Podcasts about Frontotemporal dementia

A brand-new study just dropped in Nature Medicine… and the numbers are worse than we thought. In this episode, I'm breaking down the latest dementia statistics that every caregiver, family member, and adult over 55 needs to know. This is more than just data—it's a wake-up call. We're talking risk factors, who's most vulnerable, and why dementia care is on the verge of a national crisis. But don't worry—there's hope too. I'll also share where to turn next and how we can take action now. Click the link below to read the full study: https://drive.google.com/file/d/1tkUsmdUeWIvASlpgkd3seeDHwLUBF9-T/view?usp=sharing  If you'd like to see this episode on video, you can hop on over to my YouTube channel here. Get Weekly Dementia Tips in Your Inbox! Sign up for our FREE Dementia Dose newsletter at https://careblazers.com/dementiadose It's our mission to make dementia caregiving easier for families caring for a loved one with Alzheimer's disease, frontotemporal dementia, lewy body dementia, vascular dementia, or any other type of dementia. We believe that in order to create a more dementia-friendly world, we must first create a caregiver-friendly world. That's why we create free educational training videos like this one so that anyone with an internet connection can get access to dementia care information. **This channel and any information by Dementia Careblazers is not a substitute for healthcare. This is not healthcare advice. Please talk to your healthcare providers for specific feedback on your situation.

When someone we know or love starts to develop psychological issues, we don't often associate it with a form of dementia. However, this trait is one of the most common signs of frontotemporal dementia (FTD) — the most common neurodegenerative disease in people under the age of 65. In his new book, Mysteries of the Social Brain: Understanding Human Behavior Through Science, Dr. Bruce Miller highlights his experiences observing people with FTD and what they have taught him about what he calls the "social brain."Dr. Bruce Miller has been observing people with FTD for decades in the Memory and Aging Center at the University of San Francisco, where he is also Professor of Neurology and the Founding Director of the Global Brain Health Institute. He shares key insights on how to keep our "social brain" healthy and how it can even unlock our creative potential.

Could this vitamin really slow down Alzheimer's? The latest research might change everything. In this video, I'm sharing the surprising study results, how this vitamin works in the brain, and why some neurologists are already taking it themselves. Most people have never heard of this — but if you're caring for someone with dementia or worried about memory decline, you'll want to see this. Link to study: https://pmc.ncbi.nlm.nih.gov/articles/PMC7880246/ If you'd like to see this episode on video, you can hop on over to my YouTube channel here. Get Weekly Dementia Tips in Your Inbox! Sign up for our FREE Dementia Dose newsletter at https://careblazers.com/dementiadose It's our mission to make dementia caregiving easier for families caring for a loved one with Alzheimer's disease, frontotemporal dementia, lewy body dementia, vascular dementia, or any other type of dementia. We believe that in order to create a more dementia-friendly world, we must first create a caregiver-friendly world. That's why we create free educational training videos like this one so that anyone with an internet connection can get access to dementia care information. **This channel and any information by Dementia Careblazers is not a substitute for healthcare. This is not healthcare advice. Please talk to your healthcare providers for specific feedback on your situation.

Careblazer, did you know you could lower your dementia risk by nearly 50% just by changing some everyday habits? In this video, I'm walking you through 14 research-backed lifestyle changes you can start making today—based on the 2024 Lancet Commission Report. These are modifiable risk factors, which means they're things you actually have control over. As a board-certified geropsychologist, I see so many people feel helpless when it comes to brain health. But this video is here to show you that you have more power than you think. From hearing loss and blood pressure to social isolation and air pollution, I'll explain what each risk factor means and exactly how you can take action. If you'd like to see this episode on video, you can hop on over to my YouTube channel here. Get Weekly Dementia Tips in Your Inbox! Sign up for our FREE Dementia Dose newsletter at https://careblazers.com/dementiadose It's our mission to make dementia caregiving easier for families caring for a loved one with Alzheimer's disease, frontotemporal dementia, lewy body dementia, vascular dementia, or any other type of dementia. We believe that in order to create a more dementia-friendly world, we must first create a caregiver-friendly world. That's why we create free educational training videos like this one so that anyone with an internet connection can get access to dementia care information. **This channel and any information by Dementia Careblazers is not a substitute for healthcare. This is not healthcare advice. Please talk to your healthcare providers for specific feedback on your situation.

Why do so many people with dementia refuse to bathe?

People with dementia sometimes see people and things that aren't there… even people who've passed away! But what does it really mean when someone with dementia starts having visual hallucinations? In this episode, I'm sharing the surprising truth about hallucinations — one of the most confusing and misunderstood symptoms in dementia care. Some are harmless. Others? A warning sign.  Whether your loved one has ever said “There's someone in the room…” …or you've heard stories that seem impossible — you'll want to listen to this.  If you'd like to see this episode on video, you can hop on over to my YouTube channel here.

Government is talking about cutting Medicare and Medicaid funding while costs of care are increasing. Dementia used to be considered a mental defect, and people were hidden from the rest of society and not talked about publicly Today, we know tis is a disease that needs to be managed. We also know that younger people are developing memory concerns. The plus is that we're not afraid to talk about it anymore. The negative is that we're delaying the needed planning until it's too late to design meaningful planning strategies. Here are links to the resources I discuss in this episode. Alzheimer's Disease International shares different forms of dementia  Mayo Clinic dementia info National Institutes of Health McKnight's Senior Living on budget cuts View current and projected costs of care where you live  Learn what your state's Medicaid system let's you keep Schedule a free consultation with me  

Here, Elin Adcock shares her powerful journey through her husband's ALS and frontotemporal dementia (FTD) diagnoses—and how she's now leading the charge to support families facing the same fight.  When Elin's husband, Larry was diagnosed with both ALS and FTD, her world changed forever.  In this episode, Elin shares how she navigated the overwhelming challenges of caregiving through two devastating and progressive diseases—often without a clear roadmap or coordinated support. After her husband's passing, Elin turned her grief into action, becoming a fierce advocate for families facing similar dual diagnoses. Her story is one of love, resilience, and the power of transforming personal loss into lasting impact. Whether you're a caregiver, healthcare professional, or someone seeking hope amid hardship, this conversation offers insight, inspiration, and a call for greater awareness.  Thanks for listening and sharing with a friend.  Hugs, Lorri!Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

“I was in therapy, that was a lifeline.” - Allyson SchrierThis is a powerful one! Natalie and JJ sit down with Allyson Schrier as she opens up about her deeply personal and emotional journey caring for her husband, who was diagnosed with Frontotemporal Dementia (FTD).Allison candidly shares the early signs of FTD, the heartbreaking misdiagnosis, and the uphill battle of navigating a complex healthcare system. From the shifting family dynamics to the emotional weight of caregiving, this conversation pulls back the curtain on what it really means to care for a loved one with dementia.

This one simple exercise changed everything—for me, for my audience, and it could do the same for you. In this episode, I'll share the 3 things I'd want my caregivers to know if I ever needed care... and show you how this one shift can make dementia care so much easier and more compassionate.

An Oscar-winning actor with Alzheimer's was left alone for 6 DAYS… and no one knew. What happened to his wife—the person caring for him—could happen to any dementia caregiver. This isn't just a Hollywood tragedy. It's a wake-up call. In this video, I'm sharing two life-saving lessons every caregiver needs to hear. If you care for someone with dementia, this could be the most important 10 minutes of your week. If you'd like to see this episode on video, you can hop on over to my YouTube channel here. If you found this information helpful, consider subscribing to my free email newsletter for even more valuable insights on dementia by clicking here.

Why do people with dementia act out, push you away, or refuse your help? In this video, I'm revealing 3 surprising causes behind challenging dementia behaviors—and they're probably not what you think. These aren't just mood swings. They're messages. Learn what your loved one might really be trying to tell you—and how to handle it with less stress and more confidence. If you'd like to see this episode on video, you can hop on over to my YouTube channel here.

Did you know 1 in 10 dementia patients have a hidden diagnosis doctors often overlook? It's called mixed dementia—when someone has more than one type of dementia at the same time, usually Alzheimer's combined with vascular dementia. This overlooked condition can dramatically affect how dementia progresses and how best to care for your loved one. In this episode, I'll uncover why mixed dementia frequently goes undiagnosed, learn how to spot the subtle signs, and discover what this means for treatment, caregiving strategies, and your loved one's quality of life. If you'd like to see this episode on video, you can hop on over to my YouTube channel here. And if you need ongoing support, check out our Care Collective—a warm, supportive community for dementia caregivers, with live Q&A sessions, expert advice, and 24/7 access to resources.

SEASON 10! WHAT? 10 seasons in and we're finally ready to dive into the topic of Family Dynamics. Before diving into our guests stories, our first episode has some personal updates (Rachael's puppy golden retriever BENNY!), our hopes + dreams for the new season, some hearty laughs + more. -------------------For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram! Interested in our Family Dynamics class in May? Shoot us an email at hello@remembermeftd.comThe Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia.

Dr. Trey Bateman and Dr. Amy Brodtmann discuss referrals for frontal network impairment and FTD, highlighting the most helpful information for reaching a final diagnosis after evaluation. Show reference: https://www.neurology.org/doi/10.1212/CPJ.0000000000200360   

Dr. Trey Bateman talks with Dr. Amy Brodtmann about the complexities of diagnosing FTD and related disorders, emphasizing the need to understand frontal network impairments and the importance of behavioral assessments and psychiatric history in clinical practice. Read the related article in Neurology® Clinical Practice. Disclosures can be found at Neurology.org.

If your loved one with dementia keeps asking the same question over and over, you're not alone. This frustrating behavior is a common dementia symptom, but with the right science-backed strategies, you can reduce repetition and create more moments of connection.  In this episode, I'll reveal: ✅ The 3 biggest reasons why repetitive questions happen ✅ What NOT to say (to avoid making it worse!) ✅ Simple, proven techniques to handle this behavior with less stress If you'd like to see this episode on video, you can hop on over to my YouTube channel here. And if you need ongoing support, check out our Care Collective—a warm, supportive community for dementia caregivers, with live Q&A sessions, expert advice, and 24/7 access to resources.

Dementia medication refusal is one of the most frustrating challenges caregivers face. If your loved one refuses to take their medication, you're not alone! In this episode, I reveal the #1 mistake caregivers make when handling dementia medication refusal and share proven strategies to make medication time easier. You'll learn: ✅ Why dementia patients refuse medication (confusion, fear, sensory issues, independence) ✅ What NOT to do (why forcing, arguing, or sneaking meds can backfire) ✅ How to make medication time easier (changing medication forms, routines, positive reinforcement) If you'd like to see this episode on video, you can hop on over to my YouTube channel here. And if you need ongoing support, check out our Care Collective—a warm, supportive community for dementia caregivers, with live Q&A sessions, expert advice, and 24/7 access to resources.

What happens when you learn that your DNA carries the same mutation that led to a loved one's battle with ALS? In this episode, I sit down with Mindy Uhrlaub, who discovered she is a carrier of the C9orf72 gene—the most common genetic cause of ALS and Frontotemporal Dementia. Mindy shares her emotional journey of genetic testing, the weight of living in the unknown and the unique challenges that come with being pre-symptomatic.We dive into the mental and emotional impact of her hereditary disease, the stigma surrounding genetic conditions, and how humor, advocacy and community can help navigate these uncertainties. Mindy also talks about her work with End the Legacy, a patient led organization dedicated to the needs and interests of the Genetic ALS & FTD community.This powerful conversation is a reminder that while genetics may shape our path, they don't define who we are. Tune in for an honest, hopeful discussion about fear, resilience and finding purpose in the face of the unknown.  Listen in and share with a friend.  Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Smell loss and dementia are more connected than you think! Research shows that a diminished sense of smell can be an early warning sign of cognitive decline, including Alzheimer's disease. In this video, I'll break down the scientific link between smell and brain health, real-life examples of how smell loss has been a first symptom of dementia, and the steps you can take if you notice this in your loved one. If you'd like to see this episode on video, you can hop on over to my YouTube channel here. And if you need ongoing support, check out our Care Collective—a warm, supportive community for dementia caregivers, with live Q&A sessions, expert advice, and 24/7 access to resources.

Why do mirrors confuse people with dementia? If your loved one suddenly avoids mirrors or reacts fearfully to their reflection, you're not alone. Many dementia caregivers notice this behavior, and it's all tied to how the brain perceives images. In this video, we break down the surprising reasons behind this phenomenon, from depth perception issues to mirror illusions. More importantly, we'll share simple, practical strategies to make your home a dementia-friendly space—helping your loved one feel safer and less anxious. If you'd like to see this episode on video, you can hop on over to my YouTube channel here. And if you need ongoing support, check out our Care Collective—a warm, supportive community for dementia caregivers, with live Q&A sessions, expert advice, and 24/7 access to resources.

Did you know that sudden, unexplained generosity could be a silent warning sign for early dementia? What seems like harmless kindness might actually signal cognitive changes that put your loved one—and their finances—at risk. In this video, I uncover how this subtle behavior can reveal deeper issues, and more importantly, what you can do to protect your loved ones.

Conscious Caregiving with L & L is "Tackling the Tough Conversations."     The topic of this episode is "Ageism & Outcomes" featuring hosts Lori La Bey and Lance A. Slatton with an All-Star panel.     About Brittany Lamb, MD:     Dr. Brittany Lamb has been practicing in the ER since 2014. She sees the overwhelm and stress that goes with decision-makers' need to speak for someone they care about. Recognizing the unique challenges that come with medical decisions for people living with dementia, she decided to share her expertise beyond the walls of the hospital.     In 2021 she came online to empower medical decision makers with the knowledge and tools they need to make informed choices through free and paid resources. Dr. Lamb lives and works in Northern Virginia. Her time is spent flipping between the ER at night and her online and hospice work during the day. Down-time goes to spending quality time with friends, family, and her husband.     About David McNally:     David McNally is the author of EVEN EAGLES NEED A PUSH-Learning to Soar in a Changing World, one of the most successful personal growth books ever published. David is a member of the Speakers Hall of Fame, and the producer of the award-winning documentary, THE POWER OF PURPOSE.     David has five children and has been married twice. His first wife, Jo, died in 2003 from ovarian cancer and his second wife, Cheryl, passed away from Alzheimer's in 2023.     About Kristine Sundberg:     Kristine Sundberg is the Executive Director of Elder Voice Advocates (EVA), an advocacy non-profit organization. As an award-winning, former executive and corporate officer of Fortune 100 and entrepreneurial companies, she brings experience in management, communications, and public affairs. A personal tragedy with her father in long-term care drove her to work with other victims to form the non-profit organization, Elder Voice Advocates in 2017.     About Jeanette Leardi:     Jeanette Leardi is a social gerontologist, community educator, writer, public speaker, and aging wellness leader who changes people's perceptions about older adults and the aging process. She is known for her engaging in-person and virtual presentations, workshops, and classes to people of all ages, as well as for her articles in national publications and appearances on national broadcasts.     About Dr. Anne Kenny:     Dr. Kenny has two books published in 2024. One is co-authored with Teresa Webb, a woman living with and advocate for Frontotemporal Dementia. The book, Your True North: A Guided Journal for Those Living with Cognitive Loss or Dementia is about Legacy, Love and Wishes for the End of a Life Well-lived.  

1 in 3 people with dementia who visit the ER are diagnosed with a UTI.

This week, I sit down with Katie Prentiss, a filmmaker, actress, and caregiver who transformed her most profound loss into a powerful creative mission. Katie shares her raw and inspiring journey of caring for her mother through frontotemporal dementia (FTD), a challenging form of dementia that impacts personality and communication far differently than traditional memory-loss conditions.At the age of 62, Katie's mother, Maggie, passed away from FTD. Through our conversation, we follow Maggie's transition from caregiver to actress and the filmmaking of her debut film, "Wake Up Maggie," hoping to raise awareness about dementia and caregiving.  Katie beautifully describes grief as a "slow goodbye." She shares transformative perspectives, saying that grief doesn't have to have the final word and that facing fear can become a pathway to clarity and purpose. And, my favorite: the sun is always shining above the clouds, even when we can't see it. Katie has had to learn how to embrace life fully, knowing the genetic uncertainty of FTD, following the diagnosis of another family member. But she's already learned how creative expression is a healing outlet and the importance of viewing midlife as an unraveling. Key Takeaways:Understanding the unique challenges of frontotemporal dementia.The emotional landscape of caregiving for a parent with a progressive illness.How grief can be a catalyst for personal transformation.The power of creative expression in processing loss.RESOURCES:Movie | "Wake Up Maggie"IMDbIG | Wake Up MaggieCONNECT WITH KATIE:WebsiteIGFBYouTubeSend Victoria a text message! Support the show_______NEED HELP? National Suicide Prevention Lifeline: 1-800-273-8255 Crisis Text Line provides free, 24/7 support via text message. Text HOME to 741741 to connect with a trained Crisis Counselor If you are struggling with grief due to any of the 40+ losses, free resources are available HERE.CONNECT WITH VICTORIA: Instagram Website LinkedIn Facebook This episode is sponsored by Do Grief Differently™️, my twelve-week, one-on-one, in-person/online program for grievers who have suffered any type of loss to feel better. Click here to learn new tools, grief education, and the only evidence-based method for moving beyond the pain of grief. Would you like to join the mission of Grieving Voices in normalizing grief and supporting hurting hearts everywhere? Become a sup...

Welcome to PsychEd, the psychiatry podcast for medical learners, by medical learners. This primer covers the differential diagnosis of dementia. Hosts: Dr. Alastair Morrison (PGY-1) and Dr. Angad Singh (PGY-1) Audio editing by: Dr. Angad Singh (PGY-1) Resources: MoCA: https://dementia.talkbank.org/protocol/materials/MOCA.pdf MMSE: https://meded.temertymedicine.utoronto.ca/sites/default/files/assets/resource/document/mini-mental-state-examinationmmse.pdf Beers Criteria: American Geriatrics Society 2023 updated AGS Beers Criteria® for potentially inappropriate medication use in older adults PsychEd Episode 49: Dementia Assessment with Dr. Lesley Wiesenfeld References: American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). https://doi.org/10.1176/appi.books.9780890425596 Francis, J. & Young, B. (2022). Diagnosis of delirium and confusional states. UpToDate. Retrieved January 31, 2025, from https://www.uptodate.com/contents/delirium-and-acute-confusional-states-prevention-treatment-and-prognosis Larson, E. B. (2022). Evaluation of cognitive impairment and dementia. UpToDate. Retrieved January 31, 2025, from https://www.uptodate.com/contents/evaluation-of-cognitive-impairment-and-dementia PsychDB. (2022, Oct 3). Introduction to Dementia. Retrieved January 31, 2025, from https://www.psychdb.com/geri/dementia/home PsychDB. (2024, Feb 1). Delirium. Retrieved January 31, 2025, from https://www.psychdb.com/cl/1-delirium PsychDB. (2024, Feb 9). Alzheimer's Disease. Retrieved January 31, 2025, from https://www.psychdb.com/geri/dementia/alzheimers PsychDB. (2023, Oct 12). Vascular Dementia. Retrieved January 31, 2025, from https://www.psychdb.com/geri/dementia/vascular PsychDB. (2024, Jan 23). Frontotemporal Dementia. Retrieved January 31, 2025, from https://www.psychdb.com/geri/dementia/frontotemporal PsychDB. (2024, Feb 5). Dementia with Lewy Bodies. Retrieved January 31, 2025, from https://www.psychdb.com/geri/dementia/lewy-body For more PsychEd, follow us on Instagram (@psyched.podcast), Facebook (PsychEd Podcast), and X (@psychedpodcast). You can email us at psychedpodcast@gmail.com and visit our website at psychedpodcast.org.

Hey Careblazers!

Katie's mom was just 62 when she was diagnosed with frontotemporal dementia.  The diagnosis catapulted her family into the world of caregiving and learning about this lesser known form of dementia.  Katie Prentiss is an award winning actress and filmmaker.  She is currently working on a feature film called “Wake Up Maggie” which is a love letter to her mom.  You can reach Katie at her website https://www.katieprentiss.com or Instagram @wakeupmaggiemovie.  You can also help Katie raise FTD awareness by supporting her go fund me.  Some of the highlights Katie shares:Frontotemporal dementia [FTD] is a lesser known type of dementia that is often misdiagnosed as depression, menopause, alcoholism, or delusional disorderThe unusual symptoms of FTD - this is not like the typical memory loss of Alzheimer's FTD is the most common type of dementia for people under 65The reality of saying a "slow goodbye" to someone you loveThe reality of being catapulted into caregivingWhy we need additional research about FTDRaising awareness through filmThe concept of "unraveling" by peeling back the layers that don't serve us anymore - becoming more authenticLearning to focus on what we can control Dealing with caregiver guiltFeeling overwhelmed as a caregiverLearning to be compassionate with yourself as a caregiverAcceptance is where peace liesLiving with the thought, "What if it happens to me"Living a life filled with peace and fulfillment rather than fear and regretAnd morePlease share, subscribe, leave a rating and review, visit the Linda's Corner website at lindascornerpodcast.com and/or follow on youtube, facebook, instagram, and pinterest @lindascornerpodcast. Thanks!Also please visit the Hope for Healing website at hopeforhealingfoundation.org for free resources to increase happiness, build confidence and self esteem, improve relationships, manage stress, and calm feelings of depression and anxiety.   Become the champion of your own story as you overcome your challenges.  

Hey Careblazers!

5 Scary but Totally Normal Caregiver Experiences Being a caregiver is tough—and sometimes downright scary.

In our Season 9 finale we hear from our friend Anna, wife to the incredible, confident, loving girl-Dad, Craig. Anna's strength and her love is so inspiring, we hope it fills you with hope and comfort as you navigate the holidays. ------- An extended version of this amazing episode is available now on our Re-Members only Patreon. A special thank you to all of our guests, sponsors + listeners this season. We are so deeply thankful + grateful for you. Hope this season you can find some time to #acceptthegood. We are here for you. xx - R+M ------ Please check out some of our amazing sponsors: ⁠⁠⁠PROGRANULIN INFORMATION NAVIGATOR⁠⁠⁠ A resource for FTD clinical trial and genetic testing info. ⁠⁠MAKE TIME WELLNESS⁠⁠ (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram! --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Anticipatory Grief, Complicated Grief, Disenfranchised Grief... we cover it all + Rachael's explanation for her fascination with grief and all things *bittersweet* We're nearing the end of season 9! Thank you for all of your support this season + beyond! Please don't forget to check out our Patreon for bonus episodes + more! And follow us on Instagram. Please check out the amazing sponsors mentioned in this episode: ⁠⁠⁠⁠⁠PROGRANULIN INFORMATION NAVIGATOR⁠⁠⁠⁠⁠ A resource for FTD clinical trial and genetic testing info. ⁠⁠⁠⁠MAKE TIME WELLNESS⁠⁠⁠⁠ (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram! --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Struggling to juggle caring for your kids AND your aging parents? You're not alone, Careblazer! Sandwich caregivers face unique challenges like burnout, financial strain, and career struggles—but there's hope. In this video, I break down the top stressors and share simple, actionable tips to help you manage the chaos, protect your mental health, and plan for the future.

In Part 2 of this powerful story we discuss Kayla's coming back to her mom in the final year's of Diana's life. Kayla tells us all about her grief journey and her hopes for her future. Make sure you listen t o Part 1 first! Thank you Kayla for sharing your story. --- *Trigger warning: This story discusses physical and verbal abuse. Please check out the sponsor mentioned in this episode: ⁠⁠⁠⁠⁠PROGRANULIN INFORMATION NAVIGATOR⁠⁠⁠⁠⁠ A resource for FTD clinical trial and genetic testing info. ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram! --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

98% of people with dementia experience challenging behaviors like agitation, anxiety, and restlessness. These behaviors can be overwhelming, but there's hope!

Here is part one of an episode we weren't sure what to title - and after you listen, we think you'll understand why. Kayla recounts and her 20 year experience witnessing her mom Diana's dramatic FTD journey -- starting from when she was just 8 years old. This is such an important episode and we hope it gets to the people who need to hear it. Stay tuned for part 2 dropping later this week. Thank you, Kayla for sharing your story. *Trigger warning: This episode discusses physical and verbal abuse. Please check out the amazing sponsors mentioned in this episode: ⁠⁠⁠⁠PROGRANULIN INFORMATION NAVIGATOR⁠⁠⁠⁠ A resource for FTD clinical trial and genetic testing info. ⁠⁠⁠MAKE TIME WELLNESS⁠⁠⁠ (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠PATREON⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram! --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Today's episode is told by Liz, who was 12 years old when her father passed away from FTD-ALS. Her perspective was both fascinating and inspiring and we felt so honored to hold space for her and her dad, David. We hope this episode of love and resilience helps carry you through Thanksgiving week. Take good care. Please send this episode to someone you think needs to hear it. Please check out the amazing sponsors mentioned in this episode: ⁠⁠⁠PROGRANULIN INFORMATION NAVIGATOR⁠⁠⁠ A resource for FTD clinical trial and genetic testing info. ⁠⁠MAKE TIME WELLNESS⁠⁠ (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram! --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Ever wondered why hallucinations happen in dementia and how you can help your loved one through them?

Today's episode is the first one this season told from the spouses perspective... and Allyson is such a special spouse to her husband Evan. From misdiagnosis of adult onset ADHD to the final diagnosis of FTD was a long, long journey. But Allyson's love for Evan shines throughout. This is a very special episode that is so raw and honest about the awfulness of this disease..but also such a beautiful example of love and commitment. We hope this episode finds someone who needs to hear it! Please check out the amazing sponsors mentioned in this episode: ⁠⁠PROGRANULIN INFORMATION NAVIGATOR⁠⁠ A resource for FTD clinical trial and genetic testing info. ⁠MAKE TIME WELLNESS⁠ (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠PATREON⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram! --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Why do people with dementia lie? This might be one of the most confusing and frustrating behaviors for caregivers, but what if I told you…it's not really lying?

Are you worried about developing dementia or concerned about the risk for a loved one? In today's video, I'm excited to share a groundbreaking study published in Nature in July 2024 that reveals a potentially new way to reduce dementia risk!

Today's story is about a woman who was very aware of her disease and the fact that she was changing. Told from her daughter Kyra's perspective, Debbie's episode dives into the many unique layers of grief that come with Frontotemporal Dementia. A special thank you to Kyra for so delicately expressing the end of life experience in an effort to help others. We hope this episode helps you feel less alone. Spread the word + share this episode with someone you think needs to hear it today. --- All things Remember Me FTD Community + Advocacy: ⁠⁠⁠www.remembermeftd.com⁠⁠⁠ | ⁠⁠⁠@remembermepodcast⁠⁠⁠ Ways to support our podcast: follow us on Instagram | leave an apple review | join our ⁠Re-Members Only group⁠ or contact us about ⁠partnerships⁠. --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

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