Podcasts about Idd

Nick Wood, speaking at the Kansas InterHab conference, discusses the role of InterHab as a statewide trade association supporting providers for people with intellectual and developmental disabilities (IDD). He emphasizes the benefits of collaboration, communication, and training among member organizations, as well as advocacy for policy improvements. Key challenges include workforce shortages, recruitment and retention of direct support professionals, and the need for person-centered approaches. Wood also explores the complexities of managed care in Kansas, highlighting its unique full-risk Medicaid model and the importance of integrating medical, behavioral, and long-term supports. He calls for better training, common language, and innovative solutions to address waiting lists and improve health equity for individuals with IDD.

Today we explain why a stiff, painful lower back doesn't need more stretching (knee-hugs, Child's Pose, cat-cow). Most disc problems bulge backwards, so repeated forward-bending keeps stressing the very tissues that need protection. We show what to do instead: learn neutral-spine control, practise real-life patterns (squat = stand up, hinge = pick up), and then build capacity. We also cover why imaging can be useful (for the clinician and planning), how years of sitting flatten your lumbar curve, spinal remodeling basics, post-op realities (microdiscectomy still needs rehab), coccyx pain referrals, IDD + rehab, cardio choices, and more Q&A.Start here → https://backinshapeprogram.com/start/Highlights:- Stiff ≠ “needs more flexion.” Most lumbar injuries dislike forward-bending; stabilise first, then strengthen.- Why imaging sometimes helps: it informs technique and targets—not a reason to delay starting safe rehab.- Your curve is often already flattened from long sitting; stop trying to add even more flexion.- Coccyx pain is commonly referred from L5/S1; fix the spine, not the seat cushion gimmicks.- Relief vs rehab: decompression/massage can soothe, but strength changes capacity (and daily life load wins).#backinshape #sciatica #herniateddiscsChapters:00:00:00 Why “stretch your stiff back” backfires (disc bulges & flexion strain)00:02:10 Stability over stretching: protect the injury, don't keep bending it00:05:00 When imaging helps (and why it shouldn't delay starting safe rehab)00:07:40 Normal curves 101 (lordosis/kyphosis) and where lumbar motion should occur00:11:30 The sitting problem: years of posterior tilt flatten the lumbar curve00:15:20 Spinal remodeling idea (sustained extension positioning; context & limits)00:18:50 Already flexed at rest? Then you don't need more forward-bending00:22:10 “Anterior pelvic tilt” myths—why visual guesses mislead without imaging00:24:30 Post-microdiscectomy truths: surgery ≠ rehab; start stabilising early00:28:00 “Arthritis” vs tissues you can strengthen; capacity beats labels00:31:00 Coccyx pain often from L5/S1; understand sitting loads (≈20–45% BW context)00:34:10 IDD decompression + must-do rehab outside the clinic00:36:40 Weighted-vest walks vs suitcase carries (scalable loading)00:39:20 Cardio picks you can scale (walking → run sets, air bike, x-trainer)00:42:10 Congenital fusions: even more reason to nail neutral & hip mobility00:45:00 Cat-cow/Child's Pose: why they're often the wrong tools early on00:47:40 Use knees/hips/ankles—stop making your back do every job00:50:10 Program support & education: do the plan, film your reps, iterate00:55:00 Q&A: over-training, gym mistakes, yoga kneeling, couch stretch tweaks00:59:27 Wrap-up & next steps for members

Patient advocate and author Irene Tanzman discusses her article "A mother's question about PCOS and her son's autism." Irene shares her personal journey as a mother to a son with severe autism and intellectual and developmental disabilities (IDD), exploring the challenging but necessary questions about the link between maternal PCOS (polycystic ovary syndrome), the modern metabolic crisis, and fetal neurodevelopment. Irene advocates for looking "upstream" at maternal health before conception, questioning if fertility treatments are addressing the underlying hormonal environment needed for optimal development. This episode dives into the realities of caregiving for severe autism, the need for better pre-conception support for women with PCOS, and the urgent call for a broader, more honest public health conversation. Learn why exploring maternal metabolic health is a critical, compassionate step toward understanding autism. Our presenting sponsor is Microsoft Dragon Copilot. Want to streamline your clinical documentation and take advantage of customizations that put you in control? What about the ability to surface information right at the point of care or automate tasks with just a click? Now, you can. Microsoft Dragon Copilot, your AI assistant for clinical workflow, is transforming how clinicians work. Offering an extensible AI workspace and a single, integrated platform, Dragon Copilot can help you unlock new levels of efficiency. Plus, it's backed by a proven track record and decades of clinical expertise, and it's part of Microsoft Cloud for Healthcare, built on a foundation of trust. Ease your administrative burdens and stay focused on what matters most with Dragon Copilot, your AI assistant for clinical workflow. VISIT SPONSOR → https://aka.ms/kevinmd SUBSCRIBE TO THE PODCAST → https://www.kevinmd.com/podcast RECOMMENDED BY KEVINMD → https://www.kevinmd.com/recommended

In this episode of IDD Health Matters, Dr. Craig Escudé interviews Mary Kay Rizzolo, CEO of the Council on Quality and Leadership (CQL), an international accreditation body focused on improving services for individuals with intellectual and developmental disabilities (IDD). Mary Kay discusses CQL's mission to enhance quality of life through person-centered practices, training, research, and accreditation. She emphasizes the importance of understanding individuals' preferred outcomes, using tools like Personal Outcome Measures, and adopting a strengths-based approach called Appreciative Inquiry. The conversation highlights how treating staff well and respecting the dignity and rights of individuals leads to better health outcomes and reduced emergency interventions. Mary Kay also shares insights from her career and the value of community-based services, concluding with three key recommendations: embrace strengths-based models, tailor supports to individual goals, and presume competence while encouraging risk-taking.

Jennifer Stanford Vogt is an established professional in the human services sector, with a career deeply influenced by serendipity and her belief in divine intervention. A graduate of Keuka College in 2008, Jennifer began her journey as a job readiness and GED instructor, eventually transitioning into the field of intellectual and developmental disabilities (IDD). Her roles have included direct support professional (DSP) and staff development trainer, and her insights are further informed by her personal experience as a parent of a child with multiple diagnoses, including autism and epilepsy. Currently, Jennifer serves as the Associate Director of Education and Training at eVero Corporation, leading teams in creating impactful learning programs and fostering innovation in the sector.Episode Summary:In this engaging episode of DSP Talk, host Asheley Blaise welcomes Jennifer Stanford Vogt, whose path through the realms of human service and parenthood brings an invaluable perspective on the interplay between direct support professionals (DSPs) and families. Jennifer shares how her dual experiences as both a parent and a DSP have shaped her understanding of these roles as a partnership built on empathy and effective communication. Her narrative underscores the mutual effort needed for individuals with disabilities to flourish, spotlighting how these interactions can foster personal growth, skill development, and emotional well-being.Jennifer dismantles common misconceptions about DSPs, emphasizing the skills, critical thinking, and emotional resilience required in their role. Her insights pave the way for families and DSPs to foster mutual respect and build healthy partnerships. By acknowledging the emotions and needs of both sides, Jennifer suggests concrete ways to strengthen these relationships, like regular check-ins, active listening, and transparent communication. Overall, the episode provides a compelling view into the complexities of caregiving, offering a call to action for both families and professionals to work cohesively towards enriching the lives of those they support.Key Takeaways:Beyond 'Babysitting': The role of DSPs is often misunderstood; it involves advocacy, problem-solving, and much more than supervision.Building Trust and Respect: Regular communication and small gestures of acknowledgment help to build trust between families and DSPs.The Human Aspect: Acknowledging the emotional journey of both DSPs and families leads to better support structures and cooperation.Partnership over Isolation: Success relies on treating the family-DSP relationship as a collaborative effort instead of two opposing sides.Notable Quotes:"It truly takes a real partnership, some empathy, and communication to make it happen.""DSPs are constantly problem-solving, teaching, advocating, and adapting in the moment.""At the end of the day, we're all just really here for the same reason: to help the person that we're both engaged with grow, develop, and thrive.""Assume always that there are good intentions and really listen to each other."Resources:eVero CorporationFor a deeper dive into this enlightening discussion, listen to the full episode. Stay tuned for more insightful content on DSP Talk, where we continue to explore stories and strategies that enhance the lives of those working in human services. Hosted on Acast. See acast.com/privacy for more information.

This is a free preview of a paid episode. To hear more, visit rethinkingwellness.substack.comRegistered dietitian Jackie Silver joins us to discuss nutritional approaches that are helpful for neurodivergence, why people with autism and ADHD are often the targets of wellness and diet culture, the kinds of wellness-culture messages she's gotten as a person with a disability, and why the advice to cut out gluten for autism is often harmful. Behind the paywall, we get into why ultraprocessed food consumption doesn't cause autism and why cutting out these foods doesn't “cure” it, the harmful discourse around autism and ADHD in the culture right now, why it's harmful to categorize foods as “good” and “bad,” and more.Paid subscribers can hear the full interview, and the first half is available to all listeners. To upgrade to paid, go to rethinkingwellness.substack.com. Jackie Silver is a Registered Dietitian and founder of Jackie Silver Nutrition, a virtual private practice specializing in supporting neurodivergent kids, teens, and adults with ADHD, autism (ASD), and intellectual/developmental disabilities (IDD). Her team offers neurodiversity-affirming, nonjudgmental, and weight-inclusive care.Jackie earned her Master of Health Science in Nutrition Communication from Toronto Metropolitan University and has specialized training in mindful eating and sensory-based feeding therapy.She and her team support clients across Ontario, Canada, and several U.S. states, including New York, New Jersey, Pennsylvania, Connecticut, and Massachusetts, helping with meal planning, selective eating, food aversions, digestive health, chronic disease management, and more.In her free time, Jackie enjoys rock climbing, yoga, pilates, swimming, traveling, visiting museums, and spending time with family and friends. Learn more about her work at jackiesilvernutrition.com.If you like this conversation, subscribe to hear lots more like it! Support the podcast by becoming a paid subscriber, and unlock great perks like extended interviews, subscriber-only Q&As, full access to our archives, commenting privileges and subscriber threads where you can connect with other listeners, and more. Learn more and sign up at rethinkingwellness.substack.com.Christy's second book, The Wellness Trap, is available wherever books are sold! Order it here, or ask for it in your favorite local bookstore. If you're looking to make peace with food and break free from diet and wellness culture, come check out Christy's Intuitive Eating Fundamentals online course.

This IDD Perspectives webinar episode centers on person-centered thinking and practices in supporting individuals with intellectual and developmental disabilities (IDD), especially those with co-occurring mental health and behavioral challenges. Hosted by Dr. Craig Escudé and featuring Bob Sattler, the discussion emphasizes the importance of autonomy, informed decision-making, and balancing personal happiness with health and safety. It critiques traditional service models that often prioritize safety over individual fulfillment and advocates for systemic changes aligned with the Home and Community-Based Services (HCBS) regulations. Key themes include trauma-informed care, organizational culture, staff empowerment, and the "Platinum Rule" — treating people the way they want to be treated. The conversation highlights nine critical elements for building a person-centered system, including mission alignment, advocacy, outcomes over goals, and quality management, while stressing that meaningful change requires leadership commitment and innovative resource connections.

Today we fix core engagement (use breathing-led bracing, not pelvic tucks), and we reframe the “best stretch for sciatica”: relief tools help short-term, but lasting change comes from technique → repeatability → then load on squat/hinge patterns. We also cover plateau-busting (micro-progress with smaller jumps & last-set tests), DOMS vs flare-ups, kit choices (DBs/KBs → barbell), where to read free education, osteoporosis safety, daily frequency when pain has shifted from sharp to dull, IDD expectations, knees-over-toes with BIS, incomplete cauda equina context, hip work for spondy, post-microdiscectomy principles, and even how to safely push a stuck door (brace first, then press).Start here → https://backinshapeprogram.com/start/Highlights:

There is a lot to consider when a child receives a new diagnosis for an intellectual/developmental disability (IDD). For caregivers, families, and even providers, the conversations and planning can be overwhelming!   If you have received a new diagnosis, or maybe you are interested in beginning the process, use this podcast episode featuring Licensed Clinical Social Worker, Lauren Mowrey, to understand the diagnosis process, next steps, and most importantly, take a deep breath!

Quick fixes can feel great—but they rarely heal a herniated disc or sciatica. In today's live we explain the 3 types of relief (what helps directly, what helps indirectly, and what feels good but harms), then show how real progress comes from strengthening: learning neutral-spine control first, then building load tolerance with squat/hinge patterns. We cover how to measure healing objectively (your exercises are the test), why “piriformis syndrome” is usually a red herring, smarter use of decompression (towel/bed, IDD tables), and practical Q&A on running, yoga/swimming, socks, inversion tables, sleep positions, and red flags.Start here → https://backinshapeprogram.com/start/Highlights:

Your body is trying to heal every day—nerves and discs included. Today's live shows how everyday habits (the way you sit, stand up, bend, and “rest”) often block that process, and what to do instead: start with technical control (learn to brace and keep the spine still), then build capacity with the Core 5 (Dead Bug, Marching Bridge, Squat, Hip Hinge, Step-Up) before adding load. We cover realistic timelines, why bed-rest backfires, when clinic tools (IDD/laser) are useful, and how to use objective milestones to know you're improving. Q&A includes spondylolisthesis priorities, “dips & bench?”, bird-dog vs dead bug, microdiscectomy timelines, NHS vs private care, acupuncture, DDD labels, side plank, and load targets (20% → 45% → 100% body-weight).Start here → https://backinshapeprogram.com/start/Highlights:

Christine Clause, a dedicated mother and advocate, shares her profound journey of raising her son with developmental disabilities and her professional role at Neighbors Inc., a nonprofit in New Jersey supporting adults with intellectual and developmental disabilities (IDD). She recounts the challenges she has faced navigating the healthcare system, including a harrowing experience when her son was hospitalized with the flu and nearly died due to medical professionals' assumptions about his quality of life. Christine emphasizes the importance of family members asserting their knowledge and role in medical decision-making, and she highlights how showing a video of her son thriving in the community helped shift the hospital staff's perspective. She passionately advocates for better clinician education through programs like IntellectAbility's Fatal Five Plus training, which addresses preventable causes of death in people with IDD. Christine also underscores the need for family and staff training, the value of nurses in hospital settings, and the critical importance of recognizing individuals with IDD as people first. Her insights call for systemic change in healthcare and support services to ensure dignity, inclusion, and quality care for all individuals with disabilities.

In this episode of 'Pushing Forward with Alycia,' host Alycia Anderson welcomes Shane Walsh, a passionate advocate and global ambassador for Best Buddies International. Shane shares his personal story of growing up with his younger brother Lucas, who has autism. He reflects on how this relationship shaped his worldview and motivated his advocacy for the intellectual and developmental disabilities (IDD) community. The conversation delves into the importance of inclusion, the challenges faced by individuals with IDD, and the need for greater employment opportunities. Shane also discusses his efforts to enhance the Best Buddies program at James Madison University and his aspirations for broader societal change. Tune in for a powerful discussion on resilience, advocacy, and the impact of sibling relationships in the disability community. Minute Markers & Must-Know Points 00:00 Introduction to Pushing Forward with Alycia 00:26 Meet Shane: A Global Ambassador for Best Buddies 02:13 Shane's Journey with His Brother Lucas 05:05 The Sibling Experience and Advocacy 09:28 Challenges and Changes During High School 17:37 Shane's College Experience and Best Buddies Involvement 22:44 Encouraging Male Participation in Special Education 24:30 Stepping Out of Your Comfort Zone 28:02 Final Thoughts and Call to Action 29:31 Closing Remarks and Motivation A Quote from Shane Walsh  “It is my hopes and dreams that one day I can develop the courage and bravery that individuals with IDD and parents of children with IDD have.”  ~ Shane Walsh Deep Dives from This Episode

In this episode of the Charity Charge Show, Greg Arendt, CEO of the Gatesway Foundation, shares how his team is advancing safe housing, meaningful employment, and true community integration for adults with intellectual and developmental disabilities. He explains why integrated neighborhoods reduce stigma, how donor trust is earned through consistent transparency, and what sustainable revenue looks like for a modern nonprofit.Key takeawaysGatesway is developing The Villages of Rose Hill, a fully integrated community that will include 300+ affordable housing units for neurodiverse and neurotypical residents living side by side.Employment is framed as life fulfillment, pairing community jobs with individualized supports and new enrichment programs for those not yet in the workforce.Trust comes from transparency. Regular progress updates and clear impact reporting have strengthened donor engagement and accelerated capital projects.Sustainability requires diverse revenue streams, not reliance on a single funder or government line item.Centering people with I/DD in public processes can shift outcomes. Self-advocacy at a city council meeting helped secure approval for an affordable housing development.Charity Charge is a financial technology company serving the nonprofit sector. From the Charity Charge Nonprofit Credit Card to bookkeeping, gift card disbursements, and state compliance, we help mission-driven organizations streamline operations and stay financially strong. Learn more at charitycharge.com.

In dieser spannenden Episode tauche ich mit Michael Gackstatter, dem CEO von Today, in die Welt der KI im Versicherungsvertrieb ein. Nach der ersten Welle stellen wir uns die Frage: Was kommt jetzt? Und wie schaffen wir es, den versprochenen Return on Invest tatsächlich zu realisieren und den Vertrieb sinnvoll zu skalieren? Michael, der die Skalierung guter Beratung wie kaum ein anderer versteht, gibt uns tiefe Einblicke. Wir beginnen mit dem Kernproblem: Makler sind überlastet. Ein Drittel denkt darüber nach, die Branche zu verlassen, weil sie einen Großteil ihrer Zeit mit Regulatorik und Administration verbringen. Das nimmt die Zeit für den Kunden und macht es schwer, sich auf komplexe Lebenssituationen einzustellen. Ich lerne, wie entscheidend es ist, nichts zu vergessen und wie oft das im Alltag – egal ob persönlich oder digital – scheitert. Hier sind die Highlights, die du in dieser Episode auf keinen Fall verpassen solltest: Wir tauchen tief in die Probleme des Versicherungsvertriebs ein und warum so viele Berater überlastet sind. Michael erklärt, dass es nicht nur um Regulatorik geht, sondern auch um die schiere Informationsflut und den Druck, immer auf dem neuesten Stand der Kundenbedürfnisse zu sein. Michael erklärt, wie Today als KI-Assistent Gespräche mitschreibt – ob im Video-Call (Teams, Zoom) oder sogar im Garten beim Kunden über die mobile App. Ich finde es faszinierend, wie hierdurch die Aufmerksamkeitsspanne des Beraters für den Kunden erhöht wird, da er nicht gleichzeitig mitschreiben muss. Wir sprechen über die genialen Outputs: von IDD-konformer Doku über wertvolle Kundendaten bis hin zu echtem Coaching – spezifisch für die Versicherungsbranche (Stichwort "thesaurierender ETF" vs. "tätowierender ETF"). Ich bin beeindruckt, wie präzise die KI die branchenspezifische Terminologie erfasst und nutzt. Ein Feature, das mich echt begeistert: KI-Rollenspiele! So können Berater üben, ohne Druck, und sich gezielt verbessern. Michael berichtet von Vertriebstrainern, die von der Realitätsnähe der KI-Kunden überrascht sind – eine echte Game Changer für die Weiterbildung. Datenschutz ist hier kein leeres Versprechen. Wir besprechen, wie Today durch Streaming (und nicht Speichern von Audio) die Privatsphäre schützt und gleichzeitig maximale Transparenz bietet, mit klaren Regeln für die Einholung der Kundenzustimmung. Michael gibt uns auch einen Ausblick auf die Zukunft, in der KI sogar in der Lage sein soll, erste Schadenmeldungen aufzunehmen oder Cross-Selling-Angebote während der Beratung vorzubereiten. Das ist nicht nur Science-Fiction, sondern greifbare Realität. Links in dieser Ausgabe Zur Homepage von Jonas Piela Zum LinkedIn-Profil von Jonas Piela Zum LinkedIn-Profil von Michael Gackstatter Flexible Personallösungen für Versicherer Als Entscheidungsträger in der Versicherungsbranche hast du mit Personalengpässen und zyklischen Rückständen zu kämpfen. Skaly Insurance Operations stellt seit 20 Jahren Experten für alle Versicherungssparten zur Verfügung. Schnell verfügbar und flexibel skalierbar. Jetzt ein Angebot einholen TODAY: Die KI-Revolution für den Versicherungsvertrieb Today ist die Vertriebs-AI für die Versicherungsbranche. TODAY dokumentiert deine Beratung, coached dich, und spart dir 5 Stunden pro Woche. Besuche jetzt www.UseToday.io und teste mit dem Code “Jonas” TODAY 2 Monate kostenfrei.

Spectrum of Solutions serves hundreds of children and adults with intellectual and developmental disabilities (IDD) across the Permian Basin. In this episode, Eddie James and Krystian Chacon join host Ryan Shewchuk to share how the organization is enriching lives — and how the community can get involved through their upcoming Cruise for a Cause weekend.From their Children's Therapy Center to Adult Vocational Services and Host Homes, Spectrum of Solutions provides critical support for individuals of all ages. Plus, hear about their Mad Men–themed gala, car cruise, car show, and the incredible Porsche giveaway — all happening October 23–25 at the Horseshoe Arena.Learn more, volunteer, or register your vehicle: https://spectrumofsolutions.orgTimestamps:0:00 – Intro0:47 – What Spectrum of Solutions Does2:25 – What is IDD and Who They Serve3:10 – Programs for Children (Speech & Music Therapy)5:00 – Early Signs for Parents to Watch6:15 – Adult Housing & Vocational Programs8:30 – Building a New Vocational Center9:50 – Community Support & Volunteer Opportunities13:00 – How Anyone Can Get Involved14:20 – The Mad Men Gala & Cruise for a Cause16:10 – Car Show Details & Registration Info18:30 – Porsche Raffle Announcement20:00 – Auctions, Prizes & Weekend Schedule22:00 – Final Thoughts & Volunteer InvitationCONNECT WITH USWebsite: https://www.bestofmidlandtx.comRyan Shewchuk: https://www.instagram.com/shewchukTerra Avery: https://www.instagram.com/terrawaypantsTikTok: www.tiktok.com/@bestofmidlandtxFacebook: https://www.facebook.com/bestofmidlandtxInstagram: https://www.instagram.com/bestofmidlandtxFacebook Group: https://www.facebook.com/groups/bestofmidlandtx—-----------------------LISTEN / SUBSCRIBE TO THE PODCASTApple Podcasts: https://bit.ly/bomtxitunesSpotify: https://bit.ly/bomtxspotify—-----------------------PRODUCED AND EDITED BY FORTY WOLVES STUDIOShttps://www.fortywolves.com

In this episode of the IDD Health Matters podcast, Terry Reiser discusses her deep involvement in the field of aging and developmental disabilities, highlighting her journey from attending a conference in 2017 to becoming a board member of the Association on Aging with Developmental Disabilities. She shares a personal story about her aunt with Down syndrome, who lived through the traumatic experience of Willowbrook, a notorious institution known for mistreatment of residents, and eventually found a better life in a group home. Reiser emphasizes the importance of recognizing the growing population of aging individuals with intellectual and developmental disabilities and the need for improved health care services, particularly through Medicaid and Medicare managed care programs. She advocates for better data collection, internal education within managed care organizations, and stronger community partnerships to enhance support and health equity for this vulnerable population.

Today's live is all about stabilising the lumbar spine after a disc injury or sciatica. We show you how to keep the spine still while you move, then build from the floor up with the six essentials: Dead Bug, Marching Bridge, Squat, Hip Hinge, Step-Up, and Single-Leg Hip Hinge. You'll learn why these beat endless stretching, how to judge progress (by capacity, not symptoms), and how to avoid common traps (e.g., relying on belts/braces).Q&A covers: knee pain with squats (how to modify), whether hip thrusts or heavy shrugs make sense (and when), “centralisation” misconceptions (don't wait to start rehab), decompression/IDD nuances, towel decompression comfort over time, and using load as your “healed for what?” yardstick.Start here → https://backinshapeprogram.com/start/Highlights:

Michael Alcorn is a dedicated student at Mohawk Community College, where he excels in the field of small business studies, having made the principal's list three times and being an esteemed member of the National Honor Society. Michael is also known for his cheerful demeanor and commitment at Taco Bell, where he is training to become a manager. Despite overcoming learning disabilities, Michael is pursuing his dream to open his own restaurant, the Acorn Tree, highlighting his perseverance and passion for entrepreneurship.Episode Summary:Join host Asheley Blaise on this inspiring episode of DSP Talk, where she engages with Michael Alcorn, a student at Mohawk Community College and an aspiring entrepreneur currently working at Taco Bell. Michael shares his journey of overcoming learning disabilities and the pivotal role employment specialists played in helping him find and keep meaningful employment. Discover the personal challenges he faced and how he turned them into opportunities to grow, both in education and in his job.In this enlightening conversation, Asheley and Michael delve into the significance of job coaches in the IDD field, contrasting prior unsupportive experiences with the transformative impact of dedicated employment specialists. Michael openly discusses the transitional journey from working at a sheltered workshop to thriving in a dynamic work environment, training to become a manager. As Michael approaches the completion of his studies, he aims to acquire a bachelor's degree and eventually open his restaurant, demonstrating determination fueled by supportive resources.Key Takeaways:Employment specialists play a vital role in aiding individuals with disabilities to secure and maintain fulfilling jobs.Finding the "right" employment specialist can be crucial to workplace success and personal growth.Experience in the fast-paced environment of Taco Bell has equipped Michael with skills and confidence for his future entrepreneurial endeavors.Education and patience have been key to Michael's journey towards managerial roles and the dream of owning a restaurant.Notable Quotes:"Having the right employment specialist can help you succeed in your job. Not just any employment specialist, but the right one." - Michael Alcorn"The two employment specialists that I had understood me, knew that I needed the experience to help open my own restaurant." - Michael AlcornTune in to this episode to gain an understanding of the intricacies of support systems that empower individuals with disabilities to achieve their career goals. Stay connected with DSP Talk for more inspiring stories and insights. Hosted on Acast. See acast.com/privacy for more information.

Dr. Alicia Thatcher, a family physician from Saskatchewan, Canada, specializes in primary care for adults with intellectual and developmental disabilities (IDD). Her passion for this field began as a camp counselor and evolved through involvement in organizations like Special Olympics and Best Buddies. Recognizing the gap in adult services compared to pediatric care, she has pioneered curriculum development for medical education, aiming to make care for adults with IDD more sustainable and widespread. She also plays a leadership role in national initiatives, including the Developmental Disabilities Member Interest Group and the American Academy of Developmental Medicine and Dentistry, advocating for integrated care and inclusive education. Her work emphasizes amplifying voices of those with lived experience, using respectful language in healthcare, and creatively embedding IDD topics into medical and dental training.

Today, it is my pleasure to speak with Debbie Bond Dear and Whitney Dear-Reyes. Debbie is the Founder & Executive Director of Vanguard Landing, a purpose-planned community designed to offer a safe, intentional, interactive, and inclusive community where persons with intellectual and developmental differences can thrive and achieve their life's full potential. Whitney is Board Chair of Vanguard Landing and serves as the organization's Development and Resource Director. First, Debbie and Whitney orient our listeners to the basics of this very important topic. They define the term “intellectual and developmental disabilities (IDD)”, describing what conditions fall within this umbrella label, and what are the most common challenges faced by people living with IDD. IDDs most commonly have a very early onset, affecting children from a very young age. Debbie and Whitney talk about the challenges faced by children with IDD and their parents, while also covering some of the opportunities that perhaps today largely remain unrealized. Debbie and Whitney describe the vision and objectives of Vanguard Landing and what they are looking to achieve with this ambitious project and how they plan to realize these goals. They also share their thoughts on how others can get involved with this noble cause – what businesses, families of means, philanthropies, and other organizations need to know or do to help and contribute to the wellbeing of people with IDD. Please take a close listen to this impactful and important conversation with two of the leading innovators and visionaries in the sphere of helping people with IDDs lead a full life.

Andrea Palmer, CEO and co-founder of Awake Labs, was featured on the IDD Health Matters podcast to discuss her company's innovative assistive technology designed to support individuals with intellectual and developmental disabilities (IDD). Awake Labs uses smartwatches to monitor stress and emotional escalation in real time, providing alerts for self-regulation and enabling timely intervention by support teams. The system includes a smartwatch app, mobile app, and a web dashboard for care teams to analyze behavioral trends and improve support strategies. This technology has helped users gain independence, reduce anxiety-related hospitalizations, and improve relationships and community engagement. Palmer emphasized the importance of collaboration, listening to diverse forms of communication, and finding joy in meaningful work that empowers individuals with IDD to lead more autonomous lives.

Latima Anderson Mason is an inspiring advocate and a dedicated mother to her daughter who has a disability. As her daughter transitions into adulthood, Latima has taken an active role in navigating the complexities of aging out of support services and exploring guardianship options. Her personal experiences have fueled her passion for advocacy, guiding other families through similar challenges with empathy and insight. Latima is currently engaging in workshops and legal processes to ensure her daughter's rights and independence are upheld as she enters this new life stage.Episode Summary:In this episode of DSP Talk, host Asheley Blaise engages in a poignant conversation with Latima Anderson Mason, a devoted mother and advocate for her daughter with disabilities. As Anika approaches adulthood, Latima shares the intricacies of the aging-out process, especially focusing on the transition from high school to adult services at the age of 21. By sharing her story, Latima helps to shed light on the critical path of securing guardianship while balancing her daughter's rights and independence—offering listeners a glimpse into the challenges and victories experienced by families navigating a similar journey.Latima Anderson Mason provides insight into the emotional and practical challenges of securing guardianship for her daughter, Anika, who is aging out of services. The discussion highlights essential topics such as the significance of understanding legal processes and maintaining the child's voice in critical decisions. Key resources such as AHRC New York workshops are mentioned, offering needed support to families. The episode concludes with Latima's personal hopes for a future where individuals with disabilities are seen and heard beyond their limitations. This episode is a must-listen for families and advocates in the disability community, providing relatable and beneficial guidance.Key Takeaways:Aging Out Process: Children with disabilities are entitled to services through the Individuals with Disabilities Education Act (IDEA) until they turn 21 (in NY, other States it can be up to 22).Guardianship: is a court process that allows a parent or caregiver to make legal, medical, or financial decisions for an adult child who is unable to make such decisions independently. (Source Planning for Children with Disabilities Aging Out of the School System - , May 01, 2025)Effective Communication: Continuously explaining processes and decisions to a child with disabilities helps in understanding and decision-making.Alternatives to Guardianship: Supported decision-making (SDM) is a practice by which people with intellectual and developmental disabilities (I/DD) are able to make their own decisions with the support of trusted persons in their lives and retain all their legal and civil rights. (Source: What is Supported Decision-Making? – SDMNY)Resources:AHRC New York: Guardianship ServicesOPWDD Transition Services Recorded Webinar May 9, 2024 Hosted on Acast. See acast.com/privacy for more information.

Massalan Forfana Bility, honored as the Direct Support Professional of the Year at the ANCOR conference, shares her inspiring journey in the field of intellectual and developmental disabilities (IDD) support. Starting in 2018, she transitioned from hospital work to direct support, driven by a passion for helping others. Her role involves assisting individuals with daily routines, promoting independence, administering medications, and recognizing health concerns. Massalan emphasizes empathy, treating those she supports as she would her own family, and shares a powerful story of transforming a challenging relationship into a deep friendship. Her dedication and compassionate approach highlight the profound impact of direct support work.

In this all-new Unified at Work Series episode, host Daniel Smrokowski sits down with Nefertiti “Neffie” S. Fisher, HR Operations Assistant Manager at United Airlines and ORD Bridge Disability BRG Director, to talk about The Arc's Wings for All® event hosted at Chicago O'Hare on August 16, 2025. Neffie shares highlights from the day, powerful behind-the-scenes stories, and the heartwarming moment when a young participant overcame his fears to board the plane. You'll also hear how United's Bridge BRG and The Arc are creating more inclusive air travel experiences for families with intellectual and developmental disabilities (IDD). This inspiring conversation will leave you encouraged to take simple steps toward building inclusion—in the airport, workplace, and beyond. Episode 794 ShowNotes & Links Listen and Follow at SpecialChronicles.com/Pod

In this all-new Unified at Work Series episode, host Daniel Smrokowski sits down with Nefertiti “Neffie” S. Fisher, HR Operations Assistant Manager at United Airlines and ORD Bridge Disability BRG Director, to talk about The Arc's Wings for All® event hosted at Chicago O'Hare on August 16, 2025. Neffie shares highlights from the day, powerful behind-the-scenes stories, and the heartwarming moment when a young participant overcame his fears to board the plane. You'll also hear how United's Bridge BRG and The Arc are creating more inclusive air travel experiences for families with intellectual and developmental disabilities (IDD). This inspiring conversation will leave you encouraged to take simple steps toward building inclusion—in the airport, workplace, and beyond.

Melody Johnson, Director of Education and Professional Development at Arc of Monroe, shares her personal and professional journey in the field of intellectual and developmental disabilities (IDD). Growing up in a family that provided care for individuals transitioning out of institutions, Melody was deeply influenced by her mother's progressive approach to fostering independence. Her career evolved from direct support professional (DSP) roles to leadership in workforce transformation and training. She discusses how COVID-19 reshaped training delivery, increasing accessibility through virtual platforms while also highlighting the trauma and isolation experienced by people with disabilities. Melody emphasizes the importance of trauma-informed care, shifting perspectives from “what's wrong with you” to “what happened to you.” She shares meaningful stories from her time as a DSP, including organizing enriching trips for individuals she supported. In her closing advice, she encourages inclusive community interactions, early exposure for children to diverse environments, and recognizes the deeply rewarding nature of working in the IDD field—not as a calling for angels, but for those who care.

When someone becomes a victim of a crime, a long and often overwhelming process towards justice begins. It can be extremely difficult and taxing for anyone but when people with disabilities, especially those with intellectual/developmental disabilities (IDD), enter this process, barriers and systemic failures might mean that they never get to see the justice they deserve. This documentary exposes these failures through the lens of advocacy and victim support providers.

In this week's episode, John and Cynthia reflect on the tradition of capturing portraits at the Self-Advocates of Indiana picnic and the powerful impact these photos have in celebrating smiles, memories, and joy within the IDD community. They share stories of how a simple photograph can open doors to connection, highlight individual gifts, and create lasting keepsakes that honor each person's life. Resources mentioned in the episode: To learn more about the Portrait Project, email us at Episode Transcript Want to share stories with us? Email us at MyQuillo.com

In this IDD Perspectives webinar episode Dr. Craig Escudé and behavior analyst Ley Linder discuss the five core functions of behavior—access to items/activities, access to attention, escape, avoidance, and sensory/autonomic reinforcement—and emphasize that behaviors are typically multi-functional and require multidisciplinary approaches for effective support. They highlight the importance of recognizing behavioral changes as potential indicators of underlying medical issues, warning against diagnostic overshadowing. The conversation also stresses the value of empathy, human connection, and the critical role of direct support professionals in identifying subtle behavioral shifts. Practical tools, such as pattern recognition and the "duck philosophy" (favoring simple explanations first), are recommended to improve care and reduce unnecessary suffering.

✈️ In this episode of the Special Chronicles Podcast's Unified at Work Series, host Daniel Smrokowski welcomes Samantha Alloway, Executive Director of The Arc of Illinois, for an inspiring conversation about the Wings for All program. Recorded following the August 16, 2025 Wings for All event at Chicago O'Hare International Airport (ORD) in partneship with United Airlines' Bridge Disability Business Resource Group, this episode dives into: What Wings for All is and why it matters for travelers with autism and intellectual/developmental disabilities (IDD). Behind-the-scenes stories from the event at O'Hare. Heartwarming family moments, including a child who overcame fears to board an aircraft for the first time. The importance of inclusion in airports, workplaces, schools, and communities.

✈️ In this episode of the Special Chronicles Podcast's Unified at Work Series, host Daniel Smrokowski welcomes Samantha Alloway, Executive Director of The Arc of Illinois, for an inspiring conversation about the Wings for All program. Recorded following the August 16, 2025 Wings for All event at Chicago O'Hare International Airport (ORD) in partnership with United Airlines' Bridge Disability Business Resource Group, this episode dives into: What Wings for All is and why it matters for travelers with autism and intellectual/developmental disabilities (IDD). Behind-the-scenes stories from the event at O'Hare. Heartwarming family moments, including a child who overcame fears to board an aircraft for the first time. The importance of inclusion in airports, workplaces, schools, and communities.

In this episode of 'Pushing Forward with Alycia,' Alycia Anderson welcomes Sarah Crawford, CEO of TLC and a North Carolina state representative, to discuss her extensive work in supporting individuals with intellectual and developmental disabilities (IDD). Sarah shares her inspiring journey from a service-oriented family to her impactful roles in both nonprofit and government sectors. They delve into the services TLC provides, such as residential care and early childhood intervention, and the critical need for funding and education to support IDD families. Sarah also highlights the importance of caregiver recognition and advocacy. Tune in for an enlightening discussion on the intersection of nonprofit work, policy, and the quest to empower individuals of all abilities to live their fullest lives. Where to Find Each Topic 00:00 Introduction to Pushing Forward with Alycia 00:25 Meet Sarah Crawford: A Leader in Disability Advocacy 01:53 Sarah's Journey: From Service-Oriented Upbringing to Government 05:35 The Mission and Impact of TLC 12:12 Challenges and Advocacy in Disability Services 16:15 Balancing Roles: CEO, Legislator, and Mother 22:45 Future Goals and Community Involvement 28:15 Closing Thoughts and Inspirational Message A Quote from Sarah Crawford ” When we're called to serve and we can do it, I think we have an obligation to answer that call.” ~ Sarah Crawford Main Topics & Insights

Dr. Jack Dillenberg is a pioneering figure in public health and dentistry, known for founding the Arizona School of Dentistry and Oral Health with a focus on service, public health, and underserved communities. His career spans impactful roles including state health director in Arizona, global health work in Jamaica and India, and advocacy for individuals with intellectual and developmental disabilities. He championed innovations like tele-dentistry, dental therapy, and nutrition education in dental care, and collaborated with figures like Mother Teresa and Major League Baseball to promote health equity. His upcoming book, You Don't Know Jack, But You Should, captures his remarkable journey and lifelong commitment to making a difference.

In this episode of the Inside JABA Series podcast, we dive into a fascinating discussion on health-related routines for adults with intellectual and developmental disabilities (IDD). Dr. Katie McHugh, Dr. Claudia Dozier, and Editor-in-Chief Dr. John Borrero share insights from their recent study, Synchronous Reinforcement Schedules Promote Tolerance of Health-Related Routines for Adults with Disabilities. The conversation explores how synchronous reinforcement schedules—where reinforcement occurs in real time alongside behavior—can improve tolerance for essential routines like toothbrushing, bathing, wearing medical devices, and more. The research team highlights case studies, methodological considerations, and the broader implications for clinical practice. Key Topics Covered ✅ Synchronous reinforcement schedules and why they may be more effective (and preferred) than delayed reinforcement. ✅ Applications for health routines such as toothbrushing, bathing, mask-wearing, GPS bracelets, helmets, and pulse oximeters. ✅ Collaborative service delivery with nursing and medical professionals. ✅ Challenges in participant consent and maintaining experimental control. ✅ Importance of measuring both behavioral outcomes and affective states. ✅ Future research directions, including reinforcer assessments, continuous vs. discontinuous schedules, and maintaining treatment effects. Next Steps and Future Directions Editorial updates for broader keyword usage to increase accessibility outside of behavior analysis. Comparing graduated exposure with contingent vs. synchronous reinforcement interventions. Implementing more systematic preference and reinforcer assessments in future studies. Exploring hybrid approaches (e.g., combining graduated exposure with synchronous reinforcement). Collecting more comprehensive data on participant affect and treatment integrity. Resources & References Dr. Dozier's lab website. Dr. Dozier's KU faculty page. KU ABS online and on-campus graduate programs. DeLeon, I. G., Hagopian, L. P., Rodriguez-Catter, V., Bowman, L. G., Long, E. S., & Boelter, E. W. (2008). Increasing wearing of prescription glasses in individuals with mental retardation. Journal of Applied Behavior Analysis, 41(1), 137–142. Diaz de Villegas, S. C., Dozier, C. L., Jess, R. L., & Foley, E. A. (2020). An evaluation of synchronous reinforcement for increasing on-task behavior in preschool children. Journal of Applied Behavior Analysis, 53(3), 1660–1673. Hardesty, E. M., Lerman, D. C., & Hardee, J. L. (2023). A comparison of synchronous and noncontingent stimulus delivery on task engagement. Journal of Applied Behavior Analysis, 56(3), 664–673. Leslie, S. C., Dozier, C. L., Kamlowsky, M. E., McHugh, C. L., Diaz de Villegas, S. C., & Kanaman, K. C. (2024). Using synchronous reinforcement to increase mask wearing in young children. Behavioral Interventions, 39(1), 1–29. McHugh, C. L., Dozier, C. L., Diaz de Villegas, S. C., & Kanaman, N. A. (2022). Using synchronous reinforcement to increase mask wearing in adults with developmental disabilities. Journal of Applied Behavior Analysis, 55(4), 1157–1171. Williams, D. C., & Johnston, J. M. (1992). Continuous versus discrete dimensions of reinforcement schedules: An integrative analysis. Journal of the Experimental Analysis of Behavior, 58(1), 205–228. Ellis, E. M., Ala'i-Rosales, S. S., Glenn, S. S., Rosales-Ruiz, J., & Greenspoon, J. (2006). The effects of graduated exposure, modeling, and contingent social attention on tolerance to skin care products with two children with autism. Research in Developmental Disabilities, 27(6), 585–598. Halbur, M., Kodak, T., McKee, M., Carroll, R., Preas, E., Reidy, J., & Cordeiro, M. C. (2021). Tolerance of face coverings for children with autism spectrum disorder. Journal of Applied Behavior Analysis, 54(2), 600-617. Richling, S. M., Rapp, J. T., Carroll, R. A., Smith, J. N., Nystedt, A., & Siewert, B. (2011). Using noncontingent reinforcement to increase compliance with wearing prescription prostheses. Journal of Applied Behavior Analysis, 44(2), 375-379. Stark, L. J., Allen, K. D., Hurst, M., Nash, D. A., Rigney, B., & Stokes, T. F. (1989). Distraction: Its utilization and efficacy with children undergoing dental treatment. Journal of Applied Behavior Analysis, 22(3), 297-307. About the Guests Dr. Catherine (Katie) McHugh – Researcher focused on health-related routines and intervention strategies for adults with disabilities. Dr. Claudia Dozier – Expert in reinforcement schedules and their applications across populations. Dr. John Barrero – Current JABA Editor-in-Chief and behavior analyst contributing to dissemination and accessibility of applied research.

Join Jayson Davies as he sits down with occupational therapists and co-founders of B3 Coffee, Jacqueline and Greg Boheler, to explore their unique, neurodiversity-affirming non-profit. They share how they've built a multi-faceted organization that includes a transitional employment model and a robust community program to support young adults with disabilities beyond high school. This episode provides invaluable insight into how school-based OTs can support transition-age youth by focusing on foundational skills and connecting families with crucial adult services. You will also get a look at B3 Coffee's exciting plans to launch a replicable "clubhouse" model for the IDD community. Listen now to be inspired to facilitate meaningful change for your students and your community!Listen now to learn the following objectives:Learners will identify why a "cliff" occurs and recognize the urgency of addressing it by connecting students and families with crucial adult resources and advocating for a focus on lifelong skills.Listeners will understand the significant gap in services and support that many young adults with disabilities experience after graduating high school.Listeners will grasp the occupational therapist's vital role in helping students develop a comprehensive, occupation-based transition portfolio.  Kick off the 2025-26 school year at the Back to School Conference!Learn why so many OTPs dub the Back to School Conference their FAVORITE OT conference. Join 600+ school-based OT practitioners in accessing knowledge, resources, and support to start the school year strong. CLICK HERE to save $50 and secure your spot with code PODCAST25Thanks for tuning in! Thanks for tuning into the OT Schoolhouse Podcast brought to you by the OT Schoolhouse Collaborative Community for school-based OTPs. In OTS Collab, we use community-powered professional development to learn together and implement strategies together. Don't forget to subscribe to the show and check out the show notes for every episode at OTSchoolhouse.comSee you in the next episode!

This IDD Health Matters podcast features a conversation between Dr. Craig Escudé and Ley Linder, focusing on a collaborative initiative called “Unlocking Behaviors.” This project, inspired by Dr. Rick Rader, aims to bridge the gap between medical and behavioral approaches when evaluating challenging behaviors in individuals with intellectual and developmental disabilities (IDD). The discussion emphasizes the importance of integrated healthcare, where medical, mental, oral, and behavioral health professionals work together to uncover the root causes of behaviors that may initially seem purely psychological but often have underlying medical explanations. Both speakers highlight the critical role of direct support professionals, who, despite lacking formal training, possess deep knowledge of the individuals they care for and can provide essential observational insights. The conversation also addresses the lack of formal training in both medical and behavioral fields regarding the intersection of health and behavior, advocating for ongoing education and openness to interdisciplinary collaboration.

In 1999, three young employees were found murdered inside a Tucson Pizza Hut—a crime so brutal it shook the city to its core. Who could have carried out such a cold-blooded attack, and why? Join us as we dive into the Pizza Hut murders, the investigation, and the lingering questions that still haunt Arizona. Homicide Survivors Organization: https://homicidesurvivorsinc.org NOW AVAILABLE: CRIME WITH HOLLY PATREON! www.patreon.com/crimewithholly Enjoy ad free for just $2 a month! Enjoying the show?  Here's a way to find out where else you can follow CrimeaHolly! https://linktr.ee/CrimeaHolly Crime with Holly Case Suggestion Form: https://docs.google.com/forms/d/e/1FAIpQLScGdPu4AWAoG_-cmznwcNxnNQlEyX9nxxOwZNZfqpprL3TaUQ/viewform Sources: https://www.findagrave.com/memorial/74059477/robert-thomas-c7urry https://www.findagrave.com/memorial/22256302/melisa-mae-moniz https://www.findagrave.com/memorial/94321068/james_andrew-bloxham https://caselaw.findlaw.com/court/az-supreme-court/1262237.html https://caselaw.findlaw.com/court/az-supreme-court/1346307.html https://news.azpm.org/p/news-articles/2019/6/14/153378-capital-punishment-mayoral-powers-regina-romero/ https://www.upi.com/Archives/1999/01/19/Pizza-Hut-slaying-suspects-IDd/2881916722000/ https://azdailysun.com/pizza-hut-murders-conviction-still-stands/article_6ca44715-92f1-50f1-ae5e-fd676ad77366.html https://www.kold.com/story/3938377/jury-finds-pizza-hut-murder-suspect-not-guilty-in-second-trial/ https://tucson.com/news/article_a8c4fd2f-45d4-5b44-a3a6-4e2a4c1e8f15.html?utm_source=tucson.com&utm_medium=js_redirect&utm_campaign=invalid_source http://www.ultimateracinghistory.com/race.php?raceid=7995 https://146.19.24.59/news/local/crime/25-000-for-homicide-survivors/article_fafc9815-fa04-52e0-b7c9-54301fdfdf68.html?__cpo=aHR0cHM6Ly90dWNzb24uY29t https://www.kold.com/story/1428563/conviction-for-pizza-hut-killer-overturned/ https://www.kold.com/story/5710221/killer-re-sentenced-for-pizza-hut-killings/ https://www.kold.com/story/3938377/jury-finds-pizza-hut-murder-suspect-not-guilty-in-second-trial/ https://185.246.85.105/news/local/crime/3rd-trial-starts-for-defendant-in-pizza-hut-killings/article_917f09f2-7bff-502b-8b97-06b6718ccaef.html?__cpo=aHR0cHM6Ly90dWNzb24uY29t https://www.kgun9.com/news/local-news/pizza-hut-murders-mysteries-remain-20-years-later https://www.kold.com/story/1428563/conviction-for-pizza-hut-killer-overturned/ https://news.azpm.org/s/67635-sister-of-murder-victim-describes-emotional-toll-of-suspects-trials/ https://www.kvoa.com/news/local/man-convicted-of-murdering-pizza-hut-employees-to-be-released/article_dd0d70b2-ac37-11ee-89f8-7b97b73bb660.html https://www.kgun9.com/news/local-news/pizza-hut-murders-still-haunting-20-years-later https://tucson.com/news/local/crime/25-000-for-homicide-survivors/article_fafc9815-fa04-52e0-b7c9-54301fdfdf68.html https://www.kgun9.com/news/local-news/pizza-hut-murders-mysteries-remain-20-years-later https://www.youtube.com/watch?v=Duy8N2WJK-0&t=1425s https://www.youtube.com/watch?v=6lzkt8Wifas

Fetal Alcohol Spectrum Disorders (FASD) is an often-overlooked diagnosis for many people, but it's important to spread awareness to help those who need it get the correct supports. Hear from Marilyn Fausset, who is the Chair of the FASD Awareness Work Group at Illuminate Colorado, as she discusses her family's journey to the diagnosis and all that she's learned since!

Dr. Anthony Rodriguez, featured on the IDD Health Matters podcast during the 2025 AAIDD Conference, shares his journey from a finance major to a full professor at Providence College, driven by a passion for supporting individuals with intellectual and developmental disabilities (IDD). His work blends mathematics education with advocacy, focusing on financial literacy and scam prevention to empower people with IDD. He highlights the importance of community-based research, peer mentoring, and storytelling as tools for growth and connection. As the incoming president of AAIDD, Rodriguez aims to foster collaboration among fellows and celebrate the organization's upcoming 150th anniversary, emphasizing unity, calm, and shared expertise in advancing health equity.

Nonprofit organizations face unprecedented challenges in today's uncertain environment. With financial pressures mounting and workforce shortages continuing, many organizations are exploring strategic partnerships as a path forward. But what separates successful nonprofit mergers from failed ones?The answer lies in mission alignment. The most effective mergers begin not from financial desperation but from a shared vision of expanding impact and improving service quality. As one expert puts it, these partnerships create situations where "one plus one equals three" - allowing organizations to serve more people, improve quality, expand reach, and innovate in ways they couldn't accomplish alone.Take the case of three small IDD providers in Maine who recently merged to become the state's largest provider organization. By combining forces, they've retained their local community presence while upgrading technology, improving benefits, and enhancing service consistency. This exemplifies how thoughtful mergers can preserve and strengthen an organization's mission rather than diminish it.Getting there requires navigating complex human dynamics. Boards must transition from routine oversight to strategic leadership, which means creating focused task forces, providing education about the merger process, and ensuring members don't let personal fears derail progress. Staff communication presents equally delicate challenges – share information too early, and you risk unnecessary anxiety; share too late, and you undermine trust essential for successful integration.Outside expertise proves invaluable throughout this journey. Beyond technical specialists in legal, financial, and HR matters, strategic advisors who understand nonprofit culture can keep everyone focused on the mission when tensions rise. They serve as both architects and confidants, providing CEOs a safe space to express concerns they can't share with their teams.As we navigate this challenging landscape, remember: "You're either at the table or you're on the menu." Having a growth strategy isn't optional anymore. The most successful organizations proactively seek partnerships that allow their missions to flourish beyond any individual leader's tenure. Join us to learn how your organization can approach mergers as strategic evolution rather than surrender.Send us a text

Please join us for “Trauma, Healing, and Positive Identity with Dr. Karyn Harvey, PhD.”Karyn Harvey has worked as a clinician in the field of intellectual disabilities for over 35 years. She has her Ph.D. in Applied Developmental Psychology from the University of Maryland. She has written three books: Positive Identity Development, Trauma–Informed Behavioral Interventions, and Trauma and Healing. She has a private practice and does therapy with people with intellectual disabilities. In addition, she regularly conducts training on trauma-informed support for people with IDD, trauma-informed leadership, and trauma-informed behavioral interventions for both state and individual organizations throughout the US and Canada. She sees restraints and seclusion as both traumatizing and re-traumatizing to the recipients and is passionate about the elimination of these procedures.Support the show

This IDD Perspectives webinar episode features Dr. M. Dian Chin Kit-Wells, a board-certified pediatric dentist and president of the American Academy of Developmental Medicine and Dentistry. The discussion centers on the most common dental health concerns affecting individuals with intellectual and developmental disabilities (IDD). Topics include the systemic importance of oral health, gum disease, halitosis, tongue abnormalities, enamel erosion, and bruxism. The conversation emphasizes the connection between oral and overall health, the impact of medications, and the role of caregivers in maintaining dental hygiene. Practical advice is offered on prevention strategies, including brushing, flossing, dietary choices, and the use of baking soda. This episode also highlights resources and organizations that support dental care for people with IDD, advocating for interdisciplinary collaboration and education. You can find the free handout mentioned during the webinar at https://replacingrisk.com/webinars/. All webinar handouts are located at the bottom of the page.

Rebecca Enders discusses supports and services for individuals with intellectual and developmental disabilities. Rebecca, a board-certified case manager and director of case management at Optimal Health Care in Maryland, outlines the importance of coordinated services, including Medicaid waivers, community integration, and support across the lifespan. Having transitioned from a 15-year career in education, Rebecca found renewed purpose in case management, eventually developing a data-driven acuity model called Atlas Acuity. This system assesses client needs using weighted metrics to calculate an acuity score, guiding the assignment of caseloads and preventing case manager burnout. Her approach emphasizes time allocation and service equity, empowering professionals to deliver meaningful care while sustaining well-being and effectiveness within the field.

Carol Price Guthrie has spent over three decades working in the field of intellectual and developmental disabilities (IDD), beginning as a direct support professional in Tennessee. Her career journey includes roles in case management, program development, and managed care, with experience founding her own case management agency and contributing to projects at UnitedHealthcare. Currently, she serves as Senior Director of Waiver and Program Development at StationMD, a telehealth company specializing in medical services for individuals with IDD. Guthrie is deeply committed to health equity, advocating for specialized, ongoing training and personalized support that enables people with IDD to access community-based services and live with dignity and independence.

When it comes to supporting people with intellectual/developmental disabilities, particularly with autism, it's important to work hard to find the right path. A common therapy that many families and individuals utilize, ABA (Applied Behavior Analysis) can be a very helpful tool in ensuring safety and success in community spaces.   However, is it the best choice (or only choice) to help someone with IDD use their voice and be their authentic selves in the world?   In this episode, Sarah Grazier, Executive Director of the Colorado Developmental Disabilities Council, joins THINK+change to discuss the importance of community integration and how we can support individuals with IDD in a variety of ways!

Jean Phelps, CEO of Encompass Human Services, passionately advocates for expanding awareness and accessibility in services for individuals with intellectual and developmental disabilities. Her organization offers a wide range of supports, including residential, day, employment, and brain injury services, all designed to integrate individuals meaningfully into their communities. Jean emphasizes that the core qualifications for becoming a direct support professional are the everyday skills people use to live their own lives, coupled with a genuine spirit and desire to help others. She believes career growth within the field should be nurtured and supported, even if that means mentoring someone who eventually leaves for a leadership role elsewhere. Through her own story—beginning with a transformative summer camp experience—Jean illustrates the deep personal and professional fulfillment found in this field and highlights the critical need for grace, individual empowerment, and space to learn through missteps.

In this episode of Quillo Pod, hosts Cynthia Morraz and John Dickerson explore whether joy has a price tag, particularly for individuals in the IDD. They discuss how budgets should serve as pathways to joy rather than constraints, sharing examples of finding happiness through community connections and natural supports. The conversation highlights how meaningful activities don't always require significant funding, emphasizing the importance of understanding what truly brings joy to individuals with disabilities beyond just service units and budget allocations.   Episode Transcript  Want to share stories with us? Email us at Quillopod@myquillo.com To learn more about Quillo Connect visit MyQuillo.com

It's a Raspberry Pi flavored show, with PiBoot improvements, and a really slick looking Raspberry Pi Laptop from Argon Fourty. System76 isn't to be left out with a new powerhouse laptop of their own. There's AMD Raytracing improvements, an acquisition in the Processor space, and an exciting new OBS release. For command line tips we talk about Proxmox scripting, ProtonPlus, and the ldd tool for Listing Dynamic Dependencies. You can find the full show notes at http://bit.ly/44EEdnP and enjoy! Host: Jonathan Bennett Co-Hosts: Rob Campbell and Jeff Massie Download or subscribe to Untitled Linux Show at https://twit.tv/shows/untitled-linux-show Want access to the ad-free video and exclusive features? Become a member of Club TWiT today! https://twit.tv/clubtwit Club TWiT members can discuss this episode and leave feedback in the Club TWiT Discord.

The Genuine Cup is expanding to 40 teams for their 2025 competition involving athletes with intellectual and developmental disabilitiesThe Genuine Foundation's Ana Torras drops by to talk about the tournament, it's growth from 2024 to this season- set for Rice University at the end of July- and what it means to have the tournament in place for inclusion