POPULARITY
124 episodes with linda bluestein
64 episodes with linda bluestein
8 episodes with linda bluestein
3 episodes with linda bluestein
2 episodes with linda bluestein
2 episodes with linda bluestein
You asked. I answered. In this solo Q&A, I tackle some of the biggest and most misunderstood questions from our Bendy Bodies community. From toddlers flagged for autism to adults fighting for an EDS diagnosis, from altitude flares to functional neurologic disorder, this episode pulls no punches. I talk low-dose naltrexone (LDN), altitude hacks, medication struggles, and the quiet panic of a diagnosis that suddenly shifts under you. Plus, we look ahead to the 2026 hEDS (hypermobile Ehlers-Danlos Syndrome) classification changes and the stigma that still haunts hypermobile bodies. Whether you're a patient, a provider, or somewhere in between—you'll hear something in this episode that makes you feel seen. Takeaways: How the diagnosis of functional neurologic disorder (FND) is often misused—and what that means for bendy patients. What one family doctor learned when her toddler was flagged for autism... and EDS. The truth about low-dose naltrexone—and why it's not a quick fix. Why a change in your diagnosis doesn't change your reality. A life-saving strategy for traveling to high altitudes with EDS or POTS. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices
You asked. I answered. In this solo Q&A, I tackle some of the biggest and most misunderstood questions from our Bendy Bodies community. From toddlers flagged for autism to adults fighting for an EDS diagnosis, from altitude flares to functional neurologic disorder, this episode pulls no punches. I talk low-dose naltrexone (LDN), altitude hacks, medication struggles, and the quiet panic of a diagnosis that suddenly shifts under you. Plus, we look ahead to the 2026 hEDS (hypermobile Ehlers-Danlos Syndrome) classification changes and the stigma that still haunts hypermobile bodies. Whether you're a patient, a provider, or somewhere in between—you'll hear something in this episode that makes you feel seen. Takeaways: How the diagnosis of functional neurologic disorder (FND) is often misused—and what that means for bendy patients. What one family doctor learned when her toddler was flagged for autism... and EDS. The truth about low-dose naltrexone—and why it's not a quick fix. Why a change in your diagnosis doesn't change your reality. A life-saving strategy for traveling to high altitudes with EDS or POTS. Find the episode transcript here. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices
What if your breast implants were silently fueling your fatigue, anxiety, rashes, or brain fog—and no one believed you? In this powerful episode, Dr. Linda Bluestein speaks with renowned breast surgeon Dr. Eva Nagy who's become a global voice for patients suffering from Breast Implant Illness (BII). Together, they uncover the overlooked signs of mast cell activation, connective tissue involvement, immune dysregulation, and the invisible damage that can linger—even when scans look normal. Dr. Nagy breaks down the myths about “safe” implants, explains how BII can show up years—or hours—after surgery, and why removal must be done in a very specific way to truly heal. This episode exposes the real science behind BII, the staggering rate of gaslighting, and why so many hypermobile and chronically ill women are caught in this hidden epidemic. Takeaways: Her rash showed up the day she woke from surgery—what came next was worse. Silicone can migrate to your brain, lymph nodes… even your spinal cord. “Just anxiety”? One surgeon says no—and she has the pathology to prove it. A capsule left behind might mean years of symptoms—and one more surgery. When should breast implants be removed - even if there doesn't seem to be a problem Find the episode transcript here. Explant System Review Questionnaire Want more Dr. Eva Nagy? Facebook: https://www.facebook.com/profile.php?id=100067473308969 Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices
What if your breast implants were silently fueling your fatigue, anxiety, rashes, or brain fog—and no one believed you? In this powerful episode, Dr. Linda Bluestein speaks with renowned breast surgeon Dr. Eva Nagy who's become a global voice for patients suffering from Breast Implant Illness (BII). Together, they uncover the overlooked signs of mast cell activation, connective tissue involvement, immune dysregulation, and the invisible damage that can linger—even when scans look normal. Dr. Nagy breaks down the myths about “safe” implants, explains how BII can show up years—or hours—after surgery, and why removal must be done in a very specific way to truly heal. This episode exposes the real science behind BII, the staggering rate of gaslighting, and why so many hypermobile and chronically ill women are caught in this hidden epidemic. Takeaways: Her rash showed up the day she woke from surgery—what came next was worse. Silicone can migrate to your brain, lymph nodes… even your spinal cord. “Just anxiety”? One surgeon says no—and she has the pathology to prove it. A capsule left behind might mean years of symptoms—and one more surgery. When should breast implants be removed - even if there doesn't seem to be a problem Find the episode transcript here. Explant System Review Questionnaire Want more Dr. Eva Nagy? Facebook: https://www.facebook.com/profile.php?id=100067473308969 Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices
What if the pain you've been told to ignore… was actually coming from your hips, your spine—or your immune system? In this deep-dive episode, Dr. Linda Bluestein is joined by Dr. Andrew Goldstein, an expert in sexual pain disorders, to unravel the misunderstood causes of vulvar and pelvic pain in people with EDS (Ehlers-Danlos Syndrome), MCAS (Mast Cell Activation Syndrome) , and POTS (Postural Orthostatic Tachycardia Syndrome). Dr. Goldstein reveals why the traditional diagnosis of “vulvodynia” might be missing the real problem, and how factors like labral tears, pudendal nerve compression, Tarlov cysts, pelvic organ prolapse, endometriosis, nerve proliferation, and mast cell disorders can all converge into debilitating pain—and be completely overlooked. He explains why pelvic floor physical therapy sometimes fails, when Botox is a game-changer, and how stigma and misinformation continue to prevent EDS patients from receiving proper care. If you've ever been told "it's all in your head"—this episode proves it's not. And it might be the roadmap you've been searching for. Takeaways: You might not feel hip pain at all—but your clitoris, rectum, or vulva will. A cyst that's left off your MRI report could be ruining your life. That pain during intimacy? It could be nerve sprouting—and it's not your fault. When physical therapy fails, it may not be the therapy's fault. He's performed 1,300+ surgeries. Here's how he decides if you really need one. Reference Links: Ep 130 with Dr. Goldstein: https://youtu.be/csiK_Zmb_hk Ep 116 with Dr. Feigenbaum: https://youtu.be/Uq4OrVa6deM https://www.gyncancer.org/ https://www.amazon.com/shop/hypermobilitymd/list/2LQLPARJY3CDS?ref_=aipsflist https://pubmed.ncbi.nlm.nih.gov/23875629/ https://pubmed.ncbi.nlm.nih.gov/23577645/ https://www.isswsh.org/ Want more Dr. Andrew Goldstein? Instagram: https://www.instagram.com/the.cvvd/ Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices
What if the pain you've been told to ignore… was actually coming from your hips, your spine—or your immune system? In this deep-dive episode, Dr. Linda Bluestein is joined by Dr. Andrew Goldstein, an expert in sexual pain disorders, to unravel the misunderstood causes of vulvar and pelvic pain in people with EDS (Ehlers-Danlos Syndrome), MCAS (Mast Cell Activation Syndrome) , and POTS (Postural Orthostatic Tachycardia Syndrome). Dr. Goldstein reveals why the traditional diagnosis of “vulvodynia” might be missing the real problem, and how factors like labral tears, pudendal nerve compression, Tarlov cysts, pelvic organ prolapse, endometriosis, nerve proliferation, and mast cell disorders can all converge into debilitating pain—and be completely overlooked. He explains why pelvic floor physical therapy sometimes fails, when Botox is a game-changer, and how stigma and misinformation continue to prevent EDS patients from receiving proper care. If you've ever been told "it's all in your head"—this episode proves it's not. And it might be the roadmap you've been searching for. Takeaways: You might not feel hip pain at all—but your clitoris, rectum, or vulva will. A cyst that's left off your MRI report could be ruining your life. That pain during intimacy? It could be nerve sprouting—and it's not your fault. When physical therapy fails, it may not be the therapy's fault. He's performed 1,300+ surgeries. Here's how he decides if you really need one. Reference Links: Ep 130 with Dr. Goldstein: https://youtu.be/csiK_Zmb_hk Ep 116 with Dr. Feigenbaum: https://youtu.be/Uq4OrVa6deM https://www.gyncancer.org/ https://www.amazon.com/shop/hypermobilitymd/list/2LQLPARJY3CDS?ref_=aipsflist https://pubmed.ncbi.nlm.nih.gov/23875629/ https://pubmed.ncbi.nlm.nih.gov/23577645/ https://www.isswsh.org/ Want more Dr. Andrew Goldstein? Instagram: https://www.instagram.com/the.cvvd/ Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices
What if your rushed, robotic medical visit isn't just frustrating, but a symptom of something much darker? In this powerful episode, Dr. Linda Bluestein sits down with Dr. Victor Montori, author of Why We Revolt, to explore what's truly broken in healthcare and why patients and clinicians are suffering on the same side of the fight. Together, they uncover the corrosive impact of industrialized, fast medicine, the hidden costs of “heroic” care, and how complex patients are forced to carry impossible burdens in a system that sees them as data points, not people. Dr. Montori shares his vision for a Patient Revolution, explains why the soul of healthcare is under siege, and issues a call to action for anyone who's ever felt like just another number. If you've sensed something is deeply wrong in the exam room… you're not imagining it. Takeaways: What if your provider is hurting just as much as you are—but for different reasons? When care vanishes, both the patient and the doctor suffer. The healthcare system wants faster visits. Dr. Montori wants a revolution. Heroic care comes at a cost—and not just for the clinician. You're not imagining the harm. But you're not powerless either. Reference Links: https://www.patientrevolution.org/ https://pmc.ncbi.nlm.nih.gov/articles/PMC11902612/ Want more Dr. Victor Montori? Dr. Montori's book: Bendy Bodies Amazon Booklist Bluesky: @vmontori@bsky.social Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links.
What if your rushed, robotic medical visit isn't just frustrating, but a symptom of something much darker? In this powerful episode, Dr. Linda Bluestein sits down with Dr. Victor Montori, author of Why We Revolt, to explore what's truly broken in healthcare and why patients and clinicians are suffering on the same side of the fight. Together, they uncover the corrosive impact of industrialized, fast medicine, the hidden costs of “heroic” care, and how complex patients are forced to carry impossible burdens in a system that sees them as data points, not people. Dr. Montori shares his vision for a Patient Revolution, explains why the soul of healthcare is under siege, and issues a call to action for anyone who's ever felt like just another number. If you've sensed something is deeply wrong in the exam room… you're not imagining it. Takeaways: What if your provider is hurting just as much as you are—but for different reasons? When care vanishes, both the patient and the doctor suffer. The healthcare system wants faster visits. Dr. Montori wants a revolution. Heroic care comes at a cost—and not just for the clinician. You're not imagining the harm. But you're not powerless either. Reference Links: https://www.patientrevolution.org/ https://pmc.ncbi.nlm.nih.gov/articles/PMC11902612/ Want more Dr. Victor Montori? Dr. Montori's book: Bendy Bodies Amazon Booklist Bluesky: @vmontori@bsky.social Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices
What if your symptoms weren't isolated… but signals in a much larger system breakdown? In this wide-ranging solo Q&A, Dr. Linda Bluestein uncovers the hidden threads connecting uncontrolled pain before surgery, unexplained eye issues, MCAS, multiple chemical sensitivity, Alpha-gal syndrome, and even autism risk. From the scar tissue no one warned you about to the medication that works—but doctors won't prescribe—it's all here. Dr. Bluestein shares eye-opening research on TILT (Toxicant-Induced Loss of Tolerance), fragrance-triggered flares, and why standard pre-op care fails patients with connective tissue disorders. And woven throughout it all? The heavy, frustrating stigma that people with Ehlers-Danlos syndromes and hypermobility spectrum disorders know too well—being dismissed, doubted, and disbelieved. This episode doesn't just give answers. It reveals what questions you should have been asking all along. Takeaways: This one over-the-counter product might be behind your chronic eye issues—and no one's talking about it. Considerations and cautions for taking cromolyn A “safe” eye ointment led to lasting damage—here's why. Doctors say no to pain meds before surgery… but do they know the full risk? A tick bite and subsequent food allergy changes everything—even your shampoo. Find the episode transcript here. Reference Links: EP 140 with Dr. Brayden P. Yellman: https://youtu.be/mMMM7gmyrbk EP 127 with Dr. Emily Bohan: https://youtu.be/9ngUY9VPRcc EP 125 with Dr. Satish Raj: https://youtu.be/2WuDkH1TDns EP 120 with Wendy Wagner: https://youtu.be/YeRfTiGkDuA EP 109 with Dr. Tina Wang: https://youtu.be/w6iGZzRa-Q0 EP 108 with Katie and Andrew Dettelbach: https://youtu.be/hu907Z4Ldk4 EP 92 with Dr. Lillian Holm: https://youtu.be/QR9PZoA2ku0 EP 83 with Jill Miller: https://youtu.be/e86nO9PlKfQ EP 81 with Lisa Ralston: https://youtu.be/PKMcEUGcDWY EP 75 with Dr. Patty Stott: https://youtu.be/C5cATkq1a_k Check out Refresh Celluvisc Eye Gel, OcuSoft Lid Scrub and the book, Holistic Pain Relief as well as her other favorites at Dr. Bluestein's Amazon Store https://amzn.to/3RAjueJ https://www.amazon.com/shop/hypermobilitymd Toxicant Induced Loss of Tolerance (TILT) Tests https://tiltresearch.org/self-assessment/ TILT Resources https://tiltresearch.org/resources/ Assessing Chemical Intolerance in Parents Predicts the Risk of Autism and ADHD in Their Children - PubMed Food Compatibility List https://www.twoalphagals.com/ https://www.veganmed.org/ YouTube Playlist on Moving with EDS and HSD https://youtube.com/playlist?list=PLX9StmpQKW30miVUD3DHWXjLq_Vs2VKrF&si=qU66cuujtCG_PH1f Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links.
What if your symptoms weren't isolated… but signals in a much larger system breakdown? In this wide-ranging solo Q&A, Dr. Linda Bluestein uncovers the hidden threads connecting uncontrolled pain before surgery, unexplained eye issues, MCAS, multiple chemical sensitivity, Alpha-gal syndrome, and even autism risk. From the scar tissue no one warned you about to the medication that works—but doctors won't prescribe—it's all here. Dr. Bluestein shares eye-opening research on TILT (Toxicant-Induced Loss of Tolerance), fragrance-triggered flares, and why standard pre-op care fails patients with connective tissue disorders. And woven throughout it all? The heavy, frustrating stigma that people with Ehlers-Danlos syndromes and hypermobility spectrum disorders know too well—being dismissed, doubted, and disbelieved. This episode doesn't just give answers. It reveals what questions you should have been asking all along. Takeaways: This one over-the-counter product might be behind your chronic eye issues—and no one's talking about it. Considerations and cautions for taking cromolyn A “safe” eye ointment led to lasting damage—here's why. Doctors say no to pain meds before surgery… but do they know the full risk? A tick bite and subsequent food allergy changes everything—even your shampoo. Find the episode transcript here. Reference Links: EP 140 with Dr. Brayden P. Yellman: https://youtu.be/mMMM7gmyrbk EP 127 with Dr. Emily Bohan: https://youtu.be/9ngUY9VPRcc EP 125 with Dr. Satish Raj: https://youtu.be/2WuDkH1TDns EP 120 with Wendy Wagner: https://youtu.be/YeRfTiGkDuA EP 109 with Dr. Tina Wang: https://youtu.be/w6iGZzRa-Q0 EP 108 with Katie and Andrew Dettelbach: https://youtu.be/hu907Z4Ldk4 EP 92 with Dr. Lillian Holm: https://youtu.be/QR9PZoA2ku0 EP 83 with Jill Miller: https://youtu.be/e86nO9PlKfQ EP 81 with Lisa Ralston: https://youtu.be/PKMcEUGcDWY EP 75 with Dr. Patty Stott: https://youtu.be/C5cATkq1a_k Check out Refresh Celluvisc Eye Gel, OcuSoft Lid Scrub and the book, Holistic Pain Relief as well as her other favorites at Dr. Bluestein's Amazon Store https://amzn.to/3RAjueJ https://www.amazon.com/shop/hypermobilitymd Toxicant Induced Loss of Tolerance (TILT) Tests https://tiltresearch.org/self-assessment/ TILT Resources https://tiltresearch.org/resources/ Assessing Chemical Intolerance in Parents Predicts the Risk of Autism and ADHD in Their Children - PubMed Food Compatibility List https://www.twoalphagals.com/ https://www.veganmed.org/ YouTube Playlist on Moving with EDS and HSD https://youtube.com/playlist?list=PLX9StmpQKW30miVUD3DHWXjLq_Vs2VKrF&si=qU66cuujtCG_PH1f Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices
Dr. Linda Bluestein is a board-certified anesthesiologist, integrative pain medicine physician and former ballet dancer who specialises in coaching and educating dancers and other athletes and individuals at increased risk of hypermobility disorders.Dr Linda's own experience with h-EDS eventually led her down a career path change that has seen her help countless others to live well with hypermobility and avoid chronic pain development. She is widely published, considered an expert on hypermobility disorders, and has lectured internationally.In this episode, Dr Linda and I sit down to discuss the link between Hypermobility spectrum disorders, hypermobile-Ehler's Danlos syndrome, mast cell activation syndrome and endometriosis.Here's what we cover:What we mean by generalised hypermobility, hypermobility spectrum disorders and hypermobility-EDS, and how they differ.What are the signs and symptoms of these conditions. The link between h-EDS and menstrual disorders, bladder dysfunction and pelvic pain and Dr Linda's approach to addressing these problems.What mast cell activation syndrome is, how it is associated with hypermobility and EDS, and how it may be a driver behind EDS and endometriosis.The link between SIBO and h-EDS and connective tissue disorders.Dr. Linda's key strategies for managing symptomatic hypermobility and h-EDS.Show NotesDr Linda's websiteBendy Bodies podcastDr Linda's InstagramNeed more help or want to learn how to work with me?Free resources:This podcast! Endometriosis Net ColumnEndometriosis News ColumnNewsletterInstagramWays to work with me:This EndoLife, It Starts with Breakfast digital cookbookMasterclasses in endo nutrition, surgery prep and recovery and pain reliefLive and Thrive with Endo: The Foundations DIY courseOne to one coaching info and applicationThis episode is sponsored by BeYou Cramp Relief Patches. Soothe period cramps the natural way with these 100% natural and discreet menthol and eucalyptus oil stick on patches. Click here to find out more and to shop: https://beyouonline.co.uk/pages/how-it-worksProduced by Chris Robson
What if the diagnosis was just the beginning—and the root cause was hiding in plain sight? In this riveting episode, Dr. Linda Bluestein welcomes pediatrician and integrative medicine expert Dr. Pejman Katiraei, whose work with children struggling with autism, mold exposure, and mast cell activation reveals a shocking truth: many kids aren't just neurodivergent—they have neuroinflammation. Together, they peel back the layers on what's really driving autistic behaviors, why some children can't tolerate food, noise, or even hugs—and how mast cells and histamine might be behind it all. Dr. Katiraei shares remarkable stories of transformation, explains why traditional testing often fails, and reveals a controversial treatment that's changing lives. If your child is sensitive, reactive, or struggling to connect—and you've been told it's just "behavioral"—this conversation might rewrite what you thought was possible. Takeaways: One child's refusal to eat broccoli held more answers than anyone expected. Could colic be the first warning sign of central inflammation? He couldn't feel love—until one unlikely medication changed everything. A house tested clean… but the child kept getting worse. Why? Some diagnoses miss what's burning beneath the surface. Find the episode transcript here. Reference Links: https://pubmed.ncbi.nlm.nih.gov/18626069/ https://www.sciencedirect.com/science/article/abs/pii/S0941950014001936The Dust Testhttps://www.thedusttest.com/https://www.mayoclinic.org/drugs-supplements/itraconazole-oral-route/description/drg-20071421 https://www.sciencedirect.com/science/article/abs/pii/S0149291813001823 https://pmc.ncbi.nlm.nih.gov/articles/PMC10932299/ Watch Ep 32 with Dr. Jessica Eccles: https://youtu.be/BmIFATctyzk Watch Ep 47 with Dr. Jessica Eccles: https://youtu.be/nhsLDzLpUWE Watch Ep 139 with Dr. Theoharides: https://youtu.be/u1pxvAzXh7M Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! https://wholistickids.com/ https://www.wholisticminds.com/ https://pkatiraei.substack.com https://www.youtube.com/@pkatiraei https://www.instagram.com/wholistickids?igsh=MXNyd3I3NTc0aGIydw== Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Connect with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast Facebook: X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network
What if the diagnosis was just the beginning—and the root cause was hiding in plain sight? In this riveting episode, Dr. Linda Bluestein welcomes pediatrician and integrative medicine expert Dr. Pejman Katiraei, whose work with children struggling with autism, mold exposure, and mast cell activation reveals a shocking truth: many kids aren't just neurodivergent—they have neuroinflammation. Together, they peel back the layers on what's really driving autistic behaviors, why some children can't tolerate food, noise, or even hugs—and how mast cells and histamine might be behind it all. Dr. Katiraei shares remarkable stories of transformation, explains why traditional testing often fails, and reveals a controversial treatment that's changing lives. If your child is sensitive, reactive, or struggling to connect—and you've been told it's just "behavioral"—this conversation might rewrite what you thought was possible. Takeaways: One child's refusal to eat broccoli held more answers than anyone expected. Could colic be the first warning sign of central inflammation? He couldn't feel love—until one unlikely medication changed everything. A house tested clean… but the child kept getting worse. Why? Some diagnoses miss what's burning beneath the surface. Find the episode transcript here. Reference Links: https://pubmed.ncbi.nlm.nih.gov/18626069/ https://www.sciencedirect.com/science/article/abs/pii/S0941950014001936The Dust Testhttps://www.thedusttest.com/https://www.mayoclinic.org/drugs-supplements/itraconazole-oral-route/description/drg-20071421 https://www.sciencedirect.com/science/article/abs/pii/S0149291813001823 https://pmc.ncbi.nlm.nih.gov/articles/PMC10932299/ Watch Ep 32 with Dr. Jessica Eccles: https://youtu.be/BmIFATctyzk Watch Ep 47 with Dr. Jessica Eccles: https://youtu.be/nhsLDzLpUWE Watch Ep 139 with Dr. Theoharides: https://youtu.be/u1pxvAzXh7M Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! https://wholistickids.com/ https://www.wholisticminds.com/ https://pkatiraei.substack.com https://www.youtube.com/@pkatiraei https://www.instagram.com/wholistickids?igsh=MXNyd3I3NTc0aGIydw== Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Connect with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast Facebook: X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
What if your body's collapse wasn't burnout… but a system crash no test can catch? In this episode, Dr. Linda Bluestein welcomes Isabelle Ramirez Burnett, systems engineer, health coach, and founder of Renegade Research, to reveal the silent breakdowns behind ME/CFS, long COVID, and hypermobility-related illness. Diagnosed with ME/CFS at just 7 years old, Isabelle pulls back the curtain on decades of missed diagnoses, medical dismissal, and her discovery of a community willing to do what the healthcare system couldn't—build their own science. You'll hear about the remission that stunned researchers, the controversial meds that gave her life back, and the protocols patients are building from the ground up. If you've ever wondered why your body feels like it's working against you—or what recovery might actually look like—this episode may change everything. Takeaways: She couldn't stand in front of the fridge—until a “taboo” medication changed everything. The labs were normal. Her body was screaming. A grandmother, a diagnosis, and an unstoppable fight for answers. What if your symptoms don't show up on any scan… but still hold the truth? The protocol that sparked a remission—and a global movement. Find the episode transcript here. Reference Links: RemissionBiome w/Dr. Yellman https://pmc.ncbi.nlm.nih.gov/articles/PMC7831961/ Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Isabel Ramirez-Burnett : Twitter: https://x.com/isabelramirezrd?lang=en Renegade Research Twitter: https://x.com/renegaderes Youtube: https://www.youtube.com/remissionbiome LinkedIn: https://www.linkedin.com/isabelramirezrd BlueSky: https://isabelramirezrd.bsky.social Amazon: https://amzn.to/3EB7PcC Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network
What if your body's collapse wasn't burnout… but a system crash no test can catch? In this episode, Dr. Linda Bluestein welcomes Isabelle Ramirez Burnett, systems engineer, health coach, and founder of Renegade Research, to reveal the silent breakdowns behind ME/CFS, long COVID, and hypermobility-related illness. Diagnosed with ME/CFS at just 7 years old, Isabelle pulls back the curtain on decades of missed diagnoses, medical dismissal, and her discovery of a community willing to do what the healthcare system couldn't—build their own science. You'll hear about the remission that stunned researchers, the controversial meds that gave her life back, and the protocols patients are building from the ground up. If you've ever wondered why your body feels like it's working against you—or what recovery might actually look like—this episode may change everything. Takeaways: She couldn't stand in front of the fridge—until a “taboo” medication changed everything. The labs were normal. Her body was screaming. A grandmother, a diagnosis, and an unstoppable fight for answers. What if your symptoms don't show up on any scan… but still hold the truth? The protocol that sparked a remission—and a global movement. Find the episode transcript here. Reference Links: RemissionBiome w/Dr. Yellman https://pmc.ncbi.nlm.nih.gov/articles/PMC7831961/ Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Isabel Ramirez-Burnett : Twitter: https://x.com/isabelramirezrd?lang=en Renegade Research Twitter: https://x.com/renegaderes Youtube: https://www.youtube.com/remissionbiome LinkedIn: https://www.linkedin.com/isabelramirezrd BlueSky: https://isabelramirezrd.bsky.social Amazon: https://amzn.to/3EB7PcC Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
How can dance teachers and studio owners truly support their most flexible students? In this essential episode host Loren Dermody welcomes back Dr. Linda Bluestein, renowned physician, former dancer, and expert in hypermobility, for her sixth appearance during Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders Awareness Month. Dr. Bluestein reveals why early recognition of connective tissue disorders is critical in dance, sharing practical signs teachers can spot, from difficulty building muscle to recurring injuries and even digestive issues. She explains why standard screening tools like the Beighton score often fall short for dancers, and offers actionable advice on what really works in the studio. Learn how to recognize the subtle signs of hypermobility, prevent common injuries, and empower your dancers to thrive. Whether you're a studio owner or passionate teacher, this episode will give you the knowledge to make a real difference in your dancers' lives. Don't miss this insightful conversation with Dr. Linda Bluestein, exclusively on The Acrobatic Arts Podcast! Important Links Bending Boundaries: The Role of Joint Hypermobility in Dance About Dr. Linda Bluestein In addition to her private medical practice, Hypermobility MD, Dr. Bluestein is the founder and co-host of the podcast, Bendy Bodies with the Hypermobility MD, and former co-host of “Hypermobility Happy Hour.” Dr. Bluestein is the Director of Education for the nonprofit, EDS Wellness, Inc. and founder and executive director of Bendy Bodies, an organization dedicated to empowering hypermobile performing artists. She has published a number of original research papers; presents work at national and international conferences, and is a contributing author for the book, Disjointed - Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders. Dr. Bluestein is a member of the Board of Directors for the Bridge Dance Project, the Allergy and Immunology Working Group for the International Consortium on EDS and HSD, the Advisory Board for Doctors for Dancers, and the Resources Committee for the Dance Healthy Alliance of Canada. More information about Dr. Bluestein can be found on her website, www.hypermobilitymd.com. Links: Hypermobility MD Hypermodbility MD Podcast Bendy Bodies If you'd like more amazing content more tips and ideas check out our Acrobatic Arts Channel on YouTube. Subscribe Now! Connect with Acrobatic Arts on your favourite social media platform: Instagram: https://www.instagram.com/acrobaticarts/ Facebook: https://www.facebook.com/Acroarts Twitter: https://twitter.com/acrobatic_arts/ Learn more and register for our programs at AcrobaticArts.com
What if your dental history held the key to a complex diagnosis no one's caught? In this gripping episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Audrey Kershaw, a trailblazing oral surgeon who's uncovered hundreds of hidden Ehlers-Danlos Syndrome (EDS) cases—starting in the dental chair. From patients who “can't numb up,” to decades-long battles with halitosis, gum fragility, and jaw instability, Dr. Kershaw shares the subtle (and sometimes shocking) signs that suggest something far deeper is at play. Together, they explore what happens when TMD, failed anesthesia, slow healing, and even bad breath point to connective tissue disorders that most dentists never learn about. If your mouth has always felt... different—this episode might explain why. Find the episode transcript here. Takeaways: Some patients can't numb up… and the reason may change how you see your entire body. Your wisdom tooth extraction might've revealed more than just a dental issue. That persistent jaw pain? It may be pointing to something systemic. A 40-year case of bad breath led to an unexpected diagnosis—here's what happened. You might be able to spot a connective tissue disorder… before a dentist even says a word. Reference Links: GIRFT RCS TMD full document. https://www.rcseng.ac.uk/-/media/FDS/Comprehensive-guideline-Management-of-painful-Temporomandibular-disorder-in-adults-March-2024.pdf GITFT RCS TMD patient summary document. https://www.rcseng.ac.uk/-/media/FDS/TMD-Patient-support-document-March-2024.pdf GIRFT RCS TMD Clinician summary document https://www.rcseng.ac.uk/-/media/FDS/TMD-Clinician-summary-document-March-2024.pdf Scottish Dental Magazine article EDS Article Scottish_Dental_magazine_October_2023 p38-39[77].pdf BISOM link to mouth ulcers https://bisom.org.uk/wp-content/uploads/2020/02/RAS-PIL-October-2019.pdf LA paper 2019 https://pmc.ncbi.nlm.nih.gov/articles/PMC6834718/ Link to pt EDS email EDS PATIENT EMAIL April 2025.docx Link to "Perioperative Management of Patients with Ehlers-Danlos Syndromes" by Drs. Chopra and Bluestein https://www.scirp.org/journal/paperinformation?paperid=97524 Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Dr. Audrey Kershaw: Website: https://www.oralsurgery.scot/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network
What if your dental history held the key to a complex diagnosis no one's caught? In this gripping episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Audrey Kershaw, a trailblazing oral surgeon who's uncovered hundreds of hidden Ehlers-Danlos Syndrome (EDS) cases—starting in the dental chair. From patients who “can't numb up,” to decades-long battles with halitosis, gum fragility, and jaw instability, Dr. Kershaw shares the subtle (and sometimes shocking) signs that suggest something far deeper is at play. Together, they explore what happens when TMD, failed anesthesia, slow healing, and even bad breath point to connective tissue disorders that most dentists never learn about. If your mouth has always felt... different—this episode might explain why. Find the episode transcript here. Takeaways: Some patients can't numb up… and the reason may change how you see your entire body. Your wisdom tooth extraction might've revealed more than just a dental issue. That persistent jaw pain? It may be pointing to something systemic. A 40-year case of bad breath led to an unexpected diagnosis—here's what happened. You might be able to spot a connective tissue disorder… before a dentist even says a word. Reference Links: GIRFT RCS TMD full document. https://www.rcseng.ac.uk/-/media/FDS/Comprehensive-guideline-Management-of-painful-Temporomandibular-disorder-in-adults-March-2024.pdf GITFT RCS TMD patient summary document. https://www.rcseng.ac.uk/-/media/FDS/TMD-Patient-support-document-March-2024.pdf GIRFT RCS TMD Clinician summary document https://www.rcseng.ac.uk/-/media/FDS/TMD-Clinician-summary-document-March-2024.pdf Scottish Dental Magazine article EDS Article Scottish_Dental_magazine_October_2023 p38-39[77].pdf BISOM link to mouth ulcers https://bisom.org.uk/wp-content/uploads/2020/02/RAS-PIL-October-2019.pdf LA paper 2019 https://pmc.ncbi.nlm.nih.gov/articles/PMC6834718/ Link to pt EDS email EDS PATIENT EMAIL April 2025.docx Link to "Perioperative Management of Patients with Ehlers-Danlos Syndromes" by Drs. Chopra and Bluestein https://www.scirp.org/journal/paperinformation?paperid=97524 Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Dr. Audrey Kershaw: Website: https://www.oralsurgery.scot/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network
What if the very things you do to feel or look better are quietly making you worse? In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein answers listener questions—but what begins as a practical Q&A quickly dives into rarely discussed truths about cosmetic procedures, EMFs, neuroinflammation, and even fragrances as dangerous triggers. You'll hear surprising stories from patients who've suffered unexpected complications—and discover how seemingly harmless habits, like party tricks or perfume, could be tipping the scale toward long-term damage. Plus, Dr. Bluestein unpacks the case for renaming MCAS, the underrecognized connection between transness and hypermobility, and why your surgeon might not be as EDS-aware as they claim. If you think you've already heard it all about EDS, MCAS, and chronic illness—you haven't heard this. Takeaways: A harmless beauty treatment… until it's not. Learn what no one tells you about EDS and cosmetic procedures. What if your MRI looks “normal”—but your spine is screaming otherwise? Think party tricks are just for fun? Your joints might not agree. One invisible environmental trigger may be silently wrecking your nervous system. Even your surgeon might not know this one crucial detail—unless you ask the right question. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
What if the very things you do to feel or look better are quietly making you worse? In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein answers listener questions—but what begins as a practical Q&A quickly dives into rarely discussed truths about cosmetic procedures, EMFs, neuroinflammation, and even fragrances as dangerous triggers. You'll hear surprising stories from patients who've suffered unexpected complications—and discover how seemingly harmless habits, like party tricks or perfume, could be tipping the scale toward long-term damage. Plus, Dr. Bluestein unpacks the case for renaming MCAS, the underrecognized connection between transness and hypermobility, and why your surgeon might not be as EDS-aware as they claim. If you think you've already heard it all about EDS, MCAS, and chronic illness—you haven't heard this. Takeaways: A harmless beauty treatment… until it's not. Learn what no one tells you about EDS and cosmetic procedures. What if your MRI looks “normal”—but your spine is screaming otherwise? Think party tricks are just for fun? Your joints might not agree. One invisible environmental trigger may be silently wrecking your nervous system. Even your surgeon might not know this one crucial detail—unless you ask the right question. Find the transcript for this episode here. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network
Don't bend the knee to hypermobility! Learn how to evaluate patients for possible joint hypermobility, what associated conditions to be mindful of, and where to start with management. We're joined by Dr. Linda Bluestein, @BluesteinLinda (https://www.hypermobilitymd.com), who shares her years of experience in treating patients with hypermobility! Claim CME for this episode at curbsiders.vcuhealth.org! Patreon | Episodes | Subscribe | Spotify | YouTube | Newsletter | Contact | Swag! | CME Show Segments Intro and getting to know our guest Case from Kashlak Hypermobility definitions and background Initial screening for hypermobility Physical examination Associated conditions and symptoms Management principles of joint hypermobility Outro Credits Writer and Producer: Paul Williams, MD, FACP Show Notes: Paul Williams, MD, FACP Infographic and Cover Art: Paul Williams, MD, FACP Hosts: Matthew Watto MD, FACP; Paul Williams MD, FACP Reviewer: Emi Okamoto, MD Showrunners: Matthew Watto MD, FACP; Paul Williams MD, FACP Technical Production: PodPaste Guest: Linda Bluestein, MD Disclosures Dr. Bluestein reports no relevant financial disclosures. The Curbsiders report no relevant financial disclosures. Sponsor: Quince Go to Quince.com/curb for free shipping on your order and 365 returns. Sponsor: Mint Mobile Shop data plans at MINTMOBILE.com/CURB to get 3 months of premium wireless service from Mint Mobile for $15 a month Sponsor: Continuing Education Company Special offer for Curbsiders listeners: Save 30% on all online courses and live webcasts with promo code CURB30. Visit www.CMEmeeting.org/curbsiders to explore all offerings and claim your discount.
What happens when illness hijacks your love story? In this raw and revealing episode, Dr. Linda Bluestein sits down with therapists and real-life couple Melissa Dickinson and Tom Query, who know firsthand how Ehlers-Danlos syndrome can test—and transform—a relationship. From secret diagnoses to unexpected intimacy challenges, they open up about their personal journey navigating chronic illness, caregiving, trauma, and neurodivergence while maintaining connection, humor, and purpose. But it doesn't stop there. You'll hear about the surgery that changed everything, a community built from the ground up, and what it means to reclaim agency in a body that feels like it's working against you. Whether you're chronically ill, caregiving, or just curious—this episode will stay with you. Takeaways: What if the love of your life was diagnosed after your wedding… would you stay? This surgery gave her legs—and her life—back. They gave their illness a name… and it changed how they fought it. The hardest part of caregiving isn't what you think. Sometimes, even therapists need help decoding each other. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Find the episode transcript here. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Melissa Dickinson & Tom Query: Melissa: Facebook: https://www.facebook.com/melissadickinsonEDSofGA/ LinkedIn: https://www.linkedin.com/in/melissadickinsonlpc/ Website: www.MelissaDickinson.com Tom: Facebook: https://www.facebook.com/wellspringcounselingintown Website: https://www.tomquery.com Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
What happens when illness hijacks your love story? In this raw and revealing episode, Dr. Linda Bluestein sits down with therapists and real-life couple Melissa Dickinson and Tom Query, who know firsthand how Ehlers-Danlos syndrome can test—and transform—a relationship. From secret diagnoses to unexpected intimacy challenges, they open up about their personal journey navigating chronic illness, caregiving, trauma, and neurodivergence while maintaining connection, humor, and purpose. But it doesn't stop there. You'll hear about the surgery that changed everything, a community built from the ground up, and what it means to reclaim agency in a body that feels like it's working against you. Whether you're chronically ill, caregiving, or just curious—this episode will stay with you. Takeaways: What if the love of your life was diagnosed after your wedding… would you stay? This surgery gave her legs—and her life—back. They gave their illness a name… and it changed how they fought it. The hardest part of caregiving isn't what you think. Sometimes, even therapists need help decoding each other. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Find the episode transcript here. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Melissa Dickinson & Tom Query: Melissa: Facebook: https://www.facebook.com/melissadickinsonEDSofGA/ LinkedIn: https://www.linkedin.com/in/melissadickinsonlpc/ Website: www.MelissaDickinson.com Tom: Facebook: https://www.facebook.com/wellspringcounselingintown Website: https://www.tomquery.com Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
What if the fatigue you feel isn't just “tiredness”—but the result of an entirely different physiological state? In this riveting episode, Dr. Linda Bluestein sits down with Dr. Brayden P. Yellman of the Bateman Horne Center to explore ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome)—a misunderstood condition that masquerades as general exhaustion but goes much deeper. Together, they unravel the hidden markers of post-exertional malaise, explain how upright posture can quietly sabotage your day, and discuss the mysterious collapse of energy systems that no blood test can catch. With no known biomarker, diagnosis is a clinical puzzle—and one too often dismissed. Dr. Yellman also explores emerging theories around brainstem tension, tethered cord syndrome, mast cell activation, and how some surgeries may reset the body in unexpected ways. If you've been chasing answers for fatigue, brain fog, or unexplained crashes, this episode may finally connect the dots you didn't know existed. Note: You may notice a few choppy moments in this video due to our guest's frame rate, but the conversation is so valuable, we knew we had to share it with you. Thanks for your understanding! Takeaways: Fatigue might not be what you think—and your body may be operating in a totally different mode. Your upright posture could be silently draining your energy every hour of the day. A “normal” MRI doesn't mean your nervous system is functioning normally. Could your symptoms be the result of your brainstem being pulled—literally? The most revealing test? It might be one you do at home... and it doesn't involve a lab. YouTube video mentioned in the episode: https://www.youtube.com/watch?v=00f6Yx9ab3I Find the episode transcript here. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Dr. Brayden P. Yellman Twitter: https://x.com/BatemanHorne Instagram: https://www.instagram.com/bateman_horne_center/ Facebook: https://www.facebook.com/batemanhornecenter LinkedIn: https://www.linkedin.com/company/the-bateman-horne-center-of-excellence/ BlueSky: https://bsky.app/profile/batemanhornecenter.bsky.social Website: https://batemanhornecenter.org/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
What if the fatigue you feel isn't just “tiredness”—but the result of an entirely different physiological state? In this riveting episode, Dr. Linda Bluestein sits down with Dr. Brayden P. Yellman of the Bateman Horne Center to explore ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome)—a misunderstood condition that masquerades as general exhaustion but goes much deeper. Together, they unravel the hidden markers of post-exertional malaise, explain how upright posture can quietly sabotage your day, and discuss the mysterious collapse of energy systems that no blood test can catch. With no known biomarker, diagnosis is a clinical puzzle—and one too often dismissed. Dr. Yellman also explores emerging theories around brainstem tension, tethered cord syndrome, mast cell activation, and how some surgeries may reset the body in unexpected ways. If you've been chasing answers for fatigue, brain fog, or unexplained crashes, this episode may finally connect the dots you didn't know existed. Note: You may notice a few choppy moments in this video due to our guest's frame rate, but the conversation is so valuable, we knew we had to share it with you. Thanks for your understanding! Takeaways: Fatigue might not be what you think—and your body may be operating in a totally different mode. Your upright posture could be silently draining your energy every hour of the day. A “normal” MRI doesn't mean your nervous system is functioning normally. Could your symptoms be the result of your brainstem being pulled—literally? The most revealing test? It might be one you do at home... and it doesn't involve a lab. YouTube video mentioned in the episode: https://www.youtube.com/watch?v=00f6Yx9ab3I Find the episode transcript here. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Dr. Brayden P. Yellman Twitter: https://x.com/BatemanHorne Instagram: https://www.instagram.com/bateman_horne_center/ Facebook: https://www.facebook.com/batemanhornecenter LinkedIn: https://www.linkedin.com/company/the-bateman-horne-center-of-excellence/ BlueSky: https://bsky.app/profile/batemanhornecenter.bsky.social Website: https://batemanhornecenter.org/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
What if the very things you do to feel or look better are quietly making you feel worse? In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein answers listener questions—but what begins as a practical Q&A quickly dives into rarely discussed truths about cosmetic procedures, EMFs, neuroinflammation, and even fragrances as dangerous triggers. You'll hear surprising stories from patients who've suffered unexpected complications—and discover how seemingly harmless habits, like party tricks or perfume, could be tipping the scale toward long-term damage. Plus, Dr. Bluestein unpacks the case for renaming MCAS, the underrecognized connection between transness and hypermobility, and why your surgeon might not be as EDS-aware as they claim. If you think you've already heard it all about EDS (Ehlers-Danlos Syndromes), HSD (Hypermobility Spectrum Disorders), MCAS (Mast Cell Activation Syndrome), and chronic illness—you haven't heard this. Takeaways: You might be surprised to learn which test isn't as useful for diagnosing MCAS as people think. The brain fog you're feeling? There's a cellular player involved—and it's not just inflammation. Some reactions you're calling “allergies” might be something very different (and trickier to detect). The way mast cells interact with the brain could change how we think about neurodevelopment. A few supplements could help—but only if you're asking the right questions first. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Dr. Theoharis Theoharides Website: https://www.drtheoharides.com/ Podcast Link: https://algonot.com/ Blogs: https://www.nova.edu/nim/neuroinflammation-research/index.html LinkedIn: https://www.linkedin.com/in/theoharis-theoharides-ms-phd-md-faaaai-67123735 Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
What if the symptoms you've been chasing—brain fog, fatigue, bladder pain, even anxiety—were all connected by one overlooked cell type? In this fascinating episode of the Bendy Bodies Podcast, Dr. Linda Bluestein is joined by Dr. Theoharis Theoharides, one of the world's leading experts on mast cells, to unravel the hidden roles they play in some of the most complex chronic illnesses. From histamine sensitivity that mimics allergies, to lab tests that miss what's really going on, Dr. Theoharides sheds light on why so many patients are dismissed—and what doctors are missing. The conversation takes unexpected turns into brain inflammation, food triggers, and even autism, where mast cells may hold untapped insight into neurodevelopment and behavior. If you've ever felt like your symptoms don't make sense—or that the medical system keeps overlooking something obvious—this episode might just connect the dots. Takeaways: You might be surprised to learn which test isn't as useful for diagnosing MCAS as people think. The brain fog you're feeling? There's a cellular player involved—and it's not just inflammation. Some reactions you're calling “allergies” might be something very different (and trickier to detect). The way mast cells interact with the brain could change how we think about neurodevelopment. A few supplements could help—but only if you're asking the right questions first. Chapters: 00:00 Introduction to Mast Cells and Guest Introduction 02:57 Understanding Mast Cell Activation Syndrome (MCAS) 10:35 Diagnostic Challenges and Lab Tests for MCAS 32:12 Mast Cells in the Brain and Neuroinflammation 44:00 Understanding Mast Cell Activation and Stress 46:06 The Role of Diet and Supplements in Managing Mast Cell Activation 55:42 Gut Health and Mast Cell Activation 01:01:51 Practical Tips and Future Directions Find the transcript for this episode here. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Dr. Theoharis Theoharides Website: https://www.drtheoharides.com/ Podcast Link: https://algonot.com/ Blogs: https://www.nova.edu/nim/neuroinflammation-research/index.html LinkedIn: https://www.linkedin.com/in/theoharis-theoharides-ms-phd-md-faaaai-67123735 Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this solo Q&A episode, Dr. Linda Bluestein answers your biggest hypermobility questions, tackling topics like whether getting an official EDS (Ehlers-Danlos Syndromes) diagnosis is worth it, which pain medications actually help, how to improve posture, and the growing stigma around EDS. She also discusses visceroptosis (organ prolapse), posture braces, and the legalities of medical centers refusing EDS patients. Dr. Bluestein shares practical hypermobility hacks and gives insight into the challenges patients face when seeking care. If you've ever wondered how to advocate for yourself, manage pain, or improve daily function, this episode is packed with expert advice and actionable tips. Takeaways: Should You Get an EDS Diagnosis? – Listen as Dr. Bluestein describes how an official diagnosis can provide validation and access to specialists, yet may also lead to insurance and medical stigma issues. Pain Medications for EDS Are Off-Label – Dr. Bluestein explains which medications she has found most helpful for managing symptoms. How Can Posture Be Improved – Dr. Bluestein shares which posture-support garments she prefers and how to use them in a way to avoid muscle weakening. EDS Stigma is Getting Worse – Misinformation causes some doctors to dismiss EDS patients as exaggerating or attention-seeking. Learn how to advocate and educate your providers. Some Medical Centers Refuse EDS Patients – While emergency rooms must treat everyone, clinics and specialists can decline to see EDS patients, making self-advocacy and persistence essential. Listen in to hear how you can avoid having this happen to you. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find the episode transcript here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this solo Q&A episode, Dr. Linda Bluestein answers your biggest hypermobility questions, tackling topics like whether getting an official EDS (Ehlers-Danlos Syndromes) diagnosis is worth it, which pain medications actually help, how to improve posture, and the growing stigma around EDS. She also discusses visceroptosis (organ prolapse), posture braces, and the legalities of medical centers refusing EDS patients. Dr. Bluestein shares practical hypermobility hacks and gives insight into the challenges patients face when seeking care. If you've ever wondered how to advocate for yourself, manage pain, or improve daily function, this episode is packed with expert advice and actionable tips. Takeaways: Should You Get an EDS Diagnosis? – Listen as Dr. Bluestein describes how an official diagnosis can provide validation and access to specialists, yet may also lead to insurance and medical stigma issues. Pain Medications for EDS Are Off-Label – Dr. Bluestein explains which medications she has found most helpful for managing symptoms. How Can Posture Be Improved – Dr. Bluestein shares which posture-support garments she prefers and how to use them in a way to avoid muscle weakening. EDS Stigma is Getting Worse – Misinformation causes some doctors to dismiss EDS patients as exaggerating or attention-seeking. Learn how to advocate and educate your providers. Some Medical Centers Refuse EDS Patients – While emergency rooms must treat everyone, clinics and specialists can decline to see EDS patients, making self-advocacy and persistence essential. Listen in to hear how you can avoid having this happen to you. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find the episode transcript here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Petra Klinge, a renowned neurosurgeon specializing in tethered cord syndrome (TCS), Chiari malformation, and cerebrospinal fluid (CSF) disorders. They dive deep into occult tethered cord syndrome, a condition where MRI scans appear normal, yet patients still experience neurological symptoms, chronic pain, and bladder/bowel dysfunction. Dr. Klinge explains how tethered cord affects EDS patients, the role of connective tissue disorders, and what makes someone a good candidate for surgery. Whether you've been struggling with undiagnosed spinal issues or are considering tethered cord release surgery, this episode is packed with valuable insights and cutting-edge research. Takeaways: Tethered Cord Can Be “Occult” (Hidden on MRI) – Many patients with classic tethered cord symptoms are dismissed because their MRI appears “normal.” A clinical diagnosis is key. EDS Patients Are at Higher Risk – Changes in collagen and the extracellular matrix make individuals with Ehlers-Danlos Syndrome more prone to tethered cord syndrome, which can be congenital or acquired. Tethered Cord Syndrome Affects the Entire Spine – While traditionally thought to impact only the lower body, new research suggests TCS can cause upper body pain, weakness, and neurological dysfunction. Surgery Isn't Always the First Step – Physical therapy, craniosacral therapy, and manual techniques may help some patients, but progressive neurological decline may require surgical release. Retethering is Possible After Surgery – Around 7% of patients may need a second surgery due to scar tissue reattaching the spinal cord, but new surgical techniques are improving long-term outcomes. Articles referenced in the episode: https://pubmed.ncbi.nlm.nih.gov/38489815/ https://pubmed.ncbi.nlm.nih.gov/38202013/ https://pubmed.ncbi.nlm.nih.gov/35307588/ Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Petra Klinge Website: https://www.brownhealth.org/providers/petra-m-klinge-md-phd Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Petra Klinge, a renowned neurosurgeon specializing in tethered cord syndrome (TCS), Chiari malformation, and cerebrospinal fluid (CSF) disorders. They dive deep into occult tethered cord syndrome, a condition where MRI scans appear normal, yet patients still experience neurological symptoms, chronic pain, and bladder/bowel dysfunction. Dr. Klinge explains how tethered cord affects EDS patients, the role of connective tissue disorders, and what makes someone a good candidate for surgery. Whether you've been struggling with undiagnosed spinal issues or are considering tethered cord release surgery, this episode is packed with valuable insights and cutting-edge research. Takeaways: Tethered Cord Can Be “Occult” (Hidden on MRI) – Many patients with classic tethered cord symptoms are dismissed because their MRI appears “normal.” A clinical diagnosis is key. EDS Patients Are at Higher Risk – Changes in collagen and the extracellular matrix make individuals with Ehlers-Danlos Syndrome more prone to tethered cord syndrome, which can be congenital or acquired. Tethered Cord Syndrome Affects the Entire Spine – While traditionally thought to impact only the lower body, new research suggests TCS can cause upper body pain, weakness, and neurological dysfunction. Surgery Isn't Always the First Step – Physical therapy, craniosacral therapy, and manual techniques may help some patients, but progressive neurological decline may require surgical release. Retethering is Possible After Surgery – Around 7% of patients may need a second surgery due to scar tissue reattaching the spinal cord, but new surgical techniques are improving long-term outcomes. Articles referenced in the episode: https://pubmed.ncbi.nlm.nih.gov/38489815/ https://pubmed.ncbi.nlm.nih.gov/38202013/ https://pubmed.ncbi.nlm.nih.gov/35307588/ Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Petra Klinge Website: https://www.brownhealth.org/providers/petra-m-klinge-md-phd Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down with Dr. David Kaufman, a specialist in complex illnesses, to discuss how infections, immune dysfunction, and connective tissue disorders intersect. They explore why many chronic illnesses are often overlooked or misdiagnosed. This includes conditions like ME/CFS (myalgic encephalomyeltiis/chronic fatigue syndrome), Long COVID, Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and dysautonomia, Dr. Kaufman shares insights on the role of Epstein-Barr Virus (EBV), Lyme Disease, small intestinal bacterial overgrowth (SIBO), and other infections in triggering chronic conditions. They also dive into peptides, plasmapheresis, exosomes, and mitochondrial health as potential treatment avenues. If you've struggled to get answers about complex illness, this episode is packed with groundbreaking insights and expert advice. Takeaways: Complex Illness Requires a Multi-System Approach – Chronic conditions like ME/CFS, EDS, MCAS, and dysautonomia are interconnected, requiring a holistic approach rather than isolated treatments. Infections Can Trigger or Worsen Chronic Illness – Epstein-Barr virus, Lyme disease, and other chronic infections often reactivate in immune-compromised individuals, leading to long-term symptoms. Peptides and Exosomes Show Promise – Treatments like thymosin alpha-1, BPC-157, and exosomes may help modulate immune function and promote healing. Pelvic Congestion & Blood Flow Issues Matter – Unrecognized vascular issues, like May-Thurner syndrome and pelvic congestion syndrome, can contribute to POTS and hemodynamic instability. Mitochondrial Health is Key to Recovery – Addressing mitochondrial dysfunction through targeted therapies can help reduce fatigue and improve overall health in complex illness patients. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. David Kaufman Blue Sky: @kaufmanmd.bsky.social Website: https://www.centerforcomplexdiseases.com/ Podcast Link: https://www.youtube.com/channel/UCkJiyBgDrgE5xWi3_tFsXHg Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down with Dr. David Kaufman, a specialist in complex illnesses, to discuss how infections, immune dysfunction, and connective tissue disorders intersect. They explore why many chronic illnesses are often overlooked or misdiagnosed. This includes conditions like ME/CFS (myalgic encephalomyeltiis/chronic fatigue syndrome), Long COVID, Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and dysautonomia, Dr. Kaufman shares insights on the role of Epstein-Barr Virus (EBV), Lyme Disease, small intestinal bacterial overgrowth (SIBO), and other infections in triggering chronic conditions. They also dive into peptides, plasmapheresis, exosomes, and mitochondrial health as potential treatment avenues. If you've struggled to get answers about complex illness, this episode is packed with groundbreaking insights and expert advice. Takeaways: Complex Illness Requires a Multi-System Approach – Chronic conditions like ME/CFS, EDS, MCAS, and dysautonomia are interconnected, requiring a holistic approach rather than isolated treatments. Infections Can Trigger or Worsen Chronic Illness – Epstein-Barr virus, Lyme disease, and other chronic infections often reactivate in immune-compromised individuals, leading to long-term symptoms. Peptides and Exosomes Show Promise – Treatments like thymosin alpha-1, BPC-157, and exosomes may help modulate immune function and promote healing. Pelvic Congestion & Blood Flow Issues Matter – Unrecognized vascular issues, like May-Thurner syndrome and pelvic congestion syndrome, can contribute to POTS and hemodynamic instability. Mitochondrial Health is Key to Recovery – Addressing mitochondrial dysfunction through targeted therapies can help reduce fatigue and improve overall health in complex illness patients. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Find this episode's transcript here. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. David Kaufman Blue Sky: @kaufmanmd.bsky.social Website: https://www.centerforcomplexdiseases.com/ Podcast Link: https://www.youtube.com/channel/UCkJiyBgDrgE5xWi3_tFsXHg Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein dives deep into the complex world of hormones, menopause, and connective tissue disorders. She explores how estrogen, progesterone, and testosterone impact joint health, the benefits and risks of hormone replacement therapy (HRT), and why menopause can worsen EDS symptoms. Dr. Bluestein also breaks down gender-affirming hormone therapy, the role of mast cells in hormonal responses, and why some testosterone clinics may not have your best interests at heart. Whether you're considering HRT, navigating menopause with hypermobility, or wondering how hormones influence mast cells, this episode is packed with practical advice and science-backed insights. Takeaways: Hormones Affect Connective Tissue & Joint Stability – Estrogen, testosterone, and progesterone all influence collagen production, ligament strength, and tissue elasticity, which is why hormonal changes impact pain and mobility. Menopause Can Worsen EDS Symptoms – The decline in estrogen post-menopause contributes to joint pain, fatigue, and increased injury risk, making HRT a potential tool for symptom management. Testosterone Therapy Has Benefits & Risks – While testosterone can improve muscle mass, bone density, and fatigue, it must be monitored carefully to avoid cardiovascular risks, clotting issues, and hormone imbalances. Be Cautious with Hormone Clinics – Some online or walk-in testosterone clinics prioritize sales over patient health, so always ensure proper lab testing and medical oversight before starting HRT. Mast Cells Respond to Hormonal Changes – Hormones like estrogen and progesterone can trigger mast cell activation, impacting inflammation, pain, and allergic responses—especially in conditions like MCAS and POTS. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find the transcript for this episode here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein dives deep into the complex world of hormones, menopause, and connective tissue disorders. She explores how estrogen, progesterone, and testosterone impact joint health, the benefits and risks of hormone replacement therapy (HRT), and why menopause can worsen EDS symptoms. Dr. Bluestein also breaks down gender-affirming hormone therapy, the role of mast cells in hormonal responses, and why some testosterone clinics may not have your best interests at heart. Whether you're considering HRT, navigating menopause with hypermobility, or wondering how hormones influence mast cells, this episode is packed with practical advice and science-backed insights. Takeaways: Hormones Affect Connective Tissue & Joint Stability – Estrogen, testosterone, and progesterone all influence collagen production, ligament strength, and tissue elasticity, which is why hormonal changes impact pain and mobility. Menopause Can Worsen EDS Symptoms – The decline in estrogen post-menopause contributes to joint pain, fatigue, and increased injury risk, making HRT a potential tool for symptom management. Testosterone Therapy Has Benefits & Risks – While testosterone can improve muscle mass, bone density, and fatigue, it must be monitored carefully to avoid cardiovascular risks, clotting issues, and hormone imbalances. Be Cautious with Hormone Clinics – Some online or walk-in testosterone clinics prioritize sales over patient health, so always ensure proper lab testing and medical oversight before starting HRT. Mast Cells Respond to Hormonal Changes – Hormones like estrogen and progesterone can trigger mast cell activation, impacting inflammation, pain, and allergic responses—especially in conditions like MCAS and POTS. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find the transcript for this episode here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Kara Wada, an allergy and immunology expert, to explore Sjogren's disease and its connection to hypermobility, dysautonomia, and Mast Cell Activation Syndrome (MCAS). They discuss why Sjogren's is one of the most underdiagnosed autoimmune conditions, its symptoms beyond dryness, and how it intertwines with POTS (postural orthostatic tachycardia syndrome) and EDS (Ehlers-Danlos Syndromes). Dr. Wada also dives into Sjogren's diagnostic challenges, emerging treatments, nutrition strategies, and the role of inflammation in fatigue and pain. Whether you're navigating autoimmune symptoms or looking for practical tools to manage them, this episode is filled with expert insights and actionable advice. Takeaways: Sjogren's is Massively Underdiagnosed – Up to 75% of people with Sjogren's remain undiagnosed, in part because its symptoms extend far beyond dryness and don't always present in a textbook way. Autoimmune Conditions & EDS Are Connected – Sjogren's, POTS, and MCAS frequently overlap due to their shared impact on the immune and nervous systems, making diagnosis and treatment complex. Dryness is Just the Beginning – Sjogren's can cause neuropathy, fatigue, dysautonomia, gastrointestinal issues, and even a higher risk of lymphoma, making it more than just an inconvenience. Current Treatments Are Limited but Improving – There are no FDA-approved medications specifically for Sjogren's, but promising treatments are currently in phase 3 trials, offering hope for better management Nutrition & Lifestyle Matter – Avoiding ultra-processed foods, prioritizing hydration, and incorporating anti-inflammatory nutrients can help manage symptoms and support immune function. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Past Episodes: https://www.bendybodiespodcast.com/linking-mast-cell-activation-autoimmunity-and-eds/ https://www.drkarawada.com/podcasts/becoming-immune-confident/episodes/2148563154 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Karen Wada Twitter: @CrunchyAllergy Instagram: @immuneconfidentmd TikTok: @immuneconfidentmd FB: @KaraWadaMD YT: @drkarawada Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Kara Wada, an allergy and immunology expert, to explore Sjogren's disease and its connection to hypermobility, dysautonomia, and Mast Cell Activation Syndrome (MCAS). They discuss why Sjogren's is one of the most underdiagnosed autoimmune conditions, its symptoms beyond dryness, and how it intertwines with POTS (postural orthostatic tachycardia syndrome) and EDS (Ehlers-Danlos Syndromes). Dr. Wada also dives into Sjogren's diagnostic challenges, emerging treatments, nutrition strategies, and the role of inflammation in fatigue and pain. Whether you're navigating autoimmune symptoms or looking for practical tools to manage them, this episode is filled with expert insights and actionable advice. Find this episode's transcript here: https://www.bendybodiespodcast.com/sjogrens-misdiagnosis-dr-kara-wada/ Takeaways: Sjogren's is Massively Underdiagnosed – Up to 75% of people with Sjogren's remain undiagnosed, in part because its symptoms extend far beyond dryness and don't always present in a textbook way. Autoimmune Conditions & EDS Are Connected – Sjogren's, POTS, and MCAS frequently overlap due to their shared impact on the immune and nervous systems, making diagnosis and treatment complex. Dryness is Just the Beginning – Sjogren's can cause neuropathy, fatigue, dysautonomia, gastrointestinal issues, and even a higher risk of lymphoma, making it more than just an inconvenience. Current Treatments Are Limited but Improving – There are no FDA-approved medications specifically for Sjogren's, but promising treatments are currently in phase 3 trials, offering hope for better management Nutrition & Lifestyle Matter – Avoiding ultra-processed foods, prioritizing hydration, and incorporating anti-inflammatory nutrients can help manage symptoms and support immune function. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Past Episodes: https://www.bendybodiespodcast.com/linking-mast-cell-activation-autoimmunity-and-eds/ https://www.drkarawada.com/podcasts/becoming-immune-confident/episodes/2148563154 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Karen Wada Twitter: @CrunchyAllergy Instagram: @immuneconfidentmd TikTok: @immuneconfidentmd FB: @KaraWadaMD YT: @drkarawada Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with Dr. Matthew Watto, an internist and co-host of The Curbsiders podcast, about how patients can work effectively with their internist to get the best care. They discuss how internists think, why appointment times are limited, and strategies for getting the most out of every visit. Dr. Watto shares behind-the-scenes insights on primary care challenges, chronic pain management, and the medical system's limitations, while also offering practical tips for improving doctor-patient communication. If you've ever felt frustrated navigating the healthcare system, this episode provides game-changing strategies to help you get the care you need. Takeaways: Internists Have Limited Training in EDS & Hypermobility – Many internists receive little to no education on hypermobility-related conditions, making patient education and advocacy essential. Appointment Time is Short—Be Prepared – Most internists have at the very most 15-20 minutes for follow-ups and 30-40 minutes for new patients, so bringing a prioritized list of concerns helps maximize the visit. Ask for a Collaborative Approach – Internists are generalists, meaning they oversee a wide range of conditions. Patients with complex conditions should request coordination between specialists for better care. Concierge & Academic Medicine May Offer More Time – Patients who need longer appointments or more personalized care may benefit from concierge medicine, academic medical centers, or direct primary care models. Doctors Want to Help, But the System is Broken – Many doctors feel frustrated by short appointment times, insurance barriers, and administrative burdens. Patient-doctor teamwork is key to navigating these challenges. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find the transcript for this episode here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Matthew Watto YT: @TheCurbsiders IG: @thecurbsiders Twitter: @/thecurbsiders & @doctorwatto Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with Dr. Matthew Watto, an internist and co-host of The Curbsiders podcast, about how patients can work effectively with their internist to get the best care. They discuss how internists think, why appointment times are limited, and strategies for getting the most out of every visit. Dr. Watto shares behind-the-scenes insights on primary care challenges, chronic pain management, and the medical system's limitations, while also offering practical tips for improving doctor-patient communication. If you've ever felt frustrated navigating the healthcare system, this episode provides game-changing strategies to help you get the care you need. Takeaways: Internists Have Limited Training in EDS & Hypermobility – Many internists receive little to no education on hypermobility-related conditions, making patient education and advocacy essential. Appointment Time is Short—Be Prepared – Most internists have at the very most 15-20 minutes for follow-ups and 30-40 minutes for new patients, so bringing a prioritized list of concerns helps maximize the visit. Ask for a Collaborative Approach – Internists are generalists, meaning they oversee a wide range of conditions. Patients with complex conditions should request coordination between specialists for better care. Concierge & Academic Medicine May Offer More Time – Patients who need longer appointments or more personalized care may benefit from concierge medicine, academic medical centers, or direct primary care models. Doctors Want to Help, But the System is Broken – Many doctors feel frustrated by short appointment times, insurance barriers, and administrative burdens. Patient-doctor teamwork is key to navigating these challenges. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find the transcript for this episode here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Matthew Watto YT: @TheCurbsiders IG: @thecurbsiders Twitter: @/thecurbsiders & @doctorwatto Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
Dr. Jill Carnahan and Dr. Linda Bluestein will provide a comprehensive overview of joint hypermobility, including its association with conditions like Postural Orthostatic Tachycardia Syndrome (POTS) and Mast Cell Activation Syndrome (MCAS). Understanding these connections can be pivotal in managing symptoms and improving overall quality of life. ✅ Learn the connection between hypermobility and disorders like Mast Cell Activation Syndrome (MCAS) and Postural Orthostatic Tachycardia Syndrome (POTS) and strategies for regulating the nervous system, reducing pain, and improving quality of life. ✅ Why hypermobility is common in dancers, gymnasts, and elite athletes, and how it can be both an asset and a liability. ✅ How diet, lifestyle, and targeted supplementation can help mitigate symptoms of hypermobility-related conditions and the importance of a multidisciplinary approach, including collaborations with physical therapists, nutritionists, and neurologists. Dr. Linda Bluestein, MD Dr. Linda Bluestein, MD, is a leading expert in hypermobility disorders, offering specialized care at Hypermobility MD. She also runs Bendy Bodies, a coaching practice that empowers those with hypermobility. As host of the "Bendy Bodies with the Hypermobility MD" podcast, she shares insights and fosters community. Dr. Bluestein is active in advocacy and research, serving on multiple boards. Learn more at www.hypermobilitymd.com. Links https://www.instagram.com/hypermobilitymd/ https://www.facebook.com/hypermobilityMD https://twitter.com/BluesteinLinda https://www.youtube.com/@bendybodiespodcast https://www.linkedin.com/in/hypermobilitymd/ https://www.tiktok.com/@hypermobilitymdara http://www.bendybodiespodcast.com https://www.hypermobilitymd.com/
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Ilene Ruhoy, a board-certified neurologist and environmental toxicologist, for an in-depth discussion on brain fog, cognitive dysfunction, and chronic fatigue in conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and dysautonomia. Dr. Ruhoy shares insights on the immune system's role in neurological symptoms, the impact of mast cell activation, and the role of treatments like peptides, IVIG (intravenous gammaglobulin), plasmapheresis, and immune modulators. They also discuss the hidden effects of histamine on the brain, how sensory sensitivity contributes to fatigue, and the role of regenerative medicine in connective tissue healing. This episode is packed with cutting-edge research and practical solutions for improving cognitive function and energy levels. Takeaways: Brain Fog & Fatigue Are Linked to Immune Dysfunction: Cognitive dysfunction in conditions like EDS, MCAS, and POTS is often tied to inflammatory responses and immune dysregulation rather than just histamine alone. Plasmapheresis & IVIG Can Help Some Patients: For severe cases, plasmapheresis removes inflammatory mediators from the blood, and IVIG helps regulate immune function, leading to cognitive and fatigue improvements. Histamine Plays a Complex Role in Brain Function: While histamine can trigger symptoms in MCAS patients, it also has neuroprotective effects, making antihistamine overuse a potential issue for some. Sensory Sensitivity Increases Cognitive Load: Many people with EDS and related conditions experience hypersensitivity to light, noise, and smells, which can overwhelm the nervous system and worsen fatigue. Regenerative Medicine May Support Connective Tissue Repair: Peptides, stem cell therapy, and targeted immune modulation are promising areas of research to help strengthen connective tissue and reduce systemic inflammation. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Ilene Ruhoy Instagram: @IleneRuhoyMDPhD TikTok: @IleneRuhoyMDPhD Podcast (YT): @Unraveledpod Twitter: @RuhoyMD Bluesky: @ruhoy.bsky.social Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Ilene Ruhoy, a board-certified neurologist and environmental toxicologist, for an in-depth discussion on brain fog, cognitive dysfunction, and chronic fatigue in conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and dysautonomia. Dr. Ruhoy shares insights on the immune system's role in neurological symptoms, the impact of mast cell activation, and the role of treatments like peptides, IVIG (intravenous gammaglobulin), plasmapheresis, and immune modulators. They also discuss the hidden effects of histamine on the brain, how sensory sensitivity contributes to fatigue, and the role of regenerative medicine in connective tissue healing. This episode is packed with cutting-edge research and practical solutions for improving cognitive function and energy levels. Takeaways: Brain Fog & Fatigue Are Linked to Immune Dysfunction: Cognitive dysfunction in conditions like EDS, MCAS, and POTS is often tied to inflammatory responses and immune dysregulation rather than just histamine alone. Plasmapheresis & IVIG Can Help Some Patients: For severe cases, plasmapheresis removes inflammatory mediators from the blood, and IVIG helps regulate immune function, leading to cognitive and fatigue improvements. Histamine Plays a Complex Role in Brain Function: While histamine can trigger symptoms in MCAS patients, it also has neuroprotective effects, making antihistamine overuse a potential issue for some. Sensory Sensitivity Increases Cognitive Load: Many people with EDS and related conditions experience hypersensitivity to light, noise, and smells, which can overwhelm the nervous system and worsen fatigue. Regenerative Medicine May Support Connective Tissue Repair: Peptides, stem cell therapy, and targeted immune modulation are promising areas of research to help strengthen connective tissue and reduce systemic inflammation. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Ilene Ruhoy Instagram: @IleneRuhoyMDPhD TikTok: @IleneRuhoyMDPhD Podcast (YT): @Unraveledpod Twitter: @RuhoyMD Bluesky: @ruhoy.bsky.social Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein chats with Dr. Kelly Casperson, a urologist and sexual health expert, about hormones, libido, and sexual wellness—especially for those with hypermobility, Ehlers-Danlos Syndrome (EDS), and related conditions. They dive into testosterone in women, hormone myths, bladder health, vaginal estrogen, and why pelvic floor therapy is a must. Dr. Casperson debunks common hormone fears, explains the role of mast cells and bladder issues, and shares insights on navigating intimacy with chronic illness. This episode is packed with must-know information on aging, sexual health, and proactive care for those with complex medical conditions. Takeaways: Testosterone is Essential for Women: Women naturally produce more testosterone than estrogen, but it's often overlooked in hormone therapy. Vaginal Estrogen is a Game-Changer: It can reduce UTIs by 50%, improve bladder health, and prevent vaginal atrophy—yet many doctors don't discuss it. Pelvic Floor Therapy is a Must: A weak or overly tight pelvic floor can lead to pain, incontinence, and sexual dysfunction—physical therapy can help. Hormone Myths Need Busting: Misinformation from past studies has caused unnecessary fear of hormone replacement therapy (HRT)—many of those concerns are outdated. Bladder Pain is Often Misdiagnosed: Many people diagnosed with interstitial cystitis may actually have pelvic floor dysfunction, hormone imbalances, or mast cell issues. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. My favorite books: https://bit.ly/3WHFQhq Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Kelly Casperson Instagram: @kellycaspersonmd Facebook: @youarentbroken YouTube: @kellycaspersonmd Book: You Are Not Broken https://www.amazon.com/shop/hypermobilitymd/list/2LQLPARJY3CDS?ref_=aipsflist Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with sexual health experts Dr. Irwin Goldstein & Sue Goldstein. This amazing husband and wife team share insights on common issues such as vestibulodynia, libido challenges, and treatment options ranging from physical therapy to hormone therapy. They explore the often-overlooked intersection of joint hypermobility conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and Postural Orthostatic Tachycardia Syndrome (POTS) with sexual dysfunction. They discuss how connective tissue disorders impact sexual health, the role of the sacral nerve in arousal and pain, and how patients can advocate for better care. Whether you're struggling with pain during intimacy or looking for solutions, this episode offers practical advice and hope. Takeaways: Connective Tissue Impacts Sexual Health: Conditions like EDS can affect the sacral nerve, leading to pain, discomfort, and sexual dysfunction that many doctors overlook. Mast Cell Dysfunction Can Trigger Pain: MCAS can cause issues such as vestibulodynia, leading to painful penetration and impacting quality of life beyond intimacy. Pelvic Floor Therapy is Essential: Specialized pelvic floor physical therapy can significantly improve sexual function and reduce pain for individuals with hypermobility disorders. Hormone Therapy May Help: Addressing hormonal imbalances, particularly testosterone and estrogen levels, can improve symptoms of vaginal dryness and pain. Communication is Key: Open conversations with partners and healthcare providers about sexual health concerns are crucial for finding the right treatments and maintaining intimacy. Check out Ep 116 with Dr Feigenbaum to learn more about Tarlov Cysts, which were discussed in this episode: https://youtu.be/Uq4OrVa6deM Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Irwin Goldstein & Sue Goldstein Facebook: @SDSexMed Youtube: @sdsexualmed Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein chats with functional medicine expert Dr. Jill Carnahan about tackling complex conditions like Mast Cell Activation Syndrome (MCAS), Ehlers-Danlos Syndrome (EDS), and POTS. A Breast Cancer and Crohn's disease survivor, Dr. Carnahan shares her unique approach to identifying root causes of chronic illness using functional medicine principles. They explore the triad of MCAS, EDS, and dysautonomia, and discuss tools like the limbic system, toxin reduction, and gut healing to improve patient outcomes. This episode is packed with practical insights for navigating chronic illness and optimizing your health. Takeaways: Mast Cells as the Root Driver: Dr. Carnahan explains how mast cells play a central role in triggering symptoms in EDS, POTS, and MCAS, often driven by infections, toxins, or trauma. Functional Medicine Seeks the Root Cause: A functional medicine approach looks beyond symptoms to uncover underlying triggers like mold, Lyme disease, or environmental toxins. Limbic System Reset is Critical: Addressing the limbic system through the DNRS or The Gupta Program can calm overactive mast cells and reduce overall symptom severity. Diet Plays a Vital Role: A low-histamine diet can be transformative for people with MCAS, reducing inflammation and improving gut health. Small Steps Lead to Big Changes: Healing requires incremental improvements, like reducing toxic exposure, supporting adrenal function, and improving sleep and nutrition. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Find the transcript here: https://www.bendybodiespodcast.com/mast-cells-a-hidden-trigger/#transcript Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Jill Carnahan, MD IG: @drjillcarnahan/ FB: @flatironfunctionalmedicine YT: @JillCarnahanMD Book: https://amzn.to/4gVvtib Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles your most pressing questions about preparing for surgery with conditions like Ehlers-Danlos Syndrome (EDS), POTS, and MCAS. Dr. Bluestein explains how the recent IV fluid shortage may affect you, which supplements to stop before surgery, and why hydration is key for successful outcomes. She also addresses the importance of communicating with your surgeon about your unique medical needs and provides practical pre- and post-surgery hacks to optimize recovery. Packed with valuable tips, this episode is a must-listen for anyone navigating surgery with chronic conditions. Takeaways: IV Fluid Shortages Can Impact Surgery: The recent IV fluid shortage in the U.S. means patients may receive less fluid during surgery, making pre-surgery hydration even more critical, especially for those with POTS. Stop Certain Supplements Before Surgery: Supplements like ginger, garlic, ginkgo, ginseng, fish oil, turmeric, and CBD oil can increase bleeding risk and should be stopped 1-2 weeks before surgery. Talk to Your Surgeon About Medications: People with POTS or MCAS may need to adjust medications before surgery. Discuss your supplements and medications with your surgical team to avoid complications. Hydration is Essential: Going into surgery well-hydrated can make IV insertion easier and help prevent complications, especially for those with chronic illnesses like POTS. Tailor Your Pain Management Plan: Discuss post-surgery pain management with your doctor ahead of time to ensure you have appropriate medications and tools to manage pain and prevent complications like constipation. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with her personal physical therapist, Dr. Emily Bohan, about the often-overlooked role of pelvic floor health in people with hypermobility, EDS, and related conditions. Emily explains why pelvic floor dysfunction can cause issues like low back pain, hip instability, urinary incontinence, and constipation. She shares her expertise on how to strengthen and relax the pelvic floor safely, emphasizing why Kegels aren't always the answer. Packed with practical tips, including "stop power peeing" and incremental exercise strategies, this episode provides actionable insights to help anyone dealing with pelvic or musculoskeletal pain. Takeaways: Pelvic Floor Dysfunction Affects More Than You Think: Issues like low back pain, hip pain, constipation, and urinary incontinence can often be traced to pelvic floor tension or weakness. Kegels Aren't Always the Solution: Many people have overly tight pelvic floor muscles, making relaxation and proper breathing more effective than strengthening exercises like Kegels. Power Peeing is a No-No: Pushing or straining during urination can harm the pelvic floor over time, increasing the risk of prolapse and dysfunction. Incremental Progress Prevents Flares: For hypermobile individuals, small, controlled increases in movement and load are key to building strength without worsening pain. Pelvic Floor Therapy Is for Everyone: Pelvic floor physical therapy benefits people of all genders and ages, from postpartum women to male athletes experiencing pelvic pain. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Emily Bohan IG: @bohanpttraining TT: @bohanpttraining FB: Bohan PT Training Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this deeply meaningful episode of the Bendy Bodies Podcast, Dr. Linda Bluestein reconnects with her very first EDS patient, Lauren Vasko. Lauren shares her remarkable story of resilience, from navigating life in a wheelchair, managing Cranial-Cervical Instability (CCI), and battling POTS, to regaining her independence and teaching art in Kenya. She reflects on her challenges with misdiagnoses, traumatic medical experiences, and the importance of self-advocacy. Lauren reveals the tools, treatments, and mindset shifts that helped her heal, including physical therapy, medications, supplements, and setting boundaries. Her message of hope reminds us that even the hardest journeys can lead to unexpected triumphs. NOTE: Due to some technical limitations, Lauren's video will showcase lines over her frame, but it should not impact her audio or any of her amazing comments! Takeaways: Believe Healing Is Possible: Lauren emphasizes the importance of overcoming a “victim mentality” and truly believing in your ability to improve, no matter how severe your condition feels. Small Wins Add Up: Success doesn't come all at once. Lauren highlights how small changes—5% improvements—eventually added up to transformative progress in her life. Advocate for Yourself: Lauren's journey shows the importance of questioning medical advice, finding the right providers, and being actively involved in your care. Physical Therapy and Traction Were Game-Changers: Specialized physical therapy, dry needling, and cervical traction played key roles in helping Lauren avoid invasive surgery for CCI (Cranial-Cervical Instability). Set Boundaries for Health and Identity: Lauren shares the importance of not letting your diagnosis define you, setting boundaries with support communities, and finding joy in new passions like art and teaching. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Lauren Vasko Instagram: @asformeandmyhealth Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with leading autonomic specialist Dr. Satish Raj about POTS (Postural Orthostatic Tachycardia Syndrome), dysautonomia, and orthostatic intolerance. Dr. Raj delves into the complexity of these conditions, including their diverse causes, challenges in diagnosis, and innovative treatments. Learn why POTS is a "feeling faint" disorder rather than a fainting disorder, the role of compression garments and increased sodium intake, and how non-pharmacological treatments form the foundation of care. Packed with practical advice and expert insights, this episode is essential listening for anyone navigating POTS or related conditions. Takeaways: POTS is a "Feeling Faint" Disorder: Unlike fainting disorders, POTS is characterized by persistent symptoms of lightheadedness and discomfort without necessarily leading to fainting. Non-Pharmacological Treatments First: Increasing salt and water intake, wearing compression garments (focusing on the abdomen and pelvis), and engaging in tailored exercise programs form the foundation of POTS management. Dr. Raj emphasizes some key details, improving the odds of success. Individualized Treatment Matters: Compression garments not only aid in blood flow but may also provide joint stabilization benefits for hypermobile patients. POTS is Multifactorial: The causes of POTS are diverse, ranging from post-viral onset to structural and blood volume issues, requiring a nuanced, patient-specific approach to treatment. Exercise Takes Time but Works: Low-resistance, reclined exercises like rowing and cycling can improve cardiac output and quality of life, but patients need to commit for at least six weeks to notice meaningful improvements. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Satish Raj Website: https://www.ehlers-danlos.com/satish-raj/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this informative solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, dives into pressing topics impacting the hypermobility community. Learn about the new anesthesia time limit policy from Anthem Blue Cross (that was then reversed), how to manage Mast Cell Activation Syndrome (MCAS), understand food allergy testing, and find the best coaching options for those with complex conditions. Takeaways: New Anesthesia Policy Impacts EDS Patients: Anthem Blue Cross introduced time limits on anesthesia coverage, potentially shifting extra costs to patients if surgeries exceed these limits, making communication with providers essential. (This decision was then reversed after widespread public outcry demonstrating the importance of using our voices) MCAS Management is Personalized: Keeping a detailed symptom journal and identifying unique triggers are critical for managing mast cell activation syndrome effectively. Food Allergy Testing Limitations: Standard allergy tests may not reliably identify food triggers for those with MCAS, emphasizing the importance of symptom tracking and tailored elimination diets. Coaching vs. Medical Appointments: Coaching offers faster access and flexibility for guidance, but differs from medical services as it doesn't include prescriptions or lab orders. Hypermobility Hacks for Surgery Prep: Stay informed about your insurance policies, maintain open communication with your healthcare team, and advocate for alternative payment or scheduling options if needed. Modifying Supplements for Surgery: Nutritional supplements that increase bleeding risk and/or interfere with medications used for anesthesia are discussed. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
© 2020-2025 Ivy Podcast Discovery LLC
