Podcasts about shared decision making

  • 294PODCASTS
  • 515EPISODES
  • 33mAVG DURATION
  • 5WEEKLY NEW EPISODES
  • Sep 16, 2025LATEST
shared decision making

POPULARITY

20172018201920202021202220232024


Best podcasts about shared decision making

Latest podcast episodes about shared decision making

OffScrip with Matthew Zachary
Miss Diagnosed: Sophie Sargent

OffScrip with Matthew Zachary

Play Episode Listen Later Sep 16, 2025 43:24


Sophie Sargent walked into the studio already owning the mic. A pandemic-era media rebel raised in New Hampshire, trained in Homeland Security (yep), and shaped by rejection, she's built a career out of DM'ing her way into rooms and then owning them. At 25, she's juggling chronic illness, chronic overachievement, and a generation that gets dismissed before it even speaks.We talk Lyme disease, Lyme denial, and the healthcare gaslighting that comes when you “look fine” but your body says otherwise. We dive into rejection as a career accelerant, mental health as content porn, and what it means to chase purpose without sacrificing identity. Sophie's a former morning radio host, country music interviewer, and Boston-based creator with a real voice—and she uses it.No fake podcast voice. No daddy-daughter moment. Just two loudmouths from different planets figuring out what it means to be seen, believed, and taken seriously in a system designed to do the opposite.Spoiler: She's smarter than I was at 25. And she'll probably be your boss someday.RELATED LINKSSophie on InstagramSophie on YouTubeSophie on LinkedInMedium article: “Redefining Rejection”See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
The Uncensored, Unapologetic Olivia Battinelli

OffScrip with Matthew Zachary

Play Episode Listen Later Sep 16, 2025 42:55


What happens when you hand a mic to the most extroverted, uncensored Gen Z career coach in New York? You get Olivia Battinelli—adjunct professor, student advisor, mentor, speaker, and unfiltered truth-teller on everything from invisible illness to resume crimes.We talked about growing up Jewish-Italian in Westchester, surviving the Big Four's corporate Kool-Aid, and quitting a job after 7 months because the shower goals weren't working out. She runs NYU Steinhardt's internship program by day, roasts Takis and “rate my professor” trolls by night, and somehow makes room for maple syrup takes, career coaching, and a boyfriend named Dom who sounds like a supporting character from The Sopranos.She teaches kids how to talk to humans. She's allergic to BS. And she might be the most Alexis Rose-meets-Maeve Wiley-mashup ever dropped into your feed. Welcome to her first podcast interview. It's pure gold.RELATED LINKS:Olivia Battinelli on LinkedInOlivia's Liv It Up Coaching WebsiteOlivia on InstagramNYU Steinhardt Faculty PageFEEDBACK:Like this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Keeping Current CME
Considerations for Shared Decision-Making on the Use of Anti-Amyloid Therapies in Clinical Practice

Keeping Current CME

Play Episode Listen Later Sep 12, 2025 27:13


What you need to know to help patients and families decide about amyloid-targeting therapies for early-stage Alzheimer's disease. Credit available for this activity expires: 9/8/26 Earn Credit / Learning Objectives & Disclosures: https://www.medscape.org/viewarticle/1002882?ecd=bdc_podcast_libsyn_mscpedu

OffScrip with Matthew Zachary
Building Tools, Not Excuses: Rethinking Healthcare with Marc Elia

OffScrip with Matthew Zachary

Play Episode Listen Later Sep 9, 2025 37:45


This episode is sponsored by Invivyd, Inc.Marc Elia is a biotech investor, the Chairman of the Board at Invivyd, and a Long COVID patient who decided to challenge the system while still stuck inside it. He's not here for corporate platitudes, regulatory shoulder shrugs, or vaccine-era gaslighting. This is not a conversation about politics, but it's about power and choice and the right to receive care and treatment no matter your condition.In this episode, we cover everything from broken clinical pathways to meme coins and the eternal shame of being old enough to remember Eastern Airlines. Marc talks about what it means to build tools instead of just complaining, what Long COVID has done to his body and his patience, and why the illusion of “choice” in healthcare is a luxury most patients don't have.This conversation doesn't ask for empathy. It demands it.RELATED LINKSMarc Elia on LinkedInInvivyd Company SiteMarc's Bio at InvivydFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
LEAD EP5: Redemption

OffScrip with Matthew Zachary

Play Episode Listen Later Sep 2, 2025 23:56


After years of carrying the weight of lead, Shannon and Cooper find a path out from under the darkness and into the sunlight.LEAD: how this story ends is up to us is an audio docudrama series that tells the true story of one child, his mysterious lead poisoning, and his mother's unwavering fight to keep him safe. A true story written by Shannon Burkett. Directed by Alan Taylor. Starring Merritt Wever, Alessandro Nivola, Cynthia Nixon, and Cooper Burkett.Lead was produced by Shannon Burkett. Co-produced by Jenny Maguire. Featuring Amy Acker, Tom Butler, Dennis T. Carnegie, James Carpinello, Geneva Carr, Dann Fink, Alice Kris, Adriane Lenox, Katie O'Sullivan, Greg Pirenti, Armando Riesco, Shirley Rumierk, Thom Sesma, and Lana Young. Music by Peter Salett. “Joy In Resistance” written by Abena Koomson-Davis and performed by Resistance Revival Chorus. Casting by Alaine Alldaffer and Lisa Donadio. Sound Design by Andy Kris. Recording Engineer Krissopher Chevannes.For corresponding visuals and more information on how to protect children from lead exposure please go to https://endleadpoisoning.org.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Cancer Stories: The Art of Oncology
No Versus Know: Patient Empowerment Through Shared Decision Making

Cancer Stories: The Art of Oncology

Play Episode Listen Later Sep 2, 2025 28:38


Listen to ASCO's JCO Oncology Practice Art of Oncology article, "No Versus Know: Patient Empowerment Through Shared Decision Making” by Dr. Beatrice Preti, who is an Assistant Professor at Emory University. The article is followed by an interview with Preti and host Dr. Mikkael Sekeres. Dr Preti explores the challenges which may prevent oncologists from fully engaging with patients during shared decision making. TRANSCRIPT Narrator: No Versus Know: Patient Empowerment Through Shared Decision Making, by Beatrice T.B. Preti, MD, MMed, FRCPC  During a recent clinic, I saw three patients back-to-back, all from minority backgrounds, all referred for second opinions, all referenced in the notes for being different forms of difficult. Refused chemo, refused hospice, read one note. Refused surgery and chemo, read another, unsure about radiation. Yet, despite the documented refusals (I prefer the term, decline), they had come to my clinic for a reason. They were still seeking something. As an oncologist trained in a program with a strong emphasis on shared decision making between physician and patient, I approach such situations with curiosity. I consider optimal shared decision making a balance between the extremes of (1) providing a patient complete choice from a menu of treatment options, without physician input, and (2) indicating to a patient the best course of treatment, in the eyes of the physician.1 This is a balance between beneficence (which can often turn paternalistic) and patient autonomy and requires a carefully crafted art. Many of my consults start with an open question (Tell me about yourself…?), and we will examine goals, wishes, and values before ever touching on treatment options. This allows me to take the knowledge I have, and fit it within the scaffold of the patient in front of me. A patient emphasizing quantity of life at all costs and a patient emphasizing weekly fishing trips in their boat will receive the same treatment option lists, but with different emphases and discussions around each. Yet, many physicians find themselves tending toward paternalistic beneficence—logical, if we consider physicians to be compassionate individuals who want the best for their patients. All three patients I saw had been offered options that were medically appropriate, but declined them as they felt the options were not right for them. And all three patients I saw ended up selecting a presented option during our time together—not an option that would be considered the best or standard of care, or the most aggressive treatment, but an option that aligned most with their own goals, wishes, and values. This is of particular importance when caring for patients who harbor different cultural or religious views from our own; western medicine adopts many of its ideas and professional norms from certain mindsets and cultures which may not be the lenses through which our patients see the world. Even when a patient shares our personal cultural or religious background, they may still choose a path which differs from what we or our family might choose. It is vital to incorporate reflexivity in our practice, to be mindful of our own blinders, and to be open to different ways of seeing, thinking, and deciding. I will admit that, like many, I do struggle at times when a patient does not select the medically best treatment for themselves. But why? Do we fear legal repercussions or complaints down the road from not giving a patient the standard of care (often the strongest treatment available)? Do we struggle with moral distress when a patient makes a choice that we disagree with, based on values that we ourselves do not hold? Do we lack time in clinics to walk patients through different options, picking the method of counseling that allows the most efficiency in packed clinical systems? Is it too painful a reminder of our mortality to consider that, especially in the setting of terminally ill patients, aiming for anything other than a shot at the longest length of life might be a patient's preference? Or are we so burnt out from working in systems that deny us sufficient choice and autonomy (with regards to our own work, our own morals, and our own lives) that, under such repeated traumas, we lose touch with the idea of even having a choice? I have a number of patients in my clinic who transferred care after feeling caught between one (aggressive) treatment option and best supportive care alone. They come looking for options—an oral agent that allows them to travel, a targeted therapy that avoids immunosuppression, or a treatment that will be safe around dogs and small children. They are looking for someone to listen, to hold their hand, to fill in the gaps, as was told to me recently, and not skirt around the difficult conversations that both of us wish we did not have to have. Granted, some of the conversations are challenging—requests for ivermectin prescriptions, for example, or full resuscitation efforts patients with no foreseeable chance of recovery (from a medical standpoint) to allow for a possible divine miracle. However, in these cases, there are still goals, wishes and values—although ones that are not aligned with evidence-based medical practice that can be explored, even if they are challenging to navigate. As my clinic day went on, I spoke with my patients and their loved ones. One asked the difference between hospice and a funeral home, which explained their reluctance to pursue the former. Another asked for clarification of how one treatment can treat cancer in two different sites. And yet still another absorbed the information they requested and asked to come back another day to speak some more. All questions I have heard before and will continue to hear again. And again. There is no cure for many of the patients who enter my GI medical oncology clinic. But for fear, for confusion, perhaps there is. Cancer wreaks havoc on human lives. Plans go awry, dreams are shattered, and hopes are crushed. But we can afford some control—we can empower our patients back—by giving them choices. Sometimes, that choice is pitiful. Sometimes, it is an explanation why the most aggressive treatment option cannot be prescribed in good faith (performance status, bloodwork parametres), but it is a choice between a gentle treatment and no treatments. Sometimes it is a choice between home hospice and a hospice facility. I teach many of the learners who come through my clinic about the physician's toolbox, and the importance of cultivating the tools of one's specific specialty and area of work. For some (like surgeons), the tools are more tangible—physical skills, or even specific tools, like a particular scalpel or retractor. For others, like radiologists, it might be an ability—to recognize patterns, for example, or detect changes over time. For those of us in medical oncology, our toolbox can feel limiting at times. Although we have a handful of treatments tied to a specific disease site and histology, these often fall short of what we wish we could offer, especially when studies cite average survivals in months over years. But one of our most valuable tools—more valuable, I would argue, than any drug—is the communication we have with our patients, the way we can let them know that someone is there for them, that someone is here to listen, and that someone cares. Furthermore, the information we share—and the way we share it—has the potential to help shape the path that our patient's life will take moving forward—by empowering them with information to allow them to make the decisions best for them.2 Although having such conversations can be difficult and draining for the oncologist, they are a necessary and vital part of the job. My clinic team knows that we can have up to six, seven such conversations in the course of a half-day, and my clinic desk space is equipped for my between-patient routine of sips of tea and lo-fi beats, a precious few moments left undisturbed as much as possible to allow a bit of recharging. By finding a safe space where I can relax for a few moments, I can take care of myself, enabling me to give each of my patients the time and attention they need. When patients thank me after a long, difficult conversation, they are not thanking me for sharing devastating, life-altering news of metastatic cancer, prognoses in the order of months, or disease resistant to treatment. They are thanking me for listening, for caring, for seeing them as a person and affording the dignity of choice—autonomy. I have had patients make surprising decisions—opting for no treatment for locally-advanced cancers, or opting for gentle treatment when, medically, they could tolerate stronger. But by understanding their values, and listening to them as people, I can understand their choices, validate them, and help them along their journey in whatever way possible. Providing a choice affords a suffering human the right to define their path as long as they are able to. And we can give patients in such situations support and validation by being a guide during dark days and challenging times, remembering that medically best treatment is not always the best. When a patient says no to offered options, it does not (necessarily!) mean they are rejecting the expertise of the physician and care team. Rather, could it be a request to know more and work together with the team to find a strategy and solution which will be meaningful for them?   Mikkael Sekeres: Welcome back to JCO's Cancer Stories: The Art of Oncology. This ASCO podcast features intimate narratives and perspectives from authors exploring their experiences in oncology. I'm your host, Mikkael Sekeres. I'm Professor of Medicine and Chief of the Division of Hematology at the Sylvester Comprehensive Cancer Center, University of Miami. Today we're joined by Beatrice Preti, Assistant Professor at Emory University, Adjunct Professor at Western University, and PhD candidate with Maastricht University, to discuss her JCO Oncology Practice article, "No Versus Know: Patient Empowerment Through Shared Decision-Making." At the time of this recording, our guest has no disclosures. Beatrice, thank you so much for contributing to JCO Oncology Practice and for joining us to discuss your article. Beatrice Preti: Well, thank you so much for having me today. Mikkael Sekeres: It's an absolute treat. I was wondering if we could start with sort of a broad question. Can you tell us about yourself? What was your journey like that landed you where you are right now? Beatrice Preti: Oh goodness, that's a very loaded question. Well, I am originally from Canada. I did all my training in Canada at a couple of different schools, McMaster, Queens, Western University. Before medicine, I was always interested in the arts, always interested in writing, always interested in teaching. So that's something that's really, I guess, come forth throughout my medical practice. During my time at Western, I trained as a gastrointestinal medical oncologist, so that's my clinical practice. But on the side, as you've noted, I've done some work in medical education, got my Masters through Dundee, and now doing my PhD through Maastricht in the Netherlands, which I'm very excited about. Mikkael Sekeres: That's fantastic. What's your PhD in? Beatrice Preti: Health Professions Education. Mikkael Sekeres: Wonderful - can never get too much of that. And can I ask, are you at the stage now where you're developing a thesis and what's the topic? Beatrice Preti: Yeah, absolutely. So the program itself is almost exclusively research based. So I'm thinking of more of a social psychology side, looking at impression management and moral distress in medical trainees, and really along the continuum. So what we're looking at is when people act in ways or feel that they have to act in ways that aren't congruent with what they're feeling inside, why they're doing that and some of the moral tensions or the moral conflicts that go along with that. So a good example in medicine is when you're with a patient and you have to put on your professional face, but inside you might be squirming or you might be scared or worried or anxious or hungry, but you can't betray that with the patient because that would be unprofessional and also unfair to the patient. Mikkael Sekeres: Wow, that's absolutely fascinating. How does that change over the course of training? So how does it change from being a medical student to a resident or fellow to a junior faculty member? Beatrice Preti: So I'm only one year into the PhD, so I don't have all the information on this as yet. Mikkael Sekeres: You don't have all the answers yet? What are you talking about? Beatrice Preti: Yeah, they're telling me I have to finish the PhD to get all the answers, but I think that we certainly are seeing some kind of evolution, maybe both in the reasons why people are engaging in this impression management and the toll it takes on them as well. But stay tuned. It might take me a couple of years to answer that question in full. Mikkael Sekeres: Well, I just wonder as a, you know, as a medical student, we go into medical school often for reasons that are wonderful. I think almost every essay for somebody applying to medical school says something about wanting to help people, right? That's the basis for what draws us into medicine. And I wonder if our definition of what's morally right internally changes as we progress through our training. So something that would be an affront to our moral compass when we start as a medical student may not be such an affront later on when we're junior faculty. Beatrice Preti: Yes, definitely. And I think there's a lot of literature out there about coping in the medical profession because I think that by and large, especially in the lay community, so premedical students, for example, but even within our own profession as well, we don't really give enough credence to the impact a lot of the things that we do or witness have on us personally. That lack of insight doesn't allow us to explore coping mechanisms or at least think things through, and oftentimes what we're seeing is a survival instinct or a gut reaction kick in rather than something that we've carefully thought through and said, you know, “These situations are stressful for me, these situations are difficult. How can I cope? How can I make this more sustainable for me, knowing that this is an aspect of medicine that really isn't escapable.” Mikkael Sekeres: What a fascinating topic and area to be studying. I can't wait for all of the findings you're going to have over the course of your career. But oncology is a field that's, of course, rife with these sorts of conflicts. Beatrice Preti: Yeah, definitely. Mikkael Sekeres: I'm curious if you can talk a little bit about your own story as a writer. You say you've always been a writer. How long have you been writing reflective pieces? Beatrice Preti: Oh, goodness. So there's certainly a difference between how long I've been writing reflective pieces and how long I've been writing good reflective pieces. I can vaguely remember, I think being perhaps 10 years old and writing in school one recess period, sort of both sides of a loose leaf piece of paper, some form of reflection that would have ended up straight in the rubbish bin. So that was probably when it started. Certainly in medical school, I published a fair bit of reflective writing, poetry. That continued through residency, now as a junior attending as well. Mikkael Sekeres: Well, you're excellent at it and I can't see any rubbish can that would accept your pieces for the future. If you feel comfortable doing so, can you tell us what prompted you to write this particular piece? Beatrice Preti: Yes. So this piece was written Friday night around 9:00, 10:00 at night, literally at the end of the clinic day that I described. Coming on the heels of talking about coping, I think for many people in medicine, writing is a coping mechanism and a coping strategy that can be quite fruitful and productive, especially when we compare it to other potential coping strategies. Sometimes it's certainly difficult to write about some of the things we see and certainly it's difficult sometimes to find the words. But on this particular night, the words came quite easily, probably because this is not an isolated incident, unfortunately, where we're seeing patients coming for second opinions or you're encountering patients or you're encountering people who you are not directly treating in your everyday life, who express frustrations with the health care system, who express frustrations with not feeling heard. I think all you have to do is open social media, Facebook, Reddit, and you'll see many, many examples of frustrated individuals who felt that they weren't heard. And on one hand, I'm not naive enough to think that I've never left a patient encounter and had that patient not feeling heard. I'm guilty of many of the same things. Sometimes it's nothing that we've done as physicians, it's just you don't develop a rapport with the patient, right? But it made me think and it made me wonder and question, why is there this mismatch? Why are there so many patients who come seeking someone who listens, seeking a solution or a treatment that is maybe not standard, but might be a better fit for them than the standard? As you know, oncology is very algorithmic, and certainly, as many of the the fellows and residents who come into my clinic learn, yes, there are guidelines and yes, there are beautiful flow charts that teach us if you have this cancer, here's the treatment. But for me, that's only half of the practice of oncology. That's the scientific side. We then have the art side, which involves speaking to people, listening to them, seeing them as people, and then trying to fit what we're able to do, the resources we have, with what the patient's goals are, with their wishes or desires are. Mikkael Sekeres: I completely agree with you. I think sometimes patients come to our clinics, to an examination room, and they look at it as a place to be heard, and sometimes a safe space. You'll notice that, if you've been practicing long enough, you'll have some couples who come in and one of our patients will say something and the partner will reflect and say, "Gee, I never heard you say that before. I never knew that." So if people are coming in expecting to be heard in a safe space, it's almost nowhere more important to do that when it comes to treating their cancer also. Beatrice Preti: Yes. And as I say again to many of our learners, different specialties have different tools to treat or help alleviate sickness, illness, and suffering. For example, a surgeon has quite literal tools. They have their hands, they have their eyes, they're cutting, they're performing procedures. By and large, especially in medical oncology, we are quite limited. Certainly I have medications and drugs that I can prescribe, but in the world of GI oncology, often these are not going to lead to a cure. We are talking about survival in the order of months, maybe a year or two if we're very lucky. So the tool that we have and really the biggest, best treatment that we can give to our patients is our words and our time, right? It's those conversations that you have in clinic that really have the therapeutic benefit or potential for someone who is faced with a terminal illness and a poor prognosis more so than any drug or chemotherapy that I can give as a physician. Mikkael Sekeres: I love the notion that our words and our time are our tools for practicing medicine. It's beautiful. You mentioned in your essay three patients who, quote, and you're very deliberate about using the quote, "refused" because it's a loaded term, "refused" recommended medical intervention such as chemotherapy or surgery. Can you tell us about one of them? Beatrice Preti: Ah, well, I would have to be quite vague. Mikkael Sekeres: Of course, respecting HIPAA, of course. We don't want to violate anything. Beatrice Preti: But I think that was another thing too on this day that struck me quite a bit that it was three patients back to back with very similar stories, that they had been seen at other hospitals, they had been seen by other physicians - in one case, I think a couple of different physicians - and had really been offered the choice of, “Here is the standard of care, here is what the guidelines suggest we do, or you can choose to do nothing.” And certainly in the guidelines or in recommended treatment, you know, doublet chemotherapy, triplet therapy, whatever the case may be, this is what's recommended and this is what's standard. But for the patient in front of you, you know, whose goal may be to go to the beach for two months, right? “I don't want to be coming back and forth to the cancer center. Can I take a pill and maybe get blood work a few times while I'm there?” Or you have a patient who says, “You know, I tried the chemotherapy, I just can't do it. It's just too strong. And now they've told me I have to go to hospice if I'm not going to take the recommended treatment.” While in the guideline this may be correct for this patient who's in front of you, there may be another option which is more, in quotes, “correct”, because, is our goal to kill as many cancer cells as we can? Is our goal to shrink the cancer as much as we can? Is our goal even to eke out the maximum survival possible? As an oncologist, I would say no. Our goal is to try to line up what we can do, so the tools, the medications, the chemotherapies, the drugs that we do have in our tool kit, and the symptom medications as well, and line those up with what the patient's goals are, what the patient's wishes are. For many people, I find, when faced with a terminal illness, or faced with an illness with poor prognosis, their goal is not to eke out the last breath possible. They start to look at things like quality of life. They start to look at things like hobbies or travel or spending time with family. And oftentimes, the best way to facilitate that is not by doing the most aggressive treatment. Mikkael Sekeres: In my memory, you evoke an essay that was written for JCO's Art of Oncology by Tim Gilligan called "Knuckleheads" where he had a patient who was, big quotes, "refusing" chemotherapy for a curable cancer. And one of his colleagues referred to the patient as a knucklehead and they asked Tim to see the patient to try to suss out what was going on. And Tim, he used one of our tools. He talked to the person and it turns out he was a seasonal construction worker and it was summer and he was a single dad where the mother of his children wasn't involved in their care at all. And the only way he had to make money during the year was the work he did during the summer because he couldn't work in the winter. So for very primal reasons, he needed to keep working and couldn't take time to take chemotherapy. So they were able to negotiate a path forward that didn't compromise his health, but also didn't compromise his ability to make a living to support his family. But again, like you say, it's that people bring to these interactions stories that we can't even imagine that interfere with our recommendations for how they get cared for. Beatrice Preti: That's a beautiful example of something that I really do try to impress on my learners and my team in general. When someone comes to you and if a recommendation is made or even if they are skeptical about a certain treatment pathway, there is always a ‘why'. One of the challenges and one of the things that comes with experience is trying to uncover or unveil what that ‘why' is because unless you address it and address it head on, it's going to be very difficult to work with it, to work with the patient. So as you said, it's common people have family obligations, job obligations. Oftentimes as well, they have personal experience with certain treatments or certain conditions that they're worried about. Perhaps they had a loved one die on chemotherapy and they're worried about toxicities of chemo. And sometimes you can talk through those things. That needs to be considered, right? When we talk about shared decision-making, you, the patient, and it might be an experience that the patient has had as well that are all in the room that need to be taken into account. Mikkael Sekeres: You invoke the phrase "shared decision-making," which of course, you talk about in your essay. Can you define that for our listeners? What is shared decision-making? Beatrice Preti: Oh, goodness. There are different definitions of this and I am just cringing now because I know that my old teachers will not be happy regardless of what definition I choose. But for me, shared decision-making means that the decision of what to do next, treatment along the cancer journey, etc., is not decided by only one person. So it is not paternalism where I as the physician am making the decision. However, it's not the patient unilaterally making their own decision as well. It's a conversation that has to happen. And oftentimes when I'm counseling patients, I will write down what I see as potential treatment options for this patient and we will go through them one by one with pros and cons. This is usually after an initial bit where I get to know the patient, I ask them what's important to them, who's important in their life, what kind of things do they enjoy doing, and trying to weave that into the counseling and the discussion of the pros and cons. Ultimately, the patient does make the choice, but it's only after this kind of informed consent or this informative process, I guess, so to speak. And for me, that is shared decision-making where it's a conversation that results in the patient making a decision at the end. Mikkael Sekeres: You know, it's so funny you use the word ‘conversation'. I was going to say that shared decision-making implies a conversation, which is one of the reasons I love it. It's not a monologue. It's not just us listening. It's a back and forth until you know, we figure each other out. Beatrice Preti: Yes. Mikkael Sekeres: I wonder if I could ask you one more question. In your essay, you ask the question, "Do we struggle with moral distress when a patient makes a choice that we disagree with based on values that we ourselves do not hold?" Do you think you can answer your own question? Beatrice Preti: So this is getting to my academic work, and my PhD work that we spoke a little bit about in the beginning. I think it's something that we need to be mindful of. Certainly in my training, certainly when I was less experienced, there would be a lot of moral distress because we are not all clones of each other. We are people, but we have our own beliefs, we have our own backgrounds, we have our own experiences. There are times when people, and not just in medicine, but certainly in medicine, certainly patients make decisions that I don't quite understand because they are so different from what I would make or what I would choose for myself or for a family member. On the flip side, I think I've gotten myself, and I've had enough experience at this point in my career, to be able to separate that and say, you know, “But this is someone who has clearly thought things through and based on their own world view, their own perspectives, their own life experiences, this is the choice that's best for them.” And that's certainly something that I can support and I can work with a patient on. But it takes time, right? And it takes very deliberate thought, a lot of mindfulness, a lot of practice to be able to get to that point. Mikkael Sekeres: Well, I think that's a beautiful point to leave off with here. We've been talking to Beatrice Preti, who is an assistant professor at Emory University and an adjunct professor at Western University, and a PhD candidate with Maastricht University to discuss her JCO Oncology Practice article, "No Versus Know: Patient Empowerment Through Shared Decision-Making." Beatrice, thank you so much for joining me today. Beatrice Preti: Absolutely. Mikkael Sekeres: If you've enjoyed this episode, consider sharing it with a friend or a colleague or leave us a review. Your feedback and support helps us continue to have these important conversations. If you're looking for more episodes and context, follow our show on Apple, Spotify, or wherever you listen, and explore more from ASCO at asco.org/podcasts. Until next time, this has been Mikkael Sekeres for JCO Cancer Stories: The Art of Oncology. The purpose of this podcast is to educate and to inform. This is not a substitute for professional medical care and is not intended for use in the diagnosis or treatment of individual conditions. Guests on this podcast express their own opinions, experience, and conclusions. Guest statements on the podcast do not express the opinions of ASCO. The mention of any product, service, organization, activity, or therapy should not be construed as an ASCO endorsement. Show Notes: Like, share and subscribe so you never miss an episode and leave a rating or review. Guest Bio: Dr Beatrice Preti is an Assistant Professor at Emory University Additional Material: Knuckleheads, by Dr Timothy Gilligan and accompanied podcast episode.  

OffScrip with Matthew Zachary
LEAD EP4: The Long Haul

OffScrip with Matthew Zachary

Play Episode Listen Later Aug 26, 2025 19:10


The deficits from the lead poisoning continue to intensify, Shannon channels her anger and grief into holding the people who hurt her son responsible.LEAD how this story ends is up to us is a true story written and produced by Shannon Burkett. Co-produced by Jenny Maguire. Directed by Alan Taylor. Starring Merritt Wever, Alessandro Nivola, Cynthia Nixon, and Cooper Burkett.EP4 features Eboni Booth, Sasha Eden, Kevin Kane, April Matthis, Alysia Reiner, and Mandy Siegfried. Casting by Alaine Alldaffer and Lisa Donadio. Music by Peter Salett. Sound Design by Andy Kris. Recording Engineer Krissopher Chevannes.For corresponding visuals and more information on how to protect children from lead exposure please go to https://endleadpoisoning.org.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
LEAD EP3: Fraying at the Edges

OffScrip with Matthew Zachary

Play Episode Listen Later Aug 19, 2025 22:32


The effects of the neurotoxin are taking their toll on Cooper as Shannon desperately tries to navigate the severity of their new reality.LEAD how this story ends is up to us is a true story written and produced by Shannon Burkett. Co-produced by Jenny Maguire. Directed by Alan Taylor. Starring Merritt Wever, Alessandro Nivola, Cynthia Nixon, and Cooper Burkett.E43 features Jenny Maguire, JD Mollison, Laith Nakli, Deirdre O'Connell, Carolyn Baeumler, Zach Shaffer, and Monique Woodley. Casting by Alaine Alldaffer and Lisa Donadio. Music by Peter Salett. Sound Design by Andy Kris. Recording Engineer Krissopher Chevannes.For corresponding visuals and more information on how to protect children from lead exposure please go to https://endleadpoisoning.org.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
LEAD EP2 : Stop the Spiral

OffScrip with Matthew Zachary

Play Episode Listen Later Aug 12, 2025 11:30


As the lead wreaks havoc on Cooper's development, Shannon searches for answers. Desperate to get a handle on what was happening to her son, she grabs onto a lifeboat - nursing school. Andy tries to piece together the past to make sense of the present.LEAD how this story ends is up to us is a true story written and produced by Shannon Burkett. Co-produced by Jenny Maguire. Directed by Alan Taylor. Starring Merritt Wever, Alessandro Nivola, Cynthia Nixon, and Cooper BurkettEP2 features Keith Nobbs and Frank Wood. Music by Peter Salett. Sound Design by Andy Kris. Recording Engineer Krissopher Chevannes. Casting by Alaine Alldaffer and Lisa Donadio.For corresponding visuals and more information on how to protect children from lead exposure please go to https://endleadpoisoning.org.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
LEAD EP1: The Monster in the Walls

OffScrip with Matthew Zachary

Play Episode Listen Later Aug 5, 2025 22:39


A mysterious dust fills a young family's apartment. The truth begins to unravel when the mother gets a call from the pediatrician - the monster deep within the walls has been unleashed. LEAD how this story ends is up to us is a true story written and produced by Shannon Burkett. Co-produced by Jenny Maguire. Directed by Alan Taylor. Starring Merritt Wever, Alessandro Nivola, Cynthia Nixon, and Cooper Burkett. EP1 features Zak Orth, Jenny Maguire, Daphne Gaines, and Micheal Gaston. Music by Peter Salett. Sound Design by Andy Kris. Recording Engineer Krissopher Chevannes. Casting by Alaine Alldaffer and Lisa Donadio.For corresponding visuals and more information on how to protect children from lead exposure please go to https://endleadpoisoning.org.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Targeted Talks
S7 Ep1: Advancing Prostate Cancer Treatment With Shared Decision-Making

Targeted Talks

Play Episode Listen Later Jul 31, 2025 24:47


In our first episode of Treating Together, Benjamin Garmezy, MD, and Ralph J. Miller Jr, MD, discuss multidisciplinary prostate cancer care.

OffScrip with Matthew Zachary
Meet My Grief: Notes from an Orphaned Teen

OffScrip with Matthew Zachary

Play Episode Listen Later Jul 29, 2025 43:41


Lexi Silver is 15 years old. She lost both of her parents before she turned 11. That should tell you enough—but it doesn't. Because Lexi isn't here for your pity. She's not a sob story. She's not a trauma statistic. She's a writer, an advocate, and one of the most emotionally intelligent people you'll ever hear speak into a microphone.In this episode, Lexi breaks down what grief actually feels like when you're a kid and the adults around you just don't get it. She talks about losing her mom on Christmas morning, her dad nine months later, how the system let her down, and how Instagram trolls tell her she's faking it for attention. She also explains why she writes, what Experience Camps gave her, how she channels anger into poems, and what to say—and not say—to someone grieving.Her life isn't a Netflix drama. But it should be.And by the way, she's not “so strong.” She's just human. You'll never forget this conversation.RELATED LINKS• Lexi on Instagram: @meet.my.grief• Buy her book: The Girl Behind Grief's Shadow• Experience CampsFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
The Cancer Fun House: Michele Andrews

OffScrip with Matthew Zachary

Play Episode Listen Later Jul 22, 2025 41:39


Michelle Andrews built a career inside the pharma machine long before anyone knew what “DTC” meant. She helped launch Rituxan and watched Allegra commercials teach America how to ask for pills by name. Then she landed in the cancer fun house herself, stage 4 breast cancer, and learned exactly how hollow all the “journey” slide decks feel when you're the one circling the drain.We talk about what happens when the insider becomes the customer, why pill organizers and wheat field brochures still piss her off, and how she fired doctors who couldn't handle her will to live. You'll hear about the dawn of pharma advertising, the pre-Google advocacy hustle, and what she wants every brand team to finally admit about patient experience.If you've ever wondered who decided windsurfing was the best way to sell allergy meds—or what happens when you stop caring if you make people uncomfortable—listen up.RELATED LINKSMichelle Andrews on LinkedInTrinity Life Sciences – Strategic AdvisoryJade Magazine – Ticking Time Bombs ArticleNIHCM Foundation – Breast Cancer StoryFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

PeerVoice Oncology & Haematology Video
Solange Peters, MD, PhD - Partnering With Patients: Shared Decision-Making in Locally Advanced, Unresectable EGFR-Mutated Non-Small Cell Lung Cancer

PeerVoice Oncology & Haematology Video

Play Episode Listen Later Jul 21, 2025 30:01


Solange Peters, MD, PhD - Partnering With Patients: Shared Decision-Making in Locally Advanced, Unresectable EGFR-Mutated Non-Small Cell Lung Cancer

PeerVoice Oncology & Haematology Audio
Solange Peters, MD, PhD - Partnering With Patients: Shared Decision-Making in Locally Advanced, Unresectable EGFR-Mutated Non-Small Cell Lung Cancer

PeerVoice Oncology & Haematology Audio

Play Episode Listen Later Jul 21, 2025 30:01


Solange Peters, MD, PhD - Partnering With Patients: Shared Decision-Making in Locally Advanced, Unresectable EGFR-Mutated Non-Small Cell Lung Cancer

PeerVoice Heart & Lung Audio
Solange Peters, MD, PhD - Partnering With Patients: Shared Decision-Making in Locally Advanced, Unresectable EGFR-Mutated Non-Small Cell Lung Cancer

PeerVoice Heart & Lung Audio

Play Episode Listen Later Jul 21, 2025 30:01


Solange Peters, MD, PhD - Partnering With Patients: Shared Decision-Making in Locally Advanced, Unresectable EGFR-Mutated Non-Small Cell Lung Cancer

PeerVoice Heart & Lung Video
Solange Peters, MD, PhD - Partnering With Patients: Shared Decision-Making in Locally Advanced, Unresectable EGFR-Mutated Non-Small Cell Lung Cancer

PeerVoice Heart & Lung Video

Play Episode Listen Later Jul 21, 2025 30:01


Solange Peters, MD, PhD - Partnering With Patients: Shared Decision-Making in Locally Advanced, Unresectable EGFR-Mutated Non-Small Cell Lung Cancer

OffScrip with Matthew Zachary
D.A.M.M. Good Trouble: Ann Marie Morse

OffScrip with Matthew Zachary

Play Episode Listen Later Jul 15, 2025 43:12


Dr. Anne Marie Morse walks into the studio like a one-woman Jersey Broadway show and leaves behind the best damn TED Talk you've never heard. She's a neurologist, sleep medicine doc, narcolepsy expert, founder of D.A.M.M. Good Sleep, and full-time myth buster in a white coat. We talk about why sleep isn't a luxury, why your mattress does matter, and how melatonin is the new Flintstones vitamin with a marketing budget. We unpack the BS around sleep hygiene, blow up the medical gaslighting around “disorders,” and dig into how a former aspiring butterfly became one of the loudest voices for patient-centered science. Also: naps, kids, burnout, CPAPs, co-sleeping, airport pods, the DeLorean, and Carl Sagan. If you think you're getting by on five hours of sleep and vibes, you're not. This episode will make you want to take a nap—and then call your doctor.RELATED LINKSdammgoodsleep.com: https://www.dammgoodsleep.comLinkedIn: https://www.linkedin.com/in/anne-marie-morse-753b2821/Instagram: https://www.instagram.com/dammgoodsleepDocWire News Author Page: https://www.docwirenews.com/author/anne-marie-morseSleep Review Interview: https://sleepreviewmag.com/practice-management/marketing/word-of-mouth/sleep-advocacy-anne-marie-morse/Geisinger Bio: https://providers.geisinger.org/provider/anne-marie-morse/756868SWHR Profile: https://swhr.org/team/anne-marie-morse-do-faasm/FEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
The Elastic Life of Gigi Robinson

OffScrip with Matthew Zachary

Play Episode Listen Later Jul 8, 2025 46:02


Gigi Robinson grew up with Ehlers-Danlos syndrome, a disease that turns your joints into overcooked spaghetti. Instead of letting it sideline her, she built a career out of telling the truth about invisible illness. We talk about what it takes to grow up faster than you should, why chronic illness is the worst unpaid internship, and how she turned her story into a business. You'll hear about her days schlepping to physical therapy before sunrise, documenting the sterile absurdity of waiting rooms, and finding purpose in the mess. Gigi's not interested in pity or polished narratives. She wants you to see what resilience really looks like, even when it's ugly. If you think you know what an influencer does, think again. This conversation will challenge your assumptions about work, health, and what it means to be seen.RELATED LINKSGigi Robinson Website: https://www.gigirobinson.comLinkedIn: https://www.linkedin.com/in/gigirobinsonInstagram: https://www.instagram.com/itsgigirobinsonTikTok: @itsgigirobinsonA Kids Book About Chronic Illness: https://akidsco.com/products/a-kids-book-about-chronic-illnessFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

HeartBEATS from Lifelong Learning™
Effective Communication Strategies: Diagnosis, Shared Decision-Making, and Follow-Up

HeartBEATS from Lifelong Learning™

Play Episode Listen Later Jul 8, 2025 22:46


Experts discuss effective communication strategies to empower patients of their options, set realistic expectations, and guide them towards informed decisions. Claim CE and MOC Credits at https://bit.ly/VTEComm

Roadmap to Secure Love
Episode 36-Work out the Knots Before You Tie the Knot for Marriage

Roadmap to Secure Love

Play Episode Listen Later Jul 8, 2025 16:15


In today's episode of the Roadmap to Secure Love podcast, we dive deep into the real-life challenges couples face around shared decision making—from everyday choices to major life transitions and even moments of intimacy. Hosts Kim and Kyle explore how traditional power dynamics, cultural and faith backgrounds, and unspoken expectations can leave one or both partners feeling unheard, disconnected, or resentful.You'll hear why simply “checking the box” or putting one partner's needs first isn't enough for a healthy, fulfilling relationship. Instead, true connection happens when both voices are valued, vulnerability is welcomed, and decisions are made together—whether about family, finances, or the bedroom.Key Takeaways:Why shared decision making is the foundation of secure loveHow gender roles and cultural messages can undermine intimacyThe risks of caretaking and “going through the motions”The power of voicing your needs and desiresStrategies to move from power struggles to partnershipHow to slow down and talk about what really matters in decision momentsFollow The Roadmap to Secure Love on Apple, Spotify, and YouTube. Until next time, stay connected and love fully. ❤️ Additional Resources for You: Take the free Attachment Style Quiz to discover your attachment style today!Sign up for the Secure Attachment Path to foster deep, secure connections within your relationships.

The Menopause and Cancer Podcast
Episode 172 - It's Not HRT or Herbal – It's What Works for You

The Menopause and Cancer Podcast

Play Episode Listen Later Jul 2, 2025 29:13


Episode 172 - It's Not HRT or Herbal – It's What Works for YouIn today's episode, I'm doing something a little different. I've pulled together five short clips from past episodes of The Menopause and Cancer Podcast — covering everything from HRT after breast cancer, to herbal treatments, sleep support, and even intimacy after cancer.Why? Because this week, my book Navigating Menopause After Cancer is officially at the printers — and I still can't quite believe it! I wanted to share a little preview of what's inside. These clips reflect the heart of the book: a holistic menopause after cancer toolkit with real expert advice, real options, and the belief that no one approach is better than another. It's about finding what's safe, what's effective, and what works for you.I always go to the right expert for the right topic — because that's how we build truly trustworthy knowledge. I wouldn't ask a cancer exercise specialist to talk about herbs, and I wouldn't ask a herbalist about surgical recovery. Each voice in today's mash-up speaks from the experience in their field.These are just a few of the amazing contributors to the podcast — and I'm proud to say that over 20 brilliant doctors and specialists contributed to the actual book.Below, I have linked all the full YouTube videos from the short clips. Just click on the words: Exercise, Herbal Medicine, Sleep, HRT after breast cancer, IntimacyAnd finally, you can buy a copy of Navigating Menopause After Cancer super soon - keep your eyes peeled!Episode Highlights:00:00 Intro05:53 "Exercise Boosts Sleep, Reduces Depression"07:54 Herbal Medicine Insights for Cancer Survivors10:55 Phytoestrogens: Potential Cancer Benefits13:49 "Zoe's Sleep Improvement Tips"18:37 Navigating HRT Conversations After Cancer22:55 Shared Decision-Making in HRT27:21 Challenging Emotional Complexity Perceptions Connect with us:For more information and resources visit our website: www.menopauseandcancer.org Or follow us on Instagram @menopause_and_cancerJoin our Facebook group: www.facebook.com/groups/menopauseandcancerchathub

OffScrip with Matthew Zachary
The Bronx Bleeds Blue: Vanessa Ghigliotty vs. Everyone

OffScrip with Matthew Zachary

Play Episode Listen Later Jul 1, 2025 49:41


Episode Description:If you've ever wondered what happens when a Bronx-born pediatric nurse with stage 4 colon cancer survives, raises a kid, becomes a policy shark, and fights like hell for the ignored, meet Vanessa Ghigliotty. She's not inspirational. She's a bulldozer. We go way back—like pre-Stupid Cancer back—when there was no “young adult cancer movement,” just a handful of pissed-off survivors building something out of nothing. This episode is personal. Vanessa and I built the plane while flying it. She fought to be heard, showed up in chemo dragging her kid to IEP meetings, and never stopped screaming for the rest of us to get what we needed. We talk war stories, progress, side-eyeing advocacy fads, TikTok activism, gatekeeping, policy wins, and why being loud is still necessary. And yeah—she's a damn good mom. Probably a better one than you. You'll laugh. You'll cry. You'll want to scream into a pillow. Come for the nostalgia. Stay for the righteous anger and iced coffee.RELATED LINKSVanessa on LinkedInColorectal Cancer Alliance: Vanessa's StoryZenOnco Interview with VanessaFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Keeping Current
Shared Decision-Making in Epilepsy Today

Keeping Current

Play Episode Listen Later Jun 30, 2025 51:42


How do you talk to patients about conception, risks to offspring during epilepsy treatment, mortality, lifestyle and brain health? Credit available for this activity expires: 6/27/26 Earn Credit / Learning Objectives & Disclosures: https://www.medscape.org/viewarticle/1002600?ecd=bdc_podcast_libsyn_mscpedu

OffScrip with Matthew Zachary
Ask Better Questions or Die Trying: Risa Arin

OffScrip with Matthew Zachary

Play Episode Listen Later Jun 24, 2025 39:21


Risa Arin doesn't just talk about health literacy. She built the damn platform. As founder and CEO of XpertPatient.com (yes, expert with no E), Risa's taking a wrecking ball to how cancer education is delivered. A Cornell alum, cancer caregiver, and ex-agency insider who once sold Doritos to teens, she now applies that same marketing muscle to helping patients actually understand the garbage fire that is our healthcare system. We talk about why she left the “complacent social safety” of agency life, how her mom unknowingly used her own site during treatment, what it's like to pitch cancer education after someone pitches warm cookies, and why healthcare should come with a map, a translator, and a refund policy. Risa brings data, chutzpah, and Murphy Brown energy to the conversation—and you'll leave smarter, angrier, and maybe even a little more hopeful.RELATED LINKS• XpertPatient.com• Risa Arin on LinkedIn• XpertPatient & Antidote Partnership• XpertPatient Featured on KTLA• 2024 Health Award BioFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

On the Way UP
Jenneh Rishe: Part of You, Not All of You - Life with Endometriosis & Chronic Illness

On the Way UP

Play Episode Listen Later Jun 18, 2025 42:39


In this episode of The Women on Top, Valerie Lynn speaks with Jenneh Rishe, a registered nurse and chronic illness advocate, about her journey with endometriosis and the challenges of receiving a proper diagnosis. Jenneh shares her experiences with the medical system, the lack of awareness surrounding women's health issues, and the importance of advocacy.  They discuss the broader implications of endometriosis on overall health, mental health, and identity, as well as provide advice for those who suspect they may have the condition. In this conversation, Jenneh Rishe shares her journey through chronic illness and the importance of self-advocacy in healthcare.  She emphasizes the need for persistence in seeking answers, effective communication with healthcare providers, and the value of shared decision-making. Jenneh discusses the therapeutic benefits of journaling and the hope she finds in advancements in medicine.  She encourages women to trust their bodies and validate their experiences, reminding them that they are not alone in their struggles.Chapters00:00 Introduction to Chronic Illness Advocacy01:44 The Journey to Diagnosis08:22 Lack of Awareness in Women's Health10:56 Understanding Endometriosis Beyond Gynecology13:14 The Impact of Endometriosis on Overall Health15:03 Mental Health and Identity After Diagnosis17:45 Advice for Those Suspecting Endometriosis21:38 The Importance of Persistence in Health Advocacy22:44 Navigating the Healthcare System: A Patient's Role24:56 Effective Communication with Healthcare Providers26:00 Shared Decision Making in Healthcare30:46 Journaling as a Tool for Mental Health33:41 The Journey of Writing and Future Aspirations36:14 Finding Hope in Chronic Illness39:24 Empowering Women to Trust Their BodiesConnect with Jenneh: Website: https://www.jennehrishe.com/aboutThe Endo Co: https://www.theendo.co/Instagram: https://www.instagram.com/lifeabove_illness/?hl=enConnect with Us: Follow The Women On Top Podcast on Apple, Spotify or anywhere you get your podcasts and Subscribe for more empowering conversations and stories! The Women On Top on YouTube The Women On Top on Instagram The Women On Top on LinkedIn

O&P Rising
Shared Decision Making and Patient Empowerment in O&P

O&P Rising

Play Episode Listen Later Jun 18, 2025 24:17


In this episode, guest host Molly Winget, CO and prosthetic resident at Boston O&P, talks with Chelsey Anderson, Pediatrics Research Fellow at Cincinnati Children's Hospital, about the critical role of shared decision making in prosthetic and orthotic care. They explore the difference between simply offering choices and genuinely involving patients and families in the care process. The conversation also highlights the value of evidence-based practice and offers practical tips for new clinicians to incorporate shared decision making, even when facing time pressures or limited experience.   O&P Rising is produced by Association Briefings.

OffScrip with Matthew Zachary
Pediatric Engineering for the Rest of Us: Dr. Jamie Wells

OffScrip with Matthew Zachary

Play Episode Listen Later Jun 17, 2025 39:48


Dr. Jamie Wells is back—and this time, she brought a book. We cover everything from biomedical design screwups to the glorified billing software known as the EHR. Jamie's new book, A Clinical Lens on Pediatric Engineering, is a masterclass in what happens when you stop treating kids like small, drunk adults and start designing medicine around actual human factors. We talk about AI in pediatric radiology, why drug repurposing might save lives faster than biotech IPOs, and the absurdity of thinking one-size-fits-all in healthcare still works.Jamie's a former physician, a health policy disruptor, a bioethicist, an MIT director, and a recovering adjunct professor. She's also a unicorn. We dig into the wonk, throw shade at bad design, and channel our inner Lisa Simpsons. This one's for anyone who ever wondered why kids' hospitals feel like hell and why “make it taste like bubblegum” might be the most important clinical innovation of all time. You'll laugh, you'll learn, and you might get angry enough to fix something.RELATED LINKSJamie Wells on LinkedInBook: A Clinical Lens on Pediatric Engineering (Amazon)Book on SpringerDrexel BioMed ProfileGlobal Blockchain Business CouncilJamie's HuffPost ArticlesFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
Pinky Swear: Erica Campbell and The Wanted Mastectomy

OffScrip with Matthew Zachary

Play Episode Listen Later Jun 10, 2025 40:59


Erica Campbell walked away from corporate life, took a hard left from the British Embassy, and found her calling writing checks for families nobody else sees. As Executive Director of Pinky Swear Foundation, she doesn't waste time on fluff. Her team pays rent, fills gas tanks, and gives sick kids' parents the one thing they don't have—time. Then, breast cancer hit her. She became the patient. Wrote a book about it. Didn't sugarcoat a damn thing. We talk about parking fees, grief, nonprofit burnout, and how the hell you decide which families get help and which don't. Also: AOL handles, John Hughes, and letters from strangers that make you cry. Erica is part Punky Brewster, part Rosie the Robot, and part Lisa Simpson—with just enough GenX Long Island sarcasm to make it all land. This one sticks.RELATED LINKSPinky Swear FoundationThe Mastectomy I Always Wanted (Book)Erica on LinkedInThink & Link: Erica Campbell“Like the Tale of a Starfish” - Blog Post“Cancer Diagnosis, Messy Life, Financial Support” - Blog PostFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
Dr. Allyson Ocean Unfiltered: Science, Colons and Calling BS

OffScrip with Matthew Zachary

Play Episode Listen Later Jun 3, 2025 43:38


Allyson with a Y. Ocean with two Ls. And zero chill when it comes to changing the face of cancer care. Dr. Allyson Ocean has been quietly—loudly—at the center of every major cancer breakthrough, nonprofit board, and science-backed gut punch you didn't know you needed to hear. In this episode, she joins me in-studio for a conversation two decades in the making. We talk twin life, genetics, mitochondrial disease, and why she skipped the Doublemint Twins commercial but still ended up as one of the most recognizable forces in oncology. We cover her nonprofit hits, from Michael's Mission to Let's Win Pancreatic Cancer to launching the American Jewish Medical Association—yes, that's a thing now. We get personal about compassion in medicine, burnout, bad food science, and microplastics in your blood. She also drops the kind of wisdom only someone with her résumé and sarcasm can. It's raw. It's real. It's the kind of conversation we should've had 20 years ago—but better late than never.RELATED LINKS:– Dr. Allyson Ocean on LinkedIn– Let's Win Pancreatic Cancer– NovoCure Leadership Page– Michael's Mission– American Jewish Medical Association– The POLG Foundation– Cancer Buddy App (Bone Marrow and Cancer Foundation)– Dr. Ocean at OncLiveFEEDBACK:Like this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
[BONUS] No One Told Me: COVID and Cancer

OffScrip with Matthew Zachary

Play Episode Listen Later May 30, 2025 4:48


Sponsored by Invivyd, Inc.Nobody wants to hear about COVID-19 anymore. Especially not cancer patients. But if you've got a suppressed immune system thanks to chemo, radiation, stem cell transplants—or any of the other alphabet soup in your chart—then no, it's not over. It never was. While everyone else is getting sweaty at music festivals, you're still dodging a virus that could knock you flat.In this episode, Matthew Zachary and Matt Toresco say the quiet part out loud: many immunocompromised people may not even know they have options beyond vaccines. Why? Because the system doesn't bother to tell them. So we're doing it instead. We teamed up with Invivyd to help get the word out about tools other than vaccines that can help prevent COVID-19. We break down the why, the what, and the WTF of COVID-19 risk for cancer patients and why every oncologist should be talking about this.No fear-mongering. No sugarcoating. Just two guys with mics who've been through it and want to make sure you don't get blindsided. It's fast, funny, and furious—with actual facts. You've got more power than you think. Time to use it.RELATED LINKSExpand Their OptionsInvivydMatt Toresco on LinkedInOut of Patients podcastFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
Constellations and Cancer: A Storytelling Rebellion with Lisa Shufro

OffScrip with Matthew Zachary

Play Episode Listen Later May 27, 2025 40:11


EPISODE DESCRIPTIONLisa Shufro is the storyteller's storyteller. A musician turned innovation strategist, TEDMed curator, and unapologetic truth-teller, Lisa doesn't just craft narratives—she engineers constellations out of chaos. We go way back to the early TEDMed days, where she taught doctors, scientists, and technocrats how not to bore an audience to death. In this episode, we talk about how storytelling in healthcare has been weaponized, misunderstood, misused, and still holds the power to change lives—if done right. Lisa challenges the idea that storytelling should be persuasive and instead argues it should be connective. We get into AI, the myth of objectivity, musical scars, Richard Simmons, the Vegas healthcare experiment, and the real reason your startup pitch is still trash. If you've ever been told to “just tell your story,” this episode is the permission slip to do it your way. With a bow, not a violin.RELATED LINKSLisa Shufro's WebsiteLinkedInSuper Curious ArchiveEight Principles for Storytelling in InnovationStoryCorps InterviewCoursera Instructor ProfileWhatMatters ProjectFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
Dancing Through the Wreckage: Sally Wolf

OffScrip with Matthew Zachary

Play Episode Listen Later May 20, 2025 39:59


What happens when you blend the soul of Mr. Rogers, the boldness of RuPaul, and just a pinch of Carrie Bradshaw? You get Sally Wolf.She's a Harvard and Stanford powerhouse who ditched corporate media to help people actually flourish at work and in life—because cancer kicked her ass and she kicked it back, with a pole dance routine on Netflix for good measure.In this episode, we unpack what it means to live (really live) with metastatic breast cancer. We talk about the toxic PR machine behind "pink ribbon" cancer, how the healthcare system gaslights survivors when treatment ends, and why spreadsheets and dance classes saved her sanity. Sally doesn't just survive. She rewrites the script, calls out the BS, and shows up in full color.If you've ever asked “Why me?”—or refused to—this one's for you.RELATED LINKS:Sally Wolf's WebsiteLinkedInInstagramCosmopolitan Essay: "What It's Like to Have the 'Good' Cancer"Oprah Daily Article: "Five Things I Wish Everyone Understood About My Metastatic Breast Cancer Diagnosis"Allure Photo ShootThe Story of Our Trauma PodcastFEEDBACK:Like this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Evidence Based Birth®
EBB 357 - Making Decisions about Elective Induction of Labor with Dr. Ann Peralta & Kari Radoff, CNM, from Partner to Decide

Evidence Based Birth®

Play Episode Listen Later May 7, 2025 49:22


Every pregnant person deserves the information—and support—they need to make truly informed decisions about labor induction. In this episode, Dr. Rebecca Dekker talks with Dr. Ann Peralta and Kari Radoff, CNM, co-creators of Partner to Decide, a nonprofit initiative improving decision-making in perinatal care. They discuss the creation of their free, multilingual decision aid that supports families in understanding their options around routine induction of labor—and empowers them to advocate for their values, preferences, and autonomy.   Ann shares how her own birth experience, shaped by access to education and privilege, sparked the creation of the tool. Kari offers insight into how the decision aid has changed conversations in clinical settings—bringing clarity, reducing bias, and fostering truly shared decision-making. Together, they illuminate how access to balanced information can reduce anxiety, improve trust, and shift the culture of perinatal care.   (03:02) What Is a Decision Aid and Why It Matters (07:12) Ann's Birth Story and the Origins of Partner to Decide (11:09) Gaps in Shared Decision-Making from a Provider's Perspective (14:24) Personal Values, Intuition, and Cultural Differences (18:19) Designing the Decision Aid with Equity and Accessibility (23:49) The Power of Absolute vs. Relative Risk in Birth Conversations (25:01) Surprising Patient Feedback: From Access to Empowerment (30:31) Provider Reflections and Challenging Bias (36:11) Why “Routine” Induction Language Matters (43:59) How to Respond to Pressure or Coercion Around Induction (46:16) How to Access the Free Decision Aid and Support New Tools   Resources Access the free Induction of Labor Decision Aid in seven languages: www.inductiondecisionaid.org Learn more about the nonprofit: www.partnertodecide.org For more information about Evidence Based Birth® and a crash course on evidence based care, visit www.ebbirth.com. Follow us on Instagram and YouTube! Ready to learn more? Grab an EBB Podcast Listening Guide or read Dr. Dekker's book, "Babies Are Not Pizzas: They're Born, Not Delivered!" If you want to get involved at EBB, join our Professional membership (scholarship options available) and get on the wait list for our EBB Instructor program. Find an EBB Instructor here, and click here to learn more about the EBB Childbirth Class.

Patient from Hell
Navigating Cervical Cancer: Screening, Surgery, and Shared Decision-Making in Women's Oncology

Patient from Hell

Play Episode Listen Later May 7, 2025 59:10


Dr. Shannon McLaughlin-David discusses the complexities of cervical cancer, HPV, and the role of gynecologic oncology. The dialogue explores the emotional and clinical challenges faced by both patients and clinicians, emphasizing the importance of effective communication and empathy in patient care. The discussion also highlights the various types of gynecologic cancers, surgical interventions, and the difficult decisions patients must make regarding their treatment options. This conversation delves into the complexities of patient autonomy, the emotional challenges faced by oncologists, and the systemic incentives within healthcare that can impact patient care. The discussion also covers the evolution of cervical cancer screening guidelines, the role of HPV in cervical cancer, and the importance of patient advocacy and education regarding vaccination.Resources & Links:This episode was supported by the Patient Centered Outcomes Research Institute (PCORI) and features the PCORI research study here: https://www.google.com/url?q=https://pubmed.ncbi.nlm.nih.gov/33632649/&sa=D&source=editors&ust=1746483503903350&usg=AOvVaw0SNo_jk-rzoVp85P5E3s6F ‘Effect of 2 Interventions on Cervical Cancer Screening Guideline Adherence'Chapter Codes00:00 Introduction to Cervical Cancer and HPV02:49 The Journey to Gynecologic Oncology05:57 Understanding Gynecologic Cancers09:05 Surgical Interventions in Gynecologic Oncology11:59 The Complexity of Patient Decisions15:07 Patient-Clinician Communication Challenges17:45 The Role of Empathy in Oncology21:05 Navigating Hormonal Treatments and Patient Reactions27:30 Navigating Patient Autonomy and Medical Ethics29:47 The Emotional Toll of Oncology33:00 Understanding the Healthcare System's Incentives35:58 The Role of Patient Advocacy39:05 The Evolution of Cervical Cancer Screening Guidelines51:46 HPV and Its Impact on Cervical Cancer54:48 Current Screening Protocols and HPV VaccinationConnect with Us:Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @mantacares and visit our website at mantacares.com for more episodes and updates.Listen Elsewhere: Website: https://mantacares.com/pages/podcast?srsltid=AfmBOopEP5GJ-Wd2nL-HYAInrwerIVhyJw67salKT-r9Qb_gadBvbHie YouTube: https://www.youtube.com/@mantacares/videosSpotify: https://open.spotify.com/episode/0rSG16JUXGnRmOPfpJSplS?si=ayogPMUMT4eHJclXn6_5xA Apple: https://podcasts.apple.com/us/podcast/the-microbiomes-impact-on-colorectal-cancer/id1622669098?i=1000705538270 Tags & Keywords:cervical cancer, HPV, gynecologic oncology, patient communication, surgical interventions, women's health, cancer treatment, patient empathy, decision making, hormonal therapy, patient autonomy, medical ethics, oncology, healthcare system, patient advocacy, cervical cancer, HPV, screening guidelines, emotional toll, healthcare incentives#Storytelling #Identity #Representation #Authenticity #Podcast #Culture #CancerAwareness #MedicalPodcast #CancerSurvivor #Oncology #Healthcare #CancerSupport #PatientStories #CancerResearch #HealthPodcast #CancerCommunity #SurvivorStories #MentalHealth #Wellness #HealthcareInnovationDisclaimer:All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.This episode was supported by an award from the Patient-Centered Outcomes Research Institute.

Global Hemophilia Report
Maybe We're Not on the Same Page: Shared Decision Making in Hemophilia Care

Global Hemophilia Report

Play Episode Listen Later Apr 24, 2025 37:38


On this episode, we delve into the concept of shared decision making (SDM) in modern hemophilia care. With insights from experts Brendan Hayes and Dr. Cedric Hermans, the discussion explores the evolution of treatment options, patient education, and the collaborative decision-making process. The conversation also highlights the development and impact of the SDM tool by the World Federation of Hemophilia, emphasizing the importance of patient empowerment and ongoing education.   Guests: Brendan Hayes, MPH, CPH Cedric Hermans MD PhD FRCP   Senior Advisor: Donna DiMichele, MD   Hosted & Written by: Patrick James Lynch   Featured Advertiser: Sanofi   Subscribe to the Global Hemophilia Report   Show Notes:   #MyHemophiliaTruth. Real stories. Powered by Sanofi. It's time to consider the whole experience when it comes to managing hemophilia and change the conversation. Explore the full story at www.myhemophiliatruth.com   Mark's Story Join Mark as he shares about his experience living with hemophilia, including the impact it had on building and maintaining relationships throughout grade school, college, dating, and raising his family. Mark also highlights how shared decision making with his healthcare providers, and strong family and caregiver support in those decisions, can make all the difference when it comes to managing the daily challenges of hemophilia.   Click here to watch his story: https://www.youtube.com/watch?v=tQ8oeM0zL24&list=PLmqBxf22n4lPMpAfLe4yv8haC6Ejcp1XL&index=8   Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on X/Twitter Global Hemophilia Report on Facebook   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter   

FAACT's Roundtable
Ep. 230: Shared Decision-Making for Teens and Young Adults

FAACT's Roundtable

Play Episode Listen Later Apr 23, 2025 17:38


Shared decision-making often focuses on parents and caregivers working with the doctor to benefit their child's health. We are exploring the next level of shared decision-making when the patient is older, such as a teen or young adult. Tune in as board-certified allergist, Dr. Doug Mack discusses how to approach teens and how young adults can navigate and understand shared decision-making.Resources to keep you in the know:Douglas Mack, M.Sc., MDFAACT's Navigating the Food Allergy Treatment Decision ProcessYou can find FAACT's Roundtable Podcast on Apple Podcasts, Pandora, Spotify, Podbay, iHeart Radio, or wherever you listen to podcasts.Follow us on Facebook, Instagram, BlueSky, Threads, LinkedIn, Pinterest, TikTok, and YouTube.Sponsored by: GenentechThanks for listening! FAACT invites you to discover more exciting food allergy resources at FoodAllergyAwareness.org!

Cultural Curriculum Chat  with Jebeh Edmunds
Season 7 Episode #6 Beyond Involvement: How Educators Can Truly Engage Parents as Essential Partners

Cultural Curriculum Chat with Jebeh Edmunds

Play Episode Listen Later Apr 18, 2025 15:17 Transcription Available


Send us a textThe magic happens when educators and parents join forces as true partners in a child's education. Gone are the days when "parent involvement" meant simply attending conferences or helping with homework. Today's inclusive classrooms demand meaningful engagement where families are recognized as essential collaborators in student success.Have you ever wondered why some teacher-parent relationships flourish while others remain strained? The answer often lies in intentional communication. As a classroom teacher for ten years, I discovered that establishing positive connections before challenges arise creates a foundation of trust that transforms the educational experience. My simple strategy of scheduling "celebration calls" to a few families each week ensured every parent heard good news about their child multiple times throughout the year.The CARE framework provides a roadmap for building these crucial partnerships: Communicate Intentionally, Access and Activate Resources, Respect and Respond to Diversity, and Engage in Shared Decision Making. This episode unpacks each element with practical strategies you can implement immediately. From maintaining a 3:1 ratio of positive to challenging conversations to providing multilingual resources that honor diverse family backgrounds, these approaches recognize a fundamental truth: the parent is the expert on their own child.Research consistently shows that when parents and teachers collaborate effectively, students experience higher academic achievement, improved behavior, enhanced social-emotional skills, and increased self-advocacy. Yet many families—particularly those with diverse learners—feel disconnected from schools due to previous negative experiences, language barriers, or overwhelming information. By acknowledging these challenges and implementing thoughtful engagement strategies, educators can create classrooms where every child and family feels valued, understood, and empowered. Ready to transform your parent partnerships? Start with just one strategy this week and watch what happens!You can purchase our CARE Framework here:  COME SAY Hey!! Instagram: @cultrallyjebeh_ Facebook: @JebehCulturalConsulting Pinterest: @Jebeh Cultural Consulting LinkedIn: @Jebeh Cultural Consulting Leave a Review on our Podcast! We value your feedback!Buy My eBook: Empowering Your BIPOC Students Enroll In My Digital Course: How To Be A Culturally Competent LeaderBuy My K-12 Lesson PlansSign Up For Our Newsletter Enjoy the Cultural Curriculum Chat podcast? Share the love! Refer a friend to Buzzsprout and both you and your friend will enjoy exclusive benefits. Click the link to get started and support our mission of promoting inclusivity! #SpreadTheWord #CulturalCurriculumChat

AMERICA OUT LOUD PODCAST NETWORK
AI meets vaccine transparency: The future of shared decision-making

AMERICA OUT LOUD PODCAST NETWORK

Play Episode Listen Later Apr 15, 2025 58:00


Nurses Out Loud – We explore how technology can support informed consent, not suppress it. Ashley opens the discussion by welcoming listeners into the heart of the health freedom movement, where questions are welcome, critical thinking is encouraged, and real transparency matters. As the creator of VaxCalc and its AI companion, VaxBot, Chris Downey's helping families break down complex vaccine data...

Nurses Out Loud
AI meets vaccine transparency: The future of shared decision-making

Nurses Out Loud

Play Episode Listen Later Apr 15, 2025 58:00


Nurses Out Loud – We explore how technology can support informed consent, not suppress it. Ashley opens the discussion by welcoming listeners into the heart of the health freedom movement, where questions are welcome, critical thinking is encouraged, and real transparency matters. As the creator of VaxCalc and its AI companion, VaxBot, Chris Downey's helping families break down complex vaccine data...

Anthro Education
Beard v Capo: Part Deux!

Anthro Education

Play Episode Listen Later Apr 15, 2025 124:18


In this insightful conversation, Dr. Beau Beard sits down with Dr. Steven Capobianco—clinician, educator, and fascia researcher—to unpack the evolving landscape of manual therapy, pain science, and movement-based care.From the history of trigger points and Travell & Simons to modern fascia research from Stecco, they challenge outdated paradigms and offer a fresh framework for integrating touch, neuroscience, and patient-centered care.Topics include:- Why trigger points are still debated—and why they still matter- Fascia's role in pain and movement, beyond the hype- Rethinking touch: from mechanical to neurological- How to implement the biopsychosocial model with clarity and confidence- The rise in chronic pain—and what clinicians might be missingThis is not about pushing techniques—it's about elevating clinical reasoning. Whether you're a chiropractor, physio, trainer, or just fascinated by how the body works, this is a must-listen.***Chapters00:00 Introduction and Personal Updates05:18 Experiences at the Fix Congress08:40 Fascia and Its Importance in Manual Therapy10:34 The Bio-Psycho-Social Model in Treatment14:10 Historical Context of Manual Therapy22:50 The Evolution of Trigger Point Research32:37 The Controversy of Fascia and Manual Therapy35:36 Curiosity in Evidence-Based Practice39:03 The Complexity of Pain and Movement41:30 The Role of Touch in Therapy50:53 Centrally Mediated Pain and Trigger Points56:54 The Importance of Patient Expectations and Data Gathering01:07:28 Understanding Pain Beyond Treatment01:10:32 The Role of Curiosity in Pain Management01:13:08 The Global Burden of Pain and Movement01:16:26 The Complexity of Trigger Points01:20:51 Shared Decision Making in Therapy01:22:14 Exploring the Causes of Rising Pain Rates01:26:31 The Interplay of Pain, Anxiety, and Movement01:30:35 The Evolving Role of Touch in Therapy01:41:14 The Role of Touch in Movement and Pain Management01:44:28 Exploring Movement and Pain Perception01:46:41 The Interplay of Touch, Breath, and Awareness01:51:53 Understanding Pain and Movement Patterns02:01:34 The Importance of Patient Interaction and Experience02:04:02 Frameworks for Understanding Movement and Pain

Heart to Heart Nurses
Effective Conversations with Patients: Strategies for Shared Decision-Making

Heart to Heart Nurses

Play Episode Listen Later Apr 15, 2025 15:37


For patients who are older, or with complex diseases like HCM, healthcare professionals who really listen can be the key to successful shared decision-making. Guest Kate Lew, MSN, RN, FNP-C, FPCNA, addresses effective strategies, a well as how to get involved beyond the clinical walls.PCNA Heart Healthy Toolbox: https://pcna.net/clinical-resources/patient-handouts/heart-healthy-toolbox/See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Coming Together for Sexual Health
Is Permanent Contraception Always Fool Proof? Find out with Dr. Schwartz and Dr. Treder

Coming Together for Sexual Health

Play Episode Listen Later Apr 15, 2025 46:58


In this episode, Dr. Eleanor Bimla Schwartz and Dr. Kelly Treder discuss the misconceptions of tubal sterilization, including debunking notions that is it 100% fool-proof, that the surgery is reversible, that it is more effective than other contraceptive options, or that there is little to no pain post-surgery. “I think we do have fairly widespread misunderstanding of what it means to have your tubes tied. A lot of people seem to have the understanding that that would be something you could easily untie and that it would be a procedure that you could undo,” Dr. Schwartz says. They highlight how important it is for providers to be transparent with patients about long-acting contraception options (arm implant, IUD, vasectomy) and their effectiveness with preventing pregnancy, side effects, cost, accessibility, and longevity compared to surgery. Because of this, it is crucial for providers to be informed about the nuances of different contraceptive options. Dr. Schwartz and Dr. Treder provide firsthand insight into what difficult conversations surrounding contraceptives with patients can look like. “I think it's just our obligation to make sure that they know about all available options, that they're not arriving at this decision that they need to have a surgery because they think it's the only thing that's safe for them or the only thing that will work well for them,” says Dr. Schwartz.   This episode is a follow up to S4 E5 Lesser-Known Forms of Birth Control and Downplayed Side-effects: Providing Empowering Contraceptive Carewith Dr. Karlin and health educator Mariana Horne. Click here to view the episode transcript.  Resources recommended in the episode:   Bedsider.org is an online resource designed to help individuals explore, compare, and access birth control options. Bedsider offers a comprehensive description of various contraceptive methods, such as IUDs, implants, pills, and sterilization using interactive tools, real-life stories, and educational content.   Advancing Access is a UCSF resource that provides clear, evidence-based information on long-acting reversible and non-reversible birth control methods, including costs, benefits, and where to access care.   https://www.cdc.gov/nchs/nsfg/index.htm - National Survey of Family Growth     CAPTC related trainings and resources  - Shared Decision Making in Contraceptive Counseling   - Person-Centered Contraception Counseling for Family Pact Clients   - Same-Day Placement of LARC: Solutions to Common Barriers     Brief Bio   Dr. Eleanor Bimla Schwartz Dr. Schwartz, MD is a professor of medicine at UCSF and the chief of the Division of General Internal Medicine at the San Francisco General Hospital. She has a particular interest in identifying ways to meet the needs of diverse populations, including women with chronic medical conditions and other underserved populations.   Dr. Treder Dr. Kelly Treder, MD, MPH, is a board-certified OB-GYN at Boston Medical Center and an assistant professor of OB-GYN at Boston University School of Medicine. She specializes in family planning and is committed to health equity.  

Cancer Buzz
Shared Decision-Making in CLL

Cancer Buzz

Play Episode Listen Later Apr 3, 2025 16:50


Personalized therapeutic approaches for the treatment of chronic lymphocytic leukemia (CLL), guided by shared decision-making, can improve outcomes by aligning treatment with a patient's unique clinical profile, preferences and goals. The Association of Cancer Care Centers (ACCC) is dedicated to providing up-to-date information on CLL management and treatment strategies. In this episode, CANCER BUZZ speaks with Christopher Nelson, ACNP, MBA, certified oncology nurse practitioner at Avera Medical Group Oncology & Hematology, to explore the importance of shared decision-making and patient communication in CLL. Additionally, CANCER BUZZ speaks with Meghan McGrath, MSN, RN, AGACNP, clinical trial nurse navigator at The Leukemia and Lymphoma Society (LLS), who discusses ways to incorporate clinical trials in the shared decision-making process and LLS services that are available to support patients and providers.   “You do what the patient feels is best, you know, you look at what their values are and what's important to them, and then you try to find a therapy that fits those.” – Christopher Nelson, ACNP   “I think it's really important to try and make every patient aware of the fact that a clinical trial could be right for them at any stage in the game.” – Meghan McGrath, MSN, RN, AGACNP   Christopher Nelson, ACNP  Oncology Nurse Practitioner   Avera Medical Group Oncology & Hematology  Aberdeen, SD    Meghan McGrath, MSN, RN, AGACNP    Clinical Trial Nurse Navigator   The Leukemia and Lymphoma Society (LLS)      Resources:   ·      ACCC Treatment for Double-Exposed CLL - https://bit.ly/4iSmfV1 ·      ACCC CLL Resources - https://bit.ly/3E4QqZK ·      LLS Clinical Trial Support Center - https://bit.ly/42sqGQk ·      ACCC CLL Video Series - https://bit.ly/4la4li5

PeerView Clinical Pharmacology CME/CNE/CPE Audio Podcast
Hope S. Rugo, MD, FASCO - Securing Equity in Care and Outcomes for Older Patients With HR+, HER2- MBC: Leveraging Patient Assessment, Clinical Evidence, Real-World Experience, and Shared Decision-Making to Individualize Care

PeerView Clinical Pharmacology CME/CNE/CPE Audio Podcast

Play Episode Listen Later Mar 28, 2025 68:24


This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups.For the full presentation, downloadable Practice Aids, slides, and complete CME/MOC/NCPD/CPE/AAPA/IPCE information, and to apply for credit, please visit us at PeerView.com/ZWD865. CME/MOC/NCPD/CPE/AAPA/IPCE credit will be available until March 12, 2026.Securing Equity in Care and Outcomes for Older Patients With HR+, HER2- MBC: Leveraging Patient Assessment, Clinical Evidence, Real-World Experience, and Shared Decision-Making to Individualize Care In support of improving patient care, this activity has been planned and implemented by PVI, PeerView Institute for Medical Education, and Living Beyond Breast Cancer. PVI, PeerView Institute for Medical Education, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.SupportThis activity is supported by an educational grant from Pfizer.Disclosure information is available at the beginning of the video presentation.

PeerView Oncology & Hematology CME/CNE/CPE Video Podcast
Hope S. Rugo, MD, FASCO - Securing Equity in Care and Outcomes for Older Patients With HR+, HER2- MBC: Leveraging Patient Assessment, Clinical Evidence, Real-World Experience, and Shared Decision-Making to Individualize Care

PeerView Oncology & Hematology CME/CNE/CPE Video Podcast

Play Episode Listen Later Mar 28, 2025 68:23


This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups.For the full presentation, downloadable Practice Aids, slides, and complete CME/MOC/NCPD/CPE/AAPA/IPCE information, and to apply for credit, please visit us at PeerView.com/ZWD865. CME/MOC/NCPD/CPE/AAPA/IPCE credit will be available until March 12, 2026.Securing Equity in Care and Outcomes for Older Patients With HR+, HER2- MBC: Leveraging Patient Assessment, Clinical Evidence, Real-World Experience, and Shared Decision-Making to Individualize Care In support of improving patient care, this activity has been planned and implemented by PVI, PeerView Institute for Medical Education, and Living Beyond Breast Cancer. PVI, PeerView Institute for Medical Education, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.SupportThis activity is supported by an educational grant from Pfizer.Disclosure information is available at the beginning of the video presentation.

PeerView Oncology & Hematology CME/CNE/CPE Audio Podcast
Hope S. Rugo, MD, FASCO - Securing Equity in Care and Outcomes for Older Patients With HR+, HER2- MBC: Leveraging Patient Assessment, Clinical Evidence, Real-World Experience, and Shared Decision-Making to Individualize Care

PeerView Oncology & Hematology CME/CNE/CPE Audio Podcast

Play Episode Listen Later Mar 28, 2025 68:24


This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups.For the full presentation, downloadable Practice Aids, slides, and complete CME/MOC/NCPD/CPE/AAPA/IPCE information, and to apply for credit, please visit us at PeerView.com/ZWD865. CME/MOC/NCPD/CPE/AAPA/IPCE credit will be available until March 12, 2026.Securing Equity in Care and Outcomes for Older Patients With HR+, HER2- MBC: Leveraging Patient Assessment, Clinical Evidence, Real-World Experience, and Shared Decision-Making to Individualize Care In support of improving patient care, this activity has been planned and implemented by PVI, PeerView Institute for Medical Education, and Living Beyond Breast Cancer. PVI, PeerView Institute for Medical Education, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.SupportThis activity is supported by an educational grant from Pfizer.Disclosure information is available at the beginning of the video presentation.

Game Over: c*ncer
23. From Research to Reality: Shared Decision-Making in Pediatric Cancer

Game Over: c*ncer

Play Episode Listen Later Mar 18, 2025 36:27


In this episode of Game Over: c*ncer, hosts Dana Nichols and Val Solomon dive into the complex and emotional tightrope of balancing hope and reality in pediatric cancer.  Joining the conversation is Dr. Claire Wakefield, a psychologist, researcher, and professor specializing in pediatric psycho-oncology. Dr. Wakefield leads the Behavioral Sciences Unit at UNSW and Sydney Children's Hospital, one of the largest pediatric cancer survivorship research groups in the world.  Together, we explore the psychological and emotional challenges families face when navigating new treatment options, clinical trials, and difficult medical decisions. Dr. Wakefield shares her insights on ethical best practices, shared decision-making, and the evolving landscape of pediatric cancer care—ensuring that families receive not only medical support but also the guidance and resources needed for their well-being.  Key Topics Covered:- The intersection of pediatric cancer treatment, psychology, and hope  - How families process and make decisions about clinical trials  - The impact of new medical technologies on patient experiences  - Supporting children and parents through the hardest moments  - The global disparities in pediatric cancer treatment and efforts to bridge the gap  This thought-provoking conversation is a must-listen for anyone passionate about advancing pediatric cancer research and supporting families in the fight.  Support the mission visit us at:  https://www.cannonballkidscancer.org to make a gift and help fund innovative research.----------------------------------Podcast Produced by Hi Hello Labs: Website: https://www.hihellolabs.com/

Oncology Data Advisor
Additional Advances in MCED Technologies: MCED Testing and Shared Decision Making + Module 3 Activity

Oncology Data Advisor

Play Episode Listen Later Feb 21, 2025 28:55


Advancements in medical technology are transforming cancer screening, with multicancer early detection (MCED) testing leading the way. Dr. Charles Vega, a Clinical Professor of Family Medicine at the University of California (UC) Irvine, is currently serving as chair of i3 Health's three-part microlearning series, Optimizing Cancer Screening with MCED Technologies: From Science to Practical Application. With new advances in developing MCED testing and implementing it into practice, Dr. Vega sat down with us again to share additional insights from Module 3 of the activity, including questions he commonly gets from patients about MCED testing and advice for clinicians about employing shared decision making with patients to choose the most appropriate type of cancer screening for them. Afterwards, stay tuned to hear the full activity and learn how to claim CME credit. Click here to claim your CME credit: https://bit.ly/4b9JU00

PeerView Endocrinology & Diabetes CME/CNE/CPE Video Podcast
Lucia M. Novak, MSN, ANP-BC, BC-ADM - Individualizing Management Plans for Type 2 Diabetes Through Shared Decision-Making: An Office Hours Activity

PeerView Endocrinology & Diabetes CME/CNE/CPE Video Podcast

Play Episode Listen Later Feb 10, 2025 33:07


This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups.For the full presentation, downloadable Practice Aids, slides, and complete CME/NCPD/AAPA information, and to apply for credit, please visit us at PeerView.com/UTJ865. CME/NCPD/AAPA credit will be available until February 28, 2026.Individualizing Management Plans for Type 2 Diabetes Through Shared Decision-Making: An Office Hours Activity In support of improving patient care, PVI, PeerView Institute for Medical Education, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.SupportThis activity is supported by an educational grant from Lilly.Disclosure information is available at the beginning of the video presentation.