Podcasts about Treacher Collins syndrome

Treacher Collins Syndrome || Issa Kickback Epi. 72In this deeply personal and insightful episode, Marcellus and James provide a comprehensive look into living with Treacher Collins Syndrome. Through their candid discussions, they emphasize the importance of self-awareness, resilience, and education in overcoming the challenges posed by TCS. Marcelus' story is one of strength, love, and unwavering determination, serving as an inspiration to all. As we continue to learn and spread awareness about conditions like TCS, it is essential to foster a society that values empathy, inclusivity, and understanding. By embracing our differences and supporting one another, we can create a world where everyone is empowered to live their best lives.Treacher Collins syndrome (TCS) is a rare autosomal dominant disorder of craniofacial development. It is a congenital malformation of first and second branchial arch which may affect the size and shape of the ears, eyelids, cheek bones, and jaws.*Available on all Streaming Platforms || Be A Guest Linkhttps://linktr.ee/issakickbackpodFollow Us! Facebook: https://facebook.com/issakickback.podInstagram: https://instagram.com/issakickback.pod#podcast #issakickbackpodcast #issakickback #treachercollinssyndrome #tcs #syndromeAffiliate Programs:Get cash back on gas and other errands! Use promo code CJSHB to get an extra 15$/gal bonus first time purchase: https://upside.app.link/CJSHBStart your own Print on Demand Shop, https://www.printful.com/a/GoodVibes_MIOur setup:Zoom Podtrak P4: https://amzn.to/41CmayOZoom ZDM-1 Dynamic Podcasting Microphone: https://amzn.to/3ZSuXeJCredits: Intro/Outro Music Produced by King Lavaughn Want to donate? https://paypal.me/GoodVibesMi---------Contact us via E-mail: - IssaKickback@goodvibesmi.com

These pictures from the 1950s were submitted by Mary Forister in the hopes of helping others feel young again! She identified many of the children who participated in this Floresville school play with Mary for Christmas that year. Mary was born in 1937 with Treacher Collins Syndrome. Despite the odds, she completed her high school education without the help of the special education programs that she now supports. The Mary C. Forister Center in Floresville, named in her honor, was opened in 1980. The building now houses the Children's Alliance of South Texas — a Child Advocacy Center. She went...Article Link

If you recognise the names Augie Pullman & Mr Tushman, then chances are you may know what this solo episode is centred on. An amazing book titled "Wonder."Chrissie shares during this solo episode the importance of parents relinquishing control and encouraging their children to step out in the big wide world away from the safety of the family nest.You see, Augie lives with a disability called Treacher Collins syndrome which is a genetic disorder that affects growth and development of the head. It prevents the skull, cheek and jawbones from developing properly, causing facial anomalies and hearing loss.The episode also discusses the vital roles of attachment that our educators play in the lives of all children, but just how important they are for children living with disabilities: visble or not..Disabilities such as attention deficit hyperactivity disorder, autism, anxiety, foetal alcohol syndrome, developmental trauma and dyslexia are just some of the examples of invisible disabilities that people live with in our communities. These disabilities are not always ‘obvious' to other people as they are part of the human brain wiring. We call this our neurotype and is why I encourage families to teach their kids about their brain as a starting point to understanding neurodivergence.Education around developmental differences is vitally important as everybody deserves to know that they belong to their community and feel understood by those around them. It's important that we are having those conversations as families to support understandings for when our kids meet other children who are different to them.Research indicates that kids who grow up in families where they have access to this information, where it is encouraged as part of their everyday conversations, go on to be more accepting, inclusive and understanding of those with differences to them.”“When we are a family that embraces and celebrates difference, then our kids go on to do the same. True inclusion starts at home."You can purchase the book Wonder here: https://www.amazon.com.au/Wonder-R-J-Palacio/dp/0375869026You can learn more about Treacher Collins Syndrome here: https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/treacher-collins-syndrome

In this deeply moving episode, join myself and Jono Lancaster, author of ‘Not All Heroes Wear Capes', as he shares his raw and inspiring life journey. In today's conversation, Jono unveils the story behind his book and the personal revelations that shaped him, including living with Treacher Collins Syndrome and how it has uniquely affected his life. This episode is a testament to the human spirit's strength and the importance of open conversations about mental health. Hosted on Acast. See acast.com/privacy for more information.

Overview Today host Lori Boll speaks with Sam Drazin, Founder and Executive Director of Changing Perspectives, one of SENIA's sponsor organizations and partners. Lori and Sam discuss Sam's background and inspiration behind starting Changing Perspectives, Sam's definition of inclusion, the needs of schools in terms of how they can become more inclusive, and his vision for the future of schools. So dive right in and enjoy. Connect Changing Perspectives Website Instagram Facebook LinkedIn Bio: A nationally recognized educator and changemaker, Founder and Executive Director Sam Drazin applies his personal and professional background to lead Changing Perspectives's mission to strengthen school communities through social-emotional learning, disability awareness, empathy development, and inclusion. Sam was born with Treacher Collins Syndrome, a rare congenital disorder resulting in both facial anomaly and hearing loss. His experiences, both as a student with a disability and as a teacher working in an inclusive classroom, helped him recognize the importance of supporting students in developing the essential life and relationship skills that underpin equity, inclusion, and social change. The students and educators we work with around the nation are a constant inspiration for Sam --- Send in a voice message: https://podcasters.spotify.com/pod/show/seniapodcast/message

While he doesn't have a cape, this hero has a cause. Born with Treacher Collins Syndrome, Jono Lancaster had dedicated his life to helping others who look different to look deeper and to find love for themselves. This exclusive interview is found in 'The Brave Edition' of AwareNow Magazine (https://www.awarenowmagazine.com). Featuring: Jono Lancaster Interviewed by: Allié McGuire Music by: ANBR Produced by: AwareNow Media --- Support this podcast: https://podcasters.spotify.com/pod/show/awarenessties/support

Duane Zingale is a Marketing Connection Consultant and founder of the digital marketing group Legacy Catalyst. What you may not know is that Duane and his daughter Ariasha share a rare craniofacial disorder called Treacher Collins Syndrome, which affects the development of facial bones and tissue. For the Zingales, this condition results in hearing loss and the need for aids and prosthetics.Together with his wife Becky, Duane has made a side pivot to initiating meaningful conversations with kids about inclusion, acceptance, and friendship. They do this through the Zingales' Our Wonder Family social media presence, viral YouTube videos, and their children's book Wonderfully Different, Wonderfully Me - a story that belongs in every household, classroom, and clinic.Highlights:1:41 Our Wonder Family05:19 Different is a Good Thing08:30 Bullies13:31 Confidence and Personality21:20 Stories to Move Forward26:04 Treacher Collins Syndrome31:05 Join the Community 33:43 Embracing Individuality37:16 Amplifying Difference39:39 Risk and Passionhttps://www.duanezingale.comhttps://wonderfullymebooks.comhttps://wonderfullymebooks.com/coloringhttps://www.youtube.com/@OurWonderFamily

Jono Lancaster was born with Treacher Collins Syndrome. It's a rare condition that means his face looks a little different to others. The condition caused Jono's parents to abandon him at birth and for Jono to face bullying and torment growing up. We hear what happened when Jono reached out to his birth parents years later and how he eventually found the strength to love his face. Extraordinary Lives is a podcast from the team behind LADbible's Minutes With. You can watch all of our videos here - https://www.youtube.com/c/LADbible/videos We speak to remarkable people who each have a unique story to tell - spies, terrorists, hackers, gangsters, killers, people with particular conditions, and those who've lived unreal experiences. These are the stories that resonated the most with LADbible's audience when they were originally told on Minutes With. In this podcast, LADbible's Ben Powell-Jones sits down with those individuals for a more in-depth conversation, revealing untold tales for the first time.

A lad from West Yorkshire spreading a little bit (a lot a bit) of love into the world, Jono Lancaster was born with Treacher Collins Syndrome, a rare congenital disorder that caused his facial bones to develop in an asymmetrical way. Jono has dedicated his life to helping others who look different know they are not alone and that they are loved. This exclusive interview is found in 'The Hope Edition' of AwareNow Magazine: www.awarenowmagazine.com Featuring: Jono Lancaster Interviewed by: Allié McGuire Music by: Sol Rising Produced by: Awareness Ties

In this week's episode I talk about a man named Jonathan Lancaster who was born with a rare genetic disorder called "treacher Collins Syndrome" --- Support this podcast: https://anchor.fm/darren-manfield/support

If you were like me growing up, I often felt like I didn't fit in. Especially when we moved from Hawaii to San Jose, Ca. I was the only asian kid in my class. So I got picked on, not so much because of my ethnicity but my height. Or lack thereof.  I'm sure this is a common scenario but the good thing is your differences don't determine your success in life. Or maybe it does in a positive way.  Meet Duane and Becky Zingale. Duane is a successful digital marketing consultant that was born with a rare condition called Treacher Collins Syndrome. It can cause some facial deformities and in his case a lack of ears. Sometimes for laughs he likes to play Mr. Potato Head and take off his ears in front of people. And their youngest daughter was also born with the same condition.  They've normalized the condition so much that their daughter thinks other people are weird because they don't have hearing aids.  So join us in this fun interview in which we get to talk about how all of our differences make us unique and wonderful. You also get to hear the story of how Becky ended up writing a children's book for children that feel different. It's called “Wonderfully Different, Wonderfully Me.”

We're thrilled to welcome our guests on this episode, Magda Newman, who, along with her son, Nathaniel, have written the book, Normal:  A Mother and her Beautiful Son. Nathaniel was born with severe Treacher Collins Syndrome which is a congenital disorder that causes craniofacial deformities.  He had 67 surgeries in his first 15 years of life.   But, despite the fact that his ears, eyes, cheekbones and jawbone were not properly formed, Nathaniel's brain and the rest of his body were healthy.  Normal is the story of how the Newman family has tackled the extraordinary challenges of Nathaniel's condition with love and resilience. Thanks to our sponsors of this episode! --> AirMedCare Network: AirMedCare Network provides air ambulance services in the event of an emergency. Iif you're a member, you'll pay no out of pocket costs for the flight when transported by an AMCN provider. Were you aware that health insurance doesn't always cover the full cost of emergency air transport? AMCN Membership is financial protection for your entire household at an affordable price. Right now, AMCN is offering our listeners the chance to win 10,000 dollars and backyard prizes like a Blackstone griddle, a Solo Yukon firepit, an outdoor theater kit, and 100 dollar Costco gift card with their Summer Sizzle Sweepstakes. No purchase necessary to enter– but if you do decide to purchase a membership during this special promotion, all AMCN members will receive up to 200 bonus entries for their chances to win great prizes. Head to airmedcarenetwork.com before May 13 and enter your information. --> Athletic Greens: Athletic Green's AG One is a special blend of ingredients that supports your gut health, nervous system, immune system, energy recovery, focus and aging. In just one delicious scoop of Athletic Greens mixed with a glass of water, you're absorbing 75 high-quality vitamins, minerals, whole-food sourced superfoods, probiotics, and adaptogens. Athletic Greens uses the best products based on the latest science with constant product iterations. Right now, it's time to reclaim your health and arm your immune system with convenient daily nutrition, especially in the flu and cold season. Athletic greens is going to give you a free one year supply of immune supporting vitamin D and five free travel packs with your first purchase. All you have to do is visit athleticgreens.com/ntm. Learn more about your ad choices. Visit megaphone.fm/adchoices

Kyle was born with a rare condition that causes underdevelopment of the facial features. His life has been very different than others in some ways, but very much the same in others. Join us as we talk about his life. For more information you can watch Kyle's testimonial video on our website at www.fallandrise.us/blogs/testimonials/kyle-mersola-life-with-treacher-collins-syndrome Or you can contact Kyle directly on IG @californiacowboy or email at kylemersola@gmail.com if you have any questions about Treacher Collins or for more ways to get involved.

Today on a special episode, the guys discuss the case of Mike Ward, who was accused of breaching the limits of free speech when he mocked a disabled singer named Jeremy Gabriel (“Petit Jeremy")...a case that went all the way up to the Supreme Court of Canada. They are joined by their special guest comedian and lawyer Jess Salomon (The Tonight Show, Comedians vs The News). After briefly chatting about Jess' experiences with the Omicron variant, Jess and Ali disclose that they do know Mike Ward personally from the comedy world. Then they go over the facts of the case and summarize Mike's joke. Asif then takes a short detour to discuss Treacher Collins Syndrome, the disease which Jeremy was afflicted with. Jess then summarizes the facts of the case and the Supreme Court Decision which was a 5-4 decision in favour of Mike Ward.  Jess and Ali discuss the limits of free speech and comedy and how things boil down to “what is the crux of the joke?”.   The opinions expressed are those of the hosts, and do not reflect those of any other organizations. This podcast and website represents the opinions of the hosts. The content here should not be taken as medical advice. The content here is for entertainment and informational purposes only, and because each person is so unique, please consult your healthcare professional for any medical questions.    Music courtesy of Wataboi and 8er41 from Pixabay   Contact us at doctorvcomedian@gmail.com   Follow us on Social media: Twitter: @doctorvcomedian Instagram:   doctorvcomedian Show Notes: Mike Ward's joke: Mike Ward on Joe Rogan: https://www.youtube.com/watch?v=8reKTTTJZlE Comedian who mocked disabled child singer did not breach limits of free speech: Supreme Court: https://www.cbc.ca/news/politics/mike-ward-scc-j%C3%A9r%C3%A9my-gabriel-1.6229032 Comedian and Lawyer Explains Why the Quebec Human Rights Tribunal's Finding Against Mike Ward Should Offend You: https://theinterrobang.com/comedian-lawyer-explains-canadian-human-rights-tribunals-finding-mike-ward-offend/

As part of a stand-up routine, comedian Mike Ward used dark humour to “deflate” what he called the “sacred cows” of Quebec's artistic milieu in reference to a number of prominent public figures. One of his subjects was Jérémy Gabriel, a young man with Treacher Collins Syndrome who had become famous by singing for well-known public figures. In his routine, Mr. Ward made a number of comments relating to physical characteristics of Mr. Gabriel caused by his handicap. Mr Gabriel and his parents filed a complaint of discrimination with the Commission des droits de la personne et des droits de la jeunesse (the “Commission”). The Commission submitted an application to the Human Rights Tribunal (the “Tribunal”). The Tribunal concluded that Mr. Ward's comments were discriminatory under Quebec's Charter of human rights and freedoms. It held that the comments violated Mr. Gabriel's right to dignity and that the violation was not justified by Mr. Ward's right to freedom of expression. The Tribunal awarded damages for moral injury and punitive damages to Mr. Gabriel and to his mother. The majority of the Court of Appeal allowed Mr. Ward's appeal in part. It held that in balancing Mr. Gabriel's right to dignity with Mr. Ward's right to freedom of expression, the Tribunal was reasonable in concluding that Mr. Ward's comments surpassed what could reasonably be tolerated by Mr. Gabriel. However, it quashed the order awarding damages to Mr. Gabriel's mother, finding that she was not subjected to discrimination. A dissenting judge would have allowed the appeal in full. She did not agree that the Tribunal's conclusion that the comments were discriminatory was reasonable. Keywords Human rights - Right to equality, Right to dignity - Human rights - Right to equality - Right to dignity - Right to freedom of expression - Young person with handicap among public figures who were subject of jokes in comedy routine - Human Rights Tribunal finding that comments were discriminatory and were not justifiable on basis of freedom of expression - Tribunal awarding damages for moral injury and punitive damages to complainant and complainant's mother - Court of Appeal upholding finding of discrimination but quashing order awarding damages to complainant's mother - Whether political or artistic speech mentioning or mocking personal characteristics amounts to discrimination, thereby giving Human Rights Tribunal jurisdiction to grant redress - Whether appellant's comedy routine is justified as free speech under Quebec's Charter of human rights and freedoms - Whether freedom of expression provides same protection to artistic expression as it does to political expression - Whether punitive damages could be awarded in this case - Charter of human rights and freedoms, CQLR, c. C-12, ss. 3, 4, 10. Notes (Quebec) (Civil) (By Leave) Disclaimers This podcast is created as a public service to promote public access and awareness of the workings of Canada's highest court. It is not affiliated with or endorsed by the Court. The original version of this hearing may be found on the Supreme Court of Canada's website. The above case summary was prepared by the Office of the Registrar of the Supreme Court of Canada (Law Branch).

Duane and Becky talk about their experience as a family with Treacher Collins Syndrome. TCS is a rare genetic disorder that affects facial structure and hearing. Duane was born with TCS as was their youngest daughter. They share their experience of becoming parents, the differences between growing up with TCS then and now, and the emotions they've encountered on the way. Find them at OurWonderFamily on Instagram, thebahamama.com, the bahabowtique on etsy and the Born Different Show on Youtube. Transcript: https://wordpress.com/post/stephanielucasmft.wordpress.com/41 Why'd They Do That Game: www.whydtheydothatgame.com Smotherhood Untangled: www.stephanielucasmft.com

Nikki Bedi and Richard Coles are joined by Ray Mears - an authority on bushcraft and survival, he's been presenting TV series and teaching on the subject for 3 decades. Jono Lancaster has a rare genetic condition called Treacher Collins Syndrome and was adopted at birth. He has made TV programmes, set up a charity and travelled extensively supporting other young people with facial difference. He discusses his journey to self acceptance. Jenny Packham’s designs have graced countless red carpets and award shows since she launched her eponymous label in her early 20s. She tells us how she was inspired from a young age by her two dressmaker Grandmothers. Jake Tyler got severe depression and felt burnt out as a manager of a busy London pub. He ditched city life and embarked on a 3,000 mile walk around Britain, visiting every national park while meeting dozens of friendly strangers who offered him a bed. And the poet, actor and DJ Craig Charles chooses his inheritance tracks: Billie Holiday's Strange Fruit and Wilson Pickett singing Hey Jude. And your thank you. Producer: Corinna Jones

What would be your OT approach? SUMMARY: A FIVE-YEAR-OLD girl born with a rare craniofacial disorder is navigating the world with the help of her father, who was diagnosed with the same condition. Duane, aged 36, and his daughter Ariasha, aged five, have Treacher Collins Syndrome, which affects the development of facial bones and tissue. Duane has no ears or cheekbones and wears prosthetic ears. As a result of the condition, both Duane and Ariasha live with hearing loss and have worn hearing aids almost their entire lives  

Happy New Year! I am very thankful for the opportunity to share the story and life lessons from Authors Magdalena (“Magda”) Michniowska Newman & Nathaniel Newman. Nathaniel says, “Separate who someone is from what they look like; looks don't matter. Be grateful. Challenge to appreciate what you have – we have so much more than we realize.” Quote from memoir, ‘Normal: One Kid's Extraordinary Journey,' Magdalena Newman and Nathaniel Newman. Magda and Nathaniel wanted to share their mantra with the world; “LIVE YOUR NORMAL.” Author Biography Magdalena (“Magda”) Michniowska Newman & Nathaniel Newman, Book Titles: • Normal, A Mother and Her Beautiful Son • Normal, One Kid's Extraordinary Journey, Publisher: HMH Books Publication Date: January 14, 2020 (books available on Amazon.com and Audible) Magda was born in Sanok, Poland, in 1979 to Marek and Zofia Michniowska. She was raised on her family farm and is the oldest of six siblings. Early on, it was apparent that Magda would be an accomplished pianist, and much of her young life was spent learning and performing classical piano across Europe. As a teenager, she began traveling to the United States for her summers, and that is where she met her now-husband, Russel Newman. She earned her Masters-Degree in The Theory & Composition of Music from the acclaimed Stanislaw Moniuszko Academy of Music in Gdansk, Poland. Shortly after completing her education, Magda moved to the United States to start a life and family with Russel. Russel and Magda live in Seattle, Washington, with their two sons, Nathaniel and Jacob, and their four dogs. Nathaniel, their first-born son, was born in New York City in 2004. Nathaniel is now a thriving 17year-old high school Junior. He loves his four dogs, video games, and all things animation. He is progressing toward his black belt in Tae Kwon Do. Nathaniel spends much of his free time volunteering at an animal rescue sanctuary. He dreams of becoming a veterinarian someday and is hoping to attend college in Washington. Magda and Nathaniel Newman have lived through almost unimaginable hardship. Nathaniel was born with a very rare genetic birth defect known as Treacher-Collins Syndrome. His Mother, over the course of Nathaniel's life, has endured two battles with Stage 4 Cancer and a total hip replacement. Full Biography at www.rjnomorecrumbs.com/podcast --- Send in a voice message: https://podcasters.spotify.com/pod/show/rhonda-jennifer-nmc/message Support this podcast: https://podcasters.spotify.com/pod/show/rhonda-jennifer-nmc/support

Duane Zingale Comfortable in His Face Treacher Collins syndrome (cranium facial disorder) , when Duane Zingale is not lost in a Legoland fairy tale with his two beloved daughters, he is likely to be found geeking out crafting relationship-based marketing campaigns with his LISTEN funnel framework. You can listen to Duane hosting “Marketing Your Movement Show” over on your favorite podcast player.

On this episode of Voices of Your Village, I have an absolutely gorgeous chat with Magda Newman all about her life as the author of Normal: A Mother and Her Beautiful Son. Magda and I get real, and really honest about what a “normal” life looks like, especially as the mother of a son with Treacher Collins Syndrome. What are you waiting for? Come hang out with me and Magda, we have space just for you.   Love this podcast? Scroll down to leave a review! I read every one and they fill my heart with joy. Connect with us on:   Instagram: https://www.instagram.com/seed.and.sew/   Facebook Group: www.facebook.com/groups/seedandsew   Blog Post: www.voicesofyourvillage.com   https://seedandsew.org/   Music by: https://www.bensound.com/

We’re thrilled to welcome our guests on this episode, Magda Newman, who, along with her son, Nathaniel, have written the book, Normal:  A Mother and her Beautiful Son. Nathaniel was born with severe Treacher Collins Syndrome which is a congenital disorder that causes craniofacial deformities.  He had 67 surgeries in his first 15 years of life.   But, despite the fact that his ears, eyes, cheekbones and jawbone were not properly formed, Nathaniel’s brain and the rest of his body were healthy.  Normal is the story of how the Newman family has tackled the extraordinary challenges of Nathaniel’s condition with love and resilience.   ++++ In case you missed the promo codes, offered by our sponsors, here they are! 1) BETTERHELP: for 10% off your first month of online counseling, go to betterhelp.com/nobody and enter discount code "nobody", 2) AIRMEDCARE: for a $10 Visa Gift Card with a new one year membership, go to airmedcarenetwork.com/nobody and use offer code "nobody", Learn more about your ad choices. Visit megaphone.fm/adchoices

Magda Newman's son, Nathaniel, was born with a craniofacial disorder called Treacher Collins Syndrome. Lisa talks with her, and Nathaniel, to talk about their journey together. What a moving story -Author MAGDALENA NEWMAN and her son NATHANIEL NEWMAN discuss Treacher Collins Syndrome (0:21:50 - 0:41:30)

Jono Lancaster has overcome a huge amount of adversity from the minute he was born. He has Treacher Collins Syndrome and experienced bullying for the way he looked, resulting in a life of self-loathing for 20 years. He has since founded his own foundation, ‘Love Me, Love My Face’ and Jono says the power of meeting other people and hearing about their journeys has helped to motivate him. Learn more about your ad choices. Visit megaphone.fm/adchoices

Jono Lancaster has overcome a huge amount of adversity from the minute he was born. He has Treacher Collins Syndrome and experienced bullying for the way he looked, resulting in a life of self-loathing for 20 years. He has since founded his own foundation, ‘Love Me, Love My Face’ and Jono says the power of meeting other people and hearing about their journeys has helped to motivate him. See acast.com/privacy for privacy and opt-out information.

My guest this week is Tami Wetmore. She will share her story of her daughter, Juliana who was born with Treacher Collins Syndrome. You will hear of how God was faithful in every detail and used Juliana to continually show Tami that He was there and He was good. Such an inspiring story! Please listen and enjoy!

Welcome to the seventh episode of Postdocalypse, produced by health sciences postgraduate researchers at King's College London. This episode is hosted by Emily Prpa interviewing Dr Francis Smith about Treacher Collins Syndrome, research motivation and anglophilia. Dr Smith talks to us about his experience of living with Treacher Collins Syndrome and about his research at the University of Colorado. In this episode, we also have the pleasure of talking to Professor Abigail Tucker, Associate Dean of Research studies at Kings. Panellists Katie Begg and Mads Iafrate join in the discussion throughout the episode. Special thanks to our listener Suveer Sachdeva for recommending our guest for this episode. ............................................................................ Host: Emily Prpr Panelists: Katie Begg, Madeleine Iafrate Producer: Alexandra Lautarescu

In this episode chef Alina Z interviews Thane and Cynthia Murphy who overcame their disabilities of PTSD incurred by a severe Traumatic-Brain Injury during Thane's service and Craniofacial disability that was caused by Treacher Collins Syndrome. However, their outlook on life and love didn't let disabilities hold them down and they not only created an amazing life together but they also help other people to overcome their challenges and start enjoying their lives fully. Learn more about Cynthia and Thane Murphy at https://assuaged.com/?fbclid=IwAR2CDH4aUpnD5EzIhPGjg7MX1Jintjh-xRO3yw2VmylX_w0kS8wWFpuhSbE and

Cynthia Murphy was born with Treacher Collins Syndrome, and her husband Thane is a disabled U.S. Marine Corps veteran. Both of them have become successful entrepreneurs and philanthropists in spite of their respective adversities, creating Assuaged, a website and app that points health-conscious users toward organic and vegan food choices. As well, they advocate and run online resources for those affected by craniofacial disorders. In this conversation, Thane and Cynthia discuss how a plant-based diet helped the two of them overcome their own physical challenges, how they give back to those suffering from similar disabilities, and give advice to those looking to create similar apps. Show Notes: What was it like for Cynthia to grow up with Treacher Collins syndrome, and how did these experiences shape who she is today? Faced discrimination for her physical appearance both in her personal life and at work. What steps can people suffering from significant physical disabilities take to bolster their self-image and drive? Cynthia poured all of her resources into working so she could earn something, be it money, education or respect. Never undervalue education and how it can enrich your life experience and how you interact with others. How did Thane treat and ultimately heal his physical condition? Cut out convenient junk food and snacks, researched how one’s diet affects and health and longevity of their organs and systems. That’s how he came to settle on a plant-based diet. Through a vegan, organic, plant-based diet, Thane went from obesity to being in the top percentile of healthy veterans. How difficult was it for the two of them to make such a massive lifestyle change? Actually not that difficult. The real challenge was consistently reading labels and being mindful of ingredients. How did the Assuaged app come to be? Realized that guidance was the trickiest part to making healthy diet a habit. Assuaged is designed as a guide to the best ingredients and dishes. They got the name from the movie Mike and Dave Need Wedding Dates. What was the most challenging part of making Assauged a reality? Letting go of their financial fears, accepting that the app might be a loss and just going forward with it. Focusing on helping at least one person or family. What’s their advice for someone who has an idea for an app but aren’t sure how to start? Just get started. Actually take tangible steps. If you don’t know how to develop on your own, find a solid development team to outsource it to. Make sure that your code is copyrightable. Do they have plans for selling the Assuaged app? No. They’re interested in keeping it their own. What was the entrepreneurship learning curve like for the two of them? Thane and Cynthia have been personally limited by their own disabilities. Needing to stay on top of the work while also feeling satisfied. How have mentorships impacted their professional journey? Bestselling author Bonnie Hearn Hill; Cynthia contacted her when wanting to write a memoir. Bonnie was honest with Cynthia about the importance of becoming self-reliant and gaining control over her anxieties. Bonnie also introduced them to Craig and Jenny D (see episode 4). When did Cynthia realize she wanted to become an activist for the craniofacial community? After having a negative experience auditioning for America’s Next Top Model. While she didn’t get the part, she realized she had the courage to put herself out there. How does Cynthia think her experience growing up might have been different had social media existed back then? She thinks such direct access may have invited abuse, but on the other hand it’s great for raising awareness. May have been much harder than what she experienced. What inspired Cynthia to create a craniofacial social media community? Movies like Mask and Wonder made her realize that...

Author KRISTIN BARTZOKIS, called in from Florida to tell us about her amazing life story and to talk about her newest book, "Extra-ordinary Women: Ten Inspirational Stories", as is published by https://kicamprojects.com From her KiCamProjects Page: "Kristin is a phenomenal writer whose blog, “Diary of a Beautiful Disaster,” is candid, powerful and, indeed, beautifully conceived and executed.Born with Treacher Collins Syndrome, a craniofacial abnormality, Kristin has spent her life creating her own definition of who she is and who she is meant to be. She is a runner, an explorer, a gymnast and an artist, a strong woman determined not to be held back by any supposed limitations. ​ Kristin’s writing is something to which we all can relate: We all have vulnerabilities, self-doubt and challenges. We all wonder how, or if, we fit in, and we sometimes feel alone in our struggles, as if no one else can understand." ​To learn more about Kristin Bartzokis and to order her books, please visit the following websites: https://kicamprojects.com htts://www.amazon.com/s/ref=nb_sb_noss?url=search-alias%3Dstripbooks&field-keywords=Kristin+bartzokis&rh=n%3A283155%2Ck%3AKristin+bartzokis

In a special “Craniofacial Masters Edition” of the Award-winning PRS Journal Club Podcast, 2017 Resident Ambassadors to the PRS Editorial Board -M. Shuja Shafqat MD, Chad Purnell MD, and Jordan Frey MD- and special guest Jeffrey A. Fearon MD,  Director of the Craniofacial Center in Dallas, Texas, discuss the following reconstructive articles from the December 2017 issue: “Cephalometric Predictors of Clinical Severity in Treacher Collins Syndrome” by Esenlik, Plana, Grayson and Flores. “Five-Year Follow-Up of Midface Distraction in Growing Children with Syndromic Craniosynostosis” by Patel, Shetye, Warren, et al. "Is Postoperative Intensive Care Unit Care Necessary following Cranial Vault Remodeling for Sagittal Synostosis?” by Wolfswinkel, Howell, Fahradya, et al.

Ally Faber is the mom to Nolan, who has a rare genetic syndrome known as Treacher Collins. This was an incredibly positive, uplifting and heart-warming episode. Ally writes, "Nolan is the best thing to have ever happened to our family and he's transformed the way I view life. I'm a married, vegan Oregon momma of TWO boys who decided to embark on a minimalism journey this calendar year for financial freedom, a healthier emotional state and a less wasteful and more conscious life as a consumer. I long to own less so that we can do more as a family." Social YouTube: https://www.youtube.com/channel/UCVGX79qe5nGc_kpNqoaV_Wg/about  Instagram: http://www.instagram.com/ouroregonadventures Contact: P.O. Box 3466 Salem, OR 97302 ======================  Request to Join the FREE Meredith Atwood Community & Coaching https://meredith-atwood-coaching.mn.co/ ======================  Buy Meredith’s Books: The Year of No Nonsense https://amzn.to/3su5qWp Triathlon for the Every Woman: https://amzn.to/3nOkjiH =======================   Follow Meredith Atwood & The Podcast on Social: Web: http://www.swimbikemom.com Instagram: http://instagram.com/swimbikemom   =======================  Want to Connect?  Email: same24hourspodcast@gmail.com =======================  Credits: Host & Production: Meredith Atwood Intro: Carl Stover Music Copyright 2017-2020, 2021 All Rights Reserved, Meredith Atwood, LLC

When Francis was born, nobody knew whether he’d survive. The doctors didn’t know what happened. His parents were in such a state of shock that they immediately abandoned him. His whole life, strangers have underestimated him just because he looks different. Despite this, he found the strength to fight against negative attitudes and achieve things that no one expected. This is the story of a life with Treacher Collins Syndrome. See acast.com/privacy for privacy and opt-out information.