Podcasts about Rheum

In this episode, we examine Behcet's Disease—a rare, multisystem inflammatory disorder that continues to challenge traditional frameworks of autoimmunity and vasculitis. Dr. Johannes Nowatzky joins us to discuss the disease's hallmark features, including recurrent mucocutaneous ulcers and ocular involvement, as well as its geographic distribution and genetic associations. We explore the diagnostic difficulties posed by its heterogeneous presentation and symptom overlap with other conditions, and the rationale behind individualized, often multidisciplinary treatment strategies. This conversation offers valuable insights into a condition that remains as enigmatic as it is clinically significant. 

With the growing shortage of rheumatology specialists in the U.S., healthcare systems face increasing delays, clinician burnout, and inefficiencies. In this episode, we explore a promising solution: the integration of physician assistants/associates (PAs) into rheumatology practice. We're joined by Benjamin Smith, PA-C, Associate Dean and Program Director at Florida State University, and first author of "Profile and Attributes of Physician Assistants/Associates in Rheumatology" published in Arthritis Care & Research. He shares insights into the demographics, workload, satisfaction, and future potential of rheumatology PAs, highlighting their expanding role in addressing workforce gaps and enhancing patient care. 

Cheryl, Marisa, Alice, Gittel, Meg and Annette reflect on the profound impact of community, the invaluable educational components, and the collective wisdom that has helped them cope and thrive. The conversation highlights the importance of vulnerability, shared humor, and the supportive environment of the Rheum to THRIVE group, which empowers members to navigate their health challenges and advocate for themselves. Episode at a glance:Celebrating 5 Years of Thrive: Cheryl reflects on the origins of the Rheum to THRIVE program and members share how they found the group and what drew them in.Support Group as Lifeline: Members describe Rheum to THRIVE as a uniquely supportive and safe space that offers emotional validation, practical advice, and deep connection.Power of Peer Support & Representation: Cheryl and Rheum to Thrive members share how hearing others share similar stories helps members feel less alone and seeing others thrive with chronic illness is empowering and inspiring.Tools for Thriving: Members reference helpful resources like the THRIVE Framework, webinars, and guest speakers.The Joy of Community & Shared Identity: Cheryl and the Rheum to Thrive members discuss how inside jokes, celebrations, and shared experiences strengthen group bonds.Lasting Impact of the Program: The Rheum to Thrive members tell Cheryl that they pursued careers in counseling or advocacy inspired by their journey and that Rheum to Thrive supports lifelong learning and personal growth. They also reflect on how the group has helped members through isolation and uncertainty.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE,an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!

In this episode, we deliver a critical update on the rapidly evolving legislative landscape impacting rheumatology. We explore the intense policy battles shaping the future of the field, including steep Medicare reimbursement cuts threatening the survival of many practices. We also examine the ongoing challenges posed by pharmacy benefit managers (PBMs) and the growing uncertainty around research funding. Joining us is a special guest, Lennie Shewmaker McDaniel, JD, who brings a firsthand perspective from Capitol Hill, shedding light on what it truly takes to advocate for our patients and the profession in today's complex policy environment. 

Dr. Laura Plantinga joins us to discuss her recent work on the APPEAL study, which examines how lupus affects activities of daily living using patient-reported outcomes and validated measures such as IADLs, BADLs, SLAQ, and PROMIS. We explore her methodological approach, key findings, and implications for clinical practice—particularly how physicians can better support patients in managing functional limitations. Dr. Plantinga also shares insights on translating epidemiologic data into actionable strategies and maintaining scholarly productivity in academic medicine. 

In this episode, we examine the evaluation of pain in patients with chronic inflammatory arthritis, with particular attention to spondyloarthritis and its clinical overlap with fibromyalgia. We explore why some patients continue to report persistent pain despite well-controlled inflammation, and the importance of distinguishing between active inflammatory disease and centralized pain syndromes such as fibromyalgia. Join us as we unpack the diagnostic nuances that can significantly impact patient care. 

In this episode, we explore a new approach to improving participation in lupus clinical trials by strengthening provider outreach and education. Our guest, Dr. Saira Sheikh of UNC Chapel Hill, discusses the TIMELY study, which focuses on involving healthcare providers and community health workers to better connect patients with trial opportunities. From roundtable discussions to changes in provider behavior, we highlight practical strategies that could improve how clinical trials are conducted. 

How can you get a second season out of tulips grown in pots? What is the most natural and cost-effective way to add nutrients to my soil? How do you garden with hedgehogs in mind?Kathy Clugston and her team of gardening experts return to Bangor, Northern Ireland where they solve some gardening dilemmas. Joining her are ethnobotanist James Wong, garden designer Neil Porteous, and Head of Gardens at Balmoral Kirsty Wilson.Later in the programme, continuing our Edible Essential Series is Bob Flowerdew, who provides the top fruits and vegetable to add to your shopping list this season. Producer: Bethany Hocken Assistant Producer: Dulcie Whadcock Executive Producer: Carly MaileA Somethin' Else production for BBC Radio 4Plant List Questions and timecodes are below. Where applicable, plant names have been provided. Q- What should I do with my phalaenopsis orchid? (01'24")Q- How do I look after auriculas during the summer? (05'02")Q- How can you get a second season out of tulips grown in pots? (06'57")Q- I've killed four Japanese acers over the years – what am I doing wrong? (19'30")Feature – Bob Flowerdew's edible shopping list. What fruit and veg you should grow this season (14'41")Bob Flowerdew – Asparagus officinalis, asparagus Ribes nigrum, blackcurrant Chillies Allium sativum, garlic Cynara cardunculus var. scolymus, globe artichokes Helianthus tuberosus, Jerusalem artichokes Allium cepa, onions Solanum tuberosum, potatoes Raphanus sativus, radish Rubus idaeus, raspberries Ribes rubrum, redcurrants Rheum rhabarbarum, rhubarb Allium cepa var. aggregatum, shallots Fragaria × ananassa, strawberries Zea mays var. saccharate, sweetcorn Q- My soil is very much depleted of nutrients. What is the most natural and cost-effective way to remedy this? (18'44")Q – What shrubs could I grow in containers that are exposed to extreme winds and sea salt? (23'36")Neil Porteous – Grevillea rosmarinifolia, rosemary grevillea Euphorbia stygiana subsp. Santamaria, Ozothamnus rosmarinifolius, sea rosemaryKirsty Wilson – Phormium tenax, New Zealand flax Hakonechloa macra, Japanese forest grassJames Wong – Pinus pinea, stone pineQ - How do you garden with hedgehogs in mind? (29'38")Q - I'm just about to dig out an area for a large pond. What plants do the panel recommend I use to get me started? (31'20")James Wong – Soleirolia soleirolii, mind-your-own-business Nymphaea, waterliliesKirsty Wilson – Iris pseudacorus, yellow iris Hosta, Plantain lily Astilbe, astilbe Meconopsis, Himalayan poppy Cyperus alternifolius L., umbrella plantNeil Porteous – Eryngium, sea holly Eryngium pandanifolium, pandan-like-leaved eryngoQ - Can you recommend some plants that are showstoppers and conversation starters? (37'21")Kirsty Wilson – Nepeta 'Blue Dragon', catmint 'Blue Dragon'Neil Porteous – Vitex lucens, puririJames Wong – Mahonia, oregon grape Daphne

They discuss the complexities of managing overlapping conditions and the importance of a strong support system. Alice highlights the invaluable support she receives from her family, friends, church community, and online groups. They also talk about the challenges of explaining chronic illness to others, dealing with unsolicited advice, and finding comfort in relationships. This episode serves as a guide for both patients and their loved ones on fostering understanding and meaningful support.Alice also discusses the significance of finding specialized support groups, such as the 'Rheum to Thrive' community, led by Cheryl. Both Cheryl and Alice stress the importance of open communication, patience, and understanding in building effective support systems. Episode at a glance:Alice's Health Journey: Alice shares her experience living with and navigating multiple chronic conditions such as Rheumatoid arthritis, Sjogren's syndrome, fibromyalgia, and chronic fatigue syndrome.The Importance of Support from a Strong and Diverse Support System: Cheryl and Alice discuss the importance of support from family and friends, church community, and online support groups. Finding and Building Support Systems: Cheryl and Alice discuss Cheryl's Rheum to Thrive Program and how a specialized community is valuable in building a support system.Dealing with Misunderstandings and Unsolicited Advice: Cheryl and Alice discuss how to maintain boundaries and navigate unsolicited advice.Reflections on Long-Term Relationships: Alice shares insights from over 50 years marriage.  Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

This episode explores the evolving role of GLP-1 agonists in rheumatology, highlighting their potential to influence weight, inflammation, and overall disease activity. Our guest expert unpacks how adipose tissue contributes to systemic inflammation and why managing body weight is crucial in the treatment of rheumatic diseases. We delve into the underlying science, real-world clinical applications, and the exciting future of incorporating GLP-1 therapies into comprehensive rheumatologic care—offering fresh insight into a therapeutic class with game-changing potential. 

They discuss practical strategies for rebuilding trust in your body, the critical role of understanding your core values, and how to find the right support — whether through programs like Rheum to Thrive or events like the Virtual Sjögren's Summit. Together, they show how education, advocacy, and mindset shifts can help patients move from fear to confidence in managing their immune health.Episode at a glance:Sjogren's and MCAS 101: what is Sjogren's and MCAS?Dr. Kara Wada's personal journey: Sjögren's and mast cell activation syndrome (MCAS) and how it shaped her mission to empower patients.Understanding "Immune Confidence": learning to trust your body again after autoimmune and allergic disease diagnoses.The importance of patient advocacy and education: how Dr. Wada supports patients across multiple states through educational visits.Healthcare system issues: why are complex patients being given the short end of the stick, and what are some creative solutions?Upcoming events and opportunities: the Virtual Sjögren's Summit and Cheryl's evolving focus with Rheum to THRIVE.Finding balance between personal life and professional advocacy while living with chronic illness.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

In this episode, Dr. Kaur and Dr. Abhishek join us to discuss their recent study on acetaminophen, exploring how it compares to NSAIDs in safety and effectiveness. They break down their use of the Clinical Practice Research Datalink (CPRD), key findings—especially in arthritis patients—and what this means for clinical practice. It's an insightful look at how big data can challenge assumptions about one of the most used pain medications. 

Jenni and Cheryl share the research highlights that stood out the most for them, from new research on POTS and Covid to the importance of sleep and fatigue management. We also shine a light on recent advancements in lupus treatment and managing stress and activity through "positive activity scheduling." Cheryl and Jennifer also share personal stories on navigating sleep hygiene, the subtle pressures of defining "normal," and the importance of sensitivity in language. Through these reflections, we emphasize a broader understanding and embrace of diverse health experiences. We also reflect on the importance of finding supportive communities.*This episode was originally recorded as part of the My Spoonie Sisters podcast. Episode at a glance:Getting Involved: Patient advocacy and research as “Rheum Champions” with the Rheumatology Research FoundationResearch Highlights: New findings on POTS and Covid, the role of sleep and fatigue management in chronic illness, Advances in lupus treatment, Benefits of positive activity scheduling for stress and activity managementPersonal Insights: Real-life strategies for improving sleep hygiene, Challenging the idea of what's considered “normal,” The power of sensitive and inclusive languageCommunity & Support: The importance of finding and connecting with supportive communities, Encouragement for those looking to get involved in advocacyMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

In this episode, we dive into the evolving role of AI in rheumatology—exploring how it's already reshaping workflows, enhancing diagnostic accuracy, optimizing treatment selection, and helping us monitor patients remotely. We tackle big questions around bias, control over critical data and whether we're truly ready to let AI serve as our assistants—or even gatekeepers. From addressing workforce shortages to revolutionizing medical research and education, we examine both the promise and the pitfalls of this powerful technology, and why caution must guide its integration into our clinical decisions.

On this episode, we chat with Dr. Sho Fukui about his recent study on rising uric acid levels and what's driving the increase. We dig into the links between weight, obesity, and gout, and hear how a huge health checkup database in Japan helped uncover some eye-opening trends. Dr. Fukui breaks down the findings in simple terms, shares how they compare to older studies like MRFIT, and talks about what they could mean for treatments like GLP-1s. Plus, we get a sneak peek at the exciting research he's working on next! 

In this episode, we dive into the complexities of IgG4-Related Disease (IgG4-RD), a mysterious and multi-organ condition that continues to challenge both patients and physicians. Back in January 2024, Dr. John Stone introduced us to the emerging landscape of treatments for IgG4-RD, and today, Dr. Matthew Baker joins us to provide an exciting update. With new therapies on the horizon, we explore the role of B and T cell pathogenesis, the limitations of traditional steroid treatments, and the off-label use of rituximab. We also take a closer look at the promising results from the “Mitigate Trial,” which offers hope for future strategies in managing this enigmatic disease. Join us as we discuss the evolving treatment landscape and what lies ahead for those affected by IgG4-RD. 

Dr. Isabelle Amigues sits down with Dr. Singla, a pediatric rheumatologist based in Texas, to discuss Juvenile Idiopathic Arthritis (JIA) and the significance of a positive ANA in its diagnosis. Dr. Singla, who specializes in pediatric autoimmune inflammatory conditions, explains the nuances of diagnosing JIA and the important role of ANA testing in understanding autoimmune disorders in children.Join us as we explore:--What JIA is and how it impacts children--The role of positive ANA in diagnosing JIA--The importance of specialized care in managing pediatric autoimmune conditionsDr. Singla's journey from academic practice to running her own clinic, "Room to Grow" in Houston, TexasDr. Saimun Singla is a triple board-certified physician that specializes in pediatric rheumatology and integrative medicine. Her story is unique because she was diagnosed with rheumatoid arthritis AFTER becoming an attending rheumatologist, a journey which led to a few career pivots.  Her pain points as both a patient and doctor led her to found Rheum to Grow, a private medical practice in Houston, TX. She blends conventional rheumatology with integrative medicine to help children with autoimmune conditions achieve faster disease control, less disease flares, less reliance on pharmaceuticals, and realistic coping strategies to build resilience in the face of life-long illnesses. Dr. Singla lives in Houston with her husband and three very active school-aged children. She not only loves taking care of her patients, but also encourages other female physicians to carry out their true passions and avoid burnout in medicine. You can find her here! https://www.rheumtogrowtx.com/✨ Support my YouTube channel, Rheumatology 101, for top Rheumatology tips, natural remedies, expert care, holistic healing, and the best treatment guidance for a healthier, pain-free life!https://www.youtube.com/@Rheumatology101/?sub_confirmation=1 

In this episode, we're joined by Dr. Atul Deodhar, a leading expert in the field of Axial Spondyloarthritis (AxSpA). Dr. Deodhar shares insights from his groundbreaking research on the pathophysiology, diagnosis, and management of AxSpA, particularly focusing on the efficacy and safety of IV secukinumab. We dive deep into his study, INVIGORATE-1, exploring the methods behind it, including the use of Interactive Response Technology, and the primary and secondary endpoints that shed light on this treatment's impact. We also discuss the latest data on patient preferences for subcutaneous versus intravenous immunomodulators and the implications of these findings. Tune in for an informative and engaging conversation that blends cutting-edge science with thoughtful reflections on patient care. 

In this episode, we dive into a fascinating and often overlooked aspect of rheumatology: complications from diabetes that can mimic rheumatic diseases. Dr. Schiopu kicks off the discussion by shedding light on Diabetic Myonecrosis, a painful muscle condition that can be easily mistaken for other rheumatic disorders. We then explore Scleroderma, a skin-thickening muscle disorder that resembles systemic sclerosis (SSC) but has distinct underlying mechanisms. Dr. Schiopu shares invaluable insights on how to approach complex rheumatology consults in the hospital, emphasizing the importance of thoughtful diagnostic reasoning. She also discusses why sometimes the best approach in medicine is to avoid unnecessary tests and treatments, prioritizing patient care and accuracy in diagnosis. 

This week, we explore the genetics behind the production of antinuclear antibodies (ANA) in individuals without clinical autoimmune disease, using data from the All of Us registry. Our guest, Dr. Mehmet Hocaoglu shares insights into the significance of understanding ANA positivity and its potential genetic underpinnings, highlighting how large-scale genome-wide association studies (GWAS) can predict susceptibility to autoimmune conditions. We cover the study's methodology, the unique All of Us dataset, and the complexities of genetic analysis. Dr. Hocaoglu also discusses his personal journey in rheumatology research, offering advice for aspiring researchers, especially international medical graduates (IMGs).  

Uncover the power of advocacy and community in rheumatology as we welcome our empowering guests, Jennifer Weaver and Cheryl Crow. Jennifer, a dedicated patient leader, and Cheryl, an occupational therapist and founder of Arthritis Life, open up about their journeys as Rheum Champions at the ACR Convergence 2024. With a promise of insight and inspiration, we navigate the intricacies of large conferences, including the importance of patient voices at the table and the small yet significant moments that define their experiences.Balancing the realities of healthcare challenges with triumphs, our conversation shifts to the heart of patient advocacy. Dive into the emotional, and at times, hopeful connections formed between patient advocates and medical professionals. Cheryl and Jennifer share personal stories on navigating sleep hygiene, the subtle pressures of defining "normal," and the importance of sensitivity in language. Through these reflections, we emphasize a broader understanding and embrace of diverse health experiences.Explore the intricate world of rheumatology and the complexities of comorbidities like POTS, long COVID, and rheumatoid arthritis. We also shine a light on recent advancements in lupus treatment and managing chronic pain with "positive activity scheduling." Our discussion concludes with an homage to the supportive sisterhood that empowers us, urging listeners to connect with organizations like the Dysautonomia Association and Creaky Joints. As we wrap up, we celebrate the strength found in shared experiences and encourage you to stay engaged for future episodes.Jen: Rheum Champions - The Rheumatology Lab https://www.instagram.com/gracefully_jen/?__pwa=1Welcome to Gracefully Jen | Instagram, Facebook, TikTok | LinktreeCheryl: Rheum Champions - The Rheumatology Labhttps://www.instagram.com/arthritis_life_cheryl/https://thoughtful-experimenter-636.ck.page/1fb879479cSend us a text Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.Let's Get Started - Rare Patient Voice Support the showSupport:https://rarepatientvoice.com/Myspooniesisters/https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)Website:https://myspooniesisters.com/ Discount Codes: GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

In this episode, we dive into the cutting-edge advancements presented by Dr. Christopher T. Ritchlin at Convergence 2024, where he shed light on the promising research set to transform the field of rheumatology. Join us as we break down key insights from one of the field's leading experts, exploring the future of precision medicine, the role of TRBV9 cells in axSpA, the impact of sex differences on PsA, and the potential of urinary biomarkers in Lupus Nephritis. Tune in for a fascinating discussion on what's next in rheumatology. 

From singing to trying nine different medications in five years, to embracing the THRIVE framework from Cheryl's Rheum to Thrive Program, Alice shares the ups and downs of life with rheumatoid arthritis. Ultimately, Alice reminds us that living fully with RA doesn't mean giving up on what matters—it means finding new ways to engage, and finding a way to balance grief for what you've lost with gratitude for what you still have.If you're newly diagnosed, her story is a powerful reminder of the importance of connecting with what matters and striving to thrive, even if the path looks different than you expected.Episode at a glance:Adjusting to Life with RA: Alice shares her journey of adapting to a rheumatoid arthritis diagnosis and how it has impacted her daily life and passions.Coping with medication ups and downs: Alice shares the emotional roller coaster of trying nine different medications in five years in search of one that would put her RA into a lasting remission.Music & Resilience: How Alice found creative ways to stay connected to music, including learning Gaelic to sing a special song.The THRIVE Framework: Practical strategies Alice uses to maintain joy and purpose despite physical challenges.Redefining Limitations: Encouraging insights on shifting perspectives and embracing new ways to engage with what you love.Message of Hope: Alice's advice for newly diagnosed individuals: you can still live a full, meaningful life—it just may look different than expected.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

In this episode, our host is joined by Dr. Peter Nigrovic, an expert in Macrophage Activation Syndrome (MAS). Dr. Nigrovic, delves into the complexities of MAS. The discussion covers the syndrome's history, diagnostic challenges, mechanisms of inflammation, and the latest treatment strategies, including cytokine blockade, JAK inhibitors, and chemotherapy options. Dr. Nigrovic also reflects on his unique career journey, offering valuable insights into combining clinical practice and research, while sharing his philosophy for a fulfilling life in medicine and science. This episode is a thorough exploration of MAS and provides practical advice for clinicians dealing with this complex syndrome. Macrophage Activation Syndrome 

Highlights from Day 3 of the Canadian Rheumatology Associations 2025 Annual Scientific Meeting in Calgary Alberta

Day 2 highlights of the CRA Annual Scientific Meeting in Calgary with Dr. Daniel Ennis, Dr. Janet Pope, Dr. Mo Osman and Dr. Marinka Twilt.

Dr. Mo Osman and Dr. Marinka Twilt join Dan and Janet to break down the highlights of the first day of the CRA ASM in Calgary.

In this episode, we explore the unique challenges and considerations in treating older adults, focusing on the need for a different approach to care due to polypharmacy and multimorbidity. We delve into the complexities of managing these patients, emphasizing the importance of understanding frailty—how to assess, prevent, and address it. The discussion also covers late-onset rheumatoid arthritis, its distinction from rheumatoid arthritis, and why it often goes underdiagnosed and undertreated. We introduce the 5 M's framework; a geriatric care model that helps clinicians focus on what truly matters to older adults. Additionally, we address the role of palliative care in rheumatology, highlighting its importance beyond end-of-life care, and provide guidance on shared decision-making with older adults and their families to ensure patient-centered outcomes.   

If you're a healthcare provider or a storytelling enthusiast, you'll enjoy this episode featuring Dr. Jason Liebowitz. A practicing rheumatologist and accomplished writer, Dr. Liebowitz discusses his journey toward becoming a physician-writer, how writing helps him process his experiences, and the art of storytelling in medicine, especially for a wider audience in today's complex healthcare landscape. 

In this episode we explore the role of Neutrophil Extracellular Traps (NETs) in systemic lupus erythematosus (SLE). Dr. Mariana Kaplan, Chief of the Systemic Autoimmunity Branch at the National Institute of Arthritis Musculoskeletal and Skin Diseases, joins the discussion to break down the complex immunological mechanisms driving lupus, focusing on the contribution of NETs and Low-Density Granulocytes (LDGs) to disease activity and tissue damage. The conversation delves into the potential for these biological markers to improve diagnosis and treatment strategies, particularly in the context of lupus flares and cardiovascular complications. A link to this week's article can be found, here: Exploring the Role of Neutrophil Extracellular Traps in Systemic Lupus Erythematosus: A Clinical Case Study and Comprehensive Review 

Gabi highlights the accommodations that have been instrumental during her college experience, including adaptive tools and flexible scheduling. She shares how other young people with chronic illness can advocate for the accommodations they need to succeed in school.Cheryl and Gabi also discuss the vital role of peer support groups, such as Cheryl's Rheum to THRIVE program, and emphasize the importance of self-advocacy and maintaining a positive outlook. For those newly diagnosed, Gabi offers invaluable advice: seek reputable resources, stay informed, and embrace the mindset that thriving with a chronic illness requires adapting, planning, and finding joy amidst challenges. This inspiring conversation celebrates resilience, community, and the power of living well with a chronic illness.Episode at a glance:Navigating Life with Spondyloarthritis and palatal tremor: Gabi shares her personal journey and how she manages the challenges of living with inflammatory arthritis. She also shares what it was like to try different medications and switch due to side effects.Key Tips and Tools for School and Work: Cheryl and Gabi discuss accommodations available through organizations like the Arthritis Foundation and adaptive tools and strategies for daily life.The Power of Self-Advocacy: Gabi highlights the importance of advocating for yourself in medical and personal settings.Creating a Supportive Environment: Gabi shares about finding community and encouragement through groups like Rheum to THRIVE and about the importance of building a network of understanding family, friends, and peers..Advice for the Newly Diagnosed: Lean on trustworthy resources, Stay informed and learn to adapt, and Focus on maintaining joy and living life fully despite the diagnosis.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

Happy New Year, Dear Listener! We're back for 2025 and have with us Dr. Carol Langford, President of The American College of Rheumatology (ACR) and Dr. Adam Goode, President of The Association of Rheumatology Professionals (ARP) as our guests. In this episode you'll get an in-depth look at the collaborative efforts driving the ACR and ARP, direct from our leadership!   Dr. Langford and Dr. Goode share with us their journeys into leadership, key initiatives for this year and their vision for advancing the field of rheumatology. We'll also discuss workforce shortages, technological advancements affecting our field and fostering a more inclusive community. 

 They also discuss the importance of support and community, and Amber shares her experience in Cheryl's Rheum to THRIVE program. Cheryl and Amber emphasize the importance of adaptability, finding joy in everyday activities like cooking and cheering for their favorite sports teams, and embracing flexibility in the face of unpredictability. Episode at a glance:Personal Stories of Resilience: Amber shares her journey of managing psoriatic arthritis while balancing work, friendships, and her love for cooking and sports.The Power of Adaptability: Embracing flexibility and pivoting when necessary is key to maintaining a fulfilling life despite chronic illness challenges.Therapeutic Insights: Cheryl and Amber discuss the importance of therapy, setting boundaries, and giving up some control to better manage health and wellness.Support Networks: Amber highlights resources like her counseling practice, the Welcome Project PA, and a peer support group for those living with chronic illness.Lighthearted Moments: Fun anecdotes about Amber's Taylor Swift-themed party, her love for the Eagles, and her relatable Instagram posts featuring her dog and food.Encouragement for Listeners: Cheryl and Amber leave listeners with hope, showing how living a good life with arthritis is possible by focusing on joy, adaptability, and meaningful connections.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

Dr. Pui Y. Lee, a pediatric rheumatologist, leading researcher and clinician, joins us today to lend his insights on Deficiency of Adenosine Deaminase 2 or “DADA 2”. What is this disease and how common is it? What is the underlying pathophysiology, the role of genetic screening and the most useful diagnostic tools? We'll also cover treatment options for DADA 2, the prognosis most patients face, plus the future of research for this condition. 

Cheryl shares how the program has evolved based on participant feedback, offering flexible learning options including self-paced options for those who would like to learn the self management tools without the support group. Cheryl and Lauren also discuss the ways in which the program has offered essential education, community and realistic hope for people who previously felt lost and overwhelmed. They also share the support group schedule for 2025 and beyond!Episode at a glance:Introduction to the "Rheum to THRIVE" program: Cheryl shares the evolution and impact of her education and support program, designed for individuals with rheumatic disease.Iterative improvements: Cheryl discusses how the program has evolved over time based on participant feedback, adding more resources like PDFs and flexible learning options.Support group details: The program follows a consistent schedule, with 13 meetings each from February-June and September-January, and plans to expand with additional facilitators.Testimonials and feedback: Cheryl and Lauren discuss common positive feedback from people who've taken the course and/or joined the support groups.How to get involved: Cheryl explains how to join the support group or access the self-paced course, highlighting options for affordability.Program fit: Cheryl clarifies who the program is ideal for and who it might not be suitable for, focusing on managing symptoms and improving quality of life.Cheryl's guest role: Normally the interviewer, Cheryl steps out of her usual role as the host to be interviewed by Lauren, adding a twist of fun to the episode.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

In this episode, we sit down with Dr. Victoria Werth, a leading expert in dermatology and autoimmune diseases, to explore the study Understanding the Role of Type I Interferons in Cutaneous Lupus and Dermatomyositis: Toward Better Therapeutics. Dr. Werth delves into the complex immune mechanisms that drive skin manifestations in cutaneous lupus and dermatomyositis, two challenging autoimmune conditions. She explains how Type I interferons contribute to inflammation and tissue damage, and how understanding these pathways could pave the way for more targeted and effective treatment

As 2024 ends, the ACR's Government Affairs Committee looks ahead to the 119th Congress to address key issues in rheumatology. For our second annual legislative and policy update, we're joined by Dr. Lennie McDaniel, head of ACR's Washington DC office, and Dr. Christina Downey, Chair of the Government Affairs Committee, to share insights from their ACR Convergence 2024 session. Topics include Medicare cuts, physician payments, pharmacy benefit managers (PBMs), telemedicine reimbursement changes, and how you can advocate for better outcomes with the ACR. 

In this episode, we explore the findings of a groundbreaking study analyzing opioid treatment trends for adults with and without systemic autoimmune and inflammatory rheumatic diseases (SARDs) from 2006 to 2019. The study, based on national data from the United States, sheds light on how individuals with conditions like rheumatoid arthritis, lupus, and ankylosing spondylitis are impacted by opioid use compared to the general population. 

We are proud to present the highly anticipated “ACR 2024 Lupus Nephritis Guideline” with First Author and frequent guest, Dr. Lisa R. Sammaritano. A decade in the making, we reflect on the significant advancements in available therapies, the guideline's holistic approach to managing Lupus Nephritis (LN) across all age groups, and include insights on combination therapies, minimizing glucocorticoid use and how to manage the full spectrum of patients with Lupus Nephritis. 

As our weekend here in Washington D.C. draws to an end, we turn our spotlight on an important and timely conversation from the "Sponsoring Women in Science" session. In this episode, we sit down with Dr. Elizabeth Volkmann and Dr. Carol Feghali-Bostwick to explore the challenges women face in advancing their careers in the sciences. Our guests share insights on how to address the barriers that often impede career development for women, discuss strategies for fostering support and mentorship, and highlight the importance of growing awareness around these critical issues.

As we continue to highlight sessions from Convergence 2024, we came upon this talk we think you should not miss: Emerging Threats in Rheumatology: Chronic Chikungunya Arthritis and Syphilis Mimicking Rheumatic Diseases. Session presenters, Dr. Jose Kennedy Amaral Pereira and Dr. Daniela DiMarco help us explore the world of emerging threats in rheumatology: specifically, Chikungunya Arthritis and Syphilis. These two experts share insights with us to help diagnose and manage those with these devastating infections and highlight for us how important it is for rheumatologists to remain on high alert for these infections, which can be easily mistaken for more common rheumatic disorders! 

Get ready for an electrifying episode of Convergence 2024! We're diving deep into the cutting-edge world of autoinflammatory diseases with renowned experts Drs. Grant Schulert and Arthur Kaser. Join us as they unravel the complexities of refractory and complicated systemic juvenile idiopathic arthritis (SJIA). Discover the revolutionary insights into SJIA at the single-cell level, explore the fascinating transcriptional diversity of normal and low-density granulocytes, and learn how groundbreaking approaches like UDON and SATAY-UDON are paving the way for novel disease programs. Don't miss this chance to fuel your passion for innovation in medicine—tune in and ignite your curiosity! 

Can Artificial Intelligence (AI) ever replace the clinician or the researcher? Today, we explore the promises and pitfalls of this transformative technology and its implications for rheumatology. From assistance in diagnosis and patient care to its role in research and academic writing, our two guests Dr. Amanda Nelson and Dr. Bella Mehta will walk us through how our field is utilizing AI today and where it may lead in the near future. Most of all, they'll explain how we can harness its power...without getting burned. 

This week we're joined by two leading experts in gout remissions, Dr. Nicola Dalbeth and Dr. Dansoa Tabi-Amponsah to explore the exciting advances in gout treatment, with a particular focus on Dual-Energy CT (DECT) imaging and its role in achieving gout remission. We dive into how DECT technology is transforming our ability to visualize urate crystals in joints, its implications for patient care, and the potential it holds for long-term gout management and remission. 

When should we choose rituximab over cyclophosphamide? What role can avacopan play as an adjunct therapy? When is plasma exchange a viable option? How can we effectively navigate steroid tapering? These are just a few of the critical questions we'll explore with our next guest, Dr. Tanaz Kermani, founder and director of the Vasculitis Program at UCLA, a dedicated clinician and active researcher. Join us as we delve into these topics and address the challenges of diagnosing and managing patients with vasculitis. 

In another installment in the ongoing Arthritis & Rheumatology immunology series, guest David S. Pisetsky, MD, PhD, author of Unique Interplay Between Antinuclear Antibodies and Nuclear Molecules in the Pathogenesis of Systemic Lupus Erythematosus, takes us on a deep dive into research in SLE on how the combination of ANAs and immunologically active DNA can create new structures that can promote inflammation throughout the body as well as drive organ inflammation and damage.

Dr. Sara McCoy, rheumatologist and Sjögren's specialist, a “Sjögrensologist”, joins us this week for an in-depth look at Sjögren's Disease. We address how the systemic nature of this disease can affect everything from the lungs to the kidneys, why traditional treatments may not always work, why a patient's antibody profile may hold the key to their disease severity, the use of new biomarkers, the role of advanced diagnostics and ground-breaking developments in the use of stromal cells in treatment and so much more! 

This week, our next guest, ACR Master Dr. Joan T. Merrill, joins us to discuss her latest study which endeavored to evaluate the efficacy and safety of upadacitinib and elsubrutinib in those with systemic lupus erythematosus (SLE). Join us for an in-depth analysis of the SLEek Study, its findings regarding the efficacy of these medications and Dr. Merrill's conclusions. 

This week, our next guest, ACR Master Dr. Joan T. Merrill, joins us to discuss her latest study which endeavored to evaluate the efficacy and safety of upadacitinib and elsubrutinib in those with systemic lupus erythematosus (SLE). Join us for an in-depth analysis of the SLEek Study, its findings regarding the efficacy of these medications and Dr. Merrill's conclusions. 

Our annual preview episode for Convergence is here, and we have AMPC (Annual Meeting Planning Committee) Chair, Dr. Greg Gardner as our guest! Dr. Gardner walks us through this meeting's focus and strategies, which are designed to make ACR24 even more engaging, delivering cutting edge science, more networking opportunities, improved educational experiences and new initiatives to better the lives of our patients. We'll discuss how Convergence has adapted to a post-pandemic era, get a glimpse of “must attend” sessions, and even hear about the new networking lounge and some insider tips to make the most of your stay in Washington D.C.