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5 episodes with frontotemporal
3 episodes with frontotemporal
2 episodes with frontotemporal
2 episodes with frontotemporal
2 episodes with frontotemporal
4 episodes with frontotemporal
2 episodes with frontotemporal
2 episodes with frontotemporal
2 episodes with frontotemporal
Rebecca Williams, narrates her blog written for the Dementia Researcher website. Rebecca explores how stand-up comedy techniques can enhance science communication. From crafting engaging openings to honing audience interaction, she shares insights on making research talks more compelling. By embracing humour, observation, and performance skills, scientists can captivate their listeners—whether in a lecture theatre or at a conference. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-stand-up-scientists-lessons-from-comedy/ -- Rebecca Williams is PhD student at the University of Cambridge. Though originally from ‘up North' in a small town called Leigh, she did her undergraduate and masters at the University of Oxford before defecting to Cambridge for her doctorate researching Frontotemporal dementia and Apathy. She now spends her days collecting data from wonderful volunteers, and coding. Outside work, she plays board games, and is very crafty. @beccasue99 -- Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher https://bsky.app/profile/dementiaresearcher.bsky.social
Frontotemporal dementia (FTD) affects an estimated 50,000 to 60,000 people in the United States, robbing individuals of their personality, language, and ultimately, their memories. This devastating disease presents unique challenges, often impacting behavior and emotions long before memory loss becomes apparent. In this episode, we explore the complexities of love and loss through the lens of FTD. Our Guest: Katie, shares her love and loss story as a caregiver for her mother, who battled FTD. Katie, now a filmmaker, has captured her mom's journey in a poignant film that delves into the love and loss woven through the different stages of life, from middle age to the twilight years. With raw honesty, Katie confronts the messy and complicated emotions that accompany the long road of grief and caregiving. Join us as we discuss the unique challenges of FTD, the power of storytelling, and the enduring bonds of love that persist even in the face of devastating loss. Learn More About Katie & Wake Up Maggie Here ++++++++++++++++++++++++++++++++++++++++ Related Episodes: Dance and Memories: Dementia Engagement Music in Dementia Care Stress Relief to Moments of Joy ++++++++++++++++++++++++++++++++++++++++ Sign Up for more Advice & Wisdom - email newsletter. ++++++++++++++++++++++++++++++++++++++++ Please Support Our Sponsors So We Can Continue To Bring The Show to You For Free - Thank You ++++++++++++++++++++++++++++++++++++++++ Feeling overwhelmed? HelpTexts can be your pocket therapist. Going through a tough time? HelpTexts offers confidential support delivered straight to your phone via text message. Whether you're dealing with grief, caregiving stress, or just need a mental health boost, their expert-guided texts provide personalized tips and advice. Sign up for a year of support and get: Daily or twice-weekly texts tailored to your situation Actionable strategies to cope and move forward Support for those who care about you (optional) HelpTexts makes getting help easy and convenient. ++++++++++++++++++++++++++++++++++++++++ Make Your Brain Span Match Your LifeSpan Relevate from NeuroReserve I've been focusing a lot on taking care of my brain health, & I've found this supplement called RELEVATE to be incredibly helpful. It provides me with 17 nutrients that support brain function & help keep me sharp. Since you're someone I care about, I wanted to share this discovery with you. You can order it with my code: FM15 & get 15% OFF your order. With Relevate nutritional supplement, you get science-backed nutrition to help protect your brain power today and for years to come. You deserve a brain span that lasts as long as your lifespan. ++++++++++++++++++++++++++++++++++++++++ Join Fading Memories On Social Media! If you've enjoyed this episode, please share this podcast with other caregivers! You'll find us on social media at the following links. Instagram Twitter LinkedIn Facebook Contact Jen at hello@fadingmemoriespodcast.com Or learn more at Our Website
Rebecca Williams, narrates her blog written for the Dementia Researcher website. Rebecca reflects on the challenges of academic writing, emphasising the value of producing an unpolished first draft to overcome the difficulty of getting started. She discusses the importance of cutting unnecessary content, refining clarity, and making writing more engaging, while also acknowledging the role of collaboration and feedback in improving a paper. By sharing her own experiences, she highlights how the writing process is rarely straightforward and often requires multiple revisions before reaching a final, polished version. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-draft-zero-to-hero/ -- Rebecca Williams is PhD student at the University of Cambridge. Though originally from ‘up North' in a small town called Leigh, she did her undergraduate and masters at the University of Oxford before defecting to Cambridge for her doctorate researching Frontotemporal dementia and Apathy. She now spends her days collecting data from wonderful volunteers, and coding. Outside work, she plays board games, and is very crafty. @beccasue99 -- Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher https://bsky.app/profile/dementiaresearcher.bsky.social
Katie's mom was just 62 when she was diagnosed with frontotemporal dementia. The diagnosis catapulted her family into the world of caregiving and learning about this lesser known form of dementia. Katie Prentiss is an award winning actress and filmmaker. She is currently working on a feature film called “Wake Up Maggie” which is a love letter to her mom. You can reach Katie at her website https://www.katieprentiss.com or Instagram @wakeupmaggiemovie. You can also help Katie raise FTD awareness by supporting her go fund me. Some of the highlights Katie shares:Frontotemporal dementia [FTD] is a lesser known type of dementia that is often misdiagnosed as depression, menopause, alcoholism, or delusional disorderThe unusual symptoms of FTD - this is not like the typical memory loss of Alzheimer's FTD is the most common type of dementia for people under 65The reality of saying a "slow goodbye" to someone you loveThe reality of being catapulted into caregivingWhy we need additional research about FTDRaising awareness through filmThe concept of "unraveling" by peeling back the layers that don't serve us anymore - becoming more authenticLearning to focus on what we can control Dealing with caregiver guiltFeeling overwhelmed as a caregiverLearning to be compassionate with yourself as a caregiverAcceptance is where peace liesLiving with the thought, "What if it happens to me"Living a life filled with peace and fulfillment rather than fear and regretAnd morePlease share, subscribe, leave a rating and review, visit the Linda's Corner website at lindascornerpodcast.com and/or follow on youtube, facebook, instagram, and pinterest @lindascornerpodcast. Thanks!Also please visit the Hope for Healing website at hopeforhealingfoundation.org for free resources to increase happiness, build confidence and self esteem, improve relationships, manage stress, and calm feelings of depression and anxiety. Become the champion of your own story as you overcome your challenges.
Rebecca Williams, narrates her blog written for the Dementia Researcher website. In this blog Rebecca explores the challenging perceptions and stereotypes that women face in the field of science. She discusses her personal experiences and observations from the Women in Neuroscience UK Awards, highlighting how femininity is often viewed as incompatible with scientific credibility. Rebecca argues against this outdated notion by showcasing successful women who embrace both their scientific expertise and their femininity, advocating for a more inclusive and accepting scientific community where women can express all facets of their identity without judgment. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-the-binary-of-science-femininity/ -- Rebecca Williams is PhD student at the University of Cambridge. Though originally from ‘up North' in a small town called Leigh, she did her undergraduate and masters at the University of Oxford before defecting to Cambridge for her doctorate researching Frontotemporal dementia and Apathy. She now spends her days collecting data from wonderful volunteers, and coding. Outside work, she plays board games, and is very crafty. @beccasue99 -- Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher https://bsky.app/profile/dementiaresearcher.bsky.social
Rebecca Williams, narrates her blog written for the Dementia Researcher website. Today Rebecca narrates the transformative journey of a PhD student during the festive season. Drawing parallels to Charles Dickens's classic, the blog captures the student's initial despair and subsequent awakening to the profound value and impact of her research. This heartwarming tale is a must-read for anyone enduring the rigorous demands of academic pursuits, offering a message of hope and reassurance that their hard work is indeed meaningful. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-a-phds-christmas-carol/ -- Rebecca Williams is PhD student at the University of Cambridge. Though originally from ‘up North' in a small town called Leigh, she did her undergraduate and masters at the University of Oxford before defecting to Cambridge for her doctorate researching Frontotemporal dementia and Apathy. She now spends her days collecting data from wonderful volunteers, and coding. Outside work, she plays board games, and is very crafty. @beccasue99 -- Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher https://bsky.app/profile/dementiaresearcher.bsky.social
Rebecca Williams, narrates her blog written for the Dementia Researcher website. Rebecca reflects on the importance of representation and authenticity in academia, sharing how being open about her journey and background has helped make the field more accessible. She emphasises the value of showing future scientists that challenges and doubts are a normal part of the process and encourages academics to share their experiences to help others see a path into science. Her blog offers a thoughtful perspective on how small actions can make a meaningful difference when it comes to inspiring young-people and the next generation of researchers. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-be-the-door-bringing-academia-to-life/ -- Rebecca Williams is PhD student at the University of Cambridge. Though originally from ‘up North' in a small town called Leigh, she did her undergraduate and masters at the University of Oxford before defecting to Cambridge for her doctorate researching Frontotemporal dementia and Apathy. She now spends her days collecting data from wonderful volunteers, and coding. Outside work, she plays board games, and is very crafty. @beccasue99 -- Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher https://bsky.app/profile/dementiaresearcher.bsky.social
"Life is short, why not try new things? Our stories matter. Sharing our stories matter." - Katie PrentissHost, Mark Turnbull explores the complexities of aging, particularly focusing on frontotemporal dementia (FTD) through the personal story of Katie Prentiss, who became a caregiver for her mother diagnosed with FTD.The discussion delves into the emotional and practical challenges of caregiving, the impact of dementia on family dynamics, and the lessons learned about empathy and presence during difficult times. Katie shares her journey of navigating the diagnosis, the changes in her mother's behavior, and the profound effects on her family, emphasizing the importance of being present and compassionate in the face of loss. She discusses the challenges of navigating loss, the importance of connection with others facing similar experiences, and how these events inspired her to pursue filmmaking as a means of expression and healing. It is this experience of love and loss that is driving Katie to take a leap of faith into filmmaking to share her story with her Mom and bringing empathy to frontotemporal dementia (FTD.)Learn more about Katie Prentiss and her latest film, "Wake Up Maggie!" at https://www.katieprentiss.com/wake-up-maggieThank you to our sponsor: Royal Hospice Oregon#aging #dementia #frontotemporaldementia #ftd
Teresa Youngstrom is a seasoned Registered Nurse and Dementia Specialist. She has almost 40 years of Clinical and Leadership experience. She became intensely focused on Memory Care when it touched her own family. Teresa is a PAC Certified Independent Trainer under Teepa Snow. Her passion for improving the lives of people living with Dementia led her to start her own business in 2018, “A Better Approach to Memory Care”, where she provides staff training, family consulting, professional education and a podcast called, “Memory Care with Teresa Youngstrom."https://www.seniorcareauthority.com/resources/boomers-today/
Rebecca Williams, narrates her blog written for the Dementia Researcher website. Rebecca, explores the often-intimidating realm of computational modelling in neuroscience. She compares this complex field to a haunted house, where assumptions lurk in shadows, algorithms whisper in the background, and progress requires courage and persistence. Rebecca shares her journey from initially feeling lost in a world of complex mathematics to gradually mastering techniques that unlock deeper insights into brain function. Her blog encourages others to embrace the unknown, demystify the technical language, and make computational modelling more accessible for future researchers. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-the-dark-world-of-computational-modelling/ -- Rebecca Williams is PhD student at the University of Cambridge. Though originally from ‘up North' in a small town called Leigh, she did her undergraduate and masters at the University of Oxford before defecting to Cambridge for her doctorate researching Frontotemporal dementia and Apathy. She now spends her days collecting data from wonderful volunteers, and coding. Outside work, she plays board games, and is very crafty. @beccasue99 -- Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher https://bsky.app/profile/dementiaresearcher.bsky.social
Rebecca Williams, narrates her blog written for the Dementia Researcher website. Rebecca shares her reflections on the highs and lows of academic life. She acknowledges the challenges, such as long days, coding frustrations, and balancing work-life responsibilities, but emphasises her passion for research and problem-solving. Rebecca highlights the excitement of working in a field as unique as computational neuroscience, the supportive academic community, and the flexibility of her work. Her blog serves as a reminder of the rewarding aspects of academia, even amidst its struggles. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-the-joys-of-academia-seriously/ -- Rebecca Williams is PhD student at the University of Cambridge. Though originally from ‘up North' in a small town called Leigh, she did her undergraduate and masters at the University of Oxford before defecting to Cambridge for her doctorate researching Frontotemporal dementia and Apathy. She now spends her days collecting data from wonderful volunteers, and coding. Outside work, she plays board games, and is very crafty. @beccasue99 -- Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher https://bsky.app/profile/dementiaresearcher.bsky.social
Description When a close family member is diagnosed with dementia, it can be uniquely challenging for young adults to navigate this new reality. We are Nancy and Merritt Treaster. When Merritt was in his early twenties, his dad, who was 60 at the time, was diagnosed with Frontotemporal dementia. A few short years later, his grandfather, at the age of 85, was diagnosed with Alzheimer's disease. Merritt's experiences led us to create this episode to help other young adults. He has distilled his thoughts on how to be better prepared into four essential tips for young adults facing a family member's dementia diagnosis. Takeaways For takeaways click here Rate, subscribe and share your tips on social media! Please click here to review, follow or subscribe to our podcast. If you don't see your preferred platform, click on Podchaser and click at the bottom “Write my review” Connect with us and share your tips: Website: https://www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Keywords Young adult, teenager, boundaries, incontinence, Alzheimer's, dementia, caregiver, caregiving, dementia care, memory care, dementia caregiver blog, Alzheimer's blog, caregiver blog, senior caregiver blog, dementia caregiver tips, how to care for someone with dementia living alone, information on dementia for caregivers, how to be a caregiver for someone with dementia, family caregiver, frontotemporal dementia, dementia caregiver tips, family caregiver, Sue Ryan, Nancy Treaster, Susan J Ryan, Merritt Treaster
Rebecca Williams, narrates her blog written for the Dementia Researcher website. Rebecca's blog explores the practical, self-serving benefits of Open Science, beyond its noble ideals. She highlights how practices like preregistration can streamline research, making analysis faster and writing less labor-intensive. Additionally, Open Science fosters transparency and accountability, making it easier to publish null results and receive valuable feedback on data and code. By embracing these methods, researchers can enhance the efficiency and integrity of their work, all while contributing to a more open and honest scientific community. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-selfish-reasons-for-open-science/ -- Rebecca Williams is PhD student at the University of Cambridge. Though originally from ‘up North' in a small town called Leigh, she did her undergraduate and masters at the University of Oxford before defecting to Cambridge for her doctorate researching Frontotemporal dementia and Apathy. She now spends her days collecting data from wonderful volunteers, and coding. Outside work, she plays board games, and is very crafty. @beccasue99 -- Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher
Frontotemporal dementia (FTD) is a dementia distinct from Alzheimer's in the brain regions affected and symptoms that arise. While memory loss is a key feature of Alzheimer's, FTD often presents with personality changes, behavioral issues,and difficulty with language. This difference significantly impacts caregiving. An FTD patient might require more assistance with managing emotions or navigating social situations compared to someone with Alzheimer's. Recognizing these unique aspects of FTD is crucial for providing the best care and support to both patients and their families. Our Guest: Allyson Schrier Allyson is the co-founder of Zinnia TV. She created this resource because her husband had dementia. She wanted videos that would: Keep him occupied and happy Give her a break Distract him when he was anxious Calm them both down Encourage him to drink water, bathe, get dressed, use the toilet Remind him of activities he loves It didn't exist so she built it. You know how much I love featuring caregivers turned creators! ZinniaTV Website ++++++++++++++++++++++++++++++++++++++++ Related Episodes: Living with FTD Feat. Janice Swink (part 1) Living with FTD Feat. Janice Swink (part 2) ++++++++++++++++++++++++++++++++++++++++ Sign Up for more Advice & Wisdom - email newsletter. ++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Please help us keep our show going by supporting our sponsors. Thank you. ++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Feeling overwhelmed? HelpTexts can be your pocket therapist. Going through a tough time? HelpTexts offers confidential support delivered straight to your phone via text message. Whether you're dealing with grief, caregiving stress, or just need a mental health boost, their expert-guided texts provide personalized tips and advice. Sign up for a year of support and get: Daily or twice-weekly texts tailored to your situation Actionable strategies to cope and move forward Support for those who care about you (optional) HelpTexts makes getting help easy and convenient. ++++++++++++++++++++++++++++++++++++++++ Make Your Brain Span Match Your LifeSpan Relevate from NeuroReserve I've been focusing a lot on taking care of my brain health, & I've found this supplement called RELEVATE to be incredibly helpful. It provides me with 17 nutrients that support brain function & help keep me sharp. Since you're someone I care about, I wanted to share this discovery with you. You can order it with my code: FM15 & get 15% OFF your order. With Relevate nutritional supplement, you get science-backed nutrition to help protect your brain power today and for years to come. You deserve a brain span that lasts as long as your lifespan. ++++++++++++++++++++++++++++++++++++++++ Join Fading Memories On Social Media! If you've enjoyed this episode, please share this podcast with other caregivers! You'll find us on social media at the following links. Instagram Twitter LinkedIn Facebook Contact Jen at hello@fadingmemoriespodcast.com or Visit us at www.FadingMemoriesPodcast.com
Rebecca Williams, narrates her blog written for the Dementia Researcher website. Rebecca reflects on the intense pressure she has felt throughout her academic career to be perfect, driven by the fear of failure and the need to prove her worth in a privileged position. She discusses how this perfectionism, common in academia, stems from a deep-seated need to justify her place and avoid the perceived monster of failure. Through her journey, she learns to shift her perspective from running away from failure to embracing her passion for science, realising the importance of balance, and accepting that making mistakes is a fundamental part of being human. Sound familiar? Let us know what you think in the comments. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-perfectionism-the-why-matters/ -- Rebecca Williams is PhD student at the University of Cambridge. Though originally from ‘up North' in a small town called Leigh, she did her undergraduate and masters at the University of Oxford before defecting to Cambridge for her doctorate researching Frontotemporal dementia and Apathy. She now spends her days collecting data from wonderful volunteers, and coding. Outside work, she plays board games, and is very crafty. @beccasue99 -- Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher
Rebecca Williams, narrates her blog written for the Dementia Researcher website. Rebecca's blog explores how collaboration across scientific disciplines can lead to major breakthroughs in understanding diseases. Her article illuminates the importance of team effort in research, as it can unlock the historical roots of genetic conditions and point towards future therapeutic strategies. By embracing the past and pooling diverse expertise, Rebecca demonstrates how today's MS have been paving the way for new treatments, which could even include the potential of parasites to alleviate neurological conditions. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-genetic-mystery-solved-the-importance-of-collaboration/ -- Rebecca Williams is PhD student at the University of Cambridge. Though originally from ‘up North' in a small town called Leigh, she did her undergraduate and masters at the University of Oxford before defecting to Cambridge for her doctorate researching Frontotemporal dementia and Apathy. She now spends her days collecting data from wonderful volunteers, and coding. Outside work, she plays board games, and is very crafty. @beccasue99 -- Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher
This year's AD/PD Conference was held in Lisbon, Portugal from the 5th to 9th March. In this first of a two-part special we bring you highlights from the first three days of the conference. The AD/PD Conference focuses on basic science and translational and clinical research bringing New insights on disease mechanisms and etiologies, the latest findings from clinical trials, innovative outlooks on therapy and prevention and advances in diagnostic markers. In this special on-location recording our guest host Dr Amanda Heslegrave, Senior Research Associate and Co-Lead of fluid biomarker laboratory from the UK Dementia Research Institute at University College London talks with: Dr Ian Harrison, Senior Research Fellow at University College London studying the role of clearance systems in the brain, and their involvement in the development and treatment of neurodegenerative diseases. Dr Ariana Gatt, Senior Research Fellow at University College London investigating the role of RNA-binding proteins in neurodegenerative disease with a focus on Frontotemporal dementia. Jess Tobin, Science Communications Manager at Alzheimer's Research UK. -- For more information on the event visit: adpd.kenes.com/ Full biographies on all our guests and a transcript can be found on our website: https://www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than listen, you'll find a video version of this podcast on our YouTube Channel youtu.be/UQdm8aWuoFM This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on Social Media: http://www.instagram.com/dementia_researcher/ http://www.facebook.com/Dementia.Researcher/ http://twitter.com/demrescommunity http://bsky.app/profile/dementiaresearcher.bsky.social http://www.linkedin.com/company/dementia-researcher #dementiaresearch #adpd2024 #ADPDConference
Rebecca Williams, narrates her blog written for the Dementia Researcher website. Rebecca contemplates the journey of her work from its conception to its final goal of tangible real-world impact. She shares a personal anecdote about her first publication, reflecting on the sense of anticlimax when the anticipated change failed to materialise instantly. This experience serves as a springboard for a broader discussion on how researchers can create a more direct path to impact. Rebecca provides practical suggestions on how to align research with NICE recommendations to ensure relevance and application in health services. She urges researchers to engage with policy-making, even in the early stages of their careers, to understand the kind of evidence that can influence decisions and replicate success. Furthermore, she emphasizes the importance of public engagement, advising researchers to consult with patients and carers to ensure their work addresses real needs and achieves its intended effect. The blog underscores the idea that research impact should not be an afterthought but a guiding principle from the beginning of the research process. By integrating these approaches, she advocates for a more intentional and effective pathway to ensure that research does not "enter the void" but instead contributes to meaningful progress. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-research-impact-beginning-at-the-end/ -- Rebecca Williams is PhD student at the University of Cambridge. Though originally from ‘up North' in a small town called Leigh, she did her undergraduate and masters at the University of Oxford before defecting to Cambridge for her doctorate researching Frontotemporal dementia and Apathy. She now spends her days collecting data from wonderful volunteers, and coding. Outside work, she plays board games, and is very crafty. @beccasue99 -- Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://bsky.app/profile/dementiaresearcher.bsky.social https://www.linkedin.com/company/dementia-researcher
The challenges caused by dementia can affect your ability to function in your daily life. —Melissa Batchelor, PhD, RN, FNP, FGSA, FAAN What are the different types of dementia and how to differentiate them? Dementia is a group of symptoms that affect memory, language, problem-solving, and thinking skills, impacting your daily life. Tune in to today's episode where I'll explain in detail what dementia is, discuss common types, and share insights on how to recognize them and access the FREE handout that you can download: 10 Warning Signs of Alzheimer's disease and a checklist of things your provider should check if you're worried about your memory or the memory of someone you love. COMMON SYMPTOMS OF ALZHEIMER'S DISEASE ALZHEIMER'S DEMENTIA Alzheimer's dementia stands as the most common form of dementia, comprising 60-80% of cases. Recognizing its symptoms is crucial, including difficulty remembering recent conversations, names, or events, reduced enjoyment of activities, communication challenges like struggling to find words, and the overall impact on language use and understanding. VASCULAR DEMENTIA Vascular dementia is a condition that affects thinking, planning, judgment, memory, and other cognitive processes due to brain damage caused by reduced blood flow. This may show signs like slurred thoughts or decision-making challenges. Everyday tasks, such as filling out forms or planning events, may become a bit harder. It's important to notice these signs early for timely help and support. FRONTOTEMPORAL DEGENERATION (FTD) Frontotemporal dementia (FTD) is a progressive brain disease. This means over time; it causes parts of your brain to deteriorate and stop working. There's also a lot of denial that there is a memory problem and you may see less emotional expression, known as either having a flat affect or being apathetic. Notably, this is the type of dementia Bruce Willis is dealing with. When reports surfaced about his memory issues, they linked it to aphasia - the struggle with using and understanding language. PARKINSON'S DEMENTIA (PD) Parkinson's disease can cause a form of dementia known as Parkinson's dementia (PD). This condition is marked by a decline in thinking, reasoning, and problem-solving. Parkinson's dementia often involves falling, distinguishing it from others. While Lewy body and Frontotemporal dementia also involve falling, the direction varies – forward for Lewy body and backward for Parkinson's. LEWY BODY DEMENTIA (LBD) Lewy body dementia (LBD) is the second most common type of dementia after Alzheimer's disease. Early symptoms of Lewy body dementia include sleep disturbances, vivid visual hallucinations like seeing bugs or strangers, and difficulty with visual-spatial awareness, affecting one's sense of space and time. Get your FREE downloads at https://melissabphd.com/ from the Blog page that goes with this episode or using the links below. 10 Warning Signs: https://melissabphd.com/10warningsigns/ Diagnosis Checklist: https://melissabphd.com/diagnosischecklist/ ------------------------------------------------------------------------------------------------------------------------------- About MelissaBPhD Melissa Batchelor, PhD, RN, FNP, FGSA, FAAN. I am a nurse, nurse practitioner, nurse Please visit my website at MelissaBPhD.com to learn more about me, how you can work with me directly, and/or support future episodes of the podcast. Within the first 18 months of launching this podcast, we reached a ranking of top 10% globally. The best way you can help the podcast continue to grow is to LIKE the podcast with a thumbs up, SHARE the podcasts you like with others, SUBSCRIBE, and LEAVE A REVIEW. These things only take a minute of your time, but they really do help increase my rating and ranking; but more importantly, these actions help other people find the podcast. For the most up-to-date news and information about the podcast and other products and services, please visit my website to sign up for my newsletter and follow me on social media. If you are on Facebook, feel free to join my Group - look for This is Getting Old: Moving Towards an Age-Friendly World ~ and I'll see you there! https://www.facebook.com/groups/249685261464834/
: In this weekend health update, Fred Bodimer covers the latest on Wendy Williams' diagnosis of Frontotemporal dementia and primary progressive aphasia. The segment also delves into a new CDC survey revealing the awareness levels of long COVID among American adults. Additionally, there's a prediction on how the surge in sales of weight loss drugs could impact the US domestic product. The show wraps up with insights into a recent study highlighting gender differences in the amount of exercise needed for optimal health benefits and a glimpse into the early allergy season with warm February temperatures.
Rebecca Williams, narrates her blog written for the Dementia Researcher website. Rebecca shares her experience of positively influencing research culture by integrating fun and personality into the academic environment. By initiating a board game night and other social activities, she encourages colleagues to embrace their quirks, from sharing pun-filled emails to displaying personal trinkets like a tiny rubber duck on their desks. Her actions have shown that by simply being oneself, a PhD student can significantly impact the research culture, challenging the conventional stoicism of academia and promoting a more genuine and wholehearted approach to work and social interactions within her unit. Small things can make a big difference! Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-a-whimsical-research-culture/ -- Rebecca Williams is PhD student at the University of Cambridge. Though originally from ‘up North' in a small town called Leigh, she did her undergraduate and masters at the University of Oxford before defecting to Cambridge for her doctorate researching Frontotemporal dementia and Apathy. She now spends her days collecting data from wonderful volunteers, and coding. Outside work, she plays board games, and is very crafty. @beccasue99 -- Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://bsky.app/profile/dementiaresearcher.bsky.social https://www.linkedin.com/company/dementia-researcher
Rebecca Williams, narrates her blog written for the Dementia Researcher website. Experience the magic of neuroscience this holiday season with Rebecca's blog. In a heartwarming tale set against the backdrop of Christmas morning, discover the fascinating world of Magnetoencephalography, or MEG, as it unveils the secrets of the brain's inner workings. Join the journey as Rebecca takes you through the challenges and wonders of neuroscience, where magnetic fields, superconducting quantum interference devices (SQUIDs), and optically pumped magnetometers (OPMs) are the stars of the show. While Santa may not be delivering a million-pound MEG scanner down the chimney, OPMs offer a promising future, bringing us one step closer to understanding the brain's mysteries with their portability and sensitivity. This holiday season, unwrap the gift of knowledge and explore the exciting possibilities of neuroimaging. MEGry Christmas to all, and to all a good night! Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-megry-christmas-to-all/ -- Rebecca Williams is PhD student at the University of Cambridge. Though originally from ‘up North' in a small town called Leigh, she did her undergraduate and masters at the University of Oxford before defecting to Cambridge for her doctorate researching Frontotemporal dementia and Apathy. She now spends her days collecting data from wonderful volunteers, and coding. Outside work, she plays board games, and is very crafty. @beccasue99 -- Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support.
Rebecca Williams, narrates her blog written for the Dementia Researcher website. In her blog, Rebecca delves into the challenges of academic burnout, recounting her personal experiences of exhaustion and lack of motivation in her research role. She reflects on the irony of academic flexibility, highlighting how this often translates to extended working hours rather than genuine work-life balance. Through her journey, Rebecca shares her realisation of being in the throes of burnout, underscoring the importance of recognising early warning signs. Her narrative emphasises the need for structured work schedules and the importance of taking regular breaks, offering valuable insights for academics struggling to maintain mental health amidst demanding careers. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-unfrazzled-brains-10-4-to-stop-burnout/ -- Rebecca Williams is PhD student at the University of Cambridge. Though originally from ‘up North' in a small town called Leigh, she did her undergraduate and masters at the University of Oxford before defecting to Cambridge for her doctorate researching Frontotemporal dementia and Apathy. She now spends her days collecting data from wonderful volunteers, and coding. Outside work, she plays board games, and is very crafty. @beccasue99 -- Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support.
Join us for a special NRSRN Lunch that will explore Frontotemporal disorders (FTD), sometimes called frontotemporal dementia.While the most common form of dementia among all age groups is Alzheimer's disease, Frontotemporal degeneration (FTD) is the most common for those diagnosed before age 60. It can occur as early as 21and as late as 80. FTD differs from other types of dementia in that memory loss is not a hallmark symptom. A group of related, heterogeneous disorders, initial symptoms bring progressive changes to personality, behavior, decision making, communication or movement. The Association for Frontotemporal Degeneration will present the signs and symptoms of FTD, the importance of early diagnosis and person-centered care, and highlight current research opportunities and support resources for those living with FTD and their care partners.Presented by Will Reiter, AFTD Education Program Manager and Jen Morabito, AFTD Ambassador, you'll hear both the family experience of this challenging disease and learn how it differs from other dementias as far as symptoms, support and care.Objectives:Learn how Frontotemporal degeneration (FTD) differs from other types of dementiaIdentify the common signs and symptoms of FTDLearn how this younger onset dementia impacts familiesDiscover helpful resources provided by The Association for Frontotemporal DegenerationPresenters:Will Reiter, MA | AFTD, Education Program ManagerWill joined AFTD in May 2021 as Education Program Manager. He works to expand AFTD's relationships with healthcare providers in order to support early FTD diagnosis and comprehensive person-centered FTD care. He has worked in the dementia field for more than 30 years. In a variety of local and regional settings, he has provided direct support and education to those living with dementia, care partners, and healthcare providers. William previously worked at the Family Caregiver Alliance in San Francisco as well as the Massachusetts/New Hampshire Chapter of the Alzheimer's Association. Most recently, he served as the Health Systems Director for the Alzheimer's Association, Delaware, New Jersey, and Pennsylvania region, initiating and strengthening connections to clinicians and regional health systems.Jen Morabito | AFTD Ambassador, MarylandJen first learned about AFTD after her mother was diagnosed with FTD in 2014. She began hosting events for AFTD's Food for Thought campaign, and became known for her Cindy's Cakes fundraiser. Soon after, she became a liaison to assist other Food for Thought hosts. Jen has been in close contact with volunteers and staff at AFTD, and has found a strong sense of community and support, which she wants to share with others. As an Ambassador, Jen is looking forward to working with individuals, groups, and agencies to support AFTD's mission of awareness, education, support, and advocacy.
Rebecca Williams, narrates her blog written for the Dementia Researcher website. In this blog Rebecca explores the challenges of using p-values in statistics, comparing their anxiety-inducing nature to horror movie jump scares. Critiquing the arbitrary 0.05 significance threshold, it suggests this leads to false results. Rebecca promotes Bayesian statistics as a more intuitive alternative, offering clearer interpretations and support for null hypotheses. Do you agree? Rebecca argues for the importance of recognising null results in research, aligning with the move towards open science. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-the-horror-of-p-values/ -- Rebecca Williams is PhD student at the University of Cambridge. Though originally from ‘up North' in a small town called Leigh, she did her undergraduate and masters at the University of Oxford before defecting to Cambridge for her doctorate researching Frontotemporal dementia and Apathy. She now spends her days collecting data from wonderful volunteers, and coding. Outside work, she plays board games, and is very crafty. @beccasue99 -- Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support.
Despite the fact that dementia is a very individual disease - and that symptoms may vary - many memory care communities will not even consider a new resident with a Lewy body, Frontotemporal, Vascular or Alcohol Related Dementia diagnosis. They won't even look at their medications or doctors notes. This week we're looking at some of the symptoms of the different types of Dementia including Alzheimer's and why it can be more difficult to find care. CLICK HERE for our DOABLE DOWNLOAD with FULL SHOW NOTES Follow us on INSTAGRAM for more doable tips! Need help with your situation? BECOME A CLIENT TODAY! Would you like to share your story and be a guest on our show? Email us at familytalk@desperatelyseekingseniorliving.com www.desperatelyseekingseniorliving.com
DR JAIN: Sexuality is a broad term that encompasses sexual identity, activity, attitude toward sex, intimacy, partnership, and pleasure. In this podcast, we cover the basics of sexual function and the effects of aging, medical comorbidities, and mental health on sexuality. We discuss sexual health in long-term care settings and in older adults with cognitive disorders and suggest an approach to commonly encountered sexual health issues. Welcome to The Carlat Psychiatry Podcast.This is another episode from the geriatric psychiatry team.I'm Neha Jain, an Associate professor of psychiatry, Medical Director for the Mood and Anxiety Disorders Program and Associate Program Director for the Geriatric Psychiatry Fellowship Program at the University of Connecticut Health Center, in Farmington, CT. In today's podcast, I am joined by two of my colleagues. DR COLLIER: I'm Stephanie Collier, The Editor-in-Chief of The Carlat Geriatric Psychiatry Report. DR AZIZ: and I'm Dr. Rehan Aziz, an associate professor of psychiatry and neurology at Hackensack-Meridian School of Medicine. I am also the associate program director for geriatric psychiatry and general psychiatry at Jersey Shore University Medical Center, in Neptune, New Jersey. Let's begin our discussion with the topic Dr. Jain started out with. What are your thoughts about how sexual function and sexuality intersect in older adults? DR JAIN: Yes, first it is just important to acknowledge that older adults are sexually active because discussions about sexual issues are often avoided in healthcare settings. You know there is often discomfort on part of the patient or clinician, a lack of knowledge-I mean how much training do you remember in Med School and residency. , fear of embarrassment, or ageist beliefs. However, a fulfilling sex life is a crucial aspect of quality of life for many seniors. DR COLLIER:This brings up the question of how we assess sexual health in older adults in a clinical setting. DR. JAIN: To assess sexual activity, I generally start by asking for permission to discuss sexuality with the patient. I then ask open-ended questions such as “What concerns or questions do you have in terms of your sexual activity?” I may also ask “Have you noticed changes in your sexual relationship with your partner over time?” Many older adults will not disclose sexual health issues if there are others in the room, so I try to ensure privacy when screening for sexual dysfunction. I ask about problems with libido, getting/maintaining an erection (for men), dryness or discomfort (for women), and difficulty achieving orgasm (for both). DR. AZIZ: We know that patients can be at risk of sexually transmitted diseases. Dr. Jain, what is your approach to that discussion with a patient, given that it can be a sensitive topic for many? DR. JAIN: To start the conversation, I ask whether they have concerns about their partner's sexual health. For those who are at risk, I suggest undergoing screening for sexually transmitted infections. I handle the discussion with sensitivity, using open-ended questions in a respectful yet straightforward manner, to alleviate any discomfort. This approach encourages patients to share any additional concerns they may have. And I avoid making assumptions about their sexual orientation or relationship status and allow patients to disclose their preferences at their own pace. DR COLLER: When assessing patients, it is important to examine their comorbidities as they can often affect sexuality. Dr. Jain, what is your process to assess a patient's comorbidities and their effect on sexuality? DR JAIN: Whenever I encounter patients with sexual dysfunction, I make sure to inquire about their medical history, particularly any comorbidities they may have. This is because certain illnesses like Parkinson's disease, cancer, diabetes, and coronary artery disease can contribute to sexual dysfunction. My treatment recommendations are based on the underlying causes, which may include prescribing medications such as sildenafil, referring patients to urology or sexual health counseling, or suggesting evaluation for pelvic floor physical therapy. DR. AZIZ: We know that depression and anxiety are important risk factors for sexual dysfunction, as are the medications used to treat them. SSRIs can cause hypoactive sexual desire, erectile dysfunction, and delayed ejaculation. So, when we have a patient that has sexual dysfunction and depression, or anxiety treatment should be carefully tailored. DR JAIN: I agree. Before prescribing antidepressants and during the first few follow-ups after starting a new medication, I regularly discuss potential sexual side effects. These side effects may be influenced by the dosage and can sometimes persist even after discontinuing the medication. If necessary, I may suggest taking a brief drug holiday of 24-48 hours before planned sexual activity. In some cases, I may also recommend switching to antidepressants that are less likely to cause sexual side effects, like bupropion, mirtazapine, or vortioxetine. DR COLLIER: Antipsychotics can also have negative effects on sexuality, including reduced libido, erectile dysfunction, and amenorrhea. The sexual side effects are greater in first- generation and prolactin-inducing antipsychotics like risperidone and paliperidone. Dr. Jain, what is your process for addressing antipsychotics and sexual dysfunction? DR JAIN: Yes, during the first follow-up visit after starting an antipsychotic, I usually inquire about any sexual side effects that the patient may be experiencing. If such side effects are present, I may suggest a switch to aripiprazole, which has fewer sexual side effects. Alternatively, I may recommend the use of adjuvant sildenafil to manage sexual dysfunction. DR AZIZ: It is well-known that sexual dysfunction can be affected by the aging process. As an example, women tend to have lower estrogen levels after menopause, which can lead to vulvovaginal atrophy and discomfort during sexual activity. Dr. Jain, could you please explain your approach to treating sexual dysfunction in older adults? DR JAIN: For older women who are experiencing discomfort during sex, one of my recommendations might be to use vaginal lubricants. I always encourage women to talk to their primary care physician about possible treatment options, including local and systemic hormone therapy. As for older men who are experiencing erectile and ejaculatory dysfunction, I inform them that it's a common condition. Depending on the patient's needs, we discuss how to manage modifiable risk factors like obesity, smoking, or hypertension. Additionally, I might suggest psychotherapy or a trial of a phosphodiesterase-5 inhibitor. DR AZIZ: Let's talk about treating inappropriate sexual behavior in dementia, as it can be challenging for some clinicians. DR COLLIER: This is a significant concern. Alzheimer's dementia often causes a lack of interest in sexual activity, but inappropriate behaviors may also occur. Frontotemporal dementia can lead to early sexual disinhibition, while other dementias may have it in later stages. The effectiveness of psychotropic drugs for addressing inappropriate sexual behaviors is uncertain. Instead, behavioral interventions such as redirecting, distracting, and reminding are more useful. Some clinicians may opt to use jumpsuits and shirts with buttons at the back to prevent exposure, but they should weigh the risks and benefits before doing so. DR AZIZ: Yes, treatment can be difficult. If behavioral interventions fail to reduce inappropriate sexual behaviors, case studies suggest the use of antidepressants, particularly SSRIs, and antipsychotics. There is limited evidence for the effectiveness of mood stabilizers, antihypertensives, and cimetidine. While anti-androgens (cyproterone acetate) and progestins (medroxyprogesterone) may be considered by clinicians, they are rarely prescribed due to ethical concerns when treating patients who cannot provide informed consent. DR JAIN:DR COLLIER: Shall we delve into the various limitations on sexuality in older adults? One prime example is the importance of providing quality care to patients experiencing sexual dysfunction. However, barriers to healthy sexual expression in long-term care settings can hinder both treatment and sexuality. DR AZIZ: It's a significant problem. Multiple obstacles prevent healthy sexual expression in long-term care environments, such as staff bias (i.e., labeling sexual behaviors as "inappropriate"), insufficient privacy, the practice of separating couples upon admission to long- term care, concerns regarding consent and capacity, and discrimination against LGBTQ individuals. DR JAIN: There are some ways we can prevent these restrictions. For instance, by providing risk and capacity assessment training, staff can gain confidence in managing sexual behaviors and creating a safe environment for residents to express their sexuality. Additionally, making changes to the environment, like offering Do Not Disturb signs and private spaces, can contribute to the long-term care residents feeling more comfortable. However, this does not completely fix the restrictions you mentioned Dr. Aziz. It's worrying to see the high levels of discrimination that LGBTQ patients face, particularly in long-term care settings. This stigma can be internalized by older adults who identify as LGBTQ, making them hesitant to discuss sexuality. Many LGBTQ adults prefer to age in place and avoid long-term care facilities due to concerns about stigma, autonomy, and potential abuse. One way to combat this stigma is through staff training and education. Clinicians can also help by avoiding assumptions about sexual preferences and using inclusive language when asking open- ended questions. They can also connect older LGBTQ adults to community resources, such as the Services and Advocacy for LGBT Elders USA website (www.sageusa.org). DR JAIN: It's important to acknowledge that sexuality remains a significant aspect of life for older adults, despite common occurrences of sexual dysfunction. Clinicians can greatly aid their patients by inquiring about their sexual health, as addressing sexual dysfunction can immensely enhance their quality of life. Treatment options like behavioral interventions, psychotherapy, and medications should be carefully molded to the needs of each patient. DR COLLIER: The newsletter clinical update is available for subscribers to read in The Carlat Geriatric Psychiatry Report. Hopefully, people will check it out. Subscribers get print issues in the mail and email notifications when new issues are available on the website. Subscriptions also come with full access to all the articles on the website and CME credits. DR AZIZ: And everything from Carlat Publishing is independently researched and produced. There's no funding from the pharmaceutical industry. DR JAIN: Yes, the newsletters and books we produce depend entirely on reader support. There are no ads and our authors don't receive industry funding. That helps us to bring you unbiased information that you can trust. DR COLLIER: And don't forget, you can now earn CME credits for listening to our podcasts. Just click the link in the description to access the CME post-test for this episode.As always, thanks for listening and have a great day!
References The EMBO Journal (2022)41:e109108 Acta Neuropathol. 2007 Sep;114(3):221-9 Acta Neuropathol.2013 Jul; 126(1): 51–57 Brain 2008. Volume 131, Issue 6, Pages 1416–1432 Lovin Spoonful 1968. "She's a Lady" https://youtu.be/xyFdzevDOHg?si=bLl8FZzfE2SffvO4 --- Send in a voice message: https://podcasters.spotify.com/pod/show/dr-daniel-j-guerra/message Support this podcast: https://podcasters.spotify.com/pod/show/dr-daniel-j-guerra/support
In episode 78, Don and I had a fantastic conversation with the warm-hearted and incredibly delightful, Maria Kent Beers. Maria, along with her partner, Rachael Martinez, is the co-founder and co-host of the Remember Me Podcast + Community. Maria has always had a love of radio and editing, receiving a TV Production Degree from Boston University where she was a host of BU In The Morning Radio Show. She also spent time at MTV Radio as an intern in NYC before falling into the world of fashion merchandising for 7 years. After losing her beloved mother, Amalia to FTD in 2020, Maria had a desire to share her mom and experience as a caregiver to the world and the seed for the Remember Me Podcast + Community was planted. Since its inception, the Remember Me Podcast has tripled its audience as the awareness for brain health, Alzheimer's and FTD continues to grow. Maria has served as a guest speaker at Alzheimer's and caregiving conferences around the world and continues to be a resource for others on the FTD journey. Remember Me Podcast + Community has collaborated with partners such as Learn FTD, The Association for Frontotemporal Degeneration (The AFTD) and the Bluefield Project to share their stories and offer support to the FTD community. You can follow along at @remembermepodcast and listen on your favorite podcast platform. World FTD Awareness Week Sept 24 - Oct 8, 2023. Remember Me is going on a 3-city tour (NYC, Philly, DC) to raise awareness of FTD Sept 25 - 28th. - please see their tour page here. Support the show BEDSORE RESCUE - JEWELL NURSING SOLUTIONS: Home of the Patented Bedsore Rescue Positioning Wedge Cushions, Pads & Pillows (Use the PROMO CODE: NCFOP and All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.) SOCIAVI: Connecting Generations Made Simple - Globally - the simplest way for older adults and people with disabilities to connect and engage with their families and friends. There is no username, no password, no login, and no app to choose from. Just a dedicated device, the Sociavi C2M (Connect To Me) device that is always on and ready to use (When you signup for an annual subscription, All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.) No Country For Old People the documentary - MAKE YOUR TAX DEDUCTIBLE DONATION AT OUR GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
In episode 78, Don and I had a fantastic conversation with the warm-hearted and incredibly delightful, Maria Kent Beers. Maria, along with her partner, Rachael Martinez, is the co-founder and co-host of the Remember Me Podcast + Community. Maria has always had a love of radio and editing, receiving a TV Production Degree from Boston University where she was a host of BU In The Morning Radio Show. She also spent time at MTV Radio as an intern in NYC before falling into the world of fashion merchandising for 7 years. After losing her beloved mother, Amalia to FTD in 2020, Maria had a desire to share her mom and experience as a caregiver to the world and the seed for the Remember Me Podcast + Community was planted. Since its inception, the Remember Me Podcast has tripled its audience as the awareness for brain health, Alzheimer's and FTD continues to grow. Maria has served as a guest speaker at Alzheimer's and caregiving conferences around the world and continues to be a resource for others on the FTD journey. Remember Me Podcast + Community has collaborated with partners such as Learn FTD, The Association for Frontotemporal Degeneration (The AFTD) and the Bluefield Project to share their stories and offer support to the FTD community. You can follow along at @remembermepodcast and listen on your favorite podcast platform. World FTD Awareness Week Sept 24 - Oct 8, 2023. Remember Me is going on a 3-city tour (NYC, Philly, DC) to raise awareness of FTD Sept 25 - 28th. - please see their tour page here. Support the showBEDSORE RESCUE - JEWELL NURSING SOLUTIONS: Home of the Patented Bedsore Rescue Positioning Wedge Cushions, Pads & Pillows (Use the PROMO CODE: NCFOP and All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.) SOCIAVI: Connecting Generations Made Simple - Globally - the simplest way for older adults and people with disabilities to connect and engage with their families and friends. There is no username, no password, no login, and no app to choose from. Just a dedicated device, the Sociavi C2M (Connect To Me) device that is always on and ready to use (When you signup for an annual subscription, All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.)No Country For Old People the documentary - MAKE YOUR TAX DEDUCTIBLE DONATION AT OUR GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
Dementia seems to be so pervasive in our society these days. We think about people like Bruce Willis who is dealing with Frontotemporal dementia or Robin Williams who had Lewy Body Dementia or any number of our friends and relatives who are dealing with Alzheimer's.My guest on this episode is Beth Dunoff who calls herself "The Dementia Whisperer". Beth has spent decades researching and learning about all the different forms of dementia (spoiler alert; there over 100 different types!). She started her business, Fill Your Cup, LLC. , to help caregivers take care of themselves and educate caregivers on how to have a more fulfilling relationship with their dementia patients.As a kindness to my listeners, she is offering a FREE consultation, a $250.00 value when you go to http://www.fillyourcupllc.com/mike.You can follow Beth on Facebook and LinkedIn
How do we diagnose and support patients with FTD?When Bruce Willis' family put out a statement about his diagnosis with Frontotemporal dementia, we thought it would be a good time to talk about this disease. It is a complicated disease, so we divided our chat about this illness into two podcasts. This week we talk about the management of frontotemporal dementia and ways you can help your loved one.In this Episode:01:19 - Martina McBride's Creamy Chicken Tortilla Soup02:26 - Life Beyond the Groove: Embedding Cremains in Vinyl Records05:58 - FTD Diagnosis and Management31:27 - "You Don't Just Lose Someone Once"Follow us on Facebook | Instagram | Email us at mail@every1dies.orgClick on this link to Rate and Review our podcast!
Learn about the Disease Affecting Bruce WillisBruce Willis' family put out a statement about his diagnosis with Frontotemporal dementia we thought it would be a good time to talk about this disease. It is a complicated disease, so we divided our chat about this illness into two podcasts. This week we will talk about what frontotemporal dementia does to the body and next week we will explore management of it.In this Episode:02:28 - Aboriginal Death Customs06:30 - Recipe of the Week, Anzac Biscuits08:14 - Frontotemporal Dementia (FTD)25:11 - Nick Cave and the Red Hand Files28:56 - OutroPlease return next week for Part 2 in this series.Follow us on Facebook | Instagram | Email us at mail@every1dies.orgClick on this link to Rate and Review our podcast!
¿Qué es la demencia frontotemporal? Hoy viene el Dr. Yamil Matuk a hablar sobre esto y cómo podemos saber si alguien lo tiene. • Para 2050, unos 153 millones de personas en todo el mundo podrían tener demencia de acuerdo a The Lancet Public Health. El aumento se debe en gran medida al envejecimiento y al incremento de la población. Pero un estilo de vida poco saludable también contribuye al problema, dicen los expertos. • De acuerdo al estudio, los países latinoamericanos que tendrán el mayor incremento en la prevalencia de la demencia son los de Centroamérica y varios sudamericanos: El que encabeza la lista es. Nicaragua, donde el número de casos se multiplicará por más de 4 en tres décadas. En segundo lugar estará Guatemala, con 3,9 veces más casos que en 2019, y en el tercero Perú, con 3,8 veces más. Los países de la región que menos sufrirán este fenómeno son Uruguay, Argentina y Cuba.
In this episode, we discuss Frontotemporal Lobe Dementia (FTD). FTD is a type of dementia that usually occurs in younger individuals and is progressive. We discuss: Signs and symptoms The different types of FTD The case of Phineas Gage Diagnosis Treatment and management Current research on FTD and implications This episode was conducted live for our NEURO Academy audience. Join us at NEURO Academy, a membership based online environment where you'll have access to resources to achieve optimal health, a better, sharper memory, and prevent cognitive decline. The platform provides the opportunity to connect with us and an empowering community and participate in weekly live Q&A sessions, live cooking sessions, live podcasts and Q&A with remarkable health leaders, have access to on demand courses on prevention of neurological diseases, expanding the course to evidence based nutrition and cooking, anxiety, and many others on various topics related to brain health. We just released a comprehensive course of evidence based nutrition in brain health, along with a complete cooking course that will help you learn the basics of healthy eating and how you can apply all the knowledge by improving what's on your plate. You will be able to get CE or CME credits if you're interested, and also receive certification after taking the course. If you join today and until March 5, you will have a chance to get three months off! Join the NEURO Academy: https://neuroacademy.com/ Follow us: Instagram: The Brain Docs @thebraindocs Facebook: The Brain Docs TikTok: @thebraindocs Website: https://thebraindocs.com/
La familia del actor anunció en un comunicado que padece demencia frontotemporal. Aunque es una dura noticia, tener un diagnóstico claro sobre su situación relaja a los seres queridos de Willis. El Dr. Elmer Huerta, especialista en oncología y salud pública, explica los detalles de la enfermedad que padece la estrella de Hollywood.
La familia del actor anunció en un comunicado que padece demencia frontotemporal. Aunque es una dura noticia, tener un diagnóstico claro sobre su situación relaja a los seres queridos de Willis. El Dr. Elmer Huerta, especialista en oncología y salud pública, explica los detalles de la enfermedad que padece la estrella de Hollywood.
Actor Bruce Willis is dealing with dementia
En entrevista con Pamela Cerdeira, para MVS Noticias, Héctor Rubén Martínez, neurólogo especializado en trastornos del movimiento, explicó ¿Qué es la demencia frontotemporal que afecta al actor, Bruce Willis?See omnystudio.com/listener for privacy information.
Welcome to PsychEd, the psychiatry podcast for medical learners, by medical learners. In this episode, we'll explore a topic that we're sure many listeners are eager to learn about: The Assessment of Major Neurocognitive Disorder, also known as dementia with Dr. Lesley Wiesenfeld who is a Geriatric Psychiatrist and Psychiatrist-in-Chief at Mount Sinai Hospital in Toronto, where she leads the Geriatric Consult Liaison Psychiatry Service. She is also an Associate Professor in the Department of Psychiatry at the University of Toronto. The learning objectives for this episode are as follows: Define Major Neurocognitive Disorder (aka Dementia) as per DSM-5 diagnostic criteria Identify differential diagnoses for cognitive decline and list differentiating clinical features Outline an approach to the assessment of a patient presenting with cognitive decline, including the role of a comprehensive history, psychometric tools and other investigations [ Relevant PMH/risk factors, ADLs/IADLs to cover on history, psychometric tools such as MMSE, MoCA and tie this back into major cognitive domains when to consider imaging, bloodwork including specialized testing such as ApoE genetic tests] Classify the major subtypes of Neurocognitive Disorders, their epidemiology, and clinical presentations [ Vascular dementia, Alzheimer's, Frontotemporal, Lewy Body, Parkinson's, Mixed dementia - Early onset dementia] Guest: Dr. Lesley Wiesenfeld ( Lesley.Wiesenfeld@sinaihealthsystem.ca ) Hosts: Dr. Luke Fraccaro (PGY-3), Dr. Mark Fraccaro (PGY-4), Sena Gok (international medical graduate) Audio editing by: Sena Gok Show notes by: Sena Gok Interview Content: Introduction: 0:13 Learning Objectives: 02:35 Diagnostic criteria of Major Neurocognitive Disorder: 03:20 Difference between Major and Mild Neurocognitive Disorder: 05:20 Red Flags of Cognitive Declines: 06:50 Normal Aging vs Major Neurocognitive Disorder: 10:00 Clinical Vignette – introduction: 11:35 Patient Assessment: 16:50 Past medical/family / Psychosocial history: 21:55 Clinical Vignette - Assessment: 37:45 Physical examination: 43:50 Investigations: 45:53 Role of genetic testing: 53:24 Clinical Vignette – Diagnosis: 57:50 References: American Psychiatric Association. (2022). Neurocognitive Disorders. In Diagnostic and statistical manual of mental disorders (5th ed., text rev.). Sadock, B. J., Sadock, V. A., Ruiz, P., & Kaplan, H. I. (2015). Neurocognitive Disorders. Kaplan and Sadock's Synopsis of Psychiatry (11th ed.). Wolters Kluwer DSM-5-TR Fact Sheets (https://psychiatry.org/psychiatrists/practice/dsm/educational-resources/dsm-5-tr-fact-sheets ) Gauthier S, Patterson C, Chertkow H, Gordon M, Herrmann N, Rockwood K, Rosa-Neto P, Soucy JP. Recommendations of the 4th Canadian Consensus Conference on the Diagnosis and Treatment of Dementia (CCCDTD4). Can Geriatr J. 2012 Dec;15(4):120-6. doi: 10.5770/cgj.15.49. Epub 2012 Dec 4. PMID: 23259025; PMCID: PMC3516356. Gauthier S, Chertkow H, Theriault J, Chayer C, Ménard MC, Lacombe G, Rosa-Neto P, Ismail Z. CCCDTD5: research diagnostic criteria for Alzheimer's Disease. Alzheimers Dement (N Y). 2020 Aug 25;6(1):e12036. doi: 10.1002/trc2.12036. Erratum in: Alzheimers Dement (N Y). 2022 Feb 03;6(1):e12088. PMID: 32864413; PMCID: PMC7446944. CPA Note: The views expressed in this podcast do not necessarily reflect those of the Canadian Psychiatric Association. For more PsychEd, follow us on Twitter (@psychedpodcast), Facebook (PsychEd Podcast), and Instagram (@psyched.podcast). You can provide feedback by email at psychedpodcast@gmail.com. For more information, visit our website at psychedpodcast.org.
Sharon Hall, care partner, advocate for young onset dementia, talks with Caregiver SOS on Air co-hosts Carol Zernial, M.A., nationally known gerontologist, and award winning veteran broadcaster and attorney, Ron Aaron, about what everyone should know about Frontotemporal dementia (FTD) -- diagnosis, treatment, and managing the condition.
Our Host, Lori La Bey will be talking with Deborah Snyder who is presently a care partner with her husband who is experiencing Frontotemporal dementia behavioral variant. Her community service work has helped her learn about dementia. Most recently she has been worked with the Aging & disability Resource Center in Delta Junction, in Alaska. Prior to that she worked at a number of nonprofits and up until January 2021, who worked for Americorps Senior Companion program. She also worked in Elementary education for thirty years. Watch the Video Interview Contact Deborah Snyder Phone 907-987-2976 Personal Email ADRC Email Mailing Address Deborah Snyder - PO Box 1188, Delta Junction, AK 99737 Contact Lori La Beywith questions or branding needs at www.AlzheimersSpeaks.com Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.
It's our last episode of our dementia research mini-series! And as a follow up to our recap of Day 4, we interviewed Dr. Adam Boxer to learn more about fluid biomarkers - AKA - we ask him all about what the bloodwork and lumbar puncture is used for. Stay tuned for a very special ending of our 8-part series. Thank you for coming on the journey with us and please let us know what you think of this series by reaching out to us on our website! www.remembermeftd.com Adam L. Boxer, MD, PhD, is Endowed Professor in Memory and Aging in the Department of Neurology at the University of California, San Francisco (UCSF). He directs UCSF's Neurosciences Clinical Research Unit and the Alzheimer's Disease and Frontotemporal Degeneration (FTD) Clinical Trials Program at the UCSF Memory and Aging Center. Dr. Boxer's research is focused on developing new treatments and biomarkers for neurodegenerative diseases, particularly those involving tau and TDP-43. Dr. Boxer received his medical and doctorate degrees as part of the NIH-funded Medical Scientist Training Program at New York University Medical Center. He completed an internship in Internal Medicine at California Pacific Medical Center, a residency in Neurology at Stanford University Medical Center, followed by a fellowship in behavioral neurology at UCSF. We loved Dr. Boxer! Enjoy the science side of our experience, you guys! -- Special thank you to the ALLFTD Study for their support in the creation of this series. You can support Remember Me by visiting our website www.remembermeftd.com where you can shop our merch, join re-members only or donate. You can follow us on instagram @remembermepodcast. ---- Today's sponsor is The Bluefield Project: The Bluefield Project to Cure FTD, is on a mission to support research to improve our understanding of a genetic form of Frontotemporal dementia, and to help find a cure for this devastating disease. So how can you help? If FTD runs in your family, participating in a Natural History Study, or in a therapeutic clinical trial, makes an enormous contribution. To learn more, please go to ftdregistry.org ---- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support
As a follow up to our recap of Day 3, we interviewed world-renowned Dr. Brad Boeve to learn more about what we know about Frontotemporal Dementia, and what we're learning through the ALLFTD Study. Dr. Brad Boeve is a professor of neurology in the Mayo Clinic College of Medicine and Science and is a consultant in the Department of Neurology and Center for Sleep Medicine at the Mayo Clinic in Rochester, Minnesota. Dr. Boeve is a co-director of the Clinical Core of Mayo's Alzheimer's Disease Research Center. Dr. Boeve is recognized with the distinction of the Little Family Foundation Professorship in Lewy Body Dementia. And he is one of the three ALLFTD Principal Investigators. We loved Dr. Boeve! Enjoy the science side of our experience, you guys! Special thank you to the ALLFTD Study for their support in the creation of this series. You can support Remember Me by visiting our website www.remembermeftd.com where you can shop our merch, join re-members only or donate. You can follow us on instagram @remembermepodcast. ---- Today's sponsor is The Bluefield Project: The Bluefield Project to Cure FTD, is on a mission to support research to improve our understanding of a genetic form of Frontotemporal dementia, and to help find a cure for this devastating disease. So how can you help? If FTD runs in your family, participating in a Natural History Study, or in a therapeutic clinical trial, makes an enormous contribution. To learn more, please go to ftdregistry.org ---- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support
As a follow up to our recap of Day 2, we interviewed Dr. Howie Rosen to learn more about MRIs and how they're used in the ALLFTD Study and in diagnosing FTD. Dr. Howie Rosen, is a behavioral neurologist and holds the Dorothy Kirsten French Foundation Endowed Professorship for Parkinsonian and Other Neurodegenerative Disorders. He is an investigator on multiple federal and state-funded research grants and serves as director of the California State Alzheimer's Disease Center at UCSF, associate director of UCSF's federally funded Alzheimer's Disease Research Center, director of UCSF's Behavioral Neurology Training Program, and director of Curriculum for the Global Brain Health Institute. And, he is one of the three ALLFTD Principal Investigators. We loved Dr. Rosen! Enjoy the science side of our experience, you guys! Special thank you to the ALLFTD Study for their support in the creation of this series. You can support Remember Me by visiting our website www.remembermeftd.com where you can shop our merch, join re-members only or donate. You can follow us on instagram @remembermepodcast. ---- Today's sponsor is The Bluefield Project: The Bluefield Project to Cure FTD, is on a mission to support research to improve our understanding of a genetic form of Frontotemporal dementia, and to help find a cure for this devastating disease. So how can you help? If FTD runs in your family, participating in a Natural History Study, or in a therapeutic clinical trial, makes an enormous contribution. To learn more, please go to ftdregistry.org ---- Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." --- Support this podcast: https://anchor.fm/rememberme/support
In this week's episode, Jennifer chats with Diana Gonzalez-Morett & Akilah ‘AK' Walker about all things making a short film – from writing and directing to producing and fundraising to casting and shooting to everything in between! They unpack resources and give insight to anyone hoping to embark on the creative undertaking and endeavor of short filmmaking. About Diana: Diana Gonzalez-Morett is a creative producer, writer, actress, and caregiver. Diana finds creative strength in her fluidity as a multi-hyphenate and is passionate about supporting creative visions. In 2020 Diana and partner Akilah ‘AK' Walker co-founded Good Mother Films a BIPOC women-led creative company that specializes in producing personal stories told with emotional depth, bold artistry and always considering its social impact. The company produced its first award-winning short film, ‘Ivar Tunnel: Shook Ones' in 2021. When she is not filmmaking Diana works as a teaching artist/director for Bergen Performing Arts Center and administratively for Lotus Arts Management, one of the country's premier dance agencies. Diana is currently based in New Jersey where she is a caregiver for her mother living with Frontotemporal dementia (FTD). It would be unfair to not acknowledge that she does all of this with the help of her loyal chihuahua, Lupita. About Akilah: Akilah “AK” Walker is an actress, writer/director, and creative producer fascinated by the performative, the magical and the absurd--especially as it relates to people of the Black diaspora. Akilah is one out of the 16 actors chosen to be a part of the 2020 ABC Discovers Talent Digital Showcase. Chosen out of 25,000 submissions and 2,500 auditions! This is ABC's first-ever digital showcase! Akilah holds an MFA in acting from American Conservatory Theater in San Francisco as well as a BA in Acting from Fordham University. Akilah has previously performed with Classical Theatre of Harlem, New York Stage & Film, and Berkeley Repertory Theatre, just to name a few. On film, she can be seen in 'Under The Lantern Lit Sky' from Emmy-nominated director Jaclyn Bethany and 'Sorry To Bother You' helmed by the legendary Boots Riley. Originally from Atlanta, Akilah A. Walker is now proud to call Los Angeles home. Akilah A. Walker is also a muse, as she posed as the basis of renowned contemporary artist Kehinde Wiley's sculpture 'Bound' which opened at the Brooklyn Museum in 2015. Akilah A. Walker is what you might call "Quad-Coastal", splitting her time between Los Angeles, New York, San Francisco, and Atlanta. Diana IG: @dianalaurengm Akilah IG: @akthewayy ITSO IG: @itsofilm All things “Ivar Tunnel Shook Ones”: https://linktr.ee/IvarTunnelShookOnesFilm Want to coach with Jennifer? Schedule a session here! https://appt.link/jenniferapple Monologue Sourcing Promo Link! https://empoweredartistcollective.com/podcastpromo Learn more: https://www.empoweredartistcollective.com/podcast EAC IG: @EmpoweredArtistCollective EAC TikTok: @EmpowerArtistCollective EAC Facebook: https://www.facebook.com/empoweredartistcollective/ Check Out Our Merch! https://www.empoweredartistcollective.threadless.com/ Any thoughts you'd like to share? Email us at EmpoweredArtistCollective@gmail.com
In this episode we discuss neurocognitive disorders including delirium and the various types of dementia including Alzheimer, Vascular, Huntington, Lewy Body, Frontotemporal and more. Enjoy!
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