TODAY is a Good Day Podcast

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A podcast to bring you a new point of support as you navigate your NICU journey. TODAY is a Good Day is here to be a part of your conversations. These are personal stories from people who have been there.


    • Feb 7, 2022 LATEST EPISODE
    • infrequent NEW EPISODES
    • 36m AVG DURATION
    • 30 EPISODES


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    Latest episodes from TODAY is a Good Day Podcast

    S03E10: Dr. Eddie Chang, Dr. Cynthia Dembofsky, Dr. Jay Greenspan: A Conversation with Neonatalogists - What to Ask, Your Role on the Care Team, Leaving the NICU, and More

    Play Episode Listen Later Feb 7, 2022 55:28


    We have an action-packed roundtable for this episode! We are honored to welcome three incredible neonatologists who have impacted more families than they know… Dr. Eddie Chang currently serves as the Chief of Neonatology at Jefferson-Abington Hospital, but more broadly believes that it is important to build teams that care deeply about children and their families. His experience includes founding medical practices, a seed-stage healthtech venture, and a Clinically Integrated Network focused on children. Board certified in both General Pediatrics and Neonatal-Perinatal Medicine, Dr. Chang is a Castle Connolly/Philadelphia Magazine Top Doctor and also holds an MBA from the Wharton School of the University of Pennsylvania where he also studied as an undergraduate. He completed medical school at Thomas Jefferson University Sidney Kimmel Medical College and Pediatrics residency training at New York University. Finally he returned to Philadelphia where he finished his Neonatal-Perinatal Fellowship training at St. Christopher's Hospital for Children. Currently, Dr. Chang is a Clinical Assistant Professor at Jefferson and is interested in sustainable healthcare strategy, innovation, and entrepreneurship. Dr. Cindy Dembofsky went to Univ of Ct for undergraduate where she met her husband and continued at the Univ of Ct for Medical School. She came to Philadelphia in 1992 when she began her Pediatric Residency followed by her Neonatology Fellowship at Thomas Jefferson/AI duPont Children's Hospital. She joined the Crozer Health System covering the Delaware County Memorial Hospital and Crozer Chester Medical Center NICUs after fellowship in 1998. She has been Neonatology Division Chief for the Health System since 2012. She is also a member of the Delaware County Baby's First project. Dr. Jay S. Greenspan is the Professor of Pediatrics and Emeritus Pediatric Chairman for the Sidney Kimmel Medical College at Thomas Jefferson University and Nemours. He is also a Trustee for the March of Dimes. Dr. Jay Greenspan received his undergraduate degree from Connecticut College, his medical degree at Case Western Reserve University, and his training in Pediatrics and Neonatal Perinatal Medicine at St. Christopher's Hospital for Children and The Children's Hospital of Philadelphia. He completed his MBA at Capella University. His research interests include neonatal pulmonary function, development and treatment. He is also involved in research on the prevention of preterm birth, healthcare reform and the medical home. On this episode: - The doctors discuss why they went into this area of focus helping NICU babies and families. - You will hear about how the doctors encourage parents to be a part of the care team and ask the hard questions on the parents' minds, even though the NICU is overwhelming and many families feel intimidated, anxious, and isolated walking through those doors each day. - Personal guilt about what happened with a premature birth can be difficult to work through. The doctors share how they walk parents through realizing the early delivery is not their fault. - You will hear about some resources for parents to look into to feel empowered. - You will hear about “NICUitis” and why is it important for families to leave the NICU and take a break. - We discuss what the doctors each tell parents when they start googling. - We breakdown the best advice for moms who need to ask for help. - We discuss advice for when families are nervous and getting ready to leave the NICU. - The doctors share their "one line" they have typically shared with families over the years to help encourage them. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

    S03E09: Melissa Collins and Brett Collins - Personal Journey of Strength, Determination, and Advocacy for their 24-weekers

    Play Episode Listen Later Jan 31, 2022 55:05


    The NICU journey can bring people into your life you never expected. I'll never forget the day I met our next guests walking through the halls of the NICU. Melissa was wearing a Penn State sweatshirt and I said “We Are” walking past. That opened the door for us to connect with each other and we have stayed in touch for nearly 11 years. While our personal NICU journeys were different, we share a common bond of the NICU. Brett and Melissa have a special story to share of strength, determination, and dedication doing all they could do to advocate for their sons born at 24 weeks 5 days. On this episode: - Melissa and Brett share their journey with you; from pregnancy to the NICU. - Melissa and Brett discuss how they made it through ‘one day at a time.' - Melissa and Brett share their boys' NICU journeys with you. - We will hear about the steps Melissa and Brett took to work through the difficult decisions. - Brett talks about his perspective as a NICU dad and his approach to the NICU journey. - Melissa and Brett share what it looked like bringing Brody and Cameron home - Melissa shares how her career changed and what it was like going back to work after 3 years. - Melissa and Brett share what co-parenting looks like for them, now that they are no longer together. - You will hear about what the boys' therapies look like post-NICU, and how Melissa and Brett found the right specialists. - You will hear about some potential clinical trials in the NICU space, as well as how you can get into them. - Melissa and Brett offer their one piece of advice for families navigating a similar NICU journey. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

    S03E08: Kellie Wicklund & Jenny Limm - A Discussion about Trauma and Post-Traumatic Stress Disorder in the NICU and beyond

    Play Episode Listen Later Jan 24, 2022 49:58


    Post-traumatic stress disorder is a diagnosis discussed frequently for families navigating the NICU. A family's personal journey can also cause strain on marriage and a change in family dynamics with siblings at home. We will be speaking about these important topics today with Kellie Wicklund and Jenny Limm. Kellie Wicklund is a licensed Psychotherapist with 20 years of experience, and is the Owner and Clinical Director of the Maternal Wellness Center. Kellie is certified by Postpartum Support International as a Perinatal Mental Health Specialist. Her experience with both private and community clients has nurtured a passion in the area of reproductive health psychology — a specialty that acknowledges the complexity and trials of the developmental process of parenthood. Jenny is a marriage and family therapist, with specialization in sex therapy holding both a masters degree from Drexel University's Couple and Family Therapy Program and Widener University's Master of Education in Human Sexuality. She is currently a PhD candidate at Widener University to officially become a sex-doctor, as a clinical sexologist. Prior to this specialization in sex therapy, Jenny had extensive experience working with teens and families in crisis, as a lead clinician at a adolescent psychiatric hospital (both inpatient, and partial hospitalization programs), as well as lead therapist in family based services in Philadelphia. On this podcast episode: - Kelly and Jenny discuss Post-traumatic Stress Disorder, among NICU families, and what that actually means. - You will hear information about how to know if you are experiencing symptoms of PTSD. - Knowing the NICU experience is traumatic, as parents, we will find out how not to transfer that anxiety and feelings of trauma to our own children as they are babies and grow older. - With our personal story, we have always been very protective of Claire probably out of fear and just all that we have navigated through to help her feel successful. Kelly and Jenny will share what they tell parents to help them feel empowered to let go even a little bit. - We talk about siblings in a home with medically fragile children, and what that has looked like with families Kelly and Jenny have helped. - You will hear about how parents can include the child who does not have special needs. - We discuss how trauma can impact a marriage or partnership. - Kelly and Jenny share the signs that a family may need counseling. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

    S03E07: Nadine & Mark Bussie - The NICU's impact on marriage, the "comparison trap," and advocating for yourself

    Play Episode Listen Later Jan 17, 2022 23:48


    When you are navigating the NICU, many of us look to Facebook groups to connect with families who are experiencing similar journeys. I love how making a comment on a Facebook post can bring new people into your life. Our guests today are a part of a Micro-Preemie Support Network on Facebook, a group I have personally been a part of for many years. Nadine Bussie reached out to me to share her story and I'm thrilled to have her and her husband, Mark, here with us today from Baltimore to share their family's personal journey. We'll touch on topics including the comparison trap, advocating for yourself, and the NICU's impact on marriage. Nadine and Mark - thank you for joining us today. On this podcast episode you will hear: - Nadine and Mark share a little bit about their family's journey with you. - Nadine and Mark will provide advice on how they advocated for themselves when they felt as though their medical provider was not helping them in the ways they needed. - You will hear advice on how to speak up for yourself. - Mark will share with you how he felt after his daughter was born, and provide advice for other dads. - Mark will share how he navigated the NICU journey. - Nadine and Mark share advice for other couples navigating a similar journey. - You will hear about Facebook groups that may be helpful in navigating your own personal experience. - You will get advice on how to navigate through the "comparison trap" that many of us can fall into with our preemies. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

    S03E06: Amanda Jacobus and Sheila Tarr- A Conversation with NICU Nurses

    Play Episode Listen Later Jan 10, 2022 25:06


    The bond between parents and their NICU Nurse can create friendships for life. Nurses help parents touch and hold their baby for the first time, change their diapers, and take their temperature. They manage parents' fear and anxiety over having a baby in the NICU and help them feel empowered to take care of their child. Experiencing the NICU can also have a profound impact on a person leading them into a new career or guiding them toward giving back in meaningful ways. Today we are joined by NICU nurses Amanda Jacobus and Sheila Tarr. Amanda has been a registered nurse for over 18 years. She spent the first 5 years of her career working on a neurology unit. However, her career path drastically changed after her daughter, Hope, was born 15 weeks premature in 2005 at Abington Hospital. She wanted to find a way to pay it forward to other NICU families. And, what better way could there be to do that than to work beside the neonatologists & nurses who saved her daughters life. She has spent the last 13 years working as a NICU nurse, first at Abington Hospital & now at Einstein Medical Center Montgomery where she is the head charge nurse. Sheila Tarr was born in Manila, Philippines. She worked at both Retama Manor and McAllen Medical Center in Texas before moving to Morgan Stanley Children's Hospital of NewYork-Presbyterian and then Abington Jefferson Health where she takes care of both babies and families in the NICU. She has a loving Husband Blaise and is blessed with a younger sister, Sandra, with Down Syndrome. Sheila is also an active member of Bugasong Pag-Ulikid Foundation USA. This foundation was founded in 1989 with the help of her parish priest, the late Father Juaquin Dioso. The foundation helps with a variety of medical missions, livelihood and education projects for the church, schools and the poor of the town, Bugasong. On this episode you will hear: - Amanda and Sheila share a little about their journey to becoming NICU nurses, with you, and discuss why they chose this field. - Amanda and Sheila discuss the first things they say to NICU parents. - For many of us - multitasking, anticipating the future, researching information, etc...are all a part of our daily lives. Amanda and Sheila talk about how you, as parents, can stay “in the moment” while spending time with your baby. - With all of the tubes and wires, holding your baby in the NICU is a scary experience. You'll hear about how Amanda and Sheila walk parents, like you, through holding your baby for the first time. - Amanda and Sheila will discuss what you can do when you are struggling with breastfeeding. - Sheila has taken her personal experience as a NICU nurse and expanded her reach to help others in the Philippines. She will share information about the Bugasong Pag-Ulikid Foundation USA and the impact the foundation has made during the pandemic. - Amanda and Sheila discuss the moments that made a significant impacts on them as a NICU nurses. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

    S03E05: Karen Beck - Personal Journey from IVF to full-term pregnancy to welcoming a 29-weeker

    Play Episode Listen Later Jan 3, 2022 25:12


    The journey to starting a family is different for each of us. This episode's guest is here to share her personal journey with IVF, finally learning she was pregnant, and welcoming a premature baby with a big brother at home. Karen Beck is a former educator and has served as the Program Coordinator for Today is a Good Day. She has been a part of Today is a Good Day's dedicated team of volunteers for many years and we are grateful for all she contributes to help other families navigate the NICU. Karen knows first-hand the struggles of welcoming a premature baby, balancing home life and NICU life, and the challenges of starting a family. On this episode you will hear: - Karen tells you a little about her personal journey to starting a family. - Karen talks about "chemical pregnancy" and "blight ovums," and explains what those terms mean. - Karen talks about her next experience in the NICU, and will share with you what that journey to pregnancy looks like and what you can expect. - You will hear about what it is like to visit a baby in the NICU while caring for a toddler. - Karen shares how she explained having a new baby brother “here” but not actually “here” at home to her other child. - You will hear about how Karen helped her toddler feel connected to his brother. - Karen shares her most difficult moments during the NICU journey and how she overcame those moments. - Karen shares her advice for you or other families going through a similar situation? Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

    S03E04: Camille Barnes - Disparities in Healthcare, Breastfeeding, and the Role of the Postpartum Doula

    Play Episode Listen Later Dec 27, 2021 25:29


    We are covering several important topics today including black maternal health, lack of access to healthcare, breastfeeding, the role of a postpartum doula, and more. Camille Barnes is the Director of Diversity, Equity, and Inclusion at the Maternal Wellness Center. Camille is passionate about racial equity and inclusion, particularly as it relates to reproductive justice, and access for all to high-quality birth options and holistic postpartum support. She is a seasoned mother to four boys ranging in age from early elementary to middle school. Camille is a social justice advocate through her podcast “Two Not Too Black Moms” that she co-hosts with Maria Silver Pyanov...a former guest on the Today is a Good Day podcast. Camille is also a certified postpartum doula and breastfeeding counselor who has knowledge of infant care and soothing techniques, early infant development milestones, and breastfeeding initiation. In that work, she became attuned to how the disparities in Black maternal health were so significant which made her passionate about increasing the women of color working in the field to help bring support to moms of color. On this episode you will hear: - The role of a postpartum doula and breastfeeding counselor. - Disparities in black maternal healthcare. - How Camille helps moms of color navigate the healthcare system. - The questions you should ask to be the best advocates for yourself in a healthcare setting. - The lack of access to care and information in low income communities. - How Camille helps families get access to resources. - Breastfeeding, especially for families in the NICU, can be difficult, we talk about how Camille helps families approach breastfeeding. - We also talk about breastfeeding in the Black community, and how that has changed over the years. - If moms are having trouble breastfeeding, you will hear about where you can find additional resources to help you overcome breastfeeding challenges. - You'll hear about Camille's podcast. - You'll hear about Camille's scholarship fund, who is eligible for that fund and where you can find more information. - You'll hear about Camille's group for moms of color and where listeners can join the group. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

    S03E03: Shannon Davis and Leah Heyel: The Role of Social Workers and How to Connect with the Social Worker at your Hospital

    Play Episode Listen Later Dec 20, 2021 31:53


    Many hospitals have a dedicated social worker on staff to support NICU families. How do you access the social worker? What questions should you ask as a new parent in the NICU? We are speaking on today's episode with Shannon Davis and Leah Heyel from Nemours/Alfred I. duPont Hospital for Children. Shannon received her Bachelors in Social Work from West Chester University and Masters in Clinical Social Work from Widener University. She also has her License in Clinical Social Work. Shannon has just been accepted through Postpartum Support International to take her Perinatal Mental Health Certification. She began her career working for the Chester County Children, Youth, and Services agency. During that time, she also worked part time at Crozer Chester Medical Center as an on call social worker for Traumas and weekends in Maternity and the NICU. She later joined the team in the Psych Med Surgery Unit. Shannon currently works in the NICU at Nemours. She is excited to continue her education in Perinatal Mood and Anxiety disorders to further provide support for families in the NICU and Advanced Delivery Program (ADP). Leah Heyel is a Licensed Clinical Social Worker for Nemours A.I. duPont Hospital for Children. Since 2018, she has provided support for patients and families in the Neonatal Intensive Care Unit (NICU) and the Advanced Delivery Program (ADP). Leah joined Nemours initially supporting the tracheostomy/ventilator and general pediatric patient populations after receiving her Master of Social Work degree from Delaware State University in 2015. Dedicated to helping NICU & ADP families, Leah has recently focused on expanding her understanding around perinatal mood and anxiety disorders with plans to complete her Perinatal Mental Health Certification later this year. Prior to Nemours, Leah worked six years in the Addiction field as an outpatient Level 1 substance abuse counselor for adults and adolescents. On this episode you will hear: - Shannon and Leah discuss their work and share insights into how social workers can help you. - You'll hear about why the role of a social worker can be confusing for families not knowing how they can help and who can access that help. - We'll discuss what families, like yours, should know about the role of a social worker. - What you should ask a social worker in your hospital. - The most common question families ask social workers, like Shannon and Leah. - You'll hear about how social workers can help families, like yours, fill out paperwork for social security benefits, secondary insurance, etc. - You will find out how often you can speak with a social worker at your hospital. - We discuss some of the resources you, as parents, can have access to through your social worker during your NICU stays. - Many times parents feel at fault for why their baby ended up in the NICU especially if they arrive prematurely, you will hear how social workers help families through those feelings. - You will get Shannon and Leah's biggest pieces of advice for families when meeting with a social worker. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

    S03E02: Jennifer and Craig Goldsmith - Navigating the NICU journey to Kindergarten - A Story from a family with twin boys born at 23 weeks 5 days

    Play Episode Listen Later Dec 13, 2021 28:09


    Every NICU experience is different even when babies are born at the same gestational age. Today we are speaking with the Goldsmith Family who welcomed their NICU Miracles at just 23 weeks and 5 days. They have a powerful story, to share with you, about navigating the ups and downs of the NICU all the way to starting Kindergarten this fall. If you have concerns about how to navigate the NICU and what seeing your NICU miracles start their educational journey with kindergarten looks like, this episode is for you. On this episode you will hear: - The Goldsmiths' journey to starting their family. - How the Goldsmiths decided to transfer their son to a new hospital. - How they managed going between two hospitals while trying to heal and manage life outside of the NICU. - When the Goldsmiths had moments that they felt as though they needed to speak up and how they did that (and what you can take away from that). - Craig Goldsmith shares his journey and perspective as a dad and husband, going through the NICU journey with Jennifer. - Gavin and Declan both experienced surgeries during their extended NICU stays. You will hear how the Goldsmiths got through the surgeries and what their childrens' recoveries looked like. - What it feels like to hear the words “You're going home.” - What it felt like to go back into the hospital. - What the Goldsmith family's journey looked like since graduation (from the NICU) to kicking off Kindergarten this year. - How you can manage therapies and the therapy schedule (like the Goldsmiths). - The one piece of advice the Goldsmiths have for other NICU families, like yours, who may be navigating a similar path. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

    S03E01: Dr. Andrew Lubell - Building a Strong Relationship with Your Pediatrician

    Play Episode Listen Later Dec 6, 2021 17:51


    Before graduating from the NICU, you choose a pediatrician to care for your baby after leaving the hospital. If you are a new parent, this can be an overwhelming task making sure you are asking the right questions and finding the right fit for your family especially after a NICU stay. Today's guest is here to talk with us about how to find a pediatrician and, most importantly, how to build a strong relationship with your pediatrician. Dr. Andrew Lubell has been in practice as an owner and clinician at Lockman & Lubell Pediatric Associates LLC in Montgomery County for over 20 years. A native of New York, he attended Binghamton University where he graduated with honors and a B.A. in Biology. He then attended The Mount Sinai School of Medicine where he excelled and graduated earning the honor of being inducted into the Alpha Omega Alpha Honor Medical Society. His training then took him to Philadelphia where he completed a Residency in Pediatrics at the Children's Hospital of Philadelphia. Dr. Lubell has been the Medical Director of the True North Medical Group (TNMG) for the past 3 years. He has been recognized as a “Top Doc” in Montgomery County for many years and listed as a “Top Doc” by Philadelphia Magazine the past 4 years. On this episode you will hear: - Why finding the right pediatrician who focused on preemies is very important. - For anyone looking to find a pediatrician - especially before leaving the NICU - the first step you should take and the questions you should ask. - Whether you should reach out to several pediatric practices. - What you need to know for your first pediatrician visit. - How Dr. Lubell helps families make the transition from the NICU to the pediatric practice. - How Dr. Lubell helps families like yours manage the special needs of their baby. - Why early intervention is important and what you need to know. - The role that specialists may play in the care of your NICU miracle. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

    S02E10: Teague O'Malley - Stress Reduction and Emotional Support Tools for NICU Families

    Play Episode Listen Later Aug 30, 2021


    The NICU journey is a rollercoaster filled with ups and downs, twists and turns. Managing stress is a challenge and yet so important for families navigating the NICU experience. Having several stress management tools in your back pocket is helpful, not only during your time in the NICU, but for years beyond. On this episode, Teague O'Malley will walk us through several practices to help us as we navigate life's challenges, especially in the NICU. Teague O'Malley is a meditation teacher and contemplative artist, weaving together evidence-based methodology with his creativity and open heart. Teague is a qualified teacher of the “Mindfulness-Based Stress Reduction” (MBSR) program, through the Center for Mindfulness in Medicine, Healthcare and Society at the University of Massachusetts Medical School, and training at the Penn Program for Mindfulness at the University of Pennsylvania Medical Center. He is also a certified teacher of the “Cultivating Emotional Balance” (CEB) and “The Breathing Class” programs. Teague teaches meditation workshops, courses and retreats in health care, education, corporate, and community settings around the world. To all of our practices for Stress Reduction & Emotional Support, please visit: https://www.todayisagoodday.org/stress-reduction-and-emotional-support-tools On this episode you will hear: Starting with relaxation practice, Teague will explain how these practices can help you during times of stress. You will hear about some of the relaxation techniques parents can find on the site. We will discuss which practice would is the most essential for busy parents (especially if you are a parent navigating daily trips to the NICU and home life). We will do a short relaxation breath-work practice and discuss what Martha noticed. You will hear about what mindfulness is and how this practice can support NICU parents. Many people say “I can't meditate, I can't turn my thoughts off,” if that is you, you will hear Teague's tips for people that have tried to practice mindfulness and have not felt comfortable. Teague's advice on the best time to practice mindfulness. We will do a short awareness practice and discuss what Martha noticed. We will then talk about the “Heart Opening” practice. If you have never heard the term before, we discuss what “Heart Opening” means. We will talk about exploring gratitude as a practice. You'll hear about some ways you can practice gratitude. We discuss the heart opening practices that will be available on the todayisagoodday.org website. We will perform a short heart opening practice and discuss what Martha noticed. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. Please also consider making a donation to Today is a Good Day, at www.todayisagoodday.org, to help support families with a NICU baby. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com) and editor David DeLizza. Copyright 2020 to 2021, SoftStix Productions LLC.

    S02E09: Dr. Jessica Gaulton - Innovation to Improve the Postpartum Experience

    Play Episode Listen Later Aug 23, 2021


    In this episode, we are learning about a new social venture working to improve the well-being of parents and their babies. Babyhood Lab was founded and is headed by Dr. Jessica Gaulton in collaboration with her colleagues at Newborn Special Care Associates. Dr. Gaulton is an Attending Physician in Neonatology and Director of Perinatal Innovation at Abington Hospital-Jefferson Health. Her expertise lies at the intersection of medicine, design, and entrepreneurship. She completed her Fellowship in Neonatology at the Children's Hospital of Philadelphia and Penn Medicine. Dr. Gaulton received her medical degree from the Johns Hopkins School of Medicine and a Master of Public Health in Health Policy and Management from the Harvard School of Public Health. Jessica graduated Summa Cum Laude from Cornell University. The Babyhood Lab project brings together a multidisciplinary group of clinicians, designers, entrepreneurs, and parents who are already designing products and delivering services to improve the postpartum experience to foster innovation from within the healthcare system  and create change for families. Personally, I have been asked to serve on the Advisory Board for the Babyhood Lab and am excited to continue supporting families especially those navigating the NICU. On this episode you will hear: What inspired Dr. Gaulton to start the Babyhood Lab. Why she and her colleagues at NSCA found delivering services to improve the postpartum experience to be so important. Babyhood Lab's mission and what they are hoping to achieve. You'll hear about human-centered design and design-thinking, and what those terms actually mean. How the many parents who have experienced the NICU, who love to share their family's personal journey (along with questions, feelings, and help they wish they had asked for) can participate in this project. You'll hear all about “co-design.” We will discuss the questions you, as parents, should be asking regarding breastfeeding and feeding your baby. One of the biggest lessons Dr. Gaulton has learned over the years from NICU families. Dr. Gaulton's biggest piece of advice to families when they are ready to leave the NICU. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. Please also consider making a donation to Today is a Good Day, at www.todayisagoodday.org, to help support families with a NICU baby. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com) and editor David DeLizza. Copyright 2020 to 2021, SoftStix Productions LLC.  

    S02E08: Ann Coyle - How to Know Your Resources and the Right Questions to Ask in the NICU

    Play Episode Listen Later Aug 16, 2021


    As we (Martha and Paul Sharkey) reflect on our family's personal journey with our premature daughters, we wish we had known about different resources that were available to help us through the NICU experience. We hoped we were asking the right questions to the nurses and doctors. We should have reached out to the social worker at the hospital for more assistance. Ann Coyle understands what parents are going through during their NICU journey. She is here today to help us identify those resources and provide some questions families should ask. Ann has been a nurse for 38 years at Virtua hospital in New Jersey. She spent 32 years in the NICU and now works as the Manager of Perinatal Bereavement programs, helping parents in a variety of ways. On this episode you will hear: The resources that many NICU families don't know about, and where you can find them. Many families don't realize they should ask their nurse or social worker in the NICU for help, we discuss where you can go for more information. Some of the questions you should ask, that you may not think of. The apps that might help you during your NICU stay. Advice for families entering the NICU. How you can overcome the challenge of introducing yourself to the NICU staff and how you can make a connection with other families in the NICU. Ann's advice for families experiencing loss. The story that sticks out to Ann as a lesson she learned from a family in the NICU. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. Please also consider making a donation to Today is a Good Day, at www.todayisagoodday.org, to help support families with a NICU baby. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com) and editor David DeLizza. Copyright 2020 to 2021, SoftStix Productions LLC.

    S02E07: Heidi Lengel - How to Travel Through Grief Moments and Anniversaries in a Healthy Way

    Play Episode Listen Later Aug 9, 2021


    Grief can look different for everyone. If you have experienced the loss of a pregnancy, loss of a child, or have living children in addition to children who have passed away, you may experience the process of grief in different ways. You might experience grief shortly after a loss, but grief can also last for years, brought to mind by milestones that are delayed or missed, and due dates that approach on the calendar.Heidi Lengel is a music therapist, certified complex trauma practitioner, and certified birth and bereavement doula at the Maternal Wellness Center with a dual Master of Music Therapy & Professional Counseling degree from Temple University. In addition to being a PhD resident at Drexel University, Heidi provides lectures, supervision, & clinical programming solutions to healthcare professionals throughout the United States & Canada. Heidi is also a loss mom, familiar with the grief process having experienced it herself. She joins us on this episode to share advice with you, on how you can navigate grief moments (or anniversaries related to events in your life that may trigger grief) in the healthiest way you can. On this episode you will hear: How you can start creating space for grief without being overwhelmed by the process. Why we avoid grief. How you can overcome cultural stigmas, such as: shame, misunderstanding of emotions, aversion to “hard” feelings. Why we fear we will become overwhelmed by grief and never “recover.” The process of catastrophizing black and white thinking. How we can engage with grief in healthy ways. Why you should talk with others when you want to. How to say "no" to others' expectations when you need or want to. How to connect with others who have experienced something similar, with healthy boundaries. What are grief styles? Grief Style: The characteristics of the way in which one person experiences and/or expresses their grief. We go over each of the following grief styles: Intuitive Adaptive Grieving Style Instrumental Style Blended Grieving Style Most importantly we discuss the different strategies people use during their grief process. We discuss the role of emotional expression, versus discharge. How you can choose a time/place to experience painful feelings. We discuss how you can use logical analysis, to break down loss into parts so as to evaluate & manage it. Where you can find information to help you understand your grief responses. How problem solving or using a directed activity can help you to deal with problems, accomplish tasks, and pursue alternative rewards. Why you should be careful to avoid acting-out behaviors, such as: substance abuse, fighting, overeating, compulsive spending, etc. How to use prayer or meditation to express emotion, and aid you in processing your thoughts. How you can plan ahead to honor grief, by honoring milestones as well as losses. (For parents of premature babies) Our milestones look different and it can be difficult when friends' babies who are technically the same age are "achieving more." We discuss how you can navigate through that. We discuss strategies for celebrating the accomplishments rather than playing the comparison game. The rituals or celebrations that can help you and your families honor your losses. Why you should take 5 minutes to talk meaningfully to or about your family member. How you can honor a memory by doing something “small.” We also discuss how to develop a consistent self care routine. How to offer yourself management times for self care (regardless of whether it is 5 min, 20 min, 1 hr, half a day, a whole day, a weekend, etc.). Why you need to create accessible self care options (nap, iced water, a quick shower, etc.) instead of setting elaborate expectations. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. Please also consider making a donation to Today is a Good Day, at www.todayisagoodday.org, to help support families with a NICU baby. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com) and editor David DeLizza. Copyright 2020 to 2021, SoftStix Productions LLC.

    S02E06: Steve Gramiak - Information for NICU Dads (with Paul Sharkey as Host)

    Play Episode Listen Later Aug 2, 2021


    Today is a Good Day recently started a NICU Dads Group to help dads connect with each other. The group was formed by Today is a Good Day Co-Founder, Paul Sharkey (the host of this episode), and fellow NICU Dad, Steve Gramiak. Dads have a special role to play during the NICU journey but can, often times, be overlooked. Their mental health, active role in taking care of their baby, and other aspects of the NICU may look different than their spouse or partner. Steve and Paul are here to share more about their personal NICU journeys, best practices, and more. If you are interested in joining the Today is a Good Day Virtual NICU Dads Group, please contact us at info@todayisagoodday.org. We will be sure to send you the upcoming group meeting dates. On this episode you will hear: We will answer several questions, frequently asked by NICU dads, such as: What was one of the biggest fears you had as a Dad navigating the NICU? How did you overcome that fear? What do you wish you had known going into your NICU experience? Did you go back to work? How did you handle working and going into the NICU? Did you think about self-care at the time? What do you think self-care would have looked like for you? What are ways you supported Amy during your NICU journey? Steve is a family therapist, so we will discuss how his work impacted his personal experience in the NICU. We discuss the stigma around Dads asking for support, and how you can get past that stigma. We started the Dads Group to help fellow NICU dads to connect, we will discuss what Steve and other dads have gotten out of these groups and what other dads can benefit from by joining us. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. Please also consider making a donation to Today is a Good Day, at www.todayisagoodday.org, to help support families with a NICU baby. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com) and editor David DeLizza. Copyright 2020 to 2021, SoftStix Productions LLC.

    S02E05: Rose Lounsbury - How Simplicity Can Help you Manage the NICU

    Play Episode Listen Later Jul 26, 2021


    We are in for a special episode with our guest on this episode - a fellow NICU mom of triplets, keynote speaker, Amazon bestselling author, and simplicity coach.  Rose Lounsbury helps overwhelmed people create open spaces in their homes, workspaces, and more importantly – their minds – by letting go of excess "stuff" that gets in the way. Rose started her own simplicity journey in 2012, after getting fed up with spending all of her free time dealing with "stuff." As she slowly let go of everything that didn't matter to her, she discovered some amazing things: free time, peace of mind, & clarity. She later became a simplicity coach to help others do the same thing. If you are someone who has a lot of “stuff” and family heirlooms, you might be excited to hear this episode. The concept of decluttering and simplifying life may help during your family's own NICU journey. On this episode you will hear: Rose's personal journey and how it led her to what she does for others today. How Rose's journey led her to focus on simplicity and decluttering life and helping others along the way. One of the most challenging obstacles Rose overcame after coming home from the NICU with triplets (and how you might be able to overcome the same challenge). Rose's biggest piece of advice for families who are feeling overwhelmed. How Rose's strategy might help you on a day-to-day basis. How you might get your spouse and kids on board with decluttering. Paul Sharkey will tell you how many items have a sentimental value to Martha, in their home - antiques, Claire's preemie clothes, and much more - you'll hear Rose's advice for dealing with sentimental items. The biggest lesson Rose has learned over the years. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. Please also consider making a donation to Today is a Good Day, at www.todayisagoodday.org, to help support families with a NICU baby. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com) and editor David DeLizza. Copyright 2020 to 2021, SoftStix Productions LLC.

    S02E04: Stefanie Lopacinski - Sorry Not Sorry (Putting Your Baby First)

    Play Episode Listen Later Jul 19, 2021


    Setting Visitor Guidelines after the NICU can be a difficult conversation for parents to have with grandparents, family members, and friends. Many times, others don't fully understand the importance of keeping all babies, but especially babies who have graduated from the NICU safe from respiratory illness and germs. Dr. Stefanie Lopacinski, Perinatal Behavioral Health Consultant at Abington-Jefferson Health is here to talk about this important topic for families. Dr. Lopacinski earned her Bachelor of Arts in Psychology from Temple University. After completing a Master's degree in social work from the University of Pennsylvania, she graduated from The Institute for Advanced Study of Human Sexuality with two doctorate degrees in Human Sexuality and Education. She has over 15 years of clinical experience providing individual, couples, and group therapy in several settings, including outpatient and inpatient centers. Her last 5 years at Abington has been providing individual therapy to Moms with Perinatal Mood and Anxiety Disorders in Pregnancy and Postpartum as well as Perinatal Loss. On this episode you will hear: How you can say “no” and feel confident in setting your visitation guidelines that work for your family. How often Dr. Lopacinski speaks with parents about this struggle (especially now during COVID 19). Advice for families trying to set guidelines. How to approach the subject, with your doctors and nurses, before leaving the NICU. How to deal with grandparents/aunts/uncles that tell you they are vaccinated, if you are still uncomfortable with no masks (and that IS OK). Whether you should draft a written plan to share with family members. What about getting feedback and language to use from the neonatologists and nurses. The current recommendations from the medical world. Why this does not just relate to NICU babies. When you can consider taking the baby to Target or out shopping for the first time (and how to deal with the anxiety). We also discuss the struggles that moms have telling visitors “no” or less than what the visitors want. You will hear about how to deal with struggles in your relationships. How to deal with the demands on families that are visiting, and the guilt tied to the stressful situation. We will discuss how you can empower yourself and your family to make the decisions you want to. Why you should throw your doctor, throw your pediatrician under the bus. Why you should print something to have on your refrigerators - "rules for this house." Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. Please also consider making a donation to Today is a Good Day, at www.todayisagoodday.org, to help support families with a NICU baby. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com) and editor David DeLizza. Copyright 2020 to 2021, SoftStix Productions LLC.

    S02E03 - Khalil Munir - Being a voice for NICU babies with Hidden Disabilities

    Play Episode Listen Later Jul 12, 2021


    We frequently speak with parents about their experience of having a baby in the NICU. Today, we get the incredible opportunity to speak with a former preemie who came into the world at just 1lb. 4oz., at a time when a premature baby his size had a very small chance of survival. Khalil Munir did survive and thrive after an extended stay in the NICU. Today, Khalil Munir is a noted theater artist, choreographer, and arts educator. He conceived and stars in the autobiographical stage production One Pound, Four Ounces combining dance, hip hop, percussion, and monologue to convey a raw, yet inspirational series of vignettes from his complicated childhood. The show has been mounted at Freedom Theatre, the First Person Arts Festival, the Suzanne Roberts Theatre, and through an ongoing residency at the National Museum of American Jewish History. This production is the inspiration for the documentary What's in a Name?, which highlights self-determination and intergenerational healing among Black men. He is co-producing and co-writing the film. Khalil has been cast in numerous stage and screen productions as an actor and dancer, including Karl “Dice” Raw's The Last Jimmy. He has served on the faculty at Philadelphia's historic Freedom Theatre, Delaware Valley Friends School and Temple University, and he has helped train educators who work with students with learning disabilities. Khalil graduated from Adelphi University and is originally from South Philadelphia. On this episode you will hear: Khalil's personal story and early start in life. How Khalil felt as a child, when he felt as though he was unable to learn the same way as his peers because of his dyslexia. What moment helped Kahlil realize he was learning differently. What dyslexia actually means. What steps Khalil's family took to advocate for him throughout school. Khalil's children's book. The simple phrase, from Khalil's book, that brought tears to Martha (Today is a Good Day's Co-Founder) to tears. A phrase that relates to so many families who have children with special educational and physical needs. The pivotal moment for Khalil, when he accepted his dyslexia and began using it as his “superpower.” Khalil also talks about representation and, as he shares in his book, showing little brown boys they are powerful no matter what their circumstance may be. You'll hear what Khalil believes is the biggest impact he has been able to make on others through his work today and through his story. Khalil will discuss what it means to “wear your crown.” About Khalil's show “1lb. 4oz,” and where you can see the show. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com) and editor David DeLizza. Copyright 2020 to 2021, SoftStix Productions LLC.

    S02E02 - Joanne Palermo - Early Intervention - What You Need to Know

    Play Episode Listen Later Jul 5, 2021


    Joanne Palermo, Executive Director and owner of Early Childhood Assessment Services, joined us, on this episode, to talk with us about the importance of Early Intervention, for NICU babies. During a NICU stay and even with a full-term baby, families will hear about Early Intervention, but what does that mean? You may have many questions for example: How important is it for families to set up an Early Intervention evaluation? Does early intervention cost money? What services will Early Intervention provide? We will get the answers to all of these questions and more from Joanne. Throughout her career, she has worked with different age groups in the field of special education. For the last 25 years, her focus has been on helping children and their families in early intervention and more specifically early intervention evaluations. She has three grown children and two grandchildren. This topic is near and dear to the Today is a Good Day Founder, Martha's, heart. To this day, she credits her daughter, Claire's, ability to walk to their dedicated and wonderful Early Intervention therapist. On this episode you will hear: How Joanne got into this field What has been rewarding about the focus on Early Intervention The term “Early Intervention” can be overwhelming to hear. We will discuss what that term really means Why it is important for families with babies in the NICU to speak with their social workers or medical teams about an Early Intervention evaluation The qualification factors for Early Intervention What is required from the family of the child for these services We will demystify the frequently asked questions about costs COVID has certainly impacted therapy for kids - we will discuss teletherapy and what that can look like for families We will also discuss the differences between Early Intervention and traditional outpatient therapy Martha remembers when Claire came home from the NICU (and shares that story) and shares why it was so hard to answer the question “How old is she?” We discuss the impact of adjusted age on developmental milestones If a child graduates from Early Intervention before they are 3 years old, we discuss whether they can have another evaluation and get services again We discuss next steps after Early Intervention We discuss what to do if a child doesn't qualify for services through their county, and discuss private therapy being covered by secondary insurance Joanne shares her advice for families currently navigating the NICU Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com) and editor David DeLizza. Copyright 2020 to 2021, SoftStix Productions LLC.

    S02E01: Brenda Reynolds - “Now What?!” Tools for Dealing with Uncertainty and Fog

    Play Episode Listen Later Jun 28, 2021


    The NICU is a place filled with uncertainty and (as Brenda Reynolds calls it) FOG. The NICU can blindside us and hold us back from moving forward. Brenda is a sought after organization and leadership consultant, coach, TEDx speaker, author, and NICU parent. She considers herself a change and transition expert. She joined us on this episode to share her family's personal journey, and to give you tools to navigate through uncertain times. On this episode you will hear: What is it about uncertainty that shakes us up What is "Transition FOG" and where it comes from Brenda's tips for navigating Transition FOG and times of uncertainty How Brenda has managed her current situation Common pitfalls to experiencing Transition FOG What the FOG acronym stands for Brenda gives you advice about developing a TBD mindset, from her book "TBD" Brenda also gives you advice on where you can get more information and support for dealing with uncertainty and your own “now what's?” Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com) and editor David DeLizza. Copyright 2020 to 2021, SoftStix Productions LLC.

    S01E10: Dr. Katie Ziegler – COVID-19 and the NICU, What Families Need to Know

    Play Episode Listen Later Nov 16, 2020 28:19


    Navigating the NICU journey before COVID-19 was already incredibly stressful and overwhelming. Adding the COVID-19 pandemic to the equation takes a family's anxiety and stress to a completely new level. On this episode, we will learn how the NICU team at Abington Hospital has supported families during the pandemic using virtual practices, and what we have learned from these experiences. Dr. Katie Ziegler, the Medical Director for Abington's NICU, joins us to share best practices for Mom and Baby as it relates to COVID-19 and to dealing with public health concerns. On this episode you will hear: - Why Dr. Ziegler chose a career in Neonatal Intensive Care - Why Abington Hospital was recently featured in the New England Journal of Medicine Catalyst, highlighting how their practice has changed in the NICU since the COVID-19 pandemic began - Why Dr. Ziegler feels innovation is so important as it relates to a family's NICU experience and interactions with the medical teams, especially during the COVID-19 Pandemic - Dr. Ziegler shares the virtual practices the team at Abington Hospital has utilized to care for the babies and their families - We'll hear about "virtual rounds" and how they work - We will discuss the other measures that have been implemented to keep the babies and their families safe in the NICU - We talk about families delivering now during the COVID-19 pandemic - You will also hear about whether newborns more/less susceptible to COVID-19 than adults - We discuss what symptoms parents should watch out for - You will also hear Dr. Ziegler's advice for parents, if the mother is sick with COVID-19, as well as the best way to prevent the baby from getting sick Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com). Copyright 2020, SoftStix Productions LLC.

    S01E09: Caitlin Johnson and Adelina Roach - What You Need to Know if You Are Considering Another Pregnancy Post-NICU

    Play Episode Listen Later Nov 9, 2020 48:08


    After a NICU journey, considering another pregnancy can be stressful, especially if the previous experience included an extended stay in the NICU or a tragic loss. On this episode, we speak with two NICU moms who experienced a second pregnancy post-NICU. We will share the same feelings of anxiety and fear that you may experience, especially as they approached the gestational week when our guests' premature babies were born. We will also compare their experiences, discussing the differences between a second NICU stay and welcoming a full-term baby post-NICU. On this episode you will hear: - Caitlin discusses finding out that she was pregnant (after having undergone a NICU journey), and whether a post-NICU pregnancy is considered high risk - Caitlin discusses the experience of having another pregnancy after going through the NICU - Caitlin underwent NICU journeys not once but twice, she discusses managing a second stay in the NICU and the advice she has for other families who have that experience - We dig deeper into the emotions and sensations Caitlin experienced - We discuss Adelina's experience, being considered a high risk pregnancy, but having had a full term pregnancy - We talk to Adelina about her concerns regarding her post-NICU pregnancy - We discuss managing anxiety and fear, especially with another child at home - We talk about the feelings that arise, during the pregnancy, especially when you get closer to the week your Premie was born - Adelina gives her advice to families who have experienced the NICU that are pregnant again, or families that are considering having another pregnancy Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com). Copyright 2020, SoftStix Productions LLC.

    S01E08: Juliet Marciano – When Your Life is not what you expected

    Play Episode Listen Later Nov 2, 2020 53:39


    The world of the NICU can feel overwhelming and isolating. It can be difficult to stay in the moment and be present, if your baby is born prematurely or full-term with complications. How can you embrace the NICU experience to be the best parent you can be for your baby? How do you find the strength to simply look at the “next step” rather than the next several years and all of the ‘what ifs'? On this episode, we welcome Juliet Marciano, a Parent Coach - certified by the Parent Coaching Institute, to share strategies on letting go of what we expected and embracing what IS, learning to live in the present moment, and nurturing your child's gifts. On this episode you will hear: - Juliet's personal experience and why she has chosen this line of work to help other families. - Juliet's advice for a family that has welcomed a new baby that is admitted to the NICU, considering all of the uncertainties that come with a NICU stay. - Juliet's practical advice for families who feel emotionally overloaded. - How Juliet helps families accept and embrace the experience they have been thrown into, especially in the NICU. - The steps Juliet recommends for parents, to help them let go of what they thought welcoming a new baby would look like and to accept what life is at the present moment. - How you can better recognize and nurture a child's gifts and abilities. - How to accept and embrace whatever life throws your way. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com).Copyright 2020, SoftStix Productions LLC.

    S01E07: Stephanie Cartin - Navigating the Ups and Downs of Loss and Joy in the NICU

    Play Episode Listen Later Oct 26, 2020 37:12


    On this episode, we will speak with Stephanie Cartin, fellow NICU mom, CEO of SocialFly and,  Co-host of The Entreprenista Podcast. You will hear Stephanie discuss her journey, reflecting on years of struggling to conceive, learning that she and her husband were expecting twins, and how they navigated the ups and downs of loss and joy in the NICU. Stephanie will share her biggest lessons learned and how to best advocate for yourself in the medical setting. We'll also discuss how family and friends can support someone through different stages of the journey to become pregnant, loss, and a NICU stay.   On this episode you will hear: - How Stephanie managed her expectations v. reality with honoring Emmy and taking care of Mollie - Through all of Stephanie's experiences, the advice she has for family and friends to support someone going through a similar NICU journey - How Stephanie dealt with knowing that Emmy had passed away in the womb and navigating the unknowns of delivering Emmy - Stephanie's suggestions for other families going through infertility - How Stephanie would encourage others to speak up and advocate for themselves - Stephanie's advice for walking the path with your spouse, and the impact experience had on her spouse - How Stephanie developed her birth plan for her girls and how you can work with your medical team   Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com).Copyright 2020, SoftStix Productions LLC.

    S01E06: Silver Pyanov and Kellie Wicklund – Mental Health and NICU Families

    Play Episode Listen Later Oct 19, 2020 65:14


    On this episode, we discuss mental health for NICU families. This is an important topic that we should be discussing every day. Mental health is a significant issue for parents in the NICU.  If you are feeling the stress of the NICU, you are not alone. If you are currently navigating your own NICU journey, listen closely to our guests today as they talk about trauma as it relates to the NICU experience, along with the importance of self-care and recognizing signs of Postpartum depression. Joining us for this important conversation are: Kellie Wicklund, Licensed Psychotherapist and Owner/Clinical Director at the Maternal Wellness Center; and, Silver Pyanov, fellow NICU mom, doula, and childbirth educator. On this episode you will hear:- Kellie discusses the first challenge or issue NICU moms usually bring up regarding their struggles, and how Kellie helps them through that - Silver had multiple NICU stays with her children, so she shares those journeys with us and talks about the biggest emotion she remembers feeling through each journey. - Silver discusses how she worked through her NICU journeys - Silver talks about when she experienced child loss and the emotions she felt - Silver shares stories from her work with the many families she has helped over the years. - Silver givers her biggest piece of advice for families navigating a pregnancy - Kellie discusses some advice for families seeking help after a NICU stay - We discuss the importance of self-care, and how each guest encourages parents to focus on self-care - We talk about the desire to be with your baby every hour of every day and the guilt of not being there enough - We discuss the stigma around accepting help, and our guests share their recommendations to families when they have people offering to take care of their kids at home, clean their homes, make meals, and offer to help - Silver discusses detachment and ways that she has helped moms specifically to connect with their babies - Kellie discusses helping fathers with mental health issues after a NICU stay Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com).Copyright 2020, SoftStix Productions LLC.

    S01E05: Porsche Pinder - Love and Loss in the NICU

    Play Episode Listen Later Oct 12, 2020 30:09


    In this episode, we are discussing love and loss in the NICU. Not every NICU journey ends with taking a baby home. There are also many times when multiples are born and not all graduate from the NICU. How do you walk the path of losing one child while trying to support the surviving child? Porsche Pinder, fellow NICU mom and host of "Sista's on Air" on CMP Radio, shares her personal journey of welcoming Amara and Jace, saying goodbye to Amara, and staying strong for Jace. On this episode you will hear:- Porsche's pregnancy journey and welcoming her sweet miracles into the world. - Porsche's story of what it felt like saying goodbye to Amara and then having to stay strong for Jace - Porsche's story of what helped her get through each day - The three people who helped Porsche most through her journey - Porsche's advice for family members and friends who want to help but don't know what to do - What Porsche wishes she had done differently, and what you may want to consider for your own NICU journey - Porsche shares her emotional triggers and how she has navigated through them over the years - You'll also hear about how Jace is doing today, and how Porsche continues to honor Amara Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com).Copyright 2020, SoftStix Productions LLC.

    S01E04: Kori Robino – Full-Term Babies in the NICU

    Play Episode Listen Later Oct 5, 2020 27:49


    On this episode we discuss babies who are born full term, but need additional assistance with a stay in the NICU.  So often we only associate premature birth with the NICU. While 1 in 10 babies are born prematurely, there is a segment of the NICU population who are born at full-term but need a stay in the NICU because of special circumstances. Our guest on this episode, Kori Robino, is a passionate and dedicated NICU mom who had this exact experience. As we always say, it doesn't matter whether your baby is in the NICU for 3 days, 3 months, or longer, the experience is traumatic and life-altering. Hear Kori share her experiences having a full-term baby in the NICU and how she channeled her NICU journey into giving back to others navigating a similar path. On this episode you will hear:   - Kori's journey as well as Martha's experience as a NICU parent of 23-weekers. - Kori shares how she felt having her full-term baby in the NICU and seeing many other preemies around you? - Kori's describes her most vivid memory, related to her NICU experience - Kori's advice to other parents navigating the NICU journey - Kori describes what are some of the emotional roadblocks that parents going through a NICU journey should be careful about - Kori talks about the three people who helped her most through her NICU experience. - KicKee Pants and the new partnership with Today is a Good Day.   Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel.   This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com). Copyright 2020, SoftStix Productions LLC.

    S01E03: Rachel Marzario - The importance of friendships in the NICU

    Play Episode Listen Later Sep 21, 2020 35:55


    On this episode, we discuss why our family founded TODAY is a Good Day and the life-long friendship that sparked a fire to help others during their NICU Experience. In 2010, Rachel Marzario and Martha Sharkey (Co-founder of TODAY is a Good Day and host of the podcast) were on bedrest at the same time. They did not know each other, but they were both pregnant with twin girls. Their daughters were born just 8 days apart. Little did they know how their lives would intertwine developing a lifelong friendship for their families. This important friendship is the foundation for one of Today is a Good Day's most important pillars: Fostering a connection among parents. On this episode you will hear: Martha and Paul Sharkey's journey and why they founded TODAY is a Good Day The experiences that stood out most to Rachel, about her pregnancy journey and welcoming her baby girls How Rachel dealt with saying goodbye to her baby girl, Jenna, and how she continued to stay strong for her baby girl, Samantha How Samantha is doing today Advice for other families navigating the NICU How Rachel's experience as a PICU nurse impacted her personal journey through the NICU The importance of Rachel and Martha's friendship - what Rachel remembers the most about their friendship during the NICU Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com).  Copyright 2020, SoftStix Productions LLC.

    S01E02: Maryann Malloy - The relationship between you and your NICU Nurse

    Play Episode Listen Later Sep 21, 2020 34:32


    One of the most important aspects of a parent's role in the NICU is to be an advocate for their baby. This advocacy starts with the NICU Nurse caring for your child. Building a good relationship will help you during the NICU journey. Most importantly, establishing open communication with your nurses helps your baby's overall care. Learn ways to open up about what you need from your baby's nurse as we talk with Maryann Malloy, Nurse Manager at Einstein Medical Center Philadelphia. On this episode you will hear: How long Maryann has been a nurse and why she choose the NICU What Maryann wants to share with families who spend time in the NICU Maryann describes her process behind working with families who have recently had premature babies v. families who have recently had full term babies with complications A time when Maryann made a strong connection with a family that was going through a NICU journey The first question Maryann suggests families ask when beginning a NICU journey Mental health issues can sneak up on us, especially after such a difficult loss, Maryann discusses some of the emotional roadblocks that parents going through a NICU journey should be careful about Why Maryann recommends that families keep a journal while undergoing their NICU journey The common myths that Maryann hears from families in the NICU, and the advice she has for overcoming those myths Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com).  Copyright 2020, SoftStix Productions LLC.

    S01E01: Renee & Alex Archawski – When your NICU baby grows up

    Play Episode Listen Later Sep 19, 2020


    During the NICU journey, it is difficult to see past the moment right in front of you - the next call from the doctor, your baby's next heel prick, head ultrasound, or car seat test. The NICU experience can feel never-ending. The days seem to run into each other until the big day arrives when they finally say ‘your baby is going home.' However, as you will hear on this episode, going home brings on a whole new set of challenges and experiences. On this episode, we are speaking with Renee and Alex Archawski to discuss what it's like post-NICU (many years later) when your preemie becomes taller than you and what it feels like to look back at your NICU experience after so many years. On this episode you will hear: Renee & Alex's journey to parenthood How they navigated the NICU, not once but twice Their experience in the NICU The things they wish they knew going into their NICU journey Looking back, what advice they would give to other families now that their 1st NICU miracle is a teenager The questions they thought of asking, while undergoing their NICU journey, but avoided asking because of fear or anxiety while in the NICU Alex's experience, from a dad's perspective, in the NICU Alex's advice to other dads navigating a NICU journey Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com).  Copyright 2020, SoftStix Productions LLC.

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