Podcasts about Arthrogryposis

Type of loss: Life-limiting diagnosis, stillbornMore about Brittany's story: In this episode of Confessions of a Grieving Mother, Tracy and Julie talk with Brittany Crawford about the loss of her daughter, Norah. At 12 weeks gestation, Brittany learned that Norah had a rare genetic condition called Arthrogryposis. After weeks of seeing specialists, she was told at 18 weeks that Norah would not survive. Norah passed away at 18 weeks and 5 days, and Brittany delivered her a few days later at West Penn Hospital in Pittsburgh. Brittany shares what it was like to receive that diagnosis, prepare for loss, and deliver her daughter.More about Emma's Footprints:⁠⁠⁠⁠⁠⁠⁠⁠⁠www.EmmasFootprints.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook: @EmmasFootprintsInstagram: @EmmasFootprints

Ponitz grad Tobias Ashlock has a condition called Arthrogryposis multiplex congenita, or AMC, which causes stiff joints and limited movement in several parts of his body.

This next episode is with Erin Miller. She is a strong woman who faces many challenges but thrives while doing so. Erinb has the condition Arthrogryposis multiplex congenital (AMC). AMC is a term used to describe a group of congenital (present at birth) conditions characterized by joint contractures in two or more joints of the body. Therefore, AMC is a descriptive term for over 400 conditions rather than a single diagnosis. In the episode, we discuss health, family loss, and so much more. I've actually had the personal pleasure of watching her navigate life with this condition, and though she makes it look easy, it is not.  https://amcsupport.org  

Dr. Mitzi Williams is a pediatric foot and lower extremity surgeon who specializes in congenital deformities. Dr. Williams directs the Pediatric and Infant Foot Deformity Clinic at Kaiser Permanente in Oakland, California. She is an attending surgeon at the SF Bay Area Foot and Ankle Residency Program. She completed her undergraduate degree from the University of Arizona in veterinary science and chemistry. She went on to complete her podiatric medical degree at Rosalind Franklin University Schol College of Podiatric Medicine and then went on to complete her 3 yr surgical residency program with Scripps Mercy Podiatric Residency in San Diego.   Dr. Williams is greatly involved advancing treatment for children with Cerebral Palsy/ spasticity, Arthrogryposis, Spina Bifida and genetic conditions. Tune in as we discuss “all things podiatric medicine” including her creation of children's books to empower and educate children on musculoskeletal conditions. Dr. Williams is internationally recognized for her expertise in treating pediatric foot and lower extremity deformities. She takes pride in treating children, teaching surgeons worldwide and advancing the field of pediatric foot and ankle surgery. She has extensive experience in treating clubfoot, vertical talus, metatarsus adductus, tarsal coalitions, pediatric flatfoot, neuromuscular conditions, pediatric trauma, and numerous other congenital foot conditions. Join us, as we dive into her story and listen as she talks about how a chance meeting with Dr. Igancio Ponseti helped shape her career. Dr Williams serves as a board member for the American College of Foot and Ankle Surgeons. Her scholarly work also includes numerous textbook chapters on various pediatric conditions, research publications as well as section editor for pediatrics, in the Journal of Foot and Ankle Surgery. We hope you enjoy this episode! https://www.drmitziwilliams.com/ https://www.instagram.com/paleyinstitute/p/C87fSPAuxXh/?img_index=1 https://www.instagram.com/paleyinstitute/p/C4Bca4iOPMk/ https://www.linkedin.com/in/mitzi-williams-961b4698/ https://residency-ncal.kaiserpermanente.org/residency/podiatry/bayarea/ https://www.acfas.org/membership  

Do you want to know how to tap into your inner resilience during the busy seasons of life? How do you determine what success means for you? In today's episode, Rebecca talks with two success stories in their own rite. Author and inspirational speaker Sheldon Crocker will share the connection between resilience and a purposeful, fulfilling life. Sheldon's own life experiences and his journey with Arthrogryposis (a neuromuscular condition that severely limited his mobility) have shaped his own approach to transformative thinking and mindfulness. Author Janet Cheney will talk about her recent international bestseller and how it has impacted her life emotionally or spiritually. As well as some shifts in her perspective on success. Listen in as they share from their own stories. As always, you can find our host, Rebecca Hall Gruyter at the www.RHGTVnetwork.com or at www.yourpurposedrivenpractice.com. Our guests are also online. Sheldon's online home is: https://www.sheldonstransformativethinking.com. You can find Janet online at: https://www.healingyoursecrets.com/book.

This is part of a special series of interviews within the SFN Dad To Dad Podcasts to be known as the SFN Mastermind Group Monday Podcasts.  Each Monday host David Hirsch interviews one of the SFN Mastermind Group dads on the impact the mastermind group has had on him and the wellbeing of his family.  This Monday's guest is Jon Heckert of Madisonville, LA who is a vice president of human resources at K.L. Breeden & Sons, LLC a privately held, family-owned and operated, trucking & transportation company.  Jon is also father of a son with disabilities and a volunteer with Ainsley's Angels. Jon and his wife, Doris, have been married for 18 years and are the proud parents of Jackson (17) who was diagnosed invitro with Arthrogryposis Multiplex Congenita (AMC) a rare disease that causes permanent tightening of the baby's muscles, skin and tendons that make their joints short and stiff. Arthrogryposis means crooking (bending) of the joint. “Artho” means joint, and “gryposis” means crooking.Jon has been part of the Wednesday night SFN Mastermind Group and was featured in episode #83 of the SFN Dad To Dad Podcast in January of 2020. Show Notes -Phone – (225) 328-9537Email – jdheckert@gmail.comLinkedIn - https://www.linkedin.com/in/jonathanheckert/Jon's SFN Dad To Dad Podcast #83 – https://tinyurl.com/ycky989dAinsley's Angels - https://ainsleysangels.org/Jon's favorite book reviewed as part of the SFN Mastermind Group is Smart Leadeship by Mark Miller.About the SFN Mastermind Group – WHAT- SFN Mastermind Group dads meet weekly by Zoom for 75 minutes. Each meeting:◦            starts with a round of wins from the past week,◦            includes a discussion of the current book (6 per year) being reviewed,◦            has two Dad-In-The-Middle sessions for dads to share a challenge, and◦            ends with a recap and look at the week ahead. WHO - SFN Mastermind Group Dads are those:◦            seeking meaningful friendships with like-minded dads,◦            willing to invest their time and make a financial commitment,◦            looking for a safe place to be open and authentic, and◦            who realize seeking advice is a strength, not a weakness.  WHY - SFN Mastermind Group Dads benefit by:◦            realizing they are NOT alone◦            having better relationships with their spouse,◦            developing improved understandings of their child(ren),◦            tapping into the experience and wisdom of others,◦            getting weekly encouragement from like-minded dads, and◦            creating a pathway to become the best version of themselves21st Century Dads Foundation is looking to provide 100 special needs fathers with the opportunity to be part of the class of 2024 Mastermind Group.   Curious to learn more?Are you looking to meet like-minded dads?Do you feel like something is missing?  SFN Mastermind Group FAQs - https://21stcenturydads.org/sfn-mastermind-group/  Schedule A Call - https://21stcenturydads.org/sfn-mastermind-group-inquiry-form/

Was haben Dinos mit unserem Gast zu tun?Joachim "Jochi" Röthlisberger ist Parathlet und absoluter Sunnyboy. Er lebt mit einer angeborenen Arthrogryposis und erzählt uns in dieser Folge von seinen Erfolgen als Parathlet, Ängsten und seiner Realität als Mensch mit einer Behinderung. Wir sprechen mit Jochi über die kleinen und grossen Hindernisse im Leben. Hört rein!Eure Storys, Ideen oder Anmerkungen könnt ihr uns zuschicken auf: philosobieren.podcast@gmail.com oder direkt im Spotify-Formular.

Do you want to know how to tap into your inner resilience during the busy seasons of life? How do you determine what success means for you? In today's episode, Rebecca talks with two success stories in their own rite. Author and inspirational speaker Sheldon Crocker will share the connection between resilience and a purposeful, fulfilling life. Sheldon's own life experiences and his journey with Arthrogryposis (a neuromuscular condition that severely limited his mobility) have shaped his own approach to transformative thinking and mindfulness. Author Janet Cheney will talk about her recent international bestseller and how it has impacted her life emotionally or spiritually. As well as some shifts in her perspective on success. Listen in as they share from their own stories. As always, you can find our host, Rebecca Hall Gruyter at the www.RHGTVnetwork.com or at www.yourpurposedrivenpractice.com. Our guests are also online. Sheldon's online home is: https://www.sheldonstransformativethinking.com. You can find Janet online at: https://www.healingyoursecrets.com/book.

Do you want to know how to tap into your inner resilience during the busy seasons of life? How do you determine what success means for you? In today's episode, Rebecca talks with two success stories in their own rite. Author and inspirational speaker Sheldon Crocker will share the connection between resilience and a purposeful, fulfilling life. Sheldon's own life experiences and his journey with Arthrogryposis (a neuromuscular condition that severely limited his mobility) have shaped his own approach to transformative thinking and mindfulness. Author Janet Cheney will talk about her recent international bestseller and how it has impacted her life emotionally or spiritually. As well as some shifts in her perspective on success. Listen in as they share from their own stories. As always, you can find our host, Rebecca Hall Gruyter at the www.RHGTVnetwork.com or at www.yourpurposedrivenpractice.com. Our guests are also online. Sheldon's online home is: https://www.sheldonstransformativethinking.com. You can find Janet online at: https://www.healingyoursecrets.com/book.

As we get started on this episode, I want you to take a second and think about the qualities that define you. What are the different things that make you… you? Do you love those qualities? Or are they something you feel like you need to battle? For my guest Ryan Neiswender, it took time for him to learn to love the quality he hated most about himself. But when he did, he reached the loftiest heights an athlete can reach. Ryan was born with Arthrogryposis, a rare condition that impacted the development of his legs. By the age of 8, he would need to use a wheelchair to get around. But rather than feel constrained by his chair, Ryan felt he could move effortlessly. Then one day his parents took the sports obsessed Ryan to a nearby wheel chair basketball clinic, and the rest they say is history. Actual literal history, because Ryan went on to not only excel at the sport, he ended up winning a gold medal for Team USA at the 2020 Paralympic games in Tokyo. In our conversation we talk at length about Ryan's journey and what he's learned about himself along the way. We go into the highs of winning a gold medal, and more recent lows associated with the sport. But most importantly, we talk about the mindset and strategies he's developed that prepare him to deal with those emotional peaks and valleys. ABOUT THIS PODCAST The 1-on-1: Sports Business Conversations podcast is a production of ADC Partners, a sports marketing agency that specializes in creating, managing, and evaluating effective partnerships between brands and sports. Website: adcpartners.com/podcast Instagram: adc_partners_podcast Threads: adc_partners_podcast Youtube: @adcpartners YOUR HOST Dave Almy brings over 30 years of sports marketing and sports business experience to his role as host of the "1-on-1: Sports Business Conversations" podcast. Dave is the co-Founder of ADC Partners.

You can follow Leonard Cheshire on Twitter or Instagram @LeonardCheshire. Find out more at leonardcheshire.org  Find Zarifa on: www.itsanidealworld.com, or @ZarifaRoberson on Facebook, Instagram, TikTok, Twitter and Snapchat.Or you can directly e-mail her on: zroberson@itsanidealworld.comFind Paige and Taylor on: https://www.instagram.com/alifelookingup/https://www.youtube.com/@ALifeLookingUp

Welcome to Season 4, Episode 5 (S4E5) of "What Dewey Do?" Podcast! The Amazing & Inspirational Life of Scissor Man!

Boo! This week join Sheila and Sara as they cover torticollis, cranial deformity and arthrogryposis. They start off this episode with torticollis and cranial deformity.  Last season, they did an entire episode covering the torticollis CPG.  That was the most comprehensive episode we have done and we definitely feel that it covers the full depth of torticollis. The book chapter leans heavily on the CPG so a lot of this information will be repetitive with that, but that is ok! Repetition is good. They then move on to cover arthrogryposis through the life span. Affiliate Codes: ------------------------------------------ Medbridge Affiliate website: https://www.medbridgeeducation.com/pushing-pediatrics Medbridge Affiliate Code: PUSHINGPEDS ----------------------------------------- Resources: Palisano, R. J., Orlin, M. N., & Schreiber, R. (2023). Campbell's physical therapy for children. Elsevier. Kaplan, Sandra L. PT, DPT, PhD; Coulter, Colleen PT, DPT, PhD, PCS; Sargent, Barbara PT, PhD, PCS. Physical Therapy Management of Congenital Muscular Torticollis: A 2018 Evidence-Based Clinical Practice Guideline From the APTA Academy of Pediatric Physical Therapy. Pediatric Physical Therapy 30(4):p 240-290, October 2018. | DOI: 10.1097/PEP.0000000000000544

Hosts Jennie and Zoe chat to TV personality and pundit Asta Philpot.  Asta was born with Arthrogryposis, a condition called that impairs physical movement. They about his first sexual experience, care homes, and how he found his true love. Follow Asta on instagram @astaphilpot or visit www.astaphilpot.comContains explicit content 

Rose ElekanachiMcGill UniversityPoster title: The development and validation of a cost of care questionnaire for children  with arthrogryposis multiplex congenita: a caregiver perspective

Bart was born with a physical disability called Arthrogryposis. Doctors said he would never walk, may never have the strength to be able to sit up and would have a bleak outlook to life - that being the limit! However, when you pray to God that He would take control of the situation, this is God who knows no impossibility, limits are broken and miracles happen as Bart has found in his own life!

Meet Bert's Big Adventure kid Toan! His mom and dad say it was “divine intervention” that brought Toan into their lives. They'll share their story. #BBA2023 kid Toan's favorite TV show happens to be Netflix hit #FloorIsLava…and we HAPPEN to know that the team at Crisp Video Group has someone who wants to give him a big shout out and a Floor Is Lava party! Big thanks to Crisp Video Group for making this possible! 6 year old Toan was adopted by his family from Vietnam at age 3.5. The adoption process took over a year but his family knew they were meant to be together. He is diagnosed with Arthrogryposis, the name given to a group of disordered characterized by multiple joint contractures present at birth. https://t.co/Xwy7X2LAZH Learn more about your ad choices. Visit megaphone.fm/adchoices

Today, I interview Sheldon R.S. Crocker who grew up in a very, very small town in North Carolina. He was born with Arthrogryposis, which causes muscle atrophy and contractions at most joints. From birth he was challenged with not being able to walk. In order to become the inspiring speaker he is today, he has a story of abuse but also one of resilience and strength. Sheldon was unable to crawl as a baby. He wore braces on his legs, and doctors thought he would never be able to walk (although he did teach himself). Despite plenty of surgeries, he also could not straighten or raise his arms, which prevented him from doing many things we take for granted, like the ability to open a door or brush our teeth or lift things. As if that didn't fill his life with enough challenges, Sheldon's father was also an alcoholic and would come home and assault his mother. There were no siblings, so Sheldon was on his own. His father abused him as well, saying he would never amount to anything and that he should've never been born. Despite hearing those heartbreaking, hurtful words, Sheldon pushed forward. But his mother also abused him, beating him with a belt and criticizing him, comparing him to other people. He isolated himself and never really developed communication skills. This was his best way to protect himself from the meanness all around him. But this was no way to live. He didn't want to avoid people or be avoided by them. He didn't want to lash out or bottle up his feelings anymore. At 18, he had become addicted to drugs and alcohol. He wasn't coping well. He was forced out of the town. He moved to another town, drank his way through college, and though he had nothing, walked himself all the way to the addiction rehab center. Deep down, he knew he had a purpose. He went through a trauma program, where he learned to process his experiences and understand his own story. He'd always known that something great would eventually happen in his life, and he finally found a way to understand his journey and feel a new sense of hope. In sharing his story with others, he has found his purpose in life. He has written a book and loves to pass his story of hope on to others. __________________ Despite being born with Arthrogryposis, Sheldon Crocker inspires his audience with his distinctive style and unforgettable humor. He has appeared on several national news programs. His inclusion in the MerB'y Documentary and Calendar made history as the first disabled person to appear in such a publication. The Dale Carnegie Human Relations Award was awarded to him. Compassionate, empathetic, and humble about his message, he has lived the issues he speaks about. He has published "KEEP on WALKING - A Transformative & Inspirational Journey." His goal is also to help make a difference in someone's life that he wishes he had received when he was young. Sheldon says, "For most of my life, I felt like I had no voice, too afraid to speak up." Find Sheldon here: https://www.sheldonstransformativethinking.com/https://www.facebook.com/Sheldon.R.S.Crockerhttps://www.linkedin.com/in/sheldon-r-s-crocker/ https://www.youtube.com/channel/UCITIPJL_xgk0SGKeM5Acc8w https://www.gofundme.com/f/sheldon-helping-others-perhaps-someone-you-know https://www.amazon.com/gp/aw/d/B089LN85G6 https://www.instagram.com/sheldon_r.s._crocker/ https://twitter.com/SheldonCrocker1 __________________I'm your podcast host, Dr. Doreen Downing, and I help people find their voice so they can overcome anxiety, be confident, and speak without fear. Get started now on your journey to your authentic voice by downloading my Free 7 Step Guide to Fearless Speaking: https://www.doreen7steps.com.   

In this episode, we have many elderly tribes or parents on Autism Rocks And Rolls. All these parents either have a child who is on the spectrum or has a child with a physical defect. However these parents tell how their child has overcame their issues and how they are being successful today. Who does the list entail? I will be telling you all with bullet points.  Samuel Hutchins-Samuel Hutchins is the founder and the president of The Hope For Xavier Foundation Inc. The goal for this foundation is to promote empowerment and awareness for his non verbal son who is on the autism spectrum. He is also the founder of Dream Out Loud 2000. Established in 2008 the goal of this non-profit is to empower the value of higher education to youth at an early age.  Alexis McClure-Alexis works at Paragon Wellness Solutions and is the proud mother to a girl who is on the autism spectrum but is also non-verbal but no matter what stands in her way she always does what is best for her daughter. Kurtis Moffitt-Kurtis is a husband and father also as he says “a weird guy.” Kurtis was a pastor until he became a teacher. Teaching 4 years in Texas and then moving to Indiana to be part of my community. He is not only an 8th grade science teacher but has 4 kids and one of his 4 kids is on the autism spectrum.   AJ Ali, who is a 42-year-old mother and has a daughter on the autism spectrum. At age 2 and a half, her daughter was diagnosed with Sensory Processing Disorder, but since being diagnosed, she has overcome bullying and, as AJ said, "the middle school years." Sherry Hatfield-While she has no relation to autism she does have an amazing story. She and her husband have two biological children and adopted three children. The two children she adopted were special needs. Michelle had open heart surgery in China but is now a Corporal in The United States Marine. The other child Mason came to her with two clubbed feet and with a condition called Arthrogryposis. Mason had many years of physical and occupational therapy. Doctors said he would be in a wheelchair but today he is only not in a wheelchair but graduated as valedictorian and goes to Indiana University.  Mindy Marie Bartlett-She is a wonderful wife and mother to 4 kids. Her second oldest son Xander is 19 and has autism. Her and her family have had to fight for his educational rights for 9 years and each time they have won with the help of a great team.  Amanda Hammer-Another member of my community. She also is a lovely mother to a daughter and a son who is on the autism spectrum. Her son has had to overcome many obstacles but they have all done it together as a family.  Martin Salama-Martin is known as the Architect of The Warriors L.I.F.E Code. He specializes in people who are frustrated in their quick shift mindset to uncover their greatness. Even though he is an amazing entrepreneur he has a child who has been diagnosed with autism. Despite all of his success he still is a great father who always stays humble.  Marcia Nathai Balikisoon-Located in the Caribbean's. She is a mother to a brain-injured bedridden girl who has been her best teacher in the last decade. She also runs a podcast called The Special Needs Parent Podcast to help other parents thrive despite challenges by sharing what experiences they have gone through as a mother or a father with special needs.  https://www.facebook.com/HopeForXavierFoundation/ https://www.audible.com/pd/Podcast/B08K58GTPN

I'm Elle. Business Success Coach, Paralympian & Intuitive Healer. But Elle is so much more than that. A teacher, community builder, a business woman, a sister, a friend and an all around good human. Did we also mention she's psychic? Dylan and Angus agree to leave their bias at the door as the welcome Elle to the podcast and get a psychic intuitive reading each. Why did Dylan enjoy his results and Angus was left changing his diet?  Press PLAY on this episode of ListenABLE  Grab our first merch release at our website From Your Pocket Follow us on Instagram: @ListenABLE_ Podcast Working with Plan Partners Watch this full interview with captions on our Youtube  See omnystudio.com/listener for privacy information.

Lera was born in Saratov, Russia with a congenital condition called Arthrogryposis of the lower extremities. Lera was adopted and came to the U.S. in 2005. In addition to Para Nordic Skiing and Biathlon, Lera has been actively training and competing in sled hockey as a member of USA Hockey Women's Sled Development Team and San Diego Ducks Sled Hockey team.

Sadie talks to us today about her sweet little girl, Navy! She was born with a condition called, Arthrogryposis. When Sadie and her husband first got the diagnosis while Navy was in utero, they didn't know what their future would look like. They were told that she could be born with 2 extremities affected, or she might not be able to survive after birth. There was no way to tell until she was born. Navy was born and was able to breath on her on, and was such a little miracle! She was affected in her arms and legs, but they were so grateful for life with their beautiful baby girl. Sadie told us all about casting appointments, procedures, surgeries, therapy and how her little Navy has thrived in the world she has been thrown into. We are so inspired by Navy, her family, and can't wait to see what this little girl can accomplish!

Today we delve into a conversation with Shantel about her beautiful daughter, MiKenli's condition, arthrogryposis. MiKenli is a twin and we also get to talk her sister MiKenzi in this episode as well. We find out so much about them; most importantly, who is the older twin. Mom discusses with us how life has changed and what her plans are as far as bringing awareness to this rare condition that effects 1 in 3,000 live births. Shantel mentions in this episode that insurance has denied her claim for a motorized chair that will assist MiKenli in becoming more independent. In lieu of that, she has started a Go Fund Me in hopes to be able to afford this chair for her daughter. The chair costs close to $40,000 so every little bit will help! Here is the link if you'd like to donate:Click here to donate to help get MiKenli's chair!Also, please follow the girls on Instagram as well:PrincessMiKenliAMCJourneyAs always, any questions please hit me up!Thank you for always tuning in please find me on Instagram and Facebook...say something to me!Until next time...tek care...translation...be good to yourself!

Jennifer is a wheelchair user due to Arthrogryposis residing in Long Beach, CA. She is working as a political consultant /fundraiser to help elect more women of color, ethnicities, and LGBTQ.

One in four people in the United States alone lives with a handicap that makes navigating life very challenging. And now that we are living in an era where plant medicine is becoming widely acknowledged, how do we improve these lives with a fresh perspective. Join us for a lively discussion on how evolving our perception is the key to living a meaningful life.   Subject discussed in the second segment: STAYING POSITIVESubject discussed in the second segment: CHANGING THE PERCEPTION     GREG THE GUINEA PIG: TIMOTHY EDWARDS, also known as TIM-ME, is a CREATIVE ARTIST, ACTIVIST, and ENTREPRENEUR and was born with the ALTER-ABILITY called ARTHROGRYPOSIS.     PRODUCTS FEATURED: Lifted Cannabis—Melonada Vape Cart Lifted Cannabis—Cold Cured White Truffle Badder     SPONSORS: FAIRWINDS LIBERTY AVITAS HELLAVATED     STONEY BALONEY EPISODE: THE EXPLORATORY DAVEY DABS

2022.8.4The Living Full Out Show with Nancy Solari invites you to find your own rhythm. Maybe you've found a career that makes you excited to get out of bed in the morning, or perhaps you're still looking for a job that feeds your passions. Through getting in tune with what you really want in life, you can find the best way to be an original.Our first caller, Amanda, needs assistance with communicating with the person she's dating. Nancy advises Amanda to express her feelings freely with her partner, and to find moments to give him positive affirmations. Tune in to hear how taking risks can be beneficial to healthy romantic relationships.Our inspirational guest, Luca Patuelli, was born with Arthrogryposis, a rare neuro-muscular disorder that made walking very difficult. Since he was 7 months old, he has undergone a total of 16 surgeries to support his body. As a teenager, Luca still found ways to be physically active, from skateboarding on his back to using outrigger skis to support his legs. Unfortunately, at the age of 17, Luca had a surgery that took away his ability to skateboard, but another door opened: the world of breakdancing (BBoying). Since then, he has found a home through the BBoy community, dancing across the nation with his team of all-stars, the Ill-Abilities. Listen in to hear about Luca's athletic journey and how he continues to find ways to live life his own way.Our final caller, Rae, is struggling with the stress of isolation from COVID-19. She feels that the pandemic prevents her from living life fully. Nancy tells Rae that finding moments of virtual human connection – either through FaceTime or Zoom – could improve her spirits greatly. Tune in to hear how you can connect your mind with your body.Maybe you're wondering what you can do to find your rhythm again. Perhaps you can return to a passion that you might've put aside or bring excitement into your day-to-day through music. By finding your own way to dance big, you can live full out.Call us 800-333-0001

Jennifer is a singer and actress born with Arthrogryposis. She is the first performer in a wheelchair to ever be on any Disney stage in the world and has been in many productions on screen and on stage since 2000. Listen as she discusses how she navigated through her struggle with identity, ultimately finding her voice through singing and resurrecting her soul. Check out Jennifer's website: https://www.jenniferkumiyama.org Follow Jennifer on Twitter: https://twitter.com/kumirocks and Instagram: https://www.instagram.com/kumirocks FOLLOW PARALYSIS TO PURPOSE Twitter: https://twitter.com/Paral2Purpose Instagram: https://www.instagram.com/paralysis2purpose Facebook: https://www.facebook.com/paralysis2purpose TikTok: https://www.tiktok.com/@paralysis2purpose Mailing List: http://eepurl.com/hzE5n9 FOLLOW OUR HOST, DAVID COOKS Twitter: https://twitter.com/dcespeaks Instagram: https://instagram.com/dcespeaks Facebook: https://www.facebook.com/dcespeaks Website: https://davidcooksspeaks.com Listen in for stories of growth, change, and discovery by both individuals and corporations on their journeys from Paralysis to Purpose. https://paralysis2purpose.com

We have a big episode for you this week! Sara and Sheila walk you through the ins and outs of torticollis, arthrogryposis and osteogenesis imperfecta. Citations/Resources: Palisano, R. J., Orlin, M. N., & Schreiber, J. (2017). Campbell's Physical Therapy for Children Expert Consult (5th ed.). Elsevier Gezondheidszorg. Pelletier, E. S., & Jobst, E. E. (2015). Case Files in Physical Therapy Pediatrics. McGraw-Hill Education. https://rehabknowledge.com/products/pcs-advantage/ https://pediatricapta.org/clinical-practice-guidelines/Congenital-Muscular-Torticollis.cfm --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/pushingpediatrics/support

Shriners Chicago Hospital has a new genomics and precision medicine project that may provide breakthrough medical care for specific conditions in the years ahead. Learn about this program and how your child and family can participate.

In episode 10 we bring you a story from our dear friend Sharni. Sharni has not struggled with infertility, but she sure has had more than her fair share of struggles. Her little girl was born with Polymicrogyria, Arthrogryposis, and she had an Omphalocele present at the 12-week scan. The Arthrogryposis was picked up after 20 weeks, but the Polymicrogyria was not diagnosed until an MRI after birth. Further to this, she was also born with 2 holes in her heart. A few years later Sharni then suffered from 2 recurring miscarriages. Today Sharni shares the reality of being told that her little girl would be born with a disability, and how no one was able to tell her exactly what that would look like! She also shares what an emotional roller coaster it was being told scan after scan that her baby would not survive, however she has defied all odds! Little Harlow is a little fighter and is now three years old and progressing further then her doctors ever expected! Here at I&B we think it's important to not only talk about the struggles of when trying to fall pregnant but even once women are pregnant, the scary and uncertain challenges that come with motherhood such as abnormalities around scans, confronting appointments and the ongoing responsibilities that we can face for the rest of our lives. No one should ever feel alone at such a difficult time so we know that this episode will pull on a lot of your heart strings and be very close to home for some. And if you haven't already, please jump over to our Instagram page @infertilityandbeyond_ and show us some love!! & If you enjoyed this podcast don't forget to subscribe and leave us a glowing review!

TRIGGER WARNING: This episode speaks about Arthrogryposis, termination of pregnancy, feticide injection, abortion, death and grief. Elizabeth (or Buff) is an environmentalist from the UK now stewarding land in Portugal with her husband – tending to the vision of creating food forests and hosting people for regenerative, sustainable experiences on their land. We delve into a heartbreaking and intense journey Buff went through earlier this year. The details of which i'll save for her own articulation - but as mentioned in the trigger warning, it involves immense loss and trauma. She offers so many pearls of wisdom and resources here. I will allow you to receive from her instead of inferring too much. Connect: https://www.instagram.com/buffence/ HER RESOURCES – TFMR support: - TFMR Mamas: https://www.tfmrmamas.com/ https://instagram.com/tfmrmamas?utm_medium=copy_link - Time to talk TFMR podcast: https://open.spotify.com/show/79WlU4ZlXwB1JJeaCMuEVe?si=0JutfXFLTWmveZK9Onz52Q&utm_source=copy-link&dl_branch=1 https://instagram.com/timetotalktfmr?utm_medium=copy_link General support for pregnancy and infant loss: - ARC - antenatal results and choices: https://www.arc-uk.org/about-arc https://instagram.com/arcantenatal?utm_medium=copy_link - Petals charity: https://petalscharity.org/ https://instagram.com/petalscharity?utm_medium=copy_link - Tommy's: https://www.tommys.org/ https://instagram.com/tommys?utm_medium=copy_link

Lisa Loughran, whose son Roger was born with the rare joint-and-muscle disease AMC (arthrogryposis multiplex congenita), visits RadioRotary to tell about the annual event for raising awareness and funds, Roger's Run. When Roger was born in 2010, he displayed the form of AMC in which the joints are “frozen” in a way that all the limbs are completely extended. The condition, which also causes muscles to atrophy, was diagnosed before birth, leading Mrs. Loughran to seek out the AMC Support Group, which has helped immensely. Local doctors learned more about the disease and have gone beyond ordinary duties as Roger has gone through numerous surgeries. Despite the problems. Roger is active in Red Hook school and sports, inspiring the Red Hook Community. Roger's Run includes several levels of both virtual and physical runs or just an opportunity to donate to an excellent cause. Learn more: Roger's Run: https://www.rogersrun4amc.com/ Arthrogryposis multiplex congenita (AMC): https://rarediseases.info.nih.gov/diseases/777/arthrogryposis-multiplex-congenita Arthrogryposis multiplex congenita Support Group, Inc.: https://www.amcsupport.org/ CATEGORIES Children Events Health Support Groups Words for Search Arthrogryposis multiplex congenita. AMC, rare diseases --- Support this podcast: https://anchor.fm/radiorotary/support

In this first episode of All Gas No Brakes, we start by putting into focus the idea of physical disability. What is your perspective on physical disability? Is it just about wheelchairs and seeing-eye dogs, or do you attach an emotional component to people living with disability? I then take a deep dive into my own situation and early childhood. Why was I not placed in special education classes? How did I assimilate with the other students? Finally, we discuss the goals and idea behind the All Gas No Brakes Podcast.Got feedback? Connect with AGNB via email or all social media channels.Email: agnb.pod@gmail.comTwitter: @AGNB_PodFacebook: @allgasnobrakespodcastInstagram: @AGNB_PodWebsite: allgasnobrakespodcast.buzzsprout.com/Arthrogryposis background informationhttps://rarediseases.org/rare-diseases/arthrogryposis-multiplex-congenita/Arthrogryposis supporthttps://www.amcsupport.org/

Today I'm joined by Sara Gaver from Jacksonville Florida, USA. Sara was born with a physical disability called Arthrogryposis, only 1 in 3000 are born with it. Sara has been driving a wheelchair since the age of 4 and she is now 27. As Sara needs caregivers, she tells us what it's like from her perspective.  “Never look at the person for what they can't do and look at them for what they can do.”You can follow Sara on Instagram @wheellifeconnectionsThank you for listening. If you enjoyed this episode, don't forget to leave a 5* review, take a screenshot and tag me and Sara on Instagram @ruthlewiscosteuk @wheellifeconnections.The time is now to be proud and loud about being a caregiver!

Megan Young and Philip McClure of Children’s National and the International Center for Limb Lengthening, respectively, moderate the POSNA 2021 virtual Lower Extremity Subspecialty Day episode, discussing key abstracts from the upcoming annual meeting. Featured authors include Vanna Rochi from Navy Medical Center at Portsmouth, Oussama (“Sam”) Abousamra from Children’s Hospital of Los Angeles, and David Feldman from the Paley Institute in West Palm Beach. Your host is Craig Louer from Vanderbilt University. Music by A. A. Alto.   Abstracts discussed:    Rochi: “Patient reported PROMIS assessment in pediatric patients with tibial deficiency, fibular deficiency, and proximal focal femoral deficiency - A multicenter study”   Abousamra: “Angular Deformity before and after Temporary Epiphysiodesis for Leg Length Discrepancy”   Feldman: “Novel Treatment for Improving Knee Range of Motion in Patients with Arthrogryposis and Severe Knee Flexion Deformity”   For further information, see annual meeting program: https://posna.org/POSNA/media/Documents/Events/Final-Program_1.pdf   Please subscribe and send all feedback to pedsorthopodcast@gmail.com

Her name is Tara McNeil. This is amazing story. It is a little bit long. But it's amazing story. Amputated… oh and coffee too... Arthrogryposis, also called arthrogryposis multiplex congenita (AMC), involves a variety of non-progressive conditions that are characterized by multiple joint contractures (stiffness) and involves muscle weakness found throughout the body at birth. This disorder should be considered a symptom complex or a descriptive term rather than a disease and an underlying cause should be sought when possible. The most common type of arthrogryposis is called amyoplasia in which the hands, wrists, elbows, shoulders, hips, feet and knees are affected. In more severe types, every joint can be affected including the jaw and spine. The name, derived from the Greek, means “curved or hooked joints”. 1.https://www.achillesct.org/ 2. TBlosser Photography is at Gaylord Gauntlet. https://www.facebook.com/100000463001782/posts/3348226748536059/?d=n 3 Dreaming & Working Together To improve the quality of life and bring about sustainable change for the medically underserved population of Lima, Peru by providing various types of surgeries and prosthetic and rehabilitative services. http://dreamingandworkingtogether.net/ 4. Brant (goose) https://en.wikipedia.org/wiki/Brant_(goose) 5. Arthrogryposis This is a rare disorder occurring in 1 out of every 3,000 live births. The incidence of true amyoplasia occurs in 1 out of every 10,000 live births. Arthrogryposis (AMC): Overview, Causes, Diagnosis and Treatment 6. Children have a lot to learn in the first three years https://www.birth23.org/?fbclid=IwAR3x9SJLM-d1z1wiUL-09NPFpADZhi0WWtAuCF0b1jwn9FMO05QhWOgWqqU 7. How Arterial Dissection Can Cause a Stroke https://www.verywellhealth.com/arterial-dissection-and-stroke-3146026 8. neurogenic arthrogryposis multiplex congenita https://www.wikidata.org/wiki/Q708165 Frank Sinatra's That's Life I would like to hear from you... strokelife2013may@gmail.com 1-12 --- Support this podcast: https://anchor.fm/mike-weed5/support

Alen is an unstoppable force; he is Mr Joy Bomb! From Zagreb, Croatia, Alen had every reason to feel like a victim. Born with Arthrogryposis, he cannot walk and has a limited range of motion in his hands. However, Alen never had the point of view that he is a victim: To quote him: “I never judged my body for not being able to walk and do stuff others do.I was always comfortable in looking different.” Since he can't use his hands as others do, he uses his mouth to paint, take photos, type on the laptop and phone with my lips and a lot of other things - basically, his mouth are his hands!” It was with Alen's exceptional drive and determination that saw him accepted to the prestigious Fine Arts Academy in Zagreb, Croatia. From there, his talent and conviction led to his work being shown in multiple cities across the globe. Alen is a creator and a seeker, he is never still and always craves more! “For Alen, nothing is impossible. He invites others to the possibility of creating change in their own lives.” CONNECT WITH ALEN: https://alenkasumovic.com/ https://www.facebook.com/alensgallery/ https://www.instagram.com/alensgallery/

The Living Full Out Show with Nancy Solari invites you to find your own rhythm. Maybe you’ve found a career that makes you excited to get out of bed in the morning, or perhaps you’re still looking for a job that feeds your passions. Through getting in tune with what you really want in life, you can find the best way to be an original.Our first caller, Amanda, needs assistance with communicating with the person she’s dating. Nancy advises Amanda to express her feelings freely with her partner, and to find moments to give him positive affirmations. Tune in to hear how taking risks can be beneficial to healthy romantic relationships. Our inspirational guest, Luca Patuelli, was born with Arthrogryposis, a rare neuro-muscular disorder that made walking very difficult. Since he was 7 months old, he has undergone a total of 16 surgeries to support his body. As a teenager, Luca still found ways to be physically active, from skateboarding on his back to using outrigger skis to support his legs. Unfortunately, at the age of 17, Luca had a surgery that took away his ability to skateboard, but another door opened: the world of breakdancing (BBoying). Since then, he has found a home through the BBoy community, dancing across the nation with his team of all-stars, the Ill-Abilities. Listen in to hear about Luca’s athletic journey and how he continues to find ways to live life his own way.Our final caller, Rae, is struggling with the stress of isolation from COVID-19. She feels that the pandemic prevents her from living life fully. Nancy tells Rae that finding moments of virtual human connection – either through FaceTime or Zoom – could improve her spirits greatly. Tune in to hear how you can connect your mind with your body.Maybe you’re wondering what you can do to find your rhythm again. Perhaps you can return to a passion that you might’ve put aside or bring excitement into your day-to-day through music. By finding your own way to dance big, you can live full out.Call us 800-333-0001

You can find Todd and Outdoor Oklahoma Here!Check out Todd and his episodes of Outdoor Oklahoma on Youtube!You can find out more about Quest Ministries here!You can reach out to Todd here! 

In episode 1 of Season 2, Lauren & Rachael are joined by Emma Smith to share her son Caden's story with the diagnosis of the physical condition Arthrogryposis. Emma discusses their journey from diagnosis, interventions they have taken and what daily life looks like for their family. Emma also speaks on the importance of parents exposing their children to kids of all abilities and shares programs that have inclusive activities. 

Arthrogryposis, also called Arthrogryposis Multiplex Congenita (AMC), describes a variety of conditions involving multiple joint contractures (or stiffness) where the range of motion of a joint is limited. The joints may be unable to fully or partially extend or bend. The condition can affect hands, legs and walking, and sometimes speech. Today’s featured guest is Kevin Arhus. He was born with AMC and is a long-time friend of host Brad Gabrielson. The two attended the North Dakota Crippled Children’s School (later renamed the Anne Carlsen Center) in their younger years.

Arthrogryposis, also called Arthrogryposis Multiplex Congenita (AMC), describes a variety of conditions involving multiple joint contractures (or stiffness) where the range of motion of a joint is limited. The joints may be unable to fully or partially extend or bend. The condition can affect hands, legs and walking, and sometimes speech. Today’s featured guest is Kevin Arhus. He was born with AMC and is a long-time friend of host Brad Gabrielson. The two attended the North Dakota Crippled Children’s School (later renamed the Anne Carlsen Center) in their younger years.

Today we are incredibly happy to welcome Dr. Judith Hall onto the show. Dr. Hall is a 2015 inductee into the Canadian Hall of Fame, and is being recognized for her work in medical genetics, particularly in the field of pediatrics. Specifically, she is credited with her discoveries in the field of child growth and development, and has done incredible work surrounding the genetic etiology behind Dwarfism, Arthrogryposis and Amyoplasia, and Pallister-Hall Syndrome.Thank you Dr. Hall for joining us, and thank you to the CMHF for the opportunity to collaborate on this new series!

Disability rights

The Living Full Out Show with Nancy Solari can provide you with guidance to knowing your potential. Maybe you are feeling unsure about what makes you unique. Perhaps you want to further develop your talents and abilities in order to assist others. Being able to find your potential allows you to create stronger relationships and will give you a greater sense of purpose. Our first caller, Lindsey, wants to know how she can remain positive at work when faced with reduced hours, pay furloughs and her coworkers generally being unhappy. Nancy advises her to take her positively to inspire coworkers to be optimistic. Nancy also encourages Lindsey to remind others to live in the moment and that they are doing their job well and are making an impact. Tune in to hear how you can support others during uncertain times.Our inspirational guest, Marna Michele, was born with a rare condition called Arthrogryposis that affects the muscles and joints. She is unable to walk and uses a wheelchair. Despite the challenges Marna has faced, she is always able to remain optimistic and find new ways to look at difficult situations. When she was called “crippled” as a kid, she was able to take the word and claim it, rather than let it offend her. Marna was also able to find her potential in life through her passion in music and using her voice as an advocate for disbaled people. Listen in to hear Marna’s story and how she uses her strength and voice to achieve her dreams.Our final caller, Daniel, wants advice on the best ways to deal with stress when communicating with others. Nancy advises him to try different styles of communication. People have different ways of retaining information. Maybe try writing a letter or an email. Nancy reminds Daniel that it is important to have balance when giving constructive feedback. Compliment their strengths as well as where to improve. Tune in for tips on how to communicate effectively. Perhaps you feel uncertain with your purpose in life. Maybe you want to change career paths to something you are more passionate about. Knowing your potential can help improve relationships with family, friends, or in the workplace. When you know what your strengths are you are able to face adversities, handle challenges with grace, and live full out.

The Living Full Out Show with Nancy Solari can provide you with guidance to knowing your potential. Maybe you are feeling unsure about what makes you unique. Perhaps you want to further develop your talents and abilities in order to assist others. Being able to find your potential allows you to create stronger relationships and will give you a greater sense of purpose. Our first caller, Lindsey, wants to know how she can remain positive at work when faced with reduced hours, pay furloughs and her coworkers generally being unhappy. Nancy advises her to take her positively to inspire coworkers to be optimistic. Nancy also encourages Lindsey to remind others to live in the moment and that they are doing their job well and are making an impact. Tune in to hear how you can support others during uncertain times.Our inspirational guest, Marna Michele, was born with a rare condition called Arthrogryposis that affects the muscles and joints. She is unable to walk and uses a wheelchair. Despite the challenges Marna has faced, she is always able to remain optimistic and find new ways to look at difficult situations. When she was called “crippled” as a kid, she was able to take the word and claim it, rather than let it offend her. Marna was also able to find her potential in life through her passion in music and using her voice as an advocate for disbaled people. Listen in to hear Marna’s story and how she uses her strength and voice to achieve her dreams.Our final caller, Daniel, wants advice on the best ways to deal with stress when communicating with others. Nancy advises him to try different styles of communication. People have different ways of retaining information. Maybe try writing a letter or an email. Nancy reminds Daniel that it is important to have balance when giving constructive feedback. Compliment their strengths as well as where to improve. Tune in for tips on how to communicate effectively. Perhaps you feel uncertain with your purpose in life. Maybe you want to change career paths to something you are more passionate about. Knowing your potential can help improve relationships with family, friends, or in the workplace. When you know what your strengths are you are able to face adversities, handle challenges with grace, and live full out.

Get up close and personal with Jennifer (Kumi) Kumiyama, as she shares her inspirational journey from being an Actor living with Arthrogryposis, becoming Ms. Wheelchair California 2010 and Ms. Wheelchair America 2011, First Runner Up, to her humble beginnings performing in community theatre as the greatest "Good Ship Lollipop" to gracing the stage at Disney California Adventure Theme Park's  "Aladdin: A Musical Spectacular." Join us as we get a lesson on being your own champion in life and what it takes to get there.

Richard Ellis  is a retired school teacher (23+years), Motivational Speaker, College Headhunter, and Entrepreneur. He specifically helps disabled individuals especially if they have the same disability he has (Arthrogryposis).   Today we talk about how he has helped young people embrace difference, love and accept themselves. We also dig into embracing change and leaning into discomfort. This is a powerful conversation for anyone who has a young person in their life!   Connect with Richard:  Website: https://richardellisspeaks.com/ Facebook Business page: https://www.facebook.com/Richard-Ellis-Motivational-Speaker-100192064795171/ Instagram: https://www.instagram.com/richardellisspeaks YouTube Channel: https://www.youtube.com/watch?v=pGfplxEzeAc QUESTIONS ASKED: What themes have you seen in young people after your years of experience as a teacher? How do you help young people embrace differences? How do we help kids find value and worth in themselves? What can we learn from young people?   FROM TODAY’s EPISODE: Adjusting to change and seeing opportunity  Learning to accept yourself before you can help others The importance of helping kids feel HEARD Setting goals and challenging yourself, but also not losing yourself in the process RESOURCES: Text us! +1 (501) 214-4307 Join our Private Facebook Group: https://bit.ly/2lPut5A Youtube Channel: https://www.youtube.com/heatherparady  

This man was born with two rare medical conditions that have made his legs look like a pair of SCISSORS. 33-year-old, Marty Sheedy lives with Arthrogryposis – the joint contracture in two or more areas of the body – and Prune Belly Syndrome – the lack of abdominal muscles. Marty weighs only 60lbs and stands at 4ft 10”, but his lack of weight and height are not the strangest symptoms of his condition. In order to be able to move around, Marty has to use his legs in a scissor-like fashion – something most people have never seen before. Doctors gave Marty just two years to live, but he has since defied all the odds and now loves people referring to him as ‘the scissor man’ and ‘scissor legs’.

Arthrogryposis (Arthrogryposis Multiplex Congenita) is a condition where a child is born with multiple joint contractures. A contracture occurs when the muscles, tendons and ligaments in the body become tight and prevent normal movement. In some cases children have only a few joints that are affected. They may have near normal range of motion. In most children with arthrogryposis, their hands, wrists, elbows, shoulders, hips, feet and knees are affected. In severe cases, nearly all body joints may be involved, including the jaw and back. Often children will also have muscle weakness which further limits their movement.

TRACK 1:Introductions; Dr. Wohlfeld takes about his congenital handicap, called ArthroGryposis; The role of emotions on our health; We are living in a stress-world, which is both contagious and addictive; Good bacteria are affected by stress; Mercury exposure, and dietary allergies. Start Track 2: 22:08TRACK 2:Jacobus starts explaining digestive tract; How important are fats and fibers; Eating with(in) the seasons (+examples). Start Track 3: 45:01 TRACK 3:Call about microwaves, canola oil, and how much fermented foods daily is good for us; Is there a correct number of meals we should eat daily, and a right way? Start Track 4: 1:04:48 TRACK 4:Michael’s work as National Educator for the dietary supplement company Pure Planet; Most food companies (about 30) are owned by the cigarette company Phillip Morris; It’s what you know, NOT what you believe; Analogy of a fireplace. Start Track 5: 1:27:10 TRACK 5:Chatting about Chet Huntley and David Brinkley; Call about not having a gallbladder anymore, and the effects of eggs and pasteurized dairy; Talk about Current diets such as Paleo and Ketogenic, and their possible effects on the kidneys. Start Track 6: 1:49:26TRACK 6:Dr. Michael Wohlfeld’s friend with stage-4 cancer, and the discussion with her doctor about using Chemo or Radiation; Functional Medicine doctors; Talking about vaccines, sipping hot water throughout the day, snacking, and eating organic.

This week we were extremely fortunate to be joined by the amazing Colette Allen. Colette had three healthy pregnancies but when she became pregnant with her fourth baby they were told they should abort as she was likely to miscarry, or the baby wouldn't live past two months as it had a condition called Arthrogryposis. That baby is starting senior school this year and has achieved things they never thought possible. Colette's story is one of amazing accomplishments and the strengths of a loving family and their community. We hope you enjoyed it as much as we did! We'd love to hear your thoughts and if you have a story you'd like to share hit us up. Stay safe xxxMum and Mummer InstagramMum and Mummer FacebookMum and Mummer TwitterMum and Mummer Email See acast.com/privacy for privacy and opt-out information.

Harold van Bosse, MD, Attending at Shriners Hospital for Children, Philadelphia, and Associate Professor of Orthopaedic Surgery at both Temple and Jefferson Medical Schools discusses the principles of management of arthrogryposis. He explains the basics about arthrogryposis, the treatment principles for success, the main challenges facing surgeons who manage these patients, and potential future developments […]

Andy comes to this episode discussing what it has been like raising a daughter with a diagnosis of Arthrogryposis. Never heard of it? Don't worry neither had he. Listen up to find out.Intro and Outro music Side Entrance by Defy the MallContact us at chuck@dadsdoingtheirbest.com or andy@dadsdoingtheirbest.com

What happens when a CMT patient tests out 10 different exercises in 10 weeks? Join Julie Stone as she fills us in on her personal journey and lessons learned on self acceptance and adaptive exercise!Looking for great tips, hacks and blogposts? Visit: Trend-Able.comFind more info and CMT patient resources on: HNF-cure.org

Meet Jessica Ruiz, a 26 year-old Philadelphia-based makeup artist who was born with Arthrogryposis, a congenital defect that prevents full movement in her arms and hands, which means she has to use her mouth to hold her makeup tools.It's clear from looking at her Instagrams—both of the works she does on other people and on herself—that she's talented and not at all hindered by her lack of arm and hand movement. The only difference between her and other NY Fashion Week makeup artist is in the way that she applies makeup.Follow Jessica on IG @dreamy_eyes_artistryLooking for great tips, hacks and blogposts? Visit: Trend-Able.comFind more info and CMT patient resources on: HNF-cure.org

In this episode we review Parker Heritage Collection 11 year. I also talk with Chris Hail about his life experiences growing up disabled. Chris was born with a medical condition that prevents his joints from bending. He has had many seasons in his life that he shares with us, but despite all the adversity he has faced he still maintains a positive attitude that will be an inspiration to everyone who listens to this podcast!   Please subscribe and leave a review!

In this episode, we review the high-yield topic of Arthrogryposis from the Pediatrics section. --- Send in a voice message: https://anchor.fm/orthobullets/message

This week we were able to get our friend Marty Sheedy over to the show to share his story and the message for the Project Scissor Gait Foundation. If you would like to learn more about Arthrogryposis and/or Prune Belly Syndrome, please visit their website and Facebook pages.  We also learned about the Shriners organization and what they do to improve the quality of life for so many people. We are very happy to be doing our little part to raise awareness and money to help those who need it the most.  This weeks Beer of the Week was "Road Crew IPA" from the good folks at Arcadia Ales Brewing. Thumbs up for this Michigan made Craft Beer. Thanks again to all of you the listeners - we genuinely appreciate you following along with the show. Cheers to all of you! You can listen to us on any of the following: Itunes  -  Google Play Music  -  PlayerFM  -  iHeartRadio Stitcher  -  Podknife  -  Tunein  -  PodFever  -  Podchaser Help support us on our Patreon for as little as $1. Social Media: Twitter  -  Facebook  -  Instagram *CHC Michigan Beer Mic Logo created by Jason Lloyd* *CHC House Logo created by Steven Biondo* *Show Music provided by Chris Lloyd* Don't be shy, you can contact us here. #CHC #Podcast #CraftBeer #PodcastPlug #ShopTalk

Congenital heart defects, the #1 birth defect, affect at least 1 in 100 babies born throughout the world yet when asked what causes heart defects, most doctors have had to admit they don’t really know. Many doctors tell parents that their children’s heart defects are “flukes of nature.” Occasionally heart defects are linked to particular diseases mothers were exposed to while pregnant, drugs they took or common to a family, but most of the time, doctors have had no clue what has caused complex congenital heart defects . . . until now. Finally, thanks to the advent of new tests and dissatisfied with vague terms like “flukes of nature” doctors are delving deeper into the actual causes of our world’s #1 birth defect – heart defects. Listen to Episode #5 of Heart to Heart with Anna to find out what kinds of genes can cause heart defects, who should seek genetic counseling and how genetic counseling can save a person’s life in this show: Genetics in the Congenital Heart Defect Community.Support the show (https://www.patreon.com/HearttoHeart)

Arthrogryposis is a congenital condition of joint contracture. A joint is stuck in a position due to thin, weak or missing muscles surrounding the joint.Dr. Sue Mukhurjee and Dr. Haluk Altiok explain Arthrogryphosis and treatment options available at Shriners Hospitals for Children-Chicago.

What do you get when a baby is born with clubbed feet, a dislocated hip, triceps but no biceps, hands curled in at the wrists and can only bend one knee? This week we sit down with Michelle to talk about growing up in small town Nova Scotia with Arthrogryposis, a rare congenital condition causing hooked joints and stiffened muscles. We talk accessibility, how grandmothers make hanky panky too, and....a hijacked plane? Whoa. Buckle up.

What do you get when a baby is born with clubbed feet, a dislocated hip, triceps but no biceps, hands curled in at the wrists and can only bend one knee? This week we sit down with Michelle to talk about growing up in small town Nova Scotia with Arthrogryposis, a rare congenital condition causing hooked joints and stiffened muscles. We talk accessibility, how grandmothers make hanky panky too, and....a hijacked plane? Whoa. Buckle up.

What do you get when a baby is born with clubbed feet, a dislocated hip, triceps but no biceps,  hands curled in at the wrists and can only bend one knee? This week we sit down with Michelle to talk about growing up in small town Nova Scotia with Arthrogryposis, a rare congenital condition causing hooked joints and stiffened muscles. We talk accessibility, how grandmothers make hanky panky too, and....a hijacked plane? Whoa. Buckle up.

Meet Mikey Begum. Mike was born with Arthrogryposis and Multiple Scoliosis, and despite not having use of his arms and legs, become a world class video gamer. @brolylegs introduces us to the world of gaming and shares how he turned his challenges into triumph.

After two miscarriages LaTanya and her husband Greg had their son, Tre. After Tre's birth he was diagnosed with arthrogryposis, a condition which causes multiple joint contractures throughout the body. At age seven, Tre was also diagnosed with autism. Through her journey with Tre, LaTanya tells us about how she become her son's advocate and learned to maximise life and experiences for Tre. 

Tara Frey talks about her medical condition, arthrogryposis, and adjusting to her new prosthetic after having her leg amputated.

Fifteen months after finding Holden on Holt International's website, Beth Anne and Chris finally got to bring him home. Beth Anne thought that by going into this adoption with eyes wide open, well aware of Holden's disability, that she would bypass the difficult grieving process that can accompany this journey. But she found that she was in for a bit of a surprise. Tune in to hear what challenges and blessings have come with raising her sweet little boy with arthrogryposis.

When Beth Anne spent a summer abroad at 20 years old, she wasn't sure she ever wanted kids. But after falling in love with the children in an orphanage in India where she worked that summer, she knew she wanted to be a mom. And not only that, she felt strongly that she wanted to adopt a child from another country who had special needs. International adoption can be a long, gut-wrenching process. In today's episode, Beth Anne shares the process she and her husband Chris went through to find their sweet son Holden. Tune in for all the great details.

If you need a reminder of how important it is to live more fully – or if are like me, need a kick in the pants to get off our collective lazy such-and-such – then this is the episode for you. Tony Ryals was born with Arthrogryposis, which causes joints not to function properly. In the case of Tony, the joints in his arms, legs, hands, and feet don’t work. His torso and head are normal, his arms and legs are not. He is now a painter with a gallery of his own in Jacksonville, Florida. He paints with his mouth. And his life is a masterpiece. Listen to Tony’s story.