Podcasts about motor neurone disease

So many people I'm speaking to at the moment are describing themselves as stuck in their careers – often they've built a very successful career in one area of specialism and now face into a very big question – “now I have different choices, is this what I really want to do?”You might know today's guest Tanya Arnold from her TV career – a BBC sports journalist covering two Olympics, the Commonwealth Games and the Rugby League World Cup. She was one of the first female sports reporters in broadcasting, starting at a time when women covering sport was virtually unheard of. In 2019 she hosted the first interview with the late rugby star Rob Burrow about his Motor Neurone Disease diagnosis – she calls it the hardest but also the most important interview she's ever done. Today she's a patron of the West Yorkshire MND Association.Two years ago Tanya started a new path in her career and just recently she posted on Instagram “I'm going it alone – here's to the variety and freewheeling!”Exploring your Unlock Moments can be a powerful way to figure out the path ahead. I can't wait to hear more about how Tanya is navigating this latest career transition and I'm curious about the parallels you might draw as you listen. --The Unlock Moment podcast is brought to you by Dr Gary Crotaz, PhD. Downloaded in over 120 countries. Sign up to The Unlock Moment newsletter at https://tinyurl.com/ywhdaazp Find out more at https://garycrotaz.com and https://theunlockmoment.com

It's Big Freeze 11 time and CEO of Fight MND Matt Tilley is our special guest this week. Matt was the king of Melbourne's FM breakfast timeslot not that long ago but now heads up the fight to cure the beast that is Motor Neurone Disease, working with Australian of the Year Neale Daniher and an incredible team of scientists, doctors and fundraisers. While the famous slide into the ice bath at the MCG on the King's Birthday Holiday is the focus of attention, the work to raise money and find a cure for MND happens 365 days a year. Away from work, Matt is a keen cook and passionate veggie grower - an award winning veggie grower, in fact - who shares his secret weapon for success in the garden. The Food Poll this week is a simple choice. Halloumi cheese - is it a yay or a nay? Big Freeze beanies are available at Coles, Bunnings and Shell Reddy and the new digital beanie, which you can personalise, via bigfreeze.com.au Presented by Sarah Patterson & Kevin Hillier Broadcast each Sunday on the ACE Radio Network - https://aceradio.com.au/Catch us also on:Radio 2DD - Easy Listening - On Line - https://www.2dd.online/Follow us on Facebook...https://www.facebook.com/foodbyteswithsarahpatterson/Twitter & Instagram - @sarahfoodbytesPost-production by Chris GatesforHowdy Partners Media | www.howdypartnersmedia.com.au/podcasts© 2025 See omnystudio.com/listener for privacy information.

RED. HOT. SUMMER. TOUR. IS. BACK.

When Mark's wife Claire was diagnosed with Motor Neurone Disease at just 38, their young family's world was turned upside down he tells PJ. See also here If you can help contact Claire and Mark at caringforclaire@gmail.com Hosted on Acast. See acast.com/privacy for more information.

Graham LLoyd, who has lost family members to Motor Neurone DIsease, is running the London marathon for the MNDA as a triceratops! He’s walking to the starting line and on day two was greeted in Petersfield Town Square by the Mayor, Cllr Lesley Farrow and Morris Dancers, from the Victory, Mafeking and Borden and Alton Morris. Mike Waddington spoke to Ashley Morgan, the organiser, who has MND herself, Krane Norris , 'the Bag' from Alton Norris, Faye Thompson, the Town Cryer, and Graham Lloyd. #ISawTheDinosaur See omnystudio.com/listener for privacy information.

CapeTalk’s Sara-Jayne Makwala King (in for Clarence Ford on Views and News) is joined by Dr Lienka Botha from the Motor Neurone Disease Association of SASee omnystudio.com/listener for privacy information.

A series of walks to raise awareness about Motor Neurone Disease are happening across the country this morning. Dr Natalie Gauld shares her personal experience.

Matt Davies-Adams, Adrian Clarke and Sam Parkin return for a stacked pod: - Leeds go 5 clear at the top of The Championship as QPR continue to climb  - 3 up 3 down from The National League? - Transfer window highlights and lowlights - Managerial Mike checks - Weekend previews - predicting cupsets - a loquacious tweet of the week This week we heard the heartbreaking news that our friend Joe Crilly had passed away. Joe's family are raising money for the Motor Neurone Disease association in his memory. if you would like, you can donate here https://www.justgiving.com/page/mnda-joe-crilly?utm_medium=FR&utm_source=TW also  Our partners quinn bet have a NEW offer: you can now get 50% back up to £35 + 10 Free Spins.   If your account has Sportsbook losses at the end of your first day's betting, QuinnBet will refund 50% of your losses as a Free Bet up to £35 (min 3 bets) Plus 10 Free online casino spins at QuinnCasino. Even if your account is up, you're guaranteed a £5 Free Bet Plus 10 Free Spins provided you place at least 1 bet of £10 or greater at the minimum odds. T&Cs apply | 18+ New UK Customers Only | GambleAware.org | Gamble Responsibly  https://quinnbet.click/o/L5trHE?lpage=T4KU20

A kiwi man is on a worldwide letter delivery mission. Jonny Beardmore collected 50 letters from an ancient postbox in the Galapagos Islands earlier this year – letters left there by travellers in the hope that one day they would be delivered. Beardmore, aka the Galapagos Postman, is now travelling the world delivering the letters to their intended recipients in a mission to raise awareness for Motor Neurone Disease both here in NZ and in the UK. Beardmore is currently delivering in New Zealand and tells Francesca Rudkin the idea came about whilst looking for a new adventure. LISTEN ABOVESee omnystudio.com/listener for privacy information.

Imagine facing a life-changing ALS diagnosis and tackling it with resilience and positivity. That's what Johnny Rodriguez, a 35-year-old high school lacrosse coach, husband, and father, has done. Johnny's story is one of inspiration, determination, and the power of community. From playing lacrosse in Hawaii to mentoring athletes at Mater Dei High School in Santa Ana, California, he pushes the boundaries of what's possible with ALS.Johnny's support network and the lacrosse community have been vital in fueling his fight. As a coach, he not only develops athletes but also teaches life skills and resilience. With a holistic approach to managing ALS—including ice baths, meditation, and advocacy through Athletes vs ALS—Johnny exemplifies hope, unity, and perseverance. His journey reminds us of the strength in community and the relentless pursuit of life's possibilities. Listen in and share with a friend. Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

We open this week's episode with a look back at the latest round of autumn rugby internationals with England's loss to South Africa, Wales' record 11th consecutive defeat, Ireland's narrow win over Argentina and France's electric win against the All Blacks. We also cover the cross-code game from Headingley where former Rugby League and Rugby Union stars pulled their boots on for a hybrid game to raise important funds for Motor Neurone Disease. It was (yet) another Nations League break in men's football, with England's wins over Greece and Ireland securing their return to the top tier of international football. It was also promotion for Wales as their run under new manager Craig Bellamy continues. Meanwhile in the Women's Super League and Championship it was a first, as all fixtures were played at each home club's main stadia. League leaders Chelsea continued their 100% start to the season, inflicting a first defeat of the season on second placed Manchester City, whilst Arsenal had a convincing win away to Tottenham. In tennis Jannik Sinner wrapped up another title with his win in Turin, whilst in the women's Billie Jean King Cup, Great Britain were led to a quarter final victory over Canada thanks to singles wins by Emma Raducanu and Katie Boulter – meaning they progress to take on Slovakia for a place in the final. We also have the latest from cricket, golf, NFL, netball and cycling before issuing a Get a Grip haymaker to everyone involved in the utterly farcical boxing bout between 27 year old Youtuber Jake Paul and 58 year old retired heavyweight champion Mike Tyson. Another great show from your favourite duo.

Peter and the Starcatcher, by the American writer Rick Elice (Jersey Boys, Water for Elephants), is a Tony Award-winning play inspired by J.M. Barrie's Peter Pan stories. It reveals how Peter, the Lost Boys, and Captain Hook came to find themselves in Neverland, and it puts a new character named Molly at the centre of the action.Also, the big sound of a cappella Sacred Harp singing will ring out in an Australian theatre this month in a new play called The Hall, and we pay tribute to our recent guest Roz Hervey, who has died. Roz was a celebrated dancer, choreographer, director and, most recently, Creative Producer at Restless Dance Theatre.

This week, Dr Louise is joined by Nicola McFarlane, who was diagnosed with motor neurone disease (MND) in 2023. Nicola shares the story of her MND diagnosis, as well as the barriers she faced in accessing treatment for perimenopause symptoms – including low mood, anxiety and recurrent UTIs – to improve her quality of life. Nicola talks about how health professionals often put her perimenopause symptoms (which pre-dated her MND diagnosis) down to her MND, and why she is sharing her own experiences to help other women living with MND and facing hormonal changes. For more information on Newson Health, click here.

Former England and Manchester City captain Steph Houghton was one of the first big names in women's football. In her new book, Leading From The Back, she details her experience of fighting to take the women's game from niche to mainstream. She also talks to Kylie Pentelow about her husband, former footballer Stephen Darby, who was diagnosed with Motor Neurone Disease in 2018.In one of his first moves since his victory in the US election, President-elect Donald Trump has named his 2024 campaign manager, Susie Wiles, as his chief of staff in the White House. She will make history as the first woman to hold the title. But what do we know about the woman Trump referred to as the "ice maiden"? Kylie is joined by Anne McElvoy, Executive Editor at POLITICO and host of the Power Play podcast to discuss.Award-winning Turkish writer and political thinker Ece Temelkuran speaks to Anita Rani about a new play based on her novel, Women Who Blow on Knots. It's set against the backdrop of the Arab Spring in 2012, and four women embark on a road trip starting from Tunisia through Libya and Egypt to Lebanon, and is currently at the Arcola Theatre in East London.This Sunday, Wolf Hall: The Mirror and the Light starts on BBC One. The much anticipated second series of the TV adaption of Hilary Mantel's novels starts when Anne Boleyn is executed, and Henry VIII marries his third queen, Jane Seymour. Jane is played by Peaky Blinders actress Kate Phillips – she joins Kylie to talk more about the iconic role.

Kia ora e te whānau! We are not going to lie to you, this is a heavy episode, however it is absolutely one that you need to hear. Matt and Ali Pottinger ventured to Scenic World in Katoomba to facilitate this discussion for the Firies Furber Stairs Climb. We spoke to the original Firies Climb Organiser, Matt Pridham, about his personal experience with MND and how this drove him to start an event which raised millions of dollars, We spoke to Professor Dominic Rowe of Macqurie University. A consultant neurologist with a fury to find a cure, and who singley handidly inspired everyone in the room listening, gave pause around how we live our lives, and shattered the F bomb record on DCR. We spoke with Jane Simpson, host of MND Talks, a podcast for those families and people living with MND. Jane is the chair of the MND research collective and shared the loss of her husband to MND. Lastly, we speak to Blue Mountains local, ultramarathon runner, and on-call fire fighter Gavin Clifton, about taking up the torch as the firies climb organiser, and the purpose this brings him, and the mammoth task awaiting him to smash out 24 hours on the Furber Stairs. . Enjoy!!Sign up to the DCR AidStation Episode links:SQUADRUNDirt Church Merch!Jenny Hirst's 60km for 60 ChallengeFiries Climb for Motor Neurone Disease.Inia Raumati Kia Mau Kia Ora CurranzJulbo Eyewear UltrAspireDirt Church Radio on InstagramDirt Church Radio on Twitter Dirt Church Radio on Facebook CieleFurther Faster New ZealandEnjoy!Music by Andrew McDowall, Digicake Curranz.co.nz Fit, Healthy & Happy Podcast Welcome to the Fit, Healthy and Happy Podcast hosted by Josh and Kyle from Colossus...Listen on: Apple Podcasts Spotify

On September 1, 2024, Mark O'Brien, 55, a citizen of both Ireland and the UK, will attempt two Guinness World Records in one day, tackling two swim sprint challenges in two countries to become the record holder for the fastest swims for someone with Motor Neurone Disease. His first attempt will be a 50m Freestyle in Luton, UK, at Inspire Luton Sports Village at 08:50 AM, where he looks to beat a time of 38.92 seconds. He will then travel to Ireland where his second attempt will be a 100m Freestyle at the National Aquatic Centre in Dublin at 16:30 PM where he will look to beat a time of one minute 39.88 seconds. This is not the first time Mark has challenged himself to such a degree, having previously set the world record for the longest non-stop, unaided open water swim by a person with MND around the same time the previous year, with a distance of 6.8 miles (11km).  Diagnosed with MND in March 2022, he was inspired by the likes of Rob Burrow and Alex Gibson to raise awareness and encourage increased funding for MND charities. Mark's mission is to make a difference with the time he has left and never give up until his last breath. With his condition deteriorating, Mark is determined to try and still make a difference. All funds raised will be equally distributed between The Irish Motor Neurone Disease Association (IMNDA), The UK Motor Neurone Disease Association (MNDA), and Challenging MND. Donations are welcome via his GiveWheel fundraising page. Mark spoke to John Mulligan on Saturday Sport.

In this podcast I use touching patient anecdotes to explore the devastating manifestations and relentless progression of motor neurone disease. I also discuss the current understanding of the risk factors and mimics of the disease.

Grateful to catch up with John Driskell Hopkins (Hop) again to see how he's doing with his ALS diagnosis.  About 2.5 years after being told he had ALS, John continues to perform with the Zac Brown Band.  Despite seeing some progression of the disease, Hop is living a full and joyful life.  He's busy creating new music, being a family man and promoting Hop On A Cure, the foundation he & his wife, Jennifer started to accelerate ALS research.   Hop shares how ALS is affecting him & what it's like living out this journey in the public eye.   He updates us on his family, his music projects & how we all can join his efforts to find ALS cures.  Hop gives a sneak peek of their upcoming Harmony for Hope Gala in Atlanta, Georgia on September 14, 2024 - which will be a one of a kind evening with performances by Hop, Zac Brown, Clay Cook, Coy Bowles, Danny De Los Reyes, Kristian Bush, Lily Costner and other special guests.   Listen in to our conversation & share with a friend.  Hugs, LorriI am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Send us a Text Message.We talk to Jake Popyura - Musician and Songwriter of the band Supermilk. Growing up in the 1990s, it was hard for Jake Popyura not to be heavily influenced by some of the most wacky and much overlooked movies he'd find on the shelves of his local Video Shop. These films would be a touch point throught his career with the bands Doe and more recently Supermilk leading to even releasing an album on the VHS Format in today's world. We chat all about these events along with his recent life changing diagnosis of Motor Neurone Disease and how he's adapting to not only day to day life but how something as huge as this affects him as a touring musician. Presented in association with Affinity Photo - The hottest photo editing software on iPad, Mac & PChttps://affinity.serif.com/photoIntro Music by Johnny Monacohttps://www.johnnymonaco.com/ Incidental Music by Night Fires Please visit The Straight To Video Patreon Page to find out how you can help grow this show. https://www.patreon.com/80sVideoShop

A new study out this week finds that retired rugby players who have suffered multiple concussions have abnormal levels of certain proteins in their blood - making them more likely to develop diseases such as Alzheimer's and motor neurone disease (MND). The research, published in the journal International Journal of Molecular Sciences, compared 30 retired male athletes - including both rugby league and rugby union players - who had had five concussions during their careers to 26 retired sportsmen who had no history of concussion. They found that the blood samples of players who had had five or more concussions during their careers had higher levels of certain proteins in their blood which indicated neural damage when compared to the control group. Specifically, higher levels of proteins called serum t-tau and tau-p181, both of which play a role in the development of Alzheimer's and motor neuron disease were found in the group who had suffered concussions. They also found that the rugby players who had been concussed in their career had lower levels of a different so-called retinoid transport protein, which is important for the development and functioning of the brain. The study showed that it could be possible to measure specific biomarkers through a blood test that could predict possible future disease in athletes who have suffered multiple traumas to the head.  The research team strongly recommends that players of contact sports should be monitored after they retire, especially if they have suffered concussions and suggest that by testing early, players could receive early interventions and help for neurodegenerative diseases.  LISTEN ABOVESee omnystudio.com/listener for privacy information.

Motor neurone disease sufferer Jake Popyura leads Supermilk, about to put out their new record High Precision Ghosts on 9 August. Jake talks about his journey so far of being diagnosed, how he's made stage-friendly props to help playing live, and spreading the message of MND experiences. Pre-order High Precision Ghosts at https://supermilk4u.bandcamp.com/album/high-precision-ghosts DistroKid makes music distribution fun and easy with unlimited uploads and artists keeping the ENTIRETY of their revenue. Get 30% off the first year of their service by signing up at https://distrokid.com/vip/101pod Learn more about your ad choices. Visit megaphone.fm/adchoices

New research reveals that markers of Motor Neurone Disease are more likely to be found in the blood of retired sportsmen who have suffered several concussions, offering hope of early diagnosis and possibly earlier treatment.It also adds more weight to growing evidence of the link between contact sports and brain conditions. So, where does this leave sports like rugby?Martin Stew tells Lucrezia Millarini what you need to know...

The tributes continue for Norm Hewitt.  The Former All Black, Māori All Black, and Hurricane was fighting with Motor Neurone Disease before passing at the age of 55.   For most of his international career, Hewitt was head-to-head with Sean Fitzpatrick for the No. 2 jersey.  Fitzpatrick told Mike Hosking he has a massive respect for Hewitt, and the reason he got the best out of him is because Hewitt was hugely competitive.   He said he has a huge admiration for what he did, saying that he had some difficult times and to be able to turn that around and give back was huge.  LISTEN ABOVE See omnystudio.com/listener for privacy information.

So grateful to have this conversation with Kerry Goode, former NFL (National Football League) player who was diagnosed with ALS in 2015.  Kerry was a running back at the University of Alabama, Tampa Bay Buccaneers, Miami Dolphins and later a strength and conditioning coach also in the NFL.  So he knew something was wrong when he couldn't pick up a box. Here, Kerry shares what he's feeling about having been so physically strong, being able to bench press 400 pounds & squat 800 pounds to now not even being able to pick up a pencil.  He lets us know how he's able to maintain a positive attitude and find great joy in life despite losing his ability to walk, talk and even breathe on his own.  It's no surprise that Kerry is now giving back through his own organization, The Goode Foundation whose mission is to support patients and families affected by ALS and fund ALS research.  We talk about the motivation to share his journey with ALS and his faith in the book that he typed with his eyes after ALS took his ability to move his fingers, “Goode and Faithful Servant: The Kerry Goode Story.”  Our entire conversation here was recorded with Kerry using his eyes to type his answers to my questions.  It's remarkable and so is Kerry.  Thanks for listening in and sharing.  Hugs, Lorrihttps://www.goodefoundation.org/I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Tune in to Episode 178 of The Michael Anthony Show in which many cultural, political and sporting topics are explored throughout. Motor Neurone Disease, nicotine use and quitting, sex party culture, teenage romance and philosophy are all delved into, as is the US Presidential Race, golf and the Olympics. An in depth discussion on the English national team also features, as does the music of MJ Lenderman.Tune in. Respect to the listeners. Support the Show.

Join Lee and Kev on this compelling episode of The Black Country Blokes as they sit down with Clive Branson, a man who has turned his profound experiences into a beacon of hope for many. From his early years in the Royal Air Force and a long tenure with the Ministry of Defence to his challenging yet inspiring personal journey, Clive shares how he built a career studying the human condition and mastering effective communication.After leaving the MoD in 2017, Clive's life was shaken by a series of heartbreaking events: losing his father to Parkinson's and Dementia, battling Motor Neurone Disease, a severe mental breakdown, and losing his mother to Covid. Despite these overwhelming adversities, Clive found strength in the love and support of his family, redefining his outlook on life.In this episode, Clive opens up about how he uses his story to connect with others, from corporate audiences to prison inmates, demonstrating the incredible resilience and fortitude we all possess. He passionately discusses the importance of self-compassion, empathy, and the power of maintaining a positive mindset. Clive's authenticity and humor make his message not only relatable but profoundly inspiring.Tune in to hear how Clive's journey from despair to hope can inspire us all to live each day to its fullest.#Resilience #MentalHealth #InspirationalStories #Podcast #TheBlackCountryBlokes #OvercomingAdversity #CliveBranson #LifeLessons #PositiveMindset #Empathy #SelfCompassionSupport this show http://supporter.acast.com/bcb. Hosted on Acast. See acast.com/privacy for more information.

Christian nearly drowned while swimming in the sea in Italy as a child. He returned to the beach with his wife and child - only to find that Yuri, the man who saved his life, was still there. The two men tell us about their emotional reunion and the profound effect the experience has had on them. Also: The New York couple who found a safe full of cash, and get to keep it, thanks to the increasingly popular hobby of magnet fishing. We speak to Yazzy Chamberlain and her grandad John, whose duets of classic songs have earned them millions of online viewers -- including Coldplay. How the powers of nature are being used to help solve water shortages in Mexico City by cleaning polluted rivers. The skull of a giant prehistoric bird known as the demon duck has been found in Australia. And don't waste a moment - the final message from Rob Burrow, rugby league star and Motor Neurone Disease campaigner.Our weekly collection of happy news and positive stories from around the world.

In the news this week, after the death of rugby legend Rob Burrow, we explore the mechanisms of motor neurone disease with John Ealing from the Manchester MND Care Centre. Also, we hear from Alexander Forse at the University of Cambridge who has helped to develop a carbon sponge which can suck CO2 out of the atmosphere, and Inga Kamp from the university of Groningen explains why a new finding from the JWST could reveal the secrets of how Earth-like planets form. Plus, the intriguing story of a non-drinker who couldn't stop getting drunk... Like this podcast? Please help us by supporting the Naked Scientists

Joins the team ahead of the Big Freeze at the MCG this weekend raising valuable money for research into Motor Neurone Disease. Learn more about your ad choices. Visit megaphone.fm/adchoices

Jonelle and Kirsty are back for another spicy episode - and they're looking at why politicians are all over our TikToks.They're also looking at the link between Love Island, housing, and the general election.Plus, you'll want to hear Alex's message of positivity. He's on to talk about living with Motor Neurone Disease following the death of rugby league star Rob Burrow this week.What would you like Kirsty and Jonelle to investigate next? DM Kirsty and Jonelle, or send your ideas to reliablesauce@bbc.co.uk.You can listen to the latest episode of Reliable Sauce anytime on your smart speaker by asking Alexa for “Reliable Sauce on BBC Sounds”. Technical producer: Jonny Hall| Producers: Keiligh Baker, Nayana Mena and Natasha Mayo| Editor: Ben Mundy | Senior News Editor: Sam Bonham01:20 "The politicians are dancing for us on TikTok" 04:50 Love Island and the general election 06:50 Why do so many of us live at home? 13:40 Alex joins us to talk through Motor Neurone Disease

Former team-mate Sam Burgess and Daryl Powell, the coach who gave Rob Burrow his first start in Super League, lead tributes to the Leeds Rhinos Legend who died on Sunday. They reflect on his amazing achievements as a player and his drive to raise awareness of Motor Neurone Disease after his diagnosis in December 2019. The Wigan coach Matt Peet describes the impact Burrow had on the whole of Rugby League and how Saturday's Challenge Cup Finals Day provides the perfect platform for people to pay their respects. Players and personalities involved in the Men's and Women's Finals and the 1895 Cup Final look ahead to the matches on what will be an emotional day under the Wembley arch.

In this episode of The DocArena Podcast, Ross Whitaker talks to Colm Quinn about his documentary Ransom '79, Ransom '79 tells the story of legendary Irish reporter Charlie Bird and his determination to break one final story before his life is cut short by Motor Neurone Disease. Charlie's sources have given him an extraordinary true crime story, one that had remained secret for decades – the attempt by a criminal gang to extort millions from the Irish government. The disease has already taken Charlie's voice. But clever use of technology means he can still do interviews – using a voice app on his ipad – and, even as his strength falters, he keeps chasing the story. Ransom '79 charts Charlie's investigation and reconstructs a scarcely-believable sequence of events that led from farce to tragedy, in a very different Ireland. But beneath it all, the film is an exploration of how one man confronting his own mortality can find respite in doing the thing he loves, even in the most terrible of circumstances. Ransom '79 is directed by Colm Quinn and is produced by John Kelleher and David Power with backing from Fís Éireann/Screen Ireland, Coimisiún na Meán, Virgin Media, Derrin Group and S481. In cinemas 24th May 2024. https://filmireland.net/ Welcome to The DocArena Podcast in association with Film Ireland. My name is Ross Whitaker and every fortnight, I want to dig deeply into the motivations of documentary filmmakers – how do they choose their subject material and what approaches and strategies do they employ to fund, craft and distribute their work…

They are old rugby mates - Craig Luxton and Jamie Wilkins.  And they are riding across america to help raise awareness of motor neurone disease and attempt to raise up to 30k to help researchers find out more about this life ending disease. It's the club no one wants to be part of. But for Craig and Jamie it's more than just a ride for a mate who died of the disease at age 52. Craig Luxton is a former rep rugby player here and overseas. He has a successful business wife and three girls. At 62  the hard work had been banked, time to kick back and enjoy life. Until something happened and went to the doctor for a check up...  Alzheimers …  Today we talk riding for a mate, getting around your mates, being men having health issues getting checked and listening to your mates.   Follow our socials below: Instagram Tik TokSee omnystudio.com/listener for privacy information.

Rugby league legend Kevin Sinfield talks to Eddie Hearn about being a father, coach and charity ambassador. They discuss how raising money and awareness for Motor Neurone Disease has been the most fulfilling work he's ever done and how it's changed him as a person.He learned early in his career that he relied on the team to do well and the way to get the best out of those around him was to try and support them. He played rugby league for England and Great Britain and captained Leeds Rhinos to seven Super League championships and two Challenge Cup wins.Kevin has taken the sense of camaraderie from team sport in to retirement taking on astonishing challenges to support one of his best friends and fellow Leeds player Rob Burrow who has MND. Whether it's running seven marathons in seven days from Glasgow to Manchester, or seven marathons in seven days in seven cities he's raised millions of pounds along the way.“The best thing when I look back is not the money, it's not the trophies, it's the friendships and the memories I've got. And I do know that if I fell on some difficult times there'd be some people I played alongside for a number of years... would be there for me and I don't think you can put a price on that.”

Dr. Jenna Gregory, Principal Investigator for this study which was led by the University of Aberdeen

In this episode, Katy interviews Björn Vahsen to discuss his ongoing research on Motor neurone disease using iPSCs to co-culture microglia and motor neurons.

Sharon was surprised to discover her father had taken a turn. John was waiting on a delivery and got fooled by a text. Rhys and Stuart are waiting to be repaid by Niall Minogue. Peter is still waiting for the ashes of his late dog to arrive. Margaret's daughter, Sharon, got an unexpected diagnosis of MND.

Damian shares one of his favourite episodes, an honest conversation about life and death with Lindsey Burrow. Lindsey is the wife of former professional rugby player Rob Burrow. In 2019, Rob was diagnosed with Motor Neurone Disease. Lindsey cares for Rob full time, whilst looking after their children and working as a physiotherapist for the NHS. This was a very powerful episode and many of the lessons Lindsey shared have stayed with Damian since. He goes through these lessons with Jake, detailing how her outlook has inspired and transformed how he takes on life challenges.Listen to the full episode with Lindsey here: https://pod.fo/e/149343 Hosted on Acast. See acast.com/privacy for more information.

On today's show, Dr. Tanveer Ahmed discusses Australia Day, the reasons for increased criticism this year, and whether society has become less appreciative. Later, Jane Simpson discusses Motor Neurone Disease. GUEST 1 OVERVIEW: Dr. Tanveer Ahmed is a psychiatrist and author. He practices in both private and public settings, including the Hills Clinic and Bankstown Community Health. He also conducts forensic assessments in correctional facilities. Dr. Ahmed has authored two books, "The Exotic Rissole" and "Fragile Nation." He has held various roles in the media, both in print and broadcast, and has served on multiple boards and held elected office. He resides in Sydney, Australia, with his wife and two daughters. For more information, visit http://www.tanveerahmed.com.au/ or follow him on Twitter/X: @drtahmed. GUEST 2 OVERVIEW: Jane Simpson is a member of the MND Collective Board of MND Australia, the national peak body for organizations supporting individuals affected by Motor Neurone Disease. With two decades of experience, she has worked with Australian and global corporations to identify opportunities for improvement within their policies and procedures. Jane founded her own business and was recognized as Xero's Best Small Australian business in 2019. For further details, visit https://www.mndaustralia.org.au/.

This episode covers motor neurone disease.Written notes can be found at https://zerotofinals.com/medicine/neurology/mnd/ or in the neurology section of the 2nd edition of the Zero to Finals medicine book.The audio in the episode was expertly edited by Harry Watchman.

In the news this week: Official figures reveal that hundreds of young children were referred to the Tavistock's gender identity clinic over the past decade, a man with Motor Neurone Disease explains why those campaigning to remove end-of-life protections are so wrong, and a woman with Down's syndrome, who doctors said would never walk or talk, encourages others like her to pursue their dreams. You can download the video via this link. Featured stories Kids as young as 3 referred to notorious London gender clinic ‘Unlike Dame Esther, I'm thankful assisted suicide is not legal in the UK' Over one thousand babies in Scotland born dependent on drugs Vogue model: ‘Doctors said I wouldn't walk, now I'm pursuing my dreams'

Queensland rugby league great, Carl Webb, has passed away at age 42, following his devastating battle with motor neurone disease.See omnystudio.com/listener for privacy information.

Sandy Brown is a guidebook author, a musician, a pastor and a pilgrim. He's also had to deal with being diagnosed with Motor Neurone Disease. You'll be amazed by Sandy's insight....and inspired by his ability to rise above the challenges he's facing, to be the community leader, family man, pilgrim guide, and loving father and husband. You can find Sandy here....https://sandybrownbooks.com/

Owen Blackhurst, Seb White and James Bird catch up this week to talk about 2010 World Cup Diego, Claudio Ranieri, Zola replacing Maradona, walking coffins, Django the Bastard, David Dickinson, ‘Somerset Bez', playoff turnarounds, Marcus Stewart, the brilliant Sabotage Times website, missing apostrophes and commas, Ruud Gullit, exploding dreadlocks, upsetting all of The Holte End, Neil Emblen, a Palace x adidas football, trainers that were two sizes too small, our mate Eli Mengem, leathering footballs into the canal, MUNDIAL Issue 6, Dirk Kuyt's will to win, General John Stones, adventures in wheelchairs, being stablemates with Danny Dyer, iced espressos, too much football and somehow so much more. This episode contains a discussion of Motor Neurone Disease; for more information, please visit the MND Association website. You can also donate to the charity challenge Owen's mates are doing for their friend James Baldock by clicking hereSubscribe to CLUB MUNDIAL nowhttps://mundialmag.coSign up for the Newsletterhttps://mundialmag.co/newsletterFollow MUNDIAL on Twitter - @mundialmagFollow MUNDIAL on Instagram - @mundialmag Hosted on Acast. See acast.com/privacy for more information.

Facebook has removed an advert for a sanitary towel product because it referenced the words Vagina, Vulva and Clitoris. It's the latest in a long line of period ads that have caused a stir. So what is and isn't appropriate when it comes to period adverts? Chella Quint, the founder of Period Positive, a menstruation education advisor and author and Alice Enders, Director of Research at Enders Analysis discuss. The rescue efforts are continuing in Ukraine after Tuesday's breach of the Kakhovka dam. Thirty communities along the Dnipro river have been flooded according to officials. Now the Red Cross has raised concerns that land-mines have been dislodged in the flooding. Kate Zhuzha is from Nova Kakhovka where the dam has collapsed and is the Founder of NGO Union of Help to Kherson in touch with people in the flooded areas. She tells us about the latest reports. Last month we looked at the experience of caring with authors Emily Kenway and Lynne Tillman. So many of you got in touch including academic Dinah Roe, a Reader in nineteenth-century literature, who with poet Sarah Hesketh, managing editor of Modern Poetry In Translation have been running a series of free online workshops, inspired by Christina Rossetti's writing, designed specifically for people with caring responsibilities. Dinah and Sarah discuss the power of writing poetry. Four-time Grammy award nominated singer Candi Staton has moved between several musical genres during of the course of her celebrated career – from soul, R&B, gospel and disco. She discusses her iconic tracks such as the multi-platinum “You Got the Love” and the singalong anthem “Young Hearts Run Free”. It has recently been remixed by UK producer Benji La Vida and has had more than 2.4 million streams on Spotify alone, and there are 60,000 TikTok reels of people doing a dance challenge to the song No single person can take credit for the huge boom in women's football but if anyone can it's the woman who placed second on the Woman's Hour Power List, Baroness Sue Campbell. The Director of Women's Football at the FA tells us about the Lionesses legacy, the upcoming World Cup and the future of the Women's Super League. Since his diagnosis in 2019, rugby league star Rob Burrow has been battling Motor Neurone Disease, with wife Lindsey by his side. Lindsay tells us about her first marathon and has raised over £100,000 towards a specialist Motor Neurone Disease Centre to be built in his name. A new ITV documentary, Lindsey and Rob: Living with MND, follows Lindsey as she navigates marathon training alongside working and family life, whilst also exploring the wider impact of this disease. Presenter: Krupa Padhy Producer: Rabeka Nurmahomed

The rescue efforts are continuing in Ukraine after Tuesday's breach of the Kakhovka dam. 30 communities along the Dnipro river have been flooded according to officials. Now the Red Cross has raised concerns that land-mines have been dislodged in the flooding. Kate Zhuzha is from Nova Kakhovka where the dam has collapsed and is the Founder of NGO Union of Help to Kherson in touch with people in the flooded areas. She talks to Krupa about the latest reports. Lindsey Burrow has been caring for her husband, the former rugby league star Rob Burrow, since he was diagnosed with Motor Neurone Disease in 2019. Last month, she took part in her first marathon, The Rob Burrow Leeds Marathon, and raised over £100,000 towards a new specialist Motor Neurone Disease Centre to be built in her husband's name. She talks to Krupa about fitting in her training with family and work life and exploring the wider impact of MND in a documentary she filmed for ITV, Lindsey and Rob: Living with MND. Louise Redknapp is celebrating 30 years in music. She had 18 top 20 hits with the R&B band Eternal and during her solo career she sold more than 15 million records overall. Louise has just released a Greatest Hits album with 30 tracks, and a new single High Hopes. Having reached the final of Strictly Come Dancing and performed in Cabaret and the musical 9 to 5, she has now returned to the West End stage in Grease as The Teen Angel, the first time the role has been played by a woman in the UK. She joins Krupa Padhy to discuss her career. Bregje Hofstede, a writer, could not sleep for a decade. Driven to desperation, she started with the obvious interventions, then tried every trick and remedy she came across until at last she managed to re-frame her problem and found a solution that worked for her. She joins Krupa to discuss her book, In Search of Sleep, where she documents her experiences and tries to understand the science, psychology and culture of sleeplessness. Presenter: Krupa Padhy Producer: Rebecca Myatt Studio manager: Michael Millham

An exhibition football match is being played in Claremorris this Saturday at 3pm as part of the 'Together For Ger' initiative.The game will see friends, former team-mates and club-mates of Ger Brady from Claremorris tog out as a Mayo selection takes on a Claremorris selection.Mike is joined by former Mayo footballer Ger Brady from Ballina and former Claremorris footballer Pauric Ring to chat about Saturday's game and to reflect on why so many people want to come along this weekend to show the 'real' Ger Brady their support.Ger (44) was diagnosed with Motor Neurone Disease last August.This episode of the Mayo Football Podcast is now online and is available to listen to on iTunes, SoundCloud, Podomatic and Spotify. You can also listen to it on the Mayo GAA Blog.The monthly rate for club membership is €5 plus VAT but annual membership is also available at a 10% discount off the standard rate, where a single annual payment is made.The Mayo Football Podcast is also on Twitter so if you're a Twitter user you should follow us there to make sure you get the latest podcast-related updates, including new episodes.

With a shocking Boston Marathon behind us and the formidable challenge of London just a few days out, it's all go in the marathon world… Among the jam-packed highlights and hopeful finishers are Eliud Kipchoge's surprise loss to Evans Chebet, and this week's guests Sam Perkins & Chrissie Wellington taking on a stunning assisted wheelchair race in London. Join us this week as we also feature Abbott World Marathon Majors' very own Danny Coyle LIVE from Boston to detail the aftermath of the races, including a masterclass from Susannah Scaroni in both racing, and on-track repairs… In this episode of Marathon Talk: 0:00 - Kicking off with Martin & Deena's latest runs and recovery from Paris 5:30 - A huge roundup of Boston's standout stories, with Danny Coyle dialling in from the Boston Marathon press conference 29:00 - Sizable predictions for the London Marathon, weighing up debutants against running titans in the star-studded women's field 36:10 - Training Talk this week touches on how to react when races go wrong, and keeping your mindset steady 42:00 - Interviewing the incredible Sam Perkins and Chrissie Wellington about their team's run in London, Motor Neurone Disease diagnosis, and the inspiring example they're setting   Sam's staggering journey to the finish of the TCS London Marathon is in aid of Stand Against MND, which you can find here (https://standagainstmnd.com/). You can directly support Sam's race and the incredible cause for which he's racing on JustGiving here (https://www.justgiving.com/fundraising/onemoremarathon). Marathon Talk is proudly powered by Abbott World Marathon Majors, who create, build and support opportunities for all to discover the power of the marathon community. Learn more at https://www.worldmarathonmajors.com/

My guest this week is Amy Jaramillo, Scientific Director of BodyScience. In this episode, Amy and I discuss her scientific approach to looking at diseases and the body. Her goal is to get to the root cause of health issues. She looks at health through a different kind of scientific lens where she is able to look at patterns and see the body as a puzzle. We talk about how her and her team treat underlying infections and reverse diseases such as ALS. Even if you are well versed in infections this episode covers a lot. Lastly, no episode would be complete without touching on one of our favorites–peptides. Amy Jaramillo is the Founder of Body Science LLC, a science based medical center developed with a mission to identify the root cause of health syndromes.  We identify the triggers, exposures and genetic predispositions responsible for conditions including: Motor Neurone Disease, Thyroid Dysregulation, Adrenal Fatigue, ADD/ADHD, Auto-Immunity, Diabetes, Leaky Gut, and Infertility and then we correct them.  Our goal is to cure, not merely to medicate.  A graduate of Florida State University with a B.S. in Biology and Chemistry, Amy has over 21 years of experience in the healthcare industry. She is a member of the American Academy of Anti -Aging (A4M) since 2011 and a past member of the Association for the Advancement of Restorative Medicine (AARM).  Amy has extensive experience working in the fields of bio-genetics and bio-technology understanding the genetics-disease link as well as in the field of brain stimulation, implantation and neuromodulation for neuro-degenerative disease.   Follow Amy: www.bodyscience.life  ALS-Bodyscience MTHFR experts   ------     Episode Sponsors Mitopure is a scientific breakthrough for our cells. Ten years of research has led to the discovery of Urolithin A. Urolithin A is a mitochondrial powerhouse and assists in mitophagy. By supporting mitophagy we can protect cells from cellular decline. Mitopure is clinically proven to enhance muscle health and performance. It comes in a powder, capsules or a berry powder. There is a three month trial so you can try them all! Use code NAT10 for 10% your order! Oxford HealthSpan brings us Primeadine, the best formulated Spermidine supplement on the market!  What makes it stand out – it includes Spermine & Putrescine two other Polyamines that work hand in hand with Spermidine PLUS FOS, a prebiotic to feed the bacteria in your gut that make Spermidine!  I take Spermidine daily as do my family and my clients – it has become a solid member of my “foundation stack”.  Research has shown that Spermidine upregulates autophagy, helps the immune system to rejuvenate and it protects DNA – visible benefits experienced by myself and my clients include better sleep, hair, skin and nails! Oxford HealthSpan is now offering gluten-free Primeadine! Sponsor offer: If you haven't tried it yet go to Primeadine.com and use promo code BIONAT15 to save 15% of your first order at https://oxfordhealthspan.com/products/best-spermidine-supplement.      ------     Episode Takeways [08:00] About Amy [13:00] Reactivation of infections due to COVID? [15:40] EBV a cause of MS? [21:39] What is the difference between IgM and IgG? [29:25] ALS reversal [42:00] Herxing: Is that what is causing symptoms or something else? [58:40] The role that heavy metals play in viruses [69:49] Should you start with viral screening when first assessing a patients' symptoms? [78:27] Peptides for infections [92:07] What is the first symptom that improves when someone's health is taking a turn for the better? [96:50] Parting words of wisdom     Follow Nat Facebook Facebook Group  Instagram Mighty Networks BSP Community Work with Nat: Book Your 20 Minute Optimization Consult