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What if your symptoms weren't isolated… but signals in a much larger system breakdown? In this wide-ranging solo Q&A, Dr. Linda Bluestein uncovers the hidden threads connecting uncontrolled pain before surgery, unexplained eye issues, MCAS, multiple chemical sensitivity, Alpha-gal syndrome, and even autism risk. From the scar tissue no one warned you about to the medication that works—but doctors won't prescribe—it's all here. Dr. Bluestein shares eye-opening research on TILT (Toxicant-Induced Loss of Tolerance), fragrance-triggered flares, and why standard pre-op care fails patients with connective tissue disorders. And woven throughout it all? The heavy, frustrating stigma that people with Ehlers-Danlos syndromes and hypermobility spectrum disorders know too well—being dismissed, doubted, and disbelieved. This episode doesn't just give answers. It reveals what questions you should have been asking all along. Takeaways: This one over-the-counter product might be behind your chronic eye issues—and no one's talking about it. Considerations and cautions for taking cromolyn A “safe” eye ointment led to lasting damage—here's why. Doctors say no to pain meds before surgery… but do they know the full risk? A tick bite and subsequent food allergy changes everything—even your shampoo. Find the episode transcript here. Reference Links: EP 140 with Dr. Brayden P. Yellman: https://youtu.be/mMMM7gmyrbk EP 127 with Dr. Emily Bohan: https://youtu.be/9ngUY9VPRcc EP 125 with Dr. Satish Raj: https://youtu.be/2WuDkH1TDns EP 120 with Wendy Wagner: https://youtu.be/YeRfTiGkDuA EP 109 with Dr. Tina Wang: https://youtu.be/w6iGZzRa-Q0 EP 108 with Katie and Andrew Dettelbach: https://youtu.be/hu907Z4Ldk4 EP 92 with Dr. Lillian Holm: https://youtu.be/QR9PZoA2ku0 EP 83 with Jill Miller: https://youtu.be/e86nO9PlKfQ EP 81 with Lisa Ralston: https://youtu.be/PKMcEUGcDWY EP 75 with Dr. Patty Stott: https://youtu.be/C5cATkq1a_k Check out Refresh Celluvisc Eye Gel, OcuSoft Lid Scrub and the book, Holistic Pain Relief as well as her other favorites at Dr. Bluestein's Amazon Store https://amzn.to/3RAjueJ https://www.amazon.com/shop/hypermobilitymd Toxicant Induced Loss of Tolerance (TILT) Tests https://tiltresearch.org/self-assessment/ TILT Resources https://tiltresearch.org/resources/ Assessing Chemical Intolerance in Parents Predicts the Risk of Autism and ADHD in Their Children - PubMed Food Compatibility List https://www.twoalphagals.com/ https://www.veganmed.org/ YouTube Playlist on Moving with EDS and HSD https://youtube.com/playlist?list=PLX9StmpQKW30miVUD3DHWXjLq_Vs2VKrF&si=qU66cuujtCG_PH1f Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links.
What if your symptoms weren't isolated… but signals in a much larger system breakdown? In this wide-ranging solo Q&A, Dr. Linda Bluestein uncovers the hidden threads connecting uncontrolled pain before surgery, unexplained eye issues, MCAS, multiple chemical sensitivity, Alpha-gal syndrome, and even autism risk. From the scar tissue no one warned you about to the medication that works—but doctors won't prescribe—it's all here. Dr. Bluestein shares eye-opening research on TILT (Toxicant-Induced Loss of Tolerance), fragrance-triggered flares, and why standard pre-op care fails patients with connective tissue disorders. And woven throughout it all? The heavy, frustrating stigma that people with Ehlers-Danlos syndromes and hypermobility spectrum disorders know too well—being dismissed, doubted, and disbelieved. This episode doesn't just give answers. It reveals what questions you should have been asking all along. Takeaways: This one over-the-counter product might be behind your chronic eye issues—and no one's talking about it. Considerations and cautions for taking cromolyn A “safe” eye ointment led to lasting damage—here's why. Doctors say no to pain meds before surgery… but do they know the full risk? A tick bite and subsequent food allergy changes everything—even your shampoo. Find the episode transcript here. Reference Links: EP 140 with Dr. Brayden P. Yellman: https://youtu.be/mMMM7gmyrbk EP 127 with Dr. Emily Bohan: https://youtu.be/9ngUY9VPRcc EP 125 with Dr. Satish Raj: https://youtu.be/2WuDkH1TDns EP 120 with Wendy Wagner: https://youtu.be/YeRfTiGkDuA EP 109 with Dr. Tina Wang: https://youtu.be/w6iGZzRa-Q0 EP 108 with Katie and Andrew Dettelbach: https://youtu.be/hu907Z4Ldk4 EP 92 with Dr. Lillian Holm: https://youtu.be/QR9PZoA2ku0 EP 83 with Jill Miller: https://youtu.be/e86nO9PlKfQ EP 81 with Lisa Ralston: https://youtu.be/PKMcEUGcDWY EP 75 with Dr. Patty Stott: https://youtu.be/C5cATkq1a_k Check out Refresh Celluvisc Eye Gel, OcuSoft Lid Scrub and the book, Holistic Pain Relief as well as her other favorites at Dr. Bluestein's Amazon Store https://amzn.to/3RAjueJ https://www.amazon.com/shop/hypermobilitymd Toxicant Induced Loss of Tolerance (TILT) Tests https://tiltresearch.org/self-assessment/ TILT Resources https://tiltresearch.org/resources/ Assessing Chemical Intolerance in Parents Predicts the Risk of Autism and ADHD in Their Children - PubMed Food Compatibility List https://www.twoalphagals.com/ https://www.veganmed.org/ YouTube Playlist on Moving with EDS and HSD https://youtube.com/playlist?list=PLX9StmpQKW30miVUD3DHWXjLq_Vs2VKrF&si=qU66cuujtCG_PH1f Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices
Bright on Buddhism - Episode 113 - How does Buddhism argue that one must respond when they have been wronged? Does it teach that you should just take it and not respond at all? How does this relate to Buddhist influenced martial arts?Resources: Canzonieri, Salvatore. "The Emergence of the Chinese Martial arts". Han Wei Wushu (23).; Henning, Stanley (1999b). "Martial arts Myths of Shaolin Monastery, Part I: The Giant with the Flaming Staff". Journal of the Chenstyle Taijiquan Research Association of Hawaii. 5 (1).; Henning, Stanley E. (Fall 1999). "Academia Encounters the Chinese Martial arts". China Review International. 6 (2): 319–332. doi:10.1353/cri.1999.0020. ISSN 1069-5834.; Zhāng Kǒngzhāo 張孔昭 (c. 1784). Boxing Classic: Essential Boxing Methods 拳經拳法備要 Quánjīng Quánfǎ Bèiyào (in Chinese).; Kit, Wong Kiew (2002). Art of Shaolin Kung Fu: The Secrets of Kung Fu for Self-Defense Health and Enlightenment.; Order of the Shaolin Ch'an (2004, 2006). The Shaolin Grandmaster's Text: History, Philosophy, and Gung Fu of Shaolin Ch'an. Oregon.; Shahar, Meir (2008). The Shaolin Monastery: History, Religion, and the Chinese Martial Arts. Honolulu: University of Hawai'i Press. ISBN 978-0824831103.; Liu, James J.Y. (1967). The Chinese Knight Errant. London: Routledge and Kegan Paul. pp. 87–88. ISBN 0-2264-8688-5.; Henning, Stanley (1994). "The Chinese Martial Arts in Historical Perspective" (PDF). Journal of the Chenstyle Taijiquan Research Association of Hawaii. 2 (3): 1–7.; Henning, Stan; Green, Tom (2001). "Folklore in the Martial Arts". In Green, Thomas A. (ed.). Martial Arts of the World: An Encyclopedia. Santa Barbara, Calif: ABC-CLIO.; Shahar, Meir (2000). "Epigraphy, Buddhist Historiography, and Fighting Monks: The Case of The Shaolin Monastery". Asia Major. Third Series. 13 (2): 15–36.; Shahar, Meir (December 2001). "Ming-Period Evidence of Shaolin Martial Practice". Harvard Journal of Asiatic Studies. 61 (2). Harvard Journal of Asiatic Studies, Vol. 61, No. 2: 359–413. doi:10.2307/3558572. ISSN 0073-0548. JSTOR 3558572. S2CID 91180380.; Francis, B.K. (1998). Power of Internal Martial Arts: Combat Secrets of Ba Gua, Tai Chi, and Hsing-I. North Atlantic Books.; Ueshiba, Kisshōmaru (2004). The Art of Aikido: Principles and Essential Techniques. Kodansha International. p. 70. ISBN 4-7700-2945-4.; Saotome, Mitsugi (1989). The Principles of Aikido. Boston, Massachusetts: Shambhala. p. 222. ISBN 978-0-87773-409-3.; Westbrook, Adele; Ratti, Oscar (1970). Aikido and the Dynamic Sphere. Tokyo, Japan: Charles E. Tuttle Company. pp. 16–96. ISBN 978-0-8048-0004-4.; David Jones (2015). Martial Arts Training in Japan: A Guide for Westerners. Tuttle Publishing. p. 65. ISBN 978-1-4629-1828-7.; Michael A. Gordon (2019). Aikido as Transformative and Embodied Pedagogy: Teacher as Healer. Springer. p. 28. ISBN 978-3-030-23953-4.; Ueshiba, Morihei (2013). Budo: Teachings Of The Founder Of Aikido. New York: Kodansha America. pp. 33–35. ISBN 978-1-56836-487-2.; gar-Hutton, Robert (2018). The Metamorphosis of Tai Chi: Created to kill; evolved to heal; teaching peace. Ex-L-Ence Publishing. ISBN 978-1-9164944-1-1.; Bluestein, Jonathan (2014). Research of Martial Arts. CreateSpace. ISBN 978-1-4991-2251-0.; Bond, Joey (1999). See Man Jump See God Fall: Tai Chi Vs. Technology. International Promotions Promotion Pub. ISBN 978-1-57901-001-0.; Choy, Kam Man (1985). Tai Chi Chuan. San Francisco, California: Memorial Edition 1994.[ISBN missing]; Davis, Barbara (2004). Taijiquan Classics: An Annotated Translation. North Atlantic Books. ISBN 978-1-55643-431-0.Do you have a question about Buddhism that you'd like us to discuss? Let us know by emailing us at Bright.On.Buddhism@gmail.com.Nick Bright: Script, Cover Art, Music, Voice of Hearer, Co-HostProven Paradox: Editing, mixing and mastering, social media, Voice of Hermit, Co-Host
How can dance teachers and studio owners truly support their most flexible students? In this essential episode host Loren Dermody welcomes back Dr. Linda Bluestein, renowned physician, former dancer, and expert in hypermobility, for her sixth appearance during Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders Awareness Month. Dr. Bluestein reveals why early recognition of connective tissue disorders is critical in dance, sharing practical signs teachers can spot, from difficulty building muscle to recurring injuries and even digestive issues. She explains why standard screening tools like the Beighton score often fall short for dancers, and offers actionable advice on what really works in the studio. Learn how to recognize the subtle signs of hypermobility, prevent common injuries, and empower your dancers to thrive. Whether you're a studio owner or passionate teacher, this episode will give you the knowledge to make a real difference in your dancers' lives. Don't miss this insightful conversation with Dr. Linda Bluestein, exclusively on The Acrobatic Arts Podcast! Important Links Bending Boundaries: The Role of Joint Hypermobility in Dance About Dr. Linda Bluestein In addition to her private medical practice, Hypermobility MD, Dr. Bluestein is the founder and co-host of the podcast, Bendy Bodies with the Hypermobility MD, and former co-host of “Hypermobility Happy Hour.” Dr. Bluestein is the Director of Education for the nonprofit, EDS Wellness, Inc. and founder and executive director of Bendy Bodies, an organization dedicated to empowering hypermobile performing artists. She has published a number of original research papers; presents work at national and international conferences, and is a contributing author for the book, Disjointed - Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders. Dr. Bluestein is a member of the Board of Directors for the Bridge Dance Project, the Allergy and Immunology Working Group for the International Consortium on EDS and HSD, the Advisory Board for Doctors for Dancers, and the Resources Committee for the Dance Healthy Alliance of Canada. More information about Dr. Bluestein can be found on her website, www.hypermobilitymd.com. Links: Hypermobility MD Hypermodbility MD Podcast Bendy Bodies If you'd like more amazing content more tips and ideas check out our Acrobatic Arts Channel on YouTube. Subscribe Now! Connect with Acrobatic Arts on your favourite social media platform: Instagram: https://www.instagram.com/acrobaticarts/ Facebook: https://www.facebook.com/Acroarts Twitter: https://twitter.com/acrobatic_arts/ Learn more and register for our programs at AcrobaticArts.com
What if your dental history held the key to a complex diagnosis no one's caught? In this gripping episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Audrey Kershaw, a trailblazing oral surgeon who's uncovered hundreds of hidden Ehlers-Danlos Syndrome (EDS) cases—starting in the dental chair. From patients who “can't numb up,” to decades-long battles with halitosis, gum fragility, and jaw instability, Dr. Kershaw shares the subtle (and sometimes shocking) signs that suggest something far deeper is at play. Together, they explore what happens when TMD, failed anesthesia, slow healing, and even bad breath point to connective tissue disorders that most dentists never learn about. If your mouth has always felt... different—this episode might explain why. Find the episode transcript here. Takeaways: Some patients can't numb up… and the reason may change how you see your entire body. Your wisdom tooth extraction might've revealed more than just a dental issue. That persistent jaw pain? It may be pointing to something systemic. A 40-year case of bad breath led to an unexpected diagnosis—here's what happened. You might be able to spot a connective tissue disorder… before a dentist even says a word. Reference Links: GIRFT RCS TMD full document. https://www.rcseng.ac.uk/-/media/FDS/Comprehensive-guideline-Management-of-painful-Temporomandibular-disorder-in-adults-March-2024.pdf GITFT RCS TMD patient summary document. https://www.rcseng.ac.uk/-/media/FDS/TMD-Patient-support-document-March-2024.pdf GIRFT RCS TMD Clinician summary document https://www.rcseng.ac.uk/-/media/FDS/TMD-Clinician-summary-document-March-2024.pdf Scottish Dental Magazine article EDS Article Scottish_Dental_magazine_October_2023 p38-39[77].pdf BISOM link to mouth ulcers https://bisom.org.uk/wp-content/uploads/2020/02/RAS-PIL-October-2019.pdf LA paper 2019 https://pmc.ncbi.nlm.nih.gov/articles/PMC6834718/ Link to pt EDS email EDS PATIENT EMAIL April 2025.docx Link to "Perioperative Management of Patients with Ehlers-Danlos Syndromes" by Drs. Chopra and Bluestein https://www.scirp.org/journal/paperinformation?paperid=97524 Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Dr. Audrey Kershaw: Website: https://www.oralsurgery.scot/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network
What if your dental history held the key to a complex diagnosis no one's caught? In this gripping episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Audrey Kershaw, a trailblazing oral surgeon who's uncovered hundreds of hidden Ehlers-Danlos Syndrome (EDS) cases—starting in the dental chair. From patients who “can't numb up,” to decades-long battles with halitosis, gum fragility, and jaw instability, Dr. Kershaw shares the subtle (and sometimes shocking) signs that suggest something far deeper is at play. Together, they explore what happens when TMD, failed anesthesia, slow healing, and even bad breath point to connective tissue disorders that most dentists never learn about. If your mouth has always felt... different—this episode might explain why. Find the episode transcript here. Takeaways: Some patients can't numb up… and the reason may change how you see your entire body. Your wisdom tooth extraction might've revealed more than just a dental issue. That persistent jaw pain? It may be pointing to something systemic. A 40-year case of bad breath led to an unexpected diagnosis—here's what happened. You might be able to spot a connective tissue disorder… before a dentist even says a word. Reference Links: GIRFT RCS TMD full document. https://www.rcseng.ac.uk/-/media/FDS/Comprehensive-guideline-Management-of-painful-Temporomandibular-disorder-in-adults-March-2024.pdf GITFT RCS TMD patient summary document. https://www.rcseng.ac.uk/-/media/FDS/TMD-Patient-support-document-March-2024.pdf GIRFT RCS TMD Clinician summary document https://www.rcseng.ac.uk/-/media/FDS/TMD-Clinician-summary-document-March-2024.pdf Scottish Dental Magazine article EDS Article Scottish_Dental_magazine_October_2023 p38-39[77].pdf BISOM link to mouth ulcers https://bisom.org.uk/wp-content/uploads/2020/02/RAS-PIL-October-2019.pdf LA paper 2019 https://pmc.ncbi.nlm.nih.gov/articles/PMC6834718/ Link to pt EDS email EDS PATIENT EMAIL April 2025.docx Link to "Perioperative Management of Patients with Ehlers-Danlos Syndromes" by Drs. Chopra and Bluestein https://www.scirp.org/journal/paperinformation?paperid=97524 Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Dr. Audrey Kershaw: Website: https://www.oralsurgery.scot/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network
What if the very things you do to feel or look better are quietly making you worse? In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein answers listener questions—but what begins as a practical Q&A quickly dives into rarely discussed truths about cosmetic procedures, EMFs, neuroinflammation, and even fragrances as dangerous triggers. You'll hear surprising stories from patients who've suffered unexpected complications—and discover how seemingly harmless habits, like party tricks or perfume, could be tipping the scale toward long-term damage. Plus, Dr. Bluestein unpacks the case for renaming MCAS, the underrecognized connection between transness and hypermobility, and why your surgeon might not be as EDS-aware as they claim. If you think you've already heard it all about EDS, MCAS, and chronic illness—you haven't heard this. Takeaways: A harmless beauty treatment… until it's not. Learn what no one tells you about EDS and cosmetic procedures. What if your MRI looks “normal”—but your spine is screaming otherwise? Think party tricks are just for fun? Your joints might not agree. One invisible environmental trigger may be silently wrecking your nervous system. Even your surgeon might not know this one crucial detail—unless you ask the right question. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
What if the very things you do to feel or look better are quietly making you worse? In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein answers listener questions—but what begins as a practical Q&A quickly dives into rarely discussed truths about cosmetic procedures, EMFs, neuroinflammation, and even fragrances as dangerous triggers. You'll hear surprising stories from patients who've suffered unexpected complications—and discover how seemingly harmless habits, like party tricks or perfume, could be tipping the scale toward long-term damage. Plus, Dr. Bluestein unpacks the case for renaming MCAS, the underrecognized connection between transness and hypermobility, and why your surgeon might not be as EDS-aware as they claim. If you think you've already heard it all about EDS, MCAS, and chronic illness—you haven't heard this. Takeaways: A harmless beauty treatment… until it's not. Learn what no one tells you about EDS and cosmetic procedures. What if your MRI looks “normal”—but your spine is screaming otherwise? Think party tricks are just for fun? Your joints might not agree. One invisible environmental trigger may be silently wrecking your nervous system. Even your surgeon might not know this one crucial detail—unless you ask the right question. Find the transcript for this episode here. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network
This is a trailer for this episode:
Don't bend the knee to hypermobility! Learn how to evaluate patients for possible joint hypermobility, what associated conditions to be mindful of, and where to start with management. We're joined by Dr. Linda Bluestein, @BluesteinLinda (https://www.hypermobilitymd.com), who shares her years of experience in treating patients with hypermobility! Claim CME for this episode at curbsiders.vcuhealth.org! Patreon | Episodes | Subscribe | Spotify | YouTube | Newsletter | Contact | Swag! | CME Show Segments Intro and getting to know our guest Case from Kashlak Hypermobility definitions and background Initial screening for hypermobility Physical examination Associated conditions and symptoms Management principles of joint hypermobility Outro Credits Writer and Producer: Paul Williams, MD, FACP Show Notes: Paul Williams, MD, FACP Infographic and Cover Art: Paul Williams, MD, FACP Hosts: Matthew Watto MD, FACP; Paul Williams MD, FACP Reviewer: Emi Okamoto, MD Showrunners: Matthew Watto MD, FACP; Paul Williams MD, FACP Technical Production: PodPaste Guest: Linda Bluestein, MD Disclosures Dr. Bluestein reports no relevant financial disclosures. The Curbsiders report no relevant financial disclosures. Sponsor: Quince Go to Quince.com/curb for free shipping on your order and 365 returns. Sponsor: Mint Mobile Shop data plans at MINTMOBILE.com/CURB to get 3 months of premium wireless service from Mint Mobile for $15 a month Sponsor: Continuing Education Company Special offer for Curbsiders listeners: Save 30% on all online courses and live webcasts with promo code CURB30. Visit www.CMEmeeting.org/curbsiders to explore all offerings and claim your discount.
What if the very things you do to feel or look better are quietly making you feel worse? In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein answers listener questions—but what begins as a practical Q&A quickly dives into rarely discussed truths about cosmetic procedures, EMFs, neuroinflammation, and even fragrances as dangerous triggers. You'll hear surprising stories from patients who've suffered unexpected complications—and discover how seemingly harmless habits, like party tricks or perfume, could be tipping the scale toward long-term damage. Plus, Dr. Bluestein unpacks the case for renaming MCAS, the underrecognized connection between transness and hypermobility, and why your surgeon might not be as EDS-aware as they claim. If you think you've already heard it all about EDS (Ehlers-Danlos Syndromes), HSD (Hypermobility Spectrum Disorders), MCAS (Mast Cell Activation Syndrome), and chronic illness—you haven't heard this. Takeaways: You might be surprised to learn which test isn't as useful for diagnosing MCAS as people think. The brain fog you're feeling? There's a cellular player involved—and it's not just inflammation. Some reactions you're calling “allergies” might be something very different (and trickier to detect). The way mast cells interact with the brain could change how we think about neurodevelopment. A few supplements could help—but only if you're asking the right questions first. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Dr. Theoharis Theoharides Website: https://www.drtheoharides.com/ Podcast Link: https://algonot.com/ Blogs: https://www.nova.edu/nim/neuroinflammation-research/index.html LinkedIn: https://www.linkedin.com/in/theoharis-theoharides-ms-phd-md-faaaai-67123735 Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this solo Q&A episode, Dr. Linda Bluestein answers your biggest hypermobility questions, tackling topics like whether getting an official EDS (Ehlers-Danlos Syndromes) diagnosis is worth it, which pain medications actually help, how to improve posture, and the growing stigma around EDS. She also discusses visceroptosis (organ prolapse), posture braces, and the legalities of medical centers refusing EDS patients. Dr. Bluestein shares practical hypermobility hacks and gives insight into the challenges patients face when seeking care. If you've ever wondered how to advocate for yourself, manage pain, or improve daily function, this episode is packed with expert advice and actionable tips. Takeaways: Should You Get an EDS Diagnosis? – Listen as Dr. Bluestein describes how an official diagnosis can provide validation and access to specialists, yet may also lead to insurance and medical stigma issues. Pain Medications for EDS Are Off-Label – Dr. Bluestein explains which medications she has found most helpful for managing symptoms. How Can Posture Be Improved – Dr. Bluestein shares which posture-support garments she prefers and how to use them in a way to avoid muscle weakening. EDS Stigma is Getting Worse – Misinformation causes some doctors to dismiss EDS patients as exaggerating or attention-seeking. Learn how to advocate and educate your providers. Some Medical Centers Refuse EDS Patients – While emergency rooms must treat everyone, clinics and specialists can decline to see EDS patients, making self-advocacy and persistence essential. Listen in to hear how you can avoid having this happen to you. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find the episode transcript here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this solo Q&A episode, Dr. Linda Bluestein answers your biggest hypermobility questions, tackling topics like whether getting an official EDS (Ehlers-Danlos Syndromes) diagnosis is worth it, which pain medications actually help, how to improve posture, and the growing stigma around EDS. She also discusses visceroptosis (organ prolapse), posture braces, and the legalities of medical centers refusing EDS patients. Dr. Bluestein shares practical hypermobility hacks and gives insight into the challenges patients face when seeking care. If you've ever wondered how to advocate for yourself, manage pain, or improve daily function, this episode is packed with expert advice and actionable tips. Takeaways: Should You Get an EDS Diagnosis? – Listen as Dr. Bluestein describes how an official diagnosis can provide validation and access to specialists, yet may also lead to insurance and medical stigma issues. Pain Medications for EDS Are Off-Label – Dr. Bluestein explains which medications she has found most helpful for managing symptoms. How Can Posture Be Improved – Dr. Bluestein shares which posture-support garments she prefers and how to use them in a way to avoid muscle weakening. EDS Stigma is Getting Worse – Misinformation causes some doctors to dismiss EDS patients as exaggerating or attention-seeking. Learn how to advocate and educate your providers. Some Medical Centers Refuse EDS Patients – While emergency rooms must treat everyone, clinics and specialists can decline to see EDS patients, making self-advocacy and persistence essential. Listen in to hear how you can avoid having this happen to you. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find the episode transcript here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein dives deep into the complex world of hormones, menopause, and connective tissue disorders. She explores how estrogen, progesterone, and testosterone impact joint health, the benefits and risks of hormone replacement therapy (HRT), and why menopause can worsen EDS symptoms. Dr. Bluestein also breaks down gender-affirming hormone therapy, the role of mast cells in hormonal responses, and why some testosterone clinics may not have your best interests at heart. Whether you're considering HRT, navigating menopause with hypermobility, or wondering how hormones influence mast cells, this episode is packed with practical advice and science-backed insights. Takeaways: Hormones Affect Connective Tissue & Joint Stability – Estrogen, testosterone, and progesterone all influence collagen production, ligament strength, and tissue elasticity, which is why hormonal changes impact pain and mobility. Menopause Can Worsen EDS Symptoms – The decline in estrogen post-menopause contributes to joint pain, fatigue, and increased injury risk, making HRT a potential tool for symptom management. Testosterone Therapy Has Benefits & Risks – While testosterone can improve muscle mass, bone density, and fatigue, it must be monitored carefully to avoid cardiovascular risks, clotting issues, and hormone imbalances. Be Cautious with Hormone Clinics – Some online or walk-in testosterone clinics prioritize sales over patient health, so always ensure proper lab testing and medical oversight before starting HRT. Mast Cells Respond to Hormonal Changes – Hormones like estrogen and progesterone can trigger mast cell activation, impacting inflammation, pain, and allergic responses—especially in conditions like MCAS and POTS. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find the transcript for this episode here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein dives deep into the complex world of hormones, menopause, and connective tissue disorders. She explores how estrogen, progesterone, and testosterone impact joint health, the benefits and risks of hormone replacement therapy (HRT), and why menopause can worsen EDS symptoms. Dr. Bluestein also breaks down gender-affirming hormone therapy, the role of mast cells in hormonal responses, and why some testosterone clinics may not have your best interests at heart. Whether you're considering HRT, navigating menopause with hypermobility, or wondering how hormones influence mast cells, this episode is packed with practical advice and science-backed insights. Takeaways: Hormones Affect Connective Tissue & Joint Stability – Estrogen, testosterone, and progesterone all influence collagen production, ligament strength, and tissue elasticity, which is why hormonal changes impact pain and mobility. Menopause Can Worsen EDS Symptoms – The decline in estrogen post-menopause contributes to joint pain, fatigue, and increased injury risk, making HRT a potential tool for symptom management. Testosterone Therapy Has Benefits & Risks – While testosterone can improve muscle mass, bone density, and fatigue, it must be monitored carefully to avoid cardiovascular risks, clotting issues, and hormone imbalances. Be Cautious with Hormone Clinics – Some online or walk-in testosterone clinics prioritize sales over patient health, so always ensure proper lab testing and medical oversight before starting HRT. Mast Cells Respond to Hormonal Changes – Hormones like estrogen and progesterone can trigger mast cell activation, impacting inflammation, pain, and allergic responses—especially in conditions like MCAS and POTS. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find the transcript for this episode here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
Dr. Jill Carnahan and Dr. Linda Bluestein will provide a comprehensive overview of joint hypermobility, including its association with conditions like Postural Orthostatic Tachycardia Syndrome (POTS) and Mast Cell Activation Syndrome (MCAS). Understanding these connections can be pivotal in managing symptoms and improving overall quality of life. ✅ Learn the connection between hypermobility and disorders like Mast Cell Activation Syndrome (MCAS) and Postural Orthostatic Tachycardia Syndrome (POTS) and strategies for regulating the nervous system, reducing pain, and improving quality of life. ✅ Why hypermobility is common in dancers, gymnasts, and elite athletes, and how it can be both an asset and a liability. ✅ How diet, lifestyle, and targeted supplementation can help mitigate symptoms of hypermobility-related conditions and the importance of a multidisciplinary approach, including collaborations with physical therapists, nutritionists, and neurologists. Dr. Linda Bluestein, MD Dr. Linda Bluestein, MD, is a leading expert in hypermobility disorders, offering specialized care at Hypermobility MD. She also runs Bendy Bodies, a coaching practice that empowers those with hypermobility. As host of the "Bendy Bodies with the Hypermobility MD" podcast, she shares insights and fosters community. Dr. Bluestein is active in advocacy and research, serving on multiple boards. Learn more at www.hypermobilitymd.com. Links https://www.instagram.com/hypermobilitymd/ https://www.facebook.com/hypermobilityMD https://twitter.com/BluesteinLinda https://www.youtube.com/@bendybodiespodcast https://www.linkedin.com/in/hypermobilitymd/ https://www.tiktok.com/@hypermobilitymdara http://www.bendybodiespodcast.com https://www.hypermobilitymd.com/
In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles your most pressing questions about preparing for surgery with conditions like Ehlers-Danlos Syndrome (EDS), POTS, and MCAS. Dr. Bluestein explains how the recent IV fluid shortage may affect you, which supplements to stop before surgery, and why hydration is key for successful outcomes. She also addresses the importance of communicating with your surgeon about your unique medical needs and provides practical pre- and post-surgery hacks to optimize recovery. Packed with valuable tips, this episode is a must-listen for anyone navigating surgery with chronic conditions. Takeaways: IV Fluid Shortages Can Impact Surgery: The recent IV fluid shortage in the U.S. means patients may receive less fluid during surgery, making pre-surgery hydration even more critical, especially for those with POTS. Stop Certain Supplements Before Surgery: Supplements like ginger, garlic, ginkgo, ginseng, fish oil, turmeric, and CBD oil can increase bleeding risk and should be stopped 1-2 weeks before surgery. Talk to Your Surgeon About Medications: People with POTS or MCAS may need to adjust medications before surgery. Discuss your supplements and medications with your surgical team to avoid complications. Hydration is Essential: Going into surgery well-hydrated can make IV insertion easier and help prevent complications, especially for those with chronic illnesses like POTS. Tailor Your Pain Management Plan: Discuss post-surgery pain management with your doctor ahead of time to ensure you have appropriate medications and tools to manage pain and prevent complications like constipation. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles your most pressing questions about preparing for surgery with conditions like Ehlers-Danlos Syndrome (EDS), POTS, and MCAS. Dr. Bluestein explains how the recent IV fluid shortage may affect you, which supplements to stop before surgery, and why hydration is key for successful outcomes. She also addresses the importance of communicating with your surgeon about your unique medical needs and provides practical pre- and post-surgery hacks to optimize recovery. Packed with valuable tips, this episode is a must-listen for anyone navigating surgery with chronic conditions. Takeaways: IV Fluid Shortages Can Impact Surgery: The recent IV fluid shortage in the U.S. means patients may receive less fluid during surgery, making pre-surgery hydration even more critical, especially for those with POTS. Stop Certain Supplements Before Surgery: Supplements like ginger, garlic, ginkgo, ginseng, fish oil, turmeric, and CBD oil can increase bleeding risk and should be stopped 1-2 weeks before surgery. Talk to Your Surgeon About Medications: People with POTS or MCAS may need to adjust medications before surgery. Discuss your supplements and medications with your surgical team to avoid complications. Hydration is Essential: Going into surgery well-hydrated can make IV insertion easier and help prevent complications, especially for those with chronic illnesses like POTS. Tailor Your Pain Management Plan: Discuss post-surgery pain management with your doctor ahead of time to ensure you have appropriate medications and tools to manage pain and prevent complications like constipation. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
I had the pleasure of exchanging books with Shifu Jonathan Bluestein. I found his detailed take on the often avoided subject of politics in martial arts very interesting. Check out the book here: https://a.co/d/69e4vQF If you would like to connect with Jonathan please check his website below: https://www.bluejadesociety.com/ Support Karate For Mental Health CIC Please help us get Difiblirator Grab a t-shirt! https://kfmhcic.creator-spring.com/ Don't forget to grab your Karate Journal to document your journey: Karate Journal Link: https://amzn.to/3l9spmt If you found value in this episode or enjoyed it, please consider sharing it with your friends on social media. And if it didn't resonate with you, feel free to pass it along to your enemies – perhaps they'll find it enlightening! Support the show at no extra cost to you by shopping on Amazon through my affiliate link, where I receive a small commission on your purchases. It's a win-win! Find the link below. Amazon Affiliate Link: https://amzn.to/3qqfuhy And check out our shop for exclusive merchandise, including the Anxious Black Belt Mug: Les Bubka's Shop: https://lesshop.ammhub.com/accessories/anxious-black-belt-mug About Les Bubka: Author, Karate coach, entrepreneur, and creator of the #Hikite4ever T-shirt. Les promotes inclusive Karate with a focus on the mental health aspects of training. Teaching nationally and internationally. Let's connect: info@lesbubka.co.uk Learn more about your ad choices. Visit podcastchoices.com/adchoices
Larry Bluestein gets your ready for area high school teams preparation for The High School State Championships.
Origins - A podcast about Limited Partners, created by Notation Capital
Stephen Bluestein has had an impressive career in Venture, beginning at Bessemer Venture Partners before moving to TCV, Light Street Capital, and the David and Lucille Packard Foundation, before landing in his current role as a partner in the primary investment team at Adams Street Partners. He sits down with Beezer Clarkson, LP at Sapphire Partners, to discuss what makes a fund a franchise. They discuss the importance of building and maintaining a brand that stands for something in the market, making investments that are consistent with your philosophy, and together, they zero in on the tipping point of when a fund can be officially considered a franchise. Learn more about Sapphire Partners: sapphireventures.com/sapphire-partners Learn more about OpenLP: openlp.vc Learn more about Asylum Ventures: asylum.vc Learn more about Adams Street Partners: adamsstreetpartners.com Subscribe to the OpenLP newsletter for a monthly roundup of the latest venture insights, including the newest Origins episodes, delivered straight to your inbox. CHAPTERS: 0:00-Welcome to Origins2:15-Digging into Franchise Funds: Stephen's Background 6:48-What Defines a Franchise? 15:30-How Long Does it Take to Become a Franchise? 21:06-The Minimum Viable Performance Metric to be Considered a Franchise 27:13-Pivoting From One Exceptional Fund into a Franchise 33:21-How to Inculcate Exceptionality 39:55-Diligencing Franchise Funds 45:28-“Know Thyself”: A Message for Aspiring Franchise Funds
Today on Subscribing to Wellness, we are joined by Ashley Hartman and Andrew Bluestein, Managing Parters @ Bluestein Ventures. Bluestein is a venture capital fund that invests in the future of food. They're looking for game-changing ventures across the food industry that redefine how consumers achieve their health and wellness. Their investments span the entire value chain – both B2C and B2B – with a focus on four areas: high-growth consumer brands, proprietary foodtech, next-gen commerce, and value-add digital technology. They're laser-focused on preeminent and defensible brands, services, technologies, and platforms that have the potential to transform the industry - and are led by creative entrepreneurs who are adept, innovative, nimble, and uncompromising. --- Support this podcast: https://podcasters.spotify.com/pod/show/wellbeingintheworld/support
Kevin Brockway, Gainesville Sun, with Larry Bluestein 11-20-24 full 581 Thu, 21 Nov 2024 02:09:47 +0000 drJCaZezKtUvqT7nhffLW1iLXSy3Nlez sports South Florida High School Sports Radio sports Kevin Brockway, Gainesville Sun, with Larry Bluestein 11-20-24 Driven by Autonation 2024 © 2021 Audacy, Inc. Sports False https://player.amperwavepodcasting.com?feed-link=https%3A%2F%2Frss.amperwave.net%2
In this personal solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, opens up about her journey from aspiring ballet dancer to renowned hypermobility expert. Dr. Bluestein shares her struggles with joint pain, dislocations, and chronic illness, which led to her diagnosis of Ehlers-Danlos Syndrome (EDS). Along with her personal story, Dr. Bluestein reveals the hacks and strategies that have helped her regain function, manage pain, and improve her quality of life. From practical tips to movement strategies, this episode is packed with advice on navigating hypermobility and chronic pain. Whether you're newly diagnosed or a long-time EDS warrior, you'll find plenty of insights and hacks to apply to your own journey. Takeaways: Personal Struggles Led to Professional Focus: Dr. Bluestein's own experiences with chronic pain, multiple surgeries, and hypermobility drove her to shift from being an anesthesiologist to becoming a hypermobility expert and advocate. Hypermobility Affects Multiple Body Systems: Dr. Bluestein's journey highlights how hypermobility and Ehlers-Danlos Syndrome (EDS) can impact various systems in the body, including joints, gastrointestinal issues, and the nervous system. Tarlov Cyst Surgery Was a Turning Point: Dr. Bluestein's diagnosis of a Tarlov cyst and subsequent surgery gave her tremendous relief after years of pain, sparking her commitment to helping others with similar conditions. Movement is Critical for Recovery: Despite the fear of injury, Dr. Bluestein emphasizes the importance of movement for those with EDS, as it is essential for maintaining strength and preventing further dysfunction. Secrets to Living Better: Dr. Bluestein shares the approach she used to improve her own quality of life. This holistic method to help patients manage EDS and chronic pain includes movement, nutrition, psychosocial support, nutritional supplements, and medication. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this personal solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, opens up about her journey from aspiring ballet dancer to renowned hypermobility expert. Dr. Bluestein shares her struggles with joint pain, dislocations, and chronic illness, which led to her diagnosis of Ehlers-Danlos Syndrome (EDS). Along with her personal story, Dr. Bluestein reveals the hacks and strategies that have helped her regain function, manage pain, and improve her quality of life. From practical tips to movement strategies, this episode is packed with advice on navigating hypermobility and chronic pain. Whether you're newly diagnosed or a long-time EDS warrior, you'll find plenty of insights and hacks to apply to your own journey. Takeaways: Personal Struggles Led to Professional Focus: Dr. Bluestein's own experiences with chronic pain, multiple surgeries, and hypermobility drove her to shift from being an anesthesiologist to becoming a hypermobility expert and advocate. Hypermobility Affects Multiple Body Systems: Dr. Bluestein's journey highlights how hypermobility and Ehlers-Danlos Syndrome (EDS) can impact various systems in the body, including joints, gastrointestinal issues, and the nervous system. Tarlov Cyst Surgery Was a Turning Point: Dr. Bluestein's diagnosis of a Tarlov cyst and subsequent surgery gave her tremendous relief after years of pain, sparking her commitment to helping others with similar conditions. Movement is Critical for Recovery: Despite the fear of injury, Dr. Bluestein emphasizes the importance of movement for those with EDS, as it is essential for maintaining strength and preventing further dysfunction. Secrets to Living Better: Dr. Bluestein shares the approach she used to improve her own quality of life. This holistic method to help patients manage EDS and chronic pain includes movement, nutrition, psychosocial support, nutritional supplements, and medication. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, reconnects with her neurosurgeon, Dr. Frank Feigenbaum, who performed her Tarlov cyst surgery in 2011. Dr. Feigenbaum, a leading expert in Tarlov cyst treatment, shares the complexities of diagnosing these cysts, how they affect the nerves, and the groundbreaking surgical techniques he developed. Dr. Bluestein reflects on her personal journey through surgery and recovery, providing listeners with a unique patient-surgeon perspective. Tune in to learn about Tarlov cyst symptoms, diagnostic challenges, and how surgery can restore quality of life. Takeaways: Tarlov Cysts Can Be Symptomatic: While often dismissed as asymptomatic, Tarlov cysts can cause severe pain and neurological symptoms by compressing surrounding nerves. Selective Nerve Blocks Are Key for Diagnosis: To confirm that Tarlov cysts are the source of symptoms, selective nerve blocks can help diagnose and plan surgical interventions. Surgery Is a Lasting Solution: Dr. Feigenbaum's unique surgical approach, involving draining and wrapping the cysts, has shown long-term success with no cyst recurrence at the treated sites. Recovery Takes Time: Nerve healing after surgery can take weeks, months, or even years. Patience is key, as symptoms may improve gradually. The Least Invasive Approach Wins: Dr. Feigenbaum emphasizes doing as little as possible to the cysts during surgery to reduce nerve damage, offering the best chances for recovery. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Frank Feigenbaum: Website: https://www.frankfeigenbaum.com Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, reconnects with her neurosurgeon, Dr. Frank Feigenbaum, who performed her Tarlov cyst surgery in 2011. Dr. Feigenbaum, a leading expert in Tarlov cyst treatment, shares the complexities of diagnosing these cysts, how they affect the nerves, and the groundbreaking surgical techniques he developed. Dr. Bluestein reflects on her personal journey through surgery and recovery, providing listeners with a unique patient-surgeon perspective. Tune in to learn about Tarlov cyst symptoms, diagnostic challenges, and how surgery can restore quality of life. Takeaways: Tarlov Cysts Can Be Symptomatic: While often dismissed as asymptomatic, Tarlov cysts can cause severe pain and neurological symptoms by compressing surrounding nerves. Selective Nerve Blocks Are Key for Diagnosis: To confirm that Tarlov cysts are the source of symptoms, selective nerve blocks can help diagnose and plan surgical interventions. Surgery Is a Lasting Solution: Dr. Feigenbaum's unique surgical approach, involving draining and wrapping the cysts, has shown long-term success with no cyst recurrence at the treated sites. Recovery Takes Time: Nerve healing after surgery can take weeks, months, or even years. Patience is key, as symptoms may improve gradually. The Least Invasive Approach Wins: Dr. Feigenbaum emphasizes doing as little as possible to the cysts during surgery to reduce nerve damage, offering the best chances for recovery. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Frank Feigenbaum: Website: https://www.frankfeigenbaum.com Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this unique solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, answers listener-submitted questions about hypermobile Ehlers-Danlos syndrome (hEDS), POTS, and related conditions. From understanding the importance of a correct diagnosis to tips for managing symptoms, Dr. Bluestein offers valuable insights on living with chronic illness. Learn what to ask your doctor, how to pace yourself with hEDS and POTS, and discover Dr. Bluestein's favorite hypermobility hacks. Whether you're newly diagnosed or have been managing symptoms for years, this episode provides practical advice for navigating the complexities of hypermobility. Takeaways: Diagnosis Matters: A correct diagnosis can provide validation and guide more effective treatment strategies. Pacing with POTS: Learning to listen to your body and finding the right balance between activity and rest is crucial in managing POTS and EDS. Doctor-Patient Communication: Organize and report symptoms clearly to your doctor to improve diagnosis and treatment. Importance of Empathy: Finding a healthcare provider who shows empathy and is willing to learn about EDS can make all the difference. Hypermobile Hacks: Simple strategies, like journaling symptoms and gradual movement, can help manage hypermobility-related pain. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this unique solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, answers listener-submitted questions about hypermobile Ehlers-Danlos syndrome (hEDS), POTS, and related conditions. From understanding the importance of a correct diagnosis to tips for managing symptoms, Dr. Bluestein offers valuable insights on living with chronic illness. Learn what to ask your doctor, how to pace yourself with hEDS and POTS, and discover Dr. Bluestein's favorite hypermobility hacks. Whether you're newly diagnosed or have been managing symptoms for years, this episode provides practical advice for navigating the complexities of hypermobility. Takeaways: Diagnosis Matters: A correct diagnosis can provide validation and guide more effective treatment strategies. Pacing with POTS: Learning to listen to your body and finding the right balance between activity and rest is crucial in managing POTS and EDS. Doctor-Patient Communication: Organize and report symptoms clearly to your doctor to improve diagnosis and treatment. Importance of Empathy: Finding a healthcare provider who shows empathy and is willing to learn about EDS can make all the difference. Hypermobile Hacks: Simple strategies, like journaling symptoms and gradual movement, can help manage hypermobility-related pain. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
Description: Co-hosts Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and Holly Knotowicz, a speech-language pathologist living with EoE who serves on APFED's Health Sciences Advisory Council, interview Dr. Priya Bansal about an allergist's role in treating EoE. In this episode, Ryan and Holly discuss with Dr. Priya Bansal her career in internal medicine, pediatrics, allergies, and immunology. She emphasizes the importance of patient advocacy and encourages parents to not accept the diagnosis that their child is a picky eater when the child is refusing food. Dr. Bansal talks about the process of reaching a diagnosis and EoE treatment options. Listen to this episode for more information about living with EoE and how an allergist can help. Disclaimer: The information provided in this podcast is designed to support, not replace the relationship that exists between listeners and their healthcare providers. Opinions, information, and recommendations shared in this podcast are not a substitute for medical advice. Decisions related to medical care should be made with your healthcare provider. Opinions and views of guests and co-hosts are their own. Key Takeaways: [:51] Ryan Piansky introduces the episode and co-host, Holly Knotowicz. Ryan and Holly will talk about eosinophilic esophagitis (EoE) and how an allergist can help. [1:25] Holly introduces Dr. Priya Bansal, an internist, pediatrician, and allergist, who is on the faculty of Northwestern Feinberg School of Medicine and practices at the Asthma and Allergy Wellness Center in Illinois. [2:06] Dr. Bansal does research and consulting and in a private practice. Throughout her 20-year career, she has enjoyed treating chronic and difficult-to-treat diseases. [3:06] Now, she enjoys patient advocacy, advocating for EoE, and working with the American College of Allergy, Asthma, and Immunology House of Delegates and the American Academy of Allergy, Asthma, and Immunology. [3:38] For new listeners, EoE is an allergic and immune disease of the esophagus. With EoE, eosinophils are found in the lining of the esophagus, causing inflammation, and inviting more eosinophils. EoE is a chronic inflammation of the esophagus. [4:30] A child might have symptoms of food refusal, regurgitation, and abdominal pain. Adults may feel food sticking. The standard for finding eosinophils is endoscopy with six biopsies; two proximal, two mid, and two distal. [5:24] It is a patchy disease, so the allergist will want to partner with a gastroenterologist who will do the biopsies at the three different levels. [6:10] Holly tells how she didn't get diagnosed until she was in her mid-twenties. Her doctors thought she was vomiting for attention. They were not familiar with EoE. She was diagnosed as an adult when working at a major hospital. [7:00] An allergist at a big academic center, working together with a team of doctors from multiple disciplines, may find it easier to diagnose EoE. Many allergists are not working on multi-disciplinary teams. [7:34] An allergist can look at the resources in the community. Dr. Bansal has several gastroenterology centers that refer patients to her. They partner with Dr. Bansal on the diagnosis and treatment. [8:02] In other clinics, it may be the gastroenterologist who takes the lead in treatment and refers to the allergist to manage the allergic disease that exists on top of the EoE. [8:21] As a patient, the diagnosis process depends on where you live. If you have symptoms, don't give up. When Dr. Bansal started, she had to ask pathologists to stain biopsies for eosinophils. Today, staining is done routinely; she doesn't need to ask for it. [9:07] You are your best advocate. If somebody doesn't believe you, that doesn't mean somebody else won't. [9:22] Holly is a feeding specialist in Maine. In the three years she has been there, more than 100 people whom she has referred have been diagnosed with EoE. [10:24] Dr. Bansal says that whether you see an allergist or a GI doctor, depends on which specialty takes the lead on EoE in your community. If you do not have a good rapport with your doctor, make a change. Partner with a doctor who advocates for you. [11:59] Dr. Bansal advises that when seeing a different doctor, to print out your biopsies to bring. If you are using a biologic therapy, print out the scope that you had right before your biologic therapy, too. That biopsy is your golden ticket if you switch insurance companies. [13:02] Dr. Bansal uses Care Everywhere, but she wants to see prints of your labs anyway. Not everyone opts into Care Everywhere. She likes the Patient Portal and she is looking forward to someday having a universal portal. [13:43] Dr. Bansal recommends patients sign up with the Portal for their allergist and GI doctor to facilitate communication. [15:14] Patients can scan their printed scope reports and share them with their care team, such as by putting them on a keychain USB drive, in a photo album on a phone, or a scanning app on a phone. There are different ways to store the data. [15:39] Ryan describes how his mother organized his medical history, including all prescriptions, every procedure he has had, and all the doctors he has seen. Ryan was diagnosed at two-and-a-half years old, after visits to six or seven doctors. [17:30] Dr. Bansal participated in an ACAAI video about the difficulty of diagnosing EoE. The video is linked in the show notes. [17:41] It is a challenge to diagnose EoE. Some children have milder forms of the disease. When it's familial, some patients think it's normal for the family. Food sticking is not normal for everyone. [20:08] The patient may live in an area with a lack of access to a knowledgeable specialist. Sometimes the patient just doesn't know who to see. When you make an appointment, call ahead and ask if they treat EoE at that office. Not all allergists do. [22:18] A podcast episode with Dr. Emily McGowan told of her research study on the prevalence of EoE in urban vs. rural areas. It's not about rural vs urban but about having access to a specialist. Rural patients couldn't find a specialist. [22:44] Ryan notes that you can use the Specialist Finder at APFED.org/specialist to see if there is a specialist in your area. [23:12] With younger patients, Dr. Bansal finds that food refusal is a sign of EoE; that, and abdominal pain. By age 10, patients can say they are having trouble swallowing or that food is getting stuck. [24:28] Holly finds that pediatricians are often not aware that picky eating and food aversion or food refusal are different situations. Food aversion comes from painful swallowing. Dr. Bansal is trying to create an understanding of EoE among pediatricians. [26:15] Another sign Dr. Bansal watches for is FIRE (Food-induced Immediate Response of the Esophagus), which is different from PFAS (Pollen Food Allergy Syndrome). FIRE is a narrowing of the esophagus; PFAS is an oral issue. [27:13] As we get more research and learn more about the disease state and the nuances, the hope is that we could educate pediatricians on how to differentiate a picky eater from a patient with food aversion, using compensation mechanisms to swallow. [28:15] Ryan compares this episode to a “greatest hits” episode, referring to FIRE and compensation mechanisms in the pediatric patient population. Those are great episodes for our listeners to go back and hear again. [29:01] When a patient has an EoE diagnosis, Dr. Bansal practices shared decision-making with the patient. She outlines four options for the patient. The first option is eliminating dairy and known food allergens from the diet. [31:01] With a food-elimination diet, ask your nutritionist what you need to eat more of because of the foods you are eliminating. If you're taking away dairy, you want to make sure you're getting calcium and Vitamin D. If you're taking away wheat, you need zinc. [31:20] The second option Dr. Bansal talks about with her patients is a high-dose proton pump inhibitor (PPI). The third option is topical budesonide, swallowed with honey. Budesonide is a 12-week prescription. Flovent can also be swallowed. [32:46] The fourth option is dupilumab. Insurance companies may require you to fail option 2, the PPI, for eight to 12 weeks before paying for this. [33:40] Dr. Bansal wants patients to understand that they can change between treatment options but she wants a patient to stay on an option for eight to 12 weeks and get a scope to see how it works before switching to another option. Follow-through is necessary. [34:42] Listeners can watch the video of Dr. Jonathan Spergel's presentation at EOS Connection 2024 to learn more about eliminating milk for EoE and PPI-responsive EoE patients. [35:14] Dr. Spergel also touched on nutritional deficiencies from some diet therapies. APFED just recorded a great podcast episode on that, as well. [35:31] Dr. Sara Bluestein made a presentation at EOS Connection on eosinophilic asthma which included an overview of biologic treatments, not just for EoE but for many eosinophilic disorders. [36:09] Holly loves Dr. Bansal's team approach with patients, where she acts as the coach, helping guide them toward the decision that will work best for their lives. [36:20] As a feeding specialist, Holly is excited about the dupilumab option for patients who are on feeding tubes for severe inflammation in the esophagus. [38:18] Budesonide oral is for 11 and up and dupilumab is for ages one and up. Any doctor who will give a patient the proper care may prescribe these to the patient. For dupilumab, the success rate goes up over time, starting at around 60% to around 80%. [39:27] You want to get the biologic prescribed and approved for EoE. If it is approved for atopic dermatitis, the dosing is too weak for EoE and it fails at two-week dosing. [39:56] Biologics need to be continued even when symptoms go away, as the symptoms will return. These two medicines are immunomodulators, not immunosuppressants so they don't increase the risk of other diseases. [41:50] Patients need biopsies to get therapy. [42:13] Ryan reminds listeners about the trans-nasal endoscopy podcast episode and the episode on the string test, which don't require sedation. [43:06] Dr. Bansal notes that in trials, benralizumab failed as a treatment for EoE. It brought down the eosinophil count but it didn't treat the patient's dysphagia symptoms. Some specialists are wondering if there's more to EoE than just the eosinophils. [44:30] Mepolizumab also reduces eosinophils. It is not known if it is effective against EoE. Tezepelumab is undergoing EoE trials now. It reduces eosinophils in the first two weeks. The data is not out on its effectiveness as an EoE treatment. [44:51] At EOS Connection 2024, Dr. Bluestein gave a great talk on eosinophilic asthma, including information about biologic treatments. More information is coming out about them and their trials for other eosinophilic diseases. [45:27] Dr. Bansal talks about how great it is to have new biologic options for people who tried an elimination diet, PPIs, and budesonide without relief from dysphagia. There was a void in the space, which is what dupilumab filled. [46:27] Allergists think that at least 70% of EoE patients have at least one other atopic disease, such as eczema, allergic rhinitis, polyps, or asthma. In pollen season some patients' EoE gets worse. [47:11] Dr. Bansal tells patients she doesn't want them dripping and draining into the esophagus. She doesn't want them to add inflammation where there is already inflammation. So she treats their allergies. [47:44] After a dilation, a patient may feel cured. It's just a stopgap; they'll be back if they don't treat their EoE. Dr. Bansal hopes that allergists treat any allergies as well as the EoE, so the allergies don't have a negative impact on the EoE. [49:41] There's no harm in getting an evaluation and seeing if there is something you could be doing to minimize the overall disease impact on your body and keep you healthier overall. Inflammation anywhere is never a good thing. [50:41] Ryan and Holly thank Dr. Bansal for joining the podcast today. [51:01] Dr. Bansal's last word: “I would advise parents to trust your instincts. If you think that something's wrong, even if somebody's telling you it's not wrong, get to the right people. Some insurances allow you to make an allergist appointment without a referral.” [52:18] If an allergist tells you there is a problem, know that they have years of experience with allergy patients. Dr. Bansal has hundreds of patients with EoE in the clinic. Create a partnership with an allergist. [53:12] If you would like to learn more about EoE, please visit APFED.org/EOE. If you're looking to find a specialist like Dr. Bansal, you can use APFED's Specialist Finder at APFED.org/specialist. [53:29] If you'd like to connect with others impacted by eosinophilic diseases, please join APFED's online community on the Inspire Network at APFED.org/connections. [53:39] Ryan thanks Dr. Bansal again for joining us on Real Talk: Eosinophilic Diseases. Dr. Bansal thanks Ryan and Holly. Holly would like to clone Dr. Bansal with all her enthusiasm. Holly also thanks Education Partners, Bristol Myers Squibb, GSK, Sanofi, and Regeneron for supporting this episode. Mentioned in This Episode: Priya Bansal M.D.Northwestern Feinberg School of Medicine Rush University Medical Center Care Everywhere Video: Diagnosing and treating pediatric EoE, ACAAI Video: Diagnosing and treating adult EoE, ACAAI “One-food versus six-food diet elimination therapy for EoE…”, The Lancet APFED EOS Connection Conference 2024 APFED on YouTube, Twitter, Facebook, Pinterest, Instagram Real Talk: Eosinophilic Diseases Podcast apfed.org/specialist apfed.org/connections Education Partners: This episode of APFED's podcast is brought to you thanks to the support of Bristol Myers Squibb, GSK, Sanofi, and Regeneron. Tweetables: “We have other things that we're working with. We're trying to find biomarkers and other tests that are not as invasive but for right now, it's the endoscopy with six biopsies; two proximal, two mid, and two distal.” — Dr. Priya Bansal “As we get more research and learn more and more about the disease state and the nuances and some of the things that we're seeing, obviously then, the hope is that we could educate people.” — Dr. Priya Bansal “You've got to have your biopsies. I know everyone hates them, everyone hates the scope, it's uncomfortable, it's annoying. I get it, but you need it to get therapy.” — Dr. Priya Bansal
Are you a flexible dancer or have easily hyperextended joints? Dancers with hypermobile joints might love the ability to show off tricks and skills as a dancer, but is it dangerous to be that hypermobile? I've been wanting to talk to a medical professional about hypermobile joints in dancers, so my guest today, a dancer turned doctor, is here to explain it all! Dr. Linda Bluestein is renowned for her expertise in hypermobility disorders. As the founder of Hypermobility MD, she offers specialized medical care to individuals grappling with all these kinds of conditions. And Dr. Bluestein is the driving force behind Bendy Bodies, a worldwide coaching practice aimed at empowering and supporting individuals with hypermobility, many of whom are dancers. Dr. Bluestein is also the founder and host of a wonderful podcast, Bendy Bodies with Hypermobility MD, where she shares valuable insights and resources. In this episode, I asked Linda all the questions I think dancers and dance teachers might ask. Dr. Bluestein clarifies the difference between hypermobility and flexibility, when hypermobility is concerning and when it's not, and when and how to get help. She also shared why gut health and flat feet are often related to hypermobility, which I found really interesting, and she has very practical, helpful advice for dance teachers as well. Listen into this crash course in hypermobility with Dr. Linda Bluestein! Episode Resources: https://chelseapierotti.com/174 Connect with Dr. Bluestein on Instagram: https://www.instagram.com/hypermobilitymd/ Hypermobility MD's Website: http://www.hypermobilitymd.com Listen to Bendy Bodies with Hypermobility MD Podcast: http://www.bendybodiespodcast.com Follow the Bendy Bodies Podcast on Instagram: https://www.instagram.com/bendy_bodies/ Connect with Linda on LinkedIn: https://www.linkedin.com/in/hypermobilitymd/
Larry Bluestein from the South Florida High School Sports show joins Joe and Dave Hyde next as they talk about the big news and matchups for week zero for South Florida High School football this year. Larry talks about how tough St Thomas Schedule how it's tougher than the previous year and also talks about Teddy Bridgewater 2nd year coaching.
First up: Nigut and Bluestein look at former President Donald Trump's second news conference in a week. This one was arranged for him to highlight the high prices of groceries and housing since President Joe Biden took office. But Trump deviated from his prepared remarks and launched more personal attacks on Vice President Kamala Harris. Plus, Bluestein and Nigut discuss the first joint campaign appearance of Harris and Biden, who celebrated the negotiations that will lower the costs Medicare pays for 10 important commonly used drugs. Then: The former dean of the state Legislature, Democrat Calvin Smyre, joins the podcast. He's headed to Chicago for the Democratic National Convention. Plus: Atlanta Journal-Constitution elections reporter Mark Niesse joins Nigut and Bluestein to answer questions from the listener mailbag about newly approved election rules. Plus: The hosts give their picks for who's up and who's down this week. Links to topics White House says prescription drug price cuts will produce billions in savings for taxpayers and seniors Georgia Democrats headed to Chicago hope to give voters a "joyful" contrast Mark Niesse: Georgia Republicans lay groundwork to oppose certifying presidential election Have a question or comment for the show? Call the 24-hour Politically Georgia Podcast Hotline at 770-810-5297. We'll play back your question and answer it during the listener mailbag segment on next Friday's episode. Listen and subscribe to our podcast for free at Apple Podcasts, Spotify, or wherever you listen to podcasts. You can also tell your smart speaker to “play Politically Georgia podcast.” Credits Executive Producer- Shane Backler Producer- Natalie Mendenhall Engineer- Matt Owen Editor- Devan Kortan Learn more about your ad choices. Visit megaphone.fm/adchoices
Donta Simpson Jr., Hollywood Chaminade-Madonna, with Larry Bluestein 8-5-24 full 654 Tue, 06 Aug 2024 00:01:06 +0000 lBq8P5pqHE9BMNisPRWdKd1clEnIj3kD sports South Florida High School Sports Radio sports Donta Simpson Jr., Hollywood Chaminade-Madonna, with Larry Bluestein 8-5-24 Driven by Autonation 2024 © 2021 Audacy, Inc. Sports False https://player.am
Keyboardist Michael Bluestein of Foreigner talks about the bands tour, Rock and Roll Hall of Fame and which artist he's worked with that has the craziest female fans.
In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and the upcoming updates in diagnostic criteria. Tune in to learn about the challenges, successes, and future directions in EDS research and patient care. Takeaways: Global Progress: The Ehlers-Danlos Society has significantly advanced global awareness and research on EDS and HSD. Diagnosis Challenges: Misdiagnosis and lack of understanding among doctors persist; re-education efforts are ongoing. Bloom's Journey: Lara Bloom's path from volunteer to CEO highlights the impact of lived experience in advocacy. Diagnostic Criteria Update: The 2017 criteria for hypermobile EDS will be revisited by 2026, involving extensive research and collaboration. Movement and Self-Care: Regular physical activity is crucial for managing EDS and HSD symptoms, as emphasized by both Bloom and Bluestein. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and the upcoming updates in diagnostic criteria. Tune in to learn about the challenges, successes, and future directions in EDS research and patient care. Takeaways: Global Progress: The Ehlers-Danlos Society has significantly advanced global awareness and research on EDS and HSD. Diagnosis Challenges: Misdiagnosis and lack of understanding among doctors persist; re-education efforts are ongoing. Bloom's Journey: Lara Bloom's path from volunteer to CEO highlights the impact of lived experience in advocacy. Diagnostic Criteria Update: The 2017 criteria for hypermobile EDS will be revisited by 2026, involving extensive research and collaboration. Movement and Self-Care: Regular physical activity is crucial for managing EDS and HSD symptoms, as emphasized by both Bloom and Bluestein. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
As doubts about whether President Biden can defeat Donald Trump in November, a coalition of prominent Black church leaders issued a ringing endorsement of Biden's bid for re-election. On today's episode of The Atlanta Journal-Constitutions Politically Georgia podcast, hosts Bill Nigut, Greg Bluestein and Tia Mitchell welcome the leader of the group, Georgia AME Bishop Reginald Jackson. Also on the podcast, Donald Trump is expected to name his vice presidential running mate soon. One of the leading contenders is believed to be Ohio Senator J.D. Vance. Georgia Democratic state senator Josh McLaurin remembers a time when, as Vance's law school roommate, he was privy to Vance's concerns about Trump's quest for the White House in 2016. Plus, Bluestein, Mitchell and Nigut answer questions from the Politically Georgia mailbag and offer the picks for who is up and who is down this week. Links to today's topics Black Georgia faith leaders express strong support for Biden Josh McLaurin recalls J.D. Vance's past concerns about Trump rise to power Have a question or comment for the show? Call the 24-hour Politically Georgia Podcast Hotline at 770-810-5297. We'll play back your question and answer it during the listener mailbag segment on next Friday's episode. Listen and subscribe to our podcast for free at Apple Podcasts, Spotify, or wherever you listen to podcasts. You can also tell your smart speaker to “play Politically Georgia podcast.” Credits Executive Producer- Shane Backler Producer- Natalie Mendenhall Engineer- Shane Backler Editor- Devan Kortan Learn more about your ad choices. Visit megaphone.fm/adchoices
Do you ever wish someone would break down the complexities of joint hypermobility, sexual pain, and how they connect to your overall health? Well, that's exactly what we dived into in this episode!
Dr. Linda Bluestein celebrates 100 episodes of Bendy Bodies discussing the most rewarding part of hosting the podcast and the challenges of podcasting. She emphasizes the importance of balancing the complexity of EDS and the need for healthcare professionals to understand and empathize with the struggles of patients with hypermobility conditions. Dr. Bluestein discusses the symptom burden experienced by individuals with EDS and the challenges they face in getting their symptoms understood and validated by healthcare professionals. She shares her approach to treatment as well as the top three concerns among EDS patients. Dr. Linda Bluestein and guest host Kate Colbert discuss the importance of effective communication between doctors and patients, and the need for healthcare professionals to understand the patient's perspective. Dr. Bluestein shares her goals for the Bendy Bodies podcast and they end with a hypermobility hack for traveling with EDS.TakeawaysHealthcare professionals should strive to understand and empathize with the struggles of patients with hypermobility conditions and recognize their heroic efforts in managing their symptoms. Offering the correct dose of hope is difficult, as it is important to be responsible and not oversimplify the complexities of hypermobility conditions.Individuals with EDS often experience a high symptom burden, including pain, fatigue, and gastrointestinal symptoms.Getting symptoms understood and validated by healthcare professionals can be challenging for EDS patients.Empathy and understanding from both patients and doctors are crucial in managing EDS symptoms.Treatment approaches for EDS are discussed. Effective communication between doctors and patients is essential for better care. Patients can learn how to communicate better and doctors can understand how patients think.The Bendy Bodies podcast aims to improve care for people with symptomatic joint hypermobility, educate healthcare professionals, and support nonprofit organizations.Patients, caregivers, advocates, and medical professionals can contribute to the EDS community by representing it well, sharing their stories, and spreading awareness about the podcast.Chapters ➡00:00 Introduction and Celebration of 100 Episodes25:52 Understanding and Empathizing with Patients' Struggles36:40 The Top Three Concerns Among EDS Patients41:20 The Most Effective Treatment Approaches for EDS44:23 The Role of Mast Cell Activation Syndrome (MCAS)52:12 How an EDS Doctor can Facilitate a Patient's Healthcare Team01:03:16 The Future and Goals of the Bendy Bodies Podcast: Improving Care and Spreading Awareness1:05:21 Improving Quality of Care for Everyone01:14:05 Hypermobility Hack: Packing Heavy and Lightening the Burden on Your BodyConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..
Dr. Linda Bluestein celebrates 100 episodes of Bendy Bodies discussing the most rewarding part of hosting the podcast and the challenges of podcasting. She emphasizes the importance of balancing the complexity of EDS and the need for healthcare professionals to understand and empathize with the struggles of patients with hypermobility conditions. Dr. Bluestein discusses the symptom burden experienced by individuals with EDS and the challenges they face in getting their symptoms understood and validated by healthcare professionals. She shares her approach to treatment as well as the top three concerns among EDS patients. Dr. Linda Bluestein and guest host Kate Colbert discuss the importance of effective communication between doctors and patients, and the need for healthcare professionals to understand the patient's perspective. Dr. Bluestein shares her goals for the Bendy Bodies podcast and they end with a hypermobility hack for traveling with EDS.TakeawaysHealthcare professionals should strive to understand and empathize with the struggles of patients with hypermobility conditions and recognize their heroic efforts in managing their symptoms. Offering the correct dose of hope is difficult, as it is important to be responsible and not oversimplify the complexities of hypermobility conditions.Individuals with EDS often experience a high symptom burden, including pain, fatigue, and gastrointestinal symptoms.Getting symptoms understood and validated by healthcare professionals can be challenging for EDS patients.Empathy and understanding from both patients and doctors are crucial in managing EDS symptoms.Treatment approaches for EDS are discussed. Effective communication between doctors and patients is essential for better care. Patients can learn how to communicate better and doctors can understand how patients think.The Bendy Bodies podcast aims to improve care for people with symptomatic joint hypermobility, educate healthcare professionals, and support nonprofit organizations.Patients, caregivers, advocates, and medical professionals can contribute to the EDS community by representing it well, sharing their stories, and spreading awareness about the podcast.Chapters ➡00:00 Introduction and Celebration of 100 Episodes25:52 Understanding and Empathizing with Patients' Struggles36:40 The Top Three Concerns Among EDS Patients41:20 The Most Effective Treatment Approaches for EDS44:23 The Role of Mast Cell Activation Syndrome (MCAS)52:12 How an EDS Doctor can Facilitate a Patient's Healthcare Team01:03:16 The Future and Goals of the Bendy Bodies Podcast: Improving Care and Spreading Awareness1:05:21 Improving Quality of Care for Everyone01:14:05 Hypermobility Hack: Packing Heavy and Lightening the Burden on Your BodyConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..
Most political observers agree that the defeat of veteran Democratic state lawmaker Teri Anulewicz was the biggest surprise of the primary elections this week. Anulewicz joins the podcast to discuss how she believes she was upset by a virtually unknown challenger and what she sees as her future in politics. She also describes how difficult she found the most recent session of the Georgia legislature to be given the flurry of partisan politics. Then, with the economy a major factor in voters' decisions in the upcoming election, The AJC's senior economics writer, Michael Kanell, and editor, Scott Trubey join the show. They brush aside campaign rhetoric and examine facts about where our economy stands now and where it appears to be headed in the months ahead. Plus, Bluestein and Nigut look at Nikki Haley's cautious statement on why she'll vote for Donald Trump. Link to topics Veteran lawmaker Teri Anulewicz loses in major upset Inflation in Atlanta and nation eases metro Atlanta gas prices dip as summer season travel season begins Georgia jobs for April: good growth but hospitality industry lags Haley backs Trump. Will her Georgia supporters follow her lead? Have a question for the show? Call the 24-hour Politically Georgia Podcast Hotline at 770-810-5297. We'll play back your question and answer it during the listener mailbag segment on next Friday's episode. Listen and subscribe to our podcast for free at Apple Podcasts, Spotify, or wherever you listen to podcasts. You can also tell your smart speaker to “play Politically Georgia podcast.” CREDITS Executive Producer- Shane Backler Producer- Natalie Mendenhall Engineer- Matt McWiliams Editor- Devan Kortan Learn more about your ad choices. Visit megaphone.fm/adchoices
In this special “EDS Awareness Month” episode of the Bendy Bodies Podcast, founder Dr. Linda Bluestein and guest host Kate Colbert discuss how everyone can learn to spot the signs ofEhlers-Danlos Syndromes.Dr. Bluestein emphasizes the importance of EDS awareness, as many people are still not getting the evaluations and care they need. She also debunks several myths about EDS, including the misconception that EDS does not cause pain and that only geneticists can diagnose it. She emphasizes the importance of early intervention and appropriate treatment for better patient outcomes. They cover the importance of understanding Mast Cell Activation Syndrome (MCAS), the challenges faced by individuals with EDS in their relationships, and how to communicate with romantic partners and family members. Colbert and Dr. Bluestein also discuss the impact of EDS in the workplace and provide tips for employers and coworkers to support individuals with EDS. The conversation emphasizes the need for awareness, empathy, and support for individuals with EDS and other poorly recognized conditions.TakeawaysEDS Awareness Month is an opportunity to educate and spread awareness about Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorders (HSD), and associated conditions.Healthcare professionals should listen to their patients and believe them, even if a clear diagnosis is not yet established.Teachers, daycare providers, and nannies can play a crucial role in identifying hypermobility conditions in children. Coaches and athletic instructors should be aware of the signs of EDS in athletes and dancers and provide resources for further evaluation and support.Several myths about EDS, such as the misconception that EDS does not cause pain and that only geneticists can diagnose it, should be debunked.Early intervention and appropriate treatment are crucial for better patient outcomes. Mast Cell Activation Syndrome (MCAS) is an important condition to consider in individuals with environmental sensitivities, even if their tryptase levels are not elevated.Understanding and empathy are crucial in relationships where a partner has EDS or HSD, as the condition can cause dynamic disability and varying needs.Communication is key in relationships, and using mirroring techniques and talking boundaries can help improve understanding and compassion.Employers and coworkers should show support and offer accommodations to individuals with EDS, such as checking in with them, providing grace, and making the workplace more accessible.Increasing awareness about EDS and related conditions is essential to foster empathy, support, and better partnerships in healthcare, workplaces, and society.Chapters ➡00:00 Introduction and EDS Awareness Month09:30 Identifying Hypermobility Conditions in Children31:06 Early Intervention and Appropriate Treatment42:04 Supporting Individuals with EDS in the Workplace54:59 The Importance of Awareness and Empathy for EDS and Related ConditionsConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
On this episode, Nancy speaks with Philadelphia City Commissioner Seth Bluestein, a Republican whose office is in charge of election operations and voter registration in the Pennsylvania city. Nancy and Seth talk about why, despite enduring threats and harassment in 2020 from members of his own party, Seth remains committed to his mission of ensuring free, secure and transparent elections for all voters. They also discuss the importance of bipartisanship, what it means to be a principled Republican today, and why Seth has recently become affiliated with the Forward Party. This conversation will leave you feeling reassured about the prospects for this year's elections and the people who run them in Pennsylvania, where the thinnest of margins can have the largest of impacts.
Full Hour | In today's second hour Dom welcomes Philadelphia's Republican Commissioner Seth Bluestein onto the Dom Giordano Program to discuss his efforts in ensuring election integrity. First, Dom asks Bluestein to clarify his role for the City, with Bluestein noting what it is Commissioners do, also outside of elections. Then, Dom delves into a controversial topic, being Act 77, and the rise of ‘satellite voting offices,' asking the Commissioner how we can create trust when such actions were implemented with the infusion of ‘Zuckerbucks.' The Commissioner clarifies on certain misconceptions, explaining why he's in support of making elections both more accessible as well as more secure. After that, Dom and Bluestein delve into mail-in balloting, with Bluestein clarifying why he's supportive of drop boxes, which further create accessibility for voters. Then, Dom takes calls from listeners discussing voter integrity and our side question of the day, asking for events and news stories that placed Philadelphia at the center of the universe. Then, in Dan Time with Dom, Dan offers up some free events surrounding Wrestlemania weekend, and tells of a new strategy employed by Tiger Woods ahead of the Masters. (Photo by Getty Images)
Philadelphia's Republican Commissioner Seth Bluestein onto the Dom Giordano Program to discuss his efforts in ensuring election integrity. First, Dom asks Bluestein to clarify his role for the City, with Bluestein noting what it is Commissioners do, also outside of elections. Then, Dom delves into a controversial topic, being Act 77, and the rise of ‘satellite voting offices,' asking the Commissioner how we can create trust when such actions were implemented with the infusion of ‘Zuckerbucks.' The Commissioner clarifies on certain misconceptions, explaining why he's in support of making elections both more accessible as well as more secure. After that, Dom and Bluestein delve into mail-in balloting, with Bluestein clarifying why he's supportive of drop boxes, which further create accessibility for voters. Then, Dom takes calls from listeners discussing voter integrity and our side question of the day, asking for events and news stories that placed Philadelphia at the center of the universe. (Photo by Getty Images)
Are you double-jointed, incredibly flexible, or experience joint pain differently from others? Explore the world of joint hypermobility and discover why your body might work this way. On the Becoming Immune Confident Podcast, Dr. Kara Wada welcomes Dr. Linda Bluestein, an integrative pain medicine expert specializing in hypermobility disorders. Dr. Bluestein's journey from ballet dancer to medical professional gives her a unique perspective on hypermobility. Learn about the different types of hypermobility, its causes, and how it can connect to other health concerns. Discover strategies to manage hypermobility-related symptoms and get the latest updates on cutting-edge research in the field. Listen to this week's podcast and be enlightened by a rare blend of personal experience and medical expertise on joint hypermobility. If you, or someone you know, struggles with hypermobility-related pain or simply wants to understand their body better, this episode with Dr. Bluestein's insights is for you! EPISODE IN A GLANCE 02:07 Dr. Bluestein's Journey: Ballet, hypermobility, and a passion for medicine.05:20 What is Hypermobility? Understanding joint flexibility beyond the norm.06:10 Types of Joint Hypermobility: Peripheral, localized, and generalized – what's the difference?07:01 Causes of Joint Hypermobility: Genetics, Ehlers-Danlos Syndrome (EDS), and other factors14:17 MENS PMMS: Dr. Bluestein's holistic approach to pain management22:51 Hypermobile EDS: How diagnosis goes beyond genes27:52 Future of Hypermobility Research: What's on the horizon? ABOUT LINDA BLUESTEIN, MDDr. Linda Bluestein, M.D., is a board-certified anesthesiologist and integrative pain medicine physician, dedicated to alleviating the burden of hypermobility disorders. With a background in ballet, she brings a unique perspective to her practice. As the founder and host of the popular podcast, "Bendy Bodies with the Hypermobility MD," Dr. Bluestein provides invaluable insights and support to individuals grappling with hypermobility disorders. Her expertise is widely recognized, evidenced by her contributions to key publications, including two chapters in the influential book, "Disjointed – Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders." Dr. Bluestein serves on the Allergy and Immunology Working Group for the International Consortium on EDS and HSD, the Medical Advisory Board for Standing up to POTS, the Board of Directors for the Bridge Dance Project, the Resources Committee for the Dance Healthy Alliance of Canada, and is the Pain Management Committee Chair for the non-profit, EDS Research Foundation. She also serves on the Advisory Board for Doctors for Dancers.For more information about Dr. Bluestein's work, visit her website at www.hypermobilitymd.com. CONNECT WITH LINDA BLUESTEIN, MDWebsite → http://www.BendyBodiesPodcast.com Website → https://www.hypermobilitymd.com/ LinkedIn → https://www.linkedin.com/in/hypermobilitymd/ Instagram → https://www.instagram.com/bendy_bodies/ Instagram → https://www.instagram.com/hypermobilitymd/ Facebook → https://www.facebook.com/BendyBodiesPodcast Facebook → https://www.facebook.com/hypermobilityMD Twitter → https://twitter.com/BluesteinLinda TikTok → https://www.tiktok.com/@hypermobilitymd YouTube → https://www.youtube.com/@bendybodiespodcast LINDA BLUESTEIN'S ARTICLE 'Diagnosis of mast cell activation syndrome: a global "consensus-2"'→ https://pubmed.ncbi.nlm.nih.gov/32324159/ ABOUT DR KARA WADAQuadruple board-certified pediatric and adult allergy immunology & lifestyle medicine physician, Sjogren's patient and life coach shares her recipe for success combining anti-inflammatory lifestyle, trusting therapeutic relationships, modern medicine & our minds to harness our body's ability to heal. CONNECT WITH DR WADAWebsite → https://www.drkarawada.com/ LinkedIn → https://www.linkedin.com/in/karawadamd/ Instagram → https://www.instagram.com/immuneconfident/ Facebook → https://www.facebook.com/KaraWadaMD Twitter → https://twitter.com/CrunchyAllergy TikTok → https://www.tiktok.com/@crunchyallergist YouTube → https://www.youtube.com/@drkarawada SUBSCRIBE TO NEWSLETTER → https://www.drkarawada.com/newsletter Get Dr. Kara's weekly dose of a naturally-minded and scientifically-grounded approach to immune system health.
We first met Lynda Shannon Bluestein when she was in palliative care back in May of 2022. She was fighting for medical aid in dying (MAID) to be legalized in Connecticut. Frustrated, she sued Vermont to allow non-residents of the state to use its MAID laws. In the meantime, she worked to install "wind phones'' in Connecticut, eventually starting a nonprofit called Lynda's Phones. An idea originating in Japan, old rotary phones are installed in public spaces which people can use to imagine that they are speaking to loved ones who have died. Because of her lawsuit, Vermont became the first state in the country to change its law to allow terminally ill people from out of state to use its medical aid in dying law. Lynda died in Brattleboro, Vermont, on January 4, 2024. GUESTS: Lynda Shannon Bluestein: Successfully sued the state of Vermont to allow out-of-state residents to use its medical aid in dying law. She is the creator of LyndasPhones.org, which installs wind phones across the state of Connecticut, allowing people to feel as though they are connecting with their loved ones who have died Jacob Shannon: Lynda's son and trustee of LyndasPhones.org, funding the design, construction, and installation of wind phones Dr. Paul Bluestein: Lynda's husband and an advocate for medical aid in dying in Connecticut Support the show: https://www.wnpr.org/donateSee omnystudio.com/listener for privacy information.
In this Bendy Bodies with the Hypermobility MD podcast episode, making a MCAS documentary is discussed. Distinguished participants in this collaborative effort include Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, alongside dedicated patient advocate Jill Brook. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Key Highlights:1. The initiative incorporates both a documentary and an online educational library strategically designed to elevate awareness surrounding MCAS, Dysautonomia, and Hypermobility Spectrum Disorders.2. Renowned healthcare professionals, namely Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, in conjunction with patient advocate Jill Brook, are pivotal contributors to this initiative.3. The documentary aspires to elucidate the myriad challenges confronted by individuals navigating the complexities inherent in the triad of syndromes, emphasizing the imperative of heightened awareness among healthcare providers to facilitate more efficacious treatment modalities.4. Dr. Afrin underscores the prevalence of MCAS and advocates for its consideration in the differential diagnosis for patients with complex medical presentations.5. The term "dystrophism" is introduced within the discourse, signifying aberrations in growth and development propelled by dysfunctional mast cells.6. Participants candidly share their experiences during the documentary's filming process, underscoring the inherent difficulty of condensing intricate information into concise soundbites.7. The timely recognition of MCAS is underscored as a critical determinant for effective treatment interventions and an enhanced quality of life.8. The team is dedicated to elucidating the nuances of MCAS, POTS, and EDS through the medium of a documentary, with the aim of providing comprehensive knowledge about these medical conditions.9. Emphasis is placed on the significance of joint hypermobility. Should it give rise to complications, it may serve as a potential indicator for dysautonomia or MCAS.10. Dysautonomia serves as an encompassing term, inclusive of conditions such as POTS and Inappropriate Sinus Tachycardia. 11. Identifying growing pains (quite literally!) associated with these conditions can be a challenging endeavor. The gradual development poses a considerable challenge for all involved.12. A fervent commitment is made towards establishing an educational repository, replete with in-depth explorations by experts, delving into the intricacies of these subjects.13. The team candidly discloses the necessity for financial support to conclude their documentary project. Their overarching objective is to disseminate awareness about MCAS, POTS, and EDS.14. The documentary, at its core, is designed to render this information easily accessible, ensuring that individuals – be they patients, families, or clinicians – can acquire a comprehensive understanding of coping with these conditions.Chapters00:00 Introduction00:37 Creating Awareness and Increasing Treatment Options03:09 The Birth of the Documentary Project05:20 Filming in New York07:19 Filming in St. Louis10:32 The Motivation to Work with Complex Patients15:49 The Journey of Recognizing MCAS17:34 The Impact of MCAS Treatment21:00 Personal Experiences and Incorporating MCAS Treatment22:42 The Need for an Educational Library25:29 The Challenge of Condensing Information26:21 Describing MCAS in Sound Bites31:10 The Importance of Raising Awareness34:42 Growth and Development Abnormalities in MCAS40:03 Main Points about Hypermobility Syndromes and Dysautonomia44:48 Partnership with LDN Research Trust51:47 Final Words and Call for Support54:26 Recognition and Treatment of Unrecognized Patients55:44 Importance of Learning and Trying56:13 Gratitude for Dedicated Doctors56:47 Closing Remarks and ResourcesConnect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority!Products, organizations, and services mentioned in this episode:https://www.mcasfund.org/https://aimcenterpm.com/https://www.gidoctor.net/leonard-weinstock-mdhttps://www.ssmhealth.com/find-a-doctor/doctor-details/laurence-j-kinsella-mdhttps://www.hypermobilitymd.com/https://www.standinguptopots.org/#MCAS #film #documentary #HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #POTS #Dysautonomia #BendyBuddy #HypermobilityMD #BendyBodies #UnexplainedHealthIssues #POTSsyndrome #MastCells #PainManagement #PatientAdvocacy
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