Podcasts about pgad

The condition we're going to talk about today is pretty rare. It affects around 1% of women, but it can really disrupt the lives of those who suffer from it. Persistent genital arousal disorder, or PGAD for short, was officially identified by the medical community back in 2001, when Sandra Leiblum and Sharon Nathan published an article about it in The Journal of Sex and Marital Therapy. At the time, they called it persistent genital arousal syndrome, and identified five specific criteria for diagnosis.  These were then expanded by the International Society for the Study of Women's Sexual Health in 2021. According to that organisation, PGAD refers to “persistent or recurrent, unwanted or intrusive, distressing sensations of genital arousal”. It is “most commonly experienced in the clitoris but also in other genito-pelvic regions” and “may include other types of genito-pelvic dysesthesia” like buzzing, tingling, burning, twitching, itch or pain.” The minimum duration for a diagnosis is 3 months. Are you saying it's like having a constant orgasm? So where does it actually come from then? In under 3 minutes, we answer your questions! To listen to the last episodes, you can click here: Why are we afraid of the dark? Why do people consider the number seven lucky? Why do we get moles? A podcast written and realised by Joseph Chance. First Broadcast: 5/4/2024 Learn more about your ad choices. Visit megaphone.fm/adchoices

Persistent genital arousal disorder (PGAD) is one of the most distressing sexual dysfunctions. PGAD involves having near-constant feelings of unwanted arousal that make it difficult to concentrate, work, and sleep. In today's show, we're going to dive into what we know about PGAD and speak with a physician who frequently treats patients with this condition. I am joined once again by Dr. Sameena Rahman, a board-certified OB/GYN, sex-med gynecologist, and menopause specialist with an academic affiliation at Northwestern University’s Feinberg School of Medicine. She is the founder of the Center for Gynecology and Cosmetics, and host of the podcast Gyno Girl Presents: Sex, Drugs & Hormones. Some of the specific topics we explore include: What is persistent gentian arousal disorder? How is it clinically defined? What is it like to live with PGAD? How many people have PGAD, and who’s most likely to be affected? What’s the connection between obsessive-compulsive disorder and PGAD? What are the most effective treatments for this disorder? You can follow Sameena on Instagram to stay updated on her work. Got a sex question? Send me a podcast voicemail to have it answered on a future episode at speakpipe.com/sexandpsychology. *** Thank you to our sponsors!  While most dating apps are all about pursuing someone else, Feeld has carved out a space for you to find yourself. Explore your desires and go on a journey of self-discovery today with Feeld. Download Feeld on the App Store or Google Play. The Kinsey Institute at Indiana University has been a trusted source for scientific knowledge and research on critical issues in sexuality, gender, and reproduction for over 75 years. Learn about more research and upcoming events at kinseyinstitute.org or look for them on social media @kinseyinstitute. *** Want to learn more about Sex and Psychology? Click here for previous articles or follow the blog on Facebook, Twitter, or Bluesky to receive updates. You can also follow Dr. Lehmiller on YouTube and Instagram. Listen and stream all episodes on Apple, Spotify, Google, or Amazon. Subscribe to automatically receive new episodes and please rate and review the podcast!

The condition we're going to talk about today is pretty rare. It affects around 1% of women, but it can really disrupt the lives of those who suffer from it. Persistent genital arousal disorder, or PGAD for short, was officially identified by the medical community back in 2001, when Sandra Leiblum and Sharon Nathan published an article about it in The Journal of Sex and Marital Therapy. At the time, they called it persistent genital arousal syndrome, and identified five specific criteria for diagnosis.  These were then expanded by the International Society for the Study of Women's Sexual Health in 2021. According to that organisation, PGAD refers to “persistent or recurrent, unwanted or intrusive, distressing sensations of genital arousal”. It is “most commonly experienced in the clitoris but also in other genito-pelvic regions” and “may include other types of genito-pelvic dysesthesia” like buzzing, tingling, burning, twitching, itch or pain.” The minimum duration for a diagnosis is 3 months. Are you saying it's like having a constant orgasm? So where does it actually come from then? In under 3 minutes, we answer your questions! To listen to the last episodes, you can click here: Why are we afraid of the dark? Why do people consider the number seven lucky? Why do we get moles? A podcast written and realised by Joseph Chance. First Broadcast: 5/4/2024 Learn more about your ad choices. Visit megaphone.fm/adchoices

Did you know that intrusive thoughts and anxiety could amplify physical pain and discomfort? Let me share how obsessive-compulsive disorder intertwines with one of the most distressing sexual health conditions.Persistent genital arousal disorder (PGAD) is one of the most misunderstood and challenging conditions I treat. But what happens when the brain is part of the problem? In this episode, I dive into the intriguing and often overlooked connection between obsessive-compulsive disorder (OCD) and PGAD.From brain hiccups to catastrophic thoughts, I unpack how mental health can fuel this condition and why understanding the mind-body relationship is key to effective treatment. I'll share my experiences treating patients and offer practical insights on how addressing mental health, pelvic floor therapy, and tailored interventions can provide relief. Whether you're a patient or a clinician, this episode sheds light on why treating “region five” is just as critical as addressing physical symptoms.Highlights:My five-region approach to treating PGAD.How OCD symptoms worsen PGAD and affect intimacy.Why exposure response therapy is vital for tackling intrusive thoughts.The role of pelvic floor therapy and medication in managing symptoms.Resources I recommend for finding help and support.If you found this episode helpful, don't forget to subscribe, leave a review, and share it with someone who might benefit. Follow me on YouTube at Gyno Girl TV and Instagram @GynoGirl for more expert content!Get in Touch with Dr. Rahman:WebsiteInstagram

Persistent Genital Arousal Disorder (PGAD) Explained In this episode, we tackle a rarely discussed but deeply impactful topic: Persistent Genital Arousal Disorder (PGAD). This condition involves persistent genital arousal that occurs without sexual desire or stimulation, often leading to physical discomfort, emotional distress, and challenges in relationships. Hosted by [Your Name], a trusted sex therapist and sexual health expert, this episode sheds light on: What PGAD is and how it affects those who experience it. The potential causes, including nerve compression, medications, and hormonal changes. The emotional and relational toll PGAD can take. Effective treatment options, from pelvic floor therapy to cognitive behavioral techniques. The importance of breaking stigma and advocating for compassionate, informed care.

Did you know that spinal health could hold the key to resolving pelvic pain and certain types of sexual dysfunction? Join me as we delve into groundbreaking insights with Dr. Choll Kim, a leading expert bridging the gap between spine health and sexual wellness.Dr. Choll Kim, a pioneering spine surgeon whose work is challenging the traditional boundaries of pain management and sexual medicine. Dr. Kim shares his journey from orthopedic surgery to collaborating with specialists in sexual health, uncovering the unexpected links between spinal conditions and pelvic pain disorders like PGAD (Persistent Genital Arousal Disorder). Together, we discuss how this understanding could reshape treatment options for those who've been told their conditions are “all in their heads.” Dr. Kim explains how seemingly routine spinal issues, such as annular tears or Tarlov cysts, may trigger chronic pain that extends beyond the back, affecting intimate areas in ways that are often overlooked by conventional medicine.He also shares the innovative diagnostic techniques he uses to distinguish spinal-related sexual dysfunction from other causes, which has opened doors to effective, minimally invasive treatments.In addition, we discuss the challenges of bringing these ideas to the broader medical community. Dr. Kim has faced resistance from peers who view the spine as an unlikely source of sexual pain, yet his patient successes speak volumes. This episode is packed with insights for both patients and practitioners who want to explore a more holistic approach to pain management and sexual health.Dr. Kim's dedication to helping patients find relief from life-disrupting symptoms is nothing short of inspiring. By listening, you'll gain a new perspective on the interconnectedness of the body and why keeping an open mind is crucial in healthcare.Episode Highlights:The surprising role of the spine in conditions like PGAD and pelvic pain disorders.How Dr. Kim uses targeted spinal injections to identify the source of sexual dysfunction.The anatomy of annular tears and why they're a common cause of persistent pain.Challenges and breakthroughs in advocating for spinal evaluations in sexual health cases.Practical advice for both patients and clinicians on considering spinal health in treatment plans.Dr. Kim's Bio:Dr. Choll Kim, a Harvard cum laude graduate, completed advanced training in complex spine surgery at the Mayo Clinic. Dr. Kim is a pioneer in minimally invasive spine surgery techniques including Laser Endoscopic Spine Surgery (LESS) which has transformed treatment for herniated discs, radiculopathy,and sciatica.In addition to spine surgery, Dr. Kim is also recognized for his knowledge in sexual dysfunction related to spinal conditions, such as Tarlov cysts. His integrated approach ensures comprehensive care for patients facing spinal and sexual concerns. Dr. Kim is a renowned global educator, training specialists around the world in advanced, computer-assisted minimally invasive techniques such as LESS. As the founder and past president of SMISS and MIS-COE, he has played a pivotal role in the advancement of spine surgery. With over 200 publications and active involvement in organizations such as ISASS, NASS, AAOS, and KASS, Dr. Kim has made significant contributions to the field, shaping the future of minimally invasive spine surgery.Beyond the operating room, he enjoys kickboxing, golfing with his mom, and family vacations.Don't miss future episodes! Subscribe now to stay informed on the latest in health insights and patient advocacy. If you found this episode valuable, please take a moment to share, rate, and review—it helps us reach more listeners and spread awareness.Get in Touch with Dr. Kim:

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In this special episode recorded live from the Menopause Society meeting in Chicago, Dr. Sameena Rahman and co-host Dr. Heather Quaile interview two pioneers in female sexual medicine, Dr. Irwin Goldstein and his wife Sue Goldstein. The Goldsteins, known as the “real Masters of Sex,” share their incredible journey in advancing women's sexual health, from founding the International Society for the Study of Women's Sexual Health (ISSWSH) to groundbreaking treatments for female sexual dysfunction. Dr. Irwin Goldstein discusses the evolution of orgasm disorder treatment, the importance of the spine in genital pelvic pain, and cutting-edge therapies like shockwave therapy. Together, the Goldsteins have transformed sexual medicine, and this episode offers a glimpse into their work and the future of sexual health treatment.Highlights:The origin story of ISWISH and the role of Viagra in female sexual medicine.New treatment strategies for orgasm disorders, including an upcoming paper.Insights into the treatment of persistent genital arousal disorder (PGAD) and other pelvic pain conditions.The use of shockwave therapy in sexual medicine and its applications beyond female sexual health.The importance of multidisciplinary approaches to sexual health and the Goldsteins' commitment to education and research.Don't miss an episode! Subscribe to Gyno Girl Presents: Sex, Drugs, and Hormones on Apple Podcasts, Spotify, and YouTube. Follow us for updates and behind-the-scenes content on Instagram @GynoGirl. Share this episode with friends or colleagues who need to know more about sexual health and be sure to leave us a 5-star rating! Your support helps us bring you more impactful conversationsConnect with the GoldsteinsWebsiteBooksConnect with HeatherWebsiteInstagramGet in Touch with Dr. Rahman:WebsiteInstagramYoutube

The condition we're going to talk about today is pretty rare. It affects around 1% of women, but it can really disrupt the lives of those who suffer from it. Persistent genital arousal disorder, or PGAD for short, was officially identified by the medical community back in 2001, when Sandra Leiblum and Sharon Nathan published an article about it in The Journal of Sex and Marital Therapy. At the time, they called it persistent genital arousal syndrome, and identified five specific criteria for diagnosis.  These were then expanded by the International Society for the Study of Women's Sexual Health in 2021. According to that organisation, PGAD refers to “persistent or recurrent, unwanted or intrusive, distressing sensations of genital arousal”. It is “most commonly experienced in the clitoris but also in other genito-pelvic regions” and “may include other types of genito-pelvic dysesthesia” like buzzing, tingling, burning, twitching, itch or pain.” The minimum duration for a diagnosis is 3 months. Are you saying it's like having a constant orgasm? So where does it actually come from then? In under 3 minutes, we answer your questions! To listen to the last episodes, you can click here: Why are we afraid of the dark? Why do people consider the number seven lucky? Why do we get moles? A podcast written and realised by Joseph Chance. Learn more about your ad choices. Visit megaphone.fm/adchoices

Imagine that your genitals were in a constant, uncontrollable state of arousal. You might be thinking that doesn't sound too bad, but you'd be mistaken. Persistent genital arousal disorder (PGAD) is a highly distressing condition. People who have it live with unwanted arousal that doesn’t bring pleasure, and there's almost no relief from it. This makes it difficult, if not impossible, to concentrate, work, and sleep. In this episode, we're going to dive into what we know about PGAD, including how common it is, what causes it, and how it's treated. I am joined once again by Sue W. Goldstein, an AASECT certified Sexuality Educator and Clinical Research Manager at San Diego Sexual Medicine. Ms. Goldstein co-authored the book When Sex Isn't Good to provide education and empowerment to women with sexual dysfunction. Some of the questions we explore in this episode include: What does PGAD look like in everyday life? What kind of effects does this have on people? How long have we known about PGAD, and how common is it? What causes uncontrollable genital arousal? Are there any treatments that work? To learn more about women’s sexual health issues, check out Sue’s book here and visit Vella Biosciences. Got a sex question? Send me a podcast voicemail to have it answered on a future episode at speakpipe.com/sexandpsychology. *** Thank you to our sponsors!  The Kinsey Institute at Indiana University has been a trusted source for scientific knowledge and research on critical issues in sexuality, gender, and reproduction for over 75 years. Learn about more research and upcoming events at kinseyinstitute.org or look for them on social media @kinseyinstitute. *** Want to learn more about Sex and Psychology? Click here for previous articles or follow the blog on Facebook, Twitter, or Reddit to receive updates. You can also follow Dr. Lehmiller on YouTube and Instagram. Listen and stream all episodes on Apple, Spotify, Google, or Amazon. Subscribe to automatically receive new episodes and please rate and review the podcast! Credits: Precision Podcasting (Podcast editing) and Shutterstock/Florian (Music). Image created with Canva; photos used with permission of guest.

On this episode, April Patterson, a physical therapist with over 20 years of experience specializing in sexual health, shares her journey into pelvic health. Starting with orthopedic and sports therapy, April's curiosity led her to explore the pelvic floor component in her patients. She discusses the importance of addressing taboo topics like sexual health in physical therapy and how her own symptoms propelled her to seek care and expertise in this field.Timestamps(00:33) April's Journey: April Patterson shares her personal journey into pelvic health, driven by her own struggles and experiences with pelvic pain and sexual health issues.(09:00) Understanding PGAD: April explains the symptoms and distress associated with Persistent Genital Arousal Disorder (PGAD), highlighting the importance of proper diagnosis and treatment.(23:35) Annual Pelvic Health Checks: The importance of yearly pelvic health checks is emphasized, encouraging individuals to be proactive in monitoring their pelvic health and seeking professional guidance.(33:38) Impact of Menopause: The discussion delves into the changes in pelvic health during menopause, including the effects of hormonal shifts on the vulva and clitoris.(49:42) Topical Treatments: The benefits and considerations of using topical treatments like DHEA and HA for pelvic health are explored, emphasizing the importance of understanding the role of hormones in maintaining pelvic tissue health.Host BioThis podcast is hosted by Sheree Dibiase, PT ICLM. She is a nationally recognized women's health physical therapist who owns seven private clinics — one of the biggest networks in the US. She has spent 30+ years practicing in the oncology, pelvic floor, and prenatal postpartum healthcare spaces. She was also a professor for seven years a Loma Linda University where she taught kinesiology. Brought to you by...https://lakecitypt.com/ - Women's health physical therapy. https://pelvicfloorpro.com/ - Pelvic floor physical therapy from home. KeywordsFemtech, Women's Health, Pelvic Floor, Breast Cancer, Prenatal & postpartum

In this episode we discuss with Dr. Kelli Wilson, the management of Persistent Genital Arousal Disorder/Genito-Pelvic Dysesthesia (PGAD/GPD). Dr. Kelli Wilson is the owner of an education company that trains physical and occupational therapists how to appropriately assess and treat complex pelvic pain conditions in both the male and female population, as well as other online course options. Listen to this episode where we share with you some of the physical causes of PGAD. You can find Dr. Kelli through her website, facebook or Instagram. --- Send in a voice message: https://podcasters.spotify.com/pod/show/beyondthepelvis/message

Today, we bring to light a deeply personal journey through pain, healing, and self-discovery. We'll explore the intricate relationship between spinal health and pelvic wellbeing, delving into how issues like persistent genital arousal disorder, or PGAD, are not merely sexual but deeply interconnected with our spinal anatomy.With me is April Patterson, a courageous pelvic floor physical therapist who shares her battle with PGAD. Prepare to be taken on a story that stretches from the trauma of pelvic symptoms to the victories of surgery and physical therapy. As April recalls her years of suffering, reduced work hours, and limited joy, we'll uncover the profound impact of a mysterious injury that intruded on her everyday life, even affecting simple tasks like driving, working, or enjoying meaningful relationships.We'll tackle the complexities of diagnosis and treatment, discussing why it's crucial to seek professionals skilled in both orthopedic and pelvic health. April's story isn't just about struggle; it's a beacon of hope, highlighting the importance of prehabilitation, the value of informed self-advocacy, and the power of trauma-informed therapy.By the end of this episode, you'll understand why the pathway to healing isn't one-size-fits-all and how embracing a holistic approach can pave the way for reclaiming one's life from the grips of PGAD.Highlights:April shares her journey with PGAD, from the onset of symptoms after an orthopedic injury to seeking treatment and undergoing spinal surgery, highlighting the immediate positive results on her neural symptoms.The importance of a tailored physical therapy approach is emphasized, focusing on the need for therapists skilled in both orthopedic and spine rehab, especially given the intertwining nature of the spine, pelvic health, and sexual function.The psychological aspects of living with PGAD are explored, touching upon the trauma and emotional distress caused by the condition and the need for a trauma-informed therapy approach, including the importance of prehabilitation and rehabilitation.Get in touch with April:WebsiteGet in Touch with Dr. Rahman:PracticeGynoGirl WebsiteInstagramYoutube

Have you ever encountered the term PGAD? Despite its relative obscurity, it gained some mainstream attention in the early 2000s, even prompting a Saturday Night Live skit that portrayed it as a condition one might desire. Which is far from something that someone would actually want. Today I give you a comprehensive overview what PGAD is discussing its history, prevalence, symptoms, and the significant impact it has on a patient's life. I emphasize the distressing nature of PGAD and how it can often lead to severe impairment of daily living and even suicidal ideation in some cases. This candid discussion addresses the need for awareness and understanding of PGAD and its far-reaching effects.I also delve into the multi-faceted approach to treating PGAD. I outline the different regions of the body that are considered in the diagnosis and treatment of PGAD, including the end organ (genital pelvic region), the pelvic floor, the spinal cord, and the brain. I highlight the importance of a multidisciplinary treatment approach, involving various specialists, therapists, and clinicians, to tailor treatment plans for individual patients.Highlights:- PGAD is a condition associated with persistent and intrusive genital arousal sensations, without corresponding sexual desire or thoughts.- Diagnosis and treatment of PGAD often involve a comprehensive, biopsychosocial approach, with multiple specialists collaborating to address the condition from various angles.- Education and advocacy are crucial in raising awareness and providing support for individuals experiencing PGAD.Resources:ISSWSHGet in Touch with Dr. Rahman:PracticeGynoGirl WebsiteInstagramYoutube

On this, the 100th episode of The Muslim Sex Podcast, Dr. Sadaf Lodhi is joined by Dr. Sameena Rahman to discuss everything you need to know about Persistent Genital Arousal Disorder (PGAD). PGAD is condition that often goes under-the-radar when it comes to media coverage or even on social media. Dr. Rahman shares her expertise to put a spotlight on what PGAD is, how it can be treated, and why it is no laughing matter. Trigger Warning: This episode contains discussions about suicideDisclaimer: Anything discussed on the show should not be taken as official medical advice. If you have any concerns about your health, please speak to your medical provider. If you have any questions about your religion, please ask your friendly neighborhood religious leader. It's the Muslim Sex Podcast because I just happen to be a Muslim woman who talks about sex.To learn more about Dr. Sadaf's practice and to become a patient visit DrSadaf.comLike and subscribe to our YouTube channel where you can watch all episodes of the podcast!Feel free to leave a review on Apple Podcasts and share the show!Follow us on Social Media...Instagram: DrSadafobgynTikTok: DrSadafobgyn

Persistent genital arousal disorder, or PGAD, is characterized by intense genital arousal characterized by increased blood flow and increased tension in the genitals without the presence of desire. This disorder impacts around 1% of the population and can have serious mental and physical implications. The PSA girls explore the causes of this disorder and the complex nature of the treatment options available to them.

Many of us would think that feelings of arousal would always be welcome! And maybe we would even want more of it. But for our guests on this episode, persistent genital arousal disorder has made life very difficult. One woman copes with more than 100 orgasms a day, another searches for peace as her body is stimulated by emotions of all kinds, and another has undergone surgeries and treatments to find relief. We also hear from one of the world experts on this rare condition on what we know about it, and what can be done to help. GUESTS:  Dr. Robert Echenberg: Founder of the Echenberg Institute for Pelvic and Sexual Pain in Bethlehem, PA Kathrine Snyder: Author of Shimmering Around the Edges: A Memoir of OCD, Reality, and Finding God in Uncertainty Christine Hazel Decker: Author of Stripped: When Dignity Disappears: A Life Bared by PGAD and Transgenderism Lior Ofir: Blogs about having PGAD at her blog, My Vagina, My Life Support the show: https://www.wnpr.org/donateSee omnystudio.com/listener for privacy information.

Persistent genital arousal disorder (PGAD), now called Genito-Pelvic Dysesthesia, was first described by Leiblum and Nathan in 2001 in a five-patient case series. This is now a well-recognized pelvic floor/genital abnormality with a consensus statement being released in 2019 by the International Society for the Study of Women's Sexual Health. Are you familiar with this condition? It is a source of severe emotional and mental hardship for those affected. In this episode, we will summarize the data on this strange but very REAL condition that is NOT related to sexual desire or sexual arousal.

This episode discusses one of the worst female pain conditions, PGAD, or persistent genital arousal disorder. One must be aware of this uncommon but debilitating condition as it is usually misdiagnosed. Most clinicians are unaware of this disorder. Dr. Sally MacPhedron discusses the consensus paper on the subject. The consensus paper is included in the show notes.Show Notes: https://drive.google.com/drive/folders/1Fm6_GsXZB01ADXritwYJB11s8KN1ukSIContact information: 216-778-4444Please follow our Facebook page for all podcast updates and relevant information.https://www.facebook.com/profile.php?id=100091994367829Please follow our Instagram page for all podcast updates and relevant information.https://www.instagram.com/sexmedpod/

Murugi & Esvrn kick it on this episode on a range of topics, Paintings and how to express yourself through artwork(4:00). They also pay their last respects to Actor Maina Olwenya (16:56). Talk on PGAD disorder causes and treatment among women (20:50). New sport season and fantasy football is upon us (26:50). The duo also talk about the authenticity of African sounds and the entire music industry's performance(31:32) and More! --- Send in a voice message: https://anchor.fm/thebakkbenchazpod/message

We learn about Pancreatitis & PGAD On this episode: News (00:00:00) Entertainment Report (00:10:57) General Store (00:49:08) Bizarre Files (01:19:46)  Pancreatitis (01:28:35) Robert Irvine Checks In & PGAD (01:56:08) Bizarre Files (02:26:03) Hollywood Trash & Music News (02:35:07) Wrap Up (02:46:50) 

Sara's donation link: https://gofund.me/692b69e8 Sara is an unfortunate young woman who suffers from Persistent Genital Arousal Disorder (known colloquially as Multiple Orgasm Disorder). This is a very much secretive and misunderstood severe medical disease. Many people do not understand and some even think that it is a pleasurable condition. Sara has very bravely spoken out about her experiences and how her illness has severely affected her daily functioning. Dr Das, Jen and Shaun joined forces to interview Sara as she explained her journey and her suffering. We would really appreciate it if you could share or donate to this GoFundMe campaign. Help for Sara's surgery – to rid her office horrific condition. https://gofund.me/692b69e8

There are some things that are more difficult to discuss than others - sensitive, vulnerable topics that don't get enough air as a result of the bravery it takes to discuss them. PGAD (Persistent Genital Arousal Disorder) is certainly one of them. Alongside myriad other pelvic conditions, PGAD is one I have been hearing about privately from people for years. Laura is the first to have reached out wanting to discuss it, and share her story. It's so important that we talk about the hard stuff, the quiet stuff, the stuff that makes us want to hide. Because here we are, bold and beautiful, living a human life. Enjoy this heart centered and healing conversation. XOOX n. APRIL RETREAT AT THE ART OF LIVING RETREAT CENTER 4/8-4/10 click below! https://artoflivingretreatcenter.org/event/faculty/nicole-sachs/freedom-from-chronic-pain/ Get 2 weeks free of the Curable App: www.getcurable.com/nicole My next VIRTUAL RETREAT WEEKEND is May 13-15, 2022. You will receive a copy of my FFCP Course and 4 original guided mediations FREE when you sign up (to use yourself or gift to another for the Holidays!) Click here to join us: https://www.eventbrite.com/e/freedom-from-chronic-pain-virtual-weekend-with-nicole-sachs-lcsw-tickets-210512597847 OMEGA 2022 is live and on sale for August 7 - 12th! Click here to join us for a week of total transformation! https://eomega.org/workshops/freedom-from-chronic-pain/freedom-chronic-pain?itm_source_h=search&itm_source_s=search&itm_medium_h=tile&itm_medium_s=tile&itm_campaign_h=searchcr&itm_campaign_s=searchcr Past virtual retreats recordings available for sale now on my website: https://www.thecureforchronicpain.com/buy-retreat-recordings FREEDOM FROM CHRONIC PAIN course: https://www.thecureforchronicpain.com/course FREEDOM FROM AN ANXIOUS LIFE course: Click here for all the details and to purchase! PLEASE RATE AND REVIEW THE PODCAST HERE TO HELP OTHERS FIND IT! If you are interested in supporting the many free resources I offer to get this message to the global community, please consider donating to my cause on my website, www.thecureforchronicpain.com. Look for the DONATE button on the home page. Thank you so much! ALL MY RESOURCES: Instagram: Follow me on insta @nicolesachslcsw for tons of new content Website: The Cure for Chronic Pain YouTube: The Cure for Chronic Pain with Nicole Sachs, LCSW Book: The Meaning of Truth Online Course: FREEDOM FROM CHRONIC PAIN FB Closed Group:JournalSpeak with Nicole Sachs, LCSW OMEGA General info: OMEGA INSTITUTE Subscribe Apple Podcasts Deezer iHeart RadioPublic RSS Spotify Update Description

There are some things that are more difficult to discuss than others - sensitive, vulnerable topics that don't get enough air as a result of the bravery it takes to discuss them. PGAD (Persistent Genital Arousal Disorder) is certainly one of them. Alongside myriad other pelvic conditions, PGAD is one I have been hearing about privately from people for years. Laura is the first to have reached out wanting to discuss it, and share her story. It's so important that we talk about the hard stuff, the quiet stuff, the stuff that makes us want to hide. Because here we are, bold and beautiful, living a human life. Enjoy this heart centered and healing conversation. XOOX n. APRIL RETREAT AT THE ART OF LIVING RETREAT CENTER 4/8-4/10 click below! https://artoflivingretreatcenter.org/event/faculty/nicole-sachs/freedom-from-chronic-pain/ Get 2 weeks free of the Curable App: www.getcurable.com/nicole My next VIRTUAL RETREAT WEEKEND is May 13-15, 2022. You will receive a copy of my FFCP Course and 4 original guided mediations FREE when you sign up (to use yourself or gift to another for the Holidays!) Click here to join us: https://www.eventbrite.com/e/freedom-from-chronic-pain-virtual-weekend-with-nicole-sachs-lcsw-tickets-210512597847 OMEGA 2022 is live and on sale for August 7 - 12th! Click here to join us for a week of total transformation! https://eomega.org/workshops/freedom-from-chronic-pain/freedom-chronic-pain?itm_source_h=search&itm_source_s=search&itm_medium_h=tile&itm_medium_s=tile&itm_campaign_h=searchcr&itm_campaign_s=searchcr Past virtual retreats recordings available for sale now on my website: https://www.thecureforchronicpain.com/buy-retreat-recordings FREEDOM FROM CHRONIC PAIN course: https://www.thecureforchronicpain.com/course FREEDOM FROM AN ANXIOUS LIFE course: Click here for all the details and to purchase! PLEASE RATE AND REVIEW THE PODCAST HERE TO HELP OTHERS FIND IT! If you are interested in supporting the many free resources I offer to get this message to the global community, please consider donating to my cause on my website, www.thecureforchronicpain.com. Look for the DONATE button on the home page. Thank you so much! ALL MY RESOURCES: Instagram: Follow me on insta @nicolesachslcsw for tons of new content Website: The Cure for Chronic Pain YouTube: The Cure for Chronic Pain with Nicole Sachs, LCSW Book: The Meaning of Truth Online Course: FREEDOM FROM CHRONIC PAIN FB Closed Group:JournalSpeak with Nicole Sachs, LCSW OMEGA General info: OMEGA INSTITUTE Subscribe Apple Podcasts Deezer iHeart RadioPublic RSS Spotify Update Description

.What's it like to live with non stop orgasms? We hear this and we think “oh I wish!” but really, if that was something you ACTUALLY had to deal with, what would your thoughts be? Would you be able to live your life normally? WouLtd it grow tiresome or what if it turned into pain? Ellie Simmons found herself in this situation and has struggled to find the support she needs and deserves. After taking a specific SNRI medication that had less than a 1% chance of developing this, one day she found herself not being able to stop the intense sensations that are paired when you're just about to have an orgasm. This is called Persistent Genital Arousal Disorder (PGAD) and Ellie is yet to find a doctor who will take her seriously and actually help. PSA: No one is a doctor on this podcast and therefore we aren't giving out medical advice, just a personal experience from an individual..Want to get in contact with Ellie? Send Nell a message and she will make the connection: nellwalker.mentorship@gmail.comWant that spiffy discount for Lorals? OHHH yeah! Use the code: NELL10  at www.my lorals.comWant to check out my website? Yeah you do! nellthepleasurecoach.com

Imagine having spontaneous orgasms multiple times a day. It's a real condition called Persistent Genital Arousal Disorder, that's rarely spoken about by sufferers due to the shame and stigma attached. In this episode, we're finding out what it's like to live with PGAD, and whether there's a potential cure.

Imagine having spontaneous orgasms multiple times a day. It's a real condition called Persistent Genital Arousal Disorder, that's rarely spoken about by sufferers due to the shame and stigma attached. In this episode, we're finding out what it's like to live with PGAD, and whether there's a potential cure.

Imagine having spontaneous orgasms multiple times a day. It's a real condition called Persistent Genital Arousal Disorder, that's rarely spoken about by sufferers due to the shame and stigma attached. In this episode, we're finding out what it's like to live with PGAD, and whether there's a potential cure.

Imagine having spontaneous orgasms multiple times a day. It's a real condition called Persistent Genital Arousal Disorder, that's rarely spoken about by sufferers due to the shame and stigma attached. In this episode, we're finding out what it's like to live with PGAD, and whether there's a potential cure.

Welcome to Episode 106 where we will be chatting with Robyn Jackowich all about a condition known as Persistent Genital Arousal Disorder. Robyn is a PhD candidate in Clinical Psychology at Queen's University (Kingston, ON) working with Dr. Caroline Pukall in the Sexual Health Research Lab (sexlab.ca). Robyn's research focuses on a distressing but poorly understood concern of genitopelvic discomfort called persistent genital arousal disorder/genitopelvic dysesthesia (PGAD/GD). Her program of research examines the prevalence and symptom expressions of PGAD/GD, psychosocial predictors and consequences of PGAD/GD, as well as barriers faced to accessing treatments.  Robyn is also a student clinician in the Sleep Therapy Service and Sex & Relationship Therapy Service at the Queen's Psychology Clinic.  She is a CIHR Vanier and Ontario Women's Health scholar, and her research has been recognized by awards and grants from a range of organizations including, the Journal of Sex and Marital Therapy and the International Society for the Study of Women's Sexual Health.

In this episode I interview Dr. Tayyaba Ahmed an Osteopathic Doctor about painful sex and we even delve into persistent genital arousal disorder (PGAD). We talk about why women should seek help with sexual pain, why sexual pain can happen, medical management of painful sex and so much more. Website Www.pelvicrehabilitation.com Instagram @drtayahmed Facebook https://www.facebook.com/804267583107989/

In this episode I interview Dr. Tayyaba Ahmed an Osteopathic Doctor about painful sex and we even delve into persistent genital arousal disorder (PGAD). We talk about why women should seek help with sexual pain, why sexual pain can happen, medical management of painful sex and so much more. Website Www.pelvicrehabilitation.com Instagram @drtayahmed Facebook https://www.facebook.com/804267583107989/

In this episode I interview Dr. Tayyaba Ahmed an Osteopathic Doctor about painful sex and we even delve into persistent genital arousal disorder (PGAD). We talk about why women should seek help with sexual pain, why sexual pain can happen, medical management of painful sex and so much more. Website Www.pelvicrehabilitation.com Instagram @drtayahmed Facebook https://www.facebook.com/804267583107989/

After spending the last five years honing her skills in outpatient care, Dr. Ahmed is ready to focus on her passion for treating pelvic pain. Dr. Ahmed has chosen a focused practice, because she believes concentrating on a specific field creates the greatest expertise. Chasing that greatness has been her consistent driving force. https://www.pelvicrehabilitation.com/ www.instagram.com/drtayahmed Learn how she found her calling in pelvic pain after doing her residency training in New York. She treats men and women! Learn how adenomyosis is different from endometriosis. Adenomyosis is different from fibroids. The “classic” endometriosis pain characterization. “endobelly”. Pain with periods, urinary symptoms. The only way to 100% diagnose endometriosis is with diagnostic laparoscopy – which is a surgery. Relationship between fibromyalgia and pelvic pain and endometriosis. The power of cognitive behavioral therapy in chronic pelvic pain. The role of BREATHING in pelvic pain The role of pelvic floor PT The role of pelvic floor trigger point injections – releasing pelvic muscle tension Post partum pelvic pain concerns! It can be many different things. The role of peri menopause and post menopause in pelvic pain. Lifestyle improvements people can make if they are living with pelvic pain – made endorphins!! What is NOT helpful when living with pelvic pain. – stop eating your triggers! Persistent Genital Arousal Disorder (PGAD) – under-diagnosed, very bothersome, chronic and debilitating. Learn about “hard/flaccid” – something new to me! Is it a male PGAD? --- Send in a voice message: https://anchor.fm/kj-casperson/message

Allison Behringer, host of the documentary podcast Bodies, joins Tristan to talk about the women (and marginalized genders) whose stories she shares along with their medical mysteries. It’s a fascinating show where the interviews are deeply personal and intimate, yet what we learn has far-reaching consequences beyond one person’s life. She covers painful sex, medical devices, the pill, vaginal mesh, menopause, ALS, PGAD (persistent genital arousal disorder) and more. And she employs a collaborative method to center her subjects in their stories so they have the space and the power to tell their truths. We discussed discrimination in health care, the detrimental effects of shame, how women’s symptoms are trivialized, and how to be an advocate for your own health care. Plus, we delve into her own medical mystery—which involved painful penetration and sex—and the journey to solve it.   Allison Behringer is a Brooklyn-based a narrative audio journalist and podcast producer. She is the creator, host and producer of Bodies, a feminist documentary podcast, supported by NPR-affiliate KCRW and Webby-nominated for Best Documentary. Each episode is the journey of one person (specifically women and marginalized genders) to solve their medical mystery. It combines intimate, nuanced storytelling with health reporting to uncover the layers that affect health, like racism, sexism, and capitalism. She got her start in podcasting as the host and producer of The Intern, a first-person narrative documentary about navigating the startup tech world at betaworks and living in NYC.

Eric försöker sig på ett Kent-intro och det slutar givetvis i nazism. Kent förklarar sina posttraumatiska stressymptom från husvagnar och Eric får flashbacks till barndomens knalleliv. Porr som kulturyttring, skräck och rädslor från barndomen, chakra, Chucky, klädkoder och PGAD. VARNING: Konsultera din psykolog, psykiater och andliga vägledare före lyssning. Kan verka stötande, kränkande och väcka känslor. @ericochzigenaren @ezigenaren 0790345699 ezigenaren@gmail.com

Persistent Genital Arousal Disorder

We have all probably heard or read about how antidepressants can cause sexual dysfunction such as decreased libido, erectile dysfunction, decreased response to sexual stimuli, and delayed or absent orgasm. Given how widespread the use of antidepressants are, you may have personal experience with an antidepressant affecting your sexual function. What you may not know is that research consistently finds that sexual dysfunction continues in the majority of people even after they stop taking the medication. This is known as Post SSRI Sexual Dysfunction, or PSSD.  Less frequently, another form of sexual dysfunction may continue to manifest even after discontinuation of the medication: Persistent Genital Arousal Disorder (PGAD). This is essentially the opposite of PSSD, with PGAD causing a relentless sense of arousal and discomfort in the genitals, but without any accompanying feeling of desire.  So this is what can happen to adults. What happens when children are given antidepressants, right through their puberty? How does it affect their sexual function? In this episode I interview Daryl Brown about his experience with the mental health care system when he started to be medicated with antidepressants when he was 9 years old - even though he wasn’t depressed - and medicated with antipsychotics, even though he wasn’t having psychosis.  Daryl shares how it has affected his sexual function, and by extension his sense of self and his intimate relationships. Daryl asks the tough questions of the medical system: How could he, a mere child, have been given multiple medications - for over a decade - that provided no benefit, only harm? And how is that doctors continue to deny antidepressants can cause sexual dysfunction after they have been discontinued, in spite of research and patient reports confirming the harm? SHOW NOTES OCD and Tourette's syndrome 0:07:15 Daryl grew up in a suburb of London (United Kingdom) with 2 good parents, they are not together, but lucky to have them - a mix of nature and the city - 2 older siblings, 1 younger sibling 0:08:15 But missed a lot of family time due to mental health issues and hospitals - and his behaviour changed on the psychiatric drugs - and he went to special needs school far away - Daryl had some movement disorder and phobias since he was a baby 0:09:15 His brother noticed Daryl had strange movements as a baby and told others that Daryl had Tourette's Syndrome before he was diagnosed - Daryl got much sicker when he was about 9 years old, his OCD (obsessive compulsive disorder) and Tourette's got disabling worse 0:10:15 Daryl OCD caused him to spin around, and do repetitive rituals in a particular way - if it didn't feel like it went right, he would have to start the ritual over again - when it got really bad it was life consuming - he lost a lot of sleep worrying - a common feature 0:11:15 OCD symptoms was frustrating for Daryl, when it got out of control - Tourette's manifested has a lot of arm movements, leg movements, constantly parts of his body moving, even if people couldn't see what was happening with his toes and fingers, known has motor tics - Daryl also had a vocal tic of clearing his throat and making a weird noise 0:13:15 When Daryl's OCD and Tourette's got really bad, it was hard to live with the symptoms, but when mild they felt like a normal part of Daryl's life - for Daryl, only when its a the extremes does is it bothersome, and that may sound strange to some people - it doesn't interfere too much 0:14:15 Daryl remembers that his school was pushed around his phobias - other kids were yelled at, Daryl was yelled at when he coloured outside the lines - he was constantly being punished and he got scared at the way the other children were shouted at as well - they pushed him really hard about his phobias, and he tried really hard to break through and he did, but it was very hard - it all became very stressful and made everything a lot worse - at one point he ran away from school 0:15:15 The OCD and Tourette's was interfering with Daryl's ability to get dressed for school and it was all a stress on his Mom as she had to go to work - as Daryl got sicker, she called the local GP and child psychiatrist and they started prescribing medications - Daryl was only 9 years old 0:16:15 The child psychiatrist was convinced Daryl had OCD and brought an orange sugary liquid for Daryl to drink - it glowed in the dark - turns out the orange drink contained an SSRI (selective serotonin reuptake inhibitor - an anti depressant) - though Daryl didn't have depression - NICE (the UK's National Institute for Health and Care Excellence) guidelines said antidepressants are the standard treatment for OCD Antidepressants and antipsychotics 0:18:15 Daryl doesn't remember the effects of it, other than it tasted good because of the sugar and it had a cool colour - but it had no effect on his symptoms - because he was so sick he missed some school, so they visited a children's mental hospital 0:19:15 They said he needed to come in straight away - it was a diagnostic hospital, so children would be there for a year, there would be cameras watching them, and meeting with psychiatrists and psychologists and everyone in between - there was also a school so Daryl got some form of education - they put Daryl on anti-psychotic medications for the Tourette's Syndrome, also according to NICE guidelines - even though Daryl didn't have psychosis - so they are giving him both antidepressants and antipsychotics 0:20:15 The antipsychotics had no positive effect on his Tourette's, they just made his movements even more tiring on his body and upsetting - after a few months, his symptoms died down a little bit because some normality to his environment had returned and he was around other children - not because of the medications 0:21:15 Daryl's body also got used to the mixture medications, so he started to feel less tired - but he put on a lot of weight, when historically he was impossible for him to gain excess weight - Daryl also started to experience cravings, but he didn't feel in control of his actions and his emotions were all over the place, which is not like Daryl - crying one minute, angry the next, arguing with everyone, but didn't know why he was arguing but couldn't stop himself 0:22:15 It was frightening and confusing - after 9 months they confirmed diagnosis of OCD and Tourette's Syndrome - Daryl was recommended to go to a special needs school, but it was the middle of the school year and it was a nightmare to find a school - they did find one very far away, but that meant Daryl was not part of his home community 0:23:15 Daryl also continued treatment in a center that specialized in OCD and Tourette's in children and adolescents in south London - but that was also very far from where Daryl lived, so he had to go to that center and then school, and it was too much traveling and stress - and Daryl wouldn't say there was any real treatment - they expected Daryl to continue to take the antidepressants and antipsychotics, there was no plan to come off of them - it was expected that Daryl take them, no questions asked 0:24:15 Living away and going to another school was hard - if Daryl was strange to the other children in the community before, he was a lot more strange when he was removed - he would get teased in the street, and that got worse 0:25:15 Daryl really missed out on any thing in the community and didn't have a social life or a normal childhood - he was a normal intelligent child and wanted to do what every body else was doing - he did get to go home on weekends - the treatment center maybe helped with some of the phobias Daryl had Seizures. Brain Tumour? 0:26:15 Daryl stopped going to the after school day center after about 2 years - but there was no plan to stop the medication - sometimes there were promises that maybe one day in the future if their treatment miraculously works, he might be able to stop the meds - but there was no realistic plan to stop them, even when he stopped going 0:27:15 Daryl continued on the medication until he was living on his own and was 21 years old - Daryl had some seizures and passed out a couple of times - he didn't know yet it was from the medications - Daryl just attributed the new symptoms to OCD and Tourette's 0:28:15 Even though it was a special needs school, Daryl joined the football (soccer to North Americans) team and started to lose the excess weight - but it was hard to run, he was wheezing, because of the medications - but it was good to play football for the short periods he could - because the meds changed Daryl's behaviour so much, he was always arguing and he wasn't the same person - their only explanation was that Daryl had mental illness - as a result, Daryl lost contact and relationships with his siblings 0:29:15 The medications also blunted Daryl's impulsivity - he ran into traffic once - Daryl knows that he did not think that way before the meds, or since he stopped the meds - another time he took all his meds at once, not to kill himself, but because he couldn't stop the impulse 0:30:15 When Daryl was 21 years old he got very, very sick - and his erections stopped working properly - his penis wouldn't respond as it previously had with women - nor was he having the spontaneous erections like other young men 0:31:15 That was very scary - Daryl looked at the leaflets for the medications and saw sexual dysfunction far down the list - he went to the psychiatrist and he said it was probably the medications, we know about this, go off the medications and every thing will go back to normal - he just had to get a blood test to check on things - the results showed that Daryl's prolactin was through the roof - and wouldn't go down for a long time and they said that was impossible, 'nobody's prolactin stays that high' 0:32:15 They thought maybe it was a brain tumour causing high prolactin, but didn't really elaborate and left Daryl thinking he may have a brain tumour and wondering how long he has to live - but it wasn't a brain tumour, his prolactin levels normalized but his thyroid was messed up - eventually his blood tests normalized but the symptoms didn't go away and his 'willy' never went back to normal - the doctors kept fobbing him off, 'sometimes it takes a couple of weeks' - 'sometimes a couple of months' - then they said it was impossible because the drug had completely left his system and it had nothing to do with them Withdrawal weirdness 0:33:15 Then they started to say it was caused by a mental illness - the withdrawal actually caused a weird psychosis, deluded and confused thinking and weird adrenaline, all sorts of symptoms like brain zaps, even to his genitals when they were over-sensitized during withdrawal, like when he ejaculated when he was shopping, it is known as PGAD - Persistent General Arousal Disorder - and this is known to happen temporarily during withdrawal - but at 21 Daryl knew this was not normal 0:34:15 But the doctors and psychiatrists didn't believe in that, but Daryl knew full well what was going on and wondered how little did they know? - he looked up on the internet the medications he was on - they had added another med, Lyrica, to his antidepressant and antipsychotic, and the doctors touted how is was a 'wonder drug' and 'amazing' 0:35:15 Who knows how many other people they've given it to - its classified as a class 3 drug now, a street drug - Daryl never had an apology for that either - so he had to withdraw from all of those meds - they don't know how these meds work, even the drug companies don't know how or why - Daryl felt fear realizing for the 1st time how little these psychiatrists and psychologists really knew 0:36:15 The anxiety caused by withdrawal was a lot to deal with - also brain zaps, a full body 'electric shock sensations' during withdrawal as described in the NICE guidelines - Daryl started by tapering off the medications by cutting up the pills, but at 21 and his dick not working, and realizing the so-called experts didn't know much, was very scary and he wasn't going to keep taking them - he completely stopped taking them after about 4 weeks because they were making his dick numb and not work 0:38:15 Daryl wanted to know who did this to him and why - he felt targeted in that they were giving a child with disabilities medications that they did not know how it would affect him, its really abusive and he didn't feel like he was safe - and it is very lucrative for these pharmaceutical industries and in reality it is very dangerous and nobody stepped in any where 0:39:15 When Daryl was off the medications, there was no change in his OCD or Tourette's symptoms - there was no need to take these substances - Daryl says you would think they would have questioned that 0:40:15 Daryl advocates for safety measures to be taken and joined the Everyday Psych Victims Project and he's interviewed a few people who've been through the mental health system to give them and himself a voice - there is a 'side effect' charity with some psychiatrists and psychopharmacologists that know about this and have read the research, they're called Rxisk http://www.rxisk.org/ - and they are very aware of the permanent sexual side effects of antidepressants Brain Zaps and a Marathon 0:41:15 Both SSRIs and SNRIs - they've started a campaign to raise money and awareness - so Daryl signed up for a marathon to raise money and awareness for them - but it is hard to ask people to give money because your dick doesn't work - and it is not a mainstream charity, and some people won't donate for that reason - but Daryl followed through and did the marathon even though he missed all the training due to injury, but managed to finish somehow 0:42:15 Daryl has always liked sport, football, exercise - during withdrawal needed to distract from the horrible physical symptoms, and one of the ways to deal with that was to go for a run - doing sprints especially helped to manage his adrenaline - however, it felt like his life plans had been thrown out the window and he was very upset about what had been done to his genitals 0:43:15 But it doesn't just affect his genitals, it affected everything, how he felt and related to the world, especially at that age - so he focused on sport as a distraction, and that gave him some experience for the marathon, but he only played football twice about 2 weeks before the marathon - he ran until about half way then started walking and the last 10 kms was painful and a 6 hour finish time 0:44:15 Daryl tried to train through the injury as much as he could, but it came to a point where he was doing more damage - but he was determined to show up at the start line 0:45:15 He thought he would walk it, but when you line up at the start line you run with everyone else and he just tried to keep going - the music, crowds and kids cheering so he kept going as far as he could 0:46:15 With the brain zaps, his dick not working properly, or ejaculating sporadically, and pain in stomach - and that has not gone away, there is not a day that he is not constipated - Daryl had been medicated for over a decade, all through puberty 0:47:15 It impacted his emotions, angry one minute, sad the next, hyper the next - impeded his ability to think - he had to untangle his delusions and illusions - the adrenaline and emotions were all over the place and exercise even those out a bit - Daryl will turn 30 soon 0:48:15 In his early 20s it was extremely difficult to socialize, he felt like an alien, and he didn't want to do those things like flirting - it was horrible to be the only one in the world in that situation0:49:15He didn't think he'd ever socialize again, he wondered what planet he was living on - there is less pressure now to be flirtatious, so its a little easier - but he still often feels terrible when he compares himself to other people - so it still affects him a lot, but less so Post SSRI Sexual Dysfunction 0:50:15 Daryl still has quite a lot of pain, the stomach pain can be quite nasty - he does part-time work and volunteering, but the social part of his life is always missing - he has a leg injury from 2 years ago and still no diagnosis and he's limping very badly, he barely made it down stairs this morning, and this is after having hip surgery - there is talk of a hip replacement and pain killers but not sure what will happen with that 0:51:15 His hip and leg problems could be due to pressure from his bowels, he doesn't really know - and there has not been much research on side effects of psychiatric drugs - and he's been put off seeing doctors 0:52:15 Daryl likes watching football, but would rather be playing - he likes writing songs on his guitar and going for a jog - so exercise is a big part of self care and he's not sure what he'll do if his leg doesn't get better - though it hurts a lot to play guitar 0:53:15 Daryl has a couple of good friends that he could tell what has happened to him and they still liked him as a human being and that helped a lot because he felt he wasn't interested in flirting any more - some people thought he was going through a strange weird period, or was dealing with trauma, and that pushed people away as well 0:54:15 Daryl was wary to be public about his experience, set up a website and did a couple of videos, and started telling people in his life as well, to share his experience 0:55:15 There was no outpatient groups for adults, and they weren't allowed to socialize with other patients outside the hospital or clinics - one of their concerns is they don't want patients to meet, and they don't want patients to talk about their experiences with medications - Daryl thought he was the only one having this side effect and was on his own, and wasn't allowed to talk to the others to see if they also had this side effect - it is called Post SSRI Sexual Dysfunction (PSSD) 0:56:15 It means that the sexual side effects of SSRIs continue even after you stop taking them - he discovered others on the internet and that's when he decided to do something about it, since keeping it a secret wasn't working so well - it felt good to know there was other people, and that he was doing something about it - he also found other people that had bad experiences in the mental health system as well like Speak Out Against Psychiatry, Friends of East London Loonies, and The Every Day Psych Project 0:57:15 Daryl doesn't want this to happen to any one else, and the lack of regulation - it is criminal except they've got themselves covered legally - there is no reason except bank balances and careers that are set up on misinformation and secrecy and it needs to stop - and Daryl deserves validation that itactually happened instead of living his whole life with some imaginary thing that isn't happening Doctor Denial of PSSD 0:58:15 When he was a child, being around other children also going through similar experiences was good, but the drugs were not necessary 0:59:15 The school could have been more accommodating to a child instead of being so aggressive when that child wasn't exactly how they wanted them to be - but the staff were nice - he was scared before going in that the staff would be in white coats and do weird experiments on him, which they did, but not that they were collecting the data on their experiments - the staff were nice and well meaning, but obviously somebody should have intervened and stopped them from drugging every one into oblivion 1:00:15 His relationships now with his parents is good, but its taken a chunk out his life - when Daryl told his Dad about PSSD, his father said he was worried this would happen - his Mom was upset to, she was lied to and told the meds were safe - but the doctors insist that there can't be any permanent harm once the meds are out of the system - there is no risk, 'there's nothing to lose' as they say 1:01:15 They try to convince any one in his life that Daryl is mad and its not real - and they tried to turn his family against him and not to believe him - so its obviously very upsetting to go through - when Daryl was going through withdrawal he was paranoid so it was difficult to speak to his Mom and Dad - and he missed out a lot of life with his siblings 1:02:15 Daryl feels like his OCD and Tourette's symptoms are part of him, and they are not always at their worse - so its not the worse thing in the world - Daryl has hunch, in listening to other parents, that vaccines as babies may be causing tics and stuff - but there is a lack of research on vaccinations as well Connect with Daryl Brown: Twitter: @RunAgainstCastr Daryl's blog: PSSDblog Daryl's marathon campaign Info about Post-SSRI Sexual Dysfunction: Rxisk The Everyday Psych Victims Project - Their YouTube and Twitter __________________________________________________________________________ Be a podcast patron Support Medical Error Interviews on Patreon by becoming a Patron for $2 / month for audio versions.  Premium Patrons get access to video versions of podcasts for $5 / month. Be my Guest I am always looking for guests to share their medical error experiences so we help bring awareness and make patients safer. If you are a survivor, a victim’s surviving family member, a health care worker, advocate, researcher or policy maker and you would like to share your experiences, please send me an email with a brief description:  RemediesPodcast@gmail.com  Need a Counsellor? Like me, many of my clients at Remedies Counseling have experienced the often devastating effects of medical error. If you need a counsellor for your experience with medical error, or living with a chronic illness(es), I offer online video counseling appointments. **For my health and life balance, I limit my number of counseling clients.**  Email me to learn more or book an appointment:  RemediesOnlineCounseling@gmail.com Scott Simpson: Counsellor + Patient Advocate + (former) Triathlete I am a counsellor, patient advocate, and - before I became sick and disabled - a passionate triathlete. Work hard. Train hard. Rest hard. I have been living with HIV since 1998. I was the first person living with HIV to compete at the triathlon world championships.Thanks to research and access to medications, HIV is not a problem in my life. I have been living with ME (myalgic encephalomyelitis) since 2012, and thanks in part to medical error, it is a big problem in my life. Counseling / Research I first became aware of the ubiquitousness of medical error during a decade of community based research working with the HIV Prevention Lab at Ryerson University, where I co-authored two research papers on a counseling intervention for people living with HIV, here and here.  Patient participants would often report varying degrees of medical neglect, error and harms as part of their counseling sessions. Patient Advocacy I am co-founder of the ME patient advocacy non-profit Millions Missing Canada, and on the Executive Committee of the Interdisciplinary Canadian Collaborative Myalgic Encephalomyelitis Research Network. I am also a patient advisor for Health Quality Ontario’s Patient and Family Advisory Council, and member of Patients for Patient Safety Canada. Medical Error Interviews podcast and vidcast emerged to give voice to victims, witnesses and participants in this hidden epidemic so we can create change toward a safer health care system. My golden retriever Gladys is a constant source of love and joy. I hope to be well enough again one day to race triathlons again. Or even shovel the snow off the sidewalk. Remedies Counseling - Making Life Better Have you had traumatic experiences with the health care system? Are you living / struggling with a chronic illness? Do you need a counsellor with proven expertise and experience to make life better? Book an appointment with me at RemediesOnlineCounseling@gmail.com    

This week, Christine Hazel Decker tells us about being afflicted with a rare disorder that caused her to have over 100 orgasms a day, and how it both played into and prepared her for her gender transition. Follow us on Instagram, Twitter, and Facebook:@beingtherepod www.patreon.com/beingtherepod More shows from PODCAST JUKEBOX: Disability After Dark | Queers Next Door |  Will Sean Podcast? | The Goth Librarian Podcast Drinks with God | ProudToBeKinky | NO LOVE LOST Off the Cuffs: a Kink and BDSM podcast Being There is Produced and Engineered by:Sean M. Corkery (OCP Productions, LLC) Music:510 (intro) 510 Reprise (outro)Written by Sean M. Corkery Performed by Old Saws Recorded and Engineered by Rob Tav

Aideen T. Finnola grew up in a religious cult, then spent two decades married to a closeted and abusive gay man. She's now an "unapologetic and empowered survivor," a Martha Beck-certified life coach and author of the memoir, My Exquisite Purple Life. She chats with August about her healing journey, her mixed orientation marriage, ways purity culture impacts female sexuality, healing benefits of masturbation, "straight spouse" support, and more. August weighs in on sleep-gasms then discusses persistent genital arousal disorder (aka PGAD) and pleasure when you have a chronic pain condition with Dr. Megan Fleming. Learn more about Aideen: aideentfinnola.com Sign up for Girl Boner extras: augustmclaughlin.com Download a free gift form Dr. Megan: greatlifegreatsex.com Shop for fun toys: thepleasurechest.com

Tom and Mark are joined by comic Nate Ford and special guest Christine Hazel Decker. They talk about Christine's book and her life and how it has been affected by PGAD.

This week on The Nerdpocalypse Podcast, the guys are back (minus Terrence). In the middle of a studio move (hence no intro or outro music), the guys discuss the latest Mission Impossible movie and Tom Cruise's career overall, Alf reboot, Living Single reboot, first image of the upcoming Terminator film, 24 prequel in the works, the Fox News harassment film, Altered Carbon season 2, Max Landis' next project, Black Adam solo film being pushed to next year filming, and much more. SHOW NOTES CHECKED OUT Christopher Robin The Darkest Minds The Spy Who Dumped Me Mission Impossible: Fallout   LIGHTNING ROUND Alf tv show reboot in the works at Warner Bros The Sandlot prequel is in the works at 20th Century Fox Living Single reboot in the works at Fox First official image from the upcoming Terminator film Marc Maron joins the cast of “Joker” Fox developing a 24 prequel focusing on young Jack Bauer MOVIE/TV NEWS Zack Snyder gives more information on Robin in Batman vs. Superman: Dawn of Justice #MeToo movement heads to the movies Iron Fist season 2 on Netflix will be 10 episodes instead of 13 Altered Carbon season 2 will star Anthony Mackie Max Landis teases Creature of the Black Lagoon remake The Rock’s schedule helps to delay Black Adam film WTF? by JayTeeDee Micah: http://bit.ly/2I9m4GC Jay: http://bit.ly/2Mezm3y TRAILERS Ozark - Season 2 Venom

Adam and Dr. Drew open the show discussing how Drew believes that what may be missing from our collective society is the lack of interaction. They also discuss a recent excursion undertaken by one Jimmy Kimmel that Drew feels is wildly out of character for the man he once knew to be Jimmy Kimmel. They then turn to the phones and speak to a caller who has a real life version of Adam's fictional Restless Cock Syndrome, known as PGAD. They also speak to a variety of other callers on a host of topics. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this segment, Jeff talks to PGAD advocate Kim Ramsey.

Tom and Mark talk with special guest Christine Hazel Decker who just released her new book Stripped: When Dignity Disappears: A Life Bared by PGAD and Transgenderism. This week’s local event Steny’s Tavern in Milwaukee is going to attempt the world’s largest bloody mary toast on May 27th. Tom shares a story about a girl that got sent home from school for wearing a tank top. Tom also shares a story on the origin of 420. They talk with Christine about her book, PGAD, the Packers, and more. Check out the book on Amazon here: https://amzn.to/2IHd6gA Christine’s YouTube channel: https://www.youtube.com/channel/UC7fOFFgaVaU42IWTd5UoSoA/videos?view=0&sort=dd&shelf_id=1

Devi speaks with Kim Ramsey about what it is like to live with Persistent Genital Arousal Disorder.Persistent Genital Arousal Disorder, also known as PGAD or Restless Genital Syndrome or Persistent Genital Arousal Syndrome, is a condition characterized by unrelenting, spontaneous and uncontainable genital arousal in females. The condition may or may not include arousal with orgasm and/or genital engorgement. The patient's arousal is not linked to sexual desire. Because PGAD people involuntarily challenge medical and sexual norms, they are often culturally, emotionally, socially and medical marginalized. This leads to economic, political and interpersonal dynamics that can cause the patient severe distress. We are humans with a disorder that has not yet been fully ratified by the medical community and therein lies the problem. Find out: What is Persistent Genital Arousal DisorderWhat are the symptomsSurviving the aftermath of the media: Informing health care providers and standing up for people like KimHow to deal with it and where you can go for help Listen live and call in with questions!About Kim Ramesey ~Kim Ramsey has been a nurse for 21 years. She works primarily with college health students and part time in the Emergency Dept. Kim is currently studying to earn a Masters in Nursing. She hopes to continue her education to earn a doctorate in Human sexuality.Kim is also a human with Persistent Genital Arousal Disorder. She uses the word human to emphasize that the human aspect should not be forgotten when mentioning this disorder.Kim is an administrator for a support group for people who have PGAD.Connect with Kim at:Email Address: kimsamram@hotmail.com

Rare Disorder Activist, Kim Ramsey, joins Tamika Cody once again in another episode of Better Said Than Written. This time around Kim shares her personal story of persistent genital arousal disorder (PGAD). Kim walks us through when she realized she was suffering from PGAD, finding treatment and how she recovered from backlash from the Black community, the medical community, and the media.

On this episode of Better Said Than Written, Tamika Cody sits down with Rare Disorder Activist, Kim Ramsey, to discuss the rape allegations of Bill Cosby, domestic violence and taps on Persistent genital arousal disorder or PGAD.