"Impacting our community faster than our inflammation" Take a Pain Check (TAPC) is hosted by Natasha Trehan, an 18 year old university student. This is a podcast that engages in conversations about relationships, school, advocacy and much more while living with chronic illness. The host brings her life experiences and talks to guests about their lived experiences. If you're looking for inspiration and support, Take a Pain Check is the community for you. Tune in every other Sunday at 12pm EST on Youtube, Spotify, Apple, Google Podcasts, and iHeartRadio. https://instabio.cc/takeapaincheck
In this episode of Take a Pain Check, we're joined by @DrAndreaFurlan , a physician, researcher, educator, and YouTube star who is transforming the way we understand and approach chronic pain. From her early days studying medicine in Brazil to becoming one of Canada's foremost pain experts, Dr. Furlan shares her personal journey with chronic pain, explains the differences between nociceptive, neuropathic, and nociplastic pain, and uncovers why so many patients are misdiagnosed and what we can do about it. We also explore the inspiration behind her latest book, the impact of her viral YouTube content, and how she makes cutting-edge science accessible and empowering for patients worldwide. Register for our in person event here by May 18: https://forms.gle/tWdabTbta8ZYeieb8Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapaincDon't forget to like, comment, and subscribe for more episodes.Dr. Furlan's socials:https://www.youtube.com/@DrAndreaFurlan instagram.com/dr.andrea.furlan twitter.com/adfurlan facebook.com/dr.andrea.furlanOur socials:https://www.takeapaincheck.com/https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheckhttps://ca.linkedin.com/company/take-a-pain-checkhttps://www.youtube.com/@takeapaincheckhttps://www.facebook.com/TakeaPainCheckhttps://www.x.com/takeapaincheck#chronicpain #chronicpaindoc #doctor #education #pain #opioids
In this episode of Take a Pain Check, we are joined by the Jenna Kedy, a passionate advocate living with Juvenile Arthritis and Fibromyalgia. We dive deep into Jenna's diagnosis journey, navigating school and childhood with a chronic illness, and the challenges of finding proper pediatric care. Jenna opens up about learning to advocate for herself, balancing a busy life of advocacy, volunteering, and pageantry, and the realities of managing pain and flare-ups. We also explore the differences in healthcare systems across Canada, her work with IMPaCT Trials mentoring researchers, and her inspiring role as a Youth Board Member and Youth Ambassador at Take a Pain Check.Register for our in person event here by April 27th: https://forms.gle/tWdabTbta8ZYeieb8Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapaincDon't forget to like, comment, and subscribe for more episodes.Jenna's socials:Instagram: _missjennak_ LinkedIn: Jenna Kedy Our socials:https://www.takeapaincheck.comhttps://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheckhttps://ca.linkedin.com/company/take-a-pain-checkhttps://www.youtube.com/@takeapaincheckhttps://www.facebook.com/TakeaPainCheckhttps://www.x.com/takeapaincheck
In this episode of Take a Pain Check, our host Natasha introduces our guest Dr Erica Lawson. Dr. Erica Lawson is a pediatric rheumatologist and Program Director for the UCSF Pediatric Rheumatology Fellowship. We dive into her journey in medicine, passion for pediatric rheumatology, and the challenges young patients face—from diagnosis to transitioning to adult care. Dr. Lawson shares insights on parental involvement, health disparities, and the importance of collaboration in healthcare. She also discusses balancing family life with a demanding career. Don't forget to like, comment, and subscribe for more insightful episodes.Register for our in person event here: https://forms.gle/tWdabTbta8ZYeieb8Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapaincDon't forget to like, comment, and subscribe for more episodes.Our socials:Website: www.takeapaincheck.comInstagram: https://www.instagram.com/takeapainch...Tiktok: https://www.tiktok.com/@takeapainchec...X: https://x.com/takeapaincheckLinkedin: https://www.linkedin.com/company/take...#arthritis
In this episode of Take a Pain Check, Natasha is joined by the inspiring Sahara as she shares her journey of being diagnosed with rheumatoid arthritis (RA) during the COVID-19 pandemic. They dive into the challenges of getting a diagnosis amid uncertainty, navigating university while managing a chronic illness, and finding the right resources for understanding RA.Sahara opens up about how her south Asian background influenced her family's understanding of her condition and how she worked to create a supportive space for herself and others who are immunocompromised. She also talk about the importance of setting boundaries, adapting to unexpected challenges while traveling, and lifestyle changes that help her manage flares. Beyond her health journey, Sahara shares her passion for writing and gives us insight into her two books—Love Letters to Myself, a heartfelt collection of poetry on love, heartbreak, and self-discovery, and Reflections, which explores themes of heritage, culture, and love. She leaves us with valuable advice for students managing a rheumatic disease and reflects on what she would tell her younger self when she was first diagnosed.Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapaincDon't forget to like, comment, and subscribe for more episodes.Our socials:Website: www.takeapaincheck.comInstagram: / takeapaincheck_ Tiktok: / takeapainchec. .X: https://x.com/takeapaincheckLinkedin: / take-a-pain-check Sahara's socials:Instagram: https://www.instagram.com/missbrainyb...Growing Pains, Copyright, 2018, Alessia Cara
In this episode of Take a Pain Check, Natasha sits down with Brandon Volesky to explore his journey with Juvenile Idiopathic Arthritis (JIA)—from being diagnosed at just two years old to navigating the challenges of childhood, overcoming stigma, and adapting his mindset to thrive as a husband, father, and professional. Brandon shares how his fear of medication affected his condition, how he ultimately embraced treatment, and how he transitioned from aspiring chef to becoming a Software and Data Engineer at H&R Block's Machine Learning Lab. We dive into his work in AI and healthcare, his involvement with CARRA, and his passion for improving childhood rheumatology research. Through his lived experience, Brandon is leveraging machine learning and data science to transform healthcare and support better treatment options for future generations. Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapaincheckApply to our scholarship today: https://www.takeapaincheck.com/schola...Apply for our NEW paid youth and young adult support program: https://forms.gle/W3ciBhG89eAH8QvS8Don't forget to like, comment, and subscribe for more episodes.Our socials: Website: www.takeapaincheck.comInstagram: https://www.instagram.com/takeapaincheck_/Tiktok: https://www.tiktok.com/@takeapainchec...X: https://x.com/takeapaincheckLinkedin: https://www.linkedin.com/company/take-a-pain-check/Brandon's socials: www.linkedin.com/in/bvoleskyCARRA: https://carragroup.org/Growing Pains, Copyright, 2018, Alessia Cara
In this episode of Take a Pain Check, host Natasha welcomes Stella Miller to share her journey with Juvenile Arthritis. Stella opens up about her early symptoms, the challenges of receiving a diagnosis, and the impact of medications like methotrexate and Orencia. She reflects on navigating friendships, advocating for her needs, and the support system that has helped her along the way. Stella also discusses the emotional toll of stepping away from basketball, a sport she loved, and how she found new purpose beyond the court. From her advocacy work with MUSC to modeling with a chronic illness, she shares how she's reshaped her identity and continues to inspire others. Apply to our scholarship today: https://www.takeapaincheck.com/scholarship Apply for our NEW paid youth and young adult support program: https://forms.gle/W3ciBhG89eAH8QvS8 Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: www.takeapaincheck.com Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://x.com/takeapaincheck Linkedin: https://www.linkedin.com/company/take-a-pain-check/ Stella's socials: Instagram & TikTok @Stellamiller71 Growing Pains, Copyright, 2018, Alessia Cara
In this week's Take a Pain Check episode, we're joined by Abigail Meyers, who shares her journey of living with Juvenile Idiopathic Arthritis (JIA) and Cerebral Palsy. Abigail opens up about the challenges of receiving a diagnosis, navigating symptoms, and overcoming medical gaslighting. We dive into the emotional and social impact of growing up with a chronic illness, her passion for theatre and writing, and how she balances these pursuits with her condition. Abigail also discusses her experiences with accessibility, advocacy, and the importance of affordable healthcare. Apply to our scholarship today: https://www.takeapaincheck.com/schola... Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapainchec... X: https://x.com/takeapaincheck Linkedin: https://www.linkedin.com/company/take-a-pain-check Abigail's socials: Instagram and X: @abigaillmeyers Growing Pains, Copyright, 2018, Alessia Cara
In this episode of Take a Pain Check, Natasha chats with Carroll Meilleur, an advocate for the Disability Tax Credit (DTC) and senior member of True North Disability Services. Carroll shares her journey from dentistry to advocacy, discussing DTC eligibility, benefits, misconceptions, application tips, and support for individuals with rheumatic diseases. She highlights the importance of advocacy, shares success stories, and offers practical advice for navigating the DTC process. Tune in to learn how Carroll is making a difference in accessibility and support for those in need. Apply to our scholarship today: https://www.takeapaincheck.com/schola... Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: https://www.takeapaincheck.com/ Instagram: / takeapaincheck_ Tiktok: https://www.tiktok.com/@takeapainchec... X: https://x.com/takeapaincheck Linkedin: / take-a-pain-check Carrol's socials: Website: www.tnds.ca Instagram: / truenorthdisabilityservices Facebook: / tnds.ca Growing Pains, Copyright, 2018, Alessia Cara
In this week's episode of Take a Pain Check, Kate Bourne shares her powerful journey with Ehlers-Danlos Syndrome (EDS), discussing the 12-year delay in her diagnosis and the profound impact it had on her confidence, mobility, and academic life. Kate reflects on the emotional toll of not having answers for so long, navigating school and daily life with unexplained symptoms. She also highlights her passion for research, focusing on anesthetic resistance in EDS patients and the relationship between EDS and POTS, with the goal of improving healthcare practices for those affected by these conditions. As a 2024 recipient of the STEM Without Limits scholarship, Kate shares how she plans to use the funds to further her academic and research endeavors, offering advice to young adults about finding their career paths. Apply to our scholarship today: https://www.takeapaincheck.com/scholarship Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://www.instagram.com/takeapaincheck_/ Likedin: https://www.linkedin.com/company/take-a-pain-check/ Kate's socials: Instagram and X: @katebournebsc Growing Pains, Copyright, 2018, Alessia Cara
In this milestone 100th episode, Natasha sits down with her siblings, Natalia and Nikhil, to reveal the raw, real, and unfiltered moments behind living with Juvenile Idiopathic Arthritis. From the first signs of JIA to the highs and lows of family life, this episode unveils how her siblings stood by her side, the unexpected challenges they faced together, and how JIA transformed each of their lives. Discover the secrets to strong family bonds, the power of sibling support, and life lessons you won't hear anywhere else! Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: https://www.takeapaincheck.com/ Instagram: / takeapaincheck_ Tiktok: https://www.tiktok.com/@takeapainchec... X: https://x.com/takeapaincheck Linkedin: / take-a-pain-check Growing Pains, Copyright, 2018, Alessia Cara
In this episode of Take a Pain Check, we sit down with Shanesha Scott, who shares her inspiring journey with polymyositis. Shanesha opens up about her diagnosis, treatment challenges, and how she navigates the emotional and physical changes brought on by her condition. We discuss her work as an industrial and organizational psychologist and the impact of workplace dynamics on employee morale and success. Shanesha also talks about her two books, When I Got Sick – A Story of Tragedy & Triumph and Birthing the Leader Within You, offering advice on balancing health, career, and personal growth. Don't miss this empowering conversation! Join our joint chat rheum: https://us02web.zoom.us/meeting/regis... Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Tiktok: https://www.tiktok.com/@takeapainchec... X: https://x.com/takeapaincheck Likedin: https://www.linkedin.com/company/take... Shanesha's socials: Instagram: Shanesha__ TikTok: Beauty4RMAshes Facebook: Shanesha & Beauty 4RM Ashes Growing Pains, Copyright, 2018, Alessia Cara
In this episode of Take a Pain Check, Natasha sits down with Kent Messner, who shares his inspiring journey of living with rheumatoid arthritis (RA) from childhood to adulthood. Kent discusses his early diagnosis, the challenges he faced using crutches during middle and high school, and the impact of bullying on his self-esteem. He reflects on his time in a rehabilitation center, his pursuit of education, including an undergraduate degree and an MBA, and how his experiences shaped his career at Penn Medicine. Kent also shares practical tools and strategies he uses to manage his condition daily, from surgeries to physical therapy and chiropractic care. Throughout the conversation, Kent emphasizes the importance of advocacy and support, offering valuable advice to young people with disabilities. His story is a powerful reminder of the strength found in embracing differences and the importance of community in navigating life with a chronic illness.
In this episode of Take a Pain Check; Sharan Singh shares her journey of living with multiple chronic illnesses, including Lupus, Rheumatoid Arthritis, Scleroderma, and others. Sharan delves into her diagnosis story, detailing the symptoms that led her to seek help, her experiences with Western and regenerative medicine, and the impact these treatments have had on her quality of life. She also opens up about the challenges of maintaining relationships, navigating academics, and undergoing a hip replacement, while emphasizing the importance of mental health and lifestyle changes in managing chronic illness. Additionally, Sharan discusses her path to becoming a physician assistant and her advocacy work on TikTok, where she shares her story to educate and support others in the chronic illness community. Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: https://www.takeapaincheck.com/ Instagram: / takeapaincheck_ Tiktok: https://www.tiktok.com/@takeapainchec... X: https://x.com/takeapaincheck?mx=2 Likedin: / take-a-pain-check Sharan's socials: Tik Tok - @sharan.s, Instagram - @ssharann_ Growing Pains, Copyright, 2018, Alessia Cara
Joel Nelson, a passionate advocate in the rheumatic disease community, shares his journey with Juvenile Idiopathic Arthritis (JIA) on the podcast. He discusses the challenges of obtaining a diagnosis and the importance of self-advocacy, especially from a young age. He reflects on the emotional rollercoaster of medication trials and their effects on mental health, emphasizing the stigma surrounding both physical and mental aspects of chronic illness for men. Joel also explores the impact of COVID-19 on healthcare access and his personal life, including parenting with arthritis. He discusses having no transition, experiences in the clinic which impacted his mental health, and the change in health care system over time in the UK. His initiatives, like the Joel Nelson Podcast and the Pain Company, show his commitment to patient-centered care and community support, making him an inspiring voice in chronic illness advocacy. Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: https://www.takeapaincheck.com/ Instagram: / takeapaincheck_ Tiktok: https://www.tiktok.com/@takeapainchec... X: https://x.com/takeapaincheck?mx=2 Likedin: / take-a-pain-check Joel's socials: Facebook/IG/Twitter/YouTube/Twitch: @JoelvsArthritis Growing Pains, Copyright, 2018, Alessia Cara
Join us for this week's episode of Take a Pain Check as we welcome Michelle Murchison, who shares her inspiring journey with Juvenile Rheumatoid Arthritis (JRA). Michelle opens up about her diagnosis story, the challenges she faced with doctors, and the array of medications and surgeries she underwent. She reflects on her childhood experiences, navigating life with a chronic illness, and the impact of nutrition, lifestyle, and hormones on her condition. Michelle also discusses the mental health aspects of living with JRA, the financial burdens, insurance coverage and how her condition has shaped her family life. Finally, we delve into her children's book, “Stars on my Knees,” exploring the inspiration and process behind it. Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: https://www.takeapaincheck.com/ Instagram: / takeapaincheck_ Tiktok: https://www.tiktok.com/@takeapainchec... X: https://x.com/takeapaincheck?mx=2 Likedin: / take-a-pain-check Michelle's socials: @iamrobogirl (Insta), / michellemurchisonwrites (FB) Book: https://www.starsonmyknees.com Growing Pains, Copyright, 2018, Alessia Cara
In this episode of Take a Pain Check, we are joined by Ella Rabin, who shares her journey with Juvenile Arthritis (JA). Ella introduces herself, discussing her education, hobbies, and future aspirations. She details her diagnosis story, including the initial symptoms and changes over time, and speaks about her family history with arthritis, particularly her mother's experience. Ella emphasizes the importance of a strong support system from family and friends, addresses misconceptions about arthritis, and discusses the impact on her activities like cheerleading and tap dancing. She also shares her experiences with school accommodations and the significance of self-advocacy. Furthermore, Ella talks about her involvement with the Arthritis Foundation and her own initiative, Advocacy in Action. The episode concludes with Ella offering advice for newly diagnosed kids and recommending resources for learning about JA. Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapaincheck_/Tiktok: https://www.linkedin.com/company/take-a-pain-check/X: https://x.com/takeapaincheckLikedin: https://www.linkedin.com/company/take-a-pain-check/ Instagram: @ella_rabin_ @ellarabin @missmidstatesteen @advocacy_in_action_pa Tik Tok: @ella_rabin Growing Pains, Copyright, 2018, Alessia Cara
This week's podcast episode features Carissa Peck, who discusses her journey with mixed connective tissue disorder, encompassing lupus and rheumatoid arthritis (RA). The conversation begins with Carissa's introduction and background, followed by her diagnosis story, including initial symptoms and their progression. Carissa shares her experiences with various treatments, from medications to other treatments. She describes managing flare-ups and the impact of her condition on relationships, emphasizing communication and support. The discussion also touches on the challenges posed by the US healthcare system, particularly financial burdens and insurance issues. Carissa highlights lifestyle changes, such as diet and exercise, that have improved her well-being. Finally, she talks about her advocacy work on TikTok, sharing her condition with a broader community and offering advice to young people with similar experiences. Want to meet others with arthritis? Sign up for this month's call here: https://us02web.zoom.us/meeting/register/tZIofuihqTsiH9A_2WDfwZEu6BRh_CSJgMx9#/registration Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapaincheck_/Tiktok: https://www.linkedin.com/company/take-a-pain-check/X: https://x.com/takeapaincheckLikedin: https://www.linkedin.com/company/take-a-pain-check/ Carissa's socials Instagram: @_cawitha TikTok: @cawithaaa Growing Pains, Copyright, 2018, Alessia Cara
In this episode of Take a Pain Check, Amanda Chay discusses her journey with lupus and Sjogren's, sharing the challenges of getting diagnosed, advocating for herself, and the emotional impact of learning about and accepting her chronic illnesses. She highlights the importance of a strong support system, effective doctor-patient relationships, and the role of medications. Amanda also talks about maintaining an active lifestyle, the significant impact of diet on her symptoms, and managing her mental health. She reflects on the unique experience of being both a lupus patient and a mother to a daughter with lupus, offering advice to others in similar situations. Additionally, she discusses her book, "The Girlfriend's Guide to Lupus," and offers advice to those newly diagnosed with a chronic condition and to parents who, like her, have a child with the same illness. Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Tiktok: https://www.tiktok.com/@takeapainchec... Facebook: https://www.facebook.com/TakeaPainCheck/ LinkedIn: https://www.linkedin.com/company/take... Amanda's socials Instagram: @amandaechay Growing Pains, Copyright, 2018, Alessia Cara
EIn this episode of Take a Pain Check, host Natasha introduces Emily Wahl, who bravely shares her journey living with Juvenile Rheumatoid Arthritis (JRA), Sjogren's syndrome, Lupus, Pulmonary Arterial Hypertension, and FSGS. Emily candidly discusses her diagnosis story, recounting childhood experiences with arthritis and the challenges of managing various medications. She reflects on how her health conditions influenced her career choices and relationships, especially during pregnancy. Emily advocates for patients like herself, emphasizing the importance of a supportive care team and sharing coping strategies for the emotional weight of new diagnoses. Additionally, she offers insights into navigating pregnancy with chronic illnesses and provides valuable advice for managing multiple conditions effectively. Join our peer support group here for this month's session in May: https://us02web.zoom.us/meeting/register/tZ0tdemsrj8oHtwosUn8w7ZcwHxdGYZPDEDv#/registration Emily's socials: @healmewholeheartedly www.healmewholeheartedly.com Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en Facebook: https://www.facebook.com/TakeaPainCheck/ LinkedIn: https://www.linkedin.com/company/take-a-pain-check/?originalSubdomain=ca
In this week's episode of Take a Pain Check, Carin Lin joins as a guest to share her journey as a parent of a child with Kawasaki Disease (KD), focusing on her son Isaiah's experience. Carin recounts Isaiah's diagnosis story, shedding light on the symptoms that led them to seek medical attention and the challenges they faced during the diagnosis process. The discussion delves into what Kawasaki Disease is, its symptoms, and how it presents itself in children like Isaiah. Carin shares her advocacy journey, emphasizing the importance of pushing for a diagnosis and educating oneself about the disease after diagnosis. Isaiah's treatment journey, including medications and major surgeries like double bypass surgery, is explored. Carin discusses preparation, the recovery process, and her role in supporting Isaiah. The lifestyle adjustments Isaiah has made and the accommodations needed, especially in school and extracurricular activities, are discussed, highlighting the importance of family support. Carin talks about her involvement in founding Kawasaki Disease Canada is explored, along with the organization's mission and the changes observed in KD recognition over time. Don't forget to like, comment, and subscribe for more insightful episodes. Join our peer support group here for this month's session in April: https://us02web.zoom.us/meeting/regis... Our socials: Website: https://www.takeapaincheck.com/ Instagram: / takeapaincheck_ Tiktok: https://www.tiktok.com/@takeapainchec... Facebook: / takeapaincheck LinkedIn: / take-a-pain-check Carin's socials Facebook: / kawasakidiseasecanada / isaiahskdjourney Twitter: @kawasakidiscan @IsaiahsJourney Instagram: @kawasakidiseasecanada @carinlin17 LinkedIn: Carin Lin, Kawasaki Disease Canada Youtube: @kawasakidiseasecanada345 Growing Pains, Copyright, 2018, Alessia Cara
Welcome back to this week's episode of Take a Pain Check! Today, I'm thrilled to have Delane Linkiewich with us, sharing her journey with chronic pain and the incredible insights she's gained along the way. Delane opens up about her experiences, from the car accident that started it all to the psycho-social impacts she's navigated. We delve into the various physical therapies she's tried, her medication regimen, and how she managed treatment during the challenging times of the pandemic. Growing up with chronic pain wasn't easy, and Delane shares how she had to step back from activities at times. She also sheds light on misconceptions about chronic pain and her time in the clinic until she transitioned to adult care. As a passionate advocate, Delane discusses her involvement in research, including her master's work on peer support in pediatric chronic pain. Learn about her initiatives with the Chronic Pain Network, her role in the 'Putting the Pieces Together Conference,' and valuable tips she offers for those living with chronic pain. Don't forget to like, comment, and subscribe for more insightful episodes. Join our peer support group here for this month's session in April: https://us02web.zoom.us/meeting/register/tZUlf-itrzwpHdHeWxl0qYTy7NYOptjjt8Qh#/registration Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapaincheck_/ X: https://twitter.com/takeapaincheck Tiktok: https://twitter.com/takeapaincheck Facebook: https://www.facebook.com/TakeaPainCheck/ LinkedIn: https://www.linkedin.com/company/take-a-pain-check Delane's socials: Email: dlinkiew@uoguelph.ca X: https://twitter.com/delanelinkie Growing Pains, Copyright, 2018, Alessia Cara #chronicpain #peersupport #caraccident #pain #invisibledisability #phd
In this week's episode of Take a Pain Check, we welcome Ayesha as our special guest, sharing her incredible journey of diagnosis, advocacy, and touching moments of kindness. Ayesha recounts her initial symptoms that led her to seek medical help, navigating a complex medication regimen, and the ups and downs of her health journey. She reflects on her determination during her undergraduate years, the challenges of planning a wedding while managing her health, and a difficult experience in the emergency room. Ayesha also shares her memorable experience attending Taylor Swift's Eras tour, even in a wheelchair. During the episode, Ayesha updates us on her current health status, medication routine, and mental well-being, offering hope and valuable insights to listeners. She shares Taylor Swift's response to her Tumblr post, and how she met her in person. The conversation shifts to Ayesha's TikTok journey, where she discusses how she creates 'Get Ready with Me' videos, and she discusses her experience living with lupus, highlighting moments of inspiration and the positive impact on her community. Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapaincheck_/ X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapainchec... Ayesha's socials: Tiktok: @ayeshaakhurram Instagram: @ayeshakhurram Growing Pains, Copyright, 2018, Alessia Cara
In this episode of Take a Pain Check podcast, we delve into the life of Alexander Levine, unpacking his journey with Ankylosing Spondylitis (AS) from diagnosis to shoulder surgery and beyond. Alex shares the story of his diagnosis, detailing life before AS and the challenges he faced in his career, particularly in the health and fitness industry. We explore the knowledge gap between fitness and AS, how his perspective on fitness shifted post-diagnosis, and the impact of physical therapy on his symptoms. Alex also opens up about his shoulder surgery, discussing the pain and recovery process. He sheds light on how friendships and relationships evolved, the support he received from loved ones, and the pivotal role of the chronic illness community. He also talks about managing a family and newborn with a diagnosis. As a fitness enthusiast and owner of a virtual personal training business, Alex shares insights into his unique training style tailored for those with AS, addressing the mental blocks and challenges that come with chronic illness. The episode wraps up with valuable advice from Alex on getting started in the fitness industry with a chronic condition and changing mindsets for youth already interested in fitness. Sign up for our first joint chat rheum session to meet others with rheumatic diseases this month:https://us02web.zoom.us/meeting/register/tZMrduGuqj0uHdDgcBicDuG0TBjtvcnGwGkI#/registration Join our campaign at a landmark near you for World Young Rheumatic Disease Day: https://www.takeapaincheck.com/light-it-blue Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapaincheck_/ X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en Alex's socials: Youtube: @AlexLevineFitness Instagram: @alexlevinefitness Tiktok: @alexlevinefitness Growing Pains, Copyright, 2018, Alessia Cara
In this episode, we're honored to have Jeanine V McGuire sharing her incredible journey with JRA (Juvenile Rheumatoid Arthritis). From her diagnosis story spanning two years to navigating high school with accommodations, shifting friendship dynamics, and excelling as a student-athlete, Jeanine's resilience shines through. She dives into the challenges of managing arthritis during college, both living independently and staying at home. We explore her dedication to fitness, adapting training routines, and maintaining a social life. Jeanine shares valuable insights on transitioning to adult healthcare, telling her partner she has arthritis, getting involved in the chronic disease community, and her impactful roles with the Arthritis Foundation, including the PA race planning committee and the Ease of Use Box campaign. Tune in for advice on managing chronic conditions while pursuing your passions, maintaining a positive mindset, and insights into Jeanine's worries for the future. Sign up for our first joint chat rheum session to meet others with rheumatic diseases this month: https://us02web.zoom.us/meeting/regis... Our socials: Website: https://www.takeapaincheck.com/ Instagram: / takeapaincheck_ Tiktok: / takeapainchec. . X: / takeapaincheck Jeanine's socials: @champion.of.yes and / jeanine.v.mcguire Growing Pains, Copyright, 2018, Alessia Cara
In this episode of Take a Pain Check, we delve into the experiences of Jillian Wickert, who has been living with Juvenile Idiopathic Arthritis (JIA) for the majority of her life. From her diagnosis story to navigating through various treatments and medications, Jillian shares her journey with candor and resilience. We explore the challenges she faced in school and the impact of her condition on her social life. Jillian also opens up about the psychological barriers she encountered and how she overcame them, shedding light on the need for understanding and support. As she discusses her thesis project centered around the question 'How are you doing, really?' Jillian offers valuable insights into what constitutes a neutral experience for individuals living with JIA. We uncover the nuances of Jillian's journey, gain valuable advice for those facing similar circumstances, and explore the significance of community engagement in the realm of chronic illness. Additionally, we delve into the exploration of alternative treatment options alongside medications, the interactions with people over a lifespan, and the delicate balance of when to share or withhold information about one's arthritis. Through the lens of trial and error, we navigate the complexities of managing chronic illness and finding the right path to wellness. Sign up for our first joint chat rheum session to meet others with rheumatic diseases this month: https://us02web.zoom.us/meeting/register/tZElcO2tqD8qG9LiI_INsTT7kpGKyhsnKTNZ#/registrationOur socials:Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapaincheck_/Tiktok: https://www.tiktok.com/@takeapaincheck?lang=enX: https://twitter.com/takeapaincheckGrowing Pains, Copyright, 2018, Alessia Cara
In this week's episode of Take a Pain Check, we delve into the journey of Rachel Gehue, who bravely shares her experiences living with JRA, Spherocytosis, anxiety, OCD, and depression. From the emotional impact of her diagnosis to the challenges faced in school, sports, and social life, Rachel unfolds a narrative of strength and perseverance. She discusses the medications that have played a crucial role in her journey, the supportive relationship with her rheumatologist, and the importance of a patient-centered approach. She discusses the highs and lows of her undergraduate experience, the impact on friendships, and her strategies for managing mental health. Lastly, we discussed Rachel's advocacy work, from her active participation in the Walk for Arthritis to her role with Patient Partners in NL. Like and subscribe! Apply for our scholarship here: https://www.takeapaincheck.com/schola... Rachel's socials: @rachelgehue @rachelwithrheumatoid Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
On this week's episode on Take a Pain Check, Kyle Brooks talks about his diagnosis journey and about navigating the challenges of JIA and psoriasis. From physio to a two-year wait for answers, Kyle shares his daily battles with symptoms and medications. We delve into the social aspect, addressing bullying, handling negative comments, and finding resilience. Kyle opens up about school life, securing accommodations, and fostering a positive relationship with his general practitioner. Not only that, this episode talks about contrasts in healthcare systems between England and Canada. Finally, we discuss Kyle's involvement in awareness initiatives, from live streams to TikTok, and his passion for the arts which adds a unique perspective. Apply for our scholarship here: https://www.takeapaincheck.com/schola... Kyle's socials: Instagram: @kyle_b.idk TikTok: @teen.with.arthritis Youtube: @ChefJisoo Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
In this episode of Take a Pain Check, Isabel Dukes opens up about her personal journey dealing with JIA, Lupus, Antiphospholipid Antibody Syndrome, ADHD, and Dyslexia. She shares candid reflections on navigating the challenges of high school, dating in university, and the significant transition to adult life, including moving in with her partner. The episode delves into her medication journey and the evolving accommodations she has navigated since her youth. Isabel discusses the critical role of her support system during high school and the unique hurdles encountered in transitioning from pediatric to adult care. As an industrial designer, she discusses her commitment to accessibility. Not only that, she talks about her experience at arthritis camp, the @ArthritisSociety Walk, volunteering with Take a Pain Check and her active participation in the Make Rheum for Youth project by TAPC and @canadianarthritispatiental3234 . The episode concludes with practical advice on advocacy, emphasizing the importance of self-advocacy and community engagement for those navigating health challenges. Like and subscribe! Apply for our scholarship here: https://www.takeapaincheck.com/schola... Isabel's socials: Instagram: @isabel_dukes Linkedin: https://www.linkedin.com/in/isabel-du... Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
In this episode of Take a Pain Check, Alyssa discusses her journey in being involved in the treatment of osteoarthritis care. She discusses the knowledge gap in patient communication, the importance of a holistic approach, and practical advice on exercise for managing symptoms. Additionally, Alyssa also shares insights into physiotherapist appointments and highlights her initiative, “Keep the Adventure Alive,” aimed at helping those with osteoarthritis lead fulfilling lives. The episode explores the significance of exercise in managing symptoms and provides practical advice on safe muscle strengthening and relieving knee pain. Alyssa also shares insights into what patients can expect during physiotherapist appointments, the duration of sessions, and the personalized approach to care. The episode concludes by emphasizing the significance of Alyssa's YouTube channel in spreading awareness and building a supportive community. Like and subscribe!Apply for our scholarship here: https://www.takeapaincheck.com/scholarship Alyssa's socials:Website: keeptheadventurealive.com Our socials: Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara#osteoarthritis
Join us on this week's episode of Take a Pain Check as Brookie Zarb shares her journey with Psoriatic Arthritis (PsA). From the initial symptoms to facing healthcare practitioners, Brookie discusses her diagnosis, medication experiences, and their impact on her life. She explores how PsA influenced her high school years, friendships, and extracurricular activities. She dives into the dynamics of her family, navigating the emotional rollercoaster of sibling diagnoses. Brookie discusses the Australian healthcare system, her creative coping mechanisms during flares, and her role as a Take a Pain Check ambassador. Hear her valuable advice for those dealing with rheumatic diseases in high school and those hesitant about getting involved with organizations. Like and subscribe! Resources: https://msk.org.au/ Brookie's socials: Instagram: @brookie.zarbarooni Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
In this podcast episode, we delve into Dr. Anna Costello's pathway to becoming a rheumatologist. She shares her initial interest in oncology and the reasons as to why her decision took her to rheumatology and pediatric medicine. She discusses her educational background, from her undergraduate years at Brown University to her medical school experience and the unique opportunities that paved the way to her current position at the Children's Hospital of Philadelphia. Dr. Costello opens up about her decision to pursue a fellowship and the challenges of transitioning from the working world back into education, providing valuable insights into her daily life and how she manages her physical and mental health. The episode also delves into her research interests, particularly in addressing diagnostic delays in patients with Juvenile Idiopathic Arthritis (JIA) and her approach to ensuring accurate diagnoses within limited timeframes. Don't forget to subscribe to Take a Pain Check for updates! Anna's Socials X: @annatomiga Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
In this week's episode of "Take a Pain Check," we sit down with Laurie Proulx, who takes us on a journey through her life and experiences dealing with arthritis. Laurie discusses her early years, when arthritis seemed to be taking control of her life, and how she found solace and inspiration in the realms of piano, dance, and voice lessons. Diagnosed with arthritis in 1991, she sheds light on the limited treatment options available at the time, including her experience with gold therapy and crossing the border for medical care. Laurie's story unfolds as she saw the introduction of biologics enter in the field of rheumatology, and she emphasizes the importance of education on medication. Through eight surgeries, she shares her coping strategies for dealing with chronic pain and the role that Methotrexate played in her treatment journey. Laurie also delves into the therapeutic power of music and her personal journey with pregnancy, highlighting the reproductive health resources she has created and collaborated on. Tune in to gain insight into Laurie's inspiring journey and her resilience in the face of chronic pain.Don't forget to subscribe to Take a Pain Check for updates!Laurie's Socials X: @ProulxLaurieInstagram: @capa_arthritisOur socials:Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara#juvenilearthritis #chronicillness #juvenilearthritis #research #patientsbelike #arthritis #chronicpain
In this week's episode of Take a Pain Check, we dive deep into Maddie Nero's inspiring journey with Juvenile Idiopathic Arthritis. From the early symptoms and struggles with medical professionals to triumphing over bullying in school, Maddie's story is a testament to resilience. Join us as we explore her college life, her passion for pageantry, and her empowering initiative, the Self Care Club for people with disabilities who want to learn more about self care. Don't forget to subscribe to Take a Pain Check for updates! Maddie's Socials: @self._care._club @missmiearth Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
Join us on this week's episode on Take a Pain Check as Dawn Richards, diagnosed with rheumatoid arthritis, shares her incredible journey from diagnosis to clinical remission. She opens up about changing rheumatologists, managing methotrexate side effects, and the transformative impact of exercise. She discusses her life both as a researcher and being patient partner in research. Finally, she discusses her involvement with the Canadian Arthritis Network, CIHR IMHA and the Canadian Arthritis Patient Alliance. Be sure to like, subscribe and share this episode! https://arthritispatient.ca/tips-and-tricks-when-taking-methotrexate/ https://cihr-irsc.gc.ca/e/27297.html Dawn's socials: Twitter - @TO_dpr Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
In this episode, Natasha talks to Kohle Merry about his journey with osteoarthritis. From undergoing joint injections to a hip replacement at just 29, Kohle's resilience is evident. As an engineering grad with aspirations for physiotherapy school, his surgical timeline redirected him to a PhD candidate in rehab science. He discusses the hurdles younger adults encounter in a rehab as it is setup predominantly for seniors and delves into the emotional struggles of persistent pain. Drawing from his experiences as a patient, tech enthusiast, and researcher, Kohle talks about his drive and how he wants to be part of the intersection between healthcare, patient partner lens and technology. A marathoner at heart, Kohle shares how he modified his active regimen so that he could keep running. Dive into this story of perseverance, from marathons to medical battles, and learn about how to implement self-advocacy in health. Be sure to like, subscribe and share this episode! Kohle's socials: https://ca.linkedin.com/in/kohle-merry-01018b120 Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
In this week's episode, we dive deep into the world of occupational therapy with Lindsay DeLong. Lindsay's journey spans from her foundational education to her innovative initiatives in the OT profession, particularly her unique focus on medical equipment. Having worked in a rehabilitation hospital, she specialized in inpatient brain injury rehabilitation, offering a wealth of insights into the day-to-day life and challenges of an OT. Beyond her clinical work, Lindsay founded EquipMeOT, a pioneering business dedicated to providing tailored medical equipment solutions. As we explore the products that enhance accessibility in various sections of a home, Lindsay also sheds light on the digital side of her mission. With a strong presence on platforms like YouTube, where she recently showcased an electric recliner video, and Instagram, she discusses the nuances of staying updated with trends, the hurdles of online engagement, and the power of social media in broadening her impact. She also delves into specific tools like Dycem, cylindrical forms, Y-shaped pencil grips, and more invaluable tips for adaptive living. For aspiring OTs, patients, caregivers or those curious about balancing work and personal life, Lindsay's experiences and advice promise a unique blend of inspiration and enlightenment. YouTube Video Link: https://youtu.be/I8g24I2OQc8 Cane Company: https://www.neo-walk.com/ Lindsay's socials: @equipmeot (IG) youtube.com/@UCLdk42lFK6A-7Ub7cLQH00g Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
Join us on this week's episode featuring Navya Juneja, a university student and a patient partner living with Juvenile Idiopathic Arthritis. In this week's discussion, Navya candidly shares her journey, from the early symptoms to her recent diagnosis and the challenges of finding the right medications. Natasha and Navya delve into essential topics, such as university accommodations compared to high school, providing practical advice on how to request and access the necessary support. They also explore the transition of care from pediatric to adult rheumatology clinics, shedding light on the significance of continuity and tailored healthcare services for young adults like Navya. Beyond her medical journey, Navya passionately shares her love for dance and her involvement with Take a Pain Check and SickKids, revealing how individuals can thrive and find purpose even while managing a chronic illness. Navya's Socials: Instagram: @navyaa_j LinkedIn: https://www.linkedin.com/in/navya-jun... Facebook: facebook.com/navyaajunejaa Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
In this week's episode of Take a Pain Check, prepare to be inspired as host Natasha welcomes the Sharona Franklin, an artist from Rural British Columbia. Sharona's story, despite grappling with multiple diagnoses, such as SJIA, AS, IBD, Pericarditis, and Vasculitis, transforms into a remarkable journey of unwavering resilience and strength. Natasha and Sharona dive deep into the profound impact of childhood struggles, the intricate complexities of the youth care system, the unique experiences of rural living, the challenges of dropping out of school, mental health battles, and navigating a unique family dynamic as one of eight siblings. Sharona fearlessly shares her early years, marked by the agonizing pain of being unable to eat. The conversation takes an intimate turn as Sharona vulnerably unveils the challenges she faced growing up within the youth care system, grappling with the involvement of social workers and lawyers in her life, and the far-reaching impact on both herself and her siblings. Despite these obstacles, Sharona discovered a wellspring of solace and empowerment through her passion for art. Natasha and Sharona embark on an exploration of the power of artistic expression, as Sharona recounts her early forays into creativity as a means to escape the confines of her circumstances. They delve into the judgments she faced due to perceptions surrounding having an assistant when doing art, and how she harnessed her lived experiences to create art that illuminates the unseen challenges of living with chronic illness. Lastly, Sharona ends off the episode raising awareness and fostering understanding, breaking down barriers and championing the voices of those facing similar struggles. Sharona's socials: Instagram: @hot.crip, @disabled_personals, @paid.technologies Articles to learn more about Sharona's journey: https://www.artbasel.com/stories/sharona-franklin-bioethics-disability-activism-statements-art-basel-2023?lang=enhttps://luttecollective.com/featured-artists/sharona-franklin Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
Join us on this week's episode of Take a Pain Check where our host, Natasha, delves into the world of pediatric oral and maxillofacial surgery with our esteemed guest, Dr. Cory Resnick. A science enthusiast since childhood, Dr. Resnick shares his journey into dentistry and his love for academic surgery. He discusses the challenges of maintaining work-life balance while running a private practice in New York and enlightens us about the inspiring environment created by working with trainee surgeons. This episode explores an often overlooked aspect of rheumatology - TMJ arthritis. Dr. Resnick sheds light on its recent recognition, the difficulties in early detection, and its prevalence among JIA patients. He further delves into the complexities of treating TMJ arthritis, the concerns related to using steroids in growing jaw joints, and the possibilities of joint reconstruction. Learn about the subtle signs that can hint at TMJ issues in children and the need for increased awareness and education about this 'forgotten joint'. We wrap up with a hopeful note on the formation of the TMJaw Research Consortium - an international group that it working towards better understanding and treatment of TMJ arthritis. Tune in as we navigate the fascinating crossroads of rheumatology and oral and maxillofacial surgery, uncovering profound insights and innovative perspectives from the field. Resources discussed: https://onlinelibrary.wiley.com/doi/f... Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
On this week's episode of Take a Pain Check with your host Natasha, we delve into the world of Nikki Bhatti. Nikki bravely shares her personal journey living with rheumatoid arthritis - from the first instances of joint pain in her fingers and toes, to the evolution of her medication journey with her current medication called Actemra. Listen in as she discusses the social implications of managing arthritis, and dives deep into what it is like being a South Asian woman managing cultural expectations while grappling with her own health. Natasha and Nikki dive into the discussion on lifestyle changes. Nikki discusses her experience with gym visits and swimming, along with the adaptations she's had to make to her work schedule due to morning stiffness and flare-ups. Hear about her experiences with arthritic nodule surgery and how she navigates disability within the workplace. Lastly, Nikki highlights her significant contributions to arthritis research as a part of the APAB board at Arthritis Research Canada, including the creation of an educational video. Natasha and Nikki end off the episode by discussing how they met each other! Resources mentioned in the episode: https://youtu.be/ll0avFOq210 Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Check out Nikki's socials: Instagram: strengthwithra
Welcome to this week's episode of Take a Pain Check with Natasha where we dive deep into the world of pain management. In this enlightening conversation, Nathan Augeard, a physiotherapist from Quebec and the visionary behind Physio Connection comes onto the podcast. Join us as we explore various facets of pain management and gain valuable insights from Nathan's expertise. Nathan compares the healthcare systems of Scotland and Canada, shedding light on wait times and other crucial differences. This episode delves into the pain and pacing strategy, uncovering the interplay between stress and its impact on pain. He discusses his groundbreaking research and talks about how physiotherapy students across Canadian universities are taught pain management. As Natasha and Nathan explore the various aspects of pain management, Nathan highlights the importance of interpersonal competencies such as empathy, respect, and advocating for patients. Nathan sheds light on how this Canadian network connects individuals living with pain to qualified physiotherapists, with a particular focus on enhancing access in remote regions. Tune in to this episode and let's embark on a journey to unlock the benefits of physiotherapy and conquer the challenges of pain together. Resources mentioned: https://www.amazon.ca/Explain-Pain-Da...https://epublications.marquette.edu/p...https://www.tandfonline.com/doi/full/...https://www.physioconnection.ca/ Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Check out Nathan's socials Facebook: http://facebook.com/physioconnection.ca Twitter: http://twitter.com/ptconnection_ca Instagram: https://www.instagram.com/physio_conn... Growing Pains, Copyright, 2018, Alessia Cara
In honour of Canadian Mental Health Week and Lupus Awareness Month, tune in to this week's episode as Krissy Stephenson, a successful business owner and chronic illness warrior, shares her journey of living with Rheumatoid Arthritis (RA) and Lupus. Krissy discusses the challenges of finding a good rheumatologist who understands the complexities of her conditions, her medication journey, and her experience with pregnancy and RA. Krissy also introduces us to the Spoon Theory, a powerful metaphor used by those with chronic illness to explain their limited energy each day. She talks about how she allocates responsibilities as a mother and entrepreneur and discusses her mental health journey with a therapist who also has Lupus. Join us as we explore Krissy's inspiring story of perseverance, hope, and resilience, including her experience as a kindergarten teacher and her successful Direct Superior Hip Replacement surgery that changed her life. Don't miss this week's episode of Take a Pain Check. Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Check out Krissy's socials: Instagram: @chronicallyillkrissy Growing Pains, Copyright, 2018, Alessia Cara
Join host Natasha on this week's heartwarming episode of Take a Pain Check, as she sits down with Isabella, a remarkable 13-year-old girl who shares her inspiring journey with Lupus, Juvenile Idiopathic Arthritis, and Sjogren's. Isabella's story began during the pandemic, when she experienced excruciating pain in her elbows at the tender age of 9. Initially hesitant to see a doctor, she attributed the pain to her extracurricular activities. However, after her hands turned purple due to Raynaud's, she finally sought medical help. In this episode, Natasha and Isabella discuss the challenges faced by vulnerable patients and their families during the diagnosis process. Isabella shares how she was dismissed in the clinical setting, but her resilience and determination led her to make the necessary lifestyle changes. She talks about how she embarked on a medication journey which had its ups and down. She also discusses her journey with using mobility aids from a young age. Despite the obstacles, Isabella's unwavering spirit shines through, as she adapted to homeschooling with her sister and found support from her family and close friends. Isabella also shares how she used music and humor to cope with her pain, despite the challenges with her hands when she played piano. Her advocacy journey and involvement with the Arthritis Society, including attending their yearly camp and kids' programs, are also discussed. Isabella's story of hope and perseverance will inspire you to live life to the fullest, even in the face of adversity. So, don't miss this episode of Take a Pain Check, and join Isabella on her journey towards living her best life!
In this week's episode of Take a Pain Check, Natasha welcomes Cassidy Bradley, a medical student at Dalhousie University, who bravely shares her journey with Fibromyalgia and POTS. Cassidy's story starts with her symptoms emerging during her time as a national-level speed skater, eventually leading to hip surgery. She discusses her mental health struggles and the benefits of therapy in coping with chronic illness, as well as accepting her disability and navigating accommodations in medical school. Cassidy opens up about the challenges she has faced with hip surgery, physiotherapy, and managing fibromyalgia and POTS, including temperature sensitivity and allodynia. She shares the adjustments she has made, such as using a heated blanket and wearing braces. Additionally, she highlights her advocacy work as a patient partner in research, advocating for the patient voice and aligning research with patient needs and values, along with Natasha who shares her own patient partner experience. Cassidy also shares her positive experiences at Brigadoon Village, a camp for children with chronic illnesses, where she found support from counselors and fellow campers. Don't miss this insightful episode as Cassidy Bradley shares her inspiring journey on Take a Pain Check! Cassidy's socials: Twitter and Instagram: @Cassidybradley_ Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #fibromyalgia #medicalstudent #dalhousie #speedskater #rheumatology #pots
Get ready to be inspired by this podcast episode hosted by Natasha Trehan and featuring Kabir Budlender! Kabir is a 16-year-old high school student and JIA patient from Johannesburg, South Africa. He's not just any ordinary teenager though - he's a passionate advocate for educating others about what life is really like when you're living with chronic illness and invisible disability. He discusses his medication journey for POTS, JIA and IBD including his experience with Humira and Methotrexate. Not only that, Natasha and Kabir both discuss their passion for music and how it continues to be a form of escapism despite the hurdles of arthritis. Kabir sits on the Executive team of the Take a Pain Check Foundation and is also a member of Arthritis Kids South Africa. In this episode, Kabir dives deeper into the issue of rheumatic illness in South Africa and how challenging it can be to get a diagnosis if you don't have medical aid or insurance. He also touches upon the language barrier to easy access of information, the maintenance of medications in lower socioeconomic areas and the barriers for access to care - North America vs South Africa's health care system. He discusses the social aspects of having a chronic illness and being in high school as well as accommodations. Lastly, Kabir shares how getting involved with organizations like TAPC can be a beneficial part of one's rheumatic disease journey. Relevant links: William's Story: https://www.instagram.com/reel/CmOwvc... WORD Day Video: https://www.instagram.com/reel/CjnEZe... Kabir's Blog: https://www.takeapaincheck.com/post/h... Kabir's socials: Instagram: @kbudlender_ and @thechronicallyill_teen Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
On this week's episode on Take a Pain Check, Jacqueline and Alexa Child come on the podcast to talk about their own personal experience of living with a chronic illness and being a sister of someone who has a chronic illness, respectively. Jacqueline starts off by discussing her diagnosis journey with Ehlers-Danlos Syndrome and other chronic illnesses. She talks about bad joint and muscle pain, having a butterfly rash, experiencing sensitivity to the sun, and dealing with GI symptoms that led her to seek help from a medical professional. On the other hand, Alexa discusses how she was 3000 miles away for law school, and she started off not really understanding what Jacqueline was dealing with. But once she truly learned more about it, it changed her as a person and gave her a unique perspective. Growing up in Telluride, a ski resort, there were no hospitals nearby and no specialist nearby so Jacqueline discusses her access to care barriers. Alexa and Jacqueline discuss their lives' living together and how they became more mature than others around them as they had different lived experiences. Jacqueline talks about the difficulties being honest with Alexa about her symptoms as it's hard a challenge to ask for help. Moreover, Jacqueline talks about her heart surgery after being born with a congenital heart defect at age 25. They end off the episode by talking about Dateability, a dating app for the chronically ill and disabled. Dateability was made based on the lived experiences of Jacqueline's dating life and constant rejections. They talk about how the app works, their future goals for the app and how they hope to connect this ever growing community. Dateability: https://info.dateabilityapp.com/ Jacqueline and Alexa's socials: @dateabilityapp @jacquelineechild @alexabchild Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
On this week's episode, Chris Pudlak talks about his journey with Ankylosing Spondylitis. Diagnosed at age 36, Chris struggled to lift up his kids or even play with them because of his arthritis pain. Since day one, he started journaling in which he intertwined his engineering skills to track his symptoms. He discusses lifestyle changes he implemented and how he tracked his symptoms. Not only that, Natasha and Chris discuss workplace accommodations such as a height adjusting desks and a different type of handshake. Chris also gives tips on how to cycle and run with ergonomic equipment. He talks about the impact of physiotherapy on his arthritis. Lastly, Chris talks abut his book ” Achieving Wellness Through Arthritis” and his involvement in Arthritis Research Canada. Check our Chris' Socials: Twitter and Facebook: @ChrisPudlak Check out our socials: Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
Alli Buchanan joins host, Natasha, on this week's episode on Take a Pain Check to discuss her diagnosis with Psoriatic Arthritis (PsA). Alli's starts by talking about her diagnosis journey and how it took her 10 years to get diagnosed. Physicians were aware of Alli's family history with PsA but did not take that into account when her symptoms progressed. Because of Alli's mom's experience with PsA, Alli discusses how her mom was her biggest advocate as she spent a lot of time reliving her own journey. The conversation dives into the importance of talking about arthritis and its lack of representation in the science curriculum. Not only that, Alli talks about the medications she went on and how this led her to develop Toxic Shock Syndrome. She discusses that a medication that may work today, but it may not work tomorrow. She talks about her accommodations, such as having transportation and picking her university courses before other people. Additionally, Alli mentions how she balances her social life, academics and arthritis while going to college and how her friends have been able to support her. Finally, they end off the episode by talking about Alli's arthritis Instagram page and a recent quiz she made to see how much her friends knew about her arthritis. Quiz on Alli's friends: https://www.instagram.com/reel/CljWiTljOeV/?igshid=YmMyMTA2M2Y= Check our Alli's Socials: Instagram: @alli.arthritis Check out our socials: Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
It started off in the hospital when Juanita told her friend she would be back to school in two days. Soon, those two days turned into months of isolation, treatments, etc. On this week's episode, Juanita Garcia comes on to share her story with Thrombotic Thrombocytopenic Purpura (TTP) and Lupus at ages 13 and 20, respectively. Being born and brought up in Columbia, Juanita shared her health care journey while going through the Canadian vs Columbia's system. She discusses the difference in wait times, getting blood results, and overall patient care. At the age of 13, Juanita was isolated for months from her family and peers due to her weak immune system. Her parents were also told that she wouldn't make it when she could not get to the hospital quickly. Despite all of this, Juanita continued to be resilient. Once she found medications that worked, things got better. Natasha and Juanita discuss the different types of patients that exists, both of them being ones that actively want to learn more about their disease. Not only that, Juanita comes to a point in her life where she had to learn to accept her disease as her new reality. Juanita shares her change in mindset and how she had to turn her disease into her friend. Lastly, Juanita shares how her journey allowed her to really get involved in her passion — research and health. She ends off the podcast episode by talking about her patient partner work with the SPOR Evidence Alliance group and the COVID END team. Take a Pain Check's Merchandise Design Fundraiser Event: https://www.eventbrite.com/e/take-a-p... Check out Juanita's Socials: @juanitagarciarecio @_me_the_hero Check out our socials: Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
Dr. Molly Dushnicky brings her JIA and physician perspective to this week's episode on Take a Pain Check. In this episode, Dr. Molly discusses the story of her JIA diagnosis at the age of two with approximately 45+ impacted joints. She faced barriers of access to care in her hometown Thunder Bay in Northern Ontario as there was no pediatric rheumatologist then and even now. She talks about how she had to be flown down to The Hospital of SickKids in Toronto and CHEO in Ottawa to be treated. Dr. Molly is a fighter who did not let the disease stop her from being active. She is passionate about soccer, curling and rock climbing and learned different strategies to overcome her disability. Dr. Molly discusses her advocacy through the challenges as well as accommodations at each stage of her life with her diseases from elementary to high school, and from university to medical school. She also provides insight to her residency and fellowship programs. Lastly, Dr. Molly shares her path to her career in pediatric rheumatology and how her passion drew her to what she loves to do today. Take a Pain Check's Merchandise Design Fundraiser Event: https://www.eventbrite.com/e/take-a-p... Check out Dr. Molly Dushnicky's socials: Twitter: @MDushnicky Check out our socials: Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
This week's episode features Dr. Natasha Gakhal (Adult Rheumatologist) and Dr. Evelyn Rozenblyum (Pediatric Rheumatologist), who come on the podcast to discuss their collaborative transition clinic in Toronto, Canada. They begin the episode by discussing where their interest in rheumatology came from and what drew them to focus on adult medicine vs pediatric medicine. They discuss how they met each other and what really led them to make this clinic including year long discussions at the table, challenges along the way and more. Will parents be allowed in the appointment? What happens when I turn 25? Why am I now getting input from 3 different health professionals? These are all questions answered in the episode! Additionally, they discuss the benefits of going to a transition clinic, such as the environment, other people around your age, and the multidisciplinary care. They stress the importance that it is more than just physical health while emphasizing on mental, reproductive health and more. Not only that, they discuss the type of care patients can expect, the resources that the clinic provides for youth and young adults, and the common challenges that patients face. Finally, they end off the episode discussing where they see the future of the clinic going and feedback they plan on implementing. Sign up for our December Joint Chat Rheum Session on Sunday, December 18th at 2pm EST/11am PST: https://us02web.zoom.us/meeting/register/tZUvcemuqj4tG9bv5GacH2ETnmLJ0Yjxcha4 Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara