I'm your host, Trevor Maxwell. I'm a stage IV colon cancer survivor, and I've got a message for other men: You don't have to go through cancer alone. Every week on the Man Up to Cancer podcast, you can expect raw, unfiltered conversations about men, cancer, and our experiences. My guests will be other patients, survivors, advocates, and friends from #cancerland. We'll tackle the topics of grief, pain, and the physical suck-fest of cancer. But .. PLOT TWIST.. we're also going to joke, laugh, and have fun. For more content, merch, and other manly cancer stuff, check us out at www.manuptocancer.com.
We're baaaaack....The OG co-host, Kelin Welborn, turns the tables and interviews me about my independently published book, "Open Heart, Warrior Spirit: A Man's Guide to Living with Cancer," and the past, present, and future of Man Up to Cancer.Founded in January 2020, MUTC has grown to include:The Howling Place Facebook group of 2000 male cancer patients, survivors, and caregivers from around the worldContent (podcast, website, social media, email)Annual retreat - The Gathering of WolvesChemo Backpack Program 15+ regional chaptersAfter taking a break from the podcast in order to write the book (September-December 2022), I'm fired up to get back in the saddle and bring you engaging conversations this year. With guests from all corners of #cancerland, my goal is to serve up a weekly mix of entertainment, education, and uppercuts that hit you right in the feels. Got an idea for a guest or topic? Email me at trevor@manuptocancer.com
My reflections on cancer and hope. Thanks for listening. Love to you, #cancerfam
Today on the Man Up to Cancer Podcast! Meet my friend Chris Taylor from Albany, Georgia. Chris was diagnosed with Non-Hodgkin's lymphoma in 2010, and he has gone through multiple radiation and chemotherapy treatments. He is a beloved member of the Man Up to Cancer community, and is one of 18 Wolfpack Leaders from across North America. Chris is a U.S. Navy veteran, artist, and a proud gay man. This guy lives his life without apologies and he doesn't have time for BS. I hope you check out our conversation about coping with side effects, his artwork, mental health challenges, and how being gay has colored his cancer journey. #KFG
Meet my dear friend Don Helgeson, a 3-time cancer slayer from Nanaimo, B.C., Canada. A recently retired Mountie of the Royal Canadian Mounted Police, Don has survived melanoma, colon cancer, and prostate cancer. He is one of my #LynchSyndrome brothers, and a man of wisdom, compassion, and integrity. Don spends a lot of his time on a new mission as a patient advocate. He is one of Man Up to Cancer's Wolfpack Leaders, and is an admin for https://www.facebook.com/groups/thepctribe (Tracy Morgan's PC Tribe). Don is also the author of a memoir, “https://prostatecancer51.com/ (Prostate Cancer at 51).” Check out our conversation and see which weapon Don will use during the Zombie Apocalypse. I promise you that it's the most Canadian answer ever given in the Gauntlet of Random Questions!
This is a special episode because someone listening — or a connection to someone listening — will have a chance to save a life. And it just might be you. My guest is Tim McDonald from Tampa, Florida. Tim is a stage IV colon cancer thriver, and his best chance at curing his disease is through a living-donor liver transplant. That means he needs a hero. Someone willing to give up part of their liver to replace his. Ready to save a life? Go to https://timsliver.com/ (timsliver.com), and see if you might be Tim's match. Tim is a force of nature who always helps anyone he can. He is a generous, kind, compassionate and a brave soul who cares deeply about humanity and builds community everywhere he goes. He is the Community Account Manager at HomeRoom and the former Director of Community at Huffington Post, Founder of My Community Manager, and Director of Communications for https://socialmediaclub.org/ (Social Media Club Chicago). He's also an ambassador for https://fightcolorectalcancer.org/ (Fight Colorectal Cancer). “Once I go through all this," Tim said, "I am going to build a community for anybody that's got metastasized cancer looking for a liver donor.”
Time to lighten up the mood a bit! Join me and my buddy Justin Birckbichler (AKA the uniballer) as we play "The Game of Life: Cancer Edition" You have all played Life. Well, the cards are a bit different in the Cancer Edition. Here's just one example from our game: "Your nurse tells you it's OK for you to eat breakfast, not knowing your doctor only wants you to have one sip of water. Lose your turn due to bowel obstruction." If you are looking for a light-hearted distraction during this cancer sh*tshow, look no further, Justin and I have your back! Justin is a men's health activist, testicular cancer survivor, and the founder of https://aballsysenseoftumor.com/ (aBallsySenseofTumor.com). He was 25 years old when he was diagnosed with stage II testicular cancer in 2016, and he underwent surgery and chemotherapy. Through writing and speaking, Justin has shared his story to spread awareness about testicular cancer and to promote open conversation about men's health. His writing has appeared in https://www.curetoday.com/ (Cure Magazine), https://www.ihadcancer.com/ (I Had Cancer), https://themighty.com/ (The Mighty), https://goodmenproject.com/ (The Good Men Project), https://stupidcancer.org/ (Stupid Cancer), and more, and his advocacy work has been featured by publications around the world. In this episode, we also spend some time talking about the need for more men to become cancer patient advocates; how to prevent advocacy burnout; and Man Up to Cancer's upcoming Gathering of Wolves. SPONSOR SHOUT-OUT! A shout out to our sponsor - Natera, developers of a new kind of test called Signatera that can detect recurrence as much as a year earlier than imaging. Ask your doctor if Signatera is right for you. https://www.natera.com/oncology/signatera-advanced-cancer-detection/patients/ (Natera.com/signaterapatients)
Today on the https://www.facebook.com/cancerwolves/?__cft__[0]=AZU2mp6VzJ9AGntwK4ghxDChnS_RF9oxjwU64jzQpHQYYasv7KOWWBwfJEwPApQYYapjjVIW_GdA7HW4E1ftwDwlzPiLv6D290YyQFEL_joxd6Y6qIpPMH4ub1T99-gZ94aIamSulj50GJhRiRv804sD&__tn__=kK-R (Man Up to Cancer) Podcast.. Part 2 of our interview with the amazing https://www.facebook.com/jaxxie.w?__cft__[0]=AZU2mp6VzJ9AGntwK4ghxDChnS_RF9oxjwU64jzQpHQYYasv7KOWWBwfJEwPApQYYapjjVIW_GdA7HW4E1ftwDwlzPiLv6D290YyQFEL_joxd6Y6qIpPMH4ub1T99-gZ94aIamSulj50GJhRiRv804sD&__tn__=-]K-R (Jacquie Emory). When we left off last week, Jacquie's husband Rich, a stage IV colon cancer patient, was undergoing a liver transplant. The surgery was a success, but in some ways, it was just the beginning. “This is when the hard part begins,” Jacquie says. “This is when the real work starts.” Liver transplant is still only occasionally used for colorectal cancer patients with metastatic disease, for several reasons. But more patients than ever are exploring this option, and many are qualifying for the procedure. For those who fit the criteria, the transplant can be the best chance of extending life, and possibly a cure. https://manuptocancer.captivate.fm/episode/fiercest-caregiver (Click here) to listen to Part 1. SPONSOR SHOUT-OUT! A shout out to our sponsor - Natera, developers of a new kind of test called Signatera that can detect recurrence as much as a year earlier than imaging. Ask your doctor if Signatera is right for you. https://www.natera.com/oncology/signatera-advanced-cancer-detection/patients/ (Natera.com/signaterapatients)
Jacquie Emory is a fierce and loving caregiver to her husband Rich, who was diagnosed with stage 4 colorectal cancer in the fall of 2020. She led the charge to find him a donor for his life-saving liver transplant in November of last year. Liver transplant is still only occasionally used for colorectal cancer patients with metastatic disease, for several reasons. But more patients than ever are exploring this option, and many are qualifying for the procedure. For those who fit the criteria, the transplant can be the best chance of extending life, and possibly a cure. Everyone who knows Jacquie knows she wears her heart on her sleeve. She tells it like it is, without sugar coating. She is quick to laugh, cry, and to share her heart with us in cancerland. Over the past two years she has had a front row seat to the best of cancer care in America, and sometimes the worst. Jacquie is the definition of a caregiver advocate. Check out this two-part interview to find out why. SPONSOR SHOUT-OUT! A shout out to our sponsor - Natera, developers of a new kind of test called Signatera that can detect recurrence as much as a year earlier than imaging. Ask your doctor if Signatera is right for you. https://www.natera.com/oncology/signatera-advanced-cancer-detection/patients/ (Natera.com/signaterapatients)
Dr. Charles R. Rogers is a rock star in the field of cancer health disparities and inequities in men's health. He is a behavioral scientist and master certified health education specialist (MCHES). Dr. Rogers is a tenure-track Assistant Professor at the University of Utah's School of Medicine, where he founded the Men's Health Inequities Research Lab. Just last year, He also founded the https://crcequity.org/ (Colorectal Cancer Equity Foundation), focused on removing obstacles to equity among African-American men and other underrepresented populations by increasing awareness of Colorectal cancer. African-American men have died from colorectal cancer at the highest rates of any racial/ethnic group in the U.S. for more than 25 years. They are less frequently enrolled in clinical trials, and less likely to be offered genetic testing, palliative care, and other critical supports. Dr. Rogers is helping to lead the movement to change that picture. In some of Dr. Rogers' latest research, he shows that men who identify as “strong” are the least likely to get cancer screenings. If they get diagnosed with cancer, they are also less likely to seek second opinions, or get help for mental health problems. All of this puts these men at HIGHER risk to die from cancer, and to NOT be around to care for their families. So the men who think of themselves as strong, are actually behaving in a way that makes them vulnerable. This is the same exact barrier that I'm confronting in my advocacy work with Man Up to Cancer! We need to change culture so that screening for cancer is a sign of strength, not of weakness. For a full bio of Dr. Rogers, https://crrogersphd.com/about/ (click here to visit his website).
For today's episode, I was honored to spend time talking to Ed “Buddy” Cutler, who has been thriving for nearly a decade with metastatic lung cancer. Yep, Buddy was diagnosed nine years ago. Thanks to his self-advocacy and a phase one clinical trial, Buddy has far outlived his prognosis. He has become a beloved advocate for cancer organizations, including the https://www.facebook.com/lungevity/?__cft__[0]=AZV6_p3flpMqRdgDXxM4cdgor4yqjY3c0uv9jlbq8HwbK0oHc1njjW0ZZGi9IEpvvAr4YRKvT_e5NxaAeeihAgwjvDQuE_E2kUctxuWwTuoKvlLq0h8trSiEH1p0ZeIE1MhckIAUD78eciw_eZ1W2_l6&__tn__=kK-R (LUNGevity Foundation). He has also made a lot of friends through https://www.facebook.com/MoffittCancerCenter/?__cft__[0]=AZV6_p3flpMqRdgDXxM4cdgor4yqjY3c0uv9jlbq8HwbK0oHc1njjW0ZZGi9IEpvvAr4YRKvT_e5NxaAeeihAgwjvDQuE_E2kUctxuWwTuoKvlLq0h8trSiEH1p0ZeIE1MhckIAUD78eciw_eZ1W2_l6&__tn__=kK-R (Moffitt Cancer Center). A native of Tampa, Fla., Buddy is a proud father and grandfather, a US Navy veteran, and a (mostly) retired CPA and tax consultant. In this episode, Buddy makes this indisputable comment about screening for lung cancer for people over 50: “If you meet the qualifications, your screening won't cost a dime, and it could save your life” He also makes this statement, which is up for debate: “Tampa is the home of the best Cuban sandwich in the world.” What do you think - Is he right? Check out tomorrow's show and give us some feedback! SPONSOR SHOUT-OUT! Today's episode is brought to you exclusively by the good folks at Blue Note Therapeutics. Blue Note creates prescription digital therapy apps to help patients address the common yet overlooked side effects of cancer, like stress, anxiety, and depression. Check out their new, fully remote clinical trial at https://bluenotetherapeutics.com/trials (bluenotetherapeutics.com/trials).
Boyd Dunleavey of Moncton, New Brunswick, just might be Canada's most stubborn and inspiring cancer survivor-athlete. Boyd is also one hell of a storyteller. He is a two-time blood cancer survivor who underwent a life-saving stem cell transplant in May 2012. Since that time, Boyd has finished 10 marathons — mostly because people told him he would never be able to do it. This month he makes a return to his favorite course at the legendary Boston Marathon. Boyd runs to prove the doubters wrong, and to give hope to other cancer patients and survivors, with the message that anything is possible. In 2019, Boyd finally got the chance to meet the U.S. Navy Serviceman, Nathan Barnes, who risked his own life to give boyd a stem cell donation. Video of Boyd meeting his donor, Nathan, at the Disney half marathon in 2019: https://disneyparks.disney.go.com/blog/2020/05/disneymagicmoments-runners-who-inspire-us-part-2/?fbclid=IwAR0aYNcwA6Iv41KhNlTt5w5agVcrB7e_rKySQf5h_ocKjQJPDVdxbYPNVDg (https://disneyparks.disney.go.com/blog/2020/05/disneymagicmoments-runners-who-inspire-us-part-2/?fbclid=IwAR0aYNcwA6Iv41KhNlTt5w5agVcrB7e_rKySQf5h_ocKjQJPDVdxbYPNVDg ) SPONSOR SHOUT-OUT! A shout out to our sponsor - Natera, developers of a new kind of test called Signatera that can detect recurrence as much as a year earlier than imaging. Ask your doctor if Signatera is right for you. https://www.natera.com/oncology/signatera-advanced-cancer-detection/patients/ (Natera.com/signaterapatients)
On today's episode, I speak with colorectal cancer survivor Dan Kenny, who splits his time between Michigan and Florida. Today's show is all about cancer surveillance. As colorectal cancer survivors, we usually rely on traditional imaging including MRI and CT scans, and sometimes PET scans. We also track our disease activity with a CEA blood test. An elevated CEA often indicates active cancer. But scans and CEA testing both have major limitations. Scans don't detect recurrence until the cancer is large enough to show up. And CEA is not a reliable indicator for many patients. Enter Signatera. This is a highly sensitive blood test that can accurately detect cancer activity long before it shows up on a scan. The Signatera test is custom designed for your individual cancer. I have been using this test over the past few years, with the endorsement of my medical teams at New England Cancer Specialists, Johns Hopkins Medicine, and Massachusetts General Hospital. I use Signatera for monitoring. If the test comes back positive for circulating tumor DNA, I can begin planning with my team, exploring my next treatment options, rather than just having my head in the sand, waiting for tumors to show up on the scans. SPONSOR SHOUT-OUT! A shout out to our sponsor - Natera, developers of a new kind of test called Signatera that can detect recurrence as much as a year earlier than imaging. Ask your doctor if Signatera is right for you. https://www.natera.com/oncology/signatera-advanced-cancer-detection/patients/ (Natera.com/signaterapatients)
The man, the myth, the legend Joe Bullock makes his 3rd appearance on the Man Up to Cancer Podcast to talk about: His recent visit to Washington D.C. for the Call on Congress event organized by https://fightcolorectalcancer.org/ (Fight Colorectal Cancer). They are on a mission to make our legislators recognize colorectal cancer as a national priority, and to urge the National Cancer Institute to develop a strategic action plan for colorectal cancer. The new 'Chemo Backpack' program that Man Up to Cancer is launching this month, with support from Natera and the American Association for Cancer Research (AACR). 'Captain' Jackson Forssberg and the early development of http://colontown.org/junior-support/ (COLONTOWN Junior). Joe is the program manager for this group that connects families with children who have been diagnosed with colorectal cancer. We should have 4 episodes with Joe, but one of the tapes from 2020 mysteriously disappeared. We think it will show up in a time capsule in a few hundred years. SPONSOR SHOUT-OUT! Today's episode is brought to you exclusively by the good folks at Blue Note Therapeutics. Blue Note creates prescription digital therapy apps to help patients address the common yet overlooked side effects of cancer, like stress, anxiety, and depression. Check out their new, fully remote clinical trial at https://bluenotetherapeutics.com/trials (bluenotetherapeutics.com/trials).
My friend Stacey Runfola lost her husband Rick to cancer in 2014. On this episode, she shares her emotional journey, talks about the lack of resources for caregivers, and provides excellent advice for those who are going through loss. Thank you Stacey for opening your heart and trusting me to share your story.
“I'm that 1 in 833” Those are the words of my friend Danny Riggs of Houston, Texas. Roughly one in 833 men will be diagnosed with breast cancer in their lifetimes. They face the confusion, stigma, and isolation of coping with what is primarily a women's cancer. In today's episode, Danny (in his typical no-holds barred fashion) talks about what it was like to get the diagnosis, to endure the treatment, and to navigate survivorship. Yes, men get breast cancer. If you have a lump, pain, swelling, or anything unusual going on with your breasts or nipples, talk to your doctor. Danny is also one of 18 Wolfpack Leaders from across the U.S. and Canada. In that role, he talks to other people in the cancer community about the Man Up to Cancer mission, resources, and our Howling Place Facebook group. SPONSOR SHOUT-OUT! Today's episode is brought to you exclusively by the good folks at Blue Note Therapeutics. Blue Note creates prescription digital therapy apps to help patients address the common yet overlooked side effects of cancer, like stress, anxiety, and depression. Check out their new, fully remote clinical trial at https://bluenotetherapeutics.com/trials/ (bluenotetherapeutics.com/trials). You can also follow them on https://www.linkedin.com/company/blue-note-therapeutics/ (LinkedIn). Now fundraising on Patreon! There's now a way for you to support the Man Up to Cancer Podcast, and to get some awesome perks while doing so. We are now accepting donations on Patreon. Just go to http://www.patreon.com/manuptocancer (www.patreon.com/manuptocancer), and you can see how it works. You can sign up for $5, $10, or $20 per month tiers, or you can make a one-time donation. There are rewards for patrons, including shout-outs, discounts in the http://www.manuptocancer.com/merch (Man Up to Cancer store), exclusive merch, and a monthly hang-out with me and other patrons.
Four years ago, I was diagnosed with colon cancer. There were many times along the way when I didn't think I would be here to tell the tale. Through four moments, I give you a look back at my journey. These are four moments in my journey that changed the course of my life. Derailed - my diagnosis story. Shawshank Redemption moment - Get busy livin', or get busy dyin'. Meeting Jocko - Sometimes the words from a leader find you when you most need them. Best Day Possible - Notice I didn't say, Best Day Ever. Thank you to Sarah, Sage, Elsie, and everyone else who has gotten me here.
Grace B. Charrier is a cancer patient advocate and mental health advocate, with a platform that is truly on the world stage. Grace is of African descent, lives in Brooklyn, NY, and she believes we are all global siblings, no matter what part of the world we come from. She has a background as a mental health advocate, working closely with Member States and top officials at the United Nations. In 2016, Grace was diagnosed with Stage III triple-negative breast cancer, and through that experience she has developed a powerful voice in cancer awareness, advocacy, and public policy. Grace hosts a youtube talk show, Cancer Convos with Grace B, and she is the author of a memoir, “Impossicant.” Today we explore her advocacy work, the stigma of cancer across cultures, and we ask the question: How can we get more men to take control of their health? “A guy will look out more for what's happening to the engine in his car, than to what's happening in his own body," Grace says. Check out https://www.youtube.com/channel/UCoicS9_zeq5owu7nluE1HjQ (Cancer Convos with Grace B. on Youtube). Check out https://www.amazon.com/IMPOSSICANT-QUIRKY-INSPIRATIONAL-CANCER-SURVIVOR/dp/B08BDZ5MCF ("Impossicant" on Amazon).
As leaders in the cancer patient community, we are no strangers to heartbreak. The work of our daily lives intersects with unimaginable loss, the deepest kind of human pain. But we are also privileged to see humanity at its best. Because we confront mortality, we also come to know life in a different way, and the fuel of life that is LOVE. When all else is taken from us, there is nothing more meaningful than the love of another human being. I hope you listen to the story of Michael Mancini and Carole Motycka. You'll understand why Carole keeps reminding us, “Love always wins.” Previous podcast episodes featuring Mike and Carole https://www.manuptocancer.com/blog1/caroleandmike (https://www.manuptocancer.com/blog1/caroleandmike) https://manuptocancer.captivate.fm/episode/carole-and-mike (https://manuptocancer.captivate.fm/episode/carole-and-mike)
Michael Holtz of Knoxville, Tenn., is a colorectal cancer survivor, advocate, author, public relations professional, weightlifter, and more. On today's episode, I chat with Michael about his journey from being a cancer patient, to becoming an advocate. He encourages patients, survivors, and caregivers to volunteer for advocacy organizations, at any level you feel comfortable doing so, because as Michael says, “Every voice counts.” Michael was diagnosed with aggressive stage 3b rectal cancer in March 2012, and following 11 months of treatment was declared cancer-free in May 2013. As the Tennessee state lead ambassador for the American Cancer Society Cancer Action Network, Michael volunteers his time to push for new legislation and policy changes that will make life better for people facing cancer and their families. Last year, the American Cancer Society Cancer Action Network presented Michael with their Volunteer Award for Excellence in Cancer Advocacy. It's like the lifetime achievement award for cancer advocacy and the highest honor bestowed on an ACS CAN volunteer. Michael is the author of “It's Not Harder than Cancer: The Mindsets You Need to Survive and Thrive After Serious Illness.” He lives in Knoxville with his wife, Sarah, and their rescue dog, a Golden Bassett named Marley. You can connect with him and check out his work at https://www.michaelholtzonline.com/ (https://www.michaelholtzonline.com/) If you want to learn about the work of the American Cancer Society Cancer Action Network, and are interested in possibly becoming a volunteer, visit https://www.fightcancer.org/ (https://www.fightcancer.org/) SPONSOR SHOUT-OUT Today's episode is brought to you exclusively by the good folks at Blue Note Therapeutics. Blue Note creates digital therapeutics to help cancer patients cope with the emotional distress associated with our disease. Check out their premier product, COVID Cancer Care, at https://covidcancercare.com/ (covidcancercare.com), and we'll keep you posted on more programs that they're going to be releasing soon. You can also visit their website, https://bluenotetherapeutics.com/ (bluenotetherapeutics.com), and follow them on https://www.linkedin.com/company/blue-note-therapeutics/ (LinkedIn). Now fundraising on Patreon There's now a way for you to support the Man Up to Cancer Podcast, and to get some awesome perks while doing so. We are now accepting donations on Patreon. Just go to http://www.patreon.com/manuptocancer (www.patreon.com/manuptocancer), and you can see how it works. You can sign up for $5, $10, or $20 per month tiers, or you can make a one-time donation. There are rewards for patrons, including shout-outs, discounts in the http://www.manuptocancer.com/merch (Man Up to Cancer store), exclusive merch, and a monthly hang-out with me and other patrons.
Time for a celebratory dance… As this is the 50th episode of the Man Up to Cancer Podcast! 50 shows, close to 20,000 downloads, and lots of friends made along the way. As it turns out, a lot of people are interested in the topics of men and cancer, our experiences as patients, survivors, and caregivers, and the lessons we learn along the way. I think it's only fitting that today is an unedited solo show. This episode features: An update on my personal cancer journey Reflections on going from treatment to 'Watch and Wait' A rant about a near and dear subject: Toxic Positivity Thank you to all of my guests who have been so generous with their time, energy, and spirit. Thanks to Kelin Welborn for being my co-host, my friend, jill of all trades when it comes to Man Up to Cancer marketing, merch, and more. Suzi Pond and Alice Anderson for getting me started in podcasting, and for more things than I have time to say. Thanks to Joe Bullock and the more than 1400 men of the Howling Place Group. KFG, you are all fierce and loving wolves, and I will go to battle with you always. Here's a snippet from my rant about toxic positivity, that strange cultural phenomenon where total strangers advise us to cure our cancers through -- you guessed it -- the power of positive thinking! As cancer patients, we are routinely shamed. And somehow it's culturally ok to shame us. We are made to feel that something we did, something we ate, or purely because of our poor mindset.. That's why we got cancer. And that if we just think the right way, or pray the right way, or fix whatever chakras are misaligned, we will heal ourselves. Wow, talk about a burden.
“As a dad, things are supposed to happen in a certain way, in order. Armand was supposed to bury me, I was not supposed to bury him… You have a plan. As a parent you think about growing old, you think about the grandkids.. all that stuff is gone… Every sort of fantasy, or whatever you want to call it, is gone…” - Robert Ramirez, Petaluma, Calif. In November of 2018, Robert and Elaine Ramirez lost their 37-year-old son, Armand, to metastatic colon cancer. They have experienced a heart-wrenching journey of love, loss, and healing. On today's show, I speak with Robert about his experience as a father who had a son die from cancer. He talks about the tools he has used to cope, including journaling, reading, groups, therapy, and music. He also talks about the hole in his life that will always be there. Thank you Robert for opening your heart for this emotional and important episode. SPONSOR SHOUT-OUT Today's episode is brought to you exclusively by the good folks at Blue Note Therapeutics. Blue Note creates digital therapeutics to help cancer patients cope with the emotional distress associated with our disease. Check out their premier product, COVID Cancer Care, at https://covidcancercare.com/ (covidcancercare.com), and we'll keep you posted on more programs that they're going to be releasing soon. You can also visit their website, https://bluenotetherapeutics.com/ (bluenotetherapeutics.com), and follow them on https://www.linkedin.com/company/blue-note-therapeutics/ (LinkedIn). Now fundraising on Patreon There's now a way for you to support the Man Up to Cancer Podcast, and to get some awesome perks while doing so. We are now accepting donations on Patreon. Just go to http://www.patreon.com/manuptocancer (www.patreon.com/manuptocancer), and you can see how it works. You can sign up for $5, $10, or $20 per month tiers, or you can make a one-time donation. There are rewards for patrons, including shout-outs, discounts in the http://www.manuptocancer.com/merch (Man Up to Cancer store), exclusive merch, and a monthly hang-out with me and other patrons.
Diagnosed at age 27, Jason Beaulieu of Millbury, Mass., has been fighting metastatic papillary thyroid cancer for more than three years. Music has kept him going. Jason has been playing music in some form or another for most of his life. But he didn't sing in front of a live audience until after his cancer diagnosis and first surgery (which was 21 hours!). Motivated by his friend Camden and his life coach Derek, Jason worked through his apprehensions, and he and has emerged as a musical artist to watch. Last fall, he was invited to Los Angeles to record his song, “What's Next?”, with a professional band and producers. He was selected for this honor by Cancer Can Rock, a non-profit organization founded by Jim Ebert, who is a multi-platinum record producer and a cancer survivor. The foundation serves musicians facing aggressive cancer. https://cancercanrock.org/featured-artists/jason-beaulieu/ (https://cancercanrock.org/featured-artists/jason-beaulieu/) https://www.facebook.com/survivingthroughmusic (https://www.facebook.com/survivingthroughmusic) https://www.instagram.com/survivingthroughmusic (https://www.instagram.com/survivingthroughmusic) Jason.Beaulieu.music@gmail.com SPONSOR SHOUT-OUT! Today's episode is brought to you exclusively by the good folks at Blue Note Therapeutics. Blue Note creates digital therapeutics to help cancer patients cope with the emotional distress associated with our disease. Check out their premier product, COVID Cancer Care, at https://covidcancercare.com/ (covidcancercare.com), and we'll keep you posted on more programs that they're going to be releasing soon. You can also visit their website, https://bluenotetherapeutics.com/ (bluenotetherapeutics.com), and follow them on https://www.linkedin.com/company/blue-note-therapeutics/ (LinkedIn). Now fundraising on Patreon! There's now a way for you to support the Man Up to Cancer Podcast, and to get some awesome perks while doing so. We are now accepting donations on Patreon. Just go to http://www.patreon.com/manuptocancer (www.patreon.com/manuptocancer), and you can see how it works. You can sign up for $5, $10, or $20 per month tiers, or you can make a one-time donation. There are rewards for patrons, including shout-outs, discounts in the http://www.manuptocancer.com/merch (Man Up to Cancer store), exclusive merch, and a monthly hang-out with me and other patrons.
Leah Robert wears so many hats, and she wears them all so well, it's kind of freaky. She is... Wife and mom to two girls, Lucy and Penelope Oncology nurse Entrepreneur and co-owner (with her sister Sarah Nichols Kelly) of https://saltygirlbeauty.com/ (Salty Girl Beauty). Philanthropist and co-founder (also with her sister!) of https://www.foundation4love.org/ (Foundation 4 Love). Leah and Sarah have been featured in Allure, InStyle, PopSugar, the View, Good Morning America and other major media appearances. She is one of my amazing oncology nurses at https://www.newenglandcancerspecialists.org/ (New England Cancer Specialists) in Scarborough, Maine. The team has held my hand through dozens of chemo sessions since my colon cancer diagnosis in March of 2018. They are heroes to me and so many others in Cancerland. QUICK FUNDING NOTE: We are now accepting donations on Patreon. Just go to https://www.patreon.com/manuptocancer (Patreon.com/manuptocancer), and you can see how it works. You can sign up for $5, $10, or $20 a month tiers, or make a one time donation. There are rewards for subscribers including shoutouts, discounts in the Man Up to Cancer store, exclusive merch, and a monthly hangout with yours truly. Thank you to our first 15 patrons! Joe Bullock, Steven Barker, Danny Riggs, David Lothrop, Brad Hammond, Greg Johnson, Dave Hench, Jamie Wagner, Mike Bigos, Mary Roy, Diana Violette, Richard Fox, Cliff Magness, Nick Mesenbrink, and the Pierce family. Support this podcast
Today's episode is an update on my personal cancer journey. I'm getting ready for major abdominal surgery #4 in the past 3 and a half years. I'll be going to Massachusetts General Hospital. A surgeon there will open me up and take out several small tumors from my abdomen. I may also lose a section of my stomach, because the tumors have been hanging out for quite some time right up against it. I talk about my emotions around the surgery, and give thanks to many of the people who have played such important roles in getting me to this point. After my update, I'm adding in the pilot episode of the podcast. We've had a lot of new people join the Man Up to Cancer community recently, and I hope they get a chance to check out this pilot. #KFG
Today on the Man Up to Cancer Podcast... our red-bearded friend from Memphis..https://www.facebook.com/groups/579075395989971/user/56401489/?__cft__[0]=AZX8bUyEx5eZLjYjS8NRItBV_QK1qEsIwsqUfpMMZtlVi0lvM5IB-B4HLWZS904hnaSdtPYepFGvJiLSY_wwFPQ8ozsctRAzhhEzQg4zw6cF1n7zVPA8nkCfutquL3E19Wnthu653cUUNaTOB-gP957v8IvewMERutYuQ5ESB08gqcUx_uydVQVcT8o5lkyAmiY&__tn__=-]K-R ( Steven Barker) drops by the show to talk about his crazy journey with lymphoma. Steven is part of the growing admin team in Man Up to Cancer's Howling Place Facebook group. He lives with his wife, Katie, and their two kids in a suburb of Memphis, Tenn. He spent the first nine months of 2019 simply trying to find a doctor that would hear his concerns and consider his symptoms may be more severe than “most guys his age.” It was nearly a year before he finally received a proper diagnosis: Diffuse large B cell lymphoma, stage III. From my takeaways: Why a man should NEVER ignore low iron levels What it's like to be a dad raising young kids while cancering Uncover the identity of Steven's celebrity crush (Hint: This one might blindside you) SPONSOR SHOUT-OUT! Today's episode is brought to you exclusively by the good folks at Blue Note Therapeutics. Blue Note creates digital therapeutics to help cancer patients cope with the emotional distress associated with our disease. Check out their premier product, COVID Cancer Care, at https://covidcancercare.com/ (covidcancercare.com), and we'll keep you posted on more programs that they're going to be releasing soon. You can also visit their website, https://bluenotetherapeutics.com/ (bluenotetherapeutics.com), and follow them on https://www.linkedin.com/company/blue-note-therapeutics/ (LinkedIn).
I was thrilled to spend time chatting with my friend Dave Nitsche of Calgary, Alberta, Canada. Dave is an active member of the Man Up to Cancer community. Dave has always been able to rely on his body and mind working in sync. He is accustomed to pushing both to the extreme, as an ultra runner and https://www.ironman.com/ (Ironman) athlete. He started doing endurance events as a teenager, and by the time he turned 50, Dave had completed more than a dozen grueling Ironman triathlons (2.4 mile swim, 112 mile bike, 26.2 mile run), and many more ultra running events. The Winnepeg native had literally trained for thousands of hours over the course of decades. So when Dave was diagnosed with stage 4 lung cancer in the spring of 2019, his response was bewilderment. “There was no reason, no indication that this should have happened,” Dave said. His diagnosis came after Dave began having vision problems in his left eye. The problems got so bad that doctors had to remove the eye. When the tissue was tested in the lab, it revealed cancer. Additional scans and tests showed it was lung cancer had spread throughout his body. An oncologist basically told Dave that he was going to die of cancer. Dave is determined to prove the doctors wrong. He has been on two targeted therapies that have kept his disease stable. And he has resumed one of his great passions: hiking in the scenic wilderness of Western Canada, often with his dog Indie. He is also speaking up as an advocate for lung cancer awareness, and advances in research and treatment. One of the organizations that has helped him along the way is https://wellspring.ca/ (Wellspring). SPONSOR SHOUT-OUT! Today's episode is brought to you exclusively by the good folks at Blue Note Therapeutics. Blue Note creates digital therapeutics to help cancer patients cope with the emotional distress associated with our disease. Check out their premier product, COVID Cancer Care, at https://covidcancercare.com/ (covidcancercare.com), and we'll keep you posted on more programs that they're going to be releasing soon. You can also visit their website, https://bluenotetherapeutics.com/ (bluenotetherapeutics.com), and follow them on https://www.linkedin.com/company/blue-note-therapeutics/ (LinkedIn).
A second opinion saved Michael Riehle's life. It just might save yours, too. I'm excited to spend time on the podcast today with Michael, who has become a beloved member and one of the administrators for the Man Up to Cancer - Howling Place Facebook group. Michael, 32, is from Buffalo, NY (technically South Wales). He has been fighting stage 4 colorectal cancer since June of 2020. At first he was told that his cancer was inoperable and incurable. Not satisfied with that prediction, Michael and his wife Sara took the bull by the horns. They learned everything they could about Michael's disease, and they connected with a team at Memorial Sloan Kettering in NYC. In less than a year, Michael has had multiple surgeries, along with strategic chemotherapy, to rid his body of cancer. Michael shares a powerful story of self-advocacy, and the power of second opinions for cancer patients. SPONSOR SHOUT-OUT! Today's episode is brought to you exclusively by the good folks at Blue Note Therapeutics. Blue Note creates digital therapeutics to help cancer patients cope with the emotional distress associated with our disease. Check out their premier product, COVID Cancer Care, at https://covidcancercare.com/ (covidcancercare.com), and we'll keep you posted on more programs that they're going to be releasing soon. You can also visit their website, https://bluenotetherapeutics.com/ (bluenotetherapeutics.com), and follow them on https://www.linkedin.com/company/blue-note-therapeutics/ (LinkedIn).
Much of the world knows Patrick Dempsey for his iconic roles in TV and film, in what has been a truly exceptional career. I know him for something different. To me, he is a real life hero who has made life better for cancer patients and their families, including me and my family. In 2008, Patrick founded the https://www.dempseycenter.org/ (Dempsey Center) here in our home state of Maine. The Dempsey Center provides services, classes, and workshops that improve the quality of life for people impacted by cancer. This includes counseling, support groups, nutrition and fitness classes, massage, reiki, acupuncture, and more. All provided at no cost to clients. In a wide-ranging interview, Kelin and I talk to Patrick about the Dempsey Center's past, present, and future. We also talk about Patrick's career, his upcoming movies, and why he decided to return for a guest run as McDreamy, Dr. Derek Shepherd, on Grey's anatomy.
Today's show is all about our scars. Specifically, the physical surgical scars that many of us cancer patients have... And the emotional scars that go along with those scars of the flesh. My friend Charlie Henricks, a fellow stage 4 colon cancer survivor, joins me. I'm grateful to be connected to A LOT of cancer patients and survivors on social media, mostly Facebook, and a while back I posted about my scars, and I asked my friends to finish this sentence. “My scars are ______” I had about 200 responses, which were all amazing, I don't have time to share all of them, but I want to share a bunch of these responses with you.
I called today's show Chemo Zombie, because that's what it does to me. One day I'm myself, engaged with the world, enjoying life with Sarah, Sage, and Elsie, then I go for chemo, and I turn into a zombie. I'm disengaged, sick to the very core of my being, drowning in that toxic chemical soup. I'm non-verbal, slumped in the bed or on the couch, and when I do get up I'm stumbling around. It's like I'm here but I'm not here. And I want to talk about this because the affects of chemo, what it really looks like, is something we rarely if ever see in popular culture. Also in this episode, I devote a segment to two of my heroes: Jayden Oakes and Jayne Vinson. Jayden was diagnosed with colon cancer two years ago, at the age of 11. He died last month, after fighting his disease with such incredible bravery, and a fierce commitment to LIVING as well as he could, even while enduring treatment that left him sick, weak, and unable to do the things that his peers take for granted. Jayne, his grandmother and primary caregiver, was a relentless advocate for Jayden. She did everything she possibly could to get him the best care in the world, and the best chance at saving his life. You have never seen a grandmother love a grandchild the way Jayne did over these past two years. SPONSOR SHOUT-OUT! Today's episode is brought to you exclusively by the good folks at Blue Note Therapeutics. Blue Note creates digital therapeutics to help cancer patients cope with the emotional distress associated with our disease. Check out their premier product, COVID Cancer Care, at https://covidcancercare.com/ (covidcancercare.com), and we'll keep you posted on more programs that they're going to be releasing soon. You can also visit their website, https://bluenotetherapeutics.com/ (bluenotetherapeutics.com), and follow them on https://www.linkedin.com/company/blue-note-therapeutics/ (LinkedIn).
Today's Man Up to Cancer Podcast is all about The V Foundation. Founded by legendary basketball coach Jimmy Valvano, the V Foundation is one of the largest fundraising organizations in the world for cancer research, having awarded more than $250 million in research grants since its inception in 1993. In August, the V Foundation is hosting the annual https://www.thevictoryride.org/ (Victory Ride for a Cure). Take part in virtual cycling and non-cycling events throughout the month. You can also join fellow riders in person on Aug. 28 in Raleigh, N.C. Choose from 10-, 30-, 60-, or 100-mile routes. I had the honor of interviewing Tom Vibert. He is a stage 4 colorectal cancer survivor; an avid cyclist; and a major fundraiser for the Victory Ride. We are joined by Mick McDonald, a communications staffer for the V Foundation, and host of the Voices of Victory Podcast. @thevictoryride @vfoundation #myvictory
Cancer, Anger, & Airplanes Last week, I almost got into a fight while waiting to board a plane with my family in Baltimore... Naturally, that regrettable encounter inspired tomorrow's solo episode of the https://www.facebook.com/cancerwolves/?__cft__[0]=AZXfi_dNaNvHAoh5C-GVFopUMjc7SXmChiA34ns00xNUaEcO8cgHcDGwaLLF-BmNim58afHuutR3hTvVjfmLUA3IrrIP1ASBx86bf7h1WORXqAF_qE-4PdZA8nfMBcpHRbSbfJnflInYOe4ACJayaY8U&__tn__=kK-R (Man Up to Cancer) Podcast. Served up with your Tuesday morning run, peloton ride, or laundry folding. For better or worse, this is a solo deep-dive into the emotion of anger, and how it is experienced by people facing cancer. SPONSOR SHOUT-OUT! Today’s episode is brought to you exclusively by the good folks at Blue Note Therapeutics. Blue Note creates digital therapeutics to help cancer patients cope with the emotional distress associated with our disease. Check out their premier product, COVID Cancer Care, at https://covidcancercare.com/ (covidcancercare.com), and we’ll keep you posted on more programs that they’re going to be releasing soon. You can also visit their website, https://bluenotetherapeutics.com/ (bluenotetherapeutics.com), and follow them on https://www.linkedin.com/company/blue-note-therapeutics/ (LinkedIn).
Man Up to Cancer is fired up to welcome Blue Note Therapeutics as a flagship sponsor! As someone who has experienced depression and anxiety during cancer, I’ve had the privilege of working as a patient advisor for Blue Note over the past year. They’re developing digital programs to help cancer patients cope with the emotional stress of our disease. For the podcast, I interviewed Blue Note CEO Geoff Eich, and head of finance/operations Mark Elfers. Take a listen and find out how two ex-fighter pilots from the US Marine Corps ended up leading a movement to help the emotional well-being of cancer patients. Check out their premier product, COVID Cancer Care, at https://covidcancercare.com/ (covidcancercare.com), and we’ll keep you posted on more programs that they’re going to be releasing soon. You can also visit their website, https://bluenotetherapeutics.com/ (bluenotetherapeutics.com), and follow them on https://www.linkedin.com/company/blue-note-therapeutics/ (LinkedIn).
A solo show for today's episode... A long overdue update on my personal cancer journey, and reaching the three-year mark from diagnosis. OK, let’s get the bad cancer news out of the way... I have a peach-sized mass in my upper abdomen — nestled up against my stomach — that continues to grow despite my treatments. I call him Problem Child. We plan on getting a biopsy next week, to see if there are any clues on how to get him to settle the hell down. It may be radiation. It may be chemo. It may be both. Surgery is not on the table right now, but may be in the future. On to the good news! The rest of the small tumors in my abdomen have not grown. The one tumor in my liver is presumed dead. And I passed the THREE-YEAR MARK of my cancer diagnosis. To celebrate, I hiked Mt. Pierce in New Hampshire with Sarah and some good friends. It was a beautifully clear, sunny, 50-degree day, and I felt really good! Also, we are traveling to California in a few days to visit my dad and his fiancee, and to take in the incredible natural beauty there. More good news… Thanks to you, the https://f69e.engage.squarespace-mail.com/r?m=6075d026bba92c3c8bd00f34&u=https%3A%2F%2Fmanuptocancer.captivate.fm%2F&w=5e13f57a37d3a42e0c6aeb7d&l=en-US&s=0MdYHKexSbYpfpjEbw3AhL5vuUc%3D (Man Up to Cancer Podcast) has been downloaded more than 10,000 times since we launched last July! Huge thanks to the pod squad (Kelin, Suzi, Alice) and all my amazing guests for making this show a success. Who knew there would be such interest in a podcast about dudes and cancer?!? Even more good... Man Up to Cancer is thrilled to welcome three new sponsors this spring! I only partner with organizations and companies that I love and trust, and that provide real benefits for the MUTC community. We depend on these partnerships to carry out our mission. Blue Note Therapeutics https://bluenotetherapeutics.com/ (https://bluenotetherapeutics.com/) Natera https://www.natera.com/oncology/signatera-advanced-cancer-detection/patients/ (https://www.natera.com/oncology/signatera-advanced-cancer-detection/patients/) Zero Gravity Cannabis https://zerogravitycannabis.com/ (https://zerogravitycannabis.com/)
Dan Duffy is a filmmaker, video producer, author, speaker, blogger, and accidental activist. He is a testicular cancer survivor, coming up on the 20-year mark. Dan is the author of https://www.amazon.com/Half-Book-Taking-Ball-Going/dp/1943588163/ref=sr_1_1?ie=UTF8&qid=1454425005&sr=8-1&keywords=Dan+Duffy (The Half Book): He’s Taking his Ball and Going Home. He lives with his wife and children in St. Louis, Missouri. Bio material from Huff Post: Dan graduated from the Foundation Film program at the Vancouver Film School in 2000. He has been making documentaries, commercials, and short films since for companies big and small around the world. He has won numerous awards in his career, including a Telly Award Winner, a seven-time Telly Award Finalist Winner, and an AIR (Achievement in Radio) award, with two other nominations. Dan wanted to change the way people looked at a cancer diagnosis, after his own experience left him wondering about several questions that he was unable to have answered during his fight. In 2010, he and his producing partner, Joe Farmer, founded https://www.thehalffund.org/ (The Half Fund), a mission dedicated to “lifting the veil on cancer” through the use of mass-media communications, such as movies and documentaries and books and music. The Half Fund has achieved 501-(C)(3) status from the Internal Revenue Service, and has received a strong endorsement from the American Cancer Society. The mission of The Half Fund is to “…remove the myopia associated with a cancer diagnosis…to give answers to questions before someone knows to even ask.” SPONSOR SHOUT-OUT! Today’s episode is brought to you exclusively by the good folks at Blue Note Therapeutics. Blue Note creates digital therapeutics to help cancer patients cope with the emotional distress associated with our disease. Check out their premier product, COVID Cancer Care, at https://covidcancercare.com/ (covidcancercare.com), and we’ll keep you posted on more programs that they’re going to be releasing soon. You can also visit their website, https://bluenotetherapeutics.com/ (bluenotetherapeutics.com), and follow them on https://www.linkedin.com/company/blue-note-therapeutics/ (LinkedIn).
Today’s guest is J.J. Singleton, a 33-year-old stage IV colorectal cancer patient from North Carolina. We’re honored to have him on the show! J.J. is an inspiration and a cancer slaying beast. He has endured 96 rounds of chemo, 10 major surgeries, hundreds of IVs, scans, blood tests, and the list goes on. On a recent episode of the Tonight Show with Jimmy Fallon, J.J. got a shout-out as the “GOAT of chemotherapy treatments.” He was also paired with golf legend John Daly at the 2021 PGA TOUR CHAMPIONS Cologuard Classic in Tucson. This guy offers a master class in perseverance. At one point, he went 450 days without eating solid food, and he's endured other grueling experiences that would test the will and spirit of anyone. He's still here, still cheering for the Hokies, still inspiring cancer patients and survivors around the globe. We love you JJ! SPONSOR SHOUT-OUT! Today’s episode is brought to you exclusively by the good folks at Blue Note Therapeutics. Blue Note creates digital therapeutics to help cancer patients cope with the emotional distress associated with our disease. Check out their premier product, COVID Cancer Care, at https://covidcancercare.com/ (covidcancercare.com), and we’ll keep you posted on more programs that they’re going to be releasing soon. You can also visit their website, https://bluenotetherapeutics.com/ (bluenotetherapeutics.com), and follow them on https://www.linkedin.com/company/blue-note-therapeutics/ (LinkedIn).
Dr. Petar Bajic is a urologist and fellowship-trained specialist in sexual medicine, male genital reconstruction, and men’s health at the highly respected https://my.clevelandclinic.org/ (Cleveland Clinic) in Cleveland Ohio. For the past five years, the Cleveland Clinic has been running the MENtion It campaign. Each year, they survey roughly 1,000 men on specific topics related to men’s health. Some previous findings Men are 25% less likely than women to take part in preventive care. 61% wait until something becomes unbearable to go to the doctor. 72% of men say they would rather clean toilets than go to the doctor. (I say, to those men avoiding screenings that could save their lives, start scrubbing.) About Dr. Bajic Petar helps guys with sensitive problems in an area of the body where guys don’t want to have problems, and they certainly don’t want to talk about them. He often sees cancer patients and survivors who are coping with loss of sexual function, the impact of radiation, hormone therapy, and other common consequences of cancer treatment.
Michael and Colin Ferro - the Ferro brothers from the mountains of Colorado The Ferro family founded and operates Epic Experience, a non-profit that offers free adventure camps for cancer survivors. Think whitewater rafting, hiking, XC skiing, campfires, and really an opportunity for people impacted by cancer to make deep connections and in some cases to re-define what is possible for them. Epic Experience also offers other survivorship programs, including regional one-day events, online fitness and mobility classes. All of this stemmed from Michael Ferro’s battle with a brain tumor AND testicular cancer. We talk to Michael and Colin about what it has been like to face the challenge of cancer as brothers, the impact Michael's disease has had on the family, and which brother really is the family favorite.
Well folks, I promised that I would never shy away from the tough or taboo subjects in #cancerland. So... here is a heavy one. Today's topic is about the bonds we form in cancer support communities, and how we cope with the deaths of our friends. If you take part in a cancer support group, I hope this gives you some comfort, and maybe even a few strategies, to cope with the inevitable losses that we face along the path. I also hope it nudges you to confront your own beliefs and feelings around death. We are always learning and developing that relationship, and I continue to learn from all of you. This episode is recorded in honor of Dennis Wilbur, and all of our departed brothers who have been beloved members of Man Up to Cancer's Howling Place group on Facebook. Fly high, brothers. We pick up your banners and carry them forward. Here is a snippet: "The genuine love and care that we see everyday in the Howling Place is astounding And it really, really matters. Because at the end of the day, as human beings we all want to know that we are cared for, that we are valued, and that we are loved even in our sickness — and all the way to our death. It takes courage to see each other all the way down the path. There is no lack of courage in the Howling Place, and I’m incredibly proud of that. I love you guys. KFG."
Have you listened to part 1 yet? Check it out here. Let’s talk about sex, baby! Where do we begin to navigate this minefield of taboo subjects? Is it possible to maintain or regain a fulfilling sex life during cancer treatment and beyond? If any topic calls for an expert, this is the one! Fortunately, we have an expert with us for a special 2-part series. Dr. Sharon Bober is director of the https://www.dana-farber.org/for-patients-and-families/care-and-treatment/support-services-and-amenities/sexual-health-program/ (Sexual Health Program) at https://www.dana-farber.org/ (Dana-Farber Cancer Institute) in Boston, Massachusetts. The program provides education, consultation, and counseling for patients and their partners who have experienced changes in sexual health during and after cancer treatment.
Let’s talk about sex, baby! Where do we begin to navigate this minefield of taboo subjects? Is it possible to maintain or regain a fulfilling sex life during cancer treatment and beyond? If any topic calls for an expert, this is the one! Fortunately, we have an expert with us for a special 2-part series. Dr. Sharon Bober is director of the https://www.dana-farber.org/for-patients-and-families/care-and-treatment/support-services-and-amenities/sexual-health-program/ (Sexual Health Program) at https://www.dana-farber.org/ (Dana-Farber Cancer Institute) in Boston, Massachusetts. The program provides education, consultation, and counseling for patients and their partners who have experienced changes in sexual health during and after cancer treatment.
Tracy Morgan is a proud dad, US Navy veteran, a stage 4 prostate cancer survivor, and strong advocate for men’s health. Tracy is the founder of https://mohawkmission.com/ (Mohawk Mission), which calls on men to screen for prostate cancer. He is also a volunteer, advocate, and fundraiser for https://zerocancer.org/ (ZERO: The End of Prostate Cancer). Tracy is also a leader in the Man Up to Cancer community, and I’m proud to call him a friend.
We are all pulling for #TeamHolson! Christy Cochran Holson is from Charlotte, NC. She is the mom of two boys, and she is a part-time college sociology instructor. She is married to a fantastic guy, Buddy, who has been fighting stage 4 colorectal cancer for the past two and half years. In this episode, Kelin and I talk to Christy about the roller coaster of her life as a cancer caregiver. Christy is a straight shooter. She talks about how horrible it is to face cancer, but also how the journey has brought her even closer to her husband and their boys. About a year ago, Christy was one of the first caregivers to do a https://www.manuptocancer.com/thepack/christyholson (Q&A with me) for the Man Up to Cancer website. It’s so important for us, as the Man Up to Cancer community, to recognize and support our caregivers, to share their stories so that we can have a better understanding of the impact cancer has on them.
Anjee Quiko Davis is a superhero in the cancer community. She's the president of https://fightcolorectalcancer.org/ (Fight Colorectal Cancer), aka Fight CRC, a national organization focused on colorectal cancer research, education, and awareness. Colorectal cancer is the second-leading cause of cancer death in men and women combined and 1 in 20 people will be diagnosed in their lifetime. In this episode, Kelin and I talk to Anjee about the past, present, and future of Fight CRC; the movement toward health equity; the "guy" problem (we don't want to see the doctor); and more. We also put Anjee through the GAUNTLET OF RANDOM QUESTIONS, including this gem: Would you rather be a hobbit or a giant for a week? Hint: She wouldn't mind having hairy feet. If you want to meet the change-makers in Cancerland -- the people making a huge positive impact on the lives of patients, survivors, and their families -- Anjee needs to be on your list.
Jason Randall is a stage 4 colorectal cancer warrior and family man from Eudora, Kansas. He has become a fierce patient advocate and source of inspiration and knowledge for other patients and their families. He is a leader in https://colontown.org/ (COLONTOWN), an online community for people with CRC. He is also a leader and administrator in the Man Up to Cancer community. On this episode, Jason shares some amazing stories from his cancer journey, and also shares 5 tips to make chemo suck less. Jason has been through a lot of chemotherapy over the past few years. He has also endured six surgeries, Y90 radiotherapies, fistulas, a perforated bowel, biopsies, chemical burns, and the loss of more than 100 pounds. In short, he is a cancer badass. The tagline for Man Up to Cancer is “Open Heart Warrior Spirit.” Jason lives and breathes that approach to cancer and life.
Matthew Zachary was just 21 years old when he was diagnosed with brain cancer. That was back in 1995, making him a 25-year survivor. He is the founder of https://offscrip.com/ (OffScrip Media), the first audio broadcast network focused on consumer health and patient advocacy. You may have heard of a little organization called https://stupidcancer.org/ (Stupid Cancer)... Well, Matthew is the founder. Under his leadership from 2007 through 2018, Stupid Cancer grew into a powerhouse, as the largest and most influential young adult cancer organization in the world. Matthew is not even close to being done in his mission to call out the bullshit in #cancerland, hold the powerful accountable, and make cancer suck less for the rest of us.
Anytime you can get a middle-aged cancer survivor from North Carolina to talk about his experience with “forest bathing,” you know you have hit podcast GOLD. Joe Bullock, my brother in arms, the lead administrator for Man Up to Cancer’s Howling Place Facebook group, makes a triumphant return to the podcast. Together, we kick off 2021 in style. We celebrate the first anniversary of the Howling Place, which now has more than 850 members from around the world (male cancer survivors, patients, and caregivers). When the group hits 1000 members, Joe’s getting a tattoo, and I’m going to livestream the shit out of that. We talk about Joe’s amazing advocacy work, including the upcoming launch of COLONTOWN JR., which is a supportive space for families with children who have colorectal cancer. And finally, I put Joe through the “Gauntlet of Random Questions,” including the classic: 70s, 80s, or 90s. Which was the best decade, and why?
Sarah and I are blessed with two amazing, kind, talented daughters. Sage is 15. She is a beautiful singer. She runs XC, indoor, and outdoor track. She loves music and her friends and Grey's Anatomy. Elsie is 13. She is a ball of enthusiasm. She plays softball and soccer. She loves to swim, and her friends, and Gilmore Girls. On today's episode, I sit down for a conversation with Elsie. She asked to come on the podcast because 1) she loves podcasts, and 2) she hopes her perspective will help other kids who have a parent facing cancer. Sage politely declined to appear on the show. If you know Sage, this totally makes sense, and we respect her decision. (-; If you're facing cancer and you have kids, I think there will be a few tidbits in this episode that will give you a boost, or at least make you feel that you're not alone! KFG!!
This "unplugged" episode features just me and one of my blog posts.
Stephen Huff is from Nashville, Tennessee. He is a husband, father, high school teacher, and a former professional baseball player in the Chicago White Sox organization. In 2017, when Stephen was just 29 years old, he was diagnosed with inoperable, stage four lung cancer. His disease is currently stable, and he remains in active treatment. Not long after his diagnosis, Stephen and his wife Emily started the https://www.thehuffproject.org/#/ (Huff Project), a non-profit with a mission to erase the negative stigma associated with lung cancer, and to raise money for research that will help prevent future cases, and advance treatment options. Today, I sat down for a chat with Stephen about life with lung cancer, and what motivates him each day as a teacher and leader of a non-profit organization.
This "unplugged" episode features just me and one of my blog posts. On this cancer journey, when bitterness creeps into your soul -- and it will -- what are you going to do? Are you going to feel sorry for yourself? Check out from the things you love because they're too painful? Shake your head and say no, it hasn't been worth it? Or will you choose life? Will you invite joy and celebrate the moments as they come? It's OK to experience bitterness. I'm just suggesting that it's not OK to dwell there. I suggest we follow the lead of Gabriele "Gabe" Grunewald. Gabe was a professional runner, and she LIVED with cancer for 10 years, between her diagnosis as a college student at age 22, and her death in 2019 at the age of 32. "Cancer can stop you from doing a lot of things. I'm well aware of that. But I'm more interested in what cancer can't stop me from doing. Here's to finding out."