Kent's Kidney Stories

Kent Bressler speaks with Rachel Claudine and Dr. Sandy Gilbert from the National Kidney Foundation. They explore the groundbreaking KidneyCARE Study, a pioneering patient-centered research initiative designed to gather vital data directly from individuals living with various stages of kidney disease. Rachel shares her personal journey with Lupus Nephritis, emphasizing the significance of patient stories in advancing kidney health research. Dr. Gilbert highlights the study's aim to capture real-world patient experiences, offering insights into disease progression and treatment efficacy. Discover how this innovative registry is set to transform kidney care and empower patients, while also discovering how you can contribute to this vital research. For more information on the KidneyCARE Study and to participate, visit kidneycarestudy.org. About Our Guests: Sandy Gilbert, PhD is the Senior Director of Patient Outcomes Research at the National Kidney Foundation (NKF), where she manages the KidneyCARE (Community Access to Research Equity)™ Study. Since joining NKF in 2024, she has focused on developing and overseeing this pioneering national kidney disease patient registry – the first to integrate patient-reported data with clinical data from electronic health records (EHRs). Rachel Claudin, BS, CCLS is the Patient-Centered Research Director at the National Kidney Foundation (NKF). Her main work for the past three years has been focused on the advancement of the KidneyCARE Study. As a person living with Lupus Nephritis, she is excited for the patient- entered data collected by the Study to increase and improve kidney care research. Previous to the NKF, Rachel worked in hospital and hospice settings advocating for patients utilizing the shared decision-making model of healthcare. For more information on Kidney Solutions and to join our supportive community, visit kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Stories!

Cody Kubiak's story is one of extraordinary resilience, faith, and hope. In this episode, we dive into his powerful journey—from childhood surgeries to receiving a kidney transplant and battling cancer. Through every trial, Cody has shown what it means to persevere and live with purpose. Hear firsthand how he turned hardship into hope, and discover why raising awareness for kidney donation is more important than ever. Dive deeper into Cody's story at kidneysquitwedont.com For more information on Kidney Solutions and to join our supportive community, visit kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Stories!

Kent Bresler shares his personal journey through kidney disease, including his experiences with a kidney transplant, dialysis, and the challenges he faced with a recent health scare. With a focus on resilience and the importance of regular medical check-ups, Kent offers insights into navigating life after a transplant and the significance of community support. Join us for an inspiring discussion that emphasizes the power of faith, advocacy, and the human spirit in overcoming life's hurdles. For more information on Kidney Solutions and to join their supportive community, visit https://kidneysolutions.org/ Host: Kent Bresler Producer: Jason Nunez Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Stories!

Join Kent Bressler in this deeply insightful episode of Kent's Kidney Stories as he welcomes Dan Holmes, a former U.S. Navy combat search and rescue operator, to discuss his remarkable journey through kidney disease. Listen in as Dan shares his experiences from the harrowing shipboard fire that led to his PTSD and subsequent diagnosis with membranous nephropathy, a rare and incurable kidney disease. Despite these challenges, Dan has become a passionate advocate for kidney disease awareness. Tune in to hear his inspiring story of resilience, advocacy, and hope! For more information on Kidney Solutions and to join their supportive community, visit https://kidneysolutions.org/ Host: Kent Bresler Producer: Jason Nunez Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Stories!

In this episode, Kent Bresler sits down with LJ Dong, a remarkable individual who shares her unique journey of overcoming Nutcracker Syndrome and becoming a kidney donor. LJ talks about surviving multiple surgeries on her spine and abdomen and how a diagnosis of  Nutcracker Syndrome has changed her life. Nutcracker Syndrome is a compression of the renal vein causing, pain and potential damage to the kidney. Corrective surgery was unsuccessful. This inspiring conversation sheds light on the complexities of kidney health and the power of resilience and generosity. Stay up to date with LJ Dong at https://ljthemedium.com/ For more information on Kidney Solutions and to join their supportive community, visit https://kidneysolutions.org/ Host: Kent Bresler Producer: Jason Nunez Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Stories!

In this heartfelt episode, Kent Bresler sits down with Jamie Stroup, a remarkable woman who has undergone not one, but two heart transplants, and a double lung transplant. Jamie shares her incredible journey from her first transplant at the age of 16 to her recent second heart transplant in October 2023. They discuss the emotional and physical challenges she faced, the support from her family and friends, and the importance of maintaining her health and sanity through it all. Tune in to be inspired by Jamie's resilience and strength. For more information on Kidney Solutions and to join their supportive community, visit kidneysolutions.org. Host: Kent Bresler Producer: Jason Nunez Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Stories!

Join Kent Bressler as he delves into the New Era Act, a groundbreaking Bill aimed at improving the lives of those with rare kidney diseases. Learn about Kent's advocacy efforts on Capitol Hill, the importance of early intervention, and how you can contribute to this vital cause. Don't miss this informative and inspiring episode! For more information on Kidney Solutions and to join their supportive community, visit kidneysolutions.org. Host: Kent Bresler Producer: Jason Nunez Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Stories!

In this heartfelt episode of Kent's Kidney Stories, host Kent Bresler reconnects with Ali Dawson and Sonia, two inspiring individuals from London. Their story is a testament to the power of friendship, kindness, and the life-changing impact of kidney donation. We hear about the incredible journey of Sonia, who suffers from polycystic kidney disease, and her miraculous connection with Ali, a former student who selflessly stepped forward to donate his kidney. Sonia shares the emotional rollercoaster of her diagnosis, the challenges of dialysis, and the overwhelming gratitude she feels for Ali's altruistic act. Ali, in turn, discusses his motivations and the unwavering determination that led him to become a living donor. The episode delves into the differences in kidney donation practices between the UK and the US, highlighting the need for greater awareness and support for living donors. Kent, Ali, and Sonia explore the importance of preemptive transplants, the emotional and physical toll of dialysis, and the profound bond that forms between donors and recipients. Join us for this moving conversation that underscores the significance of organ donation and the enduring impact it has on the lives of recipients and their families. Whether you're a patient, a potential donor, or simply someone interested in the transformative power of organ donation, this episode offers valuable insights and inspiration. For more information on Kidney Solutions and to join their supportive community, visit kidneysolutions.org. Host: Kent Bresler Producer: Jason Nunez Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Stories!  

In our latest episode of Kent's Kidney Stories, we bring you the incredible journey of Julie Lynn Nast. From her early struggles with kidney disease and a challenging pregnancy on dialysis to her transplant experience and ongoing advocacy work, Julie's story is one of resilience and hope. Julie shares her battles with peripheral artery disease, the complications she faced post-transplant, and her relentless efforts to find a living donor. Her dedication to advocating for kidney health and educating others is truly inspiring. Don't miss this heartfelt episode where we delve into the importance of kidney health awareness, the challenges faced by transplant patients, and the power of community support. Tune in now and be inspired by Julie's journey! For more information on Kidney Solutions and to join their supportive community, visit kidneysolutions.org. Host: Kent Bresler Producer: Jason Nunez Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Stories!

  In this special episode of Kent's Kidney Stories, host Kent Bresler steps outside the usual realm of kidney disease to bring you an inspiring conversation with Steven Gambrel, a heart and double lung transplant recipient. Steven shares his remarkable journey, starting from his congenital heart defect diagnosed at birth, through the trials of atrial fibrillation in his teenage years, to the life-saving transplant he received over 29 years ago. Steven candidly discusses the challenges he faced growing up with his condition, the transformative moment of receiving his transplant, and the ongoing battle with immunosuppressive medication. Kent and Steven delve into the unique aspects of living with a heart and double lung transplant, including the physical and mental hurdles, the importance of family support, and the profound impact of organ donation. This episode is a testament to resilience and the power of medical advancements. Steven's story is not only a source of inspiration but also a call to action for greater awareness and support for organ donation. Whether you're a patient, a medical professional, or someone interested in the incredible stories of transplant recipients, this episode offers a deep and heartfelt look into the life of someone who has beaten the odds. For more information on Kidney Solutions and to join their supportive community, visit kidneysolutions.org. Host: Kent Bresler Producer: Jason Nunez Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Stories!

In this compelling episode of Kent's Kidney Stories, host Kent Bresler welcomes Elaine Perlman, Executive Director of Waitlist Zero and mentor for the National Kidney Donation Organization. Elaine shares her remarkable journey from educator to kidney donation advocate, spurred by her and her son's altruistic kidney donations. Together, they delve into the urgent need for the End Kidney Deaths Act, a groundbreaking ten-year pilot proposal aimed at incentivizing kidney donations through a $50,000 refundable tax credit for non-directed donors. Elaine passionately discusses the tragic reality of the kidney shortage and the ethical considerations of incentivizing donations. She highlights the potential of the bill to save 60,000 lives and generate $14 billion in tax savings by the tenth year. Kent and Elaine also address the broader issues within the kidney community, such as the need for a national awareness campaign and the importance of living donations. This episode is a powerful call to action for listeners to support the End Kidney Deaths Act and advocate for greater awareness and urgency in addressing the kidney shortage. Join Kent and Elaine as they explore the transformative potential of this legislation and the collective efforts needed to create a future where no one has to wait for a life-saving kidney. For more information on the End Kidney Deaths Act or to join the supportive community at Kidney Solutions, visit kidneysolutions.org or modifynota.org. Host: Kent Bresler Producer: Jason Nunez Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Stories!  

Kent's Kidney Stories presents a powerful episode featuring Dr. Matthew Cooper, who sheds light on the latest advancements in kidney transplant monitoring. Discover the remarkable potential of cell-free DNA testing to predict and prevent organ rejection, reducing the need for biopsies and enhancing the longevity of transplanted kidneys. Kent's personal insights and Dr. Cooper's expertise combine to offer an informative and inspiring session for patients and medical professionals alike. For more information on Natera, visit https://www.natera.com Host: Kent Bresler Producer: Jason Nunez Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Stories!

In this heartfelt and deeply personal episode of Kent's Kidney Stories, host Kent Bressler is joined by Zachary Sutton, a man of profound impact in the kidney community. With his doctorate in Health Administration and experience as a Physician's Assistant, Zachary's journey is one of both professional insight and personal sacrifice, having been an altruistic kidney donor himself. Kent and Zachary delve into the transformative work happening at the Medical University of South Carolina and the blossoming South Carolina Transplant Foundation. They discuss the power of community support, the importance of patient education, and the life-changing potential of living donation. But it's Zachary's personal narrative that truly captivates as he opens up about his experience as a living donor, the motivations behind his gift, and the ripple effect it has had on encouraging others to consider donation. This episode is a testament to the profound difference one individual can make in the lives of many, and an invitation to listeners to become part of a broader conversation about giving, support, and advocacy within the kidney community. For those touched by kidney disease or considering organ donation, this episode is not only a source of inspiration but also a call to action. Join us as we explore the journeys that define courage, the stories that inspire generosity, and the collective efforts that are shaping the future of kidney health and transplantation. For more information on the South Carolina Transplant Foundation, living donation, or to join the supportive community at Kidney Solutions, visit kidneysolutions.org. Host: Kent Bresler Producer: Jason Nunez Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Stories!

In this inspiring episode of Kent's Kidney Stories, host Kent Bresler invites Jonathan Traylor from Kerrville, Texas, to discuss the upcoming fun walk in April and the remarkable work being done at Kidney Solutions. Jonathan, the organization's social media director, shares how his personal journey with kidney disease led him to give back to the community that supported him through his own health challenges. Kent and Jonathan dive into the growth of Kidney Solutions, highlighting an influx of new patients and the critical need for funding to expand their patient-centered services. They emphasize the importance of community awareness and how events like the fun walk not only raise funds but also shine a light on the ongoing battle against kidney disease. Join us for a heartfelt journey through the challenges and triumphs of living with kidney disease, and learn how you can be a part of the life-changing work at Kidney Solutions. For more information on the fun walk, sponsorships, or to become a part of the Kidney Solutions family, visit kidneysolutions.org. Host: Kent Bresler Producer: Jason Nunez Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Stories!

Kent delves into the vital world of kidney health advocacy with special guest Diana Clynes, the dedicated Executive Director of the American Association of Kidney Patients (AAKP). With nearly two decades at AAKP, Diana brings a wealth of experience and a heartfelt commitment to improving the lives of those affected by kidney disease. Kent and Diana explore the pressing issues facing the kidney community, from the importance of research and innovation to the critical need for patient access to new treatments. They discuss AAKP's signature programs, including global initiatives and advocacy efforts, and underscore the organization's patient-centered approach. Diana's insights into AAKP's operations, their free membership model, and the ways individuals can get involved, whether through local ambassador initiatives or national policy summits, highlight the many avenues available for patient engagement and empowerment. For those touched by kidney disease, this episode offers both a call to action and a source of hope. It's a testament to the power of advocacy and the difference that informed, passionate individuals can make in the fight against kidney disease. Join Kent and Diana for a conversation that not only sheds light on the importance of patient advocacy but also invites you to become an active participant in shaping the future of kidney health care. Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Stories! For more information on how to join AAKP and become a part of the movement advocating for kidney health, visit aakp.org Host: Kent Bresler Producer: Jason Nunez

Josh Tarnoff joined NephCure as CEO in early 2018, fulfilling a long-held desire to serve the rare disease patient community more closely. He spent more than 30 years working in the pharmaceutical and biotechnology community, moving new therapies closer to reality. Personal connections with NephCure families fuel his passion to achieve NephCure's mission-driven goals, and he always appreciates directly speaking with our community. Josh also has personal insights into renal disease as he was once a patient, likely a result of a snake bite. He lives in Pennsylvania, where he enjoys backpacking — while also trying to avoid further contact with venomous snakes. Click here to learn more about NephCure.  Host: Kent Bresler Producer: Jason Nunez Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Stories!

In this heartwarming episode, Kent Bresler sits down with Jennifer Cramer-Miller, author of "Incurable Optimist: Living with Illness and Chronic Hope." Jennifer shares her profound journey as a fellow FSGS patient who has navigated the tumultuous waters of dialysis, multiple transplants, and the relentless pursuit of hope and joy amidst chronic illness. Their conversation explores the emotional landscape of kidney disease, the power of acceptance, and the miracles that unfold when people show up for one another with acts of profound kindness. Jennifer's story is a testament to the strength found in vulnerability and the beauty that emerges from life's toughest challenges. As they delve into the five parts of her book—failing, wishing, receiving, accepting, and unfailing—listeners are invited to reflect on their own journeys and the interconnectedness that binds us all in times of adversity. Jennifer's resilience and optimism offer a beacon of light for those navigating similar paths, reminding us that even in the face of an incurable condition, one can live with 'chronic hope.' For those touched by Jennifer's story or seeking support in their own kidney health journey, Kent encourages reaching out for the community and guidance. Tune in to this episode for an enriching conversation that affirms life's capacity for joy, even amidst its most profound challenges. Host: Kent Bresler Producer: Jason Nunez Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Stories! "Incurable Optimist: Living with Illness and Chronic Hope" by Jennifer Cramer-Miller is available in print, ebook, and audiobook formats for those who prefer listening to reading. Visit JenniferCramerMiller.com to connect with her directly.

Kent Bresler is joined by Amy Makovic, a poet and professor whose life-altering journey through a triple organ transplant during the pandemic is nothing short of miraculous. Her candid conversation delves into the emotional rollercoaster of an 18-hour surgery, an 11-month hospital recovery, and the mental health challenges that followed. Amy's resilience shines through as she discusses her return to the joys of traveling and teaching, and the importance of self-advocacy and gratitude in the face of medical adversity. Her book, "Contains Recycled Parts," chronicles her transplant journey, offering hope and a testament to the power of perseverance. If Amy's story has touched you or if you're looking for guidance and support in your own kidney health journey, reach out to Kent at kent.bressler@kidneysolutions.org. For more information about Kidney Solutions and our weekly Support Group, visit www.kidneysolutions.org. Host: Kent Bressler Producer: Jason Nunez Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Storie! Contains Recycled Parts, by Aimee Mackovic: https://www.amazon.com/Contains-Recycled-Parts-Transplant-Gratitude/dp/1956879498

In this deeply personal episode of 'Kent's Kidney Story,' Kent Bresler invites listeners to explore the intersection of kidney health and the aging process. From his own experiences with a transplant that has lasted over three decades to the nuances of managing life post-transplant, Kent offers a transparent look at the highs and lows. Discover the role of community support, the impact of lifestyle choices, and the profound influence of mentorship in the kidney disease community. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit us at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Kent talks to Jaime Imhof, a dual donor double transplant recipient. In June 2022 she was rushed to the hospital raging with multiple infections and organ failure. and was given a 10% chance of survival. Jamie needed a liver transplant first to survive, breaking the six-month sobriety rule in a groundbreaking program led by Johns Hopkins Hospital. After that, she also required a kidney transplant as well due to acute kidney injury and failure from Hepatorenal Syndrome and Tacrolimus. She is 14 months post liver transplant and 7 months post kidney transplant.  If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit us at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Kent talks to Lauren Drew, who gave her kidney to a stranger and became a kidney advocate. Lauren works at the National Kidney Foundation and helps shape policies for kidney patients and donors. Listen to this episode to hear Lauren's inspiring story and learn how to support the kidney community. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit us at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Lots of laughter and joy as Ryan shares his kidney journey story with Kent. Ryan is a local radio station celebrity in Kerrville, Texas at 103.7 MIKE FM. His story is beyond the routine as he had lost one kidney and then had cancer in his remaining kidney and lost it too. He shares about his experiences with cancer and the joys and tribulations. He also has an interesting tale to tell about his father. You will have to listen to the podcast to catch the details. Please enjoy this podcast. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit us at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Kent talks with Rachel A. Davis, MD associate professor of psychiatry and neurosurgery at the University of Colorado Anschutz School of Medicine. Rachel is a non-directed liver donor, donating the right lobe of her liver in January of 2022.  This experience fueled a desire to increase awareness and advocacy about living liver and kidney donation. She has written a research paper titled "Lithium and the Living Kidney Donor: Science or Stigma?" Her experience with donor denial and the use of therapeutic Lithium in the treatment of mental illness is telling and interesting. Don't forget to subscribe and share. Click here to read Lithium and the living kidney donor: Science or Stigma? By Rachel A. Davis, MD. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit us at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Kent and his good friend Erin Kahle talk about the American Association of Kidney Patients (AAKP). A group focused on the welfare of all patients with Kidney Disease. He calls her exceptional and humble. Enjoy her love for kidney patients. Click here to visit the official website for AAKP. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit us at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez  

Kent speaks with Ali Dawson. Ali is from the UK and chose to give one of his kidneys to one of his colleagues, Sonia. His story is unique in that he now has become a huge advocate and plans to altruistically donate a part of his liver in the coming years! The whole experience has been life-enriching beyond anything he could ever describe. Ali shared with Kent, "Of all the things I've ever done in my life, this has definitely been the happiest & I definitely recommend organ donation."  Click here to video the TED Talk given by Katy Portell. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit us at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Hannah Graves is a native of Milwaukee, Wisconsin. Attending school in the community, Hannah found her calling in psychology and pursued the direction of a well-placed guidance counselor to pursue social work. After graduating in 2009 with a Bachelor of Arts in Psychology, Hannah decided to attend Graduate School for Social Work at the University of Wisconsin Milwaukee at the Helen Bader School of Social Welfare. While here, Hannah met influential professors and mentors who guided her career path. After graduating in 2011 with her Master's Degree in Social Work, Hannah began working for United Way of Greater Milwaukee. Life called Hannah to Atlanta, GA in 2013 where she completed some odds-and-ends jobs in support of her personal relationship with her now husband. Working in hospice, short-term rehab, and then finally dialysis from 2016 to 2019 afforded opportunities to learn and advocate for the best quality of life for patients living with End Stage Renal Disease. Now in 2023, Hannah has the greatest opportunity of to work with both Apex Health Innovations, a global healthcare technology company, and Piedmont Transplant Institute to truly support patients through their transplant journey.  Hannah currently lives in Marietta, Georgia with her husband, daughter, and their four cats. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit us at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Kent talks with Marc Coronel, another patient with Focal segmental glomerulosclerosis (FSGS). Mark offers his unique insight into the importance of being focused on taking care of yourself. He talks of his life on dialysis and then Transplant and living with FSGS. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit us at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

After having a semi-normal childhood throughout the 80's and early 90's, Kimberly Jacques underwent a risky, rarely performed heart-double lung transplant at the age of 16. More than a quarter of a century later, Kimberly talks about her triumphs and tribulations, the differences between transplantation then and now, and what motivates her to keep on going all these years later. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Kent talks with Emmitt Henderson III the CEO of Male Lupus Warriors. He talks of the difficulties dealing with Lupus and its multiple medical issues that occur. Originally transplanted only to lose the kidney to complications. He talks about his corporation “Male Lupus Warriors” developed to spread Lupus and Mental Health awareness to all who will listen. Emmitt needs A Kidney Donor. Are YOU The One? Emmitt Henderson III was diagnosed with Systemic Lupus and Lupus Nephritis in 1995 but had symptoms going back to 1980. Through the years, he has endured major complications from heart, liver, kidneys, and lung failures, and avascular necrosis that led to a shoulder and knee replacement. He had a clinical trial, a bone marrow stem cell transplant; he was on oxygen due to his lung failure and had a kidney transplant due to kidney failure and brain disease. He was also diagnosed with Rheumatoid Arthritis, Sjogren's Syndrome, and MTCD as well as suffering from a stroke, shingles, gout, chronic fevers, diabetes, and hypertension. In 2019, when Emmitt was diagnosed with brain disease, it medically retired from his career. He decided to advocate for the same disease that debilitated him since 1995 and to talk about how his mental health got him through it all. He created his organization called Male Lupus Warriors Corp to spread Lupus and Mental Health awareness. He holds a safe space for men to meet and talk about their hardships in life, he encourages everyone to not be a victim to their illness.  Emmitt did an advocacy campaign in Tanzania Africa in 2022 which included climbing Mt. Kilimanjaro. During his climb, he suffered high-altitude pulmonary edema and ended up going into kidney failure for the second time in his life. He is now currently doing home hemodialysis and is on the transplant list for another kidney. During this time, he still maintains his advocacy by being active on social media, he does speakings/podcasts, and facilitating support groups. Malelupuswarriors@gmail.com www.malelupuswarriors.org           Emmitt's Social Media: FB emmitthendersoniii IG, Tik Tok @malelupuswarriors If you would like to learn more about becoming a donor for Emmitt, please contact Kidney Solutions at 830-285-2140. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Kent speaks with Kidney Warrior and Published Fictor Author Weston L. Collins. He shares his story of being diagnosed with Kidney disease, dialysis, fighting a snowstorm to receive his kidney transplant, and takes us into his thoughts on writing and more! Weston L. Collins has been a published fiction author for over 10 years. In his time, he has written over 13 books and has been published four times. As well as being a kidney transplant recipient, Weston is also a qualified mediator who teaches preparation for mediation as well as conducting mediations for The Bexar County Dispute Resolution Center and privately. He attended Texas A&M Kingsville University on a football scholarship and then Houston Baptist University to pursue more educational avenues. Growing up in a Lutheran private school, as well as growing up in the culturally diverse area of Houston Texas, he has a background where he has encountered all walks of life. He uses that experience so that he can write many of the characters that he creates to give life to his novels. Weston L. Collins cares about the readers through his actions and to make sure that people are represented in his books accurately. Weston is married to his wife Mrs. Jaclyn Collins and lives in the great state of Texas. He is a part of the Kidney Solutions family since his transplant back in February of 2022, and looks to also bring a voice to kidney patients through his art, efforts in the community, and the world at large. Click here to see the list of Weston's books and purchase if you are interested.  If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Kent speaks with Lindsey Disla-Laurinat and her need for a kidney. Please consider helping give Lindsey a second chance at living the life God put her on this earth to do. A kidney transplant would give her a chance to enjoy her family and friends. She would be eternally grateful. Are YOU the One? If you would like to learn more about becoming a donor for Lndsey, please contact Kidney Solutions at 830-285-2140. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Michael Williams. is a husband and father to two teenage boys and is in need of a Kidney Donor. Are YOU the One? He works part-time as a CAD drafting analyst and is active in his church, serving in several positions. He also enjoys drawing, the ocean, and playing the guitar. He is looking forward to receiving a kidney so he is able to continue serving and maybe doing more things with his sons and taking on new hobbies.  If you would like to learn more about becoming a donor for Michael, please contact Kidney Solutions at 830-285-2140. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Dr. Allen Davidoff is the founder and CEO of XORTX Therapeutics, exploring new therapies to treat progressive kidney disease. Educated at The University of Calgary, Allen has 15 years of drug development experience with a focus on clinical and regulatory developmental affairs in the US, Canada, Germany, Denmark, and India. Allen has a broad range of senior management experience in pharmaceutical research and development including involvement in two investigational new drug (“IND”) applications or supplemental IND's, two phase I studies, seven phase II studies, and one new drug application (NDA). Prior to forming XORTX, Allen was the Chief Scientific Officer, VP Product Development and co-founder of Stem Cell Therapeutics Corp. and Senior Scientist and Head of Pharmacology at Cardiome Pharma Corp.  If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Kent talks with David Perchinsky and his need for a living kidney donor. Having to be on dialysis is not a burden but he desperately wants to be transplanted to get his life back. David wants to return to teaching and coaching. Listen as he explains his feeling about the difficult life of someone with kidney disease. Are YOU the One? If you would like to learn more about becoming a donor for Ryan, please contact Kidney Solutions at 830-285-2140. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Ryan Bowman talks to Kent about his difficulties in navigating the search for a living donor. At 49 years old he is on in-center dialysis. In addition, he is an only child and the primary caregiver for his legally blind mother who is 70 years old. Dialysis leaves him exhausted and struggling to give his mother the attention and assistance she deserves. He is in hopes of returning to full-time work as a Quality Assurance coordinator. Prayers are needed here as well as a living donor. Are YOU the one?  If you would like to learn more about becoming a donor for Ryan, please contact Kidney Solutions at 830-285-2140. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Greg Matthews is a husband, father of two daughters, and grandfather. His lung transplant medication has brought him to the place where he is badly in need of a kidney. With over 97,000 individuals on the kidney transplant list, fewer than 25,000 will receive a transplant. We could use your help in locating donors. Kidney donation is actually a very simple procedure. Your thoughts are appreciated. Click here for information on what it takes to be a donor: If you would like to learn more about becoming a donor for Greg, please contact Kidney Solutions at 830-285-2140. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Kent speaks with Dr. Lincy Jojan, a Lead Nurse practitioner in the Department of Medicine at Northwell Health Hospital in New York. Kidney Solutions patients were a great part of her doctoral thesis, and she talks about her Doctoral Study on Shared Decision Making in those with CKD. Her passion for working within the Kidney world is extraordinary. Listen as she shares her Doctoral work. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Armand Halter underwent a deceased donor kidney transplant 27 years ago. His kidney journey became a little rocky when he began experiencing signs of kidney rejection with a rise in creatine in May of 2022. He talks about the use of a test for rejection called Prospera a product of a company called Natera. Listen to how Armand talks about his experience. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Kent speaks with Lindsay Ducharme, a registered dietitian, board-certified renal nutrition specialist, and Vital Kidney Nutrition's owner. Vital Kidney Nutrition provides nutrition counseling to those with stage 1-5 kidney disease. She has been a dietitian since 2009 and has worked exclusively with those with kidney disease since 2014. She started her own private practice in 2021 after realizing the vast majority of people on dialysis have never worked with a dietitian to help slow the progression of their kidney disease. Lindsay loves food and believes food can and should be enjoyed even with kidney disease. In her spare time, she enjoys being active and spending time with her family and two young sons.  If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Kent speaks with Michael Curtis, Ph.D., President & CEO of eGenesis. Dr. Curtis has more than 30 years of experience in scientific research and leadership in biopharmaceutical drug development across multiple therapeutic areas. Before joining eGenesis he served as Chief Executive Officer, President and Head of R&D at Cadent Therapeutics. Moreover, Dr. Curtis was an Entrepreneur-in-Residence at Atlas Venture where he played a role in the creation of several companies including Delinia and Q32 Bio. Dr. Curtis has led the development of multiple products from discovery through first-in-human, Phase 2 and 3 studies. He was involved in the early development of Orencia and Nulojix. Dr. Curtis earned a Ph.D. in Cell and Molecular Biology from the State University of New York Upstate Medical University. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Kent speaks with Rachelle McCray about her journey with Alport Syndrome and her experience with Renasight, a Natera product that determines if there is a genetic cause for an individual's kidney disease or if there is an increased hereditary risk due to family history. Rachelle McCray—Rachelle is a television host, entrepreneur, and patient advocate for chronic kidney disease. Rachelle is the founder and creator of a registered 501(c)3 non-profit that gifts comfort teddy bear kits to children and families affected by kidney disease, the MinMinBear Foundation. She brings a personal perspective to her advocacy, as she and multiple generations of her family have lived with CKD. Rachelle credits Natera's Renasight genetic test for giving her the knowledge to make more informed decisions about her care. Her goal is for other CKD patients to have that same confidence and participation in their healthcare. Rachelle is also a paid consultant for Natera. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Karen Edwards is a widow with two adult children and a precious 11-year-old granddaughter. Without a living kidney donor, the wait for a kidney can be many years and could also mean many years on dialysis. I need the help of others to find a living donor. Are YOU the one?  If you would like to learn more about becoming a donor for Karen, please contact Kidney Solutions at 830-285-2140. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Kent begins a series of Podcasts with Natera, a cell-free DNA testing company well known in the medical/kidney community. Today, we interview Monica Johnson and Mala Nichani from Natera. Our discussion will be on two specific areas of testing that they provide. One is for DNA testing (Renasight) and the second (Prospera) a non-invasive test for rejection of transplanted solid organs, in this case, the kidney. f you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

In celebration of 100 episodes, Kent and his buddies Armand Halter, Uncle Jim Myers, and Jonathan Traylor talk all about kidneys!  If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Johnson Chen has an inherited disease called Polycystic Kidney Disease (PKD), which causes cysts to grow on his kidneys. He has a website called savejohnslife.com. Johnson is in need of a Living Kidney Donor. Can you help? Are YOU the one?  If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Join in the conversation, on the Clubhouse app! Host: Kent Bressler Producer: Jason Nunez

Kent talks with Brian K. Runge, RN, BSN, CCTC. Brian is the Chief Living Donor Transplant Coordinator for New-York Presbyterian Columbia Irving Medical Center. Brian was born in Chicago and at the age of 6 moved with his family onto a sailboat and circumnavigated the globe from the age of 6 to 13. During that time, Brian was homeschooled. Once back in the United States he went through high school and college. He received his BSN at the University of Florida. Brian started his nursing career as a Level 1 Trauma ICU Nurse at Shands Hospital and just so happened to take care of fresh post-op liver, kidney and pancreas transplant patients among many other types of patients. Little did he know his career path was leading him to transplant. Brian moved to New York in late 2006 as a travel nurse and took some assignments at NYP Cornell and Columbia ICU's.  He has been working in Transplant with NewYork-Presbyterian Columbia Irving Medical Center for the last 13 and a half years.  Brian started as a Recipient Transplant Coordinator until he was promoted to the chief position of the donor team in late 2018. He has been doing that ever since.  For questions regarding this episode, contact Kent at kent.bressler@kidneysolutions.org Learn more about Kidney Solutions and our weekly Support Group, at kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez

Kent talks with Martha Gershun & John D. Lantos, MD, authors of  Kidney to Share.  Martha Gershun is a nonprofit consultant, writer, and community volunteer. She donated a kidney in 2018 to a woman she read about in the newspaper. Gershun has been named Special Advisor to the Kidney Transplant Collaborative and serves on the advisory board for the National Kidney Foundation serving Kansas, Oklahoma, and Western Missouri. John D. Lantos, MD is a pediatrician and international leader in bioethics. The focus of his work is on protecting the lives, health, and rights of children. He is particularly interested in children with complex chronic conditions and in the ethical dilemmas surrounding the use of innovative therapies. He has written or edited five books and hundreds of peer-reviewed scientific and philosophical papers. Click here to learn more about and purchase Kidney to Share. For questions regarding this episode, contact Kent at kent.bressler@kidneysolutions.org Learn more about Kidney Solutions and our weekly Support Group, at kidneysolutions.org Join in the conversation about all things Kidney, on the Clubhouse app! Host: Kent Bressler Producer: Jason Nunez

Marana was diagnosed with Type 1 Diabetes when she was 9 years old. 15 years ago, it took her sight, and now she is living with only 13% kidney function and now need a kidney transplant. She is an athlete trained in Brazilian JiuJitsu and active as a personal trainer and nutrition coach for those who are pursuing healthier lifestyles. She loves staying active and volunteering with injured and disabled veterans. However, low energy levels along with fatigue from kidney disease have severely compromised her ability to do so. Are YOU the one? If you would like to learn more about becoming a donor for Marana, please contact Kidney Solutions at 830-285-2140. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Join in the conversation, on the Clubhouse app! Host: Kent Bressler Producer: Jason Nunez

Kent talks with his friend Paul Conway, the Chair of Policy and Global Affairs and the past President of the American Association of Kidney Patients (AAKP). Paul has managed kidney disease for 40 years including nearly 3 years on home dialysis and is the recipient of a deceased kidney donor of over 23 years. Click here for more information on AAKP. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit us at www.kidneysolutions.org Join in the conversation, on the Clubhouse app! Host: Kent Bressler Producer: Jason Nunez

Martin Hughes is the father of two adult children and an uncle to many nieces and nephews. He has spent the last 20 years working with formerly homeless families and individuals as a site director.  He would like to establish his own nonprofit agency to continue to help the homeless population in New York City. Martin is in need of a Living Kidney Donor. Can you help? Are YOU the one? Martin is registered on the Kidney Transplant Waiting List at  Northwell Health in Manhasset, NY. If you would like to learn more about becoming a donor for Martin, please contact Kidney Solutions at 830-285-2140. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Join in the conversation, on the Clubhouse app! Host: Kent Bressler Producer: Jason Nunez

Today's interview is with Rinki and Michael Etheridge are an extraordinary team. Michael needs a kidney donor as his current transplanted kidney is in danger of failure. Rinki has taken on the daunting task of finding that donor. Rinki talks about how difficult it is to be a caregiver. She gives valuable insight into what it is like to watch the love of her life struggle. Listen in as this tough young caregiver tells her story. Michael is registered on the Kidney Transplant Waiting List at  UCSF Health in San Francisco, CA. For more information, call 415-353-1551. If you would like to give the gift of life to Michael, get started today, click here to visit UCSF's Living Kidney Donor webpage and complete an online health history questionnaire. If you have questions regarding items discussed during this episode or would like more information about Kidney Solutions weekly Support Group, contact Kent at kent.bressler@kidneysolutions.org For more information about Kidney Solutions, visit them at www.kidneysolutions.org Join in the conversation, on the Clubhouse app! Host: Kent Bressler Producer: Jason Nunez