Podcasts about motor neurone disease

A Southland father who has lost his voice and movement to Motor Neurone Disease has found a new lease of life as a storyteller. Otago Southland reporter Katie Todd reports.

The sound of regional Australia. News and analysis from the ABC's network of regional reporters.

Award-winning author Cristy Burne reads from ‘One Day Soon', her moving middle-grade verse novel about Motor Neurone Disease.Read the show notes for all book references at yourkidsnextread.com.au/podcastSign up to the Your Kid's Next Read newsletterConnect with Allison, Megan and the Your Kid's Next Read Community on FacebookVisit allisontait.com | megandaley.com.au

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Two days before the State Funeral for Neale Daniher at the MCG, Colin Tyrus spoke to Clare Sullivan, CEO of MND Australia who pays tribute to Neale and the Daniher family’s extraordinary fundraising effort for the fight against Motor Neurone Disease. Broadcast on A Newsman and His Music on Monday 8 June 2026 Archival photo: Neale Daniher with Colin Tyrus Related Posts: None Found

This week I sat down with George Burgess, a rugby league legend who won an NRL Premiership with the South Sydney Rabbitohs and represented England on the international stage. George is a good mate who I just kept running into everywhere, so we finally sat down for a proper chat, and I'm so glad we did. This one goes well beyond the footy.George opens up about losing his dad to Motor Neurone Disease at fifteen, and how that shaped the path that followed. It was Russell Crowe, part-owner of the Rabbitohs, who brought the Burgess family out to play for Souths, and George shares what that opportunity meant for him and his brothers, Sam, Tom and Luke, who he went on to play alongside in the NRL.We also get into a side of George a lot of people don't know. He has always loved acting, and since hanging up the boots he has carved out a serious career on screen, with roles in Land of Bad, Spartacus: House of Ashur, and the upcoming Lionsgate feature Beast in Me.This is a chat about grief, reinvention, brotherhood and backing yourself to start again. George is the real deal and I loved this one.In this episode we cover:Winning an NRL Premiership with the South Sydney RabbitohsLosing his dad to Motor Neurone Disease at fifteen and how it shaped himHow Russell Crowe brought the family to SouthsPlaying alongside his brothers Sam, Tom and Luke in the NRLHis lifelong love of actingLanding roles in Land of Bad, Spartacus: House of Ashur and Beast in MeWhat it takes to reinvent yourself after sportGrief, brotherhood and starting a new chapterFollow GeorgeInstagram https://www.instagram.com/george.burgess2.0/?hl=enConnect with Cooper and TGHF1% Good Club Book (use code PODCAST for 25% off) https://www.thegoodhumanfactory.com/products/1-good-club-bookInstagram https://www.instagram.com/cooperchapman/TikTok https://www.tiktok.com/@cooperchapman_LinkedIn https://www.linkedin.com/in/cooper-chapman-08a278151/Workshop and Speaking Enquiries https://form.typeform.com/to/DSPSnvEHThe Good Human Factory Instagram https://www.instagram.com/thegoodhumanfactory/The Good Human Factory https://www.thegoodhumanfactory.comTHE GOOD HUMAN FACTORY™️ 2020 Hosted on Acast. See acast.com/privacy for more information.

This week I sat down with George Burgess, a rugby league legend who won an NRL Premiership with the South Sydney Rabbitohs and represented England on the international stage. George is a good mate who I just kept running into everywhere, so we finally sat down for a proper chat, and I'm so glad we did. This one goes well beyond the footy.George opens up about losing his dad to Motor Neurone Disease at fifteen, and how that shaped the path that followed. It was Russell Crowe, part-owner of the Rabbitohs, who brought the Burgess family out to play for Souths, and George shares what that opportunity meant for him and his brothers, Sam, Tom and Luke, who he went on to play alongside in the NRL.We also get into a side of George a lot of people don't know. He has always loved acting, and since hanging up the boots he has carved out a serious career on screen, with roles in Land of Bad, Spartacus: House of Ashur, and the upcoming Lionsgate feature Beast in Me.This is a chat about grief, reinvention, brotherhood and backing yourself to start again. George is the real deal and I loved this one.In this episode we cover:Winning an NRL Premiership with the South Sydney RabbitohsLosing his dad to Motor Neurone Disease at fifteen and how it shaped himHow Russell Crowe brought the family to SouthsPlaying alongside his brothers Sam, Tom and Luke in the NRLHis lifelong love of actingLanding roles in Land of Bad, Spartacus: House of Ashur and Beast in MeWhat it takes to reinvent yourself after sportGrief, brotherhood and starting a new chapterFollow GeorgeInstagram https://www.instagram.com/george.burgess2.0/?hl=enConnect with Cooper and TGHF1% Good Club Book (use code PODCAST for 25% off) https://www.thegoodhumanfactory.com/products/1-good-club-bookInstagram https://www.instagram.com/cooperchapman/TikTok https://www.tiktok.com/@cooperchapman_LinkedIn https://www.linkedin.com/in/cooper-chapman-08a278151/Workshop and Speaking Enquiries https://form.typeform.com/to/DSPSnvEHThe Good Human Factory Instagram https://www.instagram.com/thegoodhumanfactory/The Good Human Factory https://www.thegoodhumanfactory.comTHE GOOD HUMAN FACTORY™️ 2020 Hosted on Acast. See acast.com/privacy for more information.

This week I sat down with George Burgess, a rugby league legend who won an NRL Premiership with the South Sydney Rabbitohs and represented England on the international stage. George is a good mate who I just kept running into everywhere, so we finally sat down for a proper chat, and I'm so glad we did. This one goes well beyond the footy.George opens up about losing his dad to Motor Neurone Disease at fifteen, and how that shaped the path that followed. It was Russell Crowe, part-owner of the Rabbitohs, who brought the Burgess family out to play for Souths, and George shares what that opportunity meant for him and his brothers, Sam, Tom and Luke, who he went on to play alongside in the NRL.We also get into a side of George a lot of people don't know. He has always loved acting, and since hanging up the boots he has carved out a serious career on screen, with roles in Land of Bad, Spartacus: House of Ashur, and the upcoming Lionsgate feature Beast in Me.This is a chat about grief, reinvention, brotherhood and backing yourself to start again. George is the real deal and I loved this one.In this episode we cover:Winning an NRL Premiership with the South Sydney RabbitohsLosing his dad to Motor Neurone Disease at fifteen and how it shaped himHow Russell Crowe brought the family to SouthsPlaying alongside his brothers Sam, Tom and Luke in the NRLHis lifelong love of actingLanding roles in Land of Bad, Spartacus: House of Ashur and Beast in MeWhat it takes to reinvent yourself after sportGrief, brotherhood and starting a new chapterFollow GeorgeInstagram https://www.instagram.com/george.burgess2.0/?hl=enConnect with Cooper and TGHF1% Good Club Book (use code PODCAST for 25% off) https://www.thegoodhumanfactory.com/products/1-good-club-bookInstagram https://www.instagram.com/cooperchapman/TikTok https://www.tiktok.com/@cooperchapman_LinkedIn https://www.linkedin.com/in/cooper-chapman-08a278151/Workshop and Speaking Enquiries https://form.typeform.com/to/DSPSnvEHThe Good Human Factory Instagram https://www.instagram.com/thegoodhumanfactory/The Good Human Factory https://www.thegoodhumanfactory.comTHE GOOD HUMAN FACTORY™️ 2020 Hosted on Acast. See acast.com/privacy for more information.

Former Melbourne captain Garry Lyon has called on Prime Minister Anthony Albanese to write a "dirty big cheque" for FightMND in honour of Neale Daniher. The AFL great died at the age of 65 after fighting Motor Neurone Disease for 13 years. - گیری لیون، سرمربی پیشین فوتبال ملبورن، از ، انتونی آلبانیزی صدراعظم آسترالیا خواسته است به افتخار نیل دانیهیر، چهره نامدار لیگ فوتبال آسترالیایی (AFL) و بنیانگذار ابتکار"بیگ فریز" برای نهاد خیریه FightMND یک چک خیلی بزرگ بنویسد. نیل دانیهیر چهره بزرگ AFL پس از ۱۳ سال مبارزه با مریضی نیورون حرکی، در سن ۶۵ سالگی درگذشت.

Cựu đội trưởng của Melbourne là Garry Lyon, đã kêu gọi Thủ tướng Anthony Albanese, quyên góp một khoản tiền lớn cho tổ chức FightMND, để tưởng nhớ Neale Daniher. Huyền thoại AFL này đã qua đời ở tuổi 65, sau 13 năm chiến đấu với căn bệnh thoái hóa thần kinh vận động tức Motor Neurone Disease.

Former Melbourne captain Garry Lyon has called on Prime Minister Anthony Albanese to write a "dirty big cheque" for FightMND in honour of Neale Daniher. The AFL great died at the age of 65 after fighting Motor Neurone Disease for 13 years.

Neale Daniher, the 2025 Australian of the Year, beloved AFL figure and Motor Neurone Disease awareness campaigner has died after battling the debilitating disease for more than a decade.

AFL legend and former Australian of the Year Neale Daniher has sadly passed away at age 65 after a 13-year fight with Motor Neurone Disease. See omnystudio.com/listener for privacy information.

On today's episode of The Agenda, Matt Heath and Finn Caddie join ACC Head G Lane to discuss a massive missed opportunity for the podcast yesterday in Raglan (00:00)...Next, the fellas discuss a UK radio station playing audio claiming King Charles was dead (09:30), the NZ Breakers' new World Cup-winning coach (12:20), and the devastating news about NRL star Jai Arrow's Motor Neurone Disease diagnosis (16:30)...Plus, Ronaldo is heading to ANOTHER World Cup (26:50) and the All Whites are targeting Iran (30:40)? Finally, they get to your feedback in 'Yours Please' (38:05)... Did you know that we've launched a new Facebook Group called 'The Caravan' JOIN HERE! Brought to you by Export Ultra! Follow The ACC on Instagram or Facebook or TikTok Subscribe to The Agenda Podcast now on iHeartRadio, YouTube, or wherever you get your podcasts! iHeartRadio Apple Spotify YouTube THANKS MATE! See omnystudio.com/listener for privacy information.

The news broke that Jai Arrow has been diagnosed with Motor Neurone Disease. Jai is one of the toughest blokes I've ever met. Not tough in the way people throw the word around. Tough in the way he plays. The way he carries himself. The way he stands up for the people around him. This is our favourite moment from the full episode we did together earlier this year. Jai talks about fatherhood and what really matters in life. All our love to Jai and his family. Watch the full episode here.See omnystudio.com/listener for privacy information.

Manly stalwart Reuben Garrick is loving life under Kieran Foran and he reckons they've rediscovered their team identity. He chatted to Glen Lauder and Alan Tongue about the improved defence, winning without Tom Trbojevic and knowing it's his final year at the club. Plus the team discuss some of the State of Origin selections and talk about the sad news of Jai Arrow's Motor Neurone Disease revelation. 

Welcome to your Sports Today update. A snapshot of the latest sport stories including: New South Wales play down Stephen Crichton's injury concerns Geelong coach insists no shoulder issue with Bailey Smith New York Knicks take 1-nil lead in NBA conference finals after largest playoff comeback The biggest sport stories in less than 5 minutes delivered twice a day, with reports from the Sports Today team. Subscribe now to make it part of your daily news diet.See omnystudio.com/listener for privacy information.

Welcome to your Sports Today update. A snapshot of the latest sport stories including: New South Wales play down Stephen Crichton's injury concerns Geelong coach insists no shoulder issue with Bailey Smith New York Knicks take 1-nil lead in NBA conference finals after largest playoff comeback The biggest sport stories in less than 5 minutes delivered twice a day, with reports from the Sports Today team. Subscribe now to make it part of your daily news diet.See omnystudio.com/listener for privacy information.

Welcome to your Sports Today update. A snapshot of the latest sport stories including: New South Wales play down Stephen Crichton's injury concerns Geelong coach insists no shoulder issue with Bailey Smith New York Knicks take 1-nil lead in NBA conference finals after largest playoff comeback The biggest sport stories in less than 5 minutes delivered twice a day, with reports from the Sports Today team. Subscribe now to make it part of your daily news diet.See omnystudio.com/listener for privacy information.

Sofia Levin does a lot more than just eat. She’s built a name as one of Australia’s most respected food critics and landed her dream job as a judge on MasterChef Australia - bringing her expertise to one of the country’s biggest cooking shows. From carving out a career in food media to earning her first Logie nomination, she’s rubbed shoulders with names like Gordon Ramsay, Jamie Oliver, Robert Irwin and Poh Ling Yeow - learning what it takes to stand out in a world full of big personalities. In this chat with Chris Syprou, Sofia shares stories from her travels, the reality behind her career, and the personal loss of her father to Motor Neurone Disease, a cause she’s now more driven than ever to fight. Weekend list with Sacha Barbour Gatt and Helen Smith Listener Matt TO WATCH: Big Mistakes on Netflix TO LISTEN: Raye's album This Music May Contain Hope TO WATCH: Trust Me: The False Prophet on Netflix Follow The Briefing: TikTok: @thebriefingpodInstagram: @thebriefingpodcast YouTube: @TheBriefingPodcastSee omnystudio.com/listener for privacy information.

Dan was joined by Mike, Chris & Paul ahead of this year's March of the Day III, a 350-mile charity walk which will raise vital funds to support both the Darby Rimmer MND Foundation and the Leeds Hospitals Charity. Hosted on Acast. See acast.com/privacy for more information.

Lewis Moody opens up about life after rugby, reflecting on the highs of captaining England to World Cup glory and the brutal physical and mental toll the sport took behind the scenes. From relentless injuries to the pressure of leading a national team, he shares how discipline, resilience and identity shaped both his playing career and the transition that followed.He speaks about the reality of elite sport - the constant pain, the sacrifices away from family, and the struggle many athletes face when the career that defined them suddenly ends. Moody discusses rebuilding purpose after retirement, channeling the same drive that fueled his rugby career into business, media and charity work, while learning to adapt his competitive mindset to life beyond the pitch.Fiercely committed and deeply reflective, Lewis reveals how leadership, adversity and accountability forged the person he is today - and why the lessons from rugby continue to shape everything he does.He also speaks openly about his Motor Neurone Disease (MND) diagnosis, sharing how the progressive condition has changed daily life while highlighting the resilience and mindset he's using to face it - focusing on staying positive, adapting to the challenges, and continuing to support awareness for MND within the rugby community.This is the eventful life of Lewis Moody. https://uk.emma-live.com/LewisMoodyDinnerAll Enquiries - Hello@DodgeWoodall.comWebsite: DodgeWoodall.comYouTube: Dodge WoodallFacebook: Dodge WoodallInstagram: @Dodge.WoodallTikTok: @DodgeWoodallLinkedIn: Dodge Woodall Hosted on Acast. See acast.com/privacy for more information.

In this episode, Dr Andrew Vaughton, former Consultant Anaesthetist at University Hospitals Dorset NHS Foundation, shares his experience following his 2021 Motor Neurone Disease diagnosis and subsequent medical retirement. Andy now focuses on MND awareness, fundraising, and promoting health and community support.He's joined by his wife Dr Susanne Vaughton, a former GP who left medicine after Andy's diagnosis to become a full‑time writer. Known to readers as Susie Tate, she now balances authorship with advocacy and family life.Together, Andy and Susie discuss their projects, their commitment to supporting MND charities, and how they're using their time and platform to create meaningful impact. This episode highlights purposeful action, the strength of partnership, and a shared commitment to making a meaningful difference.Recorded Friday 21 November 2025Related information: Guinness World Record: Longest Beach Touch Rugby Game | £100k Raised for MND My Name'5 Doddie Foundation Andy's Army fundraiser for My Name'5 Doddie Foundation

There are nights in life that divide everything into two halves.Who you were before. And who you become afterwards.Greg Weston knows that feeling better than most.One evening out with friends ended in a moment that changed everything. His head struck a kerbstone. What followed was catastrophic. Greg was taken to hospital and very quickly slipped into a coma. At one point he was not expected to wake up.This episode tells the story of what happened next.Greg's long and stubborn climb back from the brink. From the frightening prospect of a vegetative state to the slow work of learning again. Moving again. Speaking again.And along the way, life had another surprise in store.Greg found love.The woman he now shares his life with carries her own story of a life altered in a single moment, giving them a rare understanding of just how suddenly everything can change.And at the centre of this story sits one mighty man who connects our paths. The late Matt Gallagher.Matt faced Motor Neurone Disease with a warrior spirit that left a mark on everyone who knew him. His courage and humour brought Greg and I into each other's orbit.This conversation reflects on friendship, love, and the strange truth that sometimes the worst night of your life becomes the moment that reshapes everything.Greg Weston is a man who will not stay down. Hosted on Acast. See acast.com/privacy for more information.

On Monday's Rugby Daily, David Wilson brings you news of injuries in the Six Nations, damage to the trophy and how safe is the game?Ireland ramp up preparations for a huge Six Nations clash with Wales in Dublin, with Bundee Aki, Robbie Henshaw, and Jimmy O'Brien called into the squad while Harry Byrne misses out through concussion.Wales suffer further injury setbacks, with fly-half Sam Costelow ruled out and uncapped forward Ryan Woodman drafted in as they chase a first Six Nations win in 15 games.Alan Quinlan shares his insight on Off The Ball Breakfast, discussing Ireland's possible team selection and key decisions ahead of Friday night's Aviva Stadium showdown.Scotland boosted by the potential early return of Jack Dempsey ahead of their crucial top-of-the-table clash with France at Murrayfield.England sweat over Ollie Lawrence's fitness for their trip to Rome, with Tommy Freeman and Henry Slade among the options to fill the midfield gap.The Six Nations trophy is retired from ceremonial use after fire damage during transit, with a replacement commissioned and an identical stand-in to be used for the remainder of the championship.Former England captain Lewis Moody opens up on his Motor Neurone Disease diagnosis in a powerful new documentary, raising fresh questions about player welfare and rugby's long-term risks.Become a member and sign up at offtheball.com/join

Today, we take a closer look at motor neurone disease (MND), a progressive neurodegenerative disorder affecting the motor neurones that control voluntary muscle movement. This programme explores the clinical features of MND, what it is like to live with the condition, how it is diagnosed, and the current approaches to treatment and management... Like this podcast? Please help us by supporting the Naked Scientists

Through 13 years with motor neurone disease, AFL legend and Big Freeze founder Neale Daniher has honed a remarkable philosophy for living. Today, we hear his message in Neale’s own voice, brought to life by AI technology. Read more about this story, plus see photos, videos and additional reporting, on the website or on The Australian’s app. This episode of The Front is presented and produced by Claire Harvey with Kristen Amiet and edited by Joshua Burton. Our team includes Lia Tsamoglou, Tiffany Dimmack, Stephanie Coombes and Jasper Leak, who also composed our music.See omnystudio.com/listener for privacy information.

Did you know that there is hope for patients diagnosed with ALS? Amyotrophic Lateral Sclerosis (ALS), the debilitating neurodegenerative disease commonly known as “Lou Gehrig's Disease,” is influenced by genetics and environmental factors, including living near bodies of water frequently impacted by harmful algal blooms. Join Food Sleuth Radio host and Registered Dietitian, Melinda Hemmelgarn for her conversation with Coco Newton, RD, MPH, CNS, a registered dietitian and holistic practitioner with expertise in functional medical nutritional therapy for improving the diet quality and quality of life for those diagnosed with ALS. Newton has been involved with Healing ALS: www.healingALS.org. She references the ALS Clinic at Duke University: https://alsclinic.duke.edu/our-research/ and the international conference on ALS and Motor Neurone Disease will be held Dec 5-7 in San Diego, CA: https://symposium.mndassociation.org/programme/. To learn more about algal blooms and neurodegenerative disease, see: https://www.eurekalert.org/news-releases/1087706 Related Websites: https://www.coconewton.com/

Jessica Owers was well established as a feature writer for several respected racing publications before being invited to tackle her first book in 2011. She knew the project would be a long and arduous one. She didn't expect it to take all of six years. Her much admired “Peter Pan- The True Story Of Phar Lap's Successor” was not only widely acclaimed but gave its author the incentive to follow up with a similar tribute to another iconic Australian racehorse. Just two years later she brought readers the fascinating story of 1940's champion Shannon.  It's taken Jessica twelve years to turn out her third book, and this one is on an entirely different theme. Encouraged by friends at the famous Magic Millions Sales organisation, the talented writer recently completed Magic Millions, The Rise, Fall and Extraordinary Rise Of An Iconic Australian Company. We welcome Jess to our podcast to tell us more about her new book and to share with us recollections of her fascinating journey in journalism thus far. The gifted writer says she was encouraged to tackle the Magic Millions story by a handful of longtime company stalwarts. She explains that most of the people involved in the Magic Millions story are still living, which greatly enhanced her research. The central characters in the Peter Pan and Shannon stories had long passed on. Jessica talks about the impression she gained during research about the late Carl Waugh, the man who first created the Magic Millions concept. She says few realised how close the fledgling company came to receivership in the 1990's. The author talks of a meeting she had with a Gold Coast developer who owned the Magic Millions company for a couple of years before hitting his own financial crisis. Jess says she also had the pleasure of recording a voice over for the audio version of her new book. She talks of her Irish birthplace and a family relocation to Australia before her first birthday. The mother of two looks back on a return to Ireland at age 10 and a subsequent university degree attained in Scotland. Jess says she headed back to Australia with her new diploma in hand and has never considered leaving the harbour city. She steadfastly declares that her love of thoroughbreds  was triggered by the legend of Phar Lap. Jess looks back on the six year slog required to complete her first book, “Peter Pan- The Forgotten Story Of Phar Lap's Successor.” She reflects on Peter Pan's stellar racing career. Jessica explains why she selected 1940's champion Shannon as the subject of her second thoroughbred biography. She gives a brief outline of Shannon's distinguished Australian racing career and the “one-off” Inglis sale convened to sell the great horse following the death of his owner and trainer Peter Riddle. The author also looks back on the stallion's subsequent sale to the US where he won several races before standing at Kentucky's famous Spendthrift Farm. Jess talks about her freelance roles with several racing platforms including her current contribution to “The Straight”- a recently introduced, subscription based digital publication founded and edited by respected journalist Bren O'Brien. She talks about her Racing Writer Of the Year  nomination at the . 2023 Kennedy Awards. She didn't win but was deeply touched by the honour. Jess talks about her own love of horse riding and pays a special tribute to Moxie's Halo- the former racehorse who became her best equine friend. Moxie died much too soon. She talks of the trauma experienced by the whole family when her sister Sonya was diagnosed with Motor Neurone Disease in 2009.  Her admiration for Sonya's courage is boundless. Jessica speaks with great affection of the two shining lights in her life- son Julien and daughter Charlotte.  

Former England ruby captain Lewis Moody recently revealed he had been diagnosed with Motor Neurone Disease (MND), and our conversations give an insight into how lives can be overturned by this muscle wasting condition. Dr Mehboob in Canada was diagnosed five years ago and is now paralysed from the neck down. He is joined in conversation by his wife, Sophie, and Evy in Belgium, whose dad died last year 46 years after his diagnosis. MND is incurable. Over time, muscles weaken, affecting movement, speech eating and breathing. People over 50 are most likely to get the disease but there is evidence that elite athletes are also disproportionately affected. We bring together Narayana in India with James and Gillian in the UK, who were all diagnosed in their 30s, to share their experiences of living with the condition.

In this edition of The Naked Scientists: Is elite level sport linked with Motor Neurone Disease? We examine the evidence as another top player announces his diagnosis. Also, cages that can sieve out molecules, the immune system peacekeepers; and the quantum realm: we look at this year's Nobel Prizes for science. And, how did birds react to the Great American Eclipse last year? Like this podcast? Please help us by supporting the Naked Scientists

Motor neurone disease is a devasting condition that's recently come to prominence in the media with the diagnosis of former English rugby captain Lewis Moody. Another famous person who suffered from the condition was Stephen Hawkins. What is motor neurone disease? It's a progressive nerve disease. It damages and kills nerve cells in the spinal cord and brain that control muscle movement in the body. The damaged nerve cells mean the brain can no longer signal muscles in the body. Muscles slowly lose the ability to function. Why does it occur? The exact cause is not fully understood. It's thought that up to 10% of cases are inherited and related to a patient's genes, while 90% are random with no clear genetic cause. Several things may be important: Abnormal accumulation protein in the nerve cells, destroying them. A possible inflammatory or immune system malfunction. Possible environmental factors like exposure to heavy metals or pesticides, however there's no clear evidence. What are the symptoms? It's difficult to diagnose initially with subtle changes: clumsiness in hands, slurred speech, tiredness. As time goes on, the main issue is weakness in the arms, legs, and hands – the person gradually losing the ability to use them. Speech and swallowing become difficult. Breathing problems as the muscles around lungs weaken. There can be mood swings. Can it be treated? Unfortunately, it is incurable. On average, patients live 2 to 5 years. Stephen Hawkins was an example of someone who actually lived with it for much longer – he was diagnosed at age 22 and lived to 76, which is very unusual. There are some experimental drugs that may slow progression that are being looked at. However, most treatment is supportive – trying to improve the person's quality of life. LISTEN ABOVE See omnystudio.com/listener for privacy information.

Former England captain and 2003 World Cup winner Lewis Moody has revealed that he's been diagnosed with motor neurone disease (MND).What is motor neurone disease, what are the symptoms, how is it diagnosed, and can sport cause the condition?We join UCL's professor of clinical neurology, Andrea Malaspina.Professor Malaspina is also clinical and academic lead of the Queen Square Motor Neuron Disease Centre.Also in this episode:The world's leading AI event, HumanX, is officially coming to Europe in 2026The Big Issue partners with tech company Lenovo to equip charities with laptopsStorm Amy: Thousands of homes remain without powerThe Andrew Law Gallery at Manchester's Science and Industry Museum reopens this October Hosted on Acast. See acast.com/privacy for more information.

British Lion, ex-Scotland rugby captain and a legend with the oval ball, Rob Wainwright and I chat rugby, and then his move to a farm on the Hebridean Island of Coll. Rob discusses his past team-mate Doddie Weir, and the work he has been involved in the MyNamesDoddie charity foundation for Motor Neurone Disease. Finally we hear about island life and the advanced methods of regenerative farming he is now undertaking as well as his recent vice-presidency at the Royal Highland Show.

Motor Neurone Disease is a condition that affects nerves found in the brain and spinal cord which tell our muscles what to do. The disease is life shortening and there is no cure. One listener, Diana Keys, was diagnosed in May 2023. She tells us about her experience and asks why does representation of MND in the media skew so heavily towards men? Diana is joined by Dame Pamela Shaw, an academic neurologist and world-leading researcher in MND.Listener Sally Ruffles describes herself as a 68 year old woman with one daughter and no grandchildren. She got in touch with Woman's Hour for Listener Week  to say: "There's this common assumption that having grandchildren is always a wonderful thing. But nobody really stops to think that not having them might also be okay—or even a positive thing for some people."  She joins Nuala with her daughter Hannah, who persuaded her mother to write to Woman's Hour, to discuss why it can be difficult to talk about not being a grandparent.  We talk to women living full time on the UK's waterways. Charlotte Ashman is an artist and print maker and Jo Bell is a writer and former UK Canal Laureate. They tell us about their lives, their work and the pros and cons of narrowboat living.Have you ever thought about going back to school? Recent graduates Sue Goldsmith & Rahat Ismail both returned to studying later in life. They join Nuala to discuss what took them back to education and the value of lifelong learning.Presenter: Nuala McGovern Producer: Emma Pearce

Former Mayo star Keith Higgins spoke to John Duggan about his late brother Pierce, who passed away from MND in 2023On Sunday July 27th, there is a 'Shoulder to Shoulder' walk in aid of those suffering from ALS, the most common form of Motor Neurone Disease. The walk is taking place at 9am at St Brigid's GAA Club, Croghan, County Offaly. Former All Ireland winners with Galway, Joe Bergin and Michael Meehan are part of the organising team and it's being supported by the likes of Galway GAA, Leinster Rugby and Connacht Rugby.If you can't make the walk, you can support via iDonate, with all funds going to Research Motor Neurone.

When Tris Dyson lost the use of his thumb in 2022, he had no idea it was the first sign of motor neurone disease (ALS). Just 44 years old, newly engaged, and a new father, his world shifted overnight. But instead of slowing down, Tris leaned into his life's work—fueling global scientific breakthroughs through prize-driven innovation. In this episode, Tris shares how he's turning a devastating diagnosis into a mission to spark the next major medical breakthrough. As the managing director behind the $10 million dollar Longitude Prize for ALS, he's channeling urgency, optimism, and innovation into solving one of the most brutal neurological diseases on the planet. This conversation is about resilience, purpose, and why Tris still believes the clock can be beaten. Learn more and learn how to enter! Link below! https://als.longitudeprize.org/?utm_source=x&utm_medium=organic_social&utm_campaign=lpals_launch&utm_content=launch Challenge Works UK IG:https://www.instagram.com/challengeworksuk/ Live Life in Motion YouTube: GO Subscribehttps://www.youtube.com/@livelifeinmotionpodcast Pelham Medical Centerhttps://www.spartanburgregional.com/locations/pelham-medical-center

Findings due in the coronial inquest into the death of Kumanjayi Walker; Calls for funding for a strategy to help Australians living with Motor Neurone Disease; And in cycling, Dutch rider Mathieu van der Poel wins stage two of the Tour de France.

It's been a while since the Logans were on the podcast together, but this week Kenny's back to talk about the cycling challenge that he has just completed in honour of his former Scotland teammate, Doddie Weir, raising vital funds for research into the disease which claimed his friend's life. Kenny talks about how moving it was to meet people along the way who are living with Motor Neurone Disease, and how it kept the physical brutality of the challenge in perspective and kept Kenny and the team pushing on - and up those Irish hills! They discuss how challenges like these take you beyond what you thought was possible, and how powerful a change of mindset can be when overcoming other challenges in midlife. Gabby and Kenny also catch up on all the family news since Christmas, including how they've been getting used to an empty nest, Gabby's feelings about being one of the new Match of the Day presenters, and why Kenny is hiding his pants somewhere in the house!You can still donate to the Doddie'5 Lions Challenge Ireland here or get started with your own fundraiser by visiting www.myname5doddie.co.uk/fundraising-support Hosted on Acast. See acast.com/privacy for more information.

So many people I'm speaking to at the moment are describing themselves as stuck in their careers – often they've built a very successful career in one area of specialism and now face into a very big question – “now I have different choices, is this what I really want to do?”You might know today's guest Tanya Arnold from her TV career – a BBC sports journalist covering two Olympics, the Commonwealth Games and the Rugby League World Cup. She was one of the first female sports reporters in broadcasting, starting at a time when women covering sport was virtually unheard of. In 2019 she hosted the first interview with the late rugby star Rob Burrow about his Motor Neurone Disease diagnosis – she calls it the hardest but also the most important interview she's ever done. Today she's a patron of the West Yorkshire MND Association.Two years ago Tanya started a new path in her career and just recently she posted on Instagram “I'm going it alone – here's to the variety and freewheeling!”Exploring your Unlock Moments can be a powerful way to figure out the path ahead. I can't wait to hear more about how Tanya is navigating this latest career transition and I'm curious about the parallels you might draw as you listen. --The Unlock Moment podcast is brought to you by Dr Gary Crotaz, PhD. Downloaded in over 120 countries. Sign up to The Unlock Moment newsletter at https://tinyurl.com/ywhdaazp Find out more at https://garycrotaz.com and https://theunlockmoment.com

It's Big Freeze 11 time and CEO of Fight MND Matt Tilley is our special guest this week. Matt was the king of Melbourne's FM breakfast timeslot not that long ago but now heads up the fight to cure the beast that is Motor Neurone Disease, working with Australian of the Year Neale Daniher and an incredible team of scientists, doctors and fundraisers. While the famous slide into the ice bath at the MCG on the King's Birthday Holiday is the focus of attention, the work to raise money and find a cure for MND happens 365 days a year. Away from work, Matt is a keen cook and passionate veggie grower - an award winning veggie grower, in fact - who shares his secret weapon for success in the garden. The Food Poll this week is a simple choice. Halloumi cheese - is it a yay or a nay? Big Freeze beanies are available at Coles, Bunnings and Shell Reddy and the new digital beanie, which you can personalise, via bigfreeze.com.au Presented by Sarah Patterson & Kevin Hillier Broadcast each Sunday on the ACE Radio Network - https://aceradio.com.au/Catch us also on:Radio 2DD - Easy Listening - On Line - https://www.2dd.online/Follow us on Facebook...https://www.facebook.com/foodbyteswithsarahpatterson/Twitter & Instagram - @sarahfoodbytesPost-production by Chris GatesforHowdy Partners Media | www.howdypartnersmedia.com.au/podcasts© 2025 See omnystudio.com/listener for privacy information.

When Mark's wife Claire was diagnosed with Motor Neurone Disease at just 38, their young family's world was turned upside down he tells PJ. See also here If you can help contact Claire and Mark at caringforclaire@gmail.com Hosted on Acast. See acast.com/privacy for more information.

A series of walks to raise awareness about Motor Neurone Disease are happening across the country this morning. Dr Natalie Gauld shares her personal experience.

Matt Davies-Adams, Adrian Clarke and Sam Parkin return for a stacked pod: - Leeds go 5 clear at the top of The Championship as QPR continue to climb  - 3 up 3 down from The National League? - Transfer window highlights and lowlights - Managerial Mike checks - Weekend previews - predicting cupsets - a loquacious tweet of the week This week we heard the heartbreaking news that our friend Joe Crilly had passed away. Joe's family are raising money for the Motor Neurone Disease association in his memory. if you would like, you can donate here https://www.justgiving.com/page/mnda-joe-crilly?utm_medium=FR&utm_source=TW also  Our partners quinn bet have a NEW offer: you can now get 50% back up to £35 + 10 Free Spins.   If your account has Sportsbook losses at the end of your first day's betting, QuinnBet will refund 50% of your losses as a Free Bet up to £35 (min 3 bets) Plus 10 Free online casino spins at QuinnCasino. Even if your account is up, you're guaranteed a £5 Free Bet Plus 10 Free Spins provided you place at least 1 bet of £10 or greater at the minimum odds. T&Cs apply | 18+ New UK Customers Only | GambleAware.org | Gamble Responsibly  https://quinnbet.click/o/L5trHE?lpage=T4KU20

Imagine facing a life-changing ALS diagnosis and tackling it with resilience and positivity. That's what Johnny Rodriguez, a 35-year-old high school lacrosse coach, husband, and father, has done. Johnny's story is one of inspiration, determination, and the power of community. From playing lacrosse in Hawaii to mentoring athletes at Mater Dei High School in Santa Ana, California, he pushes the boundaries of what's possible with ALS.Johnny's support network and the lacrosse community have been vital in fueling his fight. As a coach, he not only develops athletes but also teaches life skills and resilience. With a holistic approach to managing ALS—including ice baths, meditation, and advocacy through Athletes vs ALS—Johnny exemplifies hope, unity, and perseverance. His journey reminds us of the strength in community and the relentless pursuit of life's possibilities. Listen in and share with a friend. Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

This week, Dr Louise is joined by Nicola McFarlane, who was diagnosed with motor neurone disease (MND) in 2023. Nicola shares the story of her MND diagnosis, as well as the barriers she faced in accessing treatment for perimenopause symptoms – including low mood, anxiety and recurrent UTIs – to improve her quality of life. Nicola talks about how health professionals often put her perimenopause symptoms (which pre-dated her MND diagnosis) down to her MND, and why she is sharing her own experiences to help other women living with MND and facing hormonal changes. For more information on Newson Health, click here.

Former England and Manchester City captain Steph Houghton was one of the first big names in women's football. In her new book, Leading From The Back, she details her experience of fighting to take the women's game from niche to mainstream. She also talks to Kylie Pentelow about her husband, former footballer Stephen Darby, who was diagnosed with Motor Neurone Disease in 2018.In one of his first moves since his victory in the US election, President-elect Donald Trump has named his 2024 campaign manager, Susie Wiles, as his chief of staff in the White House. She will make history as the first woman to hold the title. But what do we know about the woman Trump referred to as the "ice maiden"? Kylie is joined by Anne McElvoy, Executive Editor at POLITICO and host of the Power Play podcast to discuss.Award-winning Turkish writer and political thinker Ece Temelkuran speaks to Anita Rani about a new play based on her novel, Women Who Blow on Knots. It's set against the backdrop of the Arab Spring in 2012, and four women embark on a road trip starting from Tunisia through Libya and Egypt to Lebanon, and is currently at the Arcola Theatre in East London.This Sunday, Wolf Hall: The Mirror and the Light starts on BBC One. The much anticipated second series of the TV adaption of Hilary Mantel's novels starts when Anne Boleyn is executed, and Henry VIII marries his third queen, Jane Seymour. Jane is played by Peaky Blinders actress Kate Phillips – she joins Kylie to talk more about the iconic role.

Grateful to catch up with John Driskell Hopkins (Hop) again to see how he's doing with his ALS diagnosis.  About 2.5 years after being told he had ALS, John continues to perform with the Zac Brown Band.  Despite seeing some progression of the disease, Hop is living a full and joyful life.  He's busy creating new music, being a family man and promoting Hop On A Cure, the foundation he & his wife, Jennifer started to accelerate ALS research.   Hop shares how ALS is affecting him & what it's like living out this journey in the public eye.   He updates us on his family, his music projects & how we all can join his efforts to find ALS cures.  Hop gives a sneak peek of their upcoming Harmony for Hope Gala in Atlanta, Georgia on September 14, 2024 - which will be a one of a kind evening with performances by Hop, Zac Brown, Clay Cook, Coy Bowles, Danny De Los Reyes, Kristian Bush, Lily Costner and other special guests.   Listen in to our conversation & share with a friend.  Hugs, LorriI am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Christian nearly drowned while swimming in the sea in Italy as a child. He returned to the beach with his wife and child - only to find that Yuri, the man who saved his life, was still there. The two men tell us about their emotional reunion and the profound effect the experience has had on them. Also: The New York couple who found a safe full of cash, and get to keep it, thanks to the increasingly popular hobby of magnet fishing. We speak to Yazzy Chamberlain and her grandad John, whose duets of classic songs have earned them millions of online viewers -- including Coldplay. How the powers of nature are being used to help solve water shortages in Mexico City by cleaning polluted rivers. The skull of a giant prehistoric bird known as the demon duck has been found in Australia. And don't waste a moment - the final message from Rob Burrow, rugby league star and Motor Neurone Disease campaigner.Our weekly collection of happy news and positive stories from around the world.

In the news this week, after the death of rugby legend Rob Burrow, we explore the mechanisms of motor neurone disease with John Ealing from the Manchester MND Care Centre. Also, we hear from Alexander Forse at the University of Cambridge who has helped to develop a carbon sponge which can suck CO2 out of the atmosphere, and Inga Kamp from the university of Groningen explains why a new finding from the JWST could reveal the secrets of how Earth-like planets form. Plus, the intriguing story of a non-drinker who couldn't stop getting drunk... Like this podcast? Please help us by supporting the Naked Scientists