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In this episode, Sarita is joined by Jenifer Waldrop, Executive Director of the Rare Disease Diversity Coalition (RDDC), to discuss the Inequities in the Rare Disease Community Report completed in partnership with the National Organization for Rare Disorders (NORD).This research involved over 2,800 participants and sheds light on the barriers faced by underrepresented patients with rare diseases. Tune in as we delve into this groundbreaking national survey, while offering critical insights into healthcare access challenges.Learn more about RDDC and NORD:RDDC at rarediseasediversity.org NORD at rarediseases.org
In advance of the BC provincial election, Community Reporter Carol Yaple tells us about new accessible advanced options for casting your ballot. Topic 1 Bard on the BeachDate and Time: August 31 and September 7 at 2PM Location: Vanier Park Topic 2 Elections BC Advance and Accessible Voting OpportunitiesDate and Time: August 22 to October 18Location: elections.bc.ca or phone: 800 661 8683 Topic 3 CNIB's Accessible Pedestrian Signals Letter Writing CampaignDate and Time: Ongoing through 2024Location: Online, national
London Community Reporter Annette Denis tells us about Apple Land Station, where you can get in the fall spirit and take a train ride through an apple orchard. Topic 1 Apple Land Station FarmDate and Time: Fall activities Labour day until Oct 31. Location: 329 Richmond Street, Thorndale, Ontario Topic 2 Elevate Music FestivalDate and Time: Saturday, September 7 from 4 – 11 PM Location: Covent Garden Market
Reconstruction efforts on the Harbour Passage Trail in St John have failed to make the route more accessible for wheelchair users. Marisa Hersey-Misner has the details on our Community Report. Some big news for Market Slip Topic 1: CNIB Annual Kingsbrae Garden EventDate and time: Thursday September 12, 8 AM departure Location: Picking up from Moncton and St. John.RSVP no later than 4:00 PM on Thursday, August 29th, by contacting Caroline at 506-377-6775 or by email at caroline.leblance@cnib.ca
Instructors say the demand for academic accommodations has surged and is becoming a strain on university resources. We discuss that story and more with Grant Hardy on Trending Headlines. Greg David tells us about the Apple TV Plus series, Time Bandits, based on the movie from the 1980s. My Mom is Not A Superhero is a story of disability, invisible illness, and family support. We welcome Author Darcie Naslund to share more about her book, and why she took on the project. Reconstruction efforts on the Harbour Passage Trail in St John have failed to make the route more accessible for wheelchair users. Marisa Hersey-Misner has the details on our Community Report. On the heels of the 2024 Paris Games, audio describer JJ Hunt takes us on a tour of Greece in the nineties, where he ran the track at the original Olympic stadium in Olympia. Whether it's for business or pleasure, travelling with a disability can be difficult. We discuss the challenges of accessible travel with Atyzi.com co-founders Aaron Busch and Josh Werner.
Community Reporter Toni Freimark tells us about a community chat in Medicine Hat where people who are blind and partially sighted can share experiences and have fun. Topic 1: CNIB Medicine Hat Community ChatDate and Time: Every second Wednesday 1 to 3PM Location: Medicine Hat Public Library Contact: dayna.fox@cnib.ca or 780-566-8507 Topic 2: Canada BusTopic 3: Medicine Hat 5 Pin Bowling LeagueDate and Time: Wednesdays from September 18 2024 – June 2025Location: Panorama Lanes
Montreal Community Reporter Mathieu Rochette tells us about a pilot project happening from now until October which will allow people with disabilities to order on demand transportation at no additional cost.
Winnipeg Community Reporter Vic Pereira tells us about a multicultural festival where you can take a trip around the world without needing a passport. Topic 1 Dalnavert on DrugsLocation: Dalnavert Museum Date and Time: September 1, 1:30 – 2:30 Topic 2 53rd Annual Folklorama FestivalLocation: 183 Kennedy St. #2, WinnipegDate and time: August 4 – 17 Topic 3 New Water Bus at the Forks
Saint John's community reporter Kim Thistle tells us about High Steel, a play that explores a piece of St. John's history featuring music by the late musical legend Ron Hynes. Topic 1: The Van Gogh ExperienceLocation: St. John's Convention CentreDate and time: Until September 6 Topic 2: High Steel at Perchance Theatre Location: Perchance TheatreDate and time: Until the end of AugustTopic 3: Churchill Park Music Festival Location: Churchill Park Neighbourhood, St. John's Date and time: August 9 - 18
Ottawa Community reporter Kim Kilpatrick tells us about a new play with a pre-show touch and feel tour where blind and partially-sighted audience members can engage with costumes and characters. Topic 1: Odyssey TheatreLocation: Strathcona Park Date and time: August 16 – 18 Topic 2: Hidden Ottawa Secrets Walking Tour Location: Sparks Street, OttawaDate and time: through August Topic 3: How to beat the heat in Ottawa
Stephen Ricci got the chance to demo Glidance's new AI powered mobility device. He'll share his review on our Community Report.
A new pill aims to reduce the spread of STIs but is not available to everybody. Grant Hardy has more on Trending Headlines. On the entertainment report, Corinne Van Dusen tells us how you can eat, drink, and cheer on your nation's athletes if you happen to be stuck in Paris without Olympic tickets! A new blood test could catch 90% of early dementia cases. Laura Bain has the details on The Buzz. Stephen Ricci got the chance to demo Glidance's new AI powered mobility device. He'll share his review on our Community Report. Some US states are taking steps to help people with disabilities living in Independent living centres prepare for extreme weather events. We learn more with journalist Julia Metraux. The Evac Chair was designed to help people with disabilities escape dangerous situations in emergencies. We speak with Evac Chair Canada Vice President, Steve Agisnaga to find out more.
On our community report, we discover Medicine Hat's scenic trails from a trishaw with Tony Freimark, plus how local men are making a difference at Men's Sheds Alberta. Topic 1: Trishaw Adventures in Medicine HatLocation: Medicine Hat Email: CWAmedhat@gmail.com Phone: 403-527-8755 Links: Article from CHAT NewsFacebook post Topic 2: Men's Sheds AlbertaDate & Time: Mondays, 11:00 AM Location: Veiner Centre - Boardroom, Medicine Hat Email: mensshedMH@gmail.com Phone: 587-535-6336 Links:Alberta Men's Sheds website Topic 3: ASRAB Summer Programs in Grande PrairieDates & Times: Daytime Walking Club: Tuesdays, 10:00 AM 11:00 AMEvening Walking Club: Sundays, 6:00 PM 7:00 PM Mini Golf: Wednesdays, 11:00 AM 1:00 PM Bowling 10 Pin: Fridays, 5:30 PM 7:00 PM Locations: Muskoseepi Park Mini Links Mini Golf Bowling Stones Contact: Email: program.gp@asrab.ab.ca Facebook page
Community Reporter Annette Denis tells us about next weekend's Canadian Raptor Show featuring free flight birds of prey in London, Ontario. Museum of London Walking ToursLocation: Museum London 421 Ridout Street North, London, ONCost: $15/person Dates: Various dates from August 1st to Sept 28thContact: 519 661 0333Links: Museum of London ProgramsMuseum of London on Facebook Topic 2: Canadian Raptor Conservancy ShowLocation: Fanshawe Conservation Area – 1424 Clarke Road, at the Rec Field/ShelterDate: Saturday, August 3 @ 4 PMContact: 519 951 6181 Topic 3: Home County Summer CelebrationDate: Saturday, August 24Location: London Brewing @ 521 Burbrook Place, LondonLinks:Home CountyHome County Festival on Facebook
Vic Pereira shares some must-see highlights for Winnipeg's upcoming Fringe Fest including “Captain Ted: Disabled Pirate”, a new comedy by the Strokes of Genius. Winnipeg Fringe FestivalStrokes of Genius from Winnipeg, MB presents Captain Ted: Disabled Pirate by Mitch KrohnDate & Time: July 17 to July 28Location: Venue 23 - One88, 188 Princess St. (2nd Floor), Winnipeg, MBContact: Mitch Krohn/Dianna RasingEmail: info@winnipegfringe.comPhone: 9-4-FRINGE (204 943 7464) Summer Entertainment SeriesDate & Time: Thursdays and Sundays 7:00 PM to 9:00 PMLocation: Assiniboine Park, Winnipeg, MBContact: Assiniboine Park ConservancyEmail: info@assiniboinepark.ca
St. John's Paddle in Paradise Festival is hosted this year by Kim Thistle's Avalon Dragons; a team of women who survived breast cancer. She shares more on Tuesday's Community Report. St. John's Regatta:Date & Time: Wednesday, August 7, 8 AM - 8 PMLocation: Quidi Vidi Lake, next to CNIB BuildingLink: http://www.stjohnsregatta.ca Paddle In Paradise Festival:Date & Time: Saturday, August 17, 8 AM - 6 PMLocation: Octagon Pond, ParadiseLink: http://www.avalondragons.com Billy Idol: Rebel Yell 2024Date & Time: Sunday, August 25Location: Mary Brown's Centre, St. John'sLink: http://www.mbcentre.ca
In a surprising new venture, Dr. Danielle Jongkind has taken on thousands of new clients. She tells us more about caring for a honeybee colony on Ask-a-Vet! If you love the snacking but not the baking, you're in good company. Nutritionist Julia Karantjas shares her favourite cookie recipes that use just three ingredients! Canadian music correspondent Eric Alper shares his advice for musicians with disabilities looking to break into the entertainment industry. St. John's Paddle in Paradise Festival is hosted this year by Kim Thistle's Avalon Dragons; a team of women who survived breast cancer. She shares more on Tuesday's Community Report. Writer Yang Wang shares what she learned about organic farming during a group outing in St. Catherines, Ontario. Our Producer Matt Agnew recently returned from a family vacation to Walt Disney World. He stops in to share some of the unique accessibility features that caught his attention while touring the parks.
Ottawa's Accessibility Advisory Committee has expressed concerns over the cities e-scooter program. Community Reporter Kim Kilpatrick has the details. Company of Fools Pre-Show Touch Tours for MacbethDate & Time: Saturday, July 20Location: Beechwood CemeteryEmail: accessibleartsottawa@gmail.com Paper making workshop at Ottawa Art GalleryDate & Time: July 27 and August 10Time: 1-4 PMLocation: Ottawa Art GalleryContact: Kim KilpatrickEmail: accessibleartsottawa@gmail.com
Accessibility Standards Canada and the government of Alberta are enhancing their collaboration on the development of accessibility standards. Mark Workman has the details in our Community Report.
As Canada debates the proposed Online Harms Act, many are voicing concerns about enforcement and the potential cost to freedom of speech. Mark Phoenix has that story and more on Trending Headlines. Greg David joins us to talk about some of the hottest films and TV shows to stream including Beverly Hills Cop: Axel F and a new music documentary titled Love to Hate: Nickleback. As part of an important verdict, India's Supreme Court issued a framework for the portrayal of people with disabilities. Laura Bain shares the details on The Buzz. Accessibility Standards Canada and the government of Alberta are enhancing their collaboration on the development of accessibility standards. Mark Workman has the details in our Community Report. We revisit a conversation with Thrive Director Angela Crockwell and our very own Kim Thistle about their calendar fundraiser designed to empower women in their community. You might think business books are full of charts and technical jargon, but Kevin Shaw says entrepreneurship starts with a great story. He shares an exciting business book to put at the top of your summer reading list.
Laura Bain brings us the latest news and events from Halifax, Nova Scotia, including Disability Without Poverty's Better the Benefit Campaign. Disability Without PovertyHalifax Jazz FestivalHalifax Pride Parade
Montreal Community Reporter Mathieu Rochette highlights the Monique Truquet Prize, an international news competition for Francophone people with visual disabilities, offering winners a chance to have their work published in accessible formats. Helpline Pilot Project. Contact: SAT at 450-463-1710, extension 159444, or AEO at 450-463-1710, extension 159216.The Monique Truquet Prize, A Quality International News Competition for Francophone People with Visual Disabilities
There is something for everyone during the Medicine Hat, Alberta stampede taking place in late July. Community Reporter Toni Freimark highlights the parade and all the fun activities surrounding it. Medicine Hat Exhibition & StampedeBooth 6 Podcast from the International Blind Cafe 18+
We visit Marisa Hersey-Misner in Saint John, New Brunswick where their Canada Day Celebration is kicking of a host of summer events and festivals. Place Fort La TourUptown Saint John July eventsAREA 506
Vancouver's Folk Fest is one of the city's most beloved community gatherings, hosting musicians from Vancouver and around the world. Community Reporter Carol Yaple tells us more. HISTORICAL RECORDS—AUDIO EXHIBITION AT THE POLYGON GALLERYVANCOUVER FOLK FESTIVAL WITH AT SPECIAL ACCESSIBILITY PRICE. REGISTER: info@vocaleye.ca or call 604.364.5949.TRUTH TELLING” PODCAST WITH WRITER/LAWYER MICHELLE GOOD
Winnipeg Community Reporter Vic Pereira tells us how to grab tickets for Ma-buhay; a modern heartwarming Filipino pop-musical for the whole family.
Community Reporter Kim Thistle tells us about some upcoming events to enjoy this summer, including the 48th annual Newfoundland Folk Festival! Banished BrewingBanished Fest 2024 on InstagramNewfoundland and Labrador Folk Arts SocietySt. John's Pride Parade
Ottawa Community Reporter Kim Kilpatrick tells us about Ottawa's four year Municipal Accessibility Plan and how you can get involved with community consultations.
Read by the SeaLove Local Concert SeriesAccessible equipment through Pictou County Parks and Rec
The CCB Toronto Visionaries Chapter and Repair Café Toronto are teaming up to help repair your assistive tech; everything from braille watches and readers to digital magnifiers and more! Community Reporter Stephen Ricci has the details.
Community Reporter Toni Freimark brings us the latest news and events from Alberta, including what's on offer during the CNIB's Mobile Hub tour through Medicine Hat and Taber.
Community Reporter Kim Kilpatrick brings us the highlights from Ottawa's emergency preparedness info session for people with disabilities.
We travel to the east coast for part two of our Community Reporter double feature, where Kim Thistle tells us how to grab tickets for a described performance of the political satire, Tamasha-O-Tamasha.
A multitude of free heritage events are returning to Manitoba this month. Community Reporter Vic Pereira tells us more about the Doors Open Winnipeg event and how you can celebrate the stories their buildings tell.
Avid gardeners will be flocking to nursery centers over the Victoria Day long weekend. Susan Kerney shares her advice to transplant your plant babies to their new garden beds smoothly. Android users' favourite feature comes to iOS. Tech Expert John Biehler gives us the details on the versatile circle search function on our weekly App Update. A San Antonio theme park is boasting of more than 25 ultra-accessible rides for thrill seekers with every type of access need. Laura Bain has the details on The Buzz. Paralympic hopeful Reid Maxwell shattered his own 400-meter freestyle record in front of the packed Pan Am Centre on Wednesday. Sports Reporter Brock Richardson tells us how hosting the Olympic and Paralympic trials together could mean more attention for the Paralympics this year. Community Reporter Julie Marten brings us the latest news and events from Pictou County, Nova Scotia, including a First Aid and CPR courses available from the local CNIB. We cap off our Friday show by revisiting a few highlight conversations from the past week including the burden of a bad bra, the real cost of an accessible taxi fleet, and a call for greater inclusion of the facial differences community.
Community Reporter Julie Marten brings us the latest news and events from Pictou County, Nova Scotia, including a First Aid and CPR courses available from the local CNIB.
Community Reporter, Marc Workman, reflects on the Alberta Ombudsman's recent report titled “Denied by Design” which criticizes the use of IQ scores in eligibility assessment for disability supports.
Technicians are busy repairing wildfire damage to a critical fiber line that brings telcom service to Northern Canada. Kim Hovey reports in on how the community is coping with the communications and emergency services outage as they get reconnected.
May is Vision Health Month in Canada. To celebrate, The Toronto Visionaries is hosting the White Cane Week Experience Expo, the Visionaries Forum, and a celebratory dinner. We get the details on our Toronto Community Report, with Stephen Ricci.
Strains of Avion Influenza have been found in dairy cows in the United States. Is this a concern? Dr. Danielle Jongkind recaps the bird flu, and tackles the latest news on the situation. Most people do not eat enough fiber on a daily basis. Nutritionist Julia Karantjas shares how we can get in our daily fibre, with examples of the right foods to have, and how much to have of those foods. Common Thread Community Chorus of Toronto is a social justice choir and their upcoming 25th Anniversary concert takes place May 25th in Toronto. We'll learn more with Board Member Marcia Yale and Conductor Isabel Bernaus. Calgary's Get on Board Campaign is looking for volunteers from the blind, deafblind, and partially sighted community, to help outline the barriers to local public transit. We learn more on our Community Report with Toni Freimark. What's the job market looking like for new graduates and entry-level employees? National Director Michael French tells us on our Robert Half update. Teaching children to learn through tactile exploration requires repetition, among various other techniques. We deep dive into this topic with Lucia Bellafante, on our Parenting chat.
Calgary's Get on Board Campaign is looking for volunteers from the blind, deafblind, and partially sighted community, to help outline the barriers to local public transit. We learn more on our Community Report with Toni Freimark.
The Cromwell Museum is home to the best collection of items relating to Oliver Cromwell, with arms and armour, personal items, and more. We hear more about this space on our Eastern Ontario Community Report, with Annette Dennis.
The Musée des fine arts of Montreal invites blind and partially sighted individuals to participate in a study on accessibility to the museum. We learn more on our Community Report with Mathieu Rochette.
We're joined by Jennifer Bawden, Senior Manager for New Galleries & Research at the TELUS World of Science Edmonton, to discuss what's happening at the Science Centre, including their upcoming 40th Anniversary celebrations. the Writers Guild of Canada has voted 96 per cent to strike. What could this mean for new and returning scripted Canadian TV shows? Greg David highlights what the writers are seeking, what they want curbed,, and when a strike could happen. A High School in the Greater Toronto Area, where students have faced a string of substitutes throughout the semester, has come up with an interesting solution for delivering mid-term marks. We find out more on The Buzz, with Laura Bain. The Musée des fine arts of Montreal invites blind and partially sighted individuals to participate in a study on accessibility to the museum. We learn more on our Community Report with Mathieu Rochette. Planning a trip?The most important item to pack is Travel Medical Insurance. Let's talk travel Insurance on our Finance chat with Ryan Chin. British Columbia has reversed course on its drug decriminalization after backlash. Grant Hardy has more on Trending headlines.
Saint John, New Brunswick Advocates, be prepared to share your expertise and vision for the city's North End. Community Reporter Marisa Hersey-Misner shares how.
Power To Be is a Vancouver Island-based non-profit offering outdoor programs for all abilities. We learn more with Community Reporter Carol Yaple.
Cynthia and John are hosting a new episode this week with Lynda Anderson, Ph.D. Research Associate with the Institute of Community Integration at the University of Minnesota. The episode is dedicated to discussing the 2023 Community Report of Family & Individual Needs for Disability Supports. During the show, they will be reviewing the survey findings and discussing the impact of the research on the IDD community. Resources mentioned in the episode: Disability Scoop https://www.disabilityscoop.com/2024/01/22/caregiving-pressures-mount-for-families-of-those-with-idd/30703/ FINDS Community Report 2023 Want to share stories with us? Email us at Quillopod@myquillo.com To learn more about Quillo Connect visit MyQuillo.com
Wayne Stanley, Executive Director At The Simon Communities Of Ireland
Today you'll learn about a new blood test that's been developed to assess anxiety, what's really happening neurologically that causes “mommy brain”, and how a spy may be trying to contact you on Linkedin. Find episode transcripts here: https://curiosity-daily-4e53644e.simplecast.com/episodes/anxiety-blood-test-mommy-brain-linkedin-spyAnxiety Blood Test “New Blood Test Developed for Anxiety.” by Molly Campbell. 2023.https://www.technologynetworks.com/diagnostics/news/new-blood-test-developed-for-anxiety-370924“Towards precision medicine for anxiety disorders: objective assessment, risk prediction, pharmacogenomics, and repurposed drugs.” by K. Roseberry, et al. 2023.https://www.nature.com/articles/s41380-023-01998-0.epdf?sharing_token=A_OVn-2tf6gm60iaVPZdWdRgN0jAjWel9jnR3ZoTv0MyeujxVLAkzaxt_CaMLY7ZaRfpz9zAsO4tWHEF8YKxBLdDtmJkJRjAWo509jvwUBP5hijhPKQPxNuHjKsmH4tNQeZ0PMPrViLREnNhKOnJhhs24tbaOQChY251qZ_Qo9E%3D“Post-traumatic stress disorder.” Mayo Clinic. N.d.https://www.mayoclinic.org/diseases-conditions/post-traumatic-stress-disorder/symptoms-causes/syc-20355967Mommy Brain“‘Mommy brain' doesn't capture how the brain transforms during pregnancy.” by Aimee Cunningham. 2023.https://www.sciencenews.org/article/mommy-brain-transforms-pregnancy“Becoming a mother entails anatomical changes in the ventral striatum of the human brain that facilitate its responsiveness to offspring cues.” by Elseline Hoekzema, et al. 2019. .https://pubmed.ncbi.nlm.nih.gov/31757430/“Pregnancy and adolescence entail similar neuroanatomical adaptations: A comparative analysis of cerebral morphometric changes.” by Susanna Carmona, et al. 2019.https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6865685/“It's Time to Rebrand ‘Mommy Brain'.” by Clare McCormack, et al. 2023.https://jamanetwork.com/journals/jamaneurology/article-abstract/2801288Linkedin Spy“A Spy Wants to Connect With You on LinkedIn” by Jennifer Conrad and Matt Burgesshttps://www.wired.com/story/linkedin-fake-profiles-state-actors-scams/“OPERATION IN(TER)CEPTION: TARGETED ATTACKS AGAINST EUROPEAN AEROSPACE AND MILITARY COMPANIES” by Dominik Breitenbacher and Kaspars Otishttps://www.welivesecurity.com/wp-content/uploads/2020/06/ESET_Operation_Interception.pdf“Community Report” by LinkedIn Transparencyhttps://about.linkedin.com/transparency/community-reportFollow Curiosity Daily on your favorite podcast app to get smarter with Calli and Nate — for free! Still curious? Get exclusive science shows, nature documentaries, and more real-life entertainment on discovery+! Go to https://discoveryplus.com/curiosity to start your 7-day free trial. discovery+ is currently only available for US subscribers.