Mucus naturally discharged from eyes, nose, or mouth during sleep
POPULARITY
In this empowering conversation, Cheryl and Dr. Kara Wada explore what it means to take charge of your health with conditions like Sjögren's syndrome and mast cell activation syndrome (MCAS). Dr Kara shares how her experience as a patient with Sjogren's taught her things she never learned as a allergist-immunologist doctor. They discuss practical strategies for rebuilding trust in your body, the critical role of understanding your core values, and how to find the right support — whether through programs like Rheum to Thrive or events like the Virtual Sjögren's Summit. Together, they show how education, advocacy, and mindset shifts can help patients move from fear to confidence in managing their immune health. Episode at a glance: Sjogren's and MCAS 101: what is Sjogren's and MCAS? Dr. Kara Wada's personal journey: Sjögren's and mast cell activation syndrome (MCAS) and how it shaped her mission to empower patients. Understanding "Immune Confidence": learning to trust your body again after autoimmune and allergic disease diagnoses. The importance of patient advocacy and education: how Dr. Wada supports patients across multiple states through educational visits. Healthcare system issues: why are complex patients being given the short end of the stick, and what are some creative solutions? Upcoming events and opportunities: the Virtual Sjögren's Summit and Cheryl's evolving focus with Rheum to THRIVE. Finding balance between personal life and professional advocacy while living with chronic illness. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
Today's Episode Dr. Koolaee talks with Mary Serles about aging well and maintaining a "super-ager" lifestyle. Mary shares her approach to staying physically active, mentally sharp, and socially engaged despite health. She emphasizes the importance of consistency and persistence in daily exercise, nutrition, maintaining close social connections. About Dr. Koolaee Dr. Michelle Koolaee did her training for internal medicine residency at St. Luke's Roosevelt Hospital and went on to do her fellowship at University of Pennsylvania for rheumatology, where she was named Fellow of the Year. She then became an assistant professor at the University of Southern California before working at organizations such as Healthcare Partners and Presbyterian Intercommunity Hospital. She currently practices at Huntington Health, an affiliate of Cedars-Sinai, and is now starting her own direct care practice. Links for Dr. Koolaee https://www.drrmichellekoolaee.com/ Facebook LinkedIn Instagram Learn more about your ad choices. Visit megaphone.fm/adchoices
Det är hägtryck och härligt. Peter har slarvat i solen och Tony har panik över allt som skall göras. Allt e således exakt som man kan förvänta sig. Brokbladighet och rödbladighet ingår i dagens drömmar och en och annan längtan efter vatten. Välkomna!
In this episode, Dr. Koolaee is joined by Dr. Jonathan Gelber to discuss orthopedic biologics, including platelet-rich plasma (PRP) injections, infrared laser therapy, and exosomes. Today's Guest Dr. Jonathan Gelber is an orthopedic surgeon specializing in sports medicine and arthroscopic surgery, discussing non-surgical options for joint pain management. About Dr. Koolaee Dr. Michelle Koolaee did her training for internal medicine residency at St. Luke's Roosevelt Hospital and went on to do her fellowship at University of Pennsylvania for rheumatology, where she was named Fellow of the Year. She then became an assistant professor at the University of Southern California before working at organizations such as Healthcare Partners and Presbyterian Intercommunity Hospital. She currently practices at Huntington Health, an affiliate of Cedars-Sinai, and is now starting her own direct care practice. Links for Dr. Koolaee https://www.drrmichellekoolaee.com/ Facebook LinkedIn Instagram Learn more about your ad choices. Visit megaphone.fm/adchoices
She shares her complex diagnostic journey across multiple autoimmune and inflammatory conditions, highlighting the uncertainty and overlap many patients experience. Cheryl and Lorraine discuss shifting from a “cure” mindset to one focused on management, the role of community (including Rheum to THRIVE), and how writing can be a powerful tool for processing and meaning-making. Together, they explore how reframing expectations, finding connection, and letting go of the illusion of control can help people feel less alone and more capable. If you're newly diagnosed, this conversation offers both validation and a gentle reminder that, over time, navigating your health and your life can become more manageable. Episode at a glance: 00:00–03:00 Introduction + Lorraine's background 03:00–08:30 Diagnostic journey across multiple conditions 08:30–12:30 Coping, loss of identity, and community support 12:30–16:00 The “acceptance paradox” and letting go of cure culture 16:00–20:00 Writing as a processing tool 20:00–28:00 The concept of “body weather” and chaotic systems 28:00–33:00 Environmental parallels and climate connections 33:00–41:00 Inside the book's metaphors and structure 41:00–50:00 Writing advice and creative process 50:00–54:00 Advice for newly diagnosed patients 54:00–58:00 Tools, quotes, and recommendations 58:00–End Thriving with chronic illness + closing thoughts Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
Eileen and Gittel talk about why they're passionate about leading support spaces, what those groups are really like (spoiler: welcoming, not intimidating), and how connection can make a huge difference. You'll also hear gentle, practical advice for those early days like pacing yourself, adapting as you go, and redefining what it means to thrive. It's a comforting reminder that even with chronic illness, you can still build a full, meaningful life and you don't have to figure it out alone. And if you'd like to join one of the latest Rheum to THRIVE groups, you can do so here. Episode at a glance: 00:00 Meet the New Facilitators 01:13 Diagnoses and Comorbidities 04:35 Why Eileen Facilitates 08:06 Why Gittel (GT) Facilitates 12:09 Why Support Groups Matter 15:27 Program Structure Highlights 22:43 GT's Teaching Style 23:32 Creating Safe Space 24:28 Alumni Group Exploration 25:46 Eileen's Facilitation Style 33:42 Common Support Group Worries Addressed 37:48 Importance of Diversity In Groups 41:41 Reflections on Thriving With Arthritis Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
Today's Episode Tom shares his experience traveling to Hawaii with his wife Nancy, who has Alzheimer's disease, and their caregivers. They faced challenges including managing Nancy's stress, medication schedule, and mobility needs, but still had enjoyable moments. Tom provides advice for caregivers considering travel, such as contacting TSA Cares in advance and pacing activities appropriately. About Dr. Koolaee Dr. Michelle Koolaee did her training for internal medicine residency at St. Luke's Roosevelt Hospital and went on to do her fellowship at University of Pennsylvania for rheumatology, where she was named Fellow of the Year. She then became an assistant professor at the University of Southern California before working at organizations such as Healthcare Partners and Presbyterian Intercommunity Hospital. She currently practices at Huntington Health, an affiliate of Cedars-Sinai, and is now starting her own direct care practice. Links for Dr. Koolaee https://www.drrmichellekoolaee.com/ Facebook LinkedIn Instagram Learn more about your ad choices. Visit megaphone.fm/adchoices
Autoinflammatory diseases are often considered rare — but, in clinical practice, they may be far more common than we think. In this episode of Around the Rheum, hosts Dr. Daniel Ennis and Dr. Janet Pope speak with Dr. Jason An, a Toronto rheumatologist with expertise in autoinflammatory disorders.Together, they explore how these conditions differ from classic autoimmune disease, why adult rheumatologists should be thinking about them more often, and how to approach diagnosis when the presentation doesn't fit neatly into familiar categories.Dr. An also shares practical strategies for recognizing autoinflammatory patterns, interpreting genetic testing, and using targeted therapies both diagnostically and therapeutically.In this episode we discuss:The evolving definition of autoinflammatory disease and how it differs from autoimmune diseaseWhy these disorders are not just pediatric diseases and may present in adulthoodA practical cytokine-based framework for classifying autoinflammatory diseasesThe four major inflammatory “buckets”:IL-1–mediated diseasesIL-18-mediated diseasesTNF / NF-κB pathway disordersInterferonopathiesClinical pattern recognition in patients with recurrent fevers and systemic inflammationThe role and limitations of genetic testing in autoinflammatory diseaseWhy variants of uncertain significance (VUS) may still be clinically meaningful in adultsUsing targeted therapies as diagnostic tools (colchicine, IL-1 blockade, JAK inhibitors)When rheumatologists should consider referral to an autoinflammatory disease specialistRecommended reading:Dr. An's review on autoinflammatory diseases in The Journal of Rheumatology:https://www.jrheum.org/content/51/9/848Dr. Jason An, MD, MSc is an adult rheumatologist specializing in the diagnosis and treatment of autoinflammatory diseases who works in community practice in the Greater Toronto Area (GTA)Around The Rheum is produced by the CRA Communications Committee. A special thank you to the podcast team, Dr. Dax G. Rumsey (CRA Communications Committee Chair), Dr. Daniel Ennis (Host), Dr. Janet Pope (Host) David McGuffin (exploreproductions.ca), and Erin Stewart (CRA) for leading production.Our theme music was composed by Aaron Fontwell.For more on the work of the Canadian Rheumatology Association, visit rheum.ca
Today's guest is Vanessa, a 23 year old student who was hospitalized and then diagnosed with lupus. Today's Host Dr. Michelle Koolaee did her training for internal medicine residency at St. Luke's Roosevelt Hospital and went on to do her fellowship at University of Pennsylvania for rheumatology, where she was named Fellow of the Year. She then became an assistant professor at the University of Southern California before working at organizations such as Healthcare Partners and Presbyterian Intercommunity Hospital. She currently practices at Huntington Health, an affiliate of Cedars-Sinai, and is now starting her own direct care practice. Links for Dr. Koolaee https://www.drrmichellekoolaee.com/ Facebook LinkedIn Instagram About Dr. Raj Dr Raj is a quadruple board certified physician and associate professor at the University of Southern California. He was a co-host on the TNT series Chasing the Cure with Ann Curry, a regular on the TV Show The Doctors for the past 7 seasons and has a weekly medical segment on ABC news Los Angeles. More from Dr. Raj The Dr. Raj Podcast Dr. Raj on Twitter Dr. Raj on Instagram Learn more about your ad choices. Visit megaphone.fm/adchoices
Cheryl and Chrissy also do a deep dive into the Rheum to THRIVE program and discuss their excitement over Chrissy taking on a new role as the lead facilitator of an upcoming cohort. Chrissy's facilitation style is flexible and responsive, letting the group's needs guide the conversation while keeping it grounded in the weekly theme. If you want a supportive, stigma-free space that helps you feel less alone, more informed, and more capable of building a full life with arthritis, Chrissy's Rheum to THRIVE group might be just right for you - learn more here. Episode at a glance: 00:00 Welcome Back, Chrissy! Quick Catch-Up & Arthritis Background 11:23 Big Announcement: Training New Rheum to Thrive Facilitators 12:13 Why Chrissy Wanted to Facilitate (and What Participants Gain) 18:40 What a Typical Rheum to Thrive Meeting Looks Like (THRIVE Breakdown) 35:26 Rheum to Thrive Explained: Cohort Learning + Alumni Support (and Why Topics Help) 39:41 On the Fence About Support Groups? Privacy, Intimidation & Finding the Right Fit 42:30 Myths, Doom Spirals & Misinformation: What Good Facilitation Looks Like 45:45 Participation Your Way: Cameras Off, Chat-Only, Discord, and Asking for Help 51:34 Words of Wisdom: “Life Is Different, But It's Not Over” + Acceptance & Adapting Goals Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
Dr.Jack Cush reviews the hot item takeaways from last weeks RheumNow.Live 2026 Diet & Obesity Management in Rheumatology - Uzma Haque, MD Mitigating risk for Rheum patients undergoing orthopedic surgery - Susan Goodman, MD Paradoxical skin reactions – Dr. Joseph Merola Mortality in RA - Elena Myasoedova, MD The Mucosal Hypothesis to RA - Kristin Demourelle, MD Advances in ILD - Jeffrey Sparks, MD Seronegative vs. Seropositive RA - Jack Cush, MD
They share words of wisdom for individuals newly diagnosed with rheumatoid arthritis, emphasizing kindness, self-compassion, and love. Helen also discusses the highlights of her experience in the Rheum to THRIVE program and how it helped her adjust to her new normal. Helen also shares how using the PERMA model from positive psychology (Positive emotions, Engagement, Relationships, Meaning & Accomplishment) helps keep her life and condition manageable. She encourages taking it day by day and continuously asking oneself how to love and support oneself through the journey. This episode is a great reminder for anyone with chronic illnesses to focus on self-love to navigate the challenges of the condition.Episode at a glance:Helen's Journey with Arthritis: Helen describes diagnosis and treatment journey as gloriously imperfect.Self Compassion: Helen and Cheryl discuss how having self-compassion is a great coping mechanism for those with chronic illnesses.PERMA Model: Cheryl and Helen discuss what the PERMA model is and how it can be helpful in chronic illness management.Rheum to THRIVE: Cheryl and Helen discuss Helen's experience with the Rheum to THRIVE support group.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
They discuss how they became Rheum Champions, their personal journeys with conditions like rheumatoid arthritis, lupus, PCOS, and more, and the importance of community and support. The episode also highlights significant takeaways from the meeting, including research updates, the passion of the researchers, and the heartwarming sense of community. This podcast serves as a powerful reminder of how important it is to integrate the patient voice into rheumatology research. *This episode was originally recorded for the My Spoonie Sisters podcast. Episode at a glance:00:00 Welcome to the Rheum Champions Tell All01:59 Introducing the Rheum Champions03:55 Sharing Our Stories: The Journey to Advocacy07:13 The Impact of Community and Support10:55 Becoming a Rheum Champion16:09 Highlights from the 2025 Investigators Meeting24:52 Final Thoughts and How to Get InvolvedMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
Today's Host Dr. Michelle Koolaee did her training for internal medicine residency at St. Luke's Roosevelt Hospital and went on to do her fellowship at University of Pennsylvania for rheumatology, where she was named Fellow of the Year. She then became an assistant professor at the University of Southern California before working at organizations such as Healthcare Partners and Presbyterian Intercommunity Hospital. She currently practices at Huntington Health, an affiliate of Cedars-Sinai, and is now starting her own direct care practice. Links for Dr. Koolaee https://www.drrmichellekoolaee.com/ Facebook LinkedIn Instagram About Dr. Raj Dr Raj is a quadruple board certified physician and associate professor at the University of Southern California. He was a co-host on the TNT series Chasing the Cure with Ann Curry, a regular on the TV Show The Doctors for the past 7 seasons and has a weekly medical segment on ABC news Los Angeles. More from Dr. Raj The Dr. Raj Podcast Dr. Raj on Twitter Dr. Raj on Instagram Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode, we sit down with Dr. Kristin to discuss her session at ACR Convergence on taking a personalized approach to pulmonary hypertension in connective tissue diseases. She shares why now is the critical moment for this shift and how “personalized” care extends beyond biomarkers and imaging to encompass clinical nuances, patient-reported symptoms, and multidisciplinary collaboration. We explore the key challenges in detecting pulmonary hypertension early, the promise of emerging technologies like AI-assisted imaging and molecular diagnostics, and the subtle red flags clinicians should recognize in at-risk patients. Dr. Kristin also reflects on her unique dual training in rheumatology and pulmonology, the defining moments that shaped her career, and how mentorship continues to drive innovation and compassion in the care of patients with connective tissue lung disease.
In this episode, we explore RheumCode, a groundbreaking new initiative from the American College of Rheumatology (ACR) designed to build a common digital language for rheumatology. RheumCode aims to ensure that data means the same thing wherever it lives—whether in an EHR, a clinic, or a registry—enabling systems to seamlessly communicate and make better use of the medical information already being documented. We discussed how RheumCode began, the collaboration behind its development, and its potential to transform the way clinicians practice; researchers study disease, and patients experience their care. This episode was sponsored by Pfizer
Today's Guest Dr. Michelle Koolaee did her training for internal medicine residency at St. Luke's Roosevelt Hospital and went on to do her fellowship at University of Pennsylvania for rheumatology, where she was named Fellow of the Year. She then became an assistant professor at the University of Southern California before working at organizations such as Healthcare Partners and Presbyterian Intercommunity Hospital. She currently practices at Huntington Health, an affiliate of Cedars-Sinai, and is now starting her own direct care practice. Links for Dr. Koolaee https://www.drrmichellekoolaee.com/ Facebook LinkedIn Instagram About Dr. Raj Dr Raj is a quadruple board certified physician and associate professor at the University of Southern California. He was a co-host on the TNT series Chasing the Cure with Ann Curry, a regular on the TV Show The Doctors for the past 7 seasons and has a weekly medical segment on ABC news Los Angeles. More from Dr. Raj The Dr. Raj Podcast Dr. Raj on Twitter Dr. Raj on Instagram Want more board review content? USMLE Step 1 Ad-Free Bundle Crush Step 1 Step 2 Secrets Beyond the Pearls The Dr. Raj Podcast Beyond the Pearls Premium USMLE Step 3 Review MedPrepTGo Step 1 Questions MedPrepTGo Step 2 Questions Learn more about your ad choices. Visit megaphone.fm/adchoices
Welcome to ACR Convergence 2025 in Chicago! Here, Dr. Hausmann delivers a quick update on what our podcasts will cover while the meeting is in session. Don't forget to tune in to ACR on Air and ACR Journals on Air each morning, starting this Saturday, to catch up on the latest in Rheumatology
In this episode, Dr. Shaun Jackson uses a compelling patient case to illuminate the complex mechanisms of immune tolerance and autoimmunity. He explains how B cells learn to avoid targeting the body's own tissues through central and peripheral tolerance—and how these safeguards can fail. The discussion covers the roles of germinal centers, T cells, and rare genetic disorders in shaping immune regulation, with Alport's syndrome and post-transplant Goodpasture's disease serving as striking examples. Dr. Jackson also reflects on emerging directions in autoimmune research and shares his journey from medical training in South Africa to leading a research program in Seattle, offering valuable insights for future physician-scientists.
In this week's episode, we dive into the ins and outs of the rheumatology musculoskeletal ultrasound certification process—what it takes to log 150 scans, meet CME requirements, and ultimately sit for the exam. We're joined by Dr. Liudmila Kastsianok, who shares her insights on how ultrasound is reshaping clinical practice, from enhancing diagnostic accuracy to opening new avenues in research. We also explore how incorporating ultrasound into routine care can deepen the physician-patient relationship and improve communication. Finally, Dr. Kastsianok offers her perspective on where the field is headed and why ultrasound is becoming an essential skill for the next generation of rheumatologists.
Our final webinar in this month's Rheum to Breathe: ILD campaign brings together ILD experts to discuss best practices in diagnosis, screening, and monitoring, covering: tools, labs, and imaging; timing and frequency of screening; ILD screening in RA; and, referral strategies. Panelists: Shane Shapera, MD Elana Bernstein, MD Bryant England, MD Moderator: Jack Cush, MD
QD clinics on ILD - lessons from the Clinic; brought to during the "Rheum to Breathe" ILD campaign ILD QD Clinic #4 ILD QD Clinics - Worsening Breathlessness in SSc ILD: The Pressure Is On ILD QD clinics on ILD #1 - Be Careful What you Look For
In this episode, our guests Dr. Sabrina Hoa and Dr. Marie Hudson explore new insights into late-onset interstitial lung disease (ILD) in scleroderma. Using data from the Canadian Scleroderma Research Group, they discuss how ILD can still develop years after diagnosis, challenging traditional screening timelines. They cover key findings, clinical implications, treatment patterns, and the need for more inclusive trials. The conversation also touches on mentorship and what's next in scleroderma research.
Rheum to Breathe Rx Update ILD Treatment and Guidelines Part 1: ILD Guidelines including: ACR/CHEST Guidelines for SSc ILD (Dr. Sindhu Johnson), ERS/EULAR Clinical Practice Guidelines (Dr. Anna-Maria Hoffman-Vold) and ILD Guideline Caveats and Concerns (Dr. Jeffrey Sparks).
Rheum to Breathe Rx Update ILD Treatment and Guidelines Part 2: ILD Treatment including: RA-ILD Treatment Update (Dr. Bryant England), Do DMARDS Affect CTD-ILD Outcomes? (Dr. Elizabeth Volkmann), Non-pharmacologic Treatment of ILD (Dr. Jon Giles) and Transplantation: A real option! (Dr. John Joerns)
Rheum to Breathe Rx Update ILD Treatment and Guidelines Part 3: ILD Assessment and Management including: Biomarkers in ILD (Dr. Elena Joerns), How to Assess ILD in Patients (Dr. Janet Pope) and Management of SSc ILD (Dr. Alicia Hinze)
Rheum to Breathe Rx Update ILD Treatment and Guidelines Part 4: Rheum + Pulm Collaborations in ILD including The Rheumatologist and Pulmonologist: Different approaches to the same patient (Dr. Paul Dellaripa and Dr Rachel Putman).
QD clinics on ILD - lessons from the Clinic; brought to during the "Rheum to Breathe" ILD campaign ILD QD Clinic #3 ILD QD Clinic: Application of the ACR CHEST Guidelines to Two Cases ILD QD Clinic: Progressive RA-ILD Management ILD QD Clinic: Beyond the Numbers in Newly Diagnosed ILD
In this journal club, we will discuss two pivotal studies in ILD, the FIBRONEER study and the RECITAL study: Nerandomilast in Patients with Progressive Pulmonary Fibrosis, Maher, T.M. et al. NEJM. 2025 May 19. doi: 10.1056 Rituximab versus intravenous cyclophosphamide in patients with connective tissue disease-associated interstitial lung disease in the UK (RECITAL): a double-blind, double-dummy, randomised, controlled, phase 2b trial, Maher T.M., et al. Lancet 2023 Jan;11(1). doi: 10.1016 Panelists: Toby Maher, MD Shervin Assassi, MD Jack Cush, Moderator
In this episode, we preview ACR Convergence 2025 in Chicago this October with Dr. Greg Gardner, Chair of the Annual Meeting Planning Committee (AMPC). We'll explore key topics like emerging therapies, AI in rheumatology, and highlights such as the Practice Innovation Summit, Ultrasound Course, and Fellows In Training (FiT) Program. Dr. Gardner also discusses highlights such as, CAR T-cell therapies, new non-renal lupus guidelines, a Live Journals Club focused on Big Data and why this year's meeting is earlier on the calendar. Tune in for a sneak peek at what's to come!
On this episode, Emily and Cheryl discuss how they've come to terms with the fluctuating, non-linear, dynamic nature of rheumatoid arthritis. After being a fierce athlete and playing Division 1 water polo, Emily was diagnosed with rheumatoid arthritis at age 22. She shares lessons learned while working as a night shift nurse for 12 years and having three children. Emily opens up about using cannabis as part of her care, the importance of mental health support, and why community has been so vital, especially through Cheryl's Rheum to THRIVE program. Together, Cheryl and Emily reflect on coping with uncertainty, redefining identity, and what it means to live a good life with RA. This is an encore presentation of episode 85, which first appeared in December, 2022.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode show notes:Go to the episode page on the Arthritis Life Website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
"QD clinics on ILD - lessons from the Clinic; brought to during the "Rheum to Breathe" ILD campaign. Here are the individual video titles and links: ILD QD Clinic: Stick or twist (when not to change treatment) https://youtu.be/sdGPsvcfyzQ ILD QD Clinic: Interstitial Lung Disease with Positive SSA and Rash https://youtu.be/1H10_VR8t_0 ILD QD Clinic Video: RA and Bronchiectasis https://youtu.be/-StSi3v8ew8
Rheum to Breathe “ILD and Autoimmune Disease”: RA ILD Complications (Scott Matson): https://youtu.be/xTLvKLwlF-E ILD and Mortality (Bryant England): https://youtu.be/Ew9OW2o43Bg ILD in Sjorgen's (Nancy Cateron):https://youtu.be/BLVF2qvoR7E Truth of Fake: Idiopathic Interstitial Pneumonia with Autoimmune Features (Janet Pope): https://youtu.be/4Jk7nVeLIR8
"QD clinics on ILD - lessons from the Clinic; brought to during the "Rheum to Breathe" ILD campaign
In recognition of Rheumatic Disease Awareness Month this September, this episode explores the critical yet often underutilized role of exercise in the management of rheumatic diseases. We examine how structured movement—ranging from step counts to resistance training—can significantly alter the trajectory of pain, function, and overall disease progression. Our discussion offers practical strategies for helping patients integrate physical activity into their daily routines, with a focus on starting gradually and maintaining consistency. We also address the heightened cardiovascular risks associated with rheumatoid arthritis and how targeted exercise interventions can mitigate these risks. Finally, we delve into fall prevention tactics and the use of technology and interdisciplinary care teams to set achievable, patient-centered goals that physical therapists can effectively support.
Cheryl shares her powerful journey of being diagnosed with rheumatoid arthritis (RA) at just 21 years old and reflects on what it was like to go from being a healthy, athletic college student to suddenly navigating pain, fatigue, and disbelief from doctors. She opens up about the emotional toll of feeling dismissed, the relief of finally getting a diagnosis, and the lessons she's learned about acceptance, self-compassion, and living fully despite chronic illness. She also shares how her experiences led her to create the Rheum to THRIVE educational program and support group, so that no one has to navigate life with RA alone. Cheryl and Dr. Hassett explore the realities of RA that often go misunderstood, from unpredictable flare-ups, invisible symptoms, and the mental health challenges of chronic illness. Cheryl also shares the strategies that help her thrive today: pacing her energy, building community, protecting sleep, and seeking out moments of joy. If you're feeling lost or overwhelmed after your own diagnosis, this conversation will remind you that you're not alone, and that it is possible to find purpose, hope, and connection while living with RA.This conversation originally occurred in 2024 and first appeared on the "Chronic Pain Reset” podcast, hosted by pain psychologist Dr. Afton Hassett. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode detailsGo to the show notes page on the Arthritis Life Website.
In this episode of ACR Journals on Air, host Dr. Vicki Shanmugam speaks with Dr. Alain Sanchez-Rodriguez about a new study from the Lupus Midwest Network (LUMEN), published in Arthritis Care & Research. They explore how patients with systemic lupus erythematosus (SLE) experience delays and disparities in care, the types of physicians involved in diagnosis, and what the data reveals about access to specialized treatment. Dr. Sanchez-Rodriguez also shares his research journey and insights on improving equity in rheumatology.
Cheryl and Gittel explore the importance of being mindful with our social media use. While they highlight the risks of falling into negative patterns that can lead to isolation, they also emphasize social media's powerful potential for connection and support among those living with chronic illness.Gittel shares how participating in online support communities like Rheum to THRIVE has strengthened her self-management and coping strategies. Together, Cheryl and Gittel stress the importance of setting intentional goals for social media use, fostering connection, protecting mental health, and ultimately avoiding the trap of isolation.Episode at a glance:Milestone guest return: Gittel joins the podcast for her fifth appearance and reflections on her journey with Crohn's disease and ankylosing spondylitis.Rheum To Thrive: Gittel reflects on how her relationship with the Rheum to Thrive program has grown over time.Mindful social media use: Comparing patterns of use, misuse, and abuse to drug use.The double-edged sword of social media: Exploring both its risks (isolation, negative cycles) and benefits (connection, support).Personal impact: Gittel's story of how online support communities improved her coping and self-management.Practical takeaways: Setting intentional goals for social media to foster connection, protect mental health, and avoid isolation.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
It's been over two decades since the American College of Rheumatology (ACR) last released comprehensive treatment guidelines for systemic lupus erythematosus (SLE), and much has changed. In this episode, we're joined by Dr. Lisa Sammaritano to discuss the forthcoming 2025 ACR Guidelines for the Treatment of SLE. These updated recommendations reflect a significant evolution in our approach to lupus care, from the growing range of therapeutic options to a stronger emphasis on patient engagement and minimizing steroid toxicity. We'll dive into how the guidelines tailor treatment across diverse organ systems and patient populations, and what clinicians need to know to effectively incorporate these updates into their practice.
This episode explores the ARChiVe Registry, a longitudinal database for pediatric vasculitis, with guest Dr. Sam, a pediatric rheumatologist and bioinformatician. The discussion covers the registry's design, patient selection, and key outcomes, including remission rates, hospitalization, and damage scores (pVDI) across treatment strategies. Dr. Sam highlights how these findings inform clinical practice and discusses the challenges of observational data. The episode also touches on his unique background in social pediatrics and health informatics, emphasizing the evolving role of clinicians as both diagnosticians and data stewards in rheumatology research.
In this episode, we're joined by Karen Durrant, founder of the Autoinflammatory Alliance, who shares her powerful journey from a determined parent seeking a diagnosis for her child to the leader of a global patient advocacy movement. What began as a personal quest has evolved into an international network supporting thousands affected by autoinflammatory diseases. Karen discusses how her collaboration with Dr. Fatma Dedeoglu, a leading pediatric rheumatologist, helped bridge the gap between patient experience and medical research—ultimately contributing to the development of international clinical guidelines that are transforming care for rare disease patients worldwide.
This week, we explore the potential role of sodium-glucose cotransporter-2 (SGLT2) inhibitors in patients with systemic lupus erythematosus (SLE) and comorbid type 2 diabetes (T2D)—a population historically excluded from landmark SGLT2i trials. Our guest, Dr. Karen Costenbader, discusses the rationale behind the study, the nuances of trial emulation design, and key findings regarding cardiovascular and renal outcomes, infection risk, and prescribing patterns in this complex cohort. We also unpack implications for clinical decision-making and the evolving landscape of metabolic and cardiovascular care in autoimmune disease.
On episode 244, Lynnsey and Matthew are joined by Ray Waldrup, Co-Founder and CEO of The Leaders Rheum, a national network of leading rheumatology practices. Drawing on 3 decades of experience in healthcare leadership, Ray shares his insights on the challenges and opportunities facing independent physician practices today. From the impact of hospital and private equity ownership to the growing influence of insurance companies and PBMs, Ray offers an inside look at the forces reshaping the healthcare landscape. We also dive into how The Leaders Rheum supports independent practices through aggregation, management services, and industry expertise. Tune in for a conversation on the future of independent care!
In this episode, we're joined by myositis expert Dr. Brian Feldman to explore Juvenile Dermatomyositis (JDM). We cover its clinical presentation, key diagnostic clues, and the workup including labs and imaging. We examine the MDA5 variant, known triggers, and non-pharmacologic management strategies. Dr. Feldman also addresses the high-stakes scenario of JDM-associated rapidly progressive interstitial lung disease, offering insights into pathophysiology, imaging, and aggressive early treatment. The episode concludes with a look at the field's questions that remain.
Today, we explore why naming matters—especially when it comes to peripheral nervous system disorders in autoimmune diseases like Sjögren's. Dr. Shanmugam is joined by Dr. Ghaith Noaiseh and Kathy Hammitt, two key contributors to the recently published manuscript, "Recommendations for Aligned Nomenclature of Peripheral Nervous System Disorders Across Rheumatology and Neurology," in Arthritis & Rheumatology. Together, they discuss the critical importance of unified terminology across specialties, the implications for diagnosis and treatment, and how clearer, consistent language can empower both clinicians and patients. The conversation also delves into the development of Clinical Practice Guidelines and how this nomenclature effort supports interdisciplinary care, research, and patient advocacy. Tune in for expert insight and a behind-the-scenes look at a major collaborative effort to bring clarity to complex clinical conversations.
In this episode, we're joined by Dr. Dana DiRenzo to explore groundbreaking developments in the treatment of Sjögren's Disease. For the first time, therapies like BAFF blockade, CD40 ligand inhibitors, and FcRn antagonists appear poised to change the course of the disease—moving beyond symptom management to potential disease modification. We delve into the underlying science, current clinical trials, and tackle the big question: how early is early enough to begin treatment? Dr. DiRenzo also shares her expert perspective on holistic symptom management through what she calls the "4 Pillars of Health," offering practical strategies for improving quality of life for those living with Sjögren's.
In this episode of ACR Journals on Air, Dr. Jason Knight joins us to discuss his recent Arthritis & Rheumatology review on antiphospholipid syndrome (APS), an autoimmune disease marked by complex thromboinflammatory processes. We explore the evolving understanding of APS pathogenesis, the role of antiphospholipid antibodies, Beta-2 glycoprotein I, and NETosis, as well as current and emerging treatment strategies. Dr. Knight also shares insights from his research career and reflects on the personal and professional journey behind his work. A must-listen for clinicians and researchers focused on autoimmunity and translational science.
In this episode, we take the leap from the structured world of rheumatology fellowship into the dynamic, often unpredictable landscape of private practice. Dr. J. Thomas Berry shares his personal journey, offering an honest and insightful look at the transition. From the practical differences between academic and private settings to the business learning curve, patient care dynamics, and how he stays clinically sharp, this conversation is a must-listen for fellows preparing to enter independent practice
In this episode, we examine Behcet's Disease—a rare, multisystem inflammatory disorder that continues to challenge traditional frameworks of autoimmunity and vasculitis. Dr. Johannes Nowatzky joins us to discuss the disease's hallmark features, including recurrent mucocutaneous ulcers and ocular involvement, as well as its geographic distribution and genetic associations. We explore the diagnostic difficulties posed by its heterogeneous presentation and symptom overlap with other conditions, and the rationale behind individualized, often multidisciplinary treatment strategies. This conversation offers valuable insights into a condition that remains as enigmatic as it is clinically significant.
How can you get a second season out of tulips grown in pots? What is the most natural and cost-effective way to add nutrients to my soil? How do you garden with hedgehogs in mind?Kathy Clugston and her team of gardening experts return to Bangor, Northern Ireland where they solve some gardening dilemmas. Joining her are ethnobotanist James Wong, garden designer Neil Porteous, and Head of Gardens at Balmoral Kirsty Wilson.Later in the programme, continuing our Edible Essential Series is Bob Flowerdew, who provides the top fruits and vegetable to add to your shopping list this season. Producer: Bethany Hocken Assistant Producer: Dulcie Whadcock Executive Producer: Carly MaileA Somethin' Else production for BBC Radio 4Plant List Questions and timecodes are below. Where applicable, plant names have been provided. Q- What should I do with my phalaenopsis orchid? (01'24")Q- How do I look after auriculas during the summer? (05'02")Q- How can you get a second season out of tulips grown in pots? (06'57")Q- I've killed four Japanese acers over the years – what am I doing wrong? (19'30")Feature – Bob Flowerdew's edible shopping list. What fruit and veg you should grow this season (14'41")Bob Flowerdew – Asparagus officinalis, asparagus Ribes nigrum, blackcurrant Chillies Allium sativum, garlic Cynara cardunculus var. scolymus, globe artichokes Helianthus tuberosus, Jerusalem artichokes Allium cepa, onions Solanum tuberosum, potatoes Raphanus sativus, radish Rubus idaeus, raspberries Ribes rubrum, redcurrants Rheum rhabarbarum, rhubarb Allium cepa var. aggregatum, shallots Fragaria × ananassa, strawberries Zea mays var. saccharate, sweetcorn Q- My soil is very much depleted of nutrients. What is the most natural and cost-effective way to remedy this? (18'44")Q – What shrubs could I grow in containers that are exposed to extreme winds and sea salt? (23'36")Neil Porteous – Grevillea rosmarinifolia, rosemary grevillea Euphorbia stygiana subsp. Santamaria, Ozothamnus rosmarinifolius, sea rosemaryKirsty Wilson – Phormium tenax, New Zealand flax Hakonechloa macra, Japanese forest grassJames Wong – Pinus pinea, stone pineQ - How do you garden with hedgehogs in mind? (29'38")Q - I'm just about to dig out an area for a large pond. What plants do the panel recommend I use to get me started? (31'20")James Wong – Soleirolia soleirolii, mind-your-own-business Nymphaea, waterliliesKirsty Wilson – Iris pseudacorus, yellow iris Hosta, Plantain lily Astilbe, astilbe Meconopsis, Himalayan poppy Cyperus alternifolius L., umbrella plantNeil Porteous – Eryngium, sea holly Eryngium pandanifolium, pandan-like-leaved eryngoQ - Can you recommend some plants that are showstoppers and conversation starters? (37'21")Kirsty Wilson – Nepeta 'Blue Dragon', catmint 'Blue Dragon'Neil Porteous – Vitex lucens, puririJames Wong – Mahonia, oregon grape Daphne