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Watch and subscribe on YouTube here- https://www.youtube.com/@Katrinascottlifestyle I am honored and grateful to have Sarah Beran on Live Beautifully to share her story. Sarah and I met 13 years ago and we've experienced so much together. From careers to marriage, friendship and motherhood, she has been such an inspiration to me and everyone around her. In April of 2020, she received a diagnosis she never expected to hear, especially in her 30s—cancer. We have all witnessed her go through life-saving treatments to heal and come out stronger on the other side. Her courage and resilience are truly inspirational. I can't wait to hear from you after this episode. https://livebeautifully.com/sarah-beran-cancer-survivor-and-advocate-on-life-love-motherhood-and-style/ To connect with Sarah, head to her instagram @sarahberanstyle SarahBeran.com Colontown.org Standuptocancer.org "By 2030, colon cancer is expected to be the #1 cause of cancer death in people under 50. Early onset colorectal cancer is on the rise around the world. Early Detection Matters. Know Your Risk Factors. Get Screened and Save Lives." - Checkit4Andretti Signs include: Abdominal pain Tenderness in the lower abdomen Blood in your stool- also narrow stools Change in your bowel habits and diarrhea Sudden weight loss If you're experiencing any of these signs, call your doctor and ask to be seen right away. A colonoscopy is easy and the #1 way to detect cancer. Connect with me on Instagram at Instagram.com/KatrinaScott Text me at this link- http://my.community.com/katrinascott See timecodes and show notes: https://livebeautifully.com/podcast-our-fertility-journey/ Build Your Own Beautifully Branded Website http://LiveBeautifully.com/Tonic --- Send in a voice message: https://anchor.fm/katrina-scott-podcast/message --- Send in a voice message: https://podcasters.spotify.com/pod/show/katrina-scott-podcast/message
Trevor Maxwell, 45, has been living with stage IV colon cancer since March of 2018. He has undergone five major surgeries, chemotherapy, immunotherapy, and a clinical trial. He lives in Maine with his wife and two teenage daughters. In January of 2020, Trevor founded Man Up to Cancer, a purpose-driven company and support community that inspires men to connect and avoid isolation during our cancer journeys. MUTC is comprised of a podcast, website, annual retreat, chemo backpack program, and a Facebook group with nearly 2,000 men impacted by cancer. Trevor is writing a book scheduled to be independently published in December of 2022. Man Up to Cancer has partnerships with Seagen, CURE/MJH Life Sciences, Natera, Fight Colorectal Cancer, American Association for Cancer Research, GI Cancers Alliance, COLONTOWN, Global Colon Cancer Association, and Ancora AI. As a patient advisor, Trevor serves on advisory boards for Seagen, WCG Clinical, and Blue Note Therapeutics.
About This Episode:Cancer Patient Advocate Joe Bullock returns for the second installment of his interview with the Our Cancer Journey Podcast with Bruce Watkins. This episode picks up from where Part-1 of our interview with Joe left off ( #009 – From Caregiver, to Surviving Cancer, to Patient Support Advocate Part 1 – Joe Bullock ).In this episode, Joe and Bruce discuss the challenges of being a caregiver for an estranged parent, how Joe overcame those barriers to provide meaningful support to his father, and how Joe found forgiveness and strength in his heart. When cancer arrived in Joe's life, he use those lessons from being a caregiver to help ensure his relationship with his spouse and his children was as healthy as possible. Joe also shares the challenges he faced as a typical man in dealing with the uncertainty of a cancer diagnosis.Surprisingly, this episode is exceptionally positive, so much so that host Bruce Watkins and Joe laugh almost continuously through the show at the absurdity an irony of many of the situations cancer patients face. The end of the episode introduces Joe's motivation to get involved with helping others. In an upcoming episode, Joe will return to discuss how he became involved with the Man Up to Cancer patient advocacy support group, and his passion for helping pediatric cancer patients and their families.Hear Episode #009 - PART-1 of the OCJ Podcast interview with Joe Bullock:https://www.ourcancerjourney.com/2021/06/08/009-from-caregiver-to-surviving-cancer-to-patient-support-advocate-part-1-joe-bullock/References and Resources mentioned in this Episode:Man Up To Cancer - The Howling Place Facebook Group: https://www.facebook.com/groups/manuptocancer/Man Up To Cancer Podcast with Trevor Maxwell: https://manuptocancer.captivate.fm/Colontown: https://colontown.org/We Have Cancer Podcast with Lee Silverstein: https://wehavecancershow.com/ Episode Host: Bruce WatkinsA Father, Cancer survivor, producer, podcaster, writer & content creator, speaker, voice-over artist, facilitator/moderator, avid traveler, cultural explorer, humanitarian, giving-back & minimalist evangelist, music enthusiast, former Corporate people leader, and curious soul who transformed into an unapologetically optimistic and unpretentious advocate of Life-Optimization for all. After surviving Cancer and other life-changing experiences in 2017, Bruce gave away most of his possessions, left his home behind and began traveling, writing, volunteering, and giving-back. https://www.brucewatkins.comAbout the Podcast: If you are just discovering the Our Cancer Journey Podcast with Bruce Watkins, …….This Podcast is a place for those impacted with illness, and their caregivers, their loved ones, and everyone wishing to prevent illness and enhance their life. The Our Cancer Journey Podcast Official Webpage:https://www.ourcancerjourney.com/Follow Our Facebook Page:https://www.facebook.com/ourcancerjourneypodcastSubscribe for Free to the OCJ Newsletter:https://www.ourcancerjourney.com/contact/View our Content Advisory Note Here: https://www.ourcancerjourney.com/content-advisory-note/
Connect & learn more about Howard:Board DirectorStage 4 Colon Cancer – patient / survivor / advocatehttps://www.shiningbrightly.comPaltown Development Foundationwww.PALTOWN.orgwww.COLONTOWN.orgI Survived Cancer (twice) and Here Is How I Did Ithttps://medium.com/authority-magazine/howard-brown-i-survived-cancer-and-here-is-how-i-did-it-ce6d8faf6749My story from diagnosis – treatment - survivorshipPart 1 - https://coloncancercoalition.org/2018/03/15/faces-of-blue-howard-brown/Part 2 - https://coloncancercoalition.org/219/06/16/faces-of-blue-howard-brown-updated/Part 3 - https://coloncancercoalition.org/2021/03/04/faces-of-blue-howard-brown-update-3/ https://www.linkedin.com/in/howardsbrown/https://www.facebook.com/howard.brown.36
About This Episode: The improbably positive and up-beat podcast that explores ways to help YOU feel better, live happier, expand your self-empowerment, and enhance your life experience IS BACK for its 2nd Season! We are so excited about the engaging guests, insightful topics, and fun banter in our upcoming line-up that we had to share just a few of the memorable moments with you in advance!! And we are still recording new episodes for this season, so even more fascinating interviews and solo-shows are on the way.In this new season of the Our Cancer Journey Podcast, Host Bruce Watkins interviews leading Doctors, researchers, healthcare & support professionals, and inspiring Cancer patient advocates. Bruce continues to dive deep into ideas and experiences with his guests to find great takeaways for us all. And, of course, you'll hear vulnerable moments, meaningful commentary, and the same fun, informal, and conversational-style discussions that the OCJ Podcast is known for and our listeners have come to love. So check out this trailer episode, enjoy the sonic ride, and don't miss a new show by following the Our Cancer Journey Podcast on your apps, following the show's Facebook page, or by visiting the Official Our Cancer Journey Podcast Website! EXTRA FUN FACT! Be sure to listen all the way to the end of the episode to hear Bruce share just how much he enjoys doing the show! Episode Guests: This special “Season 2 Trailer” episode includes highlights from just a few of this season's upcoming interviews. Guests featured in this episode include:Dr. Arash Asher, MD - Director of Cancer Survivorship & Rehabilitation at the Samuel Oschin Comprehensive Cancer Institute at Cedars-SinaiDr. Drew Moghanaki MD - Thoracic Radiation Oncology Researcher as well as Professor and Chief of Thoracic Oncology in the UCLA Department of Radiation Oncology.Dr. Mladen Golubic, MD, PhD - Professor, Medical Director, Center for Integrative Health and Wellness Professor of Clinical Family and Community Medicine at the University of CincinnatiJeffrey Wertheimer, Ph.D., ABPP-CN - Associate Director, Department of Physical Medicine and Rehabilitation - Chief of Psychology and Neuropsychology Services, Director of Clinical Training, NeuropsychologyDr. Mao Shing Ni, Doctor of Traditional Chinese Medicine, cofounder of the award-winning Tao of Wellness center and Yo San University, and best selling authorLevi Waldron - Associate Professor - Department of Epidemiology and Biostatistics CUNY Graduate School of Public Health and Health PolicyBin McLaurin - Cancer Patient Advocate & Program Coordinator of the Wellness, Resilience and Survivorship programs at Samuel Oshin Comprehensive Cancer Institute - Cedars-Sinai CancerLiz Morasso, LCSW, OSW-C - Clinical Social Worker III, Department of Radiation Oncology - UCLA Health SystemKathleen Ross- Allee - Certified Yoga Therapist & Director of Yoga Studies at Loyola Marymount University Joe Bulllock - Cancer Patient Advocate. Administrator for The Howling Place Facebook group @manuptocancer.com and Program Manager for Colontown Junior with Colontown.orgAngela C. Lai, L.O.M., MSTOM - Licensed Acupuncturist & Oriental Medicine Practitioner - UC Health Integrative MedicineEpisode Host: Bruce WatkinsA Father, Cancer survivor, media producer, podcaster, writer & visual content creator, speaker, voice-over artist, facilitator/moderator, avid traveler, cultural explorer, humanitarian, giving-back & minimalist evangelist, music enthusiast, former Corporate people leader, and curious soul who transformed into an unapologetically optimistic and unpretentious advocate of Life-Optimization for all. After surviving Cancer and other life-changing experiences in 2017, Bruce gave away most of his possessions, left his home behind and began traveling, writing, volunteering, and giving-back. https://www.ourcancerjourney.com/about-our-cancer-journey-bruce-watkins/https://www.brucewatkins.comhttps://www.linkedin.com/in/brucewatkins/About the Podcast: If you are just discovering the Our Cancer Journey Podcast with Bruce Watkins, …….This Podcast is a place for those impacted with illness, and their caregivers, their loved ones, and everyone wishing to prevent illness and enhance their life. The Our Cancer Journey Podcast Official Webpage: https://www.ourcancerjourney.com/ Follow Our Facebook Page:https://www.facebook.com/ourcancerjourneypodcastSubscribe for Free to the OCJ Newsletter:https://www.ourcancerjourney.com/contact/View our Content Advisory Note Here: https://www.ourcancerjourney.com/content-advisory-note/
Carrie speaks to another member of the Man Up To Cancer crew! Joe Bullock was diagnosed with Stage 3B Colorectal cancer following a routine colonoscopy at the age of 50. He shares his experience and how he got connected with www.manuptocancer.com. He went on to become an Empowered Patient Leader for Colontown.org and created Colontown Junior to emotionally support the families of children and teenagers diagnosed with pediatric colorectal cancer. Connect with Joe on Twitter and Instagram @jbullock114 #manuptocancer #hwcarepodcast #colorectalcancer #colontown #menshealth
RobinMcGee's award-winning book The Cancer Olympics describes her fight for medical justice and fair chemotherapy policy after serious medical negligence. For her patient advocacy work, she has been decorated by the Governor-General of Canada. 01:27: When I was 46 in 2008, I noticed rectal bleeding. 03:28: Her referral was essentially one sentence which was rectal bleeding please assess. 05:15: In retrospect, we know now that it was stage four. 07:18: There was no kind of restorative justice approach where we could all talk and learn. 09:16: The next step for my kind of cancer was radiation and chemotherapy. 11:38: The oncologist said you need this chemotherapy right away. 13:37: There's a national group that evaluates the evidence and makes a recommendation and expert recommendation. 15:08: Did you go into remission? 17:02: I lived that way, and I would remain in remission for about 56 years. 19:24: I ultimately got five requisitions for a colonoscopy from her office. 22:20: It's amazing how interesting this becomes when it's threatening your life. 26:08: In Canada, there isn't private malpractice insurance. 28:06: The survival outcomes of stage two are massively better than stage four. 30:37: It was soul-crushing to live that way. 32:23: March 2020 the world shuts down as we all know and unfortunately for me, so too was cancer care. 34:02: They all lost their marriages. 37:04: In Canada, it is extremely uncommon for patients to prevail in a malpractice action. 38:52: What is one thing you wish you had known at the very beginning of your cancer journey? 41:57: I'd like to believe in 50 years, patient safety rights are a civil right. 42:55: Thriver Rapid Fire Questions. 44:25: Aside from Cancer U, what is one resource that you would recommend for cancer patients and caregivers? Resources The Cancer Olympics websiteThe Cancer Olympics bookRobin on FacebookContact RobinLive Ask The Author Interview with RobinLots of Helping Hands (to get support from your community)Colontown
I am a survivor of stage 3b colorectal cancer. I was diagnosed in May 2018 after a routine colonoscopy. I have been NED since February of 2019. Trevor Maxwell a stage IV CRC patient who created Manuptocancer.com ask me to help him create The Howling Place Group on Facebook. We have grown to 1100 men strong in 16 months. The goal is to help men not to self isolate themselves during cancer diagnosis and treatment. to also support them during survivorshipStage 3b colorectal cancer survivor Durham, N.C.I was diagnosed in May of 2018 with stage3b Colorectal Cancer after a routine Colonoscopy at age 50. I had symptoms for a few months but had ignored them for several months following the death of both my parents in 2017 within a six-month period. During the Colonoscopy, my GI doctor found two polyps and a 1Ocm tumor in my colon. I had surgery to remove the tumor, reconnect my colon, and had 40 lymph nodes removed. Three of those tested positive for cancer. After surgery i underwent treatment with two forms of chemotherapy, Oxaliplatin infusions and Xeloda pills for 8 cycles or six months. In February 2019 I became known as NED (No Evidence of Disease) or cancer-free.Over the last few months, I have been working on finding my voice in the cancer community. I have begun living by the mantra " Cancer might be done with me but I'm not done with cancer." I have looked to other men in the cancer community who have made strides in this area and followed their examples. The following are my current roles of advocacy in the cancer community.*** January 2020 Lead Administrator for the Men's Cancer Facebook support group 'Man Up To Cancer/ The Howling Place' . It's a part of manuptocancer.com *** February 2020 I became a 'Card Angel' for Chemo Angels***April 2020 I became a contributor to manuptocancer.com as a blogger for ' Joe's Wolfpack Trailblazers' . A blog about the works of service and the daily lives of the men of The Howling Place. ***June 2020 I became an Ambassador for Fight CRC 2021 *** October 2020 I became an Empowered Patient Leader for Colontown.org***December 2020 Created 'Colontown Junior' with the help of Colontown.org to support the families of children diagnosed with pediatric colorectal cancer.I am married to my wife Michelle Bullock for 29 years. We live in Durham, N.C. with our two children._____________________Connect with Joe:_____________________twitter @jbullock114https://www.facebook.com/joe.bullock.7792instagram jbullock114manuptocancer.comwww.facebook.com/groups/manuptocancer/______________________________________________________This episode is sponsored by: That's why the BC Schizophrenia Society has launched a brand new podcast, called Look Again, Mental Illness Re-examined. Host Faydra Aldridge talks to doctors, families, and people with lived experience about how to recognize mental illness, and the specific treatments that can help. Check it out. They'll really challenge you to“look again” at what you think you know about mental illness. Support the show (https://www.patron.com/findyourrare)
In this first of a 2-Part episode, traditional Southern (U.S.) guy Joe Bullock walks us through his unexpected cancer journey where he moved through multiple roles. Our raw and authentic conversation with Joe provides us great insights on how to support caregivers, being an adult-child caregiver for a difficult aging parent, the importance of communication with your life-partner during diagnosis and treatments, how to navigate a personal cancer experience with your immediate family (especially children), and much more.This Part-1 episode sets the stage for how Joe transformed his life from “Average Guy” into a passionate advocate for men to seek out support during their cancer journey, and a dedicated supporter for pediatric Cancer patients. In Part-2 of our interview with Joe, we will discuss how he and his fellow Colon Cancer Survivor Trevor Maxwell (host of the Man Up To Cancer Podcast) came to found the Facebook Group for Men's Support, “Man Up To Cancer - The Howling Place,” as well as Joe's other giving back efforts. ——Key Discussion Points and Takeaways from this Our Cancer Journey Podcast Episode:How a routine colonoscopy detected a Stage-3 Colon Cancer diagnosisThe importance of speaking immediately and candidly with family members, especially parents, about your family health historyHow “stepping up” and providing care for a loved one with Cancer, even when there have been issues with that person, can provide blessings and benefitsHow having a previous experience as a caregiver can make you a more compassionate patient toward your future caregiversThe importance of shaping individual communications about a cancer diagnosis to children of different ages, and how that communication does not end after the initial conversationHow moving into a home across the street from your parents always turns into an episode of Everybody Loves Raymond, ……. Always!——References and Resources mentioned in this Episode:Man Up To Cancer - The Howling Place Facebook Group: https://www.facebook.com/groups/manuptocancer/Man Up To Cancer Podcast with Trevor Maxwell: https://manuptocancer.captivate.fm/Colontown: https://colontown.org/We Have Cancer Podcast with Lee Silverstein: https://wehavecancershow.com/ Episode Guest(s): Joe Bullock:Joe Bullock worked in the restaurant and hospitality industry while his wife was a registered nurse at a children's hospital in their North Carolina town. In response to her variable schedule, the couple decided that Joe would become a stay at home Dad in order to provide their young children a sense of stability. When dropping off his kids at pre-school, Joe was recruited to teach pre-K classes there, a role he thrived in for 20 years. The lessons Joe learned when he became a caregiver for his Father, a man who Joe had a difficult relationship with for years, helped him to navigate his later personal Colon Cancer diagnosis. After surviving his cancer experience, Joe felt called to encourage other men to connect with others and seek support via the creation of a growing Facebook community. Joe also now is organizing support for pediatric cancer patients and their families. Episode Host: Bruce WatkinsA Father, Cancer survivor, podcaster, writer & content creator, speaker, voice-over artist, facilitator/moderator, traveler, cultural explorer, humanitarian, giving-back & minimalist evangelist, music enthusiast, former Corporate people leader, and curious soul who transformed into an unapologetically optimistic and unpretentious advocate of Life-Optimization for all. After surviving Cancer and other life-changing experiences in 2017, Bruce gave away most of his possessions, left his home behind and began traveling, writing, volunteering, and giving-back. Learn more:https://www.ourcancerjourney.com/about-our-cancer-journey-bruce-watkins/https://www.brucewatkins.comhttps://www.linkedin.com/in/brucewatkins/Follow Our Facebook Page:https://www.facebook.com/ourcancerjourneypodcastSubscribe for Free to the OCJ Newsletter:https://www.ourcancerjourney.com/contact/Check out Our Official Webpage:https://www.ourcancerjourney.com/Request to Subscribe/Follow, Review and Ratings - Please help us share this information!A top aim of the Our Cancer Journey Podcast is to help share valuable information with those impacted by Cancer, their caregivers and their loved ones. Your positive ratings, show reviews (on Apple Podcasts), and especially your personal recommendations and sharing of our show with others, are the most effective ways you can help us get the important information about Survivorship out to those that need it! So please subscribe, rate, review and share the Our Cancer Journey Podcast, our website and our Facebook page with friends and in your social media. Thanks for Listening! With Gratitude, The Our Cancer Journey Podcast Team.
Cancer patients and their caregivers experience many breakdowns in our healthcare system: they are overwhelmed as they confront their mortality and struggle to access and navigate complex, constantly changing treatment options across an uncoordinated healthcare system. CancerHacker Learning Lab accelerates patient-led solutions to these cancer care problems by organizing conversations with carefully selected advisors on their most urgent issues. Brad Power, a process innovation consultant and lymphoma survivor, along with Erika Hanson Brown, a community organizer and colorectal cancer survivor, share how they created and co-founded CancerHacker Learning Lab with Hive Networks, a provider of health learning network services. Brad Power is a process innovation consultant, focused on reengineering cancer treatment, particularly by empowering cancer patients, caregivers, and startups. He is co-founder and head hacker at CancerHacker Learning Lab, an accelerator for patient-led solutions to cancer care problems; founder of Reengineering Cancer Treatment; and founding member and chairman of MyCancerDB. Erika Hanson Brown is the “Founding Mayor” of COLONTOWN, an online community dedicated to improving the lives of people with colorectal cancer. Brown is also CEO and founder of One Cancer Place, the non-profit organization that oversees COLONTOWN. --- Support this podcast: https://anchor.fm/randall-broad/support
Summer Watson is a famed singer and breast cancer survivorSummer Watson was at the top of the world. She’d signed a recording contract with Sony and was living her life to the fullest until a routine mammogram found Stage 4 breast cancer in 2004. Despite being given just weeks to live, Summer has allowed her love of music and a positive outlook to propel her forward and keep her alive. Summer Watson biographySummer Watson is a classical music superstar who just released her latest EP “Unveiled.” But after being diagnosed with Stage 4 breast cancer in 2014 and being given just weeks to live, things looked bleak. She’s leaned on her love of music as well as her bright and perky attitude to heal. Table of contents:Introduction The attraction to music Summer got into music at four years old, which all started with some music lessons and blossomed into something much bigger. How did Summer’s parents react to her rising fame? Summer explains how her parents’ and music teachers’ encouragement helped propel her to college for music and eventually to a massive recording contract with Sony. Covering Sting Being in a train accident in 2002 helped Summer realize the fragility of life. In the famed Abbey Road Studio to record her first album, a producer pointed out she should do a cover of Sting’s song, “Fragile.” Breast cancer diagnosis Summer was diagnosed with breast cancer after getting a routine mammogram in 2014. She talks a bit about the process and the initial diagnosis. Surviving Despite the initial breast cancer diagnosis giving Summer just a few weeks to live, she remains here to this day. But it wasn’t easy. Summer discusses how she had to spend time recovering, both physically and mentally, and some of the things she did along the way to get to this point now. How her relationship with music changed Having breast cancer naturally changed Summer. She began getting out of her comfort zone, jamming with bands and other musicians, and becoming a vocal coach. She’s now writing and recording her own music as she’s found more joy in singing. Coping with COVID-19 Summer’s life experiences have helped her form a new life view. Lee and Summer talk about how that new view has helped her through the COVID-19 pandemic. Staying positive and becoming stronger Summer shares her outlook on how mindfulness and not feeling sorry for herself have allowed her to live life to the fullest. Lee and Summer talk about how having a positive attitude and a purpose might have helped keep them alive. Unveiled Summer Watson’s latest EP is called https://open.spotify.com/album/0HyePgBL0qTWOwywg0wW5q?si=M4sptiA1Q-mx74d4OQZG9g (“Unveiled”) and as Lee points out, there’s a line in the chorus of the title song that says “when your heart is broken, the world is unveiled.” Summer talks about the meaning of that line and her philosophy to life. Links mentioned in the show:https://open.spotify.com/album/0HyePgBL0qTWOwywg0wW5q?si=M4sptiA1Q-mx74d4OQZG9g (Summer Watson - Unveiled) https://www.instagram.com/summerwatsonofficial/ (Summer Watson - Instagram) Learn more about ColonTown - https://colontown.org (https://colontown.org) Subscribe to the “https://pod.link/wehavecancer (WE Have Cancer” Podcast) - https://pod.link/wehavecancer (https://pod.link/wehavecancer) Follow WE Have Cancer on Social Media: Like our https://www.facebook.com/wehavecancershow/ (Facebook) page Join our https://www.facebook.com/groups/wehavecancershow/ (private Facebook group) Follow us on https://twitter.com/wehavecancerpod (Twitter) Follow us on https://instagram.com/wehavecancerpod (Instagram) Follow us on https://linkedin.com/company/wehavecancer (LinkedIn) Check out https://wehavecancershow.com/luxe (Luxe Bidets) Know someone touched by cancer who has an inspiring story? Email Lee
Jason Randall is a stage 4 colorectal cancer warrior and family man from Eudora, Kansas. He has become a fierce patient advocate and source of inspiration and knowledge for other patients and their families. He is a leader in https://colontown.org/ (COLONTOWN), an online community for people with CRC. He is also a leader and administrator in the Man Up to Cancer community. On this episode, Jason shares some amazing stories from his cancer journey, and also shares 5 tips to make chemo suck less. Jason has been through a lot of chemotherapy over the past few years. He has also endured six surgeries, Y90 radiotherapies, fistulas, a perforated bowel, biopsies, chemical burns, and the loss of more than 100 pounds. In short, he is a cancer badass. The tagline for Man Up to Cancer is “Open Heart Warrior Spirit.” Jason lives and breathes that approach to cancer and life.
Anytime you can get a middle-aged cancer survivor from North Carolina to talk about his experience with “forest bathing,” you know you have hit podcast GOLD. Joe Bullock, my brother in arms, the lead administrator for Man Up to Cancer’s Howling Place Facebook group, makes a triumphant return to the podcast. Together, we kick off 2021 in style. We celebrate the first anniversary of the Howling Place, which now has more than 850 members from around the world (male cancer survivors, patients, and caregivers). When the group hits 1000 members, Joe’s getting a tattoo, and I’m going to livestream the shit out of that. We talk about Joe’s amazing advocacy work, including the upcoming launch of COLONTOWN JR., which is a supportive space for families with children who have colorectal cancer. And finally, I put Joe through the “Gauntlet of Random Questions,” including the classic: 70s, 80s, or 90s. Which was the best decade, and why?
Cancer patients and their caregivers experience many breakdowns in our health system: they are overwhelmed as they confront their mortality and struggle to access and navigate complex, constantly changing treatment options across an uncoordinated healthcare system. CancerHacker Learning Lab accelerates patient-led solutions to these cancer care problems by organizing conversations with carefully selected advisors on their most urgent issues. On this C-Sessions with your host Randall Broad as he interviews Erika Hanson Brown and Brad Power about their co-founded CancerHacker Learning Lab. Brad Power, a process innovation consultant and lymphoma survivor, and Erika Hanson Brown, a community organizer and colorectal cancer survivor, will share how they created and co-founded CancerHacker Learning Lab with Hive Networks, a provider of health learning network services. Brad Power is a process innovation consultant, focused on reengineering cancer treatment, particularly by empowering cancer patients, caregivers, and startups. He is co-founder and head hacker at CancerHacker Learning Lab, an accelerator for patient-led solutions to cancer care problems; founder of Reengineering Cancer Treatment; and founding member and chairman of MyCancerDB. Erika Hanson Brown is the “Founding Mayor” of COLONTOWN, an online community dedicated to improving the lives of people with colorectal cancer. Brown is also CEO and co-founder of PALTOWN, the non-profit organization that oversees COLONTOWN. As an 18-year survivor of stage III colon cancer, Brown is known for her high energy, fearlessness, networking skills, humor, and loving heart. She believes patients should be well informed and an active voice in decisions about their care, as partners with their doctors. Motivated by this core belief, Brown founded COLONTOWN in 2011. The goal, empowering patients and caregivers to share information and seek the best treatments available. Several doctors told her the endeavor was ridiculous. Yet Brown persisted! These days, oncologists refer to COLONTOWN as, “The Patient Powerhouse.” Structured in private groups on Facebook, the group has more than 5,000 active “residents” from countries around the world. Through advocacy and relationships with medical professionals, COLONTOWN members are advancing the fields of colorectal cancer research and clinical practice.
Cancer patients and their caregivers experience many breakdowns in our health system: they are overwhelmed as they confront their mortality and struggle to access and navigate complex, constantly changing treatment options across an uncoordinated healthcare system. CancerHacker Learning Lab accelerates patient-led solutions to these cancer care problems by organizing conversations with carefully selected advisors on their most urgent issues. On this C-Sessions with your host Randall Broad as he interviews Erika Hanson Brown and Brad Power about their co-founded CancerHacker Learning Lab. Brad Power, a process innovation consultant and lymphoma survivor, and Erika Hanson Brown, a community organizer and colorectal cancer survivor, will share how they created and co-founded CancerHacker Learning Lab with Hive Networks, a provider of health learning network services. Brad Power is a process innovation consultant, focused on reengineering cancer treatment, particularly by empowering cancer patients, caregivers, and startups. He is co-founder and head hacker at CancerHacker Learning Lab, an accelerator for patient-led solutions to cancer care problems; founder of Reengineering Cancer Treatment; and founding member and chairman of MyCancerDB. Erika Hanson Brown is the “Founding Mayor” of COLONTOWN, an online community dedicated to improving the lives of people with colorectal cancer. Brown is also CEO and co-founder of PALTOWN, the non-profit organization that oversees COLONTOWN. As an 18-year survivor of stage III colon cancer, Brown is known for her high energy, fearlessness, networking skills, humor, and loving heart. She believes patients should be well informed and an active voice in decisions about their care, as partners with their doctors. Motivated by this core belief, Brown founded COLONTOWN in 2011. The goal, empowering patients and caregivers to share information and seek the best treatments available. Several doctors told her the endeavor was ridiculous. Yet Brown persisted! These days, oncologists refer to COLONTOWN as, “The Patient Powerhouse.” Structured in private groups on Facebook, the group has more than 5,000 active “residents” from countries around the world. Through advocacy and relationships with medical professionals, COLONTOWN members are advancing the fields of colorectal cancer research and clinical practice.
On this edition of C-Sessions with your host, Randall Broad he interviews Erika Hanson Brown, CEO of PALTOWN. Here are a few areas in which Paltown aims to make a difference: Activism, Learning, Curing = Empower each patient’s experience for the benefit of self and other patients Access to a large network of colon cancer patients / caregivers with expertise and database of the treatments and outcomes with thousands of colorectal patients Initial focus on colorectal and eventually other cancers Erika Hanson Brown is the “Founding Mayor” of COLONTOWN, an online community dedicated to improving the lives of people with colorectal cancer. Brown is also CEO and co-founder of PALTOWN, the non-profit organization that oversees COLONTOWN. As an 18 -voice year survivor of stage III colon cancer, Brown is known for her high energy, fearlessness, networking skills, humor, and loving heart. She believes patients should be well informed and an active voice in decisions about their care, as partners with their doctors. Motivated by this core belief, Brown founded COLONTOWN in 2011. The goal, empowering patients and caregivers to share information and seek the best treatments available. Several doctors told her the endeavor was ridiculous. Yet Brown persisted! These days, oncologists refer to COLONTOWN as, “The Patient Powerhouse.” Structured in private groups on Facebook, the group has more than 5,000 active “residents” from countries around the world. Through advocacy and relationships with medical professionals, COLONTOWN members are advancing the fields of colorectal cancer research and clinical practice. In addition to her roles with COLONTOWN and PALTOWN, Brown serves on the National Cancer Institute’s (NCI) Colon Cancer Task Force, and is a CRC Dream Team member for Stand Up to Cancer. Brown celebrated 17 years of “dancing with NED” (no evidence of disease) on Women’s Equality Day, Aug. 26, 2020.
On this edition of C-Sessions with your host, Randall Broad he interviews Erika Hanson Brown, CEO of PALTOWN. Here are a few areas in which Paltown aims to make a difference: Activism, Learning, Curing = Empower each patient’s experience for the benefit of self and other patients Access to a large network of colon cancer patients / caregivers with expertise and database of the treatments and outcomes with thousands of colorectal patients Initial focus on colorectal and eventually other cancers Erika Hanson Brown is the “Founding Mayor” of COLONTOWN, an online community dedicated to improving the lives of people with colorectal cancer. Brown is also CEO and co-founder of PALTOWN, the non-profit organization that oversees COLONTOWN. As an 18 -voice year survivor of stage III colon cancer, Brown is known for her high energy, fearlessness, networking skills, humor, and loving heart. She believes patients should be well informed and an active voice in decisions about their care, as partners with their doctors. Motivated by this core belief, Brown founded COLONTOWN in 2011. The goal, empowering patients and caregivers to share information and seek the best treatments available. Several doctors told her the endeavor was ridiculous. Yet Brown persisted! These days, oncologists refer to COLONTOWN as, “The Patient Powerhouse.” Structured in private groups on Facebook, the group has more than 5,000 active “residents” from countries around the world. Through advocacy and relationships with medical professionals, COLONTOWN members are advancing the fields of colorectal cancer research and clinical practice. In addition to her roles with COLONTOWN and PALTOWN, Brown serves on the National Cancer Institute’s (NCI) Colon Cancer Task Force, and is a CRC Dream Team member for Stand Up to Cancer. Brown celebrated 17 years of “dancing with NED” (no evidence of disease) on Women’s Equality Day, Aug. 26, 2020.
In the late summer of 2019, Erika Hanson Brown gave me a choice. Use my voice to help others facing cancer, or stay on the sidelines. I almost said no. Saying yes was one of the best decisions I ever made. Today on the podcast, Kelin and I chat with Erika, the visionary colon cancer survivor who founded COLONTOWN in 2011. www.colontown.org COLONTOWN improves the quality of life and outcomes for people with colorectal cancer, through shared knowledge, experience, and support. It's an online community, created and operated entirely by colorectal cancer patients, survivors, and care partners. Colontownies are leaders of the ‘patient-to-patient’ movement, educating members on the science and latest advancements related to our disease. COLONTOWN is structured in private groups on Facebook. The core neighborhood is “Downtown.” From there, members can participate in more than 120 neighborhoods that cater to all aspects of colorectal cancer. For example, “Four Corners” is for stage IV patients, and "Corner Cupboard" offers solutions to common side effects.
In today's episode, I share a blog post about one of those big uncomfortable words that guys don't talk about: Shame. Then Kelin and I dive deep into a discussion about how shame has reared its ugly head in my cancer journey. Shout out to the organizations we mention: https://www.colonclub.com/ (The Colon Club), COLONTOWN, and the Dempsey Center. Here's an excerpt: "Don't be weak. Toughen up. Take it like a man. So what happens to the American man - one who has been taught there is no hurdle he can't handle on his own - when a challenge comes along that he can't simply fix? What happens when he gets cancer?"
Dr. Dana Cardinas was diagnosed with peripheral neuropathy (https://www.mayoclinic.org/diseases-conditions/peripheral-neuropathy/symptoms-causes/syc-20352061) two years before being diagnosed with stage 3c colon cancer. During our conversation she shares how her neuropathy ultimately led to her cancer diagnosis and the work she and others are doing to minimize the often debilitating effects of chemotherapy induced peripheral neuropathy. Links Mentioned In the WE Have Cancer PodcastWE Have Cancer LinksDana's blog - https://nervesmatter.com/ (https://nervesmatter.com/) https://meetinglibrary.asco.org/record/188651/abstract (https://meetinglibrary.asco.org/record/188651/abstract) Colontown - https://www.facebook.com/COLONTOWN/ (https://www.facebook.com/COLONTOWN/) Nerve glide exercise video - https://youtu.be/loUuq7rPTH0 (https://youtu.be/loUuq7rPTH0) Subscribe to the WE Have Cancer Podcast - https://www.facebook.com/wehavecancershow/ (https://www.facebook.com/wehavecancershow/) Join our private Facebook group - https://www.facebook.com/groups/wehavecancershow/ (https://www.facebook.com/groups/wehavecancershow/) Follow us on Twitter - https://twitter.com/wehavecancerpod (https://twitter.com/wehavecancerpod) Follow us on Instagram - https://instagram.com/wehavecancerpod (https://instagram.com/wehavecancerpod) Follow us on LinkedIn - https://linkedin.com/company/wehavecancer (https://linkedin.com/company/wehavecancer) Know someone touched by cancer who has an inspiring story? Email Lee - Lee@wehavecancershow.com (mailto:Lee@wehavecancershow.com)
In our first full episode, Kelin and I talk to Joe Bullock of Durham, N.C. Joe plays a huge role in Man Up to Cancer. He is the lead administrator of the Howling Place (AKA The Wolfpack), which is our private Facebook group for men impacted by cancer, including patients, survivors, and caregivers. Joe is also an ambassador for https://fightcolorectalcancer.org/ (FightCRC), and an active patient voice in several organizations including COLONTOWN. He is a husband, father, and a stage IIIB colon cancer survivor. Keep howlin', Joe!
Howard Brown was first diagnosed with cancer - Non-Hodgkins Lymphoma - at the age of 24. When he turned 50, a routine colonoscopy revealed stage 3 colon cancer. During our conversation we discussed: The numerous treatments, including HIPEC, and clinical trials he's been through. His experience as an an attendee of the 2019 American Association of Cancer Research (AACR) conference. How his twin sister saved his life from stage 4 Non-Hodgkins Lymphoma. The possible link between childhood and young adult cancers to adult cancers. His experience being treated with Hyperthermic Intraperitoneal Chemotherapy (HIPEC) What his cancer experience has taught him about himself. How exercise has helped him physically and emotionally. His thoughts, and mine, on healthy eating. Links Mentioned In the Show Stacy Hurt - https://stacyhurt.net/ AACR - https://www.aacr.org/Pages/Home.aspx Gentle Yoga With Jean DiCarlo Wagner - https://Wehavecancershow.com/019 Colontown - https://colontown.org/colontown-intake-form/ Belong.Life App - https://belong.life/ WE Have Cancer Links Subscribe to the show - https://pod.link/wehavecancer Follow WE Have Cancer on Social Media Like our Facebook page - https://www.facebook.com/wehavecancershow/ Join our private Facebook group - https://www.facebook.com/groups/wehavecancershow/ Follow us on Twitter - https://twitter.com/wehavecancerpod Follow us on Instagram - https://instagram.com/wehavecancerpod Follow us on LinkedIn - https://linkedin.com/company/wehavecancer Know someone touched by cancer who has an inspiring story? Nominate a guest to appear on the podcast - https://wehavecancershow.com/guest Email Lee Lee@wehavecancershow.com
Game show talk and hatred! Plus, your letters... ice skates... the year of Bluhm... and the holy trinity of a failing body.
Happy New Year! This episode is the third installment of my cancer journey summary. I discuss life post surgery that included the support systems I took advantage of and unfortunate hospital visits. However, in the end I got great news!Contact info to send questions to the podcast are listed below.Email: vixmixpodcast@gmail.comVoiceMail: 505-333-8232Instagram: @vixmixpodcast
Charles Griffin, Jr. was diagnosed with stage IV colon cancer at the age of 32. Shortly after, he discovered the Colon Cancer Alliance through their Facebook group COLONTOWN. It opened his eyes to the wonderful community of support for those impacted by this disease! Read his story below. In my 34 years of life, I’ve earned a reputation for being a do-it-all kind of guy. I’m a husband to my college sweetheart Britni, a father to our four young daughters, a former college football star, an avid golfer, a motivational speaker, a YouTube entertainer and a novice screenwriter. My name is Charles Griffin Jr. and I never thought I would be a stage IV colon cancer patient. I’m reaching out to you today to ask you to join me in supporting the Colon Cancer Alliance. Two years ago, I suffered excruciating abdominal pain while playing golf. With no family history and no additional symptoms, I had to beg my doctor for a colonoscopy which revealed a golf ball-size tumor in my colon. Further testing showed the cancer had metastasized with multiple tumors to my lungs and liver. I was in the prime of my life with a beautiful family and a budding career when I got the worst news imaginable. I had stage IV colon cancer. Shortly thereafter, I discovered the Colon Cancer Alliance through their Facebook group Colontown. It opened my eyes to the wonderful community of support for those of us impacted by this disease. But now that I’m two years into my treatment, I’m eager for a cure, or at least treatment options that aren’t as taxing on my body. That’s why I support the Colon Cancer Alliance and their deep commitment to colon cancer-specific research. The Colon Cancer Alliance has taken an even bolder stance on research going forward, committing publicly to grow its investment in colorectal cancer-specific research to $10 million by 2021. Research that could ultimately save my life. I’m proud that the Colon Cancer Alliance is on the cutting-edge, exploring immunotherapy, biomarkers and personalized medicine. In 2016 alone, the Colon Cancer Alliance, in partnership with the Never Too Young Coalition, funded two grants to help researchers explore young-onset colorectal cancer in an attempt to better understand why people under the age of 50, like myself, are being diagnosed with this devastating disease. This is where you come in. Through your generous donation, the Colon Cancer Alliance will be able to expand its funding for life-saving and innovative research, putting us closer to realizing our vision of eliminating colon cancer in our lifetime. With your support, there will be a future for me and the thousands of other colon cancer patients waiting for a cure. Please give today. I am the reason Tomorrow Can’t Wait. Click here to listen to me tell my story.
Pride, Love and Cancer, With Paula and Lara Chambers - WE Have Cancer[/caption] Paula and Lara Chambers are high school sweethearts and have been together for over 30 years. In October of 2014 they traveled from their home in Houston, Texas to New York City so that they could be married. Paula had been dealing with "stomach issues" for some time. Unfortunately she became very ill immediately after the wedding and soon after was diagnosed with Colon Cancer. In our conversation we talked about their relationship and the challenges that gay couples may face when dealing with a life-changing event like a cancer diagnosis. Paula and Lara said they could not have gotten through their diagnosis with out the support of ColonTown and the Colorectal Cancer Alliance. To learn more about Colontown, visit https://colontown.org/ To learn more about the Colorectal Cancer Alliance, https://www.ccalliance.org/ Be sure to connect with the show: On Facebook: https://www.facebook.com/wehavecancershow/ On Instagram: https://www.instagram.com/wehavecancerpod/ On Twitter: https://twitter.com/WEHaveCancerPod