearted fun. The episode wraps up with a "lightning round" where we recount our most challenging, proud, and funny caregiving moments, including the story of our mom stockpiling Swiss Cake Rolls and Cokes at the nursing home.Looking ahead to 2025, we're excited to continue supporting caregivers with more podcast episodes, caregiver retreats, and ongoing efforts to make a difference in the caregiving community.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Kendall Cloeter's passion for affordable housing and community revitalization shines through in her work with the Renovation Alliance. As a self-described "social worker by trade," Kendall brings a deep understanding of the challenges low-income homeowners face in the Roanoke Valley and a commitment to making a difference.Under Kendall's leadership, the Renovation Alliance has grown from a small group of 50 volunteers rebuilding just five homes 25 years ago to an organization that now aims to serve 100 homes annually. Kendall's dedication to preserving affordable housing and empowering homeowners to age in place with dignity is genuinely inspiring. Through a combination of volunteer labor and skilled professional partnerships, the Renovation Alliance tackles a wide range of critical home repairs, from simple tasks like installing grab bars to more complex projects like HVAC replacements.Kendall's insights into the impact of the Renovation Alliance's work are both heartwarming and eye-opening. By preserving homeownership and the equity that comes with it, the organization is helping to address issues of generational wealth and social justice. Moreover, the Renovation Alliance's focus on prioritizing the needs of older adults, individuals with disabilities, veterans, and single-parent households with young children underscores their holistic approach to community revitalization. Kendall's passion for this work shines through as she shares the stories of homeowners who have regained their independence and sense of pride in their homes while strengthening the fabric of the Roanoke community.About Kendall:Kendall Cloeter, a native of Roanoke, Virginia, is deeply connected to her community, where she now raises her family. Holding a Master of Social Work degree, Kendall discovered her passion for affordable housing while serving in AmeriCorps with Renovation Alliance, the organization she proudly rejoined in 2023. Her work in AmeriCorps ignited her commitment to preserving affordable housing and enhancing housing quality.During her time in Richmond, Virginia, Kendall spent five years addressing housing and homelessness issues with the Virginia Department of Housing and Community Development. This experience broadened her understanding of housing challenges and strengthened her dedication to making a difference. Returning to Renovation Alliance, Kendall applies her expertise to support her community and advocate for improved housing solutions.Kendall resides in Roanoke County with her husband, two children, and their dog, Franklin.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Thom Deleuw's story reflects dedication and a father's love. After a 34-year career in law enforcement, Thom found his true purpose when his son, Jack, had a serious motorcycle accident that left him paralyzed from the chest down. Thom became Jack's full-time caregiver, viewing it as a "willing obligation" that highlights their strong bond.Thom's journey has been marked by resilience and adaptability. He prepared for the “new role” by taking online courses and utilizing the VA caregiver support program, ensuring he was equipped to provide the specialized care Jack required. Despite the challenges, Thom maintains a positive outlook, emphasizing that the work doesn't "seem so bad" when you're caring for someone you love so deeply. His willingness to take on the role, rather than outsourcing it, speaks volumes about his unwavering commitment to his son's well-being.Throughout their journey, Thom and Jack have faced setbacks, including a second motorcycle accident that left Jack paralyzed from the sternum down. Yet, their unbreakable spirit shines through, with Thom expressing pride in Jack's determination to regain his mobility and independence. The duo's shared sense of humor and camaraderie have been instrumental in navigating the ups and downs, demonstrating the power of a father-son relationship rooted in unconditional love and support.About Thom:Thom was born on December 8, 1954, in Norfolk, Virginia, and was raised in a middle-class family where hard work was valued. After spending his early years in Virginia, he moved to Florida for two years before returning to North Carolina, where he graduated from high school in Greensboro in 1973.With aspirations of becoming a police officer, Thom joined the Army in November 1973 and attended military police school. His first duty station was in West Berlin, Germany, during the time the Berlin Wall was still up, which proved to be a significant adventure.After three years, Thom returned home, briefly pursued a golf career, and worked as an assistant golf pro before becoming a police officer in Portsmouth, Virginia. In 1984, he moved back to North Carolina, where he began his long and rewarding career in law enforcement, eventually meeting his wife while on duty.Thom's life took another turn when he became a dedicated father to his son, Jack. Their bond deepened over the years, especially after Thom gained full custody when Jack was 12. Jack followed in his father's footsteps and enlisted in the Army, embarking on his own journey that included both triumphs and challenges.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

This week's educational episode showcases the incredible work of Semper Fi and America's Fund, an organization that has been providing vital support to service members, veterans, and their families for over 20 years. At the heart of this organization is Sondria Saylor, the Executive Vice President, whose personal connection to the military community runs deep.Sondria's connection to the military began in 1984 when she became an active-duty spouse. In 2003, she saw the challenges faced by wounded service members returning from Iraq and knew action was needed. Along with other military spouses, Sondria met medevacs at the hospital, providing essentials and comfort to these brave individuals. This grassroots effort grew into the Semper Fi and America's Fund, which has provided over $500 million in support and programs to 33,000 service members across all branches of the U.S. armed forces.Sondria's dedication to the mission of Semper Fi and America's Fund is truly inspiring. Through comprehensive case management and lifetime support, she and her team ensure that service members, caregivers, and their families receive the care and resources needed to navigate recovery and reintegration. Semper Fi and America's Fund serves as a beacon of hope and community for those who have sacrificed for our country, offering caregiver retreats, sports programs, and holiday celebrations.About Sondria:Sondria is the Executive Vice President of Semper Fi & America's Fund, where she oversees Case Management for the Western Region, Communications Operations, and the Apprenticeship, Jinx McCain Horsemanship, and Veteran to Veteran (V2V) Programs.Before her current role, Sondria was Vice President of Case Management in the Western Region from 2014 to 2021, Senior Director of Case Management from 2005 to 2014, and Director of Donor Operations from 2004 to 2005.Sondria's connection to the military began in 1984 when she became an active-duty spouse. From its early years in the 1980s until 2004, she was involved in the evolution of Marine Corps Family Readiness, serving as Key Volunteer Advisor to the 1st Marine Division.As Key Volunteer Advisor in 2003, she worked alongside Karen Guenther to support returning wounded at the Naval Hospital at Camp Pendleton, which led to the creation of Semper Fi & America's Fund.Sondria's contributions to Family Readiness earned her induction into the US Field Artillery Honorable Order of Molly Pitcher in 1993. In 2007, her work with Semper Fi & America's Fund was recognized by Cookie Magazine with the 1st Annual Smart Cookie Award, honoring women making a difference.Raised and educated in Fairfax, VA, Sondria has extensive experience in small business ownership and management. She has been married to her husband Ben, a retired Marine Colonel, for 38 years, and they have two adult sons.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Crystal Lane's story is one of faith, determination, and an unwavering commitment to supporting her husband, JP, a retired Army Specialist who lost both his legs in an IED explosion in Afghanistan. Despite their challenges, Crystal and JP's journey is a testament to the power of love and determination.At just 22 years old, Crystal met JP at a gym in San Antonio, where he was recovering from his injuries. Drawn to his courage and faith, Crystal quickly realized JP was the one for her, and within six months, the couple had married. However, transitioning into the caregiver role was difficult, as Crystal had to learn to balance her identity as a wife and a caregiver. Through prayer and perseverance, she found her purpose in supporting JP and advocating for other military families facing similar challenges.Today, Crystal and JP are co-founders of the JP Lane Foundation, which aims to provide marriage retreats and resources for veterans, first responders, and spouses. Their story is a powerful reminder that love and faith can conquer all, even in the face of adversity. Crystal's dedication to serving her hero husband has inspired countless others, and her journey continues to be a testament to the transformative power of caregiving.About Crystal:Crystal was born and raised in Brownsville, TX. She currently lives in San Antonio, TX, with her husband, JP Lane. She will receive her Bachelor's in Psychology from Grace Christian University this October. Being a caregiver to her warrior is her top priority. Crystal is the Executive Director for JP's Journey and Co-founder of the JP LaneFoundation, which will launch soon. JP and Crystal are also National Ambassadors for Helping a Hero, where we speak on building adaptive homes for combat-wounded veterans and their families. Crystal and JP, also known as Team Lane, promotes post-traumatic growth to combat wounded veterans and others across the country, helping them build a mindset to ‘Never Give Up, Never Surrender.' Their journey of faith, determination, and love of life is inspiring.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Established in 1987 by former First Lady Rosalynn Carter, the Rosalynn Carter Institute promotes the health, strength, and resilience of caregivers at every stage of their journey. As Mandy Barr, a caregiver coach and engagement specialist at the Institute, eloquently explained, the organization is dedicated to supporting caregivers from all backgrounds—whether they are military, veteran, or civilian families.One of the standout aspects of the Rosalynn Carter Institute's approach is its focus on addressing the complexities and nuances of caregiving. Through research-backed programs and resources, the Institute aims to provide tailored support that meets each caregiver's unique needs. The Institute offers valuable tools, such as the preparedness guide, which helps caregivers, especially those in military families, prepare for emergencies and disasters. By training first responders on these resources, the Rosalynn Carter Institute ensures that caregivers and their loved ones receive the support they need during challenging times.About Mandy:Mandy was born and raised in Plains, GA and earned her Bachelor of Arts in Dramatic Arts with a minor in English in 2004 from Georgia Southwestern State University. Throughout her career, she has served as a Secondary English teacher, Executive Director of Americus Literacy Action, Inc. an ESOL instructor and Academic Success Counselor, acquiring extensive mental and behavioral mental health training while working with at-risk individuals. She now serves as a Caregiver Coach and Engagement Specialist at the Rosalynn Carter Institute for Caregivers.Living in Americus, she enjoys various outdoor adventures with her husband who is a veteran and three children, daughters Riley and Emily, and son, Cuyler, who has an ultra-rare brain disorder called Allan-Herndon Dudley Syndrome. Being a caregiver to a medically complex child, Mandy hopes to provide resources and support to other caregivers needing advocacy and support.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

As a senior Navy Chaplain, Bob Evan's calling has always been to serve and care for others, whether it was his troops, fellow service members, or the wounded warriors he encountered. When his fiancée, Gretchen, was severely injured by a mortar round in Afghanistan, Bob's role shifted from chaplain to devoted caregiver.Despite his extensive training and experience as a pastoral counselor, Bob candidly admits that he struggled at times to provide the proper support and care for Gretchen as she navigated life-changing injuries, including deafness. However, Bob's unwavering love and commitment to Gretchen never wavered. He made it clear that he would accompany her on this new journey, no matter the challenges. Bob's journey as a caregiver is one of resilience, compassion, and a deep understanding that true caregiving requires listening, learning, and loving the person you are caring for.As Bob shares his insights and lessons learned, it's clear that his role as a caregiver has profoundly impacted his own spiritual and personal growth. He has become an advocate for greater support and resources for military caregivers, recognizing the vital importance of self-care and finding respite to be an effective, loving caregiver.About Bob:Bob Evans, a graduate of Bowdoin College (A.B. - 1976), Princeton Theological Seminary (M.Div. - 1979), Candler School of Theology (Th.M. - 1992), and the Naval War College (M.A. - 2003), served over 25 years in the United States Navy. He retired as a Captain in 2008 after entering the Navy by direct commission in December 1982.During his tenure, he served as a Senior Leader for the U.S. Fleet Forces, U.S. Atlantic Fleet, Joint Forces Command, Combined Forces Command-Afghanistan, and Naval Forces Europe, Africa, and Southwest Asia. He received the Bronze Star for his service in Afghanistan.Bob began his career with the Department of Veterans Affairs (VA) in May 2011 as Chief of Chaplain Services at Aleda E. Lutz VA Medical Center in Saginaw, MI. He joined the Atlanta VA in January 2013 as Chief of Chaplain Services and later also served as Acting Assistant Director. In February 2014, he was appointed Assistant Director of the Atlanta VA Health Care System. He then served as Interim Associate Director/Chief Operating Officer of the Dorn VA Health Care System in Columbia, SC, for six months before being selected as Associate Director/Chief Operating Officer for the Western North Carolina VA Health Care System in Asheville, NC. He held this role from January 2017 until his retirement from Federal Service in December 2019.Now retired, he is a devoted caregiver to his wife, who lost her hearing in combat, and a strong advocate for veterans, their families, and all who serve the common good. He actively listens to others, helps them discover their passions, and supports them in turning their dreams into purposeful lives.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

This week, our episode highlights the vital work of PsychArmor, an organization dedicated to transforming how society engages with veterans and service members. Led by Dr. Tina Atherall, PsychArmor's mission is to provide education, training, and resources to both the military community and the individuals and organizations that support them.We talk about the growing need for caregiver support, with recent studies showing a significant increase in active-duty, veteran, and civilian caregivers. Tina emphasizes PsychArmor's unique approach of serving two key audiences - the military and veteran families and the broader community interacting with them. Through online courses, webinars, and certifications, PsychArmor equips individuals and organizations to effectively support the military community, focusing on cultural humility and understanding the specific needs of this population.A particularly poignant aspect of the conversation is the exploration of social isolation and its connection to suicide prevention within the military caregiver community. Tina shares her personal experiences and passion for this work, stemming from her own family's military connections. The episode underscores the importance of creating community, providing resources, and empowering caregivers to ensure they can be the best support system for their loved ones who have served.About:Dr. Tina Atherall is a social innovation strategist with a focus on nonprofit and education leadership. As CEO of PsychArmor, she leads a national nonprofit dedicated to educating and advocating for critical support for Veterans, service members, and their families.With a Doctor of Social Work (DSW) from the University of Southern California, Dr. Atherall has devoted her career to social work leadership. Her recent work emphasizes addressing social isolation, one of the 13 Grand Challenges for Social Work. She is a George W. Bush Institute Stand-To Veteran Leadership Scholar and is active on the SAMHSA National Advisory Council and the Council on Social Work Education's Military Social Work Specialized Practice review committee.In addition to her leadership roles, Dr. Atherall holds advanced certifications in nonprofit leadership and military social work and is a Certified Daring WayTM Facilitator. She is an Associate Adjunct Professor at Columbia University and teaches in the Doctor of Social Work programs at Simmons University and the University of Kentucky. Her board service includes leadership positions at Mission Edge and Project Healing Waters.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Qwynn Galloway-Salazar is the heart and soul of this week's Heroes Caring for Heroes episode. As an Army veteran, end-of-life doula, and the founder of In Their Honor, Qwynn has dedicated over two decades to elevating the quality of life for military, veteran, and caregiving communities. Her personal journey, however, took an unexpected turn when her husband, Jose, a retired combat veteran and law enforcement officer, faced a major medical emergency.Qwynn found herself thrust into a new role - that of a caregiver. Despite her extensive experience and expertise, Qwynn struggled to reconcile her professional identity with the deeply personal and emotional experience of caring for her own loved one. Her vulnerability and honesty in sharing this journey are both inspiring and heartbreaking as she navigates the challenges of maintaining her own well-being while supporting her husband through his recovery. Qwynn's story serves as a poignant reminder that even the most seasoned caregivers can find themselves in need of support and community.Throughout our conversation, Qwynn's resilience, compassion, and unwavering commitment to her family and her mission shine through. Her willingness to open up about the isolation and loneliness of caregiving, the importance of self-care, and accepting help from others offers a powerful message. Qwynn's journey is a testament to the strength and resilience of military and veteran caregivers, and her story will resonate with and inspire others who find themselves in similar circumstances.About Qwynn:Dr. Qwynn Galloway-Salazar, known as Doc Q, is the Founder and CEO of In Their Honor. An Army Veteran and spouse to a Combat Veteran, she has devoted over two decades to enhancing the quality of life for military and Veteran communities. As an End-of-Life Doula Educator and Storyteller, Qwynn launched In Their Honor to collaborate with various stakeholders, ensuring Veterans and their families receive the care and support they need through the end of life. Her previous role as Co-Director of SAMHSA's Service Members, Veterans, and Their Families Technical Assistance Center underscores her deep commitment to this cause.Qwynn's influence extends across numerous initiatives focused on women Veterans, LGBTQIA+ Veterans, and end-of-life support. Notable roles include Lead Advisor for PsychArmor's “Caring for Veterans Through the End-of-Life Collection” and her ongoing contributions as a Creative Advisor. She is also involved with the National Hospice and Palliative Care Organization's End-of-Life Doula Council and the Compassionate Communities Think Tank. Her research and advocacy have earned her recognition as one of USA Today's 2024 Women of the Year and the inaugural Woman Veteran of the Year by Georgia's Department of Veterans Services, highlighting her leadership and dedication to making a significant impact.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

This week's special educational episode shines a spotlight on the incredible work being done by the U.S. Department of Veterans Affairs (VA) to support caregivers, families, and survivors of veterans. In this educational episode, Maureen Elias, a Senior Advisor to the Under Secretary for Benefits at the VA, provides a comprehensive overview of the vast array of benefits and programs available through the Veterans Benefits Administration.Elias expertly navigates the three key buckets of VA support - caregiver benefits, family benefits, and survivor services. From healthcare and respite care to legal assistance and bereavement support, the VA ensures caregivers have the resources they need to avoid burnout and continue providing exceptional care. Equally impressive are the VA's efforts to adapt homes and vehicles and offer educational benefits for family members and robust survivor benefits, including burial assistance, life insurance, and dependency compensation. Listeners are left with a renewed appreciation for the VA's commitment to honoring the service and sacrifice of veterans and their loved ones.About Maureen:Maureen Elias serves as the Senior Advisor to the Under Secretary for Benefits on the development, adoption, and implementation of Department-wide programs and policies related to Benefits. In this role she analyzes and evaluates the effectiveness of these programs and policies and presents balanced recommendations for improvements. She represents the Under Secretary for Benefits in dealings with the senior staff of Cabinet officers regarding Departmental programs, initiatives, and policies.Ms. Elias is a U.S. Army veteran and a U.S. Army retiree spouse. Prior to coming to the VA, Ms. Elias served on the House Veterans Affairs Committee and at two of the “Big Six” VSOs including Paralyzed Veterans of America and Vietnam Veterans of America. She has been recognized as one of the We Are the Mighty “Mighty 25”, 2021 VA Women Veteran Trailblazer, and as a HillVets100. She has appeared on various podcasts, testified before Congress, and written articles for various media outlets. Ms. Elias also volunteers as a storytelling instructor, helping Veterans, servicemembers, their families, survivors and caregivers learn to share their stories in ways that are meaningful.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Angelena Taylor's caregiving journey began quite unexpectedly at the age of 28 when her father, Benjamin, experienced a stroke. This event marked the start of her role as a caregiver, which she took on with dedication and focus. As a daughter and military caregiver, Angelena balanced her responsibilities with her Miss USA World Universal Ambassador title, using each role to support the other.Early on, Angelena faced skepticism from medical professionals who doubted her capability. However, she quickly proved them wrong by advocating strongly for her father's care, ensuring he received the treatment she believed was best. Her father's recovery became a central part of her life, and Angelena managed the ups and downs with determination. She navigated through the medical system, learning and adapting along the way to ensure that her father received the best possible care.Angelena didn't set aside her dreams and goals even with her caregiving duties. She pursued her aspirations in pageantry, seeing it as an opportunity to raise awareness about the challenges and needs of military caregivers. Her role as Miss USA World Universal Ambassador allowed her to speak out on these issues, bringing them to a broader audience and creating a platform for others in similar positions to feel seen and heard.Angelena's commitment to her father and advocacy work reminds her of the strength and dedication required in caregiving roles. Her journey is not just about overcoming obstacles but also about finding balance and purpose. Her story encourages others who are navigating similar paths, showing that it's possible to manage caregiving duties while pursuing personal goals with determination and support.About Angelena:Angelena Taylor is a proud daughter, military caregiver, cat mom, world traveler, and reigning Ms. USA World Universal Ambassador. A native of Detroit, Michigan, Angelena works part-time as a behavior analyst. Still, her most prominent and favorite role to date has been as a caregiver for over 8 years to her father, Benjamin, who is a stroke survivor and veteran. Becoming a caregiver at the age of 28 without much assistance or support birthed Angelena's passion for advocating for her fellow caregivers and restructuring the care infrastructure. She has been heavily involved as a fellow with organizations such as Caring Across Generations and The Elizabeth Dole Foundation, where she has connected with hundreds of other caregivers, collaborated with elected officials, and more. Featured in The New York Times and on The Tamron Hall Show, Angelena's story is one of 53 million caregivers (and an estimated 5.5 million military caregivers) in the USA with the special redemption song of winning the prestigious title of Ms. USA Ambassador 2023. Angelena created Crown the Caregiver as a platform of awareness and advocacy in the caregiving community and plans to launch services as a Certified Caregiving Specialist in the near futureSupport the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Lori Rogers shares her powerful journey as the caregiver of her 33-year-old son, Craig, who was diagnosed with autism at 2.5 years old. When Craig was first diagnosed in 1993, Lori and her husband Neil dove headfirst into supporting him, trying various therapies, diets, and interventions to help him. Despite the challenges, they refused to live in victimhood and instead focused on hope and finding ways to help Craig and their family. Lori also founded a nonprofit called Parents Assisting Special Educators (PACE) to support their community's special education programs and teachers. PACE lasted 18 years and allowed Lori and her family to give back and be part of the team supporting Craig and other children with special needs. Recently, Lori and her family discovered a life-changing communication method called "spelling to communicate" that has allowed Craig, who is nonverbal, to express his thoughts, knowledge, and desires for the first time at age 33. This has been a game-changer, as Craig now has a voice and is even starting his own Instagram account to share his experiences.Throughout her caregiving journey, Lori has learned the importance of self-care, positive thinking, and maintaining a high vibration. She shared practical daily habits like giving herself a high five, journaling, meditation, and prayer that have helped her build resilience and see the beauty in her son's challenges. Lori's story is an inspiring testament to the power of hope, perseverance, and shifting one's perspective, even in the face of immense difficulty.About Lori:Lori is the caregiver of her adult son, diagnosed with autism. She is the co-founder of PASE—Parents Assisting Special Educators— a vehicle that provides vital equipment & supplies to support special needs classrooms & teachers. She founded Life-Op, which creates safe and productive learning spaces for special needs adults. In 2011, Lori began implementing the practices of Positive Activity and experienced a shift in her approach to caregiving. She helps audiences do the same, implementing simpledaily activities and mindset shifts that attract a life-changing experience. She is a Spelling 2 Communicate advocate.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Subscriber-only episodeConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Susie Singer Carter shares the story of caring for her mother, Norma, who was diagnosed with Alzheimer's 16 years before her passing. Susie describes how she was the first to notice the signs of Alzheimer's, even as her family dismissed her concerns. As Susie navigates her mother's declining health, she also faces personal challenges, including going through a divorce. Susie brought her mother to live with her, which impacted her teenage daughter. However, Susie was determined to provide the best care for her mother, even as she struggled to balance her career and caregiving responsibilities. Susie's story highlights the complexities of caregiving, from managing family dynamics to advocating for her mother's wellbeing. Despite the difficulties, Susie finds purpose in sharing her experiences and becoming an elder care advocate. She uses her creative talents to produce films that shed light on the realities of Alzheimer's and the nursing home system, hoping to inspire change and support for other caregivers.About Susie:Susie Singer Carter is a dedicated mother, filmmaker, and Alzheimer's advocate. She approaches filmmaking with the same purpose and care as raising her daughters, instilling values of confidence, curiosity, compassion, empathy, patience, grace, hope, and love. Her mission as a filmmaker goes beyond storytelling; she strives to dismantle ageism and ableism by crafting narratives that challenge stereotypes and celebrate diversity.Her work highlights the richness of human experience, portraying characters who defy expectations and are empowered by their unique stories. In the feature film BRATZ, she created the character Dylan, a teenager with a disability who becomes a successful DJ despite being deaf. Her Oscar-qualified film, My Mom and The Girl, features Valerie Harper in her final performance, portraying Susie's mother who lived with Alzheimer's for 16 years.Susie collaborates with actors, writers, and crew members who share her commitment to inclusivity and authenticity, creating films that resonate deeply with audiences and inspire change. She envisions a world where age and ability are celebrated, and everyone's story is valued.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Susanne White's caregiving journey began unexpectedly when she received a call from her sister about their aging parents. Susanne's mother was in the early stages of dementia, while her father was struggling to care for her. As the eldest sibling living closest, Susanne immediately stepped up to become the primary caregiver for her parents. Over the next four years, Susanne navigated the challenges of caregiving, including her strained relationship with her controlling mother. However, through this intense experience, Susanne was able to heal that relationship and gain a deeper understanding of herself. She describes the caregiving journey as "recovery and understanding and self-awareness on steroids," which ultimately made her a better version of herself. Even after the passing of her parents, Susanne continues to reflect on the lessons she learned as a caregiver warrior and how it transformed her life.Susanne's story highlights the profound personal growth that can emerge from the trials of caregiving. Her willingness to be vulnerable and acknowledge the messiness of the experience resonates with many who are also on their own caregiving journeys. Susanne's insights on the importance of self-care, accepting emotions, and finding silver linings provide valuable guidance for fellow caregiver warriors.About Susanne:Susanne White is the Founder of Caregiver Warrior. She was faced with the opportunity to care for her parents and ventured out on a caregiving journey that would change her life. She blogs about this journey on her website, caregiverwarrior.comand shares her experience, strength and hope with others so that they too may navigate caregiving with grace and empowerment. White's latest book, Self-Care for Caregivers: A Practical Guide to Caring for You While You Care for Your Loved One, is now available at your favorite book stores. Visit caregiverwarrior.com for more information from Susanne White, or follow her on X (formerly Twitter), LinkedIn, Facebook and Instagram Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Bob Kay's caregiving journey with his wife Pat was one marked by deep love, resilience, and profound personal growth. After meeting as teenagers and building a life and business together over 45 years of marriage, Bob faced the devastating challenge of caring for Pat as she battled stage 4 breast cancer.Through the ups and downs of Pat's treatment and declining health, Bob demonstrated unwavering commitment and compassion as her primary caregiver. He navigated the complexities of the medical system, learned hands-on caregiving skills, and leaned on the support of his daughter to ensure Pat's comfort. Despite the physical and emotional toll, Bob refused to give up, drawing strength from his love for Pat and their shared vision for their company and family.Bob's caregiving experience also had a profound impact on him personally. He candidly shared how the trauma of losing his wife led to PTSD-like symptoms, which he has worked to manage through self-reflection and mentoring others. Remarkably, Bob has channeled his challenges into growth, becoming a more empathetic leader and finding joy in activities like video gaming with his family. His story is a testament to the transformative power of caregiving and the importance of resilience, connection, and self-care in the face of life's most difficult trials.About Bob:Bob Kay's journey is marked by resilience and partnership. He met Pat through mutual acquaintances and bonded over music at church, where she supported him during a challenging time of homelessness. They married on May 11, 1974, after a sweet proposal in a church parking lot. Together, they navigated college, with Bob pursuing engineering and Pat earning a business degree, eventually having two children.In 1988, following an aerospace career and amid industry scandal, Bob and Pat founded Elite Engineering. Their collaborative efforts combined business acumen and engineering expertise, leading to a successful consultancy. Sadly, Pat's life was cut short by stage 4 breast cancer, diagnosed on their 45th anniversary. Despite the challenges, including a severe injury from a chiropractor, Pat remained a source of strength until her passing on January 2, 2020. Bob cherishes the valuable lessons and memories they shared throughout their journey together.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Paul Ptashnick is back with us continuing his story of his caregiving journey. When his father was diagnosed with Parkinson's shortly after retirement, Paul stepped up to provide support, navigating the complexities of his father's declining health. His story takes an unexpected turn when Paul's mother is also diagnosed with Lewy body Parkinson's, requiring him to juggle the care of both parents simultaneously.The challenges Paul faces are multifaceted, from his mother's phobia of nursing homes to the differing symptoms exhibited by his parents. Paul's proactive approach, including finding a family friend to provide overnight care for his wandering mother, showcases his resourcefulness and dedication. Additionally, Paul's insightful decision to involve his mother in daily tasks like laundry and cleaning demonstrates his understanding of the importance of maintaining a sense of purpose for those living with Parkinson's.As Paul's caregiving journey evolves, he encounters the complexities of navigating the healthcare system, particularly when his mother transitions to hospice care. Paul's willingness to make tough decisions, such as opting out of hospice at times, highlights his ability to prioritize his mother's well-being and his own mental health. Throughout it all, Paul's commitment to self-care, including seeking therapy, exemplifies the importance of caregivers tending to their own needs to ensure they can continue providing the best possible support.About Paul:Paul Ptashnick is a freelance copywriter and fractional marketer focused on B2B startups in the InsurTech, FinTech, and AgeTech spaces. In addition, Paul's wife Ana is also an entrepreneur, opening Red Apron Charcuterie in 2023.When Paul and Ana aren't working or playing with their fur baby Marty, they are usually traveling somewhere. Paul and Ana have visited Peru many times, and they have also spent time in England, Ireland, France, Colombia, and Mexico.For Paul's 50th birthday, they have another European vacation planned with stops in Germany, Switzerland, Austria, and Croatia.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

In this episode, Christine Soza shares her journey from a young caregiver to a seasoned CNA. Starting with caring for her stroke-afflicted grandfather and a woman with dementia, Christine's early experiences laid the foundation for her compassionate approach to caregiving. She discusses her roles in nursing homes, oncology, and AIDS care, emphasizing how her dedication to providing dignified care shines through. Christine also opens up about the personal challenges of balancing professional caregiving with family responsibilities, including caring for her aging parents and her husband's relatives. Her story underscores the emotional toll of caregiving, the necessity of self-care, and her own health struggles as a result. Christine's resilience and insights offer valuable lessons for caregivers everywhere.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

In this wrap-up episode, we discussed the "Caregiving Youth Hidden in Plain Sight" special series, a collaboration between JJ and Natalie and My Care Friends CEO Todd Keitz and Katie Seymour (VP of Programming and Community). We were all amazed at how eye-opening it was to learn about the challenges faced by young people caring for family members with disabilities or illnesses. We highlighted the wisdom and resilience shown by many of the youth caregivers featured while acknowledging the need to support those struggling.In this episode, we underscored the vital role of policies, programs, and community coordination in identifying and assisting youth caregivers, drawing inspiration from successful initiatives in the UK. We stressed the ongoing need to raise awareness and provide resources to connect youth caregivers with the support they need. We urged our listeners to visit the podcast's website, where they can access the full series and contact information for the various organizations featured. We aim to create a centralized hub of information, empowering and assisting this often-overlooked population.We also discussed the hidden nature of many caregiving programs and the challenge of self-identification among youth caregivers. We discussed ways to help overlooked youth, including a broader focus beyond the US, and the significance of awareness within the community, including schools and teachers.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

We are honored to hear from two extraordinary young women, Alia and Nahla Ahmed, who have been caring for their mother since the ages of 10 and 8. Their story is one of resilience, responsibility, and the unbreakable bond of sisterhood. Alia (16) and Nahla (14) candidly share how their lives were upended when their mother suffered a debilitating polio relapse amidst the stress of moving their family. With no other relatives nearby, these remarkable teens became their mother's primary caregivers, tackling everything from helping her walk to managing the household. Their dedication and maturity beyond their years are truly inspiring as they navigate the challenges of balancing schoolwork, social lives, and the ever-changing needs of their beloved mother.Throughout their journey, Alia and Nahla have faced misunderstandings from teachers and peers who fail to grasp the full scope of their caregiving responsibilities. Yet, these young trailblazers refuse to be defined by their circumstances, finding solace in the support of organizations like Australia's Little Dreamers and the power of their unbreakable sisterly bond. Their story is a testament to the strength and resilience of caregiving youth, hidden in plain sight, and a reminder that these remarkable individuals can thrive with compassion and understanding.About Alia:Alia Ahmed is 16 years old and has been a carer for her mother since she was 10, following her mother's polio relapse. Initially, she helped her mother walk before she got crutches. Now, Alia assists with appointments, cooking, cleaning, and providing overall support and companionship.About Nahla: Nahla is 14 years old and has been caring for her mother since she was 8. In late 2018, Nahla, her sister, and her mother left their family home due to domestic violence. Shortly after, her mother experienced a polio relapse, initially undiagnosed, which required Nahla and her sister to help her walk until she received crutches. At home, Nahla and her sister assist with cooking and cleaning to make things easier for their mother.Support the Show.Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

This episode highlights the impactful work of Lorenzo's House, supporting youth and families dealing with younger onset dementia. Featuring Olivia Compton, a 15-year-old youth leader, and Patti LeFleur, who leads the organization's youth programming, the discussion delves into empowering young caregivers.Olivia shares her journey, explaining how she found support and community through Lorenzo's House after her father was diagnosed with Lewy Body Dementia. She describes the transformative impact of the organization's "light club" groups, which provide a safe space for young people to connect, share experiences, and learn mindfulness techniques. Patti elaborates on Lorenzo's House's three core programs - the match, clubs, and youth summit - all aim to combat isolation, build alliances, and drive dementia justice. The discussion highlights the organization's commitment to centering youth voices and experiences and empowering young caregivers to advocate for change.Olivia's wisdom and resilience shine through as she offers advice to other youth navigating the challenges of having a parent with dementia. The episode underscores the critical need to support caregiving youth, who often face stigma and struggle to find resources tailored to their unique experiences. Lorenzo's House emerges as a beacon of hope, providing essential services and fostering a growing community of young advocates determined to make a difference.About:Olivia:Olivia, a 15-year-old 9th grader, is a vital part of Lorenzo's House. After her father's Lewy Body Dementia diagnosis, she found community in the Teen Light Club and served as a Youth Lead at the 2023 and 2024 Youth Summit. Olivia leads mindfulness sessions, openly shares her story, and warmly welcomes others. A talented pianist, cellist, and choir singer, she enjoys video games, reading, crafts, and anime. Passionate about helping peers through similar challenges, Olivia cherishes the connections and friendships she's built at Lorenzo's House.Patti: Patti is the former carepartner to her mom, Linda, who had younger-onset dementia - and a former elementary educator of over 10 years. Patti designs and leads our youth programming with intentionality, knowledge and love. Her capacity to connect with family members through lived experience and profound generosity of spirit sets the tone for how Lorenzo's House shows up for families. Patti has a Masters Degree in Instructional Leadership and is a Certified Dementia Practitioner, has spent countless hours volunteering with people living with neurocognitive disorders, and as a community educator for the Alzheimer's Association.Social Media: Website: https://lorenzoshouse.org/Facebook: https://www.facebook.com/lorenzoshouseofficial/Instagram: httpsSupport the Show.Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

This week, we're shining a light on the inspiring stories of two young caregivers, Aaliyah and Samiha, from Canada. At just 14 years old, Aaliyah has been caring for her younger sister with autism her entire life. She shares how she supports her sister's social interactions, helps with schoolwork, and even shares her passion for rock climbing. Aaliyah''s courage in the face of such responsibilities is inspiring. She found an outlet in the sport, using it as a way to channel her energy and reduce stress from the added responsibilities of caregiving.Samiha's story is equally powerful. She began caregiving at the age of 11 when her mother was diagnosed with ALS. Now 24, Samiha continues to care for her mother, who is on a ventilator and uses eye-gaze technology to communicate. Samiha describes the challenges of being a "sandwich generation" caregiver, caring for her mother while also supporting her younger sister. She credits the young carers program through Hospice Toronto for providing validation, support, and leadership opportunities that helped guide her through those difficult years.Both Aaliyah and Samiha emphasize the importance of finding community with other young caregivers who can truly understand their experiences. The young carers program gave them a space to be "normal kids" and build connections with peers facing similar circumstances. Their stories highlight the resilience, compassion and leadership skills that often develop in young caregivers, despite the challenges they face. This episode is a powerful testament to the strength of the human spirit in the face of adversity, and the crucial role that community support plays in their journey.About Samiha Rahman:I'm Samiha, a 24-year-old young caregiver from Toronto, Canada. I graduated with a Bachelor of Medical Sciences in 2022 from Western University and am going back there this fall for Medical School. Since graduating, I've been working at Hospice Toronto, a non-profit organization that I've been a part of for almost 10 years (with their Young Carers Program). I love spending time with my friends and family, walks by the lake, and trying new restaurants. About Aaliyah Zarem:I am a 14-year-old older sister and competitive rock climber. I also love camp and canoe trips. Support the Show.Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

This week's special policy panel, featuring experts Marvell Adams Jr. and Toni Gingerelli, discussed policy change and support for caregiving youth. They highlighted the significant gap between the estimated 5.4 million youth caregivers and the likely much larger actual number, emphasizing the need for better data collection through school-based assessments and self-reporting to understand this hidden population's challenges and experiences.The discussion, featuring Marvell Adams Jr. and Toni Gingerelli, covered the impacts of youth caregiving, such as educational disruptions and mental health struggles. They emphasized the need for recognition, resources, and inclusive policies, praising the national strategy to support family caregivers while calling for more inclusivity of youth caregivers. The conversation highlighted the urgent need for equitable, innovative, and collaborative policy solutions to better serve caregiving youth.About:Marvell Adams Jr. is the CEO of Caregiver Action Network (CAN), dedicated to serving caregivers, marginalized communities, and older adults. Inspired by Alzheimer's disease since high school, he holds a Bachelor's in Political Science and a Master of Healthcare Administration specializing in Aging Services. CAN aims to improve the quality of life for millions of family caregivers supporting loved ones with chronic conditions, disabilities, or diseases.Website: www.caregiveraction.org/Facebook: @CaregiverActionNetworkInstagram: @caregiveractionLinked In: @caregiver-action-networkYouTube: @CaregiverActionTikTok: @caregiveractionAntoinette 'Toni' Gingerelli, Director of Policy and Advocacy for the National Alliance for Caregiving, translates research into policy for America's 53 million family caregivers. She oversees operations for Act on RAISE, Caregiver Nation Network, and the direct care workforce policy portfolio. Previously Chief of Staff for NJ State Senator Vin Gopal, Toni holds a Master of Public Policy from Harvard Kennedy School and is an advocate for gender equity.Website: https://www.caregiving.org  Facebook: https://www.facebook.com/NA4Caregiving/ Instagram: https://www.instagram.com/caregiver_nation/ LinkedIn: https://www.linkedin.com/company/national-alliance-for-caregiving/ Twitter: https://twitter.com/NA4Caregiving YouTube:  https://www.youtube.com/c/TheNationalAllianceforCaregiving  Support the Show.Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

This week's episode gives us a powerful and insightful look into the life of Aditya Akella, a 16-year-old caregiver for his younger brother with autism. Aditya's story is one of resilience, responsibility, and a deep commitment to his family. From navigating cultural differences in caregiving between India and England to balancing his academic and social life, Aditya's experiences offer a rare and valuable perspective on the challenges and triumphs of being a young carer.Aditya demonstrates a level of wisdom and maturity that belies his young age. He eloquently articulates the importance of understanding the unique needs of each young carer, rather than making assumptions or providing one-size-fits-all solutions. Aditya's advocacy efforts, including speaking at the House of Lords and participating in a documentary, further highlight his dedication to raising awareness and creating positive change for young carers like himself.Aditya touches on the importance of self-care and finding balance as a caregiver. He shares his personal strategies, such as spending time with his beloved dog and indulging in the occasional video game or hot chocolate, as ways to recharge and maintain his own well-being. Aditya's story serves as an inspiration to other young carers, reminding them that they are not alone and that their experiences, though challenging, can also be a source of strength and personal growth.About Aditya:A self-described “regular teenager in England”, Aditya is interested in cars, public speaking, sports and politics.  He is a proud older brother for his younger brother, age 11, who has severe autism, ADHD, and is non-verbal. Aditya share, “A lot of carers fall into the trap of feeling insecure or restricted by their role, though being a carer is more of a launchpad than it is a well”. Connect with Aditya:Linked In: https://www.linkedin.com/in/aditya-akella-349297267/Blog: https://akellatech.blogspot.com/** The sisters proudly partner with the Caregiver Action Network. CAN's Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**Support the Show.Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Kids Kicking Cancer's work is vital in supporting families navigating the complexities of chronic illness.  KKC empowers children with chronic illnesses and their families through the power of martial arts and breathwork. Founder and International Director Rabbi Elimelech Goldberg “Rabbi G” shares his deeply personal story that led to the creation of Kids Kicking Cancer and the organization's remarkable growth from 10 children in 1 facility to over 126 facilities across 10 countries.Rabbi G, alongside Global Program Director Cindy Cohe, explains the organization's distinctive method - using therapeutic martial arts techniques to assist children in handling pain and stress. KKC also promotes a sense of purpose, peace, and community. Kids Kicking Cancer values the family unit as a whole, offering support not only to the child in treatment but also to siblings, parents, and other caregivers. We discuss the difficulties faced by caregiving youth and stress the significance of establishing a supportive network for these often-overlooked individuals. They go on to share about The Heroes Circle Pediatric Healing Program, which teaches martial arts meditation, non-contact movement, and breathing techniques designed to empower children to take control of the pain and stress of their illness. Their evidence-based program is taught in-person and virtually by black belt Therapeutic Martial Arts Instructors and is provided to families at no cost. Children 3 years and older with ANY pediatric illness, and their siblings, are eligible for the program.  Social Media: Website: https://heroescircle.org/Facebook: https://www.facebook.com/kidskickingcancer Instagram: @kidskickcancerLinked In: https://www.linkedin.com/company/kids-kicking-cancerTwitter: x.com/kidskickcancerYouTube: https://www.youtube.com/c/KidsKickingCancerBooks/E-Book/Resource: https://a.co/d/0bs6YgyGSupport the Show.Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network