Podcasts about mnd association

In this edition Paul Pennington talks to Jo Mountney from the MND Association. Dr Rob Hicks highlights a simple step to reduce the likelihood of Neural Tube Defects and, in the final interview of this podcast, Paul speaks with Stephanie Smith from Dravet Syndrome UK.   

Welcome to the fourth episode in our RCSLT AI series. In this episode we chat with Dr Richard Cave, Project Manager SLT at MND Association and Consultant Speech and Language Therapist, about his work in the field of Artificial Intelligence. Richard has backgrounds in both computing and speech and language therapy and he brings these together in his work with voice banking and AI, working with Goggle, MNDA and most recently in his PhD research at UCL.We cover:Richard's journey with AI and speech and language therapy.What are the opportunities with AI?What are the things to be cautious about? How can we ensure people are not left out.Why speech and language therapists need to be in this space.Interviewees:Dr Richard Cave, Project Manager SLT at MND Association and Consultant Speech and Language Therapist.Resources:Centre for Digital Language Inclusion: https://www.cdl-inclusion.com/RCSLT Artificial Intelligence resources: https://www.rcslt.org/members/delivering-quality-services/artificial-intelligence-resources/ Please be aware that the views expressed are those of the guests and not the RCSLT.Please do take a few moments to respond to our podcast survey: uk.surveymonkey.com/r/LG5HC3R

In this special episode, recorded in Montreal, Canada, we bring you highlights from the International Symposium on ALS/MND 2024 organised by the MND Association. Host Dr Alys Griffiths, Senior Research Fellow at the University of Sheffield, is joined by three expert guests to discuss the latest research and breakthroughs in Amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND). Dr Megan Fowler, a postdoctoral researcher from Flinders University, shares insights into her work on endogenous retroviruses and their role in ALS. Professor Eneida Mioshi, from the University of East Anglia, explores cognitive and behavioural changes in ALS and FTD and their impact on care. Dr Ahmad Al Khleifat, a group leader at King's College London, highlights advancements in genomic research and efforts to diversify ALS studies globally. Key topics include promising therapies like antisense oligonucleotides, the integration of patient voices in research, and the power of collaboration to accelerate progress. For more updates, follow #ALSMNDSymposium on social media or visit https://symposium.mndassociation.org -- Full biographies on all our guests and a transcript can be found on our website: www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode . -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: http://www.instagram.com/dementia_researcher/ http://www.facebook.com/Dementia.Researcher/ http://www.twitter.com/demrescommunity http://www.linkedin.com/company/dementia-researcher http://bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: onelink.to/dementiaresearcher

Welcome to Episode 320 of The County Cricket Podcast! On today's episode, hosts Aaron, Ciaran and Joe sat down to review the standout moments and major talking points from the 2024 County season such as Surrey's historic threepeat, Lancashire and Kent's relegation to the Second Division, Sussex and Yorkshire's promotion back to Division One and the impressive emergence of Derbyshire bowling all-rounder Harry Moore. If you enjoyed this episode please feel free to share it with any cricket fans that you know and be sure to follow us on Twitter for daily County Cricket and Podcast updates!    Check out Ciaran and Joe's socials here:  https://twitter.com/CP_McCarthy https://x.com/Joe_Nuttall9   Check out the MND Association here:  https://www.mndassociation.org/   Check out our Instagram here: https://www.instagram.com/thecountycricketpodcast   Check out our Twitter here: https://twitter.com/TheCountyCrick2   Check out our £1 Patreon membership here:  https://www.patreon.com/thecountycricketpodcast   This episode of The County Cricket Podcast was brought to you in association with our friends at Bear Cricket:  https://www.bearcricket.co.uk/

After succumbing to MND earlier this month, Paul Foreman may no longer be with us, but Peter Ash is alive and kicking - and here on the podcast to chat about his six years playing Paul Foreman! We chat about what it was like to work with the MND Association to bring Paul's journey with the condition to screen, the importance of keeping an element of humour to the story, and reminisce over some of his earlier moments on the cobbles too. Also available as a video on YouTube: https://youtu.be/HNFMC0YrUtM

Welcome to Episode 319 of The County Cricket Podcast! On today's episode, hosts Aaron, Ciaran, Kiel and Joe sat down to review the standout moments and major talking points from Finals Day 2024 such as James Rew's unforgettable T20 Blast debut for Somerset, David Payne's outstanding bowling in the second semi final and the incredible scenes at Edgbaston following Gloucestershire's maiden T20 Blast success. If you enjoyed this episode please feel free to share it with any cricket fans that you know and be sure to follow us on Twitter for daily County Cricket and Podcast updates!    Check out Ciaran, Kiel and Joe's socials here:  https://twitter.com/CP_McCarthy https://www.instagram.com/k.t.v.v_02 https://x.com/Joe_Nuttall9   Check out the MND Association here:  https://www.mndassociation.org/   Check out our Instagram here: https://www.instagram.com/thecountycricketpodcast   Check out our Twitter here: https://twitter.com/TheCountyCrick2   Join our Cricket Draft League using the League Code here:  League Code - 356bffb5ff9e   Check out our £1 Patreon membership here:  https://www.patreon.com/thecountycricketpodcast   This episode of The County Cricket Podcast was brought to you in association with our friends at Bear Cricket:  https://www.bearcricket.co.uk/

Only two episodes of Corrie this week, so we're coming at you early! Today's podcast covers the goings on in Weatherfield between the 29th and the 31st January (Episodes #11176 - 11179). The much teased affair storyline between Tracy and ex-Weathy County player Tommy Orpington finally kicked off this week - and we were pleasantly surprised to find ourselves not wanting to give it the red card! Same too with the Bailey story - we hadn't been too fussed with all the gambling stuff before Christmas, but the revelation on Monday night that Ed knowingly let the builder's yard burn down was a great twist, and we particularly enjoyed everything that Dee-Dee added to those scenes at Number 3 too. As for everything else this week - Bethany's secret investigations, Simon getting a job at the Bistro, Moses deciding to go to London - we weren't too fussed about it, but overall, it was a pretty solid week! In The Kabin, we chat about the new Corrie-endorsed campaign that's been running in the ad breaks this week to raise awareness of all the good work done by the MND Association, and we round off the show with more of your fabulous feedback. Street Talk - 00:14:16 The Kabin - 01:30:37 Feedback - 01:45:37

In this week's episode, Andrew is joined by Ben, Josh and Webby where they have a rundown of the Norfolk Dinner…It was a very late and cold one! Over £3000 was raised from the raffle on the night, which will be going to local charities Heritage House, MND Association, The Trussell Trust and Norfolk MS. A big thank you to everyone who attended and got involved. The Norfolk Farming Conference is coming up very soon at the Norfolk Showground and the gang are looking forward to attending this. Also, the doomsday clock is 90 seconds to midnight and Webby discusses his suspicions and what food essentials he's bringing with him in his bunker if it hits midnight. Market Report w/c Monday 29th January, Andrew gives us his usual run-down of the markets and announces the 2025 date for the Norfolk Dinner and reveals there could be an exclusive guest coming next year. Hosted on Acast. See acast.com/privacy for more information.

In today's episode, we are delving into the groundbreaking world of AI art expression for those with Motor Neuron Disease (or MND) such as ALS. We spoke with guests Franklin Williams and Evan Schmidt from the AREA 23 Agency, along with Richard Cave from the MND Association. Richard Cave is a Speech and Language Therapist, working with the MND Association and also with Google, providing specialist Speech Therapy consultancy to the technology teams.He is also PhD candidate at University College London, national adviser to Royal College of Speech and Language Therapists for voice banking and 2022 Allied Professional of the Year recipient from the International Alliance of ALS/MND Associations.Then from Area 23, we have Franklin Williams and Evan Schmidt. As EVP, Executive Director of Experience Design, Franklin is an ideal blend of creativity, user experience, and technology, and has been using his passion for innovation to elevate the importance of experience design in the advertising industry for nearly 20 years. Along with Franklin we also have Evan Schmidt, Associate Creative Director (Art) at AREA 23. Evan is a dynamic creative fueled by an unwavering passion for AI art. With a background in illustration and a flair for innovation, he seamlessly integrates AI algorithms into his artistic vision, crafting visually stunning and thought-provoking pieces. Together with the team at AREA 23 an IPG Health Company, Evan helped to develop the Mind's Eye app. Mind's Eye is the world's first AI art expression tool for people with MND/ALS. As an Associate Creative Director, Evan inspires his team to embrace the transformative power of AI, creating a new era of visually captivating and intellectually stimulating experiences.In our conversation, we unravelled the journey behind Mind's Eye, exploring its purpose, unique features, and the impact it has on the lives of its users. We also uncover the synergy between Mind's Eye and the Smart Eye assistive technology partner Smartbox (who use our eye tracking to help give a voice to those who are unable to) the pivotal role of eye tracking technology, and hear inspiring user stories. Evan has an exciting call-to-action for our listeners—try Mind's Eye in Grid with a 60-day free trial for Windows or a 30-day free trial for iPad at thinksmartbox.com/try-grid. Get ready for a deep dive into the transformative realm of Mind's Eye and the evolution of human-centric AI!Links of interest: [Try it] Try Mind's Eye in Grid with a 60-day free trial:  thinksmartbox.com/try-grid [Watch] Mind's Eye: https://minds-eye.app/home/[Read] Smart Box: https://thinksmartbox.com/products/eye-gaze/[Get] Smart Eye Smart Box Case Study: https://smarteye.se/testimonials/empowering-people-with-disabilities-with-eye-tracking-technology-a-smartbox-and-smart-eye-collaboration/

The 34th International Symposium on ALS / MND organised by the MND Association took place in Basel, Switzerland from the 6-8 December 2023. In this podcast Dr Alys Griffiths from The University of Sheffield hosts a discussion with three researchers to talk about their talks, and highlights from the biggest annual conference dedicated to ALS and MND research. Sharing news from researchers working around the world to better understand amyotrophic lateral sclerosis and motor neurone disease. -- Sharing their highlights are: Alicia Northall, Postdoctoral Researcher from University of Oxford. Alicia recently moved back to the UK after completing her PhD in Neuroscience at the University of Tubingen / Otto-von-Guericke University Magdeburg in Germany. Alicia's works in Neuroimaging to characterise microstructural changes to the brain in living patients using 7-Tesla MRI. Dr Philip McGoldrick, Research Associate at University of Toronto. Phil completed his PhD at University College London and is interested in the basic mechanisms that contribute to disease progression and investigate them using a mixture of cell and animal models, alongside post mortem patient tissue. Amber Sewell-Green is a PhD Candidate and Accredited Practicing Dietitian (APD) at University of Queensland, Australia. Amber's research is focused on improving Nutrition Care Guidelines for MND looking at energy balance and the role of lipids in ALS. Heather Marriott is a PhD Student at King's College London. Amber undertakes analysis of next-generation sequencing data using bioinformatics and machine learning to advance personalised medicine approaches in ALS/MND. -- For more information about the event visit: https://symposium.mndassociation.org/ You can also get news from the event as it happened on X: https://bit.ly/alsmndsymp Full biographies on all our guests and a transcript can be found on our website https://www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than listen, you'll find a video version of this podcast on our YouTube Channel and website, with captions for those unable to hear. https://youtu.be/nIfDb7imAN0 -- Follow us on Social Media: https://twitter.com/dem_researcher https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/

Misha Grimes is a lifestyle content creator, who recently joined us at the Wimbledon half marathon. Her running journey began, as many people's did in lockdown before in 2022 Misha ran her first Marathon in Brighton in memory of her Dad, who sadly passed away. Misha continues to run not only for herself but to keep that connection with her Dad and has raised much needed funds and awareness for the MND Association. A very inspirational person and someone that really oozes enthusiasm and positivity, you're going to want to put your trainers on after this episode!Full audio only podcast also available on all audio platforms and you can watch all of the conversations here, https://www.youtube.com/playlist?list=PLUOixHzXBQx8_xCqksjbnw9x_geOOEC9G

Today, we're joined by Graeme Bloom - a unique person in the rugby refereeing community. Graeme's a keen supporter of match officials and, despite an MND diagnosis in 2019, he remains committed to staying involved in refereeing our great game. During the conversation we hear about his story and his ambitions to be a referee. We hear a little about his experiences in match officiating so far around the world. We also chat about what he's done since his diagnosis, and what he'd like to be doing while he's able. He's been a match official in Cardiff, London, Edinburgh and in Italy, as well as supporting referees in London, Oxfordshire, Bristol and Kent Referees' Societies. This weekend (12 August 2023) he arranged and hosted a charity match raising funds for the MND Association. Do support them if you're able. Links: Graeme - Instagram: https://www.instagram.com/graemebloom/ Fundraiser website: https://www.rugby4mnd.co.uk/Fundraiser link: https://www.gofundme.com/f/graemes-big-40-challenge During the conversation we mention: Alex Lambe - Rugby referee with Autism: https://www.world.rugby/news/569717 & https://www.facebook.com/AutismInRugby/ Mixed Ability sport - https://www.mixedabilitysports.org/ International Mixed Ability Rugby - Cork 2022 - https://www.imartworldcup.org/ And some helpful resources to help understand Autism and Aspergers, and how we might communicate with playershttps://www.healthline.com/health/aspergers-symptoms-in-adults#takeawayhttps://www.autism.org.uk/advice-and-guidance/topics/communication/tipsIf you have any comments about this episode, or suggestions for future shows, then drop me a line at ref@rugbyreferee.net!You can follow us here:Twitter: RugbyRefereenetInstagram: RugbyRefereenetFacebook: Page: RugbyReferee.netFacebook Group: RugbyReferee.net Community Or you can connect with Keith personally on Twitter or LinkedIn

Today, we're joined by Graeme Bloom - a unique person in the rugby refereeing community. Graeme's a keen supporter of match officials and, despite an MND diagnosis in 2019, he remains committed to staying involved in refereeing our great game. During the conversation we hear about his story and his ambitions to be a referee. We hear a little about his experiences in match officiating so far around the world. We also chat about what he's done since his diagnosis, and what he'd like to be doing while he's able. He's been a match official in Cardiff, London, Edinburgh and in Italy, as well as supporting referees in London, Oxfordshire, Bristol and Kent Referees' Societies. This weekend (12 August 2023) he arranged and hosted a charity match raising funds for the MND Association. Do support them if you're able. Links: Graeme - Instagram: https://www.instagram.com/graemebloom/ Fundraiser website: https://www.rugby4mnd.co.uk/Fundraiser link: https://www.gofundme.com/f/graemes-big-40-challenge During the conversation we mention: Alex Lambe - Rugby referee with Autism: https://www.world.rugby/news/569717 & https://www.facebook.com/AutismInRugby/ Mixed Ability sport - https://www.mixedabilitysports.org/ International Mixed Ability Rugby - Cork 2022 - https://www.imartworldcup.org/ And some helpful resources to help understand Autism and Aspergers, and how we might communicate with playershttps://www.healthline.com/health/aspergers-symptoms-in-adults#takeawayhttps://www.autism.org.uk/advice-and-guidance/topics/communication/tipsIf you have any comments about this episode, or suggestions for future shows, then drop me a line at ref@rugbyreferee.net!You can follow us here:Twitter: RugbyRefereenetInstagram: RugbyRefereenetFacebook: Page: RugbyReferee.netFacebook Group: RugbyReferee.net Community Or you can connect with Keith personally on Twitter or LinkedIn

Owen Blackhurst, Seb White and James Bird catch up this week to talk about 2010 World Cup Diego, Claudio Ranieri, Zola replacing Maradona, walking coffins, Django the Bastard, David Dickinson, ‘Somerset Bez', playoff turnarounds, Marcus Stewart, the brilliant Sabotage Times website, missing apostrophes and commas, Ruud Gullit, exploding dreadlocks, upsetting all of The Holte End, Neil Emblen, a Palace x adidas football, trainers that were two sizes too small, our mate Eli Mengem, leathering footballs into the canal, MUNDIAL Issue 6, Dirk Kuyt's will to win, General John Stones, adventures in wheelchairs, being stablemates with Danny Dyer, iced espressos, too much football and somehow so much more. This episode contains a discussion of Motor Neurone Disease; for more information, please visit the MND Association website. You can also donate to the charity challenge Owen's mates are doing for their friend James Baldock by clicking hereSubscribe to CLUB MUNDIAL nowhttps://mundialmag.coSign up for the Newsletterhttps://mundialmag.co/newsletterFollow MUNDIAL on Twitter - @mundialmagFollow MUNDIAL on Instagram - @mundialmag Hosted on Acast. See acast.com/privacy for more information.

In this captivating episode of the MND Matters podcast, Academy Award-winning actor Eddie Redmayne takes the reins as he sits down with the incredible Lesley Connor, an MND Association volunteer whose unwavering dedication has spanned two decades. Join us as we explore Lesley's journey, from her various roles within the Association to her current position as an MND Connect Helpline volunteer. Throughout this heartfelt conversation, Eddie and Lesley delve into the challenges, triumphs, and the immeasurable impact Lesley has made in the lives of individuals and families affected by motor neurone disease – shining a light on the vital role volunteers play across the country. Tune in and be inspired by Lesley's passion, resilience, and selflessness as she shares her experiences and the work carried out by the MND Association. Get ready for an episode that will broaden your understanding and remind us all of the power of community. Eddie and Lesley, the stage is yours. If you would like to volunteer for the MND Association, click here to find a role that suits you.

Did you know that it's estimated that 80% of people living with MND will need a wheelchair during their time living with the condition? In this insightful episode, our guest host, Pauline, who is Head of National Care at the MND Association, is joined by Simon Aspray, who is living with MND, and Maggy Hevicon, one of two specialist wheelchair therapists at the MND Association. Maggy, along with the care improvement coordinator, works with NHS wheelchair services to make sure people living with MND get what they need, when they need it. The Association also provides financial grants for people living with MND towards a variety of wheelchair accessories which are not funded by statutory services. Last year the Association funded almost £70,000 of these grants for people living with MND, including one for Simon, who shares the impact of this support. For more information about wheelchair support visit our Wheelchair Support Service.

This month we're joined by special guest host, Good Morning Britain's Charlotte Hawkins. Charlotte speaks with Kuai Peng and David who discuss their experiences of being an unpaid carer for somebody with MND. Both highlight the need for more support for families who often take on the bulk of caring responsibilities and are shocked to hear MND Association stats about how few carers are aware of their right to carer's assessment. If you'd like to get involved in the Support MND Carers campaign, check out our webpage! If you care for somebody with MND, we have a support page here. The MND Connect helpline is available at 0808 802 6262 or mndconnect@mndassociation.org.

In this episode, hosts Karl & Craig sit down with MND Fundraiser and Lifelong Wigan fan Graham Berry and Director of Rugby at the NEW Ravens RLFC, Jason Spafford.

This month, MND Matters is a little different. Instead of one episode, we're sharing four short stories. Each features someone who has fundraised for the MND Association and those affected by motor neurone disease. This is all part of our January campaign, #TakeOverMND. In the last of our weekly episodes, our host Helen chats to Julie, who is living with motor neurone disease (MND). Despite the challenges she faces, Julie has taken part in a number of fundraising events, including our Mission 5000 challenge. She tells us why fundraising is so important to her, how the support she's received from the Association has made a difference and why she wanted to give back. This month we need your help to #TakeOverMND for all those living with MND in the UK. Find a fundraising event for you this month - click here!

This month, MND Matters is a little different. Instead of one episode, we're sharing four short stories. Each features someone who has fundraised for the MND Association and those affected by motor neurone disease. This is all part of our January campaign, #TakeOverMND. This week we meet Richard. Richard's dad died of MND in 2013. Since then he has galvanised ‘the MND Army' - a community of friends, family and colleagues who've been tireless in raising funds and awareness in the fight against MND. He shares his ideas, experiences and motivations. This month we need your help to #TakeOverMND for all those living with MND in the UK. Find a fundraising event for you this month - click here!

This month, MND Matters is a little different. Instead of one episode, we're sharing four short stories. Each features someone who has fundraised for the MND Association and those affected by motor neurone disease. This is all part of our January campaign, #TakeOverMND. This week we meet Abi. Last year Abi completed the Thames Bridges Ultra Challenge, along with a team of her colleagues and family, to show their support for her dad, who is living with MND. Abi talks to our host Helen about the trek and why it was such a positive experience. This month we need your help to #TakeOverMND for all those living with MND in the UK. Find a fundraising event for you this month - click here!

This month, MND Matters is a little different. Instead of one episode, we're sharing four short stories. Each features someone who has fundraised for the MND Association and those affected by motor neurone disease. This is all part of our January campaign, #TakeOverMND. First up is Luke. Our host, Helen, chats with Luke about his fundraising in honour of his mum, who is living with MND. Luke has set himself the incredible challenge of running 5K for a year, running the distance for 365 days straight. This month we need your help to #TakeOverMND for all those living with MND in the UK. Find a fundraising event for you this month - click here!

“This has been the job of my life.” Sally Light, Chief Executive, sat down with host Steph to reflect on ten eventful years leading the MND Association ahead of stepping down from the role at the end of 2022. Your questions have shaped this episode and in answering them, Sally shares some of her proudest moments, her hopes for the future of MND research and her parting words for the MND community.

Bryan joins us to talk about Rugby League Shirt Day. 23 September 2022 will be the first annual Rugby League Shirt Day. Rugby League fans are encouraged to put on their favourite shirt, t-shirt, vest, hoodie, whatever Rugby League clobber you like to join in this day, to help raise funds for two charities close to Rugby League's heart, MND Association and The Steve Prescott Foundation.Donate here if you can: https://www.justgiving.com/team/rugbyleagueshirtdayTwitter: https://twitter.com/RLShirtDay or search on other social media channels

In this thought-provoking episode, Helen is joined by MND researchers; Professor Majid Hafezparast, Dr Greig Joilin, Libby Moody and MND Association Branch volunteer, Hetty Smith. They all share the importance of gifts in Wills and the difference they have made to their work in research and care. Debbie Hyslop, Legacy Marketing Officer at the MND Association, also joins us to explain what gifts in Wills are, dispel the myths around these gifts and shares how you can write your Will for free with the MND Association. More information about gifts in Wills, our free Will-writing services, and our legacy events can be found on our website. You can also contact our Legacies Team by phone 01604 611 799 or email us at legacies@mndassociation.org.

A very special podcast this week, as we announce Rugby League Shirt Day! A New Annual Event to raise money for MND Association and The Steve Prescott Foundation. Wear your Rugby League Shirt with Pride, donate and share with us. Upload a picture of yourself wearing any kind of Rugby League related shirt and use the hashtags #RLShirtDay #ShowUsYourShirt #ShirtSelfie. Nominate your friends to do the same and lets spread it as far and as wide a possible!  Just Giving page - https://justgiving.com/team/rugbyleagueshirtday

Becky is joined by social media influencer, Misha Grimes, who lost her dad, John, to motor neurone disease in August 2021. Misha became a carer for her dad during his illness. In this emotional but uplifting episode, Misha shares with you the journey her and her family have been through since John's diagnosis until now, nearly a year since his death. We explore topics such as denial, acceptance, the pandemic, being a carer and celebrating the John's life. Find out more about the MND Association's support for children and young people here.

Celebrate pride month with the MND Association. MND does not discriminate, it can affect anybody – including the LGBTQ+ community. In this episode we bring together Sam, who is living with MND, and Angela who is a volunteer at Opening Doors, a charity providing information and support services specifically for LGBTQ+ people over 50 in the UK. They discuss some of the challenges such as preconceived assumptions or barriers to healthcare and why inclusive health and social care is vital for all people living with MND. They are joined by MND Association Chief Executive, Sally Light, who explains what we are doing to improve inclusivity so that everyone feels comfortable accessing our services. If you would like to get in touch with the MND Association LGBTQIA network group, please email LGBTQIA@mndassociation.org. If you have been affected by any of the issues discussed in this episode, please contact MND Connect for support.

Beck is joined by Nick Goldup, Director of Care Improvement at the MND Association, and Stuart Moss, Head of IT Innovation at Rolls Royce, who together form part of the MND Next Generation Think Tank. In this episode, Nick and Stuart discuss how the Think Tank came about, who is involved, and how tech giants are collaborating to create solution for issues facing people living with MND. We also get to hear from Mike, living with MND, his partner Mary, and Diana, who is also living with MND. Together they tell us about their experiences of using I Will Always Be Me to bank their voice.

In this episode, GOLD talks to Wayne Best, Chief Creative Officer, VMLY&R, who offers his insights on the innovative ‘I Will Always Be Me' project with the MND Association – a fascinating and important cause with so much potential to inspire the pharma industry. But that's not all! Join us to delve into the latest GOLD infographic on supply chain stability and hear the latest industry news you might have missed. If you're interested in learning more about the topic areas discussed in this episode, check out the following content: Risks to supply chain vulnerability – infographic https://www.emg-gold.com/_files/ugd/b8a9db_2fee0c32ea6940e69a36e4d939eedade.pdf Reacting to supply chain risks https://www.emg-gold.com/post/reacting-to-supply-chain-risks AI and Big Data at the forefront of pharma in 2022 https://www.emg-gold.com/post/ai-and-big-data-at-the-forefront-of-pharma-in-2022 The latest GOLD issue, including the blockchain feature mentioned https://go.emg-gold.com/gold-20-access-form

Fundraising is key to the work of the MND Association. In this episode, we chat with Jez, Tamara and Matt – all three are inspirational fundraisers for the Association. They've raised and are still raising money to help people living with motor neurone disease and their families. In this episode, Chris chats to all three as they discuss their challenges ranging from the London Marathon, a nationwide cycle and 50 different challenges in 12 months. They chat about the best bits, the tough moments and why it's so important to fundraise. Start your fundraising journey today, our team are here to help you find the perfect event. Click here for more.

Please give £1 to help the MND Association and Leeds Hospitals Charity https://donate.giveasyoulive.com/fundraising/kevin-sinfields-the-extra-mile-challenge Elis James, Mike Bubbins and Steff Garrero meet up in the bar to talk about “sports”. Head to www.patreon.com/distantpod or https://anchor.fm/nata-media/subscribe for the second round of clips. The boys are playing an arena gig in 2022 so if you didn't see them on their 2021 tour you can buy tickets for The Motorpoint Arena in Cardiff on February 11th 2022. https://www.ticketmaster.co.uk/event/36005B389C0E48C5?brand=motorpointarenacardiff This week's showElis' Documentary Choice: Too Good To Go Down https://www.bt.com/sport/watch/video/catch-up/2018/december/bt-sport-films-too-good-to-go-down Mike's Book Choice: Cardiff Schools Rugby 2019-2020First Round of ClipsSteff Clip: Jordan Mailata https://twitter.com/BarstoolPhilly/status/1462503725608714252 https://twitter.com/NFLAustralia/status/1462565453071413248 Mike Clip: Seve at The 1979 Openhttps://www.facebook.com/GOLFTV/videos/1984295278380556/Elis: Dai Bishop interview https://www.bbc.co.uk/sport/av/rugby-union/58871367Second Round of Clips (via https://anchor.fm/nata-media/subscribe & https://www.patreon.com/distantpod )Steff Clip: Kevin Sinfield https://twitter.com/bbcbreakfast/status/1463063255681798145?s=21 Mike Clip: The Perfect Spiralhttps://fb.watch/9oqE6R_G-y/Elis: Behind the scenes at Anfieldhttps://twitter.com/angiesliverpool/status/1462792000944717826?t=V06s9w7ikZcaEbkYnDUScA&s=09

A man has gone on trial accused of killing two women in Tunbridge Wells more than 30 years ago. Wendy Knell and Caroline Pierce were found within months of each other in 1987 - hear from our reporter at Maidstone Crown Court. Also in today's podcast, a man who was apprehended by security guards at Bluewater and accused of stealing has returned to the shopping centre in a bid to celebrate diversity and change opinions. Cephas Williams says he was targeted because of the colour of his skin and has put on the Portrait of Black Britain in a bid to tackle racism. Hear the moment he was approached at the shopping centre back in the summer and find out why he's decided to return. As Cop26 takes place in Glasgow, all this week we're going to hear from some of the people in Kent doing their bit to tackle climate change. Today you can hear from eight-year-old Summer Harman from Northfleet who was inspired after watching a David Attenborough documentary. A Kent teenager who lost both of his parents within months of each other was at the Pride of Britain awards at the weekend. Jeremy Daubeny from Tunbridge Wells raised more than £37,000 for The MND Association and The Brain Tumour Charity in memory of his mum and dad. He's been describing his epic challenge to find the best cooked breakfast. Kent drag queen River Medway has been speaking after leaving Drag Race UK. She sashayed away after losing the Lip Sync battle last week. And in football, find out why some fans have been banned from Priestfield and the boss reacts to a frustrating weekend on the pitch.

In this podcast, Jonny, Dana and Tom chat about football returning to the Riverside, the performance of Isaiah jones, the future of Djed Spence (featuring Craig Johns) and look ahead to the games against QPR and chat with the Rams Review Podcast for insight against Derby.To donate to our MND Association fundraiser, head to: www.justgiving.com/TheBoroBreakdownMNDSupport this show http://supporter.acast.com/theborobreakdown. See acast.com/privacy for privacy and opt-out information.

Becky and Nick are joined by Dr Brian Dickie, Director of Research Development at the MND Association. In this episode Brian takes a look at some of the questions frequently asked by the MND community and explores some of the research behind these key topics. Professor Martin Turner, Consultant Neurologist and Co-Director of the Oxford MND Care and Research Centre, gives an insight into genetics and MND and Dani, who is living with the disease, shares her experiences of taking part in a clinical trial. As mentioned in the podcast, the MND Association is currently funding over 80 research grants. This is only possible thanks to the support of the many individuals, businesses, trusts and partner organisations who give so generously to our MND research programme. Thank you for your support. For more information about MND research, including opportunities to take part, visit our research homepage mndassociation.org/research.

In this episode volunteers Liz Groundland, Mark Gately and Julia Peckham join Steph and Nick to mark Volunteers Week 2021. The Association is proud to have more than 12,500 volunteers supporting people living with and affected by MND. Liz, Mark and Julia discuss their volunteering roles and why they wanted to get involved. If you would be interested in volunteering for the MND Association you can find details on our website. Views and opinions expressed by guests on MND Matters do not necessarily represent those of the MND Association. We make every effort to ensure the information we share is accurate. We welcome comments, suggestions or corrections. Please email communications@mndassociation.org. Please consult your health and social care professional for medical advice in relation to your particular circumstances. This podcast is owned by the MND Association. Registered Charity no. 294354. With thanks to The Netherby Trust for generously supporting the training of new volunteer Association Visitors.

Steph and Nick speak to 22-year-old Megan Donoher, whose Dad was diagnosed with MND in April 2020. Megan gives a moving account of the impact his diagnosis has had on her family and the tailored support she's received from the Association's children and young person's service. They're joined by Laura Willix, Children and Young Person's Development Manager at the MND Association. With thanks to / funding acknowledgements: Nick Smith Foundation and the James Milner Foundation. Views and opinions expressed by guests on MND Matters do not necessarily represent those of the MND Association. We make every effort to ensure the information we share is accurate. We welcome comments, suggestions or corrections. Please email communications@mndassociation.org. Please consult your health and social care professional for medical advice in relation to your particular circumstances. This podcast is owned by the MND Association. Registered Charity no. 294354.

We're joined by Leeds Rhino's Director of Rugby, legend, and friend of Rob Burrow, Kevin Sinfield. In December 2020, Kevin and his team ran an incredible 7 marathons in 7 days, dubbed the 7 in 7 Challenge, in honour of Rob and to raise money for the MND Association. They raised a staggering £2.7 million. Kev shares how it went, how important it is to support people like Rob and how the money he raised will be spent. We're also joined by Jonathan Griffiths, a big rugby league fan who is living with MND. Views and opinions expressed by guests on MND Matters do not necessarily represent those of the MND Association. We make every effort to ensure the information we share is accurate. We welcome comments, suggestions or corrections. Please email communications@mndassociation.org. Please consult your health and social care professional for medical advice in relation to your particular circumstances. This podcast is owned by the MND Association. Registered Charity no. 294354.

Welcome to the launch of the Motor Neurone Disease (MND) Association's brand new podcast - MND Matters. In our first episode, former Leeds Rhinos star, Kevin Sinfield, talks to us about raising £2.2 million for the MND Association in honour of his best mate, Rob Burrow. We're also joined by rugby league fan, Jonathan, who is living with motor neurone disease and shares what it has been like to see greater awareness of MND thanks to the efforts of Rob and Kevin. Full release 01.04.21.

Ash sat down and spoke to former Nelson FC, Longridge Town and Lancaster City player George Melling. Those are only three of the many clubs that George played for. Since becoming public with his diagnosis many of his former clubs, team mates and managers have started fundraising alongside many of his friends and family. George was diagnosed with Motor Neurone Disease (MND) earlier this year and is tackling the disease head on. One of George's biggest goals is to raise awareness about the disease, and he needs all the help that he can get. Even a simple like or retweet will go a long way. Alongside the awareness George is raising money. The money will be used to support George and his family to help them make some amazing memories, but there will also be a percentage of the money raised that will go to two fantastic charities, the MND Association and The Sheffield Institute for Translational Neuroscience (SITraN). To donate click here: https://www.gofundme.com/f/helping-big-g-aka-george-melling-fight-mnd

Andy Harrison and Nelson FC are running 1000 miles in a month for their former player George Melling. George has been diagnosed with Motor Neurone Disease (MND) and his former club are trying to help him raise as much money as possible. Both Nelson FC and George have Go Fund Me pages, any money raised through Nelson FC's one is going to be donated directly to George's Go Fund Me page. The money raised will be used to support George and his family and to help them make some amazing memories, but there will also be a percentage of the money raised that will go to two fantastic charities, the MND Association and The Sheffield Institute for Translational Neuroscience (SITraN). Here are the links if you would like to make a donation: Nelson FC: https://www.gofundme.com/f/supporting-george-melling-in-his-fight-against-mnd?utm_source=customer&utm_medium=copy_link&utm_campaign=p_cf+share-flow-1 George Melling: https://www.gofundme.com/f/helping-big-g-aka-george-melling-fight-mnd

Kevin Sinfield needs little introduction. Captained Great Britain at RL, played both codes of Rugby, SPOTY runner up and most recently has raised a huge amount of money for the MND association in support of his close friend Rob Burrow who is suffering from this cruel disease. In his word this was “the best week of his life” – running 7 marathons in 7 days. Kev the younger brother, best mate, team mate, retired player, the leader, the fundraiser and really importantly the father of the family shares some of his very own personal story in his usual humble, authentic, and determined way. It is a must listen and you cannot fail to be both choked and inspired by what he has achieved and how he has achieved it!  Some how you know there is more to come!   If you enjoy the podcast, please consider leaving a short review on Apple Podcasts/iTunes. It only takes a minute and really makes a difference in helping to convince new listeners. Thanks so much it - is much appreciated!! For show notes and past guests, please visit www.sportstories247.com Interested in sponsoring the podcast? Please make contact at: hello@sportstories247.com Follow Sport Stories: Twitter:            twitter.com/sportstories_ Instagram:       Instagram.com/sportstories247 Facebook:        facebook.com/sportstories247 LinkedIn:         https://www.linkedin.com/company/sportstories YouTube:          Sport Stories YouTube Channel Find out more about Dave at: www.thesummitpartnership.com Follow Dave: Twitter:    https://twitter.com/SummitDave LinkedIn: https://www.linkedin.com/in/davelevine3   Key quotes or sayings: A group of 4 or 5 blokes just helping a mate! This is NOT sport – this is about people and their lives! It is a DIFFERENT satisfaction from playing and winning medals and rings I need to test myself – challenge myself – see what my body can do. Have the courage just to go for it! It's clear – we all had a similar mindset and a common goal Think of a team as the need of a full set of vitamins and minerals to perform at your best Working is performance sport is demanding and often just a slog Part of being in a team is giving a lot of yourself Selfish nature of performance Fine balance when being a player and leader to get things right The importance of being able to read people In the team environment – I never put myself before the team – NEVER!! Importance of family holidays – especially as we come to a stage when you become un cool for your kids to want to join you. Emotionally tough but we all got a glow about us Until you are in that situation – you don't appreciate - friendships matter so much Quitting never ever entered my head… The ‘big elephant in the room' is the person. Lets not loose sight of them for the small percentage gains People respond differently to different types of adversity Dare to dream… Coaching questions I would like to pose: 1 What are the key principles or values you live your life by? 2 Kev said Friendships matter so much: What are the quality and depth of your friendships? Who would do a 7 in 7 challenge for you and who would YOU do  a challenge for  and how would this enhance your friendship? 3 What has lockdown given you the time to do? What benefit have you taken from it? 4 If you dared yourself to DREAM...what would you dream?   Contact info: Leeds Rhinos website and social media channels   Donate to MND Association https://www.justgiving.com/fundraising/sinfield-7-in-7

In the final episode of this series Natalie is joined by the inspirational Lindsey Burrow, Spinal Clinical Specialist and wife of retired Rugby League & Leeds Rhinos legend Rob Burrow, to talk battling adversity, being grateful for what you have and bringing about change. Discussing in detail Robs shock diagnosis of having the life limiting condition of Motor Neurone Disease just 12 months ago, Lindsey talks openly and emotionally about the families battle to fight the notoriously cruel disease and how the impact of the global pandemic has been bittersweet in bringing precious family moments but prevented essential hospital care. Reflecting on meeting her childhood sweetheart Rob at just 13, Lindsey talks us through the couples journey from love struck teenagers to becoming sporting family favourites and in more recent times how her life has changed significantly as she has taken on the role of becoming Robs full time carer, whilst juggling a physiotherapy practice and three young children. Attributing her resilience and bravery to being inspired by her husbands continued fighting spirit despite his rapid deterioration, Lindsey speaks of her admiration and love for Rob and how together they are dedicated to raising more awareness and funds for research into this life limiting condition. If you'd like to donate to MND Association please text MNDROB to 70085. Texts cost £7. Registered Charity No 294394. You can also visit www.mndassociation.org to find out more about the condition and how you can get involved.