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They clarify the differences between these terms and provide examples, such as the myth that only elderly people get arthritis, the stigma that people with arthritis are lazy, and the misconception that arthritis is merely mild joint pain. Eileen and Cheryl also emphasize the importance of education and self-advocacy and share personal experiences to illustrate how these misunderstandings can affect mental health. They also highlight resources for further learning and empowerment so you can help bust these myths and bring awareness to the true impact of rheumatic diseases. Episode at a glance:Defining Myths, Stigmas, and Misconceptions: Cheryl and Eileen define the myths, stigmas, and misconceptions related to rheumatic diseases.Personal Experiences with Misconceptions: Cheryl and Eileen delve into their personal experiences with misconceptions of rheumatic diseases. Addressing Stigmas: Cheryl and Eileen address stigmas often associated with rheumatic diseases.Common Myths About Rheumatic Diseases: Cheryl and Eileen discuss the common myths about rheumatic diseases.Impact on Mental Health: Cheryl and Eileen discuss how this topic affects mental health.Final Thoughts and Resources: Cheryl and Eileen highlight resources to help bust myths and bring awareness to rheumatic diseases.Medical disclaimer: All content found on Arthritis Life public channels (including Rheumer Has It) was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
Riley details her complex and often delayed diagnostic journey, the challenges of navigating the healthcare system, and which treatments have worked best for her. She also shares how she navigates daily life while living almost exclusively at home due to limited mobility and energy.Cheryl and Riley also discuss the adaptations and strategies Riley uses to manage her conditions and maintain her quality of life, including some special tips for RV living. Riley offers insights into finding peace in the moment, the importance of advocacy, and the reality of thriving in survival mode. Riley challenges the traditional idea of what it means to thrive, redefining it as being present for micro-moments of connection, joy, or peace . Her story highlights both the physical toll of chronic illness and the emotional strength required to navigate a complex and often dismissive healthcare system.Episode at a glance:Riley's Diagnosis Journey: Riley shares her journey with multiple autoimmune conditions, including lupus, rheumatoid arthritis, and Sjögren's syndrome.Treatment Trials and Tribulations: Riley opens up about experiences of medical gaslighting and the emotional toll of being dismissed by providers.The Importance of Advocacy and Self-Care: Riley and Cheryl discuss the power of symptom tracking as a tool for validation and self-advocacy in healthcare.Daily Life Adaptations when you Don't Leave Home Often: Riley shares her daily tools and strategies that work for her and her family.Finding Micro-Moments of Joy and Redefining Thriving: Riley redefines what it means to thrive—finding value in micro-moments of connection, joy, or stillness.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
In this candid intro episode, you'll hear how they met online, bonded over the challenges of living with RA, and teamed up to make science-backed info more relatable and easier to understand. Their mission? To bust myths, share real stories, and offer practical tips to help you feel more in control of your health.Whether you're newly diagnosed, supporting someone with RA, or work in healthcare, this podcast is here to empower you with insights that actually make a difference.Episode at a glance:Cheryl's and Eileens's Journey with Rheumatoid Arthritis: Both Cheryl and Eileen share their journeys with RA.The Birth of Rheumer Has It Podcast: Cheryl and Eileen discuss how they first connected online through their advocacy work, which eventually led to the creation of Rheumer Has It.What to Expect from Rheumer Has It: Compact, information-dense content from Cheryl, Eileen, and experts. Debunking Myths and Misconceptions: Cheryl and Eileen discuss how this podcast will debunk myths and misconceptions about rheumatic diseases and spotlight scientific evidence in a down-to-earth, digestible format.Medical disclaimer: All content found on Arthritis Life public channels (including Rheumer Has It) was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
They discuss the complexities of managing overlapping conditions and the importance of a strong support system. Alice highlights the invaluable support she receives from her family, friends, church community, and online groups. They also talk about the challenges of explaining chronic illness to others, dealing with unsolicited advice, and finding comfort in relationships. This episode serves as a guide for both patients and their loved ones on fostering understanding and meaningful support.Alice also discusses the significance of finding specialized support groups, such as the 'Rheum to Thrive' community, led by Cheryl. Both Cheryl and Alice stress the importance of open communication, patience, and understanding in building effective support systems. Episode at a glance:Alice's Health Journey: Alice shares her experience living with and navigating multiple chronic conditions such as Rheumatoid arthritis, Sjogren's syndrome, fibromyalgia, and chronic fatigue syndrome.The Importance of Support from a Strong and Diverse Support System: Cheryl and Alice discuss the importance of support from family and friends, church community, and online support groups. Finding and Building Support Systems: Cheryl and Alice discuss Cheryl's Rheum to Thrive Program and how a specialized community is valuable in building a support system.Dealing with Misunderstandings and Unsolicited Advice: Cheryl and Alice discuss how to maintain boundaries and navigate unsolicited advice.Reflections on Long-Term Relationships: Alice shares insights from over 50 years marriage. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
They discuss practical strategies for rebuilding trust in your body, the critical role of understanding your core values, and how to find the right support — whether through programs like Rheum to Thrive or events like the Virtual Sjögren's Summit. Together, they show how education, advocacy, and mindset shifts can help patients move from fear to confidence in managing their immune health.Episode at a glance:Sjogren's and MCAS 101: what is Sjogren's and MCAS?Dr. Kara Wada's personal journey: Sjögren's and mast cell activation syndrome (MCAS) and how it shaped her mission to empower patients.Understanding "Immune Confidence": learning to trust your body again after autoimmune and allergic disease diagnoses.The importance of patient advocacy and education: how Dr. Wada supports patients across multiple states through educational visits.Healthcare system issues: why are complex patients being given the short end of the stick, and what are some creative solutions?Upcoming events and opportunities: the Virtual Sjögren's Summit and Cheryl's evolving focus with Rheum to THRIVE.Finding balance between personal life and professional advocacy while living with chronic illness.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
Jenni and Cheryl share the research highlights that stood out the most for them, from new research on POTS and Covid to the importance of sleep and fatigue management. We also shine a light on recent advancements in lupus treatment and managing stress and activity through "positive activity scheduling." Cheryl and Jennifer also share personal stories on navigating sleep hygiene, the subtle pressures of defining "normal," and the importance of sensitivity in language. Through these reflections, we emphasize a broader understanding and embrace of diverse health experiences. We also reflect on the importance of finding supportive communities.*This episode was originally recorded as part of the My Spoonie Sisters podcast. Episode at a glance:Getting Involved: Patient advocacy and research as “Rheum Champions” with the Rheumatology Research FoundationResearch Highlights: New findings on POTS and Covid, the role of sleep and fatigue management in chronic illness, Advances in lupus treatment, Benefits of positive activity scheduling for stress and activity managementPersonal Insights: Real-life strategies for improving sleep hygiene, Challenging the idea of what's considered “normal,” The power of sensitive and inclusive languageCommunity & Support: The importance of finding and connecting with supportive communities, Encouragement for those looking to get involved in advocacyMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
Dr. Jenna breaks down the key differences between pediatric and adult care, and shares practical tips to help you feel more confident and prepared—whether it's learning how to speak up during appointments, track your symptoms, or build a support system that really gets it.They also get real about mindset, movement, rest, and how to keep living a full, active life even with rheumatoid arthritis, juvenile idiopathic arthritis or a similar condition in the mix. If you're feeling unsure about what comes next, this conversation is full of encouragement, clarity, and little ways to start taking charge of your health journey.Episode at a glance:Why the Transition from Pediatric to Adult Rheumatology Care Matters: Understanding the key differences between pediatric and adult rheumatology care.Common Challenges: Navigating new doctors, treatment plans, and increased self-management responsibilities.Self-Advocacy Tips: How to confidently communicate with your new care team and take charge of your health.Building a Support System: The importance of finding a community, whether through friends, family, or patient groups.Finding the Right Rheumatologist: What to look for in a specialist who understands your needs and concerns.Words of Encouragement: Reassurance that you're not alone in this transition and that smoother adjustments are possible with the right resources.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
Additionally, Cheryl & Dr Dada also explore how strength training—not to "bulk up," but to boost energy, focus, and joint stability—can be a game-changer for these diseases.Dr. Dada reassures newly diagnosed individuals to avoid the anxiety of worst-case scenarios online and instead focus on reliable information and gradual, sustainable lifestyle changes. She emphasizes that managing arthritis is a marathon, not a sprint, and that even 1% improvement each day adds up. With the right knowledge, support, and habits, you can take control of your health and live well with arthritis.Episode at a glance:Myths vs Facts for gout and osteoporosisStrength Training Benefits: Cheryl and Dr. Dada discuss how strength training improves joint stability, reduces fatigue, and enhances focus for arthritis, gout, and osteoporosis.Managing Anxiety: Cheryl and Dr. Dada discuss navigating the anxiety that comes with a new arthritis diagnosis, emphasizing the importance of reliable information.Patience & Progress: The value of taking a gradual approach—small daily improvements can lead to significant changes in quality of life.Empowering Patients: Dr. Dada emphasizes patient education and how it empowers individuals to make informed decisions about their care.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
Together, they break down the latest research from the 2024 American College of Rheumatology conference, unpacking the science behind the gut microbiome and the Mediterranean diet. Cristina explains how these can impact inflammatory diseases like RA and Sjogren's—and why it's about more than just what's on your plate.They also tackle the big questions: Should you go gluten-free? Is the carnivore diet a miracle cure or just another fad? Is it worth having a restrictive diet if I'm stressed about food all the time? Cheryl and Cristina separate fact from fiction, debunking common diet myths so you can make informed choices without the confusion.But this conversation isn't just about food—it's about the bigger picture. Cristina shares her “Five C's” framework—Commitment, Consistency, Compassion, Courage, and Credibility—helping you stay on track while giving yourself grace. Plus, they dive into the importance of finding the right healthcare team and support system, so you never have to navigate RA alone.If you're looking for real talk, expert insights, and actionable tips to feel your best, this episode is a must-listen!*Content warning: discussion of disordered eating from minute 10:40-14:40Episode at a glance:Cristina's Journey: How dietitian Cristina was diagnosed with arthritis and Sjorgen's DiseaseBalanced Approach to Arthritis: Combine medication with smart lifestyle changes like diet and exercise for the best results.Gut Microbiome Matters: The health of your gut microbiome plays a key role in managing inflammation and supporting overall health.Cristina's Five C's Framework: Commitment, Consistency, Compassion, Courage, & CredibilityBuild Your Healthcare Dream Team: Collaborate with trusted specialists (rheumatologists, dietitians, occupational therapists) for comprehensive care.Avoid Quick Fixes: Don't fall for miracle cures; rely on evidence-based practices for long-term success.Specific Aspects of the Mediterranean Diet and Mediterranean Lifestyle: What makes it so helpful for inflammatory arthritis patients?Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
They explore the tricky balance between wanting to “fix” your body and learning to accept where you are right now. Lindsay introduces a powerful framework for becoming your own loving companion—especially when flare-ups and uncertainty make life feel overwhelming.You'll also walk away with practical, everyday strategies, like how a simple tool like Dycem can make tasks easier. Because sometimes, the smallest changes can have the biggest impact.If you've ever struggled with self-judgment or wished for a little more kindness—both from yourself and for yourself—this episode is for you.Episode at a glance:How do Occupational Therapists Help people with chronic illnesses?The Importance of Self-Compassion: Lindsay highlights the value of acknowledging your humanity and giving yourself grace through the ups and downs of living with arthritis or chronic pain.Aligning Your Time and Energy: Feeling more grounded comes from making sure your time and energy are aligned with what truly matters to you, even when living with a chronic illness.Helpful Tools for Daily Life: Lindsay mentions Dycem as a versatile tool for improving grip and making everyday tasks easier.Words of Encouragement: Lindsay encourages newly diagnosed individuals to remember they're not alone and don't have to figure everything out on their own.Recommended Resources: Lindsay shares her appreciation for Sitting Pretty by Rebekah Taussig for its relatable insights and humor about living with a disability. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
Uncover the power of advocacy and community in rheumatology as we welcome our empowering guests, Jennifer Weaver and Cheryl Crow. Jennifer, a dedicated patient leader, and Cheryl, an occupational therapist and founder of Arthritis Life, open up about their journeys as Rheum Champions at the ACR Convergence 2024. With a promise of insight and inspiration, we navigate the intricacies of large conferences, including the importance of patient voices at the table and the small yet significant moments that define their experiences.Balancing the realities of healthcare challenges with triumphs, our conversation shifts to the heart of patient advocacy. Dive into the emotional, and at times, hopeful connections formed between patient advocates and medical professionals. Cheryl and Jennifer share personal stories on navigating sleep hygiene, the subtle pressures of defining "normal," and the importance of sensitivity in language. Through these reflections, we emphasize a broader understanding and embrace of diverse health experiences.Explore the intricate world of rheumatology and the complexities of comorbidities like POTS, long COVID, and rheumatoid arthritis. We also shine a light on recent advancements in lupus treatment and managing chronic pain with "positive activity scheduling." Our discussion concludes with an homage to the supportive sisterhood that empowers us, urging listeners to connect with organizations like the Dysautonomia Association and Creaky Joints. As we wrap up, we celebrate the strength found in shared experiences and encourage you to stay engaged for future episodes.Jen: Rheum Champions - The Rheumatology Lab https://www.instagram.com/gracefully_jen/?__pwa=1Welcome to Gracefully Jen | Instagram, Facebook, TikTok | LinktreeCheryl: Rheum Champions - The Rheumatology Labhttps://www.instagram.com/arthritis_life_cheryl/https://thoughtful-experimenter-636.ck.page/1fb879479cSend us a text Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.Let's Get Started - Rare Patient Voice Support the showSupport:https://rarepatientvoice.com/Myspooniesisters/https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)Website:https://myspooniesisters.com/ Discount Codes: GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off
From singing to trying nine different medications in five years, to embracing the THRIVE framework from Cheryl's Rheum to Thrive Program, Alice shares the ups and downs of life with rheumatoid arthritis. Ultimately, Alice reminds us that living fully with RA doesn't mean giving up on what matters—it means finding new ways to engage, and finding a way to balance grief for what you've lost with gratitude for what you still have.If you're newly diagnosed, her story is a powerful reminder of the importance of connecting with what matters and striving to thrive, even if the path looks different than you expected.Episode at a glance:Adjusting to Life with RA: Alice shares her journey of adapting to a rheumatoid arthritis diagnosis and how it has impacted her daily life and passions.Coping with medication ups and downs: Alice shares the emotional roller coaster of trying nine different medications in five years in search of one that would put her RA into a lasting remission.Music & Resilience: How Alice found creative ways to stay connected to music, including learning Gaelic to sing a special song.The THRIVE Framework: Practical strategies Alice uses to maintain joy and purpose despite physical challenges.Redefining Limitations: Encouraging insights on shifting perspectives and embracing new ways to engage with what you love.Message of Hope: Alice's advice for newly diagnosed individuals: you can still live a full, meaningful life—it just may look different than expected.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
Cheryl and Helen dive into the often-overlooked mental challenges of inflammatory arthritis, which can sometimes feel harder to navigate than the physical symptoms. They explore mindset strategies and mental tools that have helped them, including approaches from Acceptance and Commitment Therapy (ACT).The conversation also highlights the importance of balance, such as steering clear of extreme “healthy” habits—like overly restrictive diets—that can add unnecessary stress. Cheryl and Helen share how they've learned to set boundaries and overcome the tendency to be people pleasers.With insights on managing self-talk and practicing self-compassion, Helen offers a refreshing perspective for anyone navigating a chronic illness. Tune in to discover practical tips for embracing progress over perfection and living well with a chronic condition.Episode at a glance:Helen's Journey with Ankylosing Spondylitis: Helen shares her diagnosis story, the challenges of managing a chronic condition, and how it shaped her coaching approach.The Power of Balance and Listening to Your Body: Discover how Helen found relief by embracing balance in nutrition, self-care, and daily habits, prioritizing what feels good for her body.Creative and Compassionate Stress Management: Learn Helen's unique strategies for managing stress, including reframing thoughts, setting realistic expectations, and practicing self-compassion.Practical Tools for Pain and Fatigue Relief: Helen discusses her go-to tools, like hot water bottles and ice packs, and explains how listening to her body guides her choices.Inspiration for Thriving with Chronic Illness: Helen's mantra, "Progress over perfection," and advice for newly diagnosed individuals provide hope and actionable steps to live a fulfilling life despite limitations.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
Together, Cheryl and Dr. Ortiz debunk common myths about RA and tackle important topics like medication hesitancy, lifestyle interventions, and the balance between the two. Dr. Ortiz reassures listeners that while factors like nutrition, sleep, exercise, and stress management can help, “just because lifestyle can help doesn't mean lifestyle caused it.”They also discuss how to make the most of your doctor's appointments—because being prepared can help you feel more confident and in control. Plus, they dive into the emotional side of living with a chronic illness and the uncertainty that comes with it. Dr. Ortiz shares strategies doctors can use to provide reassurance, even when the path forward isn't always clear.Finally, they explore concierge medicine and why Dr. Ortiz transitioned to this model of care. And as a reminder to anyone feeling overwhelmed, Cheryl and Dr. Ortiz leave listeners with this thought: “Everyone's got something.” RA may be part of your story, but it doesn't define you—you can still build a life that feels full and thriving. Episode at a glance:Why Dr Ortiz Became a Rheumatologist: The importance of building a long term relationship with your patients and searching for answers in the gray areas of medicine.Tips for patients and doctors to communicate and connect better: Dr Ortiz shares practical tips for improving your connection with your doctor.Medication Hesitancy and Lifestyle: Dr. Ortiz and Cheryl reflect on the importance of understanding medication efficacy, and how some evidence-based lifestyle interventions can be an important adjunct in your care.Busting myths about rheumatoid arthritis: Dr. Ortiz and Cheryl address common misconceptions Dr. Ortiz has found in her Connected Rheumatology YouTube channel and Cheryl has found on her Arthritis Life social channelsEmpowering Mindset for a New Diagnosis: Your diagnosis is not your fault, but you do have control over how you respond.Shifting perspective: “Everyone's got something” – you're not alone in this journey.Living a Full Life with RA: Thriving means building a life beyond your condition.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
Alison and Cheryl also explore the impact of the pandemic on rediscovering creative passions and the power of storytelling in raising awareness. Alison's new children's book, Kenzie's Little Tree, is not only a meaningful read but also a way to support arthritis and chronic illness foundations. If you're newly diagnosed, this conversation offers reassurance, practical tips, and a reminder that you're not alone in this journey. Episode at a glance:Alison's Diagnosis Story: Alison shares how she got diagnosed with AS after the birth of her childCreative Outlets & Chronic Illness: How writing, reading, and creative hobbies help manage symptoms and mental well-being.Practical Comfort and Pain Relief Tools: Favorite small but effective tools like heating pads, cushions, and ergonomic adjustments.Navigating Life Post-Diagnosis: The emotional impact of an IBD and ankylosing spondylitis diagnosis and finding ways to adapt.The Power of Storytelling: How Alison's book, Kenzie's Little Tree, raises awareness and supports chronic illness communities.Finding Connection & Support: Encouragement for those newly diagnosed, emphasizing that they're not alone in this journey.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
Cheryl and Tina emphasize the need for increased education, representation, and awareness about autoimmune conditions and treatment options to reduce stigma and support patients globally. Cheryl and Tina also discuss Tina's advocacy work, including her blog Own Your Crohn's and contributions to South Asian IBD Alliance (SAIA), focused on creating community and amplifying patient voices across diverse populations.See full episode show notes including a transcript here! Episode at a glance:Tina's Diagnosis and Journey: Initial struggles with chronic illness and delayed acceptance of modern treatments like ostomies; challenges navigating cultural stigmas and family expectations in South Asian and other communities of color.Addressing Stigma and Cultural Barriers: The impact of cultural stigmas on seeking timely medical care; Advocating for education, awareness, and representation in autoimmune and chronic illness spaces.Advocacy Work: Founding Own Your Crohn's to share her experiences and connect with others; Contributions to SAIA to amplify patient voices and support global IBD communities.Key Messages: The importance of community, education, and acceptance in improving quality of life for patients; Breaking barriers and promoting inclusivity in chronic illness narratives.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Full episode show notes Click here for full episode show notes including a video of this conversation and transcript.
A new RA diagnosis can be overwhelming, and it's easy to feel lost in a sea of emotions and uncertainty. In this episode, I share my best advice for navigating this new reality—offering practical tips on mindset, building a strong support system, and avoiding the pitfalls of misinformation.You'll also hear from fellow RA patients who share their personal insights and heartfelt encouragement, helping you approach your diagnosis with renewed hope—and, if you're lucky, some evidence-based optimism.Drawing from my 20+ years of living with RA and my expertise as an occupational therapist, I revisit key lessons from Episode 4 (originally released in 2020) and add fresh reflections from my last five years of running patient support groups and educational programs.Tune in for a thoughtful, compassionate conversation designed to help you move forward with confidence and clarity.For full episode details including a transcript:Go to the episode page on the Arthritis Life website!Episode at a Glance: Navigating Your RA DiagnosisCoping with the Initial Shock – Practical tips to help you process the emotions that come with a new diagnosis and adjust to this new chapter of your life.Educating Yourself Without Overwhelm – Learn how to find reliable information about RA without falling into endless internet rabbit holes or misinformation traps.Building a Strong Support System – How to connect with the right people—both in real life and online—so you feel supported, understood, and less alone.Working with Your Medical Team – Strategies for communicating effectively with your doctors and advocating for the care you deserve.Finding the Right Treatment Path – A guide to exploring treatment options with confidence, so you can make informed decisions that fit your needs.Managing Stress & Protecting Your Mental Health – Simple, effective ways to care for your mind and body while adjusting to life with RA.A Message of Hope & Encouragement – You're not alone in this. Hear words of support and reassurance to help you move forward with confidence.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details - you don't have to figure it all out on your own, I'm here to guide and support you!For full episode details including a transcript:Go to the episode page on the Arthritis Life website!
Chrissy recounts the challenges she faced seeking medical care for persistent swelling and joint pain. Despite visiting multiple doctors, she was repeatedly told she “wasn't sick” before ultimately receiving her RA diagnosis. She reflects on the mix of emotions she felt—relief at finally having a treatment plan and the hope it brought, alongside fears about the long term implications of a progressive disease like RA.Chrissy also dives into the importance of mindset. She explains how maintaining a positive outlook helps her navigate life with RA, while being careful to steer clear of the pitfalls of “toxic positivity.”Her diagnosis, while life-changing, also brought unexpected opportunities. Chrissy discusses how it inspired her advocacy and fundraising efforts, including an incredible bike ride from San Francisco to Los Angeles to support the Arthritis Foundation.This heartfelt conversation between Cheryl and Chrissy is a reminder that, even with a chronic illness diagnosis, it's possible to thrive and find purpose in new and meaningful ways.Episode at a glance:Chrissy's Journey to Diagnosis: From frustrating delays to finally being diagnosed with rheumatoid arthritis (RA).Emotional Ups and Downs: The relief of finding a treatment plan and the challenges of accepting life with a chronic illness.Mindset Matters: Balancing positivity while avoiding the pitfalls of "toxic positivity."Advocacy in Action: How Chrissy turned her diagnosis into a mission, including fundraising for the Arthritis Foundation.Inspiring Adventures: Chrissy's empowering bike ride from San Francisco to Los Angeles to support RA awareness.Finding Purpose and Adapting: Cheryl and Chrissy discuss thriving, adapting and finding purpose after an RA diagnosis.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
Gabi highlights the accommodations that have been instrumental during her college experience, including adaptive tools and flexible scheduling. She shares how other young people with chronic illness can advocate for the accommodations they need to succeed in school.Cheryl and Gabi also discuss the vital role of peer support groups, such as Cheryl's Rheum to THRIVE program, and emphasize the importance of self-advocacy and maintaining a positive outlook. For those newly diagnosed, Gabi offers invaluable advice: seek reputable resources, stay informed, and embrace the mindset that thriving with a chronic illness requires adapting, planning, and finding joy amidst challenges. This inspiring conversation celebrates resilience, community, and the power of living well with a chronic illness.Episode at a glance:Navigating Life with Spondyloarthritis and palatal tremor: Gabi shares her personal journey and how she manages the challenges of living with inflammatory arthritis. She also shares what it was like to try different medications and switch due to side effects.Key Tips and Tools for School and Work: Cheryl and Gabi discuss accommodations available through organizations like the Arthritis Foundation and adaptive tools and strategies for daily life.The Power of Self-Advocacy: Gabi highlights the importance of advocating for yourself in medical and personal settings.Creating a Supportive Environment: Gabi shares about finding community and encouragement through groups like Rheum to THRIVE and about the importance of building a network of understanding family, friends, and peers..Advice for the Newly Diagnosed: Lean on trustworthy resources, Stay informed and learn to adapt, and Focus on maintaining joy and living life fully despite the diagnosis.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
Stephanie and Cheryl also reflect on the “roller coaster of acceptance,” or their journeys towards self compassion and acceptance in the face of fluctuating, unpredictable conditions. They also delve into the challenges of living with cognitive dysfunction or “brain fog” and Stephanie shares how she copes with this while serving as an adjunct professor.Stephanie also shares resources that have helped her in her chronic illness journey, including her work with Atlas Assistance Dogs and her impactful writing on disability identity. Together, Cheryl and Stephanie show how living with chronic conditions can foster resilience, deepen self-awareness, and lead to a fulfilling life despite challenges.Trigger warning: miscarriageEpisode at a glance:Personal chronic illness Journeys: Stephanie shares her experiences of living with rheumatoid arthritis and the emotional challenges of a new diagnosis after surviving cancer and endometriosis.Developing resilience and adapting to the ebb and flow of symptoms.Building Community: The value of connecting with others who understand and the role of a support system in managing arthritis.Practical Advice: Learn how adapting and being less rigid can improve quality of life despite chronic illness.Coping with difficult symptoms like brain fogService animals: Stephanie shares the impact of animal assisted therapy and tips for caring for a dog when you have rheumatoid arthritis.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
They also discuss the importance of support and community, and Amber shares her experience in Cheryl's Rheum to THRIVE program. Cheryl and Amber emphasize the importance of adaptability, finding joy in everyday activities like cooking and cheering for their favorite sports teams, and embracing flexibility in the face of unpredictability. Episode at a glance:Personal Stories of Resilience: Amber shares her journey of managing psoriatic arthritis while balancing work, friendships, and her love for cooking and sports.The Power of Adaptability: Embracing flexibility and pivoting when necessary is key to maintaining a fulfilling life despite chronic illness challenges.Therapeutic Insights: Cheryl and Amber discuss the importance of therapy, setting boundaries, and giving up some control to better manage health and wellness.Support Networks: Amber highlights resources like her counseling practice, the Welcome Project PA, and a peer support group for those living with chronic illness.Lighthearted Moments: Fun anecdotes about Amber's Taylor Swift-themed party, her love for the Eagles, and her relatable Instagram posts featuring her dog and food.Encouragement for Listeners: Cheryl and Amber leave listeners with hope, showing how living a good life with arthritis is possible by focusing on joy, adaptability, and meaningful connections.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
She discusses how she's learned to adapt to life's changes, uncover tools to improve her quality of life, and embrace creativity as a way to thrive. For instance, she shares how her power wheelchair allows her to explore her surroundings while conserving energy, and how her Spoonie Coloring Book brings joy and meaning to her daily life through art.Carrie and Cheryl also dive into topics like self-acceptance, disability representation in media, and the role storytelling plays in processing challenges. With humor and vulnerability, they reflect on what it means to live a fulfilling life despite chronic illness, offering encouragement and inspiration for anyone newly diagnosed.This episode is a heartfelt reminder that, while the journey may not go as planned, it can still be meaningful and empowering.Episode at a glance:Carrie's Diagnosis and Treatment JourneyThe Power of Acceptance: Balancing grief for what's lost with hope for what's possible and finding empowerment in small, daily actions that improve quality of life.Life on Wheels: Carrie shares how her power wheelchair helps her conserve energy and enables her to explore her environment in ways she wouldn't if she had to walk. The Importance of Art and Creativity: Living with rheumatic disease and adapting to life's changes and embracing creativity, such as publishing a coloring book for spoonies, as a means to thrive.Books, Media, and Disability Representation: Discussion of favorite authors, including Jenny Lawson and Lisa See, and their openness about health challenges; highlighting the importance of disability representation in books, movies, and other media.Encouragement for Thriving with Arthritis: "Keep on going" mindset and recognizing the value of being present and finding meaning in the life you have.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
Cheryl shares how the program has evolved based on participant feedback, offering flexible learning options including self-paced options for those who would like to learn the self management tools without the support group. Cheryl and Lauren also discuss the ways in which the program has offered essential education, community and realistic hope for people who previously felt lost and overwhelmed. They also share the support group schedule for 2025 and beyond!Episode at a glance:Introduction to the "Rheum to THRIVE" program: Cheryl shares the evolution and impact of her education and support program, designed for individuals with rheumatic disease.Iterative improvements: Cheryl discusses how the program has evolved over time based on participant feedback, adding more resources like PDFs and flexible learning options.Support group details: The program follows a consistent schedule, with 13 meetings each from February-June and September-January, and plans to expand with additional facilitators.Testimonials and feedback: Cheryl and Lauren discuss common positive feedback from people who've taken the course and/or joined the support groups.How to get involved: Cheryl explains how to join the support group or access the self-paced course, highlighting options for affordability.Program fit: Cheryl clarifies who the program is ideal for and who it might not be suitable for, focusing on managing symptoms and improving quality of life.Cheryl's guest role: Normally the interviewer, Cheryl steps out of her usual role as the host to be interviewed by Lauren, adding a twist of fun to the episode.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
Cheryl and Eileen stress the value of self-advocacy, working with a multidisciplinary team, and accessing reliable resources to navigate life with confidence and care.Episode at a glance:Mental Health and Support Groups: Cheryl and Eileen explore the transformative power of support groups, not only for attendees but also for those facilitating them. They discuss how mental health practices, like therapy and mindfulness, can supplement traditional care and provide emotional resilience.The Overlooked Impact of Sleep: Sleep disturbances, often dismissed as a symptom of rheumatic diseases, are addressed with actionable advice, including the need for sleep assessments to diagnose conditions like sleep apnea. Nutrition's Role in Managing Symptoms: Nutrition is examined as a key player in managing fatigue and overall well-being. Cheryl and Eileen discuss the benefits of a Mediterranean-style diet, the pitfalls of food shaming and misinformation, and how a positive, individualized approach to diet can support health without fostering food fearMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!Full Episode DetailsSee the full episode show notes including a transcript and video on the episode page here.
Carrie shares how she managed being a mom to two young kids and returned to her passion of running after undergoing two hip replacement surgeries. Her story emphasizes the importance of getting second opinions, persevering through setbacks, listening to her body and asking for help.Cheryl and Carrie discuss the challenges she faced and the mindset shifts that helped her return to running, including the importance of “staying in the mile you're in” and remembering that “the comeback is bigger than the setback.” This episode serves as important representation for those looking for stories of younger or middle aged people returning to their passions after joint replacement surgery.Episode at a glance:Carrie's Remarkable Journey: Surviving hip dysplasia, osteoarthritis, and two hip replacements to become a marathon runner. Carrie's Journey from seeking a “miracle cure” to accepting the need for surgeryThe importance of advocacy and second opinions: While most doctors said she could never run again, Carrier found one doctor who believed she could return to her passion post hip replacement surgery. Her surgeon had done over 6,000 surgeries for hip replacement, with only 3 patients ever returning to half marathons. She and her doctor worked together with the current (very small) set of data to decide what was best for her.The Complexity of Parenting Small Kids while in Pain: Carrie shares the physical and emotional hurdles she faced post-surgery, including the difficulty of explaining her pain and limitations with small children. How do you balance the goal of being honest without giving your children false hope?How Carrie recovered from Surgery: the power goal-setting, listening to her body, and pacing in Carrie's recovery.Community Support: Cheryl and Carrie discuss how a strong support system helped Carrie stay motivated and focused. Mindset Matters: How Carrie developed resilience and adaptability in the face of limitations. Takeaway Message: Embrace challenges and pursue passions despite obstacles! Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
Both Jed and Cheryl emphasize the importance of finding a supportive community and adjusting personal goals, as chronic illness often reshapes life plans. Cheryl also highlights the power of acceptance and resilience, and together they underscore the value of living fully within one's limitations, embracing good days, and finding joy in achievable dreams.Episode at a glance:Chronic Illness Challenges: Jed shares his experiences living with ankylosing spondylitis, a chronic inflammatory condition that impacts daily routines and long-term goals.Balancing Work and Health: Jed and Cheryl discuss the practical tools and strategies he uses to manage pain and fatigue while teaching, including compression gloves, heating pads, and a massage recliner.Finding Community Support: Jed and Cheryl discuss the importance of connecting with others who understand the chronic illness experience, providing both emotional support and practical advice.Redefining Goals and Expectations: Cheryl discusses how chronic illness reshapes personal and professional goals, encouraging resilience and adaptability.Acceptance and Joy in Small Wins: Both Jed and Cheryl emphasize embracing good days and celebrating small achievements, focusing on a fulfilling life within the boundaries of chronic illness.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
This is a re-release of Arthritis Life Podcast Episode 38, which pulled from a live webinar Cheryl presented in June 2021. To view the recording of the presentation which includes the slides, please go to bit.ly/flaretools (case sensitive). Episode at a glance:Updated intro from 2024: Cheryl introduces some additional resources for managing and preventing flare ups! Definition of a Flare-Up of a rheumatic disease (which includes ankylosing spondylitis, psoriatic arthritis and rheumatoid arthritis) What causes Flare-Ups, and why is it so important to discover our own unique flare triggers? Focus on Pain: tools to prevent pain and reduce existing painFocus on Fatigue: tools to prevent and reduce fatigue Focus on Stress: ways to decrease stress levels & cope with existing stress Focus on symptom tracking & Concluding Thoughts: how symptom tracking helps you discover your triggers Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Cheryl and Ayesha also delve into the devastating impact fatigue can have on their lives and share tips for managing and preventing fatigue. Above all, they urge listeners to validate their own feelings and aim for full acceptance, with the hope that brighter days are ahead.Episode at a glance:Ayesha's Diagnosis Journey: Ayesha opens up about her personal experience living with psoriatic arthritis and reflects on the role of race and gender on her treatment. She, highlights the importance of advocating for yourself, especially when navigating a chronic illness without a medical background.Advocacy for Black Women: As the founder of SistasWithPsoriasis and The PsoriaSis Collective, Ayesha has dedicated her platform to advocating for black women with psoriasis and psoriatic arthritis. She creates safe spaces for them to connect, support each other, and share their experiences.The Role of Fatigue: Ayesha and Cheryl reflect on what fatigue feels like for them and how it impacts them on a daily basis. Self-Care Tools: Ayesha's favorite self-care tool? Her yoga mat! She starts every day with a stretch, using it as a moment of peace and wellness.Empowering Words for Newly Diagnosed: She shares heartfelt advice for newly diagnosed individuals, stressing the importance of validating your own feelings and asserting yourself in medical situations.Words to Live By: Ayesha's mantra, centers on putting your spiritual self first, believing that everything else will fall into place. She also encourages full acceptance of life's challenges, reminding listeners that "the only way through is through."Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
Cheryl and Sarah also discuss practical strategies for managing RA symptoms while maintaining productivity, from pacing your workday to leaning on support systems. They also explore how to prioritize self-care and flexibility, so you can successfully lead a business without compromising your health. This episode offers valuable insights for anyone navigating business ownership with RA.Episode at a glance:Sarah's rheumatoid arthritis story: Sarah shared what it was like to get diagnosed in her 20s and overviews her up and down treatment journey over the years.How Sarah's Wedding Day Splint Led her to Develop a better joint support company: the story behind the popular Grace & Able joint support company!Balancing RA Symptoms with Entrepreneurship: Sarah shares tips for managing flare-ups, joint pain, and fatigue while meeting business demands.Practical Strategies for Productivity: Sarah shares tips including pacing during the workday, setting boundaries, and using tools to stay on top of tasks.Importance of Support System: Cheryl and Sarah discuss the role of team members, outsourcing, and community support in sustaining a business.Prioritizing Self-Care: Tips for integrating rest, stress management, and health routines into a busy schedule.All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode show notes:
After defining what remission is, Cheryl and Eileen take a deep dive into the importance of finding the right medical treatments and aiming for remission.They also dive into how small lifestyle changes, like setting boundaries and pacing yourself, can help you feel a sense of control over your symptoms.If you're feeling overwhelmed by your diagnosis or like remission will never be in your reach, their stories will remind you that you're not alone, and life can be fulfilling with the right approach.Disclosure: The “Talk Over RA” campaign is supported by Abbvie. Arthritis Life Podcast host Cheryl Crow receives no monetary compensation for this work, but Eileen, who is featured in this interview, does. Episode at a glance:Personal Journeys: Real stories from Cheryl and Eileen about their experiences with RA and how it has affected their lives.Hope for Remission: Insightful discussions on what remission means and the steps towards achieving it.Managing Symptoms: Tips on dealing with pain, fatigue, and emotional challenges associated with RA.Self-Care Strategies: Practical advice on pacing oneself, setting boundaries, and building a supportive community.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode show notes:Go to the episode page on the Arthritis Life Website: https://arthritis.theenthusiasticlife.com/2024/10/17/what-does-remission-mean-to-patients-with-eileen-davidson/
Cheryl and James also touch on the emotional ups and downs of living with RA, and share practical tips for managing symptoms and staying active. Ultimately, they emphasize the importance of community and connection in navigating life with RA.Episode at a glance:James' diagnosis story: James shares his journey to his rheumatoid arthritis and ankylosing spondylitis diagnosisTraveling the World with Arthritis: James shares tips for traveling with arthritis.Male Experience in Chronic Illness Community: James discusses his decision to share publicly and reflects on what it's like being a male figure in the online chronic illness community.Understanding the Emotional Impact: Cheryl and James reflect on the feelings of confusion and frustration that often accompany an RA diagnosis, emphasizing the need for self-compassion and patience during this transition.Practical Strategies for Management: Cheryl and James share practical tips on managing symptoms, including dietary changes, incorporating gentle exercise, and utilizing mindfulness practices to help improve overall well-being.Building a Support Network: The episode highlights the significance of connecting with others who understand the struggles of RA, discussing how forming a community can provide encouragement and shared experiences.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode show notes:Go to the episode page on the Arthritis Life Website: https://arthritis.theenthusiasticlife.com/2024/10/10/traveling-the-world-with-ra-and-as-james-hollens-story/
Episode at a glance:Jessica's Rheumatoid Arthritis Story: How Jessica got diagnosed and what her treatment journey has been likeExploring different treatment options: Jessica shares the ups and downs of trying different diets and lifestyle methods to manage RA, along with medicationsHumor as a Coping Mechanism: Jessica shares how she started improv and stand up comedy, and how humor helped her cope with rheumatoid arthritis. She also explores what it was like to have a joke about rheumatoid arthritis go viral on social media.Ways to Manage Stress: Strategies for managing stress, maintaining a positive mindset, and connecting with others who understand life with RA.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Elena also shares her favorite resources for living well with arthritis, including supportive footwear brands, arthritis gadgets, and inspirational books. Shes hares practical tips like finding the right shoes to support your joints, using dictation tools to reduce hand strain, and the importance of accepting that some pain may persist while still being able to live a fulfilling life. Throughout the conversation, Dr Elena and Cheryl emphasize the value of prioritizing what's important and showing up for family, work, and health—even when symptoms make things challenging. If you're newly diagnosed with RA, this episode offers comforting, actionable advice and a reminder that you're not alone in navigating this journey.DISCLAIMER FOR THIS EPISODE:The views expressed are those of the author and do not reflect the official policy or position of the US Air Force, Department of Defense or the US Government*Episode Themes:Personal Challenges and Advice: Elena shares her experience with managing rheumatoid arthritis and vasculitis and discusses practical tips for newly diagnosed individuals.Useful Products and Tools: Cheryl and Elena discuss favorite footwear brands and how they impact daily comfort and highlight dictation software as a game-changer for writing tasks.Living Well with Rheumatoid Arthritis: Elena emphasizes focusing on doing what's most important, even with some discomfort, to achieve a fulfilling life.Inspirational Mantras: Elena shares her favorite motivational sayings and discusses how this perspective helps her manage daily challenges.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Dr. Ma advises people with rheumatoid arthritis to start small, listen to their body, and use her "START" guide to gradually build an active routine that feels right for you. She also explains how the START guide is a useful tool for clinicians like physiotherapists and occupational therapists to support patients in developing sustainable strength training routines.Dr. Ma also shares her favorite mantra, "control the controllables and enjoy the enjoyables," which is a great reminder to focus on what you can manage and find joy in the little things. Plus, Cheryl and Dr. Ma dive into how having a supportive community—whether it's big or just a few people—can make a huge difference in thriving with RA! Episode Themes:Physical Activity with RA: Dr. Ma shares how you should listen to your body's needs and pace yourself to avoid overexertion. Physical activity is more than exercise; it's about reducing sedentary time and increasing daily activity.Kinesiologist's Approach to Movement: Using the 24-Hour Movement Guidelines, Dr. Ma talks about the balance of physical activity, sleep, and reducing sedentary behavior, all while accounting for the challenges posed by RA.The Importance of Community: Cheryl and Dr. Ma discuss how community is key for thriving with RA, but it looks different for everyone. Whether it's a large group, one-on-one support, or reaching out to a healthcare professional, connection makes a difference.Inspirational Mantra: Dr. Ma shares her favorite saying: "Control the controllables and enjoy the enjoyables." Focus on what you can manage and find joy in the present moment.Empowering Mindset: Cheryl and Dr. Ma discuss how RA management is about becoming your own scientist and finding what works best for you.Mental Shift on Exercise: Cheryl and Dr. Ma explore the idea of reframing exercise as something empowering, rather than just a necessity, and how staying active can contribute to feeling more in control of your health.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.For full episode details include a transcript and video:Go to the episode page on the Arthritis Life Website.
Through his experiences, Dr. Kaleb offers practical advice on navigating life with rheumatoid arthritis, focusing on self-management strategies like getting enough rest and using ergonomic tools.He and Cheryl also dive into pain management, discussing evolving research on the potential benefits of cannabis. Dr. Kaleb's personal insights into balancing work and life offer hope for finding purpose and joy despite the challenges of living with arthritis. Together, they emphasize the importance of living meaningfully through activities like board games, time with family, and staying connected to a supportive community.Episode Themes:Personal Experiences and Resilience: Dr. Kaleb's shares his personal journey with juvenile idiopathic arthritis, from diagnosis at age 3 to today. Self-Management & Lifestyle: Cheryl & Dr. Kaleb discuss strategies for managing physical pain through ergonomic tools, proper footwear, and weight management.Importance of Sleep: The critical role of good sleep in managing chronic illness, including the impact of sleep apnea and the benefits of CPAP therapy.Managing a dual role of patient and researcher: Dr. Kaleb reflects on his decision to “go public” with his diagnosis of JIA after being known as an arthritis researcher, and discusses the pros and cons of sharing your story publiclyCannabis and Pain Management: The evolving research and patient experiences with cannabis as a tool for managing chronic pain, despite its legal and research limitations.Misinformation and Evidence-Based Care: The challenge of navigating biased or incomplete information about treatments and the importance of relying on evidence-based medicine.Arthritis Research and the Role of Learning from the Patient's lived experience: Dr Kaleb explains the importance of the FORWARD databank.com for ongoing research to improve patient outcomes. Entertainment and Personal Interests: The role of hobbies, such as board games and movies, in providing enjoyment and coping with chronic illness.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.For full episode details include a transcript and video:Go to the episode page on the Arthritis Life Website.
Sonia talks about how daily gratitude, yoga, medications, and the support of groups like Rheum to THRIVE have helped her pursue joy amidst the challenges of rheumatoid arthritis (RA), Graves' disease and other chronic conditions. Sonia shares how the Rheum to THRIVE support group provided her with the courage to be vulnerable and set boundaries. Cheryl and Sonia reflect on how these groups become sacred spaces where individuals can fully engage with their emotions, be witnessed without judgment, and sometimes find unexpected moments of humor and joy amidst the challenges.The discussion offers valuable tips and relatable moments for anyone living with RA, with gentle reminders to take things one day at a time. Overall, Cheryl and Sonia encourage you to embrace acceptance and community so you can live a more empowered and fulfilling life with chronic illness.Themes of the EpisodeSelf-Acceptance and Grace: Sonia emphasizes the importance of self-compassion, practicing grace, and ease with oneself, especially in dealing with the uncertainties and challenges of life with RA.The Power of Social Media and Community Support: Cheryl talks about using social media as a tool for patient education and support, while Sonia highlights the significance of connecting with others, particularly through the Rheum to THRIVE support group, to share experiences and support one another.Yoga, Mindfulness and Embracing the Present: Sonia shares the pivotal role yoga had in transforming her relationship to her body and helping her embrace th represent moment.Coping with Rheumatoid Arthritis (RA) Through Humor: Both Cheryl and Sonia discuss the role of humor in coping with the challenges of RA, acknowledging that while it may not resonate with everyone, it provides them with a sense of normalcy and relief.Daily Tools and Adaptations for Living with RA: The conversation touches on practical tools like ring splints, compression gloves, and supportive pillows that help manage the physical challenges of RA.Sharing Personal Mantras and Wisdom: Both Cheryl and Sonia share how gratitude practices and self-forgiveness help them live more peacefully with rheumatoid arthritis.The Impact of RA on Daily Life and Relationships: The conversation also explores how RA affects daily activities, relationships, and the emotional aspects of living with a chronic illness.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.For full episode details include a transcript and video:Go to the episode page on the Arthritis Life Website.
In this episode, Cheryl Crow and Dr. Liana Fraenkel dive into the crucial concept of "Shared Decision Making" (SDM) in rheumatoid arthritis care. SDM is a collaborative approach where patients and doctors work together to develop a treatment plan. It empowers patients to express their preferences and values, while doctors listen actively and consider these when recommending treatments.The discussion also touches on the role of education in SDM, especially when it comes to understanding the pros and cons of different medications. Cheryl and Dr. Fraenkel address medication hesitancy, highlighting research that shows how patients benefit from hearing not only from their doctors but also from others who have firsthand experience with rheumatic disease medications.Finally, Dr. Fraenkel and Cheryl emphasize the importance of ongoing research in rheumatology and the need to strengthen the rheumatology workforce, given the current shortage. They explore the efforts of the Rheumatology Research Foundation and discuss ways for patients to get involved in supporting these vital initiatives.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a video and transcript:Go to the episode page on the Arthritis Life Website.
In this episode, Maggie shares valuable insights from life with axial spondyloarthritis, sjogren's, osteoarthritis, hypermobility, migraine, and POTS. She also shares her treatment journey which she divides into a “discovery phase, treatment phase, and tinkering phase.”Maggie and Cheryl discuss practical advice for managing multiple chronic illnesses, including the importance of social support and finding joy in daily experiences. They also discuss their best coping skills for times when managing your health feels like “orchestrating a circus.” Ultimately, Maggie and Cheryl discuss the importance of savoring life's moments and adapting to new ways of living, rather than trying solely to return to a pre-illness lifestyle.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a video and transcript:Go to the episode page on the Arthritis Life Website.
Back in January 2021, I shared the eight most important things that loved ones should know, so they can best support people with autoimmune arthritis. This episode includes messages and insights from twenty-eight other patients!Today, I'm re-releasing this episode with some additional insights I've gained after leading patient support and self-management groups over the last 4 years. Did I miss anything? Let me know in the comments!Episode at a glance:One – We want you to learn what the disease is and isn't.Two – The fatigue can be just as bad as the pain.Three – It doesn't just affect the body – it also affects the mind and emotions.Four – It affects EACH person differently.Five – Daily symptoms are often unpredictable.Six – We want credit for how hard we're fighting, even when we seem “normal.”Seven – Sometimes we need problem solving, other times we need empathy.Eight – Managing the disease itself is a job that takes time and energy.Bonus point: Take care of YOUR needs as the caregiver/friendConcluding thoughtsMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details:For a full transcript of this episode and detailed show notes, go to the episode page on the Arthritis Life website.
Cheryl and Jen share exciting trends in rheumatology research that will help improve quality of life and develop better targeted treatments for rheumatic disease. They also discuss the importance of involving patients at all levels of research, and shared simple ways that listeners can get involved. Additionally, Cheryl and Jen reflected on the importance of social support in their personal journeys living with rheumatoid arthritis, and the importance of support groups in navigating life with chronic conditions.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a video and transcript:Go to the episode page on the Arthritis Life Website.
In this episode, Stasha shares her diagnosis journey for rheumatoid arthritis and reflects on what it was like being a parent to small children while learning how to adapt to rheumatoid arthritis. Stasha also shares how her quest to merge science-based and natural methods led her to starting a blog. Cheryl and Stasha reflect on the role “obstinance” or stubbornness has played, and reflect on the therapeutic benefits of humor.They also discuss how they view assistive devices in a positive light, and discuss how their identities have been affected by chronic illness.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a video and transcript:Go to the episode page on the Arthritis Life Website.
Have you ever read a love story that features someone with chronic illness? In this episode, author Marissa Eller shares how living with RA led her to write her debut young adult (YA) romantic comedy book "Joined at the Joints." She and Cheryl discuss the importance of authentic representation in books and media, particularly for those with invisible disabilities.Marissa also shares what it's like to be an author with RA, including strategies to accommodate her needs and how writing can be a therapeutic form of expression. The conversation concludes with a discussion about the best advice for the newly diagnosed.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a video and transcript:Go to the episode page on the Arthritis Life website.
Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!For full episode details:Go to the episode page on the Arthritis Life website for full show notes plus a full transcript, video and more!
In this episode, Katie reflects on the crucial role that parental and patient advocacy played in her her journey to a diagnosis of juvenile idiopathic arthritis (JIA). She also shares her college experience, and discusses the roles that comedy and humor have played in helping her cope. Cheryl and Katie express the importance of accepting the need for assistive devices, setting boundaries, believing in oneself, prioritizing needs, and having a support system to thrive with chronic illness.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!Episode at a glance:Kate's Diagnosis Story at age 15: Katie shares her journey of being an active child and being diagnosed juvenile rheumatoid arthritis (juvenile idiopathic arthritis) at age 15 after experiencing symptoms for an extended period of time that were initially dismissed as “growing pains”.Advocacy: Katie emphasizes the crucial role her mother played in advocating for her during medical appointments, highlighting the importance of having a supportive network. Katie shares advice on self-advocacy, encouraging patients to set firm boundaries and prioritize their needs, even if it means challenging expectations.Support: The conversation emphasizes community and connection, and the benefit of having someone in your corner to help advocate with you.Coping Strategies: Practical tips are shared, including the use of specialized tools and gadgets designed to make daily tasks easier for individuals with arthritis. Katie also shares her experience with medical marijuana.Comedy: Katie shares the importance of comedy in her life, and how it helps her cope with her diagnosis and spread awareness of it.Accommodations: Katie and Cheryl discuss access to accommodations, particularly in educational settings, such as extended test time and speech-to-text tools for students with chronic illnesses.Living Authentically: Katie advocates for a balanced approach of embracing realism while maintaining a positive outlook, acknowledging both the challenges and opportunities for growth that come with chronic illness.Advice to Newly Diagnosed Patients: Carry on, stick up for yourself, and believe in yourself. Write down three things that made you proud each day.For full episode details:Go to the episode page on the Arthritis Life website for full show notes plus a full transcript, video and more!
Cheryl, Dr. Yu and Dr. Feldman share their patient experiences and exploring problems with current healthcare systems. They then share how these problems led them to form creative patient programs and services. Cheryl shares the origin story for her Rheum to THRIVE program, and Dr. Yu and Dr. Feldman share how they created Rheumission, a virtual first integrative Rheumatology and Lifestyle clinic for people living with autoimmune disease. Overall, our passion for reimagining autoimmune care shines through as we highlight gaps in current treatment paradigms, and outline visions for a more inclusive, holistic and effective healthcare model that is proactive versus reactive. The discussion concludes with an exploration of cutting-edge advancements in telemedicine and personalized medicine, and all speakers share their best advice for newly diagnosed patients. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Episode at a Glance:Importance of personalized care: we discuss the importance of personalized treatment plans tailored to individual needs, rather than one size fits all solutions.Revolutionizing autoimmune care: we explore the potential positive impact of integrating biotech, digital health, and virtual-first approaches to enhance research, diagnostics, and treatment, with Rheumission as an example.Multidisciplinary approach: we highlight the importance of team-based care in rheumatology and autoimmune care, where you can see not only a rheumatologist and rheumatology nurse but also get care from a multidisciplinary team (including registered dietitians, mental health therapists, physical and occupational therapists, etc).Taking a holistic approach: we explore the interconnectedness of physical and mental health, addressing lifestyle factors, stress management, and environmental influences.Exploring Mental Health: The conversation highlights the well-documented correlation between autoimmune diseases and mental health issues like anxiety and depression.Why is accessibility important: we discuss the problem of long waiting times for rheumatology appointments and possible solutions.Advocacy for patient involvement: Dr. Bonnie emphasizes the importance of empowering patients to take charge of their health and actively participate in decision-making processes.For full episode details:Go to the episode page on the Arthritis Life website for full show notes plus a full transcript, video and more!
After facing skepticism from some medical professionals who doubted her ability to run, Gretchen defied expectations and has completed over 100 half marathons, all while raising money and awareness for autoimmune causes. She and Cheryl also discuss the importance of self compassion in their journeys with chronic autoimmune disease. Gretchen shares why she resonates with progress over perfection and encourages others to be gentle with themselves while navigating life with autoimmune diseases. Gretchen shares how she found creative ways to raise awareness about autoimmune diseases, such as running two half-marathons on two coasts in two days to raise funds for autoimmune research at the Benaroya Research Institute. Through her experiences, Gretchen emphasizes the importance of perseverance, self-advocacy, and building a supportive community. By sharing her story and promoting resilience, Gretchen aims to inspire hope and empower individuals to find purpose and joy in their own health journeys. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcript and video:Go to the episode page on the Arthritis Life Website
On episode 125, Paulina Buryzynska shares how self-compassion and mindfulness help her thrive with rheumatoid arthritis. She also highlights the importance of reconnecting with her body after experiencing a period of dissociation as a coping mechanism for pain. Cheryl and Paulina discuss the power of non-judgmental awareness and loving curiosity in navigating emotions and thoughts, as well as acceptance. They also emphasize seeking support while navigating the challenges of chronic illness. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details plus a full transcript and video:See the episode page on the Arthritis Life website.
Dr Dave & Dr Campbell answer Cheryl's burning questions about long COVID, vaccine efficacy and safety for people with autoimmune conditions, and potential links between autoimmunity and long COVID. They also talk about cutting edge research and new therapies including CAR T-cell therapy.Dr. Campbell encourages participation in research studies to better understand these complex issues. Dr. Dave emphasizes the need for precision medicine approaches in treating autoimmune diseases like RA, where individualized treatment plans can be tailored to each patient's unique needs. Despite the challenges posed by autoimmune diseases and COVID-19, they express optimism about the future of treatment options and the ongoing medical advancements.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcript & videoGo to the episode post on the Arthritis Life Website (page coming soon)!
Through sharing her own story publicly, Catherine learned the importance of disability representation and advocacy for young people. She also delves into why it is crucial to include the voices of young adults in the research and advocacy process. Cheryl and Catherine explore the process of dismantling their own internalized ableism and challenging societal norms around what constitutes a "normal" life. They also challenge the idea that disability is necessarily a “bad” word. They emphasize the importance of self-care and finding joy in everyday activities, even if they require accommodation. For Catherine, participating in activities like surfing, albeit in an accommodated manner, brings fulfillment and contributes to her definition of living a good life with chronic illness. Throughout the conversation, Cheryl and Catherine underscore the values of self-advocacy, self-acceptance, and finding happiness on one's own terms.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode detailsFor full episode details including hyperlinks to things discussed on this episode, go to the episode page on the Arthritis Life website.
Trigger warning: orthorexia / eating disorders; fear of foodsIn Episode 122, Ray shares the shock and emotional turmoil he experienced upon receiving his diagnoses of rheumatoid arthritis (RA), ankylosing spondylitis (AS), and osteoarthritis (OA). He described the initial denial he felt and the process of coming to terms with his diagnoses, acknowledging the emotional toll it took on him and his family. Cheryl and Ray discuss coping strategies, the role of social media, and finding a supportive community online. He also explains the importance of advocating for oneself and seeking out reliable information and resources, taking a proactive approach to managing his conditions, and finding the right balance between pushing through pain and listening to his body's needs.Episode at a glance:Diagnosis Story: Ray describes his diagnoses and experience living with rheumatoid arthritis (RA), ankylosing spondylitis (AS), and osteoarthritis (OA).Navigating Multiple Conditions: Ray explains the complexities of living with multiple chronic illnesses, including challenges related to symptom management, accessing healthcare, and adjusting to lifestyle changes.Social Support and Connection: Cheryl and Ray discuss the significance of social support networks, in providing connection and understanding for individuals living with rheumatic diseases.Self-Advocacy and Empowerment: Ray emphasizes the importance of self-advocacy and seeking out reliable information and resources to empower oneself in managing chronic illnessesAcceptance and Resilience: Ray shares insights into his journey from feelings of denial to acceptance and living a fulfilling life despite health challenges.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcript & video:Go to the episode page (coming soon) on the Arthritis Life website.