Bodywhys - The Eating Disorders Association of Ireland
Bodywhys - The Eating Disorders Association of Ireland
In this episode, Jenny and Harriet are joined again by Livia Sara. This time they talk about the fear of weight gain for autistic people in eating disorder recovery. NotesHere are the links to Livia's podcasts mentioned in the episode. Part One Fear of Weight Gain in Autism and Anorexia[Part 1]Part Two Autism, Anorexia, and Fear of Gaining Weight[Part 2]Part Three Accepting Weight Gain in Anorexia Recovery (Asan Autistic Person)
In this episode, Jenny and Harriet talk through the third subtype of ARFID - fear of aversive consequences. Using real life examples, Jenny discusses the menu of Maudsley skills that can help carers supporting a person with this type of ARFID.NotesBodywhys websiteJenny's website
In this episode, Barry speaks with Dr Veya Seekis, Griffith University, about social media detox strategies, body image and well-being. NotesTo detox or not to detox? The impact of different approaches to social media detox strategies on body image and wellbeing - ScienceDirectGrowing skincare use by children is dangerous, say dermatologists
In this episode, Barry speaks with Cato Benschop, Utrecht University, about the life project account of eating disorders. NotesThe life project account of eating disorders: agency in the pursuit of dietary goalsCato's website
In this episode, Barry talks to Dr Madeleine Tatham, Norfolk Community Eating Disorders Service, about the impact of a podcast-based pre-treatment psychoeducation intervention. Dr Tatham also describes working with adults affected by eating disorders. NotesEnhancing assessment for eating disorders: the impact of a podcast-based pre-treatment psychoeducation interventionKeeping Safe Programme | CPFT NHS Trust
In this episode, Jenny and Harriet are joined by Livia Sara, a well-established autistic advocate, recovery coach and eating disorder (ED) survivor. Livia is passionate about supporting families to learn how to support their loved one to use their autistic and ADHD traits to their advantage in ED recovery through a combination of science and lived experience. Livia has created a vast treasure trove of books, videos and podcasts. In this episode, Livia tells us her story, how she has come to reframe her experience to help her discover who she is without her ED, and how recovery for Livia, is not about overcoming fear, but rather understanding that what we fear most, is precisely what we most want to do. NotesLiv Label Free | Neurodiversity-Affirming Eating Disorder Recovery
In this episode, Jenny and Harriet continue talking about binge eating, this time within the context of a person experiencing extreme hunger in recovery. They discuss hypermetabolism and coping with the difficulties this throws up for the person recovering and their carer.Notes:Bodywhys websiteJenny's websiteEating Disorder Recovery for Adults by Tabitha FarrarLivia Sara: Liv Label Free | Neurodiversity-Affirming Eating Disorder Recovery
In this episode, Barry speaks with Dr Andrea Goldschmidt, University of Pittsburgh School of Medicine, about FBT in the home.Adapting family-based treatment for adolescent anorexia nervosa delivered in the home: A novel approach for improving access to care and generalizability of skill acquisition | Journal of Eating Disorders
In this episode Jenny and Harriet explore binge eating within the context of adhd and autism. What drives binge eating behaviour? What carer skills can support a person struggling with binge eating? Kent New Maudsley website Bodywhys website
In this episode, Jenny and Harriet talk about the difficult situation of supporting a person (autistic or not) who is not ready to acknowledge they have a problem. They provide lots of suggestions for how to manage and approach this situation, and how as a supporter to not get totally exhausted when in this situation. Bodywhys website Jenny's website
In this episode, Barry speaks with Hanna Christian, Clinical Research Coordinator, University of Pennsylvania, about challenges with diagnostic crossover. Notes: “You're Just Looking at One Piece of the Puzzle… My Weight”: A Phenomenological Examination of Diagnostic Crossover in Eating Disorders
In this episode, Harriet and Jenny talk about supporting adults with ARFID. Bodywhys website https://www.bodywhys.ie/ Jenny's website. https://newmaudsleycarers-kent.co.uk/
In this episode, Barry speaks with Dr Ann Haynos about the challenges of getting eating disorders research published. Not niche: eating disorders as an example in the dangers of overspecialisation | The British Journal of Psychiatry | Cambridge Core
In this episode, Jenny and Harriet continue to discuss ARFID, this time in children. Harriet and Jenny talk about treatment, how the Maudsley skills can be used, and lots of resources and books that are helpful. ARFID Avoidant Restrictive Food Intake Disorder: A Guide for Parents and Carers - By Rachel Bryant-Waugh PEACE pathway: https://www.peacepathway.org/ Child and Adolescent PEACE pathway: https://peacepathwaybob.org/ FBT for ARFID CBT for ARFID Food Chaining: The Proven 6-Step Plan to Stop Picky Eating, Solve Feeding Problems, and Expand Your Child's Diet: By Cheri Fraker Food Refusal and Avoidant Eating in Children, including those with Autism Spectrum Conditions: A Practical Guide for Parents and Professionals: By Gillian Harris and Elizabeth Shea Jenny's ARFID/Autism capsule - Please email info@bodywhys.ie or jenny@newmaudsleycarers-kent.co.uk to request this Jenny's website (Expert ED dietitians): https://newmaudsleycarers-kent.co.uk/expert-eating-disorder-dietitians/ Jenny's website: https://newmaudsleycarers-kent.co.uk/ Bodywhys website: www.bodywhys.ie
In the first episode of our mini-series on ARFID, Jenny and Harriet outline what ARFID is and how the New Maudsley Carer Skills can be helpful when supporting a person with ARFID. Notes Jenny's website: https://newmaudsleycarers-kent.co.uk/ Bodywhys website: www.bodywhys.ie
In this episode, Barry speaks with Hannah Kuhn about her personal experience of an eating disorder. Notes: Hannah's thesis: "Pretty Girls Don't Eat Pizza: How an Eating Disorder Taught Me I Am En" by Hannah Kuhn (liberty.edu)
In this episode, Jenny talks Harriet through the adaptations to the ALVS (Attend, Label, Validate, Soothe) technique when supporting an autistic person with an eating disorder. Using examples from carers Jenny has worked with, she explains the technique and how adaptations can be really helpful to establish connection with the person with an eating disorder. Notes: Jenny's website: https://newmaudsleycarers-kent.co.uk/ Bodywhys website: www.bodywhys.ie
In this episode, Barry speaks with Dr. Bryony Davies, University of Plymouth, about microinterventions for body image. Notes: It helps to be funny or compassionate: An exploration of user experiences and evaluation of social media micro-intervention designs for protecting body image - ScienceDirect
In this episode, Jenny and Harriet continue to explore adaptations of the New Maudsley Carer Skills when supporting an autistic / neurodivergent person with an eating disorder. Learn how we can adapt OARS (Open questions, Affirmations, Reflective listening and Summarising), the communication skills at the heart of the Maudsley model. Notes Jenny's website: https://newmaudsleycarers-kent.co.uk/ Bodywhys website: www.bodywhys.ie
In this episode, Jenny introduces Harriet to the purple balloon. The episode begins with a recap of the red and blue balloon and then Jenny describes, using lots of examples, how the purple balloon can help us support autistic / neurodivergent people with an eating disorder. Notes: Jenny's website: https://newmaudsleycarers-kent.co.uk/ Bodywhys website: www.bodywhys.ie
In this episode, Jenny and Harriet outline the adaptations and developments of the New Maudsley Carer Skills model when applied to supporting an autistic or neurodivergent person with an eating disorder. Notes: PEACE Pathway: https://www.peacepathway.org/ PEACE BOB: https://peacepathwaybob.org/autism-and-eating-disorders/ Jenny's website: https://newmaudsleycarers-kent.co.uk/ Bodywhys website: www.bodywhys.ie
Harriet and Jenny are back with a new season of the New Maudsley Carer Skills (NMCS) podcast series. In this episode, they discuss what they've been up to and what they plan to talk about in the upcoming season. Find out more: Jenny's website: https://newmaudsleycarers-kent.co.uk Bodywhys website: www.bodywhys.ie
In this episode, Barry Murphy, Research and Policy Officer at Bodywhys speaks with Emily Colton, Monash University, about neurocognitive factors and binge eating. Notes: Dysfunctional decision-making in binge-eating disorder: A meta-analysis and systematic review - ScienceDirect New Research: Revealing the True Duration of Binge-Eating Disorder (psychiatrictimes.com)
In this episode, Barry Murphy, Research and Policy Officer at Bodywhys speaks with Dr Gemma Sharp, Monash University, about artificial intelligence and ethics in relation to eating disorders. Notes Journal of Medical Internet Research - Ethical Challenges in AI Approaches to Eating Disorders (jmir.org) CoRe-ED
In support of Pride Month 2024, Barry Murphy, Research and Policy Officer at Bodywhys speaks with Dr Philip Joy, Mount Saint Vincent University, about compassion, recovery and LGBTQ experiences. Notes Wicked Bodies “It's beautiful and it's messy and it's tragic”: exploring the role of compassion in the eating disorder recovery processes of 2S/LGBTQ + Canadians | Journal of Eating Disorders New research report highlights stark deterioration in mental health of LGBTQI+ people since 2016 - Belong To - LGBTQ+ Youth Ireland
In this episode, Barry Murphy, Research and Policy Officer at Bodywhys speaks with Dr Amanda Raffoul, University of Toronto, about auditing social media algorithms. Notes: Social Media Algorithm Auditing | STRIPED | Harvard T.H. Chan School of Public Health
In this episode, Barry Murphy, Research and Policy Officer at Bodywhys speaks with Dr. Jennifer Hamer about sports coaches & relative energy deficiency in sport (REDS). Notes: A review exploring coach knowledge, attitudes/beliefs and behaviours towards low energy availability in athletes - Jennifer Hamer, Ben Desbrow, Chris Irwin, 2023 (sagepub.com) Are Coaches of Female Athletes Informed of Relative Energy Deficiency in Sport? A Scoping Review in: Women in Sport and Physical Activity Journal Volume 29 Issue 1 (2021) (humankinetics.com) 2023 International Olympic Committee's (IOC) consensus statement on Relative Energy Deficiency in Sport (REDs) | British Journal of Sports Medicine (bmj.com)
In this episode, Barry Murphy, Research and Policy Officer at Bodywhys, speaks with Cat Papastavrou Brooks (Sussex Partnership NHS Foundation Trust) & Dave Chawner (Lived Experience) about co-producing principles to guide health research. Notes: Co-producing principles to guide health research: an illustrative case study from an eating disorder research clinic - PMC (nih.gov)
In this episode, Barry Murphy, Research and Policy Officer at Bodywhys, speaks with Dr Blair Burnette of Michigan State University about the ignored role of disadvantage in eating disorders. Notes The ignored role of disadvantage in eating disorders: Trends in Molecular Medicine (cell.com) A systematic review of sociodemographic reporting and representation in eating disorder psychotherapy treatment trials in the United States - Burnette - 2022 - International Journal of Eating Disorders
This webinar was recorded as part of Eating Disorders Awareness Week 2024. Our thanks to Emmy, Johnny, Laura, Chris and Bláithín for sharing their experiences. See the YouTube video here: https://www.youtube.com/watch?v=qGtEMErXEic
In this episode, Barry Murphy, our Research and Policy Officer speaks with Dr Jennifer Harriger, Pepperdine University, about social media and body image. Notes: TikTok, TikTok, the time is now: Future directions in social media and body image - ScienceDirect Research for CULT Committee - The influence of social media on the development of children and young people | Think Tank | European Parliament (europa.eu)
In this episode, Barry, our Research and Policy Officer speaks with Akansha Naraindas (UCD) about interoceptive sensibility and body image. Body image disturbance, interoceptive sensibility and the body schema across female adulthood: a pre-registered study
In this episode, Harriet speaks with Michelle Kickham about living with a severe and enduring, or long standing eating disorder (SEED/L-ED).
In this episode we speak with Michelle Mc Carthy, Bodywhys Media Panel member and volunteer, about her experience with an eating disorder during Christmas and New Years. Notes: Find our 'Coping with Christmas' resources here: https://www.bodywhys.ie/free-coping-at-christmas-resources/
In this podcast we share a our 2023 'Coping with Christmas' webinar with Harriet Parsons, Psychotherapist and Training & Development Manager with Bodywhys. Notes: Find our 'Coping with Christmas' resources here: https://www.bodywhys.ie/free-coping-at-christmas-resources/ Bodywhys website: www.bodywhys.ie
In this episode, Barry Murphy, our Research and Policy Officer, speaks with Dr Lisa Anderson and Dr Erich Kummerfeld, of University of Minnesota, about causal discovery analysis & precision medicine. Notes Causal discovery analysis: A promising tool in advancing precision medicine for eating disorders - Anderson - 2023 - International Journal of Eating Disorders Applying Causal Discovery to Intensive Longitudinal Data - PMC (nih.gov)
In this episode, Barry Murphy, our Research and Policy Officer, speaks with Dr Karina Allen, South London and Maudsley NHS Foundation Trust, about conceptualising early intervention for eating disorders. Notes A framework for conceptualising early intervention for eating disorders - European Eating Disorders Review First Episode Rapid Early Intervention for Eating Disorders | FREED (freedfromed.co.uk)
In this episode, Barry Murphy, our Research and Policy Officer, speaks with Catherine Armour of Dalhousie University (Nova Scotia, Canada) about improving the adult inpatient experience. Notes Improving Adult Inpatient Eating Disorder Treatment: Perspectives of Canadians with Lived Experience (dal.ca) Wicked Bodies Adult hospital admissions for eating disorders at highest level in a decade – The Irish Times
In this episode, Barry Murphy, our Research and Policy Officer, speaks with Therese Kenny of the University of Guelph about an ecological framework for recovery. We share this episode as part of World Mental Health Day 2023 #WMHD23 Notes More than an outcome: a person-centered, ecological framework for eating disorder recovery | Journal of Eating Disorders
In this episode, Barry Murphy, our Research and Policy Officer, speaks with Laura Kiely of Western Sydney University about the conceptualisation of longstanding anorexia nervosa. Notes Laura's Website: https://www.seeinganorexia.com/ Conceptualisation of severe and enduring anorexia nervosa: a qualitative meta-synthesis | BMC Psychiatry Listening in the dark: why we need stories of people living with severe and enduring anorexia nervosa | Journal of Eating Disorders Lived experience perspectives on labeling and defining long-standing anorexia nervosa | Journal of Eating Disorders
Gillian Todd worked with Prof Janet Treasure on the Adult eating disorder ward at the Maudsley Hospital in London for 17 years. During this time, the New Maudsley Carer Skills was developed. In this episode Jenny and Harriet discuss the development of the Maudsley Carer Skills with Gill, as well as thinking through how to support adults with EDs, and what recovery, or ‘discovery' can look like for people with a severe and enduring eating disorder. With stories of recovery, this episode is enlightening and interesting for all carers of people with eating disorders. You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk Bodywhys website: www.bodywhys.ie
In this episode, Barry Murphy, our Research and Policy Officer, speaks with Dr Andrea LaMarre & Dr Kathryn McGuigan of Massey University about families experiences with avoidant restrictive food intake disorder (ARFID). Notes Listening, learning, caring: exploring assemblages of, ethics of and pathways to care for avoidant restrictive food intake disorder (ARFID) | Medical Humanities (bmj.com)
This time of year is dominated for many by 'Back to school'. It can be a challenging time for anyone and especially for a person with an eating disorder and their family. In this episode, Jenny and Harriet discuss many scenarios of going back to school and which New Maudsley skills are helpful to use over the next couple of weeks. Notes: Click here to download Jenny's Back to School capsule
In this episode, Barry Murphy, our Research and Policy Officer, speaks with Dr Ella Guest of the Centre for Appearance Research (CAR) about body image interventions. Notes The effectiveness of interventions aiming to promote positive body image in adults: A systematic review A systematic review of interventions aiming to promote positive body image in children and adolescents Centre for Appearance Research (CAR) - Research centres and groups | UWE Bristol
In this episode, Harriet and Jenny think about preparing for college/university. Whether the person living with an eating disorder will be staying at home or moving away, this huge change in a person's life can bring up unique challenges and new responsibilities. This episode explores these challenges, from different perspectives, and thinks through ways to support someone during this transition. You can find Jenny's website here. Bodywhys support: Bodywhys website Bodywhys: Online student support group (19+) Bodywhys: Body image at third level Resources mentioned: FREED resources Jenny's capsules
In this episode, Barry Murphy, our Research and Policy Officer, speaks with Phaedra Longhurst of Anglia Ruskin University about autism and body image. Show notes: Body image and autism: A scoping review - ScienceDirect “We Have to Try to Find a Way, a Clinical Bridge” - autistic adults' experience of accessing and receiving support for mental health difficulties: A systematic review and thematic meta-synthesis “For Me, the Anorexia is Just a Symptom, and the Cause is the Autism”: Investigating Restrictive Eating Disorders in Autistic Women Self & Body Lab Please note - a small section of this episode contains minor audio inconsistencies. We apologise for any inconvenience.
In this episode, Harriet and Jenny think about preparing for summer holidays. Summer can often be a difficult time for someone living with an eating disorder. The change from a set routine to ‘free time' stretching out ahead can bring lots of panic and anxiety. This episode thinks through how the New Maudsley carer Skills, and ideas around planning can make this time less difficult. You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk Bodywhys website: www.bodywhys.ie Resources mentioned: Preparing for the holidays when your loved one has an eating disorder: New Maudsley Capsule
In this episode, Barry Murphy, our Research and Policy Officer speaks with Dr Jessica Alleva of Maastricht University about body functionality, positive body image and well-being. Notes Body functionality: A review of the literature - ScienceDirect PaRx: A Prescription for Nature (parkprescriptions.ca)
Autism and Eating Disorders – thinking about how the New Maudsley Carer Skills can help. More and more we are hearing from families who have a loved one with an eating disorder and a diagnosis of autism. When supporting an autistic person with an eating disorder we have to take account of this added layer of difficulty often due to the three areas where both cross over – high levels of anxiety, rigidity and emotional dysregulation. In this episode, Jenny and Harriet talk through how carers can use the New Maudsley Carer Skills to improve the support they provide. You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk Bodywhys website: www.bodywhys.ie Resources mentioned: ARFID Avoidant Restrictive Food Intake Disorder: A Guide for Parents and Carers by Rachel Bryant-Waugh Applying family-based treatment (FBT) to three clinical presentations of avoidant/restrictive food intake disorder: Similarities and differences from FBT for anorexia nervosa: https://www.anzaed.org.au/wp-content/uploads/2021/04/FBT-for-ARFID.pdf Supporting Autistic People with Eating Disorders: A Guide to Adapting Treatment and Supporting Recovery by Kate Tchanturia PEACE Pathway: https://www.peacepathway.org/ Irish Society for Autism: https://autism.ie/ Please note: Harriet mistakenly refers to this episode as episode 23. This will be corrected going forward.
In this episode, Barry Murphy, our Research and Policy Officer, speaks with Akansha Mahesh Naraindas (University College Dublin) & Dr Rachel Rodgers (Northeastern University) about body image from a global perspective. Notes: Body image as a global mental health concern | Cambridge Prisms: Global Mental Health | Cambridge Core Perfectionism Is Increasing Over Time (apa.org)
In this episode, our Research and Policy Officer, Barry speaks with Dr Vanessa Yim, Clinical Psychologist, Oxford NHS Trust about adult patients' experiences of clinical team meetings (ward rounds). Patients' experiences of clinical team meetings (ward rounds) at an adult in-patient eating disorders ward: mixed-method service improvement project | BJPsych Bulletin | Cambridge Core Supplementary material: https://static.cambridge.org/content/id/urn:cambridge.org:id:article:S2056469423000141/resource/name/S2056469423000141sup001.docx
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