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This powerful and informative script is designed for My Story Living with Lupus during Lupus Awareness Month. In it, host Susan Hendrix reflects on her personal experience living with systemic lupus erythematosus while educating listeners about the complexities of the disease. The script includes clear, reliable information about lupus, addresses common misconceptions, and brings attention to an often-ignored reality—the severe impact lupus has on African American men. With a compassionate tone and a call to action, the script encourages awareness, advocacy, and inclusive conversation around lupus.
Ryan Gorman hosts an iHeartRadio nationwide special featuring Albert T. Roy, President & CEO of the Lupus Research Alliance. Albert T. Roy joins the show following Lupus Awareness Month to discuss the disease, including progress in diagnosing and treating Lupus, along with research currently underway to find a cure. Also, Eleni Towns, Director of No Kid Hungry Campaigns, checks in to raise awareness of programs available during the summer months to ensure children in need receive the meals and nutrition they get throughout the school year.
It's been a while since I posted an episode, and this one is particularly personal and special to me. In recognition of Lupus Awareness Month, I had a heartfelt conversation on Instagram with Holistic Nutritionist and Lupus Warrior, Genny Mack. We discuss our diagnoses, our connections, and our journeys toward living well with this complex disease. To find out more about Genny and her work, please see the links below: Genny's website Genny's IG (she has so many inspiring posts)
AHN's Dr. Tanmayee Bichile calls in for their weekly segment with Larry. Dr. Tanmayee talks about lupus and helps drive awareness of this chronic autoimmune disease
So much tea on the first day of Lupus awareness month. Eye exam, BP 70/60 lord lord lord what a day.
In honor of Lupus Awareness Month and Lupus Day of Action in New York City, we're joined by New York City Council Member Shahana Hanif. Council Member Hanif shares about her life as a lupus patient and how her condition informs her work as a member of the city council. She underscores the importance of accessibility within New York City and the idea of creating infrastructure to help patients with chronic conditions live and age in peace. Among the highlights in this episode: 00:41: Steven Newmark, Chief of Policy at GHLF, acknowledges Earth Day and discusses the contributions of plant life to medicine, highlighting how nature aids in treating various diseases 01:26: Zoe Rothblatt, Director of Community Outreach at GHLF, discusses the topic of biologic therapies and their potential use in treating COVID-19 by targeting the immune response 02:46: Council Member Hanif discusses her personal journey with lupus, starting with her symptoms at age 17 and her eventual diagnosis during an emergency room visit, which significantly impacted her life 05:45: Council Member Hanif reflects on her initial awareness of lupus through popular culture and the lack of broader discussions on chronic illnesses in her community, which motivated her to advocate openly about her condition 07:57: Steven asks Council Member Hanif about the transition from emergency care to regular treatment and how she navigated the health care system to find appropriate care despite initial challenges 11:33: Council Member Hanif explains how her personal experiences with lupus and health care barriers influenced her political career and advocacy efforts, especially concerning city infrastructure and public services to accommodate people with disabilities 14:57: Steven emphasizes the need for policies that support aging and accessibility in city environments 15:46: Council Member Hanif shares her ongoing commitment to lupus advocacy, including her participation in national lobby days and her efforts to ensure city legislation considers the needs of people with chronic illnesses 17:43: What our hosts learned from this episode Contact Our Hosts Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Director of Community Outreach at GHLF: zrothblatt@ghlf.org A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.
Season THREE Episode TWELVE of the Your Story Our Fight® podcast welcomes Seda Bryant. Seda Bryant is an overcomer, mother, graphic designer, storyteller & influencer. She's using her gifts to turn pain into purpose. She created the first digital stickers for all social media platforms for stories, video reels, Tik Toks & Snaps for Lupus Awareness Month, World Lupus Day and to spread lupus awareness every day. They have amassed 2 million uses and views in less than a year. On Instagram @OvercomeLupus, her insightful posts provoke conversation and community for Lupus Warriors, by sharing stories while elevating awareness and promoting self-advocacy & discovery to thrive and overcome lupus.
Lupus awareness month is and informal holiday starting in 1977. It honors those who lost the fight to Lupus and those who fight daily.
Code Brown- tales from a day in the life of a healthcare worker
This is a special episode to celebrate Lupus Awareness Month and raise awareness about this disease. My guest this episode is a Lupus Ambassador who shares some great information as well as some good reference websites for further information. send us your stories @ thecodebrownpodcast@gmail.comfind us on Facebooklisten to us on: Spotify, iHeart Radio, Apple Podcasts, Google Podcasts, Amazon Music and Podchaser.
May is Lupus Awareness Month!! Across the planet, people are putting on purple to spread the word about the autoimmune disease. Lupus affects women, especially women of color, most often between the ages of 15 to 44 years old. Symptoms of lupus include extreme fatigue, hair loss, the mylar rash (also called the butterfly rash across the face), joint pain, swelling in hands and feet, and fevers. In the metro-Detroit area individuals living with and their families find support, encouragement and inspiration as Lupus Warriors. Through Lupus Detroit, a non-profit organization founded by Sharon Harris Warriors find more than support, they find family. Lupus Detroit hosts regular support meetings, offers financial support and holds an annual walk and gala each year. Johnetta Smith is not only a member of Lupus Detroit, but she is the surviving parent of not one but two Lupus Warriors - her daughters - who were taken too soon by this disease that still has no cure. This Lupus Warrior Mom continues her daughters' legacy by spreading awareness about Lupus while supporting the organization .
In honour of Canadian Mental Health Week and Lupus Awareness Month, tune in to this week's episode as Krissy Stephenson, a successful business owner and chronic illness warrior, shares her journey of living with Rheumatoid Arthritis (RA) and Lupus. Krissy discusses the challenges of finding a good rheumatologist who understands the complexities of her conditions, her medication journey, and her experience with pregnancy and RA. Krissy also introduces us to the Spoon Theory, a powerful metaphor used by those with chronic illness to explain their limited energy each day. She talks about how she allocates responsibilities as a mother and entrepreneur and discusses her mental health journey with a therapist who also has Lupus. Join us as we explore Krissy's inspiring story of perseverance, hope, and resilience, including her experience as a kindergarten teacher and her successful Direct Superior Hip Replacement surgery that changed her life. Don't miss this week's episode of Take a Pain Check. Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Check out Krissy's socials: Instagram: @chronicallyillkrissy Growing Pains, Copyright, 2018, Alessia Cara
3:32 Labiotech news5:33 Lupus interviewThis week's podcast is sponsored by Lonza.May is Lupus Awareness Month, and to talk about lupus with us this week on the podcast are Katherine Tran, senior global market development & marketing manager of the proteomics division at SCIEX, and Allan Stensballe, associate professor, Department of Health Science and Technology and associate professor, The Faculty of Medicine, at Aalborg Universitet in Denmark.Each May, The Lupus Foundation of America gathers the lupus community to make lupus visible.Lupus is a chronic autoimmune disease where the immune system can't tell the difference between healthy tissues and foreign invaders. This can result in inflammation, pain, and damage to any organ system in the body. Common symptoms include extreme fatigue, debilitating joint pain, skin rashes, and swelling. While lupus can affect anyone, people with lupus overwhelmingly consist of women and disproportionately impacts certain racial and ethnic backgrounds, including Black/African-American, Hispanic/Latino, Asian-American and Pacific Islander.Due to the mysterious and elusive nature of this disease, many of the symptoms of lupus aren't always visible, and can often result in years of misdiagnosis and inadequate treatment. And, because many of its symptoms and impact aren't always seen, it can lead to those living with lupus to feel misunderstood and isolated.
WBZ's Jordan Rich joins others in spreading the word about Lupus Awareness Month.
A little on lupus awareness month & lupus. Help spread awareness
It's right around the corner. Starting May 1st is Lupus Awarness Month. Let us show up with pride wearing our purple. For all the warriors who have Lupus and for those who may have succumbed to this insidious disease this and every month is to honor you
GET MY FREE INSTANT POT COOKBOOK: https://www.chefaj.com/instapot-download ------------------------------------------------------------------------------------ MY LATEST BESTSELLING BOOK: https://www.amazon.com/dp/1570674086?tag=onamzchefajsh-20&linkCode=ssc&creativeASIN=1570674086&asc_item-id=amzn1.ideas.1GNPDCAG4A86S ----------------------------------------------------------------------------------- Disclaimer: This podcast does not provide medical advice. The content of this podcast is provided for informational or educational purposes only. It is not intended to be a substitute for informed medical advice or care. You should not use this information to diagnose or treat any health issue without consulting your doctor. Always seek medical advice before making any lifestyle changes. ------------------------------------------------------------------------------------ Dr. Goldner does. LIVE Q & A every Wednesday at 12:30pm PACIFIC time on all 3 of her social media channels: On Facebook: https://www.facebook.com/DrGoldner On Instagram: https://www.instagram.com/goodbyelupus/ on Youtube @BrookeGoldnerMD Learn how to be healthy and happy with Dr. Brooke Goldner, board certified physician and bestselling author of Goodbye Lupus and Goodbye Autoimmune Disease, and Lupus Conqueror herself, Lupus-free for 17 years and counting!
Let's talk about lupus... Lupus is not a frequently occurring disease if we are to compare it with the likes of diabetes and hypertension. But just because it is not as frequent as the others, doesn't mean that we shouldn't take it as something serious. If you are not prepared for its possible effects, it could definitely cause you problems. Did you know that there are about 1.5 Americans diagnosed with lupus, and there are a total of around 5 million cases worldwide? The concerning thing about it is that 90% of these patients are women, and African-American women are three times more likely to have been diagnosed with this disease than white women. Fortunately, while the actual causes of lupus are still unknown, there are available medications that help manage its symptoms. In this episode, Dr. Berry talks all about lupus and discusses what happens to the immune system of those who have it. He also puts emphasis on how it could affect basically all of the internal organs as he reassures that while there is still no answer to what really causes it, there are ways to trace lupus and treatment options to help those who have been diagnosed. Why you need to check out this episode: Learn about the nature of lupus and how it affects one's health; Understand how severe the complications brought by lupus could get and why it should never be seen as anything despite it being an infrequent disease; and Find out what signs and symptoms you should look out for if you suspect that you have lupus. “In the case of lupus, something happens where your own immune system doesn't recognize that the foreign body it's trying to attack is its actual self.” – Dr. Berry Pierre Notable Quotes: “Lupus is when your immune system says ‘Hey, you know what? I don't recognize myself, so I'm going to turn on myself.” – Dr. Berry Pierre Sign up at www.listentodrberry.com to join the mailing list. Remember to subscribe to the podcast and share the episode with a friend or family member. Listen on Apple Podcast, Google Play, Stitcher, Soundcloud, iHeartRadio, and Spotify Links/Resources: Mayo Clinic - Lupus Diagnosis and Treatment What is Lupus?
During the pandemic, Haley and her boyfriend went to the grocery store and a few minutes later, she fell to the ground. On this week's episode, Haley Crespo joins Natasha to discuss her journey with lupus and Evan's syndrome. Haley starts off the episode by discussing how her boyfriend was her main support system through her diagnosis story. Consequently, Haley discusses her symptoms and how her lupus varies from others in the sense that it effects only her blood. Natasha and Haley bond over not only Selena Gomez being an amazing lupus role model, but how they both don't have the typical rheumatic disease symptoms, like a fever or rash. Additionally, Haley discusses her experiences being on blood thinners and the difference between the location of her injection including how that made her feel. She talks about growing up quickly and being given responsibilities from her parents once she was diagnosed. Finally, the episodes ends with Haley talking about her collaboration with Lupus Canada where she created her jewellery shop to raise awareness for Lupus Awareness Month this past May — Haley Made. Check out Haley's socials: Instagram @haleymadeshop + TikTok @haleymadeshop Check out our socials: Website: https://www.takeapaincheck.ca/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
Season 3 Ep 11. Special guest Tanya The Lupus Dietitian speaks to us about lupus, food and her path to a healthier life.
Tweet 1: There's a Monkeypox outbreak in 16 countriesTweet 2: Is Young Thug done for or are people just weighing in on things they have no idea about?Tweet 3: Black people who date white people shouldn't be allowed to say the n-word. Tweet 4: Are Lori Harvey's workout regimen and diet extreme?
Ron Rocca, President and CEO of Exagen, discusses Lupus Awareness Month.
May is National Lupus Awareness Month: Hear from both a patient and an expert about what Lupus is and who it affects.Support this podcast at — https://redcircle.com/local-news-live-daily/donationsAdvertising Inquiries: https://redcircle.com/brands
Hey Tribe! It is Lupus Awareness Month and this week I sat down with my sisterfriend Michelle Jones, owner of Essence of Michelle Boutique to discuss what lupus is and how sacred self-care should be a daily practice utilized by all. Don't forget to share this episode and grab an item from Michelle's boutique. Catch up with Michelle here: Facebook: https://www.facebook.com/Accessoriesofessenceofmichelle/ Instagram: essence_of_michelle Website: www.essenceofmichele.com Email: boutique@essenceofmichelle.com Lupus Awareness: Pause for the Cause Campaign https://www.essenceofmichelle.com/collections/lupus-awareness-pause-for-the-cause-campaign Keep up with me here: Join The Date Night Club: www.thedatethyselfcoach.com/plans-pricing Join our email list: www.thedatethyselfcoach.com Email me: info@thedatethyselfcoach.com Follow me on Instagram: www.instagram.com/thedatethyselfcoach Follow me on Facebook: www.facebook.com/thedatethyselfcoach --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/thedatethyselfcoach/support
May is Lupus Awareness Month! In this episode, RP interviews Lupus Warrior Dianne Samu- Graves. Tune in as Dianne shares her journey with Lupus and how she has taken the disease by the horns and is living her best life.
Lets chat about Lupus and fibro.
May is Lupus Awareness Month and we are honored to celebrate another Lupus Warrior. Diagnosed at age 19, Christina Hayes has more than survived her diagnosis but thrived becoming an advocate not only for other Lupus Warriors but for other social justice issues as well. Now in her 30's this mother advocates for paid sick leave with the Mothering Justice organization which has allowed her to tell her story of navigating employment while dealing with Lupus. She founded "The Christina Project" to provide inspiration, comfort and care to patients with Lupus and Lupus related conditions that are hospitalized and their families. Love and support during hospital stays are imperative for healing and recovery which brighten the lives of the Lupus Warriors and their family. She is also active in and a big supporter of Lupus Detroit - A nonprofit dedicated to eliminating lupus as a health problem through advocacy & service - attending monthly support groups, the annual gala, and annual Lupus Walk. She is another amazing LUPUS WARRIOR
Dr. Susan Manzi from Allegheny Health Network provides information on the inflammatory disease.
Special guest: Belinda Birnbaum, MD, Rheumatologist at Bryn Mawr Medical Specialists. Medical degree from University of Rochester School of Medicine and Dentistry. Member of American College of Rheumatology and lPhiladelphia Rheumatism Society.. Previous positions : Temple University; Assistant Professor of Rheumatology 2005-2007 and The University of Pennsylvania; Assistant Professor of Rheumatology 2008-2016. Affiliated with Lupus Foundation of America. Special guest: Cheri M. Perron, Chair of the Board of Directors 2022. Cheri Perron, of Philadelphia, PA, has been a volunteer for the Lupus Foundation of America, Philadelphia Tri-State Chapter for more than 20 years. She is chair emeritus of the Chapter Board of Directors and has previously served in the role of Board Chair, Vice Chair and Secretary. Cher is a Chapter Ambassador, advocate, SLESH (SLE Self Help Course) facilitator, and Peer Mentor.. Cheri was diagnosed with lupus in 1994. Lupus Foundation of America: http://ww.lupus.org Special guest: Dr. DeAnna Baker Frost is an adult rheumatologist and physician-scientist. A native of Baltimore, MD, she completed a combined M.D. and Ph.D. degree program at the Medical University of South Carolina (MUSC) in 2012 and an Internal Medicine residency at Duke University in 2014. Upon completion of her residency, she became a certified American Board of Internal Medicine (ABIM) physician and returned to MUSC as an adult rheumatology fellow in the ABIM physician-scientist research pathway. Dr. Baker Frost was chosen as the Chief Rheumatology Fellow in 2017 and an American College of Rheumatology Distinguished Fellow in 2018. She then joined faculty at MUSC as an Assistant Professor in 2018 and became an ABIM-certified adult rheumatologist
Season 3: Ep 9: One on One with artist extraordinaire DeeNa Adair as she speaks about her experience with Lupus, her artist and the future.
About Marisa: Marisa Zeppieri is a speaker, author of the new memoir CHRONICALLY FABULOUS, and founder of the NY nonprofit and social community, LupusChick.com. LupusChick serves to educate and empower those living with lupus and other autoimmune diseases and chronic illnesses. The community reaches almost 400K people per month, and was the launching point for CHRONICALLY FABULOUS, which inspires readers to continue striving toward their goals and not let a diagnosis or disability define who they are. Marisa is a former health journalist and Mrs. New York, and has been a fierce advocate and speaker in the world of chronic illness for over 13 years. She has spoken for and acted as a consultant for Astra Zeneca, GlaxoSmithKline, Novartis and Janssen Pharmaceuticals, and has served as the keynote speaker for UMASS Med School, Simmons College, and Patients Like Me. She currently serves as a contractor for The Department of Defense's Lupus Research Program, the host of the Lupus Foundation of New England's TILLY series, and her LupusChick story is featured as the 35th chapter of Lady Gaga's new Anthology, CHANNEL KINDNESS. She is also always exhausted and loves to nap ;)
Oh, Lupus, you special autoimmune disease. Most people have heard of Lupus, but few know exactly what it is. That's because Lupus is great at mimicking so many other rheumatological diseases that it tends to be a unique experience for every patient. There are some tests for it, but those tests aren't the be-all-end-all for diagnosis. There's also the misconception that all Lupus patients die and can't live normal lives. Not true. So we end May with our Lupus Awareness Month episode, where we'll go through all the reasons Lupus is called the great imitator by the medical community and why it's so hard for Lupus patients to get a diagnosis and what it means once you are diagnosed. Since Nicole has spent the last 18 years with her diagnosis, she'll talk about the road to getting diagnosed, what treatments helped her and what other treatments are out there, and what it's like living with Lupus. And yes, there is a life to be lived even if you have Lupus. We encourage everyone to take a listen, because Lupus often doesn't come alone. It comes in pairs with other disorders. So while you may not have Lupus, you may have one of the comorbidities that come with Lupus. Or you may have some of the signs that you have Lupus, too. Or maybe you have a friend who has Lupus and you want to know more. Like always, we thank you for listening. We also encourage you to check out our My Chronic Spoonful Life Planner where you can track everything going on with your chronic illness. It comes in a downloadable form that you can print, a digital form you can use in apps like GoodNotes and Notability, or a quarterly hard copy. Have a good week everyone!
On this episode, Che'lyn will have a conversation with her friend/Soror, April R. Smith. April will share her professional journey as well as her personal journey navigating personal grief/loss, grappling with Lupus and other health challenges while still managing career/family responsibilities. As a African American woman of faith, she unpacks her personal struggles with diagnoses, treatment and self-advocacy in medical spaces. She also offers insights to others navigating Lupus or other chronic illnesses. For more information: www.lupus.org www.lupusresearch.org www.rarediseases.org www.lupuscorner.com www.Lupuspickup.org www.cdc.gov Connect with me: InteriorMotivespodcast@gmail.com Remember to rate, review and subscribe. Thank you listeners for your continued support. This episode is in support of Lupus Awareness Month and ongoing research. Happy Mental Health Awareness Month
We look at the racial disparity in who was given curfew tickets during last summer’s racial justice protests in Wisconsin. Then, for Lupus Awareness Month, we speak with someone who’s been living with the disease for a decade. Plus, get some tips on how to protect warm weather plants during these cool, spring nights.
May is Lupus Awareness Month!In this bonus episode, Bliss Landon and Kathy Kaehler bring attention to Lupus Awareness Month. They talk to Brooke Goldner M.D., founder of Goodbye Lupus, and learn how Brooke conquered Lupus with the help of her husband and by changing her diet.
Special Guests : Wambui Machua, M.D., earned her bachelor’s degree in microbiology and molecular genetics from Oklahoma State University and her medical degree from American University of Integrative Sciences/University of Sint Eustatius School of Medicine, Dutch Caribbean. She completed her residency in internal medicine at Morehouse School of Medicine. Prior to joining Piedmont, Dr. Machua completed her fellowship training in rheumatology at Augusta University/Medical College of Georgia and was previously involved in multiple clinical trials in the Atlanta area. Dr. Machua is board certified in Rheumatology and Internal Medicine and currently a primary investigator in several lupus studies. She serves on the Lupus Foundation of America, Georgia chapter, Medical Advisory Board and is a lupus consultant. Special Guest: Venetia K. Thompson has battled symptoms of lupus since she was a very young child but it took decades before she would be diagnosed with the disease. She worked three years at the Missouri Lupus Foundation of America Chapter working in public relations and received an award for Chapter Volunteer of the year. Venetia moved to Delaware and continued her work with the LFA in the Delaware Chapter. Working as Acting CEO and Chairing the Board for seven years, Venetia has continued working with the Philadelphia Tri-State Chapter where she facilitates a lupus support group and a self helpcourse (SLESH) and is Vice-Chair of the Board of Directors. She is a Magna Cum Laude graduate of Fontbonne University and is business owner of Very Venetia, Inc.
May is Lupus Awareness Month! Tanesha Townsend, entrepreneur, Lupus warrior, and pageant queen, is our guest today. In this episode of Soul Stories, Tanesha chats with Rukiya Michele about her work as an entrepreneur and pageant queen and how she uses both platforms to raise funds for and awareness about Lupus. Tanesha uses her own Lupus experience to help others. In this episode, Tanesha shares great advice for listeners of all ages and walks of life. To learn more about Tanesha and Swag Styling follow her on social media: @itz_me_tanesha. Tanesha Townsend [S2E67]. Be sure to subscribe to Soul Stories. If you've enjoyed this or any episode of the podcast, please make a donation via our Soul Stories page on Anchor (anchor.fm/rukiyamichele). Thanks for listening! About the show: Soul Stories is dedicated to centering Black stories. Everyone has a story that must be told, a story that they were born to tell. Our stories matter. Your story matters. This is Soul Stories, where we tell our stories. About the host: Rukiya Michele is the show's host and creator. Rukiya Michele is a former college professor who was born to tell stories. Rukiya Michele is a natural storyteller mixed with a little ethnographer and a lot of griot. For feedback on this episode or to pitch a story to her, you may email Rukiya at RukiyaMichele2@yahoo.com. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/rukiyamichele/message Support this podcast: https://anchor.fm/rukiyamichele/support
This week we discuss complications and conditions that can be caused by Lupus. It is Lupus Awareness Month so please share this episode so we can raise awareness! Music by Otis MacDonald, Angie Roberts --- Send in a voice message: https://anchor.fm/unified/message Support this podcast: https://anchor.fm/unified/support
May is Lupus Awareness MonthBrian Crombie interviews Rupinder Sandhu, a volunteer with Lupus Ontario in the area of support and education. Her own Lupus journey began in 1996 when she was first diagnosed after suffering unusual symptoms such as extreme fatigue and swollen joints. With the support of family and friends and exemplary care from The Lupus Clinic at Toronto Western Hospital she has enjoyed years of stable health. Rupinder has persevered through the ups and downs of chronic illness and enjoys a 24 year career as a teacher, Vice Principal and now a Principal in elementary schools. Rupinder will inspire us to join her team for the Lupus walk this summer.
Leonore Okwara, MPH is CEO and Founder of Public Health Research Consulting, and host of the Public Health Culture Podcast. She helps researchers meet the unique needs of the community and the funders in two ways: 1) hosting community engagement in research webinars and trainings to equip researchers with strategies on building community trust in research, and 2) providing program management trainings to help researchers manage their grant-funded research studies with ease. Joyee Washington, MS, MPH, CHES is CEO and Founder of Joyee Washington Consulting, LLC. She is a public health and education research consultant who works with communities, organizations, and institutions to help them conduct more effective research and build more impactful programs for sustainable solutions. We are collaborating to bring an opportunity to public health students, professionals, and researchers. We are calling this a Research Roundtable, "Building community trust in research: Strategies, challenges, and lessons learned from the field." In This Episode We Cover: Our own experiences and challenges working as community-engaged researchers How we build healthier communities, aim for prevention, strive for equity The importance of putting public health research into action Getting over your own ego as a researcher How it looks to overcome challenges as a community-engaged researcher How to equip the next researcher with tools to make their research impact a sustainable solution The importance of sustaining the positive impact of your research and how crucial sustainability is for the community The solution to building community trust in research and equipping the research community with the knowledge from other experienced researchers so that they can create more sustainable solutions in public health How to register for the Research Roundtable happening on May 27th at 7pm EST The benefits of registering for the Research Roundtable: Receive a “toolbox” of research best practices so you don’t have to figure it out yourself, interactive discussion, convenience of virtual space, resource guide and worksheet, access to the recording, giveaways, and much more. Register for the Research Roundtable here. We are running a special of $37 until May 26th in honor of Lupus Awareness Month! If you don’t know, Joyee Washington has Lupus and shared her story on Instagram. Follow her to read her story! We’re on Clubhouse! Join our club PH Research in Action. We have two wonderful discussions planned for the month of May. Thursday, May 13th at 7pm EST, “The Community is not your fixer-upper” Thursday, May 20th at 7pm EST, “You got data. Now what?” Advice for Public Health Professionals: Researchers, take a different perspective of your ego. You are not the community expert. Connect: Leonore Okwara, MPH CEO and Founder of Public Health Research Consulting Website: www.publichealthresearchconsulting.com Email: leonore@publichealthresearchconsulting.com Facebook: @publichealthRC Twitter: @publichealthRC Instagram: @publichealthculture @publichealthresearch LinkedIn: www.linkedin.com/in/leonoreokwara Joyee Washington, MS, MPH, CHES CEO and Founder of Joyee Washington Consulting, LLC Website: www.joyeewashington.com Email: joyee@joyeewashington.com Facebook: joyeewashingtonconsulting Instagram: @joyeewashington LinkedIn: www.linkedin.com/in/joyee-washington
Come listen to Hannah give me the skinny on all things Lupus for Lupus Awareness Month. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/makeyourowndamnsandwiches/support
Hannah and Rachel sit down with Bri to discuss her love for Barre and wellness. May is Lupus Awareness Month https://www.lupus.org/resources/what-is-lupus World Lupus Day Donation Barre Class: https://barreunbound.com/worthy-wellness https://linktr.ee/barre_bri https://www.whatidliketotellpeople.com/resources Music by Sean Price. Listen to more music by Sean Price at https://soundcloud.com/user-141328318 fbclid=IwAR1gzNcAQvl5gkYHl69zEdMbxgQiKuAurFtEMidfNmyDgD5kybHnzJxddS0 Use Code: tellingpeople to receive 15% off our merch at https://www.whatidliketotellpeople.com/ Follow @whatIdliketotellpeople on Instagram, Twitter, Facebook, and LinkedIn. Hit "Subscribe" to get our latest episode. Don't forget to rate this podcast. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
May is Lupus Awareness Month. May 10, 2021 is World Lupus Day. This year let's share our stories of how we live with lupus. If you are a friend or family member of a Lupus Warrior, share how you support them. Let's take away the mystery of lupus. Lupus Foundation of America: Lupus.org Get the book “Living Life with Lupus” on Amazon: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with Gwen: Email: gwen@thegwenalexander.com Website: thegwenalexander.com/lupus-life-podcast Facebook: facebook.com/lupuslivingpodcast Instagram: instagram.com/thegwen1685 Disclaimer: The information in this podcast is for informational purposes only. The opinions of the guest on the podcast are their own. The host of the podcast is not a medical professional. You should consult with your doctor
May represents Lupus Awareness Month. In this episode I give my own take on what I believe is a Warrior Mindset. --- Send in a voice message: https://anchor.fm/susan-hendrix/message
It is Lupus Awareness Month! So this week we talk about the disease and Kay talks about her own experiences since she was diagnosed. Please leave your comments, suggestions and questions below. We will be featuring one of your questions in our next podcast! Thank you for listening! Everything said in our podcasts are based on our own experiences and research. It should not be taken as medical advice. Facebook: https://www.facebook.com/UnbreakableLnK/ Twitter: https://twitter.com/Unbreakable_LnK Instagram: https://www.instagram.com/lnk.unbreakable/ Youtube: https://www.youtube.com/channel/UC2WT3PLrZrzDR73IXXCAfGA Music: "Rising Spirits" by Jay Man
The month of May is designated as Lupus Awareness Month. Many have little knowledge about this disorder. Some recently heard of it as some of our star athletes or movie stars have come out to share their diagnosis. And others are learning that family members have or perhaps may have demonstrated symptoms of Lupus. Lupus is a cruel mystery. It is an unpredictable and misunderstood autoimmune disease. It is difficult to diagnose. In some cases it can be hard to live with and a challenge to treat. Lupus has a range of symptoms and can strike without warning. Let talk about it as we educate ourselves as well as others. To join the conversation call 516 387-1914. Awareness can lead to resources.
In Episode 4 of the Doctors Hospital Podcast we sit down with Board Certified Rheumatologist and Board Certified Internal Medicine Specialist Dr. Anishka Rolle. Dr. Rolle covers a host of topics from the basics of Lupus to what Lupus patients should know in the midst of the COVID-19 pandemic.
May is National Lupus Awareness Month, and Cindy Messerle, CEO of the Lupus Foundation for the Tri State Area and Cheri Perron, one of the foundation’s board members join Kristen for a conversation to raise awareness about Lupus and show support to those living with Lupus. Lupus is a serious, life-threatening disease that can affect the body’s major organs. Twenty-five percent of all cases occur in the first two decades of life. Ninety percent of all affected are women, and women of color are affected 3-4 times more often. If you’d like to wear purple and post about May being Lupus Awareness Month, use the hashtag #LupusAwarenessMonth and tag @lupustristate in your posts. Learn more about Lupus and the ways that the Lupus Foundation in the Tri State Area is working to raise awareness; and provide answers, support and hope at https://www.lupus.org/tristate.
Who is NEXT?! Peeks Cosmetics! This rockstar owner Latasha Mcrae started an amazing beauty line as the FIRST in her family to start her own business! In honor of Lupus Awareness Month and for her mom she gives back a percentage of one of her lines to the organization.
May is Lupus Awareness Month and on Lupus Day, the 10th of May 2020 we Join Lupus Warrior Pontsho Hlakoane , who has been diagnosed with the condition in her fight against Lupus as she dispels myths on the rarely known condition.
May is Lupus Awareness Month and we get to dispel all myths regarding Lupus , with Lupus Warrior Pontsho Hlakoane who has been diagnosed with the condition and is living with a positive outlook on life.
May is Lupus Awareness Month and on Lupus Day, the 10th of May 2020 we Join Lupus Warrior Pontsho Hlakoane , who has been diagnosed with the condition in her fight against Lupus as she dispels myths on the rarely known condition.
Thanks, for listening and I hope my natural remedy tip helps those that needed it. Please, look forward to a collective weekly Oracle read and guest speakers, fun facts, free giveaways. I have been reading in my community for over (40 years). I am a small business owner, and successfully been recognized with Proclamations and Keys to many cities; as well traveling abroad. Personal reading allow (24 hours) for reply, Pre-recorded! chioripublishing@gmail.com Amazon.com/My Story About Lupus For Personal Mini-Oracle readings: Contact me @: kathybhall@gmail.com Please, feel free to hit the link below to purchase "Lupus T-Shirts" as we still walk to beat Lupus! Link: https://www.gofundme.com/manage/LUPUST-ShirtSupport --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/chi-ori-publishing/message
We all know May represents Lupus Awareness Month, but we live in awareness 365 days. So My Story Living with Lupus Podcast, is going to take one extra step. We are going to Break the Stigma of those living with chronic pain, and we are going to inform you how food can change your life. So you know what I want you to do, yes you know the drill from the U.S. to South Africa, grab your cup of coffee, your cup of tea and to my listeners late at night grab your favorite glass of wine. And join the conversation, right here on My Story Living with Lupus Podcast! --- Send in a voice message: https://anchor.fm/susan-hendrix/message
We are heading into Lupus Awareness Month. This episode I talk to Nina Miller about Lupus, how faith got her through, and she lets us know that you can win from the neck up. Find out what she means by that. Lupus Awareness
Episode 39!!!! Not so kinky this week. I'm discussing my history with Lupus in honor of May being Lupus Awareness Month and how advocating for your health should be your number one priority with a chronic illness and how communication and the infliction of pain can be important for someone in constant pain. DON'T FORGET TO RATE AND SUBSCRIBE!!!! Email: kinkswithkeke@gmail.com IG: @kinkswithkekepodcast Twitter: @kinkswithkeke Tumblr: @kinkswithkeke Website: www.kinkswithkeke.com
Yooooo Tr0ubl3s sits down with Kiana an elementary school teacher in Washington, DC as they discuss her journey in becoming certified to teach, she expresses her love and passion for teaching, while balancing self care in a emotional and demanding career. Kiana provides insight with her never ending battle with Lupus and to spread awareness to this unpredictable and non curable disease during Lupus Awareness Month. We must spread more awareness to this unpredictable non-curable disease. Check out all the Official Unpredictable Thoughts website:https://unpredictablethoughts2.com/ Instagram: Tr0ubl3s: @Tr0ubl3s24 Kiana: @Kiana_Cole @Kickinitwithki_ Also make sure you check out Kickin it with Ki on YouTube
May is Lupus Awareness Month. Share today's podcast to spread the word. Gwen Alexander is the host of The Lupus Living Podcast. You can contact Gwen at the following: Email: gwen@thegwenalexander.com Website: thegwenalexander.com Facebook: facebook.com/lupuslivingpodcast Disclaimer: The information in this podcast is for informational purposes only. The host of the podcast is not a medical professional. You should consult with your doctor or medical professional before you make any changes that may affect your health in any way.
May is Lupus Awareness Month! This episode touches on the disease itself, what you can do to hopefully improve the outcome of your pregnancy and some of this import things we as physicians watch out for in a woman who is pregnant with Lupus. I do not claim to know everything about Lupus or Lupus in Pregnancy, that why in these scenarios I work with a team. But! I have cared for patients with Lupus in pregnancy and have family and friends with the disease. This episode is for everyone to learn and understand just a little more about the effects of lupus on the millions of Americans that have been diagnosed with this autoimmune disease.
Life happens. The ladies recorded this episode in two parts - sorry for the delay! As the final episode of their Lupus Awareness Month series, the ladies were joined by Lupus Advocate Jokiva (also known as @_indianrosee on IG) as she shared her Lupus story, the importance of support while living with the illness and how she stays positive through it all! **This week’s episode is brought to you by Sudio headphones - Click the link (https://goo.gl/wY535Q) and use offer code ‘RANDOM’ for 15% off any purchase!** ~Win~ Jecora - Acupuncture ~Holy Grails~ Jecora - Stay moisturized; Sunscreen; Wash your fruit! S.Dot - Lush Facial Soap “Fresh Farmacy” ~Groove Theories~ S.Dot - Stacy Barthe (not Sarah) “Sober”; Anderson.Paak “Bubblin” Outro: India Arie “Healing” Random Tandem Podcast is also available on iHeart Radio, Stitcher and Google Play! Subscribe, Rate, Review and Tell a friend! ~Contact Random Tandem~ FB Group/Page: Randem Tandem Podcast Twitter: @RandomTandemPod IG: @RandomTandemPodcast Email: RandomTandemPodcast@gmail.com
This week the ladies discussed the usual foolishness going on in pop culture and 45’s America. With May being Lupus Awareness Month, they were also joined by Nakita McGraw from Bravo’s hit show “To Rome for Love,” as she shared - her Lupus journey, being a National Ambassador for the Lupus Foundation of America, Businesswoman, Author and most importantly a Mom! Happy Mother’s Day! **This week’s episode is brought to you by Sudio headphones - Click the link (https://goo.gl/wY535Q) and use offer code ‘RANDOM’ for 15% off any purchase!** ~Wins~ Jecora - “Before the Person: Relationship Goals” 6-part series S.Dot - Being off work ~Holy Grails~ Jecora - Pineapple and Peach flavored Kombucha S.Dot - #DorothyJean (Her Mom!) ~Groove Theories~ Jecora - Ace Hood ‘Trust the Process II’; Rae Sremmurd ‘SR3MM’ S.Dot - Khalid “OTW”; Sinead Harnett “Body” Outro: Boyz II Men “A Song for Mama” Random Tandem Podcast is also available on iHeart Radio, Stitcher and Google Play! Subscribe, Rate, Review and Tell a friend! ~Contact Random Tandem~ FB Group/Page: Randem Tandem Podcast Twitter: @RandomTandemPod IG: @RandomTandemPodcast Email: RandomTandemPodcast@gmail.com
Welcome to episode 30 where we discuss what it means to be a warrior with Frances Linsangan. We decided to have Frances on the podcast this month because it is Lupus Awareness Month and because our theme for this month is believing in yourself, which Frances has become great at over the course of her life.
May is Lupus Awareness Month. One of the most beautiful people I know lives with this disease... Here is her story. If you would like to donate to Sophia cause please click the link below: http://support.lupus.org/site/TR/WTELN/General?team_id=5959&pg=team&fr_id=1350 Donate even $1 if that is all you have. Every penny counts towards this important research. Please like, share, & comment! Follow me on all social media @lilmissent https://www.instagram.com/lilmissent/ https://twitter.com/lilmissent Subscribe to our YouTube Channel : http://bit.ly/2mouCQq --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/thelittlemissentshow/message
May is #LupusAwarenessMonth and throughout the year all across the nation and online there are events being held to bring attention to Lupus as well as to raise funds in support of those who are affected. This evening I will be talking to Pastor Jason Furlow, of Jason Furlow Ministries as he is presenting Daughters of Deborah 2018Retreat right here in Delaware for the first time. This 3-day Retreat is being held at the Sheraton Hotel in Wilmington starting on Thursday, May 10th with many activities and events scheduled for women so make sure to listen in to hear more. Sunday, May 6, 2018 at 6 PM EST - call in to listen in or chat (516) 453-9957
The Lupus Foundation of America says lupus is a chronic autoimmune disease that can damage any part of the body. Their research estimates that at least 1.5 million Americans have lupus. The actual number may be higher; however, there have been no large-scale studies to show the actual number of people in the U.S. living with lupus. More than 16,000 new cases of lupus are reported annually across the US. It is believed that 5 million people throughout the world have a form of lupus. President and CEO of the Lupus Foundation of America, Florida Chapter, Amy Yalden joined me in this 2016 interview to talk about lupus, Lupus Awareness Month and the work of the chapter.
Lupus is more pervasive and severe than people think, and has a devastating impact that the public doesn't realize. In fact, research shows that a staggering two-thirds of the public knows little or nothing about lupus. You can help change that. May is Lupus Awareness Month. Joining Collections by Michelle Brown is the founder of Lupus Detroit, Sharon Harris. Ms. Harris not only lives with Lupus but thrives and provides support an encouragement for others living with this chronic autoimmune disease, living with both systemic and discoid lupus, Harris founded Lupus Detroit to not only provide emotional support but to also assist Lupus Warriors with daily challenges including paying for medicine, rent and other financial expenses. Lupus Detroit is celebrating its fifth anniversary with a gala celebration on May 20, 2017. Despite suffering, two strokes in 2016, Sharon Harris continues to work to help others not just survive bit to thrive and celebrate their lives.
May is Lupus Awareness Month. Lupus is a chronic autoimmune disease that can damage any part of the body (skin, joints, and/or organs). CJ Holloway is a dancer who was diagnosed with lupus at the young age of nine. She continues to fight the battle and shares a glimpse into what her life has been for the past twenty years.
May is Lupus Awareness Month! Lupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints and/or organs inside the body). African-Americans are three times more likely than Caucasians to develop lupus and with greater severity. Black females disproportionately are burdened by lupus. Joining CAN WE TALK FOR REAL ,May 25, 2016 is Sharon L. Harris, founder and president of Lupus Detroit. Ms. Harris will share her journey from diagnosis to Lupus Warrior raising awareness about the disease and advocating for others stricken with Lupus so they could also not just survive but thrive.A month after graduating from Florida A & M University, she was diagnosed with discoid and systemic lupus. Soon after the diagnosis, she had a “what if tomorrow is never promised” moment. Shortly after the lupus went into remission, she passed two rigorous interviews and six weeks of training and became a flight attendant for Mesaba Airlines. Her reasoning was if lupus was going to attack her, it would have to find her on the beaches of Aruba or high above the Eiffel tower. In late 2008 threatened her health and well-being. Sharon experienced a lupus flare so great that her doctor told her there was nothing left that he could do. He then patted her on her back and told her “good luck”. Within a year, Sharon raised more than one million dollars in pledges, in-kind donations and sponsorships for the organization. In 2009, her Lupus Walk team raised almost $5,000 for lupus research. This led her to be a sought after lupus advocate, participating as a guest on radio and television. She has travelled to Washington D.C to lobby Congress and the Food and Drug Administration (FDA) on behalf of those with lupus. The genetics of lupus in minority populations is starting to get the attention it deserves in part due to the efforts of Warriors like Sharon L. Harris.
It is Lupus Awareness Month and time for us to cover lupus! Join us as we discuss this autoimmune disease that impacts 1.5 million Americans.
Lupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints, and/or organs inside the body). An estimated, 1.5 million Americans have lupus. Special Guest: Annette Myarick is the CEO for the Lupus Foundation of America’s (LFA) Philadelphia Tri-State Chapter. Prior to joining the LFA in 1991, she was with the Arthritis Foundation’s Eastern Pennsylvania Chapter for 14 years, most recently as the Vice President for Public Health Strategies. Annette has a Bachelor’s degree in Community Health Education from Temple University. Special Guest: Leyla Moreno is a native of Panama. Leyla was recognized in 2008 and 2009 by Impacto Latin Newspaper and the Philadelphia Multicultural Congress as one of the ten Most Influential Latino Leaders under 40. She graduated (cum laude) with a degree in Political Science and Latin American Studies from Temple University. Leyla is a board member of the Lupus Foundation of America’s (LFA) Philadelphia Tri-State Chapter. Special Guest: Tabitha Borrero is 35 years old, lives in New Jersey and was diagnosed with lupus in 2002. Since her diagnosis, Tabitha has been a warrior and champion for the cause. Her candid approach at living with lupus, exemplifies the daily struggles and emotional distress the disease can cause. But, more importantly, she shares the joy and daily accomplishments of living life with lupus. The energy Tabitha brings to being a lupus warrior, reminds us that the battle is never over. She reminds us that we are warriors and warriors don’t quit.
Lupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints, and/or organs inside the body). An estimated, 1.5 million Americans have lupus. Special Guest: Annette Myarick is the Chief Executive Officer for the Lupus Foundation of America’s (LFA) Philadelphia Tri-State Chapter. Prior to joining the LFA in 1991, she was with the Arthritis Foundation’s Eastern Pennsylvania Chapter for 14 years, most recently as the Vice President for Public Health Strategies. Annette has a Bachelor’s degree in Community Health Education from Temple University. Special Guest: Lupus advocate. Leyla Moreno, Manager of Community Relations at Health Partners. Leyla is a native of Panama. Leyla was recognized in 2008 and 2009 by Impacto Latin Newspaper and the Philadelphia Multicultural Congress as one of the ten Most Influential Latino Leaders under 40. She graduated (cum laude) with a degree in Political Science and Latin American Studies from Temple University. Leyla is a board member of the Lupus Foundation
Special Guest; Annette Myarick is the Chief Executive Officer for the Lupus Foundation of America's (LFA) Philadelphia Tri-State Chapter. Annette has a Bachelor's degree in Community Health Education from Temple University. Special Guest: Dawn Isherwood is a Health Educator for the Lupus Foundation of America. Dawn has a BS in Nursing from Pittsburg State University, Kansas and a MS in International Relations from Troy University, Alabama. Dawn started her nursing career in the Cardiothoracic Surgery ICU at the University of Kansas Medical Center before entering the US Air Force Nurse Corp. Special Guest: Lupus advocate. Leyla Moreno, supervisor, community relations, Health Partners, is a bilingual (Spanish and English) community outreach professional. .Leyla is a native of Panama. Leyla was recognized in 2008 and 2009 by Impacto Latin Newspaper and the Philadelphia Multicultural Congress as one of the ten Most Influential Latino Leaders under 40.