I'm Dying to Tell You

In this heartfelt episode, we meet the individuals behind Always Lifting Spirits, Chair Force 1 Foundation, Operation Ramp It Up, Que4Care and the Cincinnati Reds — a community who turned their ALS grief into life-changing support for others. From accessible vans to wheelchair ramps to lift chairs and patient care, these local nonprofits are honoring those they've lost to ALS, by providing crucial support to ALS families.  Although their capacities so far only allow them to meet the needs of local families, it's a beautiful example of what happens when we lead with love, faith and community.  These four Ohio/Kentucky based foundations have also formed a powerful partnership with the Cincinnati Reds for Lou Gehrig Day on June 2nd.   All MLB teams will be hosting their own Lou Gehrig Day on or around June 2nd as well.  Thanks for listening to this story of legacy, love, and community in action. Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Here, Elin Adcock shares her powerful journey through her husband's ALS and frontotemporal dementia (FTD) diagnoses—and how she's now leading the charge to support families facing the same fight.  When Elin's husband, Larry was diagnosed with both ALS and FTD, her world changed forever.  In this episode, Elin shares how she navigated the overwhelming challenges of caregiving through two devastating and progressive diseases—often without a clear roadmap or coordinated support. After her husband's passing, Elin turned her grief into action, becoming a fierce advocate for families facing similar dual diagnoses. Her story is one of love, resilience, and the power of transforming personal loss into lasting impact. Whether you're a caregiver, healthcare professional, or someone seeking hope amid hardship, this conversation offers insight, inspiration, and a call for greater awareness.  Thanks for listening and sharing with a friend.  Hugs, Lorri!Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

When faced with an ALS diagnosis, finding trustworthy information shouldn't add to your burden. This episode introduces a groundbreaking solution born from one son's love for his father.Vikram Bhaskaran takes us through the painful journey that sparked innovation – watching his father battle ALS in India while struggling to access reliable information and expertise. The stark contrast between his Silicon Valley tech job, where brilliant minds created seamless user experiences, and the "dark ages" of health information access, drove him to action. The result? ROON.Roon addresses the three dimensions of living with ALS – medical knowledge, practical daily concerns, and the emotional/existential questions that arise. Through short, digestible videos, users can find answers to questions they might never get to ask during brief clinical appointments.This episode offers a masterclass in turning personal tragedy into purpose. Beyond highlighting a valuable resource for the ALS community, it demonstrates how technology, when designed with genuine empathy, can create what Vikram beautifully describes as "a doctor friend who has your back."Download Roon to experience this sanctuary of knowledge, where the burden of searching for reliable information is lifted, and a community of experts and fellow patients are ready to help.  Thanks for sharing with a friend. Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

What happens when you learn that your DNA carries the same mutation that led to a loved one's battle with ALS? In this episode, I sit down with Mindy Uhrlaub, who discovered she is a carrier of the C9orf72 gene—the most common genetic cause of ALS and Frontotemporal Dementia. Mindy shares her emotional journey of genetic testing, the weight of living in the unknown and the unique challenges that come with being pre-symptomatic.We dive into the mental and emotional impact of her hereditary disease, the stigma surrounding genetic conditions, and how humor, advocacy and community can help navigate these uncertainties. Mindy also talks about her work with End the Legacy, a patient led organization dedicated to the needs and interests of the Genetic ALS & FTD community.This powerful conversation is a reminder that while genetics may shape our path, they don't define who we are. Tune in for an honest, hopeful discussion about fear, resilience and finding purpose in the face of the unknown.  Listen in and share with a friend.  Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Welcome to "I'm Dying to Tell You," where we shine a light on resilience and hope.  In this special episode, we're celebrating six years of I AM ALS, an organization created for patients, by patients.Why is this so important? Because for far too long, those most impacted by ALS weren't leading the charge in our collective mission for a cure. But I AM ALS changed the game. By putting patients at the forefront, they are not only better equipped to serve the ALS community, but we're operating on the ALS clock—pushing for accelerated progress every single day.Today, I'm thrilled to chat with four incredible volunteers, Tim Abeska, Randy Gregory Jr., Cristy Hardin & Deb Winters about how I AM ALS continues to be driven by patient voices, advocating, empowering, and fighting to make ALS a thing of the past. We'll dive into the work of the I AM ALS Community Teams, their ongoing efforts, and how YOU can get involved in this powerful movement.So, listen in and be inspired to join these teams of patients, caregivers, and advocates who prove that the impossible is possible—every single day.  Thank you for sharing this celebration.  Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Here I chat with Dr. Richard Bedlack, a neurologist known not only for his relentless ALS research but also for his unique style. This episode unfolds the fascinating story of how an encounter with legendary designer Manuel Cuevas led to the creation of a special jacket that embodies Dr. Bedlack's fight against ALS. We also celebrate the powerful alliances formed through advocacy, as highlighted by a heartfelt recognition from Zac Brown Band's John Driskell Hopkins. I loved hearing him talk about how fashion, music and medicine are all playing a part in the battle against ALS.For 24 years, Dr. Bedlack of the Duke ALS Clinic has been at the forefront of ALS research, driven by a childhood fascination with the brain. His journey has been marked by pivotal moments that shaped his dedication to building a program offering hope and options for ALS patients.  Here, Dr. Bedlack reflects on the significance of HOPE, not only as a treatment strategy but as a vital component of navigating life with ALS.  Dr. Bedlack also shares his learnings after studying the 62 known cases of ALS reversals.  This episode is a testament to the relentless pursuit of a brighter tomorrow, where there is a world without ALS.  Listen in and share with a friend.  Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Imagine facing a life-changing ALS diagnosis and tackling it with resilience and positivity. That's what Johnny Rodriguez, a 35-year-old high school lacrosse coach, husband, and father, has done. Johnny's story is one of inspiration, determination, and the power of community. From playing lacrosse in Hawaii to mentoring athletes at Mater Dei High School in Santa Ana, California, he pushes the boundaries of what's possible with ALS.Johnny's support network and the lacrosse community have been vital in fueling his fight. As a coach, he not only develops athletes but also teaches life skills and resilience. With a holistic approach to managing ALS—including ice baths, meditation, and advocacy through Athletes vs ALS—Johnny exemplifies hope, unity, and perseverance. His journey reminds us of the strength in community and the relentless pursuit of life's possibilities. Listen in and share with a friend. Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

What if two young siblings could inspire an entire community to rally against a devastating disease? Brady and Brooklyn Yozwiak from Hudson, Ohio, are doing just that with their initiative, Clayton Rakes. Their story begins with a deeply personal journey, motivated by their father Chris's battle with ALS. Sadly, Chris passed away in early 2024, but these incredible kids, aged just 11 and 8, have turned their grief into action by raising substantial funds for ALS research through their leaf-cleaning enterprise. Tune in to learn how their heartfelt mission is making waves, proving that age is no barrier to making a significant impact.From neighborhood events featuring merchandise tables, food trucks, and entertainment, the Yozwiak siblings have mastered the art of community outreach, having raised nearly $330,000 so far.  Join us as we hear Brady & Brooklyn talk about community support and how friends, family, and neighbors have rallied around their cause. Hear the powerful lessons they've learned about resilience, creativity, and leadership in the face of adversity. Their commitment to support ALS research is powerful, as they continue to build on their father's legacy and encourage others to join them in the fight against ALS.  Thank you for sharing this precious chat with a friend and visiting their fundraising page directly supporting the ALS Therapy Development Institute.  Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

"LUKi and the Lights" is not just an animated short film; it's a beacon for children trying to grasp the complexities of ALS. Inspired by the real-life journey of Anjo Snijders and Sascha Groen, this episode unravels how their personal ALS/MND experiences fueled the creation of a groundbreaking resource for families worldwide.  Hear how the layers of creativity, medical accuracy, and emotional authenticity make this film a vital tool for understanding ALS/MND.Meet my insightful guests — Toby Cochran, Adrian Ochoa, and Dr. Melinda Kavanaugh — who reveal the unexpected journey behind this project. Dr. Kavanaugh shares her unique path into the collaboration, while Toby and Adrian discuss how this team navigated challenges to create a story that resonates globally and transcends cultural and linguistic barriers. Their dedication ensures the film retains its heartfelt essence and medical integrity, proving invaluable for children and families.Beyond the screen, "LUKi and the Lights" is making waves with its global reach and festival appearances, even vying for Oscar consideration.   As a follow-up to this episode, we invite you to participate in a Special Virtual Screening, Tuesday, November 12th at 7pm EST, where you can connect with the creators and delve deeper into the mission of spreading ALS awareness. Join us in supporting this initiative by visiting Global Neuro YCare's website to help bring LUKi's message to families worldwide.  Thank you for sharing LUKi with your friends and family.  If it's on your heart to review this episode to help share LUKi, thank you for doing so!Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

To celebrate Episode 100 of this podcast, here I chat with 100-year-old Mildred Kirschenbaum.  Mildred has become a social media star and is happily sharing some life lessons of her ten decades.  She not only became an author at 100, Mildred entertains over 100,000 on TikTok and Instagram.  Her videos have been featured on mainstream media outlets like the Today Show, CBS and Fox.  Mildred and her daghter Gayle collaborated on a book, Mildred's Mindset: Wisdom from a Woman Centenarian, a 76-page self-published book that melds anecdotes, photos, and life advice.  In Mildred's book, readers embark on a journey through the extraordinary life lessons of a centenarian whose vitality and wisdom defy age.  The New York-born Kirschenbaum became a viral sensation almost immediately by being herself and sharing what she has learned over the past 100 years.  I was so grateful to ask her about the what she believes is most important in life and of course what she's "Dying To Tell" us.  Mildred stands as a testament to the power of embracing life's joys, fostering connections, and approaching each day with unwavering zest.  Enjoy and thank you for listening.  Hugs, LorriThank you for celebrating this special milestone by inviting your friends to listen in.  If you love listening to this podcast, please leave a rating & review by scrolling down my show page, selecting a star rating, and tapping “Write a review” here.I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

In this conversation, Aaron Lazar shares how he discovered a new life purpose after being diagnosed with a terminal illness, ALS.  Aaron has been in the spotlight for over two decades in his successful career as a singer, actor and now speaker and advocate.  Aaron took a couple years before going public with his ALS in order to discover how he would shape and control his future.  As a result, Aaron is currently rebuilding his life to achieve his new impossible dream which is healing in face of unspeakable adversity.  Here, Aaron talks about his perspective on the importance of a positive mindset and living in the present moment.  His beautiful message will inspire anyone seeking a more successful, purposeful and resilient life.  Aaron has found creative and entertaining ways to put his message out.  The most recent being a star studded album titled "The Impossible Dream" which was created to raise awareness and help end ALS.   'The Impossible Dream" is available now and includes artists such including Tony and Emmy winning film star Neil Patrick Harris, multi platinum, singer, songwriter, and Tony nominee Josh Groban, Emmy, Grammy, Tony, and Pulitzer Prize winner Lin-Manuel Miranda, Tony and Emmy winner Kristen Chenoweth, Tony winner Kelli Ohara and Tony, Grammy and Emmy winner and Academy award nominee, Leslie Odom, Jr. and many more.  I'm so incredibly grateful to Aaron for opening up about his personal journey with ALS.  He inspires me in my own ALS journey.  Thanks for listening, Hugs, LorriI am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Grateful to catch up with John Driskell Hopkins (Hop) again to see how he's doing with his ALS diagnosis.  About 2.5 years after being told he had ALS, John continues to perform with the Zac Brown Band.  Despite seeing some progression of the disease, Hop is living a full and joyful life.  He's busy creating new music, being a family man and promoting Hop On A Cure, the foundation he & his wife, Jennifer started to accelerate ALS research.   Hop shares how ALS is affecting him & what it's like living out this journey in the public eye.   He updates us on his family, his music projects & how we all can join his efforts to find ALS cures.  Hop gives a sneak peek of their upcoming Harmony for Hope Gala in Atlanta, Georgia on September 14, 2024 - which will be a one of a kind evening with performances by Hop, Zac Brown, Clay Cook, Coy Bowles, Danny De Los Reyes, Kristian Bush, Lily Costner and other special guests.   Listen in to our conversation & share with a friend.  Hugs, LorriI am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

So grateful to have this conversation with Kerry Goode, former NFL (National Football League) player who was diagnosed with ALS in 2015.  Kerry was a running back at the University of Alabama, Tampa Bay Buccaneers, Miami Dolphins and later a strength and conditioning coach also in the NFL.  So he knew something was wrong when he couldn't pick up a box. Here, Kerry shares what he's feeling about having been so physically strong, being able to bench press 400 pounds & squat 800 pounds to now not even being able to pick up a pencil.  He lets us know how he's able to maintain a positive attitude and find great joy in life despite losing his ability to walk, talk and even breathe on his own.  It's no surprise that Kerry is now giving back through his own organization, The Goode Foundation whose mission is to support patients and families affected by ALS and fund ALS research.  We talk about the motivation to share his journey with ALS and his faith in the book that he typed with his eyes after ALS took his ability to move his fingers, “Goode and Faithful Servant: The Kerry Goode Story.”  Our entire conversation here was recorded with Kerry using his eyes to type his answers to my questions.  It's remarkable and so is Kerry.  Thanks for listening in and sharing.  Hugs, Lorrihttps://www.goodefoundation.org/I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

In this episode, I sit down with ALS advocate Bob Scannell, whose personal journey through his wife's battle with ALS has fueled his mission to raise awareness about the disease. After enduring a series of misdiagnoses before finally receiving an ALS diagnosis, Bob is now at the forefront of a campaign to educate both the healthcare industry and the public on the critical importance of early and accurate ALS diagnosis. Join us as Bob shares his powerful story and discusses the urgent need for improved ALS awareness and diagnostic practices. Thank you for listening in. Hugs, LorriRequest an I AM ALS panel: https://www.iamals.org/action/request-a-panel/Email Bob Scannell: alspromptdx@gmail.comI am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

In this compelling podcast episode, I delve into an inspiring conversation with Sam Telgkamp, a resilient 27-year-old battling ALS. Despite her inability to speak due to the progressive nature of the disease, we explore her journey and outlook on life with grace and gratitude at the forefront. Sam's unwavering positivity and resilience shine through as she discusses the challenges of living with a terminal illness, navigating her speech device solely with her eyes. Her perspective offers a poignant reminder of the power of perspective and the resilience of the human spirit in the face of adversity.  Sam shares her heart & experiences through her blog which can be read here:https://stayingloudly.wordpress.com/. Thank you for listening & sharing with a friend. Hugs, Lorri I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

In this episode of  ""I'm Dying To Tell You,"" I meet up with the resilient Sara Bennett, from Columbus, Ohio.  At just 36 years old, Sara was confronted with a devastating diagnosis: ALS.  In a candid and deeply moving conversation, Sara opens up about her extraordinary journey, bravely navigating the intricate balance of life as a mother to two young sons, aged 5 and 7, while grappling with the harsh reality of a terminal illness. With unwavering courage, Sara shares her poignant insights, offering listeners a profound glimpse into the resilience of the human spirit in the face of unimaginable challenges.  Sara shares how she told her young boys about her diagnosis and how she is navigating parenthood in this new season.  Sara also shares how she is working with a death doula to assist her with end-of-life.  This episode is a reminder of the indomitable strength found within us all.  Follow Sara:  https://www.instagram.com/theanandapivot/Thank you for listening in.  Hugs, LorriI am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

In the first episode of Season 5, I delve into the inspiring outreach of ALS Family of Faith with guests Dawn Delaloye and Tanya Hageman. Listen in as they illuminate the profound impact of their nonprofit organization, dedicated to providing free emotional and spiritual support to individuals and families living with ALS. From patients battling the disease to their devoted caregivers and even friends and family, ALS Family of Faith extends a compassionate hand to all affected by this devastating disease. In a time often overshadowed by darkness and isolation, Dawn and Tanya shed light on the transformative power of their partnership with the ALS community, offering a beacon of hope amidst the heavy burdens of this incurable illness. ALS Family of Faith was founded by Steve Cochlan, who was diagnosed with ALS in 2019.  Steve recognized that there wasn't an organized effort offering spiritual support that he was seeking, so he started one himself.  Listen in to this example of love and community and thank you for sharing with a friend.  Hugs, LorriI am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

When I was initially diagnosed with ALS, I was given the typical prognosis of 2-5 years to live. That was 20 years ago.  Today, alongside my two sons, Paul and Christian, we reflect on this journey, answer listener questions, and explore the lessons learned along the way.  I answer your questions about life with ALS, my thoughts on the future and advice to others finding themselves in the face of adversity.  Then, I find out what questions my sons have for me after 20 years with ALS.  Although their questions were tough to answer, I think it was good for all of us to discuss.  I'm incredibly grateful for these bonus years since only 5% of ALS patients live longer than 20 years.  Join us for an intimate and candid conversation as we commemorate this significant milestone and look towards the future with hope & gratitude.  Help celebrate with me by sharing this episode with a friend and leaving a review wherever you listen.  Thank you for your incredible support.  Hugs, LorriI am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

In this episode I chat with Juliet Taylor & Tim Abeska who each lost spouse to ALS. They met in a virtual support group for widow & widowers.   Realizing they lived in the same area and had common interests, they met for coffee and their relationship grew from there.  Today they encourage each other to love & honor their late spouse, enjoy life and be active ALS advocates to help end ALS.   Here, Juliet & Tim share about their late spouses, Jeff Sarnacki & Mary Ann Abeska.  We talk about how they are supporting each other's grief journey and what advice they have for others who are experiencing loss.  It's incredible that both Juliet & Tim have jumped back in to the ALS community as key advocates.  Together, they are the co-chairs of the I AM ALS Community Outreach Team, which helps bring others into our fight for a cure.  Juliet writes a beautiful column for ALS News Today. Listen in to this hopeful chat and share with a friend.  Thanks for listening.  Hugs, Lorri I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

In this episode I chat with Juliet Taylor & Tim Abeska who each lost their spouse to ALS. They met in a virtual support group for widow & widowers.   Realizing they lived in the same area and had common interests, they met for coffee and their relationship grew from there.  Today they encourage each other to love & honor their late spouse, enjoy life and be active ALS advocates to help end ALS.   Here, Juliet & Tim share about their late spouses, Jeff Sarnacki & Mary Ann Abeska.  We talk about how they are supporting each other's grief journey and what advice they have for others who are experiencing loss.  It's incredible that both Juliet & Tim have jumped back in to the ALS community as key advocates.  Together, they are the co-chairs of the I AM ALS Community Outreach Team, which helps bring others into our fight for a cure.  Juliet writes a beautiful column for ALS News Today.   Listen in to this hopeful chat and share with a friend.  Thanks for listening.  Hugs, LorriI am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Here you'll meet Tony and Karen Vick.  Tony, a brave U.S. Veteran, has been living with ALS for the past 6 years.  Karen, his dedicated wife, serves as his full-time caregiver, showcasing the strength of their bond.  Despite facing the challenges of ALS, Tony and Karen lead a fulfilling life and share their journey on Karen's Instagram account, https://www.instagram.com/thekaregiver/.  After realizing how many young caregivers are out there, they decided to share more on the day-to-day realities, triumphs, and tribulations of living with ALS.  They hope to help other caregivers and individuals grappling with illnesses like ALS.  Tune in to discover how they extend their reach and provide support through their engaging weekly LIVE sessions on Instagram @thekaregiver, where they update their journey, answer questions, and offer encouragement.  Both Tony & Karen are returning guests on this podcast.  We get an update on how Tony is doing and his thoughts on his positive perspective.  Tony also shares advice for other veterans living with ALS.  Listen in as I delve into the inspiring story of Tony and Karen Vick, demonstrating that even in the face of adversity, love, resilience, and community can thrive.  Thank you for listening in and sharing with a friend.  Hugs, LorriI am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

In this episode, I talk about having gratitude even during hard times.  I recorded this on Thanksgiving Day.  Thanksgiving encourages us to pause and express gratitude for the positive aspects of our lives.  For me, It always fosters a sense of gratitude, reflection, and appreciation for the blessings and relationships in my life.  This morning I woke up being extra grateful for all I have, for the relationships that I am a part of and for the extra time that I have been given.  Here, I hope to encourage you to seek out GRATITUDE every single day.  I also pass along some things to consider being grateful for even when life gets tough. I share some ways to stir up gratitude as well.  At the end of this episode, I talk about Giving Tuesday and how it provides a unique opportunity to express gratitude through acts of kindness and generosity.  I am incredibly grateful for each of you.  Thank you for being here and letting me share my thoughts with you.  Hugs, LorriI am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Here I chat with Amanda Stevens, wife & caregiver to Eric Stevens – former NFL player & L.A. Firefighter, both introduced to us on The Ellen DeGeneres Show in 2019.   Amanda and Eric were married only one month when Eric was diagnosed with ALS at a young 29 years old.  We fell in love with this young couple as they appeared on the Ellen show three times and even were on to announce that they were expecting a baby.  In the past 4 years since receiving Eric's ALS diagnosis, Amanda has dedicated her life to caring for her husband and their daughter.   Amanda and Eric have also been inspired to help others through their non profit called AxeALS Foundation.  Their mission is to raise awareness and funding for ALS treatments and clinical trials; to help ALS patients and their families live as full and normal lives as possible and to support ALS research. In this episode, Amanda shares her journey, motivation and updates on Eric and life with ALS.   Tune in for this sweet encouragement in the face of huge adversity.  Thank you for listening and sharing this episode with a friend.  Hugs, LorriAxeALS: https://axeals.org/I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

In this episode I talk to Lance Alexander, a teen Hollywood actor from my hometown in Ohio.  You might know Lance from his role as Elvis, a recurring role on the award-winning Netflix show “Family Reunion.”   Like many, during the Pandemic of 2020, he was isolated and fighting depression and decided to fight back.  Lance had a public struggle of being overweight and bullied most of his childhood.  I love that he is inspired to share his journey.  Here Lance shares his motivation for creating his book and campaign, “From Junk to Hunk.”   Lance shares how the key to eliminating “junk” is acknowledging that transformations can require both mental and physical adjustments and applies to all areas of life, not just your size.  He shared that on this journey, he learned that mental transformations might be even more difficult than physical transformations.  Lance also witnessed that permanent change requires mental resilience and self-belief.  Especially for being just 18 years young, I am loving Lance's self awareness and heart to share his experience with others.  Listen in and meet my new friend, Lance.  Hugs, LorriFollow:  https://bit.ly/ImDyingToTellYouInstagram  

Here my husband Paul & I talk to long-time radio personality Jim Scott from Cincinnati.  He has been heard all over the country during his 55+ years on the air, mostly on 700 WLW Radio.  He simply is one of the most giving & positive people I know.  Although most of his life has been spent using his voice in his radio career, he is now battling a disease that is affecting his voice and more.  Jim was diagnosed with ALS, in 2022.  Even while living with a fatal disease with no cure, Jim continues to try to “spark joy” with those that need it most.  We chat about his extraordinary radio career, community and love.  Jim is known as “Good Old Jim Scott” since he has given so much back to others.  Listen in & hear what this incredible 80 year old is “Dying To Tell You.”  Thanks for listening and sharing with a friend.  Hugs, LorriFollow:  https://bit.ly/ImDyingToTellYouInstagram  

Here I chat with military veteran of both the U.S. Marine Corps and the U.S. Navy, Kate Peters.  She served in the USMC 2007-2015, USN 2015-2020 and served in Operation Iraqi Freedom.   Kate is a mother of two boys, three and five and was medically retired from the military after being diagnosed with ALS, a fatal disease that has no cure.    She was diagnosed with ALS in 2020 a few weeks after her second son was born, after about 2 and 1/2 years of symptoms and a misdiagnosis.   I talk to Kate about her military experience, the connection between ALS & the military and her upcoming BIG adventure of traveling the world for a year with her young family.  Kate is considered a slow progresser with ALS, having symptoms for almost 6 years and still being fully independent and able to take care of her children.   She's been able to witness some blessings after being given a terminal diagnosis and shares some beautiful life advice that will encourage us all.   Thank you for listening in and sharing with a friend.  Hugs, LorriFollow:  https://bit.ly/ImDyingToTellYouInstagram  

Here I chat with a young woman living with ALS, who defies all odds by finishing fifty marathons and, in turn, inspires people to “go on, be brave.” I'm absolutely thrilled to catch up with Andrea Lytle Peet again and meet Meredith Atwood in this chat.  Andrea and Meredith coauthor Andrea's new memoir titled, "Hope Fights Back."  Andrea was thirty-three years old—newly married and a triathlete—when she received the death sentence of an ALS diagnosis (also known as Lou Gehrig's disease). After grappling with the fact that she will likely become paralyzed and die within two to five years, Andrea experienced an unexpected spark that changes her outlook in the most magnificent way.  She set a goal to  become the first person with ALS to complete 50 marathons in 50 states.  In May 2022, she accomplished this goal with the 50th race in Prince of Wales Island, Alaska.  Andrea shares her journey in a recently released documentary,  "Go On Be Brave: The Drea Story."  Now, she's publishing a book on 9/5/23 "Hope Fights Back."  In this episode we catch up on it all, especially her inspiring memoir.  Hope Fights Back chronicles what happens when we choose to live instead of waiting to die. It is a "love letter to life" and a beautiful love story between Andrea and her husband, Dave.  Andrea's message is awe-inspiring for everyone.  Listen in and share this incredible story with a friend.  Hugs, LorriFollow:  https://bit.ly/ImDyingToTellYouInstagram  Visit: http://goonbebravefilm.com/  

This episode is just me answering YOUR questions.  I had a lot of requests for this format again, so I asked listeners to send in questions about anything and I answered them here.  I'm so grateful for all the questions that came in, about life, perspective, my ALS longevity, family and advice.  I love that my listeners feel comfortable asking me anything.  This was a super special experience.  I hope you enjoy and share with a friend.Connect: https://www.instagram.com/imdyingtotellyoupodcast/?hl=en and https://twitter.com/LorrisPodcast

Here I continue my talk with Amy, Jim and Matt who are living with ALS about having the toughest conversations of their lives.  When you're living with a terminal illness that doesn't have a cure and typically gives you just a few years to live, like ALS, the most difficult conversations come up quick.  In this Part 2 episode, I continue chatting with  Amy Stiens, Jim Plews-Ogan and Matt Klingenberg.  I am grateful for their willingness to chat about how they were told they had a terminal illness with no cure, how they told their children and friends and even the toughest conversations yet.  Amy, Jim & Matt share their advice on how to go about having "tough talks" like these as well.  Thanks for listening in and sharing with a friend.  Hugs, Lorri  

When you're living with a terminal illness that doesn't have a cure and typically gives you just a few years to live, like ALS, the most difficult conversations come up quick. In this episode, I bring together 3 others who are living with ALS to talk about their experiences with these tough conversations.  Here, I'm talking to Amy Stiens, Jim Plews-Ogan and Matt Klingenberg.  I am grateful for their willingness to chat about how they were told they had a terminal illness with no cure, how they told their children and friends and even the toughest conversations yet.  Amy, Jim & Matt share their advice on how to go about having "tough talks" like these as well.  Thanks for listening in and sharing with a friend.  Hugs, Lorri  Stay connected on Instagram: https://www.instagram.com/imdyingtotellyoupodcast/?hl=en  

In this episode you'll hear my chat with Courtney Cirabisi, a 30 year old who lives in Bakersfield, California.  She became reliant on a wheelchair for everyday mobility after she was child abused by her dad when she was 9 months old, resulting with a spinal cord injury.  I've been following her journey as she shows us that life doesn't stop after you have been abused and have lost the ability to walk. Courtney shares how she believes the mind is the most important thing a person can have.  With that knowledge she is able to live a positive life after all she's been through.  She explains how she feels that she is meant to be where she is today.  I love her outlook and her strength and how she lives a full, rich life.  She has such a beautiful awareness and is using it to inspire others.  Courtney is on a mission to show others how strong your mind is when facing adversity.  She is an author at Push Living (PUSHLIVING.COM) an organization highlighting wheelchair lifestyle.  Thanks for listening in to our chat.  Stay connected on Instagram: https://www.instagram.com/imdyingtotellyoupodcast/?hl=en  Hugs, Lorri  

May is ALS Awareness month.  So in the spirit of increasing awareness of ALS, a terminal illness with no cure, I continue my chat with 3 others living with ALS.  We answer the questions sent in by listeners of this podcast about what it's like being a young adult and living with a terminal illness.  My guests, Ashley Rivera and Mira Hudson were diagnosed at 24 and James Smith was diagnosed at 36.  They dig deep and open their hearts to answer your questions like, "Can you share about the moment you were diagnosed with ALS?"  "How do you find the strength day in and out to persevere and overcome fears, pain, negative emotions, etc.? "  "What's important now that wasn't before your diagnosis?"  "What makes you feel inspired or like your best self now?"  and "How are you dealing with the mental side of living with ALS."  Those are a few examples of questions they answer and generate a full conversation around.  Please consider sharing this episode to share their courageous spirits and to tell others about ALS.  Thank you. Hugs, Lorri  

In this special Q&A episode, 3 young adults answer questions you sent in about ALS and living with a terminal illness.  May is ALS Awareness month.  So in the spirit of increasing awareness of ALS, a terminal illness with no cure, I chatted with 3 others living with ALS.  We answer the questions sent in by listeners of this podcast about what it's like being a young adult and living with a terminal illness.  My guests, Ashley Rivera and Mira Hudson were diagnosed at 24 and James Smith was diagnosed at 36.  They dig deep and open their hearts to answer your questions like, "Can you share about the moment you were diagnosed with ALS?"  "How do you find the strength day in and out to persevere and overcome fears, pain, negative emotions, etc.? "  "What's important now that wasn't before your diagnosis?"  "What makes you feel inspired or like your best self now?"  and "How are you dealing with the mental side of living with ALS."  Those are a few examples of questions they answer and generate a full conversation around.  Please consider sharing this episode to share their courageous spirits and to tell others about ALS.  Thank you. Hugs, Lorri  

On this episode of  I'm Dying To Tell You Podcast, I talk to Rob Schwartz son of Morrie Schwartz from the classic book Tuesdays with Morrie.  We chat about the newly released book, “The Wisdom of Morrie.”   The book was written by Morrie Schwartz, recently edited and released by Rob.  The number one bestseller Tuesdays with Morrie was written from conversations with author Mitch Albom after Morrie was sick and knew he was in the process of dying from ALS.   However, this newly released book, The Wisdom of Morrie was written by Morrie before he was diagnosed ALS.   Rob rediscovered this manuscript that Morrie wrote about staying vibrant and connected for life.  Morrie explores living and aging joyfully and creatively.  Later life can be filled with many challenges, but it can also be one of the most beautiful and rewarding passages in anyone's lifetime.  Morrie draws on his experiences as a social psychologist, teacher, father, friend, and sage to offer us a road map to navigate our futures.  I hope you'll listen in and hear more from Morrie all these years later.  Hugs, Lorri

 Here I sit down with Zac Brown Band founding member, John Driskell Hopkins who is using his stage to help bring awareness to ALS, also known as Lou Gehrig's Disease.  John was diagnosed with ALS, a terminal illness with no cure in 2021.  John, also known as Hop, decided to go public with his ALS hoping his reach could result in awareness, action and ultimately support for an ALS cure.  He and his wife, Jennifer formed the Hop On A Cure organization which supports promising ALS research.  In this episode, I chat with John about, his start in music, how he became a part of the award winning Zac Brown Band and how he noticed something wasn't right with his health on tour.  He shares intimate details about his thoughts right after diagnosis, telling his family, his daughters and more.  I chat with Jennifer about their foundation, Hop on a Cure.  John continues to perform and record with the Zac Brown Band as they are currently on tour. Thank you for listening and sharing with a friend.  Hugs, Lorri

Here I talk to 34 year old TikToker, Brooke Eby who is using humor and social media to navigate life after being diagnosed with a fatal disease.  Brooke was diagnosed with the terminal illness, ALS, at a young 33.   With the support of her family, friends, and co-workers, Brooke's been able to laugh in the face of ALS by using humor on social media..  Brooke created a TikTok account @LimpBroozkit to help explain what she  was going through without making it a heavy conversation.  Not only is creating TikTok videos about ALS a case of "laughter is the best medicine" right now, but Brooke is also educating others and creating new ALS awareness.   With millions of views, Brooke's ultimate goal is that her humor continues to boost others through any hard times.  Brooke said that after getting a terminal diagnosis, she felt a mix of shock and sadness and was depressed during the first couple of months.   Right now, Brooke's TikTok videos are helping her cope.   She hopes her videos can help start conversations to drive awareness, support and ultimately cures for ALS.  Check out Brooke's TikTok channel @LimpBroozkit .  Thank you for listening in and sharing with a friend.  Hugs, LorriFollow:  https://bit.ly/ImDyingToTellYouInstagram

Here I talk to someone who has  ALS for over 25 years.  I reconnect with a former colleague from Kraft Nabisco, John Carthum.  It was a few decades ago when I heard John left the company for medical reasons.  I never knew what hand he was dealt that made him have to leave his career at such a young age until I was diagnosed with ALS in 2004.  That's when I learned that it was also ALS that John was diagnosed with in 1995.  Now he is outliving the typical 2 to 5 year death sentence that comes with ALS, also known as Lou Gehrig's Disease.  It's incredible that John has been living with ALS for 27 years now. I am so grateful that John decided to take me up on my invitation to chat for this episode.  I knew his precious insights would be a blessing to many.  Listen in and hear John share what it has been like living with a terminal illness with no cure for such a long time, how he and his wife decided to have children after his diagnosis and what keeps him living life to the fullest while struggling every single day.  Thanks for listening in and sharing with a friend.  Hugs, LorriStay Connected:Instagram: https://www.instagram.com/imdyingtotellyoupodcast/?hl=enFacebook:  https://www.facebook.com/ImDyingToTellYouPodcast/ Connect more: http://www.ImDyingToTellYouPodcast.com

Here I chat with award-winning director/producer, Jared Callahan.  He shares the inspiration behind the film, SOMETIMES I SHAKE.  The documentary film follows PLNU music professor and jazz conductor Dan Nelson as he navigates his life and profession around an ever-increasing shake caused by his Parkinson's disease.  Then suddenly, Dan is devastated by the additional, and terminal, diagnosis of ALS. The film is an inspirational tale full of vigor, humor, and raw honesty, that follows Dan's wild pilgrimage toward death, and along the way, discovering how to fully live. The film takes us through Dan's final days as he decides if he will marry the woman he loves, when to end his career in music, and how to invest the remaining months of his life.  Dan has since passed away, but hopefully you will listen in and be moved to experience his spirit by viewing the film, SOMETIMES I SHAKE.  Jared Callahan also founded and runs People People Media, an Emmy-nominated production company and has had projects premiere at the best film festivals in the world.  Thanks for listening and sharing with a friend.

In this episode, it's just ME talking about LOVE :)Here I mix it up a little and talk about what's on my heart.  This releases on Valentines Day, so talking about LOVE ... specifically 4 Easy Ways To Spread More Love.  I talk about the first few things that came to mind, Listen, Words, Time and Action.  I thought to myself, these seem so simple but realized I always need reminders, so why not share?  We all have the power to show others they are loved and not alone. There are no limits on love with those who are close or even strangers.  Listen in, open your mind & heart and reach out to someone with these in mind.  Thanks for listening and sharing with a friend.  Hugs and Love, Lorri

Here I chat with Brian Wallach and his wife Sandra Abrevaya, co-founders of  I AM ALS and Synapticure.  At 37, Brian was diagnosed with ALS—on the same day he and he and Sandra brought their second daughter home from the hospital.  In an instant, everything changed.  They went from being a couple only a few years removed from both working at the White House to not knowing if Brian would live to see his 40th birthday.  An otherwise healthy former college athlete, Brian expected to find a system built to help him and Sandra deal with this new reality.  Instead, they found a broken and failed system in which doctors told patients to “get their affairs in order and get ready to die.”   In this episode,  we talk about what happened next which was to do what they do best, put hope into action.  In 2019 they founded and built a patient-led revolution called I AM ALS, which is now  a community of over 50,000.  Next they completed a documentary film, No Ordinary Campaign.  The film follows them in real time as they fight for their own future while seeking to build a brighter one for thousands of others.   Recently they started, Synapticure,  a  telemedicine health care company for people living with ALS.  We catch up on all that and talk about how they do all this while living with a terminal illness and raising two daughters 5 and 7.  Today, there is no cure for ALS.   There are no treatments available to save lives.  As Brian puts it, you have two choices in a situation like this: curl up into a ball or act.  Listen in and hear how Brian and Sandra chose to act.  Thanks for sharing with a friend and leaving a review to help others join our fight to end ALS.  Hugs, Lorri

Here I talk to Kylan Morris, 25, who recently lost her mother to ALS about how she's already following her mama's marching orders to help those battling ALS.  "Please take my baton & run faster & farther."  That was Sandy Morris's last twitter message to her fellow advocates fighting for ALS cures with her.  Sandy Morris passed away on August 28, 2022 at age 56 from ALS.  I chat with Kylan as she shares what it was like losing her mom at such a young age.  Just a few months after losing her mama, Kylan was eager to share what she learned from her mom, her choice of dying with dignity, the final days together and the work that Kylan is doing to continue making a difference with those living with ALS.  Kylan describes how her mama helped move mountains in the ALS community, vowing to leave the disease space better than she was forced into it so that future ALS families could benefit.  Sandy was a fierce ALS advocate who was highly respected and admired for her many contributions.   Even in her final days, Sandy started a new ALS Clinic Survey project with Pat Dolan and his Geospatial Hub team.  Kylan talks about how she jumped in to take her mom's baton and complete this project.   The ALS Clinic Survey is now available and provides a summary of the type and quality of care at each ALS clinic in the U.S. based on personal experiences of persons living with ALS.  I loved hearing about how Kylan is honoring her mama, Sandy.  As a mom, I was overwhelmed witnessing the positive impact that Sandy has had on her young daughter.  It's really made me pause.  This is a beautiful conversation.  Excited for you to hear it and share with another mama.  Hugs, Lorri

I knew I wanted to do an episode about HOPE, heading into the new year.  On December 8th we lost our friend Scott Smith and quickly I knew his words were all I needed to share.  This episode is an inspired replay.  In memory of our dear friend Scott Smith, I added a new intro,  a message from Jamie and then share my original chat with Scott and Jamie Smith.   Originally released in 2021, as they were fighting Scott's ALS, Scott and Jamie shared their hearts to encourage others.    Silver Linings, Courage Under Fire, Nothing to Lose and Riding On Hope are just a few of the topics Scott wrote about in his intimate blog, Flex On ALS.  He  documented his personal experience by sharing his fears, regrets and what he wanted us to realize before it's too late.  Scott was a personal trainer, fitness advocate and young father of two daughters Iris, 3 and Hope, 1.   Scott and Jamie shared openly about life with a terminal illness, a young family and all that came with that.  Scott's writings on flexonals.com were intended to tell the truth about one man's journey as he walks through the fire, but trust me they will inspire you as well.  Thank you for listening and sharing with a friend as we remember Scott.  Hugs, Lorri

So happy to talk to 17 year old Michael C. Platt, a teen baker, social entrepreneur, food-justice advocate and author.  He inspires me with his giving spirit and passion to help others.  Michael recently released his first cookbook to bring awareness to food and poverty.  His book, Michaels Desserts, Sweets for a Cause aims to build skills in the kitchen, celebrate history, and inspire activism.   We also chat about his baking company, Michael's Desserts, his one-for-one model, his non-profit P.L.L.A.T.E. and his inspiration behind it all.   This young teen has such a beautiful life perspective at a young age.  I hope you'll listen in and consider Michaels Desserts cookbook as a perfect holiday gift.   Some desserts recipes include Michael's signature Freedom Fighter Cupcakes themed around figures from the history of civil rights and activism, as well as chapters on pies, tarts, cakes, snacks, and breads.  In the cookbook, you'll find each dessert features stunning photography, a list of ingredients, easy-to-do step-by-step instructions, and insightful tips from Michael that will make baking so much fun.   Michael's cookbook is for all ages, whether baking with kids or wanting to support Michael's incredible mission.   I'm happy to introduce this "sweet" story to you.  Hugs, Lorri

In this episode I chat with those who created Luka, the first robot to have ALS and hear the inspiration behind it all.   I chat with the team that is bringing the  first robot with ALS to the big screen.  The film, Luka & the Lights, is inspired by the real-life of Sascha Groen and her husband Anjo Snijders who is battling ALS.   Sascha created the robot character Luka and wrote and illustrated his story to help explain to their children what's happening with their dad who was diagnosed with ALS.  Also in our chat is Toby Cochran, Director and Adrian Ochoa, Producer who are leading a professional animation team to bring this film to life.   This film is both heartbreaking and inspiring  and will create ALS awareness and help children and adults understand what ALS is.   Sascha and Anjo wrote the story explaining the ALS disease with the help of the robot lights.   I love how the significance of the lights helps illustrate what ALS does.  This one of a kind short animation film will be made available for free on various media.  In this film we get to know the little robot Luka. We see how everyday tasks get harder and how they find out Luka is ill and what this means  for Luka's life and environment. The film does not use words, but music, which makes it internationally applicable. I know this film will help so many families affected by this terminal disease.  Thank you for listening and sharing with a friend.  Hugs, Lorri

In this episode, hear 21 year old Michael Cramer who was given just eight months to live share his journey on beating a rare and aggressive blood cancer.  At age 19, Michael had been an athletic, healthy teenager.  He was a surfer and sailor, rarely sick and had never been hospitalized.  A routine blood test led to a life-changing cancer diagnosis.  After Michael was diagnosed with Hepatosplenic T-cell Lymphoma (HSTCL)  Michael and his mom Ashlee Cramer were terrified.  They knew Michael might not survive and could only have just eight months to live.  That was in July 2020.  Now Michael is inspiring others who are going through health hardships.  Although Michael has some major challenges as a result of his treatments, he and his Mom are reaching out and helping so many others.  This beautiful momma/son team talk cancer, share how this tragedy changed their lives for the better, and gave them the courage to motivate and inspire others.  From the beginning, Michael and his mom have embraced sharing their experience and the lessons they have learned on social media through Instagram and TikTok.   Recently they tell their story in more depth, from both perspectives on their podcast , called Michael and Mom Talk Cancer.  Michael still has a long recovery road ahead, but is now in full remission and is sharing his miraculous journey to let others know they are loved and not alone.  Thank you for listening and sharing with a friend.  Hugs, Lorri

Here I am on location in Boston to bring you a behind the scenes look and my  weekend experience with the ALS Therapy Development Institute (ALS TDI) the world's foremost ALS drug discovery lab focused solely on ALS.  I was so grateful to tour the lab and attend the ALS TDI Summit which was a day of updates on the progress of ALS Research.  I wrapped up the weekend by attending their White Coat Affair gala which is a powerful evening that brings together and honors those living with ALS and remembers those whom we've lost.I catch up with 5 inspirational guests as we chat about the love, passion and hope behind the lab doors of this ALS research lab.  My conversations start directly in the lab as I talk to three scientists, Valerie Tassinari, Associate Scientist III, Anna, Gill, Associate Scientist III, Program Manager and Kyle Denton, Ph.D., Director, Cell Biology to find out what it means to work every day to discover treatments for those living with ALS.Then I talk to Kevin and Tessa Geraghty, who are living with ALS and also attending the ALS TDI weekend events and ask them what it means to visit the lab and meet others fighting the same terminal illness.Finally I chat with Carol Hamilton, Vice President of Development about unique ways to support their ALS research.  I loved witnessing the special bond between those who work in the lab and those who they are trying to save.  From all of us living with ALS, thank you for listening and sharing with a friend.  Hugs, Lorri

In this episode, I talk to Emma Terry who is a an ALS caregiver and a participant in the Miss America organization with her platform being ALS.    I catch up with this college student at the University of Alabama at Birmingham who is an ALS advocate, caregiver and granddaughter of ALS warrior, Stewart Simpson.   Emma recently turned 20 and her grandfather "Grandy" was diagnosed with ALS right before she was born.  Emma has a special relationship with her Grandy as all she's known is a lifetime of ALS with him.  Even as a full-time college student, she continues to be a caregiver for her Grandy.  He is 84 years old and his ALS has escalated to the point where he is confined to a hospital bed in his living room.  Although her Grandy cannot speak, he still has the ability to write.  So I'm so grateful that he was able to be a part of this chat as well.  You'll hear what advice he has after living with a terminal illness for 20 years.  Emma is also a participant in the Miss America organization and recently was Miss Alabama's Outstanding Teen.   Emma's platform is "Stomping Out ALS One Step at a Time" through which she raises awareness and funds to support the ALS fight.   She is also a member of I AM ALS Legislative Affairs Community Affairs team.   I love witnessing what life lessons Emma has learned through this incredibly difficult journey and the great love her and her Grandy have for each other.    Listen in and enjoy.  Hugs, Lorri

Hear my conversation with Lori Larson Heller as we talk about love, loss and moving forward instead of moving on.   Lori is a writer, speaker, fierce ALS advocate, and a widow.   She was in a season where life was going better than she could of planned.  Lori had a husband who was her best friend and soul mate, the absolute love of her life.  Then without warning, her plan changed.   On September 6, 2018 …  her husband Jim Heller was diagnosed with a terminal illness, ALS.  She left her successful commercial real estate investment career and became a full-time caregiver that day.   After losing her husband Jim to ALS, everything Lori was planning for her future vanished before her eyes, which is when she realized that we are not always in control.  Eventually Lori realized she had to make a choice.  Either stay stuck in a mindset of “why me”, or dig deep to see if she had the strength to shift her perspective for what the universe had in store.   We chat about "the old Lori" and "the new Lori."    She shares the superpower we all have: the ability to flip our script and view life through a different lens.   Lori shares that life doesn't happen to us, it happens for us.  You'll hear how she's found acceptance of adversities, and discovered blessings in all the tough stuff.   I love how faithful she is and encourages others that we're all here for a reason, and we have to find our purpose.  Be blessed, listen in and share with a friend.  Hugs, Lorri

Here I chat with ALS advocate and boa flouncer Katrina Byrd about her experience as a caregiver and what led her to write, "The Language of Forgiveness."  Katrina is a writer, playwright and ALS advocate, of Jackson, Mississippi.  She's an inspiration to many as she is a perfect example of courage, love, acceptance and forgiveness.  Katrina is legally blind and is no stranger to life obstacles of her own.  Yet, she cared for her partner, Dora Robertson who died from ALS just 76 days after being diagnosed with the disease.   Katrina also goes by "The Boa Flouncer" to help others going through a grief journey.  Fully aware of the devastating impacts of the journey of ALS, Katrina is honored to use her alter ego, "The Flouncer" which Dora helped to develop, to recognize others who advocate, educate and create ALS awareness.   She co-leads the Many Shades of ALS Community Team at I AM ALS which brings attention to and provides resources for the mental, physical and social health of people of color living with and impacted by ALS.   This time, we are flouncing our boat at you, Katrina.  Hugs, Lorri

This month is the 25th anniversary of the American classic book, "Tuesdays with Morrie."   Here I'm resharing my precious conversation with the author Mitch Albom.  We talk about love, faith, living and dying and the life lessons from his professor, Morrie Schwartz.  In this episode Mitch Albom shares the backstory of how he met his former professor Morrie Schwartz and how their relationship developed.  Mitch shared Morrie's life lessons in the best-selling memoir of all time, Tuesdays with Morrie.  Today, the book has sold 17 million copies in more than 50 editions around the world.  Mitch and I discuss some lessons that Morrie passed on during their weekly Tuesday visits.  Mitch also talks about his new novel, The Stranger In The Lifeboat.  Mitch Albom is a best-selling author, screenwriter, playwright, broadcaster and nationally syndicated columnist.   He has written seven number one New York Times bestsellers and his books have collectively sold more than 40 million copies.  Mitch has a generous heart as he has founded nine charities in his hometown of Detroit, and since 2010 he has operated the Have Faith Haiti Orphanage in Port-Au-Prince.  He lives with his wife Janine in Michigan.  Mitch is an inspiration to me for the beautiful books he writes and the love he pours out to others.  Thanks for listening and sharing with a friend.  Hugs, Lorri

Listen in to my conversation with David Richman who rode his bike 5,000 miles to explore the emotional journey of cancer.  After losing his sister to brain cancer, David was led to do something incredible that can inspire us all.  In this chat we talk about his intense and unique fundraiser in his sister's memory which was writing a book, Cycle of Lives.  This book is the result of 15 people's stories, 5,000 miles and a journey through the emotional chaos of cancer.  David shares what motivated him to deeply explore  emotional journeys with cancer and the various traumas in their lives that affected their experience.  I love how he pulled it all together in his book where the stories are interwoven amongst the narrative of David's solo 5,000-mile bike ride to go meet the book participants.   He shares some of the interconnected stories of people overcoming trauma.  David generously donates 100% of the net proceeds of the book to various cancer-related charities picked by the book participants or their survivors.  Cancer and other diseases come with so much physical impact.  I love seeing how David was able to create a safe space to talk about the tough emotions that come with it.   Thanks for listening.  Hugs, Lorri