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Honored to have Jen Brea on the show. We had a wonderful conversation about her personal journey with MECFS, growing up with healthy parents and her experience in the ancestral health community. Jen was warning about the potential of chronic illness post Covid-19 infection, on her X account back in March of 2020.Jennifer Brea is an independent filmmaker based in Los Angeles. She has an AB from Princeton University and while studying for her PhD at Harvard she fell ill leaving her bedridden. In the aftermath, she rediscovered her first love, film. Her Sundance award-winning, Emmy-nominated feature documentary Unrest was shortlisted for an Oscar. Unrest has screened in over 30 countries, had its US national broadcast on PBS's Independent Lens, and was distributed worldwide on Netflix. She is also co-creator of Unrest VR, winner of the Sheffield Doc/Fest Alternate Realities Award. Brea is a TED fellow, co-directed Call Me Cleo for HBO Max, is currently filming a new documentary about physicians, and is writing her first narrative script. Her Ted Talk has 2.5 million views. Jen is working on her second film and remains a fierce advocate for the ME/CFS community and now Long Covid. You can follow Jen's work on her website https://www.jenniferbrea.com/ and on X @jenbrea Get full access to Ancestral Health Today Substack at ancestralhealth.substack.com/subscribe
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Episode 69 of the Long Covid Podcast is a chat with Fiona Lowenstein, Journalist, writer, Long Covid Advocate and now author/editor of "The Long Covid Survival Guide". We chat through Fiona's early experiences of Covid & Long Covid which led them to create the Body Politic support group which is such a lifeline to so many. We also discuss the book and the idea behind it, as well as so much more. Purchase "The Long Covid Survival Guide"Long COVID Survival Guide book exchangeThe book's page on Fiona's website (has an updated list of upcoming and past book talks people can attend or watch recorded videos of)Jennifer Brea "Unrest"Headshot - credit JJ Geiger Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com
Inspired by an article written by today's guest, Aileen Weintraub, I begin the show reading "When Doctor's Downplay Women's Health Concerns" from the NY Times, and then on the live show we listen to Jennifer Brea's Ted Talk. You podcast folks can check out the
This week we end out our Disabilities Documented Festival with a heartbreaking look at the world of people who suffer from myalgic encephalomyelitis or chronic fatigue syndrome. We see this journey through the eyes of Jennifer Brea and how she dealt, battled and suffered accepting her reality. Make sure to play along with each festival and leave comments so we can interact with you and remember to subscribe to the channel if you like what you see. Follow us for more interaction and content: INSTAGRAM: https://instagram.com/deepdivefilmschool TWITTER: https://twitter.com/ddfspodcast FACEBOOK: https://www.facebook.com/deepdivefilmschool Join our growing community for new videos every week!
Sarah Mosses is the founder and CEO of a fast-growing company, called Together Films. Together Films is a Marketing, Distribution & Data agency, specializing in Impact Distribution Strategy. They have worked on campaigns for amazing, award-winning films such as Sundance hit The Hunting Ground, on sexual assault on college campuses, the Oscar Shortlisted documentary Unrest, by Jennifer Brea, the HBO film The Tale by Jennifer Fox with Laura Dern and Common, and they also handled the US distribution for the award-winning film Roll Red Roll by Nancy Schwartzman, tackling rape culture, among many other projects. Together Films also manages marketing campaigns for film festivals such as the Human Rights Watch Festival and Doc NYC. they are currently helming the campaign for 2040, by Damon Gameau, an award-winning film on solutions to reverse global warming, and the film “For Sama”, by Waad al-Kateab, a documentary about the Syrian war, which won Best Doc at the Cannes & SXSW Film Festivals and was nominated for Best Documentary at the Independent Spirit Awards.
In deze aflevering praten we met Annika Mell vanuit haar knusse appartement in Amsterdam, omwikkeld door dekentjes en omringd door Annika's katten en hamster. Annika is o.a. bekend van haar weergaloze speech tijdens de Women's March én is de illustrator van het logo van Ziek. De podcast. Ze is voornamelijk huisgebonden door de onbegrepen ziektes ME en fibromyalgie. Annika vertelt hoe het is als artsen afdwalen als je over je symptomen vertelt en hoe de muren in haar huis af en toe op haar afkomen. Hoe het is om een deel van je zelfstandigheid op te geven. Hoe ze in de GGZ wordt weggezet als "SOLK-meisje". En hoe ze het niet meer trekt om de actualiteit rondom ME te volgen, want als je ziekte onderwerp is van politiek debat, kom je al snel in een achtbaan van hoop en teleurstelling terecht. Maar we hebben het ook over activisme, podcasts en over Annika's fluffy huisgenoten.Achteraf merkten we dat we flink wat voorkennis over ME veronderstellen van de luisteraars: wat is het verschil tussen ME en CVS? Waarom wordt ME niet als fysieke aandoening erkend, en waarom is dat onterecht? We besloten aan deze onderwerpen een blogpost te wijden: M.E. 101. Houd daarvoor Ziekdepodcast.nl in de gaten!Genoemd in deze aflevering:Herdenken Herdacht: de boekpresentatie van Simon(e) van Saarloos waar wij op 3 september iets mochten vertellen over deze podcast. Filmpjes en foto's zie je in de Instagram story-highlight "Herdenken herdacht".Houd Lilith Magazine in de gaten, want wij mochten iets schrijven over het boek Kleinzeer van Nadia de Vries.Artikel in Volkskrant over medisch racisme door Hasna El MaroudiHet boek Superior van Angela Saini, met een uitgebreid hoofdstuk over medisch racismeMeer over de moties rondom ME lees je hier en hierAnnika’s podcast tips: Adventure Zone, Dice Funk, My Dad Wrote a Porno, My Brother, My Brother and Me, Rebelliously Tiny, Damn Honey, SawbonesDe film Unrest over ME, door Jennifer Brea
Through FDA’s Patient Focused Drug Development and similar initiatives, the value of the patient voice in drug development is clear. “It’s not just a question of science but also one of social justice,” suggests independent filmmaker Jennifer Brea, Director for Shella Films and founder of the rare disease community MEAction. “When no one’s paying attention to your community, and no one thinks that what you’re going through is particularly urgent or important, how do you put your disease on the agenda?”
Sandra learned early in life that her invisible illness made her a canary in a coal mine. In this bonus episode, she shares how she's moving through realities many face--when no one sees, heeds, or hears that something is very wrong. As a movement educator, Sandra Razieli loves to guide people to move better so they can feel better and live better. This May, she shares how illness and movement changed her life—and the joys of finding humanity, starting from the very bodies we inhabit. We talk a bit more in this bonus episode on the impacts of light pollution and pain we can't see. This episode airs in full in May. To hear the full episode or learn more, subscribe to the podcast via Apple Podcasts, iTunes, Spotify, or visit: https://wereherelove.com/podcastguests/#SandraRazieli
Original broadcast date: February 10, 2017. We expect a lot of our doctors, but they don't always have the best tools to treat us. This episode, TED speakers explore new ways to think about disease, diagnosis, and the delicate art of healing. Guests include filmmaker Jennifer Brea, anesthesiologist Elliot Krane, law professor Dorothy Roberts, and cardiologist Paula Johnson.
Kafkaesque. We talk theatre, we talk life with a chronic illness, and we wonder how a persons name enters language to represent an idea. Take some time to learn about Kafka and the origins of Kafkaesque, it's absolutely fascinating! I would also recommend watching "Unrest" by Jennifer Brea as it is an amazing insight into the world of chronic illnesses, and certainly shows a taster of the kafkaesque nature of the chronic illness life that myself, and so many others experience on a daily basis.
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating and misunderstood disease that affects 20 million people globally. Raw Talk had the chance to attend a screening of the award-winning documentary, Unrest. Unrest explores the personal journey of Jennifer Brea from ME/CFS patient to advocate to storyteller. Join Grace and Melissa as they reflect on the compelling documentary and share the unique perspectives of the event moderator, Scott Simpson, co-founder of Millions Missing Canada; as well as panelists Dr. Wilfred de Vega, ME/CFS scientist; Larissa Fan and Kirsten Dahlin Nolan, ME/CFS patients and advocates; and Dr. Sarah Selke, physician specializing in ME/CFS. We explored everything from proposed causes of ME/CFS, to diagnostic criteria, to treatments and coping mechanisms. Press play to learn more about the millions that medicine left behind. A big thank-you to Laura Best and SciComm Toronto for bringing this topic to our attention.
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating and misunderstood disease that affects 20 million people globally. Raw Talk had the chance to attend a screening of the award-winning documentary, Unrest. Unrest explores the personal journey of Jennifer Brea from ME/CFS patient to advocate to storyteller. Join Grace and Melissa as they reflect on the compelling documentary and share the unique perspectives of the event moderator, Scott Simpson, co-founder of Millions Missing Canada; as well as panelists Dr. Wilfred de Vega, ME/CFS scientist; Larissa Fan and Kirsten Dahlin Nolan, ME/CFS patients and advocates; and Dr. Sarah Selke, physician specializing in ME/CFS. We explored everything from proposed causes of ME/CFS, to diagnostic criteria, to treatments and coping mechanisms. Press play to learn more about the millions that medicine left behind. A big thank-you to Laura Best and SciComm Toronto for bringing this topic to our attention.
Gary Burgess speaks to Jennifer Brea, the filmmaker and campaigner, arguably best known for her powerful documentary ‘Unrest' which charts her own ME journey. He also hears from Robert Saunders, who was diagnosed with ME 26 years ago. He's just reworked a Bob Dylan classic with the help of others with ME from around the world. Here are the links to things Gary raised in episode one: ME Awareness Week guide: http://www.meassociation.org.uk/get-involved/me-awareness-week/ Million Missing schedule: http://millionsmissing.meaction.net/ Jennifer Brea's website: http://www.jenniferbrea.com/ Robert Saunders' Blowin' In The Wind video: https://www.youtube.com/watch?v=BncUDXRA1v4 Gary Burgess on Twitter: www.twitter.com/GaryBurgessCI
US film director Jennifer Brea spoke to Amy about her Oscar-shortlisted documentary Unrest, which chronicles her experience and the experiences of others who have gone "missing" – the sufferers of the significantly debilitating illness Myalgic Encephalomyelitis (ME), aka "Chronic Fatigue Syndrome". Activist and ME sufferer Anna Kerr, Emerge CEO Dr Heidi Nicholls and Bio21 Institute researcher Dr Chris Armstrong then joined Amy to talk about the situation for Australians with ME, and the research being conducted to uncover the biological mechanisms behind it. Broadcast on 13 March 2018.
US film director Jennifer Brea spoke to Amy about her Oscar-shortlisted documentary Unrest, which chronicles her experience and the experiences of others who have gone "missing" the sufferers of the significantly debilitating illness Myalgic Encephalomyelitis (ME), aka "Chronic Fatigue Syndrome". Activist and ME sufferer Anna Kerr, Emerge CEO Dr Heidi Nicholls and Bio21 Institute researcher Dr Chris Armstrong then joined Amy to talk about an upcoming screening of Unrest at RMIT, the situation for Australians with ME, and the research being conducted to uncover the biological mechanisms behind it. New York Times journalist and author Jim Robbins came in to the studio to talk about his latest book, The Wonder of Birds and his upcoming talk at the Wheeler Centre. And Ben Eltham chatted about the latest in federal politics.
This week we explore documentaries where the filmmaker is an integral part of the story, review Unrest (a personal film by Jennifer Brea who filmed her own onset and struggle with M.E.), and have an interview with the director of Bombshell: The Hedy Lamarr Story Group Review Documentary: UNREST (2017) / UK, USA (Director: Jennifer Brea, Producers: Jennifer Brea, Lindsey Dryden, Patricia E. Gillespie, Alysa Nahmias) https://www.unrest.film Available to stream on Amazon / iTunes / Google Play and (Netflix starting January 15, 2018) Film Featured in Interview Portion: BOMBSHELL: THE HEDY LAMARR STORY (2017) / (Director: Alexandra Dean, Producers: Alexandra Dean, Adam Haggiag, Katherine Drew) https://zeitgeistfilms.com/film/bombshellthehedylamarrstory Other Documentaries Mentioned: Bowling for Columbine / 2002 (Director: Michael Moore) Where Will We Invade Next / 2016 (Director: Michael Moore) Shermans March / 1985 (Director: Ross McElwee) Icarus / 2017 (Director: Bryan Fogel) Strong Island / 2017 (Director: Yance Ford) Human Flow / 2017 (Director: Ai Weiwei) Murder Mouth / 2011 (Director: Madeleine Parry) Forks Over Knives / 2011 (Director: Lee Fulkerson) Kedi / 2017 (Director: Ceyda Torun) List of US Theaters exhibiting film (turns out there are a bunch in LA!): http://www.sprocketschool.org/wiki/List_of_analog_film_exhibitors Hammer to Nail Links by Christopher Llewellyn Reed: http://www.hammertonail.com/film-festivals/unrest-review/ Timestamps: 8:30 - Group Review of UNREST 20:45 - Bart Weiss interviews Alexandra Dean of BOMBSHELL 32:38 - Doc Talk Website/Email: www.fogoftruth.com contact@fogoftruth.com Credits: Artwork by Hilary Campbell Intro music by Jeremiah Moore Transitional music by BELLS (thanks to Christopher Ernst)
Jennifer Brea was a Harvard Ph.D. student when she was struck down by a fever that left her bedridden. Years later her film Unrest, documenting her experience with Chronic Fatigue (ME), is on the shortlist for a Documentary Feature Oscar nomination. Here's her story and the global movement it triggered.
On Twitter: @jenbrea @unrestfilm @thompowers @PureNonfictionUnrest website: www.unrest.filmPure Nonfiction is distributed by the TIFF podcast network.
The Oscar Documentary Feature Short List of 15 films includes the underdog entry “Unrest” by first time director Jennifer Brea. Her film explores the disease commonly known as “chronic fatigue syndrome” – a name many patients resent as misleading. The official name is Myalgic Encephalomyelitis or M.E. Jennifer contracted the disease in her late 20s […] The post PN 61: Jennifer Brea on “Unrest” appeared first on Pure Nonfiction.
Charles Ortleb, the publisher and editor-in-chief of New York Native, discusses a recent column on Chronic Fatigue Syndrome by Jane E. Brody in The New York Times. He also discusses the reporting he published by Neenyah Ostrom in New York Native on Chronic Fatigue Syndrome three decades earlier. Not only did The New York Times ignore Ortleb's dedication to covering Chronic Fatigue Syndrome epidemic, but the paper also mocked Ortleb when his paper went out of business in 1997 after a coordinated boycott by the AIDS activist group Act Up. Ortleb's account of his newspaper's attempt to bring the Chronic Fatigue Syndrome epidemic to the public's attention can be found in his book The Chronic Fatigue Syndrome Epidemic Cover-up which is available at Amazon Previous Podcasts The AIDS and Chronic Fatigue Syndrome Connection The Disturbing Autism and Chronic Fatigue Syndrome Connection The mathematician who insists that the HIV story of AIDS does not add up. The "Dediscovery" of HIV: The Australian scientists who almost destroyed the AIDS paradigm and may have inadvertently found the key to the Chronic Fatigue Syndrome epidemic. The Interview with Dr. Jose Montoya, one of the world's leading Chronic Fatigue Syndrome researchers. A discussion of Jonathan Lyon, a man with Chronic Fatigue Syndrome whose father had AIDS. Is there a connection? Will he be a better spokesperson for CFS than Laura Hillenbrand and Jennifer Brea? How the mistakes of CDC researcher Mary Guinan helped create the Chronic Fatigue Syndrome disaster. Is Anthony Fauci the Bernie Madoff of AIDS and Chronic Fatigue Syndrome? Why are Chronic Fatigue Syndrome patients infected with the AIDS-associated Kaposi’s Sarcoma Virus? Did it come from pigs? Chronic Fatigue Syndrome and the Centers for Disease Control's HIV Ponzi scheme. Are AIDS and Chronic Fatigue Syndrome the New Tuskegee Syphilis Experiment? An interview with Hillary Johnson, one of the world's most important Chronic Fatigue Syndrome journalists. * Please support this radio show by buying one or more of Charles Ortleb's books on the dishonest science and politics of Chronic Fatigue Syndrome, HHV-6, HIV, and AIDS. Charles Ortleb's books on Amazon All are available in print and Kindle versions. Truth to Power The definitive history of the intertwined epidemics of AIDS and Chronic Fatigue Syndrome. Iatrogenocide Notes for a political philosophy of epidemiology and science inspired by the fraud and deceit in AIDS and Chronic Fatigue Syndrome research. The Stonewall Massacre A provocative work of fiction that asks what would have happened is the gay movement had been totally destroyed at the Stonewall Riots. Pig: A Memoir The Animal Farm for a new generation. A laugh-out-loud political satire about the new totalitarianism of public health. Butterfly Ghosts Charles Ortleb's stunning first collection of poetry. The Last Lovers on Earth The Closing Argument Iron Peter Silence, Exile, and Cunning Holocaust II His play:The Black Party His albums on Spotify (as lyricist) Collaboration * The Lady Upstairs * The Girl from Perkins Cove * Hey You * Existentialist
Jennifer Brea has ME, known to many as chronic fatigue syndrome, and is director of the multi-award winning documentary film Unrest. In it, she documents her personal journey by video on a smart phone - including those moments where she finds herself lying flat out on the floor. She and husband Omar spoke to the BBC's Natasha Lipman who also has the condition.
Jennifer Brea is a Harvard PhD student soon to be engaged to the love of her life when she’s struck down by a mysterious fever that leaves her bedridden. She becomes progressively more ill, eventually losing the ability even to sit in a wheelchair, but doctors tell her it’s "all in her head." Unable to convey the seriousness and depth of her symptoms to her doctor, Jennifer begins a video diary on her iPhone that eventually becomes the feature documentary film Unrest. Once Jennifer is diagnosed with myalgic encephalomyelitis (ME), commonly called chronic fatigue syndrome, she and her new husband, Omar, are left to grapple with how to live in the face of a lifelong illness. Refusing to accept the limitations of bedbound life, Jennifer goes on an inspiring virtual voyage around the world where she finds a hidden community of millions confined to their homes and bedrooms by ME. These patients use the internet, Skype and Facebook to connect to each other — and to offer support and understanding. Many ME patients have experienced uncertainty, confusion and even disbelief from the medical community and society as a whole. After all, it’s easy to ignore a disease when patients are too sick to leave their homes. In Unrest, Jennifer shares her pain and the most intimate moments of her life in order to offer hope and visibility to those who suffer alone in dark, silent rooms. Though Jennifer and Omar may have to accept that they will never live the life they originally dreamed about, together they find resilience, strength, and meaning in their community and each other. Director, subject and activist Jennifer Brea joins us to talk about her journey, illness and her determination to make things better for people living with ME. For news and updates go to: unrest.film Help raise awareness and take action, go to: unrest.film/time-for-unrest
In this episode, journalist Charles Ortleb reads the first chapter of Truth to Power, his paradigm-changing history of the relationship between the AIDS and Chronic Fatigue Syndrome epidemics. Charles Ortleb’s Truth to Power takes you inside the New York Native, one of the most unique and courageous newspapers of the twentieth century. Shortly after starting his small New York City newspaper in late 1980, one of the biggest scientific and political stories of our time fell into his lap in the form of the AIDS and Chronic Fatigue Syndrome epidemic. What he did with that story has secured his newspaper’s place in history. Under his guidance, a succession of intrepid journalists did some of their greatest work uncovering the crucial facts about the labyrinthine epidemic. The New York Times recently described Ortleb's early work on AIDS as "visionary." Ortleb made the decision to follow the facts wherever they led. His team of uncompromising investigative reporters inevitably stepped on the toes of the most powerful people in the medical and political establishment. Perhaps not surprisingly, the latter fought back by seeking to discredit the New York Native and even, in time, close its doors. But Ortleb stood his ground for as long as possible and as a result the world now can have a clear understanding of the relationship of AIDS, Chronic Fatigue Syndrome, and HHV-6, the transmissible virus that now threatens everyone on this planet. Truth to Power is not just a compelling work of journalism and history, but also a major contribution to the intellectual life of our time. Truth to Power has been the #1 AIDS book on Kindle for the past two weeks. Previous episodes of Truth to Power The Disturbing Autism and Chronic Fatigue Syndrome Connection The mathematician who insists that the HIV story of AIDS does not add up. * The "Dediscovery" of HIV: The Australian scientists who almost destroyed the AIDS paradigm and may have inadvertently found the key to the Chronic Fatigue Syndrome epidemic. * The Interview with Dr. Jose Montoya, one of the world's leading Chronic Fatigue Syndrome researchers. * A discussion of Jonathan Lyon, a man with Chronic Fatigue Syndrome whose father had AIDS. Is there a connection? Will he be a better spokesperson for CFS than Laura Hillenbrand and Jennifer Brea? * How the mistakes of CDC researcher Mary Guinan helped create the Chronic Fatigue Syndrome disaster. * Is Anthony Fauci the Bernie Madoff of AIDS and Chronic Fatigue Syndrome? * Why are Chronic Fatigue Syndrome patients infected with the AIDS-associated Kaposi’s Sarcoma Virus? Did it come from pigs? * Chronic Fatigue Syndrome and the Centers for Disease Control's HIV Ponzi scheme. * Are AIDS and Chronic Fatigue Syndrome the New Tuskegee Syphilis Experiment? * An interview with Hillary Johnson, one of the world's most important Chronic Fatigue Syndrome journalists. You can show your approval and support for this radio show by buying one or more of Charles Ortleb's books on the dishonest science and politics of Chronic Fatigue Syndrome, HHV-6, HIV, and AIDS. Charles Ortleb's books on Amazon All are available in print and Kindle versions. Truth to Power A new bestseller on Amazon Kindle The definitive history of the intertwined epidemics of AIDS and Chronic Fatigue Syndrome. Iatrogenocide Notes for a political philosophy of epidemiology and science inspired by the fraud and deceit in AIDS and Chronic Fatigue Syndrome research. The Stonewall Massacre A provocative work of fiction that asks what would have happened is the gay movement had been totally destroyed at the Stonewall Riots. Pig: A Memoir The Animal Farm for a new generation. A laugh-out-loud political satire about the new totalitarianism of public health. Butterfly Ghosts Charles Ortleb's stunning first collection of poetry. The Last Lovers on Earth The Closing Argument Iron Peter Silence, Exile, and Cunning Holocaust II His play:The Black Party His albums on Spotify (as lyricist) Collaboration * The Lady Upstairs * The Girl from Perkins Cove * Hey You * Existentialist
Jennifer Brea was an avid traveler, a Harvard PhD student and a Princeton grad. She was engaged to be married to the man she loved. Then one day she couldn't get out of bed with an illness that went undiagnosed for over a year. Until finally she started to meet other people--mostly women--who had the same problem: a misunderstood illness, generically described as "Chronic Fatigue Syndrome" or what used to be called "hysteria." To take control of her life--and to be taken seriously, she started to film herself, others like her and the few experts there are. Her film is called "Unrest." Inflection Point is brought to you by FreshBooks’ new cloud accounting software that makes it easy to invoice, track expenses and get paid online. Try it free for 30 days.
Charles Ortleb, the author of Truth to Power, interviews Dr. Michael J. Goldberg, the author of The Myth of Autism. Goldberg is the President of the Neuro-Immune Dysfunction Syndromes (NIDS) Medical Advisory Board and has been on the clinical teaching staff at both UCLA and Cedars-Sinai Hospitals. Dr. Goldberg has challenged the conventional wisdom about so-called "autism," arguing that it is not psychological or developmental, but a very treatable medical disease. Based on twenty-three years of treating patients, he believes there is strong evidence to show that, in its new epidemic form, what is called "autism" is actually caused by a dysfunction of the neuro-immune system and often by secondary neurotropic viruses that impact the neuro-immune system and brain. He believes that "autism" is connected to illnesses such as chronic fatigue syndrome and ADD/ADHD. Goldberg explains why he thinks it is a tragic mistake to blame vaccines for "autism" when viruses and autoimmunity seem to be the real issues. * Charles Ortleb is the world's first newspaper publisher and editor to take the intertwined epidemics of AIDS and Chronic Fatigue Syndrome seriously. He has become the leading expert on the political relationship between Chronic Fatigue Syndrome and AIDS. Read a free excerpt from Truth to Power, his Amazon bestseller here. His growing list of podcasts take you deep inside the dark jungle of AIDS and Chronic Fatigue Syndrome science, politics, and fraud. Click shows below to begin listening. And please come back. Here you'll find a ton of things you never knew or thought about Previous episodes of Truth to Power The AIDS and Chronic Fatigue Syndrome Connection The mathematician who insists that the HIV story of AIDS does not add up. * The "Dediscovery" of HIV: The Australian scientists who almost destroyed the AIDS paradigm and may have inadvertently found the key to the Chronic Fatigue Syndrome epidemic. * The Interview with Dr. Jose Montoya, one of the world's leading Chronic Fatigue Syndrome researchers. * A discussion of Jonathan Lyon, a man with Chronic Fatigue Syndrome whose father had AIDS. Is there a connection? Will he be a better spokesperson for CFS than Laura Hillenbrand and Jennifer Brea? * How the mistakes of CDC researcher Mary Guinan helped create the Chronic Fatigue Syndrome disaster. * Is Anthony Fauci the Bernie Madoff of AIDS and Chronic Fatigue Syndrome? * Why are Chronic Fatigue Syndrome patients infected with the AIDS-associated Kaposi’s Sarcoma Virus? Did it come from pigs? * Chronic Fatigue Syndrome and the Centers for Disease Control's HIV Ponzi scheme. * Are AIDS and Chronic Fatigue Syndrome the New Tuskegee Syphilis Experiment? * An interview with Hillary Johnson, one of the world's most important Chronic Fatigue Syndrome journalists. You can show your approval and support for this radio show by buying one or more of Charles Ortleb's books on the dishonest science and politics of Chronic Fatigue Syndrome, HHV-6, HIV, and AIDS. Charles Ortleb's books on Amazon All are available in print and Kindle versions. Truth to Power A new bestseller on Amazon Kindle The definitive history of the intertwined epidemics of AIDS and Chronic Fatigue Syndrome. Iatrogenocide Notes for a political philosophy of epidemiology and science inspired by the fraud and deceit in AIDS and Chronic Fatigue Syndrome research. The Stonewall Massacre A provocative work of fiction that asks what would have happened is the gay movement had been totally destroyed at the Stonewall Riots. Pig: A Memoir The Animal Farm for a new generation. A laugh-out-loud political satire about the new totalitarianism of public health. Butterfly Ghosts Charles Ortleb's stunning first collection of poetry. The Last Lovers on Earth The Closing Argument Iron Peter Silence, Exile, and Cunning Holocaust II His play:The Black Party His albums on Spotify (as lyricist) Collaboration * The Lady Upstairs * The Girl from Perkins Cove * Hey You * Existentialist Listen to "The Lady Upstairs," the album on Spotify inspired by The Chronic Fatigue Syndrome Epidemic Cover-up. Lyrics by Charles Ortleb. Music and performance by Chris Davidson. This album is also available on Amazon, Apple Music, iTunes, Google, and Deezer. Please help raise awareness about Chronic Fatigue Syndrome by including these songs on your Spotify list and by sharing them with your friends and family.
Francine Stock talks to director Jennifer Brea, who turned the camera on herself as she began to fight a disease that the medical profession does not always recognise - ME. Actress Edina Ronay kicks off a new series I Was In The Worst Movie Ever Made, making the case for Prehistoric Women, in which she starred in a fur bikini as a member of a lost tribe who sacrifice men to their white rhino god. Antonia Quirke finds out what happened when Vivien Leigh's wig from A Streetcar Named Desire went under the hammer this week. Critic Larushka Ivan-Zadeh and writer Rosemary Fletcher slug it out to get their chosen director into The A to Z of film-makers.
Charles Ortleb, the author of Truth to Power, discusses Rebecca Culshaw's scathing critique of the HIV theory of AIDS. Culshaw who is an Assistant Professor of Mathematics at the University of Texas and the author of Science Sold Out, has published several journal articles about the mathematical modeling of HIV immunology. After working for a decade on HIV, Culshaw came to the conclusion that the HIV/AIDS hypothesis is untenable and the cause of a reign of terror and discrimination against the gay and black communities. Charles Ortleb is the world's first newspaper publisher and editor to take the intertwined epidemics of AIDS and Chronic Fatigue Syndrome seriously. He has become the leading expert on the political relationship between Chronic Fatigue Syndrome and AIDS. His growing list of podcasts take you deep inside the dark jungle of AIDS and Chronic Fatigue Syndrome science, politics, and fraud. Click shows below to begin listening. And please come back. Here you'll find a ton of things you never knew or thought about. The "Dediscovery" of HIV: The Australian scientists who almost destroyed the AIDS paradigm and may have inadvertently found the key to the Chronic Fatigue Syndrome epidemic. * The Interview with Dr. Jose Montoya, one of the world's leading Chronic Fatigue Syndrome researchers. * A discussion of Jonathan Lyon, a man with Chronic Fatigue Syndrome whose father had AIDS. Is there a connection? Will he be a better spokesperson for CFS than Laura Hillenbrand and Jennifer Brea? * How the mistakes of CDC researcher Mary Guinan helped create the Chronic Fatigue Syndrome disaster. * Is Anthony Fauci the Bernie Madoff of AIDS and Chronic Fatigue Syndrome? * Why are Chronic Fatigue Syndrome patients infected with the AIDS-associated Kaposi’s Sarcoma Virus? Did it come from pigs? * Chronic Fatigue Syndrome and the Centers for Disease Control's HIV Ponzi scheme. * Are AIDS and Chronic Fatigue Syndrome the New Tuskegee Syphilis Experiment? * An interview with Hillary Johnson, one of the world's most important Chronic Fatigue Syndrome journalists. * You can show your approval and support for this radio show by buying one or more of Charles Ortleb's books on the questionable science and politics of Chronic Fatigue Syndrome, HHV-6, HIV, and AIDS. Charles Ortleb's books on Amazon All are available in print and Kindle versions. Truth to Power The definitive history of the intertwined epidemics of AIDS and Chronic Fatigue Syndrome. Iatrogenocide Notes for a political philosophy of epidemiology and science inspired by the fraud and deceit in AIDS and Chronic Fatigue Syndrome research. The Stonewall Massacre A provocative work of fiction that asks what would have happened is the gay movement had been totally destroyed at the Stonewall Riots. Pig: A Memoir The Animal Farm for a new generation. A laugh-out-loud political satire about the new totalitarianism of public health. Butterfly Ghosts Charles Ortleb's stunning first collection of poetry. The Last Lovers on Earth The Closing Argument Iron Peter His play:The Black Party Listen to "The Lady Upstairs," the album on Spotify inspired by The Chronic Fatigue Syndrome Epidemic Cover-up. Lyrics by Charles Ortleb. Music and performance by Chris Davidson. This album is also available on Amazon, Apple Music, iTunes, Google, and Deezer. Please help raise awareness about Chronic Fatigue Syndrome by including these songs on your Spotify list and by sharing them with your friends and family. n>
Getting your first documentary grant can be akin to getting into your first documentary film festival. That is, it is often the first one that is the most difficult one to get. Getting that first grant can often be the keystone to making other grants happen. So what are the tricks to getting that first grant for your documentary film? Well, that's exactly what we'll tackle in episode #41. We've had a lot of feedback that you are looking for more information on writing treatments and applying for documentary film grants. This can serve as just the beginning. (As there will be much more coming!) Podcast Conversation In our shared conversation with a doc industry guest, we'll have a conversation with http://www.jenniferbrea.com/ (Jennifer Brea), the filmmaker behind https://www.unrest.film/ (Unrest), a documentary film that has taken the festival circuit and the medical community by storm. She is the star (if you will) of this deeply personal exploration of chronic illness and how through documentary filmmaking, she has been able to find some answers not only for herself, but for a global population that are all suffering from the condition known as http://www.meassociation.org.uk/about/what-is-mecfs/ (ME/CFS). Unrest has its theatrical premiere on the day that we release this episode! Film Trailer Watch the trailer for Unrest: https://www.youtube.com/watch?v=JvK5s9BNLzA&t=1s Subscribehttps://podcasts.apple.com/us/podcast/the-documentary-life/id1112679868 (Apple) | https://open.spotify.com/show/0wYlYHJzyk3Y7fHzDDwvmp (Spotify) | https://www.stitcher.com/podcast/thedocumentarylife/the-documentary-life (Stitcher) | Rate and ReviewIf you have found value in this podcast please leave a review so it can become more visible to others. Simply click the https://itunes.apple.com/us/podcast/documentary-life-filmmaking-documentary-films-documentary/id1112679868?mt=2 (link) and then click on the Ratings and Reviews tab to make your entry. Thank you for your support!
Charles Ortleb, the author of Truth to Power, discusses the arguments of the Perth Group, the Australian scientists who have been under attack from the AIDS establishment for many years for insisting that HIV was never properly isolated and that all the diagnostic tools and treatments for AIDS are based on a major scientific error. Ortleb argues that that the Perth Group has not received the credit for their major contribution because their idea about what does cause AIDS is a kind of homophobic scapegoating theory that AIDS is caused by the oxidative stress resulting from gay lifestyle issues. While they deserve credit for calling AIDS a disease that involves oxidative stress, they fail to recognize that a pandemic of virally-caused oxidative stress is being caused by the family of HHV-6 viruses which Ortleb refers to as "The Fifty Shades of AIDS Viruses." The work of French scientist Etienne de Harven is also discussed. De Harven argues that HIV is being confused with harmless endogenous retroviruses in AIDS patients. Ortleb argues that recent work shows that the other AIDS virus, HHV-6, reactivates a very harmful endogenous retrovirus called HERV-K18 which acts like a "superantigen" that can dysregulate the immune system. HERV-K18 may show that all of these scientists were on the right track but didn't see that HHV-6 was causing a much bigger epidemic than AIDS (which includes Chronic Fatigue Syndrome) and was creating confusion by introducing confounding endogenous retroviral issues. Ortleb also suggests that Dr. Jose Montoya, who hinted in a prior show that he is looking at the role of reactivated and harmful endogenous retroviruses in Chronic Fatigue Syndrome, may finally sort all of this out if he can show that a destructive endogenous retrovirus is part of the puzzle of Chronic Fatigue Syndrome. That finding could finally show that Chronic Fatigue Syndrome and AIDS are actually one variable and multisystemic epidemic of immune dysfunction. Don't miss these fascinating previous episodes of "Truth to Power." The Interview with Dr. Jose Montoya, one of the world's leading Chronic Fatigue Syndrome researchers. A discussion of Jonathan Lyon, a man with Chronic Fatigue Syndrome whose father had AIDS. Is there a connection? Will he be a better spokesperson for CFS than Laura Hillenbrand and Jennifer Brea? How the mistakes of CDC researcher Mary Guinan helped create the Chronic Fatigue Syndrome disaster. Is Anthony Fauci the Bernie Madoff of AIDS and Chronic Fatigue Syndrome? Why are Chronic Fatigue Syndrome patients infected with the AIDS-associated Kaposi’s Sarcoma Virus? Did it come from pigs? Chronic Fatigue Syndrome and the Centers for Disease Control's HIV Ponzi scheme. Are AIDS and Chronic Fatigue Syndrome the New Tuskegee Syphilis Experiment? An interview with Hillary Johnson, one of the world's most important Chronic Fatigue Syndrome journalists. * Like what we're doing on "Truth to Power"? To become a supporting patron of Charles Ortleb's "Truth to Power" all you have to do is buy one of these books in print or on Kindle. Charles Ortleb's books on Amazon Truth to Power Truth to Power exposes the truth about HHV-6, AIDS, and Chronic Fatigue Syndrome the fearless way Woodward and Bernstein exposed the truth about Watergate. Iatrogenocide A new political philosophy of epidemiology and science inspired by the CDC's homophobic and racist separation of AIDS and Chronic Fatigue Syndrome. The Stonewall Massacre An alternative work of history which asks if Chronic Fatigue Syndrome would have been called AIDS if the gay movement had been completely destroyed. Pig: A Memoir The Animal Farm of our time. This novel uses satire to capture the corrupt politics of the pseudo science used to conceal the truth about Chronic Fatigue Syndrome. Butterfly Ghosts Charles Ortleb's disturbing, funny, and provocative first collection of poetry. The Last Lovers on Earth A collection of short stories that captures the tragedy and comedy of a gay community completely hoodwinked by public health authorities and AIDS activist trolls. The Closing Argument A novella about the homophobic and racist politics that built the wall between AIDS and Chronic Fatigue Syndrome. Iron Peter A novel that uses dark human and satire to warn the gay community about what the cult of AIDS activist is doing to scientific truth. His play: The Black Party A play that makes fun of what Larry Kramer, Tony Kushner, and the AIDS activists have done to the gay community. If you can't afford to support "Truth to Power" by buying one of these books, then please listen to Charles Ortleb's new album about Chronic Fatigue Syndrome called "The Lady Upstairs." It's on Spotify here. Thank you for your support!
Charles Ortleb, the author of The Chronic Fatigue Syndrome Epidemic Cover-up, the epic account of the intertwined history, science, and politics of AIDS and Chronic Fatigue Syndrome, interviews Stanford University's Dr. Jose Montoya, a scientist who is quickly becoming the world's most celebrated Chronic Fatigue Syndrome researcher. Dr. Montoya discusses his groundbreaking new research which has identified 17 cytokines which correlate with the severity of Chronic Fatigue Syndrome. In one fell swoop, Montoya has established that Chronic Fatigue Syndrome is a real disease and one that involves serious inflammation. He also discusses his major breakthrough in treating Chronic Fatigue Syndrome. In an interview that becomes heated and contentious at times, Montoya takes issue with scientists like Judy Mikovits who describes Chronic Fatigue Syndrome as "Non-HIV AIDS." He also argues that Chronic Fatigue Syndrome is not a contagious disease in the traditional sense and he himself does not warn patients about transmitting it sexually although he does suggest it could be transmitted via blood transmission. He also makes some news at end of the interview in a tantalizing hint that he might be closing in on a possible cause of Chronic Fatigue Syndrome. In his closing remarks, Charles Ortleb argues that, ironically, Montoya has created a brilliant blood test that may actually prove that Chronic Fatigue Syndrome is transmissible and contagious when sexual and family contacts of Chronic Fatigue Syndrome patients are tested for the 17 cytokines he has correlated with the severity of Chronic Fatigue Syndrome. Learn more about Charles Ortleb's books and decades of reporting on CFS and AIDS at www.CharlesOrtleb.com Special offer for listeners of this podcast: You can purchase Charles Ortleb's The Chronic Fatigue Syndrome Epidemic Cover-up, his 466-page history of the cover-up of the politics and science of Chronic Fatigue Syndrome on Kindle here. Some of the pages on which transmission is discussed in Hillary Johnson's Osler's Web: 187, 231, 88, 88-90, 290, 358, 376, 384, 469, 522, 327-28, 46, 87-88, 119, 132, 165, 197, 199, 228, 406-7, 465, 470, 473, 475, 512, 551, 562, 574, 644-45, 671, 61-62, 16, 629, 666-67, 329, 330, 408, 433, 57, 335-36, 88, 222, 440, 199, 201, 213, 221-22, 381, 382, 624-26. The Doctor Who Blew the Whistle on Chronic Fatigue Syndrome In the April 29, 1991 issue of New York Native, there was a long interview, conducted by Neenyah Ostrom, with a very honest and outspoken doctor named Paul Lavinger. He was an internist who developed chronic fatigue syndrome in December 1989. His wife had contracted it in 1987. Ostrom reported, “In his extended household, five people now have been diagnosed with or are starting to develop symptoms of CFS. The Lavingers also have a five-year-old dog that ‘collapses for three hours’ after being taken for a walk.” Lavinger told Ostrom, “From 25 years’ experience of practicing medicine and seeing how government agencies deal with outbreaks of illnesses, [he] believes that a ‘conspiracy of dunces’ is keeping the truth about chronic fatigue syndrome from the American public. . . . It’s absolutely ironic that the patients who have this illness, who are often turned away by physicians, are sicker than most patients in any doctor’s practice.” He also said, “The government doesn’t want to let the public know that they might be at risk, because if the public knew that they were at risk, then the public would demand certain things of the government. . . . But the government doesn’t want a public outcry. I think the government really wants to keep this quiet.” He also believed, “The insurance companies are glad that the government doesn’t want to admit that this thing is real, because the insurance companies don’t want to have to pay.” He also told Ostrom, “Families are in this conspiracy because they don’t want to feel guilty for not taking care of the sick family member—it’s easier to say that it’s your own damn fault. Can you imagine walking up to someone in an iron lung and saying ‘It’s your own damn fault you’re in this iron lung?’ So families absolve themselves of guilt. I know this story of a young girl with this illness: She had a typical story, there were lots of things she couldn’t do. So the family put her in a mental institution. I mean, they do this in Russia, but . . . the family doesn’t want to admit that the CFS patient is so sick that they might have to care for him or her. It’s easier to get rid of the sick person.” Lavinger had an apocalyptic view of CFS and warned, “If you think the infrastructure of this country is the bridges, tunnels, and highways, you’re wrong—it’s the people. And I’m telling you that everybody could get sick—well, not everybody because there are people who are naturally immune to different kinds of illnesses. But it’s possible that half this country could get sick and that would be a disaster.” In the May 6 issue of New York Native, published the second installment of the interview with Dr. Lavinger. When Ostrom asked him about the transmissibility of CFS, he said, “First of all, this disease is probably caused by a virus. Why do I say that? You know the story about the duck: If it walks like a duck, if it quacks like a duck, it’s a duck? Well if this disease isn’t a virus, it’s a duck. . . . The sheer number of people who are estimated to have CFS, as much as two to five percent of the population—maybe five to twelve million people—speaks to the issue of transmissibility. Too many people are getting the illness.” Lavinger told her, “Practically all the people who got this disease, chronic fatigue syndrome, got it after 1980. . . . I spoke to a doctor who has been sick with CFS for six years but continues to work. In addition to his regular gastroenterology practice, out of the kindness of his heart, he takes care of 100 CFS patients. He told me that, among these 100 patients, he has 10 families. Eight of the ten families have two family members who had CFS; two of the ten families have three sick family members.” Even though most of the evidence pointed to CFS being transmissible, he told Ostrom, “If you call the hotline at the CDC and press the right buttons on your touch-tone phone, they’ll tell you that CFS cannot be transmitted from person to person, period. And in the CDC pamphlet to doctors about this disease, it says exactly the same thing. Learn more about transmission of CFS in hospitals here. Learn more about the transmission of CFS between people and pets here. Dr. Joseph Brewer on HHV-6 in CFS here. Konnie Knox on HHV-6 in AIDS here. Don't miss these fascinating previous episodes of "Truth to Power." A discussion of Jonathan Lyon, a man with Chronic Fatigue Syndrome whose father had AIDS. Is there a connection? Will he be a better spokesperson for CFS than Laura Hillenbrand and Jennifer Brea? How the mistakes of CDC researcher Mary Guinan helped create the Chronic Fatigue Syndrome disaster. Is Anthony Fauci the Bernie Madoff of AIDS and Chronic Fatigue Syndrome? Why are Chronic Fatigue Syndrome patients infected with the AIDS-associated Kaposi’s Sarcoma Virus? Did it come from pigs? Chronic Fatigue Syndrome and the Centers for Disease Control's HIV Ponzi scheme. Are AIDS and Chronic Fatigue Syndrome the New Tuskegee Syphilis Experiment? An interview with Hillary Johnson, one of the world's most important Chronic Fatigue Syndrome journalists. * Like what we're doing on "Truth to Power? To become a supporting patron of Charles Ortleb's "Truth to Power" all you have to do is buy one of these books in print or on Kindle. Charles Ortleb's books on Amazon The Chronic Fatigue Syndrome Epidemic Cover-up This book exposes the truth about HHV-6, AIDS, and Chronic Fatigue Syndrome the fearless way Woodward and Bernstein exposed the truth about Watergate. Iatrogenocide A new political philosophy of epidemiology and science inspired by the CDC's homophobic and racist separation of AIDS and Chronic Fatigue Syndrome. The Stonewall Massacre An alternative work of history which asks if Chronic Fatigue Syndrome would have been called AIDS if the gay movement had been completely destroyed. Pig: A Memoir The Animal Farm of our time. This novel uses satire to capture the corrupt politics of the pseudo science used to conceal the truth about Chronic Fatigue Syndrome. Butterfly Ghosts Charles Ortleb's disturbing, funny, and provocative first collection of poetry. The Last Lovers on Earth A collection of short stories that captures the tragedy and comedy of a gay community completely hoodwinked by public health authorities and AIDS activist trolls. The Closing Argument A novella about the homophobic and racist politics that built the wall between AIDS and Chronic Fatigue Syndrome. Iron Peter A novel that uses dark human and satire to warn the gay community about what the cult of AIDS activist is doing to scientific truth. His play: The Black Party A play that makes fun of what Larry Kramer, Tony Kushner, and the AIDS activists have done to the gay community. If you can't afford to support "Truth to Power" by buying one of these books, then please listen to Charles Ortleb's new album about Chronic Fatigue Syndrome called "The Lady Upstairs." It's on Spotify here. Thank you for your support!
This is a show that could revolutionize the way people look at Chronic Fatigue Syndrome and AIDS. Charles Ortleb discusses Jonathan Lyon, who has written Carnivore, a novel that is a "revenge tragedy" inspired by his struggle with Chronic Fatigue Syndrome. Lyon may soon become the most talked-about Chronic Fatigue Syndrome victim in the world. Jonathan Lyon has suffered from Chronic Fatigue Syndrome for ten years, and in Attitude magazine he reports that he watched his "dad die of HIV." Lyon's condition is referred to as non-HIV AIDS by former National Cancer Institute researcher Judy Mikovits. Ortleb asks the painfully obvious question of whether there is a connection between Lyon's "non-HIV AIDS" and his father's "HIV AIDS." Ortleb also urges Lyon to follow the bold and honest path of CFS activist Karen Lambert rather than celebrity CFS sufferers Laura Hillenbrand and Jennifer Brea. Lambert has been quite vocal about the contagiousness of Chronic Fatigue Syndrome and its connection to AIDS. Ortleb argues that Hillenbrand and Brea are squandering their opportunities to educate the public while they whitewash the disease and fail to discuss all the science (and journalism) that support the reality that Chronic Fatigue Syndrome is a contagious illness and a public health emergency. All of Charles Ortleb's books can be found at www.CharlesOrtleb.com. Charles Ortleb's books on Amazon The Chronic Fatigue Syndrome Epidemic Cover-up Iatrogenocide The Stonewall Massacre Pig: A Memoir Butterfly GhostsThe Last Lovers on EarthThe Closing ArgumentIron PeterSilence, Exile, and CunningHolocaust II His play:The Black Party
Producer/Director of Canary in a Coal Mine follows the lives of several remarkable people living with a Myalgic Encephalomyelitis Chronic Fatigue Syndrome a devastating disease. They are forced to leave careers they loved, abandon the dream of having children, or face the prospect of being locked away in their homes and bedrooms. Worse still, most doctors, and sometimes those closest to them, don't even believe they're really ill. Canary in a Coal Min