Podcasts about young onset parkinson's disease

What do Parkinson's disease and an Ironman Triathlon have in common…Dr. Sara WhittinghamDr. Sara Whittingham is an Air Force Veteran and Anesthesiologist at Cleveland Clinic, Marymount Hospital, and clinical faculty member at Northeast Ohio Medical University.  She traveled the world caring for fellow service members and patients.  In Nov. 2020, at the age of 46, Sara's life took an unexpected turn when she was diagnosed with Young Onset Parkinson's Disease.Sara won a chance to compete at the 2023 Ironman World Championship in Kona.  She used this opportunity to raise awareness about Parkinson's Disease and how exercise can help people living with Parkinson's, live a full life.

Caitlin shares her journey with Young Onset Parkinson's Disease. She spends the first six years of her diagnosis in denial, intent on proving her doctors wrong even as her symptoms progressed. Once she accepts her neurological disorder she takes on a million projects so she doesn't have to face her greatest fear: there is no cure. It's only once all her projects start to fall apart and she hits a very low point does a door in Caitlin's mental armour crack open to new possibilities. She shares her experience at a recent Joe Dispenza retreat and her new perspective on living and hope for the future. What I find so inspiring about her journey is how she's found a sense of curiosity - curiosity around her body, her mind and her disorder. We cover the importance of processing our emotions, how energy is stored in the body, getting in touch with what our bodies are telling us, how our menstrual cycle can affect medication and believing her health is worth advocating for.   

I had the distinct pleasure of speaking with PwP and Certified Life Coach Mariam Bennouna. You will discover how she turned her Parkinson's diagnosis into a passion for helping others to learn to live with the disease, particularly those who have Young Onset Parkinson's Disease. Video version is here To sign up for a free consultation and to get in touch with Mariam, please use the following links: Website  Free call Living My Parkinson on Facebook Join this channel to get access to member's only content and perks:  https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join  https://www.patreon.com/pdeducation Medical Disclaimer: All information, content, and material of this video is for informational purposes only and not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. Affiliate disclaimer: Keep in mind that links used for recommended products may earn me a commission when you make purchases. However, this does not impact what products I recommend. If I recommend a specific product it is because it has been vetted by myself or based on personal use #parkinson #parkinsonsawareness #parkinsonsdisease #parkinsons #interview #lifecoach #podcast #yopd

Thank you for listening to this episode of "Health and Fitness" from the Nezpod Studios! Enjoy your night or the start of your day, spiced by our top-notch health and fitness/wellness updates coined from the best sources around the globe: made only for your utmost enjoyment and enlightenment… Click on subscribe to get more spicy episodes for free! See you again soon on the next episode of Health and Fitness Updates! Learn more about your ad choices. Visit megaphone.fm/adchoices

Thank you for listening to this episode of "Health and Fitness" from the Nezpod Studios! Enjoy your night or the start of your day, spiced by our top-notch health and fitness/wellness updates coined from the best sources around the globe: made only for your utmost enjoyment and enlightenment… Click on subscribe to get more spicy episodes for free! See you again soon on the next episode of Health and fitness updates! Learn more about your ad choices. Visit megaphone.fm/adchoices

Blake Bookstaff, young-onset patient and author of: “You have young-onset Parkinson's disease” joins us to talk about his journey with Parkinson's and what he hopes his book will accomplish. P.S. his book is relevant for all ages of Parkinson's patients.

In this episode, Dr. Rodolfo Savica discusses the biological and social differences of YOPD (young onset Parkinson's), treatments for YOPD, the challenges of diagnosing YOPD, and more. Topics discussed include: “Early” Versus “Young” Onset Parkinson's Typical Age for Young/Early Onset Parkinson's Treatment Differences for YOPD Diagnosing Young/Early Onset Parkinson's Young Onset Parkinson's and DBS (Deep Brain Stimulation) Difference in Progression Between Early Onset and Late Onset Parkinson's Difference in Women with Early Onset Versus Later Onset Parkinson's Exercising with YOPD Dementia and Cognitive Decline and more! We hope you enjoy!

Today's episode is with Caitlin Nagy and we talk all about Young Onset Parkinson's Disease -  including her diagnosis, her journey and the wisdom she's gained along the way.   A lot of people perceive Parkinson's Disease [PD] to be an old person's disease. However, the number of people diagnosed with PD in their 20's, 30's and 40's is dramatically increasing. In fact it is one of the fastest growing neurological disorder in people under 45.   In this episode Caitlin shares the circumstances surrounding her diagnosis at 32 years old and how her pregnancy significantly influenced the progression of the symptoms (which is not uncommon). For the first 6 years Caitlin avoided social events, get togethers or meeting up with old friends because she was totally ashamed of her body and her lack of control over it. And really just didn't want to try and explain what it was when I really hadn't accepted what it was myself.   Caitlin shares her journey from resistance to acceptance and what that has meant for her self esteem and self identity [this might be my favorite part of the whole discussion].    In this episode Caitlin also talks about the reality of how medications for PD have been exclusively tested on only men and yet, for women there is a significant influence that comes from our unique hormonal journey and cyclical physiology.    Caitlin shares what medical and holistic approaches have been helpful for her including synchronizing her nutrition and lifestyle to the infradian rhythms of her body, psilocybin microdosing and a whole host of other approaches.    More about Caitlin / Creative By Caitlin + Highlands Estate: Caitlin is a self described generator, visual storyteller, creative problem solver and late night Pinterest junkie who owns and operates Creative By Caitlin. She specializes in brand development, website design and creative consulting. Caitlin has a background in Fine Art, majoring in Sculpture/Installation, Advertising & Graphic Design. She started her Marketing career in Sponsorship Advertising and had the opportunity to work in a multitude of different Industries on both the client and agency side, ranging from the Financial Sector, Non-for-profit, Sporting Goods, Home Appliances and Power Tools. She has lead and developed creative teams for some of the biggest household brands in North America and currently consult on process and team development for in-house creative teams and boutique agencies. In 2020 Caitlin and her family purchased a 1960's chalet on 97 acres in the Blue Mountains of Ontario. What they thought was going to be an Airbnb and family ski getaway quickly morphed into an even bigger idea of turning it to a luxury destination resort and wedding venue. They now own and operate Highlands Estate. [check it out - it's incredible].   Blog Post: Living With Young Onset Parkinson's Creative By Caitlin: website   More about Laura / Soul Inspired Gurl: I have recently opened up some opportunities for women to work 1:1 with me in personal leadership coaching. This year my group program (ROOTS) is on pause … I can feel a deep level of 1:1 work that's emerging for me and I'm creating as much space as possible for what's coming through. If you feel called to work with me, you can book a free discovery call right here. You can also reach out to me through private direct message on INSTAGRAM and we can take the next step. Lastly, we are sold out for our retreat that I'm co-hosting with the extraordinary Shirlee Williams in Puerto Vallarta Mexico in April. Stay tuned for a delicious 5 day retreat in Ontario, Canada in late July 2023.  Retreat INFO Website Please share, rate, review and subscribe to the podcast. It makes a massive difference in supporting this work and we deeply appreciate it. Blessings, L

Season 3 Episode 1: Jon Braddock is a licensed architect with a Masters Degree from MIT and a Bachelors Degree from the University of Florida.  He was diagnosed with YOPD in Jan, 2020 and lives in Ponte Vedra, Florida with his wife and two kids. Join me as I talk to Jon about navigating Young Onset Parkinson's Disease and coping with the disease during the “best” years of his life.   

The road ahead is full of incredible challenges. After the diagnosis of Parkison's Disease, it's easy to push away the future and live in the past. It's important to realize that we remember only the best days while wearing our rose-colored glasses. We forget the average and mundane days and the anxiety that we were feeling. Living in the past keeps us from experiencing the possibility of joy that lies ahead. Daniel shares the results of a recent appointment he had with his Movement Disorder Specialist. Having decreased levels of energy is very common in those diagnosed with Parkinson's Disease. Daniel provides some of his strategies in order to keep moving forward even with the lack of energy. Daniel continues to keep his diagnosis a secret from everyone except a select few. His reasoning is simple. To keep working for as long as possible before alerting his employer. However, the reality is that he will not be able to keep it up for too much longer. Once he shares the diagnosis with his employer, that is when he will notify everyone else about the Young Onset Parkinson's Disease diagnosis. This approach is littered with its own consequences. Add your experience and suggestions to the conversation in this Parkinson's podcast. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656. Email us at parkinsonsandmepodcast@gmail.com or visit our site parkinsonsand.me --- Send in a voice message: https://anchor.fm/parkinsonsandme/message

Larry has spent more than 30 years in radio as a news and sports anchor/reporter, program director, and consultant.Gifford hosts the podcast “When Life Gives You Parkinson's” which details his journey with the disease as a guy in his mid-40's with a family and a career. He was diagnosed with Young Onset Parkinson's Disease in August 2017. The show was named “Best Podcast” by RTDNA West Region in 2020 and among the “Best of 2018” by Apple Podcasts.Gifford serves on boards for the CKNW Kids' Fund, Pacific Parkinson's Research Institute, and the Michael J Fox Foundation Patient Council. He is also has been named an Ambassador for the 2022 World Parkinson Congress in Barcelona, Spain.PD Avengershttps://www.pdavengers.com/larry-gifford-bioLarry's Social Media links:https://twitter.com/Giffordtweethttps://www.instagram.com/larrygifford1/?hl=enhttps://www.linkedin.com/in/larrygifford/ Learn more about your ad choices. Visit megaphone.fm/adchoicesSee omnystudio.com/listener for privacy information.

Larry has spent more than 30 years in radio as a news and sports anchor/reporter, program director, and consultant. Gifford hosts the podcast “When Life Gives You Parkinson's” which details his journey with the disease as a guy in his mid-40's with a family and a career. He was diagnosed with Young Onset Parkinson's Disease in August 2017. The show was named “Best Podcast” by RTDNA West Region in 2020 and among the “Best of 2018” by Apple Podcasts. Gifford serves on boards for the CKNW Kids' Fund, Pacific Parkinson's Research Institute, and the Michael J Fox Foundation Patient Council. He is also has been named an Ambassador for the 2022 World Parkinson Congress in Barcelona, Spain. PD Avengers https://www.pdavengers.com/larry-gifford-bio Larry's Social Media links: https://twitter.com/Giffordtweet https://www.instagram.com/larrygifford1/?hl=en https://www.linkedin.com/in/larrygifford/ Learn more about your ad choices. Visit megaphone.fm/adchoices

The Young Onset Parkinson's Network Podcast (YOPnetwork.org) is proud to present a conversation with Kevin Kwok! Kevin tells his story and discusses being an ambassador of Davis Phinney, his talks with DP and gives his insight of the pharma/biotech industry where he spent years building a great career.   About Kevin "9 years ago, at the age of 48, I was diagnosed with Young Onset Parkinson's Disease. After recovering from the shock of this diagnosis, I opted to embrace my disease. Having been trained as a clinician (PharmD- U of Michigan 1986) and a 30 year executive in the biopharma industry, I approach my disease with a unique involvement and curiosity at multiple levels. To quote Michael J Fox, “when you've seen a Parkinson's patient, you've only seen one patient.” The issue is that no two PD patients are exactly alike, and this poses a dilemma in treating our tribe according to traditional clinical paradigms. This is where personalized medicine (PM) comes in. In the course of my presentation, I will share how my involvement in PM as a patient will both help me and others with this disease."

What is Young Onset Parkinson's Disease or YOPD? Are YOPD people experiences different than the majority who are diagnosis at a later stage in their lives? How do they manage all the other challenges and blessings that life offers while dealing with this progressive illness? How do you navigate life with the PD symptoms you are experiencing in an ever-changing environment?  We will answer these questions and more with an expert Movement Disorder Specialist, Dr. Sana Aslam, and an inspirational young woman living her best life with Parkinson's. More information on YOPD visit: https://michaeljfox.org https://parkinson.org https://davisphinneyfoundation.org For Kim Morgan: @ahealthydoseofstyle 

Parkinson's disease (PD) does not exclusively affect the older population. In fact, about four percent of people with PD in the United States developed the disease before age 50. This is called Young-Onset Parkinson's disease (YOPD). While the disease in younger people resembles in many ways PD in the older age group, it presents some unique challenges, including issues with employment, sexuality, pregnancy, family life, financial planning and parenting. In this episode, the second of two on YOPD, Dr. Bart Post of Radboud University in Nijmegen, the Netherlands, a Parkinson's Foundation Center of Excellence, focuses on some of the social and interpersonal issues, including work, family, and women's issues. He also describes the Phase of Life Dependent Support Program that he has developed at his university to meet the special needs of people with YOPD.

Although people often think of Parkinson's disease (PD) as one affecting the elderly, approximately one in 25 people living with PD in the United States received their diagnosis before age 50. This is known as Young-Onset Parkinson's disease (YOPD). While it shares many motor and non-motor symptoms with typically older onset disease, it does differ in some ways, particularly in terms of speed of progression, reaction to medications, life circumstances and underlying genetic risk factors.   In this episode, the first of two on YOPD, Dr. Bart Post of Radboud University in Nijmegen, the Netherlands, a Parkinson's Foundation Center of Excellence, describes some of the physical characteristics of YOPD. In the second episode, he will focus on some of the social and interpersonal issues, including work, family, and specifically women's issues. He will also describe a program that his university has developed for people with YOPD.

Thursday (2/10/22) at 6:00 EST on radioparkies.com we spoke with Becca Miller PhD. Becca talks about Parkinson's medication and hospital stays, and the way to fix this problem. She shares her personal story plus much more.    She co-authored the book, Deprescribing in Psychiatry, published by Oxford University Press. Becca was diagnosed with Young Onset Parkinson's Disease, at age 39 when her daughter was 9 months old, and after living with symptoms undiagnosed for 10 years prior. She has served as a delegate and spoken on YOPD and parenting at the World Parkinson Congress in Portland, OR and Kyoto, Japan.   Rebecca (Becca) Miller, Ph.D., is a licensed clinical psychologist and Associate Professor at the Yale School of Medicine, Department of Psychiatry, New Haven CT, USA. She received her MA and PhD in Clinical Psychology from Long Island University, Brooklyn, and her BA from Barnard College.  

This course features Mark Kohus, a husband, father, and financial services professional thriving with Young Onset Parkinson's Disease. In this conversational format, Mark shares his journey from learning the initial diagnosis through researching, navigating resources and interventions to advocating for himself and others who are thriving with Young Onset Parkinson's Disease. Mark's wife, Kimberly Kohus, also joins the conversation to discuss her role as a supportive partner and offer advice on best supporting a loved one with Young Onset Parkinson's Disease.

Dr. Mathur is a family physician from Toronto, Canada who resigned her medical practice following a Young Onset Parkinson's Disease diagnosis at age 27. Having lived with the disease for over two decades she now spends her time writing, educating, and advocating for those living with Parkinson's. Dr. Mathur works with organizations such as The Michael J Fox foundation, The Davis Phinney Foundation the Brian Grant Foundation, Parkinson Canda, Lakeridge Health Foundation and co founder of PD Avenger's.  She is also an author of the patient education and medical blog UnshakeableMD, and she has authored two books, Shaky hands, and my grandpa's shaky hands.

Visit https://delaflorteachings.com/faith to receive the “21 Days of Faith in Action Course” as our gift to you.“Learn from your limitations and use them in your favor instead of against you. Prepare for the unknown of tomorrow with the information you have today.”To close 2021 with grace and POWER, we have as our guest a real NINJA WARRIOR who, at 27 years old, was diagnosed with Young Onset Parkinson's Disease.Mr. Jimmy Choi, also known as THE FOX NINJA, is an incredible Motivational Speaker, Parkinson's Advocate, Fundraiser Ultra-Marathoner, Endurance Athlete, American Ninja Warrior of seasons 9, 10, 11, 12, and 14, TedX Speaker, Burpee and Push Up World Record Holder, and so much more! Jimmy, who has been mentored by Michael J. Fox, works relentlessly to raise both funds and awareness of all that pertains to Parkinson's Disease.During our conversation, Jimmy shared with us:- How his childhood was a setup for success. - What it was like as a young husband and father at 27 years old to be diagnosed with Parkinson's disease.- The role of DENIAL in his life.- The POWER of the ROCK BOTTOM moment, a “moment of shock” that stopped denial in its tracks and fueled Jimmy in his journey as a role model of what the human spirit can accomplish, once you are determined to move forward regardless of the challenges that life may send your way.- Training for obstacles.- How he ended up competing in several seasons of the American Ninja Warrior TV SHOW - Why being a father and having a family is his greatest pride.You truly can't miss this episode, as Jimmy represents the faith, grit, resilience, and power that we need right now as a species, the power of the human spirit.To get to know Jimmy more, follow him on social media:Instagram: https://www.instagram.com/jcfoxninja/His Web Page: https://www.thefoxninja.com/Visit https://delaflorteachings.com/faith to receive the “21 Days of Faith in Action Course” as our gift to you.

Billy Taylor is a 49 years old man who is working as a contract firefighter and is an ocean rower. Billy's upbringing is one in which he was very active and in his teenage years suffered some family struggles after his Father and Mother both passed away. In his teenage years Billy had already sailed from Australia back to the UK and had lived a life full of adventure, but life took a few twists and turns when he fell in love with a person from Denmark and had a child. The relationship did not last and Billy turned to drinking and drugs with the money that his parents had left behind. However things began to change when,Billy started ocean rowing challenges in 2014 after finding out his childhood friend had been diagnosed with Young Onset Parkinson's Disease. He has now rowed across the Pacific and Indian Oceans, the Mediterranean and the English Channel, all of which have been to raise awareness of YOPD. Billy has transformed his life around and is now a shining light of how each of us can add a little more adventure into our lives and stand up for those who may be less fortunate than ourselves. Get ready for a incredible Tale to Inspire: Resources:  

Anna Brown Grill was reaching the peak of her business career when she heard the news about her diagnosis of young onset Parkinson's Disease.  Check out her story as she talks about how she was able to hide her symptoms at work for 10 years, deal with anxiety and how she fought back with Rock Steady Boxing NOVA and Rock Climbing. Today she is building a strong network and connecting people with Young Onset Parkinson's Disease. Anna encourages all in the YOPD community to join events. Her goal is to provide relevant and convenient programing in a supportive, positive environment, helping those with YOPD not just live but thrive! Track List: Kesha, Salt n Pepa, Pink, Bel Biv Devoe and Mark Ronson with Bruno Mars  

Ever since Keri Shaw was a kid she had an uncanny, fierce all or nothing personality. But when she was diagnosed with Young Onset Parkinson's Disease, she quickly learned no amount of determination could "fix" it.

Ever since Keri Shaw was a kid she had an uncanny, fierce all or nothing personality. But when she was diagnosed with Young Onset Parkinson's Disease, she quickly learned no amount of determination could "fix" it.  2 Lives is produced and hosted by Laurel Morales, story edited by Camila Kerwin of the Rough Cut Collective, original artwork and website designed by Annie Galloway.  More information about Parkinson's can be found at the Michael J. Fox Foundation.

In this episode Steve shares his story of being diagnosed with Young Onset Parkinson's Disease at 41 and then being diagnosed with Multiple Sclerosis at age 43. He talks about how dealing with those 2 diseases has impacted his faith and spiritual life. NEXT BOOK CLUB: Episode 30 - September 15: "The Making of Biblical Womanhood" by Beth Allison Barr - (buy it here (https://amzn.to/38pWZCV)) Daniel Wheat's new song, "Joy" (listen on Spotify here (https://open.spotify.com/album/3KfmFNT6aP6UVAvYCPAL3M)) Young Onset Parkinson's Disease (https://www.michaeljfox.org/news/young-onset-parkinsons-disease) What is Multiple Sclerosis? (https://www.nationalmssociety.org/What-is-MS) Book: “With” by Skye Jethani (https://www.followingthefire.com//10) Parkinson Association of the Rockies (https://parkinsonrockies.org) Steve's nonprofit and ride across Colorado: Ride for PD (https://www.rideforpd.org) Pedaling 4 Parkinson's (https://pedaling4parkinsons.org) The Michael J. Fox Foundation for Parkinson's Research (https://www.michaeljfox.org) demyelination (https://en.wikipedia.org/wiki/Demyelinating_disease) Diagnosing MS (https://www.nationalmssociety.org/Symptoms-Diagnosis/Diagnosing-MS) oligoclonal band (https://en.wikipedia.org/wiki/Oligoclonal_band) Picture of Steve's daily medications (https://www.facebook.com/steve.d.martin/posts/10223097325155116) Video: Bible Project - “Soul” (https://youtu.be/g_igCcWAMAM) Mr Rogers (https://www.misterrogers.org)

New Zealand film director Toa Fraser, 46, recently revealed on Twitter that he has Young Onset Parkinson's Disease. "People used to say I look cool. These days, people ask me why I look so serious. Mine is one of the many faces of Young Onset Parkinson's, an (as yet) incurable brain disease. I was diagnosed five years ago. I've kept it quiet until today. #ParkinsonsAwarenessMonth". Toa Fraser's first feature film, No. 2, won the Audience Award at the 2006 Sundance Film Festival and lately he has been working on the series Sweet Tooth, which screens on Netflix later this year.

New Zealand film director Toa Fraser, 46, recently revealed on Twitter that he has Young Onset Parkinson's Disease. "People used to say I look cool. These days, people ask me why I look so serious. Mine is one of the many faces of Young Onset Parkinson's, an (as yet) incurable brain disease. I was diagnosed five years ago. I've kept it quiet until today. #ParkinsonsAwarenessMonth". Toa Fraser's first feature film, No. 2, won the Audience Award at the 2006 Sundance Film Festival and lately he has been working on the series Sweet Tooth, which screens on Netflix later this year.

Forty-six-year-old, Keri Shaw, discusses her recent clinical diagnosis of Young Onset Parkinson's Disease.  It's a disease known mostly by its outward symptoms - tremors, rigidity of muscles, speech difficulty, and more, but, unless they're personally affected in some way, the layperson knows little about the "why" or "how" of the disease, especially in younger people. In this raw conversation, Keri opens up about her long process of uncovering the diagnosis and where she goes from here. It is an unexpected 'twist in the road,' indeed, and part of Keri's personal journey is being able to share her story.    Episode Resources The Guardian - Rates of Parkinson's are Exploding. A Common Chemical May Be to Blame Michael J. Fox Foundation Keri's Instagram @twistintheroad

Hear tips for navigating a Young Onset Parkinson's diagnosis and the accompanying concerns about employment, family life, finances, and more.

Hear from our on-staff movement disorder specialist about the latest in Parkinson's care and research.

Kelsey Phinney brings to the sport of cross-country skiing a big-world view as she has rolled with challenges and fine-tuned her athletic performances. First things first: Phinney has become a voice for Parkinson's Disease advocacy and education. She produced this great podcast episode for the Davis Phinney Foundation titled The Neuroscience of Parkinson's — it's part of a broader series from Phinney called The Parkinson's Podcast.  Kelsey Phinney earlier this season in Lillehammer, Norway's World Cup skate sprint. (Photo: Fischer/Nordic Focus) Phinney's father, himself a former professional cyclist who was diagnosed with Young Onset Parkinson's Disease in 2000, founded the Davis Phinney Foundation with his wife Connie Carpenter-Phinney. So there is the high-quality high-impact work Kelsey Phinney has been engaged with. Then there's the force she's been on cross-country skis for many years. After graduating from Middlebury College, she spent two years with the SVSEF Gold Team. She then transferred to the SMS T2 group in the spring of 2018. She raced several World Cups this season with her best result a 19th in Lahti, Finland's skate sprint. Phinney also placed third in the 2019 National Championship skate sprint in Craftsbury, Vermont. buy clindamycin online Some skiing and some good work discussed in this episode. (To subscribe to the Nordic Nation podcast channel, download the iTunes app. If you have iTunes, subscribe to Nordic Nation here.) The post Nordic Nation: Real Life with Kelsey Phinney appeared first on FasterSkier.com.

Nancy Mulhearn, who was diagnosed with Parkinson's at age 44, shares her experiences with the disease.

Billy started ocean rowing challenges in 2014 after finding out his childhood friend had been diagnosed with Young Onset Parkinson's Disease. He has rowed across the Pacific and Indian Oceans, the Mediterranean and the English Channel, all of which have been to raise awareness of YOPD. https://monkeyfistadventures.com ( https://monkeyfistadventures.com/ ) Support this podcast at — https://redcircle.com/the-dave-pamah-show/donations