Podcasts about pigmentosa

«Med mine øyne» er Heidis egen fortelling. Fra barnets tillitsfulle blikk til ungdommens og etter hvert den voksnes mer nyanserte bilde av verden på både godt og vondt. Bakteppet er en gryende oppdagelse av øyesykdommen RP (retinitis Pigmentosa) som gjorde seg mer og mer gjeldende og til slutt førte til at Heidi mistet synet helt. Gjennom fortelling, musikk og dikt tar Heidi tilhørerne med inn i sin verden. Vi får være med på reisen hennes fra lys til mørke, og med Heidi som guide får vi et unikt innblikk i hva som skjuler seg der. Av både gleder og sorger. Les mer her: https://www.kabb.no/medmineoyne/

In April 2024, our host David Hirsch traveled to Cuba with Joni & Friends, as one of 12 U.S. volunteers participating in a Wheels For The World Program, to fit and distribute 200+ wheelchairs to youth and adults, who might not otherwise experience mobility.  During his visit, he recorded two interviews with individuals connected to the disability community in Cuba. This is the the second of the two interviews.Toady's guest is Noel Fernandez Collott of Ciego de Avila, Cuba an 82 year old retired Baptist pastor who led seven churches during his career, who is one of the country's most well respected disability advocates and himself, went blind at age 30.Noel and his wife, Ornara, have been married for 58 years.  We also learn about how Retinitis Pigmentosa took his dad and grandfather's sight as well.Thirty years ago, Noel was the initial point of contact with Joni & Friends, the Agoura Hills, CA global Chrsitian disability ministry.  Since then there have been J&F Family Retreats and Wheels for the World programs in all 15 Cuban providences.Noel is also the author of the book (published in Spanish) entitled: Segun Los Circunstancias, which translated into English is: Living According To Circumstances.  The book is currently available  in Spanish on Amazon via Kindle and soon to be available in English.  We also learn about ACLIFIM a local NGO that serves the disability community. It's an uplifting story about overcoming disability and the power of the Holy Spirit all on this episode of the SFN Dad To Dad Podcast. Show Notes - WhatsApp - 53 52 449 967Email – fernolla2027@gmail.comJoni & Friends -  https://joniandfriends.org/Living According To Circumstances - https://www.amazon.com/Vivir-seg%C3%BAn-las-circunstancias-Spanish-ebook/dp/B0CQR9XJJ6/ref=sr_1_1?crid=DU5LY58FA1JM&dib=eyJ2IjoiMSJ9.vTCDcNLCV7_U0Z3oenOWXtKah6BZpDjOkT9YlWKfmug.5Bogv-4zgXWbCoiv4J7IQia54bpBaFqcU2XTSbDJfQo&dib_tag=se&keywords=noel+fernandez+collot&qid=1719589939&s=books&sprefix=noel+fernandez+collot%2Cstripbooks%2C98&sr=1-1ACLIFIM (Asociación Cubana de Personas con Discapacidad Físico - Motora -  https://www.aclifim.cu/Special Fathers Network - SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 700+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated.  There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/SFN Dads Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Find out about Horizon Therapeutics – Science and Compassion Working Together To Transform Lives. https://www.horizontherapeutics.com/

Welcome to my RP life and in this episode it is a Blind Man's reflection on his life before he went blind. From Brett Knight is Pigmentosa this is my story please like share and subscribe wherever you listen to your podcast on and also check me out on youtube. At my RP life I deeply appreciate the support

Welcome to my RP life please like share subscribe and follow me on all the platforms you listen to your podcast. I deeply appreciate the love and support this is episode 1 of my life before RP. A Blind Man's reflection on my life before retinitis Pigmentosa you can also subscribe to me on YouTube at my RP life and also follow me on x at my RP Life One

The Journal RETINA is devoted exclusively to diseases of the retina and vitreous.  These podcasts are intended to bring to its listeners summaries of selected articles published in the current issue of this internationally acclaimed journal.

Today I am joined on the podcast by a very inspiring man  Tim Reddish CBE was born and bred in Nottingham, England He was a keen swimmer, little did he know what life had in store for him  At the age of 31 Tim was sadly diagnosed with retinitis Pigmentosa which over time sees a person lose their sight  Did this stop Tim? Not a chance he went on to win 5 medals for Paralympic GB team  That's impressive, what's even more impressive is what follows in Tim's career. He goes on to become the Chairman of the British Paralympic association and even the international Paralympic board member Tune in to hear all about it what he achieved in these positions over the years, please comment, like, share and subscribe free  Happy listening    See acast.com/privacy for privacy and opt-out information.

This week podcast is an interview of a Blind man Maxwell Ivey Jnr who happens to be an award-winning blogger. He was blind at the age of 12 with Pigmentosa and ever since then he refused to let his present status way him down but rather he chose to be successful despite his challenges. If Max can do it, then you can. Please don't forget to like, comment, share and subscribe to our podcast. Mind Closet 101 is a life coaching show that gives people the platform to ask questions that have been locked in the closets of their minds, also a one-on-one avenue for people to freely interact and express their inner thoughts without being judged. Where everyone can learn from different experiences, opinions, not only permitted to talk about our victories, success, but also our failures, mistakes, and burdens. We discuss more life-related issues that affect our daily lives, like mental health, relationships, family, communities, and the world at large You can watch, the show LIVE every Friday at 8 AM EST – Eastern Standard Time, 5 AM PST- Pacific Standard Time, 1 PM WAT- West Africa Time, 2.PM CAT- Central Africa Time, 5.30 pm IST-India standard time on our Facebook Page. Please do visit our Facebook Page: https://www.facebook.com/MINDCLOSET101. Follow me on Instagram:https://www.instagram.com/nwachinemeluokechukwu/. #mindcloset101 #mindset #whatisyourexcuse #podcast #positivity #truestories #inspirational

Ruel’s Running Podcast 285 : Cooking with Calabash | Adventures in Prurigo Pigmentosa | Meat & Organs Treatment of Prurigo Pigmentosa with Diet Modification: A Medical Case Study This episode of Ruel’s Running is sponsored by Abadam Studios, a graphic and web design service. Go to abadamstudios.com to support the show and learn more. Music by: DOROTHY LANE from Martinez, CA.  Check em out, have listen and follow: dorothylanemusic.com www.facebook.com/dorothylanemusic www.instagram.com/dorothylanemusic/ soundcloud.com/dorothylane

Dette er ikke akkurat en folkesykdom, men den dukker opp fra tid til annen. Greit å vite om.

Michel Michaelides, MD, of UCL Institute of Ophthalmology; Moorfields Eye Hospital provides an overview of X-linked retinitis pigmentosa (XLRP), including its symptoms, common treatments, as well as a summary of the latest interim data from the MGT009 trial.

Episode 001 | Lance Johnson (Host - The See-Through Podcast) shares his story about life with Retinitis Pigmentosa as well as the format of the podcast. To learn more, visit: seethroughpod.com

Anxiety. Sadness. Anger. Fear. Receiving a life-altering diagnosis is often accompanied by overwhelming emotions. In our first episode, you'll hear the stories of three guests who received the news of multiple sclerosis, retinitis pigmentosa, and Lyme disease with chronic pain, respectively. Our guests touch on how their diagnosis impacted everything from self-worth and identity, to relationships and new behavior. Later in this episode, you'll hear from a mental health professional who explains these responses, as well as the effectiveness of communication and supportive relationships during stressful times.

In Nicola’s 50th landmark podcast episode, she celebrates with her own personal journey in war-torn Beirut and how her ‘Yes I Can’ attitude strongly evolved under intense hypervigiliance situations. Nicola is joined by her very special guest this week, her Mom Pamela, who shares her life span over decades of rapid changes from the second world war, to the sixties and running a business, to fighting blindness, losing a business to fire, and much more. What kept her going? Find out this week as she and Nicola explore with candor and humor what it takes sometimes to keep us on track despite life’s challenges. Inspiring, honest to the bone, authentic and a delightful interaction between a mom and daughter. Links EMAIL: PamelaLowe@Melton.com WEBSITE: FightingBlindness.org/diseases/retinitis-pigmentosa Essential oils from Doterra

Shaini is a bean counter, baker, and public speaker with Fighting Blindness Canada. She says the kitchen can be therapeutic but macarons are not! We dish out a little baking wisdom, plus her journey with retinitis pigmentosa.

Today’s podcast features Lise Pace, VP of External Affairs at Bosma Enterprises. Lise was diagnose with retinitis Pigmentosa in her twenties, but never went through rehabilitation training. On the podcast, Lise discusses why she decided to go back for training and how it has improved her quality of life.

 - Shakespeare. On 04/08/2016, under a majestic old oak tree, I officiated the wedding for Bill & Bonnie.  Retinitis Pigmentosa has plagued Bill his whole life, slowly deteriorating his vision. There is no cure. As Shakespeare said, "Love looks not with the eyes but with the mind," I can tell you Bill & Bonnie have found a deep & beautiful love with one another.  Bonnie has had to increase her role as the seeing partner (driving, and so forth) & Bill has had to learn to accept this.  Their love, friendship, & raucous sense of humor is infectious, a beautiful thing to behold. In my own marriage, in my role as the one who needs care, Bill & Bonnie have so very much to teach me.  I am forever grateful for their example & their lessons.  

After being diagnose with retinitis Pigmentosa, Lise Pace life would be forever changed. As her sight worsen, Lise was forced to give up her career in finance and banking due to her vision loss. During the podcast, Lise recalls the adversity she overcame, finding Bosma Enterprises and her current role as VP of Marketing and Advocacy.

Kitty Barry shares her honest and uplifting reflections of motherhood (she has twin girls), her achievements and very raw experiences of life as a person with Retinitis Pigmentosa (RP). She chats about the book she's written - which is leaving a legacy for her twin girls.  Hope you enjoy this edition of the Stories Of You Podcast.   

Brian Fischler had me at his apartment in Queens, NY where talked about going blind and being blind from Retinitis Pigmentosa, guide dog school for his dog Nash, living alone, dating, doing stand up comedy, fundraising, having his own podcast and so much more!!! Please Listen, Please Share, Please Enjoy!!! Twitter @ejscott @EJPodcast Instagram @ejscott1106 My website www.ejscott.com charities to donate to www.crowdrise.com/7on7 RUNNING BLIND Documentary available on iTunes, amazon, google play

Laura is an artist, world traveler, and outdoor lover going blind bit by bit, day by day. She has an eye condition Retinitis Pigmentosa that’s been slowly taking her vision from her her whole life. In this episode, Branden talks with Laura about how she doesn’t let this condition get in the way of her art, adventure, or living a life of optimism and hope. -- @lauralawsonvisconti on Instagram & Twitter | lauralawsonvisconti.com @brandenharvey on Instagram, Twitter, Facebook & Snapchat | brandenharvey.com Find show notes at brandenharvey.com/podcast Get good news stories in your inbox every week at brandenharvey.com/goodnewsletter  

Let's keep our eyes working for life! Tune in to Eve Plews, L.N.C, and get great tips to fighing macular degeneration, cataracts, retinitis pigmentosa, and even dry eye!

Stephen Euin Cobb (author and futurist) is today's speaker. Topics include: An update on Google Glass; Google's contest which will allow you to buy your own google glass for $1500 (your host has entered this contest); carbon nanotubes woven into conductive threads may replace copper for electrical wiring in aircraft and help wearable computers become woven into clothing; an impressive new antibacterial gel from IBM and the Institute of Bioengineering and Nanotechnology; and the first bionic eye to get FDA approval is an implanted artificial retina which gets its image wirelessly from an external camera. Also: your host offers his own little contest which piggybacks on Google's contest. Hosted by Stephen Euin Cobb, this is the February 27, 2013 episode of The Future And You. [Running time: 30 minutes]  Stephen Euin Cobb is an author, futurist, magazine writer and host of the award-winning podcast The Future And You. A contributing editor for Space and Time Magazine; he is also a regular contributor for Robot, H+, Grim Couture and Port Iris magazines; and he spent three years as a columnist and contributing editor for Jim Baen's Universe Magazine. He is an artist, essayist, game designer, transhumanist, and is on the Advisory Board of The Lifeboat Foundation. His novels include Bones Burnt Black, Plague at Redhook and Skinbrain.

Pastor Jeff grillo uses his amazing life story along with powerful Scriptures such as, Proverbs 23 to teach you the power your thoughtlife has. Listen, learn, encourage and inspire! This podcast will turn your life around.

After a tumultuous week that saw many deaths and widespread arson and rioting in Bangkok, we discuss the fallout from the army’s breakup of the redshirt protest site and what it means to Bangkok and the rest of Thailand. We also talk about how most of Bangkok continues as normal, even as a temporary curfew puts a major dent in Bangkok’s nightlife. In addition, we are very happy to be joined by Prae Sunantaraks – nicknamed Fluke – who was born with retinitis pigmentosa, a degenerative retinal disease that is slowly robbing her of her sight. She shares with us the details of The Little Light Project – a charity she started for blind children – and helps us understand how she remains so positive and upbeat even as her world becomes darker and darker – an outlook that many in Bangkok can appreciate these days. She also lets us in on the biggest mystery of all – how a visually-impaired person navigates the treacherous Bangkok sidewalks!