Podcasts about Idd

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Latest podcast episodes about Idd

IDD Health Matters
Ep 112: Understanding Behavior as Communication With Ley Linder

IDD Health Matters

Play Episode Listen Later Sep 8, 2025 29:55


In this IDD Perspectives webinar episode Dr. Craig Escudé and behavior analyst Ley Linder discuss the five core functions of behavior—access to items/activities, access to attention, escape, avoidance, and sensory/autonomic reinforcement—and emphasize that behaviors are typically multi-functional and require multidisciplinary approaches for effective support. They highlight the importance of recognizing behavioral changes as potential indicators of underlying medical issues, warning against diagnostic overshadowing. The conversation also stresses the value of empathy, human connection, and the critical role of direct support professionals in identifying subtle behavioral shifts. Practical tools, such as pattern recognition and the "duck philosophy" (favoring simple explanations first), are recommended to improve care and reduce unnecessary suffering.

Special Chronicles Show Podcast
Wings for All: Flying with Heart – A Conversation with The Arc's Samantha Alloway

Special Chronicles Show Podcast

Play Episode Listen Later Sep 8, 2025 86:28


✈️ In this episode of the Special Chronicles Podcast's Unified at Work Series, host Daniel Smrokowski welcomes Samantha Alloway, Executive Director of The Arc of Illinois, for an inspiring conversation about the Wings for All program. Recorded following the August 16, 2025 Wings for All event at Chicago O'Hare International Airport (ORD) in partneship with United Airlines' Bridge Disability Business Resource Group, this episode dives into: What Wings for All is and why it matters for travelers with autism and intellectual/developmental disabilities (IDD). Behind-the-scenes stories from the event at O'Hare. Heartwarming family moments, including a child who overcame fears to board an aircraft for the first time. The importance of inclusion in airports, workplaces, schools, and communities.

Pushing Forward with Alycia | A Disability Podcast
Unlocking Change: Sarah Crawford's Take on Disability, Politics & Advocacy

Pushing Forward with Alycia | A Disability Podcast

Play Episode Listen Later Sep 4, 2025 31:45


In this episode of 'Pushing Forward with Alycia,' Alycia Anderson welcomes Sarah Crawford, CEO of TLC and a North Carolina state representative, to discuss her extensive work in supporting individuals with intellectual and developmental disabilities (IDD). Sarah shares her inspiring journey from a service-oriented family to her impactful roles in both nonprofit and government sectors. They delve into the services TLC provides, such as residential care and early childhood intervention, and the critical need for funding and education to support IDD families. Sarah also highlights the importance of caregiver recognition and advocacy. Tune in for an enlightening discussion on the intersection of nonprofit work, policy, and the quest to empower individuals of all abilities to live their fullest lives. Where to Find Each Topic 00:00 Introduction to Pushing Forward with Alycia 00:25 Meet Sarah Crawford: A Leader in Disability Advocacy 01:53 Sarah's Journey: From Service-Oriented Upbringing to Government 05:35 The Mission and Impact of TLC 12:12 Challenges and Advocacy in Disability Services 16:15 Balancing Roles: CEO, Legislator, and Mother 22:45 Future Goals and Community Involvement 28:15 Closing Thoughts and Inspirational Message A Quote from Sarah Crawford ” When we're called to serve and we can do it, I think we have an obligation to answer that call.” ~ Sarah Crawford Main Topics & Insights

IDD Health Matters
Ep 111: Revolutionizing Dentistry with Heart: The Jack Dillenberg Story

IDD Health Matters

Play Episode Listen Later Sep 1, 2025 22:27


Dr. Jack Dillenberg is a pioneering figure in public health and dentistry, known for founding the Arizona School of Dentistry and Oral Health with a focus on service, public health, and underserved communities. His career spans impactful roles including state health director in Arizona, global health work in Jamaica and India, and advocacy for individuals with intellectual and developmental disabilities. He championed innovations like tele-dentistry, dental therapy, and nutrition education in dental care, and collaborated with figures like Mother Teresa and Major League Baseball to promote health equity. His upcoming book, You Don't Know Jack, But You Should, captures his remarkable journey and lifelong commitment to making a difference.

The Behavioral Observations Podcast with Matt Cicoria
Improving Health Routines for Adults with Disabilities Using Synchronous Reinforcement Strategies: Inside JABA 24

The Behavioral Observations Podcast with Matt Cicoria

Play Episode Listen Later Aug 28, 2025 61:27


In this episode of the Inside JABA Series podcast, we dive into a fascinating discussion on health-related routines for adults with intellectual and developmental disabilities (IDD). Dr. Katie McHugh, Dr. Claudia Dozier, and Editor-in-Chief Dr. John Borrero share insights from their recent study, Synchronous Reinforcement Schedules Promote Tolerance of Health-Related Routines for Adults with Disabilities. The conversation explores how synchronous reinforcement schedules—where reinforcement occurs in real time alongside behavior—can improve tolerance for essential routines like toothbrushing, bathing, wearing medical devices, and more. The research team highlights case studies, methodological considerations, and the broader implications for clinical practice. Key Topics Covered ✅ Synchronous reinforcement schedules and why they may be more effective (and preferred) than delayed reinforcement. ✅ Applications for health routines such as toothbrushing, bathing, mask-wearing, GPS bracelets, helmets, and pulse oximeters. ✅ Collaborative service delivery with nursing and medical professionals. ✅ Challenges in participant consent and maintaining experimental control. ✅ Importance of measuring both behavioral outcomes and affective states. ✅ Future research directions, including reinforcer assessments, continuous vs. discontinuous schedules, and maintaining treatment effects. Next Steps and Future Directions Editorial updates for broader keyword usage to increase accessibility outside of behavior analysis. Comparing graduated exposure with contingent vs. synchronous reinforcement interventions. Implementing more systematic preference and reinforcer assessments in future studies. Exploring hybrid approaches (e.g., combining graduated exposure with synchronous reinforcement). Collecting more comprehensive data on participant affect and treatment integrity. Resources & References Dr. Dozier's lab website. Dr. Dozier's KU faculty page. KU ABS online and on-campus graduate programs. DeLeon, I. G., Hagopian, L. P., Rodriguez-Catter, V., Bowman, L. G., Long, E. S., & Boelter, E. W. (2008). Increasing wearing of prescription glasses in individuals with mental retardation. Journal of Applied Behavior Analysis, 41(1), 137–142. Diaz de Villegas, S. C., Dozier, C. L., Jess, R. L., & Foley, E. A. (2020). An evaluation of synchronous reinforcement for increasing on-task behavior in preschool children. Journal of Applied Behavior Analysis, 53(3), 1660–1673. Hardesty, E. M., Lerman, D. C., & Hardee, J. L. (2023). A comparison of synchronous and noncontingent stimulus delivery on task engagement. Journal of Applied Behavior Analysis, 56(3), 664–673. Leslie, S. C., Dozier, C. L., Kamlowsky, M. E., McHugh, C. L., Diaz de Villegas, S. C., & Kanaman, K. C. (2024). Using synchronous reinforcement to increase mask wearing in young children. Behavioral Interventions, 39(1), 1–29. McHugh, C. L., Dozier, C. L., Diaz de Villegas, S. C., & Kanaman, N. A. (2022). Using synchronous reinforcement to increase mask wearing in adults with developmental disabilities. Journal of Applied Behavior Analysis, 55(4), 1157–1171. Williams, D. C., & Johnston, J. M. (1992). Continuous versus discrete dimensions of reinforcement schedules: An integrative analysis. Journal of the Experimental Analysis of Behavior, 58(1), 205–228. Ellis, E. M., Ala'i-Rosales, S. S., Glenn, S. S., Rosales-Ruiz, J., & Greenspoon, J. (2006). The effects of graduated exposure, modeling, and contingent social attention on tolerance to skin care products with two children with autism. Research in Developmental Disabilities, 27(6), 585–598. Halbur, M., Kodak, T., McKee, M., Carroll, R., Preas, E., Reidy, J., & Cordeiro, M. C. (2021). Tolerance of face coverings for children with autism spectrum disorder. Journal of Applied Behavior Analysis, 54(2), 600-617. Richling, S. M., Rapp, J. T., Carroll, R. A., Smith, J. N., Nystedt, A., & Siewert, B. (2011). Using noncontingent reinforcement to increase compliance with wearing prescription prostheses. Journal of Applied Behavior Analysis, 44(2), 375-379. Stark, L. J., Allen, K. D., Hurst, M., Nash, D. A., Rigney, B., & Stokes, T. F. (1989). Distraction: Its utilization and efficacy with children undergoing dental treatment. Journal of Applied Behavior Analysis, 22(3), 297-307. About the Guests Dr. Catherine (Katie) McHugh – Researcher focused on health-related routines and intervention strategies for adults with disabilities. Dr. Claudia Dozier – Expert in reinforcement schedules and their applications across populations. Dr. John Barrero – Current JABA Editor-in-Chief and behavior analyst contributing to dissemination and accessibility of applied research.

The OT School House for School-Based OTs Podcast
Brewing Community with A Neurodiversity-Affirming Model for Transition-Age Youth

The OT School House for School-Based OTs Podcast

Play Episode Listen Later Aug 25, 2025 51:25


Join Jayson Davies as he sits down with occupational therapists and co-founders of B3 Coffee, Jacqueline and Greg Boheler, to explore their unique, neurodiversity-affirming non-profit. They share how they've built a multi-faceted organization that includes a transitional employment model and a robust community program to support young adults with disabilities beyond high school. This episode provides invaluable insight into how school-based OTs can support transition-age youth by focusing on foundational skills and connecting families with crucial adult services. You will also get a look at B3 Coffee's exciting plans to launch a replicable "clubhouse" model for the IDD community. Listen now to be inspired to facilitate meaningful change for your students and your community!Listen now to learn the following objectives:Learners will identify why a "cliff" occurs and recognize the urgency of addressing it by connecting students and families with crucial adult resources and advocating for a focus on lifelong skills.Listeners will understand the significant gap in services and support that many young adults with disabilities experience after graduating high school.Listeners will grasp the occupational therapist's vital role in helping students develop a comprehensive, occupation-based transition portfolio.  Kick off the 2025-26 school year at the Back to School Conference!Learn why so many OTPs dub the Back to School Conference their FAVORITE OT conference. Join 600+ school-based OT practitioners in accessing knowledge, resources, and support to start the school year strong. CLICK HERE to save $50 and secure your spot with code PODCAST25Thanks for tuning in! Thanks for tuning into the OT Schoolhouse Podcast brought to you by the OT Schoolhouse Collaborative Community for school-based OTPs. In OTS Collab, we use community-powered professional development to learn together and implement strategies together. Don't forget to subscribe to the show and check out the show notes for every episode at OTSchoolhouse.comSee you in the next episode!

IDD Health Matters
Ep 110: Bridging Medical and Behavioral Care With Ley Linder

IDD Health Matters

Play Episode Listen Later Aug 25, 2025 12:38


This IDD Health Matters podcast features a conversation between Dr. Craig Escudé and Ley Linder, focusing on a collaborative initiative called “Unlocking Behaviors.” This project, inspired by Dr. Rick Rader, aims to bridge the gap between medical and behavioral approaches when evaluating challenging behaviors in individuals with intellectual and developmental disabilities (IDD). The discussion emphasizes the importance of integrated healthcare, where medical, mental, oral, and behavioral health professionals work together to uncover the root causes of behaviors that may initially seem purely psychological but often have underlying medical explanations. Both speakers highlight the critical role of direct support professionals, who, despite lacking formal training, possess deep knowledge of the individuals they care for and can provide essential observational insights. The conversation also addresses the lack of formal training in both medical and behavioral fields regarding the intersection of health and behavior, advocating for ongoing education and openness to interdisciplinary collaboration.

Crime with Holly
The Pizza Hut Murders

Crime with Holly

Play Episode Listen Later Aug 23, 2025 42:17


In 1999, three young employees were found murdered inside a Tucson Pizza Hut—a crime so brutal it shook the city to its core. Who could have carried out such a cold-blooded attack, and why? Join us as we dive into the Pizza Hut murders, the investigation, and the lingering questions that still haunt Arizona. Homicide Survivors Organization: https://homicidesurvivorsinc.org NOW AVAILABLE: CRIME WITH HOLLY PATREON! www.patreon.com/crimewithholly Enjoy ad free for just $2 a month! Enjoying the show?  Here's a way to find out where else you can follow CrimeaHolly! https://linktr.ee/CrimeaHolly Crime with Holly Case Suggestion Form: https://docs.google.com/forms/d/e/1FAIpQLScGdPu4AWAoG_-cmznwcNxnNQlEyX9nxxOwZNZfqpprL3TaUQ/viewform Sources: https://www.findagrave.com/memorial/74059477/robert-thomas-c7urry https://www.findagrave.com/memorial/22256302/melisa-mae-moniz https://www.findagrave.com/memorial/94321068/james_andrew-bloxham https://caselaw.findlaw.com/court/az-supreme-court/1262237.html https://caselaw.findlaw.com/court/az-supreme-court/1346307.html https://news.azpm.org/p/news-articles/2019/6/14/153378-capital-punishment-mayoral-powers-regina-romero/ https://www.upi.com/Archives/1999/01/19/Pizza-Hut-slaying-suspects-IDd/2881916722000/ https://azdailysun.com/pizza-hut-murders-conviction-still-stands/article_6ca44715-92f1-50f1-ae5e-fd676ad77366.html https://www.kold.com/story/3938377/jury-finds-pizza-hut-murder-suspect-not-guilty-in-second-trial/ https://tucson.com/news/article_a8c4fd2f-45d4-5b44-a3a6-4e2a4c1e8f15.html?utm_source=tucson.com&utm_medium=js_redirect&utm_campaign=invalid_source http://www.ultimateracinghistory.com/race.php?raceid=7995 https://146.19.24.59/news/local/crime/25-000-for-homicide-survivors/article_fafc9815-fa04-52e0-b7c9-54301fdfdf68.html?__cpo=aHR0cHM6Ly90dWNzb24uY29t https://www.kold.com/story/1428563/conviction-for-pizza-hut-killer-overturned/ https://www.kold.com/story/5710221/killer-re-sentenced-for-pizza-hut-killings/ https://www.kold.com/story/3938377/jury-finds-pizza-hut-murder-suspect-not-guilty-in-second-trial/ https://185.246.85.105/news/local/crime/3rd-trial-starts-for-defendant-in-pizza-hut-killings/article_917f09f2-7bff-502b-8b97-06b6718ccaef.html?__cpo=aHR0cHM6Ly90dWNzb24uY29t https://www.kgun9.com/news/local-news/pizza-hut-murders-mysteries-remain-20-years-later https://www.kold.com/story/1428563/conviction-for-pizza-hut-killer-overturned/ https://news.azpm.org/s/67635-sister-of-murder-victim-describes-emotional-toll-of-suspects-trials/ https://www.kvoa.com/news/local/man-convicted-of-murdering-pizza-hut-employees-to-be-released/article_dd0d70b2-ac37-11ee-89f8-7b97b73bb660.html https://www.kgun9.com/news/local-news/pizza-hut-murders-still-haunting-20-years-later https://tucson.com/news/local/crime/25-000-for-homicide-survivors/article_fafc9815-fa04-52e0-b7c9-54301fdfdf68.html https://www.kgun9.com/news/local-news/pizza-hut-murders-mysteries-remain-20-years-later https://www.youtube.com/watch?v=Duy8N2WJK-0&t=1425s https://www.youtube.com/watch?v=6lzkt8Wifas

THINK+change Podcasts
TRAININGS 93: FASD (Fetal Alcohol Spectrum Disorder)

THINK+change Podcasts

Play Episode Listen Later Aug 21, 2025 26:13


Fetal Alcohol Spectrum Disorders (FASD) is an often-overlooked diagnosis for many people, but it's important to spread awareness to help those who need it get the correct supports. Hear from Marilyn Fausset, who is the Chair of the FASD Awareness Work Group at Illuminate Colorado, as she discusses her family's journey to the diagnosis and all that she's learned since!

IDD Health Matters
Ep 109: Financial Literacy and Community Advocacy with Dr. Anthony Rodriguez

IDD Health Matters

Play Episode Listen Later Aug 19, 2025 12:50


Dr. Anthony Rodriguez, featured on the IDD Health Matters podcast during the 2025 AAIDD Conference, shares his journey from a finance major to a full professor at Providence College, driven by a passion for supporting individuals with intellectual and developmental disabilities (IDD). His work blends mathematics education with advocacy, focusing on financial literacy and scam prevention to empower people with IDD. He highlights the importance of community-based research, peer mentoring, and storytelling as tools for growth and connection. As the incoming president of AAIDD, Rodriguez aims to foster collaboration among fellows and celebrate the organization's upcoming 150th anniversary, emphasizing unity, calm, and shared expertise in advancing health equity.

Well-Being: A Boundless Podcast
Either at the Table or on the Menu: Survival Tactics for Nonprofits

Well-Being: A Boundless Podcast

Play Episode Listen Later Aug 18, 2025 25:41 Transcription Available


Nonprofit organizations face unprecedented challenges in today's uncertain environment. With financial pressures mounting and workforce shortages continuing, many organizations are exploring strategic partnerships as a path forward. But what separates successful nonprofit mergers from failed ones?The answer lies in mission alignment. The most effective mergers begin not from financial desperation but from a shared vision of expanding impact and improving service quality. As one expert puts it, these partnerships create situations where "one plus one equals three" - allowing organizations to serve more people, improve quality, expand reach, and innovate in ways they couldn't accomplish alone.Take the case of three small IDD providers in Maine who recently merged to become the state's largest provider organization. By combining forces, they've retained their local community presence while upgrading technology, improving benefits, and enhancing service consistency. This exemplifies how thoughtful mergers can preserve and strengthen an organization's mission rather than diminish it.Getting there requires navigating complex human dynamics. Boards must transition from routine oversight to strategic leadership, which means creating focused task forces, providing education about the merger process, and ensuring members don't let personal fears derail progress. Staff communication presents equally delicate challenges – share information too early, and you risk unnecessary anxiety; share too late, and you undermine trust essential for successful integration.Outside expertise proves invaluable throughout this journey. Beyond technical specialists in legal, financial, and HR matters, strategic advisors who understand nonprofit culture can keep everyone focused on the mission when tensions rise. They serve as both architects and confidants, providing CEOs a safe space to express concerns they can't share with their teams.As we navigate this challenging landscape, remember: "You're either at the table or you're on the menu." Having a growth strategy isn't optional anymore. The most successful organizations proactively seek partnerships that allow their missions to flourish beyond any individual leader's tenure. Join us to learn how your organization can approach mergers as strategic evolution rather than surrender.Send us a text

End Seclusion Podcast
Trauma, Healing, and Positive Identity with Dr. Karyn Harvey, PhD.

End Seclusion Podcast

Play Episode Listen Later Aug 14, 2025 75:52


Please join us for “Trauma, Healing, and Positive Identity with Dr. Karyn Harvey, PhD.”Karyn Harvey has worked as a clinician in the field of intellectual disabilities for over 35 years. She has her Ph.D. in Applied Developmental Psychology from the University of Maryland. She has written three books: Positive Identity Development, Trauma–Informed Behavioral Interventions, and Trauma and Healing. She has a private practice and does therapy with people with intellectual disabilities. In addition, she regularly conducts training on trauma-informed support for people with IDD, trauma-informed leadership, and trauma-informed behavioral interventions for both state and individual organizations throughout the US and Canada. She sees restraints and seclusion as both traumatizing and re-traumatizing to the recipients and is passionate about the elimination of these procedures.Support the show

Wilson County News
Stomping Ground Ventures seeks community support

Wilson County News

Play Episode Listen Later Aug 12, 2025 3:14


Editor: Stomping Ground Adult Day Services is embarking on an expansion and invites the community to participate in shaping its future. Situated on a historic 25-acre property — at 3333 C.R. 320 north of Floresville — this nonprofit organization is actively seeking financial support and community involvement to transform the land into a unique center dedicated to adults with intellectual and developmental disabilities (IDD). The property, generously donated in April 2024 by the trustees of Mission Valley Mission Park and Camp, holds significant historical value within Wilson County. Previously known as Box J Dairy and later as Wilson County Park,...Article Link

IDD Health Matters
Ep 108: Top Dental Concerns with Dr. M. Dian Chin Kit-Wells

IDD Health Matters

Play Episode Listen Later Aug 11, 2025 34:16


This IDD Perspectives webinar episode features Dr. M. Dian Chin Kit-Wells, a board-certified pediatric dentist and president of the American Academy of Developmental Medicine and Dentistry. The discussion centers on the most common dental health concerns affecting individuals with intellectual and developmental disabilities (IDD). Topics include the systemic importance of oral health, gum disease, halitosis, tongue abnormalities, enamel erosion, and bruxism. The conversation emphasizes the connection between oral and overall health, the impact of medications, and the role of caregivers in maintaining dental hygiene. Practical advice is offered on prevention strategies, including brushing, flossing, dietary choices, and the use of baking soda. This episode also highlights resources and organizations that support dental care for people with IDD, advocating for interdisciplinary collaboration and education. You can find the free handout mentioned during the webinar at https://replacingrisk.com/webinars/. All webinar handouts are located at the bottom of the page.

IDD Health Matters
Ep 107: Rebecca Enders Is Revolutionizing Case Management for Disability Services

IDD Health Matters

Play Episode Listen Later Aug 4, 2025 14:30


Rebecca Enders discusses supports and services for individuals with intellectual and developmental disabilities. Rebecca, a board-certified case manager and director of case management at Optimal Health Care in Maryland, outlines the importance of coordinated services, including Medicaid waivers, community integration, and support across the lifespan. Having transitioned from a 15-year career in education, Rebecca found renewed purpose in case management, eventually developing a data-driven acuity model called Atlas Acuity. This system assesses client needs using weighted metrics to calculate an acuity score, guiding the assignment of caseloads and preventing case manager burnout. Her approach emphasizes time allocation and service equity, empowering professionals to deliver meaningful care while sustaining well-being and effectiveness within the field.

IDD Health Matters
Ep 106: Dr. Carol Price Guthrie Champions Health Equity for People with IDD

IDD Health Matters

Play Episode Listen Later Jul 28, 2025 15:14


Carol Price Guthrie has spent over three decades working in the field of intellectual and developmental disabilities (IDD), beginning as a direct support professional in Tennessee. Her career journey includes roles in case management, program development, and managed care, with experience founding her own case management agency and contributing to projects at UnitedHealthcare. Currently, she serves as Senior Director of Waiver and Program Development at StationMD, a telehealth company specializing in medical services for individuals with IDD. Guthrie is deeply committed to health equity, advocating for specialized, ongoing training and personalized support that enables people with IDD to access community-based services and live with dignity and independence.

THINK+change Podcasts
TRAININGS 92: Alternatives to ABA

THINK+change Podcasts

Play Episode Listen Later Jul 28, 2025 24:49


When it comes to supporting people with intellectual/developmental disabilities, particularly with autism, it's important to work hard to find the right path. A common therapy that many families and individuals utilize, ABA (Applied Behavior Analysis) can be a very helpful tool in ensuring safety and success in community spaces.   However, is it the best choice (or only choice) to help someone with IDD use their voice and be their authentic selves in the world?   In this episode, Sarah Grazier, Executive Director of the Colorado Developmental Disabilities Council, joins THINK+change to discuss the importance of community integration and how we can support individuals with IDD in a variety of ways!

IDD Health Matters
Ep 105: Jean Phelps, Empowering Lives Through Everyday Support

IDD Health Matters

Play Episode Listen Later Jul 21, 2025 21:59


Jean Phelps, CEO of Encompass Human Services, passionately advocates for expanding awareness and accessibility in services for individuals with intellectual and developmental disabilities. Her organization offers a wide range of supports, including residential, day, employment, and brain injury services, all designed to integrate individuals meaningfully into their communities. Jean emphasizes that the core qualifications for becoming a direct support professional are the everyday skills people use to live their own lives, coupled with a genuine spirit and desire to help others. She believes career growth within the field should be nurtured and supported, even if that means mentoring someone who eventually leaves for a leadership role elsewhere. Through her own story—beginning with a transformative summer camp experience—Jean illustrates the deep personal and professional fulfillment found in this field and highlights the critical need for grace, individual empowerment, and space to learn through missteps.

Austin Bar Association - Council of Firsts
Getting to Know Kristi Taylor & the Texas Judicial Commission on Mental Health

Austin Bar Association - Council of Firsts

Play Episode Listen Later Jul 21, 2025 57:19


In the next episode of Stop the Stigma, we sit down with Kristi Taylor, executive director of the Texas Judicial Commission on Mental Health (JCMH). Formed by a joint order of the Texas Supreme Court and the Texas Court of Criminal Appeals in 2018, the commission's mission is to develop, implement, and coordinate policies to improve courts' interactions with individuals with mental health needs, substance use disorders, and intellectual/developmental disabilities (IDD).There are 30 adult mental health courts and nine juvenile mental health courts in Texas: https://www.texasjcmh.gov/programs-and-initiatives/mental-health-courts/Please check out these important tools and resources from the commission:JCMH Bench Books - https://www.texasjcmh.gov/publications/bench-books-code-book/JCMH Summit - https://www.texasjcmh.gov/programs-and-initiatives/conferences-meetings/summit/2025-jcmh-summit/JCMH Treatment Courts Collaborative - https://www.youtube.com/watch?v=_g4xkl42v3gTBRI - https://child.tcu.edu/about-us/tbri/#sthash.sWJPGGbM.dpbsHandle with Care Program - https://minaretfoundation.com/handle-with-care-texas-toolkit/Yolanda Lewis/Dr. Jule Kaplow presentation - https://youtu.be/Bq7AD20V7ckChristi Center - https://youtu.be/Bq7AD20V7ckWatch and subscribe on YouTube: https://youtu.be/zbQ7QHiDFwI

Community Focus
07-21-2025 Community Focus- ISD 181

Community Focus

Play Episode Listen Later Jul 21, 2025 10:06


IDD 181 Executive Director of Schools- Kari Ross and the district's Director of Teaching and Learning, Christina Lundgren discuss summer school, a change to Kinder-camp and what back to school will be looking like for Brainerd Public Schools.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Quillo Pod
Replay: Does Joy Have a Price Tag?

Quillo Pod

Play Episode Listen Later Jul 18, 2025 19:33


In this episode of Quillo Pod, hosts Cynthia Morraz and John Dickerson explore whether joy has a price tag, particularly for individuals in the IDD. They discuss how budgets should serve as pathways to joy rather than constraints, sharing examples of finding happiness through community connections and natural supports. The conversation highlights how meaningful activities don't always require significant funding, emphasizing the importance of understanding what truly brings joy to individuals with disabilities beyond just service units and budget allocations.   Episode Transcript  Want to share stories with us? Email us at Quillopod@myquillo.com To learn more about Quillo Connect visit MyQuillo.com

IDD Health Matters
Ep 104: Dr. Susan Havercamp and Health Equity For People With IDD

IDD Health Matters

Play Episode Listen Later Jul 14, 2025 25:59


Dr. Susan Haverkamp, featured on the IDD Health Matters podcast, discusses her work on improving health equity for adults with intellectual and developmental disabilities (IDD). She highlights the lack of reliable national health data due to insufficient identification methods and advocates for simple survey questions to address this gap. Haverkamp also shares her role in creating core healthcare competencies through a Delphi study, stressing the importance of understanding the social model of disability, improving clinician communication and clinical skills, and recognizing implicit biases. She emphasizes recent progress in medical education, growing community-engaged research, and the need to mentor future healthcare providers. Her final advice includes listening to people with IDD, investing in students, and addressing mental health vulnerabilities within the IDD population.

All TWiT.tv Shows (MP3)
Untitled Linux Show 211: Spicy Pillow Talk

All TWiT.tv Shows (MP3)

Play Episode Listen Later Jul 13, 2025 96:26 Transcription Available


It's a Raspberry Pi flavored show, with PiBoot improvements, and a really slick looking Raspberry Pi Laptop from Argon Fourty. System76 isn't to be left out with a new powerhouse laptop of their own. There's AMD Raytracing improvements, an acquisition in the Processor space, and an exciting new OBS release. For command line tips we talk about Proxmox scripting, ProtonPlus, and the ldd tool for Listing Dynamic Dependencies. You can find the full show notes at http://bit.ly/44EEdnP and enjoy! Host: Jonathan Bennett Co-Hosts: Rob Campbell and Jeff Massie Download or subscribe to Untitled Linux Show at https://twit.tv/shows/untitled-linux-show Want access to the ad-free video and exclusive features? Become a member of Club TWiT today! https://twit.tv/clubtwit Club TWiT members can discuss this episode and leave feedback in the Club TWiT Discord.

Basilic
Des contes écoféministes pour réenchanter le monde avec Camille Bouvot-Duval

Basilic

Play Episode Listen Later Jul 8, 2025 53:31


Dans cet épisode, Jeane reçoit Camille Bouvot-Duval, autrice, compositrice, journaliste et podcasteuse. Ensemble, elles explorent les imaginaires poétiques et engagés qui traversent l'œuvre de Camille, et notamment Iddù, un album jeunesse éco-féministe publié aux éditions La Déferlante. Cet ouvrage sensible raconte l'histoire de Dodu, un enfant élevé par quatre femmes sur une île volcanique. Le conte de Camille interroge notre rapport à la nature, aux émotions et au collectif.Au fil de l'échange, Camille revient sur son cheminement personnel, ses lectures fondatrices et la manière dont l'art devient un outil de transformation intime et politique. Elle évoque également la puissance du collectif, les récits non dominants et la place qu'elle souhaite donner à la voix des enfants dans la construction d'un avenir plus juste et plus doux.Ressources complémentaires :• Camillie Bouvot-Duval : https://www.instagram.com/wsh_cami/• Les éditions La Déferlante : https://revueladeferlante.fr/Ressources mentionnées dans l'épisode :• Iddù, album jeunesse de Camille Bouvot-Duval & Léa Djeziri (Éditions La Déferlante) : https://revueladeferlante.fr/iddu/• Judith Butler, Trouble dans le genre : https://www.librairie-des-femmes.fr/livre/9782707150189-trouble-dans-le-genre-le-feminisme-et-la-subversion-de-l-identite-judith-butler/• Isabelle Stengers, Résister au désastre : https://www.librairie-gallimard.com/livre/9782918490920-resister-au-desastre-isabelle-stengers/• Léa Rivière, L'odeur des pierres mouillées : https://www.librairie-des-femmes.fr/livre/9791095630647-l-odeur-des-pierres-mouillees-lea-riviere/• Ed Yong, Un monde immense : https://www.editionslesliensquiliberent.fr/livre-Un_monde_immense-9791020924704-1-1-0-1.html• Philippe Descola & Alessandro Pignocchi, Ethnographie des mondes à venir : https://www.seuil.com/ouvrage/ethnographies-des-mondes-a-venir-philippe-descola/9782021473018• Vinciane Despret, Autobiographie d'un poulpe : https://www.librairie-des-femmes.fr/livre/9782330147631-autobiographie-d-un-poulpe-et-autres-recits-d-anticipation-vinciane-despret/Souvenirs de jeunesse : Claude Ponti Max & Lili Pef Basilic est un podcast indépendant dédié à l'écologie et aux initiatives positives.Depuis 2017, Jeane Clesse tend le micro à celles et ceux qui façonnent un monde plus durable et plus résilient. Chaque semaine, un nouvel épisode pour inspirer, questionner et imaginer ensemble des futurs désirables.Distribué par Audiomeans. Visitez audiomeans.fr/politique-de-confidentialite pour plus d'informations.

The Good Ahead Podcast
Strengthening Disability Services Through Integrated Case Management at New Vista

The Good Ahead Podcast

Play Episode Listen Later Jul 7, 2025 37:07


In this insightful episode, Dr. Tara Starwalt welcomes Rachael Jones to discuss the vital role of case managers in supporting individuals with intellectual and developmental disabilities (IDD). Rachael shares her journey and the importance of person-centered care, autonomy, and advocacy in social work. The conversation also highlights the wide range of services New Vista provides to individuals and families across 17 counties in Central Kentucky.Presented by: New Vista, Central Kentucky's Community Mental Health CenterHost: Dr. Tara Starwalt, Director of New Vista's Regional Prevention CenterGuest: Rachael Jones, Director of Intellectual and Developmental Disability (IDD)Community-Based Operations at New VistaFind out more about New Vista at newvista.org or by calling our 24-Hour Helpline1.800.928.8000

IDD Health Matters
Ep 103: Sharon Gomez, Supports and Services For People With IDD

IDD Health Matters

Play Episode Listen Later Jul 7, 2025 23:45


In this episode of the IDD Health Matters podcast, Dr. Craig Escudé interviews Sharon Gomez, a passionate advocate and leader in the field of intellectual and developmental disability (IDD) services. Sharon shares her lifelong dedication to supporting individuals with IDD, tracing her journey from youth volunteerism with The Arc to executive leadership roles, including at Evergreen Life Services. She discusses the impact of landmark legal cases like the Gary W. lawsuit on improving community-based care and highlights ongoing challenges in healthcare access for people with complex medical needs. Sharon emphasizes the importance of properly trained healthcare professionals, the vital role of frontline staff, and the power of community in promoting equity and quality of life. The conversation also touches on the value of the American Association on Intellectual and Developmental Disabilities (AAIDD), professional growth within the field, and the human side of health advocacy. This episode was recorded before the passing of IntellectAbility founder, Karen Green McGowan, who is mentioned in this episode.

Soccer Down Here
Genuine Cupdate For 2025: Ana Torras on SDH AM 7.1.25

Soccer Down Here

Play Episode Listen Later Jul 1, 2025 21:22


The Genuine Cup is expanding to 40 teams for their 2025 competition involving athletes with intellectual and developmental disabilitiesThe Genuine Foundation's Ana Torras drops by to talk about the tournament, it's growth from 2024 to this season- set for Rice University at the end of July- and what it means to have the tournament in place for inclusion

IDD Health Matters
Ep 102: AJ Forster, IDD Pharmaceutical Services and Behavioral Health

IDD Health Matters

Play Episode Listen Later Jun 30, 2025 14:21


In this episode of IDD Health Matters, host Dr. Craig Escudé interviews A.J. Forster, a professional with over a decade of experience supporting individuals with intellectual and developmental disabilities (IDD). Forster shares his journey from working in finance to becoming passionate about serving the IDD population through direct support and leadership roles. Now at Tarrytown Pharmacy, he helps streamline medication services for IDD providers, aiming to relieve the burden on nurses and staff by coordinating refills, prior authorizations, and emergency prescription needs. He emphasizes the importance of interdisciplinary teams, especially in managing psychotropic medications with regular reviews to avoid unnecessary treatments and reduce side effects. Forster also highlights the value of direct support professionals, advocating for better pay and recognition, and underscores the need for emergency preparedness across care systems. Throughout, the conversation spotlights collaboration, proactive care, and a mission-driven approach to improving the lives of people with IDD.

Quillo Pod
Replay: Information Does Not Change Habits - A Conversation On Wellness With Janet Capetty

Quillo Pod

Play Episode Listen Later Jun 26, 2025 29:26


In this week's episode, John and Cynthia are joined by Janet Capetty to discuss the impact of wellness in the IDD community. Resources mentioned in the episode: To learn more about Club Wellness Training, visit clubwellnesstraining.com Episode Transcript Want to share stories with us? Email us at Quillopod@myquillo.com To learn more about Quillo Connect visit MyQuillo.com  

Friends For Life Podcast
Training Nurses for Better IDD Care with Michael Sigelman

Friends For Life Podcast

Play Episode Listen Later Jun 25, 2025 19:31


In this insightful episode of IDD Health Matters, Dr. Craig Escudé is joined by nurse educator Michael Sigelman, who brings a wealth of experience and passion to improving healthcare practices for people with intellectual and developmental disabilities (IDD). Michael shares how his early experiences shaped his career and how he now plays a crucial role in training registered nurses and direct support professionals across his state. Together, they discuss the importance of structured nurse education, the value of trained medication employees (TMEs), and the essential role of accurate documentation in providing consistent and person-centered care. Michael also emphasizes the power of listening, knowing individual baselines, and taking time—three simple yet impactful practices that can vastly improve health outcomes. Through real-world examples, Michael and Dr. Escudé highlight the challenges and opportunities in achieving health equity, the significance of interprofessional collaboration, and the critical need for increased clinical training in IDD care. Whether you're a clinician, DSP, policymaker, or advocate, this episode offers actionable insights into creating a more inclusive, responsive, and informed healthcare system.

Taboo Trades
Imminent Death Donation

Taboo Trades

Play Episode Listen Later Jun 22, 2025 62:37 Transcription Available


I'm joined today by two special guests to discuss an unusual and ethically complex type of organ donation – imminent death donation, or IDD. As you'll hear Thao Galvan explain in the episode, organ donation currently has three standard types: living donation, donation after brain death (a type of deceased donation in which the patient is declared brain dead, and thus legally dead), and donation after circulatory death, or DCD. In DCD, a patient who is not brain dead is removed from life support, but the heart keeps beating. If it takes the patient more than roughly 90 minutes to die, the organs may not be usable. IDD, or imminent death donation, attempts to prevent that, by retrieving non-vital organs (usually a kidney) for donation prior to the removal of life support. Thao Galvan is a transplant surgeon and professor of surgery at Baylor College of Medicine. Kathy Osterrieder is a retired financial analyst, who came to this issue after attempting, unsuccessfully, to donate the organs of her late husband, Robert Osterrieder, after making the difficult decision to remove him from life support. It is another first for the Taboo Trades podcast – the first time in over five years of recording that I've been unable to hold back the tears, as Kathy talks about what the experience was like for her family. LinksHost: Kimberly D. Krawiec, Charles O. Gregory Professor of Law, University of VirginiaGuests: Nhu Thao Nguyen Galvan, M.D., M.P.H., FACS, Associate Professor of Surgery, Baylor College of MedicineKathleen Osterrieder, Donor Family Member in Spirit, Retired Financial AnalystReading: The Difficult Ethics of Organ Donations From Living Donors, Wall St. J. (2016)Let's change the rules for organ donations — and save lives, Wash. Post (2019)OPTN, Ethical considerations of imminent death donation white paper (2016)Survey of public attitudes towards imminent death donation in the United States, Am. J. Transplant. (2020)

IDD Health Matters
Ep 101: Wesley Anderson, Director of Employment and Community Services at NASDDDS

IDD Health Matters

Play Episode Listen Later Jun 21, 2025 18:58


In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Wesley Anderson, Director of Employment and Community Services at the National Association of State Directors of Developmental Disabilities Services (NASDDDS). Live from Salt Lake City, they dive deep into the critical connection between employment and health outcomes for individuals with intellectual and developmental disabilities (IDD). Wesley discusses his work co-leading the State Employment Leadership Network, a collaborative effort with 26 U.S. states aimed at integrating employment across all levels of support systems. Learn how employment isn't just about earning a paycheck—it's a powerful social determinant of health that affects access to food, healthcare, transportation, social inclusion, and overall wellbeing. From dismantling common misconceptions about hiring people with disabilities to explaining how employers can access support services at no cost, Wesley delivers actionable insight for businesses, caregivers, and policymakers alike. He also shares his personal journey into the field and offers three powerful takeaways for anyone looking to make a difference in the IDD community. Whether you're an employer, advocate, support provider, or simply curious about how inclusive employment can shape lives, this episode will expand your understanding and inspire you to act.

Quillo Pod
A Conversation About Dads & the IDD Community

Quillo Pod

Play Episode Listen Later Jun 19, 2025 23:48


In this week's podcasts, Cynthia and John have a Father's Day conversation about the evolving role of dads in the IDD community. Resources mentioned  DADS, Dr. Nassif's podcast, Ohio's father support program. Episode Transcript Want to share stories with us? Email us at Quillopod@myquillo.com To learn more about Quillo Connect visit MyQuillo.com

IDD Health Matters
Ep 100: Supporting Aging with IDD: Early Dementia Detection and Advocacy with Kathryn Pears of NTG

IDD Health Matters

Play Episode Listen Later Jun 14, 2025 18:35


In this powerful episode of IDD Health Matters, Dr. Craig Escudé welcomes Kathryn Pears, Chief Operations Officer of the National Task Group on Intellectual Disabilities and Dementia Practices (NTG). With over 40 years of experience in the field of dementia, Kathryn shares her personal and professional journey, beginning with her father's early-onset Alzheimer's diagnosis, and how it ultimately led her to advocate for individuals with intellectual disabilities who are aging and at risk for dementia. Kathryn discusses the groundbreaking work of the NTG, including their development of the Early Detection Screen for Dementia (NTG-EDSD)—a free, intuitive tool used nationwide to help caregivers identify subtle changes that could indicate early signs of dementia in people with IDD. She also dives into NTG's national curriculum, which has trained thousands of frontline staff, healthcare professionals, and even law enforcement on how to provide compassionate, effective care for aging individuals with IDD and dementia. From federal advocacy and workforce training to innovative partnerships in Texas aimed at improving emergency responses, Kathryn and the NTG are changing the landscape of aging and dementia care for this often-overlooked population. Tune in to learn three key takeaways from Kathryn's decades of experience: Don't assume behavioral changes equal dementia—rule out treatable conditions first. The heart of quality care is treating others the way you'd want to be treated. You don't need to be an expert—just be informed enough to advocate. Visit www.theNTG.org to access free resources, publications, and tools mentioned in this episode.

IDD Health Matters
Ep 99: Improving Psychiatric Care for People with IDD | Dr. Mike Cummings on Polypharmacy, START & Empowerment

IDD Health Matters

Play Episode Listen Later Jun 7, 2025 20:32


In this powerful episode of IDD Health Matters, host Dr. Craig Escudé sits down with Dr. Mike Cummings, Vice Chair of Psychiatry at the University of Buffalo School of Medicine and Medical Director for several psychiatric programs across New York State. Dr. Cummings brings a wealth of experience from leading New York's busiest psychiatric ER to developing innovative programs like START and APEC that provide person-centered psychiatric support for individuals with intellectual and developmental disabilities (IDD). Together, they unpack the challenges of polypharmacy, the importance of understanding behavior as communication, and how to empower families and individuals through education and collaborative care. Dr. Cummings also shares insights into his YouTube series Coffee Talk with Mike and Janelle, which aims to demystify psychiatric care for families and caregivers in the IDD community. From crisis prevention to positive psychology, this episode is a must-listen for healthcare providers, support professionals, and anyone committed to improving the quality of mental health care for people with IDD.

Thriving Forward
Lindsay Jewett: Best Buddies

Thriving Forward

Play Episode Listen Later Jun 4, 2025 39:07


Best Buddies International is a nonprofit 501(c)(3) organization dedicated to establishing a global volunteer movement that creates opportunities for one-to-one friendships, integrated employment, leadership development, inclusive living, and family support for individuals with intellectual and developmental disabilities (IDD).Lindsay Jewett is the Director of Mission Advancement for the Rochester Office of Best Buddies. In this episode we discuss why she was drawn to working with individuals with intellectual and developmental disabilities and how her personal mission has evolved over the years. We also spend time discussing the amazing work of the local, national, and international arms of this nonprofit organization.Website: https://www.bestbuddies.org/newyork/Support the show

Special Chronicles Show Podcast
Turin2025: Global Coalition for Inclusion with Shawn Ferguson

Special Chronicles Show Podcast

Play Episode Listen Later Jun 2, 2025 83:56


On this episode of the Special Chronicles Podcast Series: “A Recap of Turin 2025,” Daniel Smrokowski sits down with Shawn Ferguson, the Chief of Global Government Relations at Special Olympics , to explore the mission and impact of the Special Olympics Global Coalition for Inclusion . The Coalition is uniting global leaders, governments, and advocates to drive systemic change for people with intellectual and developmental disabilities (IDD). Together, they are working to create a more inclusive world through sport, education, and social integration. Shawn takes us behind the scenes of this important global initiative, discussing its origin, growth, and the key milestones in the Coalition's journey. We learn about the significance of the Coalition's gathering during the Special Olympics World Winter Games in Turin, Italy, and how it has elevated the mission of inclusion on the world stage. Through Unified Schools® and Unified Sports®, the Coalition is transforming classrooms and communities, making inclusive education and social cohesion a reality. Shawn shares powerful success stories, highlights the importance of financial investment in sustainable change, and explains how public-private partnerships are creating long-term solutions for individuals with IDD. As the Coalition expands, Shawn outlines the challenges they face, how they measure success, and the future of inclusive education and systemic change. He also encourages individuals and organizations to get involved and make a difference. If you're passionate about inclusion and want to learn how we can all contribute to a world where individuals with intellectual disabilities are celebrated and respected, this episode is for you! Topics Covered in This Episode: What is the Special Olympics Global Coalition for Inclusion? The significance of the Coalition's gathering during the Special Olympics World Winter Games in Turin, Italy. Key milestones and global impact of the Coalition. The role of governments, multilateral organizations, civil society, and the private sector in driving inclusion. Success stories and transformative examples from the Coalition's work. The importance of Unified Schools® and Unified Sports® in fostering inclusion. How financial investments are helping to make inclusive education a tangible reality. The role of public-private partnerships in driving sustainable change. Overcoming challenges in advancing systemic change for people with IDD. How the Coalition measures success and evaluates its impact. The future of the Special Olympics Global Coalition for Inclusion and how you can get involved. Listen now to hear Shawn's insights on this transformative global initiative and how you can be part of creating lasting change for individuals with intellectual and developmental disabilities. Episode 770 ShowNotes & Links: SpecialChronicles.com/Podcast770

IDD Health Matters
Ep 98: How iCare Manager Is Transforming IDD Care With EHR Technology and AI Integration

IDD Health Matters

Play Episode Listen Later May 31, 2025 17:08


In this episode of IDD Health Matters, Dr. Craig Escudé is joined by Ricardo Ortega and Babar Nawaz of iCare Manager—an innovative electronic health record (EHR) company revolutionizing care for people with intellectual and developmental disabilities (IDD). Together, they explore how technology can improve efficiency, documentation, and most importantly, the quality of care delivered by providers across 25 states and counting. Ricardo and Babar share their insights into the unique challenges of healthcare in the IDD field, such as state-specific compliance, staffing shortages, and underfunding. Learn how iCare Manager was built from the ground up—with direct input from DSPs, nurses, coordinators, and executives—to create a one-stop, user-friendly solution that empowers providers to spend more time supporting individuals and less time on paperwork. The conversation also looks ahead to the future of healthcare technology, highlighting the exciting (and sometimes scary!) potential of artificial intelligence (AI) in automating assessments, generating personalized care plans, and enhancing service delivery—all while preserving the vital human touch. Topics include: The origin and mission of iCare Manager Addressing compliance across state systems EHR systems built by providers, for providers How AI can improve outcomes and efficiency The importance of person-centered planning and funding in the IDD space Whether you're a provider, administrator, or simply passionate about inclusive healthcare, this episode offers powerful insight into how technology and compassion can go hand-in-hand to support people with IDD.

Mind Matters
Dietary Difficulty: Fueling the Neurodivergent Brain

Mind Matters

Play Episode Listen Later May 29, 2025 32:16


Emily Kircher-Morris welcomes registered dietician Jackie Silver, who specializes in nutrition for neurodivergent people. They discuss the unique challenges faced by the neurodiversity community, including sensory differences, interoception, and executive functioning barriers that complicate meal planning and nutrition. They also talk about practical strategies to support the neurodivergent people in your life with making good dietary choices. They identify and analyze disordered eating patterns, and discuss the significance of self-compassion in the journey towards better nutrition. TAKEAWAYS Many dietitians overlook the unique needs of neurodivergent clients. Meal planning can be overwhelming for those with executive dysfunction. It's important to work within people's "safe foods." Sensory sensitivities can greatly impact food choices and preferences. Interoception plays a crucial role in recognizing hunger and fullness cues. Mechanical eating can help those with suppressed appetites due to medication. Small, manageable changes can lead to significant improvements in nutrition. Disordered eating patterns are common among neurodivergent people, especially with ADHD. The window will open soon to join the Educator Hub! If you're a teacher, administrator, school counselor, or parent of a neurodivergent student, this community is where you can share, ask questions, and find training that will help you along your journey. Please come join us. Jackie Silver is a NYC-based Registered Dietitian and founder of Jackie Silver Nutrition, a virtual private practice specializing in supporting neurodivergent kids, teens, and adults with ADHD, ASD and IDD. Her practice is neurodiversity-affirming, nonjudgmental, and weight-inclusive. he holds a Master of Health Science in Nutrition Communication from Toronto Metropolitan University and has additional training in mindful eating and sensory-based feeding therapy. Jackie works with clients across New York, Pennsylvania, Connecticut, Massachusetts, Ontario, and beyond, offering support with meal planning, selective eating, digestive health, chronic disease management, and more. In her free time, Jackie enjoys rock climbing, yoga, Pilates, swimming, travel, museums, and spending time with family and friends. BACKGROUND READING Jackie's website, Instagram, Free Grab & Go Foods list, Jackie's meal prep course, Jackie's consultation

Rural Health Leadership Radio™
RHLR LIVE: Episode #419

Rural Health Leadership Radio™

Play Episode Listen Later May 29, 2025 33:20


Learn how Samantha VanSchoik, VP of Strategic Partnerships at Corporation for Independent Living (CIL), explores the potential development of community housing options in rural communities for individuals with IDD, mental health, recovery, or ABI issues.  The visit CIL's website, go to: https://www.cil.org/ To reach Samantha, email her at svanschoick@cil.org. 

Quillo Pod
Beyond the Open Door: Listening to Our Direct Support Professionals

Quillo Pod

Play Episode Listen Later May 29, 2025 14:26


In this week's episode, John and Cynthia explore the incredible insights and untapped potential of Direct Support Professionals (DSPs). Our conversation will cover: Why DSPs often feel unheard within their organizations and how to change that Practical strategies for breaking down "invisible barriers" between leadership and frontline staff The importance of cultural awareness and diversity in our caregiving workforce Creative ways to show appreciation that truly resonate with different people We'll share actionable tips for creating genuine listening opportunities, whether you're a family member working with DSPs, an organizational leader, or a DSP yourself looking to make your voice heard. Got a story about feeling truly heard and valued in your work supporting people with I/DD? We'd love to hear from you! Email us at Quillopod@myquillo.com. Episode Transcript

Waves of Awareness - WOA it's A Podcast
WOA Season 10 Finale: Building Bright Futures

Waves of Awareness - WOA it's A Podcast

Play Episode Listen Later May 28, 2025 35:11


Welcome to the final episode of Season 10 of Waves of Awareness! We're wrapping up this season with a conversation with the Waves Early Learning leadership team: Gina, Jen and Katie. Our usual co-hosts for this episode are Waves CEO Staci Davis and Waves adult Johnny Sunshine. Johnny shares a few life updates as well as what he's looking forward to this summer. The group then dives into all things Early Learning: why it matters, what referrals look like, some of the best practices they utilize, and a huge milestone Waves Early Learning just hit. Waves considers it a privilege to be able to serve individuals with intellectual and developmental disabilties (IDD) across all seasons of life, and we're excited to highlight the youngest ones this week! Tune in for important information about Early Intervention, some sweet stories from some of our Early Interventionists themselves, and lots of laughs. Be sure to follow us on socials @waves_serves to keep up with the tips our Early Learning team shares every Tuesday! Stay tuned for updated on Season 11 and the amazing guests WOA will be hosting.  ______________________________________ To learn more about Waves go to: wavesinc.com For volunteer opportunities with Waves go to: https://wavesinc.com/volunteer/ To watch Waves of Awareness on Youtube go to: https://www.youtube.com/@Waves_of_Awareness To learn about Spread The Positive go to: https://spreadthepositive.net/ To learn more about Waves Early Learning, visit: https://wavesinc.com/early-learning-program/ To view Waves Early Learning Tuesday Tips: https://wavesinc.com/early-learning-program/early-learning-tips/

IDD Health Matters
Ep 97: Training Nurses for Better IDD Care with Michael Sigelman

IDD Health Matters

Play Episode Listen Later May 24, 2025 19:31


In this insightful episode of IDD Health Matters, Dr. Craig Escudé is joined by nurse educator Michael Sigelman, who brings a wealth of experience and passion to improving healthcare practices for people with intellectual and developmental disabilities (IDD). Michael shares how his early experiences shaped his career and how he now plays a crucial role in training registered nurses and direct support professionals across his state. Together, they discuss the importance of structured nurse education, the value of trained medication employees (TMEs), and the essential role of accurate documentation in providing consistent and person-centered care. Michael also emphasizes the power of listening, knowing individual baselines, and taking time—three simple yet impactful practices that can vastly improve health outcomes. Through real-world examples, Michael and Dr. Escudé highlight the challenges and opportunities in achieving health equity, the significance of interprofessional collaboration, and the critical need for increased clinical training in IDD care. Whether you're a clinician, DSP, policymaker, or advocate, this episode offers actionable insights into creating a more inclusive, responsive, and informed healthcare system.

Quillo Pod
REPLAY: Who are DSPs? | A Conversation with John Raffaele

Quillo Pod

Play Episode Listen Later May 22, 2025 24:03


Next week is DSP Recognition Week (September 8-14, 2024). In this REPLAY episode from 2023, John and Cynthia sit down with John Raffaele, the Director of Educational Services at NADSP. We discuss DSPs (Direct Support Professionals), who they are, and their impact on the IDD community.  Resources mentioned in the episode: NADSP Want to share stories with us? Email us at Quillopod@myquillo.com To learn more about Quillo Connect visit MyQuillo.com  

IDD Health Matters
Ep 96: Shelly Chandler on Health Equity and Communication in IDD Services

IDD Health Matters

Play Episode Listen Later May 17, 2025 17:19


In this episode of IDD Health Matters, Dr. Craig Escudé sits down with long-time advocate and leader Shelly Chandler to explore a lifetime of service and passion in the field of intellectual and developmental disabilities (IDD). From growing up immersed in the world of special education to running provider agencies and leading the Iowa Association of Community Providers for 17 years, Shelly shares how her personal and professional journey continues to influence better health outcomes for individuals with IDD. Recorded live at the Kansas InterHab Conference, this conversation dives into the challenges of bridging communication gaps between providers, healthcare professionals, and managed care organizations—and why learning to "speak the same language" is essential for improving equity in healthcare. Shelly also offers key advice on building human-centered relationships, listening without assumptions, and staying relentless in the pursuit of opportunity and dignity for every person with IDD.

Quillo Pod
Breaking the Stigma: Mental Health in the IDD Community

Quillo Pod

Play Episode Listen Later May 15, 2025 15:03


In this episode of Quillo Pod, Cynthia Morraz and John Dickerson shed light on the often-overlooked intersection of mental health and the IDD community during Mental Health Awareness Month. They discuss the persistent stigma surrounding mental health challenges, share personal stories that illustrate the importance of being an ally, and offer practical guidance on supporting those experiencing difficulties. The importance of creating spaces where it's "okay not to be okay," and how small acts of kindness and connection can make a meaningful difference in someone's journey. Resources mentioned in the episode: Call or text the Suicide and Crisis Prevention Line at 988 or visit 988lifeline.org Episode Transcript  Want to share stories with us? Email us at Quillopod@myquillo.com To learn more about Quillo Connect, visit MyQuillo.com

The Art of Construction
371: How possible is affordable housing? (Extended Episode)

The Art of Construction

Play Episode Listen Later May 8, 2025 97:43


"The enormity of the challenges we have in front of us right now, in terms of the deficit of housing, just requires all of us to work together." This episode revisits the National Housing Supply Summit in March 2025! In this conversation, Devon Tilly and co-host Dennis Steigerwalt chats with Matt Hoffman and Stephen O'Conner about affordable housing, the new administration, and the White Paper: Federal Policy Opportunities to Expand Housing Supply. Request a copy of the White Paper here: https://housingsupply.us/ Our co-host Dennis is active in all things real estate with a specific focus on innovation in the residential development and homebuilding ecosystems. He is a ULI Residential Neighborhood Product Council member, a Professional Builder 40 under 40 recipient, and an active member of Geek Estate. In his spare time he enjoys big adventures with his wife and sons on the water and in the mountains. Dennis is the president of the Housing Innovation Alliance, a future oriented community for production homebuilding. The Housing Innovation Summit is the best place to get engaged + connected where you'll gather insights + have a voice at each turn. The 2025 Summit is co-hosted by the Mascaro Center for Sustainable Innovation at the University of Pittsburgh. We'll be at Phipps Conservatory in the Oakland neighborhood and hosting Innovation in Action tours around Pittsburgh. Matt Hoffman has spent his career applying his strategy, business development, and innovation skills to solving problems that create growth and opportunity in the public, private, and non-profit sectors. With over 20 years' experience building businesses in the housing and technology sectors, in February 2024 he completed a two-year assignment as the Senior Advisor to the Commissioner of the Public Buildings Service at the General Services Administration (GSA), which oversees the U.S. government's civilian real estate portfolio of more than 365 million square feet. His core focus was the implications of “the future of work” on the office portfolio and transitioning federal buildings to net zero emissions. He helped launch the federal government's Workplace Innovation Lab (WIL) and federal coworking offering (think WeWork just for federal employees). He represented GSA on the White House's housing supply interagency policy council. Based in the Washington, DC area, Matt has a passion for finding housing solutions for the Intellectual and Developmental Disabilities (I/DD) community and currently chairs the real estate finance committee of Benedictine Programs & Services, which helps I/DD children and adults achieve their greatest potential. He is a graduate of Harvard's Kennedy School of Government (MPP) and Brown University (BA). Throughout his distinguished career, Dr. O'Connor has been deeply involved in addressing the multifaceted challenges surrounding the crisis in affordable housing. His long and effective history of advocacy focuses on the promotion of equitable housing opportunities through the development of inclusive communities to enhance the quality of life for diverse populations. With a Ph.D. in Planning and Public Policy, Dr. O'Connor's expertise extends across various sectors within the housing spectrum, including affordable housing finance, housing policy analysis, and land use planning. He is often called upon by governmental agencies, political campaigns, and non-profit organizations to help develop effective policy frameworks and practical interventions to address housing disparities. As an educator, Dr. O'Connor is committed to developing the next generation of housing advocates, developers, and policymakers. He serves as a mentor and a teacher, inspiring students to explore the intersection of housing, social equity, and public policy. His dynamic teaching style and hands-on approach are informed by more than thirty years of housing industry experience. Personally, Dr. O'Connor and his wife, Sandy, have served long tenures with several medical mission charities. In addition, they have founded two 501(c)(3) organizations to raise money for cure-focused medical research. They have two children and two beautiful grandsons.   Read James Rouse's book: https://a.co/d/4cVwaKN Read the "Abundance" book:  https://a.co/d/1N0kr4e Keep up with the Art of Construction (AOC) podcast on Instagram, Facebook, and LinkedIn! Subscribe to us and leave us a review on Apple Podcasts or Spotify!

IDD Health Matters
Ep 95: Nursing, Advocacy & Heart: Patty Haberkorn & Deanna Cox on 35+ Years in DD Care

IDD Health Matters

Play Episode Listen Later May 5, 2025 21:06


On this episode of IDD Health Matters, Dr. Craig Escudé sits down with two remarkable nurses—Patty Haberkorn and Deanna Cox—at the Illinois Developmental Disabilities Nurses Conference. With a combined four decades of experience supporting people with intellectual and developmental disabilities (IDD), Patty and Deanna share powerful insights into nursing, advocacy, communication, and the often-overlooked emotional rewards of this career path. Patty, who began her journey as a nurse and now serves as Executive Director at Futures Unlimited, and Deanna, a dedicated nurse who found her calling in DD care after working in long-term care, both reflect on how they "fell into the field" and stayed out of passion. They open up about the gaps in nursing education regarding IDD, the importance of understanding non-verbal communication, and the critical role of baseline behavior in diagnosing health issues. This episode covers: The value of advocacy from nurses and direct support professionals Real-world challenges in educating physicians and gaining respect for individuals with IDD Why knowing a person's baseline behavior is crucial for accurate medical care The emotional connection between care staff and the individuals they support Staffing and funding challenges in the IDD sector—and why passion still keeps them going Whether you're a nurse, DSP, administrator, or someone curious about working in disability services, this conversation offers heartfelt stories and essential wisdom about the importance—and joy—of working in this field.

Raising Kellan
Episode 140. Transitional Planning and Services for Youth with Disabilities featuring Transition Tennessee

Raising Kellan

Play Episode Listen Later May 1, 2025 44:59


Jessica Awsumb and Hilary Travers are co-leads at Transition TennesseeTimeline: 2:15 Introduction3:15 Hilary's work at Perkins School of the Blind and what led her to Vanderbilt and transitional planning5:00 Jessica's pathway to transitional training and employment for students with IDD.8:13 How do we prepare for transitions (legal and evidence-based practice), which starts at Age 14 in TN. Key points mentioned: - 4 future goals in transitional planning are: post-secondary education, employment, community involvement, and community living. - A Course of Study (9th to 12th grade) is a selection of classes that are needed and individualized to a student to reach their post-secondary goals.- Annual goal to build competency for life skills.- Transition Services- a coordinated set of outcome-based activities to supplement after-school goals ( assigned to parent or third-party provider). 18:00 Job Exploration- What would you like to do for work? Your areas of interest? Explore the skills needed for the job in the community.21:14 Thinking about employment as a family.23:09 Support of job coaching vs natural supports- team-based approach.28:24 Job experiences and work-based learning: rural vs urban. What are students' skills? What is their motivation? What are their supports? It will influence their experience. Another consideration is full vs part-time, self-employed.32:27 VR for formal supports, faith communities are informal supports (these are non-paid opportunities), the Chamber of Commerce, who know the local businesses, and career fairs. 35:00 CTE courses are based on local community needs assessment, and if they align with students' interests, this is a great way for students to gain job skills. 37: 00 Helpful Resources: https://transitiontn.org/ Empowering Youth with Vision Impairments - free resources

The Get Thrifty Podcast
192: Making Money From Flipping Furniture and Vintage Treasures with Hannah

The Get Thrifty Podcast

Play Episode Listen Later Apr 29, 2025 49:28


Hannah is flipping vintage, crushing fast fashion, and winning over fans with her “thrift with me” videos. SHOW NOTES: How she took advantage of the Poshmark “Entrepreneurs Fund.” Vintage flips. Champion of the secondhand-first movement. Fast fashion stats that will shock you! The cure for fast fashion. Reselling insights and resources. Her favorite Colorado thrift stores. Why her sourcing and “thrift with me” videos are so popular. Her support of the IDD community.