Podcasts about motor neurone disease

Jessica Owers was well established as a feature writer for several respected racing publications before being invited to tackle her first book in 2011. She knew the project would be a long and arduous one. She didn't expect it to take all of six years. Her much admired “Peter Pan- The True Story Of Phar Lap's Successor” was not only widely acclaimed but gave its author the incentive to follow up with a similar tribute to another iconic Australian racehorse. Just two years later she brought readers the fascinating story of 1940's champion Shannon.  It's taken Jessica twelve years to turn out her third book, and this one is on an entirely different theme. Encouraged by friends at the famous Magic Millions Sales organisation, the talented writer recently completed Magic Millions, The Rise, Fall and Extraordinary Rise Of An Iconic Australian Company. We welcome Jess to our podcast to tell us more about her new book and to share with us recollections of her fascinating journey in journalism thus far. The gifted writer says she was encouraged to tackle the Magic Millions story by a handful of longtime company stalwarts. She explains that most of the people involved in the Magic Millions story are still living, which greatly enhanced her research. The central characters in the Peter Pan and Shannon stories had long passed on. Jessica talks about the impression she gained during research about the late Carl Waugh, the man who first created the Magic Millions concept. She says few realised how close the fledgling company came to receivership in the 1990's. The author talks of a meeting she had with a Gold Coast developer who owned the Magic Millions company for a couple of years before hitting his own financial crisis. Jess says she also had the pleasure of recording a voice over for the audio version of her new book. She talks of her Irish birthplace and a family relocation to Australia before her first birthday. The mother of two looks back on a return to Ireland at age 10 and a subsequent university degree attained in Scotland. Jess says she headed back to Australia with her new diploma in hand and has never considered leaving the harbour city. She steadfastly declares that her love of thoroughbreds  was triggered by the legend of Phar Lap. Jess looks back on the six year slog required to complete her first book, “Peter Pan- The Forgotten Story Of Phar Lap's Successor.” She reflects on Peter Pan's stellar racing career. Jessica explains why she selected 1940's champion Shannon as the subject of her second thoroughbred biography. She gives a brief outline of Shannon's distinguished Australian racing career and the “one-off” Inglis sale convened to sell the great horse following the death of his owner and trainer Peter Riddle. The author also looks back on the stallion's subsequent sale to the US where he won several races before standing at Kentucky's famous Spendthrift Farm. Jess talks about her freelance roles with several racing platforms including her current contribution to “The Straight”- a recently introduced, subscription based digital publication founded and edited by respected journalist Bren O'Brien. She talks about her Racing Writer Of the Year  nomination at the . 2023 Kennedy Awards. She didn't win but was deeply touched by the honour. Jess talks about her own love of horse riding and pays a special tribute to Moxie's Halo- the former racehorse who became her best equine friend. Moxie died much too soon. She talks of the trauma experienced by the whole family when her sister Sonya was diagnosed with Motor Neurone Disease in 2009.  Her admiration for Sonya's courage is boundless. Jessica speaks with great affection of the two shining lights in her life- son Julien and daughter Charlotte.  

Former England ruby captain Lewis Moody recently revealed he had been diagnosed with Motor Neurone Disease (MND), and our conversations give an insight into how lives can be overturned by this muscle wasting condition. Dr Mehboob in Canada was diagnosed five years ago and is now paralysed from the neck down. He is joined in conversation by his wife, Sophie, and Evy in Belgium, whose dad died last year 46 years after his diagnosis. MND is incurable. Over time, muscles weaken, affecting movement, speech eating and breathing. People over 50 are most likely to get the disease but there is evidence that elite athletes are also disproportionately affected. We bring together Narayana in India with James and Gillian in the UK, who were all diagnosed in their 30s, to share their experiences of living with the condition.

In this edition of The Naked Scientists: Is elite level sport linked with Motor Neurone Disease? We examine the evidence as another top player announces his diagnosis. Also, cages that can sieve out molecules, the immune system peacekeepers; and the quantum realm: we look at this year's Nobel Prizes for science. And, how did birds react to the Great American Eclipse last year? Like this podcast? Please help us by supporting the Naked Scientists

Motor neurone disease is a devasting condition that's recently come to prominence in the media with the diagnosis of former English rugby captain Lewis Moody. Another famous person who suffered from the condition was Stephen Hawkins. What is motor neurone disease? It's a progressive nerve disease. It damages and kills nerve cells in the spinal cord and brain that control muscle movement in the body. The damaged nerve cells mean the brain can no longer signal muscles in the body. Muscles slowly lose the ability to function. Why does it occur? The exact cause is not fully understood. It's thought that up to 10% of cases are inherited and related to a patient's genes, while 90% are random with no clear genetic cause. Several things may be important: Abnormal accumulation protein in the nerve cells, destroying them. A possible inflammatory or immune system malfunction. Possible environmental factors like exposure to heavy metals or pesticides, however there's no clear evidence. What are the symptoms? It's difficult to diagnose initially with subtle changes: clumsiness in hands, slurred speech, tiredness. As time goes on, the main issue is weakness in the arms, legs, and hands – the person gradually losing the ability to use them. Speech and swallowing become difficult. Breathing problems as the muscles around lungs weaken. There can be mood swings. Can it be treated? Unfortunately, it is incurable. On average, patients live 2 to 5 years. Stephen Hawkins was an example of someone who actually lived with it for much longer – he was diagnosed at age 22 and lived to 76, which is very unusual. There are some experimental drugs that may slow progression that are being looked at. However, most treatment is supportive – trying to improve the person's quality of life. LISTEN ABOVE See omnystudio.com/listener for privacy information.

In part 2 of this weeks podcast we discuss the sad news of another former player being diagnosed with Motor Neurone Disease and try to work out what we can do to ease issues with lack of number in the community leagues. #Welshrugby #Communityrugby #MND #WRU #Whoisshortthisweek Learn more about your ad choices. Visit podcastchoices.com/adchoices

Former England captain and 2003 World Cup winner Lewis Moody has revealed that he's been diagnosed with motor neurone disease (MND).What is motor neurone disease, what are the symptoms, how is it diagnosed, and can sport cause the condition?We join UCL's professor of clinical neurology, Andrea Malaspina.Professor Malaspina is also clinical and academic lead of the Queen Square Motor Neuron Disease Centre.Also in this episode:The world's leading AI event, HumanX, is officially coming to Europe in 2026The Big Issue partners with tech company Lenovo to equip charities with laptopsStorm Amy: Thousands of homes remain without powerThe Andrew Law Gallery at Manchester's Science and Industry Museum reopens this October Hosted on Acast. See acast.com/privacy for more information.

British Lion, ex-Scotland rugby captain and a legend with the oval ball, Rob Wainwright and I chat rugby, and then his move to a farm on the Hebridean Island of Coll. Rob discusses his past team-mate Doddie Weir, and the work he has been involved in the MyNamesDoddie charity foundation for Motor Neurone Disease. Finally we hear about island life and the advanced methods of regenerative farming he is now undertaking as well as his recent vice-presidency at the Royal Highland Show.

Motor Neurone Disease is a condition that affects nerves found in the brain and spinal cord which tell our muscles what to do. The disease is life shortening and there is no cure. One listener, Diana Keys, was diagnosed in May 2023. She tells us about her experience and asks why does representation of MND in the media skew so heavily towards men? Diana is joined by Dame Pamela Shaw, an academic neurologist and world-leading researcher in MND.Listener Sally Ruffles describes herself as a 68 year old woman with one daughter and no grandchildren. She got in touch with Woman's Hour for Listener Week  to say: "There's this common assumption that having grandchildren is always a wonderful thing. But nobody really stops to think that not having them might also be okay—or even a positive thing for some people."  She joins Nuala with her daughter Hannah, who persuaded her mother to write to Woman's Hour, to discuss why it can be difficult to talk about not being a grandparent.  We talk to women living full time on the UK's waterways. Charlotte Ashman is an artist and print maker and Jo Bell is a writer and former UK Canal Laureate. They tell us about their lives, their work and the pros and cons of narrowboat living.Have you ever thought about going back to school? Recent graduates Sue Goldsmith & Rahat Ismail both returned to studying later in life. They join Nuala to discuss what took them back to education and the value of lifelong learning.Presenter: Nuala McGovern Producer: Emma Pearce

Alright guys welcome back to another episode of CrossingSwords.This week we have Ash, Jake and Andrew discussing all things premier league and putting our pride and reputation on the line discussing, debating and nailing our colours to the mast and choosing every league position and who'll finish in those positions.It was a proper laugh and not an episode you want to miss.Jake is doing a challenge for charity supporting the MND Association a charity which raises money for Motor Neurone Disease. Jake for the challenge will walk 15,000 steps a day during august. Please donate to the page below. https://socialsync.app/fundraiser/cr-dvkpz7dvrjpy7As always you can find us @ https://crossingswords.buzzsprout.com https://www.facebook.com/SwordsCrossing/ https://twitter.com/swordscrossing https://www.instagram.com/crossingswords_podcast/ https://www.tiktok.com/@crossingswords_podcastAnd now all of our episodes are recorded and uploaded to YouTube, you can find this @https://youtube.com/channel/UCdjNrKXParCgoFpiBGp_Y_A 

Former Mayo star Keith Higgins spoke to John Duggan about his late brother Pierce, who passed away from MND in 2023On Sunday July 27th, there is a 'Shoulder to Shoulder' walk in aid of those suffering from ALS, the most common form of Motor Neurone Disease. The walk is taking place at 9am at St Brigid's GAA Club, Croghan, County Offaly. Former All Ireland winners with Galway, Joe Bergin and Michael Meehan are part of the organising team and it's being supported by the likes of Galway GAA, Leinster Rugby and Connacht Rugby.If you can't make the walk, you can support via iDonate, with all funds going to Research Motor Neurone.

When Tris Dyson lost the use of his thumb in 2022, he had no idea it was the first sign of motor neurone disease (ALS). Just 44 years old, newly engaged, and a new father, his world shifted overnight. But instead of slowing down, Tris leaned into his life's work—fueling global scientific breakthroughs through prize-driven innovation. In this episode, Tris shares how he's turning a devastating diagnosis into a mission to spark the next major medical breakthrough. As the managing director behind the $10 million dollar Longitude Prize for ALS, he's channeling urgency, optimism, and innovation into solving one of the most brutal neurological diseases on the planet. This conversation is about resilience, purpose, and why Tris still believes the clock can be beaten. Learn more and learn how to enter! Link below! https://als.longitudeprize.org/?utm_source=x&utm_medium=organic_social&utm_campaign=lpals_launch&utm_content=launch Challenge Works UK IG:https://www.instagram.com/challengeworksuk/ Live Life in Motion YouTube: GO Subscribehttps://www.youtube.com/@livelifeinmotionpodcast Pelham Medical Centerhttps://www.spartanburgregional.com/locations/pelham-medical-center

Findings due in the coronial inquest into the death of Kumanjayi Walker; Calls for funding for a strategy to help Australians living with Motor Neurone Disease; And in cycling, Dutch rider Mathieu van der Poel wins stage two of the Tour de France.

Alright guys welcome back to another Episode of CrossingSwords,This week Jake and Andrew discuss Glastonbury, Bob Vylan, Free Speech, Incitement of violence, Rachel Reeves Crying, Kier Starmer and the recent events around the Welfare Bill.Jake is doing a challenge for charity supporting the MND Association a charity which raises money for Motor Neurone Disease. Jake for the challenge will walk 15,000 steps a day during august. Please donate to the page below. https://socialsync.app/fundraiser/cr-dvkpz7dvrjpy7As always you can find us @ https://crossingswords.buzzsprout.com https://www.facebook.com/SwordsCrossing/ https://twitter.com/swordscrossing https://www.instagram.com/crossingswords_podcast/ https://www.tiktok.com/@crossingswords_podcastAnd now all of our episodes are recorded and uploaded to YouTube, you can find this @https://youtube.com/channel/UCdjNrKXParCgoFpiBGp_Y_A

It's been a while since the Logans were on the podcast together, but this week Kenny's back to talk about the cycling challenge that he has just completed in honour of his former Scotland teammate, Doddie Weir, raising vital funds for research into the disease which claimed his friend's life. Kenny talks about how moving it was to meet people along the way who are living with Motor Neurone Disease, and how it kept the physical brutality of the challenge in perspective and kept Kenny and the team pushing on - and up those Irish hills! They discuss how challenges like these take you beyond what you thought was possible, and how powerful a change of mindset can be when overcoming other challenges in midlife. Gabby and Kenny also catch up on all the family news since Christmas, including how they've been getting used to an empty nest, Gabby's feelings about being one of the new Match of the Day presenters, and why Kenny is hiding his pants somewhere in the house!You can still donate to the Doddie'5 Lions Challenge Ireland here or get started with your own fundraiser by visiting www.myname5doddie.co.uk/fundraising-support Hosted on Acast. See acast.com/privacy for more information.

Dr Bec Sheean is the Director of Research and Programs at FightMND, leading strategy across all funded research and initiatives to accelerate progress against Motor Neurone Disease.With a PhD in neuroscience and a Graduate Certificate in Clinical Research, she champions collaborative, translational science. Bec chairs the International Research Director Forum, co-chairs the MND Research Collective, and serves on the International Alliance's Scientific Advisory Committee.This is Bec's first ever in-depth interview.+++ To support this podcast, check out our some of our sponsors & get discounts:→ $1,000 off Vanta: Your compliance superpower — vanta.com/high→ Get up to 6 months of Notion's Business plan for free with Notion AI included (worth $12K): Go to - https://ntn.so/highflyers & click “Apply Now”If you're keen to discuss sponsorship and partnering with us or recommend future guests, email us at contact@curiositycentre.com today!  ***CLICK HERE to read show notes from this conversation. Please enjoy!***Follow us on Instagram, LinkedIn or TwitterGet in touch with our Founder and Host, Vidit Agarwal directly hereContact us via our website to discuss sponsorship opportunities, recommend future guests or share feedback, we love hearing how to improve! Thank you for rating / reviewing this podcast on Apple Podcasts and Spotify, it helps others find us and convince guests to come on the show! ***The High Flyers Podcast is described as a "meticulously researched biography" that uncovers the untold stories of remarkable people and companies -- redefining the "high flyer". Launched in 2020, we have ranked in the global top ten podcasts for past two years, with listeners in 27 countries and over 200 episodes released. Excerpts of the podcast have been featured in Forbes, AFR, Daily Telegraph, and showcased at SXSW.200+ guests have joined host, Vidit Agarwal on the show from 15+ countries, including The CEO's of multi-billion dollar companies like Bunnings, Australia Post, Woolworths, Airwallex, Eucalyptus etc; Board Members at Macquarie Bank, ANZ, Reserve Bank etc; Former Prime Minister of Australia; Globally renowned Tech CEO's from Google, Microsoft, Xero etc, Successful Venture Capital and Family Office Investors; CIO's at the world's biggest superannuation funds; Leading Entertainers; Olympic Gold Medal Winning Athletes and interesting minds you wouldn't have heard of that are changing the world. Our parent company, Curiosity Center is your on-demand intelligence hub for knowledge, connections and growth to achieve your potential, everyday. Join 200,000+ Investors, Founders, Functional Leaders, CEOs and Emerging Leaders. Learn with the world's best and be 1% better everyday at https://curiositycentre.com***   

We kick off this week with Rugby Union, as the British andIrish Lions head off to Perth to start their tour of Australia. They arrive after an opening defeat against Argentina in Dublin in a game that was a superb performance by Los Pumas, and will have given the Lions coaches some challenges to ponder.In Tennis it was Queens Club where Tatjania Maria fromGermany shocked fans, as the qualifier became the first women's winner at Queens for 52 years, as well as becoming the oldest female player to win a WTA tour event at 37 years of age. In the men's event, Carlos Alcaraz again playedbrilliantly to add another title to his collection.In Cricket, England chased down 371 to win an enthrallingfirst test against India at Headingley. After India had dominated with the bat on day one it had seemed unlikely, but with Josh Tongue bowling through the Indian lower order in both innings and centuries for Ollie Pope and Ben Duckett,England stayed in the fight before the final day's excitement. We also pay tribute to former England and Gloucester fast bowler David “Syd” Lawrence, who passed away from Motor Neurone Disease aged just 61.Our guest this week is golf pro and regular contributor, AndyWild. He joins us to look back at the exciting US open on a very tough Oakmont Country Club course, where winner JJ Spaun from the USA was the only player to score under par for the week. Andy also casts his eye forward to next month'sOpen Championship from Portrush, as well as offering some tips on playing well in the heat (including his own, unique hydration tips!).Another fantastic episode.

So many people I'm speaking to at the moment are describing themselves as stuck in their careers – often they've built a very successful career in one area of specialism and now face into a very big question – “now I have different choices, is this what I really want to do?”You might know today's guest Tanya Arnold from her TV career – a BBC sports journalist covering two Olympics, the Commonwealth Games and the Rugby League World Cup. She was one of the first female sports reporters in broadcasting, starting at a time when women covering sport was virtually unheard of. In 2019 she hosted the first interview with the late rugby star Rob Burrow about his Motor Neurone Disease diagnosis – she calls it the hardest but also the most important interview she's ever done. Today she's a patron of the West Yorkshire MND Association.Two years ago Tanya started a new path in her career and just recently she posted on Instagram “I'm going it alone – here's to the variety and freewheeling!”Exploring your Unlock Moments can be a powerful way to figure out the path ahead. I can't wait to hear more about how Tanya is navigating this latest career transition and I'm curious about the parallels you might draw as you listen. --The Unlock Moment podcast is brought to you by Dr Gary Crotaz, PhD. Downloaded in over 120 countries. Sign up to The Unlock Moment newsletter at https://tinyurl.com/ywhdaazp Find out more at https://garycrotaz.com and https://theunlockmoment.com

It's Big Freeze 11 time and CEO of Fight MND Matt Tilley is our special guest this week. Matt was the king of Melbourne's FM breakfast timeslot not that long ago but now heads up the fight to cure the beast that is Motor Neurone Disease, working with Australian of the Year Neale Daniher and an incredible team of scientists, doctors and fundraisers. While the famous slide into the ice bath at the MCG on the King's Birthday Holiday is the focus of attention, the work to raise money and find a cure for MND happens 365 days a year. Away from work, Matt is a keen cook and passionate veggie grower - an award winning veggie grower, in fact - who shares his secret weapon for success in the garden. The Food Poll this week is a simple choice. Halloumi cheese - is it a yay or a nay? Big Freeze beanies are available at Coles, Bunnings and Shell Reddy and the new digital beanie, which you can personalise, via bigfreeze.com.au Presented by Sarah Patterson & Kevin Hillier Broadcast each Sunday on the ACE Radio Network - https://aceradio.com.au/Catch us also on:Radio 2DD - Easy Listening - On Line - https://www.2dd.online/Follow us on Facebook...https://www.facebook.com/foodbyteswithsarahpatterson/Twitter & Instagram - @sarahfoodbytesPost-production by Chris GatesforHowdy Partners Media | www.howdypartnersmedia.com.au/podcasts© 2025 See omnystudio.com/listener for privacy information.

RED. HOT. SUMMER. TOUR. IS. BACK.

When Mark's wife Claire was diagnosed with Motor Neurone Disease at just 38, their young family's world was turned upside down he tells PJ. See also here If you can help contact Claire and Mark at caringforclaire@gmail.com Hosted on Acast. See acast.com/privacy for more information.

Graham LLoyd, who has lost family members to Motor Neurone DIsease, is running the London marathon for the MNDA as a triceratops! He’s walking to the starting line and on day two was greeted in Petersfield Town Square by the Mayor, Cllr Lesley Farrow and Morris Dancers, from the Victory, Mafeking and Borden and Alton Morris. Mike Waddington spoke to Ashley Morgan, the organiser, who has MND herself, Krane Norris , 'the Bag' from Alton Norris, Faye Thompson, the Town Cryer, and Graham Lloyd. #ISawTheDinosaur See omnystudio.com/listener for privacy information.

A series of walks to raise awareness about Motor Neurone Disease are happening across the country this morning. Dr Natalie Gauld shares her personal experience.

Matt Davies-Adams, Adrian Clarke and Sam Parkin return for a stacked pod: - Leeds go 5 clear at the top of The Championship as QPR continue to climb  - 3 up 3 down from The National League? - Transfer window highlights and lowlights - Managerial Mike checks - Weekend previews - predicting cupsets - a loquacious tweet of the week This week we heard the heartbreaking news that our friend Joe Crilly had passed away. Joe's family are raising money for the Motor Neurone Disease association in his memory. if you would like, you can donate here https://www.justgiving.com/page/mnda-joe-crilly?utm_medium=FR&utm_source=TW also  Our partners quinn bet have a NEW offer: you can now get 50% back up to £35 + 10 Free Spins.   If your account has Sportsbook losses at the end of your first day's betting, QuinnBet will refund 50% of your losses as a Free Bet up to £35 (min 3 bets) Plus 10 Free online casino spins at QuinnCasino. Even if your account is up, you're guaranteed a £5 Free Bet Plus 10 Free Spins provided you place at least 1 bet of £10 or greater at the minimum odds. T&Cs apply | 18+ New UK Customers Only | GambleAware.org | Gamble Responsibly  https://quinnbet.click/o/L5trHE?lpage=T4KU20

A kiwi man is on a worldwide letter delivery mission. Jonny Beardmore collected 50 letters from an ancient postbox in the Galapagos Islands earlier this year – letters left there by travellers in the hope that one day they would be delivered. Beardmore, aka the Galapagos Postman, is now travelling the world delivering the letters to their intended recipients in a mission to raise awareness for Motor Neurone Disease both here in NZ and in the UK. Beardmore is currently delivering in New Zealand and tells Francesca Rudkin the idea came about whilst looking for a new adventure. LISTEN ABOVESee omnystudio.com/listener for privacy information.

Imagine facing a life-changing ALS diagnosis and tackling it with resilience and positivity. That's what Johnny Rodriguez, a 35-year-old high school lacrosse coach, husband, and father, has done. Johnny's story is one of inspiration, determination, and the power of community. From playing lacrosse in Hawaii to mentoring athletes at Mater Dei High School in Santa Ana, California, he pushes the boundaries of what's possible with ALS.Johnny's support network and the lacrosse community have been vital in fueling his fight. As a coach, he not only develops athletes but also teaches life skills and resilience. With a holistic approach to managing ALS—including ice baths, meditation, and advocacy through Athletes vs ALS—Johnny exemplifies hope, unity, and perseverance. His journey reminds us of the strength in community and the relentless pursuit of life's possibilities. Listen in and share with a friend. Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

This week, Dr Louise is joined by Nicola McFarlane, who was diagnosed with motor neurone disease (MND) in 2023. Nicola shares the story of her MND diagnosis, as well as the barriers she faced in accessing treatment for perimenopause symptoms – including low mood, anxiety and recurrent UTIs – to improve her quality of life. Nicola talks about how health professionals often put her perimenopause symptoms (which pre-dated her MND diagnosis) down to her MND, and why she is sharing her own experiences to help other women living with MND and facing hormonal changes. For more information on Newson Health, click here.

Former England and Manchester City captain Steph Houghton was one of the first big names in women's football. In her new book, Leading From The Back, she details her experience of fighting to take the women's game from niche to mainstream. She also talks to Kylie Pentelow about her husband, former footballer Stephen Darby, who was diagnosed with Motor Neurone Disease in 2018.In one of his first moves since his victory in the US election, President-elect Donald Trump has named his 2024 campaign manager, Susie Wiles, as his chief of staff in the White House. She will make history as the first woman to hold the title. But what do we know about the woman Trump referred to as the "ice maiden"? Kylie is joined by Anne McElvoy, Executive Editor at POLITICO and host of the Power Play podcast to discuss.Award-winning Turkish writer and political thinker Ece Temelkuran speaks to Anita Rani about a new play based on her novel, Women Who Blow on Knots. It's set against the backdrop of the Arab Spring in 2012, and four women embark on a road trip starting from Tunisia through Libya and Egypt to Lebanon, and is currently at the Arcola Theatre in East London.This Sunday, Wolf Hall: The Mirror and the Light starts on BBC One. The much anticipated second series of the TV adaption of Hilary Mantel's novels starts when Anne Boleyn is executed, and Henry VIII marries his third queen, Jane Seymour. Jane is played by Peaky Blinders actress Kate Phillips – she joins Kylie to talk more about the iconic role.

Kia ora e te whānau! We are not going to lie to you, this is a heavy episode, however it is absolutely one that you need to hear. Matt and Ali Pottinger ventured to Scenic World in Katoomba to facilitate this discussion for the Firies Furber Stairs Climb. We spoke to the original Firies Climb Organiser, Matt Pridham, about his personal experience with MND and how this drove him to start an event which raised millions of dollars, We spoke to Professor Dominic Rowe of Macqurie University. A consultant neurologist with a fury to find a cure, and who singley handidly inspired everyone in the room listening, gave pause around how we live our lives, and shattered the F bomb record on DCR. We spoke with Jane Simpson, host of MND Talks, a podcast for those families and people living with MND. Jane is the chair of the MND research collective and shared the loss of her husband to MND. Lastly, we speak to Blue Mountains local, ultramarathon runner, and on-call fire fighter Gavin Clifton, about taking up the torch as the firies climb organiser, and the purpose this brings him, and the mammoth task awaiting him to smash out 24 hours on the Furber Stairs. . Enjoy!!Sign up to the DCR AidStation Episode links:SQUADRUNDirt Church Merch!Jenny Hirst's 60km for 60 ChallengeFiries Climb for Motor Neurone Disease.Inia Raumati Kia Mau Kia Ora CurranzJulbo Eyewear UltrAspireDirt Church Radio on InstagramDirt Church Radio on Twitter Dirt Church Radio on Facebook CieleFurther Faster New ZealandEnjoy!Music by Andrew McDowall, Digicake Curranz.co.nz Fit, Healthy & Happy Podcast Welcome to the Fit, Healthy and Happy Podcast hosted by Josh and Kyle from Colossus...Listen on: Apple Podcasts Spotify

On September 1, 2024, Mark O'Brien, 55, a citizen of both Ireland and the UK, will attempt two Guinness World Records in one day, tackling two swim sprint challenges in two countries to become the record holder for the fastest swims for someone with Motor Neurone Disease. His first attempt will be a 50m Freestyle in Luton, UK, at Inspire Luton Sports Village at 08:50 AM, where he looks to beat a time of 38.92 seconds. He will then travel to Ireland where his second attempt will be a 100m Freestyle at the National Aquatic Centre in Dublin at 16:30 PM where he will look to beat a time of one minute 39.88 seconds. This is not the first time Mark has challenged himself to such a degree, having previously set the world record for the longest non-stop, unaided open water swim by a person with MND around the same time the previous year, with a distance of 6.8 miles (11km).  Diagnosed with MND in March 2022, he was inspired by the likes of Rob Burrow and Alex Gibson to raise awareness and encourage increased funding for MND charities. Mark's mission is to make a difference with the time he has left and never give up until his last breath. With his condition deteriorating, Mark is determined to try and still make a difference. All funds raised will be equally distributed between The Irish Motor Neurone Disease Association (IMNDA), The UK Motor Neurone Disease Association (MNDA), and Challenging MND. Donations are welcome via his GiveWheel fundraising page. Mark spoke to John Mulligan on Saturday Sport.

In this podcast I use touching patient anecdotes to explore the devastating manifestations and relentless progression of motor neurone disease. I also discuss the current understanding of the risk factors and mimics of the disease.

Grateful to catch up with John Driskell Hopkins (Hop) again to see how he's doing with his ALS diagnosis.  About 2.5 years after being told he had ALS, John continues to perform with the Zac Brown Band.  Despite seeing some progression of the disease, Hop is living a full and joyful life.  He's busy creating new music, being a family man and promoting Hop On A Cure, the foundation he & his wife, Jennifer started to accelerate ALS research.   Hop shares how ALS is affecting him & what it's like living out this journey in the public eye.   He updates us on his family, his music projects & how we all can join his efforts to find ALS cures.  Hop gives a sneak peek of their upcoming Harmony for Hope Gala in Atlanta, Georgia on September 14, 2024 - which will be a one of a kind evening with performances by Hop, Zac Brown, Clay Cook, Coy Bowles, Danny De Los Reyes, Kristian Bush, Lily Costner and other special guests.   Listen in to our conversation & share with a friend.  Hugs, LorriI am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Send us a Text Message.We talk to Jake Popyura - Musician and Songwriter of the band Supermilk. Growing up in the 1990s, it was hard for Jake Popyura not to be heavily influenced by some of the most wacky and much overlooked movies he'd find on the shelves of his local Video Shop. These films would be a touch point throught his career with the bands Doe and more recently Supermilk leading to even releasing an album on the VHS Format in today's world. We chat all about these events along with his recent life changing diagnosis of Motor Neurone Disease and how he's adapting to not only day to day life but how something as huge as this affects him as a touring musician. Presented in association with Affinity Photo - The hottest photo editing software on iPad, Mac & PChttps://affinity.serif.com/photoIntro Music by Johnny Monacohttps://www.johnnymonaco.com/ Incidental Music by Night Fires Please visit The Straight To Video Patreon Page to find out how you can help grow this show. https://www.patreon.com/80sVideoShop

Motor neurone disease sufferer Jake Popyura leads Supermilk, about to put out their new record High Precision Ghosts on 9 August. Jake talks about his journey so far of being diagnosed, how he's made stage-friendly props to help playing live, and spreading the message of MND experiences. Pre-order High Precision Ghosts at https://supermilk4u.bandcamp.com/album/high-precision-ghosts DistroKid makes music distribution fun and easy with unlimited uploads and artists keeping the ENTIRETY of their revenue. Get 30% off the first year of their service by signing up at https://distrokid.com/vip/101pod Learn more about your ad choices. Visit megaphone.fm/adchoices

New research reveals that markers of Motor Neurone Disease are more likely to be found in the blood of retired sportsmen who have suffered several concussions, offering hope of early diagnosis and possibly earlier treatment.It also adds more weight to growing evidence of the link between contact sports and brain conditions. So, where does this leave sports like rugby?Martin Stew tells Lucrezia Millarini what you need to know...

The tributes continue for Norm Hewitt.  The Former All Black, Māori All Black, and Hurricane was fighting with Motor Neurone Disease before passing at the age of 55.   For most of his international career, Hewitt was head-to-head with Sean Fitzpatrick for the No. 2 jersey.  Fitzpatrick told Mike Hosking he has a massive respect for Hewitt, and the reason he got the best out of him is because Hewitt was hugely competitive.   He said he has a huge admiration for what he did, saying that he had some difficult times and to be able to turn that around and give back was huge.  LISTEN ABOVE See omnystudio.com/listener for privacy information.

So grateful to have this conversation with Kerry Goode, former NFL (National Football League) player who was diagnosed with ALS in 2015.  Kerry was a running back at the University of Alabama, Tampa Bay Buccaneers, Miami Dolphins and later a strength and conditioning coach also in the NFL.  So he knew something was wrong when he couldn't pick up a box. Here, Kerry shares what he's feeling about having been so physically strong, being able to bench press 400 pounds & squat 800 pounds to now not even being able to pick up a pencil.  He lets us know how he's able to maintain a positive attitude and find great joy in life despite losing his ability to walk, talk and even breathe on his own.  It's no surprise that Kerry is now giving back through his own organization, The Goode Foundation whose mission is to support patients and families affected by ALS and fund ALS research.  We talk about the motivation to share his journey with ALS and his faith in the book that he typed with his eyes after ALS took his ability to move his fingers, “Goode and Faithful Servant: The Kerry Goode Story.”  Our entire conversation here was recorded with Kerry using his eyes to type his answers to my questions.  It's remarkable and so is Kerry.  Thanks for listening in and sharing.  Hugs, Lorrihttps://www.goodefoundation.org/I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Tune in to Episode 178 of The Michael Anthony Show in which many cultural, political and sporting topics are explored throughout. Motor Neurone Disease, nicotine use and quitting, sex party culture, teenage romance and philosophy are all delved into, as is the US Presidential Race, golf and the Olympics. An in depth discussion on the English national team also features, as does the music of MJ Lenderman.Tune in. Respect to the listeners. Support the Show.

Join Lee and Kev on this compelling episode of The Black Country Blokes as they sit down with Clive Branson, a man who has turned his profound experiences into a beacon of hope for many. From his early years in the Royal Air Force and a long tenure with the Ministry of Defence to his challenging yet inspiring personal journey, Clive shares how he built a career studying the human condition and mastering effective communication.After leaving the MoD in 2017, Clive's life was shaken by a series of heartbreaking events: losing his father to Parkinson's and Dementia, battling Motor Neurone Disease, a severe mental breakdown, and losing his mother to Covid. Despite these overwhelming adversities, Clive found strength in the love and support of his family, redefining his outlook on life.In this episode, Clive opens up about how he uses his story to connect with others, from corporate audiences to prison inmates, demonstrating the incredible resilience and fortitude we all possess. He passionately discusses the importance of self-compassion, empathy, and the power of maintaining a positive mindset. Clive's authenticity and humor make his message not only relatable but profoundly inspiring.Tune in to hear how Clive's journey from despair to hope can inspire us all to live each day to its fullest.#Resilience #MentalHealth #InspirationalStories #Podcast #TheBlackCountryBlokes #OvercomingAdversity #CliveBranson #LifeLessons #PositiveMindset #Empathy #SelfCompassionSupport this show http://supporter.acast.com/bcb. Hosted on Acast. See acast.com/privacy for more information.

Christian nearly drowned while swimming in the sea in Italy as a child. He returned to the beach with his wife and child - only to find that Yuri, the man who saved his life, was still there. The two men tell us about their emotional reunion and the profound effect the experience has had on them. Also: The New York couple who found a safe full of cash, and get to keep it, thanks to the increasingly popular hobby of magnet fishing. We speak to Yazzy Chamberlain and her grandad John, whose duets of classic songs have earned them millions of online viewers -- including Coldplay. How the powers of nature are being used to help solve water shortages in Mexico City by cleaning polluted rivers. The skull of a giant prehistoric bird known as the demon duck has been found in Australia. And don't waste a moment - the final message from Rob Burrow, rugby league star and Motor Neurone Disease campaigner.Our weekly collection of happy news and positive stories from around the world.

In the news this week, after the death of rugby legend Rob Burrow, we explore the mechanisms of motor neurone disease with John Ealing from the Manchester MND Care Centre. Also, we hear from Alexander Forse at the University of Cambridge who has helped to develop a carbon sponge which can suck CO2 out of the atmosphere, and Inga Kamp from the university of Groningen explains why a new finding from the JWST could reveal the secrets of how Earth-like planets form. Plus, the intriguing story of a non-drinker who couldn't stop getting drunk... Like this podcast? Please help us by supporting the Naked Scientists

Former team-mate Sam Burgess and Daryl Powell, the coach who gave Rob Burrow his first start in Super League, lead tributes to the Leeds Rhinos Legend who died on Sunday. They reflect on his amazing achievements as a player and his drive to raise awareness of Motor Neurone Disease after his diagnosis in December 2019. The Wigan coach Matt Peet describes the impact Burrow had on the whole of Rugby League and how Saturday's Challenge Cup Finals Day provides the perfect platform for people to pay their respects. Players and personalities involved in the Men's and Women's Finals and the 1895 Cup Final look ahead to the matches on what will be an emotional day under the Wembley arch.

Rugby league legend Kevin Sinfield talks to Eddie Hearn about being a father, coach and charity ambassador. They discuss how raising money and awareness for Motor Neurone Disease has been the most fulfilling work he's ever done and how it's changed him as a person.He learned early in his career that he relied on the team to do well and the way to get the best out of those around him was to try and support them. He played rugby league for England and Great Britain and captained Leeds Rhinos to seven Super League championships and two Challenge Cup wins.Kevin has taken the sense of camaraderie from team sport in to retirement taking on astonishing challenges to support one of his best friends and fellow Leeds player Rob Burrow who has MND. Whether it's running seven marathons in seven days from Glasgow to Manchester, or seven marathons in seven days in seven cities he's raised millions of pounds along the way.“The best thing when I look back is not the money, it's not the trophies, it's the friendships and the memories I've got. And I do know that if I fell on some difficult times there'd be some people I played alongside for a number of years... would be there for me and I don't think you can put a price on that.”

Dr. Jenna Gregory, Principal Investigator for this study which was led by the University of Aberdeen

In this episode, Katy interviews Björn Vahsen to discuss his ongoing research on Motor neurone disease using iPSCs to co-culture microglia and motor neurons.

Sharon was surprised to discover her father had taken a turn. John was waiting on a delivery and got fooled by a text. Rhys and Stuart are waiting to be repaid by Niall Minogue. Peter is still waiting for the ashes of his late dog to arrive. Margaret's daughter, Sharon, got an unexpected diagnosis of MND.

Damian shares one of his favourite episodes, an honest conversation about life and death with Lindsey Burrow. Lindsey is the wife of former professional rugby player Rob Burrow. In 2019, Rob was diagnosed with Motor Neurone Disease. Lindsey cares for Rob full time, whilst looking after their children and working as a physiotherapist for the NHS. This was a very powerful episode and many of the lessons Lindsey shared have stayed with Damian since. He goes through these lessons with Jake, detailing how her outlook has inspired and transformed how he takes on life challenges.Listen to the full episode with Lindsey here: https://pod.fo/e/149343 Hosted on Acast. See acast.com/privacy for more information.

On today's show, Dr. Tanveer Ahmed discusses Australia Day, the reasons for increased criticism this year, and whether society has become less appreciative. Later, Jane Simpson discusses Motor Neurone Disease. GUEST 1 OVERVIEW: Dr. Tanveer Ahmed is a psychiatrist and author. He practices in both private and public settings, including the Hills Clinic and Bankstown Community Health. He also conducts forensic assessments in correctional facilities. Dr. Ahmed has authored two books, "The Exotic Rissole" and "Fragile Nation." He has held various roles in the media, both in print and broadcast, and has served on multiple boards and held elected office. He resides in Sydney, Australia, with his wife and two daughters. For more information, visit http://www.tanveerahmed.com.au/ or follow him on Twitter/X: @drtahmed. GUEST 2 OVERVIEW: Jane Simpson is a member of the MND Collective Board of MND Australia, the national peak body for organizations supporting individuals affected by Motor Neurone Disease. With two decades of experience, she has worked with Australian and global corporations to identify opportunities for improvement within their policies and procedures. Jane founded her own business and was recognized as Xero's Best Small Australian business in 2019. For further details, visit https://www.mndaustralia.org.au/.

This episode covers motor neurone disease.Written notes can be found at https://zerotofinals.com/medicine/neurology/mnd/ or in the neurology section of the 2nd edition of the Zero to Finals medicine book.The audio in the episode was expertly edited by Harry Watchman.

Sandy Brown is a guidebook author, a musician, a pastor and a pilgrim. He's also had to deal with being diagnosed with Motor Neurone Disease. You'll be amazed by Sandy's insight....and inspired by his ability to rise above the challenges he's facing, to be the community leader, family man, pilgrim guide, and loving father and husband. You can find Sandy here....https://sandybrownbooks.com/

Facebook has removed an advert for a sanitary towel product because it referenced the words Vagina, Vulva and Clitoris. It's the latest in a long line of period ads that have caused a stir. So what is and isn't appropriate when it comes to period adverts? Chella Quint, the founder of Period Positive, a menstruation education advisor and author and Alice Enders, Director of Research at Enders Analysis discuss. The rescue efforts are continuing in Ukraine after Tuesday's breach of the Kakhovka dam. Thirty communities along the Dnipro river have been flooded according to officials. Now the Red Cross has raised concerns that land-mines have been dislodged in the flooding. Kate Zhuzha is from Nova Kakhovka where the dam has collapsed and is the Founder of NGO Union of Help to Kherson in touch with people in the flooded areas. She tells us about the latest reports. Last month we looked at the experience of caring with authors Emily Kenway and Lynne Tillman. So many of you got in touch including academic Dinah Roe, a Reader in nineteenth-century literature, who with poet Sarah Hesketh, managing editor of Modern Poetry In Translation have been running a series of free online workshops, inspired by Christina Rossetti's writing, designed specifically for people with caring responsibilities. Dinah and Sarah discuss the power of writing poetry. Four-time Grammy award nominated singer Candi Staton has moved between several musical genres during of the course of her celebrated career – from soul, R&B, gospel and disco. She discusses her iconic tracks such as the multi-platinum “You Got the Love” and the singalong anthem “Young Hearts Run Free”. It has recently been remixed by UK producer Benji La Vida and has had more than 2.4 million streams on Spotify alone, and there are 60,000 TikTok reels of people doing a dance challenge to the song No single person can take credit for the huge boom in women's football but if anyone can it's the woman who placed second on the Woman's Hour Power List, Baroness Sue Campbell. The Director of Women's Football at the FA tells us about the Lionesses legacy, the upcoming World Cup and the future of the Women's Super League. Since his diagnosis in 2019, rugby league star Rob Burrow has been battling Motor Neurone Disease, with wife Lindsey by his side. Lindsay tells us about her first marathon and has raised over £100,000 towards a specialist Motor Neurone Disease Centre to be built in his name. A new ITV documentary, Lindsey and Rob: Living with MND, follows Lindsey as she navigates marathon training alongside working and family life, whilst also exploring the wider impact of this disease. Presenter: Krupa Padhy Producer: Rabeka Nurmahomed