Podcasts about hdsa

Jordan and Don haven't done a comedy episode yet, so now it's for the guys to have one. They talk about comedies starring Nic Cage, Philip Seymour Hoffman, and others. They talk about well known comedies and comedies only funny to one person. They talk also talk about the Coen Bros, monster movies, and more. Jordan also asks Don a question. Don is sorry he swears too much. CANCER SUCKS! Get tested if you feel strange. Find out more about Huntington's Disease at HDSA.org and please donate if you can. Find us on   @isceneitpod on Twitter Jordan@jordanwermager Don@WojoDuke. Listen to us On Spotify, Apple, and wherever you listen to your podcasts. Much Love! Watch more movies!

Jordan and Don are talking their favorite characters actors. They also talk about what they have seen since their last recording. Don has hit rock bottom by watching a movie remade by the Lifetime network. Jordan announces that one of his favorite weeks of the year is coming up where he watches Draft Day once a day for the week leading up to the NFL draft. Don is sorry he swears too much. CANCER SUCKS! Find us on   @isceneitpod on Twitter Jordan@jordanwermager Don@WojoDuke. Listen to us On Spotify, Apple, and wherever you listen to your podcasts. You can now find us at isceneitpod.org for movie reviews and more. Find out more about Huntington's Disease at HDSA.org Much Love! Watch more movies!

Jordan and Tom are joined by their by baseball obsessed Tom to discuss the best baseball movies of all time bracket style. Feelings will be hurt. Friendships maybe tested. The best baseball movie of all time will be decided by us. Don is sorry he swears too much. CANCER SUCKS! Find us on   @isceneitpod on Twitter Jordan@jordanwermager Don@WojoDuke. Listen to us On Spotify, Apple, and wherever you listen to your podcasts. You can now find us at isceneitpod.org for movie reviews and more. Find out more about Huntington's Disease at HDSA.org Much Love! Watch more movies!

Jordan and Don have stepped into the new Road House directed by Doug Liman, starring Jake Gyllenhaal, and is going straight to Amazon Prime. The original Road House starring the late, great Patrick Swayze is one of the boys favorite movies. So how will they react to this reimagining? Don is sorry he swears too much. CANCER SUCKS! Find us on   @isceneitpod on Twitter Jordan@jordanwermager Don@WojoDuke. Listen to us On Spotify, Apple, and wherever you listen to your podcasts. You can now find us at isceneitpod.org for movie reviews and more. Find out more about Huntington's Disease at HDSA.org Much Love! Watch more movies!

Jordan and Don are making their picks for the 2024 academy awards. They also rank Martin Scorsese's ten movies that he was nominated for the best director Oscar. Jordan has a game he is dropping on Don with no heads up. They also talk about Dune Part 2, Spaceman starring Adam Sandler, and The Iron Claw. Don is sorry he swears too much. CANCER SUCKS! Find us on   @isceneitpod on Twitter Jordan@jordanwermager Don@WojoDuke. Listen to us On Spotify, Apple, and wherever you listen to your podcasts. You can now find us at isceneitpod.org for movie reviews and more. Find out more about Huntington's Disease at HDSA.org Much Love! Watch more movies!

Jordan and Don are feeling the love with Valentine's Day approaching. So much love in fact they have decided to recast three classic romance movies from the 1990's. Don is sorry he swears too much. CANCER SUCKS! Find us on   @isceneitpod on Twitter Jordan@jordanwermager Don@WojoDuke. Listen to us On Spotify, Apple, and wherever you listen to your podcasts. You can now find us at isceneitpod.org for movie reviews and more. Find out more about Huntington's Disease at HDSA.org Much Love! Watch more movies!

Jordan and Don talk about their favorite Adam Sandler movies. They also discuss year 2000 dumb comedies, Scott Adkins, weird movies starring Barry Keoghan, Jason Statham uses a gun movies, and much more. Don is sorry he swears too much! RIP Carl Weathers CANCER SUCKS! Find us on   @isceneitpod on Twitter Jordan@jordanwermager Don@WojoDuke. Listen to us On Spotify, Apple, and wherever you listen to your podcasts. You can now find us at isceneitpod.org for movie reviews and more. Find out more about Huntington's Disease at HDSA.org Much Love! Watch more movies!

Jordan and Don have survived the holidays. Now it's time to celebrate a new year with more movies to look forward to, watch, and talk about. What a fun time for all involved. Don is sorry he swears too much. CANCER SUCKS! Find us on   @isceneitpod on Twitter Jordan@jordanwermager Don@WojoDuke. Listen to us On Spotify, Apple, and wherever you listen to your podcasts. You can now find us at isceneitpod.org for movie reviews and more. Find out more about Huntington's Disease at HDSA.org Much Love! Watch more movies!

Jordan and Don are celebrating their last show of 2023 by giving you the best damn movie awards show you can find on any podcast. Don is sorry he swears too much. CANCER SUCKS! Find us on   @isceneitpod on Twitter Jordan@jordanwermager Don@WojoDuke. Listen to us On Spotify, Apple, and wherever you listen to your podcasts. You can now find us at isceneitpod.org for movie reviews and more. Find out more about Huntington's Disease at HDSA.org Much Love! Watch more movies!

Jordan and Don give their reactions to David Fincher's newest movie called The Killer that Netflix dropped on Nov. 10th. Don is sorry he swears too much. CANCER SUCKS! Find us on   @isceneitpod on Twitter Jordan@jordanwermager Don@WojoDuke. Listen to us On Spotify, Apple, and wherever you listen to your podcasts. You can now find us at isceneitpod.org for movie reviews and more. Find out more about Huntington's Disease at HDSA.org Much Love! Watch more movies!

Jordan and Don are going deep into the danger zone and ranking Tom Cruise's filmography from 2000 with Mission: Impossible 2 to 2023's MI: 7. Don is sorry he swears too much. CANCER SUCKS! Find us on   @isceneitpod on Twitter Jordan@jordanwermager Don@WojoDuke. Listen to us On Spotify, Apple, and wherever you listen to your podcasts. You can now find us at isceneitpod.org for movie reviews and more. Find out more about Huntington's Disease at HDSA.org Much Love! Watch more movies!

Jordan and Don are celebrating our podcasts 2nd anniversary by doing a watch along commentary for the 1991 action extravaganza Stone Cold starring the one and only Brian "The Boz" Bosworth. This episode is going to kick an unholy amount of ass! Don is sorry he swears too much. CANCER SUCKS! Find us on   @isceneitpod on Twitter Jordan@jordanwermager Don@WojoDuke. Listen to us On Spotify, Apple, and wherever you find your podcasts. You can now find us at isceneitpod.org for movie reviews and more. Find out more about Huntington's Disease at HDSA.org Much Love! Watch more movies!

Jordan and Don are going ballistic and ranking Tom Cruise's filmography from his debut in 1981's Endless Love to 1999's Magnolia. They also discuss the new TMNT: Mutant Mayhem, a crazy alien horror on Hulu, and much more. Don is sorry he swears too much. CANCER SUCKS! Find us on   @isceneitpod on Twitter Jordan@jordanwermager Don@WojoDuke. Listen to us On Spotify, Apple, and Stitcher. You can now find us at isceneitpod.org for movie reviews and more. Find out more about Huntington's Disease at HDSA.org Much Love! Watch more movies!

Jordan and Don have seen Barbie and share their reactions. They talk about Tom Cruise, bad CGI effects, and Don tells the world that he has fallen down a bad movie rabbit hole that was supposed to stay away from. Don is sorry he swears too much. CANCER SUCKS! Find us on   @isceneitpod on Twitter Jordan@jordanwermager Don@WojoDuke. Listen to us On Spotify, Apple, and Stitcher. You can now find us at isceneitpod.org for movie reviews and more. Find out more about Huntington's Disease at HDSA.org Much Love! Watch more movies!

Jordan and Don are figuring out the next episode, so they decided to talk about the new movies they have finally both seen. They talk about Netflix's Hidden Strike, Ari Aster's Beau is Afraid, Marvel's Guardians of the Galaxy 3, Transformers - Rise of the Beast, Across the Spider-Verse, and Nicolas Cage in Sympathy for the Devil. For spoiler avoiding Don has time codes for when each segment starts. Don is sorry he swears too much. Hidden Strike 38 minutes to 46 minutes, Beau is Afraid 45 minutes to 53 minutes, Guardians of the Galaxy 3 54 minutes to 63 minutes, Transformers 63 minutes to 74 minutes, Spider-Verse 2 74 minutes to 82 minutes, and Sympathy for the Devil 82 minutes to 89 minutes. Find us on   @isceneitpod on Twitter Jordan@jordanwermager Don@WojoDuke. Listen to us On Spotify, Apple, and Stitcher. You can now find us at isceneitpod.org for movie reviews and more. Find out more about Huntington's Disease at HDSA.org Much Love! Watch more movies!

Don Jordan and Jesse are talking about their reactions to Oppenheimer. They also rank Christopher Nolan's filmography. Don is sorry he swears too much. Find us on   @isceneitpod on Twitter Jordan@jordanwermager Don@WojoDuke. Listen to us On Spotify, Apple, and Stitcher. You can now find us at isceneitpod.org for movie reviews and more. Find out more about Huntington's Disease at HDSA.org Much Love! Watch more movies!

Jordan and I have both seen the new Mission: Impossible movie in theaters and we want to share our reactions to each other and to the listening world. Don is sorry he swears too much. Find us on   @isceneitpod on Twitter Jordan@jordanwermager Don@WojoDuke. Listen to us On Spotify, Apple, and the I Heart Radio app. You can now find us at isceneitpod.org for movie reviews and more. Find out more about Huntington's Disease at HDSA.org Much Love! Watch more movies!

Jordan and Don have gotten to fifty episodes. For this mini accomplishment they decided to talk about movies. They talk about dating movies, Tom Savini, and they talk about making movies more appointment viewing again. Don has them play a three questions game inspired by Craig Kilborn. And more. Don is sorry he curses too much. The boys also wish to add that they both didn't get back to the drill movies they brought up. Don's is 1987's Death Before Dishonor and Jordan's is 1982's The Slumber Party Massacre. Find us on   @isceneitpod on Twitter Jordan@jordanwermager Don@WojoDuke. Listen to us On Spotify, Apple, and Stitcher. You can now find us at isceneitpod.org for movie reviews and more. Find out more about Huntington's Disease at HDSA.org Celebrate Rick Montana Day Every July 6th #RickMontanaDay Much Love! Watch more movies!

Jordan and Don thought an episode about DAD movies would be a fun 30 minute episode. To the shock of no one and especially themselves they went an hour. They talk about Nicolas Cage, sports movies, and all the crying inbetween. Don is sorry he swears too much. Find us on   @isceneitpod on Twitter Jordan@jordanwermager Don@WojoDuke. Listen to us On Spotify, Apple, and Stitcher. You can now find us at isceneitpod.org for movie reviews and more. Find out more about Huntington's Disease at HDSA.org Much Love! Watch more movies!

www.hdreach.org eboulavsky@hdreach.org 919-327-1804 Erika Boulavsky, MSW, LCSWA, serves as the Community Outreach Specialist for HD Reach. Erika is responsible for helping to build relationships and education within the medical community as well as assisting HD families navigate supportive resources. Erika has a BA in Sociology from Costal Carolina University and a Masters of Social Work from the University of South Carolina. She is originally from Myrtle Beach, SC and began her journey as a social worker for her local hospice agency in 2017. She moved to Raleigh, NC in 2020 and continued to work with the hospice population until starting with HD reach in July 2022. She and her partner have family members affected by HD and have been long time volunteers within HDSA youth programs, HDYO camps, and speakers at the HDSA convention. Erika and her partner enjoy relaxing with their two dogs, spending time with family and friends, and traveling as much as they can. Debbi Fox-Davis has enjoyed a 23-year career leading and developing resources for nonprofits in North Carolina. Her career accomplishments include being the first Executive Director for Dress for Success of the Triangle; raising funding and engaging community supporters to ensure all children have permanent, safe and loving families for the Children's Home Society of NC; raising scholarship and research funds for NC State University and running NC State's Institute for Nonprofits online journal for nonprofit management. Debbi has also served as the Assistant Director for Development at Habitat for Humanity of Wake County and as the Director of Development and Marketing for the North Carolina Theatre.

For more information, please visit www.hdgenetics.com Wes is a Certified Genetic Counselor (CGC) through the American Board of Genetic Counseling. He earned a Master of Science in Genetic Counseling from Johns Hopkins University in 2021. As part of this program, Wes was an Intramural Research Trainee for the National Human Genome Research Institute (NHGRI) and National Cancer Institute (NCI) at the National Institutes of Health (NIH).  His graduate thesis research was titled “COVID-19 Impact on Genetic Counseling for Huntington's Disease via Teleheath”. Prior to graduate studies, Wes worked as an undergraduate laboratory assistant for Dr. Jeff Carroll at Western Washington University, studying the neurobiology and behavior of mice modeling Huntington's disease. In 2018, Wes was selected for HDSA's Donald A King Research Fellowship and in 2019 earned a Bachelor of Science in Behavioral Neuroscience. Wes runs all of HD Genetics' counseling sessions and will be the main point of contact throughout the genetic testing and counseling experience. You can reach out to Wes anytime with questions: Wes@HDgenetics.com

Today we interview Louise Vetter, President and CEO of Huntington's Disease Society of America, about the work they do for those impacted by Huntington's Disease. We'll discuss the complex symptoms and unique challenges surrounding this disease, the ways in which HDSA helps patients, their families, and caregivers, and the research grants and legislation HDSA is supporting to bring progress and relief. To support HDSA and discover more ways to help, visit: https://hdsa.org/To learn more about the show, view transcripts, and more visit:https://www.actsofimpact.comSpecial thanks to Louise and the HDSA team. Music by Alex Grohls.

This week we chat with Kelly, a millennial obsessed dog mom.  She started an Instagram for her rescue dog, Finley, during the pandemic. Her husband, Jared and she both just turned 29 and reside in Wisconsin.  Their favorite activities include hiking, camping, volunteering for HDSA, their dog treat biz Bark River Pets, and visiting Hawaii.Her Instagram started as a platform for spunky videos and pictures of their pup, but she found a way to spread awareness and even further raise some money for Huntington's Disease (HD). HD is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. I lost my mother to this disease in 2015, and much of my childhood/early teens years were spent watching her decline - HD is a disease described as having ALS, Parkinson's and Alzheimer's diseases- simultaneously.  Symptoms include personality changes, mood swings, depression, forgetfulness, impared judgement, unsteady gait, involuntary movements, slurred speech, difficulty swallowing and significant weight loss.  Because the disease is genetic, there is a 50% chance I will inherit this same fate. There is testing available to see if I carry the gene, but for my own mental health, I've made the decision to not get tested, live the best life I can, and if we were to have a family  down the road, I will go through with testing at this time.  Her least favorite question is when people ask "when are you having kids?!?" because it's not that simple..Kelly connected with really wonderful accounts, including Sam's and found a way to speak about my mental health. She remembers thinking, WOW we're allowed to TALK about this!?!? She had never told anyone her story, except Jared! I truly didn't think you could talk about mental health... Therapy was never an option, because I would have never considered it. I grew up to believe therapy was a sign of weakness, and my last name was literally Strong! Now Kelly has been in therapy for over a year now and loves it.   She is learning so much about herself through therapy.Once she connected with people sharing their own experience with mental health, Kelly was ready to talk and share her story.   I remember my mom in her final stages of HD telling me she wanted to end her life, she wanted everything to be over because she was in so much pain. She saw her mom decline physically, but couldn't grasp the concept of her mental health declining until the very end. Persons with HD are at a higher risk for suicide and she is ready to start the conversation about this now. She is able to talk so openly now about mental health, but it took her many years to get there.Kelly says, "I don't have all the answers, but I have the best partner, friends, and family support group, always willing to join us at the next fundraiser!"Article Kelly Mentions during the episode: https://wisconsin.hdsa.org/news/-letstalkabouthd-with-kelly-strong?fbclid=IwAR0fk_K6gH-3TRjBSlaEWSTZolhp4mISPyxS6qvRU_X80JU5-ZOqaTVRNcU

May Is HD Awareness month, and our guests for this episode were Drs. Elton and Laquita Higgs. The couple adopted a little girl many years ago - who developed Huntington's Disease (HD). One of the most horrific diseases on the planet, HD eventually cost their daughter her life - but not before she had a daughter who also developed the genetic (and terminal) illness. Listen to their inspiring and insightful story - from their book, SHATTERED DREAMS - BUT HOPE: Encouragement for Caregivers of Huntington's Disease and Other Progressive Illnesses   For more information on HD, please visit HDSA.org (The Huntington's Disease Society of America)

In this episode, Sheriff Mikesell, Lieutenant Bunting, and Tommy from the HDSA welcome Woodland Park's Chief of Police, Chief Chris Deisler. We discuss his background, his relationship with his officers, other first responders and the community, and his vision for the future of Woodland Park PD. Find out more about the Woodpand Park PD at https://city-woodlandpark.org/237/Police-Department.

Louise Vetter (President and CEO of HDSA) underscores her support for the initiative to change the current diagnostic criteria and introduces the new Huntington's disease support platform - #PatientsLikeMe

In today's world, it seems a great Superintendent has to be part administrator, part counselor, and part superhero. With that in mind, we have the distinct pleasure of welcoming our county's Superintendents into the studio. Mathew Neal, Superintendent of Schools for the Woodland Park School District and Miriam Mondragon, Superintendent of Schools for the Cripple Creek and Victor School District join Commander Lad Sullivan, Lieutenant Renee Bunting, and Tommy Allen from the HDSA to introduce themselves to our listeners and to talk about the current and future times for our county's schools.

Louise Vetter is the Chief Executive Officer of the Huntington's Disease Society of America (HDSA), the largest public not-for-profit organization devoted to the fight against Huntington's disease (HD). Since joining HDSA in 2009, she has led the expansion of the Society's reach with new programs and initiatives to strengthen the web of support for the HD community, advocate for better access to care for those affected by the disease, improve physician understanding of HD, and support scientific exploration to bring new treatments to HD families. Ms. Vetter serves as Secretary of the International Huntington's Association and is Treasurer of the Board of Directors of the American Brain Coalition. Additionally, she is an active member of the National Health Council and an editorial advisor to the Rare Disease Report. Before coming to HDSA, Ms. Vetter spent nearly 10 years leading the American Lung Association of New York where she advocated for families living with lung diseases, like lung cancer, asthma, cystic fibrosis, emphysema and more, to get the care and support they needed. Earlier in her career, she led national health education and public relations campaigns for Fleishman Hillard International Communications with emphasis on improving the patient-physician dialogue. At the heart of her experience is a firm passion for helping people face health challenges head on, always with dignity, understanding and hope. To join PatientsLikeMe, please visit www.hdsa.org/plm  

National Night Out is August 3. The Teller County Sheriff's Office with the Woodland Park Police Department will be hosting the event in Memorial Park. In this podcast, Commander Sullivan, Deputy Bunting, and Tommy Allen from the HDSA discuss the days events.  

In this episode we sit down with the winners of the two Heroclix for Huntingtons events, Adam Friedman (silver age) and Matthew Ventura (modern age). We discuss both events and our thoughts on the modern environment going forward. Starring Jay, Devin, Adam Friedman, and Matthew Ventura. You can donate directly to the Huntington's Disease Society of America here: https://hdsa.org/heroclix You can find the event details for Scott Porter's HDSA event here: https://heroclixforhuntingtons.com/ Our Patreon: https://www.patreon.com/jsaclix If you need to use Podbean's services (hosting or ads), you can use our affiliate links to get one month free/free ad credit, and support us! Affiliate link for unlimited hosting plan https://www.podbean.com/jsaclix Affiliate link for business hosting plan https://www.podbean.com/pro/jsaclix Affiliate link for advertising https://sponsorship.podbean.com/jsaclix Have you heard of http://ClixNexus.com? Clixnexus.com Patreon: https://www.patreon.com/clixnexus Dishin' Up Clix Patreon: https://www.patreon.com/DishinUpClix Happy Little Heroclix Patreon: https://www.patreon.com/happylittleheroclix Check out some Roll20 tutorials here: Happy Little Heroclix - https://www.youtube.com/watch?v=wPJBi-PNiW4 Emily - http://withemily.ca/roll20-for-heroclix-tutorial-set-up-play-tips/

In this episode we discuss the Scott Porter Heroclix for Huntingtons Silver and modern events. Starring Jay, Devin, and Josh Essex. You can donate directly to the Huntington's Disease Society of America here: https://hdsa.org/heroclix You can find the event details for Scott Porter's HDSA event here: https://heroclixforhuntingtons.com/ Our Patreon: https://www.patreon.com/jsaclix If you need to use Podbean's services (hosting or ads), you can use our affiliate links to get one month free/free ad credit, and support us! Affiliate link for unlimited hosting plan https://www.podbean.com/jsaclix Affiliate link for business hosting plan https://www.podbean.com/pro/jsaclix Affiliate link for advertising https://sponsorship.podbean.com/jsaclix Have you heard of http://ClixNexus.com? Clixnexus.com Patreon: https://www.patreon.com/clixnexus Dishin' Up Clix Patreon: https://www.patreon.com/DishinUpClix Happy Little Heroclix Patreon: https://www.patreon.com/happylittleheroclix Check out some Roll20 tutorials here: Happy Little Heroclix - https://www.youtube.com/watch?v=wPJBi-PNiW4 Emily - http://withemily.ca/roll20-for-heroclix-tutorial-set-up-play-tips/

In this episode we discuss the comprehensive rules supplement and focus on the changes. Starring Jay, Devin, and Chad. You can donate directly to the Huntington's Disease Society of America here: https://hdsa.org/heroclix You can find the event details for Scott Porter's HDSA event here: https://heroclixforhuntingtons.com/ Our Patreon: https://www.patreon.com/jsaclix If you need to use Podbean's services (hosting or ads), you can use our affiliate links to get one month free/free ad credit, and support us! Affiliate link for unlimited hosting plan https://www.podbean.com/jsaclix Affiliate link for business hosting plan https://www.podbean.com/pro/jsaclix Affiliate link for advertising https://sponsorship.podbean.com/jsaclix Have you heard of http://ClixNexus.com? Clixnexus.com Patreon: https://www.patreon.com/clixnexus Dishin' Up Clix Patreon: https://www.patreon.com/DishinUpClix Happy Little Heroclix Patreon: https://www.patreon.com/happylittleheroclix Check out some Roll20 tutorials here: Happy Little Heroclix - https://www.youtube.com/watch?v=wPJBi-PNiW4 Emily - http://withemily.ca/roll20-for-heroclix-tutorial-set-up-play-tips/

Please listen to James Valvano interview Jennifer Simpson HDSA on the HDParityAct! It's time to pass the HD Parity Act and remove the two-year waiting period for Medicare and SSDI! We must communicate the dire need of these medical supports and services to the US Congress!

Welcome to Dial H for Heroclix! We are a podcast that covers news, figures, plays games and just joke around within the world of Heroclix. Join Kalder and Simeon this week as we go over:  1. Silver age HDSA rules 2. Talk about the scott porter pog and Auxxit auction  3. Discuss the most toxic format in Heroclix 4. Answer some listener questions                                                                                        Don't forget to tweet in, email us or just message us on Facebook any time you have a question. We love to hear from you guys. Follow the links Below!  Links: Podbean: https://www.podbean.com/media/share/pb-haeyb-728a02/  Twitter: @DialH4Heroclix  Facebook Page: https://www.facebook.com/dialhforheroclix/  iTunes: https://itunes.apple.com/us/podcast/dial-h-for-heroclix/id674235883?mt=2&ign-mpt=uo%3d2  Email: dialHforHeroclix@gmail.com   Red Bubble: https://www.redbubble.com/people/DialH4Heroclix/shop?asc=u&ref=account-nav-dropdown  Youtube: https://www.youtube.com/channel/UCRFVQVhJX6evub-SvQyLtMg   Patreon: https://www.patreon.com/user?u=9331164 Sponsor: https://www.coolstuffinc.com

On today's show, we are highlighting two neurodegenerative diseases. The first will be Parkinson's Disease as I speak with Parkinson's Foundation President & CEO John Lehr. During the 50th episode of Kyla's Korner with Kyla Carter we will be highlighting our second neurodegenerative disease as Kyla focuses on the efforts of HDSA's National Youth Alliance - NYA when it comes to Huntington's Disease. In between those segments, we'll have retired Gaston County Police Officer Christopher Lowrance joining me to talk about his 4,300 mile coast-to-coast bike ride to bring awareness to first responder suicide through Blue Help. We'll close out the show with the Make A Difference Minute Replay with MADM segments from Patrick Gibson, Maria Mackey Tyler, Hero's Rest, Country Music Artist Carl Ray, & Chris Hope Foundation! You can also subscribe to TMWS via TuneIn Radio, Apple iTunes, SoundCloud, Audioboom, YouTube, Spotify, Stitcher, & Blubrry. All shows are archived at TheMarkWhiteShow.com.

On this MADM, Kyla Carter of Kyla's Korner shares about Huntington's Disease and the efforts of HDSA's National Youth Alliance - NYA, including a new virtual event called, "Notes of Hope" on which Kyla will be the first guest on May 21st. Watch & share. Sponsor: Boutique Air MSL

#WeHaveAVoice Radio - May is #HuntingtonsDisease and #JuvenileHuntingtonsDisease Awareness Month! Our incredible special guest is John Howard! John recites his powerful poetry! #iHeartRadio #LetsTalkAboutHD #YouAreLoved

On May 11, 2021, James Valvano will interview Jennifer Simpson (HDSA Assistant Director, Youth & Community Services), to discuss the HD Parity Act! ALS just recently made drastic changes to the description of what ALS is. They furthered their efforts by having unanimous consent by Congress to pass their bill for patients to obtain immediate access to benefits. The HDSA wishes to have the HD Parity Act pass by unanimous consent by Congress for individuals with Huntington's disease to receive the same benefits as our friends with ALS. Act today! - Join the HD Acvocacy Act: https://cqrcengage.com/hdsa/Caucus

Welcome to Dial H for Heroclix! We are a podcast that covers news, figures, plays games and just joke around within the world of Heroclix. Join Kalder and Simeon this week as we go over:  1. The prizes for the HDSA tourney 2. Build some silver age teams  3. Answer some listener questions                                                                                        Don't forget to tweet in, email us or just message us on Facebook any time you have a question. We love to hear from you guys. Follow the links Below!  Links: Podbean: https://www.podbean.com/media/share/pb-haeyb-728a02/  Twitter: @DialH4Heroclix  Facebook Page: https://www.facebook.com/dialhforheroclix/  iTunes: https://itunes.apple.com/us/podcast/dial-h-for-heroclix/id674235883?mt=2&ign-mpt=uo%3d2  Email: dialHforHeroclix@gmail.com   Red Bubble: https://www.redbubble.com/people/DialH4Heroclix/shop?asc=u&ref=account-nav-dropdown  Youtube: https://www.youtube.com/channel/UCRFVQVhJX6evub-SvQyLtMg   Patreon: https://www.patreon.com/user?u=9331164 Sponsor: https://www.coolstuffinc.com

The Teller County Sheriff's Office is an exceptionally professional organization. We're proud of the people who have chosen to work for us in keeping our county safe. We'd like to extend our invitation for you to join us. In this podcast, Commander Couch, Commander Sullivan, Deputy Bunting, and Tommy from the HDSA discuss the benefits of living and working in Teller County and the welcoming and professional atmosphere created by Sheriff Mikesell, his command staff, and everyone working in and with the Sheriff's Office. If you have the drive and the desire to truly make a difference in Teller County, this is the podcast for you. While TCSO is always accepting applications, information on current postings can be found at https://www.co.teller.co.us/hr/jobs.aspx More information on the Sheriff's Office and applications can be found at https://www.tellercountysheriff.com/

Jennie Schuh is a mom and a wife with a passion for all things creative. When she's not playing with her kids, her favorite thing to do is combine her love of travel and other cultures with her love of photography. One of her life goals is to visit every continent. On this episode we will discuss with Jennie her experience with Huntington's disease. Her moms diagnosis, genetic testing resulting in both she and her brother being diagnosed and her brother being diagnosed and her children's potential diagnosis. Symptoms of Huntington's disease usually develop between ages 30 and 50, but they can appear as early as age 2 or as late as age 80. The hallmark symptom of Huntington's disease is unctrolled movement of the arms, legs, head, face and upper body. HDSA link This ill only hurt a little links: Instagram Facebook Twitter TikTok Music by: Alexis Tenney --- Support this podcast: https://podcasters.spotify.com/pod/show/claire-scattini/support

Dr. Jeanine Cook-Garard and Gina Peter learn all about Huntington’s Disease, a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. Their guest is Gia Mannone, the Huntington’s Disease Society of America’s National Youth Alliance Youth Services & Recruitment Chair, to help us better understand this disease and how her organization is working to help patients and their families who suffer from it.

In this podcast Commander Couch, Deputy Bunting, and Tommy from the HDSA sit down with Colorado State Troopers Sergeant Jason Jones and Corporal Nick Hazlett to talk about highway safety, life as a State Trooper, and their important work in making sure the motorists within and transiting through Teller County are safe. If you need assistance from the Colorado State Patrol, dial *CSP (*277) on your cell phone. If you are behind the wheel, pull over to do so or use a hands-free method.

This week's interview is with Allison Bartlett, who works as the manager of disability programs at Huntington's Disease Society of America (or HDSA) and is a disability attorney. She goes through the same step-by-step process of applying for Social Security disability that she goes through with her clients, as well as elaborating on the legal challenges that loved ones face with HD. We also discuss the importance of advocacy, both for yourself and in regards to pushing for legislatures! Huntington's Disease Society of America — hdsa.org Huntington's Disease Parity Act — hdsa.org/takeaction Genetic Information Nondiscrimination Act of 2008 (GINA) — https://www.congress.gov/bill/110th-congress/house-bill/493 Difference between Medicare and Medicaid — https://www.hhs.gov/answers/medicare-and-medicaid/what-is-the-difference-between-medicare-medicaid/index.html Be sure to subscribe to R is for Rare on Apple Podcasts, Spotify, Overcast, or wherever you get your podcasts! Leave a review to let me know what you think of the podcast! Follow me on Instagram - @risforrarepodcast Questions? Want to be on the podcast? Email me - risforrarepodcast@gmail.com --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/annie-watson/message

Most people do not understand just how critical our dispatchers are in keeping the county safe. In today's podcast, our guest is Jessica Flohrs, the Dispatch Supervisor for the Sheriff's Office. She joins Sheriff Mikesell and Deputy Bunting and Tommy from the HDSA.

In this podcast, Sheriff Mikesell is joined by Commander Couch, Deputy Bunting, and Tommy from the HDSA to talk about how rewarding this year's Shop with a Hero event was.

In this podcast, Sheriff Mikesell talks with Commander Couch, Deputy Bunting, and Tommy from the HDSA about the upcoming holiday. We discuss safety, the importance of family, and staying #TellerStrong.

MONDAY, JANUARY 7, 2013 3:30 pm PST/6:30 pm EST Tonight our incredible Dr. LaVonne Goodman is back for a new season of  the "Ask Dr. Goodman Show". Her knowledge and experience in treating Huntington's disease is a valuable and viable asset to our community. We are so blessed to have her return for a new season of continuing education and care for our beloved HD families. Tonight we will hear about "A Clinical Research Workshop" Symposium presented by the Huntington Study Group (HSG), HDSA and Huntington's Disease Drug Works (Dr. Goodman) which took place in Seattle on November 10, 2012. It was attended by more than 250 individuals from Huntington's disease families and friends of HD. Featured Keynote addresses that day were by: LaVonne Goodman, MD, Huntington's Disease Drug Works Charles Sabine, HD Advocate Mary Edmondson, MD, Duke University Medical Center Ashwini Rao, EdD, OTR, Columbia University Pierre Tariot, MD, Banner Alzheimer's Institute Blair Leavitt, MD, University of British Columbia Tune in for another enlightening "Ask Dr. Goodman Show"

PRE-RECORDED - April 2011 Our incredible special guest today is the amazing James Valvano whom we all know and love as a true HD warrior. He has invited us into his psyche with his book One With The Blue and  brought us out of the proverbial closet with his films, The Faceless Faces of Huntington's Disease and The Faces of Huntington's Disease: I Am No Longer a Faceless Face, by igniting the HD community all over the world on Facebook Vimeo and Youtube. James is so passionate and inventive about communicating with our H'Dears that he created James Talk Video, a weekly video blog and James Talk Info Bits which is all about what's happening NOW in the HD world of advocacy. If you have ever heard the term, "I have Huntington's Disease, but Huntington's Disease doesn't have me"... it came from James Valvano and every bit of that is true! In this episode James talks about his advocacy work for Jane Kogan, Advocacy Manager at HDSA. Tune in for a really great show. Visit: www.WeHaveAFace.org