Girlfriends, Lainie Ishbia from Trend-Able.com, & Estela Lugo from the Hereditary Neuropathy Foundation, are real, raw & perfectly imperfect in their informal discussions about the trials & tribulations of living with disabilities. Both women wear leg braces due to chronic neuromuscular conditions and are passionate about helping others feel confident in their own skin.
Lainie & Estela from The Hereditary Neuropathy Foundation & Trend-ABLE Blog For People With Disabilities.
The EmBRACE IT With Lainie & Estela - Look Good + Feel Good = Living Your Best Life With Disabilities podcast is a truly remarkable and inspiring show. As a 54-year-old man living with CMT, I was pleasantly surprised by how much I enjoyed this podcast, despite it being marketed towards women and fashion. The hosts' discussions on various disability-related issues resonated with me deeply, making me feel less alone on my journey. Additionally, their humor added a lighthearted touch to the conversations, making them both informative and enjoyable.
One of the best aspects of this podcast is the inspiring guests they bring on. These individuals share their stories of overcoming challenges and maintaining a positive mindset, which has helped me reframe how I think about myself and my own situation. It has also opened my eyes to the struggles that others have faced and conquered. This podcast serves as a reminder that we are not defined by our disabilities but rather by our ability to embrace life.
Another great aspect of the show is its focus on daily life activities. As an AFO-wearing individual living with CMT, I found their discussions on managing daily tasks particularly helpful. Their insights and experiences have given me valuable ideas and inspiration for living a joyful life despite my condition. The motherhood episode was especially impactful for me as I am currently trying to start a family while also dealing with the challenges posed by CMT.
While it's hard to find any major drawbacks to this podcast, if there was one small criticism it would be that some episodes may not cover topics that resonate with every listener. However, considering the wide range of disabilities and experiences out there, it's understandable that not every episode can cater to everyone's specific needs or interests.
In conclusion, I am elated to have found The EmBRACE IT With Lainie & Estela podcast. It has made me feel better about myself, inspired me to do more, and taught me a great deal along the way. The hosts' genuine passion for empowering and uplifting those with disabilities shines through in every episode. Whether you are newly disabled, a parent of a child with disabilities, or simply seeking inspiration in your own life, I highly recommend giving this podcast a listen. It is a rare gem that truly makes a positive impact on its listeners.
Send us a textWhat if a film could be more than just entertainment, sparking a movement for positive change? Join us as we speak with Danny Kurtzman, the main character of "Good Bad Things," and the film's executive producer, Steve Way, to explore how this Apple TV release is doing just that. Together, we uncover the film's heartwarming impact as it champions love, dating, and the experiences of living with a disability. Amid Valentine's Day reflections, this conversation dives into the themes of inclusivity and representation, resonating with audiences of all backgrounds.Embracing the beautiful complexities of modern relationships, "Good Bad Things" offers an engaging narrative that connects deeply with both disabled and non-disabled viewers. With insights from our guests, we celebrate the film as a modern-day love story that underscores the power of self-love and acceptance. Director Shane's artistic touch brings authenticity to the film's portrayal of friendship and romance, while the collaborative efforts behind the scenes aim to reshape societal narratives around disability in media.Navigating the world of dating with a disability offers a fresh lens on authenticity and self-acceptance. In a landscape often dominated by superficiality, this episode highlights the importance of genuine connections over societal pressures. Our conversation reflects on personal experiences and the film's authentic depiction of disability and relationships, providing listeners with hope and encouragement. Through the power of storytelling, "Good Bad Things" serves as a reminder to embrace one's true self and forge meaningful connections beyond the screen.Watch Good Bad Things on Apple TVFollow Danny on InstagramWatch Ramy on HuluFollow Steve Way on Instagram Book an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisHosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the show
Send us a textIn this episode of Embrace It, Estela and Lainie welcome Jessica Jordan Ping, aka “The Rolling Explorer.” Jessica is a fierce advocate, adaptive fashion consultant, and creator who's made it her mission to break down stereotypes about disability. Living with CHILD syndrome, a rare genetic condition affecting fewer than 60 people worldwide, Jessica brings a fresh perspective on what it means to truly “own it”—from the world of fashion to the challenges of travel, dating, and beyond.With humor and raw honesty, Jessica shares why she decided to embrace her uniqueness and put herself out there on social media, how she tackles accessibility issues on her travels, and why it's so important to cut through the pity and just live life on your own terms. From her adventures in adaptive rock climbing to her memorable White House appearance, Jessica proves that representation doesn't have to fit a mold. Listen in for a conversation that's both real and refreshing, and discover why Jessica's motto of “owning it” is an invitation for everyone to live a little more authentically.Learn more about The Rolling ExplorerFollow Jessica on Instagram & TikTokBook an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisHosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the show
Send us a textDisclaimer: The views and opinions expressed in this episode are those of the individual speakers and do not necessarily reflect the official policy or position of the Hereditary Neuropathy Foundation. This episode may contain discussions of political viewpoints that are personal to each guest. Listeners are encouraged to form their own opinions based on various perspectives. In this Episode: What if the key to championing disability rights and political activism lies in the experiences of a 22-year-old trailblazer? Meet Cassidy Huff, a remarkable disability rights activist, actress, and social media influencer. Cassidy's life is a testament to resilience and passion, having faced 41 spine surgeries and living with Conrad-Hierman syndrome, yet never wavering in her pursuit of the arts. From serenading crowds of 17,000 at just four years old to leading grassroots movements, Cassidy's story is one of extraordinary grit and inspiration.Our conversation with Cassidy dives into the critical role of representation in media and politics. She shares her journey from a passionate performer to the executive director of the Disabled Voters for Harris campaign, illustrating the profound impact of disability advocacy in the electoral process. Discover the broader implications of disability rights and how every political decision can affect the disabled community, as Cassidy highlights the urgency of accessible healthcare and anti-discrimination measures.We also tackle the pressing issue of voting accessibility. Cassidy provides practical advice for ensuring ADA compliance at polling places and empowers listeners with strategies to overcome barriers, whether through curbside voting or early absentee ballot applications. Concluding with a heartfelt discussion on self-acceptance, we celebrate the powerful messages of embracing one's disability and the potential for future leadership that Cassidy embodies. Don't miss this inspiring and informative episode that highlights both the personal and political aspects of disability advocacy.Learn more about Disabled Voters for HarrisFollow Cassidy on Instagram & TikTokConnect with Cassidy on LinkedInVisit Cassidy's WebsiteBook an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisHosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/idSupport the show
Send us a textWhat if you could lead an entire team, present complex ideas, and engage in high-stakes discussions without ever speaking a word? This episode of the Embrace It podcast introduces you to Delaney Novor, an inspiring young leader who has mastered this art. As the Director of Product Management at the National Apartment Association, Delaney uses cutting-edge text-to-voice technology to navigate her professional and personal life seamlessly. Learn how she overcame communication barriers caused by dystonia and revolutionized her career, making her a beacon of empowerment for underrepresented professionals.From her first encounter with assistive technology in middle school to the sophisticated Speech Ninja platform she uses today, Delaney shares her transformative journey in an authentic and compelling manner. She recounts her experiences with a high school transcriber and the pivotal moment a remote job led her to fully embrace text-to-voice tools. Delaney's story is not just about technology; it's about resilience, innovation, and redefining what's possible. This episode is a must-listen for anyone curious about the intersection of tech and accessibility, and how it can enable everyone to work and live on their own terms.Follow Delaney on InstagramConnect with Delaney on LinkedInVisit Delaney's WebsiteBook an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisHosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the show
Send us a Text Message.What if an initial misdiagnosis at the age of 13 led you down a winding path of medical challenges and remarkable resilience? This episode features Cori Fischer, a longtime member of our Trend-Able community, who reveals her incredible journey from being incorrectly diagnosed with dystonia to uncovering the true cause of her symptoms—a tethered spinal cord. Cori takes us through her experiences with multiple surgeries, and recoveries, and shares the profound emotional and physical toll that came with waking up with minimal sensation and movement from the waist down. Cori's story is not just one of medical challenges but also a testament to her unwavering determination and advocacy. Transitioning from a college freshman to an occupational therapy (OT) student, Cori faced the life-altering challenge of adapting to life in a wheelchair after 14 surgeries. With the incredible support of her family, especially her sister, she overcame significant obstacles to return to school and pursue her aspirations. Cori's unique perspective as an OT in a wheelchair allows her to deeply connect with her patients, offering them comfort and inspiration through her lived experience.This heartfelt conversation also delves into the valuable lessons Cori has learned about resilience, support systems, and the importance of community. She emphasizes embracing imperfections, recognizing the value of mentors, and finding strength in others' struggles. Tune in to be inspired by Cori's journey and the profound impact of sharing and learning from each other's stories.Follow Cori on InstagramConnect with Cori on LinkedInWatch Cori's Graduation speechLearn more about SMERF.orgBook an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisHosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the Show.
Join us for an inspiring conversation with Lacey Nager Ammerman, a Confidence and Certified Body Image Coach, as we explore the theme of becoming unstuck while living with a disability. Lacey, diagnosed with a chronic health condition at the age of 12, shares her personal journey of overcoming body image challenges and the fear of being seen. She shares her struggles and triumphs in dating, business, and self-acceptance.Lacey's story is one of resilience and empowerment, highlighting the importance of confidence in achieving our goals, whether creating a successful business or finding a loving relationship. With over eight years of experience in coaching and entrepreneurship, Lacey provides valuable insights and practical advice for women facing similar challenges.Tune in to hear Lacey's motivational journey and discover how you can show up confidently in your own life, regardless of health, disability, or body image concerns. This episode is a must-listen for anyone looking to overcome personal limitations and live a fulfilling, empowered life.Learn more about Lacey's CoachingFollow Lacey on InstagramRead Lacey's Book Book an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.Support the Show.
Join us for an inspiring episode of the Embrace It Podcast as we welcome the radiant Xian Horn, a true catalyst for inclusion. Xian, a joyful half-Asian woman with Cerebral Palsy, wears many hats: teacher, writer, speaker, beauty advocate, blogger, and Exemplar for the AT&T NYU Connect Ability Challenge towards creating Assistive Technology.Named one of the 21 Leaders for the 21st Century by Women's eNews in 2017, Xian Horn's journey toward reconceptualizing leadership has left a profound impact. From companies like Viacom, and Target, to AXA Equitable, she's reshaping narratives using her testimony and mentoring prowess.In this episode, we delve into Xian's mission to reshape our notions of self-esteem and collective purpose, particularly for women. Through her non-profit, Give Beauty Wings, she's championing empowerment for people with disabilities and marginalized communities.Tune in as we explore Xian's remarkable journey, her tireless advocacy, and her vision for a more inclusive world. Don't miss this insightful conversation on embracing diversity, fostering leadership, and the transformative power of self-love. Learn more about Xian HornFollow Xian on InstagramSign Xian's Transportation PetitionBook an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the show
Join us for an enlightening conversation with Alexa and Jacqueline Child, the dynamic duo behind Dateability, a revolutionary dating app designed to empower the disabled and chronically ill communities. Founded by sisters, Jacqueline's personal experience with discrimination and hurtful comments on mainstream dating apps due to her disability ignited a spark within them to create a platform that champions inclusivity and understanding.In this podcast episode, we delve into Jacqueline and Alexa's journey, exploring the challenges they faced in the dating world and the inspiration behind Dateability. Jacqueline shares her firsthand encounters with discrimination and offensive behavior on traditional dating platforms, highlighting the urgent need for a space where individuals with disabilities can connect authentically without fear of judgment.Through their shared vision, Jacqueline and Alexa are on a mission to revolutionize the social experiences of a population that has long been overlooked and marginalized. With Dateability, they're not just building a dating app; they're fostering a supportive community where everyone's unique journey is celebrated.Tune in as we discuss the values driving Dateability, the obstacles they've overcome, and their dedication to making it the premier platform for the disabled and chronically ill communities. Learn about and download DateabilityFollow Dateability on InstagramBook an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the show
In this heartfelt episode, join Lainie and Estela as they open up about their personal journeys in living with a disability. Delving into the depths of self-reflection, the duo shares an intimate list of insights they wish they could tell their younger selves. From navigating challenges to embracing self-love, this candid conversation unveils valuable lessons, offering a beacon of wisdom for anyone on a similar path. Tune in for a touching exploration of resilience, growth, and the empowering messages that transcend time.Book an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the show
In this amusing and heartfelt episode, we explore the pivotal moments that turned a troubled and disabled middle schooler with Tourette's syndrome into an international comedian and Netflix personality! Join us as Pamela Rae Schuller blends her skills of storytelling and comedy with disability advocacy into this fun and insightful EmBrace It conversation!Follow Pamela on InstagramWatch Pamela's TEDx TalkWatch Pamela on NetflixBook an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the show
In this empowering episode, we sit down with Maddi, an extraordinary individual whose journey has been defined by resilience and determination.Graduating from Georgetown University with a passion for Spanish and Justice and Peace Studies, Maddi's life took an unexpected turn when a hemorrhagic stroke left her paralyzed on her left side. Amidst her recovery, she discovered a new passion for fashion, channeling her love for the arts into writing her first book, "Fashion Fwd: How Today's Culture Shapes Tomorrow's Fashion," published in September 2018.But Maddi's story doesn't end there. Driven by her own experience with stroke recovery, she embarked on a new book project aimed at inspiring survivors of trauma. Through her words and experiences, she aims to empower others to seize control of their lives and transform obstacles into incredible opportunities.Join us as Maddi shares her journey of resilience, creativity, and empowerment, proving that challenges can be the catalyst for remarkable transformation and personal growth.Follow Maddi on InstagramRead Maddi's Books!Visit Maddi's WebsiteBook an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisMore Links from Maddi!Register your interest for my Fast Fwd stroke survivor summit to take place on April 19 in NYC: Book your spot to join my group trip to Bali (code MADDIBALI100 for $100 off): Sign up for my community page: Please leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the show
In this inspiring episode, we dive into the remarkable journey of Dustin, who was diagnosed with profound bilateral hearing loss at the young age of five. Despite this life-changing diagnosis, Dustin's story is one of resilience, empowerment, and a determination to spread positivity.From school hearing exams to facing unexpected challenges, Dustin's experiences have been both unique and universal. We explore the transformative moment in his life when a simple divider during a hearing test changed everything. No longer able to rely on lip reading, he surprised not only the school nurse but also his entire family.Join us as Dustin shares how he navigated the challenges of growing up with hearing loss, turning adversity into an opportunity for growth. Through his platform, HearsDustin, he advocates for accessible and inclusive experiences, collaborating with brands and organizations to create a world where everyone, regardless of hearing ability, can thrive.Follow Dustin on InstagramVisit Dustin's WebsiteBook an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the show
Despite the disability or condition, the path from denial to acceptance is anything but linear and smooth. We all have our own journeys to becoming the person we want to be. Sometimes that journey requires us to travel alone and other times we have are fortunate enough to find the support and guidance we need.Becky Etchberger is a successful TV producer for many shows such as American Idol, The Voice & Last Week Tonight with John Oliver. She is also navigating the ups and downs of life, love, and disability due to CMT. In this episode, Becky reveals how she went from hiding her symptoms from dates and coworkers to embracing CMT with a life-changing surgery and all of its powerful lessons.Follow Becky on InstagramRead Becky's Post on TREND-ABLEWatch Becky's Mini Documentary, Date-ABLELearn About CMT Surgery with HNFBook an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the show
Embrace It: Episode 50 - Yare Tua, Communicating with KindnessIn this episode, we delve into the remarkable journey of Yarelbys Túa Pachano, a Venezuelan model and influencer who is defying expectations and advocating for inclusivity. Yare's story is not only about overcoming cancer and disability but also about the power of communication and kindness in her interactions.We'll explore how Yare discusses her disability with strangers, shedding light on the misconceptions and taboos surrounding disabilities in her home country and beyond. She shares her experiences of responding to well-intentioned but offbeat questions and comments and addresses the common misunderstanding that being disabled prompts pity.Moreover, Yarelbys reveals her approach to communicating effectively within her close circle—her partner and friends—especially when it comes to traveling and attending concerts and music festivals. Her story demonstrates that communication can bridge gaps, challenge stereotypes, and foster a more inclusive world.Follow Yare on InstagramFollow Yare on YouTubeFollow Yare on TikTokBook an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the show
In this episode, we're diving into how privilege can shape our access to healthcare and opportunities with the fabulous Dr. Akilah Cadet, who has spent an extensive part of her career designing training, coaching executives, and informing systematic change to improve the workforce experience for large organizations. We're shedding light on how many forms of privilege can act like a golden ticket affecting how easily we access medical care and career opportunities. Tune in to gain Dr. Cadet's valuable insight and resources for patient advocacy and why privilege matters to us all.Visit Dr. Cadet's Website Follow Dr. Cadet on InstagramPreorder Dr. Cadet's BookBook an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the show
Get ready to dive into a bubbling pot of heartwarming stories and culinary delights in this episode of 'Stirring Up Joy'! We're pulling up a seat at the virtual kitchen table with none other than the fabulous Alexis Hillyard, the mastermind behind the YouTube sensation Stump Kitchen. Join us as we savor every flavorful moment of her journey – from connecting over food with her partner to becoming a cooking sensation with a twist.Imagine whipping up gluten-free vegan eats and stumptastic treats using her 'stump'! Alexis's infectious enthusiasm and creative spirit have transformed cooking into a joyous adventure. What started as a way to share her love for cooking has blossomed into a platform of empowerment for limb-different individuals, all with a pinch of Pride!Discover how Alexis's kitchen became a stage where diverse voices shine as co-hosts, all while cooking up delicious dishes and sparking conversations that simmer with authenticity. With a dash of determination and a sprinkle of community, she's cooking up connections that span generations, cultures, and walks of life.So grab your apron and tune in to this episode, where the sizzle of LGBTQ+ & disability pride meets the sizzle of culinary creativity. Let's celebrate the magic of Alexis Hillyard and Stump Kitchen as she stirs up not just recipes but a delicious sense of unity and joy!"Watch Stump Kitchen on YouTube Follow Stump Kitchen on InstagramBook an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the show
Ross, a seasoned veteran with 17 years of service, suffered an injury during his time in the military. As he transitioned into the civilian workforce, he participated in numerous workshops aiming to translate his skills effectively. However, it wasn't until his career counselor at the Department of Veterans Affairs introduced him to Inclusively that he realized what had been missing all along. Reflecting on his journey, Ross expresses, "I felt like I was exerting tremendous effort to align myself with employers, rather than finding a mutual meeting ground." Ross faced additional challenges due to his service dog named Perrin, his reliance on various assistive technologies, and his limited mobility stemming from his injury. When creating his profile on Inclusively, he swiftly realized that this platform provided what his previous experiences lacked—an opportunity for open and transparent conversations about his disability and the accommodations he requires.Check Inclusively's WebsiteWatch HNF's Inclusively Website & Demo Watch HNF's Canine Companion WebinarBook an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the show
Eliza is a musician, writer, speaker, and advocate — changing the way the world views disability.Having established herself as one of Australia's most important voices and striking songwriters of recent years, Castlemaine-based artist Eliza Hull has proven the longevity of her art, and continued evolution.Growing up with CMT, Eliza recalls visiting dozens of doctors and being required to “walk in a straight line.” Decades later, she has transformed her journey into the powerful music and lyrics of her new single ‘Running Underwater.' It's the first song Hull has written about being disabled and living with CMT. In recent years, Hull has emerged as an accessibility advocate within the industry, her determination and approach to educating and sparking change for disability inclusion through her podcast and 2 powerful books. Listen to Eliza's MusicWatch Eliza's Powerful Music VideoCheck out Eliza's WebsiteBuy Eliza's Book We've Got ThisPre-order Eliza's Children's BookBook an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the show
Stacie Swindler has been drawn to horses since childhood. During her career in education, she began volunteering at a therapeutic horseback riding facility for individuals with disabilities. After being amazed by the interactions she observed between the students and the horses, Stacie changed the trajectory of her life. Instead of returning to the classroom, she decided to partner with horses to improve the lives of those living with autism, depression, anxiety, post-traumatic stress disorder (PTSD), and a variety of physical disabilities.Today Stacie is having a big impact with her work ! She holds a master's degree in education with an SV endorsement for special education and is trained in (CPI) Nonviolent Crisis Intervention, therapeutic horseback riding instruction, and as a certified Equine Assisted Therapy (EAT) practitioner.Join us on a unique ride to the magic of horses and all of the gifts they have to offer!Check out Stacie's WebsiteBook an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace it with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the show
After living with severely debilitating psoriasis and psoriatic arthritis for over 30 years, Nitika Chopra found that no matter how hard she tried, she always felt completely isolated and alone. For a long time, she assumed that it must have been because something was inherently broken or wrong with her. After getting the courage to open up about her health, she realized that every time she met someone who had a chronic illness, they felt the exact same way.While Nitika's career started over 10 years ago as the founder of a popular online magazine, the host of her own talk show on global television, and a brand ambassador for some of the most prestigious beauty brands on the market, in the midst of her success she felt a deep longing for something more. Something she could create that would truly have an impact on the lives of others. That passion sparked the idea to create Chronicon. After 10 years in content creation, Nitika launched Chronicon in the fall of 2019, an inclusive community-building event focused on those living with chronic illness. The New York City event sold out and had 2,000 live stream viewers. Join us as we share Nitika's powerful journey and resources!Follow Nitika on InstagramFollow Chronicon on InstagramCheck out Chronicon Event & CommunityBook an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace it with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the show
“How do we honor the inevitable grief that comes with disability and establish healthy boundaries with those closest to us?Rachelle Friedman, aka “The Brainy Social Worker,” is a disabled therapist who understands that there's no one-size-fits-all approach to healing. With an educational background in neuroscience and social work, Rachelle knows that anyone can change how they feel by becoming aware of the data and triggers that we store in our brains and how we interact with that data on an emotional basis. But how do we actually do that? Join us for this self-reflective conversation on grief, internal ableism, self-compassion, and boundary setting!Rachelle works with individuals and couples living with chronic pain and illness, depression, grief, anxiety, and neurodiversity, helping them to emotionally heal and find comfort! Visit her links below to learn more.Visit Rachelle's WebsiteLearn more about & follow RachelleTrend-Able Thinking Traps Blog PostBook an EmBRACE It WorkshopWatch Lainie's TEDx TalkLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Support our mission!Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace it with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the show
“How do we take shame around our disabilities and begin to turn it into pride & purpose?At the age of 9, Tiffany became disabled as a result of a car accident that also took the life of her father. For the next decade, Tiffany navigated the many challenges of adolescence, grief, and shame around her disability. Today, Tiffany Yu is the CEO & Founder of Diversability, an award-winning entirely disabled-run and led social enterprise to elevate disability pride, and a content creator with 170k+ followers across platforms. She is a 3x TEDx speaker and has been named a TikTok API (Asian & Pacific Islander) Trailblazer and a LinkedIn Top Voice in Disability Advocacy. Her story is not only uplifting but powerfully educational and empowering! Join us as we hear how this disability advocate leader turned her tragedy into a global movement!Visit the Diversability® WebsiteLearn more about & follow TiffanyRegister for the EMBRACE IT LIVE event! 3/7 @7pm ETBook an EmBRACE It WorkshopWatch Lainie's TEDx TalkLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Support our mission!Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace it with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the show
"Everyone deserves a chance to go on a vacation and make memories with their family!"After 20 years of frustration, with very limited vacation options, Lorraine Woodward's family of four, three of whom have mobility issues due to muscular dystrophy, took it upon themselves to create their own accessible property. In 2014, Lorraine's "A Place of No Worries" was realized. Their fully accessible property was not only a way to meet their own family vacation needs, but also a way to serve as an investment property that could be a resource for other families who needed the same accessibility features/needs.Through the years, Lorraine has seen the real need for an accessible property each time she talked to her renters, many of whom haven't had the ability to vacation, due to lack of access, until they found her accessible rental. That's when the idea for Becoming rentABLE came alive. Lorraine saw the change she made with one property, but wanted everyone to have the same access in the rental market. Becoming rentABLE strives to bring visibility to the need for accessible, short-term rentals for people with mobility, vision, hearing, intellectual and developmental disabilities (IDD) and for individuals on the autism spectrum through education about accessible design, construction, and renovation.Visit the Becoming Rentable WebsiteCheck out the Little Yellow HouseView Shower Ramp #1 & Shower Ramp #2Follow Becoming Rentable on InstagramBook an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace it with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the show
How do we support the next generation of disability leaders with inclusive career opportunities? What innate skills do people with disabilities bring to the workforce, and why should businesses include disability in their diversity conversations? Join us for this refreshing episode with Alyce Brewer & Shannon Mayer of DisabilityIN NextGen as we share their exciting work and personal journeys to disability advocacy!Visit the NextGen WebsiteApply to Leaders ProgramFollow DisabilityIN on InstagramBook an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace it with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898Support the showSupport the show
On a mission to leave the world a little better than how she found it, Mindy strives to help create a world where inclusion is the norm, where people see possibilities instead of limitations, and where no challenge is too big to overcome.Mindy is no stranger to “Doing Hard Things” and shares a few of her many examples of how she was able to turn “Nos” into “Yes'” throughout her life in this episode. Whether it was adopting a child in China, writing a NEW book, or starting her own business, Mindy has some great tips on how to get it done!Driven to build a world that welcomes and includes EVERYONE, Mindy is a powerful leader in disability/ability rights, with specific interests in accessible air travel, universal design, inclusive style, and better representation for the disabled community in entertainment.Mindy is also an accomplished author. Her book, "The Truth About Things That Suck" is for anyone who wants a new perspective on adversity when times get tough. Follow Mindy on InstagramCheck out Mindy's Website & bookBook an EmBRACE It WorkshopLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace it with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898
At only 3 years old, Taylor was diagnosed with a rare vaginal cancer called Rhabdomyosarcoma. Doctors didn't expect her to survive. After chemotherapy, radiation, and several surgeries, Taylor was cancer-free but left with two permanent ostomy bags — colostomy and urostomy, which aid her bladder and bowel functions — for the rest of her life.Growing up with ostomy bags in Baltimore, Maryland, Jearlean Taylor wasn't sure she would be able to pursue her dreams as a fashion model. Today, she has been featured in over 30 magazines, newspapers, Time Square billboards, the Today Show, and runway shows. Join us for this uplifting episode as this powerful disability advocate is making a difference.Follow Jearlean on Instagram. Visit Jearlean's Website, documentary & book!Looking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace it with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898
Imagine falling from a three-story window during your second week of college and transforming overnight from an athletic teen to a full-time wheelchair user. What sounds like a nightmare to many was Billy Price's real and sudden introduction into the disability community. Join us for this mind-blowing episode and interview with aeronautical engineer turned inclusive shoe designer Billy Price, as he recalls how a casual conversation at a holiday party turned his world upside down to build a multi-million dollar empire!Follow Billy's Footwear on Instagram. Shop Billy Footwear - 10% off with code: “EmBraceit-10” Looking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace it with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898
What's it like to slowly lose your eyesight and adapt to the world around you? How do the roles and characters we grow up watching on TV play into society's harmful stigmas around disability? Lance Johnson shares this and much more as we discuss his journey with Retinitis Pigmentosa and life as a video editor, podcaster, and content creator in Brooklyn, New York.Follow Lance on Instagram. Check out Lance on YouTube Looking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace it with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898
Alycia Anderson is a TEDx motivational speaker, corporate Diversity, Equity, Inclusion & Accessibility consultant, advocate, and the founder & CEO of The Alycia Anderson Company, LLC. With a Master's Degree in Adapted Physical Activity. Alycia's authenticity and charisma draw others to learn how to disable ableism across a wide spectrum of areas.In this rich and fun episode, this competitive tennis player, cyclist, identical twin, and a wheelchair user since birth, shares her journey from being the first waitress in a wheelchair all the way to training global companies on how to build diverse, inclusive, and accessible workplaces and culture. And that's how she rolls!Follow Alycia on Instagram. Check out Alycia's websiteLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace it with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898
Kathy Reagan Young, who lives with MS, is leading the disability and chronically ill community into “chronicpreneurship” by turning their lived experiences into income. In September of 2021, she launched Patients Getting Paid, a membership community offering support and training to people in finding and creating flexible, remote work that not only accommodates their health, but generates revenue as well. In this sassy episode, we explore all of the unexpected streams of income and potential career paths those with disabilities and chronic illness can shift into for a more meaningful, balanced and authentic life!Kathy is an avid advocate for redefining life after diagnosis - and is living proof that it can be a great one! She is the founder and of the FUMS website and host of the FUMS Podcast Show where she provides information, inspiration, and motivation for the MS community and beyond!Follow Kathy on Instagram. Become a ChronicpreneurCheck out Kathy's FUMS websiteLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace it with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898
All too often the conversation around disability is focused on the things it takes away—the experiences and activities it excludes us from. In this one-on-one episode, Lainie & Estela break down their top 10 gifts of disability and how each has impacted their life for the better. Join us for this insightful and uplifting conversation aimed to amplify appreciation for your own personal disability journey and gifts!Looking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace it with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898
Navigating teenage years can be difficult, especially when you are suddenly diagnosed with a weird-sounding debilitating disease like Charcot-Marie-Tooth. As a 13-year-old Pakistani kid living in the UK, Zac was forced to confront daunting medical predictions, social pressures, harmful stigmas, and his own internal battles. Join us as we hear how Zac pulled himself out of multiple periods of depression and denial and learned to embrace his new life of fitness, connection, and purpose.Get out your notepads as we explore what it looks like to raise happy, independent and fulfilled disabled adults!Follow Zac on Instagram. Looking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace it with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898
Raised alongside her able-bodied twin and 4 other siblings, Dr. Gabrielle Ficchi shares her powerful story from growing up as a child with Cerebral Palsy to becoming a proud disabled therapist. In this special Mother's Day episode, Dr. Ficchi shares her deep expertise on how certain parenting styles can help empower children with disabilities.Get out your notepads as we explore what it looks like to raise happy, independent and fulfilled disabled adults!Follow Dr. Ficchi on Instagram. Connect with Dr. Ficchi on her website. Looking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace it with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898
Dayniah is a Jamaican immigrant, mother, educator, writer, and activist living with SMA. As a tenured English teacher with over 15 years of teaching experience in New York City public schools, Dayniah uses an electric wheelchair and has been unable to use a restroom at her middle school building in the Bronx for the past 14 years due to the New York City Department of Education (DOE)'s failure to provide a facility that meets her access needs.30 years after the passage of the Americans with Disabilities Act, fewer than 25% of DOE schools are fully accessible due to the widespread presence of architectural barriers. Join us for this eye-opening episode as we uncover some of the deep systemic barriers still facing the disability community and how we can work to ensure true change and inclusion.Follow Dayniah on Instagram. Connect with Dayniah on her website. Visit Friendly Shoes - Use code "EmbraceItFriendly" for 10% offLooking for more great tips, hacks, and blog posts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us! Hosted by Lainie Ishbia and Estela Lugo.Embrace It is produced by Launchpad 516 Studios.For sponsorships and media inquiries, drop an email to: embraceit@lp516.comSubscribe to Embrace it with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898
As an Iraq war veteran, Purple Heart recipient, TEDx speaker, writer, and teacher Casey Jourdan is passionate about helping others shift from surviving to thriving. Casey was a gunner in an Army convoy traveling Baghdad's "suicide ally" when a roadside explosive device rocked her world. The explosion changed her identity forever, transforming her from being an entrepreneurial, athletic, college coed with a nearly photographic memory into a disabled Iraq war veteran flunking out of college and afraid to leave her room. She lost jobs, family, and self-worth but 9 years later, she has fought her way back to a healed place with a new and constantly evolving perspective on self-recovery and societal engagement. Join us for this empowering episode as we redefine what it means to truly be resilient. Follow Casey on Instagram. Connect with Casey on her website. Watch Casey's TEDx TalkRead Casey's Trend-Able post Setting BoundariesVisit Friendly Shoes - Use code "EmbraceItFriendly" for 10% offLooking for more great tips, hacks, and blogposts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us!
At 34 years old, Katina found herself hitting rock bottom after a 17 year battle with anorexia & bulimia. After reaching out for help and enrolling in Overeaters Anonymous, she began learning how to eat healthily and reversing years of physical and emotional damage. Today, Katina is a certified nutritionist & Reiki practitioner helping hundreds of people love their guts and heal themselves with food. Join us for this eye-opening conversation jam-packed with practical tips and steps for eating our way to wellness & happiness!Connect with Katina on Instagram. Connect with Katina on her website. Visit Friendly Shoes - Use code "EmbraceItFriendly" for 10% offLooking for more great tips, hacks, and blogposts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisPlease leave us a review and help others find us!
We all want to feel safe and seen at our jobs, but how do we build inclusive cultures that reflect the full spectrum of humanity? Arthur Woods & Susanna Tharakan deliver an insightful and practical roadmap in their groundbreaking new book, Hiring for Diversity. Join us as we dive deeper into the current challenges facing the disability community and the steps needed to create impactful change for all types of employees and organizations. Buy 'Hiring for Diversity' on AmazonConnect with Arthur & Susanna on LinkedInLearn more about MathisonVisit Friendly Shoes - Use code "EmbraceItFriendly" for 10% offLooking for more great tips, hacks, and blogposts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisLeave us a review and help others find us!
What can houseplants teach us about processing trauma & disability? Apparently, a whole lot! Tovah Fine is an artist and disability advocate living with Charcot-Marie-Tooth and a knack for turning empty spaces into fern-tastic havens for healing. Join us as we turn over a new leaf and reexamine mobility aids, progression, therapy, and shame.Follow Tovah on IGVisit Friendly Shoes - Use code "EmbraceItFriendly" for 10% offLooking for more great tips, hacks, and blogposts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthisLeave us a review and help others find us!
"Height is just a number, not a limit." These are the words Jillian Curwin lives by as she navigates the world as a little person with dwarfism. Diagnosed with Achondroplasia at birth, Jillian shares her empowering journey growing up in a world not built to her size and how her advocacy work is breaking barriers on the fashion editorial pages of Vogue Italia & Harpers Bazaar. Join us as we ask some BIG questions and share a few brow-raising stories in this fun and eye-opening episode!Follow Jillian on IGVisit Jillian's Blog Listen to Jillian's PodcastLooking for more great tips, hacks, and blogposts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthis
As a lifelong advocate, Hope Hoffman has been writing bills towards inclusion since high school and has gone head-to-head with discriminatory employers. In this candid episode, Hope shares her personal journey growing up with Spina Bifida and the recent amputation of her foot. Don't miss this insightful discussion as we break down the root causes and impact of ableism and dive deeper into the history of the word "handicapped".Follow Hope on IGLooking for more great tips, hacks, and blogposts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthis
Catarina is the daughter of Cuban & Puerto Rican parents and grew up wearing hearing aids from a young age. Just before starting college at the age of 17, she began losing her vision and started a whole new journey as a disabled adult navigating the world on her own. Now she helps others do the same while smashing stigmas and educating individuals and companies about DEI (Disability Equity Inclusion). Join us as we talk about dating, role models, inclusion, and more!Follow Catarina on IGLearn more about Catarina's workshops and training on her websitewww.linkedin.com/in/catarinariverahttps://www.joinclubhouse.com/@blindishlatinawww.twitter.com/catarinariverawww.facebook.com/BlindishLatinaLooking for more great tips, hacks, and blogposts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthis
At the age of 5, Paula Carozzo experienced brain damage during surgery, resulting in Cerebral Palsy. Soon after, her family moved to the US to seek better care and raise their disabled daughter in the best way they knew how. The rest is an empowering and motivating story of Paula's rise to becoming a powerful Disability Advocate, Stylish Brand Ambassador, Model, and Stigma-Crusher! Follow Paula on IGLooking for more great tips, hacks, and blogposts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthis
What are our disability rights at work, school & society in general? What happens when a loved one or we require accommodations? What are we entitled to ask for? What do we do if we think we are being discriminated against? When it comes to disability, learning our rights can seem like a daunting and intimidating endeavor. Thankfully, there are passionate and empathetic Disability attorneys like Ashley Jacobson that help us navigate equality and open the doors to inclusion!As a woman living with Lupus and fierce disability advocate, Ashley B. Jacobson offers a wealth of digestible information, professional advice, mentorship, and virtual support. You won't want to miss this valuable episode as we cover some of your most pressing legal questions!Visit Ashley's WebsiteFollow Ashley on YouTube Follow Ashley on TikTokFollow Ashley's firm on IGFollow Ashley's journey on IGLooking for more great tips, hacks and blogposts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthis
How does someone face disability and loss early in life while still remaining a daring dreamer with a flair for all things vintage? Daffny Laurito, AKA the Vintage Nerd, gets vulnerable, nostalgic, and real with her empowering journey from an anxious catholic school girl to a bold and stylish disability advocate. Hear Daffny's best practices for glamming up our inner dialogue and timeless tips for exuding confidence from the inside out!Visit: A Vintage NerdLooking for more great tips, hacks and blogposts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthis
How do we get a better grip on life with a chronic illness that affects our hands? Join us with guest and occupational therapist, Cheryl Crow of Arthritis Life. We're talking life hacks, gadgets, motherhood, and why rheumatoid arthritis is not your grandma's arthritis!Visit: Arthritis LifeCheck out: UnBucklemeLooking for more great tips, hacks and blogposts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthis
Mindy Scheier's journey began when her son Oliver, who has a rare form of Muscular Dystrophy, wanted to wear jeans to school like his friends, but couldn't manage the buttons or zippers. She realized then that millions of people around the world must also be struggling to access fashionable clothing that meets their needs. She began to envision a world where all styles of clothing were available with modifications that would make them accessible for people with disabilities. After spending 20 years in the fashion industry and opening a design school for kids, Mindy decided to combine her experience and her passion to address this unmet need by founding the Runway of Dreams Foundation.Visit: Runway of DreamsCheck out: Gamut Management Looking for more great tips, hacks and blogposts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthis
Thought distortions (also called cognitive distortions) are negative thoughts that are exaggerated, irrational, skewed, and/or distorted. All of us have them at times and they manifest from our unconscious perceptions & deep seated beliefs.But our thoughts are not facts. We can choose to challenge them & to ultimately change them. But first we have to know what they are. Join us as we breakdown 10 common cognitive distortions & examples of how they may show up in people with disabilities.For the full article on Trend-Able.com click here!Find more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthis
Maura's inspiration for MagnaReady® came one day when she closed her magnetic iPad case, and heard the metal magnet click. If a shirt could open and close the same way, then maybe people living with disabilities, like her husband, could dress themselves independently. Join us for a heartfelt conversation with Maura as she shares her personal journey of taking her adaptive idea all the way from prototypes to major fashion brands, and learn how she became a better caretaker for her husband during his years living with Parkinson's.Shop: MagnaReady®Check out Maura's latest project: Juniper Unltd - An Inclusive & Accessible Lifestyle websiteLooking for more great tips, hacks and blogposts? Visit: Trend-Able.comFind more on Charcot-Marie-Tooth (CMT) and patient resources on: HNF-cure.orgFollow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthis
At 20 years-old, Peruvian born Marcela Marañon survived a fatal car accident that killed her boyfriend and left her with a lower leg amputated. Now she travels the world alone bringing awareness to accessibility, cutting-edge mobility devices and inclusive fashion!Follow Marcela on IG @thejourneyofabravewomanLearn more & shop Marcela's websiteLooking for more great tips, hacks and blogposts? Visit: Trend-Able.comFind more info and CMT patient resources on: HNF-cure.orgEnjoying our content? Help others find our podcast and EmBrace their own challenges... move us up in Apple listings with a review!
Marisa Hamamoto is a stroke survivor, inclusion keynote speaker & performer, and Founder of Infinite Flow, a nonprofit and professional dance company composed of dancers with and without disabilities using dance to inspire inclusion and innovation. Her jaw dropping dance performances have gone viral and have been seen on the Today Show, GMA, PBS, Now This, Upworthy, ABC7 and more. Marisa's story and work is living proof that anyBODY can dance!Follow Infinite Flow on IG @infiniteflowdanceLearn more or book Infinite Flow on their websiteLooking for more great tips, hacks and blogposts? Visit: Trend-Able.comFind more info and CMT patient resources on: HNF-cure.orgEnjoying our content? Help others find our podcast and EmBrace their own challenges... move us up in Apple listings with a review!
We're diving in deep with Ben Duffy, producer and director of Take a Look at This Heart… a powerful film about love, sexuality, and the human bond within the disabled community. It's a heartfelt journey into the lives of 17 very unique people; some with disabilities and the partners who love them, others struggling to get by in a world that seems to often overlook them. Watch the trailer here!Check out this incredible film on Amazon Prime or iTunes!Watch more of Ben's films here!
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