Podcasts about Idd

This week we're joined by Dr. Lauren Moskowitz, a clinical psychologist and researcher at St. John's University who studies something so many families know firsthand: the intersection of autism and anxiety. For many autistic children and teens, anxiety isn't just a side challenge. It can be one of the biggest barriers to daily life, school, friendships, and feeling like they belong. Dr. Moskowitz and her team have developed a therapy program specifically designed to treat anxiety and other mental health challenges in autistic individuals. Today we're getting into what that looks like and what families can do right now. Download latest episode to learn more!  Resources Mentioned in This Episode SPIRIT-ID/A Training Program (Drexel University/Lerner Lab) – An online CBT training program for mental health practitioners working with individuals with intellectual disability and autism, co-led by clinicians and autistic providers. lernerlab.com/spirit-ida.html SPIRIT-ID/A Research Program (A.J. Drexel Autism Institute) – Information on the research program behind SPIRIT-ID/A within Drexel's Life Course Outcomes research area. drexel.edu/autisminstitute/research/ResearchPrograminLifeCourseOutcomes/SPIRITIDA Facing Your Fears Program (JFK Partners, CU Anschutz) – A group CBT program for autistic youth with anxiety, with versions for clinic, school, and IDD populations, plus provider training options. medschool.cuanschutz.edu/jfk-partners/clinical-services/facing-your-fears-program UCLA META (Meya) Autism Intervention Lab – YouTube Channel – Videos from UCLA's autism intervention research lab. youtube.com/@uclameyaautismintervention1480/videos ............................................................... Autism weekly is now found on all of the major listening apps including apple podcasts, stitcher, Spotify, amazon music, and more. Subscribe to be notified when we post a new podcast. Autism weekly is produced by ABS Kids. ABS Kids is proud to provide diagnostic assessments and ABA therapy to children with developmental delays like Autism Spectrum Disorder. You can learn more about ABS Kids and the Autism Weekly podcast by visiting abskids.com.

In this week's episode, John and Cynthia go over some of the latest headlines about family caregiving and budget cuts impacting IDD families throughout the nation. John explains the history of family caregiving and all that goes into it for families, self-advocates, and the IDD community.  This episode is for everyone, whether you're a family caregiver, a provider, a policy advocate, or simply someone who believes that people with disabilities deserve to live, work, and thrive in their communities. Because as John reminds us, the question of family caregiving affects all of us, and will shape the future of disability support for the next 20 to 30 years. Episode Transcript  To learn more about MyQuillo visit MyQuillo.com Episode Transcript Want to share stories with us? Email us at Quillopod@myquillo.com To learn more about Quillo Connect visit MyQuillo.com

Dr. Matthew Kaufman discusses his journey as an emergency physician who recognized significant gaps in healthcare for people with intellectual and developmental disabilities (IDD), including lack of training, overreliance on emergency departments, and frequent unnecessary testing and hospitalizations. He explains how these challenges led to the creation of StationMD, a telemedicine service providing 24/7 access to specialized clinicians who can quickly assess patients, guide caregivers, and often resolve issues without ER visits—reportedly in over 90% of cases. The discussion highlights the importance of specialized training, better integration between healthcare and home support systems, and the role of simple, accessible technology in improving outcomes, increasing independence, and reducing costs. Kaufman emphasizes that empowering caregivers, improving provider education, and giving individuals with IDD more autonomy in their healthcare are key to achieving better, more equitable health outcomes.

Lindy Wood is the founder of Westonwood Ranch, a 10-acre working farm in the Florida Panhandle. When her son Weston was diagnosed with autism fifteen years ago, she realized a terrifying "services cliff" awaited him—and millions of others—the moment they transitioned into adulthood. Rather than letting her son fall, Lindy built an extraordinary hands-on community where teens and young adults with autism learn life-changing job and life skills. Today, the ranch has grown from serving just four individuals to a full-time program supporting 60 participants. In this episode, we discuss: The "Services Cliff": Why ending high school is a frightening reality for families. Growing the Vision: How Westonwood Ranch expanded to a full-time program serving 60 young adults. The Power of Small Milestones: Why learning to use a microwave became an emotional victory. A Crazy Good Turn: The incredible gift Lindy still has trouble processing. Chapters & Timed Links: [04:12] The Diagnosis: How a 2-year-old's diagnosis sparked a much larger, lifesaver vision. [07:45] The "Services Cliff": Why society stops providing resources just when those with IDD need them most. [12:30] Building Westonwood Ranch: How a 10-acre working farm went from serving four young adults to 60. [19:15] The Microwave Milestone: Why small achievements are massive emotional victories for families. [25:40] An Unbelievable Turn: Lindy shares a "crazy good" gift that changed everything for the ranch. [31:10] Finding Meaningful Work: Lessons on neurodiversity, inclusion, and the simple dignity of labor.   My Sincere Thanks Because of listeners like you, our show now ranks among the top 5% of most-downloaded podcasts by volume per month. Your support has helped take our little idea to celebrate generosity and good deeds and turn it into one of the most-listened-to podcasts available. Thank you for being part of a community that celebrates people who do good things for others. Please help us continue to grow by subscribing on your preferred podcast platform and sharing our show with friends.  

Just ahead of the 2026 Special Olympics USA Games in Minnesota, we discuss hearing health care for people with intellectual and developmental disabilities, or IDD.Along with competing in events like track and field, swimming, and basketball, many athletes work with volunteers to receive hearing screenings, among other types of health screenings through attending Special Olympics Healthy Athletes®.Listen to conversations with two audiologists—Denise Cardona Barnes, of Special Olympics International, and Eric McCabe, a volunteer clinical director in Minnesota.Learn More:An Audiologist Brings Healthy Hearing to Special OlympicsSupporting Care Partners of Adults With Dysphagia and IDDRecognizing National Public Health Week: A Collection of Articles, Podcasts, and ResourcesASHA Voices: Pediatric TBI—Transitioning from Hospital to SchoolASHA Voices: Overcoming Barriers on Families' Journey From NICU to HomeTranscript

Educator and curriculum designer Kathleen Chauffe specializes in creating training programs for adults with intellectual and developmental disabilities (IDD). She explains how her career evolved from a passion for teaching into developing practical, accessible curricula used in adult day programs, with a focus on employability and life-enrichment skills. Her work emphasizes making lessons easy for support staff to deliver, even without formal teaching backgrounds, while ensuring hands-on, engaging learning for participants. Chauffe highlights the success of her programs, such as improved engagement and retention among learners, and discusses ongoing efforts to modernize delivery through online tools. She concludes by sharing key insights: allowing extra time for responses, recognizing that individuals may understand more than they can express, and promoting inclusion through respectful, direct interaction with people with disabilities.

In this IDD Perspectives webinar the focus is on understanding why individuals with intellectual and developmental disabilities (IDD) may appear to be "not acting right," emphasizing that such behaviors are often signals of underlying issues rather than merely behavioral or psychiatric problems. Guest Dr. Matt Holder and host Craig Escudé highlight the importance of first ruling out medical causes such as pain, illness, infections, dental problems, medication side effects, or undiagnosed conditions, as these can be easily overlooked but have serious consequences. They also discuss environmental and social factors—such as life changes, lack of support, stress, or unmet needs—along with sensory sensitivities and psychological experiences like grief or trauma. A key message is that psychiatric diagnoses are frequently overused, leading to unnecessary medications and harmful side effects, when the real causes may lie elsewhere. The discussion stresses careful observation of patterns, person-centered care, better training for healthcare providers, and strong advocacy from caregivers to ensure individuals with IDD receive accurate diagnoses, appropriate care, and respectful treatment.

Beck Williers is a 23-year-old young man with an exciting life ahead of him. His transition into adulthood did not happen overnight but came through a journey of self-advocacy and community-building. Resilient from the day he was born, Beck and his family show what it takes to create a life full of endless possibilities and finding success through joy.

Kari (Carrie) Johnston and Jodie Marotz, leaders at New Horizons and the Human Service Agency in Watertown, South Dakota, discuss their careers and the wide range of supports they provide for people with intellectual and developmental disabilities (IDD), including group homes, community living, employment supports, day services, mental health care, substance use services, and crisis stabilization. They reflect on their professional journeys, emphasize the importance of training, listening, relationship‑building, trauma‑informed care, and helping people achieve independence, and acknowledge ongoing challenges such as staffing shortages and stigma. Throughout the conversation, they stress seeing people with disabilities as individuals first, remaining calm and compassionate, investing in staff education, encouraging community involvement, and recognizing both the progress made and the work still needed to improve equity, dignity, and quality of life for people with IDD.

Our guest this week is Mike Schugt of Orlando, FL, a former hotel and hospitality executive, founder of INNclusivity and fahter of two daughters. Mike and his x-wife are the proud parents of two young adult daughters.  After a successful career in the hospitality industry including senior roles at: Hyatt Regency, Hilton Hotels and Teneo Group, Mike has founded INNclusivity, a non-profit whose mission is: empowering adults with intellectual and developmental disabilities (IDD) to build meaningful careers in the hospitality industry by creating pathways to independence, purpose, and professional success.It's an inspring story about being a social entrepreneur, taking for-profit principles and bringing them to bear for the benfit of the community all on this episode of the SFN Dad to Dad Podcast.Show Notes -Phone – (407) 973-5253Email – mike@innclusivity.orgWebsite - https://innclusivity.org/Order your copy of the new 21CD book: Dads Raising Chidlren With Special Needs & Disabilities: A Guide For 21st Century Dads on Amazon: https://amzn.to/4tdvjcvJoin 21CD on the SFN U.S. Tour, a 30 day, 50 state, 60+ stop tour taking place from May 21 to June 21, 2026: to strengthen and grow the Special Fathers Network as well as give away 2,000 copies of our new book.  Special Fathers Network –SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: “I wish there was something like this when we first received our child's diagnosis. I felt so isolated.  There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through.”SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Join the SFN U.S. Tour in one of 60+ locations all across the U.S. from May 21st to June 21st.  Go to www.21stCenturyDads.org for additional informaiton. Please conisder hosting, co-hosting or simoly joining the tour near your home.  Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/  

Baturu Mboge: Baturu Mboge is a dynamic advocate for person-centered systems in the field of Intellectual and Developmental Disabilities (IDD). With a diverse career that began in community-driven initiatives across Africa, Mboge brings a unique blend of global and local insights. He has progressed from being a Direct Support Professional (DSP) to holding the position of Vice President of Learning and Development at Care Coordination Organization of New York. His work remains deeply rooted in values of empathy, co-creation, and the empowerment of individuals through systems that prioritize the voice and choices of those they serve.Episode Summary:In this enlightening episode of DSP Talk, host Asheley Blaise engages in an insightful conversation with Baturu Mboge, exploring the transformative potential of Appreciative Inquiry in the realm of person-centered care. Mboge shares his extensive experience in leveraging storytelling as a powerful tool to foster empathy and understanding, thereby creating inclusive communities where people thrive. Through discussions on themes such as collective empowerment, local leadership, and systems change, the episode delves into the impact of being deeply present and genuinely listening to the stories of individuals in the IDD field.Baturu Mboge, a seasoned advocate for person-centered practices, highlights the importance of co-creation in the quest for meaningful and lasting change within systems supporting individuals with IDD. His philosophical approach, influenced by the African concept of Ubuntu, emphasizes dignity and the interconnectedness of human experiences. Blaise and Mboge explore how shifting conversations from deficit-based frameworks to strength-based dialogues can reposition individuals as the authors of their own stories, significantly enhancing their participation in shaping service outcomes.Key Takeaways:Appreciative Inquiry as a Tool: Appreciative Inquiry creates spaces for individuals to share their stories, fostering understanding and empathy beyond traditional roles and titles.Co-Creation in Service Planning: Valuing lived experiences and engaging in genuine dialogue leads to more inclusive and effective person-centered support systems.Listening as an Act of Empowerment: Truly listening and involving individuals in decision-making processes transforms their role from service recipients to active co-creators of their lives.Notable Quotes:"Through storytelling, we come to know one another beyond our roles, titles, or levels." - Baturu Mboge"Co-creation begins when people's stories save the agenda, not just inform it." - Baturu Mboge"We are not there to ask what is wrong and how do we fix it. We are there to ask the person what do you want to do and how can I help?" - Baturu MbogeResources:Coordinated Care Alliance New YorkFor those interested in creating empowered, person-centered support systems, this episode of DSP Talk with Baturu Mboge offers thought-provoking insights and practical strategies. Tune in to explore how these transformational approaches can be integrated into everyday practice, and stay tuned for more enlightening episodes. Hosted on Acast. See acast.com/privacy for more information.

Jim Laughman is a behavioral health managed care leader whose work focuses on Medicaid populations, including people with intellectual and developmental disabilities (IDD), serious mental illness, and dual diagnoses. Laughman explains how his organization provides care coordination in states like New Jersey and Pennsylvania and shares that his career is deeply motivated by his personal experience as a sibling to a brother with IDD who faced long waitlists, limited services, and ultimately died young. Throughout the conversation, they discuss persistent disparities in health care access, life expectancy, and provider training for people with IDD, while also acknowledging meaningful progress in inclusivity, education, and preventive care. Laughman highlights the impact of programs like Special Olympics Healthy Athletes, emphasizes the importance of social determinants of health, prevention, proper funding, and provider education, and concludes with three guiding principles: address social determinants of health, continue advancing inclusivity across society with involvement from business and government, and treat people with disabilities with dignity and respect by following the golden rule.

Looking for work is tough for anyone, but for people with intellectual and developmental disabilities (IDD), the barriers can be even higher. This week on Pushing Limits, we take you inside the world of supported employment and the real impact it has on people's lives.  Jason (left) and Josh (right) Dominick Trevethan and Josh Elwood sit down with Jason Shaw, Director of Supported Employment and Josh's job coach at Clausen House in Oakland. Together, they talk about what Clausen House actually does, how job coaching works behind the scenes, and why meaningful employment can be life-changing with the help of Josh's lived experience as a person with an IDD.  What does it really take to help someone land — and keep — a job? What challenges still exist for people with IDD seeking employment? And what happens when the right support finally clicks? Tune in to find out.   Plus, join us as we celebrate an anniversary of the popular phrase “Inspiration Porn” with excerpts from Stella Young's famous TED talk explaining the term.  This program is hosted by Dominick Trevethan. It was produced and edited by Josh Elwood, Adrienne Lauby, and Dominick Trevethan. Recording assistance provided by Denny Daughters.  The post Clausen House & The Job Coach Connection – Pushing Limits – April 24, 2026 appeared first on KPFA.

In this episode, Dr Ed Miller is joined by our associate trainee editor, Dr Yoon Kwon Choi, and his previous supervisor, Dr Melanie Johnston, to explore the experience of working at Queensland of Centre Excellence in Intellectual Disability and Autism Health (QCEIDAH). Yoon's perspective is narrated through the lens of being 'within and without', quote borrowed from The Great Gatsby, which helped him navigate the unique complexities and system challenges inherent to IDD psychiatry work.

Shannon McClure, InCommunity, on Supporting Adults with Intellectual and Developmental Disabilities in Metro Atlanta (North Fulton Business Radio, Episode 952) In this episode of North Fulton Business Radio, host John Ray welcomes Shannon McClure, Chief Development Officer at InCommunity, a nonprofit serving adults with intellectual and developmental disabilities (IDD) and their families across Metro Atlanta. Founded […]

Sheli Reynolds, a longtime professional and family advocate in the field of intellectual and developmental disabilities (IDD), discusses her work at a University Center for Excellence in Developmental Disabilities and the creation of the Charting the LifeCourse Framework. Drawing on both her professional experience and her role as a sibling of a person with a developmental disability, Reynolds explains how the framework was designed to help individuals with IDD and their families plan for a meaningful life across the lifespan using plain language, high expectations, and a broad view of supports beyond paid services. She describes how LifeCourse is used nationwide by families, self‑advocates, schools, service systems, and state agencies to support person‑ and family‑centered thinking, and emphasizes the importance of seeing people with disabilities as whole persons, involving self‑advocates directly in professional learning, and supporting families without pity while promoting dignity, choice, and health equity.

This interview features Dr. Jonathan Smith, who discusses the launch of a new, mission‑driven health center under Mercer University focused on providing comprehensive, integrated care for adults with intellectual and developmental disabilities (IDD) in Georgia. Dr. Smith explains that the center aims to address longstanding health disparities through coordinated, under‑one‑roof services—including primary care, behavioral health, therapies, dentistry, pharmacy, and diagnostics—while also serving as an educational hub to better train medical students and community clinicians in IDD care. Influenced by both his medical background and his personal experience as a parent of a child with Down syndrome, Dr. Smith emphasizes three key priorities for improving outcomes for people with IDD: stronger coordination of care across systems, reducing barriers within insurance and waiver programs, and reforming medical education to include IDD care earlier and more meaningfully, with the ultimate goal of improving health equity, patient experience, and long‑term outcomes. https://medicine.mercer.edu/idd-care/

This weekend's 1 in 31: Autism Today guest is Dr. Deven Unadkat DO, MPA, FACEP. Dr. Unadkat is the President & Chief Medical Officer of StationMD. He is also a board-certified emergency physician, recognized physician leader, and a founding partner at StationMD. He has practiced clinically over the past 18 years in large academic centers, community hospitals, free standing emergency centers, and has been delivering care via telehealth to patients with intellectual and developmental disabilities (I/DD) throughout the country. StationMD's mission is to provide the highest quality of medical care for individuals with I/DD, fostering independence and improving quality of life for our patients and those providing their care. Tune in or learn more at https://stationmd.com/

You might have heard the term "natural supports" in meetings or in IDD spaces — but what does it actually mean in everyday life? In this episode, Cynthia and John break down the concept of natural supports: what they are, where the term comes from, and why they matter for people with IDD and their families. Together, they explore how finding your "village" starts with one simple question: What brings you joy? To learn more about MyQuillo visit MyQuillo.com  Episode Transcript  Want to share stories with us? Email us at Quillopod@myquillo.com To learn more about Quillo Connect visit MyQuillo.com

Brad Turner, Commissioner of the Tennessee Department of Disabilities and Aging, discusses how his personal experience as a parent of a daughter with cerebral palsy shapes his leadership and commitment to improving supports for people with intellectual and developmental disabilities (IDD). He highlights Tennessee's innovations, including extending early intervention services to age five, the Medicaid Alternative Pathways (MAPs) program promoting independence through technology, and the development of statewide Innovation Centers to expand assistive and enabling technologies. Turner emphasizes the need for inclusive, person‑centered systems, better mental health support for people with IDD, and addressing workforce and housing challenges. He also stresses the importance of broader advocacy, community integration, and ensuring people with disabilities have not only a seat and a voice at the table, but true belonging where their voices are genuinely heard.

In this episode, we're joined by Abby Morris, Executive Director of The Arc Lancaster Lebanon, an organization dedicated to empowering people with intellectual and developmental disabilities and autism — alongside their families — to lead full and independent lives of their own choosing. Abby shares how The Arc works to ensure that individuals with disabilities are recognized for their equal worth and included as valued members of the community. We discuss the importance of challenging stigma, breaking down barriers to inclusion, and creating environments where people with IDD and autism can thrive. Abby also highlights the organization's guiding values—being impartial, inclusive, and informed — and how those principles shape advocacy, support, and community engagement across Lancaster and Lebanon.???? Connect with Abby Morris: ✅ Websites: https://www.thearclancleb.org/ ✅ Facebook: https://www.facebook.com/TheArcOfLancasterCounty/ ✅ LinkedIn: https://www.linkedin.com/company/arc-lancaster-lebanon/ ✅ Instagram: https://www.instagram.com/explore/locations/23799788715/the-arc-lancaster-lebanon-pa Thank you for watching Lancaster Connects! This is the show about small business and small charity success in Lancaster county - we showcase the battle on Main Street, big vs. small David vs Goliath, and bring you the best of what makes Lancaster so great. ???? Want to create live streams like this? Check out StreamYard: https://StreamYard.CastAhead.net ➡️ Get your FREE copy of Ben McClure and Jeff Giagnocavo's book - "Sleep Better" https://gardnersmattressandmore.com/sleep-betterLIVE SHOW PODCAST & REPLAYS: ???? Connect with Lancaster Connects:✅ Official: https://lancasterconnects.com/ ✅ YouTube: https://www.youtube.com/@LancasterConnects ✅ LinkedIn: https://www.linkedin.com/company/lancaster-connects✅ Facebook: https://www.facebook.com/LancasterConnectsLancaster Connects is produced by Chris Stone at Cast Ahead:  https://CastAhead.net 

The term “neurodiversity” (or “neurodivergent”) pops up everywhere these days! And, within the disability world, we interact with so many labels to describe people, oftentimes medical terminology and diagnoses. But, what happens when a label comes from lived experience and community opinion, rather than the medical system?

Associate Director of Public Policy at First Place AZ, Josh Muñoz discusses his work supporting people with intellectual and developmental disabilities (IDD) through independent living, tailored supports, and intentional community integration. He shares his journey from studying psychology to working in applied behavior analysis (ABA), supporting individuals with high support needs, and eventually moving into systems-level policy work focused on improving outcomes for people with IDD. Josh emphasizes the importance of consumer‑controlled housing, employment support, community life, early inclusion of neurotypical and neurodiverse children, and addressing social determinants of health—such as housing, transportation, and community connection—to reduce health disparities. He highlights concerns about future Medicaid cuts, the need for accessible voting, and the critical role of friendship and community in reducing isolation and improving quality of life for people with IDD.

In this episode Ley Linder discusses his work supporting people with intellectual and developmental disabilities (IDD). Linder emphasizes that challenging behaviors are often rooted in medical issues, environmental stressors, lack of choice, or learned patterns—not simply characteristics of disability. He describes a holistic, interdisciplinary approach to behavior analysis that considers medical, psychological, and social factors, especially the importance of identifying untreated health conditions and avoiding diagnostic overshadowing. The conversation highlights how living environments, limited autonomy, and unmet sensory or emotional needs influence behavior, and how respectful human connection—including appropriate touch—can improve outcomes. Linder and the host also reflect on the meaningful, continually evolving nature of their work and share "three things in three minutes" to improve health equity for people with IDD: fighting diagnostic overshadowing, using a biopsychosocial model, and valuing the power of touch.

Landmark Difference Makers Interview Series: Brian and Mariana Steelsmith – United RocksWe're honored to speak with Brian and Mariana Steelsmith, founders of United Rocks—a nonprofit that's redefining inclusion, confidence, and community through the unlikely vehicle of indoor rock climbing.What began as a way to support their son Jake has grown into a nationwide movement that empowers individuals with intellectual and developmental disabilities (IDD) to build strength, self-esteem, and connection—one climb at a time. The Steelsmiths are not just creating athletes—they're cultivating leaders, shifting paradigms, and building a world where everyone is recognized for their unique greatness.Join us as we explore their journey, their mission, and the difference they're making—on and off the wall.United Rocks: https://unitedrocks.org/

The ANCOR Foundation launched the Leadership Academy on May 1, 2017 to nurture emerging leaders who are building their careers in services and supports for people with disabilities. Over the course of two years, the Foundation provides training and mentoring opportunities to support mid-career professionals in cultivating their areas of expertise and thought-leadership to build influence and reputation in the national I/DD community as the next generation of leaders.In this episode you'll hear from three graduates of the program, Rachel Fuller (Skills, Inc.), Liz Armentrout (Systems Unlimited), and Jordan Eddings (LikeSkills, Inc.). They'll discuss what drew them to the opportunity, their experiences, learnings and challenges during the program, the camaraderie built with others in their class, and so much more.Listen to how the council aims to help us collectively raise our voices in the worldwide human rights movement in support of people with I/DD!=================This podcast is produced by ANCOR, the leading voice in Washington, DC, for providers of services for people with disabilities. Views expressed during the podcast do not necessarily reflect the position of ANCOR.To learn more, visit ⁠⁠⁠⁠⁠⁠⁠⁠ancor.org⁠⁠⁠⁠⁠⁠⁠⁠.=================Intro and outro music provided by YouTube Audio Library Intro Music ⓒ V for Victory - Audionautix Outro Music ⓒ Dirt Rhodes - Kevin MacLeod

Dr. Rachael Sweeney and Dr. Amy Curtis from Auburn University's College of Nursing, discuss their work improving health care education for people with intellectual and developmental disabilities (IDD). They describe the lack of training nurses typically receive in communicating with and caring for individuals with IDD, sharing personal experiences that motivated their advocacy. To address this gap, they integrated IDD‑focused curriculum across undergraduate through doctoral nursing programs and partnered with community organizations for hands‑on clinical exposure. They also introduced "Gwen," a highly realistic pediatric simulation mannequin with Down syndrome, to help students practice communication, assessment, and compassionate care. Their efforts aim to reduce stigma, improve patient outcomes, promote interdisciplinary understanding, and inspire future providers to treat people with IDD with empathy, dignity, and individualized care.

In today's episode, I chat with Mandy Hinson from St John's Community Services about the services provided by the organization, as well as the as a budding new project called " The Pantry."Timeline:1:00 Mandy Hinson introduction1:49 What is St John's Community Services?3:00 Oasis Program for unhoused youth and victims of domestic abuse.4:00 The Pantry5:42 The beginning of The Pantry9:00 Collaborating with Second Harvest 9:30 Partnering with Discovery Park of America11:00 Volunteers 12:30 Donations13:50 Other opportunities to volunteer.14:00 FUMC: Rhea House Food PantryTo get started with our IDD services: https://www.tn.gov/tenncare/long-term-services-supports/employment-and-community-first-choices.htmlTo get started for help with homelessness and fleeing Domestic Violence, go to westtncoc.org

This week on Waves of Awareness, we welcome Derby Jones, publisher, editor, and owner of the Williamson Herald, to discuss the importance of local news in Williamson County. Derby shares his passion for telling local stories that strengthen communities and highlights his experience as treasurer and past president of the Franklin Noon Rotary. Learn why Rotaries are essential for community engagement and making a local impact. Hosted by Waves CEO Staci Davis, with co-hosts John, Jeni, Christy, Robert, and Katie, this episode also includes life updates from the co-hosts, including our upcoming Waves breakfast fundraiser and Christy's work at Goodwill. Hear how Waves supports individuals with intellectual and developmental disabilities (IDD) and empowers them in daily life.

Why Serve on a Nonprofit Board? Purpose, Community & Finding Your "Why" | Derek Schletzer What motivates someone to join a nonprofit board—and stay committed? On this episode of Waves of Awareness, Waves CEO Staci Davis is joined by Waves adults Johnny Sunshine and Jeni Tanner as they sit down with Waves board member Derek Schletzer for a meaningful (and fun!) conversation about purpose, community impact, and servant leadership. Derek shares the personal story that first connected him to Waves, the "why" behind his decision to serve on a nonprofit board, and what he's learned about leadership, advocacy, and supporting individuals with intellectual and developmental disabilities (IDD). If you've ever wondered whether board service is right for you—or why community involvement matters more than ever—this conversation offers real insight without the corporate jargon. You'll also hear: Why community support is essential for nonprofits to thrive How personal experiences can shape a passion for service A favorite Waves memory that involves rhythm, connection… and a drum circle Updates from Johnny and Jeni, including an upcoming show with Backlight Productions and exciting seasonal events on the horizon This episode blends heart, humor, and practical insight into what it really means to show up for your community. Whether you're a nonprofit leader, a potential board member, a family member, or simply someone who cares about making a difference, this conversation will leave you inspired. Hit play and ride the wave with us.

Ever wonder how disability services work in other cultures, societies and/or countries? The ANCOR Global Council was created to explore just that, and to create opportunities for members to learn from intellectual and developmental disability (I/DD) service delivery systems beyond the 50 states.In this episode, ANCOR CEO, Barbara Merrill, and G.N. Janes, CEO of Valley Community Services, share their experiences as longtime members of the council. They share experiences they've had at home and abroad, collaborations, initiatives and partnerships that developed through the council, and so much more.Listen to how the council aims to help us collectively raise our voices in the worldwide human rights movement in support of people with I/DD!=================This podcast is produced by ANCOR, the leading voice in Washington, DC, for providers of services for people with disabilities. Views expressed during the podcast do not necessarily reflect the position of ANCOR.To learn more, visit ⁠⁠⁠⁠⁠⁠⁠ancor.org⁠⁠⁠⁠⁠⁠⁠.=================Intro and outro music provided by YouTube Audio Library Intro Music ⓒ V for Victory - Audionautix Outro Music ⓒ Dirt Rhodes - Kevin MacLeod

Therapists Ashley Wilfore and Sarah Louer know what it's like to have dieting and body shame passed down to you like a family heirloom. We discuss what it means to experience intergenerational trauma, how disordered eating and body hatred get inherited and perpetuated through family values and behaviors, and what it's like to grow up surrounded by diet culture in your home. Ashley and Sarah and speak with honesty, compassion, and humor about their experiences letting go of the pursuit of thinness, and trying to raise their own children while being cycle-breakers.Tune in to hear more about:- What's on their plates (hint: foods to eat when you're sick, and an ode to eggplant...)- A clinical and personal definition of “intergenerational trauma”- Being impacted by generational passing down of dieting and body shame- How the idea that starving yourself is power has been believed by their family members who were otherwise independent-minded and strong - Specific moments and vivid memories from childhood that form beliefs today- Overhearing the women they looked up to talking about their own bodies- The moments they realized they couldn't keep dieting and over-exercising - The intentional decisions they made as mothers when it comes to food and body talk- How they handle their parents' anti-fat bias todaySupport the show: Enjoying this podcast? Please support the show on Substack for bonus episodes, community engagement, and access to "Ask Abbie" at abbieattwoodwellness.substack.com/subscribe Apply for Abbie's Group Membership:Already been at this anti-diet culture thing for a while, but want community and continued learning? Apply for Abbie's monthly membership: https://www.abbieattwoodwellness.com/circle-monthly-groupSocial media:Find the show on Instagram: @fullplate.podcastFind Abbie on Instagram: @abbieattwoodwellness Podcast Cover Photography by Anya McInroyPodcast Editing by Brian WaltersThis podcast is ad-free and support comes from your support on Substack. Subscribe HERE.More About Ashley:Ashley is a wife, a mom of two boys and a clinician. She has her master's in science in forensic psychology and is working on her second advanced degree in social work. She specializes in working with people with IDD and complex needs, but really enjoys talking and working with people who have experienced family trauma and supporting others to break out of social norms.More About Sarah:Sarah is a 54-year-old mother of four living in Vermont, working in New York. She's a licensed clinical social worker, an avid traveler, foodie, and a recovering disorder dieter. She's passionate about human rights for all, and a rectal cancer survivor. She loves Costa Rica, the ocean, and craft cocktails. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit abbieattwoodwellness.substack.com/subscribe

In this episode, Danielle Terrell discusses her personal and professional journey working with individuals with intellectual and developmental disabilities (IDD). Danielle describes how her background in psychology, early community experiences, and roles as a direct support professional, ABA therapist, and transition specialist shaped her passion for advocacy and health equity. She highlights the complex healthcare and mental health challenges faced by children and adults with IDD, including real-life case examples that underscore gaps in provider training and support systems. The conversation also explores her international advocacy work in countries such as India, Kenya, and Tanzania, where she helped raise awareness, build services, and support families, revealing that barriers to care are global. Danielle concludes by sharing three guiding principles—saying yes to opportunities, learning directly from people with disabilities, and being bold in advocacy—to promote a world where people with IDD are supported not just to survive, but to truly thrive.

In this week's episode, we  explore what happens after the transition years end—when adults with IDD in their 20s, 30s, and 40s are navigating work, friendships, and where to live. The transition period can feel uncertain. How do you avoid feeling stuck at home? How do you find meaningful work and real friendships? We discuss how to reframe the job search, build authentic connections, and create a life that feels right for you. In this episode:    Why "Where would you like to visit?" is a better question than "Where do you want to work?"  The difference between independence and interdependence—and why being more independent can sometimes mean being more alone Real stories of friendships Creative approaches to living arrangements How clubs, faith communities, and neighbors can lead to meaningful connections Want to share stories with us? Email us at Quillopod@myquillo.com To learn more about MyQuillo visit MyQuillo.com Episode Transcript 

Finally, after nearly 10 years, it's the changing criterion design's time to shine! While often seen as the little brother to our more robust experimental designs, this week we discuss when the changing criterion could be your design of choice in research and practice and look at some of the more convincing cases of how the little step-wise graph that nobody liked should really be a key player in your visual display toolbox. This episode is available for 1.0 LEARNING CEU. Articles discussed this episode: Klein, L.A., Houlihan, D., Vincent, J.L., & Panahon, C.J. (2017). Best practices in utilizing the changing criterion design. Behavior Analysis in Practice, 10, 52-61. doi: 10.1007/s40617-014-0036-x De Luca, R.V. & Holborn, S.W. (1992). Effects of a variable-ratio reinforcement schedule with changing criteria on exercise in obese and nonobese boys. Journal of Applied Behavior Analysis, 25, 671-679. doi: 10.1901/jaba.1992.25-671 Brady, M.P., Kearney, K.B., Downey, A., Torres, A., & McDougall, D. (2022). Using mnemonics, remote coaching, and the range-bound changing criterion design to teach college students with IDD to make employment decisions. Education and Training in Autism and Developmental Disabilities, 57, 303-319. doi: 10.1177/215416472205700 If you're interested in ordering CEs for listening to this episode, click here to go to the store page. You'll need to enter your name, BCBA #, and the two episode secret code words to complete the purchase. Email us at abainsidetrack@gmail.com for further assistance.

This episode features a conversation with David Toback about supporting people with intellectual and developmental disabilities (IDD). David describes his journey beginning in 2006 working in mental health and IDD, later contributing heavily to Georgia's transition from institutional care to community‑based services. They discuss the importance of person‑centered thinking—listening, responding, and acting based on what matters to each individual—and the practical skills involved, especially for people who communicate nonverbally. David explains how person‑centered approaches balance what is "important to" someone with what is "important for" their health, safety, and community inclusion. He also clarifies how these methods complement the Charting the LifeCourse framework, which helps organize long‑term goals and resources. Together, they emphasize that these tools support better, more meaningful lives and help deepen the purpose and passion of professionals in IDD services. David closes with three key recommendations: dig deeper by "asking about the ask," always determine whether someone needs help or simply listening, and make choices from wisdom rather than convenience.

Overflow Church in McKenzie, TN, will be hosting Night to Shine on February 13 from 6 - 9 PM. To be sure to listen as Sydney Inman OTR talks about her journey as an occupational therapist, as well as her serving as part of her church team to host their first-ever prom for individuals with IDD here in Northwest TN. Sydney also describes her church's commitment to an inclusive environment, as well as supporting their families experiencing disabilities. Timeline:01:00 Who is Sydney Inman? Her journey to becoming an occupational therapist.04:00 What is Night to Shine (affiliated with the Tim Tebow Foundation)? Overflow Church and its Disability Ministry.6:00 What does "Night to Shine" look like? 8:55 How to sign up?10:00 Conclusion and encouragement to parents!

In this episode, hosts Cynthia Morraz and John Dickerson explore the high school transition years for students with IDD and their families. This period brings big decisions and even bigger questions: Who will help? What do we do? How do we get ready for what comes next? Cynthia and John discuss how to build community, find your circle of support, and use this time to prepare for life after high school. In this episode:

Tommy DiMisa (“Tommy D,” the Nonprofit Sector Connector) kicks off episode #240 of Philanthropy in Phocus from his office (not the attic!) with a message he lives by: if you've got an idea—try it. What started as a campaign he launched on January 8, 2021 has become a weekly platform spotlighting nonprofits and the people behind the mission.This episode takes an unexpected but perfect turn when Tommy's original guest can't make it—so he calls in the cavalry: Britt Carroll and Izzy Ades-Lawlor from Best Buddies New York. Together, they unpack what Best Buddies is all about: inclusion, belonging, and opportunity for people with intellectual and developmental disabilities (IDD)—starting with real, one-to-one friendships.Britt shares Best Buddies' origin story (founded in 1989 by Anthony Kennedy Shriver at Georgetown) and walks through the organization's major program “pillars,” including Friendship, Jobs, Living, Family Support, and Leadership Development / Transitions—all designed to expand access, independence, and community. Izzy adds what she's focusing on now: growing school involvement and helping lead promotion for upcoming events—especially the Friendship Walks.You'll also hear one of the most powerful “mission moments” of the episode: Britt tells the story of Charlotte, a Best Buddies Jobs participant working at Asphalt Green in NYC—where members know her by name, greet her warmly, and credit her with making their days better. It's a real reminder that when employers lead with inclusion, the ripple effects are massive.Key Dates + Call to ActionBest Buddies NYC Friendship Walk: May 2Best Buddies Long Island Friendship Walk: May 9 (10AM–1PM), Marjorie Post Park (Massapequa)Ways to help: start a team, donate, volunteer, sponsor, or open doors to employment partnershipsTommy's closing message says it all: it's not about ability—it's about access.

The Special Olympics New York winter games are returning to Rochester next month, and so is a local photojournalism collaboration. RIT students are teaming up with athletes and organizers — and as we learn this hour, they are covering more than just sports. Accessible health care for people with intellectual and developmental disabilities (IDD) is one of the nonprofit's priorities. Its Healthy Athletes event at the games helps competitors access routine screenings and other resources, while also providing an opportunity for health care professionals to learn best practices for caring for patients in the IDD community. We explore it all with our guests: Cori Piels, Special Olympics athlete and health messenger  Jess Dauvergne, director of health programs for Unified Sports at Special Olympics New York Furqan Alwaely, B.D.S., dental provider and faculty member at the Eastman Institute for Oral Health Josh Meltzer, associate professor in the School of Photographic Arts and Sciences at RIT  Natasha Kaiser, photojournalism major at RIT and former intern for WXXI News ---Connections is supported by listeners like you. Head to our donation page to become a WXXI member today, support the show, and help us close the gap created by the rescission of federal funding.---Connections airs every weekday from noon-2 p.m. Join the conversation with questions or comments by phone at 1-844-295-TALK (8255) or 585-263-9994, email, Facebook or Twitter. Connections is also livestreamed on the WXXI News YouTube channel each day. You can watch live or access previous episodes here.---Do you have a story that needs to be shared? Pitch your story to Connections.

In this episode, care manager Liz Zaso shares how growing up in a family deeply involved in supporting people with intellectual and developmental disabilities shaped her passion for the field. Influenced by her parents' careers, her cousin with cerebral palsy, and early experiences with inclusion, Liz discusses the importance of training direct support professionals, advocating for equitable health care, and empowering individuals by focusing on their strengths. She highlights ongoing systemic challenges, including staffing shortages and inadequate provider education, while also celebrating the progress made in inclusion and global awareness. Liz offers examples from her career—such as supporting individuals pursuing meaningful goals—and emphasizes the need for community integration, advocacy, and positivity. The episode also acknowledges her nomination for the Annie Sullivan League Award, recognizing her dedication to improving the lives of people with IDD.

Brian Connery, Vice President of Sales at On Health, explains how their electronic medication administration record (EMAR) system and connected "med box" hardware aim to reduce medication errors and simplify workflows for direct support professionals (DSPs). Connery describes the company's person‑centered, collaborative design approach, shaped by a founding story involving a family tragedy related to medication mismanagement. He also shares his personal journey from DSP to leadership roles across provider agencies and state services, highlighting the meaningful, community‑driven nature of the intellectual and developmental disabilities (IDD) field. Connery closes by offering three recommendations for improving supports in IDD—innovation through technology access, reducing silos via collaboration and data sharing, and ongoing education paired with shared responsibility—emphasizing that progress requires collective effort across providers, vendors, and advocates.

Happy New Year, everyone! We kick off the (almost) 10th year of ABA Inside Track with a review of our recent holiday activities then get right back into our podcast research discussion with a bevy of amazing guests. First up we delve into the new (for behavior analysts) work of motivational interviewing with Dr. Monica Gilbert. Then we have three-guests-for one with Dr. Stephanie Peterson, Dr. Rebecca Eldridge, and Dr. Neil Deochand to learn about risk assessment and their development of the FARADT tool. Then we take pity on the least popular experimental design, the changing criterion, by giving it its own episode. Still not enough learning for your behavior analytic resolutions? Why not head over to the Stone Soup online conference with a $20 discount. Just register with the code ABAIT26 and enjoy a whole day of learning. Articles for January 2026 Motivational Interviewing w/ Dr. Monica Gilbert Gilbert, M. (2025). How to stop talking and start communicating with motivational interviewing: Building effective partnerships with caregivers: A practical guide for behavior therapists. Crystal Minds Psychological Services. Plattner, C. & Anderson, C. (2024). Creating a therapeutic alliance with caregivers: An introduction to motivational interviewing. Behavior Analysis in Practice. doi: 10.1007/s40617-024-00948-8 Christopher, P.J. & Dougher, M.J. (2009). A behavior-analytic account of motivational interviewing. The Behavior Analyst, 32, 149-161. doi: 10.1007/BF03392180   Risk Assessment w/ Dr. Stephanie Peterson, Dr. Rebecca Eldridge, + Dr. Neil Deochand Wiskirchen, R.R., Deochand, N., & Peterson, S.M. (2017). Functional analysis: A need for clinical decision support tools to weight risks and benefits. Behavior Analysis: Research and Practice, 17, 325-333. doi: 10.1037/bar0000088 Deochand, N., Eldridge, R.R., & Peterson, S.M. (2020). Toward the development of a functional analysis risk assessment decision tool. Behavior Analysis in Practice, 13, 978-990. doi: 10.1007/s40617-020-00433-y Schroeder, A.C., Peterson, S.M., Mahabub, M.B., & Dresch, M.K. (2025). A pilot evaluation of expert and novice use of the functional analysis risk assessment decision tool. Behavior Analysis in Practice, 18, 811-825. doi: 10.1007/s40617-020-00433-y   The Changing Criterion Design Klein, L.A., Houlihan, D., Vincent, J.L., & Panahon, C.J. (2017). Best practices in utilizing the changing criterion design. Behavior Analysis in Practice, 10, 52-61. doi: 10.1007/s40617-014-0036-x De Luca, R.V. & Holborn, S.W. (1992). Effects of a variable-ratio reinforcement schedule with changing criteria on exercise in obese and nonobese boys. Journal of Applied Behavior Analysis, 25, 671-679. doi: 10.1901/jaba.1992.25-671 Brady, M.P., Kearney, K.B., Downey, A., Torres, A., & McDougall, D. (2022). Using mnemonics, remote coaching, and the range-bound changing criterion design to teach college students with IDD to make employment decisions. Education and Training in Autism and Developmental Disabilities, 57, 303-319. doi: 10.1177/215416472205700  

This IDD Health Matters episode features Adam Chittam, a pharmacist specializing in long-term care for individuals with intellectual and developmental disabilities (IDD). Chittam explains that his organization, Tarrytown XPO Care Pharmacy, uniquely serves only the IDD population, which often faces complex medication regimens and polypharmacy—commonly 13–15 medications compared to four in the general population. He highlights the risks of drug interactions, the challenges of managing side effects, and the importance of avoiding unnecessary medications by addressing underlying causes of behaviors rather than attributing them solely to disability. Cheatham emphasizes education for caregivers, proper medication administration through compliance packaging, and the critical role pharmacists play in clinical teams to ensure safety and improve outcomes. He concludes by advocating for consistency, awareness of side effects, and engagement in this rewarding field.

Kaylee Graham, a nurse specializing in care for individuals with intellectual and developmental disabilities (IDD), shares her journey from starting as an LVN in Texas to her current role at StationMD, where she supports IDD populations through specialized telehealth services. She emphasizes the importance of innovation, continuing education, and addressing gaps in dental care, noting that preventive measures and tailored training for healthcare providers significantly improve outcomes. Graham highlights the challenges of healthcare access for people with IDD, particularly in dental services, and advocates for leveraging technology and mentorship programs to enhance care quality and equity.

Dr. Jodi Tate is a psychiatrist from Iowa who specializes in working with adults with intellectual and developmental disabilities (IDD) and mental health challenges. Dr. Tate shares her journey into this field, emphasizing the lack of formal training for healthcare providers in treating individuals with IDD and advocating for better education through initiatives like a specialized psychiatry residency track and Project Echo—a virtual case-based learning program for direct support professionals. She highlights the importance of addressing diagnostic overshadowing, using medications judiciously, and persistent advocacy for quality care. Dr. Tate also recounts a success story involving electroconvulsive therapy for a patient with severe depression, illustrating the need for individualized, evidence-based treatment. The conversation underscores systemic gaps in healthcare for people with IDD and calls for expanding workforce training to ensure equitable, compassionate care.

Peripheral Neuropathy: Causes, Symptoms, And New Treatment Options When nerves lose the energy they need to function, it leads to numbness, pain, and loss of mobility for millions of Americans. New research is uncovering how risk factors like obesity, high blood pressure, and food insecurity disproportionately affect certain communities. As scientists work to refine treatments and explore promising therapies that include GLP-1 medications, early detection, dietary changes, and improved access to healthcare remain critical to stopping the progression of this condition. How Improving Healthcare For People With Disabilities Helps Everyone Special Olympics is working to close major gaps in healthcare for people with intellectual and developmental disabilities. A new global report reveals widespread problems – from poor provider training to communication barriers – that prevent individuals with IDD from receiving informed, respectful, and effective care. The organization hopes to create a more inclusive system by improving physician training and empowering people with IDD to participate in their own health decisions. Medical Notes: We're Overusing Salt, How Feeding Birds Improves Our Quality Of Life, And Protecting Kids From HIV How can we save babies born with HIV? We're overusing salt – and not just in our pasta. Technology is only as good as it's creator. Is it time to invest in a bird feeder? Learn more about your ad choices. Visit megaphone.fm/adchoices

Special Olympics is working to close major gaps in healthcare for people with intellectual and developmental disabilities. A new global report reveals widespread problems – from poor provider training to communication barriers – that prevent individuals with IDD from receiving informed, respectful, and effective care. The organization hopes to create a more inclusive system by improving physician training and empowering people with IDD to participate in their own health decisions. Learn more about your ad choices. Visit megaphone.fm/adchoices

Sandra talks with Tammy Dunkum about how her church shares the gospel with individuals with intellectual and developmental disabilities (I/DD) and disciples both participants and families over time. Tammy shares practical classroom strategies, sensory-aware gospel conversations, and stories of God's work—from a first grader learning who Jesus is to a sensory-friendly VBS that reached unchurched families.Visit KeyMinistry.org/Podcast for show notes.

Patient advocate and author Irene Tanzman discusses her article "A mother's question about PCOS and her son's autism." Irene shares her personal journey as a mother to a son with severe autism and intellectual and developmental disabilities (IDD), exploring the challenging but necessary questions about the link between maternal PCOS (polycystic ovary syndrome), the modern metabolic crisis, and fetal neurodevelopment. Irene advocates for looking "upstream" at maternal health before conception, questioning if fertility treatments are addressing the underlying hormonal environment needed for optimal development. This episode dives into the realities of caregiving for severe autism, the need for better pre-conception support for women with PCOS, and the urgent call for a broader, more honest public health conversation. Learn why exploring maternal metabolic health is a critical, compassionate step toward understanding autism. Our presenting sponsor is Microsoft Dragon Copilot. Want to streamline your clinical documentation and take advantage of customizations that put you in control? What about the ability to surface information right at the point of care or automate tasks with just a click? Now, you can. Microsoft Dragon Copilot, your AI assistant for clinical workflow, is transforming how clinicians work. Offering an extensible AI workspace and a single, integrated platform, Dragon Copilot can help you unlock new levels of efficiency. Plus, it's backed by a proven track record and decades of clinical expertise, and it's part of Microsoft Cloud for Healthcare, built on a foundation of trust. Ease your administrative burdens and stay focused on what matters most with Dragon Copilot, your AI assistant for clinical workflow. VISIT SPONSOR → https://aka.ms/kevinmd SUBSCRIBE TO THE PODCAST → https://www.kevinmd.com/podcast RECOMMENDED BY KEVINMD → https://www.kevinmd.com/recommended