Podcasts about motor neurone disease mnd

Today's episode is a closer to home. I'm opening up about Motor Neurone Disease (MND), a devastating illness that changed my family forever. In 2017, my uncle Mark lost his battle with MND, and back then, I had no idea what the disease even was.This chat is about sharing his story, raising awareness, and shining a light on the incredible work of organisations like FightMND. I'll break down what MND actually is, how it impacts not just the body but entire families, and how you can help, even in small ways.FightMND: Learn more, donate, or grab a Big Freeze 11 beanie!MND Australia: Info, support services, and research updates.

Turning Adversity into Action – Matt Gallagher's Fight Against MNDIn this powerful episode of the Inspiring Leadership Podcast, we sit down with Matt Gallagher, former Coventry rugby player and founder of the Matt Gallagher Foundation, created following his diagnosis with Motor Neurone Disease (MND) in October 2023.Rather than stepping back, Matt has taken bold steps forward—raising over £600,000 through his foundation to support research, increase awareness, and provide hands-on support to the MND community. From charity runs and rugby matches to heartfelt public speaking and community engagement, Matt's story is one of courage, resilience, and purpose.Tune in to hear how Matt is transforming personal adversity into a powerful movement of hope and solidarity.

Welcome to EP16 of Beyond The Balls! Jeff is 38, a father of two beautiful children and has Motor Neurone Disease (MND). He was diagnosed 7 months ago and his body is robbing him of his life with his family.  Chi's father also passed away at 68 from MND (Also known as ALS / Lou Gehrig's). It's a terrible disease which shuts down your nerves, but leaves you in full faculty of everything happening around you - including what's being taken away. That includes your movement, your speech, your dignity and ultimately your breathing.  It sadly is a disease that is becoming much too common. It is also incredibly poorly understood. We don't know what causes it and there is no cure, with average life expectancy from diagnosis being 2 years. So when we got introduced to Jeff and his wife Sarah, we agreed we would try to change that, to increase awareness of the disease.  Jeff & Sarah came on the podcast  to talk about what they're going through and it is one of the most profound, inspiring and heartbreaking pieces of work we could ever hope to be a part of. Jeff talks about resilience. About being grateful for a life well lived. About love. About his family. The grace in which he & Sarah have approached his diagnosis is truly, truly astounding. They are by all definitions, incredible human beings, dealt the most unfair hand in life.  We hope you can be inspired by this difficult interview.   Resource links: Jeff & Sarah's GoFundMe Learn more about MND on FightMND   Beyond the Balls is a fatherhood podcast brought to you by Jayde Couldwell and Chi Lo, a Beyond The Bump production. This podcast is targeted at dads, dads to be, their partners and anyone interested in the journey of fatherhood.  We believe that every dad wants to be the best they can be so our purpose is to entertain, educate and empower our audience. We promise to have open and honest discussions in the hope to leave you feeling more supported after every listen. Join us in celebrating the ups and downs of fatherhood today! Yeah the dads!   Follow us on Instagram: @beyondtheballs.podcast Follow Jayde on Instagram: @londonxboston Follow Chi on Instagram: @chi_lo Follow @yummmchi for some cooking adventures!   This episode is proudly sponsored by Tommee Tippee! Happy 60th Anniversary!  Tommee Tippee's award-winning bottles have been trusted by parents for over 60 years. From the self-sterilising bottle range for ultimate convenience, to the #1 Natural Start Bottle designed to make switching between breast and bottle effortless, to the Advanced Anti-Colic Bottle that's proven to ease colic, gas, and reflux, their scientifically-backed bottles support every stage of your feeding journey. Loved by parents, and we know you'll love them too.

Earlier this year, Matt Gallagher recorded his first-ever podcast for Gobsmacked. Reeling from his Motor Neurone Disease (MND) diagnosis in 2023, Matt opened his heart and family life to raise awareness and offer rapid support to others facing similar challenges. Eight months on, Matt returns to the studio to introduce his dear friend, Ollie Russell, who recently attempted a world record: 48 hours of burpee broad jumps.Ollie, a 26-year-old fitness coach and athlete, has a deeply moving backstory, shaped by the loss of his father to cancer. Inspired by Matt's journey and their shared resilience, Ollie's challenge was a testament to determination, raising vital funds for the Matt Gallagher Foundation, which has already contributed over £370,000 to the MND community.Tune in to Episode 39 of Gobsmacked to hear their incredible stories of heroism, stoicism, and heart. Hosted on Acast. See acast.com/privacy for more information.

Roz Hervey has enjoyed a 30-plus-year career as a dancer, choreographer, director and producer. So, how does she respond when life throws her a challenge which will certainly bring those adventures to a halt? In the face of a recent diagnosis of Motor Neurone Disease (MND), Roz has continue throwing all of her energies into the arts.Also, we ask the multi-award-winning English director and choreographer Christopher Wheeldon, choreographer of a new ballet inspired by Oscar Wilde, which works of art most inspire him, and we celebrate 60 years of the Australian Ballet School with the school's new director Megan Connelly and one of the school's most famous graduates, Graeme Murphy. 

In this episode, Renee Gracie sits down with Melbourne AFL football legend David Neitz to discuss his illustrious career as a professional athlete and his inspiring transition into the world of business. David shares insights into his journey from the football field to founding Brewmanity, a brewery with a mission to support the fight against Motor Neurone Disease (MND). Tune in to hear about the passion behind Brewmanity and how David is making a difference off the field. Hosted on Acast. See acast.com/privacy for more information.

Episode 2: Peter Chambers   Peter Chambers was looking towards retirement after decades in the banking industry. But those plans and life as Pete knew it, changed forever when he was diagnosed with Motor Neurone Disease (MND) in 2018. For many, the MND journey is without a doubt a rollercoaster, as it is for Peter, but not ever wanting his diagnosis to define him, Pete has used it as the catalyst for his positive mindset and desire to help others. His love of cricket and music remain close to his heart, and he speaks candidly about the challenges of MND, but also the incredible strength it has given him and his family to live life to the fullest. Above all, Pete has embraced what he calls his HAPPY philosophy, one that everyone can learn from.   TWO AM I Listen Curiously CREDITS   Hosts: Jack Riewoldt and Shane McCurry   Thanks to our guest Peter Chambers   To learn more about Pete: Peter on Instagram Peter on Facebook Peter on LinkedIn Peter on YouTube F-U MND   Links from this episode: MND Australia MND Victoria: Pete's Legacy Peter Chambers shares his story with Richmond FC Fight MND Big Freeze   Find TWO AM I on social media here: TWO AM I YouTube TWO AM I Instagram  TWO AM I Tik Tok TWO AM I LinkedIn TWO AM I Linktree  See omnystudio.com/listener for privacy information.

Join us as we explore the remarkable journey of Matt Gallagher, a former rugby pro facing Motor Neurone Disease (MND). Rejecting despair, Matt channels his strength into the Matt Gallagher Foundation, raising funds and awareness for MND. Tune in to be inspired by his resilience and determination.https://www.gofundme.com/f/the-matt-gallagher-foundation-coventry-rugby-club Hosted on Acast. See acast.com/privacy for more information.

Dementia Researcher hosted a YouTube / Twitter Livestream on the 23rd June 2023 exploring Motor Neurone Disease (MND) and the remarkable advancements in research, in partnership with MND Scotland. We enjoyed the session so much, that we decided to release it as a bonus 'extra' podcast - so please ignore any references to links on the screen. Listen to learn more about the disease, the latest advancements in MND research, and specifically about the groundbreaking MND Smart Trial. This unique trial has garnered attention for its innovative approach and has shown promising potential in accelerating the discovery of effective treatments for MND. Furthermore, the event will delve into the impact of new investments in MND research, exploring how these resources are driving progress and propelling the quest for a cure. Resources mentioned during the recording: MND-SMART Website - https://mnd-smart.org/ MND Scotland Website - https://mndscotland.org.uk/ Jane Blog - https://www.dementiaresearcher.nihr.ac.uk/guest-blog-uk-motor-neuron-disease-research-institute/ *We can now confirm that the MND-SMART Study does sit on the NIHR Portfolio CPMS ID 44601 for any interested NHS sites. Adam Smith hosted the session, and was joined by: Dr Jane Haley, representing MND Scotland, brings her extensive expertise and compassionate approach to the discussion. As the Director of Research at MND Scotland, Dr. Haley has been instrumental in bringing the thoughts and priorities of people affected by MND into research and driving forward research initiatives and partnerships. Suvankar Pal is a Professor of Neurodegenerative Disorders and Clinical Trials at the University of Edinburgh. He is co-lead investigator of the innovative MND-SMART trial, the largest ever Phase 3 trial for people living with MND in the UK. Stevie Morris was diagnosed with MND in February 2021. He will bring insights to life, sharing the realities of living with the disease, highlighting the challenges faced by individuals living with MND and the importance of research in improving their quality of life. Don't miss this extraordinary opportunity to expand your knowledge, engage with leading experts, and gain insights into the pioneering MND-SMART Trial. Join us on the livestream as we embark on a journey to accelerate discovery and make a difference in the lives of those affected by MND.

Dr Sam Moxon, narrates his blog written for Dementia Researcher. The potential connection between sports, particularly contact sports with repetitive head trauma, and neurodegenerative diseases like Motor Neurone Disease (MND) and Chronic Traumatic Encephalopathy (CTE) raises concerns. While the evidence remains inconclusive, studies have shown a higher risk of MND among retired rugby players, possibly related to the development of CTE. This has prompted efforts by governing bodies to prioritise athlete safety, implement stricter protocols, and collaborate with researchers to better understand the potential links between these sports and neurodegenerative diseases, emphasising education and injury prevention strategies. Sam Moxon explores the research in his latest blog. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/guest-blog-are-sportspeople-more-prone-to-mnd/ -- Dr Sam Moxon is a biomaterials Research Fellow at University of Birmingham. His expertise falls on the interface between biology and engineering. His PhD focussed on regenerative medicine and he now works on trying to develop 3D bioprinting techniques with human stem cells, so that we better understand and treat degenerative diseases. Outside of the lab he hikes through the Lake District and is an expert on all things Disney. Enjoy listening and reading our blogs? We're always on the look out for new contributors, drop us a line and share your own research and careers advice dementiaresearcher@ucl.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support.

On this episode I'm joined by Bec Daniher! Bec is the campaign director for FightMND. We spoke about her father Neale Daniher's Motor Neurone Disease (MND) diagnosis, the establishment of FightMND, the Big Freeze and how we can all help tackle 'The Beast'. Any contribution, big or small, goes a long way in this fight to tackle The Beast. You can donate or purchase a Big Freeze 9 beanie at www.fightmnd.org.au. You can also find beanies at Coles, Coles Express & Bunnings! Thanks for your support fam xx Together, we can defeat The Beast. @FightMND Instagram Contact Email - enquiries@dylandfriends.com Instagram - @dylbuckley @dylandfriends Youtube - @dylandfriends Facebook - dylandfriends Tiktok - @dylandfriends Dyl & Friends is produced by Sam Bonser, Sam Dalton and Darcy Parkinson. Video and audio production by Producey.

What is motor neurone disease? Is there a cure? What causes it? Who does it affect? In this episode, our host Helen, is joined MND Association Head of Research, Dr Nick Cole. They discuss the basics about motor neurone disease and try to answer some of the most frequently asked questions about the disease. The Education and Information team at the Association produce high quality information for people living with and affected by MND, including carers, children and young people. The resources cover a wide range of topics, including daily living, symptom management and quality of life. Our care information is accredited by PIF Tick, the only UK quality mark for trustworthy health information. We also have a wide range of resources and educational opportunities to support health and social care professionals working with people with MND. Downloads of our publications are available from our website at www.mndassociation.org/publications. If you're living with or affected by MND and need advice or support, contact our MND Connect Helpline on 0808 802 6262 or mndconnect@mndassociation.org. Following the recording of this episode, the Food and Drug Administration (FDA) in the USA have announced that they have approved an MND treatment called Tofersen (Qalsody) for the treatment of SOD1 MND in the United States. SOD1 MND is where there is a mutation within the SOD1 gene and accounts for around 2% of all MND cases. This news is a significant step forward in the fight against MND and further highlights the commitment and dedication of the MND community in finding effective treatments. Tofersen is currently not approved in the UK. However, it is being reviewed by the European Medicines Agency to see if the treatment could be approved in the UK and Europe.

TW/ Grief Diaries will cover grief across all spectrums so please don't listen if you find that this could be triggering for you right now. This episode features anticipatory grief, terminal illness and talks on MND. Megan shares some of her story dealing with loss, anticipatory grief and looking after her dad with MND. We also touch on advice for people who don't know how to approach someone who's dealing with grief and what we'd have liked to hear going through a tough time. The seventh episode of IYL sub-series: The Grief Diaries. Giving people a voice to share their grief story. Sharing loss, death and overcoming grief stories to help you feel less alone in your journey. Grief is so different from person to person so this series is to help you navigate grief and raise awareness for various conditions/illnesses. Mentions: MND Association to learn more - https://www.mndassociation.org/ MND all profit business - @themndtee on Instagram Free Grief Counselling (adults) - https://www.sueryder.org/ Free Grief Counselling (kids) - https://www.griefencounter.org.uk/ JINGLE: Music from Uppbeat (free for Creators!): https://uppbeat.io/t/color-parade/persephone License code: ZECQ8DCHA5B7EHAP Contact itsyourlifethepodcast@gmail.com to share your grief story.

I'm a massive fan of Neale Daniher, first when he was the coach of the Melbourne Football Club, but even more so as he has continued to fight Motor Neurone Disease (MND) over the last 7 years. He is such an inspirational man and a man who leads by example and demonstrates significant qualities of leadership that we can all utilise in our own lives and careers. In today's episode, I reflect on 4 of Neale's powerful leadership philosophies.

After beating cancer three times, beloved radio star Mel Dzelde, is now living with Motor Neurone Disease (MND).  The insidious and terminal disease currently has no cure and little to no treatment, though scientists are working on it. This MND Awareness Week, 5MU's former Content Director, Mel, joins Jennie Lenman to talk about her journey, what MND is and how we can support someone who has the disease.

Ash sat down and spoke to former Nelson FC, Longridge Town and Lancaster City player George Melling. Those are only three of the many clubs that George played for. Since becoming public with his diagnosis many of his former clubs, team mates and managers have started fundraising alongside many of his friends and family. George was diagnosed with Motor Neurone Disease (MND) earlier this year and is tackling the disease head on. One of George's biggest goals is to raise awareness about the disease, and he needs all the help that he can get. Even a simple like or retweet will go a long way. Alongside the awareness George is raising money. The money will be used to support George and his family to help them make some amazing memories, but there will also be a percentage of the money raised that will go to two fantastic charities, the MND Association and The Sheffield Institute for Translational Neuroscience (SITraN). To donate click here: https://www.gofundme.com/f/helping-big-g-aka-george-melling-fight-mnd

Andy Harrison and Nelson FC are running 1000 miles in a month for their former player George Melling. George has been diagnosed with Motor Neurone Disease (MND) and his former club are trying to help him raise as much money as possible. Both Nelson FC and George have Go Fund Me pages, any money raised through Nelson FC's one is going to be donated directly to George's Go Fund Me page. The money raised will be used to support George and his family and to help them make some amazing memories, but there will also be a percentage of the money raised that will go to two fantastic charities, the MND Association and The Sheffield Institute for Translational Neuroscience (SITraN). Here are the links if you would like to make a donation: Nelson FC: https://www.gofundme.com/f/supporting-george-melling-in-his-fight-against-mnd?utm_source=customer&utm_medium=copy_link&utm_campaign=p_cf+share-flow-1 George Melling: https://www.gofundme.com/f/helping-big-g-aka-george-melling-fight-mnd

Episode 18 of the @kickinitwithliamharrison podcast features Leeds Rhinos legend Kevin Sinfield. In November 2020 Kevin Sinfield announced he was going to run 7 marathons in 7 days to raise £77,777 in funds for ex teammate Rob Burrows, who was diagnosed with Motor Neurone Disease (MND). By the end of the final marathon Kevin managed to raise over £2m. The mindset and leadership of this man is truly inspirational and his core values are incredible. We are now working with @manscaped Get 20% off + Free Shipping with the code: KICKINIT at Manscaped.comIf you like this podcast, please leave a review at https://ratethispodcast.com/liamharrison Check out my website for WORLD CLASS online training made for anyone with an interest in improving their Muay Thai, from beginners right up to experienced fighters:https://liamharrisontraining.com/ Subscribe to my channel here:https://www.youtube.com/user/hitmanbc Follow me on social media:https://www.instagram.com/liambadco/ https://www.instagram.com/kickinitwithliamharrison/ https://www.facebook.com/liamharrisonmuaythai/ https://twitter.com/LiamBadco 

On this weeks very special episode of the Three Men And A Football podcast, we are joined by Tony Denson to celebrate the birthday of our good friend Michael Lundon. Michael is 40 on Wednesday 9th December and we wanted to pay tribute to him, his football career and his ongoing fight with Motor Neurone Disease (MND).

Former @brisbanebroncos @nthqldcowboys @QLDmaroons great Carl Webb joined us discuss the big fight he has ahead after being diagnosed with Motor Neurone Disease (MND) & how you can help raise much needed funds for the @MNDFoundation

Kristin and Dan spoke to Professor Steve Vucic about Motor Neurone Disease (MND). Steve is a Professor in the Faculty of Medicine, University of Sydney, Director of Neurophysiology and Consultant Neurologist at Westmead Hospital in Sydney. We spoke about the basics of MND, current treatments and what the future may hold. You can learn more about Steve’s work here: https://www.sydney.edu.au/medicine-health/about/our-people/academic-staff/steve-vucic.html

It's been a while between drinks, but Jesse and Sarah catch up with a 19 year old named Jimmy Ashby who told us that he wanted to ride 29,000km around the world to raise money for his Nan, who died of Motor Neurone Disease (MND). What followed was something pretty amazing; determined and motivated Jimmy jumped on a Curve GXR  and started pedaling. A little over a year later, which included 32 countries, 40,000km and $30K+ raised, yesterday he returned back to Adelaide achieving something truly special and amazing. A huge congratulations, you absolute little ripper Jimmy, we are all so so proud!!! Go to https://give.everydayhero.com/au/jimmy-ashby-around-the-world-by-bike to donate to his cause. @jimmy_ashby See omnystudio.com/listener for privacy information.

Tomorrow morning, a group of intrepid cyclists will head out from Portobello High School, escorting Gordon Barclay as he sets out on a 500 mile ride to Portobello Road in London. The aim is to raise money for research into Motor Neurone Disease (MND). It all began on his 50th birthday. A friend from his days at Porty High, Ian Henderson - now a councillor in London, told him the tragic story of a woman called Clarrie who not only had lost people in the Grenfell Tower Fire but had just been diagnosed with MND. They decided to raise money, in part to help her and in part to help Doddie Weir’s MND Charity, My Name’5 Doddie. This morning, they met in the Kings Manor Hotel in Portobello which is where David Calder caught up with them.https://www.portobellotoportobello.co.uk/about.htmlhttps://www.myname5doddie.co.uk/

The diagnosis of Motor Neurone Disease (MND) is a crushing one, with the medical treatment still being one of support instead of improvement in prognosis and only a few potential treatments on the horizon. Yet there may be some hope in easing symptoms and improving quality of life (QoL) for those afflicted with this devastating disease. In today's podcast, Vanita Dahia, pharmacist and expert in amino acid nutrition, takes us through the antioxidants, nutritional, herbal and amino acid options which can have a positive effect on the lives of those affected by MND.Find today's podcast transcript and show notes here: https://www.fxmedicine.com.au/content/motor-neurone-disease-vanita-dahia *****DISCLAIMER: The information provided on FX Medicine is for educational and informational purposes only. The information provided is not, nor is it intended to be, a substitute for professional advice or care. Please seek the advice of a qualified health care professional in the event something you learn here raises questions or concerns regarding your health.*****

Dr Christopher McDermott, Consultant Neurologist and 
Reader in Neurology at SITraN, gives an introduction to the research being done into understanding Motor Neurone Disease (MND) and how this research may translate into treatment of the condition.

Mimoun Azzouz, Professor of Translational Neuroscience, discusses and demonstrates the gene-based therapy for Motor Neurone Disease (MND) being carried out at the Institute.

Marie-France has lost her voice and can only move a jaw muscle because of Amyotrophic Lateral Sclerosis (ALS), also known as Motor Neurone Disease (MND) or Lou Gherigs Disease. In this 4 minute video she shows how, with a single switch and AssistiveWare's Proloquo, KeyStrokes and SwitchXS software, she accesses her Apple PowerBook computer and communicates with others. She explains how she continues to perform a pivotal role in the household by doing the shopping, managing the bank accounts and even designing her own web site. Marie-France lives in Paris, France.