POPULARITY
2 episodes with biliary atresia
2 episodes with biliary atresia
3 episodes with biliary atresia
2 episodes with biliary atresia
2 episodes with biliary atresia
2 episodes with biliary atresia
2 episodes with biliary atresia
2 episodes with biliary atresia
On this BARE It All Coffee Talk episode, Stephanie sits down with Sarah and Dan to share their journey with Biliary Atresia. They open up about their experience raising a child who's had a Kasai procedure and offers insight into the emotional and physical challenges of navigating such a medical journey. Tune in to hear about their unique perspectives on this life-changing experience from mom and dad. If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at contactus@bareinc.org. Let's amplify our voices and foster understanding together." Connect with us: • Bare Inc. • Instagram • X - Twitter • Facebook • YouTube If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to www.cota.org/getstarted to learn more about how they can help. Music by Magnetic_Trailer from Pixabay #BiliaryAtresia #KasaiProcedure #MedicalJourney #Parenting #BAREItAll #CoffeeTalk
In this episode of the Pediatric and Developmental Pathology Podcast, our hosts Dr. Mike Arnold (@MArnold_PedPath) and Dr. Jason Wang speak with Dr. Iris de Jong of the University of Leiden and Dr. Rebecca Wells of the University of Pennsylvania, about their article in Pediatric and Developmental Pathology: In Utero Extrahepatic Bile Duct Damage and Repair: Implications for Biliary Atresia Featured public domain music: Summer Pride by Loyalty Freak
On this episode of BARE It All Coffee Talk, host Stephanie welcomes her oldest daughter, Alexis. Together, they explore the impact of biliary atresia on siblings and what has helped them cope. The entire family faces the challenges of BA, each in their own way, but, Alexis reflects on how, 11 years after her sister's diagnosis, she has cherished memories—even amidst the difficulties. If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at contactus@bareinc.org. Let's amplify our voices and foster understanding together." Connect with us: • Bare Inc. • Instagram • X - Twitter • Facebook • YouTube If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to www.cota.org/getstarted to learn more about how they can help. Music by Magnetic_Trailer from Pixabay
On this episode of BARE It All Coffee Talk, host Stephanie is joined by Brandi to discuss their journey with Biliary Atresia. They candidly share their experiences, including the challenges and triumphs along the way. If you've faced complications or want to understand this condition better, this is an episode you won't want to miss! If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at contactus@bareinc.org. Let's amplify our voices and foster understanding together." Connect with us: • Bare Inc. • Instagram • X - Twitter • Facebook • YouTube If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to www.cota.org/getstarted to learn more about how they can help. Music by Magnetic_Trailer from Pixabay
On this episode of BARE It All Coffee Talk, host Stephanie is joined by President Jen for an insightful discussion about COTA (Children's Organ Transplant Association). They chat with COTA President Rick and two families who have benefited from COTA's support. Please tune in to hear their personal medical journeys and discover how COTA has made a difference in their lives. If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at contactus@bareinc.org. Let's amplify our voices and foster understanding together." Connect with us: • Bare Inc. • Instagram • X - Twitter • Facebook • YouTube If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to www.cota.org/getstarted to learn more about how they can help. Music by Magnetic_Trailer from Pixabay
In this episode of BARE It All Coffee Talk, Stephanie sits down with fellow board member Maria to explore the crucial role of advocacy in the biliary atresia journey. Whether you're a parent or a patient, effective advocacy can significantly impact your medical experience. Join us as we share our insights and experiences to support and guide others on their journeys. The incidence of biliary atresia is approximately one in 10,000 children, with the disease being more common in males and in Asian and African-American newborns. Biliary atresia is not an inherited disease and does not run in families. Biliary Atresia - UCSF transplant surgeons. If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at contactus@bareinc.org. Let's amplify our voices and foster understanding together." Music by Magnetic_Trailer from Pixabay Connect with us: • Bare Inc. • Instagram • X - Twitter • Facebook • YouTube If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to www.cota.org/getstarted to learn more about how they can help.
Join us in this emotional episode of BARE It All, Coffee Talk, as we sit down with Aaron to hear his poignant journey with biliary atresia and transplant. Aaron bravely shares the challenges and triumphs of living with biliary atresia as an adult, offering a candid look into his life. The incidence of biliary atresia is approximately one in 10,000 children, with the disease being more common in males and in Asian and African-American newborns. Biliary atresia is not an inherited disease and does not run in families. Biliary Atresia - UCSF transplant surgeons. If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at contactus@bareinc.org. Let's amplify our voices and foster understanding together." Music by Magnetic_Trailer from Pixabay Connect with us: • Bare Inc. • Instagram • X - Twitter • Facebook If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to www.cota.org/getstarted to learn more about how they can help.
Join us in this episode of BARE It All, Coffee Talk, as we sit down with Jenna to delve into her son Alex's journey with biliary atresia and transplant. Jenna bravely shares the challenges and complications Alex faced post-transplant, offering listeners a glimpse into their daily lives and resilience. The incidence of biliary atresia is approximately one in 10,000 children, with the disease being more common in males and in Asian and African-American newborns. Biliary atresia is not an inherited disease and does not run in families. Biliary Atresia - UCSF transplant surgeons. If you or someone you know has experience with biliary atresia and are willing to share your journey publicly to support our initiative, please reach out to us at contactus@bareinc.org. Let's amplify our voices and foster understanding together." Music by Magnetic_Trailer from Pixabay Connect with us: • Bare Inc. • Instagram • X - Twitter • Facebook If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to www.cota.org/getstarted to learn more about how they can help.
Pediatric Insights: Advances and Innovations with Children’s Health
Dr. Pandurangi shares about the innovative matrix metalloproteinase-7 (MMP-7) blood test for diagnosing biliary atresia in babies.
Samantha shares Kendyl's inspiring Biliary Atresia story and how the disease impacted their lives.
Become a supporter of this podcast: https://www.spreaker.com/podcast/author-to-author--4129285/support.In this episode of Author to Author, Dr. Cynthia Toolin-Wilson interviews Jennifer Gladden on her book Angel Donor: Olivia's Journey to Transplant (March 4, 2024)Olivia never asked to have a disease like Biliary Atresia. It made her liver sick and only a transplant will make her better. After waiting several months and close to losing hope, she gets the call she's been waiting for. The journey of her life is about to begin.Angel Donor: Olivia's Journey to Transplant: Gladen, Jennifer, Bell, Samantha: 9781735698748: Amazon.com: Books
In this episode I am discussing about the epidemiology, etiopathogenesis, clinical features, differential diagnosis, diagnostic investigations, complications and treatment of Biliary Atresia one of the important cause for infantile jaundice.
In this episode, we chat with Dr Mogul about itching and BA. Connect with us: Bare Inc. Instagram X - Twitter Facebook If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to www.cota.org/getstarted to learn more about how they can help.
In this episode, we will be discussing Will's Biliary Atresia story. Connect with us: Bare Inc. Instagram X - Twitter Facebook If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to www.cota.org/getstarted to learn more about how they can help.
In this episode, we will be discussing Stevie's Biliary Atresia story. Connect with us: Bare Inc. Instagram X - Twitter Facebook If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to www.cota.org/getstarted to learn more about how they can help.
In this episode, we will be discussing Caleb's Biliary Atresia story. Connect with us: Bare Inc. Instagram X - Twitter Facebook If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to www.cota.org/getstarted to learn more about how they can help.
In this episode, we talk with Dr. Ahmad Anouti. Connect with us: Bare Inc. Instagram X - Twitter Facebook If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to www.cota.org/getstarted to learn more about how they can help.
Did you know that 80% of children with biliary atresia who undergo a Kasai procedure will still require liver transplant at some point in their life? Dr. Bade, a pediatric gastroenterologist, joins medical students Tucker Oliver and Sarah Chappell to discuss evaluation and management of infants with biliary atresia. Specifically, they will: Discuss the presentation and diagnosis of biliary atresia Explain pathophysiology behind jaundice Discuss preoperative and postoperative recommendations for the Kasai procedure Review complications and outcomes of the Kasai procedure Share advice for navigating the diagnosis of biliary atresia with families Special thanks to Dr. Rebecca Yang and Dr. Jennifer Tucker for peer reviewing this episode. FREE CME Credit (requires free sign-up): Link Coming Soon! References: 1] P. J. Lupo et al., “Population-based birth defects data in the United States, 2010-2014: A focus on gastrointestinal defects.,” Birth Defects Res, vol. 109, no. 18, pp. 1504–1514, Nov. 2017, doi: 10.1002/bdr2.1145. [2] J. L. Hartley, M. Davenport, and D. A. Kelly, “Biliary atresia,” The Lancet, vol. 374, no. 9702, pp. 1704–1713, Nov. 2009, doi: 10.1016/S0140-6736(09)60946-6. [3] S. S. Sundaram, C. L. Mack, A. G. Feldman, and R. J. Sokol, “Biliary atresia: Indications and timing of liver transplantation and optimization of pretransplant care.,” Liver Transpl, vol. 23, no. 1, pp. 96–109, Jan. 2017, doi: 10.1002/lt.24640. [4] D. Volpert, F. White, M. J. Finegold, J. Molleston, M. DeBaun, and D. H. Perlmutter, “Outcome of Early Hepatic Portoenterostomy for Biliary Atresia,” J Pediatr Gastroenterol Nutr, vol. 32, no. 3, pp. 265–269, Mar. 2001, doi: 10.1097/00005176-200103000-00006. [5] R. Fawaz et al., “Guideline for the Evaluation of Cholestatic Jaundice in Infants: Joint Recommendations of the North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition and the European Society for Pediatric Gastroenterology, Hepatology, and Nutrition.,” J Pediatr Gastroenterol Nutr, vol. 64, no. 1, pp. 154–168, Jan. 2017, doi: 10.1097/MPG.0000000000001334. [6] P. H. Y. Chung et al., “Life long follow up and management strategies of patients living with native livers after Kasai portoenterostomy.,” Sci Rep, vol. 11, no. 1, p. 11207, May 2021, doi: 10.1038/s41598-021-90860-w. [7] E. H. Gad, Y. Kamel, T. A.-H. Salem, M. A.-H. Ali, and A. N. Sallam, “Short- and long-term outcomes after Kasai operation for type III biliary atresia: Twenty years of experience in a single tertiary Egyptian center-A retrospective cohort study.,” Ann Med Surg (Lond), vol. 62, pp. 302–314, Feb. 2021, doi: 10.1016/j.amsu.2021.01.052. [8] A. M. Calinescu et al., “Cholangitis Definition and Treatment after Kasai Hepatoportoenterostomy for Biliary Atresia: A Delphi Process and International Expert Panel.,” J Clin Med, vol. 11, no. 3, Jan. 2022, doi: 10.3390/jcm11030494. [9] S. Kiriyama et al., “Tokyo Guidelines 2018: diagnostic criteria and severity grading of acute cholangitis (with videos),” J Hepatobiliary Pancreat Sci, vol. 25, no. 1, pp. 17–30, Jan. 2018, doi: 10.1002/jhbp.512. [10] K. Decharun, C. M. Leys, K. W. West, and S. M. E. Finnell, “Prophylactic Antibiotics for Prevention of Cholangitis in Patients With Biliary Atresia Status Post-Kasai Portoenterostomy,” Clin Pediatr (Phila), vol. 55, no. 1, pp. 66–72, Jan. 2016, doi: 10.1177/0009922815594760. [11] E. Jung, W.-H. Park, and S.-O. Choi, “Late complications and current status of long-term survivals over 10 years after Kasai portoenterostomy.,” J Korean Surg Soc, vol. 81, no. 4, pp. 271–5, Oct. 2011, doi: 10.4174/jkss.2011.81.4.271. [12] S. S. Sundaram et al., “Health related quality of life in patients with biliary atresia surviving with their native liver.,” J Pediatr, vol. 163, no. 4, pp. 1052–7.e2, Oct. 2013, doi: 10.1016/j.jpeds.2013.04.037. [13] B. L. Shneider et al., “Efficacy of fat-soluble vitamin supplementation in infants with biliary atresia.,” Pediatrics, vol. 130, no. 3, pp. e607-14, Sep. 2012, doi: 10.1542/peds.2011-1423. [14] J. P. Molleston and B. L. Shneider, “Preventing variceal bleeding in infants and children: is less more?,” Gastroenterology, vol. 145, no. 4, pp. 719–22, Oct. 2013, doi: 10.1053/j.gastro.2013.08.026. [15] G. Grisotti and R. A. Cowles, “Complications in pediatric hepatobiliary surgery,” Semin Pediatr Surg, vol. 25, no. 6, pp. 388–394, Dec. 2016, doi: 10.1053/j.sempedsurg.2016.10.004. [16] F. R. Sinatra, “Consultation with the Specialist: Liver Transplantation for Biliary Atresia,” Pediatr Rev, vol. 22, no. 5, pp. 166–168, May 2001, doi: 10.1542/pir.22-5-166. [17] I. Sriram and D. Nicklas, “Biliary Atresia,” Pediatr Rev, vol. 43, no. 11, pp. 659–661, Nov. 2022, doi: 10.1542/pir.2021-005287. [18] L. H. Rodijk et al., “Parental wellbeing after diagnosing a child with biliary atresia: A prospective cohort study.,” J Pediatr Surg, vol. 57, no. 4, pp. 649–654, Apr. 2022, doi: 10.1016/j.jpedsurg.2021.05.026. [19] A. Sanchez-Valle, N. Kassira, V. C. Varela, S. C. Radu, C. Paidas, and R. S. Kirby, “Biliary Atresia: Epidemiology, Genetics, Clinical Update, and Public Health Perspective.,” Adv Pediatr, vol. 64, no. 1, pp. 285–305, Aug. 2017, doi: 10.1016/j.yapd.2017.03.012.
Jordan and Steph discuss some topics pertaining to their B.A. journeys like only child vs. multiple siblings, guilt, depression, and a few more! Connect with us: Bare Inc. Instagram X - Twitter Facebook If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to www.cota.org/getstarted to learn more about how they can help.
Jen and Jordan talk with Lorraine Stiehl, CEO of the American Liver Foundation. If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to www.cota.org/getstarted to learn more about how they can help. Resources from This Episode: Liver - American Liver Foundation Liver Function for Kids (liverfoundation.org) https://www.facebook.com/liverinfo https://twitter.com/liverUSA https://www.youtube.com/user/americanliver https://www.congress.gov/bill/118th-congress/senate-bill/1384/all-info https://www.bareinc.org/
Show Notes: We welcome Analy Navarro, a mom who gave life twice. Analy's daughter was born with Biliary Atresia, a rare liver disease that affects 1 in every 12,000 infants worldwide. Analy's act of donation, along with her children's book, Mighty Me, showcases her commitment to making a positive difference in the lives of others. She continues to promote hope, education and research for Biliary Atresia through the organization BA Hero. We chat about the power of delivering words of encouragement and honor hero Reed Hebert. Plus, check out our new spinoff podcast geared for healthcare professionals, Connected by Life.
A new research paper was published in Aging (Aging-US) Volume 15, Issue 11, entitled, “Senescence and senotherapies in biliary atresia and biliary cirrhosis.” Premature senescence occurs in adult hepatobiliary diseases and worsens the prognosis through deleterious liver remodeling and hepatic dysfunction. Senescence might also arise in biliary atresia (BA), the first cause of pediatric liver transplantation. Alternatives to transplantation are needed. In this new study, researchers Giulia Jannone, Eliano Bonaccorsi Riani, Catherine de Magnée, Roberto Tambucci, Jonathan Evraerts, Joachim Ravau, Pamela Baldin, Caroline Bouzin, Axelle Loriot, Laurent Gatto, Anabelle Decottignies, Mustapha Najimi, and Etienne Marc Sokal from the Université catholique de Louvain in Brussels, Belgium, aimed to investigate premature senescence in BA and to assess senotherapies in a preclinical model of biliary cirrhosis. “As there is a need for new therapies to avoid or delay liver transplantation in pediatric biliary cirrhosis, the aim of our work was to investigate premature senescence in BA through a multi-technical approach and to assess senotherapies in a preclinical model of biliary cirrhosis.” BA liver tissues were prospectively obtained at hepatoportoenterostomy (n=5) and liver transplantation (n=30) and compared to controls (n=10). Senescence was investigated through spatial whole transcriptome analysis, SA-β-gal activity, p16 and p21 expression, γ-H2AX and senescence-associated secretory phenotype (SASP). Human allogenic liver-derived progenitor cells (HALPC) or dasatinib and quercetin (D+Q) were administered to two-month-old Wistar rats after bile duct ligation (BDL). Advanced premature senescence was evidenced in BA livers from early stage and continued to progress until liver transplantation. Senescence and SASP were predominant in cholangiocytes, but also present in surrounding hepatocytes. HALPC but not D+Q reduced the early marker of senescence p21 in BDL rats and improved biliary injury (serum γGT and Sox9 expression) and hepatocytes mass loss (Hnf4a). “BA livers displayed advanced cellular senescence at diagnosis that continued to progress until liver transplantation. HALPC reduced early senescence and improved liver disease in a preclinical model of BA, providing encouraging preliminary results regarding the use of senotherapies in pediatric biliary cirrhosis.” DOI - https://doi.org/10.18632/aging.204700 Corresponding author - Giulia Jannone - giulia.jannone@uclouvain.be Sign up for free Altmetric alerts about this article - https://aging.altmetric.com/details/email_updates?id=10.18632%2Faging.204700 Subscribe for free publication alerts from Aging - https://www.aging-us.com/subscribe-to-toc-alerts Keywords - aging, senescence, senotherapy, liver, biliary cirrhosis, biliary atresia About Aging-US Launched in 2009, Aging-US publishes papers of general interest and biological significance in all fields of aging research and age-related diseases, including cancer—and now, with a special focus on COVID-19 vulnerability as an age-dependent syndrome. Topics in Aging-US go beyond traditional gerontology, including, but not limited to, cellular and molecular biology, human age-related diseases, pathology in model organisms, signal transduction pathways (e.g., p53, sirtuins, and PI-3K/AKT/mTOR, among others), and approaches to modulating these signaling pathways. Please visit our website at https://www.Aging-US.com and connect with us: SoundCloud - https://soundcloud.com/Aging-Us Facebook - https://www.facebook.com/AgingUS/ Twitter - https://twitter.com/AgingJrnl Instagram - https://www.instagram.com/agingjrnl/ YouTube - https://www.youtube.com/@AgingJournal LinkedIn - https://www.linkedin.com/company/aging/ Pinterest - https://www.pinterest.com/AgingUS/ Media Contact 18009220957 MEDIA@IMPACTJOURNALS.COM
Jordan and Jen talk with Jenny Tice about her journey with BA and transplant as an adult.
Jen and Jordan discuss love and marriage and how going through a pediatric liver transplant affected both, with special guest Morgan Hill. If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew are looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to www.cota.org/getstarted to learn more about how they can help.
On this MADM, Baby Morgan's mom, Sarah, is bringing awareness to biliary atresia and has a special request of you. Listen & share. Sponsor: Alabama The Beautiful Magazine
On this edition of TMWS, I am speaking with Sara Morgan Miller about her 5-month-old son, Morgan, and bringing awareness to biliary atresia as he currently waits for a liver donor. I hope you will listen and share this show with your friends. Also, congratulations to Morgan's big sister, Avery, on being recognized with TMWS's Cool Kid Award!
This episode talks about the resources available to Biliary Atresia families through COTA- Children's Organ Transplant Association and how they have helped many families go through the BA to transplant journey.
You guys won't want to miss this episode! Our guest, Holly Jo is a wife, and a mother of 4. Holly tells us her story of her son Easten getting diagnosed with Biliary Atresia and eventually needing a transplant. She talks about what life was like while Easten was sick, and the emotional rollercoaster of being on a transplant list. Holly then talks about life after transplant. There are so many ups and downs to her story. I am so grateful for Holly and the bravery that she shows as she raises awareness for organ donation, & talking about how it deeply impacted her family. She did an amazing job, and we hope you enjoy this episode. ❤️Menders: Love & Leadership in Health SystemsMenders reimagine what is possible in healthcare to creatively address structural...Listen on: Apple Podcasts Spotify
Life is full of the unexpected. How we navigate through these tough times is something we get to choose. This week's special guest took a major life curve ball and worked through it in such a real and inspirational way. I am so excited to have Dee Aubie join our tea time and share her story with raising and being an advocate for her sick child. Dee is the mother of two boys and her second son was born with a rare liver disease called Biliary Atresia. This amazing mama shares her experience and provides helpful tips for anyone else going through something unexpected. This episode has so much great information you won't want to miss out. Cheers and let's spill!
Check out this week's episode with everything the surgical trainee needs to know about the work up, management, and types of biliary atresia with Dr. Greg Tiao from Cincinnati Children's Hospital.
There are various things that you can encounter as a parent, a diagnosis to an illness or disability is one of them. In this episode I'm chatting with Shanny Fitzgerald on the Autism diagnosis of her son Reef, I also share my relatability, on the diagnosis of Biliary Atresia with my son Ari.More about Shanny: Wild Spark is a dynamic, balls-to-the-wall copywriting studio working with whip-smart upstarts around the world from a lil' slice of radness called Brisbane, Australia.Founded by Shan Fitzgerald, a bold, plucky, profesh-ish writer and former English teacher who knows her shit from her shiz, Wild Spark specialises in personality-fuelled copy for charismatic, human-AF brands that fly off the shelf. (Screen. Box. Whatever.)Shan's trademark #NoBS words have been used to sell scratch-made chicken nuggets in Los Angeles, featured on kid-friendly dinnerware sold in Japan, plastered (no pun intended) across witty wine bottles in New Zealand, and given life to sass-mouthed candles gracing the shelves of MYER stores Australia-wide.When she's not helping rad products get noticed for all the right reasons, you can find her talking about books 'n' booze on her podcast F*ck Your Book Club, posting snarky memes on her Insta (#ShamelessSelfPromo), or loving hard on her scuba instructor hubby, Dan, and adorable, amazingly Autistic son, Reef. Find her at:IG: WildsparkcopyIG: FckyourbookclubWebsite: wildsparkcopy.com.auJoin the conversation over on:Instagram @iamtaraladdLinkedin tarajoyladdWebsite taraladd.com
Samantha was our guest today and we loved listening to her story! Her daughter, Kendyl, was diagnosed at 2 months old with a rare disease called Biliary Atresia. She tells us all about their medical journey with such a small baby, through failed procedures, a liver transplant and balancing life in the hospital all while still trying to balance life at home. Samantha also recently published a book! She dives even deeper into their experience, their emotions, and so much more, so be sure to check it out!You can find Samantha's book here:https://bit.ly/36byuLDYou can also check out Samantha's website here:http://www.samanthamelaney.com
This podcast is a discussion of the international approach to diagnosis and management of biliary atresia, amongst Dr. Todd Ponsky, Dr. Yamataka Atsuyuki, Dr. Greg Tiao, Dr. Mark Davenport, and Dr. Jorge Bezerra. In part two of this podcast, we add the gastroenterology perspective, with insight into future evaluation for biliary atresia, followed by debate on post operative management and complications.
This podcast is a discussion of the international approach to diagnosis and management of biliary atresia, amongst Dr. Todd Ponsky, Dr. Yamataka Atsuyuki, Dr. Greg Tiao, Dr. Mark Davenport, and Dr. Jorge Bezerra. In part one of this podcast, three surgeons discuss the differential diagnosis, work up and surgical management of biliary atresia.
In this episode of Bowel Sounds, hosts Drs. Jennifer Lee and Temara Hajjat talk to Dr. Jorge Bezerra about advances in biliary atresia in children. He explains the evaluation and diagnosis of biliary atresia and discusses new diagnostic tests and therapeutic trials. As always, the discussion, views, and recommendations in this podcast are the sole responsibility of the hosts and guests and are subject to change over time with advances in the field.Produced by: Jennifer LeeSpecial requests:Thank you to everyone for listening to our podcast. If you enjoyed this content and thought it was useful, we ask you to consider doing any or all of the following three things:Tell one person who you think would like this type of content about the podcast. We want to reach more GI doctors and trainees and general pediatricians, pediatric residents, and medical students.Leave a review on Apple Podcasts -- this helps more people discover our podcast.You can also support the show by making a donation to the NASPGHAN FoundationSupport the show (https://www.naspghan.org/content/87/en/foundation/donateSupport the show (https://www.naspghan.org/content/87/en/foundation/donate)Support the show (https://www.naspghan.org/content/87/en/foundation/donate)
Analy Navarro, a Peachtree Corners resident, is a first-time author who was inspired by her daughter's liver transplant journey. Navarro became her daughter's living donor in 2018 and allowed this transformative experience to guide her into a new career as an author, an advocate for organ donation, and a leader in raising awareness and funds for Biliary Atresia. She joins Rico Figliolini on the Peachtree Corners Life podcast to discuss that journey.
If we are lucky, we will live a healthy and full life. But for some, the start can be a little rough. Jonah is one of them. Jonah was born in January of 2021. When he came home from the hospital, he was a little jaundiced, and his parents, Danielle and Sean Moore weren't overly concerned. But when it did not get better, more tests were done and Jonah was diagnosed with Biliary Atresia. The diagnosis would change their world. Jonah, at only a few months old, needed a liver transplant. Danielle was a perfect donor. Meanwhile, Sean, a firefighter with Anne Arundel County needed to hold it all together while caring for their other son. For sure, theirs is a story of love, commitment, and tenacity. But it is a story of thankfulness. For each other, for the fire department community, for friends and relatives, for strangers, and for family. And also, thankfulness for Jonah who is a fighter at 10-months of age, but with the help of those that love him, go on to do great things! This is a lifelong health concern for Jonah and his parents have set up a fund (to only be used for Jonah's costs to treat the BA)through the Children's Organ Transplant Association to handle some of his costs in the future--who knows what medicine will cost in 20 or 30 years? And through community donations and fundraisers, it is off to a great start! Have a listen first. And then read up, learn, and help if you can! LINKS: Jonah's Biliary Atresia Journey (Facebook Page) COTA For Jonah's Biliary Atresia Journey (Contribute)
Surgeries populated her childhood years to correct Biliary Atresia, a congenital condition. Doctors performed operations on baby Tessa at two, three months and when she was a one-year-old. The procedures continued between ages four and five, but they were temporary measures until the unavoidable occurred. Her family remained brave, but the situation was dire. Tessa was in organ failure and needed a liver transplant to live.Listen as Tessa Farese talks about her story, her young donor, and what a blessing each day is for her and her young sons.
Mohit is a gem. He uses his music business, marketing, entrepreneurship and patient experience to advocate for equity in the healthcare system. A system he knows all too well. Mohit lived with Biliary Atresia, a rare disease that affects the bile ducts with no known cause. It’s no joke. About 85% of patients die before they are 2 years old. Mohit spent about 70% of the first eleven years of life in hospital. He experienced medical racism. He had a hard time making/maintaining friends his own age. And at a very young age received a liver transplant. Mohit has been through it all and we’re elated to have him be a part of our community.
Mohit is a gem. He uses his music business, marketing, entrepreneurship and patient experience to advocate for equity in the healthcare system. A system he knows all too well. Mohit lived with Biliary Atresia, a rare disease that affects the bile ducts with no known cause. It’s no joke. About 85% of patients die before they are 2 years old. Mohit spent about 70% of the first eleven years of life in hospital. He experienced medical racism. He had a hard time making/maintaining friends his own age. And at a very young age received a liver transplant. Mohit has been through it all and we’re elated to have him be a part of our community.
“We had to learn everything we could because our son’s life was literally on the line.” Katie, Certified Child Life Specialist talks with Todd and Morgan who just a few weeks after the birth of their first child were faced with the truth that he had a life threatening condition called Biliary Atresia. The cure? A liver transplant. Despite the many challenges they faced, Todd and Morgan talk about: +How they used family to be their “google doctors” +How to find your voice during bedside rounds +Why started a business called Child Life Coffee *Sponsor: Jambo Books A Jambo Books subscription is like hitting the easy button for great diverse literature for your children. Every month, Jambo Books sends you 2 or 3 age-appropriate fiction books that star children of color. Jambo Books is a great gift for baby showers, birthdays, holidays or just because. Jambo serves children from birth to age 13. Have you heard? The Child Life On Call mobile app for parents, kids and their care team will be available in 2022. Sign up to stay informed here. Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child’s unique experiences. We give you strategies to support yourself and your family through life’s challenges. We are so glad you are here. Child Life On Call | Instagram | Facebook | Twitter
Biliary atresia is a surgically treatable cause of conjugated hyperbilirubinaemia encountered during the newborn period. It accounts for 50% of paediatric liver transplants. You don’t want to miss: A case How to describe biliary atresia to a parent The pathophysiology of biliary atresia - or what we know of it How to diagnose and treat The short and long term complications Links and resources: Follow us on Instagram: https://www.instagram.com/yourekiddingright.pod/ and Facebook: https://www.facebook.com/yourekiddingrightpod-107273607638323/ Our email is yourekiddingrightpod@gmail.com Make sure you hit SUBSCRIBE/FOLLOW so you don’t miss out on any pearls of wisdom and RATE if you can to help other people find us! (This isn’t individual medical advice, please use your own clinical judgement and local guidelines when caring for your patients)
In Episode 10 we chat to John Hoffman from Connecticut who was born with Biliary Artresia, a genetic Liver condition. At just months old John had a life saving transplant.Fast forward to his teens and his Liver was failing again meaning John was in store for another Liver!Learn about how John managed with life as a young transplantee all the way to now as normal and happy family man.John is currently writing a memoir of transplant journey. You can follow his journey on instagram @johnstransplantjourney and view his website here.
Gracielle talks with liver transplant Mom Jill about her journey with her family with two kids on earth and one in heaven. Jill talks about her liver transplant son Michael and their heartwarming story of Michael's donor family. We hope this episode touches your heart and brings more awareness to how important it is to become a registered organ donor. You can follow Jill and Michael's story on Instagram and on Facebook. Instagram Account: @miracleformichaelangelo Facebook Account: @jill.v.angelo and @MiracleforMichaelAngelo. --- Send in a voice message: https://podcasters.spotify.com/pod/show/miraclebaby/message Support this podcast: https://podcasters.spotify.com/pod/show/miraclebaby/support
This episode covers biliary atresia.Written notes can be found at https://zerotofinals.com/paediatrics/gastro/biliaryatresia/ or in the gastroenterology section in the Zero to Finals paediatrics.The audio in the episode was expertly edited by Harry Watchman.
Gracielle and special guest Liz talk about their experiences finding out about their child's diagnosis with Biliary Atresia and how their kids ended up having the Kasai procedure. Liz is a Donate Life Ambassador, Registered Organ Donor, Bone Marrow Donor and Mommy to a Biliary Atresia warrior + Liver Recipient. You can follow Liz on Instagram: @lizzlo_92 or @pennytheliverqueen --- Send in a voice message: https://podcasters.spotify.com/pod/show/miraclebaby/message Support this podcast: https://podcasters.spotify.com/pod/show/miraclebaby/support
Dr. James Daniel discusses improved outcomes for liver transplantation with Biliary Atresia.
In the next episode of Bowel Sounds, hosts Dr. Jenn Lee and Dr. Peter Lu talk to Dr. Bill Balistreri about neonatal cholestasis. Dr. Balistreri is a pioneer in the study of pediatric liver disease and a former NASPGHAN President. We talk to him about why babies with jaundice past 2 weeks of age need further testing -- and why this is an important topic for not only pediatric gastroenterologists but also for pediatricians and parents. We review causes of cholestasis in infancy, including biliary atresia. We also discuss his career thus far and advice for younger trainees and faculty.As always, the discussion, views, and recommendations in this podcast are the sole responsibility of the hosts and guests and are subject to change over time with advances in the field.References:Guideline for the Evaluation of Cholestatic Jaundice in Infants: Joint Recommendations from NASPGHAN and ESPGHANProduced by: Peter LuSpecial requests:Thank you to everyone for listening to our podcast. If you enjoyed this content and thought it was useful, we ask you to consider doing any or all of the following three things:Tell one person that you think would like this type of content about the podcast. We want to reach more GI doctors and trainees as well as general pediatricians, pediatric residents and medical students.Leave a review on Apple Podcasts -- this helps more people discover our podcast.You can also support the show by making a donation to the NASPGHAN Foundation via the link below.Support the show (https://www.naspghan.org/content/87/en/foundation/donate)
On today's episode, Erin and Rachel chat with special guest, Hannah Rosenfelder. She is a six-figure earner, 2 time liver transplant recipient and momma to her miracle baby! Hannah kicks off the episode by sharing that she was born with Biliary Atresia, which affects the liver. It typically requires a transplant at some point and can be fatal. She talks about being in and out of the hospital growing up, but not allowing that to hold her back from what she wanted to do in life. She wanted to be as normal as possible and so she pushed to play sports, go to events and live a typical kid life. Hannah learned to be resilient at a young age. Even when sick, she would still attend sports competitions or games. She also got really into personal development, as she realized it was crucial in deciding what she wanted in life. The girls discuss with Hannah how her situation has tested her faith. Her struggle with being envious of her brother and his seemingly perfect life growing up. But she has come to realize that her life has been filled with blessings beyond compare. Erin and Rachel agree with her that hardships are typically blessings in disguise. They are what make us who we are. This is all just a little of what Hannah shares on this episode. Here are some more highlights! How her health problem was figured out as a baby The victim mentality and changing her perspective Using skills to build the life you want The story of her two transplants and how they affected her life afterwards Her relationship with her husband and her miracle baby! Why she created her podcast Let's take a listen! Hannah's Resources: Instagram: @Hannah_Rosenfelder Podcast: Creating Her Best Life Resources: Erin's Instagram: @erin_travelsforlife Rachel's Instagram: @iamrachelbrooks The Confident Woman Podcast Instagram: @theconfidentwomanpodcast Quotes: “So I learned young how to just make it through.” -Hannah “There's no point in being angry.” -Hannah “You just become that victim of that story, and that's the story and crutch for the rest of your life.” -Rachel “No matter what you fail at or what you suck at or lose a lot of money, you're alive. ” -Erin “If you don't change your perspective, the victim mentality will eat you.” -Hannah --- Send in a voice message: https://anchor.fm/theconfidentwoman/message
Biliary atresia is a rare gastrointestinal disorder, occurring approximately 1 in 10,000 to 15,000 births in the United States, and is characterized by a destruction or absence of, all or a portion of the extrahepatic bile duct. Affected infants present with jaundice and fibrosis. In some cases, additional abnormalities may be present, including cardiac defects and intestinal, spleen and kidney malformations; the exact cause of biliary atresia is unknown. In today’s episode we talk with Cara Mack, MD to unpack the clinical presentation, management and ongoing care for patients with biliary atresia. Dr. Mack is a Professor of Pediatrics at the University of Colorado School of Medicine, a practicing Pediatric Hepatologist and the Director of the Pediatric Liver Center at Children’s Hospital Colorado. Let us know if you have a suggestion for a future topic or thoughts about this episode!
Professor Mark Davenport is one of the leading experts in the world in the field of biliary atresia. Today we are here discussing the diagnosis, investigation and management of this condition. Music: https://www.purple-planet.com
This podcast is a discussion of the international approach to diagnosis and management of biliary atresia, amongst Dr. Todd Ponsky, Dr. Yamataka Atsuyuki, Dr. Greg Tiao, Dr. Mark Davenport, and Dr. Jorge Bezerra. Dr. Greg Tiao is the Director of General and Thoracic Surgery, Frederick C. Ryckman Chair in Pediatric Surgery, Surgical Director of Liver Transplantation, and Associate Director of the Pediatric Surgery Fellowship at Cincinnati Children’s Hospital. Dr. Yamataka Atsuyuki is Professor and Head of Pediatric General and Urogenital Surgery at Juntendo University in Tokyo, Japan. Dr. Mark Davenport is the Head of Department of Pediatric Surgery and Professor at King’s College Hospital, London, and immediate past President of BAPS. Dr. Jorge Bezerra is the Director of the Division of Gastroenterology, Hepatology and Nutrition, and Medical Director of the Pediatric Liver Care Center at Cincinnati Children’s Hospital. Time stops: 00:02:28 Case 1: 50-day-old male with jaundice and clay-colored stools 00:03:26 Stool Card 00:05:20 Differential diagnosis 00:06:01 Bloodwork 00:07:48 Initial imaging: Ultrasound 00:09:38 Absence of gallbladder on ultrasound, now what? 00:09:49 Biopsy? 00:11:13 Scintography and diagnostic laparoscopy? 00:13:50 NASPHGAN Guidelines 00:14:44 Biopsy results 00:17:14 Role of ERCP 00:18:21 After positive biopsy, exploration and cholangiogram 00:19:09 Performing the Kasai procedure 00:19:29 Open Kasai (Davenport) 00:20:19 Open Kasai (Tiao) 00:21:36 Laparoscopic Exploration and Kasai (Yama) 00:25:48 US: Tips & Tricks for the operation 00:28:15 London: Tips & Tricks for the operation 00:30:31 Japan: Tips & Tricks for the operation Intro track is adapted from "I dunno" by grapes, featuring J Lang, Morusque. Artist URL: ccmixter.org/files/grapes/16626
This podcast is a discussion of the international approach to diagnosis and management of biliary atresia, amongst Dr. Todd Ponsky, Dr. Yamataka Atsuyuki, Dr. Greg Tiao, Dr. Mark Davenport, and Dr. Jorge Bezerra. Dr. Greg Tiao is the Director of General and Thoracic Surgery, Frederick C. Ryckman Chair in Pediatric Surgery, Surgical Director of Liver Transplantation, and Associate Director of the Pediatric Surgery Fellowship at Cincinnati Children’s Hospital. Dr. Yamataka Atsuyuki is Professor and Head of Pediatric General and Urogenital Surgery at Juntendo University in Tokyo, Japan. Dr. Mark Davenport is the Head of Department of Pediatric Surgery and Professor at King’s College Hospital, London, and immediate past President of BAPS. Dr. Jorge Bezerra is the Director of the Division of Gastroenterology, Hepatology and Nutrition, and Medical Director of the Pediatric Liver Care Center at Cincinnati Children’s Hospital. Time Stops: 00:01:41 Gastroenterology: Back to beginning for evaluation 00:04:10 Future Evaluation Options 00:05:48 Post-operative Steroids 00:11:15 Steroid Regimens 00:16:17 Potential side effects of steroids 00:18:07 Timing of steroid initiation 00:19:03 Post-Operative Antibiotics 00:20:14 Post-Operative Nutrition 00:21:08 Case 2: 100-day-old infant with a similar presentation 00:25:23 Case 3: Patient younger than two weeks with similar presentation 00:27:08 Post-Operative Complications 00:27:19 Cholangitis 00:30:17 Non-clearance of bilirubin 00:32:30 Role of cytomegalovirus (CMV) 00:37:24 Patients with initial clearance of jaundice who then require transplantation Intro track is adapted from "I dunno" by grapes, featuring J Lang, Morusque. Artist URL: ccmixter.org/files/grapes/16626
Makelle Groves is nothing short of amazing! Makelle was born with a rare liver disease called Biliary Atresia, which has turned into being her greatest blessing. Makelle’s positive and resilient attitude has helped her overcome many things in life and gives her the passion to live life to its fullest even though the future is full of unknowns for her. Her trademark smile reflects that resilient spirit within her. #makelllepower #light #love #energy #podcasting #podcastshow #tsinspires #overcomeanything #successfulwomen
Corey deVos talks to Lynn Fuentes about his daughter's Biliary Atresia diagnosis when she was just a few months old, her subsequent liver transplant a year later, and her ongoing recovery today. Corey also shares some of the little wisdoms that have ripened for him during his family's journey. It was a fantastic and very touching interview, and we invite you all to check it out.
Professor Mark Davenport discusses optimal ways to manage Biliary atresia in this part II on Biliary atresia.
Professor Mark Davenport has been studying and treating Biliary atresia for over 20 years. Join us in discovering his insights into this fascinating complex condition!
Tara Bone, contributing writer Rusty and HollyJo Karren of Richmond were overjoyed when their second son, Easten, was born on June 6, 2007, but their joy turned to heartache when Easten was diagnosed with Biliary Atresia, a rare liver disease that required something the family had never considered — an organ transplant. On August 13, […] The post Episode 2: HollyJo Karren appeared first on Cache Valley Family Magazine.
Coffee Talk Topic: Overcoming Biliary Atresia Paige Eavenson was living her dream until her daughter Corrie was diagnosed with Biliary Atresia at just eight weeks old. Through God's faithfulness, at age two Corrie received her transplant and now joins her mom to help other children in need of the same. Featured Guest: Paige Eavenson Host Brandee Nielsen says “Paige is a beloved sister in Christ, and a self-proclaimed “friend junky” who inspires thousands of women on a daily basis through her social media sites. She's also a founder and co-host of The Pew, which is a part of the GFC Beautiful Women's ministry. Paige is a true DIY woman! She homeschools her 4 beautiful children while working hard to earn extra income for her household. She's an avid reader, often sought for book recommendations covering prayer, devotionals, and other theological studies. Paige joins us to talk about Biliary Atresia, which is a rare liver disease, and the long, hard journey to Corrie's transplant. Today Paige and Corrie are devoted to helping other families and children who need transplants. Together they host an annual Pajama Drive to benefit Children's Healthcare of Atlanta, and, St. Joseph's Children's in Tampa. Be sure to listen in to find out how you can help too! LINKS FROM THE SHOW Connect with Paige Eavenson at http://www.paigeeavenson.com Subscribe to the Christian Coffee Talk Podcast on iTunes Podcast, Google Play Podcast, iHeartRadio, TuneIn, and Stitcher. Join our growing Online Community on where you can connect 24 hours a day, 7 days a week, 365 days a year! Check out our theme song, Jesus Kind Of Love by wwwNateJacksonMusic.com.
Coffee Talk Topic: Overcoming Biliary Atresia Paige Eavenson was living her dream until her daughter Corrie was diagnosed with Biliary Atresia at just eight weeks old. Through God’s faithfulness, at age two Corrie received her transplant and now joins her mom to help other children in need of the same. Featured Guest: Paige Eavenson Host Brandee Nielsen says “Paige is a beloved sister in Christ, and a self-proclaimed “friend junky” who inspires thousands of women on a daily basis through her social media sites. She’s also a founder and co-host of The Pew, which is a part of the GFC Beautiful Women’s ministry. Paige is a true DIY woman! She homeschools her 4 beautiful children while working hard to earn extra income for her household. She’s an avid reader, often sought for book recommendations covering prayer, devotionals, and other theological studies. Paige joins us to talk about Biliary Atresia, which is a rare liver disease, and the long, hard journey to Corrie’s transplant. Today Paige and Corrie are devoted to helping other families and children who need transplants. Together they host an annual Pajama Drive to benefit Children’s Healthcare of Atlanta, and, St. Joseph’s Children’s in Tampa. Be sure to listen in to find out how you can help too! LINKS FROM THE SHOW Connect with Paige Eavenson at http://www.paigeeavenson.com Subscribe to the Christian Coffee Talk Podcast on iTunes Podcast, Google Play Podcast, iHeartRadio, TuneIn, and Stitcher. Join our growing Online Community on where you can connect 24 hours a day, 7 days a week, 365 days a year! Check out our theme song, Jesus Kind Of Love by wwwNateJacksonMusic.com.
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