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Potassium is an essential mineral, but it is important to make sure you have the right amount. Tune in and hear from experts on how high potassium (hyperkalemia) can impact health and it's risk in people with advanced chronic kidney disease. In this episode we heard from: Briana Douglas is currently a Peer Mentor for the National Kidney Foundation. At 17 yrs old, she was diagnosed with Lupus Nephritis. She was then diagnosed with end stage 5 kidney disease, in 2016, and immediately had to start dialysis. After starting hemo dialysis, she remained on treatment for 7 years, experiencing home hemo, peritoneal, nocturnal and in center-hemo dialysis. In 2024, she received a kidney transplant and is now living really well with her new transplant. She also takes pride in being a peer Mentor for NKF to help others with similar experiences. Dr. Pascale Khairallah, MD, MS, is an Assistant Professor of Medicine in the Division of Nephrology at the University of California, San Francisco (UCSF). She specializes in chronic kidney disease and kidney transplantation. Dr. Khairallah has been recognized with multiple awards for excellence in patient care and teaching. She has multiple publications in the field of chronic kidney disease mineral and bone disorders and kidney transplant outcomes. Annabel Biruete is an Assistant Professor and Registered Dietitian in the Department of Nutrition Science at Purdue University and an Affiliate in the Division of Nephrology at the Indiana University School of Medicine. Her broad clinical interest is nutrition in kidney diseases. Her research aims to study the effects of nutritional and pharmacological therapies for chronic kidney disease on the gastrointestinal tract and gut microbiome. Additionally, she is interested in improving outcomes in the Hispanic/Latine community living with chronic kidney disease, primarily through language- and culturally-concordant interventions. Additional Resources: High Potassium Information Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts.
In celebration of Donate Life month, we are sharing a special crossover episode from NKF's Life as a Nephrology Professional podcast. Tune in and hear from three living kidney donors as they discuss the power of living donation and kidney advocacy. Host: Anna Gaddy, MD, FASN, FNKF Guests: Lauren Drew, JD, Beth Burbridge Additional Resources: Becoming a Living Donor NKF Advocacy Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts.
Kent Bressler speaks with Rachel Claudine and Dr. Sandy Gilbert from the National Kidney Foundation. They explore the groundbreaking KidneyCARE Study, a pioneering patient-centered research initiative designed to gather vital data directly from individuals living with various stages of kidney disease. Rachel shares her personal journey with Lupus Nephritis, emphasizing the significance of patient stories in advancing kidney health research. Dr. Gilbert highlights the study's aim to capture real-world patient experiences, offering insights into disease progression and treatment efficacy. Discover how this innovative registry is set to transform kidney care and empower patients, while also discovering how you can contribute to this vital research. For more information on the KidneyCARE Study and to participate, visit kidneycarestudy.org. About Our Guests: Sandy Gilbert, PhD is the Senior Director of Patient Outcomes Research at the National Kidney Foundation (NKF), where she manages the KidneyCARE (Community Access to Research Equity)™ Study. Since joining NKF in 2024, she has focused on developing and overseeing this pioneering national kidney disease patient registry – the first to integrate patient-reported data with clinical data from electronic health records (EHRs). Rachel Claudin, BS, CCLS is the Patient-Centered Research Director at the National Kidney Foundation (NKF). Her main work for the past three years has been focused on the advancement of the KidneyCARE Study. As a person living with Lupus Nephritis, she is excited for the patient- entered data collected by the Study to increase and improve kidney care research. Previous to the NKF, Rachel worked in hospital and hospice settings advocating for patients utilizing the shared decision-making model of healthcare. For more information on Kidney Solutions and to join our supportive community, visit kidneysolutions.org Host: Kent Bressler Producer: Jason Nunez Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Stories!
I denne episoden begir vi oss ut på ukjent farvann i podcasten. Vi har tidligere snakket om ungdomsidretten, vekstsonesmerter, skjelettmodning og pubertet. Men vi har enda ikke adressert de helt unge barna enda - før nå. Vi stiller oss spørsmålet; hvorfor er det så mange barn og unge med muskelskjelettsmerter? Eller er det flere, eller er det rett og vi slett vi som er mer obs på det? Eller er det samfunnet som skaper dette problemet? Hvordan skal klinikere forholde seg til barn og unge med muskelskjelettsmerter? Også stiller vi oss kanskje det viktigste spørsmålet: hvordan skaper vi robuste barn, som igjen skaper robuste voksne? Anne Helene Moksness er den opprinnelige stifteren av Barnekiropraktoren på Instagram og Facebook, og hun ble tidlig i sin yrkeskarriere introdusert for undersøkelse og behandling av gravide, spedbarn, barn og unge, og har siden hatt en forkjærlighet for denne delen av praksisen sin. Anne Helene jobber daglig i klinisk praksis i Arendal, hvor hun har spesielt interesse for pediatri og behandling av barn og unge. Anne Helene er faglig engasjert og har tidligere sittet i flere sentrale posisjoner i Norsk Kiropraktorforening. Kristin Lo Nystrøm jobber til daglig som kiropraktor i Larvik, og har sittet i flere verv sentraltstyret til Norsk Kiropraktorforening. Sammen med Anne Helene er hun èn av gründerne bak barnekiropraktoren. Kristin mottok utmerkelsen “Årets Kiropraktor” i 2019 for sitt engasjement og arbeid for utvikling av profesjonsspesialisering i NKF. Hun er en erfaren foredragsholder for både kolleger i helsevesenet, og for foreldre og barn/ungdom.PATREON: For to år siden begynte vi en patreontjeneste. Patreons er følgere som bidrar med en slant i måneden for å være en tydeligere stemme i podcasten. De stiller spørsmål og har forslag til gjester, og noen av de har også figurert i faktiske episoder. Denne tjenesten jobber vi kontinuerlig videre med, og patreongruppa er nå over seksti klinikere fra hele landet. Patreons får rabatter på våre kurs og fagdager og får tilgang til ekstra faglig snacks fra episodene. Dersom du ønsker å bidra, koster det deg mindre enn Netflixabonnementet ditt. Og for prisen får du muligheten til å gjøre Norges største muskelskjelettpodcast enda bedre. Les mer og bli en patreon i dag på: patreon.com/vondt KURS 19-20. SEPT: I september presenter vi et helt nytt kurs om skulder som bygger på fagdagen vår "VONDT i skulderen". Dette blir et praktisk kurs som tar deg med inn i behandling av faktiske caser fra klinikken. Se mer info her: https://jevnehelse.hoopla.no/event/skulderbehandlingMUSIKK: Joseph McDade - Mirrors
Did you know that patient registries play a vital role in improving kidney disease treatment and outcomes? In this episode, we're diving into the KidneyCARE Study—a patient registry that uses real-world data to better care for people with kidney disease. We sat down with experts as they explained what a patient registry is and why people with kidney disease may want to join the KidneyCARE Study. In today's episode we heard from: Kerry K. Willis PhD- Dr Willis is the Chief Scientific Officer of the National Kidney Foundation (NKF). Since joining NKF in 1998, her major focus has been on the analysis and application of clinical evidence to improve care and outcomes for people living with kidney disease. She oversees all NKF-sponsored research and professional education programs, including the Spring Clinical Meetings; population health programs that facilitate health system and practice engagement around CKD as a quality improvement target; the Kidney Disease Outcomes Quality Initiative (KDOQI) clinical practice guidelines; KDOQI quality measurement initiative; and four peer-reviewed journals devoted to chronic kidney disease. She led the development of and currently manages the Kidney CARE (Community Access to Research Equity) Study, the first national CKD patient registry to combine patient-reported data with clinical data from electronic health records. Rachel Claudin, BS, CCLS- Rachel Claudin is the Patient-Centered Research Director at the National Kidney Foundation (NKF). Her main work for the past three years has been focused on the advancement of the KidneyCARE Study. As a person living with Lupus Nephritis, she is excited for the patient-entered data collected by the Study to increase and improve kidney care research. Previous to the NKF, Rachel worked in hospital and hospice settings advocating for patients utilizing the shared decision-making model of healthcare. Cari Maxwell- Cari has lived with Polycystic Kidney Disease (ADPKD) since 1989, and her personal experience, along with the experiences of her father and two siblings, fuels her advocacy for advancements in PKD treatment. She participated in the Tolvaptan Reprise trial, which led to the first-ever FDA-approved treatment for ADPKD—a treatment she continues to benefit from today. As a member of the NKF Kidney Advocacy Committee, Cari is passionate about promoting patient education, early detection, and scientific progress through patient-centered clinical research. She is dedicated to ensuring that others have access to life-changing treatments and are empowered to advocate for their health through proactive care. Cari currently works in health care cost containment strategies, where she applies her expertise to enhance patient access and outcomes. Sandy Gilbert PhD- Sandy Gilbert is the Senior Director of Patient Outcomes Research at the National Kidney Foundation (NKF), where she manages the KidneyCARE (Community Access to Research Equity)™ Study. Since joining NKF in 2024, her focus has been on developing and overseeing this pioneering national kidney disease patient registry, the first to integrate patient-reported data with clinical data from electronic health records. The goal of the Registry is to generate critical insights into disease progression, treatment outcomes, and health disparities, in support of NKF's mission to improve kidney health and drive innovation in kidney research and healthcare. Sandy works closely with teams of researchers and health system partners to expand the study's reach and ensure that it reflects the needs of diverse patient populations, including those from underserved communities. Additional Resources: KidneyCare Study Information Contact Information: Call: 212.889.2210 ext.134 M-F 10am-4pm CT Email: kidneycarestudy@kidney.org Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts.
There's a common misconception that people on home dialysis can't have pets. But that's just a myth. Professor Cameron Wolfe, a transplant infectious disease specialist at Duke University, along with Keith Plummer, a transplant recipient with home hemodialysis experience, and Brittany Dickerson, an in center hemodialysis patient with experience in peritoneal dialysis are here to share how you can safely manage treatments while living with pets. Professor Cameron Wolfe is a Transplant Infectious Disease specialist at Duke University. He was a previous Chair of the Disease Transmission Advisory Committee (DTAC), working with the federal transplant administration to ensure safe and successful transplantation in the US. Cameron is the current secretary of the Infectious Disease section of The Transplantation Society, an international society representing transplant professionals and patients globally. His research focusses on safe transplantation for patients and donors living with HIV and hepatitis, and managing respiratory viruses and emerging pathogens. Keith Plummer was diagnosed with kidney cancer in 2010, coming out of surgery with one kidney functioning at 20 percent. Thanks to a great Nephrologist and a lot of hard work, he was able to hold off dialysis for close to a decade. Keith was on home hemodialysis for 4 years before receiving a transplant 1.5 years ago. Keith first got involved with advocacy about 6 years ago as he lobbied for the TRSA, making many visits to the state capitol to fight for industry and employees. Over his time on dialysis, Keith have moved from part time to being fully retired which has given more time to advocate. He is an advocate for the DPC and has participated in the last four fly-ins in Washington DC. He has been advocating with the NKF for the past 2 years and look forward to helping kidney patients in New York and across America. Brittany Dickerson is a dedicated mother, motivational speaker, and compassionate life coach living with Polycystic Kidney Disease (PKD). She uses her kidney failure battle to educate and help others regarding kidney disease and transplantation. Through partnership with the National Kidney Foundation, Brittany has had the opportunity to mentor others and to be a guest for the National Kidney Foundation Podcast channel. Her dedication to kidney awareness has led her to pursue becoming a National Kidney Foundation Advocate. Brittany uses her voice to spread a powerful message of perseverance and hope. Brittany's goal is to continue making an impact on individuals facing adversity, offering guidance, support, and being a shining example of strength in the face of hardship. Additional Resources: Safe Living After Transplant Find Support with NKF Peers Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts.
Community DC Host Dennis Glasgow visits with the Executive Director for the National Kidney Foundation Michele Anthony to talk about the latest happenings and an upcoming Gala, plus Stacy Warr joins us to talk about her own personal journy and relationship with the NKF of Washington DC.
In today's episode, we're finishing up our series on kidney failure treatment options with a discussion on conservative care. What exactly is conservative care and who can benefit from it? Christine Corbett, Associate Chief Nursing Officer and nurse practitioner specializing in palliative care is here to answer that question and more. Sara Hicklin and Bobbie Reed who have firsthand experience with conservative care in their families are also here to share their perspectives on this treatment option. Christine Corbett, DNP, APRN, FNP-BC, CNN-NP, FNKF is the newly appointed Assistant Research Professor at George Washington University and Executive Director for the Coalition for Supportive Care of Kidney Patients. She is a practicing Nurse Practitioner specializing in kidney palliative care, and a Trauma-Sensitive HeartMath Certified Practitioner. Dr. Corbett has over 25 years of nephrology experience and four years of experience in Palliative Care. Her doctoral focus was shared decision-making, advance care planning and appropriate palliative care referral for select patients with chronic kidney disease. In the past four years she developed, implemented, and managed the Comprehensive Conservative Kidney Care Clinic for patients who choose to forego dialysis at an academic safety net hospital in Kansas City. Bobbie Reed is on a mission for her son and for the millions of others living with chronic kidney disease. A graduate of Indiana University of Pennsylvania with a Bachelor of Family Consumer Science degree, Bobbie is the office manager at her family's insurance business. She wants to pay it forward by helping others with their struggles in dealing with kidney disease. As part of the NKF's Kidney Advocacy Committee, Bobbie is not only the Pennsylvania Liaison, but is the immediate past Region 2 leader for the group. She continues to help her son navigate his kidney disease journey and, in addition, use her experience to benefit and advocate for many others afflicted with kidney disease. Sara Hicklin and her family has a genetic kidney disease called Polycystic Kidney Disease or PKD. With this family and personal history, Sara is passionate about educating others about kidney disease, along with recruiting and educating potential organ donors. She is also fascinated by the advances in treatment options in three generations and wants to contribute in a small way to what may become available for treatment of kidney disease in generations to come. Additional Resources Coalition for Supportive Care Palliative Care Resources Palliative Care Resources Advanced Directives The Patient Will See You Now by Eric Topol Palliative Care in Nephrology Definitions from the episode: Durable Power of Attorney (DPOA) Portable Medical Orders (POLST): https://polst.org/ Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts.
The Elective Rotation: A Critical Care Hospital Pharmacy Podcast
Show notes at pharmacyjoe.com/episode998. In this episode, I’ll discuss why the NKF says its OK to use race-free eGFR to make renal dose adjustments. The post 998: Why the NKF Says Its OK to Use Race-Free eGFR to Make Renal Dose Adjustments appeared first on Pharmacy Joe.
Listener Q: "What is the difference between eGFR and GFR? Is one better than the other for getting tested for PKD, or should I ask for both? I am worried I am not getting the labs I need to stay informed about my kidneys." Answer: Tune in and find out: What GFR is What eGFR is If there are the same What you need to know about each and if you need to get both tested for Polycystic Kidneys MASTER YOUR LABS FOR PKD Yes, Sign Me Up! Learn More - https://www.thepkddietitian.com/masteryourlabs RESOURCES Episode #33 What is Cystatin C and Should You Get it Tested? https://www.thepkddietitian.com/podcasts/the-pkd-dietitian-podcast/episodes/2148345282 NKF's eGFR Calculator https://www.kidney.org/professionals/gfr_calculator LET'S CONNECT INSTAGRAM: https://www.instagram.com/the.pkd.dietitian/ FACEBOOK: https://www.facebook.com/PKDdietitian EMAIL: https://www.thepkddietitian.com/site/contact DISCLAIMER The PKD Dietitian Podcast is meant for educational purposes only. It is not a substitute for professional medical advice, diagnosis, or treatment. Always consult your healthcare provider with any medical questions or concerns.
Voting is a powerful way to influence the policies that impact your life. By participating in elections and advocating for change, you can help shape the future. Dr. Jesse Roach, NKF's Senior Vice President of Government Relations, and Lauren Drew, NKF's Congressional Relations Director, explain why your vote matters and how to get involved. Dr. Jesse Roach is a strategist and clinician whose work focuses on improving access to kidney health by removing barriers to care through policy, partnerships, and research. He is currently the Senior Vice President for Government Relations at the National Kidney Foundation (NKF), where he leads the NKF's advocacy efforts. Dr. Roach received his medical degree and completed a residency in Internal Medicine and Pediatrics at the Medical University of South Carolina. He completed a combined fellowship in pediatric and adult nephrology at the University of Michigan Medical School. He resides in Washington, DC. Lauren Drew is the Director of Congressional Relations at NKF, and formerly worked at the National Hospice and Palliative Care Organization and on Capitol Hill. She's original from New Jersey and an alumna of the George Washington University and the Villanova School of Law. Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts.
Jeff Blumenfeld, a dynamic marketing executive with a career spanning over five decades, has worked with leading corporations such as Pepsi, Michelin, and Virgin Atlantic. He is the founder of Blumenfeld and Associates, author of "Get Sponsored" and "Travel With Purpose" and member of the International Skiing History Association and The Explorers Club. He brings his inspiring journey to the Legacy Leaders Show, which underscores the crucial role of community support in overcoming challenges. As a 72, Jeff's story is a testament to resilience, innovation, and the power of advocacy. Diagnosed with Renal Cell Carcinoma in 2009, Jeff faced a challenging battle, culminating in a kidney transplant in November 2023. His innovative campaign for a donor, involving media appearances and social media outreach, showcases his resilience and marketing expertise. Now a passionate Kidney Advocate, he speaks at NKF workshops and serves on Colorado's Kidney Disease Prevention and Education Task Force. Join us for this new episode of the Legacy Leaders Show to hear Jeff Blumenfeld's inspiring story of overcoming adversity and his dedication to kidney advocacy.
Jeff Blumenfeld, a dynamic marketing executive with a career spanning over five decades, has worked with leading corporations such as Pepsi, Michelin, and Virgin Atlantic. He is the founder of Blumenfeld and Associates, author of "Get Sponsored" and "Travel With Purpose" and member of the International Skiing History Association and The Explorers Club. He brings his inspiring journey to the Legacy Leaders Show, which underscores the crucial role of community support in overcoming challenges. As a 72, Jeff's story is a testament to resilience, innovation, and the power of advocacy. Diagnosed with Renal Cell Carcinoma in 2009, Jeff faced a challenging battle, culminating in a kidney transplant in November 2023. His innovative campaign for a donor, involving media appearances and social media outreach, showcases his resilience and marketing expertise. Now a passionate Kidney Advocate, he speaks at NKF workshops and serves on Colorado's Kidney Disease Prevention and Education Task Force. Join us for this new episode of the Legacy Leaders Show to hear Jeff Blumenfeld's inspiring story of overcoming adversity and his dedication to kidney advocacy.
Losing a kidney transplant can feel very overwhelming. Today we're here with Anthony Tuggle, a former NKF board member, to hear how he's coping with losing a transplant and learn what's next for him. Anthony Tuggle is the Afiniti President of Customer Operations, and a former Board Member of the National Kidney Foundation and of NKF Serving Alabama, Georgia and Mississippi. Tuggle is responsible for expanding global contact center operations, accelerating business development, overseeing product deployment and engaging clients to generate value for enterprises, customers and employees. Prior to joining Afiniti, Tuggle served as Vice President – Customer Care, Sales and Service Centers at AT&T where he led more than 30,000 sales leaders and has built a culture that fosters a passion for winning. He models a "find-a-way" mindset in his approach to leadership and inspires his team to embrace the importance of agility. Tuggle is the acclaimed author of I'm Better Not Bitter: My Personal Journey - Kidney Transplant Recipient's Story of Winning in Business & Life and Moving Forward, which shares how he has overcome obstacles, is self-motivated, and creates a work culture of success. Notably, Tuggle led efforts in his local community as the 2018-2020 Chairman of the Atlanta Kidney Walk, which raised more than $500,000 for NKF. He also has partnered with AT&T to raise more than $200,000 to date. Additional resources: NKF Peers Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts.
Everyone loves to talk about kidney transplant success stories but rarely do we talk about what happens if a transplant fails. On today's episode Dori Muench, a post transplant social worker, and Sue George, a kidney warrior with experience losing a transplant, are here to discuss the impact of losing a kidney and how to cope. Dorothy Muench, LCSW is a post-transplant social worker with the Abdominal Organ transplant department with Wake Forest Baptist Medical Center for the past 7 years. In this capacity, she works with numerous individuals who have received a kidney or pancreas transplant and works to provide concrete and emotional support. Before this, Dori worked in dialysis for close to 10 years and has seen and heard the effects people have while on dialysis. She works hard to advocate for people to be transplant and find living donors so they can decrease as much time on dialysis as possible. Dori lives in North Carolina with her husband, 2 daughters and golden retriever. Sue George is a kidney patient, with 27 years of experience who started on dialysis in 1997. She received a transplant in July of 1999 but had many setbacks. In October of 2000 she lost her transplanted kidney. Sue went back on dialysis and has been ever since. She now works with NKF as a Peer Mentor and work with KCM of Lincoln as a Mentor and try to improve how dialysis is introduced into patients' lives. She feels she has a lot of understanding of dialysis and transplant to help patients deal with the emotional side of the process. Sue is married to her husband Marty of 17 years, and they have 3 wonderful grown children. They also have 1 dog and 1 cat. She works as a secretary at St John Lutheran Church. In her free time she loves to read and garden. Additional resources: NKF Peers Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts.
In this enlightening episode, Dr. Dustin Portela, a board-certified dermatologist, is joined by Leah Adams, a stage 1A melanoma survivor and skin cancer awareness advocate. Together, they dive into the world of skin cancer awareness, prevention, and early detection. Leah interviews Dr. Portela about the importance of understanding different types of skin cancer, debunking common myths, and sharing essential resources for those affected. Along the way, they emphasize the critical role of self-care, regular skin checks, and the power of social support groups. Leah Alexis Adams received her Bachelor's of Science from Ohio University in Child and Family Studies with a minor in Psychology. She then received her dual Master's degree in Social Science Administration and Nonprofit Management from Case Western Reserve University. Leah is the Program Manager for the National Kidney Foundation's Northern Ohio office. She has been with the organization for almost 5 years. In her role, Leah manages the planning and implementation of all NKF programs in the Northern OH territory to support kidney patients, caregivers and raise awareness in her community, and educate healthcare professionals. Some personal things to note about Leah is that she is an avid runner who has ran 3 full marathons, she loves to hike in her local Ohio Metroparks and state parks and she loves to travel whenever she has the opportunity. When she is off the clock you can find her advocating about skin cancer, sun safety and sharing her (stage IA) and her father's (stage IV metastatic) story of melanoma to anyone who is willing to listen and learn. Through sharing her story with melanoma on social media/online, she has had the privilege and opportunity to work with multiple brands in the sun safety space, has been featured on local news stations, magazines and has been a guest on a variety of podcasts. Follow Leah on Instagram Key Points Covered: Dr. Dustin Portela's Journey into Dermatology: Shares his path from a curious middle schooler dissecting frogs to becoming a board-certified dermatologist. Discusses why he chose dermatology for its blend of procedural and medical treatments. Breaking Down Skin Cancer: Explains the three primary types: basal cell carcinoma, squamous cell carcinoma, and melanoma. Highlights the varying levels of risk and common characteristics of each type. Melanoma Awareness: Leah shares her personal story as a stage 1A melanoma survivor, providing insights into the challenges of early detection and treatment. They discuss the ABCDEs of melanoma identification and how individuals can empower themselves through self-exams. Prevention and Early Detection Strategies: Dr. Portela emphasizes the importance of sun protection from an early age. Encourages monthly skin checks, particularly for those with family histories or increased risk. Managing and Treating Skin Cancer: Outlines the treatment process for different types of skin cancer, emphasizing surgical excision and Mohs micrographic surgery. Discusses how sentinel lymph node biopsies are used in managing melanoma. Support and Resources: Suggests reliable resources such as the Skin Cancer Foundation and local support groups. Highlights how organizations like Outrun the Sun raise funds for critical research and connect people. Myths and Misconceptions: Dr. Portela debunks myths surrounding sunscreen, emphasizing its role in reducing skin cancer risk. Explains how the misconception of sunscreen causing cancer is harmful and unfounded. Final Takeaways: Leah and Dr. Portela encourage everyone to prioritize their skin health by using sunscreen, seeking regular skin checks, and fostering healthy lifestyle habits. They underscore the power of social support and research advancements in improving melanoma outcomes. Support the Dr. Dustin Podcast and my mission to take free dermatology care to underserved communities through my mobile clinic. You can support us by shopping for skincare through the links below Skinbetter Science: My favorite premium skincare line Shop Skinbetter Science Discounts on Neutrogena, EltaMD and more on the Aire Skin Store
Kidney donor Michele Love tells Nestor her story of giving life and invites you to Sante for the National Kidney Foundation on May 8th at The Baltimore Museum of Industry. The post Kidney donor Michele Love tells Nestor her story of giving life and invites you to Sante for NKF first appeared on Baltimore Positive WNST.
Rachel Meyer the Strategic Policy Advisor at the American Society of Nephrology and Sharon Pearce, Senior Vice President of Governance Affairs at National Kidney Foundation discuss the changes in U.S. policy regarding organ transplantation. Organ Procurement and Transplantation Network (OPTN) Modernization Initiative: https://www.hrsa.gov/optn-modernization “Dialysis Facility Profit Status and Early Steps in Kidney Transplantation in the Southeastern United States” https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8216615/ “Disparities in kidney transplant waitlisting among young patients without medical comorbidities” https://pubmed.ncbi.nlm.nih.gov/37782509/ “Patient Preferences for Waiting Time and Kidney Quality” https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9625104/ H.R.2923 - Living Donor Protection Act of 2023: https://www.congress.gov/bill/118th-congress/house-bill/2923?s=1&r=9 National Living Donor Assistance Center (NLDAC): https://www.livingdonorassistance.org/ H.R.6171 - Living Organ Donor Tax Credit Act of 2023: https://www.congress.gov/bill/118th-congress/house-bill/6171
When a kidney from a deceased donor becomes available, it is scored on a system called the Kidney Donor Profile Index (KDPI). How does the KDPI work and is it accurate at predicting possible transplant survival compared to a lower KDPI donation or a living donor? On this episode, we speak with experts to get the facts. Nichole Jefferson is a kidney transplant recipient and active member of NKF's Kidney Advocacy Committee. She has attended every Kidney Patient Summit with NKF in Washington, D.C. since 2014, representing the states of Iowa and Texas. Presently, she is the Co-Chair of the NKF Kidney Advocacy Committee's Diversity & Health Equity Advisory Committee. In this position, she shares her experiences and advocates for kidney disease awareness and needs. This is a way for her to pay it forward to her community. Anne Huml, MD, MS is a transplant nephrologist and clinical researcher in the Department of Kidney Medicine within the Cleveland Clinic's Glickman Urological and Kidney Institute. She is an Assistant Professor of Medicine at Cleveland Clinic Lerner College of Medicine. One of her primary research focuses is on health disparities in kidney disease, particularly on access to kidney transplant. She has worked on research teams to: improve access to the kidney transplant waiting list through the use of patient navigators; evaluate deceased donor organ offers to patients at the top of the waiting list; and investigate access to kidney transplant and transplant outcomes in large, national databases. Additional Resources Transplantation Resources (Transplants For All) Underutilized Kidneys Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts.
Sarah chats with two super neat physicians, Dr. Niralee Patel & Dr. Sharmeela Saha, about kidneys! Learn more about what it takes to become a kidney doctor and how it's a multi-disciplinary profession. Bonus points if you can remember what foods are high in potassium (hint: think beyond bananas)! Guest email contacts: niralee.patel@uc.edu and sharmeela.saha@uc.eduHelpful links: PKD[F] is polycystic kidney disease [foundation] | https://pkdcure.org/ Dialysis | https://www.kidney.org/atoz/content/dialysisinfo NKF is the National Kidney Foundation | https://www.kidney.org/ Nephrology MSSP, NepSim & more are offered for UCCOM students!
JANUARY 2024, update on Christina's heart surgery, update on Christina's kidney diagnosis and medicine, passed on NKF summit but Christina is healing amazing so accepted and invited to a special summit, excited planning a trip for Christina to Florida so she can swim and walk on the beach and answering questions from the group. Shameka Aisborne, Ivan Castillo, Gabi Morales, Angel Pitts. --- Send in a voice message: https://podcasters.spotify.com/pod/show/blindchickliving/message
Clinical trials exist to help prevent, screen for, diagnose, or treat diseases and other health problems. Without them, we would not have new treatments or other advances in health and medicine. But how are the clinical trial endpoints, or the preferred outcomes of these trials determined? Today, Anthony Gucciardo NKF's Senior Vice President of Strategic Partnerships, Dr. Joseph Vassalotti, NKF's Chief Medical Officer, and Kent Bressler, a Patient advocate and FSGS patient, discuss this and more. In this episode we heard from: Dr. Joseph Vassalotti MD Dr. Vassalotti is the Chief Medical Officer of the National Kidney Foundation (NKF) and Clinical Professor of Medicine in the Division of Nephrology, at Icahn School of Medicine at Mount Sinai. At NKF, his major focus is implementation of evidence-based clinical practice guidelines in chronic kidney disease (CKD). He led collaborations to develop the Kidney Health Evaluation for Adults with Diabetes quality measure to improve evidenced based estimated glomerular filtration rate and albuminuria testing to guide detection, risk stratification and interventions proportional to risk in the U.S. He also served as PI for an AARP-funded Kidney Health Evaluation for Adults with Diabetes to analyze quality measure satisfaction with detection, evidenced-based therapies and health equity. Currently, he serves as Principal Investigator for the Kidney Score Platform, an NKF educational project funded by the Veterans Administration Center for Innovation to improve awareness and education among Veterans with and at risk for CKD in the primary care setting. He is also a co-investigator for the Center for Disease Control and Prevention's CKD Surveillance Project. Dr. Vassalotti typically sees approximately 40 patients per week and has over 100 publications in peerreviewed journals. Anthony Gucciardo Anthony is responsible for forging and maintaining relations with key external stakeholders across a wide range of industries, to advance NKF's mission and objectives, along with those of its partner organizations. Anthony oversees two national Corporate Development Teams, focused on securing revenue necessary to ensure NKF programmatic excellence and impact. He has been with the Foundation since 2002. Prior to NKF, Anthony was a Hematopoietic Stem Cell Technologist at Memorial Sloan-Kettering Cancer Center in New York City, where he was responsible for processing autogeneic/allogeneic bone marrow and peripheral blood stem cells for transplantation. He holds a master's degree in Biochemistry from Columbia University. Kent Bressler Kent is a retired RN who was diagnosed with FSGS in 1984, and received a living donor transplant from his brother Kip in 1987. Kent is an active advocate for preemptive kidney transplant and has on the recommendation of NKF worked closely with the DoD and PCORI as a consumer peer reviewer. He is an NKF peer mentor and advocate who has collaborated on an editorial “Change in Albuminuria and GFR as End Points for Clinical Trials in Early Stages of Chronic Kidney Disease,” published in AJKD in 2019. He will also be participating in the development of the new NKF Patient Network serving on the Data Input and Integration Committee. He has been an active hill advocate for the NKF for six years and was the proud recipient of the 2017 Richard K. Salick Advocacy Award. Kent is also an Army Veteran and retired from the Veterans administration as an RN. He is the co-founder of Kidney Solutions a not for profit program in Texas that assists patients and families in the transplant process and in finding a donor. He is currently an assistant team leader for Region 7. Kent and Cathy Bressler have been married for 50 years and their family consists of Gretchen and Todd Rossington and their son Colt and Celeste and Alex Brown and their children John Banks, Catherine and Alexis Brown. Additional Resources: Find Clinical Trials Clinical Trial Q&A Xenotransplantation Info Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts.
At the National Kidney Foundation, we believe that everyone who needs a kidney should get a kidney. To make this dream a reality, we've launched the Transplants for All Initiative. What is this initiative and how will it make a difference in the lives of people with kidney disease? In today's episode special guests Morgan Reid, NKF's Transplant Policy & Strategy Director and Haley Jenson, NKF's Transplant Programs Director explain this and more. Morgan Reid Morgan Reid is the Director of Transplant Policy & Strategy for the National Kidney Foundation, implementing strategies and creating patient-centric policies that promote equitable kidney transplantation access. A kidney transplant recipient herself, with personal experience as a chronic kidney disease, kidney failure, and dialysis patient, she has a deep passion for improving organ donation and transplant processes. Haley Jensen Haley Jensen, MPH MBA, is Director of Transplant Programs for the National Kidney Foundation. She is responsible for leading growth and strategy for transplant educational programs, as well as overseeing organization-wide initiatives to ensure Transplants for All through research, innovation, awareness, and professional education. Haley is a kidney transplant recipient with years of volunteer advocacy and peer mentorship experience. She is passionate about ensuring every patient has the opportunity to receive the gift of life. Additional resources: Transplants for All Resources Transplants for All Blog Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts.
Not too long ago, peer-to-peer fundraisers relied on letter-writing, phone calls, and pledge envelopes to raise money for their favorite causes. Now, we we have email, countless social media channels and mobile apps literally at our fingertips, making it even easier to fundraise. In theory, right?However, the latest technology alone isn't enough for successful peer-to-peer fundraising. The most valuable resource for a peer-to-peer fundraiser is a great staff partner who guides them towards achieving their goals and making a real impact for the causes they love. But the shift to a remote working environment and turnover in many front-line fundraiser roles, the importance of our staff's role as fundraising coach has been lost.In this episode, P2PPF's Marcie Maxwell is joined by Deanna van Lear, the National Kidney Foundation's Kidney WalkNational Director. The duo swap stories about the early 2000s, highlighting the differences and similarities between peer-to-peer fundraising then and now. They also discuss the essential need for professional fundraisers to adapt to the ever-changing landscape.In today's episode, we'll explore: How NKF is retraining its local field staff and volunteers to fundraise The importance of coaching participants to achieve their goals How to come out from behind the crutch of digital communication and get back to in-person conversations Systems that NKF is putting in place to help local staff achieve their goals Mentioned Links National Kidney Foundation Kidney Walk Take a Minute For Your Kidneys Stay Connected on LinkedIn Connect with Deanna Connect with Marcie Connect with the Peer-to-Peer Professional Forum (00:00) - Welcome to The P2P Soap Box (01:20) - Introducing Deanna van Lear (04:06) - About Deanna (06:43) - Evolving Peer-to-Peer (14:30) - Re-learning Fundraising in 2023 (24:22) - Learning to Listen to the Data (31:03) - Learn More
For far too long treatments for CKD haven't changed. Launched in 2021, the NKF Innovation Fund works to accelerate funding, and development of therapies that kidney patients deserve. On this episode, you will hear from NKF CEO Kevin Longino interviews Kathleen St. Jean, Chief Commercial Officer of 34 Lives, one of the first recipients of a significant investment from NKF's Innovation Fund to help further develop a new technology to rehabilitate donated kidneys for transplantation. Kathleen St. Jean Kathleen's background makes her uniquely suited to lead the team at 34 Lives with CEO Chris Jaynes. She began her career at Merck & Co., Inc., with a number of leadership roles in Sales, Professional Learning & Development and Customer Strategy. She was known for her creativity, forward thinking and passion to always put customers and patients first. In her last role at Merck, Kathleen served as sales lead for the commercialization of two adherence software products with a goal of improving health outcomes.In Phase Two of her career, Kathleen served as Director of Business Development for Imedex and Executive VP at SeaStar Medical. The latter focused on therapies designed to reduce the consequences of excessive inflammation on vital organs. Kathleen and Chris worked together at both companies and decided to combine their knowledge of healthcare and interest in transplantation into solving the current organ transplant crisis in the US. They founded 34 Lives (formerly Renovera) in March 2021 as a Public Benefit Company (PBC) to serve and honor organ donors, recipients and those who care for them. Kevin Longino Kevin Longino has been Chief Executive Officer (CEO) of the National Kidney Foundation since 2015. He first became involved with the organization in 2008 as a volunteer advocate, and in 2012 he joined the national Board of Directors. As CEO, Kevin leads a team headquartered in New York, NY, and field offices around the country. NKF is supported by thousands of volunteers nationwide and serves millions of patients and healthcare providers seeking support and education every year. In 2004, Kevin received a life-saving kidney transplant after at-home peritoneal dialysis and is now 19 years “kidney strong”. He readily shares his story and uses his experience to help other kidney disease patients. Additional Resources: NKF Innovation Fund Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts.
Donating a kidney is one of the most selfless gifts one person can give to another. But what is that experience like for the donor before and after the transplant surgery? Today, we'll hear from Jessica Kolansky, a living kidney donor, and Alexandra Catalyst, a transplant coordinator, about the post transplant experience and what resources are available to donors after the surgery. On today's episode we heard from: Jessica Kolansky In 2013, Jessica's Dad was diagnosed with end stage renal disease. When Jessica and her brother learned of the diagnosis, both immediately volunteered to be tested for compatibility, despite Dad's exclaiming “I didn't raise you for spare parts!” Both were eligible donors, but Jessica pulled the big sister card and became the living donor on June 3, 2014. Jessica and her Dad are each doing well as they approach their 9th kidneyversary.Jessica initially got involved with the National Kidney Foundation while researching what to expect as a living donor and quickly signed up for the Philadelphia Kidney Walk. She received a call shortly thereafter from a member of the local NKF office and an instant bond was formed. Team Papa K has been among the top fundraisers in Philly for the last nine years. Jessica was honored to join the Board of Advisors for Eastern PA and NJ and enjoys working with the Kidney Advocacy Committee to advocate for kidney patients across the country. Jessica and her husband Daniel, also a kidney donor to his father, live in Philly with their dog Paco. Alexandra Tatooles LCSW, ACM-SW Lexi Tatooles is the living donor social worker at Rush University Medical Center. She is also the outpatient ambulatory care social worker for the cardiology and vascular department. She received my Master's in Social Work at UIC Jane Addams College of Social Work in 2018 and from there started her social work career at Rush in 2019. Although she wears many hats in her current roles, she really enjoys getting to work with the various disciplines within the hospital setting and coming from a perspective of looking at patients from a holistic approach to better advocate for patients' needs and identify barriers. When she is not at work she love to get outside and explore my Bucktown neighborhood with her fiancé and their 90lb goldendoodle named Charlie. Additional Resources: NKF Peers CKD and Metal Health Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts.
Mike was just seven years old when he lost his father to kidney disease, and many years later he learned that he was at an advanced stage of the inherited condition called polycystic kidney disease (PKD), and his kidneys were slowly failing. 2019 was a very challenging year and Mike experienced multiple medical issues. He knew he needed a transplant, and that the waitlist was long and with no guarantees. Mike started researching how to go about receiving a kidney from a living donor, and he came across resources from “The Big Ask, The Big Give,” a program of The National Kidney Foundation. Asking for a kidney can be awkward, and using social media is a whole different world for someone who never used Facebook, so Mike needed a champion. In this episode he shares how before he asked for a kidney, he had to ask for help, and navigate the pandemic at the same time. Meanwhile, Mike's niece Andrea had never thought very much about donating an organ until she heard Uncle Mike's story. In the second part of this episode, Andrea shares with us how she came to the realization that she could do something significant to help. She also discusses how gifting a kidney has opened up a new and unexpected richness in her life, including her involvement with Kidney Donor Athletes, and a recent trip to Mount Kilimanjaro. FULL TRANSCRIPT ⬇ With host and series producer Rolf Taylor. Resources mentioned during this episode: The Big Ask, The Big Give, NKF www.kidney.org/transplantation/livingdonors Kidney Donor Athletes www.kidneydonorathlete.org/ Kidney Transplant Conversations is underwritten by Veloxis Pharmaceuticals, Inc. All views and opinions expressed in the podcast reflect those of the participants and do not necessarily represent the views and opinions of Veloxis Pharmaceuticals, Inc. Excerpts “I'm not very media savvy, let's put it that way. I don't do any social things on the internet because I'm an old guy. They said find someone to be your champion. My daughter-in-law volunteered for this project.” – Mike “What happened to me was a miracle because if you look at kidney transplants for people my age, it's really low, when I got my transplant, I was 69.” – Mike “The next words she said were “I'm approved as a donor for Uncle Mike. It just came out of the blue! We had no idea that she went through all these tests. She didn't want anyone to know in case she could not help.” – Mike “It has been one of the best things that I have done in my life. I'm just so grateful for the doctors and for science and for all the support that I was able to find. I was so blessed to be able to give this gift.” – Andrea © Project Advocacy, 2022 - 2023
Epost: Laernorsknaa@gmail.com Episoden på nettstedet: https://laernorsknaa.com/102-historien-bak-kvinners-stemmerett-i-norge/ Patreon: https://www.patreon.com/laernorsknaa Donasjon (Paypal): https://www.paypal.com/donate?token=-yR0zEJ65wE-69zvoB17FdXGd7Gh1fXTKI5CsvjA2jbcQcV9KgR35SBYpH6JD5ofFImlLCuCuNuinHyh Instagram: https://www.instagram.com/norwegiannowwithmarius/ Twitter: https://twitter.com/MariusStangela1 YouTube: https://www.youtube.com/channel/UCxdRJ5lW2QlUNRfff-ZoE-A/videos Norge blei et demokratisk land i 1814 da vi blei selvstendige fra Danmark og fikk vår egen grunnlov. Likevel var det ikke alle som fikk stemmerett ved den nye grunnloven. Ingen kvinner og bare ca. halvparten av menn hadde ikke stemmerett i 1814. Det blei først innført allmenn stemmerett for menn i 1898, nesten hundre år senere. Allmenn stemmerett betyr noe som er åpent for alle. I 1898 fikk alle menn over 25 år stemmerett. Kvinner måtte vente helt til 1913 før de fikk stemmerett. Men med dette var faktisk Norge et av de første landene i verden som innførte allmenn stemmerett for kvinner. Vi skal se litt på historien bak dette. Stemmerettkampen for kvinner begynte skikkelig i 1884. Da blei den første kvinneorganisasjonen Norsk kvinnesaksforening (NKF) stifta. Gina Krog og Hagbard Bergen var de som stifta organisasjonen. Gina Krog er spesielt kjent. Hun blir av mange regna som stammoren for kvinnekampen i Norge. Gina Krog var for eksempel veldig tidlig ute med å si at kvinner burde ha like rettigheter som menn til å stemme ved lokale og nasjonale valg. Dette var veldig radikalt i 1884. I 1884 hadde ikke engang alle menn stemmerett, og allmenn stemmerett for menn blei ikke innført før i 1898, 15 år senere. Gina var derfor radikal i sin samtid og faktisk for radikal for sin egen organisasjon, Norsk kvinnesaksforening. Hun stifta derfor året etterpå, i 1885, Kvinnestemmerettsforeningen.
Did you know that 40% of chronic kidney disease progression may be preventable with earlier diagnosis and treatment? On this episode, you will hear the facts around treating CKD earlier from Dr. Joe Vassalotti, NKF's Chief Medical Officer. You will also hear from Jane DeMeis on her journey with kidney disease. In this episode we spoke with, Joseph A. Vassalotti . MD Dr. Vassalotti is the Chief Medical Officer of the National Kidney Foundation (NKF) and Clinical Professor of Medicine in the Division of Nephrology, at Icahn School of Medicine at Mount Sinai. At NKF, his major focus is implementation of evidence based clinical practice guidelines in chronic kidney disease (CKD). He led collaborations to develop the Kidney Health Evaluation for Adults with Diabetes quality measure to improve evidenced based estimated glomerular filtration guide detection, risk stratification and interventions rate and albuminuria testing to proportional to risk also served as PI for an AARP in the U.S. He funded Kidney Health Evaluation for Adults with Diabetes to analyze quality measure satisfaction with detection, evidenced Platform based therapies and health equity. Currently, he serves as Principal Investigator for the Kidney Score , an NKF educational project funded by the Veterans Administration Center for Innovation to improve awareness and education among Veterans with and at risk for CKD in the primary care setting. He is also a coinvestigator for the Center for Disease Control and Prevention's CKD Surveillance Project. Dr. Vassalotti typically sees approximately 40 patients per week and has over 100 publications in peer reviewed journals. Jane DeMeis Ms. DeMeis became involved with the National Kidney Foundation in 2018 after she was diagnosed with stage 4 kidney disease. Previously, Ms. DeMeis had been in stage three since 2010 and also developed diabetes. Ms. DeMeis attended classes, read and took training and became very knowledgeable about nutrition and lifestyle for CKD. She is a certified Kidney Coach. Ms. DeMeis is the Chairperson of the Perinton Ambulance Corps and when COVID allows will be bringing kidney education to their Community Outreach program. Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts. Additional Resources: Early Diagnosis of Kidney Disease: Incentivizing Comprehensive Testing
Guest Colleen Hjort-Frederiksen is a Living Donor Support Manager with The National Kidney Foundation AND a Living Kidney Donor. Tune in to hear her personal story & also find out how to be a Living Organ Donor. Want to know more about living donation? Check out the NKF website: https://www.kidney.org/transplantation If you're currently testing to donate or are a kidney patient interested in a peer mentor OR if you've donated or are a kidney patient interested in being a peer mentor, they can check out the NKF PEERS webpage with link to register here: https://www.kidney.org/peers Reach out to Colleen directly! colleen.hjortfrederiksen@kidney.org Full Shownotes: https://miavoss.live/76 Find Mia On Social Media here. Listen and subscribe to the podcast: Apple Podcasts | Spotify | Google Podcasts | RadioPublic | PocketCasts | Anchor --- Support this podcast: https://anchor.fm/miavosslive/support
Las personas indocumentadas enfrentan bastantes barreras para acceder cobertura y atención médica, incluyendo el tratamiento para la enfermedad renal. En este episodio, nuestras expertas invitadas discuten qué opciones de tratamiento están disponibles actualmente para las personas indocumentadas y qué tipo de esfuerzos se están haciendo para mejorar el acceso a la atención médica. En este episodio, conversamos con: Lilia Cervantes, MD La Dra. Cervantes obtuvo su título universitario en la Universidad de Colorado en Boulder. Al finalizar, ingresó a la Escuela de Medicina de la Universidad de Colorado para completar su grado doctoral y posteriormente realiza su residencia en medicina interna. Ser latina de primera generación fue la inspiración de su gran compromiso de convertirse en médico, al igual que su servicio a la comunidad, su activismo e investigación, centrada en la promoción de la justicia social en la educación y atención médica. La Dra. Cervantes ha ejercido por más de 12 años como médico internista en Denver Health, hospital de red segura, y ha dedicado su carrera en crear un equipo diverso de profesionales de la salud. De igual manera, ha dirigido investigaciones para mejorar el desempeño clínico y fomentar una atención centrada en la persona entre los pacientes latinxs en diálisis. El motivo de su interés por mejorar los resultados de los pacientes latinxs con enfermedad renal crónica fue a raíz de una paciente latina indocumentada con insuficiencia renal, quien luchó contra la diálisis de urgencia (diálisis en la sala de emergencias cuando se encuentra en estado crítico) hasta que falleció. Financiado por la RWJF y la Fundación Doris Duke, la Dra. Cervantes descubrió los peores desenlaces de los inmigrantes indocumentados que dependen únicamente de la diálisis en urgencias. Como resultado de su investigación y la participación de las partes interesadas, en el 2019, Colorado Medicaid optó por incluir el diagnóstico de insuficiencia renal como una de las condiciones que cualifican para Medicaid de Emergencia, ampliando así el acceso a la diálisis estándar. Además de su trabajo con la comunidad de personas indocumentadas con insuficiencia renal, la Dra. Cervantes está desarrollando intervenciones culturalmente adaptadas que abordarán los retos sociales a los que se enfrentan las minorías raciales y étnicas con enfermedad renal crónica. Luz Baqueiro Luz fue diagnosticada con una enfermedad renal en etapa terminal para el año 2018 y recientemente ha recibido un trasplante de riñón. Al no ser ciudadana americana de nacimiento, Luz, no contaba con los requisitos necesarios para recibir asistencia del gobierno, como el Medicaid; por lo que tuvo que comenzar diálisis en salas de emergencias por casi un año. Luego de conocer personalmente lo que significa no poder recibir los cuidados necesarios por el simple hecho de no ser ciudadano, decide unirse al grupo de activistas de la NKF y así poder crear conciencia sobre estos temas, compartir su historia y la de muchas otras personas que no reciben los cuidados adecuados que tan desesperadamente necesitan. Recursos adicionales: Open Letter to State Medicaid Directors Sé parte del Grupo de Activistas/Defensores ¿Tienes comentarios, preguntas o sugerencias? Envíenos un correo electrónico a NKFpodcast@kidney.org. Además, no olvide reseñarnos dondequiera que escuche podcasts.
Martin har vært i Trondheim på Jobb Smartere konferansen, kommune-norge sin egen PropTech samling. Konferansen blir organisert hvert år av Norsk kommunalteknisk forening for å løfte frem og dele eiendomsteknologisk innovasjon i kommunal-sektor. Linker i episoden: Norsk Kommunalteknisk ForeningJobb Smartere konferansenApurgoN3 SmartBritannia hotellTork Vision RenholdGuard Automation Street Smart
While many people feel like the world is headed back to normal, many kidney patients can feel left behind. COVID-19 is still top of mind for those who are immunocompromised and we're here to offer resources and support. On today's episode, our guests will answer your questions about how COVID-19 affects transplant, dialysis, and early stage CKD patients. In this episode, we spoke with: Dan Weiner, MD Dan Weiner is a nephrologist at Tufts Medical Center and Associate Professor of Medicine at Tufts University School of Medicine. His clinical interests include home and in-center dialysis, hypertension and CKD. His research has focused on cardiovascular and cerebrovascular disease in CKD; clinical trials in CKD, dialysis and hypertension; decision-making in advanced CKD; and policy. He works closely with the American Society of Nephrology on kidney disease policy. He is DCI's Medical Director of Clinical Research, and he is the Editor-in-Chief of the NKF's journal, Kidney Medicine, and the NKF's Primer on Kidney Diseases, the 8th edition of which will be published in early 2022. Patrick Gee Patrick Gee is a Community Activist, fighting against systemic issues such as poverty, social and racial injustices, criminal justice reform, and education reform. Patrick worked for the Virginia Department of Corrections and the Virginia Department of Juvenile Justice, where during his time in service, he acquired several awards and recognitions. In April 2013, Patrick was diagnosed with Stage 3b End-Stage Kidney Disease (ESKD). He began doing Peritoneal Dialysis (PD) in December 2013. On April 21, 2017, Patrick received a kidney transplant. Patrick has been very passionate in his pursuit to speak on behalf of the underserved, undervalued, and disenfranchised communities of color. Because of this, he serves as an advocate and kidney patient expert for a number of organizations including the NKF, CMS, FDA, KHI, AKF, AAKP and HDU. Additional resources: COVID-19 resources What you need to know about COVID-19 in 2022 COVID-19 vaccine and treatments for people with kidney disease Regional resources for COVID-19 Kidney disease and COVID-19 Episode transcript Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts!
When we hear the word research, most of us think of innovative breakthrough treatments and technologies. But applied clinical research could not be possible without another type of research called basic science research in which scientists study the fundamental processes of the human body. In this episode, we'll learn what basic science research is and how it applies to the area of kidneys and kidney disease. In this episode, we spoke with: Hannah Wesselman Hannah Wesselman is a PhD candidate at the University of Notre Dame studying the genetic mechanisms underlying kidney development in Dr. Rebecca Wingert's lab. Prior to her dissertation work, Hannah worked with Dr. Larissa Myaskovsky at the University of Pittsburgh Center for Research on Health Care, and their collaboration continued as Dr. Myaskovsky moved to the University of New Mexico Center for Healthcare Equity in Kidney Disease. During this time, Hannah worked directly with kidney transplant patients, and later published in CJASN on social determinants and race disparities in kidney transplant. Inspired by the strength of the kidney community, Hannah has returned to bench science in the hopes of identifying new treatment targets and has continued to connect with kidney patients through NKF advocacy. Holly Kramer, M.D., MPH Holly Kramer, M.D., MPH, is a practicing nephrologist who conducts research connecting nutrition and kidney health. Her connection to the National Kidney Foundation was inspired by her mom, who was a dialysis nurse and helped create some of the first dialysis units in Northwest Indiana. Dr. Kramer finds being on the NKF Board important, because it is the largest, patient-centered organization focusing on kidney disease. Her long-term goal is to increase national funding for kidney disease research and to heighten awareness about chronic kidney disease. Joseph V. Bonventre, M.D., PhD Dr. Bonventre is the Samuel A. Levine Distinguished Professor of Medicine and Constantine L. Hampers Distinguished Chair at Harvard Medical School and Professor of Health Sciences and Technology at the Massachusetts Institute of Technology. He is Chief of the Renal Division and Founding Chief of the Engineering in Medicine Division of the Brigham and Women's Hospital. In addition to his B.S. with distinction in Engineering Physics from Cornell, Dr. Bonventre holds M.D. and Ph.D. degrees in Biophysics from Harvard University. He has honorary doctorate degrees from Mt. Saint Mary's College and from the Norwegian Institute of Science and Technology in Norway. He was Director of the Harvard-MIT Division of Health Sciences and Technology for 10 years. Additional resources: Kidney Research NKF Research Connect NKF Patient Network Become an Advocate Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts!
In our last episode, the first of several episodes celebrating National Donate Life Month, we sat down with Jennifer Martin from the National Kidney Foundation and learned about “The Big Ask, The Big Give”, a program dedicated to helping people with chronic kidney disease find their living kidney donor. In this episode we meet military veteran Darryl Shaw, a kidney cancer survivor who also served multiple tours of duty. Darryl's family members helped champion a successful campaign to raise funds for a kidney transplant, funding that helped his eventual living donor complete the initial compatibility tests. Darryl now volunteers as a mentor with programs such as “The Big Ask, The Big Give” from NKF, sharing his experiences and giving encouragement. He can offer perspectives from the point of view of ESKD patient who received a kidney from a friend and colleague, as well as being someone who opted for home dialysis and overcame many medical challenges. Darryl is now studying for his master's degree in Pastoral Counseling, and he plans to continue in service to the kidney patient community. With host and series producer Rolf Taylor. Resources mentioned during the podcast: Every April is National Donate Life month www.donatelife.net/ndlm/ The Big Ask, The Big Give, NKF www.kidney.org/transplantation/livingdonors The National Foundation for Transplants www.transplants.org Mighty Cause www.mightycause.org We thank the participants and advisors who help make Kidney Transplant Conversations possible. Kidney Transplant Conversations is underwritten by Veloxis Pharmaceuticals, Inc. All views and opinions expressed in the podcast reflect those of the participants and do not necessarily represent the views and opinions of Veloxis Pharmaceuticals, Inc. © Project Advocacy, 2022 FULL TRANSCRIPT ⬇️
In this episode we discuss salt intake in the setting of chronic kidney disease. We start our discussion defining salt vs sodium and further discuss the physiology and outcomes of a high-sodium diet. We also review the guidelines and some helpful tips on implementing them. Understanding that patient challenges to a low-sodium diet might be present, we hear from our multidisciplinary panel on recommendations to overcome these problems. The episode finishes with a review, and discussion of the beneficial outcomes of successful implementation of a low-sodium diet. Click HERE to claim CE Credit. After listening, check out episode 12 of NKF's Hot Topics in Kidney Health podcast series, How Much Sodium is Safe for Kidney Patients?
Shared decision making can play a vital role in the treatment of kidney disease. When physicians involve patients in their care, they may be able to help slow progression and improve outcomes. In this episode, we discussed how patients and their physicians can achieve this and hear stories from patients who have been there. In this episode, we spoke with: Ansara Piebenga, parent of a child with kidney disease Ansara Piebenga is the mother of two daughters. Her younger daughter was diagnosed at four months of age with a rare, genetic disease called primary hyperoxaluria. She received a year of daily (seven days a week!) hemodialysis and nightly peritoneal dialysis while being fed only through a gastric-tube. Once she grew large enough (10 kilograms) she received a combined kidney and liver transplant at Stanford's Lucile Packard Children's Hospital at only 16 months of age. Ansara's younger daughter is now a teenager who enjoys driving, playing lacrosse, and petting her three dogs. Her daughter will celebrate 15 years with her transplanted organs this June and their entire family will thank her donor's family once again for their selfless and generous gift. Ansara has mentored other families facing chronic kidney disease since 2007. She volunteers for Children's Mercy Hospital in Kansas City, the Medical University of South Carolina, the Improving Renal Outcomes Collaborative, Transplant Families, the National Kidney Foundation, the American Society of Pediatric Nephrology, and the American Academy of Pediatrics. Dr. Susan P. Wong, nephrologist Susan Wong is an Assistant Professor at the University of Washington and a nephrologist and bioethics consultant at the Seattle VA. She leads a research program on treatment practices for advanced kidney disease with a focus on dialysis practices, conservative management without dialysis, and end-of-life and kidney palliative care. When she's not working, she enjoys spending her time gardening and with her 3 beautiful children. Dr. Taylor House, nephrology fellow Dr. Taylor House is a senior pediatric nephrology fellow at the University of Washington and Seattle Children's Hospital, and she will be joining the faculty at the University of Wisconsin at Madison in the fall. She performs research focused on supporting the flourishing of children with kidney disease and their families through the integration of palliative care into routine nephrology care. She has a specific interest in improving communication between patients, caregivers, and clinicians surrounding kidney disease decision-making. Elizabeth Fortune, kidney patient Elizabeth Fortune was diagnosed with cancer in 2011. Two significant developments came from her fight with cancer. First, she and her husband started their own non-profit to support fellow cancer survivors and their caregiver. Second, she was left with End-Stage Renal Disease as a result of chemotherapy. She has been on dialysis since her diagnosis in April 2014. She is a member of NKF's Kidney Advocacy Committee. She also enjoys knitting, reading, writing about her experience with cancer and kidney failure, and traveling with her husband. They also have the greatest cat, Mr. Meowington.
People with chronic conditions like kidney disease face mental health struggles such as depression or anxiety. In many kidney patients those challenges often go overlooked or undertreated. In this episode, we sat down with a mentor and mentee from NKF Peers to discuss their experiences and the importance of talking to someone who knows what you've been through. In this episode, we spoke with: Doris Lew Doris Lew, a transplant recipient since 2016, just celebrated her six-year kidney-versary on May 12th. She received her kidney from a living donor after a year of peritoneal dialysis as a part of a ten-way chain. She was diagnosed with IgA Nephropathy and is continually learning about her kidney disease. She has two grown sons and currently lives in Oakland, CA, with her husband and two dogs. Manusca Belony Manusca Belony has been living with kidney disease since 2019 and has recently begun peritoneal dialysis. She lives in Massachusetts with her husband and two children. Marissa Argentina, LMSW Marissa Argentina is the Patient Programs Director at the National Kidney Foundation whose primary role is overseeing patient support initiatives to improve kidney patient outcomes. She has provided oversight to the NKF Peers program since 2017. Prior to joining the National Kidney Foundation, Marissa worked as a dialysis center social worker. Additional resources: More information on NKF Peers (You can also call 855.NKF.PEER or email us at nkfpeers@kidney.org) Participant Form Mentor Application Episode transcript Depression and Dialysis Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts!
If you are in need of a kidney transplant, finding a living donor can sound scary and overwhelming. Where should you start and what's the best way to share your story with the world? In this episode, you will hear from transplant recipients who once stood in your shoes. In this episode, we spoke with: Dorothy Muench, LCSW Dori Muench is a post-transplant social worker with the Abdominal Organ transplant department with Wake Forest Baptist Medical Center for the past 5 years. In this capacity, she works with numerous individuals who have received a kidney or pancreas transplant and works to provide concrete and emotional support. Before this, Dori worked in dialysis for close to 10 years and has seen and heard the effects people have while on dialysis. She works hard to advocate for people to be transplant and find living donors so they can decrease as much time on dialysis as possible. Dori lives in North Carolina with her husband, 2 daughters and golden retriever. Gisela Delgado At the age of 14, Gisela was rushed to the emergency room after having Coca Cola colored urine. It took 6 months of various testing to eventually be diagnosed with IgA Nephropathy via kidney biopsy. The doctors told her and her parents that there was no cure, no proven treatment and that this disease would likely lead to kidney failure in 20-25 years. This was very upsetting and also left the family with a lot of unanswered questions. At the age of 30, Gisela was then rushed to the emergency room with flu-like symptoms. The doctors flagged GFR and Creatinine levels. She was then put on a course of meds to help with Proteinuria and to treat high blood pressure. At the age of 38 Gisela reached end stage kidney failure requiring a kidney transplant. Luckily she was able to receive a pre-emptive transplant from a living donor (her brother). For those that do not know - a kidney transplant is still considered a type of treatment for kidney failure. Today Gisela is a huge advocate for living donation and volunteers with The IgA Nephropathy Foundation as their Director of Brand + Creative. She looks forward to being “in the room where it happens” as the foundation is working hard with several Pharmaceutical partners to not only finding treatment but a cure for IgA Nephropathy. Morgan Reid Morgan Reid joined the National Kidney Foundation as the Director of Transplant Policy & Strategy in November 2021. In this role, Morgan will implement strategies and help create policies that promote equitable access to quality kidney healthcare and transplantation. Before joining NKF, Morgan worked for two Organ Procurement Organizations and a well-known transplant center. She has a deep passion for improving organ donation and transplant processes. A dear college friend donated a kidney to Morgan on January 9, 2007, after several years of dealing with an IgA Nephropathy diagnosis with nearly two years on peritoneal dialysis. She will use her personal experience and professional expertise to advocate for underserved communities that face barriers to kidney transplantation. Additional resources: Information on living donation Looking for a living donor Kidney Donation: How to Make the Ask The Top 3 Reasons People Are Afraid to Ask for a Kidney—and How to Overcome Them 5 Ways To Inspire Living Kidney Donation Living Donation: Sample Letter to Family and Friends Episode transcript Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts!
From the invention of the dialysis machine to the first successful kidney transplant, science has come a long way in extending life for kidney patients. Is transplantation between humans and animals the next step? In this episode, you will hear from a doctor behind the first successful transplant of a human receiving a pig kidney and where the science can take us from here. We dedicate this episode to the Parson Family, who made the selfless decision to delay their grieving process and permit the doctors at the University of Alabama to maintain Jim Parsons' body functioning on a ventilator so this scientific and medical breakthrough could be possible. In this episode, you will hear from: Jayme Locke, MD, MPH Dr. Locke is an abdominal transplant surgeon at the University of Alabama at Birmingham who specializes in innovative strategies for the transplantation of incompatible organs, disparities in access to and outcomes after solid organ transplantation, and transplantation of HIV-infected end-stage patients. Her research interests include complex statistical analysis and modeling of transplant outcomes and behavioral research focused on health disparities. Dr. Locke is an Associate Editor for Transplantation and is a regular peer reviewer for several journals, including the American Journal of Transplantation and the Journal of the American Society of Nephrology to name a few. She is an invited member of the ASTS Providing Better Access to Organs Task Force and Diversity Affairs Committee, the AST Kidney-Pancreas Committee, The Transplantation Society Young Member Committee, and the United Network for Organ Sharing Pediatric Transplant Committee. Dr. Locke is the recipient of numerous honors and has most recently received the American Transplant Congress Young Investigator Award, the Birmingham Business Journal's Top 40 under 40 Award, and was named one of AL.com's 2015 Women Who Shape the State. Jessica Washington Jessica Washington is an NKF patient advocate who was diagnosed with stage 2 kidney disease in 2019 after being diagnosed with a rare autoimmune disease. She works in the software industry as a Data Analyst and also enjoys freelance writing, in particular sports writing, traveling, and spending time with friends and family. She has been extremely motivated to advocate for the National Kidney Foundation to help others fight for better understanding, awareness, support, early detection and anything else she can do to make it easier for so many out there dealing with this disease. More information: How Genetically Altered Pigs Could Help Kidney Transplantation Episode Transcript
Many potential living organ donors have questions, such as what does the journey look like, and how do you know if you are eligible to donate? If you are one of them, this podcast is for you. On this episode, our panel will share the first-hand experience of being a living donor and walk you through the evaluation process. In this episode, you will hear from: Tania Kasongo Tania was born in the Democratic Republic of Congo and raised in Ohio. She is very passionate about health and wellness. She is a living kidney donor and donated her kidney in 2014 for her father. Tania graduated from The Ohio State University with a degree in Mass Communications and a minor in French. She works as an Events Marketing Manager for the American Chemical Society, and has her own event planning business, Yowa Events. In her spare time, she enjoys volunteering and is very involved in her community. She has volunteered for various organizations such as New York Cares, Ronald McDonald House charities, Nationwide Children's Hospital, Habitat for Humanity, and many more. She is also a strong advocate for diabetes, kidney health, and organ donation. Other activities Tania enjoys are exercising, traveling, cooking, and horticulture. Jennifer Bruns, LMSW Jennifer is a social worker who has worked with kidney patients for the past 23 years in the fields of dialysis, transplant and inpatient care. Jennifer has also served on the executive committee for the Council of Nephrology Social Workers and she is a living kidney donor. Miriam Goodwin Miriam is the Director of Health Policy for the National Kidney Foundation (NKF). In this capacity, she helps to define and execute NKF's public policy agenda with the federal government, working closely with patients, patient advocates, and professionals to ensure that public policy has the priorities of kidney patients at its center. Prior to joining NKF, Miriam was a member of the policy team at Roche/Genentech, where she worked to shape the Prescription Drug User Fee Act (PDUFA) commitments for the PDUFA V and PDUFA VI reauthorization cycles. Miriam earned her MPP from the George Washington University and a BA in biology from Earlham College. She is also a living kidney donor. Further resources on living donation: General Information on Living Donation How do I donate a kidney? Infórmate Acerca de la Donación de Riñón en Vida para Hispanos/Latinos (Learn About Living Kidney Donation for Hispanics/Latinos) For additional information, visit kidney.org/livingdonation.
You might have heard about drugs called SGLT2 inhibitors used in treatment of kidney disease, but, just like many other kidney patients, you might not know if they're right for you. On this episode, we explain how different SGLT2 inhibitors are from other kidney disease medications, discuss side effects, cost, and the ongoing research around this category of drugs. On this episode you will hear from: Katherine Tuttle, MD Dr. Tuttle is Executive Director for Research at Providence Health Care, Co-Principal Investigator of the Institute of Translational Health Sciences and Professor of Medicine at the University of Washington. Dr. Tuttle earned her medical degree and completed her residency in Internal Medicine at Northwestern University School of Medicine in Chicago, Illinois. She was a fellow in Metabolism and Endocrinology at Washington University in St. Louis, Missouri. Her Nephrology fellowship training was performed at University of Texas Health Science Center in San Antonio, Texas. Dr. Tuttle's major research interests are in clinical and translational science for diabetes and chronic kidney disease. She has published over 250 original research contributions and served two terms as Associate Editor for the Clinical Journal of the American Society of Nephrology and the American Journal of Kidney Disease. Dr. Tuttle has received many honors and awards including the Medal of Excellence from the American Association of Kidney Patients, Garbed Eknoyan Award from the National Kidney Foundation, the YWCA Woman of Achievement Award in Science, and two Outstanding Clinical Faculty Awards at the University of Washington. Dr. Tuttle served on the Board of Directors for the Kidney Health Initiative and has chaired numerous kidney and diabetes related working groups and committees for organizations including the NIDDK/NIH, the National Kidney Foundation, the American Society of Nephrology, the International Society of Nephrology, and the American Diabetes Association. Jane DeMeis, patient Ms. DeMeis became involved with the National Kidney Foundation when she was diagnosed in 2018 with stage 4 kidney disease. Ms. DeMeis was the Director of Education and Organizational Development for U R Medicine Home Care. Part of her responsibilities was working with clinicians in teaching them how to present education to patients. She also was the Chairperson of the Patient Family Centered Care program and worked with improving home care through patient advocacy. In 2018, Ms. DeMeis retired. She had been fighting CKD along with Psoriatic Arthritis for over 8 years and needed to focus on her health. She currently serves as a member of NKF's Kidney Advocacy Committee, as an Ambassador for NKF's online communities, and also as a NKF Peer mentor. Ms. DeMeis is the Chairperson of the Perinton Ambulance Corps and when Covid allows will be bringing Kidney education to their Community Outreach program. Her other volunteer activities include working with clients for the Perinton Food Shelf, on the Executive Board of the Perinton Historical Society as the Director of Communications, as a member of the Fairport Village Tree Board, and sings with the Perinton Senior Chorus. Looking for tips on how to limit your sodium? We have you covered.
As a kidney patient, you most likely know your estimated glomerular filtration rate, or eGFR, and that it's a way to check how well your kidneys are working. In the past some medical calculations, including a way to measure eGFR, included race in their estimates. In September, NKF and the American Society of Nephrology announced that their joint taskforce recommended a new, race-free approach to measuring eGFR. What does this new equation mean for patients, especially those who identify as Black or African American? In this episode, we sat down with two members of that taskforce to get the facts. In this episode, you will hear from: Mallika L. Mendu, MD, MBA Mallika Mendu, MD, MBA is Executive Medical Director of Clinical Operations for Brigham Health, in the Office of the Chief Medical Officer. Dr. Mendu is also a practicing nephrologist and Associate Medical Director of Mass General Brigham Population Health Management. She received her MD and MBA degrees from the Yale School of Medicine and Yale School of Management. During her internal medicine residency at Brigham and Women's Hospital, she was involved in the Medicine Management Leadership Track and developed an interest in addressing system-level deficiencies in quality and care delivery by implementing innovative interventions. She pursued nephrology fellowship at Brigham and Women's and Massachusetts General Hospital. Dr. Mendu's administrative responsibilities are focused on care continuum management and inpatient operations. Her research efforts relate to care delivery innovation, quality and safety and population health. Glenda Roberts Glenda is a passionate activist for kidney research and patients living with kidney disease. She's involved in myriad patient-centered national and international health care transformation initiatives. All are focused on addressing patient preferences and improving patient-reported outcomes. Glenda brings the patient voice to a number of NIH/NIDDK government and industry research efforts, as well as, the ASN COVID-19 Response Team and the ASN COVID-19 Transplant Subcommittee. She's a member of the ISN, the Kidney Health Initiative (KHI) Patient and Family Partnership Council (PFPC); Can-SOLVE CKD International Research Advisory Committee; Home Dialyzors United Advisory Board and she's has been an Ambassador for the American Association of Kidney Patients since 2018. Learn more about what this means for people living with kidney disease: https://www.kidney.org/newsletter/changes-to-egfr-calculation-and-what-means-people-living-kidney-disease
Just a very brief overview of the latest NEJM article discussing the joint efforts between the ASN and the NKF and recommending new GFR equations that eliminated race and focusing on pure biological determinates. https://www.nejm.org/doi/full/10.1056/NEJMoa2102953 --- Support this podcast: https://anchor.fm/andrew-kowalski/support
Many kidney disease patients often face financial hardships, such as having to leave a job or struggling to pay for medications. Applying for or maintaining insurance may also be overwhelming and may create challenges with access to care. In today's episode, physician and a postdoctoral research fellow Dr. Isaac Acquah talks about his recent research into the financial impact on people with chronic kidney disease with guests Beth Witten, a social worker, and Charles Pecoraro, a dialysis patient. In this episode, you will hear from: Dr. Isaac Acquah, MD, MPH Dr. Isaac Acquah is a physician and a postdoctoral research fellow at the Center for Outcomes Research at Houston Methodist Hospital. He holds an MD degree from the University of Ghana School of Medicine and Dentistry, and a Master of Public Health (MPH) degree from the Harvard T.H. Chan School of Public Health. He is particularly concerned about health care disparities and social determinants of health. Prior to moving to the United States, he practiced in both rural and urban settings where he directly experienced the influences of these determinants on a person's health. His current work as a postdoctoral fellow involves understanding health care disparities among different patient populations and how they affect patient outcomes. Beth Witten Beth Witten is a renal social worker. She has worked with dialysis and transplant patients for over 40 years. She has been an NKF employee and volunteer and past chair of NKF's social work council. Beth ran CKD classes for many years. She consults with the nonprofit Medical Education Institute. Beth speaks and writes on choosing a treatment, paying for treatment, working and living your best life with kidney disease. Charles Pecoraro Charles Pecoraro is a dialysis patient who is also currently on the transplant waitlist at Mayo Clinic in Florida. In June 2019 he was diagnosed and treated for Malignant Melanoma Cancer. In follow up visits with his PCP, they found he had high blood pressure. He experienced debilitating emotional, mental, and physical symptoms from CKD that ultimately affected his ability to continue working and he lost the business he had owned for many years. He also experienced delays in care due to insurance issues and ultimately started on dialysis emergently in March 2020. Charles is a kidney advocate with NKF. Resources mentioned in this episode: dol.gov (U.S. Department of Labor) ssa.gov/redbook or (800) 772-1213 (Social Security Disability Insurance) Healthcare.gov Medicare.gov Needymeds.org and mat.org (Medicine Assistance Tool) Benefits.gov Unitedway.org shiphelp.org or (877) 839-2675 (State Health Insurance Programs)
Over the past year, NKF advocates have won a number of policy campaigns both in Congress and state capitals across the country. While these victories will improve the lives of kidney patients nationwide, we're not done yet. We need every voice for kidney health to join the fight to ensure that we are heard across the country. In this episode, we discussed some recent wins and our upcoming challenges for the kidney advocate community with Jeff Currey, a Connecticut State Representative and kidney transplant recipient, and Armand Halter, an NKF patient advocate who helped lead NKF's efforts to pass the Connecticut version of the Living Donor Protection Act. In this episode, you will hear from: CT Representative Jeff Currey: Rep. Jeff Currey is a United States State Senator in Connecticut who who was re-elected to a fourth term in 2020 to serve the 11th Assembly District. Currey, who went public with his kidney failure prognosis in 2020, received a kidney transplant from a longtime friend in January 2021. In May he supported and advocate for the Living Donor Protection Act (HB 6387) in Connecticut, which prohibits insurers from discriminating against living organ donors and creates a committee to promote kidney donation in the state. Armand Halter: Armand Halter is a patient-advocate from Connecticut who has led NKF's efforts to pass a state version of the Living Donor Protection Act (HB 6387) in Connecticut, including testifying on February 11th. He has also been a mentor to fellow advocates and helped organize Connecticut advocates in their efforts to pass bills and raise awareness in the state legislature. For more information on NKF's advocacy efforts and how to become an advocate yourself, visit voices.kidney.org. You can also email us directly at advocacy@kidney.org.
A major worry for many people right now is the Delta variant, a highly contagious strain of COVID-19 which is making headlines across the United States. The FDA has just authorized a third dose of the COVID-19 vaccine so that immune compromised patients can better protecting themselves from the virus. What does this mean for CKD, dialysis, and transplant patients? We spoke with Dr. Joseph Vassalotti, NKF Chief Medical Officer, in a recent Facebook Live to share the facts about the Delta variant, COVID-19 booster shots, and other concerns facing kidney patients. In this episode, you will hear from: Joseph A. Vassalotti, MD: Nephrologist Joseph A. Vassalotti, MD, is the Chief Medical Officer of the National Kidney Foundation and Associate Clinical Professor of Medicine in the Division of Nephrology, at Icahn School of Medicine at Mount Sinai in New York, NY. He received his medical degree with Distinction in Research from the SUNY Stony Brook School of Medicine and completed an Internal Medicine Residency and Nephrology Fellowship at the Johns Hopkins Hospital. At NKF, his major focus is implementation of evidence-based clinical practice guidelines in chronic kidney disease (CKD), including the NKF's Kidney Disease Outcomes Quality Initiative (KDOQI), particularly through guidance of the NKF's primary care initiative, called CKDintercept. He has served as co-principal investigator for the U.S. Center for Disease Control and Prevention (CDC), demonstration project “CKD Health Evaluation and Risk Information Sharing” (CHERISH), which aimed to identify individuals at high risk for kidney disease in the U.S. and as an investigator for the U.S. National Institutes of Health (NIH) sponsored clustered practice randomized trial entitled, “Evidenced-Based Primary Care for Kidney Disease.” For more resources on COVID-19 for kidney patients, visit www.kidney.org/coronavirus
The CDC's new masking guidance says fully vaccinated people do not have to wear masks, but does that include kidney patients? Are people who are immune comprised fully protected by the vaccine? We have collected some of our patients' most pressing questions about the new masking guidance and have asked Dr. Joe Vassalotti, NKF Chief Medical Officer, to answer them. We answer the following questions: Is it safe to get the COVID-19 vaccine if you have kidney disease? Should I go to the doctor to determine if I have developed antibodies from the COVID-19 vaccine? If I don't develop antibodies after getting the COVID-19 vaccine, should I get another one? I am a transplant recipient. Will the vaccine protect me if I get COVID-19, even if it's only 50% effective? I am a dialysis recipient. Will the vaccine protect me if I get COVID-19, even if it's only 50% effective? I'm a transplant patient. Does my family need to continue wearing a mask around me and others? Is it safe for a transplant or dialysis patient to work in an office without a mask with a coworker who is not vaccinated and won't wear a mask? I am immunosuppressed and vaccinated, but my grandson is not. Should I continue wearing a mask around him? Is it safe for fully vaccinated family members to be around transplant and dialysis patients without a mask? If someone already had COVID-19 do they need two doses of the vaccine? If a transplant or dialysis patient did not get second shot in time, can they start the process over? Did the new masking guidelines from the CDC create a false sense of security? What should kidney patients do if they get COVID-19? In this episode, you will hear from: Joseph A. Vassalotti, MD: Nephrologist Joseph A. Vassalotti, MD, is the Chief Medical Officer of the National Kidney Foundation and Associate Clinical Professor of Medicine in the Division of Nephrology, at Icahn School of Medicine at Mount Sinai in New York, NY. He received his medical degree with Distinction in Research from the SUNY Stony Brook School of Medicine and completed an Internal Medicine Residency and Nephrology Fellowship at the Johns Hopkins Hospital. At NKF, his major focus is implementation of evidence-based clinical practice guidelines in chronic kidney disease (CKD), including the NKF's Kidney Disease Outcomes Quality Initiative (KDOQI), particularly through guidance of the NKF's primary care initiative, called CKDintercept. He has served as co-principal investigator for the U.S. Center for Disease Control and Prevention (CDC), demonstration project “CKD Health Evaluation and Risk Information Sharing” (CHERISH), which aimed to identify individuals at high risk for kidney disease in the U.S. and as an investigator for the U.S. National Institutes of Health (NIH) sponsored clustered practice randomized trial entitled, “Evidenced-Based Primary Care for Kidney Disease.” For more resources on COVID-19 for kidney patients, visit www.kidney.org/coronavirus
In this episode, we talk about the NKF Patient Network, an online registry for kidney patients at any stage of kidney disease. This network is an exciting new and easy way to for patients to be part of the effort to improve the lives of people affected by kidney disease everywhere. In this episode, you will hear from: Dr. Kerry Willis: Dr. Kerry Willis is Chief Scientific Officer at the National Kidney Foundation and co-developer of the Patient Network. Dr. Willis received her PhD in Molecular Genetics from New York University Medical Center and has been with NKF since 1998. She founded NKF's Medical Activities division and made it a priority to identify and apply the best science available to improve kidney disease patient care and outcomes. Dr. Lesley Inker: Lesley A. Inker, MD, MS is a nephrologist who serves as Director of the Kidney and Blood Pressure Center and Director of the Kidney Function and Evaluation Center at Tufts Medical Center. She is also chair of the NKF Patient Network Steering Committee. Dr. Inker's research has established her as an expert in the implementation of estimated glomerular filtration rate by clinical laboratories, as well as an expert in estimating and measuring kidney function. Dr. Alex Chang: Dr. Alexander Chang is a nephrologist, assistant professor of Clinical Research and co-director of the Kidney Health Research Institute at Geisinger. He is engaged in research dedicated to preventing and delaying CKD progression and its complications. His research areas include interventional studies focused on improving lifestyle behaviors in patients with hypertension and patients with early CKD; using observational data from Geisinger and other large cohorts to identify potential avenues to improve management of CKD and hypertension; and health system interventions to improve early recognition and optimized management of early kidney disease. Dr. Alex Chang also serves as NKF Patient Network PI for Geisinger site. Curtis Warfield: Curtis Warfield is a kidney patient and patient stakeholder on the Patient Network Advisory Committee. In 2012 he was diagnosed with Stage 3 Chronic Kidney Disease (CKD) due to FSGS. In 2016, he received a kidney from his daughter's college sorority sister. Curtis, a passionate advocate for CKD, organ donation and living donors provides peer counseling with the NKF Peer Program. He also serves as member of NKF's Kidney Advocacy Committee, where he advocates with members of Congress for kidney and organ donor issues. Cari Maxwell: Cari Maxwell is a kidney patient and patient stakeholder on the Patient Network Advisory Committee. She was diagnosed with Autosomal Dominant Polycystic Kidney Disease in 1989 and has been an active supporter of the National Kidney Foundation. She hopes that through her commitment to the awareness of chronic kidney diseases, others will take an active role in their health journey through early detection, healthy choices, and becoming a strong voice themselves in advocating for those that cannot. Learn more about the NKF Patient Network by visiting www.kidney.org/nkfpatientnetwork.
In the COVID era, telehealth has become a suddenly normal part of our lives. How is this impacting kidney patients and what implications does it have for the future of kidney care? We sat down with researcher Dr. Sarah Schrauben to discuss her recently published article on Mobile Health Technology in NKF's American Journal of Kidney Disease (AJKD). In this episode, you will hear from: Dr. Sarah Schrauben: Dr. Schrauben is a researcher and Assistant Professor of Medicine and Epidemiology in the Division of Renal, Electrolyte, and Hypertension, and Department of Biostatistics, Epidemiology, and Informatics at the Perelman School of Medicine. Dr. Schrauben's research focuses on the impact of health behaviors and modifiable risk factors in the development and management of chronic kidney disease and its complications, as well as addressing implementation gaps of evidence-based care in CKD. The episode is moderated by NKF patient advocate Jessica Washington. Jessica was diagnosed with stage 2 kidney disease in 2019. She has been extremely motivated to advocate for the National Kidney Foundation to help others fight for better understanding, awareness, support, and anything else she can do to make it easier for so many out there dealing with this disease. Learn more about Dr. Schrauben's research by visiting www.kidney.org/newsletter/are-mobile-apps-wave-future-kidney-care.
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