DEARG: Delivering Endometriosis and Adenomyosis Resources and Guidance

DEARG Podcast Episode 22: Embracing Yoga for Endometriosis and Migraine Relief with Jane Whelan Episode Overview In this episode of the DEARG podcast, Kathleen sits down with Jane Whelan, a seasoned yoga instructor from Dublin, to discuss her personal journey and professional insights into managing endometriosis and migraine. Jane shares her experiences, from being diagnosed with endometriosis and migraine to finding solace and strength through yoga. This episode is a must-listen for anyone seeking holistic ways to manage chronic pain and improve their quality of life. Jane's Personal Journey:   - Diagnosed with endometriosis at 25.   - Early experiences with migraine and how it intersected with her endometriosis.   - Challenges faced during her time in the events industry and her subsequent health issues. Professional Experience:   - Work with the Migraine Association of Ireland and the European Headache Alliance.   - Transition into yoga, starting her teacher training over 12 years ago. Yoga as a Self-Management Tool:   - How yoga helped Jane manage her symptoms and pain from both endometriosis and migraine.   - Practical applications of yoga, including gentle movements, breath work, and relaxation techniques.   - The importance of having a variety of tools for day-to-day management of chronic conditions. Challenges and Realisations:   - Jane's struggles with maintaining physical activity due to pain and how yoga provided a flexible solution.   - Realisations about the interconnectedness of stress, anxiety, and chronic pain.   - Using yoga to regain confidence and trust in her body's abilities. Practical Tips and Insights:   - Specific yoga practices that helped Jane during painful flare-ups and IVF cycles.   - The role of gentle movements and breathwork in managing chronic pain.   - Importance of finding what works for each individual and adapting practices accordingly. Resources and Links Migraine Association of Ireland: https://migraine.ie/ European Headache Alliance: https://www.emhalliance.org/  Jane Whelan on Instagram https://www.instagram.com/yogaformigraine/

In this week's episode of the DEARG podcast, Kathleen welcomes Dearbhail Ormond, an advocate for endometriosis and adenomyosis awareness and the founder of the Frendo app and Frendo at Work program. Dearbhail shares her personal journey with endometriosis, which began with symptoms in her teens and led to an 18-year struggle for a diagnosis. Her experiences of isolation and frustration inspired her to create the Frendo app—a community-driven symptom tracker designed to support those with endometriosis and adenomyosis. The Frendo app offers an extensive symptom tracker and a supportive community where users can share their stories and access credible resources. Dearbhail emphasises the importance of community in combating the loneliness often associated with chronic illnesses. She also discusses the transition from a corporate career to founding her own venture, highlighting the challenges and rewards of this journey. Dearbhail introduces the Frendo at Work program, aimed at educating employers about the importance of supporting employees with chronic conditions like endometriosis. She discusses the positive shift in workplace health conversations and the critical role of employers in creating accommodating and inclusive environments. Listeners will find valuable insights into the creation and impact of the Frendo app and the Frendo at Work program, as well as Dearbhail's dedication to improving the lives of those affected by endometriosis and adenomyosis. Frendo Information: For more information on Frendo and Frendo at Work, visit http://www.frendo.co.uk or email atwork@frendo.co.uk Tune in to this episode for an inspiring discussion on endometriosis, community support, and the importance of workplace inclusivity.

Dr Neesha Patel is an expert in coaching people to make positive lifestyle behaviour changes and maintain health and wellbeing, using the latest scientific research and psychological tools. This includes support with managing long-term conditions such as type 2 diabetes, pre-diabetes, long covid, chronic pain, as well as, difficulties with mental health, poor sleep, weight loss and women's health including menopause and endometriosis. Join us to discover Neesha's wealth of knowledge and expertise on how you can manage the psychological impact of a chronic condition such as endometriosis using some simple evidence-based coping strategies to reduce the emotional burden and reset your mind and body to feel good. Dr Neesha Patel is a UK-qualified Independent Health Psychologist and the founder of Evoking Health Ltd. Neesha founded Evoking Health Ltd in 2022 after working across long-term chronic health conditions and obesity in the NHS. She was awarded her PhD from the University of Manchester in 2013 for her research in managing long-term conditions in particular type 2 diabetes in the South Asian population and the role of social networks in supporting management of this condition. Neesha currently works part-time in the NHS, Diabetes Centre as well as Evoking Health Ltd. Her mission for Evoking Health Ltd is to empower and motivate people as many people to break old habits and create new by changing the important connection between our thoughts, emotions and actions, to help people to sustain long-lasting habits for a healthier, happier and more fulfilling life. Neesha provides workshops, webinars, individual therapy and hosts Mind Body Retreats in her local community to help people to experience the benefits of mind body connection for their health and wellbeing. Instagram @evokinghealth_drp LinkedIn www.linkedin.com/in/dr-neesha-patel-91385066 Takeaways: **The Importance of Multidisciplinary Care**: Managing chronic conditions like endometriosis requires a holistic approach, incorporating medical, psychological, and lifestyle support. **Psychological Support**: Psychological interventions play a crucial role in managing chronic conditions. Many patients experience fear, trauma, and not being believed, which can deter them from seeking help. Psychological support can help in breaking down these barriers. **Identifying and Addressing Unhelpful Behaviors**: Patients often develop unhelpful coping mechanisms, such as overeating or other behaviors that exacerbate their condition. Identifying these behaviors through self-awareness and monitoring is crucial. **Therapeutic Interventions**: Evidence-based therapeutic interventions tailored to individual needs are essential. Techniques such as self-compassion, acceptance, and restructuring unhelpful thoughts can significantly improve patients' quality of life. **Role of Journaling**: Writing down thoughts and feelings can help patients process their emotions and identify patterns in their behavior. This self-monitoring can be a powerful tool in managing chronic conditions. **Validation and Normalization**: Validating and normalizing patients' feelings of guilt, shame, and other emotions associated with chronic illness can alleviate distress and promote mental well-being. **Empathy and Compassion**: Building a compassionate and non-judgmental therapeutic relationship is key to effective psychological support. This approach helps patients feel understood and supported. **Challenges in Healthcare**: The conversation highlights the gaps in healthcare services for conditions like endometriosis, including the lack of mainstream services and the need for specialized care pathways. **Self-Compassion and Emotional Well-being**: Encouraging patients to practice self-compassion can help them manage the emotional impact of their condition and improve their overall well-being. These key messages emphasise the need for a comprehensive and empathetic approach to managing chronic conditions, incorporating both medical and psychological support to enhance patients' quality of life.

In this episode, Kathleen interviews Jo Chapple, a chartered physiotherapist specialising in female pelvic health. They discuss the importance of pelvic floor physiotherapy for individuals with endometriosis and adenomyosis. They cover topics such as the common dysfunctions associated with these conditions, the role of pelvic floor physiotherapy in managing pain and other symptoms, the importance of individualised treatment plans, and the need for a multidisciplinary approach to care. They also touch on the challenges of finding knowledgeable healthcare professionals and the importance of raising awareness about these conditions. Takeaways Pelvic floor physiotherapy is an important treatment option for individuals with endometriosis and adenomyosis. Common dysfunctions associated with these conditions include pelvic pain, muscle tension, and trigger points. Pelvic floor physiotherapy can help manage pain and other symptoms by addressing muscle imbalances and improving pelvic floor function. Treatment plans should be individualized and may include a combination of techniques such as manual therapy, exercises, and relaxation techniques. A multidisciplinary approach to care, involving collaboration between healthcare professionals, is important for the comprehensive management of these conditions. Finding knowledgeable healthcare professionals who understand the complexities of endometriosis and adenomyosis can be challenging, but it is crucial for effective treatment. Raising awareness about these conditions is important to ensure timely diagnosis and appropriate care. Jo has been working as a Chartered Physiotherapist for over 20 years now. In her career so far, Jo has worked across public and private sectors in the UK and Ireland, as well as establishing and developing her own private practice in Ireland, Pilates Physiotherapy Cork. One of Jo's clinical specialist areas of interest is female pelvic health, but she is also passionate about public health promotion and the accessibility of quality information for all. In recent years, Jo has become involved in professional training courses and public information seminars both in Ireland and overseas; all with an emphasis on raising awareness on the importance of pelvic health. @pilatesphysiocork @jochapplephysio The information provided in this podcast is for educational and informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have heard on this podcast.

Summary Jen Moore, aka Jen.dometriosis on social media, is an endometriosis and adenomyosis educator, speaker and campaigner. Following her 22 year long battle for a diagnosis, she now helps others suffering with these conditions, as well as working to create change on an institutional level.She has worked with the BBC, NHS, University of Cambridge, and global pharmaceutical companies; as well as contributing to research, books and consulting for national charities. Jen is a UN Women UK delegate for the 68th Commission on the Status of Women, where she is determined to include endometriosis and adenomyosis in these vital and high level discussions.Jen is also the founder of two Endometriosis based research projects. The first, Endo Education, is looking at the current state of medical teaching in the UK when it comes to endometriosis. The second, the They Said What?! project is a deeply personal piece of work, collating the lived experiences of medical misogyny faced by those suffering with the disease. In this episode, Kathleen chats with Jen, about her journey with endometriosis and adenomyosis. They discuss the importance of accurate information and definitions, the impact of misinformation and lack of education, the role of healthcare professionals in education, the hope for change and future generations, and the importance of sharing personal stories and accurate information on social media. Jen shares her experience of upskilling and educating herself on endometriosis and adenomyosis and provides advice for others who want to do the same. This conversation covers topics such as misinformation and media influence, the power of social media, the "They Said What" project, the impact of medical gaslighting, raising awareness for adenomyosis, and the emotional journey of a hysterectomy. It also discusses the complexities of post-surgery pain. Takeaways Be cautious of misinformation and sensationalised headlines in the media and on social media. Stay curious, ask questions, and think critically about the information you come across. The They Said What project aims to document and amplify experiences of medical gaslighting and dismissal in women's healthcare. It highlights the need for change and exposes the widespread issue of medical mistreatment. Adenomyosis is a condition that is often overlooked and misunderstood. More awareness and research are needed to address the impact of adenomyosis on individuals' lives. The emotional journey of a hysterectomy can be complex, and individuals may experience conflicting emotions. It is important to provide psychological support and acknowledge the significance of the choice to undergo a hysterectomy. Post-surgery pain can persist even after a hysterectomy and excision, and additional work may be required to address other pelvic pain generators. It is essential to have realistic expectations and explore all available tools for pain management. Jen's Website https://www.jenmoore.co.uk/ Jen on Instagram https://www.instagram.com/jen.dometriosis/ They Said What Submissions https://www.jenmoore.co.uk/projects/theysaidwhatproject They Said What?! Instagram https://www.instagram.com/theysaidwhatproject/

Summary In this conversation, Kathleen chats to Shawna Scott, the founder of Sex Siopa and BodyGrá, about the importance of pleasure and sexual health in those living with endometriosis, adenomyosis and pelvic pain. They discuss the significance of body-safe toys and materials, the different types of lubricants, and the importance of hygiene practices for sex toys. They also explore the need for honest and non-judgmental advice in the sexual health industry. Additionally, they highlight the importance of expanding support for pelvic health, including cancer survivors and individuals with pelvic pain conditions. The conversation concludes with a discussion on innovative products for pelvic health, such as Vagiwell and Calexotics vaginal dilators, the Ohnut and the Layer. Shawna discusses the importance of taking control of one's sexual health and rebuilding trust in oneself. She emphasises the role of pelvic physios and sexual therapists in providing support and recommends using products like vibrators to enhance sexual experiences. Shawna highlights the need for personalised recommendations based on individual preferences and sensitivities. She also explores the benefits of using materials like glass and stainless steel for temperature play and trigger point relief. The conversation delves into the use of dilators for pelvic pain and the challenges faced during menopause and perimenopause. Shawna emphasises the power of open conversations and the impact of social media on sexual education. Takeaways Pleasure and sexual health are important aspects of life with a chronic condition such as endometriosis and adenomyosis. Using body-safe toys and materials is crucial to avoid potential health risks. Choosing the right lubricant is essential for comfort and avoiding irritation. Expanding support for pelvic health, including cancer survivors and individuals with pelvic pain conditions, is necessary. Taking control of one's sexual health is empowering and can help rebuild trust in oneself. Pelvic physios and sexual therapists can provide valuable support and guidance in managing pelvic pain and enhancing sexual experiences. Choosing the right vibrator depends on individual preferences, sensitivities, and desired stimulation. Dilators can be helpful in managing pelvic pain, and their use should be personalised and gradual. Navigating menopause and perimenopause involves embracing the changes in one's body and exploring new possibilities for pleasure. Open conversations about sexual health and pleasure are essential for breaking down taboos and creating a supportive community. Social media platforms often present challenges for sex educators and businesses, but alternative strategies can be employed to reach and support individuals. Shawna's Websites www.sexsiopa.ie www.bodygra.ie Links to products discussed Lube https://bodygra.ie/products/sutil-luxe-vegan-water-based-lubricant Dilators https://bodygra.ie/products/calexotics-inspire-silicone-dilator-kit The Layer https://bodygra.ie/products/the-layer-absorbent-intimacy-blanket The Ohnut https://bodygra.ie/products/ohnut Chapters 00:00 Introduction and Background 02:04 Importance of Pleasure in Endometriosis Care 03:12 Body-Safe Toys and Materials 06:15 Types of Lubricants and their Importance 09:38 Hygiene Practices for Sex Toys and Shelf Life of Lube 11:14 Choosing the Right Lube and Avoiding Irritation 13:07 The Importance of Honest and Non-Judgmental Advice 14:38 Expanding Support for Pelvic Health 20:14 Support for Pelvic Pain Conditions 24:16 Innovative Products for Pelvic Health 30:59 Taking Control of Sexual Health 36:21 Choosing the Right Vibrator 42:36 Using Dilators for Pelvic Pain 46:12 Navigating Menopause and Perimenopause 50:12 The Power of Open Conversations 52:13 Challenges of Social Media 59:23 Accessibility and Inclusivity

Shannon Cohn, the filmmaker behind the documentaries 'Endo What?' and 'Below the Belt,' discusses her personal journey with endometriosis and her mission to raise awareness and create change. The reaction to the documentaries has been overwhelmingly positive, with many viewers feeling validated and grateful for the awareness they bring. Shannon emphasises the importance of storytelling and the challenges of balancing sensitive subjects in her films. She also addresses the misconceptions around endometriosis and offers advice for aspiring filmmakers. The goal of 'Below the Belt' is to bring the discussion of endometriosis into the mainstream and inspire practical solutions to the challenges faced by those with the condition. The documentaries 'Endo What' and 'Below the Belt' have had an overwhelmingly positive reaction, with viewers feeling validated and grateful for the awareness they bring. Balancing sensitive subjects in documentaries can be challenging, but it is important to tell authentic stories that resonate with a wide audience. One of the biggest misconceptions about endometriosis is that it is a niche or rare condition when in reality it has a significant impact on individuals, their loved ones, and society as a whole. Aspiring filmmakers should trust their instincts and tell authentic stories, while also finding a good editor who can provide honest feedback. The goal of 'Below the Belt' is to bring the discussion of endometriosis into the mainstream and inspire practical solutions to the challenges faced by those with the condition. The Endo What? movement website is www.endowhat.com Below The Belt website is www.belowthebelt.film

Endometriosis in Ireland: There is a lack of data on endometriosis in Ireland, including prevalence, diagnosis rates, and treatment. People with endometriosis often experience long wait times for diagnosis and treatment and may need to go private to see a specialist. Public Health and Endometriosis: Public health approaches endometriosis through prevention, promotion, education, and ensuring access to appropriate healthcare. Orla O'Connor's Story: Orla, an advocate for endometriosis awareness, shares her experience of being diagnosed with endometriosis and the challenges she faced in the Irish healthcare system. She is now studying public health with the goal of using her knowledge to improve the lives of people with endometriosis in Ireland. Challenges in the Irish Healthcare System: The Irish healthcare system is a multi-tier system with public and private options. This can lead to inequities in access to care, as those with private insurance may be able to access specialists and treatment more quickly. Patients' Rights: Patients in Ireland have the right to access their medical records. Orla discusses the challenges patients may face in obtaining their records and offers tips for requesting them. She also discusses access to the HSE Cross Border Directive. In this DEARG Podcast episode, we highlight the need for improved awareness, diagnosis, and treatment of endometriosis in Ireland and emphasise the potential role of public health in addressing this issue. Orla O'Connor discusses her decision to go back to college and study public health. She explains the role of public health in preventing disease, prolonging life, and promoting health through the organised efforts of society. Orla highlights the need to treat endometriosis as a public health issue and address the barriers to care in the Irish healthcare system. She also discusses the challenges with accessing medical records and the importance of advocating for oneself. Orla shares her experience with the cross-border directive and the Bucharest Endometriosis Centre, emphasising the need for improved access to specialised care for endometriosis patients. This conversation covers various topics related to healthcare resources, access to healthcare, and support for women with endometriosis. The concerns about the cross-border directive and the potential impact on local populations are also explored. The conversation delves into the barriers women face in accessing healthcare and the importance of empowerment and advocacy. The need for improvements in the healthcare system, including separating public and private healthcare, is emphasised. Takeaways Public health plays a crucial role in preventing disease, prolonging life, and promoting health through the organized efforts of society. Endometriosis should be treated as a public health issue, with a focus on raising awareness, educating the public, and improving access to care. The Irish healthcare system faces barriers to care, including a multi-tier system and limited access to medical records. The cross-border directive provides an opportunity for patients to access specialised care abroad, but there are challenges with referrals and reimbursements. The Bucharest Endometriosis Centre is an example of a healthcare provider that is breaking down barriers to care and providing specialized treatment for endometriosis patients. Brexit has resulted in the loss of healthcare resources in the UK, impacting accessibility for patients. Different healthcare systems have varying levels of accessibility and may pose challenges in accessing care. Empowering women in healthcare settings and advocating for their rights is crucial in improving their healthcare experiences. Complaints and advocacy play a significant role in holding healthcare providers accountable and driving change. Support and information are essential for patients, including knowledge of their rights and available resources.

"DEARG - Putting Kathleen King in the Hot Seat" with Johanna Huber: Kathleen's Personal Journey: Diagnosed with endometriosis after a nine-year delay, facing dismissal from doctors and misinformation. Frustrated by the lack of awareness and support, Kathleen became a dedicated advocate. Current Advocacy Work: Runs the DEARG podcast and leads various initiatives, including: The Irish EndoMarch MISE, an educational project on menstrual and endometriosis issues in schools Research collaborations Patient, corporate and media support Advisor to OnaWave (CailinAI) Advisor to TELL Health Advisor to JOII ESHRE Endometriosis Guidelines Challenges and Importance: Endometriosis advocacy faces funding difficulties, burnout risks, and the emotional toll of supporting patients. Despite challenges, Kathleen emphasises the importance of accurate information and individualisation of care. She advocates against misinformation and low-quality research, highlighting the need for critical evaluation. Key Qualities for Advocacy: Open-mindedness, active listening, and critical thinking skills Passion and commitment to empowering others Additional Points: Kathleen underlines the crucial role of: Accurate information for endometriosis patients Standardised care and specialist access Open communication, education, and support for women's health Recognising and addressing abnormalities in menstrual health Overall: Kathleen King's personal experience and dedicated advocacy work highlight the challenges and importance of improving endometriosis awareness, diagnosis, and treatment. Her efforts contribute to empowering individuals, building stronger communities, and driving positive change. BBC Radio 4 India Rakusen 28ish days later series. https://open.spotify.com/show/0le1kyKiXmaI8fsZL8owqp

"DEARG - Putting Kathleen King in the Hot Seat" with Johanna Huber: Kathleen's Personal Journey: Diagnosed with endometriosis after a nine-year delay, facing dismissal from doctors and misinformation. Frustrated by the lack of awareness and support, Kathleen became a dedicated advocate. Current Advocacy Work: Runs the DEARG podcast and leads various initiatives, including: The Irish EndoMarch MISE, an educational project on menstrual and endometriosis issues in schools Research collaborations Patient, corporate and media support Advisor to OnaWave (CailinAI) Advisor to TELL Health Advisor to JOII ESHRE Endometriosis Guidelines Challenges and Importance: Endometriosis advocacy faces funding difficulties, burnout risks, and the emotional toll of supporting patients. Despite challenges, Kathleen emphasises the importance of accurate information and individualisation of care. She advocates against misinformation and low-quality research, highlighting the need for critical evaluation. Key Qualities for Advocacy: Open-mindedness, active listening, and critical thinking skills Passion and commitment to empowering others Additional Points: Kathleen underlines the crucial role of: Accurate information for endometriosis patients Standardised care and specialist access Open communication, education, and support for women's health Recognising and addressing abnormalities in menstrual health Overall: Kathleen King's personal experience and dedicated advocacy work highlight the challenges and importance of improving endometriosis awareness, diagnosis, and treatment. Her efforts contribute to empowering individuals, building stronger communities, and driving positive change.

Summary Dr. Caoimhe Hartley discusses perimenopause, menopause, and the symptoms women may experience during this time. She explains the impact of hormonal fluctuations on endometriosis and the importance of managing symptoms during perimenopause. Dr. Hartley also explores various treatment options for perimenopause and postmenopause, including hormone replacement therapy (HRT) and the use of testosterone. She emphasises the need for individualised care and risk assessment when considering HRT. Additionally, Dr. Hartley highlights the importance of lifestyle factors in managing menopausal symptoms and reducing overall health risks. This conversation covers various topics related to hormone replacement therapy (HRT) and the management of menopausal symptoms. It explores individualised approaches to HRT, the importance of long consultations and patient advocacy, options for managing menopausal bleeding, non-hormonal medications for heavy bleeding, different hormonal options for bleeding control, the use of Tibolone as an alternative hormone therapy, the safety of vaginal oestrogens in breast cancer patients, and the myth of hormone balancing. Takeaways Hormone replacement therapy (HRT) should be individualised based on a person's symptoms, risk factors, and preferences. It is not a one-size-fits-all approach. Long consultations and patient advocacy are crucial in providing comprehensive care for menopausal patients. Patients should be well-informed and actively involved in their treatment decisions. There are various options for managing pre and perimenopausal bleeding, including non-hormonal medications like tranexamic acid, as well as hormonal options. Tibolone is a synthetic steroid that can be used as an alternative hormone therapy. It has similar benefits to other forms of HRT and is considered safe for most women. It was studied as addback HRT for use with GnRHa like Zoladex. Aromatase inhibitors are commonly used in post-breast cancer treatments and infertility. They can be effective but may cause significant side effects. Some patients with endometriosis have used them for symptom control. Vaginal oestrogens are safe and effective for managing vaginal dryness and other genitourinary symptoms in women. They do not increase the risk of breast cancer. Resources Dr Caoimhe Hartley - Menopause Health https://www.menopausehealth.ie/ Chapters 00:00 Introduction and Background 03:32 Perimenopause and Menopause 06:50 Perimenopausal Symptoms and Endometriosis 15:06 Treatment Options for Perimenopause and Postmenopause 20:17 Managing Symptoms in Hysterectomy Patients 22:48 The Use of Testosterone in Menopause 27:44 Alternative Options for Women Not Taking HRT 34:51 Risks and Side Effects of HRT 40:23 Individualised Risk Assessment 41:13 Individualised Hormone Replacement Therapy (HRT) 42:02 Long Consultations and Patient Advocacy 43:14 Managing Menopausal Bleeding 44:19 Non-Hormonal Medications for Heavy Bleeding 44:49 Hormonal Options for Bleeding Control 45:46 Tibolone as an Alternative Hormone Therapy 48:36 Aromatase Inhibitors in Endometriosis Treatment 50:53 Vaginal Oestrogens and Breast Cancer 54:46 The Myth of Hormone Balancing

Summary In this conversation, Kathleen King and Helena Tubridy discuss various aspects of fertility, pregnancy, and the emotional toll of fertility trauma. They explore the role of fertility coaching and the importance of mindset in the fertility journey. They also discuss the challenges of navigating pregnancy with endometriosis and the need for support and rest during this time. The conversation highlights the need for informed decision-making and the importance of finding a supportive team. They also touch on the impact of limited IVF availability and the experience of living without children. Overall, the conversation emphasises the need for compassion, understanding, and self-care in the fertility journey. This conversation explores the topics of appropriate care, dealing with loss and lost opportunities, premature grieving and bullying, tools and techniques for dealing with grief, validating grief and maintaining relationships, developing resilience and emotional strength, living fully and engaging in life, the risk of isolation and the importance of connection, shared responsibility and communication in relationships, recognising interconnectedness and letting go of negativity, the power of positive relationships and communication, and breaking down barriers and developing trust. Takeaways Seek appropriate care for reproductive health issues. Grief and loss can be complex and require tools and techniques to navigate. Maintaining relationships and finding meaning are important for emotional well-being. Develop resilience and emotional strength to cope with challenges. Connection and communication are vital for support and understanding. Recognise interconnectedness and let go of negativity for personal growth. Positive relationships and communication can have a profound impact on well-being. Breaking down barriers and developing trust can lead to better support and understanding. Chapters 00:00 Introduction and Background 05:50 The Role of Fertility Coaching 07:03 Starting the Fertility Journey 13:56 The Emotional Toll of Fertility Trauma 18:06 Navigating Pregnancy with Endometriosis 25:41 Visualising Positive Outcomes 34:19 The Importance of Rest and Support 37:34 The Impact of Limited IVF Availability 45:08 Living Well Without Children 48:02 Acknowledging Loss and Trauma 49:24 The Importance of Appropriate Care 50:33 Dealing with Loss and Lost Opportunities 52:01 Premature Grieving and Bullying 53:00 Tools and Techniques for Dealing with Grief 54:27 Validating Grief and Maintaining Relationships 55:32 Developing Resilience and Emotional Strength 56:58 Living Fully and Engaging in Life 59:27 The Risk of Isolation and the Importance of Connection 01:00:27 Shared Responsibility and Communication in Relationships 01:01:31 Recognising Interconnectedness and Letting Go of Negativity 01:02:55 The Power of Positive Relationships and Communication 01:05:06 Breaking Down Barriers and Developing Trust 01:06:27 Connecting with Helena Tubridy Links Helena's Website https://helenatubridy.com/ Helena's Instagram https://www.instagram.com/helenatubridy/ Future Fertility Show https://www.futurefertilityshow.com/

Summary Catherine O'Keeffe, Founder of Wellness Warrior, creator of Menopause Success Summit, and a Menopause Workplace Consultant discusses the importance of understanding perimenopause and menopause, as well as the challenges faced by women in different life stages. She emphasises the need for accurate information and health literacy, particularly in the age of social media. Catherine highlights the psychological symptoms of menopause and the importance of finding the right support from healthcare professionals and therapists. She also encourages an individualised approach to managing menopause symptoms and emphasises the role of lifestyle changes. In this conversation with Kathleen, Catherine discusses various aspects of menopause and provides practical advice for managing symptoms and maintaining overall health. She emphasises the importance of lifestyle choices, including sleep, nutrition, and exercise, in supporting heart, bone, and cognitive health during menopause. She also highlights the need for self-care and regular check-ins with oneself to address the physical and emotional changes that occur during this stage of life. She offers strategies for managing anxiety and panic attacks, including deep breathing and understanding triggers. Additionally, Catherine recommends staying informed through evidence-based resources and organisations like the Women's Health Concern and the British Menopause Society. Takeaways Understanding the different stages of menopause, including perimenopause and postmenopause, is crucial for women's health. Access to accurate information and health literacy are essential in navigating menopause. Psychological symptoms, such as anxiety and low mood, are common during perimenopause and menopause. Finding the right healthcare professionals and therapists who understand menopause is important for receiving appropriate support. Taking an individualised approach to managing menopause symptoms, including lifestyle changes, can be effective. Being cautious of misinformation and seeking trusted sources of information is crucial in making informed decisions about menopause treatments. Prioritise lifestyle choices such as sleep, nutrition, and exercise to support heart, bone, and cognitive health during menopause. Regularly check in with yourself and seek support to address the physical and emotional changes that occur during menopause. Practice deep breathing and identify triggers to manage anxiety and panic attacks. Stay informed through evidence-based resources and organisations like the Women's Health Concern and the British Menopause Society. Catherine's book is available on Amazon and all good bookshops. Chapters 00:00 Introduction and Personal Journey 03:31 Understanding Perimenopause and Menopause 10:40 Menopause in Different Life Stages 16:25 Challenges of Health Literacy and Access to Information 21:36 Symptoms of Perimenopause and Menopause 32:48 Challenges in Seeking Support and Treatment 38:34 Finding What Works for You 41:52 Lifestyle for Menopause Health 45:15 Taking Care of Yourself 48:00 Managing Anxiety and Panic Attacks 51:20 Cognitive Behavioral Therapy (CBT) 55:16 Staying Informed with Evidence-Based Medicine 57:59 Resources and Support Catherine's Website Wellness Warrior https://www.wellnesswarrior.ie/ Catherine's Wellness Warrior Instagram https://www.instagram.com/wellnesswarrior.ie/ All You Need To Know About Menopause (Book) https://amzn.eu/d/7dMuBC7 Women's Health Concern https://www.womens-health-concern.org/ British Menopause Society https://thebms.org.uk/

Excellence in Nutrition Care for Endometriosis Noelle Corrigan is a CORU registered Dietitian who specialises in Endometriosis. Summary In this episode, Noelle Corrigan, a registered dietitian with a personal and professional interest in endometriosis, discusses the role of nutrition in managing endometriosis symptoms. She shares her own journey with endometriosis and highlights the importance of education and awareness. Noelle explains how nutrition can impact gut health, inflammation, and hormonal issues in individuals with endometriosis. She emphasises the need for personalised nutrition advice and the importance of working with a registered dietitian. Noelle also discusses the importance of professional registration and informed consent in the field of nutrition. She provides tips for post-surgery recovery and rebuilding a healthy relationship with food. In this conversation, Noelle discusses the challenges of finding reliable nutrition information and highlights the importance of consulting registered dietitians. She also mentions her plans to provide more information on her website in the future. Noelle's website is https://corrigannoelle.wixsite.com/mysite and Instagram https://www.instagram.com/noellecorrigan/ Takeaways Education and awareness are crucial in understanding and managing endometriosis. Nutrition plays a role in managing symptoms related to gut dysfunction, inflammation, and hormonal issues in endometriosis. Working with a registered dietitian can provide personalised nutrition advice and support. Informed consent and professional registration are important in ensuring reliable and evidence-based nutrition advice. Post-surgery recovery involves rebuilding a healthy relationship with food and addressing any nutritional deficiencies. Chapters 00:00 Introduction and Personal Experience with Endometriosis 06:30 The Importance of Education and Awareness 08:22 The Role of Nutrition in Endometriosis 17:47 The Impact of Endometriosis on Gut Health 23:31 Addressing Disordered Eating and Nutritional Deficiencies 25:36 The Importance of Professional Registration and Informed Consent 29:38 The Need for More Research on Endometriosis and Nutrition 33:59 Taking Steps Towards Better Nutrition 36:29 The Importance of Calcium and Vitamin D for Bone Health 39:30 Utilizing Pharmacists and Informed Consent 41:20 Post-Surgery Tips and Rebuilding a Healthy Relationship with Food 43:04 Additional Resources and Support 43:31 Finding Reliable Information 44:20 The Future of Nutrition Education

Dr Alan Gaffney is a doctor. He's an anaesthetist and an Intensive care physician working in Beaumont Hospital in Dublin. He's also the co-founder and Chief Medical Director of Tell Health. Tell is an exciting new social media platform. Authentic, verified clinicians post content for the world to see and interact with.SummaryIn this episode, Dr. Alan Gaffney discusses the TELL Health app, a social media platform designed for clinicians and patients to communicate and share accurate medical information. The app aims to address the issue of medical misinformation on social media and provide a trusted platform for healthcare professionals to lead conversations. The verification process ensures that clinicians are licensed and affiliated with reputable institutions. The app also allows users to interact, comment, and ask questions, fostering a community of trust and knowledge sharing. The app is text-based but supports various media formats, and users can follow specific topics and clinicians. The initial focus is on women's health, starting with endometriosis, and the goal is to expand globally and become the go-to platform for medical information. More Information on: https://www.linkedin.com/in/alan-gaffney-intensivist https://tell.health https://www.facebook.com/tellhealthapp https://www.instagram.com/tell_health/ https://www.linkedin.com/company/tellhealth/

Summary The DEARG podcast has gained a significant following and has provided a platform for people to share their experiences with endometriosis and adenomyosis. The podcast's name, DEARG, is derived from the Irish word for red, symbolizing the physical reality and emotional struggles faced by those living with these conditions. Red also represents strength, passion, and community. The podcast emphasizes the importance of accurate information and the need to combine personal experiences with professional insights. The vision for DEARG is to showcase services and support available in Ireland while also providing education and awareness worldwide. Kathleen expresses gratitude for the support and looks forward to future growth and community events. Takeaways The DEARG podcast provides a platform for people to share their experiences with endometriosis and adenomyosis. Red symbolizes the physical reality, struggles, strength, and community associated with these conditions. Accurate information is crucial in raising awareness and advocating for better support and services. The podcast aims to combine personal experiences with professional insights and showcase available resources. Chapters 00:00 Introduction and Gratitude 00:58 The Symbolism of Red 01:56 The Importance of Accurate Information 02:48 Strength and Hope in the Community 03:15 Breaking the Silence 04:15 Combining Personal Experience and Professional Insight 05:13 The Vision for DEARG 06:07 Looking Forward and Expressing Gratitude

In this DEARG podcast episode, we delve into the crucial topic of endometriosis diagnosis and treatment in teens with the insights of Marion and Zoe. Marion underscores the significance of recognising symptoms and genuinely listening to young people, emphasizing the need to not overlook any signs of distress or discomfort they may exhibit. Both Marion and Zoe share their personal journeys with endometriosis (Marion is Zoe's mum, Zoe lives with endometriosis), shedding light on the challenges they faced in obtaining a diagnosis and treatment. They discuss the profound impact of endometriosis on school and education, recounting their experiences seeking treatment in Romania. Marion stresses the importance of advocacy and education in raising awareness about endometriosis. Additionally, the podcast explores the benefits of pelvic physiotherapy and dietary changes in managing endometriosis symptoms. Marion and Zoe are actively involved in endometriosis awareness aimed at educating others about the condition. The episode concludes with valuable advice for parents and caregivers who suspect their loved ones may have endometriosis, along with shared hopes for a more informed future. Takeaways Endometriosis can have a significant impact on school attendance and education, requiring support and accommodations. Seeking a diagnosis and treatment for endometriosis can be a challenging and frustrating process, often involving multiple doctors and tests. Advocacy and education are crucial in raising awareness about endometriosis and improving understanding among medical professionals. Pelvic physiotherapy and dietary changes can be beneficial in managing endometriosis symptoms. It is important for parents and caregivers to educate themselves and their children about what a normal period should look like and to persist in seeking medical help if symptoms are present. Chapters 00:00 Introduction and Background 01:10 Symptoms and Diagnosis 02:28 Impact on School and Education 03:13 Journey to Diagnosis and Treatment 07:08 Seeking Treatment in Romania 08:35 The Importance of Advocacy and Education 10:24 Challenges and Beliefs Surrounding Endometriosis 13:59 Recovery and Post-Surgery Care 17:30 Pelvic Physiotherapy and Diet 19:28 Impact on Daily Life and Activities 22:21 Endometriosis Awareness Project 25:47 Advice for Parents and Caregivers 29:36 Challenges with Medical Professionals 34:12 Future Plans and Outlook 34:39 Conclusion and Thank You

Aimee Brown became the first documented individual in Ireland to receive a ministerial license allowing the use of cannabis for the treatment of chronic pain associated with her endometriosis. Her journey to reach this point was challenging and she met many frustrations on the way. Aimee, faced hospitalisation for symptoms at the age of eight, three years before the onset of her menstrual cycle. Throughout her experience, she confronted medical gaslighting, highlighting the obstacles she encountered in seeking treatment for this condition. She has taken her lived experience and has become a strong advocate for others, empowering people to seek expert surgery and appropriate pain relief.

Dr. Conor Kerley: Founder of Phytaphix, a leading Irish nutrition company based in Dundalk, Co Louth, Ireland. With a background as a dietitian and in clinical research, including a PhD in nutritional interventions for heart and lung disease, Conor is driven by a commitment to scientific rigour in the creation of health products. His journey took him from prestigious positions in Washington DC to presenting award-winning research in Melbourne. Inspired by his travels, Conor founded Phytaphix to formulate evidence-based nutrition products. The company's range includes Immune Phix, designed to boost immunity, Energy Phix for chronic fatigue, long COVID and fibromyalgia, Joint Phix for osteoarthritis, rheumatoid arthritis and other joint issues, and Nervous System Phix for multiple sclerosis. Phytaphix products are made from premium plant-based ingredients, free from synthetic chemicals. Conor's dedication has garnered national and international recognition, with numerous awards for his impactful research. Conor has also developed EndoHormone Phix, a high-strength formula meticulously crafted formula to support various aspects of hormonal health, including the regulation of hormonal activity, normal production and metabolism of steroid hormones (such as estrogen), as well as promoting a normal inflammation response, cell division, and reducing tiredness and fatigue. This comprehensive formula reflects Conor's dedication to addressing the specific needs of those living with endometriosis symptoms. https://phytaphix.com/products/endo-hormone-phix-capsules With a commitment to science, sustainability, and accessibility, Phytaphix is making waves in the world of evidence-based nutrition. https://phytaphix.com/ https://www.facebook.com/conorkerleyhealth https://www.instagram.com/conorkerley.nutrition/ https://twitter.com/conorkerley

Join us on DEARG, the podcast dedicated to shedding light on endometriosis and adenomyosis. Today, we have Orlagh Reid, a qualified psychotherapist and relationship therapist based in Naas, County Kildare. Orlagh's extensive training and personal experience with endometriosis offer a unique perspective. Orlagh delves into her background, which spans psychotherapy, sexology, and fertility counseling. Her passion for these fields stems from a desire to address the intimate aspects of health. She emphasizes the importance of specialized therapy, especially for conditions like endometriosis, where tailored approaches make a significant difference. The podcast emphasizes inclusivity and flexibility in therapy sessions, with the option to involve partners. Orlagh believes in tailoring the duration of sessions to maximize effectiveness. DEARG provides a platform for meaningful discussions about endometriosis and adenomyosis, offering valuable insights from experts like Orlagh Reid. Tune in for more enlightening conversations on these vital topics. Orlagh's website https://www.orlaghreid.ie/ Orlagh Reid is a qualified Psychotherapist, Specialist Fertility Counsellor and Clinical Sexology Psychotherapist based in Naas, Co. Kildare, Ireland working primarily online with clients in Ireland and worldwide. She is also trained as a Sexual Health Promotion Facilitator and has Complementary Health Therapist and recently has qualified as a Life Coach. She has been an accredited member of the Irish Association of Counsellors & Psychotherapists (IACP) since 2015. Orlagh's clients are men and women with sexual problems, intimacy and attachment issues, sexual conditions and disorders including those such as endometriosis, vaginismus and sexual pain.

Johanna Huber is a seasoned Physiotherapist with 14 years of experience, coupled with 8 years as a Yoga Teacher. Originally hailing from Munich, Germany, Johanna has made Cork City, Ireland her home for the past decade. She established PhysioYoga Cork, where she devotes herself full-time to teaching Physio Led Yoga. Here, she skillfully integrates principles rooted in evidence-based Physio, encompassing strength, mobility, and pain science, with mind-body centred concepts such as mindfulness, compassion science, and nervous system regulation. Johanna's mission is to democratise science-based holistic approaches, making them more accessible to the general public. Her goal is to empower individuals to deepen their understanding of their bodies and unique needs, ultimately enabling them to cultivate greater strength, flexibility, and relaxation—both physically and on a mental-emotional level. Over the course of 25 years, Johanna personally grappled with severe pelvic and thoracic Endometriosis, alongside Adenomyosis. Her journey led her to seek expertise abroad for diagnosis and treatment, as local healthcare providers lacked the necessary proficiency in this field. Faced with diminishing quality of life in the years leading up to her expert surgery, Johanna had no choice but to become an expert herself. She was fortunate to access accurate education that enabled her to make an informed decision about her treatment. From this experience, she fervently believes that contemporary medical care should not hinge on chance. Until systemic change occurs, advocating and speaking out is paramount, for, as Johanna asserts, nobody else will champion this cause if we do not. Johanna is on Instragram https://www.instagram.com/physioyogacork/

In this episode of DEARG, Kathleen King is joined by Heather Guidone, a board-certified patient advocate and program director of the Center for Endometriosis Care. Heather shares her personal journey with endometriosis, adenomyosis, and advocacy, emphasizing the importance of advocacy based on lived experiences. Kathleen and Heather reflect on the evolution of endometriosis advocacy and the challenges of ensuring accurate information in today's digital age. They emphasize the significance of fact-checking, seeking evidence-based resources, and collaborating with trusted sources. The conversation dives deep into the pivotal role of patients in research, highlighting the need for genuine inclusion and representation. Both hosts underscore the transformative potential that diverse perspectives bring to the understanding and treatment of endometriosis and adenomyosis. Join Kathleen and Heather as they navigate the complexities of these conditions, sharing insights, experiences, and invaluable advice for advocates, patients, and supporters alike. DEARG is a podcast dedicated to providing essential information about endometriosis and adenomyosis. Hosted by Kathleen King, an advocate based in Ireland with a profound interest in these conditions, DEARG features expert guests and advocates like Heather Guidone, sharing their knowledge and experiences. Center for Endometriosis Care https://centerforendo.com/ Heather Guidone, BCPA is the CEC's Surgical Program Director. A nationally Board-certified healthcare Advocate, she is proud to have joined Dr Sinervo at his Center more than 18 years ago. She manages the CEC's comprehensive multidisciplinary care program, facilitates the Center's clinical research, education, awareness, and legislative/policy endeavors and coordinates the CEC's MIGS/Endometriosis Surgical Fellowship Program. She has focused on 'bench to beltway to bedside' efforts in endometriosis for over 30 years, advancing various clinical, research, legislative/policy, education, and inclusivity initiatives related to the disease. She is also someone who has personally struggled with advanced endometriosis and pelvic pain gynepathologies as well, and her lived experiences bring unique perspectives to her professional works and fuel her passion to effect change on the way endometriosis is researched, treated, and publicly perceived. Heather has received various awards for her work and continues to volunteer her time to several collaborative endeavors, including as a Reviewer for various federal Medical Research Grant Programs. She has also contributed to countless books and publications on endometriosis and related health concerns over the past three decades. She looks forward to helping guide your CEC journey with compassionate expertise and understanding. Additional Reading: The Womb Wanders Not: Enhancing Endometriosis Education in a Culture of Menstrual Misinformation https://www.ncbi.nlm.nih.gov/books/NBK565622/

In this episode, Kathleen is joined by Orla O'Connor, a prominent endometriosis advocate from Cork, Ireland. Together, they dive into the vital role of advocacy in Ireland, addressing prevalent questions regarding the cross-border directive. Misinformation surrounding endometriosis is a key focus, exploring its impact on the community and advocacy efforts. The conversation sheds light on the complexities of referrals and the nuances between cross-border care and travel abroad screening. Orla provides valuable insights into the reimbursement process, emphasizing the importance of accurate record-keeping. The episode closes with a reflection on the collaborative spirit within the endometriosis community, highlighting the significance of shared experiences in advocacy. Tune in for expert advice and practical tips on navigating endometriosis care in Ireland. Link to Orla's Instagram https://www.instagram.com/orlacorkendowarrior/ DEARG is a podcast dedicated to providing essential information about endometriosis and adenomyosis. Hosted by Kathleen King, an advocate based in Ireland with a profound interest in these conditions, DEARG features expert guests and advocates like Orla O'Connor, sharing their knowledge and experiences.

In this episode, Kathleen is joined by Orla O'Connor, a prominent endometriosis advocate from Cork, Ireland. Together, they dive into the vital role of advocacy in Ireland, addressing prevalent questions regarding the cross-border directive. Misinformation surrounding endometriosis is a key focus, exploring its impact on the community and advocacy efforts. The conversation sheds light on the complexities of referrals and the nuances between cross-border care and travel abroad screening. Orla provides valuable insights into the reimbursement process, emphasizing the importance of accurate record-keeping. The episode closes with a reflection on the collaborative spirit within the endometriosis community, highlighting the significance of shared experiences in advocacy. Tune in for expert advice and practical tips on navigating endometriosis care in Ireland. Link to Orla's Instagram https://www.instagram.com/orlacorkendowarrior/ DEARG is a podcast dedicated to providing essential information about endometriosis and adenomyosis. Hosted by Kathleen King, an advocate based in Ireland with a profound interest in these conditions, DEARG features expert guests and advocates like Orla O'Connor, sharing their knowledge and experiences.

Welcome to DEARG - Delivering Endometriosis and Adenomyosis Resources and Guidance. The podcast and information service to inform, empower and deliver accurate information on endometriosis and adenomyosis in Ireland. Hosted by Kathleen King, this podcast brings you evidence-based insights, interviews with leading experts, and practical advice for navigating the challenges of living with endometriosis and adenomyosis in Ireland.