Podcasts about michael j fox foundation

This week, the Movers & Shakers are joined in the pub by our friends from Cure Parkinson's and Parkinson's UK. They are two of the charities working so hard to find ways of dealing with Parkinson's and improving the lives of those with the condition. But they also face huge challenges. Is enough being invested in research? Are the charities forced to compete with one another for limited resources? And what is the rule of the Michael J. Fox Foundation, the huge American body that operates at a much larger scale than its UK counterparts? We're talking about all this – and more! – on today's episode.It's not too late to write to your MP ahead of next Monday's debate – you can do so here.Sponsored by Albion Chambers.Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Sound mixing by Ewan Cameron.Music by Alex Stobbs. Hosted on Acast. See acast.com/privacy for more information.

To get more insights about clinical research technology from a vendor's perspective, I invited Mike Wenger on the Clinical Trial Podcast. Mike Wenger is a software developer with over 15 years of experience creating innovative solutions in clinical research.  At the Michael J. Fox Foundation for Parkinson's Research, he worked to connect Parkinson's patients with clinical studies.  He later developed Citeline Connect, bridging patient recruitment companies with pharmaceutical organizations, and founded VersaTrial to streamline clinical trial site workflows.  Mike is currently the Chief Innovation Officer at CRIO, an intuitive eSource solution that collects data directly at the point of patient interaction to lighten site burden while driving protocol compliance. Please join me in welcoming Mike on the Clinical Trial Podcast. This podcast is brought to you by Florence Healthcare. Florence eliminates chaotic workflows in clinical research operations with remote access and digital workflow platforms. More than 37,000 study sites, sponsors, and CROs in 90 countries trust them to accelerate their operations. To learn more, visit https://florencehc.com  This podcast is brought to you by Calyx. Calyx is a trusted name in medical imaging, having delivered imaging services to meet the needs of global biopharmaceutical sponsors and clinical research organizations for over 25 years. To learn more, visit https://www.calyx.ai/  

On this episode Fred goes solo to discuss Parkinson's Disease, the Michael J Fox Foundation, his father's story of living with Lewy Body dementia. his participation in the MJFF ground breaking Parkinson's Progression Markers initiative, their discovery of a biomarker and how you can help. *On this episode Fred used the term Lewy Body Dementia, this term describes both Dementia with Lewy Bodies and Parkinson's Disease with Dementia. He used this term incorrectly in stating that in Lewy Body Dementia cognitive decline begins within one year of diagnosis. It is Dementia with Lewy Bodies in which the cognitive decline begins within one year of diagnosis and Parkinson's Disease Dementia in which the cognitive decline appears later. To stream our Station live 24/7 visit www.HealthcareNOWRadio.com or ask your Smart Device to “….Play Healthcare NOW Radio”. Find all of our network podcasts on your favorite podcast platforms and be sure to subscribe and like us. Learn more at www.healthcarenowradio.com/listen

Sarah Ptach, President and CEO of Canyon Labs, discusses her journey from professional sports and advertising to leading Canyon Labs, a company specializing in medical device and pharmaceutical testing. Inspired by her father's Parkinson's diagnosis, Sarah transitioned to healthcare to make a meaningful impact. She delves into her leadership philosophy, emphasizing the importance of trust, transparency, and collaboration in building a strong company culture. Sarah also highlights Canyon Labs' dedication to elevating industry standards and ensuring patient safety.    Guest links: https://canyonlabs.com/ | https://www.linkedin.com/in/sarahptach/  Charity supported: The Michael J. Fox Foundation for Parkinson's Research Interested in being a guest on the show or have feedback to share? Email us at theleadingdifference@velentium.com.  PRODUCTION CREDITS Host & Editor: Lindsey Dinneen Producer: Velentium Medical   EPISODE TRANSCRIPT Episode 067: Sarah Ptach [00:00:00] Lindsey Dinneen: Hi, I'm Lindsey and I'm talking with MedTech industry leaders on how they change lives for a better world. [00:00:09] Diane Bouis: The inventions and technologies are fascinating and so are the people who work with them. [00:00:15] Frank Jaskulke: There was a period of time where I realized, fundamentally, my job was to go hang out with really smart people that are saving lives and then do work that would help them save more lives. [00:00:28] Diane Bouis: I got into the business to save lives and it is incredibly motivating to work with people who are in that same business, saving or improving lives. [00:00:38] Duane Mancini: What better industry than where I get to wake up every day and just save people's lives. [00:00:42] Lindsey Dinneen: These are extraordinary people doing extraordinary work, and this is The Leading Difference. Hello, and welcome to another episode of The Leading Difference podcast. I'm your host, Lindsey, and today I am super excited to introduce you to my guest, Sarah Ptach. Sarah is the President and CEO of Canyon Labs, a leading provider of medical device and pharmaceutical testing, consulting, and sterilization services. She joined the company during a critical ownership transition with a clear goal in mind: to raise the standard of service in the industry and build a true end-to-end solutions partner. Drawing on her background in packaging engineering and testing, Sarah focused on expanding beyond packaging alone to create a more integrated, accessible, and expert driven experience for clients. Sarah began her career in professional sports and advertising, but a desire to create more meaningful impact led her to the healthcare space after her father was diagnosed with Parkinson's disease. She went on to help grow and successfully exit a packaging firm before bringing her vision and leadership to Canyon Labs. In addition to her role at Canyon, she co-leads Kilmer Innovations and serves on the board of the Medical Device Packaging Technical Committee of the Institute of Packaging Professionals. She remains deeply committed to advancing healthcare through innovation, expertise, and strong partnerships. All right. Well, thank you so much for being here, Sarah. I'm so excited to welcome you to the show. [00:02:05] Sarah Ptach: Likewise. Thank you, Lindsey. I appreciate you having me. [00:02:08] Lindsey Dinneen: Of course. Well, I'd love if you would start off by telling us just a little bit about yourself, your background, and what led you to MedTech. [00:02:16] Sarah Ptach: Yeah. Thank you. So I'm Sarah Ptach. I'm the president of Canyon Labs. I have kind of an interesting story of getting into to medtech. I originally started my career actually in professional baseball. I was a contract negotiation person mainly for closing pitchers. And I ran track in college. I thought like, "oh, I wanna be in sports." And I like to say that's the most fun I never wanna have again. It was, it was a great start of a career. It teaches you a lot about negotiation, teaches you a lot about high stakes opportunities. But, you know, in the end it, it felt very kind of un unfulfilling in that perspective. And so I had kind of then taken that into to marketing for a pretty big ad agency in Chicago and hit the same thing. I felt like I was-- you know, now I was just selling people stuff that they didn't need instead of promoting people that, you know, that make a ton of money in the sports industry. And at the time my dad was diagnosed with Parkinson's disease and I wanted to feel like I was making a difference. So I, I went back and got my MBA and my whole goal of that was really to, to use my skills to, to do something that makes a difference in people's lives. So, I had reached out to a really small medical device company and it's " I'm willing to make no money as long as we, we have a difference in a change we can make in the world." And at the time that company couldn't hire me but I ended up getting introduced to another company through that that was in medical device packaging validation. And that was the first dip of medical device that I had. And that company's Packaging Compliance Labs. I was one of the first employees there and we grew that company until it sold a couple years ago. And through that, learned a ton about the medical device space. I kind of made it my personal mission beyond just my job to, to go try to participate in the industry as much as possible, push the status quo of things as much as possible, and really kind of learn where the testing realm or validation realm can make a difference in, in medical devices. And so after that, I was given the opportunity to step in and run and grow Canyon Labs. And Canyon is a whole platform. So for me, it was taking the packaging knowledge that, that I love so much and making that a full service offering. You know, I had always dabbled in sterilization or heard about Biocom, but never really gotten my hands on it. And to be able to be that full service solution with Canyon has not only been a awesome offering to, to give to our clients to really be able to go A to Z, everything from your regulatory to your microbiology, chemistry, packaging, bio comp, and toxicology. But also a good learning challenge for me. I thought that I was, you know, a pretty good packaging engineer and now learning chemistry and microbiology and toxicology, I'm like, "oh, wow. I'm definitely not as smart as I maybe thought I was originally," and I luckily have some amazingly intelligent individuals that, that work on our team, but it's, it's an awesome opportunity to, to not only get to help bring some life-changing medical solutions to market but also have a really good technical brain challenge every single day. [00:05:26] Lindsey Dinneen: Wow. Oh my goodness. I love that. And yes, I mean, sometimes I feel like actually, you know, not being the smartest person in the room is such a gift because then you get to talk to all these really cool people with really amazing experiences and learn. And I'm just one of those people who's constantly-- well, I'm curious all the time, so if I don't understand something, I'm like, "can you tell me more?" [00:05:48] Sarah Ptach: Yeah. No I love that. I completely agree. I think that the better that you can be at facilitating conversations, the, you know, the more successful your organization will be. And it, I really think as the leader of a company it's less about being the, you know, smartest person in the room and more about being the facilitator of that collaboration. [00:06:10] Lindsey Dinneen: Yeah. Yeah, absolutely. I love that. So, okay, so going back in time a little bit-- so, so I know you started off with professional sports, which is really cool. Like what a, what an interesting, unique opportunity and experience and you know, you'll maybe never want that particular brand of fun again, but. I still love that you got to do it. And so I'm curious though, was that always the sort of planning goal for you? Or when you were trying to think about career paths and all of that, younger, what were you envisioning? [00:06:39] Sarah Ptach: Yeah. I think I, I always envisioned myself as a leader. The packaging side of things became my kind of technical passion. But I mean, from a young age, I've always been the captain of the track team or the, you know, the head of any school organization I was a part of. So I always knew I, I wanted to be a leader. I think now, you know, being in that role, you, you learn so much about what different styles and brands of leadership is. I think, you know, to go back to your question about being the smartest in the room, I actually think that, you know, the CEO's job isn't to have all the answers. It's to create the culture where the answers emerge. And, you know, I've always wanted to be a leader. I've been passionate on that side, but I really think that the more, you know, more so than just having leadership pieces to you. It's about having that power to bring people together in that way. [00:07:31] Lindsey Dinneen: Yeah. That's a beautiful way to put it. And I actually would love to dive into this more because I know creating a really positive, good company culture is really important to you, and it's frankly, easy to get wrong, unintentionally-- sometimes maybe it just is what it is, but like sometimes it's not a desire to create it, but it happens. So I'm curious, how have you really intentionally cultivated your current company culture, and where did those lessons come from? [00:08:00] Sarah Ptach: Yeah. Deep question. You could answer that in a bunch of different ways and I could talk your ear off about lessons learned on that side. But I, I think the, you know, the most overlooked competitive advantage, both internally and externally is trust. Like the trust in your team to make decisions, the trust in your clients and even the FDA and your labs work. There's trust across it all. I think internally, from culture standpoint, it's have that trust in people and build, you know, people in a way that, that helps them feel most confident to, to make the decisions that they need to succeed. You know, when we first started talking you, you asked if I have any kind of lesson learned stories and some, I dunno, harsh realities per se. I think one of the more difficult kind of lessons that, that I learned in the course of just being a leader, is knowing when you have a passion for someone and what passions they might have. And I stayed that in the standpoint that I'm a huge believer in people. I want them to be like the greatest version of themselves, and I want them to dream big and go big and, you know, sometimes that's not always what people want for themselves too. And it's, it's a tough reality somewhat to to come to at times. But, you know, really finding what is the growth that people truly want. What is the environment that they want to live in, and how do you help foster something that, that meets the plethora of those ideals that you'll have across an organization is really important. But I think the, the culture I've worked really hard to foster at Canyon and frankly, my, my team fosters alongside me every day. This is by no means just a Sarah show on that piece. But it's a culture of trust, like I said, and it's a culture of transparency. I always like to tell my team, "you know, when I ask questions or probe I'm not trying to get an answer or I'm not trying to, you know, question your way of thinking. I'm trying to understand so that I can be at the same table that you're at and we're not, you know, talking oranges and apples and not realizing it." And so I really try to make sure we foster an environment where there's collaboration, there's trust to have that collaboration. There's trust to have challenges made of each other without it being an inflection of, you know, disliking someone. And then creating that opportunity to ask questions and always stay inquisitive in a way that's meant to greater raise everyone up together. [00:10:28] Lindsey Dinneen: Yeah, that's a wonderful culture that you're cultivating and I love that. But I think you hit on something really key amongst all of the really great points you made, but one of them that really stood out to me was, you talked about how it's not just the Sarah show in this way. It's a whole group effort. And I think that is a critical component that sometimes is forgotten. Like we sometimes think, you know, it's the leader's sort of job or role or just is. It is their leadership. That sort of filters down into the rest of the company and we think it's like a top down way of doing culture, but culture is about absolutely everybody involved in the company. So I'm curious, how do you empower your team members or, and, or when a new team member comes in, how do you communicate, "Hey, this is who we are, these are our values," and make sure that it is a good cultural fit too. [00:11:23] Sarah Ptach: Yeah. You know, we really at Canyon do a lot of things that are just small to, to reinforce and drive culture. We have these bracelets that you can earn, and what they mean is they're all of our company values and you can honor a fellow coworker for, for going above and beyond, or embodying teamwork or really showing integrity. And they get that read out in front of their whole department, and then they get a bracelet to wear proudly. So we do little things to to enhance our culture. And then there's the more macro level pieces, and I think having a baseline understanding of why we all show up to work every single day. You know, it really is to empower life changing medical innovation, and it's to ensure that all the products on the market are not gonna hurt somebody and they are going to, you know, do what they're meant to do in a positive way. You know, if we can all show up with the basis of "everything I do every day is for patient safety," then I think the getting on board with the culture is a lot easier if we all have that base, like regardless of how your day goes, regardless of your email inbox going crazy, we all agree that, you know, patient safety is what we're here to do. And you know, how we can have fun along the way, support each other, do teamwork is just gravy on top of that. So I'd say it's starting with culture that gets that base level item. And once you get that, everything else is just working better together. [00:12:48] Lindsey Dinneen: Yeah. Yes. And honestly, that's a great segue to my next question, but I was really-- I think you, again, honed in on something really critical and having everybody around a shared mission is so cool because that passion and that excitement and that " we're all in this together" and when disagreements or issues come up, which --we're human, they do-- then you can always go back to that shared mission and values of the work we're doing matters. We are all on the same side to provide value to our clients to ensure safety for our patients. So, I think that's a really key thing that you touched on there. Yeah. [00:13:33] Sarah Ptach: Don't get me wrong. I mean, it's a difficult thing to, you know, to keep going on teams. We, Canyon, we did two acquisitions this year. And with that comes a lot of combining cultures, changing culture together, all getting on the same page. And it's not easy, bumps along the road, you know, I think showing that we're all on the same page and working and rowing in the same direction is a conversation I have every single week. And so it's something you can keep reinforcing. And I think it's stacking bricks. You don't just have a house, you gotta continually stack bricks on it. And everyone needs to be involved in saying, "yeah, I wanna be a part of this team and I wanna be a part of this shared mission." And it doesn't build itself overnight. [00:14:19] Lindsey Dinneen: Yeah, absolutely. So speaking and then mentioning back to that segue, 'cause I just didn't ask the question, but can you share more about Canyon Labs and the incredible work that your company is doing for this industry? [00:14:34] Sarah Ptach: Yeah. Yeah. So like I said we're a full service contract testing and consulting firm within the medical device and pharmaceutical space. You know, a lot of the work we're doing is to help a lot of medical devices and drugs in their validation stage. So, you know, we're working through anything from, you know, designing your package to helping your sterilization strategy. You know, sterilization has been something I talked to, I've spoken on a lot this year. You know, it's a hot topic item in the industry. It's something that a lot of people are dealing with 'cause it has EPA implications as well as now tariffs affecting it as well as supply chain issues within it. So I'd say that's a division I talk to a lot and we help a lot of people navigate those. But the underlying whole piece of Canyon is being that trusted lab partner and we're really trying to raise the standard of service in this industry. You know, I came into Canyon being on the other side of the table and sending samples off to get biocom tested or to go through their sterilization validation. And, you know, for me it was this baby I was sending off to be tested and I don't think I was always met with the best customer service or the best accessible expertise when I needed it. And so we, when we built Canyon, we really built it to, to change that. You know, I want our clients to feel like we're one phone call away for any question that they have. You know, we're not just gonna send them their samples back, say, "sorry, it failed. Let us know when you're ready to give us another PO." That, that transactional relationship is, it's a currency that I don't wanna participate in. And so we really saw it after changing that in the industry. [00:16:16] Lindsey Dinneen: Yeah. Excellent. Well, yeah and I love the fact that you were on that flip side and it could bring such a valuable perspective to the company and go, "okay, here's some lessons learned." You know, and you're always gonna get a mix of it, right? You're gonna get like, "Ooh, I don't know if this is how it should be or needs to be," and you're gonna go, "oh, but here's something that they did excellently." So to bring that very valuable perspective is really cool. [00:16:40] Sarah Ptach: Yeah it's been fun. It's you know, in Canyon's infancy a couple years ago, we had the opportunity to come together with a lot of people from different experiences on our leadership team, and so it's-- as long as we all have the baseline humility to say "the way I did it in the past is not necessarily correct," you know, we could all come together and say, "here's what I did, here's what I did, here's what I did. Okay, let's pick the best of all worlds." So it it was a cool opportunity to have a lot of people with a lot of past experience come to a table that was completely, even in that standpoint. [00:17:18] Lindsey Dinneen: Yeah. Excellent. So I know that you are-- well, okay, so I took a look at your LinkedIn profile and had a wonderful time learning a little bit more about you, but I know you are involved so much. Like you are just, I don't know if you sleep because... [00:17:35] Sarah Ptach: Sometimes. [00:17:36] Lindsey Dinneen: Yeah. But the, I especially noticed, you know, you're a founding board member for thePACKout and you've done you're involved in a lot of different boards and groups and you're, it seems like you're just, you know, volunteering as kind of your heart and soul and serving in that way. And so I was wondering if you could speak a little bit about those opportunities that you're with too. [00:17:55] Sarah Ptach: Yeah. I think, first and foremost, before any job or role or position I've ever held, I am baseline, a huge proponent of this industry. And, you know, going back to my original reason to be here, it was my dad having Parkinson's and Parkinson's doesn't have a lot of treatment at this point. And it was like, I hate that. So how do I participate in solving that? And I think being involved in the industry, the super cool part, especially about packaging, is there's so much room for improvement at this point. You know, a lot of the standards that we function off of, they are being improved on a yearly basis, but they weren't made that long ago. So the, you know, the baseline ground zero is not that long ago. And I mean, there's people in the industry that are still in the industry that were there when they made ISO 11607. So it's, you know, it's, it's got a lot of room for improvement. I love how much the industry is trying to go back to patients now, and, you know, we're not just trying to design packages or devices that work well for, you know, me, the manufacturer, or me, the physician, but instead it, you know, really does consider patient comfort, patient safety. So the, a lot of what you'll see of my involvement in the industry is related to patient facing parts of of standards. I'm part of the Kilmer Renovations and Packaging Group and specifically I lead the aseptic presentation group, which is meant to evaluate the way that healthcare technicians interact with packaging in a way to help reduce hospital acquired infections. You know, we used to only design packages as an engineer because it's the perfectly engineered package. And, you know, we didn't think about the nurse that's trying to open it and your perfectly engineered package is just way too hard for a nurse to open and the device goes flying across the room. So it you know, we, we weren't considering those things. So our group is trying to correlate opening methods with types of packages and designs of packages. And we're trying to prove that with the different opening techniques that they teach in school for your surgical techs, your nurses, what is the best way for these different packages so that we can make that training and that design fit in the best way possible for positive patient outcomes. So, it's, a lot of my industry involvement is passion based, but I'd also say that a lot of the industry problems they, they can't be solved by just one company and they can't be solved in a silo. So, you know, the only opportunity you get to get all these stakeholders at the same table are these industry groups. And it's unique, I think, to the medical device industry in general that a lot of us care beyond our day jobs. You know, it's like, "cool, this is my day job, but I genuinely, passionately care about the development of my industry. And so I'm willing to, you know, volunteer my personal time." And I see that across the board every day. And it's really cool. I mean, you have people who have huge jobs at, you know, Johnson and Bausch & Lomb and Medtronic, and they're, you know, they're still willing to put their personal time on the table to advance the industry. So, yeah, all my industry involvement's pretty passion based, but it's the medical device industry and medtech industry is one that's super unique. A lot of people feel that personal passion. [00:21:20] Lindsey Dinneen: Yeah, I couldn't agree more. And thank you for sharing a little bit more about your involvement and your passion for the industry. And I feel so similarly, I, you know, when I joined the industry now a few years ago, I remember having this just moment of getting to meet all these super cool, intelligent innovators that are just literally changing the world and thinking "how lucky am I to be here and play a small part in this big changing thing," and then getting to see exactly to your point, how passionate the people are in the industry and how it's not just a job, it's like a calling. [00:21:59] Sarah Ptach: Well, I think the difference is, you know, in, in medtech, the origin or margin for error is not just financial, it's human. So where you have, you know, maybe your traditional job, you know, the margin of error is a financial impact. You know, the margin of error for people in our industry is human impacts, and that can be positive and negative. So it's hopefully the passion to make those more positively. So. [00:22:24] Lindsey Dinneen: Yes, indeed. Yeah, so, you know, I love the impact your company is making and the industry itself, like you said, is just such a cool place to be, and I think it really does invite those kinds of passionate people who are willing to just kind of be evangelists in a way for the rest of the industry in some fashion and really moving things forward. But because of the impact that's made, I'm wondering are there any moments that really stand out to you as affirming that, "hey, I am in the right place at the right time, in the right industry." [00:22:57] Sarah Ptach: Yeah. I mean, I definitely have some stories where you've-- without disclosing the details of a client-- but you know, you've been part of a launch that you watched that device go change the industry. I was a part of a company that was launching a, it's basically a, an organ transplant way of improving on how organs make it from, you know, the donor to the recipient. And it has improved patient outcomes tenfold to what they used to be. It's made it so that you could take, say, subpar lungs that used to not be able to be donated. And because of this technology, now it can, 'cause it, it has a way of it staying more intact while being transported. And you know, you get involved in those projects and, you know, you might just be helping at a small portion of it, like the sterilization or the packaging or just the biocom testing. But, you know, you watch the outcomes of that and it's like, "wow. Like I, I did that." You know, I've talked to people that work in consumer product goods and, you know, their Super Bowl is seeing their package on the grocery store aisle. And, you know, my, my Super Bowl is seeing the product that you played a part in, reach the market and change the world. Like that's, it's so cool. And to your point before you, you get to be in the room with such cool, innovative, smart people that came up with that product. I am, I'm honored to be the lab testing that is that silent backbone of medical innovation. But to be, you know, that trusted partner to, to get them to the finish line is a, it's a unique feeling, but it's really cool when you get to see a product that you played part of either touch a family member. I've been in an operating room before where I was the one being operated on 'cause I tore my ACL or did something and all I'm doing is looking at all the packaging, like, "Ooh, I did that. I tested that." Such a cool experience. It's sometimes it can be concerning 'cause you're sitting there while your doctor's trying to tell you to just get ready for surgery and you're staring at all the packaging. But it's, it's an awesome round to be in. [00:25:02] Lindsey Dinneen: Oh my goodness. I love that story so much. Yes. I mean, I could see that I, and I've talked to other folks who have similar experiences where they're, you know, they're kind of going along, something happens, they end up needing medical attention, or a family member does, and they go into the, to the hospital and they're like, "oh. I worked on that device" or "Oh, I did the cybersecurity for this one" or whatever, and just like how cool of a just full circle moment is that, and getting to watch in real time and in real life the impact that your work does. That is a huge honor and gift. [00:25:34] Sarah Ptach: Yeah, I I really did tear my ACL and my, and I also broke my back at one point in time, but my back surgeon and I have a really cool relationship and I think it's half because I was probably the biggest pain in the butt patient, 'cause leading up to that surgery it was like, "what device is it? What's the sterilization modality? Tell me what testing they did on it." And I got very lucky. My, my surgeon, his name's Dr. Michael Glisi, he has played actually a big role in getting some better improved medical devices to market both with Globus and with Arthrex. And now he plays a role in training other surgeons on how to best use those medical devices and technology. But it was such a unique relationship to get with him 'cause he's uniquely involved in the industry. So I think he, he maybe tolerates my 9 billion questions better than the average surgeon that just wants to operate on you and see you off. But it was a cool experience to get to, to have that relationship with him now after surgery and watch the impact that, that he's making on the industry as a surgeon too. So I think all stakeholders in this industry hold different areas of importance too. [00:26:49] Lindsey Dinneen: Yeah, absolutely. Oh my goodness. Yes. And, yeah, I could talk about all of this for days and I'm loving this conversation, but I am gonna pivot it, just for fun. Imagine that you were to be offered a million dollars to teach a masterclass on anything you want, could be within your industry, but it doesn't have to be at all. What would you choose to teach? [00:27:13] Sarah Ptach: Ooh, that's a good question. I do think I would teach it on people leadership. You know, I, i've been in a lot of different roles and scenarios of people, leadership, especially through acquisitions, seeing, you know, the good, bad and ugly of what other folks do. And I've been really fortunate to have a lot of different mentors in my career that took very different leadership strategies. And I'm by no means saying that I'm the perfect people leader, but I think-- I can tell you a lot of different options and why they do and don't work. So if I was to teach a masterclass it'd probably be in that and I'd be heavy on the transparent leadership side. I'd be heavy on fostering a culture of people that are comfortable talking about issues. And it's not a easy thing to balance, I think with also driving, you know, the work product of the business and the financial success of the business. But being able to marry that, to marry, you know, having a great people culture and having, you know, people that, that love being a part of your company. It, to me, it is the most important part of actually driving your financial success of your company too. And I don't think a lot of people correlate that. You know, they think "I'm the ultimate financial driven CEO. I am the gross margin king." And, you know, " I'm driving my shareholder value." But I really think that, while all that is important, it starts with the people and the more you can get people to care about what they're doing beyond just their job, the more that the natural effect is improved gross margin and better financials. So the masterclass I'd probably teach is how to combine positive people, environment, and culture with good company financial success. [00:29:07] Lindsey Dinneen: Ooh, okay. That's a very powerful masterclass I wanna go take so, so sign me up for that, for sure. That's incredible. Yeah. And you have so much advice and insight and I could just tell, like, again, we could probably talk about this for hours and be very happy, so, yeah, I love that. Okay, and then how do you wish to be remembered after you leave this world? [00:29:30] Sarah Ptach: Yeah. Someone that, that cared deeply about the industry and was willing to to give it my all. You know, you, you jokingly said, "when do you sleep?" I'd argue not a lot, but it's because I love it. Like it's 'cause I love what I'm doing and if that means I'm gonna sacrifice some sleep to make sure the thePACKout is an awesome conference or the, you know, KIPP aseptic presentation team has what we need to change a standard or Canyon, you know, do something better and greater, I'll do it all day long. So yeah, I'd like to be remembered as, at the end of the day, she just really cared. And she was in it 110% at all times. [00:30:12] Lindsey Dinneen: I love that. That's a beautiful legacy. Yes, absolutely. Okay, and then final question, what is one thing that makes you smile every time you see or think about it? [00:30:23] Sarah Ptach: Oh, I love that one. I think someone realizing that the solution to the problem that they came up with was truly right and the solution. And it's like you worked through it yourself. You made it through maybe the hard parts of that decision making, but then you executed and hot dang, it worked. Like that is such a cool experience, especially when it's someone's first time ever having like the leadership role of solving a problem or, you know, the project manager role of solving that problem. It's super cool 'cause you get to watch someone's thought process play out. You get to watch where they see the pros and cons of their decision or the faults that could occur. And then you get to watch 'em navigate that, and then it succeeds and it's like, "hot dang, you did it." It's great. I love that. So that's probably something that makes me smile the most is when someone sees, their true potential being achieved, and they get to see it in the form of something as tangible as solving a problem. [00:31:22] Lindsey Dinneen: That is awesome. I love that so much. Oh my goodness. Well, this has been such an amazing conversation. I'm so thankful for you and for you being willing to share some of your time with me and with our listeners. So thank you so much for all the work you do, and thank you for being in the industry, being passionate about this industry and for being a change maker too, in the way that, you know, companies can operate and be successful. And we don't have to think about it just in terms of financial success, but we talk about it in terms of cultural success too. And so, I just really appreciate your perspective, so thank you for all the hard work you're doing to change lives for a better world. [00:32:02] Sarah Ptach: Thank you. Yeah, thank you, Lindsey. And likewise what you do. It's awesome to see you highlighting some of the stories in the industry and bringing together really good conversations like this. So thank you. [00:32:11] Lindsey Dinneen: Awesome. And we are so honored to be making a donation as a thank you for your time today to the Michael J. Fox Foundation, which is dedicated to finding a cure for Parkinson's disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson's today. So thank you for choosing that organization to support. Again, thank you so much and thank you also to our listeners for tuning in and if you're feeling as inspired as I am right now, I would love it if you would share this episode with a colleague or two and we'll catch you next time. [00:32:49] Dan Purvis: The Leading Difference is brought to you by Velentium Medical. Velentium Medical is a full service CDMO, serving medtech clients worldwide to securely design, manufacture, and test class two and class three medical devices. Velentium Medical's four units include research and development-- pairing electronic and mechanical design, embedded firmware, mobile app development, and cloud systems with the human factor studies and systems engineering necessary to streamline medical device regulatory approval; contract manufacturing-- building medical products at the prototype, clinical, and commercial levels in the US, as well as in low cost regions in 1345 certified and FDA registered Class VII clean rooms; cybersecurity-- generating the 12 cybersecurity design artifacts required for FDA submission; and automated test systems, assuring that every device produced is exactly the same as the device that was approved. Visit VelentiumMedical.com to explore how we can work together to change lives for a better world.  

It's the 40th Anniversary of 'Back to the Future' and I read a review of Michael J. Fox's brief new memoir about the making of the film, and about his life before, during, and just after the film's release. This sent me to finally watch 2023's 'Still: A Michael J. Fox Movie', a brilliant documentary from noted director Davis Guggenheim (An Inconveniant Truth, It Might Get Loud, Waiting for Superman) that defies the Streamerification of documentary filmmaking that I've long decried on the podcast (see my episode on Brother's Keeper). This episode covers a lot of what I really loved about those two primary sources of information about Michael J. Fox's life and battle with Parkinson's Disease, a battle he's fought privately and publicly. The Michael J. Fox Foundation has to date raised more than 2 billion dollars for Parkinson's research and in 2022 spent more than the US Government did on research seeking a cure for the disease. 'Back to the Future' has an incredible story of near-disaster followed by infinitesimal chance of salvage represented by the casting of Fox, and finally, worldwide pop-cultural magnitude of the highest and most enduring order.  This episode serves as an introduction to this superlative example of Hollywood moviemaking at its best and a tribute to the incredible, extraordinary and everyday life of its star.

Lisa Volenec, a patient advocate and General Manager of KMTV, Omaha, NE, shares how incorporating lifestyle modifications—such as diet, exercise, and community engagement—has enhanced her Parkinson disease treatment. She is joined by double-board-certified neurology and lifestyle medicine physician and fellowship-trained movement disorder specialist Rachel Dolhun, MD, DipABLM, principal medical advisor at The Michael J. Fox Foundation, who offers expert insights on integrating these strategies into comprehensive care for patients with movement disorders.

Michael J. Fox is an award-winning actor, author, and philanthropist whose talent, humor, and heart have inspired generations. Four decades after Back to the Future made him a global star, Michael J. Fox sits down with Willie Geist to reflect on the film that defined a generation and the resilience that's defined his life since. He opens up about the whirlwind of becoming Marty McFly at 23, the joy of rediscovering the movie as a fan, and the impact of the Michael J. Fox Foundation, which has raised more than $2.5 billion for Parkinson's research. Plus, through decades of challenges and triumphs, Fox shares why he still believes “everything is possible.” Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

We begin the show with actor and philanthropist Michael J. Fox, who won this year's Elevate Prize Catalyst Award, which includes a $250,000 from the Elevate Prize Foundation. The “Back to the Future” star plans to use the funding to further his foundation's work to find treatments for Parkinson's disease. During our discussion, Jay revealed […]

Sign up for updates on webinars, events, and resources for the Parkinson's community—delivered to your inbox. https://dpf.org/newsletter-signup In the final episode of this three-part series, Connie Carpenter Phinney and Dr. Mark Mapstone explore the emotional and cognitive changes that can occur as Parkinson's progresses. They talk openly about issues like apathy, anxiety, executive function decline, and how these changes can affect relationships, communication, safety, and daily life—including decisions around driving and independence. While the conversation acknowledges grief, frustration, and loss, it also offers insight, practical advice, and strategies for living well through change. This episode is for anyone facing or seeking to understand the emotional and cognitive realities of Parkinson's—people diagnosed, care partners, and clinicians alike. Connie Carpenter Phinney is a co-founder of the Davis Phinney Foundation and has been her husband's care partner for over 25 years. Her background in science combined with her lived experience and curiosity helped shape this conversation with neuropsychologist Dr. Mark Mapstone. Connie is the host of the Foundation's Care Partner Meetup, a monthly virtual meetup for Parkinson's care partners held the first Tuesday of each month. To attend the meetup, sign up here: https://davisphinneyfoundation.org/events/parkinsons-care-partner-meetup/ Dr. Mark Mapstone is Professor of Neurology at the University of California, Irvine School of Medicine. He is a member of the UCI Institute for Memory Impairments and Neurological Disorders and a Fellow of the UCI Center for Neurobiology of Learning and Memory. His research focuses on pre-clinical detection of neurological disease using cognitive tests and biomarkers obtained from blood. He has a special interest in developing strategies to maintain successful cognitive aging. In the clinic, he specializes in cognitive assessment of older adults with suspected brain disease. Dr. Mapstone earned a PhD in Clinical Psychology at Northwestern University and completed fellowship training in Neuropsychology and Experimental Therapeutics at the University of Rochester. He received a Career Development Award from the National Institute on Aging and his research has been funded by the National Institutes of Health, the Michael J. Fox Foundation, and the Department of Defense. This content is possible thanks to the generosity of our listeners. Every day more people are diagnosed with Parkinson's, and this means our work is more important than ever. Please support our work by visiting https://dpf.org/donate. Interested in our Living with Parkinson's Meetup, Care Partner Meetup, or Live Well Today Webinars? Learn how to join. https://dpf.org/webinars

Stepping back from the workforce is a milestone event in any life, and Parkinson's disease (PD) adds an emotional and logistical layer. Many people living with the disease think differently about when and how to retire as they balance symptoms, their financial and health needs and their plans and interests. Tune into this episode of The Michael J. Fox Foundation's Parkinson's Podcast to listen to our expert panel of a person living with Parkinson's, a care partner and people who work with the Parkinson's community discuss retirement and Parkinson's. They share advice from their own lives and tips for people entering a new phase of their life. Check out our free employment guide. https://www.michaeljfox.org/news/workplace-challenges Like our podcasts? Rate or review the show and share the series with your community. https://apple.co/3p02Jw0 The Foundation's landmark study, the Parkinson's Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that's changing everything at michaeljfox.org/podcast-ppmiMentioned in this episode:The Foundation's landmark research study is exploring the connection between sense of smell and brain disease. People with and without Parkinson's can help by taking a free scratch-and-sniff test. Get yours at mysmelltest.org/request.

In this week's episode, Brain & Life Podcast host Dr. Daniel reconnects with Jimmy Choi, a father, athlete, and Parkinson's advocate, to discuss his journey since Jimmy's last time on the podcast. Jimmy shares insights on his recent experience on American Ninja Warrior, emphasizing the importance of enjoying the moment and competing alongside his daughter. He reflects on the evolution of his personal philosophy regarding health, the reality of living with Parkinson's, and the significance of family support, both as a caregiver for his son, who is newly diagnosed with Functional Neurologic Disorder (FND) and a person living with a neurologic condition. Dr. Correa is then joined by Dr. Rachel Dolhun, a double board-certified neurologist, fellowship-trained movement disorder specialist, and a nationally recognized leader in the Parkinson's community. Dr. Dolhun serves as principal medical advisor at The Michael J. Fox Foundation for Parkinson's Research where she helps people with Parkinson's and their families understand the science, treatments, and daily strategies for living well with the disease. She is also a Lifestyle Medicine specialist, bringing expertise in how exercise, nutrition, stress management, and holistic approaches can empower patients and caregivers. Dr. Dolhun explains the importance of staying active as a treatment for Parkinson's, the idea of tailoring your medication plans to your needs, and what we currently know about the risks of neurologic conditions running in families.   Additional Resources MJFF Exercise Guide MJFF Living Well with Parkinson's Guide MJFF Buddy Network Staying Active Can Slow Cognitive Decline in Parkinson's Disease Other Brain & Life Podcast Episodes on These Topics Environmental Factors and Parkinson's Disease with Dr. Michael Okun Ed Begley Jr. on Utilizing a Healthy Lifestyle to Thrive with Parkinson's Disease How American Ninja Warrior Jimmy Choi Rose Above Parkinson's   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? ·       Record a voicemail at 612-928-6206 ·       Email us at BLpodcast@brainandlife.org   Social Media:   Guests: Jimmy Choi @jcfoxninja; Dr. Rachel Dolhun @michaeljfoxorg Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

Ron takes a look at how crazy and passionate the world gets with professional sports. He also tries to understand the annual government shutdown..... Guest: Alyssa O'Grady with the Michael J. Fox Foundation

Sign up for updates on webinars, events, and resources for the Parkinson's community—delivered to your inbox. https://dpf.org/newsletter-signup In this episode, Connie and Dr. Mapstone dive into the role of neuropsychology in Parkinson's care. They explain what a neuropsychological evaluation is, what to expect during an office or virtual visit, and how results can help guide treatment, daily planning, and care strategies. This episode also discusses why someone might be referred, how testing works, and what insights it can offer for both individuals and families. **This content is possible thanks to the generosity of our listeners. Every day more people are diagnosed with Parkinson's, and this means our work is more important than ever. Please support our work by visiting https://dpf.org/donate.** Connie Carpenter Phinney Connie Carpenter Phinney is a co-founder of the Davis Phinney Foundation and has been her husband's care partner for over 25 years. Her background in science combined with her lived experience and curiosity helped shape this conversation with neuropsychologist Dr. Mark Mapstone. Connie is the host of the Foundation's Care Partner Meetup, a monthly virtual meetup for Parkinson's care partners held the first Tuesday of each month. To attend the meetup, sign up here: https://davisphinneyfoundation.org/events/parkinsons-care-partner-meetup/ Dr. Mark Mapstone Mark Mapstone is Professor of Neurology at the University of California, Irvine School of Medicine. He is a member of the UCI Institute for Memory Impairments and Neurological Disorders and a Fellow of the UCI Center for Neurobiology of Learning and Memory. His research focuses on pre-clinical detection of neurological disease using cognitive tests and biomarkers obtained from blood. He has a special interest in developing strategies to maintain successful cognitive aging. In the clinic, he specializes in cognitive assessment of older adults with suspected brain disease. Dr. Mapstone earned a PhD in Clinical Psychology at Northwestern University and completed fellowship training in Neuropsychology and Experimental Therapeutics at the University of Rochester. He received a Career Development Award from the National Institute on Aging and his research has been funded by the National Institutes of Health, the Michael J. Fox Foundation, and the Department of Defense. Interested in our Living with Parkinson's Meetup, Care Partner Meetup, or Live Well Today Webinars? Learn how to join. https://dpf.org/webinars

As National Preparedness Month draws to a close, one more reminder about the importance of expecting the unexpected and planning for it in advance (at 13:57) --- To Your Health: Parkinson's Disease affects 8.5M people, and that number is expected to double in the next decade and a half... but there is a glaring issue in current medical research - a shortcoming that the Michael J. Fox Foundation is working to fix (at 21:25) --- What's Happening: Welcome fall! October is a great month to enjoy the autumn scenery with the Hancock Park District (at 41:44)

Sign up for updates on webinars, events, and resources for the Parkinson's community—delivered to your inbox. https://dpf.org/newsletter-signup In the first episode of our three-part series about neuropsychology and Parkinson's, Connie Carpenter Phinney and Dr. Mark Mapstone explore how brain chemistry, especially dopamine, relates to thinking, movement, and mood in Parkinson's. They break down key terms like cognition and executive function and offer insights into how Parkinson's affects brain systems beyond motor symptoms. This episode lays the groundwork for understanding how the brain works—and what happens when it changes. **This content is possible thanks to the generosity of our listeners. Every day more people are diagnosed with Parkinson's, and this means our work is more important than ever. Please support our work by visiting https://dpf.org/donate.** Interested in our Living with Parkinson's Meetup, Care Partner Meetup, or Live Well Today Webinars? Learn how to join. https://dpf.org/webinars Visit https://dpf.org to learn more about the Davis Phinney Foundation for Parkinson's. Speaker Bios: Connie Carpenter Phinney Connie Carpenter Phinney is a co-founder of the Davis Phinney Foundation and has been her husband's care partner for over 25 years. Her background in science combined with her lived experience and curiosity helped shape this conversation with neuropsychologist Dr. Mark Mapstone. Connie is the host of the Foundation's Care Partner Meetup, a monthly virtual meetup for Parkinson's care partners held the first Tuesday of each month. To attend the meetup, sign up here: https://davisphinneyfoundation.org/events/parkinsons-care-partner-meetup/ Dr. Mark Mapstone Mark Mapstone is Professor of Neurology at the University of California, Irvine School of Medicine. He is a member of the UCI Institute for Memory Impairments and Neurological Disorders and a Fellow of the UCI Center for Neurobiology of Learning and Memory. His research focuses on pre-clinical detection of neurological disease using cognitive tests and biomarkers obtained from blood. He has a special interest in developing strategies to maintain successful cognitive aging. In the clinic, he specializes in cognitive assessment of older adults with suspected brain disease. Dr. Mapstone earned a PhD in Clinical Psychology at Northwestern University and completed fellowship training in Neuropsychology and Experimental Therapeutics at the University of Rochester. He received a Career Development Award from the National Institute on Aging and his research has been funded by the National Institutes of Health, the Michael J. Fox Foundation, and the Department of Defense.

Mike Heard and I met when I joined the Board of Directors for Beyond Monumental, the organization behind the CNO Indianapolis Monumental Marathon.During this episode, sponsored by Foot Levelers and Previnex, we talk about:How Mike ended up on the Board of Directors for Beyond Monumental and is now set to be the next President of the Board come January Spending time in the midwest (Michigan, Ohio and Indiana) and on the East CoastWhat it means to have an Air Force scholarship Working at the Pentagon in Washington D.C. Sporting growing upHow he did some road races in college but didn't run his first full marathon until he was 43Meeting his wife, Cheryl, on a blind date while at Purdue Qualifying for and running the Boston Marathon (and getting passed by a hamburger)Doing all of the World Major Marathons: Boston, New York, Berlin, Chicago, Tokyo, London Running with the Michael J. Fox Foundation at New York since his wife, Cheryl, has Parkinson's Running the Monumental Marathon after running the Chicago Marathon in the same year - and only with a 30 second time difference Using Marathon Tours for the logistics of some of his races How he was supposed to get his sixth star at Tokyo in 2020… when it was canceled, and then canceled again in 2021 and 2022The story behind his Purdue running singlet Sponsor Details:Foot Levelers: Visit the website to find a provider near youPrevinex: Use code ALLY15 for 15% off your first order

In this special episode of The Responsive Lab, John and Becky, co-founders of We Are For Good, talk movement-building from the stage at the Responsive Nonprofit Summit 2025. John and Becky share their deeply practical framework for moving from donor acquisition to donor multiplication by centering believers, fueling joy, and letting go of control. Through stories from Komen, charity:water, the Michael J. Fox Foundation, and their own early experiences in healthcare philanthropy, they make the case that responsive fundraising isn't just a strategy, it's a belief system. You'll walk away with: The 8 steps to multiply your mission through community A shift from passive donors to active builders Practical ways to foster shared ownership and belonging A reminder that joy is a powerful multiplier

I've been eager to share with all of you in podcast land some important information and history about what I believe is one of the key drivers in helping fulfill the Michael J. Fox Foundation's mission to cure Parkinson's disease. The Parkinson's Progression Markers Initiative (PPMI), launched in 2010, is a groundbreaking study involving people both with and without Parkinson's. It gathers data over time to help researchers better understand how Parkinson's starts, how it progresses, and — most importantly — how to stop it. Sound important? It absolutely is. And it's still going strong, continually recruiting new participants to join its large and growing community of volunteers. The more data we collect through PPMI, the faster we can accelerate the path to a cure. Maggie Kuhl and Alyssa O'Grady are at the heart of this effort — overseeing the data, bringing in new participants, and tracking the initiative's progress every step of the way. Listen to what the experts say about how you can contribute to the solution to the Parkinson's puzzle. Thank you to our sponsor – Boston Scientific, the maker of Vercise Genus, a Deep Brain Stimulation or DBS system. To learn more about the latest treatment options for Parkinson's disease at https://DBSandMe.com/17branches   https://www.michaeljfox.org/ppmi https://www.ppmi-info.org/    

A Parkinson's disease (PD) diagnosis can impact many areas of life, including how you get work done and think about your career. It can lead to questions like: Should I disclose my diagnosis to my employer and colleagues? How do I adapt my work around my symptoms? What legal protections do I have? Tune into this episode of The Michael J. Fox Foundation's Parkinson's Podcast to listen to our expert panel of people living with PD, a care partner, and an employment consultant discuss employment and Parkinson's. They share their stories and offer the tips they've learned along the way. Check out our free employment guide. https://www.michaeljfox.org/news/workplace-challengesLike our podcasts? Rate or review the show and share the series with your community. https://apple.co/3p02Jw0The Foundation's landmark study, the Parkinson's Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that's changing everything at michaeljfox.org/podcast-ppmi.Mentioned in this episode:The Foundation's landmark research study is exploring the connection between sense of smell and brain disease. People with and without Parkinson's can help by taking a free scratch-and-sniff test. Get yours at mysmelltest.org/request.

My guest for Episode #534 of the Lean Blog Interviews Podcast is Dale Lucht, co-author of the new book Don't Repeat Our Mistakes: Nine Lessons for Leaders Championing Cultural Transformations. Episode page with video, transcript, and more Dale has led Lean transformations in manufacturing, healthcare, and financial services, and he brings decades of leadership experience shaped by mentors such as George Koenigsaecker and the Shingijutsu consultants. In our conversation, Dale reflects on what it takes for a senior leader to go beyond being a "sponsor" of Lean to becoming a true champion. He shares stories of learning by doing, coaching from mentors, and mistakes that became turning points. We talk about leadership habits such as visibility, simplicity, curiosity, and the shift from solving problems yourself to developing others as problem solvers. Dale also discusses how to sustain progress and avoid the common plateau many organizations hit after a few years of Lean practice. Dale and his co-authors, Peter Barnett and Morgan Jones, wrote Don't Repeat Our Mistakes not just to highlight what works, but also to candidly share lessons learned when things didn't go as planned. With proceeds from the book supporting the Michael J. Fox Foundation, it's both a professional guide and a personal legacy project. Whether you're a senior executive, a Lean coach, or someone working to influence leadership in your organization, this episode o Questions, Notes, and Highlights: Early Career & Lean Origins What's your Lean origin story, and how did you get started? What was it like learning from George Koenigsaecker and Shingijutsu? Can you share an example of the "homework" they gave you as a plant GM? How did those early lessons shape your leadership approach? Leadership Lessons & Mistakes What mistakes or challenges did you experience that led to learning? Why do so many organizations plateau after a few years of Lean? What distinguishes improvement from true transformation? How can leaders practice self-coaching before coaching others? What shifts do leaders need to make--from solving problems themselves to coaching others? Why is curiosity such an essential leadership habit? Cross-Industry Experience How did your transition from manufacturing into healthcare come about? Did you see the same progression from tools to leadership change in healthcare? How did you approach leading change in financial services? The Book: Don't Repeat Our Mistakes What did you and your co-authors hope to capture in Don't Repeat Our Mistakes? How did the title and focus on mistakes come about? Were the leaders you interviewed open to sharing their own mistakes? Practical Advice for Leaders How can someone move from being a Lean sponsor to being a true champion? How should leaders pick which habits or lessons to focus on first? What advice do you have for influencing senior leaders when coaching "up" isn't invited? How do organizations prevent backsliding when leadership changes? This podcast is part of the #LeanCommunicators network. 

Parkinsons disease impacts some 10 million people worldwide and current approaches to treating the condition almost exclusively focus on addressing symptoms – there is, as of yet, no cure. One Finnish biotech, however, is not focused on alleviating symptoms but on modifying the course of the disease itself. Their hope is to be able to stop and even reverseneurodegenerative diseases like Parkinsons, and they have the backing of significant players, such as the Michael J Fox Foundation, to do just that.This week I spoke to Antti Vuolanto, CEO of Herantis Pharma, about the work his company is doing, the science behind their approach, and the advantages and challenges of working in biotech in the Nordics.01:10               Meet Antti Vuolanto05:10               The biotech landscape in the Nordics07:07               Herantis Pharma and its mission09:38               Treating symptoms versus disease modification13:31               Herantis in relation to other Parkinson's disease companies15:47               HER-09626:24               The global burden of Parkinson's disease and the unmet need28:56               The role of patient and advocacy groups30:11               The future of Parkinson's disease treatment31:52               How the Nordics can develop and expand their biotech sector36:33               Stay up to date on Herantis and their workInterested in being a sponsor of an episode of our podcast? Discover how you can get involved here! Stay updated by subscribing to our newsletterTo dive deeper into the topic: Finland: Pushing biotech forward in the land of a thousand lakesParkinson's disease: biotech's pursuit for more therapies The stem cell race for Parkinson's disease: Recent studies show significant promise

How do I tell my children about my Parkinson's disease (PD) diagnosis? How do I explain a tremor to my grandkids? How can I support my parent with Parkinson's from a distance? How can my spouse and I communicate around a symptom of apathy? Every year our community submits thousands of questions online and at in-person events. Many are about Parkinson's symptoms, treatment options and the latest research, but we're also asked questions about relationships and how to maintain connection with loved ones with Parkinson's in the picture. In this episode of The Michael J. Fox Foundation's Parkinson's Podcast, our expert panel tackles questions on relationships and shares their personal experiences and advice. To connect with others for support and community, join the Parkinson's Buddy Network. https://parkinsonsbuddynetwork.michaeljfox.org/ Like our podcasts? Rate or review the show and share the series with your community. https://apple.co/3p02Jw0 The Foundation's landmark study, the Parkinson's Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that's changing everything at michaeljfox.org/podcast-ppmiMentioned in this episode:August is Make-A-Will Month, which serves as a reminder of the importance of creating and updating your will. Use this moment to take control of your future and ensure your wishes are respected. Visit michaeljfox.org/plan to learn more and get started.

Life with Parkinson's disease (PD) is shaped by myriad factors, including sexual orientation and gender identity that shape access to care, lifestyle decisions and more. In this episode of The Michael J. Fox Foundation's Parkinson's Podcast, our expert panel shares their personal stories and discusses the ongoing research into the health concerns and needs of LGBTQ+ people living with PD. To connect with others for support and community, join the Parkinson's Buddy Network. https://parkinsonsbuddynetwork.michaeljfox.org/ Like our podcasts? Rate or review the show and share the series with your community. https://apple.co/3p02Jw0 The Foundation's landmark study, the Parkinson's Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that's changing everything at michaeljfox.org/podcast-ppmi. Mentioned in this episode:The Foundation's landmark research study is exploring the connection between sense of smell and brain disease. People with and without Parkinson's can help by taking a free scratch-and-sniff test. Get yours at mysmelltest.org/request.

Richard Fitzgerald, Co-Founder and Managing Partner at CapitalSpring, joins Sean Mooney to share the story behind one of the most enduring sector-focused firms in private equity. In a conversation that moves well beyond deal mechanics, Richard reflects on the early days of CapitalSpring, the value of sticking with a niche, and what it takes to build trust and alignment — across teams, LPs, and portfolio partners — over the long haul. Episode Highlights: 1:07 – Richard's path to private equity 7:53 – Building a sector-specialist investment firm with true competitive advantage 11:06 – We'd know Richard better if we knew this about him 18:27 – Working through hard things – navigating the pandemic 26:45 – The art of private equity in the franchise/multi-location sector – best practices 35:48 – Benefits of having a sector specialist franchisee investors for sponsors investing in franchisors 40:42 – Flexibility to provide both debt and equity solutions for growing businesses is a competitive advantage 43:05 – Richard's advice for his 22 year-old-self For more on CapitalSpring: https://www.capitalspring.com To connect with Richard Fitzgerald: https://www.linkedin.com/in/fitzgeraldrichard For more on Challenge Aspen: https://challengeaspen.org/ For more on the Michael J. Fox Foundation: https://www.michaeljfox.org/ Explore more episodes of Karma School of Business: https://www.bluwave.net/podcasts

Elizabeth Barnes is an author and Professor of philosophy at the University of Virginia in Charlottesville, she reflects on her unconventional journey into philosophy, and her experience living with disabilities. Elizabeth questions conventional views on disability, advocating for a more nuanced understanding of wellbeing, and shares how philosophy helps her find comfort and meaning in life's challenges.Learn more about Elizabeth and read her books!Donate to The Michael J. Fox Foundation for Parkinson's ResearchDonate to The Davis Phinney Foundation for Parkinson'sKeep up to date with Peter on SubstackKeep up to date with Kasia!If you would like to support the podcast please consider our PatreonExecutive Producer: Rachel BarrettThanks to our volunteer researchers Hendrik Dahlmeier and Mihika Chechi, and Chris van Ryn!And special thanks to Suzi Jamil! Hosted on Acast. See acast.com/privacy for more information.

In the P2P fundraising world, we often look to the spark of organic, supporter-led moments like the Ice Bucket Challenge as examples of what's possible when passion meets purpose. But when lightning strikes, are you ready to catch it?This episode dives into one such moment: when four friends, Pat Morissey, Brendan Cusick, Peter Durso, and Scott Forman, decided to row 2,800 miles across the Pacific Ocean to raise funds for The Michael J. Fox Foundation For Parkinson's Research. With the right support, strategic partnership and a community rallying behind them, their effort transformed into a powerful campaign that inspired the Parkinson's community worldwide.Pat Morrissey, the first person with Parkinson's to complete this journey, and Liz Deemer, Vice President of Community Fundraising at MJFF, join P2PPF's Marcie Maxwell to share the behind-the-scenes story of Team Human Powered Potential—recipients of the 2025 Cash, Sweat & Tears Award—and the incredible impact of this campaign.In this episode, we'll also explore:How to recognize and respond to bold, supporter-led fundraising opportunitiesWhat makes staff–fundraiser relationships thrive under high-stakes pressurePractical takeaways for activating your community in powerful and unexpected waysMentioned Linkswww.michaeljfox.orgwww.teamfox.org www.humanpoweredpotential.orgOn Instagram: @humanpoweredpotentialStay Connected on LinkedInConnect with LizConnect with MarcieConnect with the Peer-to-Peer Professional Forum (00:00) - Welcome to The P2P Soap Box (02:22) - Introducingt the Team (03:42) - Pat's Journey (10:53) - Liz's Journey (15:46) - The Story of the Numbers (28:30) - On the Water (33:57) - Organizational Challenges (37:28) - Advice for Professionals (42:14) - Learn More about MJFF

In this episode of The Extra Mile Podcast, we're joined by Pat Morrissey and Brendan Cusick of Human Powered Potential—a four-person team that rowed across the Pacific Ocean to raise over $43 million for the Michael J. Fox Foundation. Pat, who lives with early onset Parkinson's, shares his powerful journey from diagnosis to joining this life-changing mission. Brendan, the team's skipper, walks us through the inspiration behind the row, the mental and physical preparation, and what it was like to face 30-foot waves and total isolation in the middle of the ocean. Together, they talk about the strength of community, the power of purpose, and how the support they received from thousands kept them moving through even the hardest days. This is a story of resilience, teamwork, and pushing beyond limits for something bigger than yourself. Don't miss this incredible conversation. Every mile matters.

$41M, 41 days, 2800 miles. Those are the stats for Team Human Potential who competed in the World's Toughest Row. The boat race happens annually and showcases teams of four, rowing across the Pacific Ocean from California to Hawaii. Patrick Morrisey with Team Human Potential became the first person with Parkinson's to finish the race. They raised over $41M for the Michael J Fox Foundation for Parkinson's research. Amazing. We spoke with Patrick and his skipper, Brendan Cusick about their experiences, challenges, commitment, and learnings on the trip. What did it reveal about working together and becoming close brothers in the end? How did Patrick manage his symptoms while rowing and living on a small boat for 41 days? What did they learn about their mental and physicial limitations? What's next? Listen on to enjoy some time with this engaging, generous and courageous team. https://humanpoweredpotential.org/ https://www.dbsandme.com/en.html 

I am running the New York City marathon after running it 12 years ago on the Michael J. Fox Foundation team. This Foundation is raising money for Parkinson's disease research. I'm so proud to be back with them and slightly terrified to be dragging my old ass over 26 + miles around the 5 Boroughs. This ep I tell a lot of stories of how Running was a severe punishment for me as a kid and how I changed my mind about it. I cross some funny roads and am not giving any words of encouragement or motivation don't worry- zero jive. Thanks -GFIf you want to support my race please do here:https://give.michaeljfox.org/fundraiser/6151559 The Full Blast Podcast on Instagram:https://instagram.com/thefullblastpodcast?igshid=YmMyMTA2M2Y=If you want to support Full Blast Support  Feder Knives - ( go buy a shirt )https://www.federknives.com/Take a class: https://centerformetalarts.org/Follow CMA on Instagram https://www.instagram.com/centerformetalarts/?hl=enJoin us in Barcelona for the 2025 weekend Workshops!https://florentinekitchenknives.com/pages/workshopsPlease subscribe, leave a review and tell your friends about the show. it helps me out a lot! Welcome back! Nordic Edge:@nordic_edge on IG Nordicedge.com.auNordic Edge is about the joy of making something with your own hands. our one stop shop for tools, supplies and help when it comes to knife making, blacksmithing, leatherworking, spoon carving and other crafts where you get to take some time out for yourself and turn an idea into something tangible. Nordic Edge also holds hands-on workshops in the “lost arts” of blacksmithing, knife making and spoon carving. Come spend a day with us and go home with new skills and something you made with your own hands. They have the  guidance to help accelerate your creativity and the  Tools, products, supplies to help you manifest your ideas. NordicEdge.com.auThank you Baker Forge & Tool for your beautiful Steel. Go to Bakerforge.com to see all the incredible steels they offer. ‘FullBlast' gets you 10% off your orderWelcome to our new Sponsor- EVENHEAT- Manufacturers of the best heat treating ovens available.  To find your next oven go to Evenheat-kiln.comFollow them on Instagram: Welcome aboard Texas Farrier Supply! For all your forging and knife making supplies go to www.texasfarriersupply.com   and get 10% off your order with PROMOCODE Knifetalk10Brodbeck Ironworks Makers of an Incredibly versatile grinder, with Many different attachmentsLeather sewing equipment and even abrasives Check out Brodbeck Ironworks for yourself:https://brodbeckironworks.com/“Knifetalk10” gets you 10% off Follow Brodbeck Ironworks on Instagramhttps://www.instagram.com/brodbeck_ironworks/Trojan Horse Forge Get your THF Stabile Rail knife finishing vise at https://www.trojanhorseforge.com/And when you use the promo code “FULLBLAST10 you get 10%off everything on the site.Follow them on instagram:https://www.instagram.com/trojan_horse_forge/ TotalBoatAdhesives, paints, primers and polishing compounds.Go to http://totalboat.com/FULLBLASTTo support the podcastG.L. Hansen & Sons On Instagramhttps://instagram.com/g.l._hansenandsons?igshid=MzRlODBiNWFlZA== Gcarta.bigcartel.comG-Carta is unique composite of natural fibers and fabrics mixed with epoxy under pressure and heat Boofa, ripple cut, Tuxini, by Mikie, Mahi Mahi, Radio worm g-cartaPheasant by MikieColorama by MikieHoopla by MikeAmazing colors and razzle dazzle for your project. MARITIME KNIFE SUPPLIESMaritimeknifesupply.CAAll your knifemaking needs, belts abrasive, steals, kilns forges presses, heat treating ovens anvils and everything you need to get started or resupply. Including Dr. Thomas's book:“Knife Engineering”They're in Canada but ship to the US with ease and you can take advantage of the exchange rate The steel selection is always growing and Lawrence just got 3900 lbs. of steel in.10% off on abrasive belt packs of 10 get a hold of https://www.instagram.com/maritimeknifesupply/ and see what the fuss is about.Welcome Tormek as a sponsor to the show. Take your sharpening to a new level. I love these sharpening machines. Waterfed, easy to use. Jigs included. Definitely check out what they have to offer. If you need it sharpened, Tormek is definitely something for you:https://tormek.com/en/inspiration/woodworking--craftsVisit Tormek's website: https://tormek.com/enFollow Tormek on Instagram:https://www.instagram.com/tormek_sharpening/?hl=enFollow Tormek on TikTokhttps://www.tiktok.com/@tormek_sharpening?lang=enGo look at the course curriculum at CMA:https://centerformetalarts.org/workshops/** Taking classes from some of the best in forging at one of the best facilities in the country is an excellent opportunity to propel yourself as a blacksmith. Not to be missed. And with housing on the campus it's a great way to get yourself to the next level. Advertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

You could take any two humans on earth and their genetic code will be roughly 99 percent the same — it's the small differences in code that lead to different experiences and outcomes, including the risk of developing diseases like Parkinson's. Scientists are learning more about which genetic changes are linked to Parkinson's disease, revealing important insights into disease biology and progression. Tune into this episode of our award-winning “Parkinson's Science POV” series to learn how researchers are using genetics to better understand the disease and work toward better treatments for all.Like our podcasts? Please consider leaving a rating or review and sharing the series with your community. https://apple.co/3p02Jw0 The Foundation's landmark study, the Parkinson's Progression Marker's Initiative, also known as PPMI, is recruiting volunteers. Join the study that's changing everything at michaeljfox.org/podcast-ppmi. This episode was made possible by Prevail Therapeutics. Partner support allows us to furnish high-quality educational content to the Parkinson's community while maintaining our commitment to allocate donor dollars to high-impact research. Editorial control of all Michael J. Fox Foundation-published content rests solely with the Foundation. Mentioned in this episode:The Foundation's landmark research study is exploring the connection between sense of smell and brain disease. People with and without Parkinson's can help by taking a free scratch-and-sniff test. Get yours at mysmelltest.org/request.

Emmy award-winning actor Michael J. Fox shocked the world when he announced over 25 years ago that he had been diagnosed with Parkinson's disease. Since then, he's devoted his talents to eliminating Parkinson's in our lifetime. Researchers with The Michael J. Fox Foundation now have impressive progress to report. They've developed a biomarker test to measure the protein alpha synuclein that's helping to diagnose Parkinson's with more than 90% accuracy, even proving effective at identifying people who may later develop... Read More Read More The post Michael J. Fox's Foundation Makes Parkinson's Breakthrough appeared first on Healthy Communities Online.

How can startups and academic institutions successfully collaborate with a global biopharmaceutical company? In this episode, host James Zanewicz, JD, LLM, RTTP, sits down with Key Opinion Leader Lidia Sobków, PhD, Senior Manager of Technology Licensing & Collaborations at AbbVie, to discuss how her team identifies cutting-edge research and partners with academic institutions and biotech startups to drive innovation. From securing collaborations to leveraging industry consortia, Lidia shares invaluable insights on how to position your research for success with major pharmaceutical companies. In this episode, you'll discover: What AbbVie looks for in potential partners and how universities and startups can stand out. The role of consortia in fostering industry-academic collaboration for groundbreaking research. Real-world examples of successful partnerships that have advanced neuroscience and imaging technologies. Tune in to learn how to navigate industry partnerships and make an impact in the biotech ecosystem! Links: Connect with Lidia Sobków, PhD, and learn more about AbbVie. Connect with James Zanewicz, JD, LLM, RTTP and learn about Tulane Medicine Business Development and the School of Medicine. Check out The Michael J. Fox Foundation and Critical Path Institute. Check out Gedeon Richter and Enigma Biomedical Group. Check out BIO on the BAYOU and make plans to attend October 28 & 29, 2025. Learn more about BIO from the BAYOU - the podcast. Bio from the Bayou is a podcast that explores biotech innovation, business development, and healthcare outcomes in New Orleans & The Gulf South, connecting biotech companies, investors, and key opinion leaders to advance medicine, technology, and startup opportunities in the region.

On this week's episode of The 1 Girl Revolution Podcast, we welcome Dr. Karen Jaffe, a powerhouse advocate, retired OB-GYN, and co-founder of InMotion—a nonprofit organization dedicated to empowering people with Parkinson's disease through exercise, education, and support. After being diagnosed with Parkinson's disease in 2007, Dr. Jaffe refused to let her diagnosis define her. Instead, she turned her personal challenge into a mission to help others. Through InMotion, Dr. Jaffe and her team are transforming the way people live with Parkinson's—offering a supportive community and innovative resources, all at no cost. In this episode, you'll hear: Dr. Jaffe's personal journey with Parkinson's disease and how it led her to advocacy; The story behind InMotion and the life-changing impact it's making; The importance of exercise, education, and community in living well with Parkinson's; How Dr. Jaffe continues to challenge the stigma around Parkinson's and empower others; Powerful stories of resilience, hope, and transformation; And so much more! For more information on InMotion, visit: www.1GirlRevolution.com/drkarenjaffe 

In this episode of Stimulating Brains, we're thrilled to have Jim McNasby join us. Jim is a deep brain stimulation (DBS) patient and the Chief Counsel at the Michael J. Fox Foundation. Jim has an inspiring story, not just as a DBS patient but also as a legal professional working at the forefront of Parkinson's research advocacy. We'll dive into his personal experience with DBS—how it has shaped his life since his diagnosis in 2000 and his surgery in 2019—and explore his crucial role at the Michael J. Fox Foundation, where he helps drive forward their mission to find a cure for Parkinson's disease. I had the pleasure of hearing Jim speak at the Neuromodec Conference, where he shared a powerful story of how DBS transformed his life, even showing a video that vividly captured its positive effects. We'll talk about that, his DBS wishlist, and the work he's doing to advocate for patients and drive research. In this episode, we explore his personal experiences, the impact of DBS, and his role in advancing Parkinson's research and advocacy at the foundation. Jim also reflects on the transformative moment when his DBS was first activated and discusses his vision for the future of patient care and innovation in the field.

Parkinson's disease significantly impacts various aspects of communication, and this can make it challenging for people with the disease to communicate effectively, be understood by others, and engage in social situations. Dr. Gemma Moya-Galé joins this episode to talk about her work on voice and communication in people with Parkinson's disease. In particular, she discusses a novel app she and her team are developing, with funding from The Michael J. Fox Foundation, to help people with Parkinson's improve how well their speech is understood. The app uses evidence-based principles from speech therapy and noise-augmented automatic speech recognition to provide speech training and feedback. She also shares her recent research on linguistically and culturally responsive methods for addressing communication challenges in both English- and Spanish-speaking individuals with Parkinson's disease, and how this approach has the potential to improve clinical care. Gemma is an Assistant Professor of Communication Sciences and Disorders, as well as the Director of the Communication, Technology, and Language Diversity Lab at Teachers College, Columbia University.This podcast is geared toward researchers and clinicians. If you live with Parkinson's or have a friend or family member with PD, listen to The Michael J. Fox Foundation Parkinson's Podcast at michaeljfox.org/podcasts. We're excited to announce that we will be merging our two podcasts in 2025, and we invite you to subscribe to our Michael J. Fox Foundation Parkinson's Podcast on Apple Podcasts or wherever you get your podcasts for future episodes featuring scientists, doctors and people with Parkinson's talking about different aspects of life with the disease as well as new research toward treatment breakthroughs.

Parkinson's disease significantly impacts various aspects of communication, and this can make it challenging for people with the disease to communicate effectively, be understood by others, and engage in social situations. Dr. Gemma Moya-Galé joins this episode to talk about her work on voice and communication in people with Parkinson's disease. In particular, she discusses a novel app she and her team are developing, with funding from The Michael J. Fox Foundation, to help people with Parkinson's improve how well their speech is understood. The app uses evidence-based principles from speech therapy and noise-augmented automatic speech recognition to provide speech training and feedback. She also shares her recent research on linguistically and culturally responsive methods for addressing communication challenges in both English- and Spanish-speaking individuals with Parkinson's disease, and how this approach has the potential to improve clinical care. Gemma is an Assistant Professor of Communication Sciences and Disorders, as well as the Director of the Communication, Technology, and Language Diversity Lab at Teachers College, Columbia University.This podcast is geared toward researchers and clinicians. If you live with Parkinson's or have a friend or family member with PD, listen to The Michael J. Fox Foundation Parkinson's Podcast at michaeljfox.org/podcasts. We're excited to announce that we will be merging our two podcasts in 2025, and we invite you to subscribe to our Michael J. Fox Foundation Parkinson's Podcast on Apple Podcasts or wherever you get your podcasts for future episodes featuring scientists, doctors and people with Parkinson's talking about different aspects of life with the disease as well as new research toward treatment breakthroughs.

Send us a textIt's time for our last Foxvember movie. To close things out, Shawn and Colin are watching the 90s buddy cop team up 'The Hard Way'. We discuss all those important topics such as tiptoeing that line between action and comedy, enormous Times Square billboards, questionable definitions of what a sex symbol is, a villain that may or may not belong in the real world, societal face blindness and so much more. Is this the team up we've all been sleeping on? What did we think? Tune in to find out!And also a shoutout to the Michael J. Fox Foundation at https://www.michaeljfox.org/5 Star reviews help drive us up the charts. Please take a minute and review us.If you would like to contact or donate to us: iusedtolikethisone@gmail.comwww.patreon.com/iusedtolikethisoneWebsite: www.iusedtolikethisone.comInstagram: @iusedtolikethisoneTwitter: @iused2likethis1Facebook: I Used To Like This OneBluesky: @iusedtolikethisone.bsky.socialSnapchat: @iused2likethis1Created/Produced/Hosted by: Shawn Wells and Colin StewartOfficial Substitute Co-host: Aaron Knowles @betteractions @oblivionbarpod @shredthestress Edited by: Shawn WellsOriginal Music by: Lindon Carter (look for his band 'Carter & the Capitals' on all music streaming platforms)Website design: David SonSponsorship Corner sponsored by movieposters.com *****With over 100,000 titles to choose from, movieposters.com is the #1 destination for posters from your favorite films + stars. Use LIKETHISONE at checkout for 15% off your purchase. *****Special Thanks To: Tracy Sheremeta, Lindon Carter, Kris Wells and Graham Wells for their contributions to the show.Hear more content from Shawn with his other podcast 'In Front Of The Yellow Line'.Support the mental health of Military Veterans with Aaron Knowles's non-profit www.shredthestress.org©️2024 And Sometimes Why? Productions.

To help meet the growing global need for more movement disorders specialists, The Michael J. Fox Foundation created the Edmond J. Safra Fellowship in Movement Disorders in collaboration with longtime partner the Edmond J. Safra Foundation. This program supports the training of movement disorders specialists who will provide expert care and drive advances in Parkinson's research. The program is positively impacting early-career clinician-researchers, as well as the centers where they train. These impacts will continue to grow over the years as more fellows are trained. In this episode, Dr. Marcelo Merello and Dr. Sergio Castillo-Torres share their insights and perspectives as a Fellowship Director and a Fellow in the program, respectively. Marcelo is Director of the Department of Neurosciences and Chief of the Movement Disorders Clinic at the Institute for Neurological Research or Fleni Hospital. He is fellowship Director at Fleni and the University of Buenos Aires. In addition, Marcelo is Principal Investigator with the National Council for Scientific and Technical Research and Professor of Neurodegenerative Diseases at the Pontifical Catholic University of Argentina. Sergio is an Associate Professor in Neurology and Internal Medicine at the Dr. Jose E. Gonzales University Hospital of the Autonomous University of Nuevo Leon. He was an Edmond J. Safra Fellow in Movement Disorders at Fleni Hospital. Visit michaeljfox.org/fellowship to learn more about the Edmond J. Safra Fellowship in Movement Disorders.This podcast is geared toward researchers and clinicians. If you live with Parkinson's or have a friend or family member with PD, listen to The Michael J. Fox Foundation Parkinson's Podcast. Hear from scientists, doctors and people with Parkinson's on different aspects of life with the disease as well as research toward treatment breakthroughs at https://www.michaeljfox.org/podcasts.

Oct. 25, 2024 - We explore the potential benefits of a state Parkinson's disease registry with Zach Hardy, state government relations manager for the Michael J. Fox Foundation for Parkinson's Research.

I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :)Do you know about Donor-Advised Funds (DAFs)? This 3-letter word has been on a LOT of people's minds, which is why I'm joined by Mitch Stein, Head of Strategy at Chariot, to learn how these tax-advantaged accounts are reshaping charitable giving. Mitch introduces us to the revolutionary DAF Pay, an innovation that simplifies the donation process to feel just like using a credit card, making it easier for nonprofits to connect with donors. We also talk about the democratization of DAFs, driven by major players like Fidelity and Schwab, which has opened the door for everyday donors to make a difference without the hurdles of high minimums and grant sizes.Even leading nonprofits like the Michael J. Fox Foundation are capitalizing on DAFs to inspire increased generosity!From creating engaging content to educating donors on viewing DAFs as active charitable wallets, Mitch generously shares how organizations can maintain top-of-mind awareness and encourage frequent use of DAFs. P.S. Applications are now open for the next round of my Monthly Giving Mastermind. Visit positiveequation.com/mastermind to apply.P.P.S. Are you a nonprofit leader running an established monthly giving program with 10,000 or more recurring donors? DM me @positivequation to learn more about my Monthly Giving Leaders Mastermind (with an in-person retreat!)Resources & LinksConnect with Mitch on LinkedIn and check out Chariot's first ever DAF Fundraising Report and their blog for more education on Donor-Advised Funds.Want to make Missions to Movements even better? Take a screenshot of this episode and share it on Instagram. Be sure to tag @positivequation so I can connect with you. Giving season is just around the corner and DonorPerfect has your back. Jumpstart your end-of-year content in seconds with DonorPerfect's FREE fundraising AI bot at donorperfect.com/bot.The Nonprofit Podcast by Donorbox has over 100 episodes to help you take your nonprofit to the next level. Check out my appearance on Episode 130: Master Monthly Giving.My book, The Monthly Giving Mastermind, is here! Grab a copy here and learn my framework to build, grow, and sustain subscriptions for good.Let's Connect! Send a DM on Instagram or LinkedIn and let us know what you think of the show! Head to YouTube for digital marketing how-to videos and podcast teasers Want to book Dana as a speaker for your event? Click here!

Stem cell models derived from patients with Parkinson's disease are valuable tools that are helping researchers around the world to better understand the underlying causes of neurodegeneration and to develop biomarkers and new therapies. To maximize the potential impacts of these tools, it is critical that they are developed and shared according to the principles of open science. In her interview, Dr. Birgitt Schüle discusses her work developing alpha-synuclein cell lines, challenges and opportunities in the field, and important considerations surrounding open science. She goes in-depth on how the cell lines were developed, characterized, and deposited with the American Tissue and Cell Collection (ATCC) with funding support from The Michael J. Fox Foundation, as well as how these cells can be used to fuel future discoveries. Birgitt is an Associate Professor in the Department of Pathology at Stanford University School of Medicine and Co-Director of the Alzheimer's Disease Research Center, Neuropathology, and Induced Pluripotent Stem Cell (iPSC) Core. This podcast is geared toward researchers and clinicians. If you live with Parkinson's or have a friend or family member with PD, listen to The Michael J. Fox Foundation Parkinson's Podcast. Hear from scientists, doctors and people with Parkinson's on different aspects of life with the disease as well as research toward treatment breakthroughs at https://www.michaeljfox.org/podcasts.

The Chicago Marathon is one of six World Major Marathons, and this year will host around 50,000 runners from around the world, not to mention the spectators, vendors, and volunteers. So, is it possible for an event of this magnitude to be sustainable? On this episode, Casey and Sara chat with Cat Morris, the Sustainability Manager at Chicago Event Management, overseeing the Chicago Marathon. Hear about how the Chicago Marathon became certified as an Evergreen Inspire event through the Council for Responsible Sport, how waste, from water cups to gel packets, is being diverted from landfills, and how runners and spectators can get involved!   Sara will be running the 2024 Chicago Marathon as part of Team Fox, raising funds for the Michael J Fox Foundation for Parkinson's Research. If you'd like to donate to support the Foundation's work to find a cure for Parkinson's, you can donate through Sara's fundraising page here: https://give.michaeljfox.org/fundraiser/5270913   Resources for this episode:  Chicago Marathon Sustainability Community Impact through Compost: Chicago Distance Series Instagram: Tina Muir, Chicago Marathon Sustainability Ambassador Instagram: Chicago Marathon Know Before You Go: Sustainability  

New qualitative and quantitative tools are being developed to measure and track changes in proteins relevant for neurodegenerative disease, and these tools have the potential to accelerate drug discovery and clinical trials. In this episode, Dr. Judith Steen discusses her work creating novel qualitative and quantitative tools and workflows at the interface of proteomics and transcriptomics, including their novel FLEXI platform. This platform uses targeted, high- throughput quantitative mass spectrometry to isolate, quantify, and identify molecular changes in proteins. She describes her ongoing project, funded by The Michael J. Fox Foundation, to develop FLEXISyn, which aims to track post-translational changes in alpha-synuclein to better understand how the protein becomes dysfunctional and begins misfolding and forming toxic aggregations in Parkinson's disease. Judith is Associate Professor of Neurology at Harvard Medical School, a member of the Harvard Stem Cell Institute, and Director of the Neuroproteomics Laboratory in the F.M. Kirby Neurobiology Center at Boston Children's Hospital.This podcast is geared toward researchers and clinicians. If you live with Parkinson's or have a friend or family member with PD, listen to The Michael J. Fox Foundation Parkinson's Podcast. Hear from scientists, doctors and people with Parkinson's on different aspects of life with the disease as well as research toward treatment breakthroughs at https://www.michaeljfox.org/podcasts.

In this episode of the Life Science Success Podcast, my guest is Dr. Russ Lebovitz. Dr. Lebovitz is a seasoned expert in the life sciences, with over 15 years of experience as a senior scientist and research physician. He has served on the faculties of Baylor College of Medicine and The Fox Chase Cancer Center. Transitioning from academia to industry, he has led biotech companies in the diagnostics field, focusing on early detection of neurodegenerative diseases. As the CEO of Amprion, Dr. Lebovitz is pioneering innovative technologies to revolutionize brain health. He collaborates with organizations like the Alzheimer's Drug Discovery Foundation and the Michael J. Fox Foundation to advance research and awareness. Join us as we delve into his remarkable journey and the groundbreaking work he's doing to transform the future of diagnostics. Dr. Lebovitz shares his extensive experience in life sciences, discussing the journey and development of Amprion from its early days to the present. He explains the science behind prion-like particles, misfolded proteins, and how they relate to neurodegenerative diseases such as Alzheimer's and Parkinson's. He also talks about the company's groundbreaking technology, its FDA recognition, and the critical role of collaborations with organizations like the Michael J. Fox Foundation and the Alzheimer's Drug Discovery Foundation. Tune in to learn about the innovations in diagnostics and the impactful strides being made in the field.   00:00 Introduction to Life Science Success Podcast 00:36 Sponsor Message: D3 Digital Media Marketing 01:27 Meet Dr. Russ Lebovitz 01:53 Dr. Lebovitz's Journey in Life Sciences 02:33 Founding Amprion: The Early Days 04:22 Breakthroughs in Neurodegenerative Disease Research 14:27 The Science Behind Amprion's Technology 19:41 Collaborations and FDA Support 24:52 Amprion's Unique Approach and Availability 32:05 Personal Insights and Reflections 37:20 Conclusion and Farewell

On this week's episode of You Are What You Read, we are joined by award-winning television and film actor, bestselling author, and champion of Parkinson's Research, Michael J. Fox. You know Michael from his notable roles as Alex P. Keaton on the sitcom Family Ties, Marty McFly in Back to the Future, and more… The Secret of My Success, Doc Hollywood, Casualties of War, and The American President. Michael returned to television in his award-winning lead role in Spin City, and also appeared in Rescue Me, Curb Your Enthusiasm, and The Good Wife. His many awards include five Emmys, four Golden Globes, one Grammy, two Screen Actors Guild awards, the People's Choice award, and GQ Man of the Year. In 2000, Michael launched the Michael J. Fox Foundation for Parkinson's Research, which is now the leading Parkinson's organization in the world. He is the author of four New York Times bestselling books: Lucky Man, Always Looking Up, A Funny Thing Happened on the Way to the Future, and No Time Like the Future: An Optimist Considers Mortality. Our dear friend Nelle Fortenberry also joins the conversation to talk about her longtime work with Michael as his producer and creative partner. Nelle is on the board of directors for the Michael J. Fox Foundation and won an Emmy as the Executive Producer of Still: A Michael J. Fox Movie. Learn more about your ad choices. Visit megaphone.fm/adchoices

From 18th century London to the promise of a global cure: the 200-year history of Parkinson's disease. Parkinson's, a neurodegenerative disorder most commonly characterized by tremors and other motor symptoms, is so complex, many medical professionals are starting to classify it as a group of diseases, rather than a single disease. In this episode, we explain those complexities, including: • The motor symptoms (e.g. cogwheel rigidity, bradykinesia) and non-motor symptoms (e.g. depression, sleep disorders) • How the industrial revolution may have brought about environmental factors which contribute to Parkinson's • The differences and similarities between Parkinson's and other neurodegenerative diseases, like Alzheimer's • How Parkinson's manifests in our brains • Why one nurse was able to detect Parkinson's through smell • The neurogenetics of Parkinson's, and the ethical quandaries of evolving genetic technology • Why lifestyle — nutrition, exercise, etc. — is so key to preventing and managing Parkinson's Joining us for this extensive conversation are three incredible guests: • Dr. Rachel Dolhun, Senior Vice President of Medical Communications at The Michael J. Fox Foundation for Parkinson's Research • Dr. Michael Okun, evolutionary biologist, movement disorders specialist, and Director of the Norman Fixel Institute for Neurological Diseases • Dr. Matthew Farrer, neurogenetics expert and Professor Of Neurology at the University of Florida ‘Your Brain On' is hosted by neurologists, scientists and public health advocates Ayesha and Dean Sherzai. Drs. Ayesha and Dean are now welcoming patients via the Brain Health Institute: https://brainhealthinstitute.com/ ‘Your Brain On... Parkinson's' • SEASON 3 • EPISODE 1 (SEASON 3 DEBUT) ————— LINKS   Dr. Rachel Dolhun: At the Michael J. Fox Foundation: https://www.michaeljfox.org/bio/rachel-dolhun-md-dipablm  ‘Ask the MD' series: https://www.michaeljfox.org/ask-md  The Michael J. Fox Foundation on YouTube: https://www.youtube.com/@michaeljfoxfoundation/videos  Dr. Michael Okun: At the University of Florida: https://neurology.ufl.edu/profile/okun-michael/  The book ‘Ending Parkinson's Disease': https://endingpd.org/  The Norman Fixel Institute: https://fixel.ufhealth.org/   Dr. Matthew Farrer: At the University of Florida: https://neurology.ufl.edu/profile/farrer-matthew/ ————— References: Bloem, B. R., Okun, M. S., & Klein, C. (2021). Parkinson's disease. The Lancet, 397(10291), 2284-2303. Morris, H. R., Spillantini, M. G., Sue, C. M., & Williams-Gray, C. H. (2024). The pathogenesis of Parkinson's disease. The Lancet, 403(10423), 293-304. Dorsey, E., Sherer, T., Okun, M. S., & Bloem, B. R. (2018). The emerging evidence of the Parkinson pandemic. Journal of Parkinson's disease, 8(s1), S3-S8. Dorsey, E. R., Okun, M. S., & Tanner, C. M. (2021). Bad Air and Parkinson Disease—The Fog May Be Lifting. JAMA neurology, 78(7), 793-795. Tsalenchuk, M., Gentleman, S. M., & Marzi, S. J. (2023). Linking environmental risk factors with epigenetic mechanisms in Parkinson's disease. npj Parkinson's Disease, 9(1), 123. Reynoso, A., Torricelli, R., Jacobs, B. M., Shi, J., Aslibekyan, S., Norcliffe‐Kaufmann, L., ... & Heilbron, K. (2024). Gene–Environment Interactions for Parkinson's Disease. Annals of Neurology, 95(4), 677-687. Golsorkhi, M., Sherzai, A., & Dashtipour, K. The Influence of Lifestyle on Parkinson's Disease Management. In Lifestyle Medicine, Fourth Edition (pp. 919-924). CRC Press. Sherzai, A. Z., Tagliati, M., Park, K., Pezeshkian, S., & Sherzai, D. (2016). Micronutrients and risk of Parkinson's disease: a systematic review. Gerontology and geriatric medicine, 2, 2333721416644286. ————— FOLLOW US  Join the NEURO Academy: NEUROacademy.com  Instagram: @thebraindocs Website: TheBrainDocs.com More info and episodes: TheBrainDocs.com/Podcast

I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :)Could leveraging Facebook Messenger transform your nonprofit's fundraising strategy? In this episode, we sit down with Becca Lockhart and Ty Hyacinth from the Michael J. Fox Foundation to uncover the digital strategies that have catapulted their annual giving. Discover how their innovative use of Facebook Messenger campaigns, combined with integrated donor engagement tactics, has revolutionized their approach to funding Parkinson's research, leading to remarkable growth in revenue and donor interaction.The Michael J. Fox Foundation's shift to Facebook fundraising, in partnership with Good United, offers a masterclass in authentic community-building. Join us as Becca and Ty reveal the power of personalized interactions and the critical role of staff members stepping into the spotlight with a conversational tone. Hear how ongoing engagement and expressing gratitude have been pivotal in fostering trust, belonging, and sustained support through various campaigns and challenges.We celebrate the foundation's impressive achievements in 2023, particularly through their "Year in Review" report. Listen to how they've leveraged Facebook Messenger for transparency and impactful communication, creating an engaged community where members share personal stories and support each other. As we look forward to April's Parkinson's Awareness Month, Becca and Ty share their excitement for upcoming community efforts and advocacy. Don't miss this episode packed with valuable insights and heartfelt stories from the front lines of nonprofit fundraising.Can we meet in Nashville? The 8th annual Raise fundraising conference, hosted by OneCause, will be held at the Country Music Hall of Fame & Museum in Nashville, TN September 9-10, 2024. Use code MISSIONS200 to receive $200 off: https://bit.ly/4bNqihi Let's Connect! Send a DM on Instagram or LinkedIn and let us know what you think of the show! Head to YouTube for digital marketing how-to videos and podcast teasers Want to book Dana as a speaker for your event? Click here!

Marc Price, famously known as "Skippy" from the beloved TV show Family Ties takes us on a journey through his illustrious career, sharing hilarious anecdotes from his time on Family Ties, his adventures in the world of stand-up comedy, and his roles in cult classics like "Killer Tomatoes Eat France" and "Trick or Treat" alongside legends like Ozzy Osbourne and Gene Simmons.     Highlights: Early Career and Family Ties: Marc's entry into show business through his father's influence. His journey to becoming a beloved character on Family Ties. Memorable moments from the set and working with Michael J. Fox. Cult Classics: Stories from the sets of "Killer Tomatoes Eat France" and "Trick or Treat." Marc's reflections on his co-stars and the films' lasting impact. Stand-Up Comedy: Marc's experiences on the road as a stand-up comedian. Insight into his comedy style and influences. Tales from his touring adventures and interactions with other comedians. Current Projects: Marc's efforts in raising money for the Michael J. Fox Foundation. His upcoming horror film "Witchy Ways," where he plays the antagonist. Reflections on the evolving entertainment industry and future aspirations. Personal Anecdotes: Hilarious and heartwarming stories about Marc's personal life and career. His unique perspective on the changes in Hollywood over the years. Marc's humorous take on life, fame, and his beloved pet dog, Casper.   You're going to love my conversation with Marc Price Facebook Website Merch IMDB Michaell J Fox Foundation   Follow Jeff Dwoskin (host): Jeff Dwoskin on Twitter The Jeff Dwoskin Show podcast on Twitter Podcast website Podcast on Instagram Join my mailing list Subscribe to my Youtube channel (watch Crossing the Streams!) Yes, the show used to be called Live from Detroit: The Jeff Dwoskin Show   Ways to support the show: Buy me a coffee (support the show) TeePublic Store: Classic Conversations merch and more! Love the books I talk about on the show? Here is my Amazon store to shop.  

  A Son's Journey From Parkinson's Disease Caregiver to Advocate Geoge talks about his mother memory and finding a cure for parkinson's Disease.   “One person CAN make a difference. One person CAN bring positive change". Hardcover at